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THE MAGAZINE OF THE UNIVERSITY OF UTAH VOL. 23 NO. 4

Genetics and U GROUNDBREAKING RESEARCH AND LEGAL ISSUES ARE CHANGING MEDICINE AND ACCESS TO DISCOVERIES

AN ENCOMPASSING LENS: TWO U PROFESSORS’ FILM PROGRAM CONNECTED SUCCESS: MENTORING WOMEN IN SCIENCE ‘BOOK FOR LIFE’: A U BASKETBALL STAR’S NEW AUTOBIOGRAPHY A BOLD RESCUE: A U ALUMNA’S STORY OF A TETON FEAT

Continuum_Spring14_Cover.v3.indd 1 2/18/14 1:42 PM Keeping Women Healthy Through Every Stage of Life.

For every health need, there’s an expert for you. With four hospitals, ten community clinics and over 1,000 physicians, University of Utah Health Care offers award winning quality and value to keep your family healthy, no matter what age or need.

healthcare.utah.edu

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2 Feedback Your comments

4 Campus Notebook Two dance companies with U roots celebrate 50 years, the U’s new China partnership, 16 Sidelines an award for U basketball Continuum, and star Billy more McGill recalls his highs and lows in his new autobiography. By Stephen Speckman

38 Association News Founders Day Award winners and scholarship recipient, plus 8 Discovery results of the U research Food Drive and medical U research professor

developments and Utah Genome Smart 42 Through the Years

Project director Deborah Tom Keeping up with Neklason looks over a by alumni

genetic chart. Photo

COVER STORY Genetics and U 22 Groundbreaking University research and current legal developments are changing 10 Spotlight medicine and patient access to discoveries. By Jennifer Dobner Two U 48 And Finally… professors’ e Campus FEATURE documentary Rostrum lmmaking program gives Connected for Success 32 Visit continuum.utah. ‘invisible’ edu for additional students a voice. e University of Utah’s ACCESS program has helped dozens of women thrive in science photos, videos, By Kim M. and math elds. and more. Horiuchi By Heather May

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Publisher William Warren

Executive Editor Your Comments M. John Ashton BS’66 JD’69 Editor Julianne Basinger BA’87 MA’91

Managing Editor INTERNATIONAL PROGRESS “Old Buttermilk Sky,” which was the only piano Marcia C. Dibble

I believe this is a great step forward [“Global piece I could remember. Upon graduation, we got Associate Editors Ann Floor BFA’85 U,” Winter 2013-14]. It builds on the international married. I went into the Navy and was stationed at Kim M. Horiuchi education experiences like the one I enjoyed in the U.S. Naval Base in Sasebo, Japan. She came over, Advertising Manager 1973 when I studied Arabic in Tunisia, with the and the rest is history. August 30th will be our 60th. Bill Lines BS’83 assistance of an NDEA Fellowship. I also did my anks, Carlson Hall. Art Direction/Design PhD dissertation research in Tunisia in 1973 with David E. Titensor BFA’91

the assistance of a University of Utah Research Earl Benedict BS’54 Corporate Sponsors Fellowship. I’ve worked with Dr. [Michael] Boise, Idaho ARUP Laboratories Continuing Education at the Hardman, as a member of the College of Education University of Utah Advancement Board, when he was dean of the A DIGITAL FUTURE David Eccles School of Business at College of Education. His leadership ability and As much as I enjoy the present connectivity, the University of Utah Homestead and Zermatt Resort international education experience make him a it can never replace that I felt in the stacks in the Intermountain Healthcare perfect choice. basement of the U library back in 1953 [“A Pathway Physician Recruiting Rowland Hall rough Books,” Winter 2013-14]. Nothing will ever University Credit Union Keith W. Martin BS’71 MEd’72 PhD’75 replace the feel of a good book in your hands. University of Utah Development O ce Bountiful, Utah University of Utah Health Care Paul L. Hansen BS’53 e Waterford School MEMORIES OF CARLSON HALL San Clemente, California Editorial Advisory Committee A highlight of my freshman year at the U was Sonya Alemán PhD’09 Collin B. Barrett BA’05 living at Carlson Hall in 1949 [“Remembering I agree that the very nature of paper and Marc E. Day BS’76 Tal Harry BS’87 Carlson Hall,” Winter 2013-14]. It was a thriving binding, held between two hands, is not a tran- Rosemarie Hunter PhD’04 Mike Lageschulte hub of activity. I met so many friends there. ere sitory matter, but the attributes of a modern Holly Mullen BS’81 were strict rules in curfews, but some of the girls academic environment lend themselves to the Traci O’Very Covey BFA’83 Jodi Patterson got around them by going out the windows to meet digital realm. e digital library, in the hands of a Keven M. Rowe BS’83 JD’86 Kathy Wilets BA’89 their boyfriends. We laughed about some of the visionary, becomes a leveling, bridging, and demo- Craig Wirth BS’73

meals we had. One entree was beef tongue, and cratic environment that opens its collection to a Continuum is published in another was parsley soup with not much else in it. wider community of users. summer, fall, winter, and spring by the University of Utah Alumni I had a private room, so that I could get my studies Association and University Marketing & Communications. done. Just loved the place! Tony Sams BFA’03 Subscriptions are available to U faculty/sta (visit continuum.utah. Salt Lake City, Utah edu/subscribe.php) and through membership in Norene Rogers Emerson BA’53 the Alumni Association All comments submitted via continuum.utah.edu ($50/year). Call (801) 581-6995 Houston, Texas for more information. Opinions expressed in Continuum are not neccessarily those of the I was renting a room two houses from the University of Utah administration. Institute of Religion. I was selected for the NROTC We’re eager to hear from you. Please Copyright ©2014 by the University of Utah Alumni Association. e Program. During my 1952 junior year, I met this go to continuum.utah.edu/contact-us/ University of Utah is an equal opportunity/a rmative very attractive freshman [Diane] whose father was for our contact information. action institution. an Army colonel stationed in Germany. She came For advertising opportunities, home to go to the U. She attended the LDS Institute. please call Bill Lines at (801) 581-3718. I asked her out, and when I found out she was living at Carlson Hall, this was perfect. I could date her Standard postage paid at Salt Lake City and additional mailing o ces. on my $10 a week spending money. We went to all the U and the Institute’s functions. Every night, I Send address changes to: Continuum would walk down to Carlson Hall to see her. As I Alumni House University of Utah had to wait in the date room, I spent time playing 155 S. Central Campus Drive Salt Lake City, UT 84112 spring 14 Continuum 2

Continuum_Spring14_feedback.v4.indd 2 2/19/14 12:50 PM Continuum_Spring14_feedback.v4.indd 3 2/19/14 12:50 PM campus notebook Dance Companies with U Roots Celebrate 50 Years University, recruited Woodbury to the faculty. Woodbury, a Utah native, had nished her graduate studies at the University of Wisconsin, and the vitality of the U’s modern dance program led her to make the University her base. Ririe, raised in Salt Lake City, returned to Utah in 1952 after her graduate study at New York University and soon found herself teaching for Virginia Tanner’s children’s dance program. Hayes introduced Ririe and Woodbury, and they soon were choreographing works together. In 1956, they convinced President Olpin to allow them to job share Woodbury’s full-time faculty position. ey decided to form the dance company as an outgrowth of their work

Photo by Luke Isley, courtesy Isley, Luke by BalletPhoto Choreography West. © George Balanchine Trust at the U. By 1970, the U’s dance programs were ourishing, and Ririe-Woodbury wo Utah dance compa- company had partnered with the Utah Dance Company was touring regionally. nies, Ballet West and Symphony to present their rst produc- e company auditioned for and was Ririe-Woodbury Dance tion of e Nutcracker. accepted into the National Endowment Company, had their begin- In 1963, Christensen and Wallace for the Arts new Artists-in-Schools and ningsT at the University of Utah, and both received a Ford Foundation grant that Dance Touring Programs and became are marking their 50th anniversaries helped the University eatre Ballet a full-time national touring company. during their 2013-14 performance seasons. become the Utah Civic Ballet, a fully e company has performed throughout Ballet West was established in Salt professional company. e company was the United States, as well as in Europe, Lake City in 1963 by Willam F. Christensen renamed Ballet West in 1968. Today, the South Africa, southeast Asia, and the and Glenn Walker Wallace. In 1951, thriving dance company has 37 members, Caribbean, and continues to expand its Christensen, the company’s rst artistic 11 second members, and an academy that contemporary repertory. director, had established the rst ballet trains dancers of all ages, many of whom department in an American university, at have gone on to professional careers with the University of Utah. Christensen, with Ballet West and companies around the his brothers Lew and Harold, had earlier world. Since its inception, the company has made history in the early 1940s by estab- had ve artistic directors—Christensen, lishing the oldest ballet company in the Bruce Marks, John Hart, Jonas Kåge, and western United States, the San Francisco currently, Adam Sklute. Ballet West is now Ballet. In 1949, Willam returned to his considered among the top professional native Utah to choreograph the summer ballet companies in America. festival productions held in the stadium Ririe-Woodbury Dance Company at the U. After two more successful was founded in 1964 by two U dance summer seasons, then U President A. Ray professors, Shirley Ririe BS’50 and Joan Olpin oered Christensen the position Woodbury. ey are now professors emer- of professor of ballet, with the mission to itae, and their company is in residence at begin a ballet school in the Department of the Rose Wagner Performing Arts Center, eatre and Speech. Christensen created a central hub for the arts in downtown the University eatre Ballet to give Salt Lake City. students the opportunity to perform for In 1951, Elizabeth “Betty” Hayes,

the community. By 1955, the new ballet director of modern dance at the Company Ririe-Woodbury courtesy Dance Ruckman, Stuart by Photo

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Continuum_Spring14_Notebook.v3.indd 4 2/18/14 2:22 PM campus notebook U Forges New Partnership with Nankai University e University of Utah has created their rst year at the U, students will be choose from a variety of majors, including a collaborative education program with awarded a bachelor’s degree from Nankai nance, comparative literary and cultural Nankai University in Tianjin, China, that University, then continue on toward their studies, communication, and teaching will expand global partnerships in Asia. master’s degree, which will be awarded English as a second language. Called the 3+X program, it will provide by the U. Once students are admitted into “Given Asia’s political and economic Chinese students the opportunity to the 3+X program at Nankai University, importance and the rapidly increasing attend both universities and receive a they are still required to apply to the U to number of students from Asian countries bachelor’s degree from Nankai University be admitted under the standard graduate that come to Utah to study, the continent and a master’s degree from the U. admission guidelines. Students can is a strong focus for global engagement “We look forward to expanding this at the U,” says Janet eiss, director of innovative partnership with Nankai the Asia Center. “Programs like 3+X are University as a signicant component of designed to build sustainable academic the reach of our Asia Center, Confucius partnerships to foster the international Institute, Songdo campus, and our goals of both sides.” university’s evolving focus on Asia,” says Gong Ke (shown at left in the photo), Robert Newman, dean of the College of president of Nankai University, and David Humanities. W. Pershing (at right), president of the U, Students admitted to the 3+X signed the 3+X program agreement in program will attend Nankai University November to nalize the understanding. for three years of study, then enter the U Students from Nankai University are

to complete the program. At the end of Garrett by Photo Anderson expected to arrive at the U in fall 2015.

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Continuum_Spring14_Notebook.v4.indd 5 2/19/14 1:10 PM campus notebook

nies he founded are spinos based on U Business School Now O ers University technology. Larada, for example, Online MBA Program commercialized the successful head-louse The University of Utah’s David treatment device developed at the U as the Eccles School of Business has launched LouseBuster and now sold as AireAllé. an online Masters of Business “Advances in science and technology Administration degree. The MBA play a huge role in keeping Utah dynamic online program will give students the and competitive,” says Governor Gary R. opportunity to pursue their degree Herbert. in a convenient, interactive, and U Hospital Becomes NIH on-demand format. Regional Stroke Center University Joins Capital City The new program, which will begin The University of Utah Hospital has Education Partnership enrolling students in fall 2014, will require o cially been named by the National The University of Utah is partici- the same demanding application stan- Institutes of Health (NIH) as a member pating in a collaborative eort for dards and will be taught by the same of a unique network of regional stroke fostering prenatal through postsecondary centers across the country that will work education, career pathways, and civic with nearby satellite facilities, have teams engagement opportunities for all youth of researchers representing every medical and families in Salt Lake City. The partner- specialty needed for stroke care, and ship is called the Capital City Education address the three prongs of stroke research: initiative. prevention, treatment, and recovery. U President David W. Pershing this world-renowned faculty as the U’s other The new system is intended to past fall joined a group that included highly ranked MBA programs. streamline stroke research, by central- Salt Lake City Mayor Ralph Becker JD’77 The online program will provide a izing approval and review, lessening time MS’82, Salt Lake City School District highly interactive learning experience and costs of clinical trials, and assembling Superintendent McKell Withers BS’78 for students. Each course will combine a comprehensive data-sharing system. MEd’85 PhD’05, Salt Lake Community on-demand, multimedia enhanced University of Utah Hospital, the rst and College President Cynthia Bioteau, Salt Lake lectures and team projects with in-depth only Comprehensive Stroke Center in Chamber President/CEO Lane Beattie, and discussions between students and faculty the Intermountain West, is one of only Marjorie Cohen, National League of Cities using video conferencing and other online 25 centers nationwide to be selected to principal associate for education, to sign a multimedia forums. participate in the network. benchmark agreement formalizing collec- “The introduction of our new online tive eorts toward educational success. program shows that we understand how Two U Professors Win The agreement came about after the important choice is to our students,” says Governor’s Science Medals National League of Cities in 2011 selected Taylor Randall, dean of the David Eccles Two University of Utah faculty Salt Lake City, along with University of Utah School of Business. “The incredible oppor- members—chemist Henry S. White and Neighborhood Partners and the Salt Lake tunities provided by evolving technology science educator Aloysius S. Church— City School District, to participate in the will allow our faculty to work and interact are among seven winners of the 2013 Lumina Foundation’s leadership training with students in a new way, no matter Utah Governor’s Medals for Science and for postsecondary access and success. where they are in the world.” Technology. White, a Distinguished Professor at the U, recently spent six years chairing Continuum Now Has the University’s highly ranked chemistry department. Church, who now works for Responsive Web Design the U, is known as the founder and rst No matter the size of your computer screen or principal of AMES, the Academy for Math, handheld device, the online edition of Continuum Engineering and Science, based at Salt can now automatically adjust and adapt to make Lake City’s Cottonwood High School. for an optimal reading experience. Check out our A third winner—Larry Rigby ex’64 new design and its ability to adapt to various screen of Larada Sciences—has close ties to the sizes, from desktop computers to phones. Find it all University. Some of the eight compa- at continuum.utah.edu.

