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Annual Report 2019 Cooperating saves lives start contents Contents Foreword 1. The Eurotransplant community 2. Eurotransplant: donation, allocation, transplantation and waiting lists This document is optimized for Acrobat Reader for best viewing 3. Report of the Board and the central office experience. 4. Histocompatibility Testing Download Acrobat Reader 5. Reporting of non-resident transplants in Eurotransplant 6. Transplant programs and their delegates in 2019 A high resolution version of this document is also available. 7. Scientific output in 2019 Download high resolution pdf 8. Eurotransplant personnel related statistics 9. Abbreviated financial statements All rights reserved. No part of this publication may be reproduced, stored in a retrieval system List of abbreviations or transmitted, in any form or by any means, electronic, mechanical, photocopying or elsewise, without prior permission of Eurotransplant. For permissions, please contact: [email protected] start contents Foreword Dear reader, We are proud to offer you the 2019, digital edition of the International organ exchange Eurotransplant Annual Report. In this environmentally In 2019, 6981 organs from 2042 deceased donors were friendly, digital report you can easily browse via the used for transplantation for patients on the waiting top menu. Weblinks are added to facilitate in finding list of Eurotransplant. This decrease of the number of more specific information on relevant websites. The reported donors is 5,5% compared to 2018 (2159). report provides an overview of the key statistics on 21.5% of organs were exchanged cross-border between organ donation, allocation and transplantation in all the Eurotransplant member states. Thanks to this Eurotransplant countries. international exchange, a suitable donor organ could be You can also read in the report activities within found for many patients in the different Eurotransplant Eurotransplant that took place, decisions that were member states. This specifically applies to patients in made as well as the financial status. Comprehensive and specific groups such as children, patients with acute more detailed annual statistics are online available via organ failure (high urgency patients) as well as patients statistics.eurotransplant.org. with a complex medical background (highly immunized patients). For these specific patient groups the chance Together on a life saving mission of receiving a suitable organ in time is significantly All healthcare providers work together 24 hours a day higher, due to the cooperation within Eurotransplant. with the same common goal to ensure that the best possible match is made between available donor organs Towards a new Governance structure and patients on the transplant waiting list. In this After almost five years of discussion, adaptations and way, a growing number of patients have a healthy life preparations, the goal of the Eurotransplant Board and a better quality of life. The cooperation between has been achieved: a new Eurotransplant governance Eurotransplant and non Eurotransplant countries is structure came into effect in January 2020. of great value. Through cooperation, data exchange 2019 was dominated by the implementation of the new, and monitoring, we also make a joint contribution democratic structure that meets current standards, to transplant medicine. We would like to take this obligations and best practices in non-profit governance. opportunity to express our gratitude for the good Following the approval of the General Assembly and fruitful cooperation for the benefit of all patients in October 2019, the new structure consisting of a awaiting their life-saving organ transplants. Supervisory Board, Board of Management, a Council of start contents Foreword Administration and a Council of Medicine and Science, Loss of Prof. Dr. Xavier Rogiers came into effect shortly after. With this structure, the On November 20, 2019 Eurotransplant’s vice president national authorities, the national transplant societies and long-time board member Prof. Dr. Xavier Rogiers and the Eurotransplant transplant programs have input passed away. He will be sorely missed by all of us. Prof. in the policy and practice of Eurotransplant. Detailed Dr. Rogiers made invaluable contributions to setting information on the new governance structure can be quality standards in liver and intestinal transplantation found on the renewed Eurotransplant public website and allocation, developing the all-important data eurotransplant.org/about-eurotransplant/organization/ registry, and lately, having intense debate and negotiation on the new Eurotransplant governance Relocation Eurotransplant office structure. We will remember him as a Moving the Eurotransplant office to another location good friend, a wise advisor and a tireless supporter in Leiden played an important role in 2019. Due to of cooperation. the efforts of all our employees and the excellent preparations, the relocation was successfully completed We are looking forward to a continuation of our in December 2019 without interrupting the 24/7 good cooperation with all partners in our eight allocation process. member states. Dr. Peter Branger Serge Vogelaar, MD General Director Medical Director 1 2 3 4 5 6 7 8 9 start contents The 1 Eurotransplant community “ I am able to lead a normal life thanks to the transplant.” 1 2 3 4 5 6 7 8 9 start contents The Eurotransplant community The Eurotransplant community The Stichting Eurotransplant International Foundation 1.1 Mission • To further improve the results of transplantation is a non-profit international organization that facilitates through collection and evaluation of donor, recipient, allocation and cross border exchange of deceased donor Organ transplantation offers life-saving and quality- allocation, transplantation and follow-up data, organs for its members: Austria, Belgium, Croatia, of-life enhancing treatment options to patients with scientific research and to publish and present these Germany, Hungary, Luxembourg, the Netherlands and end-stage organ failure. Aiming to fulfill this potential, results; Slovenia. In this international collaborative framework, Eurotransplant was established and acts as a mediator • The promotion, support and coordination of organ the participants include all transplant hospitals, tissue between donor hospitals and transplant centers, for the donation and transplantation in the broadest sense typing laboratories and hospitals where organ donations benefit of such patients. of terms. take place. The Eurotransplant region is serving a As such, Eurotransplant manages the complex process total population of around 137 million people. The of achieving the best possible match between available More information on the Eurotransplant’s aims can be organizational structure is democratic, with a Board of donor organs and patients on the transplant waiting list. found on eurotransplant.org/about-eurotransplant/ Management, a Management Team, an Assembly, a Council, Eurotransplant acts transparently and in accordance with eurotransplants-aims eight Advisory Committees of which four organ specific the regulations and ethical principles of the European (kidney, liver/intestine, heart/lung, pancreas) and four Union. This means that Eurotransplant fully complies in charge of organ procurement, tissue typing, ethics and with the national legislation of the Member States. 1.2 Method of working finance as well as an Information Services Working Group The Eurotransplant Foundation is actively involved in (ISWG) and an Eurotransplant Registry Advisory Committee developing best practice recommendations and policies The allocation of organs is an information-intensive process (ERAC). With this structure, the national authorities in to further improve organ allocation and transplantation which depends on an effective and efficient information the member countries, the national transplant societies results, based on robust data collection and state-of-the- and communication system. Therefore Eurotransplant and the Eurotransplant transplant programs have input art scientific research. continuously develops and maintains information systems in the policy and practice of Eurotransplant International that are required to support this process. These systems Foundation. Information on the current organizational To achieve its mission Eurotransplant has set the following process the vast amount of information, support the structure can be found at eurotransplant.org/about- goals: analysis of processes, of allocation rules and of other eurotransplant/organization/ • To achieve an optimal use of available donor organs and information and transform this into effective information tissues; systems. It is an integrated automated system designed • To secure a transparent, objective and fair allocation to collect, store and share information pertinent to the system, in compliance with national rules, based upon services provided by Eurotransplant. medical and ethical criteria; • To support donor procurement to increase the supply of Eurotransplant adequately tests all procedures and systems donor organs and tissues; and maintains a quality system to assure this. 1 2 3 4 5 6 7 8 9 start contents The Eurotransplant community Eurotransplant is committed to protecting the privacy of individuals and ensuring the security of their personal health information. It has designed a privacy and security framework which enables an effective coordination of privacy and security policies. The