Educational Guidelines for Fragile X Syndrome General
Total Page:16
File Type:pdf, Size:1020Kb
Load more
Recommended publications
-
Orthotics Fact Sheet
Foundations of Pediatric Orthotics FACT The goal of this fact sheet is to provide a reference highlighting key points of orthotic management in children. Additional information on pediatric orthotic management can be located in the Atlas of Orthoses and Assistive Devices, edited by the American Acad- emy of Orthopedic Surgeons, and Lower Extremity Orthotic Intervention for the Pediatric SHEET Client in Topics in Physical Therapy: Pediatrics, edited by the American Physical Therapy Association. What Is an Orthosis? An orthosis is an external device with controlling forces to improve body alignment, improve function, immobilize the injured area, prevent or improve a deformity, protect a joint or limb, limit or reduce pain, and/or provide proprioceptive feedback. Orthoses are named for the part of the body they cover. Orthoses can be custom molded and custom fitted (custom fitted from prefabricated orthoses or off the shelf). Orthoses are classified as durable medical devices (DME) and require L-codes for insurance reimbursement. A prescription signed by a physician is usually required for insurance reimbursement for custom-molded and custom-fit orthoses. Who Designs and Provides Orthoses? • Certified orthotists have formal education in biomechanics and mate- rial sciences required in designing custom devices. They are nation- ally board certified, and 11 states require licensure to provide custom devices. There are approximately 3,000 certified orthotists in the US, with a limited number of orthotists specializing in pediatrics. Pediatric orthotists evaluate the child, cast the child, modify the mold, fabricate the orthosis, and custom fit the orthosis to the child. • Physical therapists are trained in the function of orthoses and will frequently fit and measure orthoses. -
Guide to Quality Individualized Education Program (IEP) Development and Implementation
The University of the State of New York The State Education Department Guide to Quality Individualized Education Program (IEP) Development and Implementation February 2010 (Revised December 2010) THE UNIVERSITY OF THE STATE OF NEW YORK Regents of The University MERRYL H. TISCH, Chancellor, B.A., M.A., Ed.D. .................................................. New York MILTON L. COFIELD, Vice Chancellor, B.S., M.B.A., Ph.D. .................................... Rochester ROBERT M. BENNETT, Chancellor Emeritus, B.A., M.S. ........................................ Tonawanda SAUL B. COHEN, B.A., M.A., Ph.D.......................................................................... Larchmont JAMES C. DAWSON, A.A., B.A., M.S., Ph.D. .......................................................... Plattsburgh ANTHONY S. BOTTAR, B.A., J.D. ............................................................................ Syracuse GERALDINE D. CHAPEY, B.A., M.A., Ed.D. ............................................................. Belle Harbor HARRY PHILLIPS, 3rd, B.A., M.S.F.S. .................................................................... Hartsdale JOSEPH E. BOWMAN, JR., B.A., M.L.S., M.A., M.Ed., Ed.D..................................... Albany JAMES R. TALLON, JR., B.A., M.A. ......................................................................... Binghamton ROGER TILLES, B.A., J.D. ....................................................................................... Great Neck KAREN BROOKS HOPKINS, B.A., M.F.A.................................................................. -
Lower Extremity Orthoses in Children with Spastic Quadriplegic Cerebral Palsy Implications for Nurses, Parents, and Caregivers
NOR200210.qxd 5/5/11 5:53 PM Page 155 Lower Extremity Orthoses in Children With Spastic Quadriplegic Cerebral Palsy Implications for Nurses, Parents, and Caregivers Kathleen Cervasio Understanding trends in the prevalence of children with cerebral prevalence for cerebral palsy in the United States is palsy is vital to evaluating and estimating supportive services for 2.4 per 1,000 children, an increase over previously re- children, families, and caregivers. The majority of children with ported data (Hirtz, Thurman, Gwinn-Hardy, Mohammad, cerebral palsy require lower extremity orthoses to stabilize their Chaudhuri, & Zalusky, 2007). Cerebral palsy is primar- muscles. The pediatric nurse needs a special body of knowledge