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Summit on the National Effort to Prevent Mental Retardation and Related Disabilities

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Summit on the National Effort to Prevent Mental Retardation and Related Disabilities DOCUMENT RESUME ED 339 162 EC 300 772 TITLE Summit on the National Effort To Prevent Mental Retardation and Related Disabilities. Summit Proceedings (Washington, D.C., February 6-7, 1991). INSTITUTION Administration for Children, Youth, and Families (DHHS), Washington, D.C.; President's Committee on Mental Retardation, Washington, D.C. REPORT NO DHMS(ACF)91-21045 PUB DATE Feb 91 NOTE 247p. PUB TYPE Collected Works - Conference Proceedings (021) EDRS PRICE MIF01/PC10 Plus Postage. DESCRIPTORS *Agency Cooperation; Change Strategies; Child Health; Cooperative Planning; *Developmental Disabilities; Elementary Secondary Education; *Mental Retardation; *Prevention; Program Development; *Public Policy; *Socioeconomic Influences; State Programs; Statewide Planning ABSTRACT This document reports the proceedings of a summit to assess the adequacy of the U.S. effort to prevent mental retardation and related disabilities and to chart the course for future strategies to reduce the incidence and ameliorate the effects of these disabilities, particularly when caused by socioeconomic conditions. The document contains "Statement of Occasion: The Challenge" by Hugo Moser, a keynote address by Duane Alexander titled "A National Prevention Strategy for Addressing Conditions Mat Negatively Affect Mothers and Children," and an awards luncheon address by Louis W. Sullivan titled "Comments on the Nationaa Effort To Prevent Mental Retardation and Related Disabilities." The following papers are also included: "Impact of the 'NewMorbidity' on Epidemiological Rates in Mental Retardation and Developmental Disabilities" (Godfrey Oakley); "Healthy People 2000 Objectives for the Nation--Impact on Persons with Mental Retardation and Related Disabilities" (Ashley A. Files); "A National Prevention Agenda Including the Institute of Medicine Study" (Allen Crocker); "A Model Approach for Preventing the 'New Morbidity': Implicationsfor a National Plan of Action" (Alfred Baumeister); "EffectiveStrategies for Preventing Mental Retardation and Related DisabilitiesAssociated with Socioeconomic Conditions" (Edward Zigler); "The Roleof Developmental Disabilities Councils and Agencies in Planningfor the Prevention of Mental Retardation and Related Disabilities" (Deborah McFadden); "Prevention Initiatives of the Administration for Children, Youth and Families To Address the Needs of Sonioeconomically Disadvantaged Mothers and Children" (Wade F. Horn); "Support Services of the Maternal and Child Heath Bureauin Planning To Prevent Mental Retardation and Development Disabilitiesin Children" (Vince L. Hutchins); "Social Security Initiatives That Impact the Lives of Families at Risk and Reduce Children'sMorbidity" (Gwendolyn S. King); "Rehabilitation Services AdministrationOptions for Interagency Initiatives in Prevention and Rehabilitation" (Nell Carney); "Ameliorating the Effects of Mental Retardationand Related Disabilities in Aged Adults" (Joyce Berry); "NIDRR: Scope of Opportunity for Interagency Collaboration and Research in Mental Retardation" (William Graves); "Provisions of the Educationof the Handicapped Act--Part 14" (Michael E. Vader); "Office of Special Education Programs: Coordinated Service Delivery for a Changing Population of Students with Disabilities" (Judy Schrag); "The Impact of Substance Abuse and Teratogenic Factors on Child Development and Family Options" (Judy Howard); "Professional Preparation and Training To Meet the Needs of Mothers and Children with HIV Infection and AIDS" (Herbert J. Cohen); "Return Us the Children'--Societal Prerequisites" (Travis Thompson); "Florida's Movement from Prevention Planning to Prevention Program Implementation" (George Schmidt); "Iowa Community-Based Low Birth Weight Prevention Pilot Project" (Roger Chapman); "Getting the Lead Out in New Jersey: Az Example of Interagency Leadership and Cooperation" (Deborah E. Cohen); and "CaliforniaAddressing the Needs of a Changing Society" (Raymond Peterson). The document also contains summaries of work group recommendations and administrative items related to the summit. (JDD) it*****111******************011****WAItit**********************************X* Reproductions supplied by EDRS are the best that can be made from the original document. *********************************************************************** U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families President's Committee on Mental ReVirdation USOrPARTISSOIT OF SOMATIC* Office of E deceived dieffiaicri enct wrprowerent EtttICAnONAi. RESOURCES tNFDRMATION CENTER WWI r tno docconent fia* been receoducee as received tern 'fie parson or ofgerunition onainatina tittrior dUingei