VOL. 11, NO. 3 SUMMER/FALL 2004

A PUBLICATION OF FRANK D. LANTERMAN REGIONAL CENTER

Adam Sroujieh Finds Half a World Away, Pyunic is Striving a Close Companion to Create an Armenia Where People in His Dog, Shana with Disabilities are Fully Included very child wants a dog, and just before the holiday season last year, Adam ESroujieh’s wish came true. Adam’s ut of the tragedy of the parents were hesitant to bring a dog into the 1988 earthquake in family because of the added responsibility, but OArmenia, an organization another family that has a dog from Canine called Pyunic was created to Companions for Independence (CCI) finally provide programs and convinced them to sign up. “We started the services to the children who application process for a Skilled Companion were disabled in the three years ago. We received a phone call earthquake. As time about a year and a half later, however, we were progressed, and the not ready to start the training and matching children grew older, process, and postponed for another year,” their needs as individuals explains Brigitte Sroujieh, Adam’s mother. with disabilities changed, and so did the work of In November 2003, Adam, who is 9 years old, Pyunic. and his mother made the trip down to Oceanside, Calif., for the two-week intensive Continued on page 7 training program. In the Sroujiehs’ training program, there were five other teams and nine dogs. “The dogs for this class were all lined up in crates, and when Adam got to the crate with Shana, he said, ‘Shana, my dog,’ Participants at Pyunic’s 2003 Summer however, as part of the matching process, Camp in Armenia. each team had to work with all nine dogs to determine the best match. Every time someone else would work with Shana, Adam would say, ‘No, my dog.’ The whole time I Two Couples Move Into Too Cute, told him that we probably wouldn’t be getting this dog, but in the end he was matched with Two-Bedroom Home in Glendale Shana,” shares Sroujieh. ust as the weather was heating up in change,” comments Mercede Shamlo, service Glendale, so too was the excitement for coordinator. Jtwo longtime couples – Denise Stump and Mountain View Guest Home is owned and Douglas “Troy” Crippin, and Cindy Pollie operated by Adrian Rebollo. Rebollo has Hanks and David Binkier. The couples were worked in the field of developmental moving out of a large residential facility of disabilities since 1995, including as a job coach about 80 beds, into Mountain View Guest at CLIMB (Center for Living Independence for Home, a two-bedroom home with a yard, a cat, the Multi-Handicapped Blind), and at Arroyo and lots of freedom and independence. Developmental Services and People’s Care. “I As it turns out, about the same time the two really enjoyed working in this field, but I was at couples needed to move from the facility, a point in my life where I wanted to try Mountain View Guest Home was close to something new. This is when I decided that I receiving final approval from Community Care would like to open a home, since it seemed like Licensing to open. Ken Abbott, Lanterman a natural progression of what I had been Adam Sroujieh hangs out with Shana, his companion dog resource developer, recalls: “Everything came doing,” notes Rebollo. from Canine Companions for Independence. together at the same time. I had just finished a After two and one-half years of preparation follow-up visit to Mountain View Guest Home, Over two years are invested in raising and and hard work, Rebollo opened Mountain when discussions turned back to which clients View Guest Home. Rebollo completed training a CCI dog, before the dog is ready for still needed an option to move from the large the Team Training program. It all starts with facility. The accommodations of the home just Continued on page 4 the puppies that CCI breeds from its seemed like a good fit pedigreed breeding stock that reside in the for these homes of volunteers. Breeding dogs are individuals.This whole carefully selected for their health, opportunity was too temperament and intelligence. After eight much of a coincidence weeks, the puppies are placed with volunteer not to have been puppy raisers who tend to their food and meant to be, for veterinary needs, take them to puppy training everyone.” classes and expose them to public places. At one year of age, the dogs are returned to CCI Stump, Crippin, Hanks for six to nine months of advanced training. and Binkier are all Linda Valliant of CCI adds, “Only 50 percent friends, and when the of dogs graduate from advanced training, but idea of living together those that do are really solid ‘bomb proof’ in a small home was dogs. They are exposed to all kinds of presented to them, situations, including traffic, planes, boats, they were a little elevators and lots of kids. We want the dog to hesitant at first, but help, not limit independence.” agreed to go and see the house. They fell in Shana, who is a Labrador/Golden Retriever love with it. “Their mix, received extra help from the trainers, families let them make ultimately graduating from the Advanced the choice of whether Training Program to become a Skilled they wanted to live in a Companion. A Skilled Companion team home versus a facility, includes a person with a physical, and were very developmental or emotional/cognitive supportive of the (left to right) Cindy Pollie Hanks, David Binkier, Denise Stump, and Douglas “Troy” Crippin on the front porch at their new home, Mountain View Guest Home. They recently moved here Continued on page 9 from a large residential facility.