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Continuum Wins Regional tion professionals and institutions in Utah, University’s Volleyball Team Award for General Excellence Arizona, California, Guam, Hawaii, Nevada, Reaches NCAA Tournament Continuum and the Northern Mariana Islands. The The University of Utah volleyball magazine and winners were selected from more than 400 team returned to the NCAA Tournament several other entries and were announced in February. in December publications of Continuum received a silver award in for the rst the University the General Interest category for magazines time since 2008 of Utah have with a circulation of 75,000 or more, recog- and earned been honored nizing general excellence in multiple issues a 3-1 rst- with 2014 during the past year. Alumni Connection, round victory CASE regional the U Alumni Association’s monthly online over Yale awards. The newsletter, was recognized with a bronze University. The Council for award. Utes fell in the Advancement and Support of Education The John A. Moran Eye Center received second round each year recognizes excellence by two rst-place honors for the publica- to No. 2 national colleges and universities in several catego- tion design of “Hope in Sight Campaign seed Penn State. This was Utah’s 11th NCAA ries, including alumni relations, fundraising, Materials” and for its fundraising video See Tournament appearance in school history. public and government relations, and the Need. University of Utah Health Sciences The Utes nished 26th in the NCAA’s communications. also won gold in the Annual Magazines nal RPI rankings and ended with a 21-13 In all, the University received six category for Algorithms for Innovation, and overall record. Awards of Excellence this year from CASE the Moran Eye Center won bronze in that It was Utah’s rst season since 2008 District VII, which represents higher educa- category for FOCUS 2013. with 20 or more wins.

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Continuum_Spring14_Notebook.v4.indd 7 2/19/14 1:13 PM discovery U Team Creates Outdoor Fun for Quadriplegics

or grip,” he says. “We took this device and made it fully accessible and usable by someone with really no hand function whatsoever. If you can move your head and mouth a little bit, you can actually sail and kayak with this device.” Last summer, quadriplegic patients at the University of Utah got the chance to sail the vessel on a reservoir near Salt Lake City. Both Rosenbluth and Merryweather were on hand to see how the equipment worked and hear how it was received. “First of all, most people don’t believe they can do it… and they

Rosenbluth don’t believe it will work as advertised,” Rosenbluth says. “But there’s something

Jeffrey therapeutic about being on the water. When people think they’ll never get back

courtesy on the water again and they do, I think you see their old personality come back. Photos Dr. Jeffrey Rosenbluth, left, helped develop the kayak (above) and the bike (shown in the photo below). It’s amazing.” University of Utah researchers and dation in 2002 to fund spinal cord injury physicians have collaborated to create new research and rehabilitation.) Describing Visit continuum.utah.edu to watch a outdoor recreation equipment, including some of the innovative features of the video of a patient sailing the kayaks and bicycles, designed to get spinal team’s new hand-cycle, Rosenbluth notes kayak and to view a gallery with cord injury patients back into the great that typical handbikes are close to the more photos. outdoors. e equipment is the product of ground, so getting into them from a wheel- a unique collaboration between University chair is simple, but it’s almost impossible rehabilitation physicians and the U’s to get back in the wheelchair Department of Mechanical Engineering. from that position. e U design “ ese pieces are fresh out of the engi- features a seat that adjusts up and neering lab,” says Dr. Jerey Rosenbluth, down, allowing users to get back medical director of University of Utah into wheelchairs with relative ease. Health Care’s Spinal Cord Injury Acute Rosenbluth also pointed out revo- Rehabilitation Program. “We’re really lutionary features like electronic concentrating on the hardest people to gear shifts located near the elbows, get into active living and sports. When a chest piece braking system that coming up with these design plans, we is much more reliable and easy to asked, ‘How can we give these individuals use, and a power assist hub that the ultimate experience?’ ” measures the torque applied, then Rosenbluth coordinated with adds up to 300 percent. mechanical engineering professor Andrew For the kayak, the team Merryweather to make his vision a reality, fashioned a sip and pu system and the Craig H. Neilsen Foundation to steer, giving virtually anyone nancially backed the projects. ( e late the ability to captain the vessel. Neilsen MBA’64 JD’67, a casino executive “Being able to paddle traditionally who became a quadriplegic after a 1985 is a dicult thing if you don’t have automobile accident, established the foun- much in terms of hand function

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Continuum_Spring14_Discovery.v4.indd 8 2/19/14 1:23 PM discovery No ‘Left-brained’ or ‘Right-brained,’ U study finds

Chances are, you’ve heard of being a functional lateralization “right-brained” or “left-brained” thinker. of the brain measured Logical, detail-oriented, and analytical? for thousands of brain at’s left-brained behavior. Creative, regions—nding no thoughtful, and subjective? Your brain’s relationship that indi- right side functions stronger—or so long- viduals preferentially use held assumptions have suggested. But their left-brain network or

University of Utah neuroscientists have right-brain network more Anderson found that there is no evidence within often. S. brain imaging to indicate some people are “It’s absolutely true right-brained or left-brained. that some brain func-

e terms left-brained and right- tions occur in one or the Jeffrey courtesy brained have come to refer to personality other side of the brain. Photo types, with an assumption that some Language tends to be people use the right side of their brain on the left, attention more on the right. “However, we just don’t see patterns more, while some favor the left. Following But people don’t tend to have a stronger where the whole left-brain network is a two-year study, U researchers have left- or right-sided brain network. It seems more connected or the whole right-brain debunked that myth through identifying to be determined more connection by network is more connected in some specic networks in the left and right connection,” says Dr. Jerey S. Anderson, people. It may be that personality types brain that process lateralized functions. U associate professor of radiology and lead have nothing to do with one hemisphere Lateralization of brain function author of the study. being more active, stronger, or more means that there are certain mental “Everyone should understand the connected.” processes that are mainly specialized personality types associated with the to one of the brain’s left or right hemi- terminology ‘left-brained’ and ‘right- spheres. During the course of the study, brained’ and how they relate to him or her Visit continuum.utah.edu to researchers analyzed resting brain scans personally,” says Jared Nielsen, a graduate watch a video of Anderson of 1,011 people between the ages of seven student in neuroscience who carried telling more about the research. and 29. In each person, they studied out the study as part of his coursework. Immunodeficiency Disorder Mutation Identified

A 30-year-old woman with a a multidisciplinary University of Utah published in the American Journal of history of upper respiratory infections study, and researchers identied a novel Human Genetics online. Identifying the had no idea she carried a gene for an gene mutation that caused the disease NFKB2 mutation will make it easier immunodeciency disorder, until her in the mom and two of her children. e to recognize and treat the disorder, six-year-old son was diagnosed with the researchers discovered that a mutation in particularly after a test developed in same illness. Now, a test available as the NFKB2 gene impairs a protein from conjunction with the study by ARUP early as this spring may make it easier functioning properly, which interferes Laboratories becomes available as early for others to discover whether they have with the body’s ability to make antibodies as May. the disorder. and ght infection. “If we can screen patients for After learning she has common e disorder typically doesn’t genetic mutations, we can identify variable immunodeciency, a disorder present with symptoms until adulthood, disease complications associated characterized by recurrent infections and it’s not uncommon for someone to with that gene, start looking for them such as pneumonia and by decreased reach their 20s, 30s, or beyond before and treating them sooner,” says Chen, antibodies, the woman, her husband, being diagnosed, according to Dr. instructor of pediatric immunology at their three children, and parents joined Karin Chen, co-rst author of the study the University’s School of Medicine.

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Continuum_Spring14_Discovery.v5.indd 9 2/19/14 3:47 PM spotlight An Encompassing Lens

From left, James Fire, Brandy Farmer, and Judy Fuwell set up equipment to do an interview for their Humanities in Focus class.

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Continuum_Spring14_Spotlight.v2.indd 10 2/14/14 2:48 PM Two U professors’ documentary filmmaking program gives ‘invisible’ students a voice.

Story by Kim M. Horiuchi Photos by Brian Nicholson

niversity of Utah English But Craig Wirth BS’73 did. Metcalf professor Je Metcalf ’s had met the fellow professor, an Emmy epiphany came eight years Award-winning documentarian, once or ago as he was teaching adult twice in the hallway at the U’s Language highU school students enrolled at the Salt and Communications building. Metcalf ’s Lake City School District’s Horizonte oce was right above Wirth’s, so he Instruction and Training Center. Many introduced himself and explained his idea. of the students were dropouts, and none “I told him, ‘You just need to meet some of had ever had any contact with a university these students,’ ” Metcalf recollects. “After before. eir education had stalled when that happened, there was no turning back life got in the way, and Metcalf worried for either one of us.” about them. He was also intrigued. “What ey created the Humanities in Focus fascinated me most were the stories that program, which helps “marginalized happened before and after class—stories populations” make documentary lms about people who had come to this to tell their stories. Each Monday night, country for political asylum, refugees, Metcalf and Wirth tag-team in teaching a people who had been on the streets, who class of 25 to 30 students in the J. Willard were homeless, people who had never had Marriott Library’s digital media lab. e a place for their voice to be heard.” program, which costs about $40,000 a year Metcalf BS’74 MEd’77 wondered how to run, is supported by the U’s College of he could provide space in a university Humanities and Honors College, as well setting for people who had never thought as University Neighborhood Partners, a U their experiences and opinions mattered. endeavor that brings together University “I thought, ‘Wouldn’t it be great to create a resources and community members in documentary class and teach them how to Salt Lake’s west-side neighborhoods. make documentaries so they felt less invis- In the eight years since Humanities in ible?’ I made a promise to these students Focus began, more than 350 students have that we would do that.” ere was only collaborated in making 36 documentaries, one problem, he says: “I realized I knew and a half-dozen students have gone on absolutely nothing about documentary to graduate from the University of Utah. lmmaking.” e students have ranged in age from 17

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Continuum_Spring14_Spotlight.v2.indd 11 2/14/14 2:48 PM to 82 years old. A majority are Hispanic (many coming from the Horizonte center and other programs serving west-side Salt Lake City neighborhoods), and almost all are living below the poverty line. e rst lesson is acquainting them with the video and digital equipment they will use, including iPads, cameras, and videocams. “ at stu is not in their lives, so it begins with this simple task of taking the lens o the camera,” Metcalf says. e next step is helping the students determine what their story is and how they will document it. “I would say Craig and I could easily work at any carnival,” Metcalf says. “It’s fair to say we’re hustling them Beatriz Sanchez, center, answers questions while being interviewed and filmed at her home by Humanities in Focus students. the whole time. It’s three-card

A Mother’s Choice

Lucia Chavarria’s mother was 27 years old when she became a widow with nine children. She had never gone to school, was living in Mexico, and had no way to make a living. She made a desperate choice and sent nearly half of her children, including Lucia, to live with their grandmother in the United States. It was a decision that would haunt Chavarria’s mother for years. “Four felt they were given away. That was just tormenting her,” Chavarria says. After enrolling in the University of Utah’s Humanities in Focus program, Chavarria decided to tell her mother’s story in a 2008 documentary, My Mother’s Unheard Voice. Communications professor and program co-founder Craig Wirth describes the lm as “an abso- lutely unbelievable documentary about a mother’s love for her children.” Wirth says Chavarria, now a paid mentor to the Humanities in Focus class, went from a quiet student to someone “who began to match wits with me. And now she is one of the most amazing documentary-makers I’ve ever seen.” When she rst enrolled in the class, Chavarria says, she didn’t know anything about cameras, was “still kind of afraid of computers,” and often thought, “Please don’t make me talk in front of crowds or I will pass out.” But somewhere along the line, she says, “I got hooked.” When she was nished with her lm, she brought her mother to Salt Lake City from Mexico to see it, and after its screening in 2008 at the Episcopal Church Center of Utah, a member of the audience came up to Chavarria’s mom and said, “You are such a brave woman. I admire you.” The audience member’s comment and the lm itself helped the mother accept her life decisions. “After the documentary, she felt she had done the right thing,” Chavarria says. “It’s given her some peace of mind. It helped her start to heal.”