nave OPOri merle to wiptoire r- reproduction wieldy Pointe or view or opinions stated 0, pus acris MIMI donot necoosontv roluespnt OEM position or pokey Smninit Proceedings Technical papers contained in the proceedings of theSummit on the NationalEffort to Prevent Mental Retardation and Related Disabilities were prepared by experts in thefield of mental retardation and related disabilities under contract from the U.S. Department of Health and Human Services, AdministrationforChildren andFamilies,President's committee on Mental Retardation (PCMR). The proceedings express the research and opinions of the Forum participants and do not necessarily reflect the views of the PCMR or any part of the U.S. Department of Health and Human Services. This document may be reproduced without permission. U.& DEPARTMENT OF HEALTH AND HUMAN SERVICES Administration for Children and Families President's Committee on Mental Retardation SUMMIT ON THE NATIONAL EFFORT TO PREVENT MENTAL RETARDATION AND RELATED DISABILITIES Summit Proceedings February 6-7, 1991 Washington, DC MILS Publication No. (ACF) 91-2l045 The President's Committee on Mental Retardation acknowledges and extends appreciation to the following organizations for their co-sponsorship of the Summit on the National Effort to Prevent Mental Retardation and Related Disabilities. The Administration for Children, Youth and Families (ACYF), U.S. Department of Health and Human Services Tbe Administration on Developmental Disabilities (ADD), U.S. Department of Health and Human Services The Administration on Aging (ADA) U.S. Department of Health and Human Services The American Academy of Pediatrics (AAP) The Division of Birth Defects and Developmental Disabilities, Center for Environmental Health and Injury Control; Centers for Disease Conuol (CDC) U.S. Department of Health and Human Services The National Institute of Child Health and Human Development (NICHD), National Institutes of Health; U.S. Department of Health and Human Services The National Institute on Disability and Rehabilitation Research (NIDRR), Office of Special Education and Rehabilitative Services; U.S. Department of Education The Office of Disease Prevention and HealthPromotion (ODPHP), Office of the Assistant Secretary for Health; U S. Department of Health and Human Services The Office of Policy, Planning and Legislation (OPPL), U.S. Department of Health and Human Services The Social Security Administration (SSA); U.S. Oepartment of Health and Human Services 5 TABLE OF CONTENTS Page PREFACE xu Opening Plenary Session February 6, 1991 WELCOME 1 Albert L Anderson, D.DS. Vice Chairperson President's Committee on Mental Retardation San Diego, California GREETINGS 3 Mary Sheila Gall Assistant Secretaty for Human Development Services Department of Health and Human Services Washington, D.0 STATEMENT OF OCCASION: THE CHALLENGE 7 Hugo Moser, M.D. Director Center for Research on Mental Retardation and Related Aspects of Human Development Kennedy Institute and Johns Hopkins University Baltimore, Maryland KEYNOTE ADDRESS A NATIONAL PREVENTION 11 STRATEGY FOR ADDRESSING CONDITIONS THAT NEGATIVELY AFFECT MOTHERS AND CHILDREN Duane Alexander, M.D. Director National Institute of Child Health and Human Development Bethesda, Maryland AWARDS LUNCHEON ADDRESS 23 COMMENTS ON THE NATIONAL EFFORT TO PREVENT MENTAL RETARDATION AND RELATED DISABILITIES by Louis W. Sullivan, M.D. Secretary US. Department of Health and Human Services Washington, D.C. f; PANEL SESSIONS February 6, 1991 PANEL I: WHAT WE CAN ,AND MUST DO Christopher De Grim, M.D., Moderator IMPACT OF THE "NEW MORBIDITY" 29 ON EPIDEMIOLOGICAL RATES IN MENTAL RETARDATION AND DEVELOPMENTAL DISABILITIES Godfrey Oakley, M.D. Chief Division of Birth Defects and Developmental Disabilities Centers for Disease Control Atlanta, Georgia HEALTHY PEOPLE 2000 OBJECTIVES FOR THE NATION 39 IMPACT ON PERSONS WITH MENTAL RETARDATION AND RELATED DISABILITIES Ashley A. Files Prevention Policy Advisor Office of Disease Prevention and Health Promotion Department of Health and Human Services Washington, D.C. A NATIONAL PREVENTION AGENDA INCLUDING 4s THE INSTITUTE OF MEDICINE STUDY Allen Crocker, M.D. Director Developmental Evaluation Clinic Children's Hospital Medical Center Boston, Massachusetts iv PANEL II: PREVENTING THE NEW MORBIDITY: IMPROVING OPTIONS FOR MOTHERS AND CHILDREN M. Doreen Croser, Moderator A MODEL APPROACH FOR PREVENTING THE "NEW MORBIDITr: 57 IMPLICATIONS FOR A NATIONAL PLAN OF ACTION Alfred Baumeister, Ph.D. Director John F. Kennedy Center for Research on Education and Human Development Peabody College, Vanderbilt University Nashville, Tennessee EFFECTIVE STRATEGIES FOR PREVENTING MENTAL 75 RETARDATION AND RELATED DISABILITIES ASSOCIATED WITH SOCIOECONOMIC CONDITIONS Edward Zig ler, Ph.D. Sterling Professor of Psychology Yale University New Haven, Connecticut PANEL III: PREVENTING
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