Autism Awareness Day Be Autism Friendly
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Editorial: Pride and Autism Spectrum Disorder
EDITORIAL: PRIDE AND AUTISM SPECTRUM DISORDER June 14, 2019 Tuesday June 18 is Autistic Pride Day and every April, thanks to National Autism Awareness Month, there’s a renewed sense of support for people living with Autism Spectrum Disorder (ASD) and those who’ve worked tirelessly to foster environments of inclusion and self-determination for all. Yet, when Autism Awareness Month comes to an end, so too does much of the focus on autism from the general public. As a society, we’ve made positive strides, but it’s important to remember that the conversations about acceptance, inclusion and support for people with ASD need to happen year-round. Today Autistic Pride Day is about celebrating differences in the autism community and realizing people’s infinite possibilities and potential. People with autism have hopes, dreams, aspirations, and a right to participate in the working world. Unfortunately, people with ASD are not afforded the same opportunities as the rest of us when it comes to employment. While the majority of Americans are enjoying a low unemployment rate and strong economy, the unemployment rate for adults with developmental disabilities remains high. According to the Bureau of Labor Statistics, only 29 percent of Americans ages 16 to 64 with a disability were employed as of June 2018, compared with nearly 75 percent of those without a disability. The unemployment rate for people with disabilities who are actively seeking work is 9.2 percent — more than twice as high as for those without a disability (4.2 percent). Employers’ lack of understanding and lasting stigmas are partly to blame for this discrepancy. -
How to Do a Test for Coronavirus at Home
How to do a test for Coronavirus at home An autism-friendly guide to testing your child or young person 2 Ambitious about Autism How to do a test for Coronavirus at home If your child or young person has symptoms, you should order a home test for Coronavirus. The home testing kit for Coronavirus is a swab test. The test is invasive, and swabs are taken from inside the nose and throat. Some autistic children and young people • Use a now and next visual where the ‘next’ may find the home testing kit distressing. side is an activity that your child enjoys, something that will motivate them to It is important to make adjustments to complete the Coronavirus home testing kit support your child and ensure the test is • Ask them to blow their nose to ensure taken safely and accurately. other bacteria doesn’t interfere with the test To relieve anxiety, you can use our Coronavirus home testing visual stories • To prepare yourself, wash your hands with for children and young people. soap for 20 seconds or use hand sanitiser. • To prepare your environment, clean the There are several ways you can prepare surface before you put the home testing your child for the test: kit down. • If appropriate, allow your child to support their stress or anxiety by playing with their favourite toy or stimming toy during the test • Put their favourite programme on so they can watch during the test • Play relaxing music during the test • Your child or young person might prefer to watch or close their eyes as you take swabs, give them the option Ambitious about Autism An autism-friendly guide to testing your child or young person 3 There are four steps to the Coronavirus home testing kit. -
The Cerebral Subject and the Challenge of Neurodiversity
BioSocieties (2009), 4, 425–445 ª London School of Economics and Political Science doi:10.1017/S1745855209990287 The Cerebral Subject and the Challenge of Neurodiversity Francisco Ortega Institute for Social Medicine, State University of Rio de Janeiro, Rua Saˇ o Francisco Xavier 524, Rio de Janeiro CEP 20550-900, Brazil E-mail: [email protected] Abstract The neurodiversity movement has so far been dominated by autistic people who believe their condition is not a disease to be treated and, if possible, cured, but rather a human specificity (like sex or race) that must be equally respected. Autistic self-advocates largely oppose groups of parents of autistic children and professionals searching for a cure for autism. This article discusses the posi- tions of the pro-cure and anti-cure groups. It also addresses the emergence of autistic cultures and various issues concerning autistic identities. It shows how identity issues are frequently linked to a ‘neurological self-awareness’ and a rejection of psychological interpretations. It argues that the preference for cerebral explanations cannot be reduced to an aversion to psychoanalysis or psychological culture. Instead, such preference must be understood within the context of the dif- fusion of neuroscientific claims beyond the laboratory and their penetration in different domains of life in contemporary biomedicalized societies. Within this framework, neuroscientific theories, prac- tices, technologies and therapies are influencing the ways we think about ourselves and relate to others, favoring forms of neurological or cerebral subjectivation. The article shows how neuroscien- tific claims are taken up in the formation of identities, as well as social and community networks. -
Boston Medical Center Autism Friendly Initiative: Improving
Boston Medical Center Autism Friendly Initiative: Improving Hospital Experience for Patients with Autism Sarah Qin, MBA1; Shari King, MA1; Lauren Busa, MA1; Julia Goupil1; Daniel Cahill1; Sarabeth Broder-Fingert, MD, MPH2; Marilyn Augustyn, MD1 1Department of Developmental and Behavioral Pediatrics, Boston Medical Center 2Department of Pediatrics, Boston University School of Medicine *We have nothing to disclose Background Identifying the Challenges Targeted Interventions Trainings The prevalence of autism spectrum disorder (ASD) is rising, Staff Survey: In partnership with PLAN parents, the Boston University School of however, there are significant barriers to quality healthcare for Autism Support Checklist (ASC) Medicine and the Goldman School of Dental Medicine, we train patients with ASD. Patients with ASD experience more outpatient Autism Support Checklist Name of Patient: ____________________________ The Autism Support future doctors and dentists how to better interact with patients visits and their annual healthcare costs are higher than patients Date Completed: _________________ Communication Checklist collects with ASD. 1. How does the patient communicate information? without ASD. Patients with ASD encounter high levels of unmet Spoken language Pictures information from Written Words need and lower levels of satisfaction with care. To address these Non-verbal “I will be better able to recognize ASD and adapt to Electronic Communication patients with ASD Gestures issues at Boston Medical Center (BMC), we have launched the Other: ____________________ patient interactions and understand the needs of both 2. What would help the patient understand information? and their caregivers Spoken language Autism Friendly Initiative to improve the healthcare experience for Pictures the patient and family.” Written Words about individualized Electronic Communication rd Other: ____________________ -3 Year Medical Student our patients with ASD. -
The Joy of Autism: Part 2
However, even autistic individuals who are profoundly disabled eventually gain the ability to communicate effectively, and to learn, and to reason about their behaviour and about effective ways to exercise control over their environment, their unique individual aspects of autism that go beyond the physiology of autism and the source of the profound intrinsic disabilities will come to light. These aspects of autism involve how they think, how they feel, how they express their sensory preferences and aesthetic sensibilities, and how they experience the world around them. Those aspects of individuality must be accorded the same degree of respect and the same validity of meaning as they would be in a non autistic individual rather than be written off, as they all too often are, as the meaningless products of a monolithically bad affliction." Based on these extremes -- the disabling factors and atypical individuality, Phil says, they are more so disabling because society devalues the atypical aspects and fails to accommodate the disabling ones. That my friends, is what we are working towards -- a place where the group we seek to "help," we listen to. We do not get offended when we are corrected by the group. We are the parents. We have a duty to listen because one day, our children may be the same people correcting others tomorrow. In closing, about assumptions, I post the article written by Ann MacDonald a few days ago in the Seattle Post Intelligencer: By ANNE MCDONALD GUEST COLUMNIST Three years ago, a 6-year-old Seattle girl called Ashley, who had severe disabilities, was, at her parents' request, given a medical treatment called "growth attenuation" to prevent her growing. -
DR SIM ZI LIN Psychologist & Autism Therapist