INSIDE: COMMUNITY MEETINGS page 5 | PERSPECTIVES CENTERFOLD page 10 | FIRST COMMUNION/ABEL CASTILLO page 15 | INTERNET RESOURCES page 17 2 Best Buddies Fosters Friendships and Finds Employment for People with Developmental Disabilities

alph Bingener and Paul Hanon are them. They received a standing buddies in the truest sense of the word. ovation from the over 500 guests in RThey are companions and they most attendance. “We are both so certainly are friends. Bingener and Hanon different, yet that makes it so were first introduced in August 2000 through great…we just really enjoy our time the Best Buddies Citizens program. They together and have fun. So for me share a love for the fine arts and a passion for it’s kind of hard to pinpoint my travel. “We have seen so many art galleries favorite memory with Ralph. We Participants in the Best Buddies Citizens program in Los and museums in and around Los Angeles both get so much from each other, and it’s Angeles take a break from bowling, which was one of the County,” comments Ralph. “It has been quite great just to spend time with him,” shares recent monthly activities organized by Best Buddies. exciting to be a part of this, and it’s hard for Hanon. They both hope to see many more me to find the words to share the adventures people matched through Best Buddies Citizens. that lead to social isolation by establishing of friendship I have through a best buddy.” friendships between people with and without Best Buddies was started by Anthony K. Shriver, developmental disabilities.” Recently, Bingener and Hanon spoke at the who recognized the tremendous volunteer Best Buddies Twelfth Annual Los Angeles Gala potential of college students while he was in Best Buddies has six distinct programs about their friendship and how it’s changed school, and inspired his peers to participate in including Middle Schools, High Schools, a project that would enhance the opportunities Colleges, Citizens, Jobs and e-Buddies. “The available to people with developmental program that Ralph and Paul are part of, Best disabilities. Established in 1989, Best Buddies Buddies Citizens, pairs people with has grown into a leading not-for-profit developmental disabilities in one-to-one organization that coordinates approximately friendships with other individuals in the 50,000 volunteers and impacts the lives of over corporate and civic communities,” explains 250,000 individuals with developmental Hazama. The Citizens program is for people 18 disabilities. Best Buddies operates in all 50 years and older, and people are matched based states in the U.S. and in many other countries on similar interests, geographic location, throughout the world. schedules and gender. “Typically, participants go on two outings per month, speak on the “Our mission is to enhance the lives of people phone weekly and attend an organized Best with intellectual disabilities by providing Buddies event monthly. We encourage each opportunities for one-to-one friendships and participant to pay their own way and remind Ralph Bingener, client support assistant at Lanterman integrated employment,” shares Kerri people to take advantage of all of the free and (left) and his buddy, Paul Hanon, hiked in the Santa Hazama, who works with the Best Buddies low-cost events available in the Los Angeles Monica Mountains this past May as part of the Best Citizens program in Los Angeles. “One of our area, so money should never be a factor in Buddies Citizens program’s monthly events. primary goals is to break down the stereotypes joining Best Buddies,” adds Hazama. Best Buddies Jobs opens another avenue to inclusion by assisting individuals with developmental disabilities to locate and Three Simple Digits – 711 – Make maintain jobs of their own choosing, such as working at a law firm, luxury hotel or retail Telecommunication Accessible store, by providing ongoing support and training. “Our focus is on developing uring a successful experiment with his users. It’s very simple to use this service, just competitive, integrated jobs, which allow telephone invention on March 10, dial 711. individuals to earn an income, pay taxes and 1876, Alexander Graham Bell uttered work alongside others in the community,” notes D Other services offered through TRS include these famous first words to his assistant Hazama. “We have a reputation for finding jobs Speech to Speech, which is the relaying of calls Thomas A. Watson who was in the next that the people we serve really want to be doing for those who have a speech disability and may room, “Mr. Watson – Come here – I want to and that are equal to their abilities.” see you.” The ability to “talk with electricity” not be readily understood when using the changed how the world communicated and telephone, and TRS calls from payphones are A new twist on pen pals, e-Buddies helps interacted. free of charge for local calls. TRS toll calls people with