newsletter Vol. 01 April 2008 Contents:

1. Conference: ICF Core Sets for 2 9. ICF Core Sets for Visual 6 AS………………………. Impairment…………………. 2. Conference: ICF Core Sets for 2 10. International & EULAR ICF Core Sets validation SCI……………………… study for twelve chronic 7 condition……………………… 3. Conference: ICF Core Sets for 3 11. The use of the ICF Core Sets for the appraisal HNC……………………. of patients suffering LBP and 8 CWP………………………… 4. ICF Core Sets for Bipolar Disorders 3 12. Case studies to describe the implementation (BD)…………………. of the ICF in 8 rehabilitationpractice………………………… 5. ICF Core Sets for Hand 4 13. 9 Conditions……………………… MHADIE………………………………………………… 6. ICF Core Sets for Multiple Sclerosis 4 14. ICF 9 (MS)……………….. Workshops………………………………………… 7. ICF Core Sets for 5 Apendix I: 10 TBI………………………………………. Publications…………………………………… 8. ICF Core Sets for 6 Apendix II: Study 11 Sleep…………………………………… Centers…………………………………

Dear Partners and Friends, Conditions, we want to inform you regularly about the new projects of the ICF Research Branch at the This is the first issue of the ICF Research Branch Institute for Health and Rehabilitaion Sciences at the newsletter. With it, as we previosly did with the Ludwig-Maximilian University and about their progress. Newsletter of the Validation Study for 12 Chronic

ICF Research Branch of WHO (DIMDI) Institute for Health and Rehabilitation Sciences, Ludwig-Maximilians-Universität 1

This first issue contains a summary of the three international consensus conferences that took place during the last trimester of 2007, reports on further ICF Core Sets development projects, a list of all new publications and a list of all study centers participating in the on going projects and studies.

All best wishes from Munich, Your ICF Research Branch Team

ICF Research Branch of WHO (DIMDI) Munich Institute for Health and Rehabilitation Sciences, Ludwig-Maximilians-Universität 2

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1. International Consensus Conference on the ICF Core Sets for Ankylosing Spondylitis Annelies Boonen (Netherlands) From September 5th to 8th, 2007, the Guido A. Zäch Institute in Nottwil, Switzerland, hosted nineteen health professionals with interest and experience in ankylosing spondylitis (AS) to decide on the Comprehensive and Brief ICF Core Set for this disease.

The three day conference was performed with the Figure 2: The Swiss Paraplegic Centre (SPZ), in Nottwil. financial support and collaboration of the ASsement in Ankylosing Spondylitis working group. Among the 19 34 experts in SCI from six different health professions participants, 13 were rheumatologists, 3 (physicians, physical therapists, occupational therapists, physiotherapists, one psychologist, one nurse nurses, psychologists and social workers) and from 31 practitioner and one occupational therapist. Fourteen different countries decided on the inclusion of ICF participants were European, two ensured the North- categories in the Core Sets for SCI following a American perspective, two the South-American structured decision-making and consensus process. perspective and one the Asian perspective. Their decisions were based on the data gathered in four Dr. Annelies Boonen from the University Hospital preparatory studies including an empirical data Maastricht, the Netherlands, and Prof. Jürgen Braun collection, an expert survey, patient focus groups and a from the Rheumazentrum Ruhrgebiet, Herne, systematic review. The results of these studies were Germany, chaired the conference and leaded the presented by the project coordinators Monika participants through the consensus building process. Scheuringer (ICF Research Branch, Germany), Susie Charlifue (USA), Anne Sinnott (New Zealand) and Marcel Post (Netherlands). On the basis of this information the decisions were drawn in five working groups who were led by Wagih El-Masry (UK), Jianan Li (China), Lester Butt (USA), Diana Nix (Switzerland) and Kiley Pershouse (Australia). The group decisions were presented at several plenary sessions and discussed. The discussion was led by Alarcos Cieza (ICF Research Branch, Germany).

As a result of the conference two ICF Core Sets for SCI for each context were developed: • a Comprehensive ICF Core for SCI for the early Figure 1: Participants of the AS Consensus Conference in Nottwil. post-acute context including a selection of 162 ICF categories and a Brief ICF Core Sets for SCI for the Finally, 55 second level ICF categories were selected early post-acute context including 25 ICF categories as for the Comprehensive ICF Core Set and 19 for the well as Brief ICF Core Set for AS. All four components of the • a Comprehensive ICF Core for SCI for the long- ICF are represented in both ICF Core Sets for AS. The term context including 168 ICF categories and a Brief next step of the process, namely the validation of the ICF Core Sets for SCI for the chronic situation including agreed-on ICF Core Sets for AS, is about to start. For 33 ICF categories. further information please contact Dr. Annelies Boonen: [email protected] The completed development process will be followed by a project phase including an extensive worldwide 2. International Consensus Conference on the validation of the first versions of the ICF Core Sets for ICF Core Sets for Spinal Cord Injury SCI. The development of four ICF Core Sets within 3 days Inge Kirchberger (Germany) was associated with an enormous workload for the participants and a very tight time schedule. However, all From November 15 to November 18, 2007, the participants accepted this challenge and kept their good International Consensus Conference on the ICF Core mood and motivation until the end of the meeting. The Sets for Spinal Cord Injury (SCI) took place at the participants actually enjoyed working in multi- Swiss Paraplegic Research in Nottwil, Switzerland. The professional and multi-cultural groups. Thus, the aim of the conference was to establish ICF Core Sets conference was not only successful in the definition of for patients with spinal cord injury in the early post- the ICF Core Sets but contributed to establish a close acute and in the long-term contexts, respectively. network of SCI experts worldwide. For further information please contact Dr. Inge Kirchberger: [email protected]

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3. International Consensus Conference on the (Germany), A. Maiya (India), S. Nuyts (Belgium), M. Rogowski (Poland) and J. Vermorken (Belgium). ICF Core Sets for patients with Head and The discussion in the plenary was led by Alarcos Cieza Neck Cancer (ICF Research Branch, Germany).

Uta Tschiesner (Germany)

The International Consensus Conference on the ICF Core Sets for Head and Neck Cancer (HNC) took place from November 22 to 24, 2007 in Nottwil, Switzerland. The aim of the conference was to decide on a Brief and a Comprehensive ICF Core Set for patients with HNC.

21 experts experienced in the treatment of HNC from five different health professions (physicians, psychologists, physical therapists, nurses and social Figure.4: HNC Consensus Conference in Nottwil, Switzerland workers) and from 13 different countries were invited to decide on the ICF categories to be included in each As a result of the conference two ICF Core Sets for HNC of the two ICF Core Sets for HNC. The structured were developed: decision-making and consensus process consisted of • a Comprehensive ICF Core for HNC for discussions in working groups and afterwards, results comprehensive, multi-disciplinary assessment were presented, discussed and re-voted in the plenary. including 112 ICF categories as well as Decisions were based on the data gathered in four • a Brief ICF Core for HNC including a selection of preparatory studies including patient interviews, a categories out of the comprehensive Core Set to be world-wide expert survey, a multi-center empirical assessed in any patient with HNC with 19 ICF study and a systematic literature review. The results of categories. these studies were presented by the project team: Uta Tschiesner, Sven Becker, Michalea Coenen, Sandra Kus This development process will be followed by a and Elisabeth Linseisen. validation phase including extensive worldwide validation of the first version of the ICF Core Sets for HNC. The entire project, including the validation, is designed as an open and integrative process. Anyone interested in participating in the validation process of ICF Core Sets for HNC is highly welcome. For further information, please, contact the project leader: [email protected]

4. ICF Core Sets for Bipolar Disorders Carolina C. Ávila (Spain)

Figure 3: Participants of the HNC Consensus Conference in Nottwil, 22nd to 24th November 2007 We are happy to inform you that the project Back row from left to right: Nick Slevine, Kirsten Becker-Bikowski, “Developing the ICF Core Sets for Bipolar Disorders” Andreas Dietz, Sandra Kus, Viktor Bonkowsky, John Fagan, Simon begun during the Summer of 2007 as a collaboration Rogers, Gert Walrave, Ulrich Harreus, Uta Tschiesner, Heinrich Gall, Gerson Mast, Sven Becker, Silvia Neubert, Arun Maiya; Front row left among the Autonoma University in Madrid, Spain, the from right: Alarcos Cieza, Gerry Humphris, Sandra Nuyts, Michaela ICF Research Branch in Munich, Germany, WHO and the Coenen, Bevan Yueh, Jan Vermorken, Gerry Funk, Keunchil Park, Bipolar Disorder Programme of the Institut Clínic de Shulamith Kreitler, Megan Nut, Marek Rogowski, Suhel Hasan, Ashok Shenoy , Elisabeth Linseisen Neurosciences at the Hospital Clinic from the Barcelona University, Spain.

Each working group consisted of participants from different health professions and from different countries: The first working group was led by B. Yueh (USA) and included V. Bonkowsky (Germany), S. Kreitler (Israel), G. Mast (Germany), M. Nutt (Australia), K. Park (Korea) and A. Shenoy (India). The second working group was led by S. Rogers (UK) and Figure 5: Universidad Autonoma, Madrid. included K. Becker-Bikowski (Germany), G. Funk (USA), S. Hasan (Oman), G. Humphris (UK), N. Slevin The protocol paper “Developing core sets for persons (UK) and G. Walrave (The Netherlands). The third with Bipolar Disorder based on the International working group was led by A. Dietz (Germany) and Classification of Functioning, Disability and Health” was included J. Fagan (South Africa), U. Harreus published in Journal Bipolar Disorders and a poster

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exposing some preliminary results was presented at the “3rd Biennial Conference of the 5. ICF Core Sets for Hand Conditions International Society for Bipolar Disorders” in A new project to develop ICF Core Sets for hand Delhi, India in January 2008. conditions was launched last month at the ICF Research Branch after receiving a positive response from the German Social Accident Insurance “Deutsche Gesetzliche Unfallversicherung” (DGUV) for funding the project. This is a cooperative effort among the Institution for Statutory Accident Insurance and Prevention in the Health and Welfare Services (BGW), Hamburg, Germany, the Department of Hand Surgery, Plastic- and Microsurgery, Burns Unit at the Hospital of Workmens Compensation (BUK) Hamburg, Germany, the ICF Research Branch of the WHO at the Ludwig- Maximilian University in Munich and the Classification, Assessment and Surveys (CAS) team at WHO. If you require further information, please do not hesitate to contact Sandra Kus, leader of the project ([email protected]).

