2011 Compendium of Health Data Sources for Adults with Intellectual Disabilities Center for Developmental Disabilities Evaluation and Research, Shriver Center, University of Massachusetts Medical School Human Services Research Institute November 2011 Authors: Alexandra Bonardi, Emily Lauer, Courtney Noblett University of Massachusetts Medical School’s Center for Developmental Disabilities Evaluation and Research (CDDER) Sarah Taub, Julie Bershadsky Human Services Research Institute The authors thank Patrick Gleason for his editorial assistance, and members of the RTOI Project Advisory Group for their formative guidance throughout the development of this work. RTOI Project Advisory Group: Robert Baldor, Mary Blauvelt, Val Bradley, Mike Fox, Matt Janicki, Christine Linehan, Chas Moseley, Deirdra Murphy, Susan Parish, Ismaila Ramon, Steven Staugaitis. This compendium was developed as part of the 2010 Research Topic of Interest (RTOI): Health Surveillance of Adults with Intellectual Disability, awarded by the Association of University Centers on Disabilities (AUCD) and funded through a cooperative agreement with the Centers for Disease Control and Prevention (CDC) National Center on Birth Defects and Developmental Disabilities (NCBDDD). Additional project materials can be accessed by contacting the Principal Investigator at
[email protected]. COMPENDIUM OF HEALTH DATA SOURCES FOR ADULTS WITH INTELLECTUAL 2011 DISABILITIES Table of Contents Introduction ...................................................................................