National Ataxia Foundation’s Neurologist Resource List United States Includes Neurologists and Ataxia Clinics

Disclaimer: This is a resource list of neurologists who have expressed an interest in seeing patients with Ataxia. It is offered as a service to the ataxia community by the National Ataxia Foundation (NAF). However, NAF does not verify the medical qualifications, practice capabilities or licenses of these neurologists and NAF is not liable for any diagnosis or medical treatments given by the medical professionals contained on this resource list. If you have questions or concerns, please contact the National Ataxia Foundation at 763-553-0020 or [email protected]. 06/01/2021

United States Neurologist Resource List

ALABAMA The University of Alabama at Birmingham Shelby Baptist Medical Center Division of Movement Disorders Nasrollah Eslami, MD Department of Neurology 1004 1st St. No The Kirklin Clinic of UAB Hospital Suite #330 Neurology Clinic in Neurosciences Alabaster, AL 35007 Marissa Dean, MD Phone: (205) 664-2967 David G. Standaert, MD, PhD Fax: (205) 664-9689 Talene Yacoubian, MD, PhD Sees ages 12 through adult 2000 6th Avenue S Birmingham, AL 35233 Clinic for Neurology Phone: (205) 801-8986 Scott Hitchcock, MD Fax: (205) 996-4039 David Greer, MD General Info about the ataxia clinic: 185 Chateau Dr. SW, Ste 301 (205) 934-0683, Opt 4 Huntsville, AL 35801 Ataxia Clinic – 4th Friday of each month Phone: (256) 533-4402 Fax: (256) 551-1902 Children’s Hospital – Pediatric Neurology By referral only Leon Dure, MD Amitha Ananth, MD, Assistant Professor Alabama Clinic 1600 7th Ave. So. – CHB314 Farouk Y. Khan, MD Birmingham, AL 35233 2812 Hartford Hwy Phone: (205) 996-7850 Dothan, AL 36305 Fax: (205) 996-7867 Phone: (334) 712-1170 By referral only (Sees children) Fax: (334) 460-8391

ARIZONA Banner University Medical Center Barrow Neurological Institute 2800 E. Ajo Way Department of Neurology Tucson, AZ 85713-6204 Terry Fife, MD Phone: (520) 694-8888 Kamala Saha, MD Fax: (520) 874-2701 240 W Thomas Rd #301 Phoenix, AZ 85013 Barrow Neurological Institute at Phone: (602) 406-6262 Phoenix Children’s Hospital Fax: (602) 406-6261 (for new patient referrals) Pediatric Movement Disorders Center Michael Kruer, MD 1919 E. Thomas Rd Phoenix, AZ 85016 Phone: (602) 933-0970 Fax: (602) 933-4253 ARKANSAS Arkansas Children’s Hospital Arkansas Children’s Northwest Neurology Section Pediatric Neurology 1 Children’s Way, Slot 512-15 Tonya Balmakund, MD Little Rock, AR 72202 Stephen Jones, MD Phone: (501) 364-4000 2601 Gene George Blvd Fax: (501) 364-6077 Springdale, AR 72762 (Sees children) Phone (479) 725-6880 Fax (479) 725-6582

CALIFORNIA UCLA Ataxia Center UCSF Movement Disorder and Neurological Services Neuromodulation Center Susan Perlman, MD 1635 Divisadero St., Suite 520 Brent Fogel, MD, PhD San Francisco, CA 94115 300 UCLA Medical Plaza, Ste. B200 Neurology: (415) 353-2311 Los Angeles, CA 90095 Fax: (415) 353-9060 Phone: (310) 794-1195 Fax: (310) 794-7491 UCSF Memory and Aging Center Michael Geschwind, MD, PhD UCLA School of Medicine Clinic address: Claude Wasterlain, MD 1500 Owens St., Ste 320 Chief, Neurology Service San Francisco, CA 94158 West LA VA Health Care Center Phone: (415) 353-2057 11301 Wilshire Blvd Fax: (415) 353-8292 Los Angeles, CA 90073

Phone: (310) 268-3595 Forbes Norris MDA/ALS Center

Robert G. Miller, MD, Director UC Davis Medical Center Jonathan Katz, MD Department of Neurology Liberty Jenkins, MD 3160 Folsom Blvd, Ste 2100 Sacramento, CA 95816 1100 Van Ness Ave. Floor 6 Phone: (916) 734-3588 San Francisco, CA 94109 Phone: (800) 482-3284 (referrals) Phone: (415) 923-3604 Fax: (415) 375-4827

Stanford Healthcare Neurosciences Senta Clinic Hokuto Morita, MD Ian Purcell, MD, PhD Veronica Santini, MD Monali Patel, MD Sharon J. Sha, MD 7625 Mesa College Dr, Ste 305A Laurice Yang, MD San Diego, CA 92111 rd 213 Quarry Road, 3 Fl Phone: (858) 223-2173 (Dr. Patel) Palo Alto, CA 94304 Fax: (760) 607-3210 (Dr. Patel) Phone: (650) 723-6469 Phone: (858) 223-2172 (Dr. Purcell) Fax: (650) 735-0390 Fax: (858) 682-2205 (Dr. Purcell)

Rancho Los Amigos Vandever Medical Offices National Rehabilitation Center Kaiser Permanente 7601 E. Imperial Hwy 4405 Vandever Ave Downey, CA 90242 San Diego, CA 92120 Phone: (562) 385-7115 Phone: (619) 528-5000 Phone: (877) 236-0333 Keck Medicine of USC Fax: (619) 516-6598 Department of Neurology By referral only 1520 Pablo St, Ste 3000 Los Angeles, CA 90033 University of California, San Diego Phone: (323) 442-5710 Movement Disorder Program (See adults only) Irene Litvan, MD Rady Children's Hospital Brenton Wright, MD Movement Disorders Clinic 4510 Executive Dr, Ste 3256 Jennifer Friedman, MD San Diego, CA 92121 3020 Children's Way Phone: (858) 657-8540 San Diego, CA 92123 Fax: (858) 657-8549 Phone: (858) 966-5819 Fax: (858) 966-4930

