Applied Software Tools for Supporting Children with Intellectual Disabilities
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Guide to Quality Individualized Education Program (IEP) Development and Implementation
The University of the State of New York The State Education Department Guide to Quality Individualized Education Program (IEP) Development and Implementation February 2010 (Revised December 2010) THE UNIVERSITY OF THE STATE OF NEW YORK Regents of The University MERRYL H. TISCH, Chancellor, B.A., M.A., Ed.D. .................................................. New York MILTON L. COFIELD, Vice Chancellor, B.S., M.B.A., Ph.D. .................................... Rochester ROBERT M. BENNETT, Chancellor Emeritus, B.A., M.S. ........................................ Tonawanda SAUL B. COHEN, B.A., M.A., Ph.D.......................................................................... Larchmont JAMES C. DAWSON, A.A., B.A., M.S., Ph.D. .......................................................... Plattsburgh ANTHONY S. BOTTAR, B.A., J.D. ............................................................................ Syracuse GERALDINE D. CHAPEY, B.A., M.A., Ed.D. ............................................................. Belle Harbor HARRY PHILLIPS, 3rd, B.A., M.S.F.S. .................................................................... Hartsdale JOSEPH E. BOWMAN, JR., B.A., M.L.S., M.A., M.Ed., Ed.D..................................... Albany JAMES R. TALLON, JR., B.A., M.A. ......................................................................... Binghamton ROGER TILLES, B.A., J.D. ....................................................................................... Great Neck KAREN BROOKS HOPKINS, B.A., M.F.A.................................................................. -
Lower Extremity Orthoses in Children with Spastic Quadriplegic Cerebral Palsy Implications for Nurses, Parents, and Caregivers
NOR200210.qxd 5/5/11 5:53 PM Page 155 Lower Extremity Orthoses in Children With Spastic Quadriplegic Cerebral Palsy Implications for Nurses, Parents, and Caregivers Kathleen Cervasio Understanding trends in the prevalence of children with cerebral prevalence for cerebral palsy in the United States is palsy is vital to evaluating and estimating supportive services for 2.4 per 1,000 children, an increase over previously re- children, families, and caregivers. The majority of children with ported data (Hirtz, Thurman, Gwinn-Hardy, Mohammad, cerebral palsy require lower extremity orthoses to stabilize their Chaudhuri, & Zalusky, 2007). Cerebral palsy is primar- muscles. The pediatric nurse needs a special body of knowledge ily a disorder of movement and posture originating in to accurately assess, apply, manage, teach, and evaluate the use the central nervous system with an incidence of 2.5 per 1,000 live births with spastic quadriplegia being the of lower extremity orthoses typically prescribed for this vulnera- common type of cerebral palsy (Blair & Watson, 2006). ble population. Inherent in caring for these children is the need This nonprogressive neurological disorder is defined as to teach the child, the family, and significant others the proper a variation in movement, coordination, posture, and application and care of the orthoses used in hospital and com- gait resulting from brain injury around birth (Blair & munity settings. Nursing literature review does not provide a Watson, 2006). Numerous associated comorbidities are basis for evidence in designing and teaching orthopaedic care usually present with cerebral palsy requiring various for children with orthoses. A protocol for orthoses management interventions. -
STEP 10: Promote and Market Your Accessibility
STEP 10: Promote and Market Your Accessibility Guidance on Public Information and Marketing How to Write and Speak about People with Disabilities and Older Adults Suggestions for Creating a Public Information and Outreach Checklist Tools for Effective Communication in Promotional and Marketing Materials Best Practices — Marketing and Publicity Guidance on Public Information and Marketing For patrons and visitors with disabilities the option to participate in a cultural event should be based on choice and not limited by lack of access. Evaluate your organizations marketing plan to see that it promotes your accessibility. Central to your outreach, public information, and marketing is communicating to the public about the accessibility of your facility, program and services. Informing the public