The Roald Dahl Museum and Story Centre

Total Page:16

File Type:pdf, Size:1020Kb

The Roald Dahl Museum and Story Centre Conveying Literature in the Museum: The Roald Dahl Museum and Story Centre Nora Hawich Literaturmuseen stehen einer besonderen Herausforderung gegenüber, da Charaktere und Geschichten erst im Kopf der Leserinnen und Leser lebendig werden. Wie kann man also Literatur ausstellen – jenseits von Schaukästen mit ver- staubten Originalausgaben? Nora Hawich (Berlin) hat das Roald Dahl Museum and Story Centre in Great Missenden, England, als Beispiel für ein gelungenes Literaturmuseumskonzept ausgewählt. Sie beschreibt in ihrem Artikel das Museum, sein Anliegen und die vielseitigen interaktiven Stationen, die Besucher erkunden können. Museum concepts and practices draw their own conclusions.”2 Fit- are the consequence of various ting Jordan’s description extremely processes and have changed sig- well, the Roald Dahl Museum and nificantly since the late 1980s. Story Centre is one example of Acknowledging the museum as this ongoing progress within the part of the service sector as well field of literary museums. as its educational and social im- “It smells like chocolate!” “Did portance for the public influenced you see the mouse in the jar?” “Ew and shaped literature museums is that his hipbone?” “Look, there just as much as the traditional is an airplane!” Exclamations like forms, perhaps even more. Often these are no rarity in the colour- ignored in favour of the “more” ful museum situated at the High visual arts, science, and history Street of Great Missenden, a vil- museums, literary museums face lage in England where for over 35 several challenges in legitimising years some of the most famous their exhibitions. Experts in the children’s stories of the United field of museum studies describe Kingdom were written. Charlie the literature museum as a special and the Chocolate Factory, Matilda case due to the problems of visual- and The Fantastic Mr. Foxare just ising something as abstract as liter- a selection of the books emerg- ature. The reason for the attribute ing from Great Missenden. Their “problematic” is based on the as- author, Roald Dahl (1916-1990), sumption that literature museums loved the village that lies within can only rely on literary texts, for a 45-minute distance from Lon- example books or manuscripts, don and often drew inspiration as exhibition objects. However, Looking into Roald Dahl’s original writing hut for his stories from it. The small, trends in museum practice such colourful museum on the High as the use of different modes of repre- sion. Lothar Jordan, President of the Street was established in his honour sentation besides the “authentic” object International Committee for Literary and opened in 2005. The Roald Dahl have helped literature museums to han- Museums (ICLM), explains that “the Museum is a charity. The idea for the dle perceived disadvantages, particular- literary museum will always be a more museum developed after Roald Dahl’s ly, the problem of visuality. problematic genre than the art mu- death when his wife Felicity Dahl tried As museums are on the path of be- seum”, though, “[f]resh new concepts to find a place for the author’s archive coming essentially about ideas and are being developed that emphasize to be kept together. Since Dahl was in- not objects1, new literature museums presentation, make the most of multi- tent on promoting the love of reading present themselves as centres of com- media technology and integrate other to children, the museum aims at en- munication, interpretation and discus- art forms, and visitors are often left to couraging children between 6 and 12, Hard Times – Nr. 94 (Herbst 2014) 29 The Roald Dahl Museum and Story Centre along with their families, to discover Visualising Literature in the tured around three galleries, with the the joy of literature. This way, the mu- Museum first two rooms, Boy and Solo, focussing seum hopes to continue Dahl’s achieve- So how do you visualise literature? on Roald Dahl’s life and the third, the ments of making children fall in love Creativity is a key word and one that Story Centre, dealing with his work as with books. characterises the Roald Dahl Museum a writer. The Boy and Solo Gallery owe and Story Centre. As a children’s mu- their names to two autobiographies by A Lesson from Literature: Telling seum, it aims at stimulating the imagi- Roald Dahl. TheBoy Gallery is about Stories in the Museum nation of its small visitors right away. his early life in Wales, his family and his Museums fulfil a vital role in extracur- In order to help this process along, the adolescence in boarding schools. In or- ricular and individual learning con- museum design tries to recreate the at- der to connect the life of the visitors with cepts. As one of the most important mosphere of the books. The front of the life of a young man living in Britain public learning institutions nowadays, the house depicts one of Roald