6. ICF Core Sets for Multiple Sclerosis Michaela Coenen (Germany) Figure 6: Team members Madrid: Back row from left to right: José Luis Ayuso, Roberto Nuevo. Front row left from right: The project “Development of ICF Core Sets for Multiple Marta Miret , Maria Cabello and Carolina Avila. Sclerosis (MS)” is a cooperative effort of the

Department of Neurorehabilitation at the Valens In the next lines, we inform you about the state of Rehabilitation Centre and the ICF Research Branch*. It affairs in the project. is our pleasure to inform you that the four preparatory Expert Survey studies of the project are coming to an end. At this After recruiting health professionals from all six point, we would like to express our sincere gratitude to different WHO-world regions to participate in this all parties concerned for their cooperation and study, we recently started the online expert survey and enthusiasm. are currently gathering answers from experts on Bipolar Disorders. We would like to thank all experts Systematic review that participated so far for their collaboration. Totally, 354 articles of 2000 randomly selected

abstracts fulfilled the predefined eligibility criteria. The Additional experts willing to participate are encouraged identification of parameters reported in these full-text to contact us at: [email protected]. articles is completed. Within the next weeks the

identified parameters will be linked to ICF categories. Systematic Literature Review Qualitative study An electronic search was conducted in MEDLINE® and Six focus groups (28 participants) and five individual PsycINFO® for articles on bipolar disorders published interviews were conducted at the Marianne Strauss between 2000 and 2006 (both included). The abstracts Clinic in Kempfenhausen (Germany). The data analysis of all retrieved articles have already been screened for is in process. inclusion according to pre-agreed criteria and Expert survey parameters contained in the included articles are currently being retrieved. The expert survey was performed as an internet survey to gather the opinion of physicians, physical therapists, Empirical Studies occupational therapists, nurses, (neuro-) psychologists, speech & language therapists, and social workers. Data on patients with bipolar disorder based on the ICF Initially an expert pool of 505 health professionals was are being collected at the Hospital Clinic in Barcelona identified. A stratified sample of 182 potential (Prof. Vieta) and the Hospital Universitario de la participants was drawn considering the criteria health Princesa in Madrid (Prof. Ayuso-Mateos). profession and WHO world region. One hundred three health professionals from 46 countries filled in the Qualitative Studies questionnaire (95%). Totally, 7.551 different answers To address the patients’ perspective in the process of could be retrieved from the expert survey. Health developing the ICF Core Sets for BD individual professionals and researchers involved in the linking of interviews are being performed at the La Princesa the retrieved answers were trained by Michaela Coenen Hospital in Madrid with individuals suffering from during a workshop at the ICF Research Branch from Bipolar Disorder type I and II in an euthymic state. September 24th to 26th 2007. The linking of the

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answers to ICF categories and data analysis will be (Switzerland) from May 2nd to 4th, 2008. Following a completed in March 2008. multi-stage decision process, 21 selected experts will agree on the ICF categories to be included in the ICF Core Sets for MS. For further information please contact Dr. Michaela Coenen: [email protected]

Presentations & Publications Poster presentations were held at the 80th Congress of the German Society for Neurology (Berlin, Germany, September 12-15, 2007) and the 23rd Congress of the European Committee for Treatment and Research of Multiple Sclerosis (ECTRIMS) and the 12th Conference of Rehabilitation in Multiple Sclerosis (RIMS) (Prague, Czech Republic, October 11–14, 2007). The protocol paper: „Developing the ICF Core Sets for multiple sclerosis to specify functioning” has been Figure 7: Participants of the MS training workshop in Munich, published in Multiple Sclerosis 24th to 26th September 2007 (http://msj.sagepub.com/cgi/content/abstract/1352458 Back row from left to right: Michaela Coenen, Andreas 507082615v1). Weidmann, Susanne Borkert, Tanja Übel, Kathrin Allgöwer, Andrea Fritz, Andreas Leib, Andrea Wiedenmann, Andrea * funded by the Hertie Foundation Fahlböck; Front row left from right: Lena Spitzer, Andrea Glässel, Katrin Schorer, Petra Bauer (not on the foto: Eike 7. ICF Core Sets for Traumatic Brain Injury Hirschmann) Sara Laxe (Spain)

After the first meeting in Rome May 2007 within the framework of the World Federation for Neurorehabilitation and after being trained in the workshop at the WHO Collaborating Branch in Munich October 2007, we are happy to inform you that we are working hard in the development of the ICF Core Sets for Traumatic Brain Injury. This project is coordinated at the Institut Guttmann (Dr. Sara Laxe and Raquel Lopez) and is a cooperative effort of the ICF Research Branch of the WHO at the Ludwig- Maximilian University Munich, the Classification, Assessment and Surveys (CAS) team at WHO, the International Society of Physical Medicine and Rehabilitation (ISPMR).

Figure 8: Participants of the MS training workshop in Munich, 24th to 26th September 2007 Back row from left to right: Kathrin Allgöwer, Johanna Karner, Susanne Borkert, Eike Hirschmann, Andrea Fritz, Michaela Coenen, Andreas Leib, Andrea Fahlböck, Andrea Wiedenmann; Front row left from right: Lena Spitzer, Katrin Schorer, Andrea Glässel, Sandra Kus, Petra Bauer (not on the foto: Tanja Übel)

Cross-sectional empirical study

Two hundred and five patients were included in the Figure 9: Institut Guttmann, Barcelona, Spain. empirical study. The study was performed at the Valens Rehabilitation Centre, the University Hospital Zurich, Switzerland (Department of Neurology), the Swiss Multiple Sclerosis Society, Switzerland, and the Rehabilitation Centre Quellenhof, Germany.

ICF Consensus Conference The International ICF Core Set Consensus Conference will be held at the Valens Rehabilitation Centre

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The protocol paper “Development of core sets for persons with traumatic brain injury based on the Expert Survey International Classification of Functioning, Disability From the overall pool of 380 that gave a positive and Health” is currently being prepared. response to either the first contact/reminder/final call

reminder to the initial pool of approx. 2700 experts Expert Survey contacted from all the WHO regions and the disciplines An expert survey will be conducted online to gather involved in Sleep Medicine care 176 Experts were opinions from health professionals around the world selected. The 176 questionnaires were sent out on the about the most important and relevant aspects to 24th of April 2007 and the deadline for the final call traumatic brain injury. reminder was the end of October 2007. All in all 123 completed questionnaires have been returned. The data Systematic Literature Review collection has consequently been terminated and all the meaningful concepts within the answers of the experts An electronic search was conducted in MEDLINE®, have been extracted. The linking of these meaningful PsycINFO®, EMBASE and CENTRAL databases for concepts to the categories of the ICF started in January articles on Traumatic Brain Injury that have been 2008. published between 2002 and 2007 (both included) and the abstracts of all the retrieved articles were screened Systematic Literature Review for inclusion according to pre-agreed criteria. Dr. Sara Laxe and Dr. Giovanna Mitchell ([email protected]) are A literature review with the aim to study what sleep- conducting this study. related variables have been investigated in the field of Qualitative study spinal cord injury has been conducted. • A highly sensitive search in medline, embase, Focus groups with patients with TBI and/or their psychinfo databases was performed, resulting in the families will be performed to address the patient’s identification of 23 relevant papers recording on the perspective. This study will be started in April 2008. occurrence of sleep disorders or sleep interferences in Empirical Studies SCI study populations. We have done a systematic literature review in order to • A poster presentation of the results took place with decide which are the most common outcome scales great success under the theme of ‘Sleep in Medical used in Traumatic Brain Injury to prepare the case Disorders’ at the 5th world sleep congress of the record forms for the study. We will be glad to have WFSRSMS (World Federation of Sleep Research and other hospitals collaborating with us. This study will be Sleep Medicine Societies), on Sept 2-6, 2007 in Cairns, conducted by Dr Sara Laxe and Raquel Lopez Australia. ([email protected], [email protected]). Empirical Studies The two empirical studies (qualitative study with focus groups / empirical-quantitative study with individual interviews using the extended ICF-checklist) of the preparatory phase began in January 2008. In order to identify the extension categories to the ICF-checklist a systematic review and a linking process was also performed. In this process 104 distinct sleep questionnaires have so far been identified through reviews and international guidelines in sleep medicine practice and research. The main study centers for conducting the interviews are the sleep centers of the Figure 10:Dr. Sara Laxe Figure 11:Raquel López University Hospital in Zurich (Claudio Bassetti, Ramin Khatami) and the Insel-University Hospital in Berne 8. ICF Core Sets for Sleep (Matthias Gugger, Johannes Mathis). Additional study centers can participate in the studies of the preparatory Felix Gradinger (Nottwil, Switzerland) phase. If you are interested please contact Felix

Gradinger: [email protected] The protocol paper of the project “Developing ICF Core

Sets for persons with sleep disorders based on the

International Classification of Functioning, Disability and Health” and the “Content comparison of health- related quality of life instruments for obstructive sleep apnea” have been preliminarily published online in July 2007 in a special section of the international journal Sleep Medicine called „World Health Organisation (WHO) – World Association of Sleep Medicine (WASM) Recommendations“

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9. ICF Core Set for Visual Impairment / Low Research Branch. There have been already several teams from collaborating study centers who have Vision started, with the support of the ICF research team in Dr. Stephan Froehlich (Germany) Munich, national analyses and even some have published the results on data collected for the As a collaborative project among the Department of international validation study. This is the case of Dr. Ophthalmology at the LMU, the Classification, Feng Xie from Singapore, who collected data from Assessment and Surveys (CAS) team at WHO, and the patients suffering knee osteoarthritis within this study ICF Research Branch, the ICF Core Sets for Visual and had already published the results in the paper: Impairment are currently being developed. “Validation of the Comprehensive ICF Core Set for Following the standard procedure of ICF Core Sets Osteoarthritis (OA) in Patients with Knee OA: A development, the preliminary studies have been Singaporean Perspective.“ in the Journal of launched. Cornelia Lackerbauer is engaged with the rheumatology. literature review now starting the data extraction after having concluded the abstract checking. We estimate 10.1. Validation of Comprehensive ICF to finish this part by the summer this year. Danny Core Sets from the patient perspective Loyola and Juliane Leissner are performing the patient interviews within the empirical studies. About 100 Using the validation of Comprehensive ICF Core Set for interviews have been performed up to now. Major parts RA as a case in point, a protocol was developed to of the other studies will be started this year as well, i.e. validate ICF Core Sets from the patient perspective to the focus groups and the expert survey. For further be used for different health conditions and in different information please contact Dr. Stephan Froehlich: countries. In the meantime several researchers have [email protected] started the process of validating ICF Core Sets for

different health conditions using the protocol (see table 10. International & EULAR ICF Core Sets on page). For the studies in foreign countries listed Validation Study for 12 different chronic below the open-ended questions were translated according to a standardized translation procedure. conditons For further information please contact Alicia Garza (Germany) [email protected]

The data collection for the empirical validation study for chronic conditions is coming to an end. The data 10.2. Validation of the ICF Core Sets from collection will be finished during the summer of 2008. Up to now we have received data from 119 study the perspective of health professionals centers throughout the world. The distribution of the study centers per WHO region is as follows: The main question is whether the interventions applied to patients with a specific health condition by different Eastern Mediterranean Region: 10% health professionals and the intervention-related effects European Region: 76% on the patients' functioning and well-being are Region of the Americas: 4% represented in the ICF categories selected for the South East Asia Region: 1% corresponding ICF Core Sets. This approach is being Western Pacific Region: 9% pursuit with an international survey of experts (physicians, physical and occupational therapists, The following figure shows the number of study centers nurses, psychologists and social workers) according to in each WHO Region that have collected data during the Delphi method. the study. Interested persons please contact Dr. Inge Kirchberger: [email protected]

Fig. 12: Number of study centers per WHO world region.

