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Work Package 6 Policy Watch High Level Policy Forum Report 2

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Work Package 6 Policy Watch High Level Policy Forum Report 2 WORK PACKAGE 6 POLICY WATCH HIGH LEVEL POLICY FORUM REPORT 2 ASSET Project • Grant Agreement N°612236 ASSET Action plan on SiS related issues in Epidemics And Total Pandemics 7th RTD framework programme Theme: [SiS.2013.1.2-1 Sis.2013.1.2-1] Responsible partner: TIEMS Contributing partners: ISS, DBT, FFI, NCIPD, EIWH Nature: Report Dissemination: PU Contractual delivery date: 2016-12-31 (m36) Submission Date: 2016-12-31 This project has received funding from the European Union’s Seventh Framework Programme for research, technological development and demonstration under grant agreement no 612236. This DOCUMENT MANAGEMENT PROJECT FULL TITLE Action plan on SiS related issues in Epidemics And Total Pandemics PROJECT ACRONYM ASSET Coordination and Support Action: project funded under Theme SiS.2013.1.2 “Mobilization and Mutual Learning (MML) Action Plans” GRANT AGREEMENT 612236 STARTING DATE 2014-1-1 DURATION 48 months D6.2 High Level Policy Forum Report 2 Task: 6.1 Leader: TIEMS – Other contributors: ISS, DBT,FFI,NCIPD,EIWH History of changes: Vn Status Date Organization / Person Reason for Change responsible V1 Draft 2016-2-1 TIEMS Draft for comment V2 Interim 2016-2-10 TIEMS Report of activities through January 2016 V3 Draft 2016-12-31 TIEMS Draft Report of activities through December 2016 V4 Final 2017-1-26 TIEMS Final Deliverable D6.2 2 Table of Contents EXECUTIVE SUMMARY .................................................................................................................................... 4 1. INTRODUCTION .............................................................................................................................................. 5 2. FORUM ACTIVITY REPORT July 2015 THROUGH DECEMBER 2016 ..................................................... 6 2.1 Recruiting HLPF Members and Partnerships ............................................................................................... 6 2.2 HLPF Logical Framework ............................................................................................................................ 6 2.3 ASSET Strategic Plan ................................................................................................................................... 6 2.4 Roadmap to Open and Responsible Research and Innovation in Pandemics ............................................... 7 2.5 Second Forum Meeting ................................................................................................................................. 8 3. FORUM PARTICIPANT LIST AND TERMS OF REFERENCE ................................................................... 8 3.1 Forum Participants ........................................................................................................................................ 8 HLPF Members ............................................................................................................................................... 8 Participants in the January 15th Meeting ......................................................................................................... 8 3.2 Terms of Reference ....................................................................................................................................... 9 4. APPROVED MINUTES OF FORUM MEETING JANUARY 15, 2016 ......................................................... 9 4.1 Agenda .......................................................................................................................................................... 9 4.2 Meeting Summary and Discussion Notes ................................................................................................... 10 5. CONCLUSIONS AND RECOMMENDATIONS ........................................................................................... 16 ANNEXES ........................................................................................................................................................... 18 Annex 1 Updated Introduction to the HLPF ............................................................................................ A1-1 Annex 2 ASSET Work Package 6 Form 1 ............................................................................................... A2-1 Annex 3 HLPF Terms of Reference ......................................................................................................... A3-1 Annex 4 Opening and Welcome .............................................................................................................. A4-1 Annex 5 Minutes of the First HLPF Meeting .......................................................................................... A5-1 Annex 6 HLPF Terms of Reference (TOR) ............................................................................................. A6-1 Annex 7 ASSET Progress and Strategic Plan .......................................................................................... A7-1 Annex 8 Gender Issues in Pandemics and Epidemics ............................................................................. A8-1 Annex 9 Citizen Participation .................................................................................................................. A9-1 Annex 10 ASSET and the Lessons Learned from Ebola ........................................................................ A10-1 Annex 11 Decision 1082/2013 EU ......................................................................................................... A11-1 Annex 12 Académie Diplomatique Internationale .................................................................................. A12-1 Annex 13 HLPF Dialog Between Meetings ............................................................................................ A13-1 Annex 14 ASSET 2016 Citizen Consultation Summary ........................................................................ A14-1 Annex 15 ASSET 2016 Ethical Issues in Preparedness Plans ................................................................ A15-1 Annex 16 Vaccine Refusal Revisited – The Limits of Public Health Persuation and Coercion............. A16-1 Annex 17 ASSET 2016 HLPF Topic 1 ................................................................................................... A17-1 3 EXECUTIVE SUMMARY This is the report of the activities from July 2015 through December 2016 of the High Level Policy Forum (HLPF) established under Task 6.1 of the ASSET program. This report contains the minutes of the second physical HLPF meeting held in Copenhagen on Friday January 15, 2016 (Section 4 below), the HLPF Terms of Reference (Annex 3), which were discussed during the meeting, and a description of activities from July 2016 through December 2016. This period saw continuing expansion of the HLPF membership. At the time of this report there are 13 HLPF members, representing Norway, Sweden, UK, Denmark, Italy, France, Israel, Bulgaria, Luxembourg, Romania, and Ireland. We have requested ASSET partners to recruit members from Switzerland and Greece. We continue to place a high priority on expanding HLPF membership to more broadly represent member states, and to engage a wider range of stakeholder sectors, such as the pharmaceutical industry, networks of general practitioners, and associations of consumers. While the basic vision of the HLPF was clear at the first HLPF meeting, and the value of the forum evident, there was a question at that time of how best to focus the activities of the HLPF, given the wide range of issues associated with pandemic preparedness, and the large number of organizations and projects in Europe that are working in this area. In the period prior to the second HLPF meeting, the ASSET program produced new results that provide a focus for the activities of the HLPF, including a Strategic Plan and a Roadmap for research and innovation. These two documents identify requirements for specific HLPF activities, including consultation, review, and endorsement of ASSET results and plans. These requirements have been reflected in the HLPF Terms of Reference (Annex 3), which was approved by the HLPF members during the approval of the minutes for the second ASSET HLPF meeting. Discussions that took place during the second HLPF meeting confirmed the value of the forum. For example, a presentation on gender issues brought out how low vaccine uptake among women, especially pregnant women, is a significant problem across Europe. During the discussion, the attendees learned that Norway has managed to achieve high vaccine uptake among women, including pregnant women, opening the way for sharing lessons learned that might have a significant impact in Europe. Four members of the ASSET/HLPF team were invited by DG Santé to participate in a conference “Lessons Learned from the Ebola Outbreak in West Africa – How to Improve Preparedness and Response in the EU for Future Outbreaks”. This conference, held 12-14 October 2015 in Luxembourg, proved to be not only an excellent opportunity to gain valuable insights and contribute to workshops to inform EU Health Council Conclusions, but also a chance to talk about ASSET and HLPF activities and explore collaboration and membership with the 350 participants from all over the EU. The third and last physical meeting of the ASSET HLPF is now agreed to take place in Brussels 28th of April 2017, at Norway House, Rue Archimede 17, 1000 Brussels. Since the ASSET Consortium meeting will take place the same week in Brussels, we expect representatives from all partners in ASSET to
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