DOCSLIB.ORG

Lgbtq+ Communities & Dementia

Total Page：16

File Type：pdf, Size：1020Kb

Download full-text PDF Read full-text
Lgbtq+ Communities & Dementia LGBTQ+ COMMUNITIES & DEMENTIA ENGAGEMENT REPORT JUNE 2018 Switchboard, June 2018 The Brighton & Hove Clinical Commissioning group has commissioned Switchboard (formerly ‘Brighton and Hove LGBTQ Switchboard’) to conduct a series of consultation and engagement activities with Brighton & Hove and Sussex-based lesbian, gay, bisexual, trans and queer (LGBTQ+) people affected by dementia, and the professionals and volunteers supporting them. This engagement work will be used to inform how LGBTQ people affected by dementia can be best supported; and to identify areas where improvements to patient experience can be made. Please note, the following report presents information about the consultation and engagement work conducted by LGBTQ Switchboard, and should not be taken as a position statement of Brighton and Hove LGBTQ Switchboard or of any participating organisation. 1 Switchboard, June 2018 Table of Contents Executive Summary ................................................................................................................................. 3 Background ......................................................................................................................................... 3 Overview of Engagement .................................................................................................................... 3 Key Findings ........................................................................................................................................ 4 Recommendations .............................................................................................................................. 8 Terminology ............................................................................................................................................ 9 Introduction .......................................................................................................................................... 10 Engagement Overview ...................................................................................................................... 11 Methodology ..................................................................................................................................... 12 LGBTQ+ & Dementia: What We Already Know .................................................................................... 13 LGBTQ+ Health Inequalities and Dementia Risk Factors .................................................................. 13 LGBTQ+ Inclusion Barriers in Mainstream Services .......................................................................... 14 LGBTQ+ Specific Impacts of Dementia .............................................................................................. 20 Switchboard’s Rainbow Café ............................................................................................................ 22 Review of Existing LGBTQ+ Dementia Engagement and Research ................................................... 23 Survey: Professionals and Volunteers Supporting People Affected by Dementia ................................ 32 Summary ........................................................................................................................................... 32 Demographics ................................................................................................................................... 33 Survey responses .............................................................................................................................. 38 Survey: LGBTQ+ People Affected by Dementia .................................................................................... 55 Summary ........................................................................................................................................... 55 Demographics ................................................................................................................................... 56 Survey responses .............................................................................................................................. 62 Key Findings .......................................................................................................................................... 77 Recommendations ................................................................................................................................ 83 Resources .............................................................................................................................................. 87 References ............................................................................................................................................ 88 Thanks & Acknowledgments ................................................................................................................. 90 Key Contacts.......................................................................................................................................... 