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Bring Me Sunshine’ Living Well with Dementia in North Yorkshire

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Bring Me Sunshine’ Living Well with Dementia in North Yorkshire Living Well With Dementia in North Yorkshire ‘Bring Me Sunshine’ Living Well With Dementia in North Yorkshire Signatories to the Living Well Contents with Dementia Strategy: Foreword . 4 Who are ‘we’? . 4 Purpose and scope of the North Yorkshire vision for dementia support . .5 What’s the Picture? . 6 Young Onset Dementia . 6 People with Learning disabilities . 7 Living with dementia and other health conditions . .8 Prevention . 8 Financial Impact - the national picture . 9 What else do we know? . 10 National Strategies . 10 Local Strategies . 12 Primary Care . 13 Secondary (hospital) Care . 14 York Teaching Hospitals - Craven District Council - Representing Mental Health Trusts representing acute hospital providers representing District Council members Overview of activity by area . 16 Mental Health Services . 18 How services are currently set up . 18 Care and Support . 20 Residential and Nursing Quality . 20 Achievements . 21 Accommodation . 23 Pathway . 24 End of Life Care and Support . 25 What matters most to people living with dementia - Consultation and engagement across North Yorkshire . 25 Key themes . 25 Delivering the strategy - action plan . 32 Moving Ahead . 34 Age UK - representing Selby District Council - the voluntary sector representing District Council officers 2 Published: 2017 3 ‘Bring Me Sunshine’ Living Well With Dementia in North Yorkshire Foreword Purpose and scope of the North Welcome to the North Yorkshire Dementia Strategy - ‘Bring Me Sunshine’ . Yorkshire vision for dementia support This strategy brings together organisations awareness of dementia will make a huge This strategy brings together the experiences well known information about people living from across Health and Social Care and the difference to the lives of many people across of those of us living with dementia and our with young onset dementia and people living Voluntary Sector to speak with one voice on North Yorkshire . It is through the sharing and carers, along with a wealth of health and with dementia and a learning disability . our aspirations for making North Yorkshire a refinement of our current successes that we will social care expertise and best practice place where people can live well with dementia . achieve the most in pushing forward to make from both North Yorkshire and beyond to The main focus of the document, however, is North Yorkshire a dementia friendly county . describe a collective ambition for dementia the rich information gathered through extensive Today, more than 10,000 people across North support over the next five years . engagement with over 1300 people and the key Yorkshire are living with dementia . That’s Most essential of all is spreading the message priorities that this has allowed us to develop . 10,000 people living with a life changing that it is possible to live well with dementia and This approach centres on our experiences diagnosis, but also 10,000 families and that people living with dementia have a valuable as the people living with dementia and These principles and priorities will shape the groups of friends offering support and energy role to play in the lives of their communities . our carers and it is our stories which have approach to dementia in North Yorkshire to a loved one . What has become very informed every aspect of this document . through the lifetime of the strategy . We will clear through the creation of this strategy Above all, this strategy is a call to action . aim for a clearer, simpler and more person is how personal dementia is to so many Whilst this strategy highlights many examples It has only been possible through the significant centred system of support and information for people . This strategy is built on the personal of outstanding work from across the county, input from the Alzheimer’s Society, Dementia people living with dementia and their carers . feedback of over 1300 North Yorkshire we know there is much more still to be done . Forward and Making Space, all of whom All partners are committed to the residents who shared their stories with us, It is only by working together across public, have been part of the editorial group and who delivery of the four Principles and five both good and bad, to help shape the future private and voluntary sectors, in partnership have been able to involve people living with Key Outcomes outlined on Page 32 . direction of services and support for people with our communities, that we will be able to dementia in the development of the strategy . living with dementia and their carers . achieve the goal of making North Yorkshire a truly dementia friendly place to live and work . In particular they led in the planning and The current context around health and social delivery of a hugely valuable and uplifting care is hugely challenging, this strategy