#WEGOHealthChat Transcript
Healthcare social media transcript of the #WEGOHealthChat hashtag. Tue, March 13th 2018, 12:50PM – Tue, March 13th 2018, 2:10PM (America/Detroit). See #WEGOHealthChat Influencers/Analytics.
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WEGO Health @wegohealth 7 days ago It's the final countdown. 10 min until we start chatting with @simonrstones and @mikeveny about combating the stigma of chronic illness. #wegohealthchat
Simon Stones @simonrstones 7 days ago RT @abrewi3010: @Lacktman @AmolUtrankar @chrissyfarr @StanfordMedX @larrychu You ever participated in twitter chats like #patientchat, #wtf…
Mike Veny @mikeveny 7 days ago RT @wegohealth: It's the final countdown. 10 min until we start chatting with @simonrstones and @mikeveny about combating the stigma of chr…
Candace @rarecandace 7 days ago RT @wegohealth: If you're unfamiliar with #WEGOHealthChat, here's a great reference guide to get you started! https://t.co/MqDpALi1xs h…
Simon Stones @simonrstones 7 days ago Super excited for today's #WEGOHealthChat - starting in 10 minutes! Grab a cuppa, find a comfy spot, and get ready for a great hour with like minded people https://t.co/b1iWX2P1JQ Simon Stones @simonrstones 7 days ago RT @wegohealth: It's the final countdown. 10 min until we start chatting with @simonrstones and @mikeveny about combating the stigma of chr…
Julie Cerrone Croner @justagoodlife 7 days ago RT @SimonRStones: Super excited for today's #WEGOHealthChat - starting in 10 minutes! Grab a cuppa, find a comfy spot, and get ready for a…
Julie Cerrone Croner @justagoodlife 7 days ago Who will be joining us in a few minutes? #wegohealthchat https://t.co/xlEfb2uwpT
Julie Cerrone Croner @justagoodlife 7 days ago And just FYI #wegohealthchat https://t.co/vEuvLcMndO
AutonomicRN @autonomicrn 7 days ago @justagoodlife I actually was thinking of you this morning! #WEGOHealthChat
WEGO Health @wegohealth 7 days ago 5 min until go time! If you're joining the #WEGOHealthChat make sure to say hi, introduce yourself & tell us where you're tweeting from!
AutonomicRN @autonomicrn 7 days ago Now it's the final countdown! https://t.co/R9uR80GUTM #WEGOHealthChat
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @wegohealth: What is one misconception you hear regularly about your life with #chronicillness? How do you handle these misconceptions a…
Backpack Health @backpackhealth 7 days ago RT @wegohealth: 15 minute countdown until our #WEGOHealthChat from 1-2pm EST today! Today we're joined by @SimonRstones and @MikeVeny! Don'…
Kristen @srvingofspprt 7 days ago Annoyed that #tweetdeck no longer lets me add my gifs. Not cool for my #WEGOHealthChat game! AutonomicRN @autonomicrn 7 days ago didn't mean for bing to show up! #WEGOHealthChat
Mary Pettigrew @pettigrew66 7 days ago RT @wegohealth: 5 min until go time! If you're joining the #WEGOHealthChat make sure to say hi, introduce yourself & tell us where you're t…
WEGO Health @wegohealth 7 days ago Welcome to the March #WEGOHealthChat and thanks for joining us! Today's chat will be co-hosted by @simonrstones and @MikeVeny who are amazing #PatientLeaders with lots of info to share with you today! https://t.co/QhAK0UCPGB
Kristen @srvingofspprt 7 days ago It's timeeeee #WEGOHealthChat https://t.co/vE0lQpjEOX
Simon Stones @simonrstones 7 days ago RT @wegohealth: Welcome to the March #WEGOHealthChat and thanks for joining us! Today's chat will be co-hosted by @simonrstones and @MikeVe…
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @wegohealth: Welcome to the March #WEGOHealthChat and thanks for joining us! Today's chat will be co-hosted by @simonrstones and @MikeVe…
Julie Cerrone Croner @justagoodlife 7 days ago Excited to have you 2 with us today! #WEGOhealthchat https://t.co/qLgvOJ204Q
AutonomicRN @autonomicrn 7 days ago I FINALLY made a chat! My appointment isn't for two hours! It's Kim from Wisconsin. #raredisease and #patientadvocate #blogger #WEGOHealthChat
Mike Veny @mikeveny 7 days ago Hello from #Lousiville, #Kentucky to my cohost @simonrstones! #WegoHealthChat #PatientLeader
WEGO Health @wegohealth 7 days ago But before we get started, let's get some housekeeping things out of the way! To help organize the chat, questions will be labeled Q1, Q2, Q3, etc & answers should be labeled A1, A2, A3, etc by you! #WEGOHealthChat Backpack Health @backpackhealth 7 days ago Happy to be here to join the conversation! #wegohealthchat @MikeVeny @SimonRStones
Julie Cerrone Croner @justagoodlife 7 days ago @AutonomicRN YAY!! Great to see you :) #WEGOhealthchat
WEGO Health @wegohealth 7 days ago When Tweetdeck is already running slow for #WEGOHealthChat https://t.co/u6trLVhAiA https://t.co/TBNok1gxX0
Simon Stones @simonrstones 7 days ago @MikeVeny And hello to you @MikeVeny from surprisingly sunny #Manchester! #WEGOHealthChat #PatientLeader
Simon Stones @simonrstones 7 days ago RT @backpackhealth: Happy to be here to join the conversation! #wegohealthchat @MikeVeny @SimonRStones
Julie Cerrone Croner @justagoodlife 7 days ago @MikeVeny @SimonRStones Hi Mike!! #WEGOHealthChat
Kristen @srvingofspprt 7 days ago Who's jumping in this #WEGOHealthChat? @HeadacheHeroine @MusingsfromaSNM @StampStigma @EdnosandI @BabbleOnBrooke @BarbyIngle @PaigeRawl @allevin18
Barby Ingle O icial *\O/* @barbyingle 7 days ago Im @BarbyIngle, #CheerleaderofHOPE, Pres of #iPain @powerofpain, & #HealtheVoices18 Advisory Member. Glad to be here today! #WEGOHealthChat https://t.co/UTC4dHLWUp
Mary Pettigrew @pettigrew66 7 days ago Hi everyone! My name is Mary & was Dx with #MS 17 years ago. I’m an activist/advocate for the chronic illness & disabled community at large. #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: But before we get started, let's get some housekeeping things out of the way! To help organize the chat, questions will be… Kristen @srvingofspprt 7 days ago RT @wegohealth: When Tweetdeck is already running slow for #WEGOHealthChat https://t.co/u6trLVhAiA https://t.co/TBNok1gxX0
Julie Cerrone Croner @justagoodlife 7 days ago @backpackhealth @MikeVeny @SimonRStones Hello!! Welcome :) #WEGOhealthchat
AutonomicRN @autonomicrn 7 days ago @justagoodlife You too #WEGOHealthChat
Mary Pettigrew @pettigrew66 7 days ago RT @wegohealth: But before we get started, let's get some housekeeping things out of the way! To help organize the chat, questions will be…
MSandMeRadio @msandmeradio 7 days ago Glad to be participate! Erika Lyons Richardson founder of MS & Me Media. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago Hi everyone! So excited for today's #wegohealthchat - all about the stigma of chronic illness - I know so many of us can relate to this, and can't wait to hear from everyone! #PatientLeaders #LetsDoThis https://t.co/Nbs9PFvwj7
Julie Cerrone Croner @justagoodlife 7 days ago @BarbyIngle @powerofpain Hey Barby!! #WEGOhealthchat
Mary Pettigrew @pettigrew66 7 days ago RT @wegohealth: Welcome to the March #WEGOHealthChat and thanks for joining us! Today's chat will be co-hosted by @simonrstones and @MikeVe…
Julie Cerrone Croner @justagoodlife 7 days ago @pettigrew66 Hi Mary!!! #WEGOhealthchat
WEGO Health @wegohealth 7 days ago As we mentioned, today we're joined by @Simonrstones and @MikeVeny who are both fantastic voices for #PatientLeaders everywhere. They are sure to have some great advice for combating the stigma associated with chronic illness. #WEGOHealthChat. JP Summers @advofspooniemom 7 days ago RT @wegohealth: Welcome to the March #WEGOHealthChat and thanks for joining us! Today's chat will be co-hosted by @simonrstones and @MikeVe…
Rie Lopez, MPH @rieofletters 7 days ago I am here from blizzard-land (aka #Massachusetts) with my sunglasses on and all the ice on my head. #WEGOhealthchat
Julie Cerrone Croner @justagoodlife 7 days ago SERIOUSLYYYYYY - anybody else running super slow today? Mines like REALLLLYYY slow #WEGOhealthchat https://t.co/eq8uXiB17G
Simon Stones @simonrstones 7 days ago @AutonomicRN Yay! So pleased you're able to join #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago @SimonRStones Awe this is too cute! Love that gif #WEGOhealthchat
WEGO Health @wegohealth 7 days ago Let’s dive right in with Q1: What is an example of a stigma you’ve experienced due to your chronic illness? @SimonRStones and @Mikeveny has this happened to you?#WEGOHealthChat
Simon Stones @simonrstones 7 days ago @backpackhealth @MikeVeny Great to have you here! #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: As we mentioned, today we're joined by @Simonrstones and @MikeVeny who are both fantastic voices for #PatientLeaders every…
Barby Ingle O icial *\O/* @barbyingle 7 days ago Hi #PregnantStill Mommy-to-be! Sending positive thoughts and easy delivery hope to ya! #WEGOHealthChat https://t.co/7k9mxLig97
Kristen @srvingofspprt 7 days ago @RieOfLetters .UGH same here- this snow is killing me! I just got my power back from the last storm. Not cool #WEGOhealthchat Simon Stones @simonrstones 7 days ago @BarbyIngle @powerofpain Hi @BarbyIngle! Great to have you join as always! #WEGOHealthChat
Shahd @_shahdh 7 days ago @wegohealth Joining the #WEGOHealthChat today. I'm Shahd and I'm tweeting from a snowy Boston today!
Leslie Krongold, EdD @leslie_ghf 7 days ago #WEGOHealthChat I'm Leslie in Alameda, California representing people with neuromuscular diseases (many are "invisible") and Glass Half Full blog/podcast
Julie Cerrone Croner @justagoodlife 7 days ago @RieOfLetters Ahhh! Hope you're nice and warm! It just snow flurried here for about a half hour and then stopped. Nothing like you guys have been having up there! #WEGOhealthchat
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Let’s dive right in with Q1: What is an example of a stigma you’ve experienced due to your chronic illness? @SimonRStones…
AutonomicRN @autonomicrn 7 days ago A little tired today, so hey all! I haven't seen everyone pop up yet, so @bbhomebody @lisadbudzinski @RieOfLetters hello! #WEGOHealthChat
The Skin I'm In @ellietrinowski 7 days ago @justagoodlife Yes! #wegohealthchat
Barby Ingle O icial *\O/* @barbyingle 7 days ago Glad to be hear w you. Thanks for hosting this great topic #WEGOHealthChat https://t.co/3qNmKZGH7W
Julie Cerrone Croner @justagoodlife 7 days ago @BarbyIngle Thank you!! I'm just getting super anxiousssssssss it's like torture!!! #WEGOhealthchat
Mary Pettigrew @pettigrew66 7 days ago Howdy from Dallas! Great topic today & thrilled to be here! Hiya @justagoodlife #WEGOHealthChat https://t.co/nKe1xoeB0V Becky Brandt RN @bbhomebody 7 days ago Hi everyone. I'm Becky from Washington state. RN, co-founder @Cpnervecenter professional patient and proud #raredisease #chronicpain advocate. #WEGOHealthChat https://t.co/WqQMCdZ7lf
Alan Brewington @abrewi3010 7 days ago Hello from sunny boise Idaho. I’m a #chronicpain #rheum #mentalhealth patient storyteller who adds things like #photography, cookies, skiing as chapters require. #WEGOHealthChat https://t.co/59hIfZBKHg
AutonomicRN @autonomicrn 7 days ago @SimonRStones Hi Simon! #WEGOHealthChat
JP Summers @advofspooniemom 7 days ago Hello! This is JP Summers. I'm a patient advocate for invisible illnesses and I'm tweeting from Green Bay, WI #WEGOHealthChat https://t.co/FV8o9liKB5
Simon Stones @simonrstones 7 days ago @justagoodlife So good isn't it!? Might be my new favourite (sorry Kevin!) #WEGOHealthChat https://t.co/fQgC0VWB5Z
Julie Cerrone Croner @justagoodlife 7 days ago @_shahdh @wegohealth Hi Shahd! Welcome :) Hopefully staying warm! #WEGOhealthchat
Julie Cerrone Croner @justagoodlife 7 days ago @Leslie_GHF Hi Leslie!! #WEGOhealthchat
Emily Morgan @emmorgan27 7 days ago Excited for today’s #WEGOHealthChat topic! Running errands so gonna be a bit in and out but nevertheless let’s get this started!
Simon Stones @simonrstones 7 days ago @RieOfLetters Yay - you made it! Hope you can keep warm somewhere! #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @wegohealth: As we mentioned, today we're joined by @Simonrstones and @MikeVeny who are both fantastic voices for #PatientLeaders every… AutonomicRN @autonomicrn 7 days ago @bbhomebody @Cpnervecenter Now you show up, I was looking for you :) #WEGOHealthChat
JP Summers @advofspooniemom 7 days ago RT @wegohealth: As we mentioned, today we're joined by @Simonrstones and @MikeVeny who are both fantastic voices for #PatientLeaders every…
Lisa Davis Budzinski @lisadbudzinski 7 days ago Hi everyone! Lisa here; co-founder of @Cpnervecenter Advocate for #CentralPainSyndrome #intractablepain and the #PatientPerspective Laying on the sidelines today with cold/flu #wegohealthchat
Simon Stones @simonrstones 7 days ago RT @wegohealth: Let’s dive right in with Q1: What is an example of a stigma you’ve experienced due to your chronic illness? @SimonRStones…
Julie Cerrone Croner @justagoodlife 7 days ago @bbhomebody @Cpnervecenter Hi Becky!! #WEGOhealthchat
Kristen @srvingofspprt 7 days ago Tuning in from Boston- where I can’t see out my window because of this blizzard! #wegohealthchat https://t.co/oagdXKYvSk
Julie Cerrone Croner @justagoodlife 7 days ago @abrewi3010 Hey Alan! #WEGOhealthchat
Quin Turner @quinlanturner 7 days ago @wegohealth @SimonRStones @MikeVeny A1: That Crohn's is purely a "bathroom" disease and my problems can be solved merely by diet changes #wegohealthchat
Julie Cerrone Croner @justagoodlife 7 days ago @ADVofSpoonieMom Hi JP! #WEGOhealthchat
Whitney Petit @cfepilepsy 7 days ago @justagoodlife I literally just said I wonder if Julie is still preggers lol!! Hey girlllll ☺ ☺ #WEGOHealthChat WEGO Health @wegohealth 7 days ago I can imagine how frustrating and disappointing that is to have your family in that camp. #wegohealthchat https://t.co/By9Oa4U1GB
Emily Morgan @emmorgan27 7 days ago A1. People always seem to question whether I’m actually “sick” seeing as I have an #invisibleillness #WEGOHealthChat https://t.co/mCWseAj4JC
Molly @molsarahwrites 7 days ago @wegohealth @SimonRStones @MikeVeny #WEGOHealthChat A1: this last week alone two music venues where I intended to see concerts no longer o er disabled access!