DR SIM ZI LIN Psychologist & Autism Therapist DR SIM ZI LIN is a Psychologist and Autism Therapist at Autism Resource Centre (Singapore), or ARC. She graduated summa cum laude from the University of California (UC), Berkeley with a BA in Psychology (Highest Honors), and was awarded a Berkeley Graduate Fellowship to further pursue a PhD in Psychology. During her graduate program, Dr. Sim researched self-directed learning in typical and atypical development, and has published and presented her work in numerous academic outlets. Her work has been featured in the Wall Street Journal as well. She received training in the neuropsychological and educational assessment for children and adolescents during her time at UC Berkeley. Passionate about serving the autism community in Singapore, Dr. Sim returned to work at Pathlight School and ARC(S) after graduating with her PhD. She is currently responsible for training and coaching new and existing staff in designing autism-friendly learning environments, incorporating students’ learning profile into one’s pedagogy, etc. She also writes and conducts therapy programmes for individuals with autism in areas including self-regulation, assertiveness and self-advocacy. She is also involved in conducting cognitive, academic, and mental capacity assessments for students with autism to support Access Arrangements and Deputyship applications. Holding the quote “If a child can't learn the way we teach, maybe we should teach the way they learn” (Ignacio Estrada) close to her heart, Dr. Sim continues to pursue her research interests in examining learning mechanisms in children with ASD. Autism Resource Centre (S) Autism Intervention, Training & Consultancy GST no. -
Monthly Meeting President Armando Sandoval Vice President Our Next Monthly Meeting Will Be Tuesday, February 10,2015 Rebekah Sandoval at 6:30 P.M
The only nationally affiliated group in El Paso. February 2015 OFFICERS Bonnie Perez Monthly Meeting President Armando Sandoval Vice President Our next monthly meeting will be Tuesday, February 10,2015 Rebekah Sandoval at 6:30 p.m. at Region 19 Education Service Center, 6611 Boeing. Secretary Monique Armendariz Join us to discuss issues important to families and to network with Treasurer Karla Ronquillo others who understand. Childcare and refreshments will be available. Executive Administrative If you would like to see some of our books, please call the Assistant BOARD office to schedule an appointment. Messages are checked daily. Feel Adriana Araiza free to call us for any information at 772-9100 or send us an email to Michelle Lopez Ainée Robles [email protected] Joe Villalobos HONORARY BOARD Join us on Facebook! NATIONAL www.facebook.com/autismsocietyep AUTISM SOCIETY Sandra Smith Advanced Placement Specialist INDEX General Information 1 MONTHLY Upcoming Events 2 MEETINGS General What’s Going On 3 Membership A Letter from the President 4 Meetings are held the Submit Your Family’s Stories 5 second Tuesday of every month at Re- gion 19 ESC at 6611 Boeing beginning at 6:30 p.m. Board Meetings are held on the last Monday of every month at 6:30 p.m. All members are welcome to attend, and your input is always 1 AUTISM SOCIETY OF EL PASO AUTISM SOCIETY OF EL PASO UPCOMING EVENTS 2014: February 10, 2015 Monthly Support Group Meeting 6:30 p.m. Region 19 Education Service Center 6611 Boeing Dr. February 23, 2015 Monthly Board Meeting 6:30 p.m. -
Epistemic Institutions: Law's Encounters with Knowledge
Epistemic Institutions: Law’s Encounters with Knowledge By James Dillon A dissertation submitted in partial satisfaction of the requirements for the degree of Doctor of Philosophy in Jurisprudence and Social Policy in the Graduate Division of the University of California, Berkeley Committee in charge: Professor Malcolm M. Feeley, Chair Professor Andrea L. Roth Professor Amy E. Lerman Summer 2018 Abstract Epistemic Institutions: Law’s Encounters with Knowledge by James Dillon Doctor of Philosophy in Jurisprudence and Social Policy University of California, Berkeley Professor Malcolm M. Feeley, Chair This dissertation examines the construction of “legal knowledge”—the finding of facts to which legal norms are to be applied in the adjudication of disputes—from an interdisciplinary perspective emphasizing epistemology, the sociology of scientific knowledge, political theory, and cognitive psychology. While the construction of legal knowledge is an essential component of the legal process and the principal task of American trial courts, the process