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Pediatric Bioethics in the Shadow of COVID

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Pediatric Bioethics in the Shadow of COVID Pediatric Bioethics in the Shadow of COVID Wednesday, May 5, 2021 9 a.m. – 4:45 p.m. Continuing Education Credit Requirements for Successful Completion: > Record attendance in REDCap form > Participate in program discussion > Complete post-program evaluation within 48 hours by May 14 Provider Approval Statements: •This educational activity has been awarded 6.25 nursing contact hours. Children’s Mercy Kansas City is approved with distinction as a provider of nursing continuing professional development by the Midwest Multistate Division, an accredited approver by the American Nurses Credentialing Center’s Commission on Accreditation. •Children’s Mercy Hospital is accredited by the Missouri State Medical Association to provide continuing medical education for physicians. Children’s Mercy Hospital designates this live educational activity for a maximum of 6.5 AMA PRA Category1 Credit(s). Physicians should claim only the credit commensurate with the extent of their participation in the activity. •6.25 Social Work CEUs will be provided to licensed Social Workers. Children’s Mercy Hospital’s department of Social Work & Community Services has been approved as a Continuing Education provider by the state of Kansas Behavioral Sciences Regulatory Board. Conflict of Interest: •Dr. Barbara Pahud discloses that she is on a Speakers Bureau for Sanofi Pasteur, consultant on advisory boards for Merck, Pfizer and Sanofi Pasteur and is an investigator on clinical trials funded by GlaxoSmithKline, Merck, Moderna and Pfizer. •No conflicts of interest have been identified for the other planners and presenters for this educational activity. Link to REDCap Attendance and Evaluation Form: https://cmhredcap.cmh.edu/surveys/?s=H8YTT77D7E (Complete by May 14 to received NPD (CNE)/CME credit.) Today's Agenda 9 to 9:10 a.m. Opening Remarks 9:10 to 10:10 a.m. COVID is Not the Same Everywhere: Different Countries’ Responses to the Pandemic 10:10 to 10:20 a.m. BREAK 10:20 to 11:20 a.m. Three Types of Distrust: Ignorance, Misunderstanding, and Injustice 11:20 to 11:30 a.m. BREAK 11:30 a.m. to 12:30 p.m. Allocation of Scarce Resources During the Pandemic 12:30 to 1:10 p.m. LUNCH BREAK 1:10 to 2:10 p.m. Balancing Hope and Fear: Vaccine Access and Vaccine Hesitancy 2:10 to 2:20 p.m. BREAK 2:20 to 3:20 p.m. Pediatric Nursing in the Pandemic: What is Beyond our Scope of Practice? 3:20 to 3:30 p.m. BREAK 3:30 to 4:30 p.m. Links Between Public Health Crises and Economic Inequities 4:30 to 4:45 p.m. Final Thoughts Speakers listed here: https://www.childrensmercy.org/health-care-providers/bioethics-center/pediatric-bioethics-in-the-shadow-of-covid-symposium/ Many thanks to our generous donors: • Sebahat Atar • John Lantos • Hui Siu Tan • Ivor Berkowitz • Efrat Lelkes • Christy Torkildson • Harold Bland • Anne M Lovell • Timothy Vedder • Lisa Force • Matt Mayer • Vanessa Watkins • Edwin Forman • Deedra Miller • Dawn Wolff • Sheila GK • Angira Patel • 5 Anonymous donors • Richard Goad • Kala Perkins • Children's Mercy Kansas City • Michael Harkness • Brenda Rogers • Glasnapp Family Foundation • Angela Knackstedt • Anna H Siegler • Bioethics Center Advisory Board & Fundraising Committee For more information: https://support.childrensmercy.org/fundraiser/2816264 Cheers to 10 years of our Pediatric Bioethics Certificate Program • First class of 17 students in 2011-12. • Our 10th cohort graduates this week. • We have trained nearly 300 students from over 25 countries. https://www.childrensmercy.org/health-care-providers/bioethics-center/certificate-program/ Year One: 2011-2012 For a full list of graduates, visit our website: https://www.childrensmercy.org/health-care-providers/bioethics- center/certificate-program/ Year Two: 2012- 2013 For a full list of graduates, visit our website: https://www.childrensmercy.org/health-care-providers/bioethics- center/certificate-program/ Stefan Kutzsche (2012-13) MD, MHA, MSc (MHPE), PhD, special advisor at the Department for Education at Oslo University Hospital, Norway. • Stefan has been involved in neonatology and ethics education of medical trainees, international medical graduates, nurses and medical students in Norway, Malaysia and Cambodia and the U.S. • He is also writing historical biography vignettes edifying moral models to educate and convey the dominant values to future generations of medical doctors. • "From the perspective of a medical educator, the training at CMBC has enabled me to develop the ability to reflect and deliberate on my willingness to act according to moral reasoning." Year Three: 2013-2014 For a full list of graduates, visit our website: https://www.childrensmercy.org/health-care-providers/bioethics- center/certificate-program/ Regina Okhuysen-Cawley (2013-14) Associate Professor, Sections of Critical Care Medicine and Palliative Care, Baylor College of Medicine • Yuri and I teamed up in Buenos Aires for the International Children's Palliative Care Network (ICPCN) conference in 2016...and in Rome to present pat the Global Gathering sponsored by the Maruzza Foundation in 2018. • I am the representative for Latin America for ICPCN and Chaired the Peds Section of the Yuriko Nakashima Latin American Palli Care Assoc in 2017 (2013-14) the day we • I am "guest editing" the second pediatric stormed the Mexican palliative care Special Issue of the Journal Senate. Children, Stephanie Kukora ('13-14) UMich • Stephanie researches parent/clinician communication and shared decision-making for tough decisions. She teaches advanced communication skills using improv theater exercises. • At UMich: • Pediatric Ethics Committee • Brandon NICU and Mott Hospital bereavement committees; • Directs the global health partnership in neonatology https://medimprov- between the Michigan and St. Paul’s Hosp Millennium mi.weebly.com/ Medical College in Addis Ababa, Ethiopia. Harold Bland (2013-14) Professor Emeritus, Florida State University College of Medicine • Executive Board of Missouri Kids 1st. We work to prevent, treat, and educate the public about child abuse and its lasting effects on children. We work closely with physicians who specialize in caring for children who have been abused." • I was fortunate to be one of the members of the Pediatric Bioethics classes from Sept 2013-May 2014. I consider this class to be one of the most valuable classes of my life. Lorraine Dickey (2013-14) • Founded The Narrative Initiative LLC® in 2017 to use the power and efficiency of personal story to help healthcare staff and patients examine what is meaningful in experience of giving and receiving person- centered care. • Co-founded The Transformational Narrative Team LLC to bring narrative techniques to leaders and use the power of personal story and reflective listening to examine core values in post-pandemic world. • Neonatologist at St. Vincents Healthcare in Billings, MT serving some of the most remote areas of Montana and Wyoming. • Recently recorded a TEDx talk, “A Formula for Kindness,” expected in 2021. Year Four: 2014-2015 Jagdish Chinnappa (2014-15) Manipal Hospital Bangalore • Member of Ethics board at Manipal and St Johns hospital Bangalore • Organizing chairperson of yearly Pedethics symposium • Currently working on a Pedethics module for the Indian Academy of Pediatrics • Program at Children's Mercy was the igniting of a passion for the pursuit of pediatric bioethics in India • Website: www.childcentral.in Lou Bartoshesky (2013-14) Dr. Bartoshesky served as medical director of genetics and newborn screening for the Delaware Division of Public Health. Former Chair of Pediatrics at Christiana Care Health System. • "The Pediatric Bioethics Program was challenging intellectually and great fun as well." Year Five: 2015-2016 Paula Aristizabal (2015-16) Assoc Prof of Pediatric Hematology/Oncology, UCSD, Medical Director International Outreach Program & Quality Improvement Lead; Member Population Sciences, Disparities & Community Engagement, UCSD Moores Cancer Center • Dr. Aristizabal research interests include ethics, patient- provider communication and global health, with a focus on discovering the causes of pediatric cancer disparities and developing strategies to improve outcomes in racial/ethnic minorities and underserved groups. • Her work focuses on • barriers to participation in cancer clinical trials for Hispanic children • Effect of social determinants of health on outcomes in Hispanics. • Participating in the Bioethics Certificate has been critical to Dr. Aristizabal’s career advancement. • Websites: https://www.rchsd.org/doctors/paula-aristizabal-md- mas/ and https://profiles.ucsd.edu/maria.aristizabal Sumaira Khowaja-Punjwani (2015-16) PhD (USA), CPB (USA), MBEth (Pak) & BScN (Pak), Saifee Burhani School of Nursing • PhD in Bioethics & Global Public Health (1st in Pakistan) • Vice-President Pakistan for Asian Bioethics Association. • Faculty for "Diploma in Healthcare Ethics & Professionalism" initiated by Shalamar Bioethics Department, Shalamar Medical and Dental College, Lahore, Pakistan. • Serving World Emergency COVID-19 Pandemic Ethics (WeCope) Committee. • "It was a wonderful and enlightening experience for me. The Children’s Mercy program equipped me with the essential knowledge required related to pediatric bioethics.” • Website: https://sbson.edu.pk/faculty.html 2016-17 Year Six: 2016-17 Amy Caruso-Brown (2016-17) MD, MSc, MSCS, HEC-C, Associate Professor of Bioethics and Humanities and of Pediatrics, SUNY Upstate Medical University • Pediatric oncologist, bioethicist and medical educator; • Research interests
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