Whitney Petit @cfepilepsy 7 days ago RT @wegohealth: Welcome to the March #WEGOHealthChat and thanks for joining us! Today's chat will be co-hosted by @simonrstones and @MikeVe…
Julie Cerrone Croner @justagoodlife 7 days ago @EmMorgan27 Yay! Happy to have you when you can jump in! #WEGOhealthchat
Whitney Petit @cfepilepsy 7 days ago RT @wegohealth: Let’s dive right in with Q1: What is an example of a stigma you’ve experienced due to your chronic illness? @SimonRStones…
Mary Pettigrew @pettigrew66 7 days ago RT @abrewi3010: Hello from sunny boise Idaho. I’m a #chronicpain #rheum #mentalhealth patient storyteller who adds things like #photography…
Julie Cerrone Croner @justagoodlife 7 days ago @lisadbudzinski @Cpnervecenter Hi Lisa! #WEGOhealthchat
Amanda @lalupuslady 7 days ago A1 @wegohealth living w/ multiple chronic “invisible illnesses” parking in a Handicapped spot is usually attached to the stigma of dirty looks and occasionally getting yelled at. #WEGOHealthChat
Ken Taylor @kenraytaylor 7 days ago I am @KenRayTaylor VP of iPain Foundation. Web and graphics design and caregiver to wife @BarbyIngle #WEGOHealthChat https://t.co/nWTIWwGKMY AutonomicRN @autonomicrn 7 days ago @abrewi3010 Hey Alan! Looks beautiful, kind of like Wisconsin today too! #WEGOHealthChat
WEGO Health @wegohealth 7 days ago Q1A: @mikeveny, how did you react in this situation? #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago @CfEpilepsy UGH YESSSS #WEGOhealthchat https://t.co/jb5986KL27
Julie Cerrone Croner @justagoodlife 7 days ago @QuinlanTurner @wegohealth @SimonRStones @MikeVeny Hi Quin!! #WEGOhealthchat
Rie Lopez, MPH @rieofletters 7 days ago @srvingofspprt Ugh! I totally get it, Kristen! Spring can come any time now. I am way past done with winter. #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago @KenRayTaylor @BarbyIngle Hey Ken!! #WEGOhealthchat
Julie Cerrone Croner @justagoodlife 7 days ago @LAlupusLady @wegohealth Hi Amanda! #WEGOhealthchat
WEGO Health @wegohealth 7 days ago @molsarahwrites @SimonRStones @MikeVeny Wow that is frustrating. It's like they're going back in time. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago A1: Ooh where to begin!? Definitely the invisibility of my conditions, and societal stereotypes. I appear to be a healthy, happy, young man - therefore there is nothing 'wrong' with me (rolls eyes) #WEGOHealthChat https://t.co/tj0pEbBEcc
Julie Cerrone Croner @justagoodlife 7 days ago @lisadbudzinski @Cpnervecenter Last week haha #WEGOhealthchat AutonomicRN @autonomicrn 7 days ago A1: "It must be nice to be home all day doing whatever you want"...just want to strangle someone every once in a while #WEGOHealthChat
MSandMeRadio @msandmeradio 7 days ago @wegohealth @SimonRStones @MikeVeny A1: A stigma I have experienced in my many decades of living with MS, Lupus, RA, Sjogrens, Parkinson’s, Hashimoto’s, etc is that I am “lazy” when I need more rest than others. This has come from the general public and from my own extended family/friends. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @QuinlanTurner: @wegohealth @SimonRStones @MikeVeny A1: That Crohn's is purely a "bathroom" disease and my problems can be solved merely…
Leslie Krongold, EdD @leslie_ghf 7 days ago A1: People see my posts on Facebook and think because one photo shows me out and enjoying life and think I must be fine and always in that "state of mind." #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @wegohealth: @molsarahwrites @SimonRStones @MikeVeny Wow that is frustrating. It's like they're going back in time. #WEGOHealthChat
Kristen @srvingofspprt 7 days ago A1 As a mental health/ eating disorder Patient Leader I feel like I’m constantly facing stigma! It’s a disorder people feel awkward talking about. It’s also a disorder that doesn’t have a certain look yet everyone assume it does #wegohealthchat
Alan Brewington @abrewi3010 7 days ago A1 someone making fun of me for taking opioids or getting a procedure for my #chronicpain. Boys can hurt too! #WEGOHealthChat
Amber J Tresca @aboutibd 7 days ago A1: How much time do we have? #IBD is highly stigmatized. I’ve been bullied, passed over for jobs, broken up with, and ghosted. I’m not unique: everyone with #Crohns or #UC has experienced the same. #WEGOHealthChat https://t.co/AKpL8Box32 WEGO Health @wegohealth 7 days ago Probably the hardest part about having an invisible illness right here. #WEGOHealthChat https://t.co/NhnHlT6QNh
AutonomicRN @autonomicrn 7 days ago @LAlupusLady @wegohealth Hi Amanda! #WEGOHealthChat
Kristen @srvingofspprt 7 days ago A1 continues When people tell me I don’t look like I have an eating disorder #wegohealthchat https://t.co/vDdUGdm6TE
WEGO Health @wegohealth 7 days ago Q1A: How did you react in this situation? @Simonrstones, do you have any good suggestions on how to react? #WEGOHealthChat
JP Summers @advofspooniemom 7 days ago A1: How is it possible that one day I'm out having fun then for the next 2 days I'm cancelling plans and stuck in bed due to one of the following debilitating health issues: #migraine, #fibromyalgia #RheumatoidArthritis. #WEGOHealthChat https://t.co/vt6fVGVKLN
Julie Cerrone Croner @justagoodlife 7 days ago @aboutIBD Hi Amber! Welcome :) #WEGOhealthchat
Simon Stones @simonrstones 7 days ago @QuinlanTurner @wegohealth @MikeVeny A1: I completely relate to you @QuinlanTurner! I'm sure you've received plenty of advice over the years which suggests your diet is causing 'all' of your symptoms!? #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @wegohealth: I can imagine how frustrating and disappointing that is to have your family in that camp. #wegohealthchat https://t.co/By9O…
Amanda @lalupuslady 7 days ago RT @wegohealth: Q1A: How did you react in this situation? @Simonrstones, do you have any good suggestions on how to react? #WEGOHealthChat Becky Brandt RN @bbhomebody 7 days ago T1 My syndromes are invisible disabilities. Therefore, "why don't I work full-time, why do I cancel plans so o en, why do I rest so much, why do I need these strong medications when an herbal option works just fine". I look normal & healthy. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @EmMorgan27: A1. People always seem to question whether I’m actually “sick” seeing as I have an #invisibleillness #WEGOHealthChat https:…
Barby Ingle O icial *\O/* @barbyingle 7 days ago A1. I have been told "you've never had a day of pain in your life" by someone who hadnt experienced CP. She thought I was sitting out of activities for attention instead of personal health challenges. Shes out of my life now, my choice! #WEGOHealthChat https://t.co/DMNQONYKLB
Alan Brewington @abrewi3010 7 days ago RT @ADVofSpoonieMom: A1: How is it possible that one day I'm out having fun then for the next 2 days I'm cancelling plans and stuck in bed…
Lisa Davis Budzinski @lisadbudzinski 7 days ago This! #WEGOHealthChat https://t.co/kJrgdRLcNP
Rie Lopez, MPH @rieofletters 7 days ago @AutonomicRN Oh, yes... I absolutely enjoy laying in a dark room in agonizing pain. Definitely what I would want. #WEGOHealthChat iPain Foundation @powerofpain 7 days ago RT @BarbyIngle: A1. I have been told "you've never had a day of pain in your life" by someone who hadnt experienced CP. She thought I was s…
Molly @molsarahwrites 7 days ago @wegohealth @SimonRStones A1(2): I attempted to tweet a screenshot to @Ticketmaster and their customer service failed to respond with a reason. #WEGOHealthChat
Becky Brandt RN @bbhomebody 7 days ago @RieOfLetters @AutonomicRN @lisadbudzinski #WEGOHealthChat #PLEASECLAP @clappleaseclap 7 days ago RT @lisadbudzinski: This! #WEGOHealthChat https://t.co/kJrgdRLcNP
Julie Cerrone Croner @justagoodlife 7 days ago @lisadbudzinski @Cpnervecenter Yeah they asked me at my appt today when I'd like to be induced. I feel bad scheduling a day because the only reason I would is because I'm getting impatient! Haha so I'm gonna tryyyyy to stick it out til they don't let me #WEGOhealthchat
Julie Cerrone Croner @justagoodlife 7 days ago @bbhomebody Hi Becky! Welcome #WEGOhealthchat
Becky Brandt RN @bbhomebody 7 days ago @justagoodlife @Cpnervecenter Hi Julie.....its been so long! #WEGOHealthChat
Simon Stones @simonrstones 7 days ago @molsarahwrites @wegohealth @MikeVeny This is awful @molsarahwrites! Where are you based? I know in the UK there is a legal requirement for establishments to be accessible to those with reduced mobility. This is totally not acceptable! #WEGOHealthChat
WEGO Health @wegohealth 7 days ago RT @SimonRStones: @QuinlanTurner @wegohealth @MikeVeny A1: I completely relate to you @QuinlanTurner! I'm sure you've received plenty of ad…
Ken Taylor @kenraytaylor 7 days ago RT @BarbyIngle: A1. I have been told "you've never had a day of pain in your life" by someone who hadnt experienced CP. She thought I was s…
AutonomicRN @autonomicrn 7 days ago The invisible portion is HUGE. Everyone thinks that if we look okay then we must not be ill or have a condition. If only they could step into our shoes for a while. #WEGOHealthChat https://t.co/4v2do2y0Hw
Simon Stones @simonrstones 7 days ago RT @LAlupusLady: A1 @wegohealth living w/ multiple chronic “invisible illnesses” parking in a Handicapped spot is usually attached to the s… Amanda @lalupuslady 7 days ago A1a sometimes I will explain that not all Illnesses are visible and if you want to switch bodies with me for 10 minutes maybe you’d have a bit of empathy. #WEGOHealthChat
Ken Taylor @kenraytaylor 7 days ago A1: As a caregiver I have experienced many times where people will roll there eyes at the possibility that something is real. People dont want to believe that a bump or tap can causes a flare. #WEGOHealthChat https://t.co/blTBu4Xzoo
Alan Brewington @abrewi3010 7 days ago A1 some of tried to trivialize my #PTSD because it comes from falling o a cli will rock climbing. #WEGOHealthChat
TheZebraTheory @zebraorphans 7 days ago #WEGOHealthChat ‘Your to young to need your mobility scooter..’ can be di icult to come to terms with using a mobility aid and these types of attitudes are very demoralizing.... https://t.co/4HVM4GFk6d
Kristen @srvingofspprt 7 days ago A1 cont. I suppose the best way to combat is to educate. It's hard because I do feel uncomfortable advocating for such a stigmatized disorder, but if I don't do it, who will? #WEGOHealthChat iPain Living Magazine @ipainfoundation 7 days ago RT @BarbyIngle: A1. I have been told "you've never had a day of pain in your life" by someone who hadnt experienced CP. She thought I was s…
Simon Stones @simonrstones 7 days ago @LAlupusLady @wegohealth It's the worst feeling @LAlupusLady - even my mother gets this and she has a crutch. Responses in the past have included 'well you can drive so you can't be that bad'. Sometimes the looks alone are bad enough, let alone the confrontation! :( #WEGOHealthChat
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @KenRayTaylor: I am @KenRayTaylor VP of iPain Foundation. Web and graphics design and caregiver to wife @BarbyIngle #WEGOHealthChat http…
WEGO Health @wegohealth 7 days ago Q1B:Does this happen frequently in your community? There seems to be a lot of reoccurring stories for a few communities. #WEGOHealthChat Simon Stones @simonrstones 7 days ago RT @AutonomicRN: A1: "It must be nice to be home all day doing whatever you want"...just want to strangle someone every once in a while #WE…
Melissa VanHouten @melissarvh 7 days ago A1 Those in my #Gastroparesis community are treated as if they're faking the seriousness of illness b/c they don't look sick #wegohealthchat
Simon Stones @simonrstones 7 days ago RT @molsarahwrites: @wegohealth @SimonRStones A1(2): I attempted to tweet a screenshot to @Ticketmaster and their customer service failed t…
Simon Stones @simonrstones 7 days ago RT @RieOfLetters: @AutonomicRN Oh, yes... I absolutely enjoy laying in a dark room in agonizing pain. Definitely what I would want. #WEGOH…
TheZebraTheory @zebraorphans 7 days ago Hi everyone.. very excited to be here from rainy London.. patient advocate and training health scientist.. #WEGOhealthchat
Simon Stones @simonrstones 7 days ago RT @BarbyIngle: A1. I have been told "you've never had a day of pain in your life" by someone who hadnt experienced CP. She thought I was s…
Whitney Petit @cfepilepsy 7 days ago A1: there’s not enough twitter characters for this one. With my invisible illness it’s always hard. Not looking sick makes me not sick enough for anything #thisisepilepsy #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago @LAlupusLady @wegohealth Wish I was going and could say I'm looking forward to that hug! But, I won't be there this year because HOPEFULLY my baby will be here before then! haha she's being stubborn and is lattteeeee #WEGOHealthChat
Amanda @lalupuslady 7 days ago A1a sometimes I say if you knew what it took for me to get out of bed, dressed and into the car so I can pick up my prescription for my pain, you’d understand. #WEGOHealthChat Quin Turner @quinlanturner 7 days ago @wegohealth @SimonRStones A1A. I try to explain that despite having Crohn's, my disease manifests externally (have plenty of scars to support it) despite what the common belief is. Honestly, sometimes it can just be easier to make a bathroom joke and move on depending on who asked #wegohealthchat
Simon Stones @simonrstones 7 days ago RT @ADVofSpoonieMom: A1: How is it possible that one day I'm out having fun then for the next 2 days I'm cancelling plans and stuck in bed…
AutonomicRN @autonomicrn 7 days ago @justagoodlife @lisadbudzinski @Cpnervecenter I'm just saying from an OB nurse standpoint...I've seen bad things happen every once in a while if inductions don't happen. Don't push it too far mama!! #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago @ZebraOrphans Hello!!! #WEGOhealthchat
Simon Stones @simonrstones 7 days ago RT @QuinlanTurner: @wegohealth @SimonRStones A1A. I try to explain that despite having Crohn's, my disease manifests externally (have plen… kim moore @floellaella 7 days ago RT @ZebraOrphans: Hi everyone.. very excited to be here from rainy London.. patient advocate and training health scientist.. #WEGOhealthchat
Julie Cerrone Croner @justagoodlife 7 days ago @melissarvh Hi Melissa! #WEGOhealthchat kim moore @floellaella 7 days ago RT @ZebraOrphans: #WEGOHealthChat ‘Your to young to need your mobility scooter..’ can be di icult to come to terms with using a mobility a…
Rie Lopez, MPH @rieofletters 7 days ago RT @AutonomicRN: The invisible portion is HUGE. Everyone thinks that if we look okay then we must not be ill or have a condition. If only t… TheZebraTheory @zebraorphans 7 days ago ‘Hypermobility means your more flexible than the average person...’ #EhlersDanlosSyndrome #WEGOHealthChat https://t.co/4HVM4GFk6d
Julie Cerrone Croner @justagoodlife 7 days ago @aboutIBD Hahaha love that!! #WEGOHealthChat
Amanda @lalupuslady 7 days ago A1b it happens more than it should, why do I have to explain myself to strangers? Chronic illness is hard enough. #WEGOHealthChat https://t.co/yMwxIVscY7
MSandMeRadio @msandmeradio 7 days ago @wegohealth A1b Unfortunately, it happens o en enough to make many in the chronic illness community isolate or limit themselves. #WEGOHealthChat
AutonomicRN @autonomicrn 7 days ago @wegohealth I would say many of the issues happen to almost all of us numerous times. #WEGOHealthChat
Melissa VanHouten @melissarvh 7 days ago A1 Many treated as drug-seekers b/c pain presence w/GP not believed. 80%+ of #Gastropaersis patients are female, by the way. #wegohealthchat
Becky Brandt RN @bbhomebody 7 days ago @AutonomicRN @justagoodlife @lisadbudzinski @Cpnervecenter As another L&D RN.... I'm gonna agree with @AutonomicRN Come on baby.....#WEGOHealthChat
Rheumatoid Patient @rheumpatient 7 days ago RT @EmMorgan27: A1. People always seem to question whether I’m actually “sick” seeing as I have an #invisibleillness #WEGOHealthChat https:…
Mary Pettigrew @pettigrew66 7 days ago A1: When such a destructive disease like #MS presents with invisible symptoms, the judgement/stigma can be overwhelmingly painful. #WEGOHealthChat https://t.co/irwMP3Kn8X Kristen @srvingofspprt 7 days ago Yes. Yes. Yes. YES. Within the #EatingDisorder community, there have been so many strong leaders like @LeenahBeenah @lindseyhallblog @jamesldowns being open and honest with their stories that I think we are just starting to break the stigma #WEGOHealthChat https://t.co/9kTpYWRow8
Simon Stones @simonrstones 7 days ago A1: It takes a hell of a lot of confidence - something which I lack in at times (hard to believe, I know!) Especially when confronted in front of large groups of other people. I have an elevator pitch of what it's like to be me - and surprisingly works a treat! #WEGOHealthChat https://t.co/WYRh6Mdm5K
Amanda @lalupuslady 7 days ago RT @BarbyIngle: A1. I have been told "you've never had a day of pain in your life" by someone who hadnt experienced CP. She thought I was s…
Simon Stones @simonrstones 7 days ago RT @ZebraOrphans: ‘Hypermobility means your more flexible than the average person...’ #EhlersDanlosSyndrome #WEGOHealthChat https://t.co/4…
Melissa VanHouten @melissarvh 7 days ago @justagoodlife Hello, Ms. Julie! #wegohealthchat
Simon Stones @simonrstones 7 days ago RT @LAlupusLady: A1a sometimes I say if you knew what it took for me to get out of bed, dressed and into the car so I can pick up my prescr…
Lisa Davis Budzinski @lisadbudzinski 7 days ago A1 Having an #invisibleillness allows for misunderstandings in society of “if you can’t see it, it doesn’t hurt or exist” #WEGOHealthChat https://t.co/u8oxLXr506
Simon Stones @simonrstones 7 days ago RT @CfEpilepsy: A1: there’s not enough twitter characters for this one. With my invisible illness it’s always hard. Not looking sick makes…
WEGO Health @wegohealth 7 days ago Make sure you're using #WEGOHealthChat in your tweets so everyone who is participating can see your answers! Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @KenRayTaylor: A1: As a caregiver I have experienced many times where people will roll there eyes at the possibility that something is r…
Rheumatoid Patient @rheumpatient 7 days ago RT @LAlupusLady: A1 @wegohealth living w/ multiple chronic “invisible illnesses” parking in a Handicapped spot is usually attached to the s…
AutonomicRN @autonomicrn 7 days ago BINGO! #WEGOHealthChat https://t.co/CevZG4dTti
The Skin I'm In @ellietrinowski 7 days ago RT @srvingofspprt: A1 cont. I suppose the best way to combat is to educate. It's hard because I do feel uncomfortable advocating for such a…
Amanda @lalupuslady 7 days ago RT @SimonRStones: @LAlupusLady @wegohealth It's the worst feeling @LAlupusLady - even my mother gets this and she has a crutch. Responses i…
WEGO Health @wegohealth 7 days ago Q2: Where do you think this stigma comes from? #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @KenRayTaylor: A1: As a caregiver I have experienced many times where people will roll there eyes at the possibility that something is r…
Simon Stones @simonrstones 7 days ago RT @LAlupusLady: A1a sometimes I will explain that not all Illnesses are visible and if you want to switch bodies with me for 10 minutes ma…
Simon Stones @simonrstones 7 days ago RT @AutonomicRN: The invisible portion is HUGE. Everyone thinks that if we look okay then we must not be ill or have a condition. If only t…
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Make sure you're using #WEGOHealthChat in your tweets so everyone who is participating can see your answers! JP Summers @advofspooniemom 7 days ago RT @SimonRStones: A1: It takes a hell of a lot of confidence - something which I lack in at times (hard to believe, I know!) Especially whe…
Kristen @srvingofspprt 7 days ago RT @wegohealth: Q2: Where do you think this stigma comes from? #WEGOHealthChat
Alan Brewington @abrewi3010 7 days ago A1B I think social norms/conventions are still being worked out which causes issues. As a 43 year old single male, I’m not supposed to talk to many patients bc of my age/gender. Not many #rheum rock climbers either #WEGOHealthChat
WEGO Health @wegohealth 7 days ago #WEGOHealthChat https://t.co/TLATWeTGpV
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q1A: How did you react in this situation? @Simonrstones, do you have any good suggestions on how to react? #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q1B:Does this happen frequently in your community? There seems to be a lot of reoccurring stories for a few communities. #W…
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q2: Where do you think this stigma comes from? #WEGOHealthChat
Becky Brandt RN @bbhomebody 7 days ago T1 B - It happens less now with my close family and friends but In DC a couple weeks ago it happened while talking to one of my Congresswomen. It was a perfect "teaching moment". #WEGOHealthChat
Whitney Petit @cfepilepsy 7 days ago RT @wegohealth: Q2: Where do you think this stigma comes from? #WEGOHealthChat
Amanda @lalupuslady 7 days ago RT @wegohealth: Q2: Where do you think this stigma comes from? #WEGOHealthChat The Skin I'm In @ellietrinowski 7 days ago @wegohealth *guilty* #wegohealthchat
Julie Cerrone Croner @justagoodlife 7 days ago A2 I think a lot of times stigma comes from lack of understanding, awareness and education #WEGOhealthchat https://t.co/dt8p3GYpxD
AutonomicRN @autonomicrn 7 days ago Q2: The societal expectation for so long has been to "suck it up" and keep moving on. It feels so ingrained. #WEGOHealthChat
Dr. Melissa Geraghty, Psy.D. @mindfuldrg 7 days ago @wegohealth @SimonRStones @MikeVeny 1st time joining #WEGOHealthChat. A neurologist told me this a er he saw my Fibromyalgia diagnosis: "the next time your husband marries, he should marry someone fat and ugly as they'd be too scared to get sick." I later was diagnosed by a competent doctor with #clusterheadache.