intellectual disabilities connect from payphones, however, must be paid for with others through e-mail. Launched in But as this dependency on verbal upfront using calling cards, prepaid cards, October 1999, e-Buddies provides a way to communication expanded, how did people collect or third-party billing. In addition, build an inclusive cyberspace community. communicate who couldn’t hear or speak, or certain TRS providers offer Video Relay Participants e-mail each other at least once a whose hearing and speaking abilities Service (VRS), which is a video link using TRS week, however many communicate on a daily diminished with age? It wasn’t until the that allows a CA to view and interpret the basis. Individuals must be at least 10 years old civil rights movement of the 1960s that caller’s sign language and relay the to participate, and they must have a parent or people who were deaf and hard-of- conversation to a voice caller. legal guardian’s permission if they are under hearing began to explore options 18. The program is free for students and and assert their right to access A little over two years ago, the people with developmental disabilities. There information. Interpreting Federal Communications is a one-time fee of $50 for volunteers to help services, captioning and Commission (FCC) ruled that IP cover the cost of checking references and telephone access were Relay Service also falls within the processing applications. “e-Buddies is very safe among the definition of TRS, which means it now to join because we check references on all accommodations stressed. qualifies as part of the free services applicants, require all participants to agree to offered through TRS. IP Relay enables a code of conduct that prohibits the exchange Today, the majority of people two-way communication between an of addresses and telephone numbers, and who are deaf, hard-of-hearing or individual who uses a non-voice terminal prohibits in-person meetings unless facilitated speech impaired use text telephones or device such as a computer, PDA, Web- by a Best Buddies staff member,” explains TTYs (sometimes called TDDs), which are capable telephone or pager device, and an Hazama. To join e-Buddies, sign up at machines that allow them to communicate individual using a standard voice telephone. www.ebuddies.org. with others who have similar equipment by typing their messages back and forth. All conversations are private and confidential, “While all Best Buddies programs offer the and everything that the CA hears will be participants the blessing of interacting with What do you do if you want to communicate relayed in its entirety. There is no censorship. people with developmental disabilities,” shares with a TTY user, but don’t have TTY? The Callers can use TRS as often as they want and Hazama, “they also provide opportunities for answer is three digits – 711. This number the California service operates 24 hours a day, both parties to build mutually enhancing provides access to telecommunications relay seven days a week. There is no charge to TRS friendships, rather than mentoring service, also known as TRS. Users have two users for any of the services offered, however, relationships.” For additional information options when using a telephone relay service regular phone charges do apply. about any of the Best Buddies programs visit including voice carry-over (VCO) and www.bestbuddies.org. If you are interested in hearing carry-over (HCO). VCO allows a For additional information on TRS visit the joining the Los Angeles Best Buddies Citizens person with a hearing impairment to speak FCC Web site at program contact Kerri Hazama at 310.253.5470 directly to the other party and then read the www.fcc.gov/cgb/dro/trs.html. or [email protected]. In order to response typed by a communications To learn more about VRS in your area visit participate in the Best Buddies Jobs program assistant (CA). HCO allows a person with a www.fcc.gov/cgb/dro/trsphonebk.html. contact your regional center service speech impairment to hear the other party For information on prepaid phone cards coordinator to start the application process. For and relay the TTY response back to the visit the FCCs Consumer and Governmental more information about the various school- telephone user through the CA. This service Affairs Bureau Web site at based Best Buddies programs contact Marco allows individuals with communication www.fcc.gov/cgb/consumerfacts/prepaidcar Corona at 310.253.5470 or disorders to communicate with all telephone ds.html. [email protected]. THE QUARTERLY BUDGET UPDATE: The Director’s 3 Cutting Into Muscle and Bone – VIEWPOINT The 2004-05 Budget The Challenge of early a month behind schedule, the Interesting Times California state budget for 2004-05 was Nenacted by the Legislature and signed “When you consider that by the governor during the last week in July. here is an The budget reflects the