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1 Dear Sirs, I hereby wish to submit the following comments on your Access to Education for Children / Young People with Medical Conditions Consultation: What can I say? As a Mentor and Coach with the Royal Voluntary Service here in North Wales I think that it is IMPERATIVE that Children / Young People / Future Generations have FULL, TRANSPARENT & OPEN ACCESS to a good quality of education and learning in Welsh schools. As a Bipolar 1 Sufferer (I've had it all my life) I have fully experienced the outright rather SHAMBOLIC nature of healthcare and education provision in many UK school(s). I managed to get a Degree and PGCert but had to work exceptionally hard on myself outside of the 'state system' to get my education. This should not be the case. Medical Conditions need to be highlighted much sooner in the school / healthcare systems and PSE Education should and could take the lead on this. School pupils with medical needs need a better quality of delivery of health / social care / educational subjects and topics and support systems need to focus on a good quality, robust form of EDUCATION & EMPOWERMENT. Only then will pupils achieve and attain a successful education for themselves, and those around them, that is relevant to their needs, both medical and non-medical. This concludes my comments and I look forward to being of further assistance if at all possible. Thank-you. Best, Regards, Member of public – anonymous 2 Supporting Learners with Healthcare Needs Consultation Response Form Your name: Ruth Ferrier Organisation (if applicable): Vale of Glamorgan Education authority email / telephone number: 01446709811 Your address: Provincial House, Kendrick Road, Barry, Vale of GlamorganCF634RU Responses should be returned by 29 April 2016 to: Additional Learning Needs Policy Branch Support for Learners Division Department for Education and Skills Welsh Government Cathays Park Cardiff CF10 3NQ or completed electronically and sent to: e-mail: [email protected] Category of Schools respondent Special schools Special Educational Needs Co- ordinators Further education sector Preschool organisations Education professionals Teaching Unions Local government x Work Based Learning organisations Local Health Boards Health professionals Other public sector organisations Third sector organisations Individuals Other Consultation questions These questions should be read in conjunction with the draft Supporting Learners with Healthcare Needs guidance document, which replaces the Access to Education and Support for Children and Young People with Medical Needs guidance document. Question 4 should be read in conjunction with the Guidance on the use of emergency salbutamol inhalers in schools in Wales (2014) document. Question 1 – The content of the revised guidance document Do you agree that the revised draft Supporting Learners with Healthcare Needs guidance document is clear and easy to understand? Agree x Disagree Neither agree nor disagree Supporting comments The guidance document is clear and easy to understand. However one of the main aims of updating the guidance was to make it more concise. This document is still lengthy. A shortened version that includes just the main points with links to the full guidance would be extremely useful for busy professionals. Question 2 – The format/presentation of the revised guidance document Do you agree that the revised draft Supporting Learners with Healthcare Needs guidance document is clear in its presentation of the legal duties and advice for governing bodies and local authorities? This includes the presentation of the content which would be issued as statutory guidance (in bold font); information which is a summary of legal duties; and general advice. Agree x Disagree Neither agree nor disagree Supporting comments The revised draft is very clear in its presentation of legal duties in relation to schools, governors and local authorities. Question 3 – The structure of the revised guidance document Do you agree that the revised Supporting Learners with Healthcare Needs guidance document is structured clearly? Are you able to easily find the information you need or want to know by using the revised guidance document? Agree x Disagree Neither agree nor disagree Supporting comments The document is structured clearly and specific information is very easy to find. The inclusion of statutory duties in bold is particularly useful. Question 4 – The Guidance on the use of emergency salbutamol inhalers in schools in Wales document (2014) Do you agree that the Guidance on the use of emergency salbutamol inhalers in schools in Wales document provides adequate advice to schools and/or local authorities on the changes to UK regulations allowing schools to hold emergency salbutamol inhalers? Agree x Disagree Neither agree nor disagree Supporting comments The guidance on the use of emergency salbutamol inhalers in schools does provide adequate advice to schools and local authorities on the changes to UK regulations allowing schools to hold emergency salbutamol inhalers. The sections relating to the “early signs of an asthma attack, asthma procedures and practical steps following the use of the emergency inhaler” are particularly helpful to non-medical staff dealing with children. Question 5 – Additional forms for the Supporting Learners with Healthcare Needs Do you agree that the separate, supporting documentation (Annex 3) provided with the Supporting Learners with Healthcare Needs document is sufficient for your needs? If you disagree, please use the box below to suggest any potential additions or changes to these materials. Agree x Disagree Neither agree nor disagree Supporting comments The exemplar forms are sufficient for the needs of schools. However schools should not be encouraged to adapt the forms without medical advice. Question 6 – Outline of the legal framework Is the legal framework annex (Annex 1) helpful in highlighting the main legal provisions associated with safeguarding the welfare of children with healthcare needs? Agree Disagree Neither agree nor disagree Supporting comments The outline of the legal framework in annex 1 is helpful but all of the information should have been included in the body of the main guidance for the absence of doubt. Linking the guide to the Equality Act 2010 is very helpful. Question 7: If you have any related issues or comments in addition to the points above, please use this space to report them: Please enter here: The contacts list in Appendix 2 will enable schools to access further information, support and advice. The document could be improved by strengthening the responsibilities of parents. Responses to consultations are likely to be made public (please see the “Data protection” section in the Consultation Document), on the internet or in a report. If you would prefer your response to remain anonymous, please tick here: 3 Supporting Learners with Healthcare Needs Consultation Response Form Your name: Mrs Rebekah Watson Organisation (if applicable): Migraine Action email / telephone number: [email protected] Your address: 4th Floor, 27 East Street Leicester LE1 6NB Responses should be returned by 29 April 2016 to: Additional Learning Needs Policy Branch Support for Learners Division Department for Education and Skills Welsh Government Cathays Park Cardiff CF10 3NQ or completed electronically and sent to: e-mail: [email protected] Category of Schools respondent Special schools Special Educational Needs Co- ordinators Further education sector Preschool organisations Education professionals Teaching Unions Local government Work Based Learning organisations Local Health Boards Health professionals Other public sector organisations Third sector organisations Individuals Other Consultation questions These questions should be read in conjunction with the draft Supporting Learners with Healthcare Needs guidance document, which replaces the Access to Education and Support for Children and Young People with Medical Needs guidance document. Question 4 should be read in conjunction with the Guidance on the use of emergency salbutamol inhalers in schools in Wales (2014) document. Question 1 – The content of the revised guidance document Do you agree that the revised draft Supporting Learners with Healthcare Needs guidance document is clear and easy to understand? Agree Disagree Neither agree nor disagree Supporting comments Thank you for the opportunity to respond to this consultation document. We welcome the efforts to support learners with healthcare needs but we do feel that the proposed draft is insufficient. The focus seems to be on protecting schools and LEAs; as opposed to supporting learners with healthcare needs. We feel that children’s health needs, alongside the safeguarding and promotion of these needs, should be paramount. However, this is not demonstrated throughout the draft and we are concerned by the lack of standardised policies and procedures. The document has an overwhelming tone of ambiguity and lacks clarity. The content is non-direct and there is no clear indication of staff roles, organisation requirements and how to deliver effective support. This lack of clarity must be addressed to ensure the best possible outcomes for learners with health needs. The current guidance framework has failed for many schools who are unwilling to change practice or improve support. This is likely to continue or worsen if the guidance remains unclear and open to interpretation. We would also like to