Leslie Krongold, EdD @leslie_ghf 7 days ago Q2: Fear. Not wanting to face or deal with adversity in life. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago A1B: It's a common occurrence - and I think many of the stigmas cut across di erent chronic illnesses. It saddens me, because it's o en the way people react that causes so much anxiety and additional challenges to those of us having enough on our plates already! #WEGOHealthChat https://t.co/ZSCTmevprL
MSandMeRadio @msandmeradio 7 days ago @wegohealth A2: Ignorance, fear, and our o en far too long and winding roads to proper diagnosis. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @MSandMeRadio: @wegohealth A1b Unfortunately, it happens o en enough to make many in the chronic illness community isolate or limit the…
Simon Stones @simonrstones 7 days ago RT @AutonomicRN: @wegohealth I would say many of the issues happen to almost all of us numerous times. #WEGOHealthChat mini2z Kristin @mini2z 7 days ago @wegohealth Hi everyone! Currently on I-75 heading home a er moving our son & his GF 19 hours away In a ton of pain but I’m from Ontario, Canada #WEGOHealthChat
SWilliams @williams_rt 7 days ago RT @wegohealth: Let’s dive right in with Q1: What is an example of a stigma you’ve experienced due to your chronic illness? @SimonRStones…
Melissa VanHouten @melissarvh 7 days ago A2 Misinformation from docs, media, & the public (which seems 2 believe all illnesses can be cured & chronic does not exist) #wegohealthchat
Barby Ingle O icial *\O/* @barbyingle 7 days ago A2. I think it comes from the persons own guilt or feelings & it has little or nothing to do w the person it is directed at. I dont accept others guilt. I remember to try my best & be the best me I can be, that is good enough. #WEGOHealthChat https://t.co/PiN1NdOvL9
Rheumatoid Patient @rheumpatient 7 days ago @SimonRStones Today I got a look of disbelief from the fire safety o icer when she asked if I have a disability and I said 'mobility issues'. She had seen me walk passed her earlier but just because I can walk today doesn't mean I can walk the day of a fire! #invisibleillness #WEGOHealthChat
Innovations Dementia @innov_dementia 7 days ago Sorry to crash in #WEGOHealthChat, but just wanted to add that ppl w #dementia have also been telling many stories about how they are not believed if 'they look OK'. Very frustrating for them.
TheZebraTheory @zebraorphans 7 days ago A1 ‘If you use a wheelchair, you must not be able to walk or be a paraplegic..’ #WEGOhealthchat
Melissa VanHouten @melissarvh 7 days ago RT @Leslie_GHF: Q2: Fear. Not wanting to face or deal with adversity in life. #WEGOHealthChat
Rheumatoid Patient @rheumpatient 7 days ago RT @AutonomicRN: A1: "It must be nice to be home all day doing whatever you want"...just want to strangle someone every once in a while #WE… Whitney Petit @cfepilepsy 7 days ago RT @justagoodlife: A2 I think a lot of times stigma comes from lack of understanding, awareness and education #WEGOhealthchat https://t.co/…
Flu meister @scru on73 7 days ago RT @wegohealth: Let’s dive right in with Q1: What is an example of a stigma you’ve experienced due to your chronic illness? @SimonRStones…
WEGO Health @wegohealth 7 days ago RT @srvingofspprt: Yes. Yes. Yes. YES. Within the #EatingDisorder community, there have been so many strong leaders like @LeenahBeenah @lin…
Kristen @srvingofspprt 7 days ago @Innov_Dementia Never apologize- and it's not crashing it's joining! Welcome to the #WEGOHealthChat :)
Julie Cerrone Croner @justagoodlife 7 days ago @lisadbudzinski @bbhomebody @AutonomicRN @Cpnervecenter AWE I LOVE THIS!! I was just talking about this show the other day!!!! <3 <3 <3 #WEGOhealthchat iPain Living Magazine @ipainfoundation 7 days ago RT @BarbyIngle: A2. I think it comes from the persons own guilt or feelings & it has little or nothing to do w the person it is directed at…
WEGO Health @wegohealth 7 days ago RT @SimonRStones: A1: It takes a hell of a lot of confidence - something which I lack in at times (hard to believe, I know!) Especially whe…
Simon Stones @simonrstones 7 days ago @MindfulDrG @wegohealth @MikeVeny Gosh, what a horrible person. I'll never know how anyone can be so rude and obnoxious! #WEGOHealthChat iPain Living Magazine @ipainfoundation 7 days ago RT @KenRayTaylor: A1: As a caregiver I have experienced many times where people will roll there eyes at the possibility that something is r… Rheumatoid Patient @rheumpatient 7 days ago @AutonomicRN Even if people don't say it, you sometimes sense they're thinking it. #WEGOHealthChat
Alan Brewington @abrewi3010 7 days ago A2 Stigma comes from a lack of curiosity for a fellow human being. Curiosity is the antidote to stigma. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @rheumpatient: @SimonRStones Today I got a look of disbelief from the fire safety o icer when she asked if I have a disability and I sa…
Ken Taylor @kenraytaylor 7 days ago RT @BarbyIngle: A2. I think it comes from the persons own guilt or feelings & it has little or nothing to do w the person it is directed at…
Becky Brandt RN @bbhomebody 7 days ago T2- For decades We've been taught to believe what we see. Even in Medicine/CT/MRI it happens regularly. If a doc cant diagnose it, why should anyone else believe it. #WEGOHealthChat
Lisa Davis Budzinski @lisadbudzinski 7 days ago @SimonRStones It does take a lot of strength & courage to deal with a #invisibleillness on a daily basis! #WEGOHealthChat
Ken Taylor @kenraytaylor 7 days ago RT @KenRayTaylor: A1: As a caregiver I have experienced many times where people will roll there eyes at the possibility that something is r…
Shahd @_shahdh 7 days ago @wegohealth A2: A lot of it comes from not understanding something that is unfamiliar to you. #WEGOHealthChat
WEGO Health @wegohealth 7 days ago Dont forget to use #WEGOHealthChat on your tweets, @MikeVeny! https://t.co/8JvbWBLkHV
Melissa VanHouten @melissarvh 7 days ago A2 Misguided belief that sickness = weakness of character or lesser worth. #wegohealthchat Amanda @lalupuslady 7 days ago A2 lack of empathy & understanding... people don’t want to think about what a life of pain and disease would do to them, most aren’t strong enough to handle the challenge. #WEGOHealthChat iPain Foundation @powerofpain 7 days ago RT @KenRayTaylor: A1: As a caregiver I have experienced many times where people will roll there eyes at the possibility that something is r…
Julie Cerrone Croner @justagoodlife 7 days ago @mini2z @wegohealth Awe!! Sending you hugs - that couldn't have been easy to do! #WEGOhealthchat https://t.co/UaaKCctPW6 iPain Foundation @powerofpain 7 days ago RT @BarbyIngle: A2. I think it comes from the persons own guilt or feelings & it has little or nothing to do w the person it is directed at…
WEGO Health @wegohealth 7 days ago RT @justagoodlife: A2 I think a lot of times stigma comes from lack of understanding, awareness and education #WEGOhealthchat https://t.co/…
Simon Stones @simonrstones 7 days ago @rheumpatient I can feel your frustration @rheumpatient - my blood pressure has rocketed just thinking about this! #WEGOHealthChat
Whitney Petit @cfepilepsy 7 days ago RT @SimonRStones: A1B: It's a common occurrence - and I think many of the stigmas cut across di erent chronic illnesses. It saddens me, be…
AutonomicRN @autonomicrn 7 days ago @rheumpatient Absolutely! You definitely get the feeling. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @lisadbudzinski: @SimonRStones It does take a lot of strength & courage to deal with a #invisibleillness on a daily basis! #WEGOHealthCh… Julie Cerrone Croner @justagoodlife 7 days ago @MindfulDrG @wegohealth @SimonRStones @MikeVeny Welcome!! Glad to have you :) #WEGOhealthchat
Amanda @lalupuslady 7 days ago RT @BarbyIngle: A2. I think it comes from the persons own guilt or feelings & it has little or nothing to do w the person it is directed at…
Rie Lopez, MPH @rieofletters 7 days ago RT @MindfulDrG: @wegohealth @SimonRStones @MikeVeny 1st time joining #WEGOHealthChat. A neurologist told me this a er he saw my Fibromyalg…
WEGO Health @wegohealth 7 days ago RT @SimonRStones: A1B: It's a common occurrence - and I think many of the stigmas cut across di erent chronic illnesses. It saddens me, be…
Kristen @srvingofspprt 7 days ago A2 I think stigma comes from not knowing. Prior to going into treatment myself, I just assumed anyone who checked themselves into rehab was crazy- but they aren't. They're humans- just like you and me. The minute I found myself there I realized that #WEGOHealthChat
Mary Pettigrew @pettigrew66 7 days ago A1: I spent years defending myself & my disease to others. Went to great lengths to over explain myself & still, I was judged or dismissed as faking illness...no more! #WEGOHealthChat shizlon @shizlon678 7 days ago RT @Innov_Dementia: Sorry to crash in #WEGOHealthChat, but just wanted to add that ppl w #dementia have also been telling many stories abo…
Simon Stones @simonrstones 7 days ago @lisadbudzinski It certainly does @lisadbudzinski! If others could walk in our shoes for a day, I think their entire perspective would change. It's just a shame it would take such steps for some people to understand what we go through day in day out. #WEGOHealthChat Amber J Tresca @aboutibd 7 days ago A2: With #IBD there was an idea that it was caused by stress. Long disproven yet people still believe it and stigmatize because of that. Also people think it’s about poop. It is not. It is pain, fatigue, malabsorption, infections, abscesses, fistula, arthritis... #WEGOHealthChat https://t.co/VwQetmwgie
Amanda @lalupuslady 7 days ago RT @abrewi3010: A2 Stigma comes from a lack of curiosity for a fellow human being. Curiosity is the antidote to stigma. #WEGOHealthChat
Melissa VanHouten @melissarvh 7 days ago RT @bbhomebody: T2- For decades We've been taught to believe what we see. Even in Medicine/CT/MRI it happens regularly. If a doc cant dia…
Simon Stones @simonrstones 7 days ago RT @bbhomebody: T1 B - It happens less now with my close family and friends but In DC a couple weeks ago it happened while talking to one…
The Skin I'm In @ellietrinowski 7 days ago @wegohealth A2: The stigma comes from the old idea of what disability is. It no longer discriminates. Chronic illnesses, wheelchairs/walkers are no longer isolated to elderly people. #wegohealthchat #PsoriaticArthritis
Emily Morgan @emmorgan27 7 days ago A2: I mean, I can’t blame someone who has never heard of #UC to be able to understand. I’m lucky that I DO look pretty healthy, am able to do things most of the time, and am able to easily hide my scars if I want. #WEGOHealthChat https://t.co/gKFiyaDHLv
Emily Morgan @emmorgan27 7 days ago So- I’m thinking it comes from our society making it “weird” to ask others questions regarding their health condition(s). You don’t know whatcha don’t know! I’d love to talk with you about my #invisibleillness so we can begin to break stigmas TOGETHER #WEGOHealthChat
WEGO Health @wegohealth 7 days ago #WEGOHealthChat https://t.co/Q6q4jsebK8 Mary Pettigrew @pettigrew66 7 days ago RT @melissarvh: A2 Misinformation from docs, media, & the public (which seems 2 believe all illnesses can be cured & chronic does not exist…
Becky Brandt RN @bbhomebody 7 days ago @AutonomicRN It must be nice to go to work, earn a living, take great vacations, jog, ski, mow the lawn etc. IT'S INSANE! I wish i was laying around eating chocolates! #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @lisadbudzinski: A1 Having an #invisibleillness allows for misunderstandings in society of “if you can’t see it, it doesn’t hurt or exis…
Ken Taylor @kenraytaylor 7 days ago A2: As we grow up, we are told no pain no gain and you have to work through it. Most people want to be the person that can get through anything and look at those with invisible conditions as complainers with an alt. motive. #WEGOHealthChat https://t.co/yVurBjGhYW
JP Summers @advofspooniemom 7 days ago A2: Not being properly educated. I admit, I was once naive about living w/the #migraine disease. I had no clue there were various classifications AND you could become completely debilitated to the point you can't function for months or yrs on end #WEGOHealthChat #invisibleillness https://t.co/Ju2X9jdXHg
Simon Stones @simonrstones 7 days ago RT @EmMorgan27: So- I’m thinking it comes from our society making it “weird” to ask others questions regarding their health condition(s). Y…
AutonomicRN @autonomicrn 7 days ago I actually just had a friend's husband say "well she has surgery on everything except her toe." Until you've been in somebodies circumstances, there isn't any room to judge any #chronic or #invisibleillness #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @EmMorgan27: A2: I mean, I can’t blame someone who has never heard of #UC to be able to understand. I’m lucky that I DO look pretty heal… Simon Stones @simonrstones 7 days ago RT @EllieTrinowski: @wegohealth A2: The stigma comes from the old idea of what disability is. It no longer discriminates. Chronic illnesses…
Heidi Grabenstatter @patientintv 7 days ago Q1: Stigma for me was issue when needed University help with access a er condition changed. People are good, in general, fighting for change in systems is the challenge. 2/2 #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @aboutIBD: A2: With #IBD there was an idea that it was caused by stress. Long disproven yet people still believe it and stigmatize becau…
Simon Stones @simonrstones 7 days ago RT @pettigrew66: A1: I spent years defending myself & my disease to others. Went to great lengths to over explain myself & still, I was ju…
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @KenRayTaylor: A2: As we grow up, we are told no pain no gain and you have to work through it. Most people want to be the person that ca…
Simon Stones @simonrstones 7 days ago RT @srvingofspprt: A2 I think stigma comes from not knowing. Prior to going into treatment myself, I just assumed anyone who checked themse…
Mike Veny @mikeveny 7 days ago RT @SimonRStones: A1B: It's a common occurrence - and I think many of the stigmas cut across di erent chronic illnesses. It saddens me, be… iPain Foundation @powerofpain 7 days ago RT @KenRayTaylor: A2: As we grow up, we are told no pain no gain and you have to work through it. Most people want to be the person that ca…
Simon Stones @simonrstones 7 days ago RT @LAlupusLady: A2 lack of empathy & understanding... people don’t want to think about what a life of pain and disease would do to them, m… Simon Stones @simonrstones 7 days ago RT @melissarvh: A2 Misguided belief that sickness = weakness of character or lesser worth. #wegohealthchat iPain Living Magazine @ipainfoundation 7 days ago RT @KenRayTaylor: A2: As we grow up, we are told no pain no gain and you have to work through it. Most people want to be the person that ca…
Julie Cerrone Croner @justagoodlife 7 days ago @AutonomicRN Awe that's horrible! #WEGOhealthchat
Simon Stones @simonrstones 7 days ago RT @abrewi3010: A2 Stigma comes from a lack of curiosity for a fellow human being. Curiosity is the antidote to stigma. #WEGOHealthChat
Mary @headacheheroine 7 days ago Jumping in late, hi! @wegohealth #WEGOHealthChat
Rheumatoid Patient @rheumpatient 7 days ago @Leslie_GHF I used to always only post good things on FB to stop myself focusing on the negative but now I don't post anymore as people would comment "You're out all the time.". Yes, once in while I go out to restaurant/theatre but rest of the time I'm usually ill at home. #WEGOHealthChat
Alan Brewington @abrewi3010 7 days ago @bbhomebody @AutonomicRN I work full time, ski, and mow my yard when my HOA sends threatening letters #WEGOHealthChat
Becky Brandt RN @bbhomebody 7 days ago @KenRayTaylor Exactly Ken! So true! No pain no gain is partly why I'm in this mess. #WEGOHealthChat
Emily Morgan @emmorgan27 7 days ago @KenRayTaylor So true!!! #WEGOHealthChat Julie Cerrone Croner @justagoodlife 7 days ago @ADVofSpoonieMom I can totally relate to this. I remember thinking this woman I worked with who had RA made such a big deal out of EVERYTHING. And now I feel awful because it was just my lack of understanding. It wasn't until I "got it" that I "got it" which is sad I admit #WEGOhealthchat
AutonomicRN @autonomicrn 7 days ago @bbhomebody I know, my husband couldn’t figure out why I was making appointments on my way home from an appointment. I told him welcome to my world, it isn’t all bon-bons and TV #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @KenRayTaylor: A2: As we grow up, we are told no pain no gain and you have to work through it. Most people want to be the person that ca…
JP Summers @advofspooniemom 7 days ago RT @justagoodlife: @ADVofSpoonieMom I can totally relate to this. I remember thinking this woman I worked with who had RA made such a big d…
Julie Cerrone Croner @justagoodlife 7 days ago RT @rheumpatient: @Leslie_GHF I used to always only post good things on FB to stop myself focusing on the negative but now I don't post any…
WEGO Health @wegohealth 7 days ago Q3: Is it our job as Patient Leaders to educate the outside world on breaking these stigmas or should the onus be on them? @Simonrstones and @Mikeveny I'd love to hear your take on this? #WEGOHealthChat
TheZebraTheory @zebraorphans 7 days ago So much great points. Trying to keep up.. bare with me #WEGOhealthchat
Rheumatoid Patient @rheumpatient 7 days ago RT @aboutIBD: A1: How much time do we have? #IBD is highly stigmatized. I’ve been bullied, passed over for jobs, broken up with, and ghos…
Amanda @lalupuslady 7 days ago RT @justagoodlife: @ADVofSpoonieMom I can totally relate to this. I remember thinking this woman I worked with who had RA made such a big d… Dr. Melissa Geraghty, Psy.D. @mindfuldrg 7 days ago @wegohealth A2: People being stuck in their own worldview, saturated by their own experiences, and not caring to expose and educate themselves on di erent experiences. #WEGOHealthChat
Emily Morgan @emmorgan27 7 days ago @KenRayTaylor I actually went over 3 months without telling anyone about my initial symptoms because I felt like I had to and was able to figure it out myself! I always wonder if seeking a medical opinion would have changed things? I’ll never know #WEGOHealthChat
Sally Burch @keelatoo 7 days ago @wegohealth @SimonRStones @MikeVeny #WEGOHealthChat Q1: People with #MyalgicE o en experience stigma, linked to media reports claiming that exercise will cure us! #PACEtrial hyped this too. Quote from my blog in image: https://t.co/60gTVsYOjX https://t.co/sivHy2jCJ8
Lisa Davis Budzinski @lisadbudzinski 7 days ago @SimonRStones I’m hoping #VR can help us with “walk in our shoes for a day” Wouldn’t it be wonderful if our healthcare teams could actually see & feel our conditions?! #WEGOHealthChat
Amanda @lalupuslady 7 days ago RT @wegohealth: Q3: Is it our job as Patient Leaders to educate the outside world on breaking these stigmas or should the onus be on them?…
The Skin I'm In @ellietrinowski 7 days ago @KenRayTaylor Powerful statement, sir! #wegohealthchat
WEGO Health @wegohealth 7 days ago .@MikeVeny Hey Mike! Please add #wegohealthchat to all your tweets! That was everyone can see your responses.