University of California, Irvine Alejandra Garland-Becerra, MD David Swope, MD Nicolas Phielipp, MD Anna Morenkova, MD 1 Medical Plaza Dr. Irvine, CA 92697 Phone: (714) 456-7220 Also locations in Orange & Tustin, CA Appointments can be made at (714) 456-7220

COLORADO

University of Colorado Hospital The Children’s Hospital Jessica Barr, PA-C Nicole Tartaglia, MD Trevor Hawkins, MD 13123 E. 16th Ave., B140 Drew Kern, MD Aurora, CO 80045 Lauren Seeberger, MD Phone: (720) 777-6630 Anschutz Outpatient Pavilion Fax: (720) 777-7311 1635 Aurora Ct., Suite 4500 (Sees children with Fragile X) Aurora, CO 80045 Phone: (720) 848-2080 Colorado Institute for Neuromuscular and Fax: (720) 848-2106 Neurological Disorders Ataxia Clinics 1st & 3rd Monday afternoons Pierre Pavot, DO (Sees adults only) 600 S. Airport Rd. For more info call Alan Hall (720) 848-8761 Building B, Suite E Intake and Access Coordinator Longmont, CO 80501 Phone: (720) 491-3322 Kaiser Permanente Fax: (720) 684-6715 Physical Medicine Rocky Mountain Movement Disorders Center Christine Munson, MD Rajeev Kumar, MD, FRCPC 2045 Franklin St Vicki Segro, Nurse Practitioner Denver, CO 80205 701 East Hampden Ave., Suite 510 Phone: (303) 861-3303 Englewood, CO 80113 Referral only Phone: (303) 357-5455 Fax: (303) 357-5459 Kaiser Permanente Neurology Department Eryn Lonnquist, MD Chief Neurologist Skyline Bldg. 3rd floor 1375 E. 20th Denver, CO 80205 Phone: (303) 861-3380

CONNECTICUT

Connecticut Children's Medical Center Gyula Acsadi, MD, PhD Pediatric Neurologist 505 Farmington Ave Farmington, CT 06032 Phone: (860) 837-7500 Fax: (860) 837-7550

Hartford HealthCare Chase Family Movement Disorders Center https://hartfordhealthcare.org/services/movement- disorders-center https://espanol.hartfordhealthcare.org/nuestros- servicios/trastorno-movimiento

Bridgeport Office Cheshire Office 2660 Main Street 280 South Main Street Ste 219 Ste 102 Bridgeport, CT 06606 Cheshire, CT 06410 Phone (860) 870-6385 Phone: (860) 870-6385 Fax (860) 870-0625 Fax: (203) 250-0191 Leon Meytin, MD Michelle Dagostine, MD Duarte Machado, MD

Mystic Office Stamford Office 100 Perkins Farm Dr, Ste 102 623 Newfield Avenue Mystic, CT 06355 Stamford, CT 06095 Phone: (860) 870-6385 Phone: (860) 870-6385 Fax: (860} 245-0000 Fax: (860) 245-0000 Elena Bortan, MD Leon Meytin, MD Maria L Moro-de-Casillas, MD Nikita Urval, MD

Torrington Office Vernon Office 780 Litchfield St 35 Talcottville Road, Suite 3 Suite 6 Torrington CT 06790 Vernon, CT 06066 Phone: (860) 870-6385 Phone: (860) 870-6385 Fax (860) 870-0625 Fax: 860/870-0625 Benjamin Dorfman, MD Joy Antonelle deMarcaida,MD Sulada Kanchana, MD, PhD Jeffrey Lahrmann, MD

Winsted Office Wilton Office 80 South Main St 60 Danbury Rd Suite 202 Suite 101 Winsted CT 06098 Wilton CT 06897 Phone: (860) 870-6385 Phone: (860) 870-6385 Fax: (860) 870-0625 Fax: (860) 870-0625 Benjamin Dorfman, MD Nikita Urval, MD Jeffrey Lahrmann, MD

Hartford Office – Spanish Clinic 79 Retreat Ave, 2nd Floor Hartford, CT 06102 Phone: (860) 870-6385 Maria Moro-de Casillas, MD

DELAWARE Center for Neurology & MRI Robert Varipapa, MD (Sees adults) Dover Office Milford Office 1074 South State St 111 Neurology Way Dover, DE 19901 Milford, DE 19963 Phone: (302) 678-8100 (both locations)

FLORIDA The Center for Parkinson’s Disease University of Florida and Movement Disorders Department of Neurology University of Miami, Florida S.H. Subramony, MD (both locations) Carlos Singer, MD U of FL Health Medical Plaza 1150 NW 14th St, Ste 609 2000 SW Archer Rd (3rd Fl) Miami, FL 33136 Gainesville, FL 32607 Phone: (305) 243-3100 (352) 265-5550 Fax (305) 243-4713 AND (Sees adults) Center for Movement Disorders & Neuro Restoration Joe DiMaggio Children’s Hospital 3450 Hull Road (4th Fl) Div. of Pediatric Neurology Gainesville, FL 32608 Tatyana Dubrovsky, MD Phone: (352) 294-5000 1150 N. 35th Ave, Ste 520 Fax: (352) 627-4175 Hollywood, FL 33020 Phone: (954) 265-2423 USF Ataxia Research Center Fax: (954) 961-4860 University of South Florida (Sees children only) Theresa A. Zesiewicz, MD, FAAN Parkinson’s Disease and 13330 USF Laurel Dr Movement Disorders Center of Boca Raton Tampa, FL 33612 951 NW 13th Street, Bldg. 5-E Phone: (813) 974-5909 Boca Raton, FL 33486 Fax: (813) 974-8032 Phone: (561) 392-1818 Nicklaus Children's Hospital Orlando Health Movement Disorders Program Arnold Palmer Hospital Migvis Monduy, MD, Pediatric Neurologist Carl R. Barr, DO 3200 SW 60 Court, Suite 302 6150 Metro West Blvd, Ste 105 Miami, FL 33155 Orlando, FL 32835 Phone: (305) 662-8330 Phone: (321) 842-6671 Fax: (305) 663-2813 Fax: (321) 843-6447 (Sees children)