Dahl’s shortly before the Second World War, museums aspire to offer an educational most famous characters, the BFG – also the walls of the Boy Gallery are filled experience to a more and more diversi- known as the Big Friendly Giant – on with little short stories extracted from fied audience. Accordingly, many mu- a light blue background. The courtyard Dahl’s autobiography. Accompanied by seums have been refurbished in the last invites people in through customised big comics or enlarged photos, these ten years, opening new exhibitions that gates that Warner Brother’s made for stories talk about Dahl’s experiences as embrace modern education concepts the museum after shooting the recent a big brother, practising his target skills in order to connect with the public. Museums now aim at sharing as well as discussing knowledge, relating their in- formation material on display with the personal lives of their visitors. In order to achieve that, they engage in a com- municative act that has been familiar to humans since the earliest of times: storytelling. The telling of stories is a natural part of day-to-day communication. Re- search suggests that telling stories with and in exhibitions enhances the expe- rience of the museum visit, making it one of the most useful education mod- els in the museum context. Museums establish stories around their objects or information and use narrative struc- Inside Roald Dahl’s Writing Hut, Solo Gallery tures in order to guide audiences and to kick-start their imagination. As cura- tors and educators provide storylines by version of Charlie and the Chocolate on his little sisters, or they are about his developing exhibitions, audiences con- Factory. And inside the museum corri- preferred teacher at boarding school. nect the presented stories to their socio- dor, visitors find the enormous croco- One favourite amongst young visitors cultural knowledge as well as their own dile, another character of Roald Dahl’s. is “The Great Mouse Plot,” a prank in life. As a result, the concept of story- Even though the museum is traditional which the young Roald Dahl put a dead telling in museums, although already in layout – the estate comprises of three mouse in a candy jar of the candy shop employed in earlier times, experiences a galleries, a project room, a lunchroom, owner Mrs. Pratchett. Further gadgets, new popularity. By providing informa- a museum shop, a courtyard, a café and like a real candy jar, including a mouse, tion and memory cues that can be con- office rooms – a creative exhibition set standing in the glass display beneath nected to personal life stories and expe- up can be found throughout all the gal- the story, encourage the children to ac- riences, museums offer narratives that leries. This is an important feature, as tually read the story written on the wall. help the visitors to understand contexts the museum wants to foster creativity Also, the Boy Gallery hopes to connect and processes. Furthermore, by creating in their visitors; and the exhibition de- with its audience by displaying letters exhibitions that encourage individual sign is a tool for doing so. In addition, of Roald Dahl to his mother, photos of paths, audiences can direct their own it is also one of many narrative devices his home and old school records. The museum experience and influence the the museum employs to visualise Roald latter, in particular, triggers recognition story of the visit according to their per- Dahl’s life and literature. and a sharing of experiences as most sonal interests. The Roald Dahl Museum is struc- visitors are familiar with school records 30 Hard Times – Nr. 94 (Herbst 2014) The Roald Dahl Museum and Story Centre Looking in the Mr Twit Mirror Teamwork at the Ideas Table and compare their results with those on of the writing hut in the Story Centre, Involving the audience into various display. Consequently, by telling stories enabling each visitor to sit in a writ- fun-activities is, in fact, an important about Dahl’s pranks or school experi- ing chair that is a replication of Roald aspect of the museum’s concept since ences, the museum encourages self-re- Dahl’s original one. active participation increases the visi- flection and informs about similarities tors’ attention span and enthusiasm. as well as differences in school between Installations and Interactive Exhibits This proves to be particularly effective the 1920s, 1930s and today. The children’s museum communicates for children as they learn whilst hav- A similar concept is used in the sec- with its audiences via various channels ing fun. Several other activities can be ond gallery of the museum, Solo, which such as audio- and video installations. found in all the galleries, such as the deals with the circumstances that led In the Solo Gallery, for instance, visi- fresco on the wall of Solo illustrating the to Dahl becoming an author after he tors can listen to an audio recording of different heights of characters in Roald left school.
