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Living with Dementia Newsletter of Alzheimer’S Australia Act December 2014

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Living with Dementia Newsletter of Alzheimer’S Australia Act December 2014 FIGHTING ALZHEIMER’S FOR AUSTRALIA LIVING WITH DEMENTIA NEWSLETTER OF ALZHEIMER’S AUSTRALIA ACT DECEMBER 2014 ALZHEIMER’S AUSTRALIA ACT WORKING TO CREATE A DEMENTIA-FRIENDLY COMMUNITY Dementia Awareness Month 2014 is over and Alzheimer’s ACT had a very successful month with education and awareness events, the Memory Walk&Jog and guest speaker, Steve Milton from the UK. Each September it is great to see community participation and support increasing for Alzheimer’s ACT and the work we do. Alzheimer’s ACT always holds a Month with an exhibition of work by Insurance Scheme. Holding range of activities during Dementia the Alzheimer’s ACT Art Group at The events at Carers ACT enables us to Awareness Month to reach as wide Hellenic Club from 1 - 5 September. accommodate a larger audience than an audience as possible. (More on page 2). is possible at our Kaleen premises. During September Alzheimer’s ACT An education session for the general Also at Carers ACT was a brain had information stands maintained by public on What is dementia? was health information day on 19 volunteers and staff at both Canberra held at Kaleen on 9 September and September which included a Your Hospital and Calvary Hospital. an information session was held at Brain Matters™ (YBM) presentation Carers ACT on 16 September with and demonstration on healthy We opened Dementia Awareness Ken Baker on the National Disability cooking by Nutrition Australia and an Story continued next page Photos Above, Left to Right: Les Makai and his artwork at the Hellenic Club exhibition, YBM presenter Charise Buckley, Memory Walk&Jog, Member of the Alakara Group enjoying a Questacon demonstration. Page DEMENTIA AWARENESS MONTH ACTIVITIES 2 - 4 NEWS 5 - 7 STAFF NEWS 8 AN EVENING WITH ITA 9 PHOTO ALBUM 10 NEWS DEMENTIA AWARENESS MONTH ACTIVITIES (CONTINUED FROM PAGE 1) exercise session by Judy Croston. Ainslie Football Club by Steve Milton To finish off Dementia Awareness from the UK. The subject of the Month Alzheimer’s ACT held a Sunday 21 September was the date special Dementia Awareness Month multi-cultural information and open for our Memory Walk&Jog which talk was Dementia Friendly Concepts day at Villaggio Sant’ Antonio on 23 was a huge success with over 450 and Communities. The afternoon September. registrations. Thankfully Canberra also included a presentation by Ted turned on a sunny day for us to and Colleen Duff who are building celebrate World Alzheimer’s Day a dementia-friendly home as well 2014. (For more see page 3). as a short talk by Kate Swaffer from South Australia and Breda Jones, Guests were treated to a wonderful a member of Alzheimer’s ACT. (For presentation on 22 September at the more see page 4) ACT ART GROUP EXHIBITION HELLENIC CLUB 1 - 5 SEPTEMBER 2014 Photos Below Left to Right: Warren Cameron, Jane Allen thanking Jim Power for his work in framing the paintings, Klaus Van Kampen and Lorraine Wadley. Disclaimer About Us Board Directors Articles in this publication provide a Alzheimer’s Australia ACT provides Greg Fraser - President general summary only of the subject information, advice, support, advocacy Gayle Sweeney - Vice President matter covered. Any person with and education for the thousands of dementia should seek professional Canberrans, their families and carers Trevor Wheeler - Treasurer advice about their specific case. living with dementia. John Fely - Director Alzheimer’s Australia ACT is not Michael Pedler - Director liable for any error or omission in Our vision is for a society committed this publication. Permission should to the prevention of dementia, while Geoff Hine - Director be sought from the Editor before valuing and supporting people living Camilla Rowland - Director reproducing articles. Once permission is with dementia. Sharon Winks - Director given the source must be acknowledged. Jane Allen - CEO Alzheimer’s Australia ACT does not To find out more about us and endorse any products, opinions or the services we provide, visit services of any description. www.fightdementia.org.au or call the National Dementia Helpline on 1800 100 500. 