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FOD Cover Page Jan to June-2006 VVTHE OOIICCEEJAN-JUNE 2006 FOD Vol XV No. 1 OF FOD INDIA’S FIRST MAGAZINE ON DISABILITY RS. 30.00 ACCESSIBLE TRANSPORT SYSTEM A Distant Dream DISABILITY As Perceived By Comedians With Disabilities AHMED SHAH HASHMI Running An Eatery - His Left Hand Job DISABLED FRIENDLY BUILDINGS An Architect’s Viewpoint ACCEPT ME AS I AM With My Disability READ AND RELAY THE PUBLICATION voiceTHE CONTENTS OF FOD Editor and Publisher Rajinder Johar Editorial 5 Sub-editor Transportation : Ingeniosity reigns 6 Preeti Johar Radhika Gupta Members Ahmed Shah Hashmi : From missile to masala 11 Rachna Yadav Rakesh Kumar Jha Rubina Mohan Suneel Rao Society’s attitude towards the disabled 14 Swaran Gambhir Reema Bansal Karnataka Chapter 418, Ist Main, Ist Block, The Journey... 15 R.T. Nagar, Bangalore-560032 A poem by Sanil Kumar Tel: 080-23330200, 23535787 Fax : 26615101 Universal designs : Vision for the future 16 E-mail: [email protected] Sanil Kumar Coordinator : Ali Khwaja High time we got into the driving seat! 18 Editorial and FOD Registered Offce Preeti Monga B-1/500, Janakpuri, New Delhi-110058, India Stroke : Physiotherapeutic Management 20 Tel: 91-11-25597328, 41570140 Raju Kumar and Bharat Kharya E-mail: [email protected] Web: www.familyofdisabled.org Whatsay? Comedians with disabilities 23 Printed by How amazing? 24 Graphic Syndicate A-31, Naraina Industrial Area New Delhi-110 027 Questions and Answers 25 Tel: 011-32968355 The most beautiful flower 26 A poem from internet Cover Page : Collage of vehicles, News 27 ingeniously modified by people with disabilities to suit their specific needs LIC Schemes for disabled people 39 Books and Films 40 Believe it or Not! and Health Capsules… courtesy ‘The Times of India’ Looking Back 42 The views and opinions expressed in this issue are of authors themselves. FOD expresses its gratitude to the well wishers, benefactors and volunteers for their valued help in enhancing the organisation’s facilities and services to the target group. FOD looks forward to their continuing support in its endeavours. 4 Jan-June 2006 The VOICE of FOD F OD 5 Jan-June 2006 The VOICE of FOD F OD hen people with disabilities are invited to participate in any kind of function or agitation, be it dharna, march, rally, etc. the organisers should be aware of the different disabilities and associated Wcomplications of the participants. The specific needs of disabled participants should be considered first, than, just concentrating on increasing the volume of the crowd for one’s own meagre gain. In one such function, organised by Swami Vivekanand National Institute of Rehabilitation, in Olatpur (Orissa), 150 physically disabled children were made to wait in the scorching sun for over five hours to hear president Abdul Kalam. One of the children fainted while few others complained of stomachache, dizziness and nausea. Only at the intervention of the president, the children were moved under the shade near the dais. People using gadgets like wheelchairs, walkers, bilateral calipers and prosthesis extending beyond knee are the worst sufferers on such occasions. Severely disabled individuals are also herded to the venue of demonstration or function with scant regard for their comfort and convenience. The organisers, who usually are the NGOs and institutions from disability sector display total insentivity and ignorance about the disability and associated complications of the participants. Success of any demonstration or function is measured numerically; the organisers’ delight lies in ‘‘the more the merrier.’’ It is generally observed that mentally retarded children, who form a major chunk of the crowd, are oblivious to the reason of their being a part of it. Prolonged sitting in a wheelchair or wearing heavy gadgetry on such occasions or exposure to unfamiliar and unaccustomed environment in places like courts, government offices, waiting endlessly for their turn to be heard, too, can cause adverse effects on their body which may take long to recover and cause anxiety to the carers of the disabled individuals. In an incidence of gross callousness, a quadriplegic bank account holder waiting in a wheelchair at the steps of a bank had to summon the police when his repeated requests failed to draw the attention of the bank staff to come out and listen to him. Though, even today the bank in question remains inaccessible to people with disabilities, however, the staff there now promptly turns up when he reaches the bank. Should we not behave like a concerned and responsible society and do not let the police and other similar agencies to attend the petty needs of disabled people. In spite of increased media coverage about the improved general condition of disabled people and related issues the ground reality over the years has not changed much. Arpita Ghosh, Ashish Tuli, Richa Bansal, Sanil