Currently all data, that has been received is being cleaned and prepared for the analyses at the ICF

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The following Delphi studies have been performed or within the medical opinion files is contained in the ICF are in process: Core Sets for low back pain and chronic widespread Tab 1 Surveys with experts: pain. For further information, please contact: [email protected]

12. Case studies to describe the implementation

of the ICF in rehabilitation practice Social Social Nurses Physical Physical Worker+

Physician therapists therapists Occupational

Psychologists To apply the ICF and ICF Core Sets in rehabilitation practice ICF tools needed to be developed. These tools Breast Cancer √ aim to facilitate the understanding and descriptions of the individual’s functioning in rehabilitation Chronic Ischaemic management and provide an ICF based documentation Heart Disease which contributes to multidisciplinary team approaches. Chronic * To illustrate the use of these ICF tools in rehabilitation Widespread Pain practice the case studies project was initiated at the Depression Swiss Paraplegic Research (SPR) in October 2006. The Diabetes Mellitus √ Swiss Paraplegic Research aims to contribute to optimal functioning and social integration, health and quality of Low Back Pain √ √ life of people with Spinal Cord Injury (SCI) through Obesity + clinical and community oriented research (www.paranet.ch/sw39033.asp). Obstructive √ √ Pulmonary Diseases

Osteoarthritis √

Osteoporosis √

Rheumatoid √ √ √ √ √ Arthritis Methods - Case studies Stroke √ √ √ The aims of the Case study project are √ = process completed; *= process initiated - to illustrate the use of ICF tools in a structured + = the validation of the ICF Core Sets from the rehabilitation management based on the Rehab- perspective of social workers have been performed in Cycle general without referring to any specific health - to demonstrate a patient-oriented rehabilitation condition. approach based on the individual’s perspective suffering from SCI 11. The use of the ICF Core Sets for the appraisal of patients suffering low back In the project, persons suffering from SCI by different reasons and varying in age, gender, cause and severity pain and chronic widespread pain of disease, are accompanied and monitored during a In collaboration among the ICF Research Branch and specific time in a specific rehabilitation phase. Since the German Pension Insurance (Federation) of different patients with SCI and the involved health professionals federal states an 18 month project was started early are faced with a lot of physical, psychological and social this year. The aim of the study is to verify if the ICF challenges, the Case studies aim to cover a broad Core Sets can provide a basis for the appraisal of spectrum of these challenges, from biological to patients suffering low back pain and chronic psychological and environmental aspects. To satisfy the widespread pain. The appraisal of patients based on the broad spectrum altogether 20 cases will be described bio-psycho-social model of the ICF will allow a and published on a publicly available website. systematic assessment of functioning and disability and will lead to the standardization of the medical opinion The use of ICF tools (namely ICF Assessment Sheet, the files, facilitating the communication between physicians ICF Categorical Profile, ICF Intervention table and ICF and insurance companies. Evaluation display) is illustrated in the steps of the rehabilitation processes (assessment, assignment, The contents of 600 randomly selected medical opinion intervention and evaluation) in each of the cases. files will be analyzed. The identified concepts will be Additional information about the ICF and the ICF tools is translated into the language of the ICF. This so-called also available at the website. "Linking" will be performed by social evaluators and by members of the ICF Research Branch. The results of To foster an educational approach the readers of the the study will verify whether all relevant information website are invited to check their knowledge about the

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ICF and SCI within answering open questions and the attendees are already collaborating in the specific quizzes. development of ICF Core Sets for traumatic brain injury; some others are interested in developing ICF Core Sets The website is open to public access; the first four for Amputees. Interest was shown in other areas as cases are already uploaded: hand functioning, oral functioning as well as hearing http://www.icf-casestudies.org/ impairment. For further information, please contact [email protected]

13. Project completion:“Measuring Health and Disability in Europe” (MHADIE) MHADIE research has demonstrated the feasibility, utility and value of the ICF as a model for harmonising data across populations and sectors in Europe. Such data assist countries in developing realistic, evidence- based and effective social policies for persons with disabilities that will achieve equality of opportunities and full participation. MHADIE results will facilitate a comprehensive description of disability, an evidence based definition of domains of disability and a baseline reference population for comparisons, thereby increasing the EU capacity of analysis as requested by the EU disability Action Plan 2006-2007. In this way, Figure 13: Participants of the ICF Core Set Development workshop in Munich, 16th and 17th October 2007 inequalities can be described and measured by the Back row from left to right: E. Kraft, L. Peyrin, A. Leib, E. Baütz-Holter, difference between opportunities for participation of K. Grabljevec and L. Fava. Middle row: A. Cieza, R. Tate, Y. Bucher, E. persons with and those without impairments Linseisen, U. Cizman, D. Faulks, C. Johansson, B. Aiachini, S. Laxe, S. experience. These inequalities represent unmet Kus, R. Lopez, A. Garza, S. Landa and G. Stucki. Front row: U. Sveen, H. Lüthi, M. Garcia, S. Kleemann, C. Roe and P. Boldrini resource and service needs linked to impairments, including needs created by discriminatory policies and The workshop which took place last February was practices. Identification of disability inequalities is also attended by twenty health professionals from many mandated by the recently approved UN Convention for different countries, namely, , Canada, Czech the Rights and Dignity of Persons with Disabilities. Republic, France, Germany, Hungary, Switzerland, UK

and USA. Oral pain, dementia and children disability By providing a common framework for defining and were the main areas of interest within the participants. measuring disability, MHADIE's results help to improve the accuracy and comparability of estimates of prevalence of impairments and disability Europe wide. The methodology used and the system developed during the research period have allowed the harmonisation of disparate data sets collected at national and international levels. This has led to an integration of existing statistical information systems across nations, sectors and life span.

14. ICF Core Set Development Workshops

Two training workshops on the methods to be followed for the Development of ICF Core Sets took place on Figure14: Participants of the ICF Core Set Development workshop in th th th th Munich, 25th and 26 th February 2008 October 16 and 17 , 2007 and on 25 and 26 of Back row from left to right: G. Rivier, G. Stucki, S. Wadle, P. Jaegher, V. February 2008 at the Institute for Health and Krutsch, A. Mohagheghi, I. Prime, P. Ryckx, M. Schindl, S. Szeczecinna, Rehabilitation Sciences in Munich. The contents of the A. Al-Khodairy, S. Kus, V. Schiariti, L. Garcia, M. Coenen, I. Kirchberger, two-day workshop were: 1)an introduction into the ICF, I. Schäfer, E. Simoncsics, C. Sabariego, H. Matlasová, J. Kupková. Front row: A. Garza, S. Mackensen, R. Escorpizo and A. Cieza 2) general information on the process for the Development of the ICF Core Sets and 3) detailed information on the preliminary studies: patient The ICF Research Branch will offer similar workshops interviews, literature review, empirical study and periodically. The workshops will be planned depending expert survey. on the demand; if you are interested in attending such a meeting please contact: [email protected] Nineteen participants coming from Australia, France, muenchen.de. Germany, Italy, Norway, Slovenia, Spain, Sweden and Switzerland attended the meeting in October. Many of

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APPENDIX I New Publications of members of the ICF Research Branch:

Allet L, Cieza A, Burge E, Finger M, Stucki G, Huber EO. Intervention categories for physiotherapists treating patients with musculoskeletal conditions on the basis of the International Classification of Functioning, Disability and Health. Int J Rehabil Res. 2007 Dec;30(4):273-280. PMID: 17975446 [PubMed - as supplied by publisher]

Stamm TA, Bauernfeind B, Coenen M, Feierl E, Mathis M, Stucki G, Smolen JS, Machold KP, Aringer M. Concepts important to persons with systemic lupus erythematosus and their coverage by standard measures of disease activity and health status. Arthritis Rheum. 2007 Oct 15;57(7):1287-95. PMID: 17907225 [PubMed - indexed for MEDLINE]

U. Tschiesner · A. Cieza · S. N. Rogers · J. Piccirillo ·G. Funk · G. Stucki · A. Berghaus Developing core sets for patients with head and neck cancer based on the International Classification of Functioning, Disability and Health (ICF) Eur Arch Otorhinolaryngol (2007) 264:1215–1222 van Echteld I, Cieza A, Boonen A, Stucki G, Zochling J, Braun J, van der Heijde D Identification of the most common problems by patients with ankylosing spondylitis using the international classification of functioning, disability and health. J Rheumatol. 2006 Dec;33(12):2475-83. Epub 2006 Oct 15.

Jurg Kesselring, Michaela Coenen, Alarcos Cieza, Alan Thompson, Nenad Kostanjsek, and Gerold Stucki Developing the ICF Core Sets for multiple sclerosis to specify functioning Multiple Sclerosis 2007, doi:10.1177/1352458507082615 © 2007 SAGE Publications

Xie F, Lo NN, Lee HP, Cieza A, Li SC. Validation of the Comprehensive ICF Core Set for Osteoarthritis (OA) in Patients with Knee OA: A Singaporean Perspective. J Rheumatol. 2007 Oct 15; [Epub ahead of print] PMID: 17937460 [PubMed - as supplied by publisher]

Weigl M, Cieza A, Cantista P, Reinhardt JD, Stucki G. Determinants of disability in chronic musculoskeletal health conditions: a literature review. Eura Medicophys. 2007 Nov 9; [Epub ahead of print].