continuing tough there has been no cost of old economic times in the state. T Chinese saying: “May you The budget for regional center direct services living adjustment for the live in interesting and operations (intake and assessment, times.” It often service coordination, family support, regional centers for the past refers to, shall we program development, and service say, a challenging monitoring and quality assurance) has been 14 years, coupled with future. When we significantly decreased by $43 million look at the statewide. Among other impacts, this has fourteen years of increases in climate in which resulted in an increase in the number of the regional Executive Director Diane Anand clients served by one service coordinator. centers are There is, however, a small amount of funding the cost of running the currently operating, “interesting times” is an to cover the projected increase of understatement – and the sense of a approximately 10,000 new clients to the Center, such as insurance, challenging future is definitely present. regional center system this year. This will On the one hand, we are fast approaching our bring the total number of individuals with energy and communications, 40th anniversary as a service delivery system, developmental disabilities served by regional and can point to remarkable progress in centers to approximately 200,000. The net this budget cuts into muscle terms of improving the lives of individuals increase in the regional center operations with developmental disabilities and their budget statewide is only $1million on an and bone.” families. Our efforts at prevention, early overall budget of more than $400 million. intervention and ongoing lifelong support For Lanterman, that amounts to about – Diane Anand, have made a tangible difference for the $30,000, or about half the cost of a year’s executive director people we serve. salary and benefits for a single service coordinator. Today, people with developmental disabilities are living meaningful lives as active and “Lanterman alone has lost $1.3 million in included members of their communities, with funding,” states Diane Anand, executive day care and camping services for their minor more opportunity and choice than ever director. “When you consider that there has children. Families who earn in excess of 400 before. In so many substantive ways, we are been no cost of living adjustment for the percent of the Federal poverty level, who have delivering on the promise of the Lanterman regional centers for the past 14 years, coupled children living at home between the ages of 3 Act and the dream of the early pioneers who with fourteen years of increases in the cost of and 17, and whose child is not eligible for made it a reality. running the Center, such as insurance, energy Medi-Cal, will be required to share the cost of and communications, this budget cuts into specific services. On the other hand, we are in the midst of muscle and bone.” perhaps the worst budget crisis in the state’s For the portion of the budget designated for history, faced with serious problems that will Despite these reductions, regional centers purchase of services from community service not go away quickly nor be easily solved. Once have been given two new responsibilities. The providers, the funding has increased by $200 again, we are being asked to do significantly Habilitation Services Program, which until this million for this year. There continues to be a more with significantly less, and the fallout year was a part of the state Department of freeze on rate increases and funds for will impact all of us in the regional center Rehabilitation, was recently transferred to developing new programs. community. regional centers. (see related story on page 4) Most recently, the governor released the The program requires regional centers to Anand adds, “The regional center budget is very tight for this year, with virtually no report of the California Performance Review, coordinate work-related services for clients an effort to streamline state government so without any additional funding for staff. increase for operating expenses and a modest increase in purchase of services. It is our hope that it can be more responsive to better and The second added responsibility is the that these funds will be sufficient to carry us more cost-effectively serve the people. This is implementation of the family cost through the year we are in. We will continue certainly a significant endeavor, but – participation program beginning in January to use the cost saving strategies we developed depending on the details and scope of its 2005. This will require regional centers to over the past two years as part of our eventual implementation – it contains both collect data from families who receive respite, expenditure plan.” the potential to make things better and the possibility of making things worse. The 2500-page