Visit continuum.utah.edu to view Chavarria’s film about her mother.

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Continuum_Spring14_Spotlight.v2.indd 12 2/14/14 2:48 PM monte. We’re always sort of that was recognized by the creating this undertone of ‘Start national organization Parents Finding Lessons thinking about what you’re going Anonymous and included a to do. What’s the most important trip to the White House. “I story you would tell if you had 15 went from sleeping on the oor minutes’ worth of fame?’ ” to getting ready in this fancy Over the year-long course, room to go have breakfast with the students earn six hours of the First Lady.” University credit and become Alejandro Miranda, a experts in lighting, sound, and current student who is working editing, as well as writing scripts on a documentary about his and interviewing. Perhaps most life, says he endured years importantly, Wirth says, they of abuse at the hands of his learn how to express them- stepfather before moving out selves—often on very personal of his house in Costa Rica levels. “I have not witnessed such as a teenager to work at a pure and true documentary in bed-and-breakfast, whose my entire career,” says Wirth, owner pressured him into a who has produced broadcast sexual relationship. Eventually, feature stories as a television Miranda says, he was rescued reporter for more than 40 years. by a couple who were lodging “I can’t think of a better academic there while working with a Tony Aguilar’s documentary includes television news lesson but also a life lesson. It’s nonprot organization to footage of the smoldering remains of a two-story, Dallas-area where academia and life come save the country’s rain forests. home destroyed by an explosion. Police determined the man together in a really bold and new ey put him in touch with found dead inside was in the middle of a divorce and had form.” Metcalf and helped him move committed suicide by blowing up the house. The man was e Monday night classes to Salt Lake City. Now, Miranda Aguilar’s son-in-law. begin with a potluck dinner— believes he has a voice. “I have Aguilar wanted to make a documentary about his son-in- “We learned early that a lot a clear idea of where I’m going law’s suicide as part of the University of Utah’s Humanities in of problems would be solved and what I want. I am not Focus program, in an e ort to help others. He joined the class breaking bread together,” Metcalf ashamed of myself anymore.” a year ago after a colleague at the Utah Transit Authority had says—and quickly progress to It is stories like those taken the course and told him about it. the work at hand. On one recent that captivated Alexza Aguilar, who works as a bus driver, had immigrated to night, several former students Clark PhD’13, who made the the United States from El Salvador in 1975. While living in New oered advice and encourage- Humanities in Focus program Jersey, he had worked out of his home as a freelance video ment and talked about the the focus of her doctoral producer for a local television station. So he was interested to results of their work in the class. dissertation at the U. Now the learn about the U program. “I thought, ‘Wow, this is what I have Jeannette Villalta, who dedi- communications director at St. been waiting for,’ ” he says. cated her lm about AIDS to a Cecilia Academy in Nashville, His rst documentary was a group project about autism. He friend who died of the disease, Tennessee, Clark had worked hopes the documentary he made this year about his late son-in- mailed a copy to comfort family as a television producer in New law will encourage others to listen to their children and be aware in Guatemala after learning her York for CNN and Anderson of signs of possible suicide. On the day of the explosion four own brother had tested posi- Cooper. After marrying, she years ago, Aguilar had read a message that his son-in-law had tive for HIV. “You never know moved with her husband to his posted on Facebook, saying, “This could all be over soon!” the impact your stories can hometown of Salt Lake City, Aguilar saw the post and immediately called his wife, asking have on another life,” she says. where she began pursuing her her to have their son, who was also living in Utah, telephone Natalia Solache made a docu- doctorate in communications Texas police. The police, he says, helped get his daughter and mentary about being homeless at the U. She helped Villalta her ve children to safety. “One call made a di erence,” he says. and working for 10 years to gain produce her documentary on “If I didn’t call, it would have been a di erent story.” her U.S. citizenship. In 2006, the AIDS and made her own docu- Boys & Girls Clubs of Greater mentary about Humanities in Visit continuum.utah.edu to view Aguilar’s film about Salt Lake nominated her as their Focus. “I was utterly mesmer- suicide prevention. volunteer of the year, an honor ized that someone going

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Continuum_Spring14_Spotlight.v3.indd 13 2/18/14 5:53 PM Stories that Heal “We’re always sort of creating this undertone of ‘Start thinking about what you’re going to do. What’s the most important story you would tell if you had 15 minutes’ worth of fame?’ “ SHINES

through such devastating traumatic from all over the world, some of events in their life would be willing to whom have spent time living on dedicate a whole year to learning to the street, others of whom have tell their story and then show others been abused or on drugs?” she that story.” says. “It really, I think, demystifies Sylvia Torti PhD’98, dean of the the idea of ‘the other.’ ” Honors College, says honors students Metcalf says the stories are often became involved in the program dicult ones, and documenting two years ago, as part of the college’s them can be transformational. “We practice labs, which are special all carry stories in our b on e s ,” he year-long courses of 12 students who notes. “ e people who have been take on pressing social issues under very timid living in the shadows, Judy Fuwell BS’10 was perfectly content the direction of multiple professors. when they discover their voice, it learning about the literature and poetry that e Honors College students also means something.” University of Utah professor Je Metcalf was learn about lmmaking along with teaching to low-income students in the Utah the students from the community. —Kim Horiuchi is an associate editor of Humanities Council’s Venture Course eight years e program is unique, Torti says, Continuum. ago, until he started talking about documenta- in bringing students and members ries. At his behest, she signed up for the inaugural of the community together in a mix Visit continuum.utah.edu to view Humanities in Focus class. “I thought we were going of dierent socioeconomic, cultural, Enjoy 110 stores and restaurants lining a sparkling creek, all under a fully retractable glass to watch documentaries and talk about them and ethnic, and age groups. “Really, how Clark’s film about the Humanities In skylight. It’s always beautiful shopping weather at City Creek Center. put our stories with poetry,” she says. “When we many courses in college do you Focus program, as well as went, I was a little shocked when they had cameras. have where you’re working on a Villalta’s film about AIDS. FIND YOUR STYLE I had not used any kind of video camera.” project and interacting with people In the years since, she has made 31 documen- NORDSTROM THE LIMITED taries that include Family in Crisis, made in 2006, MACY’S TRUE RELIGION BRAND JEANS about her daughter’s meth addiction; and Hi Mom, ROLEX BOUTIQUE O.C. TANNER COACH My Name is Claire, nished last year, about another BOSS HUGO BOSS WEST ELM daughter’s struggle with pica, a disorder charac- FREE PEOPLE ATHLETA terized by an appetite for unusual substances, BROOKS BROTHERS MICROSOFT including chalk or dirt. After the Humanities in Focus class, Fuwell MICHAEL KORS APPLE enrolled as a full-time U student and graduated ANTHROPOLOGIE RESTORATION HARDWARE at age 58 with a bachelor’s degree in communica- tions. “It gave me a lot of self-condence,” says TREAT YOURSELF Fuwell, now an adjunct professor at the U. THE CHEESECAKE FACTORY BRIO TUSCAN GRILLE Fuwell says telling those stories has helped TEXAS DE BRAZIL CHURRASCARIA JOHNNY ROCKETS her family heal. “I just didn’t realize how important BLUE LEMON stories were or how they can help people until I started doing this.” SPECIAL OFFERS FOR TRAVELERS Visit continuum.utah.edu to view Fuwell’s GET A COMPLIMENTARY PASSPORT TO SHOPPING AT THE CUSTOMER SERVICE DESK.

two films about her daughters. From left, Lucia Chavarria, Jeff Metcalf, Sam Katz, Judy Fuwell, and Craig Worth watch Katz’s documentary video during the Humanities in Focus class at the U’s Marriott Library. 50 S. Main Street, Downtown Salt Lake City SHOPCITYCREEKCENTER.COM

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Continuum_Spring14_Spotlight.v3.indd 14 2/18/14 5:59 PM SHINES

Enjoy 110 stores and restaurants lining a sparkling creek, all under a fully retractable glass skylight. It’s always beautiful shopping weather at City Creek Center.

FIND YOUR STYLE NORDSTROM THE LIMITED MACY’S TRUE RELIGION BRAND JEANS ROLEX BOUTIQUE O.C. TANNER COACH BOSS HUGO BOSS WEST ELM FREE PEOPLE ATHLETA BROOKS BROTHERS MICROSOFT MICHAEL KORS APPLE ANTHROPOLOGIE RESTORATION HARDWARE

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50 S. Main Street, Downtown Salt Lake City SHOPCITYCREEKCENTER.COM

Continuum_Spring14_Spotlight.v2.indd 15 2/14/14 2:48 PM sidelines Carreón Ed by Photo

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Continuum_Spring14_sidelines.v3.indd 16 2/18/14 3:30 PM A BOOK FOR

U BASKETBALL STAR BILLY MCGILL RECALLS HIS HIGHS AND LOWS IN HIS NEW AUTOBIOGRAPHY. By Stephen Speckman Life

he University of Utah’s Einar Nielsen player, he was a two-time All American, and in the Field House was packed for the nal 1961-62 season, he led the nation in scoring with an game of the 1962 season as the men’s average 38.8 points per game, including a 60-point basketball team pounded the oor performance against archrival Brigham Young againstT Wyoming. Six-foot-nine-inch U center Billy University. At the end of that season, he decided to McGill was in the zone, and his signature jump hook leave school and was the No. 1 overall pick in the 1962 shot was, as usual, impeccable. He nished with 51 NBA Draft by the Chicago Zephyrs. But a knee injury points that evening to lead his team to a 94-75 win. plagued him, and after just three years in the NBA, Long after the nal seconds of the game had ticked he trailed over to the ABA for two seasons. He found away, the crowd continued to cheer, and McGill himself back in his native Los Angeles, eventually heard U President A. Ray Olpin start talking about sleeping in abandoned houses and washing up in a him over the loudspeaker. All-time leading scorer Laundromat. and rebounder at the U. School record for most McGill, now 74, recounts those highs and points per game. e highest-scoring center in NCAA lows, and what came after them, in his new book, history. One of the “greatest players” the school has co-written with Eric Brach. “I wrote it for my beloved ever known. “Today we are retiring the number 12 in [Utah] coach, Jack Gardner, and the many Ute fans,” honor of Billy McGill!” the president said, and a jersey McGill says. “I wrote it for them. I wrote it for Utah. bearing McGill’s number was raised to the rafters. …I wanted people to know exactly what happened.” “It’s the highlight of my career,” McGill writes in McGill about four years ago had dusted o an his new memoir, Billy “the Hill” and the Jump Hook: old manuscript at the bottom of a closet in his Los e Autobiography of a Forgotten Basketball Legend, Angeles home. ey were words he had written three published in November by the University of Nebraska decades earlier about the twists and turns of his life. Press. “I shake the president’s hand, and I hug With assistance from Brach, who was nishing up a my coach. I wave to the crowd. And just graduate degree in creative writing at the University like that, it’s all over.” of Southern California, McGill turned those memo- But McGill’s pro career ries into the book. was just on the e story begins in San Angelo, Texas, where horizon. As a McGill was born, and where his mother left him in college the care of relatives until he was ve years old. She eventually returned to bring him to Los Angeles. Growing up in the hardscrabble streets of LA, he found solace in pickup basketball games, as well as the

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Continuum_Spring14_sidelines.v3.indd 17 2/18/14 3:30 PM during his career. He still ranks No. 2 all-time at Utah for career scoring (2,321 points) and No. 1 in career rebounding Utah

of (1,106). McGill also owns the Utah single- season (1,009) and single-game (60) records for scoring, as well as the single- season (430) and single-game (24) records

Library, University Library, for rebounding. In sum, he was great, but he quickly began to live life “by the needle,” requiring his knee to be drained by a doctor several times a week. He also Willard Marriott Willard J. encountered racism in Utah and on the road like he had never known growing up in California. His 60 points in that famous Collections, game against BYU came after a racial slur

Special there, he says. His academic work still wasn’t a

courtesy priority for him in college, he writes, and when the NBA knocked on his door, Photo Billy McGill leaps for a basket during a U game. He was a two-time All-American and a top NBA pick. that was it for caring about classes. He dropped out in 1962 and purchased a brand local YMCA gym and its sta . At eleven, of rice” to the oor, he recalls in his book. new Austin Healey convertible with the he was dunking. Legend has it that during A doctor called it the worst knee injury $17,000 starting salary he received from one pickup game with him and Bill Russell he’d ever seen and suggested an operation the Chicago Zephyrs. “Deep down I know against Wilt Chamberlain and Guy Rogers to insert an “iron” knee. McGill was told dropping out is dumb, even as I’m doing it,” when McGill was still in high school, he’d never play basketball again. “As soon McGill writes. “But it’s so easy to rationalize McGill leapt into the air and threw the ball as I hear these words, I feel my brain start to myself.” in a sideways arc over his head to nail the to dissolve,” McGill writes. McGill was introduced to a cutthroat rst-ever jump hook, later emulated by McGill declined the operation. many top players. He rested. And then he worked hard, As a freshman at omas Je erson coming back his senior year to become High School in Los Angeles, he had made an “unencumbered scoring machine,” the varsity squad, and the team that year he writes, despite a knee that hurt and won the city title. McGill was named to swelled after each game. the All-Southern League rst team and to When colleges came calling, McGill the All-City squad. His high-school grades met a man named Rich Ru el, who talked were bad, and he didn’t have good study about the University of Utah campus, a habits. But his game kept improving, and place that McGill would later describe his popularity was growing. as “overwhelming,” “beautiful,” and At his high school team’s appearance “breathtaking.” McGill also met legendary in the city championship game, McGill U coach Jack Gardner, now a Basketball went airborne for a shot during the game Hall of Fame inductee, and instantly liked and then heard a “pop.” He fell like a “sack Gardner’s blend of sincerity, authority, and kindness. With a four-year scholarship on the table, McGill chose Utah and became McGill ranks No. 2 all-time at the rst African American to play basket- ball for the U. Utah for career scoring and McGill was a second-team Billy McGill All-American during the 1960-61 season No. 1 in career rebounding, courtesy and then earned rst-team honors during

and he still owns the single the 1961-62 season. He became the 11th Photo player in all-time collegiateo history t McGill, shown here in 1958, is credited with inventing season and game records. record 2,000 points and 1,000 rebounds the jump hook shot, later emulated by many players.