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APPENDIX II Lists of Study Centers participating Bone and Cartilage Metabolism Unit in the projects: CHU Centre – Ville Prof. Jean-Yves Reginster a) ICF Core Sets for chronic conditions: Kuleuven Department of Rheumatology international validation study Prof. Frank Luyten René Westhofen Argentina University of Liege Hospital San Juan Bautista Department of Public Health, Epidemiology and Health Calle Dr. Julio Herrera 432 Barrio Judicial Economics 4700, Catamarca Prof. Olivier Bruyère Dr. Sergio Miguel Toloza Brazil Australia Hospital das Clinicas, School of Medicine, Braeside Hospital University of Sao Paulo Rehabilitation Medicine Rehabilitation Medicine Locked bag 82, Wetherill Park Rua Diderot, 43 - Vila Mariana 2164 New South Wales 04116-030 Sao Paulo Dr. F. Köhler Prof. Dr. Linamara Rizzo Battistella Centre for Rheumatic Diseases, Institute for Work & Health University of Melbourne Health Services Research Level 4 Clinical Services Bldg. 481 University Ave RMH Grattan St Toronto M5G 2E9 Ontario Parkville, Melbourne Dr. Jaime Guzman 3050 Victoria McGill University Health Centre (Royal Victoria Dr. Richard Osborne Hospital) Lourdes Hospital, Health and Aged Care Clinical Epidemiology Servicies R4.29, 687 Pine Ave W. Rehabilitation Medicine H3A 1A1 Montreal, Quebec NSW 2830 Dubbo Prof. Nancy Mayo Dr. Jagdish Maharaj McGill University Jewish General Hospital University of Melbourne Division of Rheumatology Victorian Rehabilitation Research Institute Suite A216, 3755 St. Catherine Rd. Poplar Road H3T 1E2 Montreal, Quebec 3052 Melbourne, Victoria Dr. Murray Baron Prof. Dr. Peter Disler Santa Casa de Sao Paulo Austria Servico de Fisiatria Donauspital Rua Domiciano Rossi 300 Ap. 32 Physical Medicine & Rehabilitation 09726-121 Sao Paulo Langobarelenstrasse 122 Dr. Eduardo de Melo Carvalh A-1220 Wien Universidade Federal do Rio de Janeiro Dr. Christine Prager Hospital Universitário Clementino Fraga Filho Serviço Kaiser-Franz-Josef-Spital/ SMZ Süd de Medicina Física e Reabilitação Av. Brigadeiro Institut für Physikalische Medizin Trompowski, s/n 2 andar Ilha do Fundão Rio de Kundratstrasse 3 Janeiro 1100 Prof. Dr. Carmen L Natividade de Castro Prof. Dr. Michael Quittan Chile Medical University of Innsbruck Hospital Clinico, Universidad de Chile Clinical Department of Internal Medicine, Physical Medicine and Rehabilitation Rheumatology Unit Santos Dumont 999 Prof. Manfred Herold Dr. Carlo Paolinelli Grunert Univ. Klinik für Innere Medizin Physical Medicine Anichstr. 35 6020 Innsbruck China Doz. Dr. Erich Mur University Clinic for Physical Medicine and Affiliated Taihe Hospital of Yunyang Medical Rehabilitation College Währinger Gürtel 18-20 Department of Rehabilitation Medicine 1090 Wien Renmin Southroad 32 Prof. Dr. Veronika Fialka-Mose 442000 Hubei Shiyan Belgium Ass Prof. Feng Jin Cai, Ass Prof. Gang Wang Ass Prof. Hai feng Li, Ass Prof. Xiaohu Zhu, Ass Prof. Yuanhong Xu Beijing Cancer Hospital Department of Medical Oncology No.52 Fucheng Road, Haidian District 100036 Beijing Dr. Lijun Di First Affiliated Hospital of Nanjing Medical University

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Rehabilitation Department 510630 Guangzhou 300 Guangzhou Road Ass Prof. Xiquan Hu 210029 Nanjing Tongji Hospital, Tongji Medical College Dr. Xiao Lu, Dr. Guangxu Xu, Dr. K. Yin, Department of rehabilitation Medicine Dr. Tong Wang, Dr. Zhongli Jiang, Dr. Xiaojun Zhu 1095 Jiefang Street First Hospital of Beijing University 430030 Wuhan Department of Physical Medicine and Rehabilitation Ass Prof. Dr. Tiecheng Guo, Dr. Shao Bi No. 8 Xi Shiku Street, West District Tung Wah Hospital, University of Hong Kong 100034 Beijing Division of Rehabilitation, Dept. Of Medicine Ass Prof. Xie Bin 12 Po Yan Street Fujian College of Traditional Chinese Medicine Sheung Wan, Hong Kong PMR and Acupunture & Message Dr. Leonard S.W. Li Fuzhou 350180 Fujian Dr. Xiangbin Wang, Lishan Huang Vuk Vrhovac University Clinic Guangdong Provincial Work Injury Diabetes, Endocrinology and Metabolic diseases Rehabilitation Center Rehabilitation Department Dr. Mirjana Pibernik-Okanovic Conhua Hotspring 105# Cyprus 510970 ConHua Limassol Center of Physical & Rehabilitation Dr. Liu Siwen Medicine Huazhong University of Science and Technology Physical and Rehabilitation Medicine PMR 43, Vassilis Michaelides Str. No. 1095 Jiefang Avenue 3026 Limassol 430030 Wuhan Hubei Dr. Nicolas Christodoulou Dr. Tao Xu, Ms Ting Zhang, Prof. You, Czech Republic Prof. Shiying Yu, Prof. Xiaonan Tao, Charles University in Prague Prof. Xiaolin Huang Department of Rehabilitation Medicine Jiangsu Province Hospital First Faculty of Medicine Department of Geriatrics Albertov 7 300 Guangzhou Road Prague 2, 12800 210029 Nanjing Olga Svestkova M.D., Ph.D. Dr. Chuanwei Zhou Dr Jiri Votava Nanfang Hospital of Nanfang Medical University Institute of Rheumatology Department of Rehabilitation Medicine Na Slupi 4 North Avenue of Guangzhou 1838 Prof. Jiri Vencovsky 510515 Guangzhou Dr. Hana Jarosova Dr. hong Zhang Jian Egypt Peking Union Medical College Hospital, Chinese Al Azhar University Academy of Medical Sciences Department of Rheumatology Department of Endocrinology Prof. Hammoud Hesham Salah Wang-Fu-Jing St. National Public Health Institute 100730 Beiijing Department of Health and Functional Ability Prof. Dr. Heng Wang Dr. Markku Heliövaara South-West Hospital, The Third Military Medical ORTON Research Institute University Foundation for Invalids Department of Rehabilitation Medicine Tanholantie 10 38# Gao-Tan-Yan St. FIN-00280 Helsinski 400038 Chong Qing PhD, docent Juhani Smolander Dr. Yin Qing France Sun Yat-sen University, The Second Affiliated Hospital Department of Rehabilitation Medicine No 107 Yan Jiang West Road 510120 Guangzhou Prof. Dr. Tiebin Yan, Dr. Lv Xiao The Longgang Centre Hospital of Shenzhen Rehabilitation Medicine No. 1228 Shenhui road, Longgang District 518116 Shenzhen, Guangdong Dr. Chunfeng Ran The Second People's Hospital Affiliated to Fujian College of TCM Rehabilitation Center No. 13 Hudong Branch Road 350003 Fuzhou Dr. Shizhong Wang, Prof. Lidian Chen The Third Affilated Hospital of Sun YatSen University Department of Rehabilitation Medicine Tianhe Road No. 600

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Chug Hopital Sud Prof. Dr. med. M. Linden Department of Rheumatology Dipl. Psych. St. Baron PR Philippe Gaudin Burg-Klinik CHU-Lapeyronie Burgstr. 19 Service d´Immuno-rhumatologie 36457 Stadtlengsfeld Dr. Jacques Morel Dr. med. H. Süß Faculte de Medicine, Universite Henri Poincare Deegenbergklinik Ecole de Santé Publique Innnere Medizin, Orthopädie, Kardiologie Nancy 1 Burgstraße 21 Prof. Dr. Francis Guillemin 97688 Bad Kissingen Rangueil University Hospital Prof. Dr. Deeg Department od Rheumatology Drei Burgen Klinik Prof. B. Mazières Psychologische Abteilung University Francois Rabelais, Zum Wacholder Medical Faculty 55583 Bad Münster Service du Rhumatologie Dipl.-Psych. Christa Wiedemann Hopital Trousseau DRK Schmerz-Zentrum PR Pierre Valat Auf der Steig 16 University of Nice 55131 Mainz Department of Rheumatology Prof. Dr. med. H-R. Casser Academic Hospital L´Archet I Dr. med. M. Legat Prof. Liana Euller-Ziegler Edertal Klinik Germany Fachklinik für Psychosomatik und Verhaltensmedizin Akademie für Handrehabilitation Ziergartenstrasse 9 Im Unterdorf 15 34537 Bad Wildungen 31812 Bad Pyrmont PD Dr. med. U. Michalak R. Zumhasch Dr. med. C. Tegtmeier Albert Schweitzer Klinik Parkstraße. 10 Fachklinik Allgäu 78126 Königsfeld Pneumologie Dr. R. Lang Peter-Heel-Str. 29 Ambulantes Rehabilitations Centrum Grevenbroich 87459 Pfronten Montanusstr. 54 Dr. med. C. Müller 41515 Grevenbroich Fachklinik Bad Bentheim Dr. Meier Am Bade 1 Dipl. Psych. K. Reinards 48455 Bad Bentheim Ambulantes Rehablitationszentrum PD Dr. med. J. Lohmann Wöhrder Wiese Oliver Dienemann Hadermühle 8 90402 Nürnberg Fachklinik Bad Heilbrunn Dipl.-Ing. (FH) H.-F. Bär Wörnerweg 30 ANR Bonn 83670 Bad Heilbrunn Graurheindorfer Str. 149 a Dr. M. Hieber 53117 Bonn Fachklinik Enzensberg Dr. med. M.L. Wohlfarth Höhenstsr. 56 H. Lorenzen 87629 Füssen/Hopfen Asklepios Klinik Triberg Dr. med. Steller Ludwigstraße 1 + 2 K. Elvers 78098 Triberg/ Schwarzwald Fachklinik für Neurologische Rehabilitation am Dipl.-Psych. E. Pommerenk Bezirksklinikum Regensburg Augusta-Medical-Clinic Universtitätsstr. 84 August-Bebel-Str. 8 93042 Regensburg 45525 Hattingen Dr. med. Weber Dr. med. J. Bachmann Dr. med. F. Seier Bayerisches Rheuma- und Orthopädie-Zentrum Dr. med. Hechenrieder Medizinische Kliniken Fachklinik Herzogenaurach Kaiser-Karl V. - Allee 3 Abteilung für Neurologie und Neuropsychologie 93077 Bad Abbach In der Reuth 1 Prof. Dr. med. H. Menninger 91074 Herzogenaurach BfA Klinik Hochstaufen Dr. med. W. Schupp Fachabteilung Kardiologie und Gastroenterologie Dr. med. U. Hoeß Herkommerstraße 2 Fachklinik Ichenhausen 83457 Bayerisch Gmain Neurologie Dr. Kai Christof Weber Krumbacherstr. 45 Dr. Günter Haug Nicole Häussler BfA Rehabilitationsklinik Seehof Fachklinik Rhein / Ruhr Abt. Verhaltenstherapie Auf der Rörsch 2 Lichtenfelder Allee 55 45219 Essen-Kettwig 14513 Teltow / Berlin Dr. med. A. Thilmann,Dr. med. L. Benesch,Dr. St.

