Be Informed: Resources for Your Cancer Journey

Presented by: The Psychosocial and Supportive Care Team

HADS and DT

Please complete the

– Distress Thermometer

– Hospital Anxiety and Depression Scale

Credit Valley Hospital Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive,

1 Agenda

To Identify:

• What do I need to know while living with cancer?

• Where can I get help?

Credit Valley Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

What To Expect...

Where do I go when I come to How long will I be here? the centre? Do I have to register every time Why do I need to answer so I come? many questionnaires/forms? What are my parking options?

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

2 What To Expect...

http://www.youtube.com/watch?v=eyv5Vn2hv0 8

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

What To Expect…

ESAS – Computer Station

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

3 What To Expect…

ESAS – Paper Version

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

What to Expect…

Who is Part of My Healthcare Team? Advanced Practice Nurses Health Psycholo g ist

Dietitians Radiation Therapists

Doctors and residents Social Workers

Medication Access Students from all Specialist/ Drug Navigators professions Nurses Volunteers

Pharmacists UCAs

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

4 Areas In Which You May Need Help

(Fitch, 2002)

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 9 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

Physical

• What do I do if I have questions/concerns?

• Who can help?

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

5 Practical

• How will I pay the bills if I can’t work?

• How do I pay for my medications?

• What about work?

• How do I get to my appointments? n• Who ca help me with treatment decisions? – Power of Attorney Kit and Advanced Care Planning booklet • Who can I call if I have questions?

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

Informational

• Where can I find information about my cancer? – Call the Canadian Cancer Society at 1‐888‐939‐3333

• How do I know a website is reliable? – Oncology Guide to Reliable Resources

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

6 Informational

Getting The Most From Medical Appointments • Can I bring a support person with me?

• Can I come to my appointment with a list of questions? – Canadian Cancer Society’ s book: Questions to Ask About Cancer

• Can I take notes during my appointment?

• What can I discuss with my healthcare team?

• How can I manage all the information I am given?

Video ‐Advocate

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

Emotional and Psychological

• Is it ok to feel sad, angry, afraid, guilty … about my cancer?

• “be positive?”

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

7 Emotional and Psychological

• How do I know if I am having difficulty coping? – The Emotional Facts of Life with Cancer booklet

• When do I ask for help?

• Who can I ask for help? – Oncology Clinic – Wellspring • 905‐257‐1988 – Canadian Cancer Society Peer Support • 1‐888‐939‐3333

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

Emotional and Psychological

• How have I managed to get through difficult situations in the past?

Video‐ Coping

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

8 Emotional and Psychological

• What kind of help? • groups • individual counselling • family counselling

• Confidentiality?

• How much does it cost?

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

Spiritual

• Why is this happening?

• I’m not religious, why would I need to talk to someone about spiritual care?

• Who can help me with my spiritual concerns?

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

9 Social

What About My Family/Friends? • Is it important to involve my family?

• What do I tell them?

• Can my family phone for my medicalmedical information?

• What if they need or want help?

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

Social

What About My Child or Teen?

• Is it important to talk to my child or teen about my cancer?

• Where can I learn more about this?

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

10 Sex and Sexuality

• Is it common to have concerns regarding sex and sexuality during my cancer journey?

• Who should I speak to?

• What resources are available? – Canadian Cancer Society’s book: Sexuality and Cancer: A Guide for people with cancer

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

Fertility

• Whatn ca I do if I am concerned about being able to have children?

• Is there someone I can talk to? – Cancer and Fertility and Power of Hope from Fertile Future

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

11 Healthy Living

• ShouldShould II stastarrtt oror ccoonntinuetinue beingbeing phphyyssicicallyally activactivee duringduring mymy cancer treatment? – Talk to your healthcare team

• What services are available? – Wellspring

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

Healthy Living

• Is healthy eating important? – Talk with your health care team

• Who should I speak to if I have questions? – Dietitians here for counselling • Chemo Education Class • Nutrition and Radiation Therapy – Wellsppgring

• What resources are available? • Canada’s Food Guide • Eating Well When You have Cancer

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

12 Healthy Living

• Is it important to quit smoking?

• What services are available? – Quit Smoking Education Program (Credit Valley) – SmokSmokerer ’s Help Line (Queensway) • 1‐877‐513‐5333

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

What About Me, The Caregiver?

• Where can I get support and information as the caregiver?

• ’ handout: To support you in your role as caregiver

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

13 Contacting the PSO Team

Call this confidential number to request support from a member of the the Psychosocial and Supportive Care Team

905‐813‐1100 ext. 4862

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

Questions??? ?

Credit Valley Hospital Mississauga Hospital Queensway Health Centre 2200 Eglinton Avenue West, Mississauga 100 Queensway West, Mississauga 150 Sherway Drive, Toronto

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