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Supportive Services Programs in Naturally Occurring Retirement Communities

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Supportive Services Programs in Naturally Occurring Retirement Communities U.S. Department of Health and Human Services Assistant Secretary for Planning and Evaluation Office of Disability, Aging and Long-Term Care Policy SUPPORTIVE SERVICES PROGRAMS IN NATURALLY OCCURRING RETIREMENT COMMUNITIES November 2004 Office of the Assistant Secretary for Planning and Evaluation The Office of the Assistant Secretary for Planning and Evaluation (ASPE) is the principal advisor to the Secretary of the Department of Health and Human Services (HHS) on policy development issues, and is responsible for major activities in the areas of legislative and budget development, strategic planning, policy research and evaluation, and economic analysis. ASPE develops or reviews issues from the viewpoint of the Secretary, providing a perspective that is broader in scope than the specific focus of the various operating agencies. ASPE also works closely with the HHS operating divisions. It assists these agencies in developing policies, and planning policy research, evaluation and data collection within broad HHS and administration initiatives. ASPE often serves a coordinating role for crosscutting policy and administrative activities. ASPE plans and conducts evaluations and research--both in-house and through support of projects by external researchers--of current and proposed programs and topics of particular interest to the Secretary, the Administration and the Congress. Office of Disability, Aging and Long-Term Care Policy The Office of Disability, Aging and Long-Term Care Policy (DALTCP), within ASPE, is responsible for the development, coordination, analysis, research and evaluation of HHS policies and programs which support the independence, health and long-term care of persons with disabilities--children, working aging adults, and older persons. DALTCP is also responsible for policy coordination and research to promote the economic and social well-being of the elderly. In particular, DALTCP addresses policies concerning: nursing home and community- based services, informal caregiving, the integration of acute and long-term care, Medicare post-acute services and home care, managed care for people with disabilities, long-term rehabilitation services, children’s disability, and linkages between employment and health policies. These activities are carried out through policy planning, policy and program analysis, regulatory reviews, formulation of legislative proposals, policy research, evaluation and data planning. This report was prepared under contract #HHS-100-97-0010 between HHS’s ASPE/DALTCP and the Urban Institute. For additional information about this subject, you can visit the DALTCP home page at http://aspe.hhs.gov/_/office_specific/daltcp.cfm or contact the ASPE Project Officer, Gavin Kennedy, at HHS/ASPE/DALTCP, Room 424E, H.H. Humphrey Building, 200 Independence Avenue, S.W., Washington, D.C. 20201. His e-mail address is: [email protected]. SUPPORTIVE SERVICES PROGRAMS IN NATURALLY OCCURRING RETIREMENT COMMUNITIES Barbara A. Ormond Kirsten J. Black Jane Tilly Seema Thomas The Urban Institute November 2004 Prepared for Office of Disability, Aging and Long-Term Care Policy Office of the Assistant Secretary for Planning and Evaluation U.S. Department of Health and Human Services Contract #HHS-100-97-0010 The opinions and views expressed in this report are those of the authors. They do not necessarily reflect the views of the Department of Health and Human Services, the contractor or any other funding organization. TABLE OF CONTENTS ACKNOWLEDGMENTS .................................................................................................iii EXECUTIVE SUMMAY ...................................................................................................iv INTRODUCTION............................................................................................................. 1 BACKGROUND.............................................................................................................. 3 METHODS ...................................................................................................................... 5 FINDINGS FROM THE LITERATURE REVIEW AND EXPERT INTERVIEWS ............. 7 What is a NORC?.................................................................................................... 7 What Factors Affect the Development of a NORC? ................................................ 9 What Organizational Entities are Associated with Services Programs in NORCs?....................................................................................................... 11 What Services do NORC Residents Want or Need?............................................. 13 What Services are Typically Available in NORC Services Programs? .................. 16 What Factors Affect Resident Participation in NORC Services Programs?........... 17 How are the Outcomes of NORC Services Programs Defined and Measured?.... 18 What are the Principal Sources of Funding for NORC Services Programs? ......... 20 Discussion............................................................................................................. 21 CONCEPTUAL MODEL ............................................................................................... 22 Attributes of the NORC.......................................................................................... 22 Services Programs and Community Organization................................................. 22 NORC Services Programs and Their Potential Outcomes .................................... 23 Services Program Funding Sources...................................................................... 24 CASE STUDY FINDINGS ............................................................................................. 26 Case Study Sites................................................................................................... 26 NORCs and Community Resources...................................................................... 27 Services Programs and Community Organization................................................. 29 Program Services and Outcomes ......................................................................... 31 NORC Services Program Funding ........................................................................ 35 DISCUSSION................................................................................................................ 36 Short-Term versus Long-Term Program Outcomes .............................................. 37 Communication and Program Evolution................................................................ 37 Outcomes Measurement....................................................................................... 38 Limitations of Supportive Services Programs........................................................ 38 Program Funding .................................................................................................. 39 Expanding Supportive Services Programs to Less Densely Settled Communities.................................................................................................... 39 i APPENDIX 1. ANNOTATED REVIEW OF THE LITERATURE ON HOUSING WITH SERVICES FOR OLDER PEOPLE WHO AGE IN PLACE Introduction ..........................................................................................................A-4 Literature Related to Naturally Occurring Retirement Communities (NORCs) .....A-5 Literature Related to Support Services in Public Housing..................................A-22 Literature Related to Cluster Care......................................................................A-42 Literature Related to Assisted Living..................................................................A-45 Literature Related to General Housing and Policy .............................................A-47 APPENDIX 2. NORC SITE VISIT SUMMARIES Summary of the Site Visit to Senior Friendly Neighborhoods...............................B-2 Summary of the Site Visit to United Jewish Federation of Cleveland’s Community Options Program and a Discussion with Three of Its Subgrantee Sites ............................................................................................B-8 Summary of the Site Visit to Jewish Family and Children’s Services of Greater Philadelphia .....................................................................................B-15 Summary of the Site Visit to United Jewish Federation of Pittsburgh’s NORC Project ...............................................................................................B-21 Summary of the Site Visit to the NORC Project .................................................B-26 APPENDIX 3. COMPARISON OF THE CONCEPTUAL MODEL BY NORC SITES ii ACKNOWLEDGMENTS The authors thank members of the Technical Advisory Group for their contributions to this project: James J. Callahan, Jr., Ph.D. Professor and Director of the Policy Center on Aging Brandeis University Michael Hunt, Ph.D. Professor and Chair of the Environments, Textiles and Design Department University of Wisconsin Penny Feldman, Ph.D. Director, The Center for Home Care Policy and Research Visiting Nurse Service of New York Jon Pynoos, Ph.D. National Resource and Policy Center on Supportive Housing and Home Modification Andrus Gerontology Center University of Southern California Fredda Vladeck Project Director, Aging in Place Initiative United Hospital Fund of New York The authors also thank staff from the New York NORC-SPP, Deepdale Cares, and Lincoln Square Neighborhood Center for improving our
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