Recommended publications
  • The Witches by Roald Dahl Book Report
    The Witches By Roald Dahl Book Report Multilinear or ancient, Clinton never fortresses any recycling! Is Farley pent-up when Stephan squiggles pleasurably? Horst recalculating decimally. Dim the lights, before they turn him into a mouse. BFG, dresses like a vampire vamp with stiletto heels, Roald Dahl was trying to fix his own childhood by having a boy live as a boy with a loving guardian for the rest of his life. Poetry Roald Dahl The Dentist and the Crocodile: ideal for National Poetry Day! Dahl introduced on camera all the episodes of the first two series, the tone is quite different. The boy busies himself constructing a tree house in a big conker tree in their garden. Simply set up an account at www. Instead of tugging viewers aside to offer a warning, page by page. He then started work for Shell as a salesman in Dar es Salaam. The Christian Science Monitor has expired. Death was a natural part of his childhood. Which makes the problem for years at school there he notes that dahl book! This story tells the tale of a Grandma and her grandson who travel to England to continue the boys education after the passing of his parents. The grand high witch has a cat in both versions. Anyone else read the book? So much of it is true to form. True Stories of Girlhood and Accidental Fame, however, but it stuck with me for years. At one point, but her pet cat Salem ate them! Idiosyncrasies essay help Idiosyncrasies essay help Coursework declaration sheet zero, Fantastic Mr Fox, and he carefully scrutinizes all women to determine whether they might be witches.
    [Show full text]
  • The Delightful Mr. Dahl by Jordan Thibadeaux from the Magazine Read Now!
    2015-16 Grade 4-Reading-Quarter 4/Summative EN Read each selection. Then choose the best answer to each question. The fourth grade students are writing a report about Roald Dahl, a well-known author of children’s books. They gathered information from the following resources. The Delightful Mr. Dahl by Jordan Thibadeaux From the Magazine Read Now! 1 Many people discover Roald Dahl through his stories and poems. His books are translated into several languages. He has also inspired TV and radio shows and movies. With his help, kids all over the world imagine strange candies, friendly giants, and awful villains. Indeed, Roald Dahl led a life full of adventure. Yet, he had other interests, too. More Than Just Words: The Roald Dahl Foundation 2 Roald Dahl became interested in helping people who had serious injuries and diseases. As a writer, Roald cared about helping children read more. To carry out these goals, his family set up the Roald Dahl Foundation. The foundation helps people, hospitals, and charities by giving money for medical and educational needs. It continues the spirit of giving that Roald Dahl expressed throughout his life. Stories For All Ages: The Roald Dahl Museum and Story Center 3 Roald Dahl’s widow, Felicity Dahl, wanted to set up a central place to protect all of Roald’s writings. She helped create the Roald Dahl Museum and Story Center in Buckinghamshire, England. It holds a collection of Roald’s writings and recordings for the public to review. His personal letters and postcards are found there, as well as photographs and many of his awards.
    [Show full text]
  • Partners in Health in Neno District, Malawi
    C ASES IN G LOBAL H EALTH D ELIVERY GHD-029 JULY 2013 Partners In Health in Neno District, Malawi In May 2012, Ophelia Dahl, cofounder and executive director of Partners In Health (PIH), an international health nongovernmental organization (NGO), was preparing for the Board of Directors’ meeting. On the agenda was an in-depth review of Abwenzi Pa Za Umoyo (the translation of “Partners In Health” in Chichewa; APZU), PIH’s sister site in Neno District, Malawi. Dahl reflected on her two trips to Neno, the first in 2008 and the second in 2011. She recalled how, in 2008, she had traveled for hours along a worn-out dirt road and visited public health clinics that seemed neglected. In fact, the district as a whole seemed abandoned. In 2011, she visited Neno’s lively primary school, ate at a local restaurant, and got cash out of an ATM machine. With limited primary data from the field, Dahl wondered how to demonstrate the changes that had occurred during this time period to the Board of Directors. What was APZU’s impact? Overview of Malawi The Republic of Malawi is a landlocked, democratic country in southeastern Africa and one of the most densely populated on the continent (see Exhibit 1 for map of Malawi). Zambia, Tanzania, Mozambique, and Lake Malawi border Malawi’s 118,484 square kilometers. Major religions are Christianity (82.7%) and Islam (13%).1 Official languages are English and Chichewa. History The arrival of Scottish missionary and explorer David Livingstone in 1859 marked present-day Malawi’s first significant Western contact.
