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Resource Directory 2017-18 with Cover Pages.Indd Post-Stroke Resource Directory Nationally Recognized Stroke Care When Strokes happen….they come out of nowhere, and every second counts. Regional’s Comprehensive Stroke Center extends the potential stroke treatment window by dissolving and extracting brain blood clots. The Joint Commission’s Gold Seal of Approval™ as a Comprehensive Stroke Center • Dedicated multi-disciplinary 24/7 Stroke Team • Dedicated Neurosciences ICU with 24/7 physician care • Advanced neuro-interventional procedures • Comprehensive rehabilitation services • Monthly stroke survivors and caregivers support group 225 1 Jackson Ave., San Jose, CA. 95116 Ph: 408-259-5000 www.regionalmedicalsanjose.com To find a doctor specializing in stroke care or speak to a nurse call our 24-hr Consult-A-Nurse® toll free line at: 1-888-RMC-8881 A Resource Directory for Stroke Survivors and their Caregivers in Santa Clara and San Mateo Counties 2017 - 2018 Edition © Copyright 2017 by Pacifi c Stroke Association. All rights reserved including the right to reproduce this booklet or portions thereof in any form. www.Pacifi cStrokeAssociation.org [email protected] – (650) 565-8485 ii Welcome to the 2017/2018 Edition of the PSA Resource Directory: A Comprehensive Resource for Stroke Survivors Board of Directors and their Caregivers Scott Wilson - Board Chair The PSA Resource Directory is brought to you by the Pacifi c Stroke Association (PSA), a Palo Alto based, non-profi t organization serving Jane Allen San Mateo and Santa Clara counties in northern California. Doug Clarke Gary Curtis Pacifi c Stroke Association provides this comprehensive directory free Sherril Hopper, RN of charge to stroke survivors and caregivers who may be searching for Alex Johnson help and assistance. To receive your free copy, call 650-565-8485 or Debbie Mackey email [email protected]. Debra Meyerson, PhD Nancy Houston Miller, RN This directory is also a valuable resource for clinicians, hospitals, Victoria B. Thoits rehabilitation centers, and those who work with stroke and brain injury survivors. The information in this directory is accurate as of January Rezvan Moghaddam 2017. Changes may have occurred by the time you use this edition. Executive Director If you have comments regarding any of these resources, or note inaccuracies, please contact us at [email protected]. Annie O’Donnell Program Director Each of the listings offers a brief description of services and contact Rachel Halford information that can quickly guide you to programs and services to meet Community Outreach Manager your needs. If you would like further assistance using this directory or fi nding additional information, we encourage you to contact Pacifi c Stroke Association at 650.565.8485 or email [email protected]. Medical Advisory Council Vivek A. Rao, MD - Council Chair The publication of the 2017/2018 edition of the PSA Resource Directory Kaiser Permanente - Redwood City was made possible in part by generous fi nancial support from El Camino Jai Cho, MD Hospital, Regional Medical Center and the Hurlbut-Johnson Charitable Kaiser Permanente - Santa Clara Trusts. Jenelle Jindal, MD El Camino Hospital - Mt. View With special thanks to our 2017/2018 Resource Directory Specialist, Reza Malek, MD Justin Chen from UC Riverside, our editor, Victoria Thoits and our Minimally Invasive Surgical Solutions graphic and publication assistant, Ellie Mansfi eld. David Tong, MD California Pacifi c Medical Center Chitra Venkat, MD Stanford Health Services 3801 Miranda Avenue Building 6, Room A162 Palo Alto, CA 94304 (P) 650 – 565-8485 (F) 650 – 565-8482 Note: While we greatly appreciate the information for listings and www.PacificStrokeAssociation.org advertisements in this Resource Directory, their inclusion does not imply an Tax ID#: 77-0500631 endorsement of products or services. Please verify information and seek references where appropriate. www.Pacifi cStrokeAssociation.org iii [email protected] – (650) 565-8485 YOUR LOVED ONE HAD A STROKE – NOW WHAT Top Ten Things You Need to Know about Stroke: 1. What is a Stroke - What Causes It? 6. Getting a Neuropsychological Evaluation (NPE) 2. Will it Happen Again, How Can I Prevent a Stroke? 7. Stroke Rehabilitation – How Long? 3. What are the Typical Results of a Stroke? 8. Driving after Stroke – Am I Ready? 4. What Happens at the Hospital After a Stroke? 9. What Affects the Survivor’s Attitude? 5. Some Common Effects of a Stroke 10. Is Participating in a Support Group Important? 