ily a disorder of movement and posture originating in to accurately assess, apply, manage, teach, and evaluate the use the central nervous system with an incidence of 2.5 per 1,000 live births with spastic quadriplegia being the of lower extremity orthoses typically prescribed for this vulnera- common type of cerebral palsy (Blair & Watson, 2006). ble population. Inherent in caring for these children is the need This nonprogressive neurological disorder is defined as to teach the child, the family, and significant others the proper a variation in movement, coordination, posture, and application and care of the orthoses used in hospital and com- gait resulting from brain injury around birth (Blair & munity settings. Nursing literature review does not provide a Watson, 2006). Numerous associated comorbidities are basis for evidence in designing and teaching orthopaedic care usually present with cerebral palsy requiring various for children with orthoses. A protocol for orthoses management interventions. -
STEP 10: Promote and Market Your Accessibility
STEP 10: Promote and Market Your Accessibility Guidance on Public Information and Marketing How to Write and Speak about People with Disabilities and Older Adults Suggestions for Creating a Public Information and Outreach Checklist Tools for Effective Communication in Promotional and Marketing Materials Best Practices — Marketing and Publicity Guidance on Public Information and Marketing For patrons and visitors with disabilities the option to participate in a cultural event should be based on choice and not limited by lack of access. Evaluate your organizations marketing plan to see that it promotes your accessibility. Central to your outreach, public information, and marketing is communicating to the public about the accessibility of your facility, program and services. Informing the public about the accessibility of your facility and programs is one way to communicate to people with disabilities that they are welcome. The use of appropriate terminology and disability etiquette communicates respect and a positive attitude that is welcoming to people with disabilities. In addition to physical access to programs, auxiliary aids and services provides effective communication and makes programs accessible and enjoyable to everyone. Plan to provide an opportunity for a patron or visitor with a disability to request the auxiliary aid or service that suits their needs. For example, not all persons who are blind use Braille as their primary form of communication. Whereas one person who is blind might request a Braille program, someone else may prefer an audiotape. 217 Ensure that your staff is trained as to the location, usage and maintenance of auxiliary aids such as assistive listening devices in order that they are available and in good working order when requested. -
Caring for Children with Disabilities and Other Special Needs Important?
Children with Disabilities and Other Special Needs First Edition, 2006 California Childcare Health Program Administered by the University of California, San Francisco School of Nursing, Department of Family Health Care Nursing (510) 839-1195 • (800) 333-3212 Healthline www.ucsfchildcarehealth.org Funded by First 5 California with additional support from the California Department of Education Child Development Division and Federal Maternal and Child Health Bureau. This module is part of the California Training Institute’s curriculum for Child Care Health Consultants. Acknowledgements Th e California Childcare Health Program is administered by the University of California, San Francisco School of Nursing, Department of Family Health Care Nursing. We wish to credit the following people for their contributions of time and expertise to the development and review of this curriculum since 2000. Th e names are listed in alphabetical order: Main Contributors Abbey Alkon, RN, PhD Jane Bernzweig, PhD Lynda Boyer-Chu, RN, MPH Judy Calder, RN, MS Lyn Dailey, RN, PHN Robert Frank, MS Lauren Heim Goldstein, PhD Gail D. Gonzalez, RN Susan Jensen, RN, MSN, PNP Judith Kunitz, MA Mardi Lucich, MA Cheryl Oku, BA Pamm Shaw, MS, EdD Marsha Sherman, MA, MFCC Eileen Walsh, RN, MPH Sharon Douglass Ware, RN, EdD Rahman Zamani, MD, MPH Additional Contributors Robert Bates, Vella Black-Roberts, Judy Blanding, Terry Holybee, Karen Sokal-Gutierrez Outside Reviewers, 2003 Edition Jan Gross, RN, BSN, Greenbank, WA Jacqueline Quirk, RN, BSN, Chapel Hill, NC Angelique M. White, RNc, MA, MN, CNS, New Orleans, LA CCHP Staff Ellen Bepp, Robin Calo, Catherine Cao, Sara Evinger, Joanna Farrer, Krishna Gopalan, Maleya Joseph, Cathy Miller, Dara Nelson, Bobbie Rose, Griselda Th omas, Kim To, Mimi Wolff Graphic Designers Edi Berton (2006), Eva Guralnick (2001-2005) We also want to thank the staff and Advisory Committee members of the California Childcare Health Program for their support and contributions. -