about the accessibility of your facility and programs is one way to communicate to people with disabilities that they are welcome. The use of appropriate terminology and disability etiquette communicates respect and a positive attitude that is welcoming to people with disabilities. In addition to physical access to programs, auxiliary aids and services provides effective communication and makes programs accessible and enjoyable to everyone. Plan to provide an opportunity for a patron or visitor with a disability to request the auxiliary aid or service that suits their needs. For example, not all persons who are blind use Braille as their primary form of communication. Whereas one person who is blind might request a Braille program, someone else may prefer an audiotape. 217 Ensure that your staff is trained as to the location, usage and maintenance of auxiliary aids such as assistive listening devices in order that they are available and in good working order when requested. -
Autism Guideline Jan2018.Pdf
DATE: January 2018 TEXAS CHILDREN’S HOSPITAL EVIDENCE-BASED OUTCOMES CENTER Screening and Diagnosis of Autism Spectrum Disorder (ASD) Evidence-Based Guideline Definition: (1) Autism Spectrum Disorder (ASD) per the DSM-5 Early Signs (2,5,6) encompasses four previously separate disorders that are Social Skills Deficits actually a single condition with different levels of symptom Early years severity in two core domains. These four disorders are the - Do not appear to seek connectedness DSM-IV Autistic Disorder (autism), Asperger’s Disorder, - Contentbeingalone Childhood Disintegrative Disorder, and Pervasive - Ignore parents’ bids for attention Developmental Disorder Not Otherwise Specified (PDD-NOS). - Seldom make eye contact or bid for others’ attention ASD is characterized in early childhood by 1) deficits in social with gestures or vocalizations communication and social interaction and 2) restricted - Deficits in joint attention repetitive behaviors, interests, and activities (RRBs). - Fail to follow a point and/or share expression - Failto point to “comment” Etiology: (2) Although ASDs are heritable neurodevelopmental - Failtorespondtoname conditions with strong genetic underpinnings, their exact - Selective hearing etiology is unknown. The etiology is multifactorial with a variety - Less imitation of genetic and, to a lesser extent, environmental factors Later years playing a role. ASDs can be either idiopathic or associated with - Difficulty sharing the emotional state of others in other diagnoses; most are idiopathic. cooperative -
Caring for Children with Disabilities and Other Special Needs Important?
Children with Disabilities and Other Special Needs First Edition, 2006 California Childcare Health Program Administered by the University of California, San Francisco School of Nursing, Department of Family Health Care Nursing (510) 839-1195 • (800) 333-3212 Healthline www.ucsfchildcarehealth.org Funded by First 5 California with additional support from the California Department of Education Child Development Division and Federal Maternal and Child Health Bureau. This module is part of the California Training Institute’s curriculum for Child Care Health Consultants. Acknowledgements Th e California Childcare Health Program is administered by the University of California, San Francisco School of Nursing, Department of Family Health Care Nursing. We wish to credit the following people for their contributions of time and expertise to the development and review of this curriculum since 2000. Th e names are listed in alphabetical order: Main Contributors Abbey Alkon, RN, PhD Jane Bernzweig, PhD Lynda Boyer-Chu, RN, MPH Judy Calder, RN, MS Lyn Dailey, RN, PHN Robert Frank, MS Lauren Heim Goldstein, PhD Gail D. Gonzalez, RN Susan Jensen, RN, MSN, PNP Judith Kunitz, MA Mardi Lucich, MA Cheryl Oku, BA Pamm Shaw, MS, EdD Marsha Sherman, MA, MFCC Eileen Walsh, RN, MPH Sharon Douglass Ware, RN, EdD Rahman Zamani, MD, MPH Additional Contributors Robert Bates, Vella Black-Roberts, Judy Blanding, Terry Holybee, Karen Sokal-Gutierrez Outside Reviewers, 2003 Edition Jan Gross, RN, BSN, Greenbank, WA Jacqueline Quirk, RN, BSN, Chapel Hill, NC Angelique M. White, RNc, MA, MN, CNS, New Orleans, LA CCHP Staff Ellen Bepp, Robin Calo, Catherine Cao, Sara Evinger, Joanna Farrer, Krishna Gopalan, Maleya Joseph, Cathy Miller, Dara Nelson, Bobbie Rose, Griselda Th omas, Kim To, Mimi Wolff Graphic Designers Edi Berton (2006), Eva Guralnick (2001-2005) We also want to thank the staff and Advisory Committee members of the California Childcare Health Program for their support and contributions. -