    [Show full text]
  • The Apology | the B-Side | Night School | Madonna: Rebel Heart Tour | Betting on Zero Scene & Heard
    November-December 2017 VOL. 32 THE VIDEO REVIEW MAGAZINE FOR LIBRARIES N O . 6 IN THIS ISSUE One Week and a Day | Poverty, Inc. | The Apology | The B-Side | Night School | Madonna: Rebel Heart Tour | Betting on Zero scene & heard BAKER & TAYLOR’S SPECIALIZED A/V TEAM OFFERS ALL THE PRODUCTS, SERVICES AND EXPERTISE TO FULFILL YOUR LIBRARY PATRONS’ NEEDS. Learn more about Baker & Taylor’s Scene & Heard team: ELITE Helpful personnel focused exclusively on A/V products and customized services to meet continued patron demand PROFICIENT Qualified entertainment content buyers ensure frontlist and backlist titles are available and delivered on time SKILLED Supportive Sales Representatives with an average of 15 years industry experience DEVOTED Nationwide team of A/V processing staff ready to prepare your movie and music products to your shelf-ready specifications Experience KNOWLEDGEABLE Baker & Taylor is the Full-time staff of A/V catalogers, most experienced in the backed by their MLS degree and more than 43 years of media cataloging business; selling A/V expertise products to libraries since 1986. 800-775-2600 x2050 [email protected] www.baker-taylor.com Spotlight Review One Week and a Day and target houses that are likely to be empty while mourners are out. Eyal also goes to the HHH1/2 hospice where Ronnie died (and retrieves his Oscilloscope, 98 min., in Hebrew w/English son’s medical marijuana, prompting a later subtitles, not rated, DVD: scene in which he struggles to roll a joint for Publisher/Editor: Randy Pitman $34.99, Blu-ray: $39.99 the first time in his life), gets into a conflict Associate Editor: Jazza Williams-Wood Wr i t e r- d i r e c t o r with a taxi driver, and tries (unsuccessfully) to hide in the bushes when his neighbors show Editorial Assistant: Christopher Pitman Asaph Polonsky’s One Week and a Day is a up with a salad.
    [Show full text]
  • Grade 4 English Language Arts Practice Test
    Grade 4 English Language Arts Practice Test For further information, contact: Louisiana Department of Education’s Help Desk 1-877-453-2721 Ask LDOE? http://www.louisianaschools.net/offices/publicaffairs/ask.aspx This public document was published at a cost of $6,000.00. This Web-only document was published for the Louisiana Department of Education, Office of Standards, Assessments, and Accountability, Division of Assessments and Accountability, P.O. Box 94064, Baton Rouge, LA 70804-9064, by Data Recognition Corporation, 13490 Bass Lake Road, Maple Grove, MN 55311. This material was printed in accordance with the standards for printing by State Agencies established pursuant to R.S. 43:31. © 2012 by Louisiana Department of Education LEAP Practice Test—Grade 4 English Language Arts Test Administrator Instructions This document contains a Practice Test that shows what each part, or session, of the actual grade 4 transitional English Language Arts assessment is like. The Practice Test may be used at home or at school for students to become familiar with the LEAP test they will take in spring 2013. It can help students feel more relaxed when they take the actual test. Some sessions of the Practice Test are shorter than those on the actual test. The LEAP Assessment Guides (http://www.doe.state.la.us/topics/assessment_guides.html) provide information on the number of questions that are on the actual test. The Content and Style rubrics for scoring student responses to the writing prompt are located on pages 43 and 44. For more information about what sample work looks like for a grade 4 writing prompt, use the Sample Student Work (Grades 3–8) document, found on the LDOE website at http://www.doe.state.la.us/topics/writing_prompts.html The English language arts test has four sessions to be taken separately: Session 1: Writing (pages 2 to 7) includes a passage and a Writing Topic; a planning sheet for notes, brainstorming, and/or writing an outline; and two Rough-Draft pages.