Nicklaus Children’s Dan Marino Center Roberto Tuchman, MD Carlos Gadia, MD 2900 South Commerce Pkwy Weston, FL 33331 Phone: (954) 385-6276 Fax: (954) 385-6201 GEORGIA

Emory Clinic at Executive Park Augusta University Medical Center Emory Movement Disorders Center Movement Disorders Clinic George “Chip” Wilmot, MD, PhD Department of Neurology 12 Executive Park Dr. NE, 5th Floor Julie Kurek, MD Atlanta, GA 30329 John Morgan, MD Phone: (404) 778-3444 1447 Harper St, Ste 4328 Fax: (404) 712-6992 Augusta, GA 30912 Phone: (706) 721-4581 Fax: (706) 721-1459 (referrals) Fax (706) 721-1115 (doctor correspondence)

HAWAII

Pacific Health Research & Education Institute Kapiolani Medical Center for Women & Children VA Pacific Islands Healthcare System Keith K. Abe, MD Web Ross, MD 1401 S. Beretania St, Suite 950 459 Patterson Rd Honolulu, HI 96814 Honolulu, HI 96819 Phone: (808) 983-6676 Phone: (808) 433-0600 Fax: (808) 373-7577 (Sees veterans only) (Sees children)

ILLINOIS

University of Chicago Medical Center Northwestern Parkinson's Disease and Dept of Neurology - Ataxia Center Movement Disorders Center Christopher Gomez, MD, PhD Puneet Opal, MD, PhD 5841 S. Maryland Ave (Mail Code 2030) Patients are seen at: Chicago, IL 60637 Lavin Pavilion #1900 Phone: (773) 795-4311, ext. 4 259 E. Erie Fax: (773) 702-9060 Chicago, IL 60611 Phone: (312) 695-7950 Fax: (312) 695-5747

Rush University Medical Center Southern Illinois University School of Medicine The Movement Disorders Center Department of Neurology Deborah Hall, MD PhD Ahmad Elkouzi, MD Natalie Witek, MD MS 751 N. Rutledge St, Ste 3100 1725 W. Harrison St., #755 Springfield, IL 62794 Chicago, IL 60612 Phone: (217) 545-8000 Phone: (312) 563-2900 Fax: (217) 545-8115 (Sees adults only) Fax: (312) 563-2024 Mailing address: P.O. Box 19643 Neurology of Southern Illinois Springfield, IL 62794- 9643 Lori M. Guyton, MD, MHS Logan Professional Park 3301 Logan Dr. Herrin, IL 62948 Phone: (618) 993-0444 Fax: (618) 998-9302

INDIANA

IU Health Physicians Christopher William James, MD Joanne Wojcieszek, MD Sarah Zauber, MD 355 W. 16th St., Suite 3200 Indianapolis, IN 46202 Phone: (317) 948-5450 Fax: (317) 968-1256

IOWA

University of Iowa Hospitals and Clinics Contact Information (physician referral recommended) Phone: (319) 384-6362 Fax: (319) 356-7009 Hereditary Ataxia Clinic- for individuals with positive genetic testing Care Team First Friday morning of the month John Kamholz, MD, PhD https://uihc.org/hereditary-ataxia-clinic https://uihc.org/john-kamholz Peggy Nopoulos, MD, Neuropsychiatrist Neurogenetics Clinic-for individuals suspected https://medicine.uiowa.edu/neurology/profile/peggy- to have ataxia or has ataxia and no genetic nopoulos diagnosis Tiffany Grider, MS, Certified Genetic Counselor Every Wednesday https://uihc.org/tiffany-grider https://uihc.org/neurogenetics-clinic

Location University of Iowa Hospitals and Clinics Department of Neurology 200 Hawkins Dr, 2007 Roy Carver Pavilion Iowa City, IA 52242 Located on the 2nd floor near elevator E Parking ramp 2

KANSAS KU Medical Center University of Kansas Hospital Richard Dubinsky, MD Comprehensive Spine Clinic Professor of Neurology James Southwell, DO Dept of Neurology Mail Stop 2012 Exam Ste G250, Mailstop 1067 3901 Rainbow Blvd 4000 Cambridge St./ Kansas City, KS 66160 Kansas City, KS 66160 Phone: (913) 588-0670 Phone: (913) 588-2806 Fax: (913) 588-0673 Fax: (913) 588-9920

Department of Neurology Johnson County Neurology 10777 Nall Ave, Ste 140 David Clark, MD Leawood, KS 66211 John Michael Seeley, MD Phone: (913) 945-8700 Stacy Younger, MD 12140 Nall Ave Ste 230 Overland Park, KS 66209 Phone: (913) 661-9448

KENTUCKY Kentucky Neurosciences Institute John Slevin, MD 740 S. Limestone St Lexington, KY 40536-0284 Phone: (859) 323-5661 Fax: (859) 323-6411

LOUISIANA LSU Healthcare Network Ochsner Medical Center Brian Copeland, MD Michael Wilensky, MD 3700 St. Charles Avenue, 4th Floor 2005 Veterans Memorial Blvd New Orleans, LA 70115 Metairie, LA 70002 Phone: (504) 412-1517 Phone: (504) 842-3980 Fax: (504) 412-1518 (Sees children 13 & older)

MARYLAND Kennedy Krieger Institute Kennedy Krieger Institute Johns Hopkins School of Medicine Phelps Center for Cerebral Palsy & Amy J Bastian* PhD, PT Neurodevelopmental Medicine 707 N. Broadway Alexander H. Hoon, Jr., MD Baltimore, MD 21205 707 N. Broadway Phone: (443) 923-2717 Baltimore, MD 21205 Fax: (443) 923-2715 To request an initial evaluation, *Dr. Bastian has a PhD in movement studies and is contact our Care Management Office: also a Physical Therapist. She sees patients for Toll-Free Referral: (888) 554-2080 movement studies, not for diagnosis. Local Referral: (443) 923-9400