90 2 Switchboard, June 2018 Executive Summary Background According to one estimate, there are around 56,000 lesbian and gay people living with dementia in the UK (McParland & Camic 2016). However, taking into account trans, non-binary, bisexual, queer and other (non-cis, non-heterosexual) sexual and gender identities, the number is likely to be significantly higher. This figure would also not take into account numbers of those living with, but undiagnosed, with dementia, and the large numbers of those who care and support a family member, partner or friend with dementia. Brighton & Hove CCG indicates that there are 1811 patients with dementia aged 65+ currently on their lists, and that there may be approximately 1000 more who are as yet undiagnosed. Utilising the common ‘1 in 10’ statistic regarding LGBTQ+ identity, this means there may be at least 280 LGBTQ+ people living with the condition in Brighton and Hove alone. Again, however, adding to this carers and those under 65 living with the condition, the number is likely to be much higher. While the Department of Health’s 2009 National Dementia Strategy helped to raise the profile of dementia and promote it up the national agenda, it did not make any reference to the particular needs of LGBTQ people. Indeed, while a current lack of standardised monitoring of sexual orientation, gender identity and trans status on both local and national levels, means that the actual statistics of LGBTQ+ people affected by dementia are unknown, it is clear from the estimated statistics this group represents a sizeable population. However, as Roger Newman (2012), an LGBTQ+ dementia activist and former carer of a partner with the condition, notes, it is a population that remains “largely invisible to both policy makers and practitioners”. In the past five years, however, there has been significant research and engagement activity within the voluntary sector and academia to understand the needs and experiences of this under-served group, from which this report draws to inform its recommendations. It is Switchboard’s hope that this piece of engagement can further extend the body of research around LGBTQ+ needs and dementia, to help inform the discussion on better serving the intersectionally diverse communities represented within this broad group at both local and national levels. Overview of Engagement From April to June 2018, Switchboard’s Health and Inclusion Project (HIP) carried out engagement with the LGBTQ+ community and health and social care providers on the subject of LGBTQ+ people affected by dementia: their experiences in relation to living with the condition and of accessing care and support. The aim of the engagement was to understand the specificities of LGBTQ+ experiences in relation to dementia, and the challenges and opportunities of these communities in accessing dementia care and support in Brighton and Hove and Sussex. As part of this engagement, we carried out two online surveys: one for LGBTQ+ people affected by dementia, for which we received 14 valid responses, and one for the professionals and volunteers who support them, for which valid responses from 21 individuals were gathered. We also reviewed existing literature and engagement on LGBTQ+ experience and dementia, and drew from Switchboard’s experience through the Rainbow Café – a monthly social meet-up for LGBTQ+ people affected by dementia or concerned about memory loss. 3 Switchboard, June 2018 Key Findings The findings of Switchboard’s surveys echoed and extended many of the existing findings of other organisations’ engagement and research with LGBTQ+ people on the topic of dementia, and included the following key points. LGBTQ+ people continue to face significant barriers to accessing dementia care and support, with 64% of LGBTQ+ 64% of LGBTQ+ people affected by respondents providing at least one example of an LGBTQ+ dementia surveyed said they had based barrier, including having experienced homo-, bi- or experienced some form of gender trans-phobia from staff (20%). Among other reported barriers, it was found that more than two thirds reported a or sexual orientation based lack of LGBTQ specific information and resources as a barrier to accessing dementia care barrier, followed by hetero- and cis-normativity, at nearly 1 and support. in 3 respondents. Echoing the findings of HIP’s Inclusion Award engagement, confidence and trust in health and social care services to provide LGBTQ+ inclusive care was relatively low, with just short of a
Load more

Recommended publications
  • LGBTQ America: a Theme Study of Lesbian, Gay, Bisexual, Transgender, and Queer History Is a Publication of the National Park Foundation and the National Park Service
    Published online 2016 www.nps.gov/subjects/tellingallamericansstories/lgbtqthemestudy.htm LGBTQ America: A Theme Study of Lesbian, Gay, Bisexual, Transgender, and Queer History is a publication of the National Park Foundation and the National Park Service. We are very grateful for the generous support of the Gill Foundation, which has made this publication possible. The views and conclusions contained in the essays are those of the authors and should not be interpreted as representing the opinions or policies of the U.S. Government. Mention of trade names or commercial products does not constitute their endorsement by the U.S. Government. © 2016 National Park Foundation Washington, DC All rights reserved. No part of this publication may be reprinted or reproduced without permission from the publishers. Links (URLs) to websites referenced in this document were accurate at the time of publication. THEMES The chapters in this section take themes as their starting points. They explore different aspects of LGBTQ history and heritage, tying them to specific places across the country. They include examinations of LGBTQ community, civil rights, the law, health, art and artists, commerce, the military, sports and leisure, and sex, love, and relationships. MAKING COMMUNITY: THE PLACES AND15 SPACES OF LGBTQ COLLECTIVE IDENTITY FORMATION Christina B. Hanhardt Introduction In the summer of 2012, posters reading "MORE GRINDR=FEWER GAY BARS” appeared taped to signposts in numerous gay neighborhoods in North America—from Greenwich Village in New York City to Davie Village in Vancouver, Canada.1 The signs expressed a brewing fear: that the popularity of online lesbian, gay, bisexual, transgender, and queer (LGBTQ) social media—like Grindr, which connects gay men based on proximate location—would soon replace the bricks-and-mortar institutions that had long facilitated LGBTQ community building.