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Continuum_Spring14_sidelines.v5.indd 18 2/19/14 3:50 PM world in the NBA, one he says is full of who had rst called him “Billy the Hill” “sharks” and where a hurt black player is back in his high school days—helped “easily discarded.” As his Chicago Zephyrs him nd a job in general procurement at teammate Woody Sauldsberry told him, Hughes Aircraft in 1972. McGill eventu- “Nobody’s got your back.” ally met and married Gwendolyn Willie, McGill was no longer the dominant whose children from another marriage force he was in high school and college, he adopted. (His grandson Ryan Watkins, though he still had plenty of talent and who also stands at six feet nine inches, is an unstoppable jump hook. But his knee now a senior forward for Boise State.) kept getting worse. He saw his playing University of Utah Athletics Director time drop dramatically. After one game, Chris Hill MEd’74 PhD’82 says McGill was future NBA Hall of Fame inductee Oscar one of the U’s most “fantastic” players ever, Robertson told him, “It’s a shame… that a “pioneer” as the team’s rst black player, they don’t play you more, especially after and a star remembered even today for his how you tore it up in Utah,” McGill writes. “unique” style of play and his “enthusiastic By the time McGill was 30, he had approach” to the game. McGill’s jersey still retired from pro ball and began a slide hangs high in the rafters at the U’s Jon M. into an oblivion that included depression, Huntsman Center, one of only seven to living with his parents, and eventually have been retired, and he was honored in homelessness, which he details in the book 2008 as a member of the U’s All-Century with candor. But he crawled out of the Team. is past February, he came to Salt rabbit hole of despair and slowly began to paying job. After two years of sleeping in Lake City to be honored at the U men’s rebuild his life. Without a college degree, Laundromats and bus stops, sports editor basketball game against Arizona and McGill writes, it was hard to get a good Brad Pye, Jr., of the Los Angeles Sentinel— two nights later was recognized during a

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Continuum_Spring14_sidelines.v3.indd 19 2/18/14 3:30 PM pre-game segment by the NBA’s Utah Jazz. In March, McGill is being inducted into the Pac-12 Hall of Honor. Times have changed, Hill says, in terms of the support o ered to athletes to encourage them to graduate. “We can say very seriously that we provide every single opportunity for a kid to graduate. If they leave for the pros in good standing, many, many times we help them after they’re done, if things haven’t gone well for them. It’s a case-by- case basis, but the support is so di erent now, and it’s so important.” Most college players, he adds, Carreon

Ed think they’re going to play in the NBA

by someday. “So you’re wasting your energy

Photo telling people they can’t play profes- We can all learn to be sional basketball,” Hill says. “Somewhere along the line, they Carreón wattsmart.

come to that realization. But the most Ed

important thing for us is to make sure by we continue to hammer home the Photo importance of having an education and supporting them in every way.” McGill stands outside his home in Los Angeles. He eventually worked for Hughes Aircraft after leaving the NBA. After his pro career ended, McGill was mostly forgotten beyond LA until pros about how the lives of NBA players to heed his warning and even took pot the 1990s, when the NBA called on him can take a turn for the worse, to groups shots at him. to speak with incoming players as part that included Chris Webber, Shawn But former NBA star Bill Walton says of its Rookie Transition Program, which Bradley, Vin Baker, and Sam Cassell, it would be shortsighted to say McGill’s the NBA didn’t have back when McGill as well as Isaiah Rider and Penny book is merely a cautionary tale for cocky played in the league. He spoke to young Hardaway, who, McGill writes, refused young NBA hopefuls. “is is a book for life,” says Walton, who emulated McGill’s jump hook shot in his pro career and now

calls McGill his “hero.” ce. “To be able to always exhibit such Offi class, dignity, pride, and professionalism

in the face of extreme adversity, incred- Trademark

ible obstacles—this is the stu that and legends are made of,” Walton says. “We all Patent have so much to learn from Billy McGill. U.S.

I just hope that people are brave and bold in enough to give [the book] a try.” USING ENERGY WISELY IS GOOD FOR UTAH. You are never too young or too old to learn how to registered —Stephen Speckman is a Salt Lake City-based is be energy efficient. It starts by turning off lights and electronics that are not in use, using energy- writer and a frequent contributor to Continuum. efficient appliances and weatherizing your home or business. ® wattsmart It’s called being wattsmart . It not only saves energy, it saves money. You’ll find great energy-saving answers and incentives Visit continuum.utah.edu to see two videos Power Carreón

Ed of some of the highlights of McGill playing to save at wattsmart.com. courtesy by basketball at the U, as well as a Mountain Photo

gallery with more photos. Rocky McGill holds a basketball from his University of Utah days, signed by many of his teammates at the U. © 2014

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8165-19_RMP_UofUAlumni_WeLearn_8.375x10.875.indd 1 2/4/14 10:03 AM Continuum_Spring14_sidelines.v3.indd 20 2/18/14 3:30 PM We can all learn to be wattsmart. ce. Offi Trademark and Patent U.S. in

USING ENERGY WISELY IS GOOD FOR UTAH. You are never too young or too old to learn how to registered is be energy efficient. It starts by turning off lights and electronics that are not in use, using energy- efficient appliances and weatherizing your home or business. ® wattsmart It’s called being wattsmart . It not only saves energy, it saves money. You’ll find great energy-saving answers and incentives Power to save at wattsmart.com. Mountain Rocky © 2014

8165-19_RMP_UofUAlumni_WeLearn_8.375x10.875.indd 1 2/4/14 10:03 AM Continuum_Spring14_sidelines.v3.indd 21 2/18/14 3:30 PM Genetics Groundbreaking University research and current legal developments are changing medicine and patient access AND U to discoveries. By Jennifer Dobner

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Continuum_Spring14_Genetics.v3.indd 22 2/19/14 2:39 PM regg Johnson is trying to outlive his family history. To do that, the 57-year- old textiles artist has had a colonoscopy every year since the mid-1980s. Each time, doctors remove upward of 150 tiny polyps in hopes of preventing colon cancer. Johnson lost his mother, Sandra “Sammy” Moon Johnson, to metas- Gtasized colon cancer in 1983 when she was just 47 years old. Her mother also died from the disease, at age 42, just like dozens of others on the branches of Johnson’s family tree. “We’re cancer magnets,” Johnson says. Johnson, who lives in Salt Lake City, keeps his health closely in check thanks in part to University of Utah scientists and researchers who tapped his family for genetic testing and cancer studies more than 20 years ago. Tests con rmed what the family essentially already knew: eir biological lineage includes a genetic mutation that predisposes them to colon cancer and can be traced back to a single English couple who emigrated to America in the early 1600s. e U’s research study, which stretched over a dozen years and included data on hundreds of Utahns, helped investigators unlock critical genetic coding linked to APC— adenomatous polyposis coli—a syndrome characterized by the early onset of colon cancer, says Deborah Neklason PhD’99, research assistant professor of oncological sciences at the University of Utah Medical School and director of the Utah Genome Project. e data and health protocols, when paired with a clinical intervention, including genetic counseling, testing, and regular colonoscopies, have helped reduce familial cancer rates for Johnson and others. “We have prevented almost all the [potential] cancers in that family,” says Neklason. “is is about a change in behavior and awareness. is is an incredible story of the impact of genetic testing.” For decades, U researchers and investigators have played a critical role in identifying pieces of the genetic puzzle that continue to change the face of medicine, from understanding how some diseases work to improving patient diagnoses, medical outcomes, and daily health management. At the same time, researchers and patients have been watching court cases,

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Continuum_Spring14_Genetics.v2.indd 23 2/18/14 7:51 PM involving Myriad Genetics and the U Research Foundation, proceed over patenting of some of that research and related questions about future studies, as well as public access to genetic testing and personalized medicine. e outcome of For decades, U researchers and those cases is factoring into the future course of the research. Genetics is the study of how specic traits and character- investigators have played a critical istics are biologically transmitted to us by our parents. Formed role in identifying pieces of the by deoxyribonucleic acid, or DNA, genes are the physical units of heredity that are carried on our chromosomes. Scientists genetic puzzle that continue to TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGAbelieve each person’s body has about 20,500 separate genes, the CCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGtotality of which is known as the genome. Isolating those genes CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG change the face of medicine. CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGhas helped scientists identify anomalies that either cause or TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGincrease our risk for someTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG diseases. Over the past four decades, TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGadvancements in geneticTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG research have provided enormous CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGinsight into the workingsCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG of the human body and the causes responsible for more than 30 diseases, such as melanoma, CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGof disease, says Lynn Jorde,CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG chair of the U Medical School’s atrial brillation, hypertension, macular degeneration, and TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGDepartment of Human Genetics.TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG Genetic tests can indicate if a neurobromatosis. U scientists also are credited with devel- TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGperson is a carrier for a disease,TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG or if an unborn child will have oping key tools in bioinformatics to help further understanding CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGgenetic conditions. “It gives CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGus the potential to treat disease of how genetic material works. “ e University of Utah is great CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGmore eciently and, in someCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG cases, even to prevent disease at this, and they have been for a long time,” says Lawrence TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGaltogether,” says Jorde, whose ownTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG research includes the genetic Brody, chief scientic ocer at the Maryland-based Center for TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGbasis of both hypertension andTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG human limb malformation. Inherited Disease Research at the National Human Genome CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGUniversity of Utah researchersCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG can claim dozens of key Research Institute. “ e faculty there has made fundamental TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGdiscoveries in genetic and molecularTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG medicine, including genes contributions to human genetics.” CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG

Deborah Neklason, a U research assistant professor of oncology and director of the Utah Genome Project, notes that genetic testing, paired with clinical intervention, has helped save patients’ lives. Smart Tom by Photo

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Continuum_Spring14_Genetics.v3.indd 24 2/19/14 2:40 PM Brody attributes Utah’s critical mass of talent to two factors: signi cant philanthropic funding to support genetics research, and a population of large families with a Mormon church-supported predilection for genealogy work, which has provided a trove of family history to aid in genetic study. e University houses the Utah Population Database, with some 20 million records that layer family genealogies with state demographic records, including data on births, deaths, cancer rates, and other medical diagnostic and treatment records. It is the only resource of its kind in the United States and the largest such database in the world. e church/state partnership provides records on about 7.3 million individuals, some of whom can be linked to 11 generations of relatives. e TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGdatabase has supported about 100 research studies, allowing CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGinvestigators to analyze patterns of genetic inheritance and CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGidentify speci c genetic mutations. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGenetic data are instrumental in the development of TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGpersonalized medicine. Knowing what’s in a person’s genome CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGallows physicians and patients to make more informed health CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGcare choices, Jorde says. To date, scientists have been able TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG

TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGto link about 4,000 diseases to mutated genes, according to Smart TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG

the American Medical Association. Yet genetic testing still Tom CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGhas many limitations, Jorde says. e testing, which is done by TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG through sampling of tissue, blood, or other body material, can Photo CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG only provide a predictive risk assessment, and then only for A computer charts a genetic analysis of a patient at the University of Utah. some diseases. Test results can be missed or misinterpreted. Genetic data are instrumental in the development of personalized medicine.

Pieter Brueghel the Younger, Dance Around the Maypole, ca. 1625–1630, oil on canvas. Gift of Val A. Browning.

Celebrating 100 Years of Collecting at the University of Utah

Art is 100 Gala May 29

umfa.utah.edu

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Elaine Lyon, director of molecular genetics and genomics at ARUP, says many in the molecular sciences industry have long been opposed to patents and see them as a disincentive to innovation and a barrier to helping patients. The royalty fees have also driven up research costs and made patient tests expensive.