Kristen @srvingofspprt 7 days ago Story of my #wegohealthchat life! https://t.co/S5dx8Pzj9s
Julie Cerrone Croner @justagoodlife 7 days ago Very true! #WEGOhealthchat https://t.co/puhPTd5Kuq Simon Stones @simonrstones 7 days ago A2: The big one here is lack of understanding - undoubtedly. However, ignorance plays a fundamental role in why these stigmas exist - "Out of sight, out of mind". And also, some people have absolutely no sensitivity or empathy towards others! #WEGOHealthChat https://t.co/inq5K9IV1t
Innovations Dementia @innov_dementia 7 days ago #wegohealthchat One way we are trying to break the stigma of #dementia is through @DementiaTweets audio diaries. They are done by lots of di erent ppl w #dementia. Do have a listen a er this has finished - would like to know what you think https://t.co/fmDOOHgpyN
Rheumatoid Patient @rheumpatient 7 days ago @ADVofSpoonieMom We live in the same world. #chroniclife #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q3: Is it our job as Patient Leaders to educate the outside world on breaking these stigmas or should the onus be on them?…
Simon Stones @simonrstones 7 days ago RT @KenRayTaylor: A2: As we grow up, we are told no pain no gain and you have to work through it. Most people want to be the person that ca…
WEGO Health @wegohealth 7 days ago RT @justagoodlife: @ADVofSpoonieMom I can totally relate to this. I remember thinking this woman I worked with who had RA made such a big d…
Simon Stones @simonrstones 7 days ago @EllieTrinowski @KenRayTaylor Very powerful and very true @KenRayTaylor #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @lisadbudzinski: @SimonRStones I’m hoping #VR can help us with “walk in our shoes for a day” Wouldn’t it be wonderful if our healthcare…
Rie Lopez, MPH @rieofletters 7 days ago @KatInouye @AutonomicRN I think that is a lot of the problem, that lack of understanding of the reality of our day-to-day lives. #WEGOHealthChat Enlightening Results @gracecordovano 7 days ago Gotta a few minutes before next appt starts...peeking in to #WEGOHealthChat to say hello! Grace, private cancer advocate joining from snowy NJ. https://t.co/LBbAQWuppb
AutonomicRN @autonomicrn 7 days ago A3: I try to educate and raise awareness, but it is SOOOOOOOO hard to change people. I kind of think it's like empathy, it has to be experienced to know what it is. #WEGOHealthChat
Lisa Davis Budzinski @lisadbudzinski 7 days ago This! #WEGOHealthChat https://t.co/J2CctJofEC
Melissa VanHouten @melissarvh 7 days ago A3 Patient leaders should lead, but outsiders have moral obligation 2 treat people w/decency whether they understand or not #wegohealthchat
Simon Stones @simonrstones 7 days ago @lisadbudzinski Me too @lisadbudzinski! Gosh it would be. A shame that it would require such lengths to demonstrate that, but it would certainly o er them the reality of what we go through #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @EmMorgan27: @KenRayTaylor I actually went over 3 months without telling anyone about my initial symptoms because I felt like I had to a…
Rie Lopez, MPH @rieofletters 7 days ago RT @aboutIBD: A1: How much time do we have? #IBD is highly stigmatized. I’ve been bullied, passed over for jobs, broken up with, and ghos…
Julie Cerrone Croner @justagoodlife 7 days ago @GraceCordovano Hi Grace!! #WEGOhealthchat
Simon Stones @simonrstones 7 days ago RT @MindfulDrG: @wegohealth A2: People being stuck in their own worldview, saturated by their own experiences, and not caring to expose and… Simon Stones @simonrstones 7 days ago RT @justagoodlife: @ADVofSpoonieMom I can totally relate to this. I remember thinking this woman I worked with who had RA made such a big d…
Simon Stones @simonrstones 7 days ago RT @AutonomicRN: @bbhomebody I know, my husband couldn’t figure out why I was making appointments on my way home from an appointment. I tol…
Mike Veny @mikeveny 7 days ago @wegohealth @SimonRStones I believe that we need to take ownership and responsibility for 1) Being aware of we may stigmatize others without realizing it. 2) Being persistent and intentional about having uncomfortable conversations with #haters. @SimonRStones #WEGOHealthChat
Shahd @_shahdh 7 days ago @wegohealth @SimonRStones @MikeVeny A3: It's a collaborative e ort. I think most people face stigma at some point in their lives. It's important to convey that stigma of any kind hurts. Patient leaders should suggest improvements, and work with others to spread the word among peers, family, etc. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @rheumpatient: @Leslie_GHF I used to always only post good things on FB to stop myself focusing on the negative but now I don't post any…
Mary Pettigrew @pettigrew66 7 days ago A2: Society has an image in mind as to what MS or disability LOOKS LIKE. If you don’t fit that image, you’re judged or compared to others shamefully. (misinformation, misconception, lack of awareness, etc.) #WEGOHealthChat https://t.co/Sj7tvp26dK
Amanda @lalupuslady 7 days ago A3 as a Patient Leader who usually strives to share my #PatientExperience story to create empathy and understanding there are sometimes I just need to get through the day... #WEGOHealthChat
Kristen @srvingofspprt 7 days ago RT @wegohealth: Q3: Is it our job as Patient Leaders to educate the outside world on breaking these stigmas or should the onus be on them?… Mary Pettigrew @pettigrew66 7 days ago RT @melissarvh: A3 Patient leaders should lead, but outsiders have moral obligation 2 treat people w/decency whether they understand or not…
Julie Cerrone Croner @justagoodlife 7 days ago It is really hard to change other's views UNLESS they're completely open to it #WEGOHealthChat https://t.co/Nd1VvNQ7qb
Mary @headacheheroine 7 days ago RT @lisadbudzinski: This! #WEGOHealthChat https://t.co/J2CctJofEC
Barby Ingle O icial *\O/* @barbyingle 7 days ago A3. I think it takes planting seeds n society by individuals & community leaders who raise awareness & provide education 2 make changes n stigma, it might not help this generation, but can help future gens not have those taught stigmas We must teach di erently #WEGOHealthChat https://t.co/U1JE3wE3JP
Simon Stones @simonrstones 7 days ago RT @PatientIntv: Q1: Stigma for me was issue when needed University help with access a er condition changed. People are good, in general,…
The Skin I'm In @ellietrinowski 7 days ago @wegohealth @SimonRStones @MikeVeny A3: Wow! Loaded question! The outside world is only going to be educated if there is a collaboration of Patient Leaders with health the care industry. #wegohealthchat
Simon Stones @simonrstones 7 days ago RT @ADVofSpoonieMom: A2: Not being properly educated. I admit, I was once naive about living w/the #migraine disease. I had no clue there w… mini2z Kristin @mini2z 7 days ago @wegohealth Before my lupus dx I was so sick with everything and I was out of sick time so I was o without pay and they my employer still didn’t believe I was sick - it wasn’t until I had a stress breakdown & became suicidal & the dr put me o in 2015 #WEGOHealthChat Emily Morgan @emmorgan27 7 days ago I think everyone could do a better job of breaking stigmas! Patient Leaders are perfect people to set precedents and be story tellers. I ALWAYS advocate for the power in a story, however, those without #chronicillness can and should educate just as much! #WEGOHealthChat https://t.co/Tjro4bhePE
Simon Stones @simonrstones 7 days ago RT @bbhomebody: @AutonomicRN It must be nice to go to work, earn a living, take great vacations, jog, ski, mow the lawn etc. IT'S INSANE!…
Lisa Davis Budzinski @lisadbudzinski 7 days ago most of us grew up with this philosophy well said Mr Taylor! #WEGOHealthChat https://t.co/JSRiYFDLAj
Rie Lopez, MPH @rieofletters 7 days ago @srvingofspprt And mine too! #WEGOHealthChat
JP Summers @advofspooniemom 7 days ago @justagoodlife I hated that I had to experience losing my ability to walk unassisted, drive, quality of life & my job to GET my neurological disease is not "just a headache", but it gave me the ability to see I was emotionally & physically stronger than I ever thought possible #WEGOHealthChat
Becky Brandt RN @bbhomebody 7 days ago @lisadbudzinski @SimonRStones Yes indeed! Hopefully VR will make these #invisibleillness more visible. #WEGOHealthChat
AutonomicRN @autonomicrn 7 days ago Spot on! #WEGOHealthChat https://t.co/NI5iCXPORA
WEGO Health @wegohealth 7 days ago RT @MikeVeny: @wegohealth @SimonRStones I believe that we need to take ownership and responsibility for 1) Being aware of we may stigmatize…
Mike Veny @mikeveny 7 days ago RT @_shahdh: @wegohealth @SimonRStones @MikeVeny A3: It's a collaborative e ort. I think most people face stigma at some point in their li… Kristen @srvingofspprt 7 days ago A3 Im not sure what the right answer is, but I'll tell ya- action creates change. So that's my focus. Start educating. Raising Awareness. Stomp Stigma #WEGOHealthChat
Quin Turner @quinlanturner 7 days ago @wegohealth @SimonRStones @MikeVeny A3: Absolutely. It was commonly believed that the Earth was flat until not too long ago. I believe we as patient leaders have the same responsibility to educate those that are still living in the dark and ignorant to the true impact of living with chronic illness #wegohealthchat
Rheumatoid Patient @rheumpatient 7 days ago @BarbyIngle Better o without that negativity. I tried to get back into dancing a few years ago. Choreographer was understanding when I said I'd give slower routines a go but not jumpy ones because of my joints. Rest of cast thought I was a 'Princess' picking and choosing. #WEGOHealthChat
Emily Morgan @emmorgan27 7 days ago RT @BarbyIngle: A3. I think it takes planting seeds n society by individuals & community leaders who raise awareness & provide education 2…
Kristen @srvingofspprt 7 days ago RT @QuinlanTurner: @wegohealth @SimonRStones @MikeVeny A3: Absolutely. It was commonly believed that the Earth was flat until not too long…
Julie Cerrone Croner @justagoodlife 7 days ago RT @ADVofSpoonieMom: @justagoodlife I hated that I had to experience losing my ability to walk unassisted, drive, quality of life & my job…
Mary Pettigrew @pettigrew66 7 days ago RT @wegohealth: Q3: Is it our job as Patient Leaders to educate the outside world on breaking these stigmas or should the onus be on them?…
Alan Brewington @abrewi3010 7 days ago A3 the great @RemRunner posted a quote from #Rumi that is perfect, all we can do is “unfold your own myth”. Continuing to develop me is how I fight stigma. #WEGOHealthChat MSandMeRadio @msandmeradio 7 days ago @wegohealth @SimonRStones @MikeVeny A3- There are so many complex chronic illnesses, that it is almost impossible to learn about all of them. If we do step up and teach those we come in contact with each day, we can make a major impact. What they can do is learn to show empathy to all people. #WEGOHealthChat
The Skin I'm In @ellietrinowski 7 days ago @wegohealth @SimonRStones @MikeVeny *the health care industry #wegohealthchat
Heidi Grabenstatter @patientintv 7 days ago @RieOfLetters @KatInouye @AutonomicRN Agree with you whole-heartedly. It's not just the average person that doesn't understand your daily lives. Biomedical researchers investigating your condition don't and healthcare technologists developing solutions do not either. #WEGOHealthChat
Ken Taylor @kenraytaylor 7 days ago A3: Yes, I believe it is our job to educate about the many debilitating conditions and chronic pain. Just because you cant see it, doesnt mean its not real and the more we can educate from experience the more we will change the stigma. We are the teachers! #WEGOHealthChat https://t.co/CxkXnQOc8e
Emily Morgan @emmorgan27 7 days ago @BarbyIngle Spot on #WEGOHealthChat
Mary Pettigrew @pettigrew66 7 days ago RT @BarbyIngle: A3. I think it takes planting seeds n society by individuals & community leaders who raise awareness & provide education 2…
Julie Cerrone Croner @justagoodlife 7 days ago @ADVofSpoonieMom It's not fair, it's really not. I totally agree- through trials and tribulations like that it's really up to us to dig deep into that inner strength that I we all DO have - we just forget it's there sometimes. #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @BarbyIngle: A3. I think it takes planting seeds n society by individuals & community leaders who raise awareness & provide education 2… Enlightening Results @gracecordovano 7 days ago @justagoodlife Hi Julie! Hope you are feeling good #WEGOHealthChat
AutonomicRN @autonomicrn 7 days ago Couldn't have said it any better #WEGOHealthChat https://t.co/LXGxb52xSX
Julie Cerrone Croner @justagoodlife 7 days ago RT @EllieTrinowski: @wegohealth @SimonRStones @MikeVeny A3: Wow! Loaded question! The outside world is only going to be educated if there i…
Mike Veny @mikeveny 7 days ago RT @MSandMeRadio: @wegohealth @SimonRStones @MikeVeny A3- There are so many complex chronic illnesses, that it is almost impossible to lear…
Leslie Krongold, EdD @leslie_ghf 7 days ago A3-1: As a patient leader part of my role, as I see it, is to acknowledge the daily challenges we have in our patient community. Many patients live in isolation and need to have someone bear witness to their pain...know that it is real and not "manufactured." #wegohealthchat
Amanda @lalupuslady 7 days ago RT @BarbyIngle: A3. I think it takes planting seeds n society by individuals & community leaders who raise awareness & provide education 2…
Julie Cerrone Croner @justagoodlife 7 days ago RT @EmMorgan27: I think everyone could do a better job of breaking stigmas! Patient Leaders are perfect people to set precedents and be sto…
Julie Cerrone Croner @justagoodlife 7 days ago RT @lisadbudzinski: most of us grew up with this philosophy well said Mr Taylor! #WEGOHealthChat https://t.co/JSRiYFDLAj
Simon Stones @simonrstones 7 days ago A3: The onus should never be on #PatientLeaders - but for some, they do make it their job to educate the world - which is great and does make a di erence! We are powerful and can have an impact - but it's really everyone's job to change the way the world thinks #WEGOHealthChat https://t.co/2KAsQZBTKZ Rie Lopez, MPH @rieofletters 7 days ago @pettigrew66 Definitely true! With my fibromyalgia and hemiplegic migraines, I can go from looking okay, to being unable to walk or care for myself. Of course I'm not out and about with those symptoms! #WEGOHealthChat
Rheumatoid Patient @rheumpatient 7 days ago RT @AutonomicRN: The invisible portion is HUGE. Everyone thinks that if we look okay then we must not be ill or have a condition. If only t…
AutonomicRN @autonomicrn 7 days ago @justagoodlife They have to be REALLY open to it! #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @KenRayTaylor: A3: Yes, I believe it is our job to educate about the many debilitating conditions and chronic pain. Just because you can…
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @KenRayTaylor: A3: Yes, I believe it is our job to educate about the many debilitating conditions and chronic pain. Just because you can…
Julie Cerrone Croner @justagoodlife 7 days ago RT @QuinlanTurner: @wegohealth @SimonRStones @MikeVeny A3: Absolutely. It was commonly believed that the Earth was flat until not too long…
Simon Stones @simonrstones 7 days ago RT @QuinlanTurner: @wegohealth @SimonRStones @MikeVeny A3: Absolutely. It was commonly believed that the Earth was flat until not too long…
Melissa VanHouten @melissarvh 7 days ago A3 The help of medical professionals, patient associations, & the media would be greatly appreciated in ending stigma, too. #wegohealthchat
Rheumatoid Patient @rheumpatient 7 days ago @LAlupusLady What's the response? #WEGOHealthChat Ken Taylor @kenraytaylor 7 days ago RT @BarbyIngle: A3. I think it takes planting seeds n society by individuals & community leaders who raise awareness & provide education 2…
Emily Morgan @emmorgan27 7 days ago RT @srvingofspprt: A3 Im not sure what the right answer is, but I'll tell ya- action creates change. So that's my focus. Start educating. R…
Julie Cerrone Croner @justagoodlife 7 days ago RT @abrewi3010: A3 the great @RemRunner posted a quote from #Rumi that is perfect, all we can do is “unfold your own myth”. Continuing to…
Rie Lopez, MPH @rieofletters 7 days ago RT @melissarvh: A3 Patient leaders should lead, but outsiders have moral obligation 2 treat people w/decency whether they understand or not…
JP Summers @advofspooniemom 7 days ago @justagoodlife My sister was only 22 when she was diagnosed with #RA. My mom was diagnosed in her late 40s. Because of them, I learned not to fear #RheumatoidArthritis, but that you must try your hardest to live the best life you possibly can. #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @PatientIntv: @RieOfLetters @KatInouye @AutonomicRN Agree with you whole-heartedly. It's not just the average person that doesn't under… iPain Foundation @powerofpain 7 days ago RT @KenRayTaylor: A3: Yes, I believe it is our job to educate about the many debilitating conditions and chronic pain. Just because you can… iPain Foundation @powerofpain 7 days ago RT @BarbyIngle: A3. I think it takes planting seeds n society by individuals & community leaders who raise awareness & provide education 2… iPain Living Magazine @ipainfoundation 7 days ago RT @BarbyIngle: A3. I think it takes planting seeds n society by individuals & community leaders who raise awareness & provide education 2… iPain Living Magazine @ipainfoundation 7 days ago RT @KenRayTaylor: A3: Yes, I believe it is our job to educate about the many debilitating conditions and chronic pain. Just because you can…
Julie Cerrone Croner @justagoodlife 7 days ago RT @Leslie_GHF: A3-1: As a patient leader part of my role, as I see it, is to acknowledge the daily challenges we have in our patient commu…
Rheumatoid Patient @rheumpatient 7 days ago @abrewi3010 That sounds traumatic to me! #WEGOHealthChat
WEGO Health @wegohealth 7 days ago RT @SimonRStones: A3: The onus should never be on #PatientLeaders - but for some, they do make it their job to educate the world - which is…
Mary @headacheheroine 7 days ago RT @srvingofspprt: A3 Im not sure what the right answer is, but I'll tell ya- action creates change. So that's my focus. Start educating. R…
Leslie Krongold, EdD @leslie_ghf 7 days ago A3-2: Yet it's also up to each patient to face the stigma -- and educate -- their own family and friends. I always want to empower other patients to be become advocates and leaders in their own communities (family, location, church, etc.) #wegohealthchat
Simon Stones @simonrstones 7 days ago @lisadbudzinski Same goes for the education/career world - you've got to work hard to succeed. You need to put in the 'gra ' to get somewhere. I never now use that term. I much prefer the concept of working 'smart' #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @BarbyIngle: A3. I think it takes planting seeds n society by individuals & community leaders who raise awareness & provide education 2…
Innovations Dementia @innov_dementia 7 days ago #wegohealthchat In terms of practical action, what about all those w #invisibleillness joining forces in an educational campaign? Is there a benefit to coming out of our silos? Simon Stones @simonrstones 7 days ago RT @MikeVeny: @wegohealth @SimonRStones I believe that we need to take ownership and responsibility for 1) Being aware of we may stigmatize…
TheZebraTheory @zebraorphans 7 days ago Language use is important when trying to change attitudes and promote understanding.. words like drug addict, scrounger, lazy etc do nothing for people with little knowledge about health conditions. #WEGOHealthChat https://t.co/eZCStpvIBp
