FINAL REPORT APPENDICES -- Assessing the SHARP Experience
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FINAL REPORT APPENDICES Assessing the SHARP Experience JULY 2014 PRESENTED TO: PRESENTED BY: Dustin Charles NORC at the Office of the National Coordinator University of Chicago for Health Information Technology Adil Moiduddin U.S. Department of Health and Human Vice President, Health Care Research Services 55 East Monroe Street 200 Independence Avenue S.W. 30th Floor Suite 729-D Chicago, IL 60603 Washington, D.C. 20201 (312) 759-4000 (202) 690-7151 NORC | Assessing the SHARP Experience Table of Contents Appendix A. SHARP Vision Paper (March 2012) ..................................................................... 1 Appendix B. Awardee Overview............................................................................................. 15 Appendix C. SHARP Output Inventory .................................................................................. 17 Appendix D. Count by Output Type ....................................................................................... 63 Appendix E. Site Visit Summary for SHARPS ....................................................................... 64 Appendix F. Site Visit Summary for SHARPc ....................................................................... 85 Appendix G. Site Visit Summary for SMART ....................................................................... 104 Appendix H. Site Visit Summary for SHARPn ..................................................................... 123 Appendix I. Closing Discussion Participants ...................................................................... 133 Appendix J. Closing Discussion Method ............................................................................ 134 FINAL REPORT APPENDICES | I NORC | Assessing the SHARP Experience Appendix A. SHARP Vision Paper (March 2012) Introduction NORC at the University of Chicago, working under contract to and in consultation with expert staff of the Office of the National Coordinator for Health Information Technology (ONC) at the U.S. Department of Health and Human Services, is pleased to present this paper outlining the basic vision for the Strategic Health IT Advanced Research Projects (SHARP) program. The paper presents the motivation and objectives of the SHARP program both at its inception and in the current context of health care in the United States. It first offers a brief review of the history and mechanics of the program, and the research areas targeted by program funding. The paper then details the anticipated outcomes and benefits to accrue from SHARP in the current environment and reviews the approaches to program management, results dissemination and collaboration that can help extend and accelerate benefits of the program. Program Background In February 2009, President Obama signed the American Recovery and Reinvestment Act of 2009 (Pub. L. 111-5) (ARRA). ARRA included provisions that may, in their entirety, be cited as the “Health Information Technology for Economic and Clinical Health Act” or the “HITECH Act”. The HITECH Act authorized unprecedented investments to advance the use of health IT to improve the quality, safety and efficiency of health care in the United States (U.S.). The HITECH Act authorized a number of programs to strengthen this health information infrastructure and promote the adoption of health IT across the country. These include the Medicare and Medicaid EHR Incentives Program, the Information Technology Professionals in Health Care (“Workforce”) Program, the Beacon Communities Cooperative Agreement Program, the State Health Information Exchange (HIE) Program, the Health Information Technology Regional Extension Center (REC) Program, and the Health Information Technology Research Center (HITRC). In recognition of the challenges inherent in achieving a robust digital health information infrastructure that is effectively used by providers and consumers to improve health and care throughout the U.S., the Office of the National Coordinator for Health IT dedicated significant resources to closing the gap between the promise of health IT and its realized benefits—including its direct contributions to achieving the goal of a transformed health care delivery system. The research infrastructure must be designed and FINAL REPORT APPENDICES | 1 NORC | Assessing the SHARP Experience dedicated to supporting the goals of HITECH and overcoming health IT challenges to adoption and meaningful use. Although not the sole component or program in the U.S. health IT research and development infrastructure, the SHARP Program supports advanced research activities to address key short- and medium-term challenges to the HITECH and its programs. Research includes: Exploring and defining fundamental research questions within an identified set of high-priority areas which address barriers to the nationwide electronic exchange and use of health information in a secure, private, and accurate manner; ■ Providing opportunities for relevant academic and industrial researchers, health IT developers and implementers, health care providers and delivery system researchers, and other stakeholders to collaborate for the purpose of stimulating innovation and translating the results of research into health IT products; ■ Creating breakthrough solutions, technologies, and services, for application to health IT in the near- and long-term, and addressing significant challenges and opportunities relevant to the adoption and meaningful use of health IT; ■ Identifying a range of model (proof-of-concept) systems that serve as motivating and unifying forces to drive fundamental research in health IT; and ■ Encouraging effective use of health IT through rapid dissemination of research results and findings on innovations and novel tools to developers and purchasers of health IT. SHARP focuses on solving currently-known and anticipated challenges to adoption and meaningful use of health IT, through new methods and advanced technologies. These projects focus on areas ripe for “breakthrough” advances. For example, potential security breaches represent a major threat to public trust in the electronic maintenance and exchange of health information. SHARP research in this area seeks to identify new methods to create tools that will, through their incorporation into deployed technology, enhance data security. In doing so, the program will, in critical areas, close the gap between the promise of health IT and its realized benefits. The SHARP Principal Investigators have designed and dedicated the projects to supporting the goals of HITECH, and overcoming health IT challenges to adoption and meaningful use. Thus, SHARP Awardees’ work addresses fundamental research questions aimed at promoting private, secure, and accurate electronic exchange and use of health information by stimulating innovation and translating research into health IT tools and products. This requires collaboration among medical FINAL REPORT APPENDICES | 2 NORC | Assessing the SHARP Experience informaticists, health care researchers, health IT developers and implementers, health care providers, and other stakeholders. These efforts will promulgate the development and dissemination of previously unforeseen tools, products, and methods that will ultimately improve patient outcomes and quality of care, and catalyze additional private-sector investments in health IT. Program Overview The SHARP Program funds four competitively awarded cooperative agreements over the course of four years, each of which focuses on a distinct research domain. Awardees implement collaborative, interdisciplinary research projects that address short- and long-term, well-documented challenges to the adoption of health IT related to four priority domains: ■ Security of Health Information Technology: This research area addresses the challenges of developing security and risk-mitigation policies and the technologies necessary to build and preserve the public trust as health IT systems become increasingly ubiquitous. The project goes beyond the need to establish systems to maintain compliance with legal and regulatory challenges in the current context, and looks for opportunities to incorporate sophisticated methods to define policies that address a more nuanced understanding of the objectives of security policy that may be consistently and effectively employed in the context of EHRs, health information exchange, and telemedicine. ■ Patient-Centered Cognitive Support: This research area addresses the challenge of harnessing the power of health IT to produce clinical decision support models that integrate with, enhance, and support clinicians’ reasoning and decision-making, rather than adding to their workload by offering information at points and in manners not consistent with how clinicians approach decision-making in the context of their daily work. The goal is to develop methods that can be employed to improve the relevance and thus the effectiveness of decision support to facilitate patient-centered care across different health IT tools used by providers. ■ Health Application and Network Platform Architectures: This research area focuses on the development of new and improved architecture to support rapid development and dissemination of substitutable applications that share common basic components. In addition to establishing an environment in which developers can continually design and disseminate new applications, the project envisions a graphical user interface where providers can select and download these applications, similar to “app selection” interfaces