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ARCH /M EB F NTERNATIONAL I ISS Volume 2009Volume M $4.99 MAGAZINE VOLUME 2009 MISS INTERNATIONAL FEB/MARCH THE VOICE OF OVER 50 MILLION AMERICANS 2 ABILITY ABILITY 3 MANAGING EDITOR Pamela K. Johnson MANAGING HEALTH EDITOR E. Thomas Chappell, MD HEALTH EDITORS Gillian Friedman, MD Larry Goldstein, MD Natalia Ryndin, MD CONTRIBUTING SENATOR U.S. Sen. Tom Harkin (D-IA) EDITORS Jan Demskis Dahvi Fischer Renne Gardner Linda and Millard Fuller Sonnie Gutierrez working on a Fuller Center Home p. 16 Eve Hill, JD Josh Pate Denise Riccobon, RN 6 SENATOR HARKIN — The Christopher Reeve Act Maya Sabatello, PhD, JD Romney Snyder Jane Wollman Rusoff 8 DAY OF SERVICE — Of Kings & Presidents CONTRIBUTING WRITERS Linda Boone Hunt 10 GREEN PAGES — Don’t Let Money Fly Out the Window Gale Kamen, PhD Laurance Johnston, PhD Extremity Games Andrea Kardonsky Josh Pate learns to ski p. 18 12 HUMOR — There’s Nothing Out there Deborah Max Myles Mellor - Crossword Puzzle Paula Pearlman, JD 14 FILM CIRCUIT— Reeling Through Sundance John Paizis Richard Pimentel Allen Rucker 16 MILLARD FULLER — His Work Will Go On Kristen McCarthy Thomas Betsy Valnes 18 SKIING — A Crash Course HUMOR WRITERS George Covington, JD Jeff Charlebois 22 MULTIPLE SCLEROSIS — One Day At The Beach Miss International p. 30 Gene Feldman, JD Paralympic Games Beijing WEB EDITOR 26 SECRET LIFE — Young Actors Get Their Due Joy Cortes GRAPHIC ART/ ISS NTERNATIONAL How She Won the Crown ILLUSTRATION 30 M I — Scott Johnson Keriann Martin 38 ASHLEY FIOLEK — Teen MotoCrosser Zooms Ahead Melissa Murphy - Medical Illustration PHOTOGRAPHY Day at the Beach p. 22 Brigman Foster-Owens 46 UNITED CEREBRAL PALSY — Game On! Music Within Robin Daniels 48 GEORGE COVINGTON — Don’t Look Now, Bambi’s Back TRANSCRIPTIONIST Sandy Grabowski DIRECTOR OF BUSINESS AFFAIRS 50 CHRISTOPHER REEVE — His Foundation; His Champions John Noble, JD MARKETING/PROMOTIONS 60 CROSSWORD PUZZLE — Guess Your Best! Jo-Anne Birdwell Jacqueline Migell Andrew Spielberg 64 EVENTS & CONFERENCES Schlepping @ Sundance p. 14 PUBLIC RELATIONS ABILITY’s Crossword Puzzle ABILITY’s JSPR 74 SUBSCRIBE TO ABILITY MAGAZINE NEWSSTAND CIRCULATION CONTENTS John Cappello WWW.ABILITYMAGAZINE.COM EDITORIAL [email protected] ADVERTISING DISTRIBUTION CORPORATE SHIPPING For advertising Warner Publishing Services 8941 Atlanta Ave. ON ROFITS information e mail A Time-Warner Company Huntington Beach, CA 92627 N -P [email protected] Faxon - RoweCom Library Tel 949.854.8700 ABILITY Awareness/Fuller Center or call Services TTY 949.548.5157 Habitat for Humanity 949.854-8700 ext 306 Ebsco - Library Services Fax 949.548.5966 Not so Secret Life. p. 26 Swets Blackwell PUBLISHER Chet Cooper ABILITY Magazine is published bimonthly by C.R. Cooper, 8941 Atlanta Ave. HB, CA 92646 (ISSN 1062-5321) All Rights Reserved. Subscriptions: $29.70 per 1 year (6 issues). Periodicals postage rates at Irvine, CA and at additional mailing offices. The views expressed in this issue may not be those of ABILITY Magazine POSTMASTER: Send address changes to ABILITY Magazine, Attention Subscriptions Manager, PO Box 10878, Costa Mesa, CA 92627; Volume 2009 Miss International Feb/March Library of Congress Washington D.C. ISSN 1062-5321 Printed in U.S.A. © Copyright 2009 ABILITY Magazine ABILITY 5 complex diseases of the brain and central nervous system. Later on, I got to know Christopher as a friend. He was warm with an impish sense of humor and a big smile. It was clear that he spent many of his waking hours gather- ing information about spinal cord injuries and the research being conducted in labo- ratories and clinics throughout the world. Christopher told me and my colleagues on the committee that the kind of research that we were doing on spinal cord paralysis was disjointed and not nearly as effective as it could be. He devoted himself to working with oth- ers—scientists and researchers, as well as members of Congress and their staffs—to come up with ideas for better coordination of spinal cord studies with- in a unified structure. These ideas were incorporated into legisla- tion that eventually became known as the A COURAGEOUS QUEST Christopher and Dana Reeve Paralysis Act. Sadly, his death in 2004 robbed the paralysis community of its Elections matter! Case in point: the Christopher and most passionate and effective advocate. Dana continued Dana Reeve Paralysis Act. her husband’s quest until her own tragic death in 2006 from cancer. At that point, thousands of Americans I introduced this bill in 2002 in an effort to advance col- whose lives have been touched by paralysis, continued laborative research into paralysis and improve the quali- the Reeves’ advocacy work, often at a cost to their own ty of life for people living with paralysis and mobility health and wealth. impairments. Over the