Design and Development of a Soft Pediatric Support
DESIGN AND DEVELOPMENT OF A SOFT PEDIATRIC SUPPORT GARMENT FOR ANKLE-FOOT ORTHOSES WEARERS by Danielle A Civil A thesis submitted to the Faculty of the University of Delaware in partial fulfillment of the requirements for Master of Science in Fashion and Apparel Studies Spring 2019 © 2019 Danielle Civil All Rights Reserved DESIGN AND DEVELOPMENT OF A SOFT PEDIATRIC SUPPORT GARMENT FOR ANKLE-FOOT ORTHOSES WEARERS by Danielle A Civil Approved: __________________________________________________________ Michele Lobo, PT, Ph.D. Professor in charge of thesis on behalf of the Advisory Committee Approved: __________________________________________________________ Huantian Cao, Ph.D. Interim Chair of the Department of Fashion and Apparel Studies Approved: __________________________________________________________ John Pelesko, Ph.D. Interim Dean of the College of Arts and Sciences Approved: __________________________________________________________ Douglas J. Doren, Ph.D. Interim Vice Provost for Graduate and Professional Education ACKNOWLEDGMENTS Throughout the course of this research and my master’s program, I have received an incredible amount of support, guidance, and assistance. I would first like to thank my advisor Dr. Michele Lobo whose guidance and expertise was incredibly invaluable. I am extremely appreciative of her support and encouragement throughout this process and so inspired by her passion and drive to help children. I’d also like to thank the rest of my committee, Dr. Huantian Cao and Dr. Karin Grävare Silbernagel, for their expertise and feedback that made my research stronger. Thank you so much to the Move To Learn lab team who has offered an incredible amount of support to me during the span of this research. Specifically, thank you to Andrea Cunha for your helpful contributions to the functional testing and data analysis; her expertise, hard work, and kindness was invaluable throughout the duration of this research. -
Read Article (PDF)
Physical therapist for olympians brings HEADING ‘BEST IN CLASS’ to Cincinnati You don’t have to be an Olympic athlete to be treated like one. A evaluation. The time Doug dedicates to evaluating and listening to trip to ReActive Physical Therapy in Montgomery, will prove this to each patient provides him with an in depth understanding of how a be true. Motivated by his experiences working at the Olympic Train- variety of factors may be contributing to what may seem like an iso- ing Center and serving as a member of the Medical Staff at the Beijing lated problem. “Equipped with this un-derstanding I develop a unique and Lon-don Paralympic Games, Doug Rempe set out to bring the treatment plan that addresses each contributing factor,” says Rempe. same elite level of physical therapy and athletic training to Cincinnati Follow up treatments also provide one hour of one on one time with by founding ReActive Physical Therapy. Rempe. After each visit, personalized progress reports are emailed “Olympic athletes, and Paralympic athletes in particular, have to both patients and their physicians. unique physical challenges that require highly individualized care. Beyond his work with U.S. Paralympic and Olympic athletes, The Olympic Training Center provided the necessary time and re- Rempe has 18 years of experience as a physical therapist and athletic sources to deliver that level of care,” says Rempe. “People in Cincin- trainer in Cincinnati. This experience has equipped him with the nati are no different and deserve the same level of customized care that skills necessary to provide a broad range of services from injury as- I now provide through ReActive P.T. -
Outpatient Physical Therapy for a Toddler with Down