Kumar and Tushar Arora extended their valued help in bringing out this issue of The Voice... Nobody really cares if you are miserable, to you night as were be happy. Cynthia Nelms 6 Jan-June 2006 The VOICE of FOD F OD In today’s fast paced world, where there are new innovations daily to diminish global boundaries and increase speed, we still have a big mass of population for whom commuting remains a major challenge. Radhika Gupta, manager (HR), Genpact, a leading ITES company, explores the challenges faced by physically disabled people to commute safely and on-time to their desired destination, and the ingenious methods adopted by a few to fill the looming gap in technology to cater to their needs. “What we have with us is not in our own hands but what we make out of all that we have is…” he technology dominated society that we are living to the conditions of road in our country, can’t find suitable in today bears testimony to the above statement. public or private modes of transport. Most that they can TGod did not give man wings to fly, yet the humans do is to get into their wheelchairs and have a stroll in the managed to reach the moon. With every single invention, vicinity. But wheelchairs are meant to help the user in boundaries across the globe are diminishing and the his/her mobility and definitely can’t be substituted for a world is becoming flat. Speed is the buzz word in today’s vehicle. They are meant to work as legs not as age. From bullock carts to motor bikes to cars to conveyance. helicopters and planes, and finally jets and even jumbo jets. We have come a long way! At least 7% of the population in India is disabled and surprisingly not even a single mode of public transport is But is each one of us able to take advantage of the reserved exclusively for them. In fact, ‘reserved for old numerous gadgets that have been developed for the and physically disabled’ is a signage that we see above benefit of mankind? Or for that matter, are enough a particular seat in the usual buses, trains and metros, gadgets actually being developed for the benefit of all? but being able to reach that space on their own is the When it comes to the physically disabled people, we biggest hurdle of all for people with physical disabilities, don’t see many things happening to make their lives especially wheelchair users. comfortable. The milestones achieved by any country can be gauged The matter of discomfort is not that nothing can be done by the measures it takes to help each less privileged but nothing is being done. In fact, there have been section of society. Many developed countries across the instances of unceremonious discontinuation of certain globe have various modes of public transport dedicated innovative measures meant for the welfare of people with exclusively to the needs of physically disabled people. disabilities. In fact, they have separate lanes and parking facilities for vehicles meant for the physically disabled (both public One of the biggest challenges faced by most of disabled as well as private) to ensure their safety as well as to let people is to commute conveniently, safely and on time them maintain the speed they are most comfortable at. to their desired destination. Unfortunately, not much has No doubt such improvement in infrastructure would take been done to cater to this basic need of theirs. Even years in a country like ours considering the poor condition those who muster courage to go on a bumpy ride owing of roads and priority issues like basic amenities to all still March 9, is World Kidney Day. Nearly 1.5 lakh new End Stage Dysfunction are reported each year. Delhi Nephrology Society(DNS) 7 Jan-June 2006 The VOICE of FOD F OD unresolved. But small measures such as introducing subsidies, it was incredibly inexpensive, and as a result, buses, auto-rickshaws, vans, etc which are disabled- malpractice and black-marketing was rampant. The friendly is an easier option and can help thousands of state-owned company realised the lacunae in the system, disabled people to commute their way to independence and instead of working with the government in and in turn to success! strengthening the system against malpractice, decided to stop production of the car altogether. On being Nothing significant has happened on the much- publicised enquired about the possibility of re-introducing the car, High Capacity Low Floor Bus system either; a company official retorted: “We already have automatic accommodation for two wheelchair passengers and versions of the Zen, Esteem and Wagon R. And anyway, pneumatically operated automatic access ramp, wide how do we make one common car (800cc) for persons twin doors that are fitted at the centre and front, which with different types of disabilities?” These cars cost almost permit three passengers to simultaneously board and double the cost of a Maruti 800.
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