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Gronemeyer, Dr. med. Wondzinski Klinik Bavaria Kreischa Fachklinik Wolletzsee Neurologie Medizinisch berufliche Orientierung MBO Zur Welse 2 An der Wolfsschlucht 1-2 16278 Angermünde 01731 Kreischa Ruth Kirsch Dr. Dr. Jürgen Knörzer Dr. med. Diana Djouchadar Klinik für Neurologische und Geriatrische Franz von Prümmer Klinik Rehabilitation im KWA Stift Rottal Bahnhofstr. 16 Max-Köhler-Str. 3 97769 Bad Brückenau 94086 Bad Griesbach Martina Baumann-Hillenbrand CA Dr. med. Christoph Garner Friesenhörn-Nordsee-Kliniken Medizinische Abteilung Klinik Herzoghöhe Möwenstr. 170 ff Kulmbacher Str. 103 26434 Wangerland 95445 Bayreuth Dr. med. St. Berghem, H. Janßen Dr. med. J. D. Kargus Geriatrische Rehabilitationsklinik der AWO Klinik Höhenried gGmbH Kantstr. 45 Innere Medizin - Kardiologie - Psychotherapie 97074 Würzburg 82347 Bernried / Starnberger See Dr. med. W. Swoboda Dr. med. J Gerhring Hedon Kliniken Hedonallee 1 Klinik Hoher Meissner 49811 Lingen Orthopädie P. Thiele Hardtstraße 36 Prof. Dr. med. T. Mokrusch 37242 Bad Sooden-Allendorf Dr. med. A. Wagner Institut für klinische Osteologie Gustav Pommer – DER FÜRSTENHOF Klinik im Alpenpark Am Hylligen Born 7 Innere Medizin - Kardiologie - Psychotherapie 31812 Bad Pyrmont Defreggerweg 2 - 6 Dr. med. Peifer 83707 Bad Wiessee Prof. Dr. med. H. Schmitz Isar Amper Klinikum Klinikum München-Ost Klinik im Hofgarten Vockester 72 Am Hofgarten 1 85529 Haar 88339 Bad Waldsee Dr. H. Pfeiffer Dr. med. U. Hedderich Johanna Etiennen Krankenhaus Neuss Klinik Möhnesee Am Hasenberg 46 Kardiologie - Rehabilitation 41462 Neuss Schnappweg 2 Prof. Dr. med. h.c. J. Jerosch 59519 Möhnesee Dr. med. A. Schulz Dr. med. R. Schubmann Klaus Miehlke-Klinik Klinik Porta Westfalica Rheumatologie Steinstr. 65 Leibnizstr. 23 32547 Bad Oeynhausen 65191 Wiesbaden Dr. med. M. Gassman Dr. med. W. Bolten Klinik Reinhardshöhe Klinik am Regenbogen Onkologie Fachklinik für Neurologische Rehabilitation Quellenstr. 8 – 12 Eichendorffstrasse 21 34537 Bad Wildungen 93149 Nittenau PD Dr. med. Oliver Rick Prof. Dr. med. T. Henze M. Böhmker Klinik Roseneck Med. Psychosomatik Klinik Bad Oexen Am Roseneck 6 Oexen 27 Dr. med. A. Hillert 32549 Bad Oeynhausen Dr. med. T. Schulte Klinik St. Irmingard Health Promoging Hospital - WHO Klinik Bad Reichenhall Osternacher Str. 103 Abteilung Pneumologie / Orthopädie 83209 Prien am Chiemsee Salzburgerstr. 8-11 Dr. med. U. Hildebrandt 83435 Bad Reichenhall Frau PD Dr. S. Lang Klinik und Poliklinik der Physikalischen Medizin Frau Dr. B. Scholtz und Rehabilitation Universität München Klinik Bavaria Bad Kissingen Marchioninistr. 15 Orthopädie 81377 München Von der Tannstr. 18-22 Prof. Dr. med. G. Stucki 97688 Bad Kissingen Klinikum Bad Bocklet Dr. med. U. Grünberg Frankenstr. 36 Dr. med. F. Weilbach 97708 Bad Bocklet Dr. med. H. Süß Dr. med. G. Kosmützky Klinikum Berchtesgadener Land

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Psychosomatische Medizin und Psychotherapie Neurologisches Rehabilitationszentrum Leipzig Malterhöh 1 Muldentalweg 1 83471 Schönau am Königssee 04828 Bennewitz Dr. med. O. Jerke Prof. Dr. H. Hummelsheim Klinikum Bremen-Ost PD Dr. M. Schubert Institut für Physikalische und Rehabilitationsmedizin Neuro-Orthopädisches Krankenhaus Züricher Str. 40 und Zentrum für Rehabilitative Medizin Soltau 28325 Bremen Oeninger Weg 59 Dr. Rudolf Siegert 29614 Soltau Klinikum Staffelstein Dr. med. Alfons Meyer Orthopädische Klinik Dr. med. Thomas Seidel Am Kurpark 11 96231 Bad Staffelstein Nordseeklinik Norderney Dr. med. St. Middeldorf Bülowallee 6 Kurpark-Klinik 26548 Norderney 88427 Bad Schussenried Dr. med. K. Breuer Dr. med. J. Wirbitzky Landesklinik Teupitz Ortho-mobile GmbH Hattinger ambulante Buchholzer Str. 21 Rehabilitationsklinik - Orthopädie 15755 Teupitz August-Bebel-Str. 8 - 10 A. Hamann 45525 Hattingen MEDIAN Klinikum für Rehabilitation I A. Wiegand Am Brinkkamp 15 Dr. med. J. Bachmann 32545 Bad Oeynhausen Dr. med. F. Martin Dr. med. W. Meier Orthopädische Uniklinik Heidelberg Medical Park St. Hubertus Schlierbacher Landstraße 200A Sonnenfeldweg 29 69118 Heidelberg 83707 Bad Wiessee Prof. Dr. Gerner Dr. med. K. Botchen Frau Irma Stierle Medizinische Hochschule Hannover PARACELSUS-KLINIK Institut für Balneologie und Kurstr. 5 Medizinische Klimatologie 88175 Scheidegg/Allgäu Carl-Neuberg Str. 1 Prof. Dr. med. R. Schröck 30625 Hannover Physio Klinik im Aitrachtal Univ.-Prof. Dr. med. Gutenbrunner Am Bräugraben 2 Moorbad Bad Doberan 84152 Mengkofen Schwaaner Chaussee 2 Frau T. Steingen 18209 Bad Doberan Praxis für Physikalische Medizin und Rehabilitation Dr. med. St. Vick Kurze Straße 2 NeuroKom - Kompetenzzentrum für 37073 Göttingen Neurorehabilitation und Integration Dr. med. Wiezoreck Neuroberufliche Reha Einrichtung NRE Frau Kuhnert Krankenhausstraße 37 Praxis Prof. Fries 83646 Bad Tölz Neurologie Frau Silvia Ulze Pasinger Bahnhofsplatz 4 81241 München Prof. Fries Neurologische Klinik Elzach C. Pott Am Tannenwald 79215 Elzach Psychosomatische Fachklinik Hochsauerland Dr. med. St. Ritz Zu den drei Buchen 2 57392 Schmallenberg Neurologische Klinik und Poliklinik Dr. med. J. Schneider Klinikum der Universität München Großhadern Marchioninistr. 15 Psychosomatische Klinik Buching 81377 München Rauchenbichl Prof. Dr. med. A. Danek 87642 Halblech Prof. Dr. med. G. F. Hamann Dr. med. W. Müller Rehabilitationsklinik FRANKEN der BfA Neurologische Klinik Westend AHB-Kliniken Dr. Born Str. 9 Berliner Str. 18 34537 Bad Wildungen 95138 Bad Steben Dr. med. Puschendorf Dr. med. S. Rennert-Pisternick S. Roschka Rehabilitationsklinik Heidelberg Neurologisches Krankenhaus München Königstuhl Tristanstr. 20 Kohlhof 8 80804 München 692117 Heidelberg Dr. med. B. Niestroj Prof. Dr. med. Jan Buß Klaus Starrost Rehabilitationsklinik Nahetal Burgweg 14 55543 Bad Kreuznach D. Bauernschmitt