Kennedy Krieger Institute NIH/NINDS Kristin Baranano, MD, PhD Mark Hallett, MD, DM (hon) 801 N. Broadway Chief, Human Motor Control Section, NINDS Baltimore, MD 21205 NIH, Building 10, Room 7D37 Appointments for pediatric ataxia clinic: 10 Center Dr MSC 1428 Phone (443) 923-9400 Bethesda, MD 20892-1428 https://www.kennedykrieger.org/patient- Phone: (301) 496-9526 care/centers-and-programs/ataxia-and-cerebellar- Fax: (301) 480-2286 disorders-clinic Only sees patients who meet protocol requirements for (Fact sheet link is on the website) his research clinical trials. Johns Hopkins University Ataxia Center The Ataxia-Telangiectasia Clinical Center Liana Rosenthal, MD, Director Johns Hopkins Hospital Clinic: 601 N. Caroline St Jenny Wright, RN Baltimore, MD 21287 Sr. Research Nurse/Clinic Coordinator Phone: (410) 502-0133 600 N Wolfe St. CMSC 1102 Fax: (410) 630-7900 Baltimore, Maryland 21287-3923 Mailing: 10751 Falls Road, Suite 250 Phone: 410-614-1922 Lutherville, MD 21093 Toll Free: 800-610-5691 Fax: (410) 616-2810 [email protected] Jana Arreola, Ataxia Clinic Coordinator For appointments: (410) 614-1922 [email protected] Fax: (410) 955-0229 (410) 616-2816, Option 2

Johns Hopkins Ataxia Center University of Maryland Neurology Care Center Movement Disorder Specialists Joseph Savitt, MD Kristin Baranano, MD, PhD Lisa Shullman, MD Ankur Butala, MD 16 S Utah St – 3rd floor Thomas Crawford, MD Baltimore, MD 21201 - Dr. Crawford sees primarily children with Phone: (410) 328-4323 Friedreich’s Ataxia. (See his address in next Fax: (410) 328-1149 section) Amir Kheradmand, MD University of Maryland School of Medicine Arita McCoy, CRNP The Frederick Henry Prince Distinguished Professor Kelly Alexander Mills, MD in Neurology Emile Sami Moukheiber, MD Department of Neurology Ricardo Roda, MD Stephen G. Reich, MD Liana Rosenthal, MD, Director 110 S. Paca St, 3rd Floor Clinic Address; Mailing Address: Baltimore, MD 21201 601 N Caroline St 10751 Falls Rd Phone: (410) 328-7809 Baltimore, MD 21087 Falls Concourse,Ste 250 Fax: (410) 328-0167 Phone: (410) 616-2816 Lutherville, MD 21093 Option 2

New patient records – Attention: Ataxia Center Fax 443-287-3329

Johns Hopkins Friedreich’s Ataxia Movement Disorder Specialists Thomas Crawford, MD Pediatric Neurology, Friedreich’s Ataxia 200 N. Wolfe Street Rubenstein Child Health Bldg., Ste 2158 Baltimore, MD 21287 Phone: (410) 955-4259 Fax: (410) 614-2297

MASSACHUSETTS Massachusetts General Hospital Boston Medical Center Department of Neurology Ataxia Unit Alcy R. Torres, MD, FAAP Anoopum Gupta, MD, PhD 725 Albany Street Jeremy Schmahmann, MD Boston, MA 02118 Christopher Stephen, MBBS Phone: (617) 414-4841 Kathie Swoboda, MD (Sees children) Fax: (617) 414-0468 Wang Ambulatory Care Center (Sees children) 55 Fruit St Boston, MA 02114 Boston Children's Hospital Phone: (617) 726- 3216 Department of Neurology Fax: (617) 724-7836 Basil T. Darras, MD Claudio Melo de Gusmao, MD Beth Israel Deaconess Medical Center Jennifer A. Markowitz, MD Department of Neurology Fegan 11 Patricia (Penny) Greenstein, MD 300 Longwood Ave Laurie M. Gordon, MD Boston, MA 02115 330 Brookline Ave., TCC8 Phone: (617) 355-8235 Boston, MA 02215 Fax: (617) 730-0279 Phone: (617) 667-3176 (option 2) * (Sees children) Fax: (617) 667-8747 * Ask for Debra Clark and tell them you were referred by NAF Brigham & Women’s Hospital Claudio Melo de Gusmao, MD Vikram Khurana, MD, PhD Department of Neurology, 1st Floor 60 Fenwood Road Boston, MA 02115 Phone: (617) 667-3176 Fax: (617) 525-9302 MICHIGAN University of Michigan Michigan Neurology Institute Neurology Movement Disorders Clinic Paul Cullis, MD East Ann Arbor Health and Geriatrics Center Boris J. Leheta, MD Henry Paulson, MD, PhD 25100 Kelly Rd Peter Todd, MD, PhD Roseville, MI 48066 4260 Plymouth Road Phone: (586) 771-7440 Ann Arbor, MI 48109 Fax: (586) 771-9966 Phone: (734) 764-6831 Fax: (734) 647-8535 University of Michigan C.S. Mott Children’s Hospital Detroit Medical Center Pediatric Neurology Harper Neurology Clinic Steven Mark Leber, MD, PhD (sees children) Dept of Neurology, 8A UHC 1540 E. Hospital Dr., Rm 12-733 Edwin George, MD, PhD Ann Arbor, MI 48109-4279 4201 Saint Antoine St Phone: (734) 936-4179 Detroit, MI 48201-2153 Fax: (734) 763-7551 Phone: (800) 966-9644 Fax: (313) 7454-4468 West MI Neurological Assoc PLC Gary Gurden, MD Mercy Health Hauenstein 957 Brookhaven Ct, Bldg F Neurosciences Muskegon, MI 49442-3890 Jessica Hedeman, DO Phone: (231) 903-0903 Leslie Neuman, MD Fax: (231) 903-4284 Cornelius Robens, MD Helen Davos Children’s Hospital 220 Cherry Street SE Pediatric Neurology Clinic Grand Rapids, MI 49503 Steve DeRoos, MD Phone: (616) 685-5050 Spectrum Health Fax: (616) 685-8962 35 Michigan NE, Suite 3003 AND Grand Rapids, MI 49503 Cornelius Robens, MD Phone: (616) 267-2500 3865 W. Front Street, Suite 4 Fax: (616) 267-2501 Traverse City, MI 49684 Phone: (231) 642-5701 Metro Health Neurology Fax: (231) 642-5706 Jordon Taylor, DO Paul Wasielewski, MD 2122 Health Dr SW, Ste 160 Wyoming, MI 49519 Phone: (616) 252-5790 Fax: (616) 252-5793