    [Show full text]
  • Bisexual Sexual Health Resources
    The LGBT Health and Inclusion Project Locally Available Sexual Health Materials – A Consultation with Bisexual People The LGBT Health and Inclusion Project NHS Sussex and Brighton and Hove City Council (BHCC), have commissioned a consortium of organisations providing services to lesbian, gay, bisexual and transgendered (LGBT) people in the city to conduct a series of consultations with local LGBT people. The aim is to use the information gathered to feed into local service commissioning, planning and delivery. The partner agencies are: Brighton and Hove LGBT Switchboard, THT South, MindOut, Allsorts Youth Project, Brighton Bothways and the Clare Project. The consortium has employed a worker to coordinate the project, known as the LGBT Health and Inclusion Project (LGBT HIP). Please note, the following report presents information about the consultation and engagement work conducted by LGBT HIP and should not be taken as a position statement of any of LGBT HIPs Consortium partners. Background A local LGBT action-research project (Count Me In Too) presented a number of important findings in relation to sexual health and bisexual people.1 The research indicated that bisexual participants perceived that sexual health information available locally did not cater to their needs as bisexual people, and a significant proportion (28%) said that it was not appropriate to their sexual practices.2 The LGBT HIP consortium therefore identified a need to consult bisexual people about sexual health information available locally. The aim of the initiative was: 1. To consult bisexual people about their perceptions of the range of sexual health resources available locally and to make recommendations for further development.
    [Show full text]
  • Pride Lineup R Ee Qb
    F PRIDE LINEUP R EE QB Nottinghamshire’s Queer Bulletin August/September 2011 Number 61 The Pride stage will undergo meiosis and divide into 4. As well as the Main Stage (hosted by Harry Derbridge - from “The only way is Essex”), Politicians experience often scath- you can enjoy the Acoustic Stage, the Comedy Stage and a family zone - ing criticism on a daily basis in our The Village Green. Some of the performers featured are listed below. newspapers. On radio and televi- sion they are subject to the mock- MAIN STAGE ACOUSTIC STAGE COMEDY STAGE ery which is part of a tradition going Booty Luv Kenelis Julie Jepson back to - at least - the ancient Ruth Lorenzo Maniére des Suzi Ruffle Greeks. Cartoonists have a field day. David Cameron is portrayed Drag with No Name Bohémiens Rosie Wilby by one as a "Little Lord Fauntleroy" Fat Digester Gallery 47 Rachel Stubbins type and by another as a pink hu- Propaganda Betty Munroe & Josephine Ettrick-Hogg man condom with big wobbly Danny Stafford The Blue Majestix Carly Smallman Youth Spot The Idolins breasts. VILLAGE GREEN Jo Francis Emily Franklin Our mockery and fact-based criti- Captain Dangerous Wax Ersatz Asian Dance Group cisms of Kay Cutts pale beside this Vibebar May KB Pirate Show and beside what one reads on the Benjamin Bloom Selma Thurman Carlton Brass Band local Parish of Nottinghamshire Grey Matter Ball Bois display website, to which we referred. Poli- The Cedars Hosts: John Gill & Dog display team ticians need broad shoulders. Bear- NG1/@D2 Princess Babserella Tatterneers Band ing in mind the size of Mrs Cutts' "shoulders", the County Library QB ban is utterly predictable.