Enlightening Results @gracecordovano 7 days ago @wegohealth @SimonRStones @MikeVeny A3: Always trying to get to the root of stigmas. Important to recognize to improve communication. Some are cultural. Some inter generational. Some due to lack of health literacy. Educate & bring empathy. #wegohealthchat
Becky Brandt RN @bbhomebody 7 days ago T3-For those of us who are capable of educating others, We should! For instance, Over the years, my mother has become a fantastic advocate for me/us because she listens, learns, has empathy and forwards the info to anyone who will listen #WEGOHealthChat https://t.co/9a2XOINKkS
AutonomicRN @autonomicrn 7 days ago Love it! We are powerful and can have an impact - but it's really everyone's job to change the way the world thinks #WEGOHealthChat https://t.co/GJLbx7WKaI
Julie Cerrone Croner @justagoodlife 7 days ago RT @SimonRStones: A3: The onus should never be on #PatientLeaders - but for some, they do make it their job to educate the world - which is…
WEGO Health @wegohealth 7 days ago RT @SimonRStones: @lisadbudzinski Same goes for the education/career world - you've got to work hard to succeed. You need to put in the 'gr…
Julie Cerrone Croner @justagoodlife 7 days ago RT @RieOfLetters: @pettigrew66 Definitely true! With my fibromyalgia and hemiplegic migraines, I can go from looking okay, to being unable…
Melissa VanHouten @melissarvh 7 days ago RT @Leslie_GHF: A3-1: As a patient leader part of my role, as I see it, is to acknowledge the daily challenges we have in our patient commu… Julie Cerrone Croner @justagoodlife 7 days ago RT @Leslie_GHF: A3-2: Yet it's also up to each patient to face the stigma -- and educate -- their own family and friends. I always want to…
Dr. Melissa Geraghty, Psy.D. @mindfuldrg 7 days ago @wegohealth @SimonRStones @MikeVeny A3: I think it is, while at the same time trying to not take it personally when people are ignorant. Not everyone will understand or even try to understand, and that's ok. As a doctor and a patient, I continually try to bring to light both perspectives. #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @SimonRStones: @lisadbudzinski Same goes for the education/career world - you've got to work hard to succeed. You need to put in the 'gr…
Simon Stones @simonrstones 7 days ago A3: I always refer to #PatientLeaders as the catalysts - the people others listen to, and the people who bring together all those di erent stakeholders to listen, understand and act. #WEGOHealthChat https://t.co/2KAsQZBTKZ
Simon Stones @simonrstones 7 days ago RT @AutonomicRN: A3: I try to educate and raise awareness, but it is SOOOOOOOO hard to change people. I kind of think it's like empathy, it…
Alan Brewington @abrewi3010 7 days ago @rheumpatient I don’t recommend it if given a choice. #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago Love where your head is at!! That is a question coming up in our chat! #WEGOHealthChat https://t.co/nmbAegocp9
Julie Cerrone Croner @justagoodlife 7 days ago RT @GraceCordovano: @wegohealth @SimonRStones @MikeVeny A3: Always trying to get to the root of stigmas. Important to recognize to improve…
Julie Cerrone Croner @justagoodlife 7 days ago RT @bbhomebody: T3-For those of us who are capable of educating others, We should! For instance, Over the years, my mother has become a fan… Julie Cerrone Croner @justagoodlife 7 days ago RT @MindfulDrG: @wegohealth @SimonRStones @MikeVeny A3: I think it is, while at the same time trying to not take it personally when people…
WEGO Health @wegohealth 7 days ago Q4: What are ways that you have worked to combat the stigmas associated with your chronic illness? #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @SimonRStones: A3: I always refer to #PatientLeaders as the catalysts - the people others listen to, and the people who bring together a…
Laura Sanscartier @co eenlithium 7 days ago Hi everyone! Sorry I’m getting in on the tail end today Q1: “Why do you feel like this? You have a family who loves you?!” Even some closest to me think my bipolar can be “thought” or “prayed” away. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago @AutonomicRN A3: Some people are just so restricted in their thinking, and unfortunately, no matter how much we try, we will never change the views of some. All we can do is educate, empower and encourage others to stop, think and reflect on what they say and do #WEGOHealthChat
Enlightening Results @gracecordovano 7 days ago @bbhomebody Moms rock #wegohealthchat
Whitney Petit @cfepilepsy 7 days ago RT @wegohealth: Q4: What are ways that you have worked to combat the stigmas associated with your chronic illness? #WEGOHealthChat
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @SimonRStones: A3: The onus should never be on #PatientLeaders - but for some, they do make it their job to educate the world - which is…
The Skin I'm In @ellietrinowski 7 days ago @SimonRStones I love this!! #wegohealthchat Rie Lopez, MPH @rieofletters 7 days ago A3: This is absolutely one of the things I focus on, helping to end the #stigma surrounding #chronicillness, including #mentalhealth. But I can only do so much, people need to be willing to learn too. #WEGOHealthChat https://t.co/FjAGXaSbCI
Amber J Tresca @aboutibd 7 days ago A3: Part of my job. My first responsibility is to people with #IBD. Included in that is educating others (HCPs, legislators, pharma, general public) about what it’s like to live with #Crohns or #UC. I don’t believe it’s the “job” of all patients to educate others. #WEGOHealthChat https://t.co/rHJPjcNSGd
Julie Cerrone Croner @justagoodlife 7 days ago @co eenlithium Hi Laura! #WEGOhealthchat
WEGO Health @wegohealth 7 days ago #WEGOHealthChat https://t.co/owzXOFfKf7
Simon Stones @simonrstones 7 days ago RT @GraceCordovano: @wegohealth @SimonRStones @MikeVeny A3: Always trying to get to the root of stigmas. Important to recognize to improve…
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q4: What are ways that you have worked to combat the stigmas associated with your chronic illness? #WEGOHealthChat
WEGO Health @wegohealth 7 days ago RT @SimonRStones: @AutonomicRN A3: Some people are just so restricted in their thinking, and unfortunately, no matter how much we try, we w…
Simon Stones @simonrstones 7 days ago @GraceCordovano @wegohealth @MikeVeny Perfectly said @GraceCordovano! #WEGOHealthChat
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @KenRayTaylor: A3: Yes, I believe it is our job to educate about the many debilitating conditions and chronic pain. Just because you can… Amanda @lalupuslady 7 days ago They freak out... I sad not even an hour just 10 minutes? You wouldn’t last a hour in the pain that I struggle with. Warrior Mode! fact... 1 in 3 Americans cope w/ chronic pain, how would you feel if someone you loved was attacked like you challenged me? #WEGOHealthChat https://t.co/OQqtKi7xXf
Melissa VanHouten @melissarvh 7 days ago A4 Support groups, blogs, social media posts, word of mouth, working w/ patient organizations, educating whenever possible. #wegohealthchat
Rie Lopez, MPH @rieofletters 7 days ago RT @Leslie_GHF: A3-2: Yet it's also up to each patient to face the stigma -- and educate -- their own family and friends. I always want to…
Amanda @lalupuslady 7 days ago RT @wegohealth: Q4: What are ways that you have worked to combat the stigmas associated with your chronic illness? #WEGOHealthChat
Laura Sanscartier @co eenlithium 7 days ago Q2: Stigma always comes from a place of fear. And we fear the unknown. The more we work toward educating the public, as well as our family and friends, the less stigma there will be. We need to li our voices on high!!! #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @RieOfLetters: A3: This is absolutely one of the things I focus on, helping to end the #stigma surrounding #chronicillness, including #m…
Simon Stones @simonrstones 7 days ago Great point @Innov_Dementia - and I strongly believe that we are all so much stronger and louder together, since we share so many commonalities when it comes to stigmatisation. #WEGOHealthChat https://t.co/Jk4fnOeegb
Julie Cerrone Croner @justagoodlife 7 days ago RT @aboutIBD: A3: Part of my job. My first responsibility is to people with #IBD. Included in that is educating others (HCPs, legislators,… Simon Stones @simonrstones 7 days ago RT @Leslie_GHF: A3-2: Yet it's also up to each patient to face the stigma -- and educate -- their own family and friends. I always want to…
JP Summers @advofspooniemom 7 days ago RT @wegohealth: Q3: Is it our job as Patient Leaders to educate the outside world on breaking these stigmas or should the onus be on them?…
Rheumatoid Patient @rheumpatient 7 days ago @QuinlanTurner @wegohealth @SimonRStones Having to make bathroom jokes must get old a er a while. #WEGOHealthChat
Enlightening Results @gracecordovano 7 days ago @RieOfLetters Golden rule in general: if you see something, say something. #WEGOHealthChat
Melissa VanHouten @melissarvh 7 days ago RT @RieOfLetters: A3: This is absolutely one of the things I focus on, helping to end the #stigma surrounding #chronicillness, including #m…
Backpack Health @backpackhealth 7 days ago A4: Embrace patient communities and use their support and guidance to help combat the stigmas associated with chronic illness #WEGOHealthChat
WEGO Health @wegohealth 7 days ago RT @SimonRStones: Great point @Innov_Dementia - and I strongly believe that we are all so much stronger and louder together, since we share…
Zinggg'n w Sandilee @sammik2u 7 days ago RT @KenRayTaylor: A1: As a caregiver I have experienced many times where people will roll there eyes at the possibility that something is r…
Barby Ingle O icial *\O/* @barbyingle 7 days ago A4. 1st, I just be the best me I can be, I understand that some wont get it n this world, but if I keep being me & doing my best that its enough & that they will know n this life of the next, 2nd, I create tools so for those who want to learn & know better... can! #WEGOHealthChat https://t.co/edZynZJsYI Shahd @_shahdh 7 days ago @wegohealth A4: For me, something as simple as talking to people has helped tremendously - creating a human connection is powerful! I've been more and more open about #mentalhealth over the years and I can tell that my family has been more receptive and not as quick to judge. #WEGOHealthChat
Becky Brandt RN @bbhomebody 7 days ago @GraceCordovano Isn't that the truth Grace! I am grateful for every good & bad minute I have with mom. #Momsrock #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @GraceCordovano: @RieOfLetters Golden rule in general: if you see something, say something. #WEGOHealthChat
AutonomicRN @autonomicrn 7 days ago @Innov_Dementia #invisibleillness campaign is a great idea, but honestly many of us already have banded together and don't realize it. All of us here have joined forces. But at the same time, expending that much energy educating population that already has a mindset is di icult #WEGOHealthChat
Laura Sanscartier @co eenlithium 7 days ago Q3: kinda already answered this one, but to speak about a thing brings down the fear of that thing. We need to help being down the fear, and let the stigma just melt away. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago We're half way through, and my poor keyboard is going into meltdown! So here's some motivation which resonates so much to Q3! #wegohealthchat https://t.co/hE7qx9oqW6
Julie Cerrone Croner @justagoodlife 7 days ago RT @backpackhealth: A4: Embrace patient communities and use their support and guidance to help combat the stigmas associated with chronic i…
Becky Brandt RN @bbhomebody 7 days ago RT @GraceCordovano: @bbhomebody Moms rock #wegohealthchat
Rheumatoid Patient @rheumpatient 7 days ago RT @pettigrew66: A1: When such a destructive disease like #MS presents with invisible symptoms, the judgement/stigma can be overwhelmingly… Leslie Krongold, EdD @leslie_ghf 7 days ago A4: I think the most powerful way has been through 1:1 conversations w/caregivers-family members of patients. For years they saw their "patient" as lazy, apathetic, etc. Ignorance of the disease = stigma. #wegohealthchat
AutonomicRN @autonomicrn 7 days ago RT @SimonRStones: @AutonomicRN A3: Some people are just so restricted in their thinking, and unfortunately, no matter how much we try, we w…
Rie Lopez, MPH @rieofletters 7 days ago RT @GraceCordovano: @RieOfLetters Golden rule in general: if you see something, say something. #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @AutonomicRN: @Innov_Dementia #invisibleillness campaign is a great idea, but honestly many of us already have banded together and don't…
Ken Taylor @kenraytaylor 7 days ago RT @BarbyIngle: A4. 1st, I just be the best me I can be, I understand that some wont get it n this world, but if I keep being me & doing my…
Julie Cerrone Croner @justagoodlife 7 days ago RT @SimonRStones: We're half way through, and my poor keyboard is going into meltdown! So here's some motivation which resonates so much to… iPain Foundation @powerofpain 7 days ago RT @BarbyIngle: A4. 1st, I just be the best me I can be, I understand that some wont get it n this world, but if I keep being me & doing my…
Emily Morgan @emmorgan27 7 days ago @wegohealth A4. It took awhile, but I talk about my disease! I’ve become mentally stronger &learned to articulate & advocate for myself when necessary! Sharing my journey w/others not only helps combat stigmas, it educates others on life with #UC #winwin #WEGOHealthChat
Alan Brewington @abrewi3010 7 days ago A4 I keep trying life as my quality of life sees fit. Those that accuse me of not being a “real patient” bc I do X can enjoy my photos. I’m to lazy to block on social media #WEGOHealthChat Amanda @lalupuslady 7 days ago @wegohealth A4 recently started carrying bookmarks from @powerofpain and info from @LupusResearch now i ask would you like to understand #lupus and why I parked here? Sharing is caring and the answer to stigma. #WEGOHealthChat
AutonomicRN @autonomicrn 7 days ago RT @SimonRStones: We're half way through, and my poor keyboard is going into meltdown! So here's some motivation which resonates so much to…
MSandMeRadio @msandmeradio 7 days ago @wegohealth A4: Educationg the public through Awareness videos, my website, articles, blog, YouTube channel, twitters, IG, global radio network, sponsoring race cars, support group for friends/family/caregivers, and my onsite interviews of experts in the field. #WEGOHealthChat
Lisa Davis Budzinski @lisadbudzinski 7 days ago A3 All voice’s count & can create a roar demystifying stigmas of di erent conditions. #WEGOHealthChat https://t.co/K6y4nTkd5d
Simon Stones @simonrstones 7 days ago A3: Definitely @melissarvh! Sensational media headlines about social security cheats, lying patients, miracle cures and trivialising chronic illnesses does not help with our goal of improving the way society will function in the future #WEGOHealthChat https://t.co/AAyT7i0tr6
Rie Lopez, MPH @rieofletters 7 days ago I love this! #WEGOHealthChat https://t.co/ytjivtcPsU
Simon Stones @simonrstones 7 days ago RT @Leslie_GHF: A3-1: As a patient leader part of my role, as I see it, is to acknowledge the daily challenges we have in our patient commu…
Dr. Melissa Geraghty, Psy.D. @mindfuldrg 7 days ago @wegohealth Q4: By having open discussions with healthcare professionals and patients thru the workshops I present, the articles I write, and the articles and quotes of others that I post on social media. Exposure helps. #WEGOHealthChat
Melissa VanHouten @melissarvh 7 days ago A4 Help others see their worth isn't determined by the false assumptions, erroneous beliefs, or unwelcome opinions of others #wegohealthchat Rheumatoid Patient @rheumpatient 7 days ago @MindfulDrG @wegohealth @SimonRStones @MikeVeny WTF? That neurologist needs to think before speaking! #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @aboutIBD: A3: Part of my job. My first responsibility is to people with #IBD. Included in that is educating others (HCPs, legislators,…
WEGO Health @wegohealth 7 days ago RT @SimonRStones: A3: Definitely @melissarvh! Sensational media headlines about social security cheats, lying patients, miracle cures and t…
Backpack Health @backpackhealth 7 days ago A4: Use any helpful tools you can find - we work closely with chronic illness communities to bring together health details and coordinated community care #WEGOHealthChat
Jed Finley @jedimaster941 7 days ago RT @RieOfLetters: A3: This is absolutely one of the things I focus on, helping to end the #stigma surrounding #chronicillness, including #m…
Lisa Davis Budzinski @lisadbudzinski 7 days ago @MikeVeny @GraceCordovano @wegohealth @SimonRStones #WEGOHealthChat
WEGO Health @wegohealth 7 days ago #WEGOHealthChat https://t.co/R9x8wJX6tG
Mary Pettigrew @pettigrew66 7 days ago A regularly used phrase I use these days is: “People don’t get it until they “GET it!” #WEGOHealthChat
Mary Tang @marytan16616417 7 days ago RT @LAlupusLady: A3 as a Patient Leader who usually strives to share my #PatientExperience story to create empathy and understanding there…
WEGO Health @wegohealth 7 days ago Q4A: Are there any great resources you’d point others towards for awareness and education? #WEGOHealthChat Becky Brandt RN @bbhomebody 7 days ago T4 I educate more people, I explain how I'm actually feeling instead of smiling and pretending I'm OK., and I advocate whenever I can, so more people understand this #chronicillness reality we all live in. #WEGOHealthChat https://t.co/aPOcmZpmFY
Ken Taylor @kenraytaylor 7 days ago A4: Educate educate educate, I believe most people are good and don't understand chronic pain. If someone will take the time and listen to someone that has chronic pain they can relate back to a past experience they didnt give a chance to understand. #WEGOHealthChat https://t.co/d1568YpSTM
Lisa Davis Budzinski @lisadbudzinski 7 days ago This right here! #empathy #WEGOHealthChat https://t.co/cMV0tCi7I3
MSandMeRadio @msandmeradio 7 days ago @wegohealth A4: Educationg the public through Awareness videos, my website, articles, blog, YouTube channel, twitters, IG, global radio network, sponsoring race cars, support group for friends/family/caregivers, and my onsite interviews of experts in the field. #WEGOHealthChat iPain Living Magazine @ipainfoundation 7 days ago RT @BarbyIngle: A4. 1st, I just be the best me I can be, I understand that some wont get it n this world, but if I keep being me & doing my… iPain Living Magazine @ipainfoundation 7 days ago RT @KenRayTaylor: A4: Educate educate educate, I believe most people are good and don't understand chronic pain. If someone will take the t…
AutonomicRN @autonomicrn 7 days ago A4: Life is about choices. We can choose to change the world each day by getting up and going on with life as it happens or we can live contained by fear or frustration. We are bigger than our diseases just by being patient leaders; in that stigma is being changed #WEGOHealthChat
Backpack Health @backpackhealth 7 days ago A4: Be detail oriented - you are your best advocate. Document progress and details to help fight stigmas around your chronic illness and get to diagnosis faster - and let us help you with that: https://t.co/IxWpqMVrtm #WEGOHealthChat MSandMeRadio @msandmeradio 7 days ago @wegohealth A4: Educating the public through Awareness videos, my website, articles, blog, YouTube channel, twitters, IG, global radio network, sponsoring race cars, support group for friends/family/caregivers, and my onsite interviews of experts in the field. #WEGOHealthChat iPain Foundation @powerofpain 7 days ago RT @KenRayTaylor: A4: Educate educate educate, I believe most people are good and don't understand chronic pain. If someone will take the t…