years, the bill passed twice in the The act addresses a less-than-optimum status quo in House, but was repeatedly obstructed in the Senate. which paralysis research is being carried out across mul- With the expanded ranks of supporters in the Senate, tiple disciplines with no effective means of coordination thanks to last November’s election, the Christopher and or collaboration. Without these two components, time, Dana Reeve Paralysis Act was one of the first pieces of effort and valuable research dollars are used inefficient- legislation passed this year. ly. Also, families affected by paralysis too often remain unaware of critical research results, information about In 1995, Christopher Reeve, famous for his role in the clinical trials and best practices. popular Superman movies, was in an equestrian acci- dent that injured his spinal column and left him para- The bill’s goal is to: lyzed from the neck down. He was fortunate that he could afford the very best doctors and nurses, the best —improve access to services for people with paralysis caregivers and therapies. He could have just with- and other disabilities drawn into himself and focused on his own well- —provide information and support to caregivers and being—a full-time job in and of itself—but he made a their families different choice, which proved him to be a man of —develop assistive technology great character. —provide employment assistance —encourage wellness among those with paralysis I first met Christopher in 1998 when he testified before the Senate Appropriations Subcommittee on Christopher and Dana spoke up for all people living Labor, Health, Human Services and Education; I was with disabilities. They spoke up for Parkinson’s and a ranking member on that committee at the time. It ALS research. They advocated for more generous fund- was clear to me that he was a man on a mission to ing for the National Institutes of Health. The Reeves help others with disabilities. He not only put a face on always held out hope that Christopher would recover spinal cord injury, but he also encouraged neuroscien- from his spinal cord injury, and they fought just as hard tists around the world to intensify research on for others’ recovery as well. 6 ABILITY The ABILITY House program, working with, ABILITY Magazine and home building organizations reaches out to volunteers with disabilities to help build accessible homes for low-income families with disabilities. We are seeking corporations, foun- dations and churches to sponsor more homes. We can build in nearly 100 countries. Please contact us for more information. [email protected] www.abilityawareness.org Now that the Christopher and Dana Reeve Paralysis Act If we have just half the commitment, tenacity and has passed the Senate, we hope it will soon pass the courage that Christopher and Dana Reeve had, then we House, and then be signed into law by President Obama. can make great inroads into these challenges. If the Reeves were still with us, they would be the first to acknowledge that even with this new law in place, we would still have unfinished business. As long as there is Sincerely, hope for better outcomes with spinal cord injuries, Parkinson’s, ALS and other such diseases, our work is not done. As long as people with disabilities are forced to live in nursing homes because Medicaid won’t cover Senator Tom Harkin home care, we cannot rest. www.harkin.senate.gov ABILITY 7 8 ABILITY remember the day in 1968 that Martin Luther King —The National Alliance for Faith and Justice recruited was assassinated. My mother, our neighbor Delores, mentors for children of prisoners and other at-risk youth Iand I had just come out of a bookstore in Los Ange- at more than 425 places of worship as part of Justice les. Mom revved the engine of our blue VW bug as we Sunday. buckled ourselves into its funky, pleather seats. Just before we pulled away from the curb, bad news —Campus Kitchens engaged hundreds of college stu- squawked through the speakers of our AM radio. The dents and volunteers in leading hunger relief programs, emotional announcer said that King had been gunned including in Washington, DC, where volunteers helped down on the balcony of a hotel in Memphis; he was in prepare 5,000 meals for delivery on King Day. critical condition. We raced home to hear the latest update from CBS Evening News anchor Walter —More than 16,000 college students from 130 campus- Cronkite, whom we trusted like a friend. When Walter es in 28 states engaged in service projects, ranging from told us Reverend King was gone, we knew it was true. neighborhood clean-ups to preparing and serving meals to hospice patients. At seven years old, I flipped through the then-popular LIFE magazine issue with King’s grieving widow and — More than 600 Boys and Girls Clubs engaged mem- four small children on the cover.