OUTPATIENT PHYSICAL THERAPY FOR A TODDLER WITH DOWN SYNDROME PRESENTING WITH DEVELOPMENTAL DELAYS A Doctoral Project A Comprehensive Case Analysis Presented to the faculty of the Department of Physical Therapy California State University, Sacramento Submitted in partial satisfaction of the requirements for the degree of DOCTOR OF PHYSICAL THERAPY by Sarah E. Christiansen SUMMER 2015 © 2015 Sarah E. Christiansen ALL RIGHTS RESERVED ii OUTPATIENT PHYSICAL THERAPY FOR A TODDLER WITH DOWN SYNDROME PRESENTING WITH DEVELOPMENTAL DELAYS A Doctoral Project by Sarah E. Christiansen Approved by: __________________________________, Committee Chair Dr. Katrin Mattern-Baxter __________________________________, First Reader Dr. Bryan Coleman-Salgado __________________________________, Second Reader Dr. Edward Barakatt ____________________________ Date iii Student: Sarah E. Christiansen I certify that this student has met the requirements for format contained in the University format manual, and that this project is suitable for shelving in the Library and credit is to be awarded for the project. ___________________________, Department Chair ____________ Dr. Edward Barakatt Date Department of Physical Therapy iv Abstract of OUTPATIENT PHYSICAL THERAPY FOR A TODDLER WITH DOWN SYNDROME PRESENTING WITH DEVELOPMENTAL DELAYS by Sarah E. Christiansen A pediatric patient with Down Syndrome was seen for outpatient physical therapy treatment provided by a student for ten sessions from February to June 2014 at a university setting under the supervision of a licensed physical therapist. The patient was evaluated at the initial encounter with Peabody Developmental Motor Scale-2 and Gross Motor Function Measurement-88 and a plan of care was established. Main goals for the patient were to improve developmental motor functions through increasing functional strength, gait endurance and speed, improving balance, and independent ambulation of stairs. -
Standards of Practice for Physical Therapy
Standards of Practice for Physical Therapy HOD S06-20-35-29 [Amended: HOD S06-19-29-50; HOD S06-13-22-15; HOD S06-10-09-06; HOD S06-03-09-10; HOD 06-03-09-10; HOD 06-99-18-22; HOD 06-96-16-31; HOD 06-91-21- 25; HOD 06-85-30-56; Initial: HOD 06-80-04-04; HOD 06-80-03-03] [Standard] Preamble The physical therapy profession is committed to transforming society by optimizing movement to improve the human experience. Physical therapists pursue excellence in a professional scope of practice that includes optimizing physical function, health, quality of life, and well-being across the lifespan, and they work to improve population health in the communities where they practice. The American Physical Therapy Association (APTA) attests to this commitment by adopting and promoting the following Standards of Practice for Physical Therapy. These standards are the profession’s statement of conditions and performances that are essential for provision of high-quality professional service to society, and they provide a foundation for assessment of physical therapist practice. I. Ethical/Legal Considerations A. Ethical Considerations The physical therapist practices according to the APTA Code of Ethics for the Physical Therapist. The physical therapist assistant complies with the APTA Standards of Ethical Conduct for the Physical Therapist ssistant. B. Legal Considerations The physical therapist complies with all the legal requirements of jurisdictions regulating the practice of physical therapy. The physical therapist assistant complies with all the legal requirements of jurisdictions regulating the work of the physical therapist assistant. -
Choosing the Right Words
Nicole Koester “Choosing the NCDJ, Program Manager Walter Cronkite School of Journalism Right Words” and Mass Communication, Arizona State University “Until we learn to appreciate the power of language and the importance of using it responsibly, we will continue to produce negative social consequences for those victimized by dangerous language habits.” J. Dan Rothwell, Telling It Like It Isn’t: Language Misuse and Malpractice/ What We Can Do About It Our responsibility Use relevant disability terms that are: ● Accurate ● Objective ● Fair ● Neutral ● Respectful & Inclusive “Are we ‘handicapped’ or ‘disabled,’ ‘disabled people’ or ‘people with disabilities,’ ‘differently abled’ or ‘special needs?’” My Journey with Disability Language and Identity Andrew Pulrang, disability blogger, co-coordinator of #CripTheVote Monday, April 10, 2017 The disability community is not monolithic How has the disability language conversation evolved in the United States? Prior to 1960’s acceptable terms: idiot, imbecile, moron, crippled, lame, handicap 1970’s-1980’s disability advocacy expands