In some cases, research and technology may not yet exist to neys challenged whether the U.S. Patent and Trademark Oce explain some genetic mutations, even though those mutations should have issued a patent on the tumor suppressor genes can be identi ed. “People think, well, I can just get genetic tests BRCA1 and BRCA2 to Myriad Genetics, which was founded and nd out everything about me, all of my predispositions to in 1991 by a team of scientists, including then-U genetics everything,” Jorde says. “In reality, genetic testing, while it can researcher and medical professor Mark Skolnick. be very useful in certain contexts, only reveals predisposing One of the rst companies to examine the relationship factors. Sometimes they can be very powerful predictors; some- between genes and human disease, Myriad was created to times they can be only approximate predictors.” develop genetic tests based on research from the U, including TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGAe biomedical community can sometimes contribute to Skolnick’s work to isolate the BRCA1 and BRCA2 genes. e TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGA TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGApublic confusion about the power of genetic testing, in part U Research Foundation, which facilitates commercialization CCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGbecause researchers “want to say this is important and useful,” of faculty inventions from many academic disciplines, later CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGJorde says. at’s where some in the research community licensed Skolnick’s discoveries to Myriad. Over two decades, TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGbecome uncomfortable with companies that oer direct-to- Myriad has paid its BRCA patent partners—the U, the Hospital TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGconsumer genetic tests that in many cases are for diseases for for Sick Children, Endorecherche Inc., and the Trustees of the CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGwhich the genes haven’t actually yet been identi ed, such as the University of Pennsylvania—8 percent of its annual pro t in the CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGgene for bipolar disorder. form of royalties, or more than $57 million, Myriad spokesman TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGQuestions about commercial genetic testing were at Ron Rogers says. e U’s share of the royalties has amounted to TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGthe center of the 2009 lawsuit against the Salt Lake City- more than $40 million over the years as of last fall and is used CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGbased biotech company Myriad Genetics, the University of to support further research and education programs at the CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGUtah Research Foundation, and their partners. Filed by the University, according to Tom Parks, the U’s vice president for TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGAmerican Civil Liberties Union on behalf of more than 20 research. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGplaintis, including medical associations, researchers, health Certain variations in the BRCA1 and BRCA2 genes signal CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGadvocates, and patients, the case asked one central question: a person’s risk for some hereditary forms of cancer. Women TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCan a human gene be patented? More speci cally, ACLU attor- with a BRCA mutation face a 36 to 85 percent lifetime risk of CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGspring 14 Continuum 26 CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGContinuum_Spring14_Genetics.v4.indd 26 2/19/14 3:58 PM CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG breast or ovarian cancer. In men, BRCA gene mutations are linked to breast and prostate cancers. e BRCA genes earned wide public attention in May 2013 after lm actress Angelina “In reality, genetic testing, while Jolie announced she had undergone a bilateral prophylactic mastectomy following genetic testing. Jolie lost her mother to it can be very useful in certain both breast and ovarian cancers. In the lawsuit, ACLU attorneys claimed the patents on contexts, only reveals predisposing the BRCA genes gave Myriad, which didn’t license the patents to other researchers, an unfair monopoly on the genes and factors. Sometimes they can be very their associated genetic information, as well as the predictive tests for the mutations, which at roughly $3,000 could be too powerful predictors; sometimes expensive for some patients.CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG ACLU attorneys argued the exclu- sivity was a civil libertiesTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG issue because it “limits the public’s they can be only approximate.” TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG right to benet from scienticTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG breakthroughs that advance medical research,” court documentsCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG state. “ is monopoly CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG has a chilling impact on otherCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG researchers’ ability to conduct importantly, to bring these discoveries to the average person, medical research, underminingTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG advances toward better treat- companies need incentives.” TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG ment, cures, and more accessible,CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG aordable genetic testing. ... e U.S. Trademark and Patent Oce has issued thousands Such a monopoly serves to protCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG one company at the expense of gene patents since the early 1980s as the pace of genetic CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG of the public good.” TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGresearch and discovery exploded. By 2005, nearly 24,000 genes Myriad attorneys argued thatTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG patents have been used for had been identied, and more than 4,300—20 percent of the more than 100 years, across all kindsTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG of commercial economies whole human genome—had been claimed as intellectual prop- CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG and industry, to provide a critical CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGincentive for investment in erty. In the early days of genetic discovery, academic researchers, innovation and discovery. “ResearchTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG is a very expensive propo- private labs, and biotech companies all sought out patents as CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG sition,” Myriad attorney Ben JacksonTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG says. “Companies have to a means of preserving future commercial opportunity, even if spend millions of dollars to make these discoveries. But more they weren’t quite sure about the value of their work. “Twenty

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Continuum_Spring14_Genetics.v2.indd 27 2/18/14 7:51 PM or so years ago, [patents] really helped push people a little bit forward,” says Brody, of the Center for Inherited Disease Research. “ ere was a rush to nd the genes that were respon- sible for the major diseases, and because they were patentable, “There was a rush to find they were patented. ey were staking out turf.” But patents proved troublesome and less protable for the genes that were responsible most in biomedicine, says Brody. In most cases, patent holders found “there was little money to be made” from the claims for the major diseases, and they had staked on specic, single genes, he says. Researchers TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGA TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGAalso found that the patents were barriers to advancing their because they were patentable, CCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGscientic discovery. CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG they were patented.” CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGAs a young researcher,CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG molecular geneticist Elaine Lyon TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGsays she found herselfTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG stymied many times in the lab because TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGshe kept bumping intoTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG patents in her work on a test to identify CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGa protein that metabolizesCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG drugs in the body. In some cases, CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGLyon wasn’t even studyingCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG the specic patented gene but innovation and a barrier to helping patients. e royalty fees TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGwas still blocked becauseTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG the area of her interest was part of associated with using patented genes have also contributed TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGa genetic sequence that fellCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG under a patent’s umbrella. “At this to stalling research by driving up costs or making the tests CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGpoint, I was getting more andCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG more frustrated,” says Lyon, that resulted from research too expensive for patients, says CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGwho is now the director of molecularCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG genetics and genomics Lyon, who is also president of the Association for Molecular TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGat ARUP, an anatomic pathologyTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG reference laboratory on the Pathology. e association’s members had mixed opinions TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGUniversity of Utah campus. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGabout the Myriad case, but Lyon says she shared the views of CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGLyon says many in the molecularCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG science industry have one colleague who said no matter the outcome, “it would be TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGbeen long opposed to patents andTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG see them as a disincentive to best for the eld if we just had this decided once and for all.” CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG

TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGA TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGA CCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG

TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG Smart CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG Tom CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG by TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGPhoto CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGLynn Jorde, chair of the U Medical School’s Department TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGof Human Genetics, notes that genetic research helps TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGgive doctors the potential to treat disease more efficiently CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGand, in some cases, prevent it altogether. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGspring 14 Continuum 28 CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGContinuum_Spring14_Genetics.v3.indd 28 2/19/14 2:48 PM CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG e unanimous decision from the U.S. Supreme Court came on June 13, 2013. e court ruled that genes cannot be patented, because they are a product of nature. “Myriad did not create anything,” Justice Clarence omas wrote in the court’s opinion. “To be sure, it found an important and useful gene, but separating that gene from its surrounding genetic material is not an act of invention.” e decision invalidated Myriad’s ve patents associated with BRCA genes and has similar implications for other gene patents that have been issued over the years. But the court did not leave researchers or biotech companies entirely without opportunity or incentives for competition. e ruling says TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGpatents can apply to cDNA, or articially constructed DNA TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGthat contains some section of isolated, natural genomic DNA. CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGInnovations in medical research technology and development CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGin disease testing processes would also likely be patentable. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGWhether the court’s decision will squelch investment and TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGcommercial development isn’t clear, although it may cut into CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGthe prots of biotech companies by increasing competition. On CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG Smart TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGthe same day the ruling was announced, two companies said

TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGthey would immediately begin oering their own BRCA tests Tom TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGto the public. At least ve related lawsuits remain pending. by CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG

CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGAnother potential impact: Research universities that have Photo TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGpartnered with private companies to take their discoveries CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGinto the commercial marketplace may suer some nancial Myriad Genetics, with headquarters located in the U’s Research Park, was losses. Revenues from royalties, which are paid in exchange founded in 1991 by scientists including then-U professor Mark Skolnick.

spring 14 Continuum 29

Continuum_Spring14_Genetics.v2.indd 29 2/18/14 7:51 PM for licensing rights, could drop, Myriad’s Jackson says. “Any university should be concerned about an alternate, broad reading of the court decision.” The U houses the Utah Jackson believes the court’s opinion is “appropriately narrow,” but also not entirely timely. “Gene patenting is in its Population Database, which twilight,” he says, because most of the important gene discov- eries were made prior to 2001, when the Human Genome layers family genealogies with Project, which has mapped the entire human genome, rst began publishing its ndings. demographic records including TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGA TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGABrody agrees that Supreme Court case was somewhat CCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGoddly timed, considering the zzling competition for gene data on medical diagnostic and CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGdiscovery, but he still believes it will have a signi cant impact. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG“I think it’s an importantTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG decision, because it allows indi- treatment records. It is the largest TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGviduals and companies to go forward and use the genetic TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGsuch database in the world. CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGinformation to innovateCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG and invent new things without CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGworrying about whether CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGyou’re on somebody’s turf,” he says. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGNeklason, at the U MedicalTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG School, says that if the ruling TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGhad come 10 to 15 years earlier,TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG it might have made the produce a person’s entire genetic sequence—far less than in the CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGresearch climate “more collaborativeCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG and less competitive,” but past, and about the same price Myriad charges now to run just CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGneither she nor Jorde believeCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG it will have much eect on the day- the two BRCA gene tests. In the future, sequencing could cost TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGTCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGto-day mission of U genetics investigators.TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG “No matter what, you even less. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGare going to see some competition;TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG scientists are competitive For his part, Johnson believes knowing more about his CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGpeople,” Jorde says. CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGgenetic health is saving his life. Not a fan of doctor visits or pill TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCurrently, U scientists TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGpopping, the father of two CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGare involved with at least TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGboys says his increased aware- TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGnine ongoing research TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGness about genetic factors has CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGstudies in medical genetics, CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGalso led him to gently nudge TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGsuch as projects to identify many of his friends to seek CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG testing. “I’ve outlived my mom TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGhigh-risk genes for childhood CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGcancer, and assessing cancer by a number of years, so from CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGrisks for diseases with known my perspective, this is saving TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGcancer genes, including my life,” he says. He’s also TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGpsoriasis and arthritis, grateful to know that in some TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGchronic obstructive pulmo- small way, his family’s history CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGnary disease, and familial and participation in research CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGatrial brillation. In addi- work will likely help many TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGtion, more than a dozen new others. “My mom was very TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGprojects are beginning this gracious and giving, and she year, including studies on was always thinking about TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGA TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGAthe genetics of Lou Gehrig’s others,” says Johnson. “I’m CCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGdisease, genetic susceptibility sure she’d approve.” CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGto spontaneous pre-term TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGbirth, and locating a “thin- —Jennifer Dobner, a former TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG longtime Associated Press reporter TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGness” gene to prevent obesity. CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGMeanwhile, the eects and editor, is now a Salt Lake City- CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGof the Supreme Court ruling based freelance writer and a frequent CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGshould help drive down the contributor to Continuum. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGcosts of gathering genetic CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGinformation, ultimately Hawkins Ehlert

CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGbene ting patients in terms Lisa Visit continuum.utah.edu to TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG

TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGof both access and overall Charlie watch a video about U by TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGhealth and well-being, courtesy CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG genetics research and Photo CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGU researchers predict. Photo TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGCurrently, it costs about CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG the Utah Genome Project. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG$8,000 to have a private lab Gregg Johnson credits genetic testing with helping prevent cancer in his family. TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGspring 14 Continuum 30 TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGContinuum_Spring14_Genetics.v3.indd 30 2/19/14 2:49 PM TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAAGGGGAAGGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG TCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGACCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG CCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAAGGGGAAGGGCGAGCACTCTTGGTTTGGGCCTAAGAGGGAGAGGCAGGCACTCTTGGTCTGGATCTAAGAGG

Continuum_Spring14_Genetics.v2.indd 31 2/18/14 7:51 PM University of Utah students Sara Fauver, left, and Karlee Stokes, both of whom are currently participating in the U's ACCESS program, work on a laboratory assignment.

