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EPILEPSY ALLIANCE EUROPE NEWS FROM THE TASK FORCE CHAIRS under the auspices of: ® EA E International Bureau for APRIL 2018 Epilepsy Alliance Europe IBE Epilepsy Meet the members of the Task Force 2017-2021 Martin Brodie, Co-chair representing IBE Philippe Ryvlin, Co-chair representing ILAE Janet Mifsud, representing IBE Caroline Morton, representing IBE Francesca Sofia, representing IBE Lievan Lagae, representing ILAE Eugen Trinka, representing ILAE Kristl Vonck, representing ILAE FIND OUT MORE www.epilepsyallianceeurope.org/epilepsy-alliance-europe-task-force/ INTERNATIONAL EPILEPSY DAY IN THE EUROPEAN PARLIAMENT Philippe Ryvlin and Martin Brodie, Co-chair, Epilepsy Alliance Europe Task Force A global alliance for epilepsy The European Advocates for Epilepsy MEP group in the European In opening the briefing, Brian Hayes MEP explained that the work- Parliament, organised a Breakfast Briefing in the parliament in Brus- shop focused on the need for a global alliance for epilepsy research sels on 31st January to mark International Epilepsy and was a follow up to an important workshop held Day. Hosted by its President, Brian Hayes MEP (Ire- in 2017 and which involved representatives from land), the event was attended by several MEPs, Epilepsy is a the national health agencies in the US and Canada. including Mrs Lieve Wierlinck (Belgium), Seán Kelly most complex Speaking at the event, Francesca Sofia, the mother (Ireland), Alojz Peterle (Slovenia), Roberta Metsola of an eight-year old girl with difficult refractory epi- (Malta), José Inácio Faria (Portugal), and Franc disease. lepsy, said: “My plea to you today is to work with us Bogovič (Slovenia). in a life-changing movement to save a community Also present were Stéphane Hogan, Head of Sec- Fighting of 6 million people (with epilepsy).
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