1. WHAT IS STROKE – WHAT CAUSES IT? Stroke is a brain attack that affects the blood vessels Right Hemisphere Stroke that supply blood to the brain. A stroke is like a heart • Weakness, paralysis or altered sensation on left attack except for the fact that the brain does not side send pain signals and so the warning signals of a • Lack of awareness of disability and tendency to stroke are the symptoms themselves. be impulsive • Memory issues, excessive talking Stroke occurs when oxygen carried in the • Short attention span, problems expressing bloodstream is cut off from the brain cells. Blood emotions, recognizing emotions of others, reading fl ow to the brain tissues can be interrupted in two “body language” and social judgment ways: • Distorted Spatial-perceptual problems • The vessel clogs from within (ischemic stroke) • Neglect on the left side • The vessel ruptures, causing the blood to leak into the brain (hemorrhagic stroke) Left Hemisphere Stroke • Weakness, paralysis or altered sensation on right A Transient Ischemic Attack (TIA) is a “mini-stroke” side that produces stroke-like symptoms and is caused • Problems with numerical recognition and by a blood clot that temporarily clogs an artery. calculations Often TIAs serve as a warning sign of a more • Memory issues, anxiety, depression major stroke that might occur requiring immediate • Speech & language diffi culties (dysarthria, attention. aphasia) 2. WILL IT HAPPEN AGAIN – HOW CAN I PREVENT A STROKE? Brain Stem and Cerebellar Injury • Coma and low level consciousness This is a very real concern but there is no • Unstable vital signs, nausea, and vomiting simple answer. In most cases, if you have • Crossed or bilateral weakness and/or numbness already had a stroke, your risk of having • Diffi culty swallowing and/or diffi culty speaking another one is higher. For the best answer, • Lack of coordination of arm and/or leg and/or trunk you may want to ask your health professional and follow their recommendation for ways to reduce your risk factors. 4. WHAT HAPPENS AT THE HOSPITAL AFTER A STROKE ? 3. WHAT ARE THE TYPICAL RESULTS OF A STROKE ? The diagnosis of stroke is made by the clinical signs and symptoms and through a variety of procedures The brain is divided into right and left hemispheres. such as Angiogram, CT Scan, EEG, MRI and others. The brain stem and cerebellum are at the base. As such, STROKE is a medical emergency. It is Depending on the location of the stroke, you may see important to call 911 to get to the emergency room or experience some of the following: as soon as possible to be treated. www.Pacifi cStrokeAssociation.org iv [email protected] – (650) 565-8485 5. SOME COMMON EFFECTS OF A STROKE A typical post-stroke treatment may include: Aphasia/Apraxia – a total or partial loss of the ability • Self-care skills such as feeding, grooming, to use words. It affects a person’s ability to talk, bathing, dressing, toileting. listen, read, and write. Each person’ s speech and • Mobility skills such as transferring, walking, or language problem is unique. self-propelling a wheelchair. Dysarthria – a problem that can affect muscles used • Communication, cognitive, and socialization in talking (in tongue, palate and lips) which can skills. cause slowed, slurred or distorted speech. Successful recovery depends on (1) the extent of the brain injury, (2) your attitude, (3) cooperation Dysphagia – trouble with chewing and swallowing and support of family & friends, and (4) the skills of food which increases the risk of choking. the rehabilitation team. As a part of that team, your positive outlook and determination are key. Ability to Think Clearly – diffi culty starting and carrying out a task, confusion about the sequence of 8. DRIVING AFTER STROKE – AM I READY? logical steps in tasks, or forgetting how to do tasks you have done many times before. Driving is often a major concern after a stroke. Before you can drive again, you need to talk to Emotional Liability & Depression – crying easily and your doctor as s/he can determine if and when it laughing uncontrollably, diffi culty sleeping, eating, is safe for you to drive. It is illegal to drive against sadness, pessimistic outlook and loss of interest in your doctor’s advice. You need to contact the DMV how one looks. as you must get medical clearance before you can 6. GETTING A NEUROPSYCHOLOGICAL legally drive again. Enroll in a Driver’s Training EVALUATION (NPE) Program which is often available through rehab centers. A neuropsychological evaluation (NPE) is an in-depth look at your verbal and non-verbal thinking skills: 9. WHAT AFFECTS THE SURVIVOR’S ATTITUDE? memory, sequencing, and reasoning. It also looks at behavioral, emotional, and social consequences of Some of the factors include life stage, age, gender, brain injury. medical history, pre-stroke personality and attitude, quality of family and social relationships. Getting a NPE is important for developing a treatment plan with realistic goals. Most rehab facilities have A stroke survivor sustains numerous losses: mobility, staff neuropsychologists or can recommend one. Your speech, thinking ability, independent functioning, primary physician may also be able to make a referral. social role and loss of income within a very short period of time. 7. STROKE REHABILITATION – HOW LONG? Recovery progresses by stages – shock, denial, Rehabilitation usually begins when the doctor anger/depression, mobilization, coping and determines that the stroke patient is medically stable.
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