    [Show full text]
  • 25YEARS of INNOVATION and IMPACT
    CELEBRATING • of INNOVATION 25 YEARS and IMPACT 1987 1988 1989 1990 1991 1992 1993 1994 1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009 2010 2011 2012 ANNUAL REPORT SAVING LIVES, Twenty-five years ago, Partners In Health was founded to support a tiny health clinic serving a destitute squatter settlement in rural Haiti. Today, the community- REVITALIZING COMMUNITIES, based approach used in Cange has helped to transform global health, and Partners In Health continues to provide high-quality health care to poor people in Haiti and TRANSFORMING GLOBAL HEALTH. nine other countries, including the United States. Cover: A community health worker vaccinates a woman in rural Haiti. Above: Pregnant women stay at a mothers’ waiting house to deliver their babies in a clinic with skilled attendants. Photo by Jon Lascher Photo by Charles Howes EXECUTIVE DIRECTOR’S MESSAGE Dear Friends, In 2012, we celebrated our 25th year In 25 years, we’ve treated millions of patients and proved that at Partners In Health. As we look back complex treatments can be delivered effectively in settings of across the span of a quarter-century, poverty. We’ve developed the infrastructure necessary to deliver Paul Farmer and I are proud of what high-quality care: hospitals and community health facilities and PIH has accomplished in Haiti, Rwanda, the pharmacies, supply chains, and medical technologies to Boston, and beyond, as a beacon of support them. Globally, we’ve insisted that we look more closely what is possible in service to the poor. at the notion of cost, whether for a drug or an intervention, when it We feel lucky to still be doing this work impedes the delivery of lifesaving care.
    [Show full text]
  • Mountains Beyond Mountains
    Mountains Beyond Mountains by Tracy Kidder - MonkeyNotes by PinkMonkey.com The full study guide is available for download at: http://monkeynote.stores.yahoo.net/ PinkMonkey Literature Notes on . http://monkeynote.stores.yahoo.net/ Sample MonkeyNotes Note: this sample contains only excerpts and does not represent the full contents of the booknote. This will give you an idea of the format and content. Mountains Beyond Mountains The Quest of Paul Farmer, A Man Who Would Cure the World by Tracy Kidder 2003 MonkeyNotes Study Guide by Diane Clapsaddle http://monkeynote.stores.yahoo.net/ Reprinted with permission from TheBestNotes.com Copyright © 2007, All Rights Reserved Distribution without the written consent of TheBestNotes.com is strictly prohibited. 1 TheBestNotes.com Copyright © 2007, All Rights Reserved. No further distribution without written consent. The full study guide is available for download at: http://monkeynote.stores.yahoo.net/ Mountains Beyond Mountains by Tracy Kidder - MonkeyNotes by PinkMonkey.com The full study guide is available for download at: http://monkeynote.stores.yahoo.net/ KEY LITERARY ELEMENTS SETTING Boston and Cambridge, Massachusetts; Cange, Mirebalais, and Port-au-Prince, Haiti; Lima, Peru;…… CHARACTER LIST MAJOR CHARACTERS Paul Farmer - Obviously the heart of the book, Farmer is an amazing individual whose shoes can be filled, but who can never be imitated. He has devoted his life to what he calls the long defeat. The odds of Haiti ever completely changing from a poor country are astronomical, but Farmer believes he must try to win. Tracy Kidder - He is the author of the book, but ever-present in it. He documents all the experiences he has with Paul Farmer from 1994 through 2003 while researching the other years of his work in Haiti and around the world.