Design and Development of a Soft Pediatric Support
DESIGN AND DEVELOPMENT OF A SOFT PEDIATRIC SUPPORT GARMENT FOR ANKLE-FOOT ORTHOSES WEARERS by Danielle A Civil A thesis submitted to the Faculty of the University of Delaware in partial fulfillment of the requirements for Master of Science in Fashion and Apparel Studies Spring 2019 © 2019 Danielle Civil All Rights Reserved DESIGN AND DEVELOPMENT OF A SOFT PEDIATRIC SUPPORT GARMENT FOR ANKLE-FOOT ORTHOSES WEARERS by Danielle A Civil Approved: __________________________________________________________ Michele Lobo, PT, Ph.D. Professor in charge of thesis on behalf of the Advisory Committee Approved: __________________________________________________________ Huantian Cao, Ph.D. Interim Chair of the Department of Fashion and Apparel Studies Approved: __________________________________________________________ John Pelesko, Ph.D. Interim Dean of the College of Arts and Sciences Approved: __________________________________________________________ Douglas J. Doren, Ph.D. Interim Vice Provost for Graduate and Professional Education ACKNOWLEDGMENTS Throughout the course of this research and my master’s program, I have received an incredible amount of support, guidance, and assistance. I would first like to thank my advisor Dr. Michele Lobo whose guidance and expertise was incredibly invaluable. I am extremely appreciative of her support and encouragement throughout this process and so inspired by her passion and drive to help children. I’d also like to thank the rest of my committee, Dr. Huantian Cao and Dr. Karin Grävare Silbernagel, for their expertise and feedback that made my research stronger. Thank you so much to the Move To Learn lab team who has offered an incredible amount of support to me during the span of this research. Specifically, thank you to Andrea Cunha for your helpful contributions to the functional testing and data analysis; her expertise, hard work, and kindness was invaluable throughout the duration of this research. -
Choosing the Right Words
Nicole Koester “Choosing the NCDJ, Program Manager Walter Cronkite School of Journalism Right Words” and Mass Communication, Arizona State University “Until we learn to appreciate the power of language and the importance of using it responsibly, we will continue to produce negative social consequences for those victimized by dangerous language habits.” J. Dan Rothwell, Telling It Like It Isn’t: Language Misuse and Malpractice/ What We Can Do About It Our responsibility Use relevant disability terms that are: ● Accurate ● Objective ● Fair ● Neutral ● Respectful & Inclusive “Are we ‘handicapped’ or ‘disabled,’ ‘disabled people’ or ‘people with disabilities,’ ‘differently abled’ or ‘special needs?’” My Journey with Disability Language and Identity Andrew Pulrang, disability blogger, co-coordinator of #CripTheVote Monday, April 10, 2017 The disability community is not monolithic How has the disability language conversation evolved in the United States? Prior to 1960’s acceptable terms: idiot, imbecile, moron, crippled, lame, handicap 1970’s-1980’s disability advocacy expands along with the civil rights movement “People with disabilities” starts replacing “handicap” Source: http://www.disabilitymuseum.org/ 1990 - The “Capitol Crawl” and Americans with Disabilities Act On July 26, 1990, the Americans with Disabilities Act of 1990 was signed into law by President George H.W. Bush. “Spread the Word to End the Word” 2009 Disability Advocacy Campaign encouraging people to stop using the R-word – retard(ed) Rosa’s Law ● President Obama signs October, 5 2010 ● U.S. law that replaces several instances of “mental retardation” with “intellectual disability” in federal health, labor and education statutes. People-first language vs. Identity-first language People-first language Puts the emphasis on the person first; followed by a description of the disability. -
Fragile X Syndrome