    [Show full text]
  • Resource Guide
    Resource Guide Domestic Violence Local Services and Resources………………………………………………………..3 Shelters/Emergency Services……………………………………………………...………………………5 Substance Use……………………………………………………………………………………………..6 Housing……………………………………………………………………………………………………8 Mental Health Services…………………………………………………………………………………..12 Food Assistance……………………………………………………………………………………….…16 Child Care/Parent Resources………………………………………………………………………….…18 Advocacy & Supportive Services for Parents and Families……………………………………………..23 Transportation …………………………………………………………………………………………...28 Employment Assistance………………………………………………………………………………….29 Emergency Phone/Hotlines………………………………………………………………………………30 Pregnancy Options & Supportive Services Including Teen Parent Services…………………………….33 Veterans Services……………………………………………………………………………………...…35 Car Seats…………………………………………………………………………………………………37 Phones……………………………………………………………………………………………………38 Durable Medical Equipment Problems/Services………………………………………………………...39 Nassau/Suffolk Law Services……………………………………………………………………………40 Legal Services/Advocacy………………………………………………………………………………...42 Long Island Hispanic/Latino Coalition…………………………………………………………………..44 24 Hour Pharmacies……………………………………………………………………………………...46 Pharmacies that Deliver………………………………………………………………………………….47 Recreational Resources/Activities for ALL Abilities……………………………………………………48 Sports & Recreation Activities for Children with Disabilites…………………………………………...53 Guardianship/ Developmental Disabilities………………………………………………………………56 OPWDD Supports & Services…………………………………………………………………………...57 Eligibility
    [Show full text]
  • Annual Report 2016–2017
    drummond street services ANNUAL REPORT 2016–2017 ... YES! Australia Fonts are Vectora and Soa Rough queerspace Stepfamilies Australia Strengthening Stepfamilies Acknowledgement drummond street services respectfully acknowledges the Traditional owners of the land in which we work, the Kulin Nation including The Wurundjeri, Boon Wurung, Taungurung, Djajawurrung and Wathaurong people. We pay our respects to Elders past and present and acknowledge Aboriginal and Torres Strait Islanders as the first people of Australia. They have never ceded sovereignty, and remain strong in their enduring connection to land and culture. Presidents Report through demand for our support services, which stands at approximately 30% of our total service Professor Alun Jackson delivery. The subsequent YES vote is validating This year is drummond street’s (ds) 130 and a significant community milestone, and we year anniversary, a notable milestone and a acknowledge the efforts of all our staff and the celebration of our organisation’s place as an support from partners and funders, including important community resource and asset the Victorian State Government recognising the serving the health and wellbeing of local mental health concerns particularly on LGBTIQ communities. An anniversary is a marker in young people. time, an opportunity to reflect on history, and a Reflecting on our growth over our last strategic guide to the organisation’s future. planning cycle, with ds now operating out of 6 There are many variables that can influence an locations, alongside our national reach through organisation’s longevity; opportunity, leadership, our sector support through Centre for Family workforce, political and social environments, Research & Evaluation (CFRE) that supports funding etc., and our history attests to this.
    [Show full text]
  • LGBT Suicidal Distress Report
    The LGBT Health and Inclusion Project Suicidal Distress and LGBT People – Results of an Online Survey The LGBT Health and Inclusion Project NHS Sussex and Brighton and Hove City Council (BHCC) have commissioned a consortium of organisations providing services to lesbian, gay, bisexual and transgendered (LGBT) people in the city to conduct a series of consultations with local LGBT people. The aim is to use the information gathered to feed into local service commissioning, planning and delivery. The partner agencies are: Brighton and Hove LGBT Switchboard, THT South, MindOut, Allsorts Youth Project, Brighton Bothways and the Clare Project. The consortium has employed a worker to coordinate the project, known as the LGBT Health and Inclusion Project (LGBT HIP). Please note, the following report presents information about the consultation and engagement work conducted by LGBT HIP and should not be taken as a position statement of any of LGBT HIPs Consortium partners. Introduction This report presents data from an online survey of suicidal distress among LGBT people in Brighton and Hove. In any study it is important to be precise about the issue being researched. For the purposes of this survey, suicidal distress was defined as: feelings such as despair, worthlessness and hopelessness so that the person feels that they want to end their life. Background Social hostility, stigma and discrimination experienced by LGBT people have been linked to poorer mental health outcomes.1,2 Local research conducted by Johnson, et al, gathering primarily qualitative information, identified that discriminatory practices of homophobia, transphobia and heterosexism embedded in social institutions such as education, health, religion, the media and the family were linked with suicidal distress.