Simon Stones @simonrstones 7 days ago @SLovesSmiles @wegohealth @MikeVeny So glad you were able to join @SLovesSmiles ☺ These comments make me so sad - we always assume that professionals are the ones we can trust and have faith in us. Completely unacceptable and unprofessional! #WEGOHealthChat
Rie Lopez, MPH @rieofletters 7 days ago Okay, I tried, but I can barely see now. Time for #selfcare! Hugs to all! #WEGOHealthChat
Mary Pettigrew @pettigrew66 7 days ago RT @wegohealth: Q4: What are ways that you have worked to combat the stigmas associated with your chronic illness? #WEGOHealthChat
Rheumatoid Patient @rheumpatient 7 days ago @melissarvh In the UK we have a newspaper called the Daily Mail which plasters across its front page a 'cure' for arthritis every 2 weeks or so. Consequently people wonder why I've had mine for almost a decade. #WEGOHealthChat
Dr Geralyn Datz @drdatz 7 days ago @wegohealth @SimonRStones @MikeVeny #WEGOHealthChat :>
Simon Stones @simonrstones 7 days ago @rheumpatient @QuinlanTurner @wegohealth I use 'pardon the pun' all the time - people are either too nice to me or think I'm a complete lunatic! #WEGOHealthChat
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @KenRayTaylor: A4: Educate educate educate, I believe most people are good and don't understand chronic pain. If someone will take the t… Rheumatoid Patient @rheumpatient 7 days ago @Innov_Dementia Crash in anytime. #WEGOHealthChat
Alan Brewington @abrewi3010 7 days ago A4 I love learning about @danamlewis #wearenotwaiting, @RemRunner #ProjectSleep, @afreshchapter, @EmilysEntourage. Just bc I’m a #rheum #ChronicPain pt doesn’t mean I can’t advocate for others fighting stigma #WEGOHealthChat
Angela Cohen @angelee828 7 days ago @wegohealth Hi, Angela from Wisconsin! jumping in Super late. Sorry! #WEGOHealthChat
Dr Robin Hadley @robinhadley1 7 days ago RT @Innov_Dementia: #wegohealthchat One way we are trying to break the stigma of #dementia is through @DementiaTweets audio diaries. They a…
JP Summers @advofspooniemom 7 days ago A4: speaking openly about how my health has a ected my life through advocating on Capitol Hill, writing articles for various websites, posting pictures when I'm struggling w/debilitating symptoms or trying to be a caregiver to my chronically ill teen. #WEGOHealthChat #Spoonie https://t.co/6EyOgjuq4g
AutonomicRN @autonomicrn 7 days ago @RieOfLetters I'm just about to drop too. Bye, Rie! #WEGOHealthChat
Rheumatoid Patient @rheumpatient 7 days ago RT @lisadbudzinski: @SimonRStones It does take a lot of strength & courage to deal with a #invisibleillness on a daily basis! #WEGOHealthCh…
WEGO Health @wegohealth 7 days ago Q5: Thinking of other condition areas and who we can learn from, are there online communities out there truly bringing the wrecking ball to their condition’s stigmas? #WEGOHealthChat
Heidi Grabenstatter @patientintv 7 days ago A4: I share my experience those that ask, but it is a matter of asking. . . there is so much to learn, if you are interested in the lived experience and don't get lost in your company's or lab's objectives. They could change. #wegohealthchat Julie Cerrone Croner @justagoodlife 7 days ago RT @LAlupusLady: @wegohealth A4 recently started carrying bookmarks from @powerofpain and info from @LupusResearch now i ask would you like…
Simon Stones @simonrstones 7 days ago A4: Getting people to listen - even just for a minute. I've seen people with tears in their eyes a er illustrating what it feels like to be me - and I o en believe that it can be one interaction which may well change people's perceptions therea er #WEGOHealthChat https://t.co/FocAgXIrcu
#WeAreNotWaiting RT @rtwernotwaiting 7 days ago RT @abrewi3010: A4 I love learning about @danamlewis #wearenotwaiting, @RemRunner #ProjectSleep, @afreshchapter, @EmilysEntourage. Just bc…
Julie Cerrone Croner @justagoodlife 7 days ago RT @MindfulDrG: @wegohealth Q4: By having open discussions with healthcare professionals and patients thru the workshops I present, the art…
Melissa VanHouten @melissarvh 7 days ago A4A For info about #Gastroparesis & other #FGID, see @IFFGD & @gimotility. And I am always glad to direct to other resources #wegohealthchat
Simon Stones @simonrstones 7 days ago RT @ADVofSpoonieMom: A4: speaking openly about how my health has a ected my life through advocating on Capitol Hill, writing articles for…
Julie Cerrone Croner @justagoodlife 7 days ago RT @melissarvh: A4 Help others see their worth isn't determined by the false assumptions, erroneous beliefs, or unwelcome opinions of other…
Julie Cerrone Croner @justagoodlife 7 days ago RT @backpackhealth: A4: Use any helpful tools you can find - we work closely with chronic illness communities to bring together health deta…
WEGO Health @wegohealth 7 days ago Q5A: Which communities are they and what are they doing right? #WEGOHealthChat Julie Cerrone Croner @justagoodlife 7 days ago RT @pettigrew66: A regularly used phrase I use these days is: “People don’t get it until they “GET it!” #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q4A: Are there any great resources you’d point others towards for awareness and education? #WEGOHealthChat
WEGO Health @wegohealth 7 days ago Q5B:Any specific Patient Leaders come to mind when thinking of people truly helping to break stigmas? Tag them to show them some love! #WEGOHealthChat
Simon Stones @simonrstones 7 days ago @angelee828 @wegohealth It's never too late to join a #WEGOHealthChat! Welcome ☺
Julie Cerrone Croner @justagoodlife 7 days ago RT @bbhomebody: T4 I educate more people, I explain how I'm actually feeling instead of smiling and pretending I'm OK., and I advocate when…
Kimberly Schultz @kimberl40685921 7 days ago RT @melissarvh: A1 Those in my #Gastroparesis community are treated as if they're faking the seriousness of illness b/c they don't look sic…
WEGO Health @wegohealth 7 days ago RT @SimonRStones: A4: Getting people to listen - even just for a minute. I've seen people with tears in their eyes a er illustrating what…
Julie Cerrone Croner @justagoodlife 7 days ago RT @KenRayTaylor: A4: Educate educate educate, I believe most people are good and don't understand chronic pain. If someone will take the t…
Laura Sanscartier @co eenlithium 7 days ago A4: I have a blog, have become involved with multiple patient-centered companies, and just use my big ol voice! I stop people when they use o ensive language/terms for the disabled, chronically or mentally ill, and am planning a recital soon. #WEGOHealthChat Becky Brandt RN @bbhomebody 7 days ago @abrewi3010 @danamlewis @RemRunner @afreshchapter @EmilysEntourage Right on Alan! We can all help each other and on Twitter we all do! It's such a warm and helpful community here. #WEGOHealthChat
Amanda @lalupuslady 7 days ago A4a @LADAOrg @LupusResearch and @LupusOrg have excellent #Lupus resources and @powerofpain has a comprehensive website with all the info. you need. #WEGOHealthChat https://t.co/f7iwtAnJmj
Mud n Sky @mudnsky 7 days ago RT @KenRayTaylor: A4: Educate educate educate, I believe most people are good and don't understand chronic pain. If someone will take the t…
AutonomicRN @autonomicrn 7 days ago @angelee828 @wegohealth Hey Angela! #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @AutonomicRN: A4: Life is about choices. We can choose to change the world each day by getting up and going on with life as it happens o…
Kimberly Schultz @kimberl40685921 7 days ago RT @Leslie_GHF: A3-1: As a patient leader part of my role, as I see it, is to acknowledge the daily challenges we have in our patient commu…
Mary @headacheheroine 7 days ago A4: I try to show real life pics of myself to show that chronic illness isn't always what you picture in your head. And that we are so much more than our diagnosis #WEGOHealthChat https://t.co/ZunedvOMEu
Julie Cerrone Croner @justagoodlife 7 days ago RT @backpackhealth: A4: Be detail oriented - you are your best advocate. Document progress and details to help fight stigmas around your ch…
Simon Stones @simonrstones 7 days ago @rheumpatient @melissarvh There's an even worse one which I'm sure you can guess @rheumpatient! #WEGOHealthChat Julie Cerrone Croner @justagoodlife 7 days ago RT @MSandMeRadio: @wegohealth A4: Educating the public through Awareness videos, my website, articles, blog, YouTube channel, twitters, IG,…
Kathleen S. Rand @ksrnv 7 days ago RT @LAlupusLady: A4a @LADAOrg @LupusResearch and @LupusOrg have excellent #Lupus resources and @powerofpain has a comprehensive website wit…
Julie Cerrone Croner @justagoodlife 7 days ago @RieOfLetters Take care of yourself!! <3 #WEGOHealthChat
Simon Stones @simonrstones 7 days ago @RieOfLetters Look a er yourself @RieOfLetters! Speak soon ☺ #WEGOHealthChat
Rheumatoid Patient @rheumpatient 7 days ago RT @srvingofspprt: A2 I think stigma comes from not knowing. Prior to going into treatment myself, I just assumed anyone who checked themse…
Lisa Davis Budzinski @lisadbudzinski 7 days ago A4 Educating through groups & forums, publishing articles & a book, giving the patient perspective at meetings & conferences, attending Rare Disease on Capitol Hill, through twitter chats like this one #WEGOHealthChat Technology has given us vastness https://t.co/iamtAKOF1e
Kimberly Schultz @kimberl40685921 7 days ago RT @KenRayTaylor: A2: As we grow up, we are told no pain no gain and you have to work through it. Most people want to be the person that ca…
Julie Cerrone Croner @justagoodlife 7 days ago Ayyyeeeeee So ridiculous #WEGOhealthchat https://t.co/DH434wr4T0
Alan Brewington @abrewi3010 7 days ago .This is the dream twitter! #WEGOHealthChat https://t.co/zeJzSbRi8u
Simon Stones @simonrstones 7 days ago RT @KenRayTaylor: A4: Educate educate educate, I believe most people are good and don't understand chronic pain. If someone will take the t… Simon Stones @simonrstones 7 days ago RT @wegohealth: #WEGOHealthChat https://t.co/R9x8wJX6tG
Julie Cerrone Croner @justagoodlife 7 days ago RT @abrewi3010: A4 I love learning about @danamlewis #wearenotwaiting, @RemRunner #ProjectSleep, @afreshchapter, @EmilysEntourage. Just bc…
Julie Cerrone Croner @justagoodlife 7 days ago RT @ADVofSpoonieMom: A4: speaking openly about how my health has a ected my life through advocating on Capitol Hill, writing articles for…
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q5: Thinking of other condition areas and who we can learn from, are there online communities out there truly bringing the…
Laura Sanscartier @co eenlithium 7 days ago A4 cont: My recital will be Sinatra-centered (Who is said to have had bipolar disorder), with some information scattered throughout, and all proceeds will be donated to a mental illness charity. #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @Leslie_GHF: A4: I think the most powerful way has been through 1:1 conversations w/caregivers-family members of patients. For years the…
Julie Cerrone Croner @justagoodlife 7 days ago RT @PatientIntv: A4: I share my experience those that ask, but it is a matter of asking. . . there is so much to learn, if you are interes…
Julie Cerrone Croner @justagoodlife 7 days ago RT @SimonRStones: A4: Getting people to listen - even just for a minute. I've seen people with tears in their eyes a er illustrating what…
Simon Stones @simonrstones 7 days ago RT @BarbyIngle: A4. 1st, I just be the best me I can be, I understand that some wont get it n this world, but if I keep being me & doing my… Julie Cerrone Croner @justagoodlife 7 days ago RT @melissarvh: A4A For info about #Gastroparesis & other #FGID, see @IFFGD & @gimotility. And I am always glad to direct to other resource…
Kimberly Schultz @kimberl40685921 7 days ago RT @melissarvh: A2 Misinformation from docs, media, & the public (which seems 2 believe all illnesses can be cured & chronic does not exist…
Lisa Davis Budzinski @lisadbudzinski 7 days ago @SimonRStones @wegohealth Love it !!! #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @backpackhealth: A4: Embrace patient communities and use their support and guidance to help combat the stigmas associated with chronic i…
Allison Miller @rellimnosilla 7 days ago RT @ZebraOrphans: Language use is important when trying to change attitudes and promote understanding.. words like drug addict, scrounger,…
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @SimonRStones: We're half way through, and my poor keyboard is going into meltdown! So here's some motivation which resonates so much to…
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q5A: Which communities are they and what are they doing right? #WEGOHealthChat
Amanda @lalupuslady 7 days ago RT @wegohealth: Q5A: Which communities are they and what are they doing right? #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q5B:Any specific Patient Leaders come to mind when thinking of people truly helping to break stigmas? Tag them to show them… Simon Stones @simonrstones 7 days ago RT @HeadacheHeroine: A4: I try to show real life pics of myself to show that chronic illness isn't always what you picture in your head. An…
Julie Cerrone Croner @justagoodlife 7 days ago RT @LAlupusLady: A4a @LADAOrg @LupusResearch and @LupusOrg have excellent #Lupus resources and @powerofpain has a comprehensive website wit…
Simon Stones @simonrstones 7 days ago RT @LAlupusLady: A4a @LADAOrg @LupusResearch and @LupusOrg have excellent #Lupus resources and @powerofpain has a comprehensive website wit…
Amanda @lalupuslady 7 days ago RT @wegohealth: Q5: Thinking of other condition areas and who we can learn from, are there online communities out there truly bringing the…
Simon Stones @simonrstones 7 days ago RT @co eenlithium: A4: I have a blog, have become involved with multiple patient-centered companies, and just use my big ol voice! I stop…
AutonomicRN @autonomicrn 7 days ago I'm exhausted and tapping out. It's been great to "see" everyone! Still too fresh from two hospital stays in the last two weeks to have much oomph in me! #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @HeadacheHeroine: A4: I try to show real life pics of myself to show that chronic illness isn't always what you picture in your head. An…
Mike Veny @mikeveny 7 days ago @SimonRStones @wegohealth A4: 1. Working on my own shame first through self-care. 2. Making #mentalillness and other invisible illnesses a part of everyday conversation. 3. Looking for teachable opportunities to educate others. #WEGOHealthChat
Mtn.Mom @katinouye 7 days ago RT @PatientIntv: @RieOfLetters @KatInouye @AutonomicRN Agree with you whole-heartedly. It's not just the average person that doesn't under… Lisa Davis Budzinski @lisadbudzinski 7 days ago @SimonRStones @melissarvh It’s just exhausting trying to undo all that has been done by big media #WEGOHealthChat
MSandMeRadio @msandmeradio 7 days ago @wegohealth A5 I think both the Lupus and Breast Cancer communities do an amazing job! #WEGOHealthChat
The Skin I'm In @ellietrinowski 7 days ago I'm so glad I got to join but I must jump o . Thank you to all for the time and energy you put into advocacy. I promise I am your biggest fan! #WEGOhealthchat
WEGO Health @wegohealth 7 days ago RT @MikeVeny: @SimonRStones @wegohealth A4: 1. Working on my own shame first through self- care. 2. Making #mentalillness and other invisibl…
Laura Sanscartier @co eenlithium 7 days ago A5: To Write Love on Her Arms is doing great things for mental health and stigma. They hit the nail on the head! #twloha #WEGOHealthChat
Dr. Melissa Geraghty, Psy.D. @mindfuldrg 7 days ago @wegohealth A4A: @powerofpain has great resources on their website and countless webinars and informational videos on their Youtube Channel. I had the honor of being an iPain featurette and creating a mindfulness for chronic pain webinar for them. #WEGOHealthChat
Becky Brandt RN @bbhomebody 7 days ago @abrewi3010 Yes a little dreamy....MOST of us try to help each other? MANY of us? #WEGOHealthChat
Melissa VanHouten @melissarvh 7 days ago A5 @JPBrown5 is doing amazing things with #MentalHealth awareness #wegohealthchat
Alan Brewington @abrewi3010 7 days ago A5 @RemRunner energy and passion for fighting #narcolepsy stigma. Sleep disorders are a serious illness, not a comedy show punchline. #WEGOHealthChat Fiona McLaughlin @speccymcspec 7 days ago RT @Leslie_GHF: A3-1: As a patient leader part of my role, as I see it, is to acknowledge the daily challenges we have in our patient commu…
Julie Cerrone Croner @justagoodlife 7 days ago @AutonomicRN How has your recovery been going?? Sending you lots of positive vibes! #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @MikeVeny: @SimonRStones @wegohealth A4: 1. Working on my own shame first through self- care. 2. Making #mentalillness and other invisibl…
Mike Veny @mikeveny 7 days ago @SimonRStones @wegohealth A4: Elaborating on what @SimonRStones just said, it's important to get comfortable sharing your story with others. It's hard and it's painful, but it's absolutely transformational. #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago @EllieTrinowski Thanks for joining!! #WEGOHealthChat
Becky Brandt RN @bbhomebody 7 days ago @lisadbudzinski @SimonRStones @melissarvh So exhausting! #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @co eenlithium: A5: To Write Love on Her Arms is doing great things for mental health and stigma. They hit the nail on the head! #twloh…
Simon Stones @simonrstones 7 days ago A5: Speaking from a personal perspective, particularly here in the UK, I think there's so much we can learn from those with cancer. There have been lots of campaigns to change perspectives and I certainly feel that we've seen a shi in people's understanding #WEGOHealthChat https://t.co/D4XLNFE5pP
Julie Cerrone Croner @justagoodlife 7 days ago RT @MindfulDrG: @wegohealth A4A: @powerofpain has great resources on their website and countless webinars and informational videos on their… WEGO Health @wegohealth 7 days ago RT @MikeVeny: @SimonRStones @wegohealth A4: Elaborating on what @SimonRStones just said, it's important to get comfortable sharing your sto…
Julie Cerrone Croner @justagoodlife 7 days ago RT @melissarvh: A5 @JPBrown5 is doing amazing things with #MentalHealth awareness #wegohealthchat
Rheumatoid Patient @rheumpatient 7 days ago @SimonRStones @lisadbudzinski When I was a dentist treating patients with rheumatoid arthritis I used to think I understood what it was about because I read it in a textbook. Now I understand what it's about and if I could I'd go back and apologise to all the patients I must have patronised. #WEGOHealthChat
The Skin I'm In @ellietrinowski 7 days ago @MikeVeny @SimonRStones @wegohealth Bravo, sir! Good stu for all of us! #wegohealthchat
Julie Cerrone Croner @justagoodlife 7 days ago RT @abrewi3010: A5 @RemRunner energy and passion for fighting #narcolepsy stigma. Sleep disorders are a serious illness, not a comedy show…
Julie Cerrone Croner @justagoodlife 7 days ago RT @MikeVeny: @SimonRStones @wegohealth A4: Elaborating on what @SimonRStones just said, it's important to get comfortable sharing your sto…
Simon Stones @simonrstones 7 days ago RT @MikeVeny: @SimonRStones @wegohealth A4: 1. Working on my own shame first through self- care. 2. Making #mentalillness and other invisibl…
Julie Cerrone Croner @justagoodlife 7 days ago RT @SimonRStones: A5: Speaking from a personal perspective, particularly here in the UK, I think there's so much we can learn from those wi…
Simon Stones @simonrstones 7 days ago RT @rheumpatient: @SimonRStones @lisadbudzinski When I was a dentist treating patients with rheumatoid arthritis I used to think I understo… Melissa VanHouten @melissarvh 7 days ago RT @SimonRStones: A3: Definitely @melissarvh! Sensational media headlines about social security cheats, lying patients, miracle cures and t…