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Continuum_Spring14_feature.v4.indd 32 2/18/14 7:22 PM CONNECTED FOR SUCCESS The U’s ACCESS program has helped dozens of women thrive in science and math fields. Story by Heather May Photos by August Miller

ven more than two decades later, Hugo Rossi by the program show ACCESS students graduate with a can still recall the woman standing in his higher grade point average than other College of Science o ce, crying over math. e then-University graduates (3.62 versus 3.38 from 2000 to 2010) and have of Utah mathematics chairman was teaching higher graduation rates (70 percent versus 52 percent from aE remedial algebra course in the late 1980s and noticed 2000 to 2009). that some of his nontraditional female students who had e program now has more than 500 alumnae, and entered college years after high school were unnecessarily ACCESS graduates have gone on to become professors, anxious. ey were among the best students in the class, doctors, and teachers. One woman is a researcher at but they’d end up in his o ce, fearing for their grades. ey NASA’s Jet Propulsion Laboratory and works as the tactical reminded him of his own daughter, who loved math but activity planner for the Mars rover Opportunity. “We’ve got couldn’t be persuaded, even by him, that she could make a superstars all over the country,” says Lisa Batchelder, the career of it. “I remember very distinctly one woman saying, ACCESS program’s coordinator. ‘I know the time is going to come when I won’t be able to do Pierre V. Sokolsky, dean of the U’s College of Science, it.’ I asked her, ‘How do you know that?’ Basically, they had was so impressed by the program Rossi created that he been told that by their parents and their teachers: ‘OK, it’s doubled its enrollment after he became dean in 2007. It’s cute you have a little interest in mathematics, but it’s not now a $150,000 a year program funded with $40,000 from really for women.’ ” the U and the rest from private contributions, including a After Rossi became dean of the U’s College of Science, large grant from Chevron. he set about overhauling that damaging stereotype. In e ACCESS program currently recruits 42 high 1991, he launched the ACCESS Program for Women in school graduates—up from 12 in its rst year—to spend Science and Mathematics, which since then has helped the summer before their freshman year on campus for a hundreds of women enter and succeed in science, tech- seven-week intensive science program. With help from a nology, engineering, and mathematics elds. Of those who scholarship, the students live at the Donna Gar Marriott have graduated, 76 percent earned a degree in science Honors Residential Scholars Community building and or a science-related eld, with 15 percent receiving an study physics, astronomy, chemistry, mathematics, and advanced degree in a science-related eld. Data gathered biology with top U professors. e students develop a

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Continuum_Spring14_feature.v5.indd 33 2/19/14 4:08 PM network of peers and mentors and are introduced to campus Rossi says the U program was inspired by the Emerging life. In addition to the scholarship that covers their summer Scholars Program developed by Philip Uri Treisman at the program and housing, they are given a $2,000 stipend during University of California, Berkeley. While a graduate student, their freshman year that they can use for expenses. Treisman—an eventual MacArthur Fellow and now director “It makes all the di erence in the world to have of the Charles A. Dana Center at the University of Texas at someone who they feel is on their side,” says Rosemary Austin, which works on helping underserved students succeed Gray, who has been the ACCESS program’s director since in college—saw that minority students weren’t doing well in 2006. “It really helps with retention. It helps them feel more freshman calculus even though they excelled in high school. His connected to the University.” study of the reasons why led him to conclude it was because they Instead of attending lecture courses during that rst were isolated on campus, not because they weren’t motivated summer, the students work on research experiments and spend or smart enough. He developed a program that helped students time “getting their hands dirty,” Sokolsky says. “ere’s a lot connect with fellow students and professors through an honors of dry things that [science majors] have to do. at’s not what mathematicss course, a well as with the campus at large. [science] is about. at’s learning the language. Sometimes I e University of Utah program Rossi developed from that tell my students, ‘Why are you learning French? Because you model is now well known, and about 100 applicants each year want to learn French or you want to spend time in Paris?’ A lot compete for the 42 slots. e selected women have an average of students get stuck because they don’t see that it leads to a trip GPA of 3.97. But in 1991, the students were largely recruited by to Paris,” he says. “e earlier you can get them to see what it’s Rossi and others involved in creating ACCESS, he says. really about, the more motivated they’ll be to get through the Stacy Firth BS’95 MS’98 was in the inaugural ACCESS hard parts.” class, which she joined after her junior year in high school. She During their freshman spring semester, ACCESS students had already taken Advanced Placement calculus that year and also work as assistants in research labs and present their nd- was persuaded by Rossi to try the U’s summer program. She ings at a symposium, an experience most students don’t get a made good friends and loved campus life. While Firth knew she chance to do until they are juniors. And though the ACCESS liked math and science, “ACCESS was pivotal in solidifying that program’s formal activities nish at the end of the students’ interest. I could have been dissuaded if I had been plopped into a freshman year, most students continue their connections with massive freshman/sophomore-level course where there are tons of one another during their subsequent years at the U. students and not had the connections I made through ACCESS.”

University of Utah math professor Hugo Rossi, left, who founded the ACCESS program in 1991, discusses an equation with student Joza Ibrahim.

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Continuum_Spring14_feature.v4.indd 34 2/18/14 7:25 PM She went on to graduate with a bachelor’s degree in chem- instructor in the U’s College of Engineering. e course, for high- ical engineering, and she recalls three other ACCESS students school freshmen or sophomores, introduces them to the eld of attended the U with her in that eld. “ere was a really good engineering by tackling real-world engineering problems at the cohort of us going together and feeling like, ‘We’re not foreigners school or in the city and conducting fun experiments such as here,’ ” she says. “For any student, if they feel like they’re by them- building a spectrometer and bioreactor to create biodiesel. selves and nobody has their back, it’s really hard to go into more Firth’s female students clearly have a role model and challenging elds.” encouragement to pursue math and science. Yet just three girls She believes that had she not had peers and professors from are enrolled among the 41 high-school students in Firth’s current ACCESS to rely on when engineering courses. she struggled, she might at’s why Firth believes have wrongly believed the U’s ACCESS program she wasn’t capable of is still necessary. the work and changed Sokolsky agrees majors, instead of real- that the situation at izing she could rise to Olympus isn’t unique. the challenge. Firth went “It’s getting better, but on to receive master’s talk to these young and doctoral degrees women. ere’s a lot of (the latter at UT Austin) pressure to be a home- in chemical engineering. maker or to go into Today, she teaches a business or do other survey of engineering Pierre Sokolsky expanded things that are typical class at Olympus High the ACCESS program when of women,” he says. School in Holladay, he became dean of the U's “Science is about talent. Utah, that she helped College of Science in 2007. It’s about discovery. We design as an associate need all the brains we

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Continuum_Spring14_feature.v4.indd 35 2/18/14 7:56 PM can get. Ignoring ments but still be half the world simply taken seriously. “If doesn’t make any we’re going to be sense.” successful in inte- e percentage grating women in a First Imagine, en Do: of women obtaining real way, we have to bachelor’s degrees come to grips with at the U from the the fact that life colleges of engi- is not just writing neering and science papers and research,” has grown since the he says. “You have to One Student’s Story program’s creation change the atti- in 1991, but women tude that you’re not are still outnum- serious if you care bered. e number of about your family.” female engineering U biology professor Rosemary Current graduates has stayed Gray has been the ACCESS students in the U’s “ e U Futures Scholarship at, at 9 percent. e program's director since 2006. ACCESS program number of women say resistance to gave me the time and graduating with women in science resources so I could focus bachelor’s degrees in the sciences, meanwhile, has grown from and math is subtle when it surfaces. Sophomore Sara Fauver says on school while still being a 23 percent to 34 percent, but only in the eld of biology does the she felt like she had to prove herself more than boys did in her AP husband and father,” Glen proportion of females begin to approach the number of males, calculus and biology classes at Utah’s West Jordan High School. Bailey says. “ at has meant with about 46 percent of graduates being female. Karlee Stokes says she was one of few girls in upper-level science Nationally, male high school students are more than twice as classes at Morgan High in northern Utah, and she was the only so much to me and my likely as female students to be interested in science, technology, girl who competed in her region to be a science Sterling Scholar. family and I want to express engineering, and math elds. By 2016, 45 percent of high school “I had a lot of people who told me I wouldn’t ever win,” the U my sincere gratitude for the boys are forecast to enter those elds, compared with less than freshman recalls. She ended up beating those so-called “genius support I’ve received at the U.” 15 percent of girls, according to a report by the college planning boys” in the regional contest. service My College Options and the resource site Stemconnector. Seeing friendly, female faces in college classes can make Glen Bailey is a first While the number of women earning bachelor’s degrees a dierence, students in the U ACCESS program say. Fauver generation college student. nationally in science and math elds has grown dramatically knows of girlfriends in physics and engineering at the U who He attended junior college in since the 1960s, men still outnumber women, except in biolog- changed majors because there were few women in their classes. ical and agricultural sciences and chemistry, according to the She believes the ACCESS program gave her an edge. In addition his native Sacramento before American Association of University Women. When it comes to to the peer support and the professors’ mentoring, her freshman moving with his wife, Kelsey, engineering, physics, and computer science, women obtain just research lab experience led her to join two other undergraduate to study political science at 20 percent of the degrees. e gap persists and is more dramatic research programs. “I’m really grateful for all the doors this has the University of Utah. Now, in the workforce, the association says. opened,” she says. a senior in his third year, Sokolsky believes that ideally, every freshman should Stokes recollects that in an introductory biology class of 200 Glen juggles being a father to The Bailey Family: Finn, Kelsey, Glen, and Miller. have a chance to enroll in a program like ACCESS, to transi- students, she sat by ACCESS friends every day. “To already know two boys, ages two and four, tion them from high school to college. For now, the U has also them going into the class, to have someone to study with, that was while working and studying full-time. Needless to say, it’s within three semesters of graduation as an incentive to created an ACCESS-like program for refugees and minori- why I did so well in the class.” Stokes, a biology major, credits the a lot to juggle. With a U Futures Scholarship award, Glen complete their education. With the U Futures Scholarship ties, called Refuges, which includes a summer science bridge program with helping her toward greater success. “It changed my course. And each department has its own way of trying to keep life,” she says. “Without it, I would still be in science. But with it, I’m was able to stay in school. Once he graduates this spring, Fund, life’s challenges no longer have to derail completion students engaged, including the Curie Club in the Department excelling more than I ever would have. We’ve had so many oppor- his University degree will make all the difference to his of a student’s college degree. of Chemistry, which was recently created to inspire women to tunities that we wouldn’t [otherwise] have had.” young family’s future. become scientists and to help women scientists balance family For more information about how you can make a difference and work life. —Heather May is a former Salt Lake Tribune reporter who now works as a Established in 2012 by members of the University of through the U Futures Scholarship Fund, please contact Sokolsky also thinks the U should hire more female profes- Salt Lake City-based freelance writer. Utah Board of Trustees and other generous donors, the U Erica Marken, Director, Undergraduate Advancement at sors to provide role models to students. e College of Science Futures Scholarship provides awards to students who are 801-581-8388 or [email protected]. currently has 25 female professors and instructors out of its total of 156 faculty members, up from one female faculty member in Visit continuum.utah.edu to watch a video about how the 1990. He says the tenure process needs to take into account the ACCESS program helped a student who is now in Learn more about the great things your contributions accomplish at giving.utah.edu balance of work and home life, and he imagines a time when medical school. faculty members could temporarily take part-time appoint-

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Continuum_Spring14_feature.v5.indd 36 2/19/14 4:10 PM 14-0130 Continuum Development ad Spring.indd 1 2/7/14 4:50 PM First Imagine, en Do: One Student’s Story

“ e U Futures Scholarship gave me the time and resources so I could focus on school while still being a husband and father,” Glen Bailey says. “ at has meant so much to me and my family and I want to express my sincere gratitude for the support I’ve received at the U.”

Glen Bailey is a first generation college student. He attended junior college in his native Sacramento before moving with his wife, Kelsey, to study political science at the University of Utah. Now, a senior in his third year, Glen juggles being a father to The Bailey Family: Finn, Kelsey, Glen, and Miller. two boys, ages two and four, while working and studying full-time. Needless to say, it’s within three semesters of graduation as an incentive to a lot to juggle. With a U Futures Scholarship award, Glen complete their education. With the U Futures Scholarship was able to stay in school. Once he graduates this spring, Fund, life’s challenges no longer have to derail completion his University degree will make all the difference to his of a student’s college degree. young family’s future. For more information about how you can make a difference Established in 2012 by members of the University of through the U Futures Scholarship Fund, please contact Utah Board of Trustees and other generous donors, the U Erica Marken, Director, Undergraduate Advancement at Futures Scholarship provides awards to students who are 801-581-8388 or [email protected].