AUCD Annual Conference Research Symposium The Rapidly Changing Landscape of Fragile X Elizabeth Berry-Kravis MD PhD Rush University Medical Center Disclosures: EBK has received funding from Neuropharm LTD, Seaside Therapeutics , Novartis and Roche Pharmaceuticals to consult on trial design and conduct clinical trials in FXS Features of Fragile X Syndrome • Physical: large prominent ears, long face, large head, prominent jaw and forehead, midfacial hypoplasia hyperflexible joints, large testis • Intellectual Disability or LD • Behavior problems: hyperactivity distractibility, anxiety, perseveration • Autism: 18-36% AD, 43-67% ASD • Seizures – 15% • Strabismus – 30% • Medical: otitis, sinus, MVP, reflux, sleep apnea, loose stools, allergies FXS Treatment in Clinic - Rush FXS Clinic since 1992 > 450 patients Supportive • Aggressive tx of otitis – • Early intervention tubes/audiology • Intensive speech therapy • Manage sleep apnea – • OT with sensory integration T&A • Inclusion in school as much • Treat sleep dysregulation as possible – melatonin/medications • Educational curriculum, • Yearly eye exams – environment, teaching style patching, surgery, glasses matched to FXS cognitive • Control seizures profile • Orthopedics if needed • Socialization program • Monitor for MVP/heart • Behavior plan • Genetic counseling • Behavior medications for • Discuss reproductive ADD/anxiety options Seizures in Fragile X Syndrome – Recent and Largest Study National Fragile X Survey 1394 FXS full mutation (1090 M, 304 F) 173 (12%) seizures: 154 (14%) -
Hypotonia Surestep Product Catalog Page 29 in Step with Pediatric Hypotonia
SPECIAL EDUCATIONAL SERIES DIAGNOSTIC INSIGHTS ANALYZING GAIT CHANGES GROSS MOTOR SKILLS ORTHOTIC MANAGEMENT CLI N I CAL CASE STUDIES Sponsored by an educational grant from: In Step With Pediatric Hypotonia SureStep Product Catalog Page 29 In Step With Pediatric Hypotonia Contents VIEWPOINT FROM THE EDITOR: An Unexpected Path, Mobility and More an Invaluable Perspective At the most basic level, mobility is about get- PAGE 3 ting from point A to point B. But, for many children with hypotonia, it’s about so much 4 more. FEATURES It’s about independence. It’s about con- fidence. It’s about maintaining strength, fit- ness, and healthy bones. It’s about not being Understanding Hypotonia excluded from activities enjoyed by their PAGE 4 typically developing peers. And improved mobility may have even Gait: The Cornerstone more benefits in those children whose hy- potonia is associated with social and behav- of Intervention ioral developmental delays. New research PAGE 8 has identified an association between motor skills and sociobehavioral milestones in chil- 8 The Importance of Gross dren with autism spectrum disorder, who often present with hypotonia (see “The Im- Motor Skills portance of Gross Motor Skills,” page 12). PAGE 12 This suggests that early intervention to improve gross motor skills—including or- thotic devices and physical therapy—may Orthotic Solutions for also help certain children interact more Children with Hypotonia comfortably with others. That won’t come as PAGE 16 a surprise to the clinicians and parents who 12 have personally seen it happen. This special issue is filled with evidence- Orthotic Success Stories: based information and personal success sto- Four Cases in a Series ries illustrating how effective interventions can enhance mobility in children with hy- PAGE 20 potonia. -
The Fragile X Syndrome and Infantile Autism: a Prevalence Study Brian Herb Annex Yale University
Yale University EliScholar – A Digital Platform for Scholarly Publishing at Yale Yale Medicine Thesis Digital Library School of Medicine 1985 The fragile X syndrome and infantile autism: a prevalence study Brian Herb Annex Yale University Follow this and additional works at: http://elischolar.library.yale.edu/ymtdl Recommended Citation Annex, Brian Herb, "The fragile X syndrome and infantile autism: a prevalence study" (1985). Yale Medicine Thesis Digital Library. 2345. http://elischolar.library.yale.edu/ymtdl/2345 This Open Access Thesis is brought to you for free and open access by the School of Medicine at EliScholar – A Digital Platform for Scholarly Publishing at Yale. It has been accepted for inclusion in Yale Medicine Thesis Digital Library by an authorized administrator of EliScholar – A Digital Platform for Scholarly Publishing at Yale. For more information, please contact [email protected]. YALE MEDICAL LIBRARY Permission for photocopying or microfilming of " TU (title of thesis) tr for the purpose of individual scholarly consultation or refer¬ ence is hereby granted by the author. This permission is not to be interpreted as affecting publication of this work, or otherwise placing it in the public domain, and the author re¬ serves all rights of ownership guaranteed under common law protection of unpublished manuscripts. (Signature of author) (Printed name) (Date) Digitized by the Internet Archive in 2017 with funding from The National Endowment for the Humanities and the Arcadia Fund https://archive.org/details/fragilexsyndromeOOanne The Fragile X Syndrome and Infantile Autism A Prevalence Study A Thesis Submitted to the Yale University School of Medicine in Partial Fulfillment of the Requirements for the degree of Doctor of Medicine by Brian Herb Annex 1985 Acknowledgments I would like to express my sincere appreciation to all those who advised and assisted me in this thesis project. -