MINNESOTA University of Minnesota Ataxia Center Mayo Clinic / Ataxia Clinic CSC, Dept of Neurology Anhar Hassan, MD Khalaf Bushara, MD (Director) Movement Disorders Lawrence Schut, MD Department of Neurology MMC CJ 2121 200 First St SW 909 Fulton St SE Rochester, MN 55905 Minneapolis, MN 55455 Phone: (507) 538-3270 Appointments: Fax: (507) 284-2203 Phone: (612) 626-6688 Referral & medical records Ask for Char Martins, RN needed Works Tuesday/Friday, Clinic Friday Fax: (612) 676-5058 Mayo Clinic / Friedreich’s Ataxia Clinic Struthers Parkinson's Center Ralitza Gavrilova, MD Martha A. Nance, MD Department of Neurology & 6701 Country Club Dr Clinical Genomics Golden Valley, MN 55427 200 First St SW Phone: (952) 993-5495 Rochester, MN 55905 Fax: (952) 993-2250 Phone: (507) 284-8198 Referral needed (800) 533-1564 Noran Neurological Clinic Erica Youn, MD 2828 Chicago Ave S #200 Minneapolis, MN 55407 Phone: (612) 879-1000 Fax: 612 879-0722 (Sees children) MISSOURI The Physicians of Saint Louis University Jefferson City Medical Group Cardinal Glennon Children’s Hospital Sudhri Batchu, MD Sean Gooretzke, MD 1241 W Stadium Blvd 1465 South Grand Ave Jefferson City, MO 65109 St. Louis, MO 63104 Phone: (573) 635-5264 Phone: (314) 577-5338 Fax: (573) 761-4351 Fax: (314) 268-6411 (Sees children) Washington University in St. Louis Neuromuscular Division Washington University School of Medicine Albert Davis, MD Movement Disorders Clinic Baijayanta Maiti, MD Joel Perlmutter, MD Pietro Massoni, MD (Sees patients with non-genetic ataxia, Mwiza Ushe, MD MSA, tremor issues.) 660 South Euclid Ave 517 So. Euclid Ave, Lower Level Box 8111-Neurology St. Louis, MO 63110 St. Louis, MO 63110 Phone: (314) 362-6908 Phone: (314) 362-6981 Fax: (314) 747-3258 Fax: (314) 362-3752 AND Neuroscience Center Washington University Center for Advanced Medicine Toni Pearson, MD 4921 Parkview Place, C, 6 Associate Professor, Neurology St. Louis, MO 63110 Sees patients at: Phone: (314) 362-6908 St. Louis Children’s Hospital Fax: (314) 747-3258 1 Children’s Place St. Louis, MO 63110 Phone: (314) 454-6120 Fax (314) 454-4225 MISSISSIPPI Hattiesburg Clinic Neurological Research Center Ronald L. Schwartz, MD 415 South 28th Ave Hattiesburg, MS 39401 Phone: (601) 268-5620 Fax: (601) 268-5851 MONTANA Billings Clinic Steven Arbogast, MD Scott Riggins, MD John Herndon, MD – Movement Disorder Specialist 801 N. 29th Street Billings, MT 59101 Phone: (406) 435-2410 Fax: (406) 435-2805 NEBRASKA

University of Nebraska Medical Center University of Nebraska Medical Center Department of Neurological Sciences Department of Neurological Sciences Movement Disorders Program Multidisciplinary Ataxia Clinic Sarah Doss, MD Sarah Doss, MD Diego Torres-Russotto, MD Clarkson Doctor’s Building South, 1st Floor Amy Hellman, MD 4239 Farnam St., Suite 105 John Bertoni, MD, PhD Omaha, NE 68131 Danish Bhatti, MD Phone: 402-559-8600 4242 Farnam St., Suite 650 Fax: 402-559-5010 Omaha, NE 68131 Phone: (402) 559-8600 Nebraska Methodist Hospital Fax: (402) 559-9886 John Goldman, MD Joel Cotton, MD Creighton University School of Medicine Robert Sundell, MD Immanuel Neurological Institute David Franco, MD Melinda Burnett, MD 8901 W. Dodge Rd, Suite 210 Assistant Professor of Neurology Omaha, NE 68114 6901 North 72nd St., Suite 2400 Phone: (402) 354-2000 Omaha, NE 68122 Fax: (402) 354-8645 Phone: (402) 717-0070 Fax: (402)717-0073

NEVADA University of Nevada School of Medicine Cleveland Clinic 1707 W. Charleston Blvd. #220 Lou Ruvo Center for Brain Health Las Vegas, NV 89102 Zoltan Mari, MD Phone: (702) 671-5070 Director, Parkinson & Movement Disorder Program Fax: (702) 671-5072 Odinachi Oguh, MD 888 West Bonneville Ave Roseman Medical Group Las Vegas, NV 89106 Eric S. Farbman, MD Phone: (702) 483-6000 5380 S. Raindow Blvd – Ste 120 Fax: (702) 483- 6007 Las Vegas, NV 89118 Phone: (702) 463-4040 Fax: (702) 968-5681

NEW HAMPSHIRE Dartmouth-Hitchcock Medical Center Elliot Neurology Associates Movement Disorders Program 185 Queen City Ave Stephen L. Lee, MD, PhD Manchester, NH 03101 Rebecca Thompson, MD Phone: (603) 663-4800 One Medical Center Dr Fax: (603) 663-4805 Lebanon, NH 03756 Phone: (603) 650-5104 Fax: (603) 653-1273 NEW JERSEY Rutgers Robert Wood Johnson Medical School Department of Neurology Division of Movement Disorders Jennifer Chen, MD Yeva Fernandez, MD Gian Pal, MD 125 Paterson St, Ste 6100 New Brunswick, NJ 08901 Phone: (732) 235-7733 Fax: (732) 235-7041