Simon Stones @simonrstones 7 days ago RT @MikeVeny: @SimonRStones @wegohealth A4: Elaborating on what @SimonRStones just said, it's important to get comfortable sharing your sto…
Barby Ingle O icial *\O/* @barbyingle 7 days ago A5. Everyone who steps up does their part, I say 'big or small, we need it all'. We need even the smallest puzzle pieces to make the puzzle whole. I do love the #iPain App Website https://t.co/sxETR2ejHa#iPainFeaturettes #iPainLivingMagazine, Condition Bookmarks #WEGOHealthChat https://t.co/MOFOe2UblN
Kristen @srvingofspprt 7 days ago RT @SimonRStones: A4: Getting people to listen - even just for a minute. I've seen people with tears in their eyes a er illustrating what…
Heidi Grabenstatter @patientintv 7 days ago #WEGOhealthchat
JP Summers @advofspooniemom 7 days ago RT @co eenlithium: A5: To Write Love on Her Arms is doing great things for mental health and stigma. They hit the nail on the head! #twloh…
Backpack Health @backpackhealth 7 days ago A5: Online communities have become very important and powerful support networks - we're bringing those communities together with the importance of tracking family health #WEGOHealthChat
Lisa Davis Budzinski @lisadbudzinski 7 days ago @wegohealth A mentor of mine, @BarbyIngle has done amazing work for so many conditions & just cannot thank her enough for helping us #CPS patients #WEGOHealthChat
Alan Brewington @abrewi3010 7 days ago A5 #cysticfibrosis scares me to death! @emilykg1 is always smiling, laughing, and living life. @EmilysEntourage celebrates life. #WEGOHealthChat Rheumatoid Patient @rheumpatient 7 days ago @SimonRStones @melissarvh Daily Express? #WEGOHealthChat
Amanda @lalupuslady 7 days ago A5 @powerofpain is sharing patient stories thru #iPainFeaturette short videos that put a face on pain. https://t.co/1viZHFfN0t #chronicpain #osteoarthritis #WEGOHealthChat
WEGO Health @wegohealth 7 days ago RT @SimonRStones: A5: Speaking from a personal perspective, particularly here in the UK, I think there's so much we can learn from those wi…
WEGO Health @wegohealth 7 days ago Q6:Are there ways that we can work together, across condition areas, to combat chronic illness stigmas? #WEGOHealthChat
AutonomicRN @autonomicrn 7 days ago @justagoodlife The migraine surgery recovery is going fairly well. Two black eyes still, but no headaches!! The fluid overload/heart failure issue is exhausting. See my doc this a ernoon. Labs and a cardiology consult are on my list and his too, I’m sure. Can’t catch a break. #WEGOHealthChat
Backpack Health @backpackhealth 7 days ago One of our favorite EDS Patient Leaders: https://t.co/CxvokOTune #WEGOHealthChat
Simon Stones @simonrstones 7 days ago @rheumpatient @melissarvh #WEGOHealthChat https://t.co/dyMQTPwoFF
Lisa Davis Budzinski @lisadbudzinski 7 days ago @wegohealth A5 @savvy_coop @Clara_Health @powerofpain and so many more are working so hard to make a di erence ✨ #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @BarbyIngle: A5. Everyone who steps up does their part, I say 'big or small, we need it all'. We need even the smallest puzzle pieces to…
Dr. Melissa Geraghty, Psy.D. @mindfuldrg 7 days ago @wegohealth Q5B: @BarbyIngle @KenRayTaylor #WEGOHealthChat Becky Brandt RN @bbhomebody 7 days ago @BarbyIngle I love that @BarbyIngle So true! And all the little things add up. #WEGOHealthChat nobism @nobismhealth 7 days ago RT @LAlupusLady: A3 as a Patient Leader who usually strives to share my #PatientExperience story to create empathy and understanding there…
Mary @headacheheroine 7 days ago A6: definitely!! I'm always looking for ways to collaborate with others who have similar conditions as me to advocate together. There's power in numbers! #WEGOHealthChat https://t.co/mMip4TPGmk
Simon Stones @simonrstones 7 days ago A6: YES, YES, YES! Our voices are so much stronger together - o en when many of the challenges we face cut across our specific conditions. Today's tweet chat is just one example of how we are just phenomenal together as one voice! #WEGOHealthChat https://t.co/Dwj9tRD3zv
I Am Michael Bach @michaelxxxbach 7 days ago RT @pettigrew66: A2: Society has an image in mind as to what MS or disability LOOKS LIKE. If you don’t fit that image, you’re judged or co…
Julie Cerrone Croner @justagoodlife 7 days ago @AutonomicRN Awe man <3 Well that's positive for the migraines. I'll definitely keep praying for you! #WEGOHealthChat
Quin Turner @quinlanturner 7 days ago @wegohealth A5: Honestly, the twitter community in general is fantastic for this. I've only recently become involved here but everyone is incredibly supportive, understanding and has so much knowledge to share. It's been such a positive experience so far #wegohealthchat
Julie Cerrone Croner @justagoodlife 7 days ago RT @lisadbudzinski: @wegohealth A mentor of mine, @BarbyIngle has done amazing work for so many conditions & just cannot thank her enough f…
Julie Cerrone Croner @justagoodlife 7 days ago RT @abrewi3010: A5 #cysticfibrosis scares me to death! @emilykg1 is always smiling, laughing, and living life. @EmilysEntourage celebrates… WEGO Health @wegohealth 7 days ago RT @SimonRStones: A6: YES, YES, YES! Our voices are so much stronger together - o en when many of the challenges we face cut across our sp…
Simon Stones @simonrstones 7 days ago RT @QuinlanTurner: @wegohealth A5: Honestly, the twitter community in general is fantastic for this. I've only recently become involved her…
WEGO Health @wegohealth 7 days ago Q6A: Are there any hashtags or campaigns that you’re aware of that work to combat chronic illness stigma? #WEGOHealthChat
Rheumatoid Patient @rheumpatient 7 days ago @Innov_Dementia For 2 days a er said article, I get messages from well-intentioned friends asking me if I've heard and tried what is mentioned in the article. What annoys me further is I'm active in rheumatology research so would know if there was a cure before in the news! #WEGOHealthChat
MSandMeRadio @msandmeradio 7 days ago @wegohealth A6 #PatientLeaders from each community can come together to produce awareness projects that tackle common struggles and misconceptions as expressed here about chronic illness. #WEGOHealthChat
Amanda @lalupuslady 7 days ago A5B @KathleenArntsen of @LADAOrg is an Patient Leader, advocate and runs the only patient-run #lupus nonprofit https://t.co/yARZBJA9Bh she is in DC advocating right now! #WEGOHealthChat https://t.co/IqBCIGIz9y
Alan Brewington @abrewi3010 7 days ago A5 @ekeeleymoore is leading the way for caregivers. She is completely redefining that term. #WEGOHealthChat
Angela Cohen @angelee828 7 days ago @wegohealth @SimonRStones @MikeVeny A1: IBD-The stigma that it’s a pooping/bathroom disease POTS: That it just has to do w/fainting Some POTS patients don’t have full syncopal episodes & w/both, it can a ect multiple systems #invisibleillness: the stigma that just bc I look “okay”, I’m “better” #WEGOHealthChat Barby Ingle O icial *\O/* @barbyingle 7 days ago A5b People who truly help @wegohealth @justagoodlife @poziamradio @Brianna3207 @WrldHealthcare @savvy_coop @LAlupusLady @KenRayTaylor @JodiOrvisDragon @LilMesican @EDSWellnessSol @Arachnoiditis99 @fizzbubbles @MindfulDrG @MHoganAuthor @Kcbrooks76Kelly @LouiseASL #WEGOHealthChat https://t.co/ed7aGIg9NW
JP Summers @advofspooniemom 7 days ago A4: Where do I begin...@US_Pain @powerofpain @CreakyJoints @HealthyWomen @Migrainedotcom @amfmigraine @NHF @RA_HealthUnion are some of sources I use o en and refer others to. #WEGOHealthChat #invisibleillness https://t.co/X6VH3LS3LW
TheZebraTheory @zebraorphans 7 days ago The more patients and advocates speak out and tell their story, the more awareness is raised and real information is given to family members and friends. Helping info trickle through communities helping to change attitudes and perception #WEGOHealthChat
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @LAlupusLady: A5 @powerofpain is sharing patient stories thru #iPainFeaturette short videos that put a face on pain. https://t.co/1viZH…
Melissa VanHouten @melissarvh 7 days ago A6 Hope so. Patients have many shared interests & goals not specific to individual illnesses & most have experienced stigma #wegohealthchat
WEGO Health @wegohealth 7 days ago RT @BarbyIngle: A5b People who truly help @wegohealth @justagoodlife @poziamradio @Brianna3207 @WrldHealthcare @savvy_coop @LAlupusLady @K…
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q6:Are there ways that we can work together, across condition areas, to combat chronic illness stigmas? #WEGOHealthChat
Dr. Melissa Geraghty, Psy.D. @mindfuldrg 7 days ago @wegohealth Q6: Exposure, exposure, exposure! Keep on talking, posting, creating an open, non- threatening dialogue for these conversations to continue. And for us patients to keep sharing our stories. #WEGOHealthChat Heidi Grabenstatter @patientintv 7 days ago Excellent example, also why I support initiatives that spend more time helping patients thrive rather than hang on by the skin of their teeth. What is patient-driven a er all? Helping provide tools that allow you to live your life (IMHO) #WEGOhealthchat https://t.co/GKmbFWnfxp
Julie Cerrone Croner @justagoodlife 7 days ago RT @HeadacheHeroine: A6: definitely!! I'm always looking for ways to collaborate with others who have similar conditions as me to advocate…
Mary Pettigrew @pettigrew66 7 days ago A4: Continue to educate myself in order to be a better advocate for myself & others, create new ways to spread awareness, encourage healthy conversation instead of battle. Turn words of intent into action #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @SimonRStones: A6: YES, YES, YES! Our voices are so much stronger together - o en when many of the challenges we face cut across our sp…
Julie Cerrone Croner @justagoodlife 7 days ago RT @QuinlanTurner: @wegohealth A5: Honestly, the twitter community in general is fantastic for this. I've only recently become involved her…
Ken Taylor @kenraytaylor 7 days ago A5: At iPain we bring education and awareness to many chronic pain conditions. iPain Living @iPainFoundation Articles sharing stories that others can learn from and share. State proclamations, iPainPOP awareness project anyone can #HaveTheNerveToBeHeard #WEGOHealthChat https://t.co/IW277LIcLy
Mary Pettigrew @pettigrew66 7 days ago RT @ZebraOrphans: The more patients and advocates speak out and tell their story, the more awareness is raised and real information is give…
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Q6A: Are there any hashtags or campaigns that you’re aware of that work to combat chronic illness stigma? #WEGOHealthChat Becky Brandt RN @bbhomebody 7 days ago T6 We just spent #RareDiseaseweek in DC. In state groups we met with legislators, all of us had di erent illnesses but we worked together to ask for what we all need! #WEGOHealthChat https://t.co/Dz6BReSrif
Julie Cerrone Croner @justagoodlife 7 days ago RT @LAlupusLady: A5B @KathleenArntsen of @LADAOrg is an Patient Leader, advocate and runs the only patient-run #lupus nonprofit https://t.…
Julie Cerrone Croner @justagoodlife 7 days ago RT @abrewi3010: A5 @ekeeleymoore is leading the way for caregivers. She is completely redefining that term. #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @angelee828: @wegohealth @SimonRStones @MikeVeny A1: IBD-The stigma that it’s a pooping/bathroom disease POTS: That it just has to do w…
Julie Cerrone Croner @justagoodlife 7 days ago @BarbyIngle @wegohealth @poziamradio @Brianna3207 @WrldHealthcare @savvy_coop @LAlupusLady @KenRayTaylor @JodiOrvisDragon @LilMesican @EDSWellnessSol @Arachnoiditis99 @fizzbubbles @MindfulDrG @MHoganAuthor @Kcbrooks76Kelly @LouiseASL Awe <3 Thank you Barby! RIGHT back at YOU! #WEGOHealthChat
JP Summers @advofspooniemom 7 days ago RT @MindfulDrG: @wegohealth Q6: Exposure, exposure, exposure! Keep on talking, posting, creating an open, non-threatening dialogue for thes…
Rachel Kremer @rkremer13 7 days ago RT @MindfulDrG: @wegohealth A4A: @powerofpain has great resources on their website and countless webinars and informational videos on their…
Julie Cerrone Croner @justagoodlife 7 days ago RT @ADVofSpoonieMom: A4: Where do I begin...@US_Pain @powerofpain @CreakyJoints @HealthyWomen @Migrainedotcom @amfmigraine @NHF @RA_HealthU…
Alan Brewington @abrewi3010 7 days ago A5 @theproject3x5 positivity and big love philosophy is like nothing I’ve seen before. Her smile cures and energizes! #WEGOHealthChat Simon Stones @simonrstones 7 days ago A6A: Here's a few! #ChronicLife #ChronicIllness #SpoonieLife #invisibleillness #WEGOHealthChat https://t.co/lDJb72aQ2y
Heidi Grabenstatter @patientintv 7 days ago RT @bbhomebody: T6 We just spent #RareDiseaseweek in DC. In state groups we met with legislators, all of us had di erent illnesses but we…
Rheumatoid Patient @rheumpatient 7 days ago @SimonRStones @melissarvh Named and shamed in our latest research paper. #WEGOHealthChat https://t.co/DbVwDJk5Rc mini2z Kristin @mini2z 7 days ago @wegohealth Going to add that I have several bosses that never got sick in 30 years and don’t understand chronic illness but when I said lupus they said oh you can die from that #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @MindfulDrG: @wegohealth Q6: Exposure, exposure, exposure! Keep on talking, posting, creating an open, non-threatening dialogue for thes…
Julie Cerrone Croner @justagoodlife 7 days ago RT @ZebraOrphans: The more patients and advocates speak out and tell their story, the more awareness is raised and real information is give…
Simon Stones @simonrstones 7 days ago RT @melissarvh: A6 Hope so. Patients have many shared interests & goals not specific to individual illnesses & most have experienced stigma…
Simon Stones @simonrstones 7 days ago RT @ZebraOrphans: The more patients and advocates speak out and tell their story, the more awareness is raised and real information is give…
Julie Cerrone Croner @justagoodlife 7 days ago RT @MindfulDrG: @wegohealth Q6: Exposure, exposure, exposure! Keep on talking, posting, creating an open, non-threatening dialogue for thes… Julie Cerrone Croner @justagoodlife 7 days ago RT @PatientIntv: Excellent example, also why I support initiatives that spend more time helping patients thrive rather than hang on by the…
WEGO Health @wegohealth 7 days ago RT @SimonRStones: A6A: Here's a few! #ChronicLife #ChronicIllness #SpoonieLife #invisibleillness #WEGOHealthChat https://t.co/lDJb72aQ2y
Mike Veny @mikeveny 7 days ago RT @SimonRStones: A6: YES, YES, YES! Our voices are so much stronger together - o en when many of the challenges we face cut across our sp…
Julie Cerrone Croner @justagoodlife 7 days ago RT @pettigrew66: A4: Continue to educate myself in order to be a better advocate for myself & others, create new ways to spread awareness,…
Julie Cerrone Croner @justagoodlife 7 days ago RT @KenRayTaylor: A5: At iPain we bring education and awareness to many chronic pain conditions. iPain Living @iPainFoundation Articles sha…
Lisa Davis Budzinski @lisadbudzinski 7 days ago @wegohealth A6 Yes, chats like this✨ Bringing everyone together in order to network and collaborate #WEGOHealthChat
Amanda @lalupuslady 7 days ago A5B @BarbyIngle is the @powerofpain “Cheerleader of Hope” and @KenRayTaylor is the epitome of teammate and care giver! #WEGOHealthChat
Julie Cerrone Croner @justagoodlife 7 days ago RT @bbhomebody: T6 We just spent #RareDiseaseweek in DC. In state groups we met with legislators, all of us had di erent illnesses but we…
Simon Stones @simonrstones 7 days ago RT @rheumpatient: @SimonRStones @melissarvh Named and shamed in our latest research paper. #WEGOHealthChat https://t.co/DbVwDJk5Rc Heidi Grabenstatter @patientintv 7 days ago @bbhomebody Was it common to have shared problems across disorders? #WEGOHealthChat
Rheumatoid Patient @rheumpatient 7 days ago RT @aboutIBD: A2: With #IBD there was an idea that it was caused by stress. Long disproven yet people still believe it and stigmatize becau…
Barby Ingle O icial *\O/* @barbyingle 7 days ago @wegohealth A6. Collabs r great when beliefs r similar. Even if you believe di erent in other areas, getting together on similar beliefs can help spread help faster & farther. But most who say, I want us all to do awareness, mean, do it my way, making collabs harder #WEGOHealthChat
Amanda @lalupuslady 7 days ago RT @wegohealth: Q6A: Are there any hashtags or campaigns that you’re aware of that work to combat chronic illness stigma? #WEGOHealthChat
Simon Stones @simonrstones 7 days ago @rheumpatient @melissarvh I've got your paper tabbed and ready to read!! #WEGOHealthChat
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @BarbyIngle: A5b People who truly help @wegohealth @justagoodlife @poziamradio @Brianna3207 @WrldHealthcare @savvy_coop @LAlupusLady @K…
Julie Cerrone Croner @justagoodlife 7 days ago RT @BarbyIngle: @wegohealth A6. Collabs r great when beliefs r similar. Even if you believe di erent in other areas, getting together on s…
Julie Cerrone Croner @justagoodlife 7 days ago RT @lisadbudzinski: @wegohealth A6 Yes, chats like this✨ Bringing everyone together in order to network and collaborate #WEGOHealthChat
Amanda @lalupuslady 7 days ago RT @wegohealth: Q6:Are there ways that we can work together, across condition areas, to combat chronic illness stigmas? #WEGOHealthChat Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @lisadbudzinski: @wegohealth A5 @savvy_coop @Clara_Health @powerofpain and so many more are working so hard to make a di erence ✨ #WEGO…
CreakyJoints.org @creakyjoints 7 days ago RT @ADVofSpoonieMom: A4: Where do I begin...@US_Pain @powerofpain @CreakyJoints @HealthyWomen @Migrainedotcom @amfmigraine @NHF @RA_HealthU…
Backpack Health @backpackhealth 7 days ago @SimonRStones So many great communities on Twitter. #WEGOHealthChat
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @MindfulDrG: @wegohealth Q5B: @BarbyIngle @KenRayTaylor #WEGOHealthChat
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @bbhomebody: @BarbyIngle I love that @BarbyIngle So true! And all the little things add up. #WEGOHealthChat
IFFGD @i gd 7 days ago RT @melissarvh: A4A For info about #Gastroparesis & other #FGID, see @IFFGD & @gimotility. And I am always glad to direct to other resource…
Quin Turner @quinlanturner 7 days ago @wegohealth A6: We're doing it right now. Everyone here is dealing with something di erent but we all seem to align on so many points. It's important that everyone realize that having a chronic illness is a strength (we cope with more in our daily lives) not a weakness. #wegohealthchat
Simon Stones @simonrstones 7 days ago RT @backpackhealth: @SimonRStones So many great communities on Twitter. #WEGOHealthChat
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @KenRayTaylor: A5: At iPain we bring education and awareness to many chronic pain conditions. iPain Living @iPainFoundation Articles sha…
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @justagoodlife: @BarbyIngle @wegohealth @poziamradio @Brianna3207 @WrldHealthcare @savvy_coop @LAlupusLady @KenRayTaylor @JodiOrvisDrago… Kristen @srvingofspprt 7 days ago Uhhh..YEAH! This is gold! #WEGOHealthChat https://t.co/v29Qe9jOHm
Simon Stones @simonrstones 7 days ago RT @QuinlanTurner: @wegohealth A6: We're doing it right now. Everyone here is dealing with something di erent but we all seem to align on…
WEGO Health @wegohealth 7 days ago Thank you SO much to everyone who attended today's #WEGOHealthChat. We know tweets were showing up slowly so feel free to take your time answering the questions.