    [Show full text]
  • 2016 Annual Report [PDF, 4
    1 WHERE WE WORK 2 4 ANNUAL REPORT 2016 We go. We make house calls. We build health systems. We stay. dear friends, When Partners In Health first responded to the government’s invitation to go to Rwanda, we weren’t thinking much about cancer. We certainly weren’t thinking of Contents it as a disease that we could treat effectively with our most basic infrastructure still in its infancy, in a country without a single oncologist, without diagnostic pathology, and with no available chemotherapy. But from the moment we opened our doors there, in 2005, cancer patients flooded Together in from all over—many of them children with advanced disease. It was an unusual position for PIH to find itself: our organization had grown used to running toward the We . We make . We build . We . go house calls health systems stay 4 fire, and now the fire was running toward us. We had to find a way to treat cancer where few had before. Snapshot One of our early patients was a 7-year-old boy named Sibo Tuyishimire. He’d spent two years feeling hopelessly ill before his family was able to bring him to our A look at our work in Liberia. 14 hospital. PIH doctors soon diagnosed him with Hodgkin’s lymphoma and set him on course to a full, if difficult, recovery. CEO Dr. Gary Gottlieb visits Peru for the site’s 20th anniversary celebration. You + Sibo was kind enough to drop by our Boston office over the holidays. Now, nearly Photo by William Castro Rodríguez a decade in remission, he’s applying to high school here in the U.S.
    [Show full text]
  • Streghe E Cioccolata La Narrativa Per Ragazzi Di
    STREGHE E CIOCCOLATO LA NARRATIVA PER RAGAZZI DI ROALD DAHL Donatella Lombello Autore e sceneggiatore Romanzi: • 1948 Sometime Never: a fable for Supermen sulla tragedia di Hiroscima (pubblicato in USA e UK) • 1979 My Uncle Oswald (Mio zio Oswald, 2013) Sceneggiature basate sui romanzi di Fleming: • 1967: Si vive solo due volte • 1968 : Chitty Chitty Bang Bang Sceneggiatura basata sul romanzo di Joy Cowley • 1971: The night Digger (interprete: Patricia Neal E inoltre: • 1971: Willy Wonka e la fabbrica di cioccolato I Gremlins • Nel 1943 Dahl scrive per bambini il romanzo I Gremlins da cui ricava una sceneggiatura per un progetto avviato con la Disney, che tuttavia non sarà realizzato • Chris Columbus ne trarrà ispirazione per la sceneggiatura del film Gremlins prodotto da Steven Spielberg nel 1984 Autore per ragazzi assai produttivo …specie dopo il secondo matrimonio (1983) 1. La pesca gigante (James and the giant peach, 1961), trad. di Mariarosa Giardina Zannini, ill. Emma Chichester Clark, Firenze, Salani, 1993 2. La fabbrica di cioccolato ( Charlie and the Chocolat Factory, 1964), ill di Q.Blake, trad. Di Riccardo Duranti, “Superistrici”, Firenze, Salani, 19881 3. Il dito magico (The magic finger 1966), Firenze, Salani, 1977, trad. di Mariarosa Giardini Zannini, ill.Quentin Blake 4. Il fantastico Papà Volpe (Fantastic Mr. Fox, 1970), tr. it Editrice Janus , Bergamo, Janus, 1984 Copertina Libico Maraja; ill Jill Bennett// Furbo, il signor Volpe, (Fantastic Mr Fox,1970), Firenze, Salani, 2016, trad. di Nina Ottogigli, ill.Quentin Blake 5. Il Grande Ascensore di Cristallo ( Charlie and the great glass elevator, 1972), trad. di Pier Francesco Paolini, Firenze, Salani, 1989 1 6.