NEW MEXICO University of New Mexico (UNM) Hospital Clinical Neuroscience Center Amanda Deligtisch, MD Gerson Suarez-Cedeno, MD Melanie Stewart, Advanced NP Sarah Pirio-Richardson, MD 2211 Lomas Blvd NE Albuquerque, NM 87106 Phone: (505) 272-3160 Fax: (505) 272-9427

NEW YORK University of Rochester Medical Center Albany Medical Center Department of Neurology Parkinson's Disease and Alex R. Paciorkowski, MD, FACMG Movement Disorders Center Erika Augustine, MD Octavian Adam, MD 919 Westfall Rd Jennifer Durphy, MD Clinton Crossings Building C, Suite 220 Era Hanspal, MD Rochester, NY 14642 Eric S. Molho, MD Phone: (585) 341-7500 47 New Scotland Ave Fax: (585) 756-5189 Albany, NY 12208 By referral only. Ask for Kelly Minks and mention Phone: (518) 262-6611 you were referred by NAF. Fax: (518) 262-6612 (By referral only) Weill Cornell Medicine / New York-Presbyterian Division of Movement Disorders Albany Medical Center - MC-70 Claire Henchcliffe, MD, PhD Arnulf H. Koeppen, MD Andrea Lee, MD Matthew J. Murnane, MD (Sees adults) 428 E 72nd St 47 New Scotland Ave Ste 400, Oxford Building Albany, NY 12208 New York, NY 10021 Phone: (518) 262-5226 Phone: (212) 746-2584 Fax: (646) 962-0517 Fax: (518) 262-6261 University of Rochester Medical Center Maimonides Medical Center Neurology Patient Care Nuri Jacoby, MD Periodic Paralysis, Myotonia and 883 65th St (between 8th & 9th Ave) Episodic Ataxia Clinic Brooklyn, NY 11220 Strong Memorial Hospital Phone: (718) 283-7470 Neurology Outpatient Clinic – 1st Fl Fax: (718) 635-6082 601 Elmwood Ave Rochester, NY 14642 Mount Sinai Beth Israel Phone: (585) 275-2559 Susan Bressman, MD Fax: (585) 273-1255 Naomi Lubarr, MD (sees birth to 44 yrs.) Vicki Shanker, MD WESTMED Medical Group Matthew Swan, MD Cordelia Schwarz, MD 10 Union Square East 210 Westchester Ave 73 Market St, Ste 217 New York, NY 10003 White Plains, NY 10604 Younkers, NY 10710 Phone: (212) 844-8888 Phone: (914) 682-0700 Phone: (914) 831-2970 Fax: (914) 681-5250 Fax: (914) 831-2971 Mount Sinai No referral necessary Department of Neurology Siona Gupta, MD Columbia University Medical Center Paul Greene, MD The Center for Parkinson’s Disease and Winona Tse, MD Other Movement Disorders Miodrag Velickozic, MD Neurological Institute 5 East 98th St. 1st Floor Sheng-Han Kuo, MD New York, NY 10029 710 West 168th St, 3rd Floor Phone: (212) 241-7076 New York, NY 10032 Fax: (212) 241-3656 Phone: (212) 305-0429 Fax: (212) 205-1145 Total Neurocare, PC Sees patients every Wed. afternoon Ranga C Krishna, MD Appointments: (646) 426-3876 1513 Voorhies Ave Brooklyn, NY 11235 NYU Langone Movement Disorders Phone: (718) 332-7878 Fresco Institute for Parkinson & Fax: (718) 332-8051 Movement Disorders By referral only. (Sees children & adults) Andrew S. Feigin, MD Steven J. Frucht, MD SUNY Downstate Medical Center 222 East 41st Street Alexandra Reznikov, MD (Sees children) New York, New York 10017 Geetha Chari, MD (Sees children) Phone: (212) 230-4838 Yaacov Anziska, MD (Sees adults) Fax: (212) 230-4837 Department of Neurology 450 Clarkson Ave MSC 1213 NYU Langone Health Neurogenetics Brooklyn, NY 11203 Heather A. Lau, MD Phone: (718) 270-2502 222 East 41st Street Fax (718) 270-1946 New York, New York, 10017 Phone: (212) 263-7744 NYU Center for Neuromodulation Fax: (212) 263-7721 Michael H. Pourfar, MD 530 1st Ave, Suite 8S New York, New York, 10016 Phone (212) 263-2607 Fax: (212) 263-4061

NORTH CAROLINA University of North Carolina Hospitals Duke University Movement Disorder Center Movement Disorders Center Nina Browner, MD Noreen Bukhari, MD, PhD Daniel Roque, MD Nicole Clakos, MD, PhD Miriam Sklerov, MD Jeffrey W. Cooney, MD 194 Finley Golf Course Road, Ste 200 Kyle Mitchell, MD Chapel Hill, NC 27517 Burton L. Scott, MD, PhD Phone: (984) 974-4401 932 Morreene Rd Fax: (984) 974-2285 Durham, NC 27705-4410 Phone: (919) 668-7600 Fax: (919) 668-2855

NORTH DAKOTA Sanford Brain & Spine Center Neurology Jau-Shin Lou, MD Tanya Harlow, MD Amber Stutz, MD 700 1st Ave S Fargo, ND 58103 Phone: (701) 234-4036 Fax: (701) 234-4003

OHIO University Hospitals of Cleveland The Ohio State University Neurological Institute Department of Neurology 11100 Euclid Ave Division of Neurogenetics Cleveland, OH 44106 Yasushi Kisanuki, MD Phone: (216) 844-3192 Clinic: 920 North Hamilton Road Several neurologists at this location Gahanna, OH 43230 see patients with ataxia Phone: (614) 293-4969