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H. Dr. Mecks Am Katzenstein 2 Rehabilitationsklinik Nordfriesland 34537 Bad Wildungen Wohldweg 9 R. Kurzeja 25826 St. Peter- Ording Rheumazentrum Düsseldorf D. Bauernschmitt Heinrich-Heine-Universität H. Albrecht Dr. Oliver Sander Rehabilitationsklinik Park-Therme Sachsenklinik E.-Eisenlohr-Str. 6 Abteilung Orthopädie 79410 Badenweiler Parkstraße 2 D. Bauernschmitt 04651 Bad Lausick Dr. F. Frankenhauser Dr. med. FRCS M. Gnad Reha-Klinik Bellevue Salztal Klinik Brüder-Grimm-Str. 20 Parkstraße 18 63628 Bad Soden-Salmünster 63628 Bad Soden-Salmünster D. Bauernschmitt, Dr. med. Maximilian Statt Dr. med. habil. W. Roth Rehaklinik für Kardiologie & Angiologie Schwarzwaldklinik – Neurologie Ostseeallee 103 Im Sinnighofen 1 23946 Ostseebad Boltenhagen 79189 Bad Krozingen Dr. med. J. Bolte Dr. med. A. Hammen Reha-Klinik Prinzregend Luitpold Seeklinik Zechlin Traunfeldstr. 13 Lymph. Fachklinik Physikalische Terhapie 83435 Bad Reichenhall Obere Braminselstr. 22 Dr. med. L. Kloc 16837 Dorf Zechlin Rehaklinik Raupennest Sybille Seibt Rehefelder Str- 18 Simssee Klinik 01773 Altenberg Ströbinger Str. 18a Dr. med. R. Seifert 83093 Bad Endorf Reha-Kliniken Küppelsmühle Dr. P. Görlich Am Orbtal 1 Therapiezentrum Burgau 63619 Bad Orb Dr. Friedl Str. 1 Dr. med. H.-C. Rehse 89331 Burgau Dr. A. Czajka Dr. med. Lipp Rehazentrum - Bad Eilsen Universität Erlangen-Nürnberg Orthopädie Medizinische Klinik III Brunnenpromenade 2 Prof. Dr. Joachim Kalden, 31707 Bad Eilsen Prof. Manger Dr. med. F.-J. Ludwig Dr. med. Daalmann Walther-Straub-Institut Nussbaumstraße 26 Reha-Zentrum am Meer 80336 München Klinik f. Ortho. und Rheumat. Rehabilitation Prof. Dr. O. Adam Unter den Eichen 18 26160 Bad Zwischenahn Weiterbildung –Medizin-Soziologie GmbH Dr. med. G.Dietz, Dr. med. C. Rieger Ehrwangweg 3 Dr. med. W. Runde 87669 Rieden a/F Dipl. Soz. S. Schnöring-Münz Rehazentrum – Bad Eilsen W. Münz Int.-Rheumatologie Wicker-Klinik Neurologie Harrlallee 2 Fuerst-Friedrich-Str. 2-4 31707 Bad Eilsen 34537 Bad Wildungen Dr. med. U. Polnau Dr. med. St. Schumacher Reha-Zentrum Chiemgau Abteilung Orthopädie Wicker-Klinik Psychosomatik/Psychotherapie Wasserburger Str. 29 Fuerst-Friedrich-Str. 2-4 83278 Traunstein 34537 Bad Wildungen Dr. med. Tobias Riedel Dr. med. Fröhlich-Gildhoff Rehazentrum Quellenhof Zentrum für klinische Neuropsychologie Kuranlagenallee Semmelstraße 36-38 75313 Bad Wildbad 97070 Würzburg Dr. med. R. Ascheron Dipl. Psych. Gerhard Müller Rheumaklinik Bad Bramstedt Hungary Oskar-Alexander Str. 26 Bdanubius Health Center 24576 Bad Bramstedt Rheumatology Dr. med. A. Arlt Hargitsziget Thermal Health Center Dr. med. J. Steinmetz 1138 Budapest Rheumaklinik Bad Säckingen Dr. Enikö Berkes Bergseestr. 61 Budai Irgalmasrendi Korház 79713 Bad Säckingen I. Department of Rheumatology Prof. Dr. W. Jäckel Profr. Pal Geher Rheumaklinik Bad Wildungen Hungarian Brothers of St. John of God and Dr. B. Krohn-Grimberghe University of Pecs, Faculty of Medicine

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Dept. Of Immunology and Rheumatology Dr. Feroz Khan Irgalmasok utcaja 1. Center for Rheumatic Diseases H-7621 Pecs 11, Hermes Elegance Dr. Cecilia Varju 1988, Convent Sreet Institute for Pulmonology Camp. Pune 411 001 Pulmonary Rehabilitation Maharashtra Munkacsy u. 70 Dr. Arvind Chopra H-2045 Törökbalint Soundarapandian Bone and Joint Hospital and Dr. Laszlo Lengyel Research Institute KORANYI National Institute of Tuberc, and AA 16, 3rd Main Road, Pulmonology Anna Nagar. XIII Pulm Dept. Chennai 600 040 1529 Budapest Dr. S. Sivamurugan 124 Budapest Indonesia Dr. Zoltan Ajkay Cipto Mangunkusumo General Hospital National Institute for Medical Rehabilitation Division of Geriatric Medicine, Internal Medicine Orthopädic, Stroke Rehab and Day Hospital Jl. Panglima Polim IV No. 52 Departments 12160 Jakarta Szanatorium UTCA 19. Dr. Czeresna H Soejono 1528 Budapest University of Indonesia, School of Medicine Prof. Lajos Kullmann Pulmonology & Respiratory Medicine National Institute of Rheumatology Jalan Persahabatan Raya IV Department of Rheumatology 13230 Jakarta Frankel LU 38-40 Dr. Kosumo-Sotoyo Dianiati 1023 Budapest Ireland Dr. Balint Geza St. Vincent´s University Hospital St. Emeric Hospital Hungary Deptartment of Rheumatology Internal Medicine U 4 Prof. Barry Bresnihan Tetemyyi Str. 12-16 Israel 1115 Budapest Day Center “Ben-Yair”< Dr. Maria Audikouszky Mrs. Nava Eckstein St. Francis Hospital Hadassah Medical Organization Physiotherapy Cardiology Ms. Janet Berman Szeher Str.73 Haifa University H-1021 Budapest Faculty of Education, Dr. med. Adam Tahy Interdisciplinary Program Szakorvosi Rendelöintezet Policlinic Mrs. Beatrice Shaham Rheumatology Dr. Elena Segal Felsö Nr. 39 Israel Center for Disease H-2030 Era Registries Unit Dr. Laszlo Popdan Mr. Yael Wolff Szent Andras Hospital Loewenstein Rehabilitation Center, Department "G" Tel Aviv University Dr. Schulhof Str. 1 , PO Box 111 Sackler Faculty of Medicine, H-8380 Hevis Dept. Neurological Rehabilitation Dr. Laszlo Szekeres Prof. Haim Ring Szent Ferenc Hospital Maccabi Health Services Rheumatology Dr. Jeffrey Shames Csabai Kapu 42 Mrs. Anat Sin-Hersko 3501 Miskolc Ministry of HealthMinistry of Health Dr. Laszlo Tamasi Occupational Therapy Tiszafüredi Sanitas-Corporis Mr .Bouni Orly Rheumatology, Internal Medicine Sheba Medical Center, Poroszloi u. 2 Tel Hashomer 5350 Tiszafüred Orthopedic Rehabilitation Department Dr. Laszlo Beranek Dr.ItzhakSiev-Ner University of Szeged Italy Department of Neurology Azienda Ospedaliera C. Poma Semmehveis u. 6 PO BOX 427 Rehabilitation 6725 Szeged Viale Coppini 55, Moglia Dr. Lazlo Vecsei 46024 Mantova WG of Cardiac Rehab and Exercise Physiology Prof. Giovanni Arioli of Hungarian Society of Cardiology Azienda Ospedaliera di Sciacca State Hospital for Cardiology Via Pompei, Gyogy Ter 2 230 92019 Sciacca (AG) Dr. Attila Simon Dr. Domenico De Cicco India Academic Physiatrists Group of India 6/325 Valayapathy street, Chennai 600 037

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Cattedra Reumatologia-Università Politecnica delle Dr. Mauricio Bejor Marche University of Verona Dipartimento di Patologia Molecolare e Terapie Rheumatologic Unit Innovative Prof. Sivano Adami Ass. Prof. Fausto Salaffi Japan Dr. Giovanna Garofalo National Institute of Mental Health, Japan Department of Rheumatology Department of Forensic Psychiatry Dr. Gianni Leardini 1-7-3 Kohnodai Hospital Brotzu Ichikawa/ 272-0827 Chiba Center for Diabetes Dr. Hirofumi Noguchi Via Peretti Kenia 9134 Cagliari Centre for Human Nutrition Education, General Dr. med. Marco Songini Accident House, Ralph Bunche Road, Hurlighma I.R.C.C.S. Fondazione Santa Lucia – Roma Heart and Neurology Centre, Via Ardeatina 306, 3rd Floor, Nairobi 00179 Roma Alice Ojwang-ndong Dr. Ugo Nocentini Kuwait Institute Mario Negri Kuwait Physical medicine & Rehabilitation Laboratorio Di Epidemiologia Society Via Eritrea, 62 Physical Medicine & Rehabilitation 20157 Milan Po Box 4079 Dr. Eva Negri 13041 Safat Istituto Scientifico Cassano Murge Dr. Abdulla Ahmed Eyadadh Via per Mercadante Km 2, 70020 Cassano delle Murge Kuwait Physical medicine & Rehabilitation (BA) Society Dr. Antonio Spanevello Physical Medicine & Rehabilitation Dr. Ennio Lubrano Po Box 7701 Istituto Scientifico di Montescano, Foundation 22088 S. Maugeri – IRCCS Dr. Lata Prasad Servizio di Psicologia 27040 Montescano Lebanon Dr. Giuseppina Majani St. Joseph University, School of Medicine Dr. Maurizio Maini Epidemiological Unit Istituto Scientifico di Pavia Damascus Road Via Ferrata 8, Beirut 27100 Pavia Dr. Raffic Baddoura Dr.ssa Caterina Pistarini Istituto Scientifico di Telese Terme Lithuania Via Bagni Vecchi 1, 82037 Telese Terme (BN) Institute of Experimental and Clinical Medicine of Dr Bernardo Lanzillo Vienius University Istituto Scientifico Veruno IRCCS - Fondazione Lygimantu 9 LT-2600 Salvatore Maugeri Ass Prof. Jolanta Dadoniene Via per Revislate 13, Institute of Phychophisiology & Rehabilitation 28010 Veruno (NO) at Kaunas Medical University Dr. Massimo Galante Cardiovascular Rehabilitation and Prevention Ospedale di Foligno Dr. Julija Brozaitiene U.O. di Riabilitazione Intensiva Neuromotoria Piazza Garibaldi 5, Kaunas University of Medicine Hospital 06039 Trevi (Perugia) Dept. of Rheumatology Dr. Mauro Zampolini Eiveniu 2 LT-3007 Kaunas S. Camillo Hospital Dr. Margarita Pileckyte Neurorehabilitation Vilnius University Alberoni, Veneza-Lido Clinic of Rheumatology, Gerontology, 30011 Venice Dermatovenerology and Rehabilitation, Dr. Paolo Tonin Centre for Gerontology Scintific Institute for Rehabilitative Medicine, Dr. Vidmantas Alekna Institute of Telese Terme (BN) Vilnius University Rheumatology and Rehabilitation Research Unit Institute of Experimental and Clinical Medicine Dr. Ennio Lubrano Department of Rehabilitation Universita Catolica del S. Cuore Dr. Marija Tamulaitiene Physical and Rehabilitation Medicine Malaysia Polic Univ. A. Gemelli Bandar Baru Bangi Health Clinic 168 Roma Jalan Perkeliling Dr. Eugenia Amabile Selangor University Hospital of Pavia Dr. Norizzati Bukhary Ismail IRCCS Policlinico S.Matteo Hospital Alor Star Physical Medicine and Rehabilitation Department of Orthopedics Piazzale Golgi 19 05586 Alor Star 27100 Pavia Dr. Mohamad Yazid Din