    [Show full text]
  • Homosexual Information Center Subject Files Collection
    http://oac.cdlib.org/findaid/ark:/13030/c8765gnz No online items Guide to the Homosexual Information Center Subject Files Collection Special Collections & Archives University Library California State University, Northridge 18111 Nordhoff Street Northridge, CA 91330-8326 URL: https://library.csun.edu/SCA Contact: https://library.csun.edu/SCA/Contact © Copyright 2020 Special Collections & Archives. All rights reserved. Guide to the Homosexual SC.HICSF 1 Information Center Subject Files Collection Contributing Institution: Special Collections & Archives Title: Homosexual Information Center Subject Files Collection Creator: Homosexual Information Center (Hollywood, Calif.) Identifier/Call Number: SC.HICSF Extent: 23.77 linear feet Date (inclusive): 1933-2005 Abstract: The Homosexual Information Center (HIC), is a nonprofit organization committed to gathering and disseminating information and data to the public regarding all aspects of homosexuality. It was founded in the late 1960s by the Tangent Group, which in 1965 formally split from ONE, Incorporated, one of the first gay rights organizations in the United States. The collection consists of alphabetical subject files containing documents and records created and disseminated by a wide range of social and political organizations, including local organizations in Los Angeles, national organizations, and international organizations. Various topics relevant to the homosexual community in the late 20th century are represented in the collection, especially the AIDS epidemic, HIC's interactions with smaller community and religious groups, and numerous political issues. Language of Material: English Historical Note: The Homosexual Information Center (HIC), a nonprofit organization committed to gathering and disseminating information and data to the public regarding all aspects of homosexuality, has its roots in ONE Incorporated.
    [Show full text]
  • Transgender Students
    TRANSGENDER STUDENTS The following information is borrowed from Mottet, L., & Ohle, J. (2003). Transitioning Our Shelters: A Guide to Making Homeless Shelters Safe for Transgender People . New York: The National Coalition for the Homeless and the National Gay and Lesbian Task Force Policy Institute. Transgender is an “umbrella” term used to describe a wide range of identities and experiences, and is used to refer to many types of people, including transsexual people; crossdressers; androgynous people; genderqueers; and other gender non-conforming people whose appearance or characteristics are perceived to be gender atypical. In its broadest sense, “transgender” encompasses anyone whose identity or behavior falls outside stereotypical gender expectations. It is important to understand that some people may identify as transgender but not fall into one of the subcategories discussed here. This publication attempts to identify many of the ways in which transgender individuals identify and express themselves, but this listing is in no way complete. Furthermore, it is particularly important to realize that many individuals, despite the fact that they may appear transgender to some, do not consider themselves to be transgender. It is important that we not label people transgender based on our perceptions, but instead use the words they use to describe themselves. All people have a gender identity. Gender identity refers to a person’s internal sense of being male, female or something else. For most people, one’s gender identity matches the sex assigned to them at birth—for example, a person born female typically identifies as a girl, and later, as a woman. For many transgender people, there may not be a match.
    [Show full text]
  • Intersectionality: Race/Ethnicity and LGBTQ People in Brighton & Hove
    Intersectionality: Race/Ethnicity and LGBTQ People in Brighton & Hove Community Engagement and Consultation Report June 2018 Switchboard’s Health & Inclusion Project in partnership with The Trust for Developing Communities 1 INTERSECTIONALITY: RACE/ETHNICITY AND LGBTQ IDENTITY IN BRIGHTON & HOVE Brighton and Hove NHS Clinical Commissioning Group (BH CCG) and Brighton and Hove City Council (BHCC) have commissioned the Trust for Developing Communities (TDC) and the Health and Inclusion Project (HIP) at Switchboard to conduct a series of consultation and engagement activities with local communities. The aim is to use the information gathered to feed into local service commissioning, planning and delivery. This report was conducted in partnership by TDC and HIP, under the theme of ‘intersectionalities’. The consultation explored the intersection between race/ethnicity and LGBTQ communities in Brighton & Hove, with a specific focus on experiences of work and employment. Please note, the following report presents information about the consultation and engagement work conducted by TDC and HIP and should not be taken as a position statement of any participating organisation. Switchboard’s Health and Inclusion Project and the Trust for Developing Communities are extremely grateful to all partners who contributed insights and energy to this consultation, especially the community advisory panel, Brighton QTIPOC Narratives, Brighton & Hove’s LGBTQ groups, and Stonewall. 2 CONTENTS 1. EXECUTIVE SUMMARY .............................................................................................................