    [Show full text]
  • Ted Ankara College Foundation High School
    View metadata, citation and similar papers at core.ac.uk brought to you by CORE provided by TED Ankara College IB Thesis D1129108 Huseyin Kagan Imamoglu TED ANKARA COLLEGE FOUNDATION HIGH SCHOOL INTERNATIONAL BACCALAUREATE DIPLOMA PROGRAM ENGLISH B EXTENDED ESSAY SESSION: MAY 2010 CANDIDATE NAME: HUSEYIN KAGAN IMAMOGLU CANDIDATE NUMBER: D1129108 SUPERVISOR: MERAL SEZGEN WORD COUNT: 3745 1 D1129108 Huseyin Kagan Imamoglu Abstract The reason why I decided to write an extended essay on English B, is because I was interested in the topic that I’ve chosen. I enjoy reading short stories, especially those that have a surprising ending. I find both O’Henry and Roald Dahl quite successful in their short stories. After reading many short stories of the two, I realized that there are some differences between the abovementioned writers. After outlining the differences, I decided to examine these in further detail. As explained in the extended essay, the main difference between the two writers is their use of characterization. Roald Dahl makes his characters’ traits quite obvious, whereas O’Henry chooses to convey this in between the lines. This difference, added with their style creates a difference in their short stories. Since O’Henry has a more closed tone compared to Roald Dahl, the surprise factor in their twisted endings also differs from each other. The main separation however is in their use of characterization. Three short stories by both writers have been chosen. The reason why these short stories have been chosen is because the differences between the writers mentioned above are quite clear in these short stories.
    [Show full text]
  • Celebrating-Rare-Disease-Day
    Supporter Newsletter Issue 5 - March 2016 Get-in-touch Marvellous-Nurse-Inventing- A-Day-in-the-Life-of-a- Space-Station-Builder Sam is seven and a half years old and he’s no ordinary boy. Sam is currently building a AsRoom part of our marvellous- partnership–-Voice with the Burdett -ofFaith- said,the “It’s a really-child welcome addition to Sophie’s care. space station which is rather marvellous and even more remarkable when you realise Trust for Nursing, we have been working with The Jessie Having the communication passport has given us the that Sam has as many as 20 seizures a day and up to 60 a week. May Trust: a charity that provides free hospice at home peace of mind that those caring for Sophie will also be care to families of terminally-ill children living in the South able to interpret those nonverbal cues. It has given us the News West of England. confidence to take true respite, safe in the knowledge Marvellous that Sophie is in the very best of care. Her needs and Whether you want to fundraise, The Voice of the Child project aims to capture and understand health change constantly and so the passport is a vital donate, apply for our help or ask the needs of children that are unable to communicate tool for helping Sophie’s carers to understand those us a question, get in touch with verbally using a ‘Communication Passport’. It’s a simple, changing needs day-to-day.” our team on the contact details paper-based tool that allows healthcare professionals to CelebratingThe 29th February was Rare Disease-Rare Day and to- celebrateDisease this rarest of- days,Day we below.
    [Show full text]
  • Partners in Health
    Social Enterprise Institute Social Enterprise Case Series Northeastern University Partners In Health Founded: 1987 by Dr. Paul Farmer Current Leader: Ophelia Dahl Location: HQ—Boston, MA Sector: Healthcare Services Website: www.PIH.org “Look how much they care about us” pect to be flown to Boston if they come to Zanmi Lasante when they‟re sick. In 2000, a young boy named John was brought to Dr. Paul Farmer at Zanmi Lasante (the Partners in The decision was made that as long as there was Health clinic in Cange, Haiti). John‟s age was un- a chance of survival, they had to do everything certain as his birth was undocumented, though he they could to save John‟s life. They finally got John was roughly 11 or 12 years to Boston and his care be- old. He had symptoms which gan immediately. As soon as indicated that he had tuber- he arrived, a team of radiol- culosis (TB) in the lymph ogists, pediatricians, and on- nodes of his neck; however, cologists examined John‟s x- there were a few anomalies rays, bone scans, and CT which made Farmer suspect scans for an hour. They that it might be cancer. found that the cancer had spread everywhere and that The news from tests sent to John was going to die. There Boston was bad: John had was no way of knowing nasopharyngeal carcinoma, an when they decided to try to save him. The ques- extremely rare cancer. However, when caught tion on everyone‟s mind was, “Why did we bring early, 60 to 70 percent of patients could be him here?” cured.
    [Show full text]