along with the civil rights movement “People with disabilities” starts replacing “handicap” Source: http://www.disabilitymuseum.org/ 1990 - The “Capitol Crawl” and Americans with Disabilities Act On July 26, 1990, the Americans with Disabilities Act of 1990 was signed into law by President George H.W. Bush. “Spread the Word to End the Word” 2009 Disability Advocacy Campaign encouraging people to stop using the R-word – retard(ed) Rosa’s Law ● President Obama signs October, 5 2010 ● U.S. law that replaces several instances of “mental retardation” with “intellectual disability” in federal health, labor and education statutes. People-first language vs. Identity-first language People-first language Puts the emphasis on the person first; followed by a description of the disability. -
Physical Therapy Service Delivered in the Polyclinic During the Rio 2016 Paralympic Games
Physical Therapy in Sport 36 (2019) 62e67 Contents lists available at ScienceDirect Physical Therapy in Sport journal homepage: www.elsevier.com/ptsp Original Research Physical Therapy Service delivered in the Polyclinic During the Rio 2016 Paralympic Games Christiane S. Guerino Macedo a, b, Felipe F. Tadiello b, Leonardo T. Medeiros b, * Marcio C. Antonelo b, Marco A. Ferreira Alves b, c, Luciana D. Mendonça d, b, a Physical Therapy Department, State University of Londrina, Brazil b Sociedade Nacional de Fisioterapia Esportiva (SONAFE), Sao~ Paulo, Brazil c Physical Therapy Department, Universidade Santa Cecília (UNISANTA), Santos, Brazil d Physical Therapy Department, School of Biologic and Health Sciences, Universidade Federal dos Vales do Jequitinhonha e do Mucuri (UFVJM), Diamantina, Brazil article info abstract Article history: Objective: To characterize the Physical Therapy Services delivered at the Polyclinic during the Rio 2016 Received 10 August 2018 Paralympic Games. Received in revised form Design: Retrospective Cohort Study. 8 January 2019 Setting: Physical Therapy Services (PTS) of the Polyclinic. Accepted 10 January 2019 Participants: Athletes attended for Physical Therapy treatment at the Polyclinic during Rio 2016 Para- lympic Games. Keywords: Main outcome measures: The number of athletes treated, their nationalities, their sports modality, the Epidemiology Physical therapy modalities most frequently treated regions and the interventions applied. Rehabilitation Results: A total of 4504 interventions were delivered and 399 athletes were treated in the PTS. Athletes representing athletics and sitting volleyball were the most frequently attended for treatment. The main diagnoses were muscle tension and tendinopathy. Analgesia was the main purpose of treatment and myofascial release and electrotherapy was the most frequent interventions. -
Physical Therapy for Adolescents Thru Adulthood with Down Syndrome
Physical Therapy for Adolescents thru Adulthood with Down syndrome PATRICIA SHIMANEK, PT, DPT AND ANDREA GADSON, PT, MPT Andrea Gadson, PT, MPT is a Physical Therapist at Advocate-Aurora Lutheran General Hospital. She has been a Physical Therapist for 22 years with 20 of those years focused specifically on out patient sports ANDREA medicine. She has found a niche treating foot and ankle injuries and GADSON, PT, MPT had additional training in orthotics and foot wear. She graduated from Washington University in St. Louis Patricia Shimanek PT, DPT is a Physical therapy at Advocate- Aurora Lutheran General Hospital, and has been a PT for almost 30yrs. Graduated from Northwestern University in 1988 with a bachelors in PT and from PATRICIA Rosalind Franklin University in 2011 with her doctorate in Physical SHIMANEK PT, DPT Therapy. She has been treating Ortho/Sports Medicine clients for 28 years. She is also a parent with a 22 y. o. male with Down syndrome. Objectives 1. Understanding Medical issues in a person with Down syndrome 2. Understanding physical characteristics of a person with Down syndrome 3. Understanding gait tendencies, shoe wear and orthotics 4. Understanding why exercise/Physical Therapy is important 5. Functional Physical Therapy Goals Medical Issues There are multiple medial issues related to Down syndrome: 1. Heart Problems(50%) 2.Gastrointestinal Issues 12% 3. Umbilical hernias 4. Epilepsy 5. Orthopedic Issues 6. Ears, nose, and throat issues 7. Blood problems 8. Thyroid issues 4-18% 9. Eye Issues 10. Skin/dermatology concerns 11. Dental issues 12. Alzheimer’s 13. Obesity 14. Obstructive sleep apnea 50-79% 15.