report contains 1200 recommendations that touch on every aspect Lanterman Staff Attend P.I.R.A.T.E.S. of the state’s bureaucracy. While regional centers are not mentioned individually, the proposed re-structuring of state government Mixer to Raise Awareness will definitely affect us. At this writing, we see risk and we see opportunity. vast ye mateys! Lisa There is no doubt that change is in the wind – Levin, Koch Young but whether it is a good wind or an ill wind Resource Center A won’t be clear for some time. information and resource specialist (left) and Ronna Rest assured we will be participating in the Kajikawa, executive assistant public comment process to make certain that in Training and Development the voice of the regional centers and the (right) attend a P.I.R.A.T.E.S developmental disabilities community is heard. mixer. The Print, Interactive, Questions we must ask ourselves are: Will the Radio and Television proposals improve access to services and the Education Society event was quality of delivery, as well as produce positive held at Gower Studios, home outcomes for our clients? Will they enhance of CBS Radio. P.I.R.A.T.E.S., program efficiency? Will they promote more known as the organization effective coordination of programs and “where the community meets services? In short, will they make life better for the media,” offers networking those we serve? That is the bottom line we opportunities in Southern must never forget. California that enable members from media and For nearly four decades we’ve lived through non-profit to interact. “This is many interesting times and consistently shown just another avenue that we have available to us to improve the quality of life for the people we an ability to adapt and change our operating serve by promoting the inclusion and understanding of people with developmental disabilities and model for the betterment of our community. also working towards sensitive and accurate portrayals by the media,” explains Levin who is also Together, we will once again meet the pictured with Jolisa Jones-Cory, director of Community Relations and Human Resources at KTTV challenge. www.piratesla.org Fox 11 and KCOP UPN 13. For more information about P.I.R.A.T.E.S. visit . Editor’s note: Those interested can view the entire CPR Report online at www.cpr.ca.gov 4 Habilitation From School to Work – Comes Back Home Video Provides Information to Ensure a Successful Transition n July 1, the Habilitation Services Program, which was transferred of acceptance and the importance of self- from the regional centers to the or many people, leaving school and O moving into the working world can be advocacy. state Department of Rehabilitation more particularly unnerving. This transition than 25 years ago was returned to the F A discussion guide accompanies the video. elicits feelings of trepidation, anxiety, regional center system. The Habilitation Facilitators can use this guide to stimulate anticipation and excitement – which when Services Program addresses the vocational discussion with students about transition- rolled into one sensation is often described as needs of people with developmental related issues. The guide also has exercises “butterflies in my stomach.” Individuals with disabilities who are also regional center that reinforce the key concepts from the video disabilities often face additional unique and a summary of research that demonstrates clients through a broad range of services challenges during these transitions. directed toward developing their the importance of self-advocacy to successful employment potential. The reasons given “Success at Work: Transitions to Employment” transitions into employment. is just one of the many videos in the award- for the transfer were to increase the cost Visit the Koch Young Resource Center to winning “Transitions” video curricula series effectiveness of the program and to borrow a copy of “Success at Work: Transitions for students and young adults with learning facilitate habilitation services by obtaining to Employment.” To browse other differences. Created by the Eaton Coull additional federal funding through the employment-related videos, as well as books, Learning Group, which was founded in 1997 Home and Community-based Waiver. stop by the Resource Center in person or by two special education teachers and access the library collection online at In reality this transfer is also a cost-cutting diagnosticians, Howard Eaton and Leslie http://library.lanterman.org. measure, as the regional centers were Coull, this curriculum and videotape will help required to accept the Habilitation Services young adults gain self-confidence and develop Program without any funding for staff. good self-advocacy skills, assuring viewers that Regional centers will be responsible for learning differences need not get in the way of individual client vocational planning, future career