remains fraught with practical and theoretical challenges that complicate simplistic conceptions of factfinding as a transparent process of veridical reconstruction of past events. Legal epistemic agents, like all epistemic agents, lack direct access to past events; thus, legal knowledge cannot perceive the past directly, but can only interpret it. The process of legal factfinding inevitably creates distortions and is subject to systemic biases in its effort to create a veridical construct of past events giving rise to a legal dispute. Although this dissertation cannot address every under-explored problem concerning the legitimacy and reliability of legal knowledge construction, its principal contribution is to bring interdisciplinary insights to bear on several of the more salient unresolved problems around the law’s engagement with knowledge claims and the construction of legal knowledge through the adversarial process. -
100 Day Kit for Newly Diagnosed Families of School Age Children
100 Day Kit for Newly Diagnosed Families of School Age Children FAMILY SERVICES DECEMBER 2014 100 DAY KIT FOR SCHOOL AGE CHILDREN The Autism Speaks 100 Day Kit is a tool designed to help assist families of children recently diagnosed with autism during the critical period following an autism diagnosis. The 100 Day Kit for School Age Children was released in 2014 and adapted from the 2010 Asperger Syndrome/High-Functioning Autism Tool Kit after the DSM-5 was published. The kits were created by the Autism Speaks Family Services staff in conjunction with both an advisory committee and the Family Services Committee. Autism Speaks would like to extend special thanks to the Advisory Committee for the time and effort that they put into reviewing this kit: 100 Day Kit for School Age Children Mel Karmazin* Advisory Committee Grandparent Ann Brendel Brian Kelly * ** Parent Geraldine Dawson, Ph.D. Professor, Department of Psychiatry and Artie Kempner* Behavioral Sciences Parent Duke University Medical Center Gary S. Mayerson* Lauren Elder, Ph.D. Founding Attorney, Mayerson & Associates Director, Ascent Psychological Services Kevin Murray* Peter F. Gerhardt, Ed.D. Parent Former President, Organization for Autism Research (OAR) Linda Meyer, Ed.D. Kerry Magro, M.A. Executive Director, Autism New Jersey Autism Speaks Social Media Coordinator, Danny Openden, Ph.D., B.C.B.A.-D. Self-advocate President and CEO, Southwest Autism Research and Valerie Paradiz, Ph.D. Resource Center (SARRC) Director, Valerie Paradiz, LLC Valerie Paradiz, Ph.D. Director Autistic Global Initiative Director, Valerie Paradiz, LLC Parent and self-advocate Director Autistic Global Initiative Patricia R. -
Field Guide Future
FIELD GUIDE FOR THE FUTURE N A M E FIELD GUIDE FOR THE FUTURE A practical guide from the Commission’s inquiries, case studies of good practice and stories of change – the future, happening now. With thanks to everyone who contributed. Contents Introduction 4 Scotland 53 Imagine a future where... 4 Scotland inquiry 53 Postcard 6 Urban growing 54 About this field guide 8 Technology 54 Vertical farming 53 Health 10 Small robots 56 Farming 11 Discussion Kit 57 Richard Betton 11 Liz Findlay 13 Countryside 60 George Hosier 14 Bill Grayson 16 Land use 61 Lydia Otter 18 Scotland’s Land Use Strategy 61 Harry Wilder 20 Peatland restoration 62 Building a deliberative process around the EAT-Lancet report 22 Natural flood management 64 Prioritising the good 22 Trees for timber 66 Procurement 24 Thriving Communities 67 The Carmarthenshire Food Procurement Task Force 24 Frome: a public value lens 67 Reflections on the process 29 Agrivillages 69 Why we need regional stakeholder banks 70 Mental Health 30 Exploring land stewardship 71 Farming Connect mentors 30 Farmers’ and their families’ health 31 Good Work 73 A college for the future 73 Attracting new entrants: the need for good work 75 Farming 32 Soils 33 Generating a healthy future for Lincolnshire’s soils 33 Place 76 How to assess soil quality 36 Northern Ireland 77 Cumbria 86 Advice 38 Devon 92 Discussion groups 38 Mind the gap: analysis of support 40 Transition 42 Learning in Action 98 Agroforestry: Stephen and Lynn Briggs 42 Agroforestry: Harriet Bell 43 Carbon neutral upland farming 45 References 102 Cooperatives 46 Nethergill Farm: rethinking stocking levels 49 Pipers Farm: producing high quality meat 51 The Ethical Dairy 52 2 3 Introduction Introduction Imagine a future where.. -
Gyvūnai Autistiškų Žmonių Gyvenime – Nuo Draugų Iki Terapeutų Kaip Kalbėti Su Vaikais Apie Autizmą?