Cincinnati Children's Hospital Medical Center University of Cincinnati Movement Disorders Clinic-Neurology Department of Neurology Donald Gilbert, MD Head, Division of Movement Disorders Steve Wu, MD 222 Piedmont Avenue, Suite 3200 3333 Burnet Ave, ML 2015 Cincinnati, Ohio 45219 Cincinnati, OH 45230 Phone: (513) 475-8730 Phone: (513) 636-4222 Fax: (513) 475-8033 Fax: (513) 636-3980 (Sees adult patients in selected cases)

OKLAHOMA Integris Southwest Medical Center Movement Disorder Clinic of Oklahoma Brent Beson, MD Kevin J. Klos, MD Joshua Kershen, MD 7134 S. Yale, Ste 205 4221 South Western Ave., Suite 5000 Tulsa, OK 74136 Oklahoma City, OK 73109 Phone: (918) 392-4530 Phone: (405) 644-5160 Fax: (918) 392-4535 Fax: (405) 644-6112 (Dr. Beson) Fax (405) 644-5162 (Dr. Kerkshen) (By referral only)

Bartlesville Physical Rehabilitation (BPR) (No neurologists at this site, only rehab) 4100 S.E. Adams Rd., Suite A-100 Bartlesville, OK 74006 Phone: (918) 331-9922

OREGON Oregon Health Science University Department of Neurology OP-32 Matthew Brodsky, MD Amie Hiller, MD Jeff. A. Kraakevik, MD 3181 SW Sam Jackson Park Rd. Portland, OR 97239 Phone: (503) 494-7772 Fax: (503) 346-6854

PENNSYLVANIA University of Pennsylvania Health System University of Pittsburgh Physicians Parkinson’s Disease & Movement Disorders Center Neurology Clinic Neurology, 3rd Floor Valerie Suski, DO 330 S. 9th St Timothy Greenamyre, MD, PhD Philadelphia, PA 19107 Houman Homayoun, MD Phone: (215) 829-6500 Sarah B. Berman, MD, PhD Fax: (215) 829-6606 Lana Chahine, MD Jessica Kappel, PA-C Children’s Hospital at Philadelphia Clinic address: Neurology Kaufmann Medical Building, Suite 810 (many neurologists see Ataxia patients) 3471 Fifth Avenue 3501 Civic Center Blvd Pittsburgh, PA 15213 Philadelphia, PA 19104 Phone: (412) 692-4916 Phone: (215) 590-1719 Fax: (412) 692-4601 Fax: (215) 590-1771 UPMC Comprehensive Movement Disorders Parkinson’s Disease & Movement Disorder Clinic Center Edward A. Burton, MD, DPhil, FRCP Pedro Gonzalez-Alegre, MD Associate Professor of Neurology 330 S 9th St UPMC Endowed Chair in Movement Disorder Philadelphia, PA 19107 811 Kaufman Medical Building Phone: (215) 829-7915 3471 Fifth Ave Fax: (215) 829-6606 Pittsburgh, PA 15213 Phone: 412 692 4670 (Chuck McCune) The Friedreich’s Ataxia Center of Excellence (Referrals only) Children’s Hospital at Philadelphia David Lynch, MD University of Pennsylvania Additional neurologists see Ataxia patients School of Medicine, Genetics Division 3501 Civic Center Blvd 502 Clinical Research Bldg Philadelphia, PA 19104 415 Curie Blvd Phone: (215) 590-1719 Philadelphia, PA 19104-6145 Fax: (215) 590-1771 Phone: (215) 898-5172 Phone: (215) 662-6014 for genetic concerns Fax: (215) 573-2326 Fax: (215) 662-6556 [email protected]

Penn State Hershey Medical Center Neuroscience Clinical Institute Thyagarajan Subramanian, MD Sol De Jesus, MD Movement Disorder Specialists 30 Hope Dr, Suite 1300 Hershey, PA 17033 Phone: (717) 531-3828 Fax: (717) 531-0298 By referral only

SOUTH CAROLINA

Neuroscience Associates The South Carolina Neurological Clinic Fredy J. Revilla, MD 1333 Taylor St., Suite 1C 200 Patewood Dr, Ste B350 Columbia, SC 29202 Greenville, SC 29615 Phone: (803) 254-6391 Phone: (864) 454-4500 Fax: (803) 799-0682 Fax: (864) 454-4505 (By referral only)

Medical University of South Carolina Movement Disorders Program Adult Neurology Clinic Christine Cooper, MD Marian Dale, MD Vanessa Hinson, MD Lilia Lovera, MD Shabbir Merchant, MD Rutledge Tower, 2nd Floor 135 Rutledge Ave Charleston, SC 29425 Phone: (843) 792-3223 Fax: (843) 876-0319 SOUTH DAKOTA Sanford Brain & Spine Clinic Jerome Freeman, MD 1210 W. 18th St., Ste 100 Sioux Falls, SD 57104 Phone: (605) 312-8500 Fax: (605) 312-8501 Sees adults only & prefers referrals TENNESSEE Vanderbilt University Medical Center Chattanooga Neurology Associates Department of Neurology Sharon Farber, MD John Fang, MD Tareck Kadrie, MD 1301 Medical Center Drive Phillip “Gabe” Tallent, MD Nashville, TN 37232 Nathan Wyatt, MD Phone: (615) 936-0060 721 Glenwood Dr. Suite W467 Fax: (615) 936-1229 Chattanooga, TN 37404 Phone: (423) 698-3423 University of Tennessee Medical Center Fax: (423) 698-1380 Department of Neurology 855 Monroe Ave, Suite 415 Memphis, TN 38163-4901 Phone: (901) 866-8810 Fax: (901) 302-2435 TEXAS