Rheumatoid Patient @rheumpatient 7 days ago RT @justagoodlife: @ADVofSpoonieMom I can totally relate to this. I remember thinking this woman I worked with who had RA made such a big d…
Melissa VanHouten @melissarvh 7 days ago RT @QuinlanTurner: @wegohealth A6: We're doing it right now. Everyone here is dealing with something di erent but we all seem to align on…
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @LAlupusLady: A5B @BarbyIngle is the @powerofpain “Cheerleader of Hope” and @KenRayTaylor is the epitome of teammate and care giver! …
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @QuinlanTurner: @wegohealth A6: We're doing it right now. Everyone here is dealing with something di erent but we all seem to align on…
Alan Brewington @abrewi3010 7 days ago @GinaMcGalliard Thank you!!! ❤ It goes both ways if you ever need a shoulder! #WEGOHealthChat
Amanda @lalupuslady 7 days ago @wegohealth A6 For The #LupusPFDD project three #lupus orgs @LADAOrg @LupusOrg & @LupusResearch collaborated to share patient voices about drug development w/ @US_FDA #WEGOHealthChat WEGO Health @wegohealth 7 days ago And a major thank you to @SimonRStones for his perpetual wisdom and to @MikeVeny for sharing a new perspective at #WEGOhealthchat! mini2z Kristin @mini2z 7 days ago @wegohealth @SimonRStones @MikeVeny I think we as #PatientLeaders need to teach others on what it is just because they can’t see something doesn’t mean it’s not there and we’re not faking #WEGOHealthChat
Laura Sanscartier @co eenlithium 7 days ago What about a new hashtag....we can see how it flies? Like #wegoforall or #wegotogether ?? Showing we are all in this fight together. #WEGOHealthChat
Rheumatoid Patient @rheumpatient 7 days ago @SimonRStones @melissarvh It's a long read. Have a cup of tea on standby! #WEGOHealthChat
Mike Veny @mikeveny 7 days ago @wegohealth Thank you #WEGOHealthChat and @SimonRStones!
JP Summers @advofspooniemom 7 days ago @Healthline @American_Heart @MigraineAgain are also ones I refer to my family and friends. #WEGOHealthChat #invisibleillness #spoonie
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: Thank you SO much to everyone who attended today's #WEGOHealthChat. We know tweets were showing up slowly so feel free to t…
Mary Pettigrew @pettigrew66 7 days ago My brain seems to be set on the “pause” button today. Lol! Therefore, I’ll scroll through the feed again this a ernoon & will make note of all the great comments posted! #WEGOHealthChat
Alan Brewington @abrewi3010 7 days ago RT @QuinlanTurner: @wegohealth A6: We're doing it right now. Everyone here is dealing with something di erent but we all seem to align on… Mike Veny @mikeveny 7 days ago RT @wegohealth: And a major thank you to @SimonRStones for his perpetual wisdom and to @MikeVeny for sharing a new perspective at #WEGOheal…
Melissa VanHouten @melissarvh 7 days ago Many thanks to @WegoHealth and @SimonRStones for a fabulous chat! #wegohealthchat mini2z Kristin @mini2z 7 days ago @LAlupusLady @wegohealth @powerofpain @LupusResearch I’d be interested in getting some of those! #WEGOHealthChat
Mary Pettigrew @pettigrew66 7 days ago RT @MindfulDrG: @wegohealth Q6: Exposure, exposure, exposure! Keep on talking, posting, creating an open, non-threatening dialogue for thes…
Becky Brandt RN @bbhomebody 7 days ago @PatientIntv It was very common Heidi. Pain and fatigue were probably the most common. We all hit the wall for our a ernoon meetings, which may have been a blessing, so certain legislators saw the real deal! #WEGOHealthChat
Ken Taylor @kenraytaylor 7 days ago RT @BarbyIngle: @wegohealth A6. Collabs r great when beliefs r similar. Even if you believe di erent in other areas, getting together on s…
Becky Brandt RN @bbhomebody 7 days ago RT @PatientIntv: @bbhomebody Was it common to have shared problems across disorders? #WEGOHealthChat
Ken Taylor @kenraytaylor 7 days ago RT @BarbyIngle: A5b People who truly help @wegohealth @justagoodlife @poziamradio @Brianna3207 @WrldHealthcare @savvy_coop @LAlupusLady @K…
Ken Taylor @kenraytaylor 7 days ago RT @BarbyIngle: A5. Everyone who steps up does their part, I say 'big or small, we need it all'. We need even the smallest puzzle pieces to… Simon Stones @simonrstones 7 days ago What an amazing #WEGOHealthChat! I always come away from these chats filled with energy, enthusiasm and inspiration to keep making a di erence. Each and every one of you is amazing! #ThankYou #ChronicLife #ChronicIllness #MakeADi erence #ChangeTheWorld https://t.co/KKBzVriwcz
Alan Brewington @abrewi3010 7 days ago RT @bbhomebody: T6 We just spent #RareDiseaseweek in DC. In state groups we met with legislators, all of us had di erent illnesses but we…
Mary Pettigrew @pettigrew66 7 days ago @MindfulDrG @wegohealth Bingo!!! #WEGOHealthChat
Amanda @lalupuslady 7 days ago @wegohealth A6a #PatientsHavePower #Connect2Health #EndTheStigma #ChannelKindness #WEGOHealthChat
Lisa Davis Budzinski @lisadbudzinski 7 days ago @BarbyIngle @wegohealth #WEGOHealthChat
Laura Sanscartier @co eenlithium 7 days ago This is another A6 #WEGOHealthChat
Simon Stones @simonrstones 7 days ago Thank you @wegohealth and @MikeVeny for a great chat! #WEGOHealthChat https://t.co/JsK5EKSCFh
Julie Cerrone Croner @justagoodlife 7 days ago Thank you to you two!! Great chat #WEGOHealthChat https://t.co/ztGtVkIBxD
Julie Cerrone Croner @justagoodlife 7 days ago RT @wegohealth: And a major thank you to @SimonRStones for his perpetual wisdom and to @MikeVeny for sharing a new perspective at #WEGOheal…
Simon Stones @simonrstones 7 days ago @rheumpatient @melissarvh Love a good paper! #WEGOHealthChat Simon Stones @simonrstones 7 days ago RT @mini2z: @wegohealth @SimonRStones @MikeVeny I think we as #PatientLeaders need to teach others on what it is just because they can’t se…
Simon Stones @simonrstones 7 days ago RT @wegohealth: And a major thank you to @SimonRStones for his perpetual wisdom and to @MikeVeny for sharing a new perspective at #WEGOheal…
Julie Cerrone Croner @justagoodlife 7 days ago RT @SimonRStones: What an amazing #WEGOHealthChat! I always come away from these chats filled with energy, enthusiasm and inspiration to ke…
Simon Stones @simonrstones 7 days ago RT @wegohealth: Thank you SO much to everyone who attended today's #WEGOHealthChat. We know tweets were showing up slowly so feel free to t…
Backpack Health @backpackhealth 7 days ago Thanks for letting us listen in @wegohealth ! #WEGOHealthChat #chronicillness #spoonie #spoonielife
Ken Taylor @kenraytaylor 7 days ago A6: Many times your voice is all you have to make a di erence. Find a project open to all conditions to participate and make your voice heard. #iHaveTheNerveToBeHeard #WEGOHealthChat https://t.co/WsSB2TFBf9
WEGO Health @wegohealth 7 days ago RT @SimonRStones: What an amazing #WEGOHealthChat! I always come away from these chats filled with energy, enthusiasm and inspiration to ke…
JP Summers @advofspooniemom 7 days ago RT @SimonRStones: What an amazing #WEGOHealthChat! I always come away from these chats filled with energy, enthusiasm and inspiration to ke… iPain Foundation @powerofpain 7 days ago RT @KenRayTaylor: A5: At iPain we bring education and awareness to many chronic pain conditions. iPain Living @iPainFoundation Articles sha… Julie Cerrone Croner @justagoodlife 7 days ago @pettigrew66 I feel like that every time there's a #WEGOHealthChat haha! It's like info overload iPain Foundation @powerofpain 7 days ago RT @BarbyIngle: @wegohealth A6. Collabs r great when beliefs r similar. Even if you believe di erent in other areas, getting together on s… iPain Foundation @powerofpain 7 days ago RT @BarbyIngle: A5b People who truly help @wegohealth @justagoodlife @poziamradio @Brianna3207 @WrldHealthcare @savvy_coop @LAlupusLady @K…
Mary Pettigrew @pettigrew66 7 days ago Thank you for all you do! Today was great! #WEGOHealthChat https://t.co/BRigM5nPmP
Julie Cerrone Croner @justagoodlife 7 days ago RT @co eenlithium: What about a new hashtag....we can see how it flies? Like #wegoforall or #wegotogether ?? Showing we are all in this fi… iPain Foundation @powerofpain 7 days ago RT @BarbyIngle: A5. Everyone who steps up does their part, I say 'big or small, we need it all'. We need even the smallest puzzle pieces to… iPain Foundation @powerofpain 7 days ago RT @KenRayTaylor: A6: Many times your voice is all you have to make a di erence. Find a project open to all conditions to participate and…
Julie Cerrone Croner @justagoodlife 7 days ago RT @mini2z: @wegohealth @SimonRStones @MikeVeny I think we as #PatientLeaders need to teach others on what it is just because they can’t se…
Amanda @lalupuslady 7 days ago RT @SimonRStones: What an amazing #WEGOHealthChat! I always come away from these chats filled with energy, enthusiasm and inspiration to ke… iPain Living Magazine @ipainfoundation 7 days ago RT @KenRayTaylor: A5: At iPain we bring education and awareness to many chronic pain conditions. iPain Living @iPainFoundation Articles sha… Rheumatoid Patient @rheumpatient 7 days ago @lisadbudzinski @SimonRStones I know they've developed arthritis simulation gloves that HPs can wear to give an idea of how di icult it is to grip things and do simple tasks like make a cup of tea. Of course that's only one aspect of rheumatoid arthritis. Then there's pain, fatigue, etc. #WEGOHealthChat iPain Living Magazine @ipainfoundation 7 days ago RT @BarbyIngle: @wegohealth A6. Collabs r great when beliefs r similar. Even if you believe di erent in other areas, getting together on s… mini2z Kristin @mini2z 7 days ago @wegohealth For me, I talk to people all the time much to my children’s embarrassment but I’m an advocate and it’s the only way I know how besides my blog and other social media #WEGOHealthChat iPain Living Magazine @ipainfoundation 7 days ago RT @BarbyIngle: A5b People who truly help @wegohealth @justagoodlife @poziamradio @Brianna3207 @WrldHealthcare @savvy_coop @LAlupusLady @K… iPain Living Magazine @ipainfoundation 7 days ago RT @BarbyIngle: A5. Everyone who steps up does their part, I say 'big or small, we need it all'. We need even the smallest puzzle pieces to…
Lisa Davis Budzinski @lisadbudzinski 7 days ago @mini2z @wegohealth This is actually exists! There were just as many at my work place that never got ill or knew anyone very ill #WEGOHealthChat iPain Living Magazine @ipainfoundation 7 days ago RT @KenRayTaylor: A6: Many times your voice is all you have to make a di erence. Find a project open to all conditions to participate and…
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @SimonRStones: A6A: Here's a few! #ChronicLife #ChronicIllness #SpoonieLife #invisibleillness #WEGOHealthChat https://t.co/lDJb72aQ2y WEGO Health @wegohealth 7 days ago Thank you to again everyone who came to #WEGOHealthChat today! So great to hear what you're up to & be apart of a great idea exchange! If you'd like to do this more o en, be sure to join our private FB group, available only to Network members! https://t.co/k79PgLJO5o
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @bbhomebody: T6 We just spent #RareDiseaseweek in DC. In state groups we met with legislators, all of us had di erent illnesses but we…
Rheumatoid Patient @rheumpatient 7 days ago RT @Innov_Dementia: #wegohealthchat One way we are trying to break the stigma of #dementia is through @DementiaTweets audio diaries. They a… mini2z Kristin @mini2z 7 days ago @wegohealth We are travelling home so I’m trying to be the navigator for my hubby! #WEGOHealthChat
Barby Ingle O icial *\O/* @barbyingle 7 days ago RT @KenRayTaylor: A6: Many times your voice is all you have to make a di erence. Find a project open to all conditions to participate and…
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @KenRayTaylor: A5: At iPain we bring education and awareness to many chronic pain conditions. iPain Living @iPainFoundation Articles sha…
JP Summers @advofspooniemom 7 days ago RT @KenRayTaylor: A6: Many times your voice is all you have to make a di erence. Find a project open to all conditions to participate and…
Heidi Grabenstatter @patientintv 7 days ago @bbhomebody I imagine in a rare disease group it would be. I'd love to see the analysis of the caregivers and siblings of pediatric patients. So many problems yet to solve. Hey HIT. . . Job security! #WEGOHealthChat
Alan Brewington @abrewi3010 7 days ago A6 people are incredibly more intriguing than diagnoses. Find someone’s heart and soul that’s similar to yours then cure all the things. #WEGOHealthChat WEGO Health @wegohealth 7 days ago Don't forget, we have #wegohealthchat the second Tuesday of every month at 1pm ET. Mark it on your calendar !
Lisa Davis Budzinski @lisadbudzinski 7 days ago RT @PatientIntv: Excellent example, also why I support initiatives that spend more time helping patients thrive rather than hang on by the…
Rheumatoid Patient @rheumpatient 7 days ago RT @pettigrew66: A2: Society has an image in mind as to what MS or disability LOOKS LIKE. If you don’t fit that image, you’re judged or co…
Frank Bird @4reallife7 7 days ago RT @wegohealth: Don't forget, we have #wegohealthchat the second Tuesday of every month at 1pm ET. Mark it on your calendar !
Becky Brandt RN @bbhomebody 7 days ago Thanks for another great chat! Have a lovely day out there everyone. And Julie @justagoodlife...How about going into labor already! We need a baby pic around here! #WEGOHealthChat https://t.co/8bSt3TpPgl
Heidi Grabenstatter @patientintv 7 days ago RT @bbhomebody: @PatientIntv It was very common Heidi. Pain and fatigue were probably the most common. We all hit the wall for our a erno…
WEGO Health @wegohealth 7 days ago Make sure to follow today's hosts: @Simonrstones and @MikeVeny! Thank you SO much Simon and Mike for leading this discussion and sharing some of your insider knowledge! #WEGOHealthChat mini2z Kristin @mini2z 7 days ago @QuinlanTurner @wegohealth I find twitter to be my best support but I have found a great Facebook group for my new medical cannabis in Canada helps me with dosing etc #WEGOHealthChat
Simon Stones @simonrstones 7 days ago RT @wegohealth: Make sure to follow today's hosts: @Simonrstones and @MikeVeny! Thank you SO much Simon and Mike for leading this discussio… Simon Stones @simonrstones 7 days ago RT @rheumpatient: @lisadbudzinski @SimonRStones I know they've developed arthritis simulation gloves that HPs can wear to give an idea of h…
Rheumatoid Patient @rheumpatient 7 days ago RT @PatientIntv: @RieOfLetters @KatInouye @AutonomicRN Agree with you whole-heartedly. It's not just the average person that doesn't under…
Rheumatoid Patient @rheumpatient 7 days ago RT @RieOfLetters: @pettigrew66 Definitely true! With my fibromyalgia and hemiplegic migraines, I can go from looking okay, to being unable…
Lisa Davis Budzinski @lisadbudzinski 7 days ago There is still much to be done regarding stigma in the invisible chronic illness landscape. I want to thank everyone who is working so hard to do just that✨ #wegohealthchat
Alan Brewington @abrewi3010 7 days ago @bbhomebody It’s dreamy yes but still mostly attainable I think. I believe idealism is a good source of patient hope that keeps us going. #WEGOHealthChat
Barby Ingle O icial *\O/* @barbyingle 7 days ago Q6a. My Fav hashtags - #HopeIsTrue #CheerleaderOfHOPE #GenerationP #IHaveTheNerveToBeHeard #CanyoUheaRmE #DoYouHaveTheNerveToBeHeard #NERVEmber #iPain #iPainLiving #iPainPOP #BreakthroughCrew #BeYourOwnBestAdvocate #GoOrange #iPainFeaturettes #ChronicPain #WEGOHealthChat https://t.co/OuNwW5VY3J
Robert Breining @poziamradio 7 days ago RT @BarbyIngle: A5b People who truly help @wegohealth @justagoodlife @poziamradio @Brianna3207 @WrldHealthcare @savvy_coop @LAlupusLady @K…
Lisa Davis Budzinski @lisadbudzinski 7 days ago Everyone have a great week no matter where you are ✨ #wegohealthchat
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