    [Show full text]
  • Information and Guidance on How to Support Bisexual People We’Re Mind, the Mental Health Charity
    Stand BI me Information and guidance on how to support bisexual people We’re Mind, the mental health charity. We believe no one should have to face a mental health problem alone. We’re here for you. Today. Now. We’re on your doorstep, on the end of a phone or online. Whether you’re stressed, depressed or in crisis. We’ll listen, give you support and advice, and fight your corner. And we’ll push for a better deal and respect for everyone experiencing a mental health problem. mind.org.uk/equality Contents 1. Introduction ............................................................................. 4 2. What is bisexuality? ............................................................... 5 3. Bisexuality and mental health ................................................ 8 4. Bisexuality and intersectionality ............................................ 10 5. Guidance for you: How to support bisexual people* ........... 14 6. Case studies .......................................................................... 18 7. Glossary ................................................................................ 21 8. References ........................................................................... 22 * You’ll find guidance pages have a yellow tab along the side Stand BI me – information and guidance on how to support bisexual people 3 1. Introduction Over the last few decades, social awareness Bisexual people exist in mental health services, and acceptance of lesbian, gay, bisexual and and the workplace, just like anywhere else – and transgender,
    [Show full text]
  • 20210905 Ootp.Mp3
    20210905 ootp.mp3 Thanks for downloading a 3cr podcast. 3cr is an independent Community, radio station based in Melbourne, Australia. We need your financial support to keep going. Go to www.irs.gov, org dot you, for more information and to donate online. Now stay tuned for your 3CR podcast. Panoply Panorama panpipe pansy. Aha pansexual knowing no boundaries of sex or gender sound interesting. Then join Sally on Sundays at noon for out of the pan. All those gender questions making you think too hard? Whether it's transgender bisexual polyamorous or Beyond will throw those questions into the pan and cook up the answers for you. So go on push that gender envelope. Only on 3 CR 855 am digital and 3cr Dot org dot au. 3 CR 855 am 3cr digital 3 CR dot org, dot au and 3cr On Demand out of the pan with Sally first broadcasting noon through on every Sunday afternoon. Thanks for your company and 3C, are proudly broadcasts from the land of the Kulin nation. And we pay respect to Elder's past present and emerging hello to any Aboriginal and Torres Strait Islander people tuning in. We acknowledge you and all the lands were stolen and never ceded. I'm your host of out of the pan show covering pansexual issues. My name is Sally Goldner. I use the pronoun, she her, and if you want to get in touch with the show, then there's lots of ways to do it boil, the modern means of communication out of the pan 855 at gmail.com., You can SMS six, one, four, five, six, seven, five 1215.
    [Show full text]
  • When Mining Communities and the NUM Began to Realise That the Strike
    Kelliher, D. (2014) Solidarity and sexuality: lesbians and gays support the miners 1984- 5. History Workshop Journal, 77(1), pp. 240-262. There may be differences between this version and the published version. You are advised to consult the publisher’s version if you wish to cite from it. http://eprints.gla.ac.uk/155165/ Deposited on: 15 January 2018 Enlighten – Research publications by members of the University of Glasgow http://eprints.gla.ac.uk Solidarity and Sexuality: Lesbians and Gays Support the Miners 1984–5 by Diarmaid Kelliher [email protected] In March 1984 British coalminers began a national strike against pit closures that would last for twelve months, with networks of support organizations established throughout the country. Often at the heart of these networks were traditional elements of the labour movement – trades councils, trade unions and Labour Party branches, for example, were all highly active. At least two elements, however, appeared more novel. The first was Women Against Pit Closures – a national network of women’s organizations, based primarily in mining areas and often composed of women from mining families – which has subsequently been the focus of much work.i In addition, the miners’ strike was an important moment in which radical activists from diverse backgrounds coalesced behind an ‘old-fashioned’ industrial dispute. Doreen Massey and Hilary Wainright commented at the time that ‘in many cities ethnic minorities, gay and lesbian communities, women’s groups and “alternative” networks of many kinds form an important element’. These groups made a notable contribution to a miners’ support network ‘with as broad a social and geographical base as any post-war radical political movement’.ii Far from the mining heartlands, London provides a compelling example of the growth of this social movement alongside the industrial struggle.
    [Show full text]