Baylor College of Medicine University of Texas SW Medical Center Parkinson's Disease Center and Neurology Clinic Movement Disorders Clinic Richard Dewey, MD Joseph Jankovic, MD Padraig 0’Suilleabhain, MD Joohi Jimenez-Shahed, MD Vikram Shakkottai, MD, PhD 7200 Cambridge, 9th Floor 5303 Harry Hines Blvd, 4th Floor MS: BCM 609 Dallas, TX 75390 Houston, TX 77030 Phone: (214) 645-8300 Phone: (713) 798-7438 Fax: (214) 645-9214 Fax: (713) 798-6808 North Texas Movement Disorders Institute Memorial Herman Madhavi Thomas, MD Neurology for Children 2004 Bedford Rd Ste 100 Joshua S. Rotenberg, MD, MMS Bedford, TX 76021 Memorial City Medical Plaza 1 Phone: (214) 432-7549 902 Frostwood Dr., Suite 210 Fax: (214) 432-6137 Houston, TX 77024 Phone: (713) 464-4107 Neurology Solutions Fax: (713) 465-4522 Movement Disorders Center Robert Izor, MD Houston Methodist Research Institute 12345 N. Lamar, Ste 260 Movement Disorders Clinic Austin, Texas 78753 Tetsuo Ashizawa, MD, FAAN Phone: (512) 977-7000 x115 Scurlock Tower Fax: (512) 977-7001 6560 Fannin St., Suite 1002 Houston, TX 77030 Texas Movement Disorders Specialists Clinic Phone: (713) 363-8184 Michael Soileau, MD Clinic Fax: (713) 790-7881 Meredith Rollins, PA Research Phone: (346) 238-5021 1900 Scenic Drive 405 Londonderry Ste 2210 Ste 205 University of Texas Health Science Center at Georgetown, TX 78626 Waco, TX 76712 Houston Phone: (512) 693-4041 (254) 572-8683 UTHealth Neurosciences-Neurology Fax: (512) 290-9226 (254) 290-9226 Mya Schiess, MD UTP Clinic 6410 Fannin, Suite 1010 Houston, Texas, 77030 Phone: (832) 325-7080 Fax: (713) 832-7263 UTAH

University of Utah Clinical Neuroscience Center Stefan M. Pulst, MD 175 N. Medical Dr. Salt Lake City, UT 84132 Phone: (801) 585-2886 VERMONT

University of Vermont Movement Disorders Center University Health Care 1 South Prospect St Burlington, VT 05401 Phone: (802) 847-4589 Fax: (802) 847-2461 VIRGINIA

Children’s Hospital of The King’s Daughters Inova Medical Group Neurology of Fairfax Thomas Enlow, MD John W. Cochran, MD Crystal Proud, MD Eric B. Sklar, MD 850 Southampton Ave 8081 Innovation Park Dr, Ste #900 Norfolk, VA 23510 Fairfax, VA 22031 Phone: (757) 668-9920 Phone: (571) 472-4200 Fax: (757) 668-9930 Fax: (571) 472-4201

University of Virginia Medical Center VCU Parkinson’s and Movement Neuroscience Services Disorders Center Movement Neuromuscular Mark Baron, MD Madaline Harrison, MD Ted Burns, MD Matthew J. Barrett, MD, MSc Binit Shah, MD Leslie Cloud, MD Alex Dalrymple, MD Jon Snider, MD Bridget Moss, RN, ACNPC (nurse practitioner) Claudia Testa, MD 1221 Lee Street – 4th Fl Primary Care 11958 West Broad Street Charlottesville, VA 22908 Henrico, VA 23233 Phone: (434) 924-2706 Clinic Office Number: (804) 828-9350 Fax: (434)-982-0606 Clinic Fax: (804) 364-6521 https://med.virginia.edu/neurology/subspecialty- divisions/general-neurology/497-2 https://med.virginia.edu/neurology/subspecialty- divisions/movement-disorders

WASHINGTON

University of Washington Medical Center Swedish Neuroscience Institute Department of Neurology Movement Disorders Ali Samii, MD (movement neurologist) Pravin Khemani, MD 1959 NE Pacific – Box 356169 Jennifer Witt, MD Seattle, WA 98195 550 17th Ave, Suite 540 Phone: (206) 598-7688 Seattle, WA 98122 Fax: (206) 598-7698 Phone: (206) 320-5331 Fax: (206) 386-3882 Neurogenetics Clinic Dept of Medical Genetics Providence Sacred Heart Marie Davis, MD, PhD Medical Center & Children's Hospital Suman Jayadev, MD Wendy Eastman, MD (Sees children) 1959 NE Pacific St – Box 357920 Child Neurology Seattle, WA 98195-7920 101 W 8th Ave., Suite 4200 Clinic Coordinator: Debra Olson Spokane, WA 99204 Phone: (206) 598-4030 Phone: (509) 474-5440 Fax: (206) 598-3269 Fax: (509) 474-6220

VA Puget Sound Healthcare System Neurology Div., Movement Disorders Clinic Marie Davis, MD PhD 1660 S Columbian Way Seattle, WA 98108 Phone (206) 764-2021 Fax (206) 764-2802

WEST VIRGINIA

WVU Medicine ARH Neurology Associates Department of Neurology Georgianna Richards, MD David Libell, MD Jack Riggs, MD 1256 N. Eisenhower Drive John Brick, MD Ann Murray, MD Beckley, WV 25801 Mouhannad Azzouz, MD Eric Seachrist, MD Phone: (304)254-2400 1 Medical Center Dr Fax: (304)254-2458 Morgantown, WV 26506 Referral is needed. Sees adult patients only. Phone: (304) 598-6127 Fax: (304) 304-598-6442 WISCONSIN

Medical College of Wisconsin University of Wisconsin – Madison Froedtert Specialty Clinics/Hospital Dept. of Neurology, Box 2425 Neurosciences Clinic Laura Buyan Dent, MD, PhD Karen Blindauer, MD Director of Movement Disorders Phone: (414) 955-6688 600 Highland Ave Ryan Brennan, DO Madison, WI 53792 Phone: (414) 805-3666 Phone: (608) 263-5442 Shiela Eichenseer, MD Fax: (608) 265-1753 Phone: (414) 805-8710 9200 W. Wisconsin Ave Arshad Ahmed, MD Milwaukee, WI 53226 2424 S. 90th St Phone: (414) 805-5200 West Allis, WI 53227 Fax: (414) 259-0469 Phone: (414) 328-7489 Fax: (414) 328-7266

PUERTO RICO

Centro Internacional de Mercadeo Frances Velez-Lago, MD Torre I. Ste. 308 Guaynabo, PR 00968 Phone: (787) 781-8139 Fax: (787) 706-0450