ICF Research Branch of WHO (DIMDI) Munich Institute for Health and Rehabilitation Sciences, Ludwig-Maximilians-Universität 19

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Hospital Kuala Lumpur Instituto Nacional de Psiquiatría Ramon de la Rehabilitation Medicine & Psychiatry Fuente Jalan Pahang 50586 Calzada Mexico-Xochimilco 101 Dr. Juliana Terimo, Dr. Nor Hayati Ali Huipulco, Tlalpan Hospital Pulau Pinang CP 14370 México D.F. Occupational Therapy & Physiotherapy Dr. Carmen Lara Muñoz Jalan Residensi 10450 Pulau Pinang Ministry of Health Ms. Ooi Siew Chen, Ms Yew Su Fen Dirección General de Información en Salud Hospital TAR Centro Mexicano de Clasificación de Enfermedades Physiotherapy Unit (CEMECE) Jalan Tanah Putih Paseo de la Reforma 450 25100 Kuantan CP 06600 México D.F. Ms. Sarkuna Devi Poemnah Dr. Patricia Nilda Soliz Hospital Terengganu Netherlands Neurology AMS University of Amsterdam Jalan Sultan Mahmud Clinical Immunology & Rheumatology 20400 Kuala Terengganu Prof. Paul-Peter Tak Dr. Zariah bt. Abd Aziz, Dr. Azlin Amat Leiden University Medical Center Hospital Tuanku Jaafar Dept. Physical Therapy Jabatan Perubatan Rehabilitasi PO BOX 9600 Seremban 2300 RC Leiden Dr. Akmal Hafizah MSc PT John Verhoef Institute of Medical Research Maastricht University Information Unit Department of Epidemiology 50588 Kuala Lumpur Prof. Rob de Bie Dr. Fariza Mohd Yusof Rehabilitation Center de Hoogstraat Jelebu Health Clinic Rembrandtkade 10 71600 Kuala Klawang 3583 TM Utrecht Dr. Siti Zubaidah bt Mohd Ali Dr. Anne Visser-Meily Kepala Batas Health Clinic Rehabilitation Center Het Roessingh Kepala Batas Haasboerhorst 36 Enschede 06200 Jitra 7531 LH Enschede Dr. Norsiah Md, Noor Daniel Wever, MD Ministry of Health Family Help Development Division University Hospital Maastricht Putrajaya Rheumatology Dr. aminah Bee, Dr. Asiah Ibrahim Po Box 5800 Padang Sarai Health Clinic 6202 AZ Maastricht 09400 Kulim, Kedah Annelies Boonen, MD, PhD Dr. Faudzi Abdullah VU University Medical Ctr Sarawak General Hospital Department of Rheumatology Department of Rehabilitation Medicine Prof. Dr. Ben Dijhmans Jalan Tun Ahmad Zaidi Adruce Nigeria 93586 Kuching University of Ibadan, College of Medicine Dr. Wong Chin Han Department of Medicine Sunway Medical Center Ibadan Oyo State Department of Rehabilitation Medicine Dr. med. Olulola O. Oladapo No. 5 Jalan Lagoon Selatan, Bandar Sunway Norway 46150 Petaling Jaya Dr. Zaliha Omar Evjeklinikken AS University of Malaya Obesity Department of Rehabilitation Medicine Evjemoen 59100 Kuala Lumpur 4735 Evje Dr. Nazirah Hasnan, Dr. Lydia Latif Dr. Tor-Ivar Karlsen Ms Siti Hajar Razali, Ms Faridah Wahab, National Resource Center for Rehabilitation in Ms Lee Poh Chen, Mr Jeffery Sashitaran, Rheumatology Ms F. Baharuddin, K: Geok, Ms N. Mohd Nur Department of Rheumatology University of Malaya Diakonhjemmet Hospital, PO Box 23 Vinderen Allied Health Sciences N-0319 Oslo Faculty of Medicine, Pantai Valley Prof. Tore Kvien, MD, PhD 50603 Kuala Lumpur Skogli Rehabilitation Center Dr. Nazirah Hasnan, Dr. Lydia Latif, Dr. Bjorn -Yngvar Nordvag Dr. Julia Patrick Engkasan, Dr. Rameezan Rahim Mexico Spesialsykehuset for Rehabilitering Centro Nacional de Rehabilitación P.O. Box 160 Av. Mexico Xochimilco 289 N-3290 Stavern Arenal de Guadalupe MD, PhD Smedstad, Liv Marit C. P. 14389 Mexico D. F. Dr. Diana Avendaño Badillo

ICF Research Branch of WHO (DIMDI) Munich Institute for Health and Rehabilitation Sciences, Ludwig-Maximilians-Universität 20

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Ulleval University Hospital Coimbra Physical and Rehabilitation Medicine Physical Therapy Kirkeun 166 Rua 5 de Outubro- Sao Martinho do Bispo- Apartado 875 Oslo 7006 Prof. Erik Baütz-Holter 3040-997 Coimbra Vikersund Kurbad PT MSc Anabela Martins Department of Rehabilitation Hospital de Garcia de Orta Dr. Kjell Haavik Nilsen Department of Rheumatology Dr. José Canas da Silva Philippines Lisbon Cardiovascular Institute Cardiology University of Santo Tomas Rua Tomas da Fonseca F P2 Dept. Of Medicine, Div of Rheumatology 1600 Lisboa 309 Tomas Morato Ave. Prof.Fausto Pinto 1103 Quelonchy Portuguese Society of Physical and Dr. Karina Torralba Rehabilitation Medicine Poland Physical and Rehabilitation Medicine Rua Marta Mesquita da Camara 110 A3 4 Esq. Centre of Osteoporosis & Osteoarticular Diseases 4150-485 Porto Prof. Janusz Badurski Dr. med. Pedro Cantista Hospital No. 4 Republic of Macedonia Neurology Clinical Center Skopje Al. Legionow 10 Rheumatology Clinic Dr. Dinitor Arsov 41-902 Bytom, Silesia Dr. Damjanovska Rajcevska Ljubinka Dr. Anna Pawlowska Romania Institute of Rheumatology Medical Rehabilitation Hospital Felix SPA Rheumatology Rehabilitation Medicine Prof. Anna Filipowicz-Sosnowska 417500 Bihor Country Ass. Prof. Krystyna Ksiezopolska-Oreowska Dr. Mariana Valeria-Doina Mihailov Institute of Rheumatology University Hospital Elias Spondylo-Neurosurgery and Neurology Medical Rehabilitation MD Gasik Robert 17, Marasti Blvd. Institute of Rheumatology Bucharest Connective Tissue Disease Department Dr. Mihai Berteanu Prof. Hanna Chwalinska-Sadowska University Hospital Oradea, Faculty of Medicine PhD Marzena Olesinska and Pharmacy Jagiellonian University School of Medicine Medical rehabilitation Department Department of Rheumatology Str. Roman Ciorogariu Nr. 6, Apt. 6 Prof. Piotr Gluszko 410017 Oradea, Bihor Military Medical Institute Dr. Ioana M. Mircea Internal Medicine and Rheumatology Russia Prof. Tlustochowicz Witold Institute for Medical Studies of the North Dr. Anna Dudek Endocrinology Department Dr. Anna Raczkiewicz-Papierska Part Zheleznyaka str. 3G Poznan University of Medical Sciences 660022 Krasnoyarsk Department of Rheumatology, Rehabilitation and Dr. med. Irina Osokina Internal Medicine Prof. Irena Zimmermann-Górska Serbia Repty Rehab. Centrum Dr. Gero Istvan Egeszsegügyi Hospital Paraplegia I Physical Medicine & Rehabilitation ul. Sniadeckich 1 Beogradska 63 42-604 Tarnowskie Gory 24400 Senta Prof. Josef Opara, PhD, MD Dr. Nemeth Emese Rheumatology Institute Institute of Hygiene /Faculty of medicine Rheumatology Department Outpatient Dietetic Unit Dr. Robert Rupinski Dr Subotica 8 Portugal 11000 Belgrade ABPG Associacao de Beneficiencia Popular Prof. Dr. Jorga Jagoda Clinica_Medicina_Fisica_Reabilitacao Estrada_da_Serra M6290 Gouveia Dr. Jorge Lains Clínica Médica Arrifana de Sousa Physical Medicine & Rehabilitation Portugal Dr. Fernando Parada Pereira Clinica Rheumatologica Dr. José Melo-Gomes Escola Superior de Tecnologia da Saude de

ICF Research Branch of WHO (DIMDI) Munich Institute for Health and Rehabilitation Sciences, Ludwig-Maximilians-Universität 21