Learn more about the great things your contributions accomplish at giving.utah.edu

Continuum_Spring14_feature.v3.indd14-0130 Continuum Development ad Spring.indd 37 1 2/14/142/7/14 2:424:50 PM alumni ASSOCIATION NEWS Six Honored With 2014 Founders Day Awards

e accomplishments of ve outstanding residential, and retail facilities, including the Myriad graduates of the University of Utah and one Genetics corporate campus and e Gateway shop- honorary alumnus were recognized with 2014 ping mall. A former chair of the Utah State Board Founders Day awards in February. of Regents, he remains active in higher education, Award-winning journalist and foreign-policy serving on the U’s National Advisory Council. He expert Frederick Kempe BA’76; real estate and and his wife, Carolyn, have given signicantly to the higher education leader Kem Gardner BS’67 U, including support for the Honors College and its JD’70; stock fund manager Donald Yacktman engaged learning initiative, and annual support of the BS’65; and Ted (BS’65) and Charlotte Gar J.D. Williams scholarship endowment. Jacobsen (BA’64), both of whom had primary Yacktman received his bachelor’s degree in roles in development of the U’s Lowell Bennion economics, magna cum laude, at the U before going on Kempe Frederick Kempe Community Service Center, each received to an MBA with distinction from Harvard University. the Distinguished Alumnus/a Award. John He is president and portfolio manager of Yacktman Bloomberg was presented with an Honorary Asset Management, which he founded in 1992. As head Alumnus Award. ese awards are the highest of what remain two of the world’s best-performing honor the University of Utah Alumni Association stock funds, Yacktman was ranked by Morningstar gives to U graduates and friends, respectively, at No. 2 for domestic fund manager of the decade for in recognition of their outstanding professional 2000 to 2009. Highly respected in his industry, he is achievements and/or public service, as well as regularly interviewed by entities such as Bloomberg their support of the University. News and CNBC, and he has also shared insights with Kempe, who after the U went on to students and deans at the U. receive a master’s degree in journalism from e Jacobsens have given countless hours of Columbia University, spent more than 25 service to the U and have nancially supported Gardner Kem Gardner years as a reporter, columnist, and editor for many U entities for decades. Ted, who after his e Wall Street Journal. Since 2006, he has served bachelor’s degree went on to a master’s of science as president and chief executive ocer of the degree from Stanford University, headed Jacobsen Atlantic Council, a foreign policy think tank and Construction for 30 years, helping create buildings public policy group based in Washington, D.C. He such as the Jon M. Huntsman Center, the Warnock is the author of four books, including New York Engineering Building, and e Grand America Hotel, Times best seller BERLIN 1961, and is a regular as well as Mormon temples throughout the western media commentator in Europe and the United hemisphere. Charlotte’s service to the U includes States, contributing to, among others, CNBC and membership on the U’s National Advisory Council. the BBC. At e Wall Street Journal, Kempe won Ted is the immediate past chair of the U College of national and international awards, including Engineering’s National Advisory Council. participating in two Pulitzer Prizes. Bloomberg (BS’57, Amherst College; MBA’62, Donald Yacktman Gardner was cofounder and served as Harvard University) is a former Wall Street research president of e Boyer Company for more than analyst and competitive skier. After his vision began 30 years, and he has served rapidly deteriorating, he was introduced to Dr. Randall since 2005 as J. Olson with the University of Utah’s Department of chairman of Ophthalmology and John A. Moran Eye Center. In grat- e Gardner itude for surgery by Olson that Bloomberg has credited Company, with saving his vision, Bloomberg and his wife, Toni, a private began generously contributing funds and art to the commercial Moran Eye Center. e John and Toni Bloomberg real estate Ophthalmology Library at the eye center is named rm. He in their honor. He has served on the Department of has helped Ophthalmology Advisory Board, the College of Science develop major Advisory Board, the College of Fine Arts Advisory Ted Jacobsen and corporate, Board, and the President’s Club Committee. Charlotte Garff Jacobsen John Bloomberg

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Continuum_Spring14_AA News.v4.indd 38 2/19/14 4:14 PM alumni ASSOCIATION NEWS Founders Day Scholar Aims for Medical School

Juliet Louise Kanyana, a University she was ve years old. While still a child, she was forced to work of Utah premedical student majoring as a laborer to survive. “ough I was still young, I remained in Health, Society and Policy, has been strong and committed myself to my study, so that I can have a selected to receive the 2014 Founders Day better future and help others,” she says. Scholarship. Kanyana, who is originally As a teenager, she attended a boarding school that was from the Democratic Republic of Congo, several hours away from the refugee settlement. Most girls in the came to the United States as a refugee refugee camp dropped out of school after primary school because with her family in 2011. After nishing a their families believed they would get married and didn’t need year of high school in Salt Lake City, she much education, and some girls were forced into early marriage. went on to the University, where she is now a sophomore. Her aim Kanyana was able to attend secondary school because the leaders is to become a physician and eventually return to Africa to help of the nonpro t group COBURWAS—founded by young refugees people there who don’t have access to quality medical care. from the Democratic Republic of Congo, Rwanda, and Sudan— e University of Utah Alumni Association awards the helped convince her parents of the importance of educating a girl. $6,000 Founders Day Scholarship annually to students who have In April 2011, Kanyana, her parents, and her eight brothers overcome dicult life circumstances or challenges and who have were resettled in Salt Lake City. She enrolled at the University of given service to the University and the community. Utah in 2012. Kanyana maintains good grades while also being Kanyana was four years old when militants attacked her involved in student groups on campus, including the Alpha village in the Democratic Republic of Congo, and amid the Epsilon Delta Premedical Honor Society and the Association of bloodshed and chaos, she and her family were forced to ee. ey Future Female Physicians, and she is vice president of the African eventually reached a refugee settlement in Uganda in 1998, when Student Union.

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Continuum_Spring14_AA News.v3.indd 39 2/14/14 2:21 PM alumni ASSOCIATION NEWS University Effort Yields Record 433,346 Pounds of Food

Dozens of University of Utah alumni between the alumni asso- and student volunteers helped organize ciations of the University of and coordinate the U’s 20th annual Food Utah and Brigham Young Drive, which ran from November 8 to 30, University. e initial and the nal results are in: Utah supporters competition tested which generously donated more than $51,000 and school’s fans could bring a record 433,346 pounds of food. more pounds of food to the e annual Food Drive, spearheaded football stadium. Soon the by the U Alumni Association and its competition grew to include Student Alumni Board, has grown to monetary donations. While become a vital part of holiday eorts the rivalry component no bene ting the Utah Food Bank. “We are longer exists as part of the thrilled to represent the University and drive, each dollar donated One reason for the record amount the Alumni Association in the commu- still allows the Utah Food Bank to ful ll of food collected in the most recent food nity on such an important program,” speci c needs such as transportation drive was that more than 45 local schools says Julie Barrett BS’70, chair of the and purchases of perishable food. e were recruited to join in the food drive. Alumni Association’s Community Service Utah Food Bank turns $1 of cash into the “We were overjoyed to observe that of the Committee. “What better cause than equivalent of eight pounds of food. 433,346 pounds collected in this year’s addressing the needs of the hungry in Salt e U Alumni Association’s Student record-breaking food drive, 84,204 of Lake. e student eorts were terri c.” Alumni Board and MUSS Board members those pounds came from schools,” says e food drive was developed 20 collected food and cash donations at foot- U graduate student and Student Alumni years ago as a friendly competition ball games and local grocery stores. Board member Brooke Foster BS’13.

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Continuum_Spring14_AA News.v3.indd 40 2/14/14 3:15 PM Continuum_Spring14_AA News.v3.indd 41 2/14/14 2:30 PM through the years A BOLD

RESCUEBy Ann Floor

forged ahead, and Rohovit became an executive producer on the project. e resulting 52-minute documentary lm, e Grand Rescue, had its world premiere this past November at the Rose Wagner Performing Arts Center in Salt Lake City and is now making the lm festival circuit around the country, most recently at the Anchorage International Film Festival in December. Wilson also plans

Wilson to enter the movie in the Telluride Film Festival this summer. e documentary Jenny tells the story of the three-day rescue of an injured climber and his partner o the courtesy north face of the Grand Teton, the highest mountain in Grand Teton National Park. photos

All e lm focuses on the rescuers, who Six of the seven men who participated in the 1967 rescue of an injured climber gather for a reunion included six Jenny Lake rangers—four in the Tetons: from left, Ted Wilson, Pete Sinclair, Ralph Tingey, Mike Ermarth, Rick Reese, and Bob Irvine. of them Salt Lake City natives and U graduates—as well as one expert climber who wasn’t a ranger. “e essence of this hen Jenny Wilson BS’88 turned to the events of 1967 and a di- rescue was a group of individuals who was growing up, she and cult and daring rescue that Ted and his came together with a job to do and found her brother Ben HBA’87 ranger friends had made. within their bond a new power,” Ted JD’90 would pack their “What touched me over the years Wilson says in the movie. bagsW each summer, get in the family was not only the heroics on the moun- As a rst-time lmmaker, Jenny station wagon with their parents, Ted tain, but also the passion and bond of Wilson learned on the y. Most recently Wilson BS’64 and Kathy Wilson ex’66, friendship among the men,” Jenny Wilson the executive director of institutional and head from their home in Salt Lake says. “eir story was an inspiration. advancement at the Moran Eye Center City to the Tetons in northwest Wyoming. eir connection with each other has at the University of Utah, she previously Ted had been a Jenny Lake Ranger in the lasted all this time, and I’ve been inu- had served as a member of the Salt Lake 1960s—part of a team of Grand Teton enced by that.” County Council and chief of sta to then National Park climbing rescue rangers— In 2009, when her husband Trell Utah Congressman Bill Orton. She also and the Wilsons gathered at Jenny Lake Rohovit BS’88 suggested that the story worked for the Salt Lake Organizing to be with friends. As the group sat should be made into a lm, it gave Committee for the Olympic Winter around the evening camp re, talk often her just the incentive she needed. She Games of 2002 and for the Sundance

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Continuum_Spring14_TTY.v3.indd 42 2/20/14 1:04 PM through the years

Institute. To get started on her lm, she Leigh secured some nancial backing and then Ortenburger, the raised close to the nal amount needed one member of the through Kickstarter, an online funding team who wasn’t platform for creative projects. a ranger, knew She brought on a cinematographer the mountain and a full crew for the lm shoots. She best due to his also asked a friend, Meredith Lavitt, to years researching join her as director and producer. Lavitt rst ascents for had prior experience in lm production his guidebook, A and currently works for the Sundance Climber’s Guide Institute in a non- lmmaking capacity. to the Teton e making of e Grand Rescue Range. He had a brought together for the rst time since long career as a From left, Ted Wilson, Pete Sinclair, Ralph Tingey, Mike Ermarth, Rick Reese, the 1967 event the six surviving team mountaineer and and Bob Irvine, in a photo taken in 1967, the year of their daring rescue. members and Lorraine Hough, who award-winning was climbing on August 22, 1967, with photographer. He died in the Oakland, Utah Governor Gary Herbert’s chief Gaylord Campbell when a rock slide California, wild res of 1991. environmental advisor and worked knocked Campbell over and caused a Rick Reese BS’66 was a problem as director of governmental relations double compound fracture of his lower solver with climbing skills that were for Talisker Corporation. He now is leg. e two were stranded on a ledge critical to the rescue eort. A Woodrow executive director of the Utah Clean Air at an altitude of 13,000 feet. e young Wilson Fellow, he went on to teach at Partnership. national park rangers quickly went Carroll College in Helena, Montana. He As for Jenny Wilson, she is to work, and the resulting successful also founded the Greater Yellowstone continuing her work on the lm’s rescue was the rst on the Grand Teton’s Coalition and served as director of the distribution. She also is running for the north face. It was unprecedented for its Yellowstone Institute and of community at-large seat on the Salt Lake County time, due to the climber’s severe injuries, aairs for the University of Utah. He now Council, a position she previously held the challenging terrain, and the much lives in Bozeman, Montana. from 2005 to 2010. She aims to continue more rudimentary climbing and rescue Pete Sinclair is the author of We to produce lms. gear of the time. One year after the Aspired: e Last Innocent Americans, rescue, then Secretary of the Interior published in 1993, which includes a —Ann Floor is an associate editor of Continuum. Stewart Udall awarded the rescue chapter on the 1967 Grand Teton rescue team a citation for valor for “coura- that provided the framework for the Visit continuum.utah.edu to view the geous action involving a high degree documentary script. He now is a retired of personal risk under conditions of professor of English at Evergreen College trailer for the movie, as well as extreme severity and hazards.” in Olympia, Washington. a gallery with more photos. Among the rescue team, ranger Ralph Tingey BA’67 became a Mike Ermarth’s quiet leadership permanent park ranger at Grand Teton raised con dence in the others. He after the 1967 rescue and later was an recently retired as a distinguished assistant park superintendent of Denali professor of modern German history National Park and superintendent of at Dartmouth College. Lake Clark National Park, both in Alaska, Bob Irvine BA’62 MA’66 knew as well as assistant superintendent of the Tetons well, having climbed them Grand Teton National Park. Now retired, since his teens. After the 1967 rescue, Tingey lives in Ouray, Colorado, and he remained as leader of the Grand continues to climb several days a week. Teton National Park mountain rescue Ted Wilson BS’64 went on to serve team for the next 28 years and had an as mayor of Salt Lake City and later as accomplished career as professor of director of the Hinckley Institute of mathematics at Weber State University Politics at the University of Utah as well U alum Jenny Wilson, right, worked with producer in Ogden, Utah. as the Utah Rivers Council. He also was and director Meredith Lavitt on the new film.