Learning Disability
Learning Disability Distributed By: Maine Parent Federation PO Box 2067 Augusta, Maine 04338 1-800-870-7746 (Maine Only) 207-588-1933 Email: [email protected] Online community: www.mpf.org Original: 01/2000 Updated: 05/2017 Learning Disability Information Disclaimer The purpose of the information packet is to provide individuals with reader friendly information. We believe that a good overview is a realistic one. For this reason we have included a variety of information that may include the more difficult characteristics of a diagnosis or topic along with medical, educational and best practice information. All information contained in this packet is for general knowledge, personal education and enrichment purposes. It is not intended to be a substitute for professional advice. For specific advice, diagnosis and treatment you should consult with a qualified professional. When this packet was developed, Maine Parent Federation made every effort to ensure that the information contained in this packet was accurate, current and reliable. Packets are reviewed and updated periodically as changes occur. 09/2011 Disclaimer The contents of this Information Packet were developed under a grant from the US Department of Education, #H328M110002. However, those contents do not necessarily represent the policy of the US Department of Education, and you should not assume endorsement by the Federal Government. Project Officer, Marsha Goldberg. 1 Distributed by Maine Parent Federation 1-800-870-7746 www.mpf.org 05/2017 Learning Disability Table of Content Learning Disabilities (LD) 3 Supports, Modifications, and Accommodations for Students 10 State Resources 15 National Resources 16 Library Materials 17 2 Distributed by Maine Parent Federation 1-800-870-7746 www.mpf.org 05/2017 Learning Disability Learning Disabilities (LD) A legacy resource from NICHCY Disability Fact Sheet 7 (FS-7) January 2011 | Links updated, July 2015 Sara’s Story When Sara was in the first grade, her teacher started teaching the students how to read. -
The Fragile X Syndrome–Autism Comorbidity: What Do We Really Know?
REVIEW ARTICLE published: 16 October 2014 doi: 10.3389/fgene.2014.00355 The fragile X syndrome–autism comorbidity: what do we really know? Leonard Abbeduto 1,2*, Andrea McDuffie 1,2 and Angela John Thurman 1,2 1 MIND Institute, University of California, Davis, Sacramento, CA, USA 2 Department of Psychiatry and Behavioral Sciences, University of California, Davis, Sacramento, CA, USA Edited by: Autism spectrum disorder (ASD) is a common comorbid condition in people with fragile Anne C. Wheeler, Carolina Institute X syndrome (FXS). It has been assumed that ASD symptoms reflect the same underlying for Developmental Disabilities; University of North Carolina at psychological and neurobiological impairments in both FXS and non-syndromic ASD, which Chapel Hill, USA has led to the claim that targeted pharmaceutical treatments that are efficacious for core Reviewed by: symptoms of FXS are likely to be beneficial for non-syndromic ASD as well. In contrast, we Molly Losh, Northwestern present evidence from a variety of sources suggesting that there are important differences University, USA in ASD symptoms, behavioral and psychiatric correlates, and developmental trajectories Dejan Budimirovic, Kennedy Krieger Institute/The Johns Hopkins between individuals with comorbid FXS and ASD and those with non-syndromic ASD. We University, USA also present evidence suggesting that social impairments may not distinguish individuals *Correspondence: with FXS with and without ASD. Finally, we present data that demonstrate that the Leonard Abbeduto, MIND Institute, neurobiological substrates of the behavioral impairments, including those reflecting core University of California, Davis, 2825 ASD symptoms, are different in FXS and non-syndromic ASD. Together, these data suggest 50th Street, Sacramento, CA 95817, USA that there are clinically important differences between FXS and non-syndromic ASD e-mail: leonard.abbeduto@ucdmc.