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Institute of Rheumatology The Sahlgrenska Academy at Göteborg Prof. Nemanja Damjanov University Mrs. Vera Milic Institute of Clinical Neuroscience Slovakia SE-414 45 Göteborg National Institute of Rheumatic Diseases Ass Prof. Katharina Stibrant Sunnerhagen Osteocenter Switzerland Dr. Pavol Masaryk AarReha Schinznach P.J. Safarik University, Medical Faculty Rehabilitation, Rheumatology and Osteoporosis Clinic Physical Medicine and Rehabilitation Schinznach-Bad 5116 Rastislavova 43 Dr. David Germann 041 90 Kosice Cabinet Physiotherapie Dr. Peter Takac 68 bis Franic Thomas Singapore 1208 Geneve National University of Singapore Madame Eveline Bodmer Dept of Pharmacy Clinic for Rheumatology and Rehabilitation 18 Science Drive 4 Physical Medicine & Rehabilitation 117543 Singapore 7317 Valens Feng Xie Dr. med. Otto Knüsel South Africa Kantonsspital Luzern Nelson R. Mandela School of Mediicne Physiotherapy Rheumatology Unit 6000 Lucerne 16 719 Umbilo Road Mrs. Ida Dommen Nyffeler 4001 Durban Kantonsspital Schaffhausen Prof. Girish Mody Rheumatologie und Rehabilitation South Korea Geissbergstr. 81, Hanyang University, Seoul CH-8208 Schaffhausen Rheumatology PD Dr. med. Thomas Stoll The Hospital for Rheumatic Diseases, Medical Center Klinik Linde AG 133-792 Seoul Dept. Physical Therapy Prof.Sang-Cheol Bae Blumenrein 105 National Rehabilitation Center of Korea 2503 Biel Dept. of Traumatic Brain Injury Rehabilitation and CBR Ms. Susanne Blank Suyu 5-Dong, Gangbuk-Gu Rehabilitationsklinik Leukerbad 142-884 Seoul 3954 Leukerbad Dr. Kim Wanho Dr. Hans Spring Spain Rehaklinik Rheinfelden Fundacion Universitat Autonoma de Barcelona 4310 Rheinfelden Institut Catala de l'envelliment Prof. Dr. med. Th. Ettlin Sant Antoni Maria Claret 171 Spitalzentrum Biel 8041 Barcelona Im Vogelsang 84 Dr. Ramona Lucas Carrasco 2501 Biel Spanish Society of Rheumatology Dr. Erwin Wyss Research Unit Stadtspital Triemli Calle Recoletos 9, 1A Rheumatology 28001 Madrid Birmensdorferstrasse 497 Dr. Loreto Carmona 8063 Zurich Karolinska Institute Dr. Marcel Weber Department of neurobiology, care sciences and Swiss Paraplegic Center society Institut für Anästhesiologie Division of physiotherapy Schmerzklinik Nottwil 23 100, 141 83 Huddinge Guido A. Zäch Str. 16207 Nottwil Carina Boström, PhD Dr. W. Schleinzer, Dr. André Ljutow Sweden University Hospital Bern Spenshult Hospital for Rheumatic Diseases Internal Medicine R & D Center Spenshult Freiburgstrasse 10 S-31392 Oskartrom 3010 Bern Anna Nilsdotter, PhD. MD Dr. Armin Stucki Sahlgrenska Academy, Göteborg University University Hospital of Geneve Department of Rheumatology and Inflammation Clinique de Reeducation Research 26, Avenue de Beau-Bedour Dr. Kaisa Mannerkopi 1211 Geneve 14 Stockholm County Council M. Dominique Monnin The Purchasing Office-Healthcare University Hospital Vaudois, Unit of Mrs. Therese Ljungquist Neurorehabilitation Strömsunds Kommun Physical Medicine & Rehabilitation Rehabilitation Department CH-1011 Lausanne Solbacken 5 Dr. Rolf Frischknecht 83334 Strömsund University Hospital Zurich P.T. Markku Paanalahti Rheumatology and Institute of Physical Medicine

ICF Research Branch of WHO (DIMDI) Munich Institute for Health and Rehabilitation Sciences, Ludwig-Maximilians-Universität 22

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Gloriastrasse 25 Marmara University Hospital 8091 Zurich Physical Medicine & Rehabilitation Erika Huber Tophanclioglu Cad. 13/15 Thailand 81190 Altunizade, Istanbul Sirindhorn National Medical Rehabilitation Prof. Gülseren Akyüz Center Validebag Ogretmenler Hastanesi Department of Medical Services Physical Medicine & Rehabilitation 301 Bumrajnaradoon, Tiwanon road Istanbul 11000 Nondhabori Dr. Yildiz Kardas Ms. Hang Sasuta Sriluck UK Tunisia Brunel University University of Tunis School of Health Science and Social Care Physical and Rehabilitation Medicine Osterly Campus, Borough Road, Isleworth Service de MPRF Institut National d'Orthopedie M. TW7 5DU Middx Kassab Ms Stephanie Tempest 2010 Manouba King´s College London Prof. Catherine Dziri Department of Rheumatology Turkey Prof. David Scott Akdeniz University, Faculty of Medicine Manchester Metropolitan University Physical Medicine & Rehabilitation Physiotherapy Dunlupinar Bulvary Hatersage Road, Elizabeth Gaskell Campus, 7058 Antalya Manchester Ass. Dr. Erdal Gilgil M13 0JA North West Ankara University, Faculty of Medicine Dr. Yohannes Abebaw Physical Medicine & Rehabilitation Royal Cornwall Hospital IBN-I Sina Hastanesi Ftr AD Rheumatology 6100 Ankara TR1 3 LJ Truro, Cornwall Ass. Prof. Gürsel Yesim Kurtais, MD Prof. Anthony D. Wool Celal Bayar University Medical School University of Leeds Physical Medicine & Rehabilitation Academic Unit of Musculosceletal and ... CBU Tip Facultesi, FTR AD Prof. Philip Helliwell 45010 Manisa University of Manchester Ass. Prof. Dr. Tuncay Duruoz Epidemiology and Health Sciences Cukurova University, Medical faculty Prof. Gerry J. Macfarlane Physical Medicine and Rehabilitation University of Southampton Adana School of Health professions and rehabilitation Ass. Prof. Rengi Guzel Sciences Dicle University, Medical Faculty Highfield Physical Medicine and Rehabilitation SO17 1BJ Southampton, Hants Diyarbakir Ms. Joanna Adams Ass. Prof. Ali. Gur USA Dokuz Eylül University, Medical School Albert Einstein Healthcare Network Psychiatry Department MossRehab Outpatient Center Balcova 9892 Bustleton Avenue 35340 Izmir PA 19115 Philadelphia Prof. Zeliha Tunca Dr. Leonard B. Kamen Ege University, School of Medicine Foundation for Chiropractic Education and Neurosurgery Research Izmir Research and Education Dr. Erkin Özgiray 1330 Beacon Street, Suite 315 Gazi University 02446-3202 Brookline, Massachusetts Physical Medicine and Rehabilitation, Division of Dr. Anthony L. Rosner Rheumatology Osteoporosis Medical Center Dr. Feride Gogus 8641 Wilshire Blvd. Suite 301 Hacettepe University Medical School CA 90211 Beverly Hills Physical Medicine and Rehabilitation Dr. Stuart Silverman Samanpazari 06100 Ankara Prof. Dr. Fitnat Dincer Istanbul University, Cerrahpasa Medical Faculty Physical Medicine and Rehabilitation Istanbul Prof. Dr. Ülkü Akarirmak Prof. Sansin Tüzün Kocatepe University Physical Medicine and Rehabilitation Afyon Dr. Deniz Evcik Prof. Vural Kavuncu

ICF Research Branch of WHO (DIMDI) Munich Institute for Health and Rehabilitation Sciences, Ludwig-Maximilians-Universität 23

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b) ICF Core Sets for HNC: international Manipal University validation study MCOAHS Department of Physiotherapy Australia 57604 Manipal Capital Region Cancer Service Dr. G. Arun Maiya Head & Neck Oncology Israel The Canberra Hospital PO Box 11 University of Tel-Aviv Woden Act 2606 Department of Psychology Ms. Megan Nutt Tel-Aviv 69978 Belgium Israel Universitair Ziekenhuis Antwerpen Prof. Dr. Shulamith Kreitler Oncology Kaplan Medical Center Wilrijkstraat 10 Rehovot Edegem 76100 2650 Israel Prof. Dr. Jan Vermorken Ms. Pnina Erenthal Dr. Pol Specenier Edith Wolfson Medical Center Brazil Department of Otolaryngology – Head & Neck Hospital A.C. Camargo Surgery Voice, Speech and Swallowing Rehabilitation Holon Department 58100 Rua Professor Antônio Prudente 211 Israel São Paulo Yehudah Roth, MD Elma Heitmann Mares Azevedo South Korea Elisabete Carrara de Angelis, PhD Samsung Medical Center Germany Dept.of Hematology-Oncology Median-Klinik Kalbe 135-710 Seoul Onkologie / HNO Prof. Keunchil Park M.D. Straße der Jugend 2 Seoul National University College of Medicine 39624 Kalbe / Milde Dept.of Otolaryngology – Head & Neck Surgery Elke Breitenfeldt 110-744 Seoul CÄ Dr. med. Katharina Molenda Prof. Kwang-Hyun Kim; MD; PhD Asklepios Klinik Bad Salzungen GmbH Netherlands Am See FysioWalrave 36433 Bad Salzungen Kerkstraat 14a Ines Müller Almere CA Dr. med. Andreas Huber 1354 AB MediClin Bosenberg Kliniken Mr. Gert Walrave Hals-Nasen-Ohrenheilkunde Am Bosenberg Poland 66606 St. Wendel Universität Bialystok OA Dr. med. Sergio Crescent Klinika Otolaryngologii Universitätsklinikum des Saarlandes Ul. M. Sklodowskiej-Curie 24 a Klinik für Mund-, Kiefer- und Gesichtschirurgie 15-276 Bialystok Gebäude 71 Prof. Dr. med. Marek Rogowski 66421 Homburg / Saar Dr. Magdalena Kania Dr. med. Sebastian Baumann Dr. Jarosław Łuczaj Universitätsklinikum Heidelberg South Africa Mund-Kiefer-Gesichtschirurgie University of Cape Town Im Neuenheimer Feld 400 Groote Schur Hospital 69120 Heidelberg Division of Otolaryngology Kirsten Becker-Bikowski H53 OMB, Observatory Dr. Dr. med. Freier Cape Town; 7925 Klinikum Nürnberg Nord*Hals-Nasen- Prof. John Fagan Ohrenklinik Spain Prof.-Ernst-Nathan-Str. 1 90419 Nürnberg University of Seville CHA Prof. Dr. Bonkowsky Department of Psychiatry Volker Krutsch Ms. Nuria Blanco Virgen Macarena Universitary Hospital, Greece Dept. ORL Technological Educational Institute of Patras Dr. Serafín Sánchez Gómez Dept. of Speech and Language Therapy Meg. Alexandrou 1 - Koukouli Turkey Patras GR 26 334 Prof. Ilias Papathanasoiu PhD MRCSLT Karaelmas University Faulty of Medicine Dept. of Internal Medicine India Section of Medical Oncology

ICF Research Branch of WHO (DIMDI) Munich Institute for Health and Rehabilitation Sciences, Ludwig-Maximilians-Universität 24

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67600-Zonguldak Dr. med. Hüseyin Engin Uganda Mulago National Referral and Teaching Hospital ENT Surgery Kampala Dr. Jeff Otiti UK Aintree Hospital Head and Neck Oncolog Liverpool Prof. Simon Rogers Combined Head & Neck Oncology Service Aberdeen Royal Infirmary Aberdeen Scotland Dr. David Hurman Manchester Royal Infirmary Maxillofacial Unit Oxford Road Manchester Dr. Brian Musgrove USA University of Minnesota Dept. of Otolaryngology Minneapolis Prof. Bevan Yueh

ICF Research Branch of WHO (DIMDI) Munich Institute for Health and Rehabilitation Sciences, Ludwig-Maximilians-Universität 25