2 2 DECEMBER 2014 LIVING WITH DEMENTIA 3 NEWS WHAT A WALK! World Alzheimer’s Day 2014 was again the date for Alzheimer’s ACT’s Memory Walk&Jog and this year our route took us from Lennox Gardens, Lake Burley Griffin, under the two bridges to Bowen Park and return. Registrations for the walk were nearly of his grandmother, Reba. Nicole double that of our first walk in 2013. Riding, the first placed female runner This year we were amazed at the was also running in memory of her fundraising efforts of our participants Nan, 2nd place female was Melanie which were triple that of the previous Callaghan from Team Bobby’s Girls year. Alzheimer’s ACT raised $20,000 and 3rd was Carolyn Barker running in from the event through individual memory of her Ama. Second placed registrations and fundraising on the male runner was Lachlan Hogg, Everyday Hero website. closely followed by David Clarke; both good friends of Alzheimer’s ACT. The lead-up to the event was a busy time with staff hard at work publicising This year there were quite a few and preparing for the day. Al the teams registered for the Walk&Jog Elephant worked tirelessly promoting and it was great to see the teams from the event and on the big day Al had RACFs which included teams from a wonderful morning greeting people Kankinya, Goodwin, Adria Village and and having photos taken. Villaggio Sant’ Antonio. Gai Brodtmann, Federal MP started Alzheimer’s ACT would like to thank both the Run and Walk, commenting Goodwin Aged Care Services for their that it was the first time she had ever sponsorship, The Tradies Community used a starting horn. Crew for their valuable assistance as Top: Warm up with the Southern Cross marshalls on the day, Wiffens for the Health Club; Gai Brodtmann starts off Board Directors The competitive group of runners delicious fruit and the Southern Cross the walkers; participants coming over the were led to the finish line by Peter Health Club for their sponsorship and finish line. Hosking who finished the 6km course warming up participants before the Below Left: Al with Zanda, Al and friend; Greg Fraser - President in just over 19min 30sec - a fantastic event. Team Kankinya; 1st ladies runner, Nicole Gayle Sweeney - Vice President time. Peter was running in memory Riding; 1st Male runner, Peter Hosking Trevor Wheeler - Treasurer John Fely - Director Michael Pedler - Director Geoff Hine - Director Camilla Rowland - Director Sharon Winks - Director Jane Allen - CEO 2 2 DECEMBER 2014 LIVING WITH DEMENTIA 3 NEWS DEMENTIA FRIENDLY CONCEPTS AND COMMUNITIES STEVE MILTON PRESENTATION On Tuesday 23 September 2014 Alzheimer’s ACT hosted a presentation by Steve Milton from the UK. Steve was the guest speaker touring Australia for Alzheimer’s Australia during Dementia Awareness Month 2014. Steve also spoke on the same day at the Parliamentary Friends of Dementia at Parliament House and we were fortunate that his engaging personality convinced two extra speakers to come back to the Ainslie Football Club and speak to our audience. Our extra speakers were Breda Jones, a person living with dementia and member of Alzheimer’s ACT and Kate Swaffer from South Australia, newly employed spokesperson of Alzheimer’s Australia and person living with Younger Onset Dementia. Steve Milton’s presentation spoke of his work with Innovations in Dementia, a non-for-profit community interest company in the UK that works with people with dementia, partner organisations and professionals to develop and test projects that enhance the lives of people with dementia. The entertaining and inspirational talk discussed how social action could be a way to reduce stigma and change community attitudes about dementia. He also described some case studies from the UK highlighting ways in which a dementia-friendly community can be achieved. Kate Swaffer talked about her new role as Top Left: Steve Milton Right: Breda Jones and Steve Milton spokesperson for Alzheimer’s Australia and how her Below Left: Kate Swaffer Right: Ted and Colleen Duff life has changed since her diagnosis. Breda Jones spoke of her diagnosis experience which included losing her employment and later joining Alzheimer’s The afternoon was made even more valuable to those who ACT. attended by the willingness of the speakers to take questions from the audience. The feedback received paid testament to Colleen and her husband Ted gave a wonderful the success of the event and Steve Milton commented that presentation of their plans to build a dementia- it was the best event he had attended so far in Australia with friendly house in Googong. Since Ted’s diagnosis the warmth and engagement of the audience and the way in they have sold their property outside Canberra which people living with dementia and their carers were given and with determination and resourcefulness have a voice. created plans for a house which will enable them to live as comfortably and easily as possible while A big thank you to Kate, Breda, Colleen and Ted for their managing the challenges of the future. Also high on valuable contributions to Alzheimer’s Australia ACT and the priority for their plan is to create a house which helping create a dementia-friendly community. is environmentally sustainable and a home that is dementia friendly. 2 4 DECEMBER 2014 LIVING WITH DEMENTIA 5 NEWS A new resource has been developed by the Alzheimer’s Australia Dementia Advisory Committee which contains principles of communication that people living with dementia have said would make a difference to their lives. The Dementia Advisory Committee PLEASE SPEAK CLEARLY TO DON’T QUESTION MY is made up entirely of people living ME DIAGNOSIS with dementia.
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