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Continuum_Spring14_TTY.v3.indd 43 2/20/14 11:02 AM through the years

Blossoming Into Her Own By Marcia C. Dibble

“I am de nitely a retro woman,” says Jaye Maynard conclusion. ere, BFA’85, who has been receiving accolades for her musical besides the period homage to the late jazz singer-songwriter Blossom Dearie. pieces that are Maynard’s nickname is JayeBird, and her show Bird Amongst her love, Maynard the Blossom: A Tribute to the First Blossom Dearie Songbook— also leapt at styled as a midcentury-modern New York supper club act a la other opportuni- 1962—features Maynard on vocals, replicating the “wised-up ties, including baby-doll jazz stylings” of Dearie, with backup on piano and performing improv upright bass, interpreting songs written for and by Dearie and studying with in collaboration with such artists as Johnny Mercer, Dave Second City. She Frishberg, and Bob Dorough (with whom Dearie worked on later appeared in the popular children’s educational series Schoolhouse Rock!). the comedy-horror Maynard is hoping to bring her Blossom show to lm Moonshine, Utah this year as the opener for her friend John Ciccolini’s which screened comingof- age musical-comedy Frank Sinatra Screwed Up My at the Sundance Life. at double-header had its premiere this February at the Film Festival, Karas M Bar—“red leather banquettes and Italian food,” Maynard before starring in notes fondly—in Hollywood, California. A Midwest native, Aaliyah Miller’s Matthew

Maynard spent more than 10 years in southern California short lm After e by after graduating from the U ( nding her niche by looking Headlines, about “more East Coast amongst a sea of blondes”) before moving a mother coming Photo to New York about 15 years ago. Maynard’s master’s thesis to terms with her in vocal performance at New York University (completed in daughter’s murder, which won several awards on the inde- 2002) was called “Jaye Sings: e Barbie Show,” in which she pendent lm festival circuit. wore a recreated Barbie dress and performed songs including But Blossom has become her passion, and its namesake, numbers from a “Barbie Sings!” collection put out by her muse. “She was a self-producing artist, and she created Mattel in 1961. Early this year, she moved back to Madison, an independent record label way back in the ’70s; no one was Wisconsin, her hometown, as a “bicoastal” base and to take doing it back then,” says Maynard. After Dearie died in 2009, her show around the Midwest. Maynard tracked down her songbook and began developing Maynard was theatrical from childhood and says she it into a show, and she eventually acquired Dearie’s last has always been fascinated by the 1950s and early ’60s era in apartment piano on eBay. Maynard called on her longtime which her parents grew up. “I like to fantasize I was reincar- friend Dorian DeMichele BFA’84 to help her produce the nated from a 1940s big band singer turned ’50s housewife,” show, and it had its theatrical debut in 2011 in the United she says. A recent participant at the renowned International Solo eater Festival, in New York. e show has since been Cabaret Conference at Yale University, Maynard runs her recognized as a Pick of the Week by the International Review own PlaidBird Productions, and she is also a producer with of Music. “I know I’m going to be doing this for the rest of my Angry Girl Gang Productions, which she co-owns with life; maybe not the Blossom Dearie songbook, but this niche fellow U alum Mark W. Knowles BFA’85, a longtime friend of jazz cabaret where you are expressing yourself truthfully and collaborator. Maynard was oattracted t the U in great through the story of song,” Maynard says. part because it oered “an actual musical theater program,” with classes from dance to music to theater and the chance —Marcia Dibble is managing editor of Continuum. to earn an Equity card at the same time. She performed in regional productions, including four shows with Pioneer Visit continuum.utah.edu to view a gallery eatre Company, before being handpicked for a tour of with more photos. Pirates of Penzance, and then moved to LA after the tour’s

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Continuum_Spring14_TTY.v3.indd 44 2/19/14 4:23 PM through the years

Federation of State High Asia-Paci c, at the 2013 James D. Walker BS’83 School Associations’ music Asia-Paci c Satellite MA’87 PhD’88, a scientist committee to receive a Communications Council in Southwest Research ’70s Section Award, representing Awards held in Hong Kong. Institute’s mechanical Arizona, California, Hawaii, e award is given to an engineering division, has Nevada, and Utah. e award received the 2014 Edith and recognizes deserving high Peter O’Donnell Award, given school or college band, choral, by the Academy of Medicine, or orchestral directors, super- Engineering & Science of visors, and adjudicators who Texas. e O’Donnell Awards have had a signi cant impact recognize rising Texas on high school activities and researchers “whose work programs. e regional award, meets the highest standards presented to Hendriksen in of exemplary professional February, also quali es him performance, creativity, and for the next several years to resourcefulness,” according Kent A. Nelson BS’75 was be considered for a national to the academy. e award recognized as one of eight award. For the past 28 years, individual who has made honored Walker’s eorts on outstanding community he has been the director of outstanding contributions the Space Shuttle Columbia lenders in the nation for choral activities at Woods and achievements to the accident investigation and 2013 by the Independent satellite industry during NASA’s return-to-ight Community Bankers of the year. AsiaSat, based in program, as well as his work America, one of the nation’s Hong Kong, is a commercial that has contributed to the largest banking industry operator of communica- safety of U.S. military forces. trade groups, and was pro led tion spacecraft. Wade was in the group’s Independent appointed president and chief Banker magazine. Recently executive ocer of AsiaSat named executive vice presi- in August 2010. Prior to that, dent of Brighton Bank in Salt he served as the company’s Lake City, he will continue deputy chief executive ocer serving as branch manager for 16 years. He has more and commercial loan ocer of than 26 years of experience the City Center oce. He has Cross High School in Woods in the satellite and cable been employed by Brighton Cross, Utah, and the school’s television industry. Before Bank since 1986 and has more madrigals and concert choir joining AsiaSat, he was with than 30 years of banking have earned superior ratings Hutchison Whampoa, also experience, with an emphasis at the regional and state level based in Hong Kong. Earlier, Walker’s research centers on in management, business for 27 consecutive years. Wade served as executive personnel protection ranging development, and commercial Hendriksen is chair of the director for Echosphere from vests worn by soldiers real estate loan production. Utah High School Activities International (Echostar), and police ocers to designs At the University of Utah, he Association music committee where he established the for ground vehicles, the completed a double major in and a past president of company’s permanent Asian International Space Station, nance and management. the Utah Music Educators operations in Singapore while and satellites. Currently, he Association. managing its activities in is the principal investigator Asia and the Middle East. and manager of a $5.1 million William Wade BA’82, Wade, who speaks Mandarin, project to analyze vehicle president and chief execu- received his bachelor’s response to land-mine blasts tive ocer of Asia Satellite degree in humanities from and other weaponry. Walker ’80s Telecommunications the University of Utah and received both his undergrad- Company Limited (AsiaSat) a master’s degree from the uate and graduate degrees Neil E. Hendriksen BMu’85 was named the Satellite underbird School of Global from the University of Utah in was selected by the National Executive of the Year in Management. mathematics.

LM Lifetime Member of the Alumni Association AM Annual Member of the Alumni Association spring 14 Continuum 45

Continuum_Spring14_TTY.v3.indd 45 2/19/14 4:25 PM through the years

these cells the unique ability isotopic records preserved in to replicate and dierentiate the East African rift. Levin into many dierent types of has been a faculty member ’90s cells. A 2011 Pew Scholar, he at Johns Hopkins since 2009. ’10s received his doctorate from She received a doctorate in omas G. Fazzio BS’97, the University of Washington geology from the University Maria Graefnings BS’12, an assistant professor at the and Fred Hutchinson Cancer of Utah after completing a one of Sweden’s top female University of Massachusetts Research Center in 2004 master’s degree in geology distance skiers, has joined Medical School, recently was after completing a bach- at the University of Arizona Team Sysarb, the mid-Sweden- recognized as a rising scien- elor’s degree in biology at the and two bachelor’s degrees, in based cross country ski team. ti c star by President Barack University of Utah. geology and anthropology, at Graefnings has competed Stanford University. in long and short distance races in both skate and classic Shigeki Watanabe BA’04 disciplines. She has achieved PhD’13, a postdoctoral fellow multiple International Ski ’00s in biology at the University of Federation Cross-Country Utah, has been awarded the World Cup starts and two Naomi E. Levin PhD’08, an Society for Neuroscience’s victories in the NCAA. She assistant professor of earth is the reigning NCAA 5-km and planetary science at freestyle champion, the rst Johns Hopkins University, NCAA title of her career. has received the 2013 Young Among the many honors Scientist Award (Donath Graefnings has received are Obama with a Presidential Medal) and a cash prize of being named Rocky Mountain Early Career Award for $10,000 from the Geological Intercollegiate Ski Association Scientists and Engineers. Society of America. e award Female Skier of the Year in e presidential award is recognizes outstanding 2011, FasterSkier. com 2011 the highest honor bestowed achievement by scientists Women’s Collegiate Skier of by the U.S. government on ages 35 and younger who the Year, and Ski Racing maga- outstanding scientists and have contributed to geologic zine’s 2011 Nordic Collegiate engineers in the early phases knowledge through original inaugural Nemko Prize for Skier of the Year. Graefnings of their research careers. research that marks a major his accomplishments as a Fazzio was one of 102 scien- advance in the earth sciences. young scientist. e new tists and engineers chosen for Levin’s research centers on annual prize recognizes a this year’s award. Presidential young scientist’s outstanding awardees are selected for doctoral thesis advancing their pursuit of innovative the understanding of brain research at the frontiers function. Watanabe works in of science and technology the laboratory of U biology and their commitment to professor Erik Jorgensen and community service. A faculty is studying how nerve cell member at Massachusetts vesicles—tiny bubbles that since 2010, Fazzio’s research contain neurotransmitter focuses on understanding chemicals—are recycled received a bachelor’s degree how DNA is packaged into after they help send a nerve in exercise and sport science tiny chromatin structures signal from one nerve cell from the University of Utah. inside the nucleus of stem understanding how terrestrial to the next. His studies also cells. He has uncovered previ- landscapes and organisms have revealed that vesicles ously unknown processes responded to ancient climate move faster than previously We want to hear governing how the chromatin change. She has focused on imagined. He received both from you! Please structure of a cell’s DNA reconstructing environ- his bachelor’s and doctoral submit entries to Ann inuences gene expression ments of about 5 million years degrees from the University of Floor, ann.fl[email protected]. in stem cells, conferring on ago from sedimentary and Utah in biology.

spring 14 Continuum 46 LM Lifetime Member of the Alumni Association AM Annual Member of the Alumni Association

Continuum_Spring14_TTY.v3.indd 46 2/19/14 4:26 PM Continuum_Spring14_TTY.v2.indd 47 2/19/14 1:58 PM andfinally The Campus Rostrum The century-old rock has a colorful and mysterious past. By Roy Webb

big chunk of rock has be painted without endangering been part of University infrastructure.

of Utah campus history Utah By 1944, though, the repaint-

for a century, yet its of ings had become nightly, rather whereaboutsA during some of that than annual, with “nurses, Army, time remain a mystery. e Rostrum, and neighborhood vandals” visiting a large granite boulder, started out as the rock to make their mark, even

a feature in a pep rally for a 1913 foot- University Library, covering it with stripes or polka- ball game against the University of dots, according to the Chronicle. Colorado at Boulder. Festooned with U administrators decided to move a “Bust Boulder” sign, the rock was it into a glass case in the base- Willard Marriott Willard

loaded onto a wagon by freshmen and J. ment of the Park Building. But the paraded around Presidents Circle. e move didn’t stop the painters. Sta parade continued through downtown members came in one day to nd

Salt Lake City, where the boulder fell Collections, that the glass had been removed and o the wagon and onto the streetcar the rock once again painted green. tracks. It was shoved aside and later Special By 1946, the rock had become was moved to a spot near the agpole such an annoyance that some in front of the U’s Park Building (then courtesy administrators wanted to remove it

under construction). Since freshmen Photo and “bury it in a eld,” the Chronicle were required to wear green beanies A speaker attempts to hold forth on the Rostrum in 1915, a noted. In 1953, the Chronicle wrote as a mark of their lower-classmen time of turmoil over free speech issues at the University. that the rock had been taken to the status, the boulder soon sported a mountains and dumped several coat of green paint and the year of their class. U administrators years earlier. Nonetheless, it (or a replacement) was brought and upper classmen, however, weren’t pleased, and the freshmen back to the base of the agpole, only to be removed yet again, were required to clean o the paint and numbers and construct a however, and this time supposedly “destroyed by dynamite.” concrete base for the boulder. A few years later, the Rostrum had A 1964 Chronicle article notes that a new boulder was placed taken on such an air of tradition that the junior class axed a in Presidents Circle, while “the original rock has never again bronze plaque to the boulder with the word “ROSTRUM” and the appeared, but is believed to be buried somewhere on campus.” year the plaque was added, “1916.” By 1967, students were again being urged to use the Rostrum e Rostrum had by then begun serving its namesake func- as a speaker’s platform. “Many are the student voices searching tion of providing a place for public speaking. For Senior Chapel for a platform, and you don’t have to buy a press or rent a building Day in 1915, a crowd gathered to hear the junior class perform to use the rock,” the Chronicle wrote. “It is one school tradition we “the burial rites of the rightly deceased Seniors,” according to the shouldn’t lose.” Utonian yearbook. Also in 1915, a time of great turmoil at the U Questions remain regarding possible whereabouts of the regarding free speech issues, a group of “Democratic speakers” original Rostrum. But in historical photos from 1915 to 1991, the attempted to hold forth on the rock but were told to leave the rock appears identical. So if it was removed from campus in the campus by the U’s president, Joseph Kingsbury, according to 1950s, was the same rock at some point recovered and returned a satirical account in the Utonian. A 1955 Daily Utah Chronicle to a place of honor on Presidents Circle? e Rostrum sits there article noted: “Here it was that all candidates for school oce still, if you want to wander by and take a look. could have their say by simply standing on the rock. A crowd gathered immediately to hear the speech-maker.” —Roy Webb BA’84 MS’91 is a multimedia archivist with the e tradition of painting the rock in the school colors— J. Willard Marriott Library. crimson with a large white U—also became rmly established over the years, but the Rostrum was still frequently splashed Visit continuum.utah.edu to view a gallery with green paint by the freshmen, only to be repainted. In 1937, of more historical photos of the Rostrum. the Rostrum was moved away from the agpole, where it could

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Continuum_Spring14-AndFinally.v2.indd 48 2/13/14 6:29 PM Keeping Women Healthy Through Every Stage of Life.

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Continuum_FullPage_Womens.indd 1 2/11/14 3:15 PM Continuum_Spring14_Cover.v3.indd 3 2/18/14 1:42 PM PRSRT STD ALUMNI ASSOCIATION U.S. POSTAGE PAID THE UNIVERSITY OF UTAH BOLINGBROOK, IL 155 S. Central Campus Drive PERMIT NO. 467 Salt Lake City, UT 84112

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