Councillor Michael Harrison Dementia Congress, in October 2016, with Executive Member Health and Adult Services people living with dementia and their carers . “We don’t care about highlights key areas where professional your organisational training, organisational development and public The name of this Strategy is derived from that boundaries, we Congress, ‘Bring Me Sunshine’ was the title care about getting of the conference - suggested by one of the the support and Who are ‘we’? dementia singing groups, as one the songs help we need at that they love . It symbolises the message the right time” This strategy would not have been possible without the input of people living with that although living with dementia brings dementia and carers from across North Yorkshire . From the outset it was clear that many challenges, it does not automatically “Local community maintaining the genuine voice of people was vital to making this strategy compelling have to stop people enjoying life . networks are our and worthwhile . With this in mind the strategy is written with two distinct voices: Alongside the messages about what matters strongest asset if ‘We’, ‘Us’, ‘Our’ or ‘I’ refers to people living with dementia and their carers in North Yorkshire . to people living with dementia, we have set we can motivate out to describe the current position in terms and educate them” ‘The Partners’ refers to the signatories to the strategy as set out on page of the numbers of us currently living with two from across the statutory, voluntary and community sectors . dementia, along with other useful but less 4 5 ‘Bring Me Sunshine’ Living Well With Dementia in North Yorkshire What’s the Picture? 3 2 8 10 Current population estimates are forecasting significant increases in the numbers of people living with dementia . 24 39 Of 700,000 Of 10,000 By 2025 Of all cases 13,573 1 419,000 5,793 people living 3 DIAGNOSED DIAGNOSED with dementia PREVENTABLE 52 34 Of the 700,000 people 10,000 people are By 2025 13,573 people Public Health England believed to be living in estimated to be living are expected to be estimates that Females with early onset dementia Males with early onset dementia England with dementia with dementia in North living with dementia, approximately a third of in North Yorkshire 2015 in North Yorkshire 2015 only 419,000 have Yorkshire but only 5,793 in North Yorkshire dementia cases might be in Age Age Age Age Age Age Age Age received a diagnosis. people have actually part caused by preventable 30 - 39 40 - 49 50 - 59 60 - 64 30 - 39 40 - 49 50 - 59 60 - 64 been diagnosed. factors such as diet. Specific issues for people with in their 30s, this rises to more than half There are other groups of people also In addition we know that: young onset dementia include: by age 60+ . It is likely to develop at a experiencing memory loss and other difficulties Over 65,000 people in North Yorkshire identified younger age than the general population . caused by dementia, with young onset (aged 64 • Having to leave work due to illness or themselves as carers at the last census . In or under) and people with a learning disability to be a carer for a loved one, people of • People with learning disabilities often North Yorkshire in 2015/16 the Carers Resource as two groups that are often overlooked . working age can lose their income . show different symptoms in the early Centres, funded by the Council and the Clinical stages of dementia and are more likely Commissioning Groups had over 1,800 • Benefits are different to those over to have other physical health conditions referrals . In the same time period over 3,200 Young Onset Dementia 65 years and may affect income . which are not always well managed . carers assessments have been undertaken on • It is difficult to know the exact number of • Younger adults may have children behalf of the County Council, to help adults look people who were originally diagnosed under who still need support, so any loss • People with a learning disability are at the different ways caring affects their lives, the age of 65, because of the way data is of income may be difficult and may less likely to receive a correct or and agree how their own needs will supported . currently collected . Only those still under the lead to challenges for childcare . early diagnosis of dementia . age of 65 are recorded as ‘young onset’ . • People with learning disabilities may 16 .9% of the population in North Yorkshire live People with Learning disabilities • In the UK, in 2014 there were over 40,000 experience a more rapid progression in areas which are defined as “super sparse” people aged 64 and under recorded as • People with learning disabilities, particularly of dementia and will need specific (fewer than 50 person/km) . The issues of living living with dementia . Around 4% of people those with Down’s syndrome, are at support to understand the changes in a rural area and access can increase people’s with Alzheimer’s disease are under 65 .
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