Spalis lietaus vaikai 2020 / NR. 9 Lietuvos autizmo asociacijos žurnalas GYVŪNAI AUTISTIŠKŲ ŽMONIŲ GYVENIME – NUO DRAUGŲ IKI TERAPEUTŲ KAIP KALBĖTI SU VAIKAIS APIE AUTIZMĄ? IŠŠŪKIŲ KELIANTĮ ELGESĮ LEMIA SAUGUMO TRŪKUMAS lietaus vaikai 2020 / Nr. 9 1 TURINYS Neuroįvairovės revoliucija 3–5 Žurnalas Diana Romanskaitė „Lietaus vaikai“ ISSN 2669-1825 Janne Fredikssonas: „Autistiškiems 6–7 Vyriausioji redaktorė asmenims itin svarbu ginti savo teises“ Barbora Suisse Kristina Košel-Patil [email protected] +370 698 00803 Iššūkius keliančio elgesio autistiški Projekto vadovė 8–9 vaikai ir jaunuoliai lieka be pagalbos Kristina Košel-Patil Julija Dargienė [email protected] +370 609 41420 Mokyklai einant įtraukties keliu, Redaktorė Sigita Bertulienė 10–11 svarbiausia bendruomenės požiūris Kristina Košel-Patil Dizainerė Inesa Gervė Kaip kalbėti su vaikais apie autizmą? Spaustuvė 12–13 Julija Dargienė UAB „Grafija“ Gyvūnai autistiškų žmonių gyvenime 14–16 – nuo draugų iki terapeutų Julija Dargienė Tiražas 1000 vnt. Leidinys platinamas nemokamai. Verbalinio elgesio etapų vertinimo ir 17 Elektroninė žurnalo versija skelbiama ugdymo plano rengimo programa – www.lietausvaikai.lt jau ir lietuvių kalba Eglė Steponėnienė Žurnalą leidžia Lietuvos autizmo asociacija „Lietaus vaikai“ Būti kaip visi: autistiškų asmenų 18–19 taikomos „kamufliažo“ strategijos Laura Valionienė Iššūkių keliantį elgesį lemia saugumo Žurnalą finansuoja 20–22 trūkumas Laura Valionienė Potrauminio streso sutrikimas ir Visos teisės saugomos. 23–25 autizmas Kopijuoti ir platinti galima tik gavus raštišką Laura Valionienė redakcijos atstovo sutikimą. „Lietaus vaikų“ šeimų stovykla Viršelio nuotraukos autorė – Laura Čekanauskienė 26 pajūryje – visiems vaikams! Modelis – Rapolas (7 metai). Sandra Lopetaitė Neuroįvairovės revoliucija psichikos žmonės“, kuris, mano nuomone, išreiškia svarbiausią neuroįvairovės šalininkų idėją – nenormatyvių jausmų, mąstymo, emocinių ir dvasinių būsenų pripažinimą ir pagarbą jų turėtojams. -
A Brief Instigation to Autism: Review Article
International Journal of Research and Scientific Innovation (IJRSI) | Volume IV, Issue VIIS, July 2017 | ISSN 2321–2705 A Brief Instigation to Autism: Review Article Ashima Sindhu Mohanty1, Dr. Krishna Chandra Patra2, Akshya Kumar Sahoo3 1Research scholar, SUIIT, Sambalpur University, Odisha, India 2HOD, Dept. of Electronics, SUIIT, Sambalpur University, Odisha, India 3Assistant professor in Dept. of EEE, GIET, Gunupur, Odisha, India Abstract: - The composite brain comprises of billions of components with distinguishable shape, size and wiring patterns. It supervises all the essential functions of the body by receiving the information through five senses: sight, hear, smell, taste and touch and the messages are assembled in a way that has meaning for us. Humans are affected from a number of neurodevelopmental disorders which results in poor ability to function in daily life. Autism Spectrum Disorders (ASD) are a composite set of mental disorders due to deterioration in the growth and development of brain defined by impaired social interaction, verbal and non-verbal communication and repeated unusual behaviours. ASD incorporates Autism, Asperger syndrome and pervasive developmental disorder-not otherwise . specified (PDD-NOS). This review article assembles information on different interventions adopted against autism. Figure 2. Keywords: Autism, Asperger syndrome, PDD-NOS, ABA, DSP, Source: https://pmgbiology.com/2015/02/18/nerve-cells-and-synapses-a- EIBI, Medication. understanding-for-igcse-biology/ There is a gap which is particularly known as synapse I. INTRODUCTION between the axon and the dendrite of the neighbouring neuron and the message sent by the signal must cross this synapse in utism is a mental disorder due to deteroriation in the [3] A growth and development of brain characterised by order for the message to be carried on to the next neuron.