successes. coordination of services, monitoring of habilitation service providers and payment “Success at Work” is suitable for graduates, as well as students in grades 10 through 12, who for services. “The habilitation services that are exploring career options, and planning are provided by the workshops or their transition into the workplace. The video supported employment agencies will can also be used as part of a vocational continue to be provided in the same rehabilitation program. manner as they have been, however, significant changes are taking place The program’s interviewees are real-life regarding how the program is administered graduates and students representing a range of and funded,” shares Helane Schultz, learning differences who are successfully regional manager and point person for pursuing their career goals as mechanics, client-related habilitation issues. “Be hairdressers, entrepreneurs, nurses and a variety assured that we are trying our best to make of other jobs. The interviewees are open and this transition as seamless as possible, and frank about their struggles and achievements, that there should not be any impact to and share important messages about the power clients or their families. Also, this change does not affect any other services that the client is receiving.” “Many of the responsibilities for assisting the clients in obtaining work program services will now be carried out by their service coordinators,” explains Schultz. “We believe that this new approach has a lot of potential because the service coordinators know their clients and have more knowledge of their skills.” The majority of the habilitation programs in Lanterman’s service area also have other programs that are funded through the regional centers, so the transition back to the regional center system was uneventful. Agencies that have not had a prior relationship with the regional center will find that the regional center can provide them with support for client- Two Couples works at Goudy Honda washing cars says, “I related issues, and quicker payment for like walking to 7-Eleven for a drink, riding my services rendered. Community Services Continued from page 1 bike in the park and going to the mall.” Director Karen Ingram states, “Because Stump, who was able to bring her pet bird, the work programs have been accredited Lanterman’s residential service provider Precious, adds, “It’s cool. Very different. We by the Commission on Accreditation of orientation in fall 2003 and submitted his have more freedom. It was limiting before. Rehabilitation Facilities, our quality licensing application the end of last year. We like this house better.” assurance monitoring efforts can focus on “When the decision by the two couples to Rebollo, who also coordinates daily activities helping the providers enhance the move from the facility to Mountain View Guest for Mountain View Guest Home residents, services they provide. We can help the Home was finalized, the timing of the move plans to teach all four of them how to use the providers meet their goals of finding became quite urgent. Christy Simpson and Glendale Beeline to get around the city, meaningful employment for their regional Jeanine Batres at Licensing were great in encourages them to walk to the library and center clients.” assisting and collaborating with us to get the mall, and every evening they all go for a walk home approved quickly,” adds Abbott. in the park before dinner. He adds, “They buy For an in-depth look at the transition from Mountain View Guest Home is a bungalow-style a lot of junk food at work, so I’m encouraging the Department of Rehabilitation to the house that features a back yard, detached them to make healthier food choices, such as regional centers visit the Department of recreation space, barbecue pit, and fruit and buying salads instead,” On the weekends they Developmental Services Web site at vegetable garden. A large park is located across go on trips to Griffith Park. www.dds.cahwnet.gov/Habilitation/HabSvs_ the street from the home and the Glendale “Mountain View Guest Home is setting an Home.cfm. If you have any additional client- Galleria is only blocks away. On June 25, related questions about the transition example as the first residence in the Stump, Crippin, Hanks and Binkier moved Lanterman area that is home to only couples,” contact Helane Schultz at 213.383.1300 into their new home. “They have so many x572 or [email protected]. If shares Harriet Dickens, service coordinator. more opportunities available to them living “This move also ties in with the Lanterman you are interested in pursuing workshop or here than they did before,” says George Davis, supported employment opportunities mission to enable people with developmental service coordinator. “Troy takes Adrian’s two disabilities to live full, productive and contact your service coordinator. Karen dogs for a walk in the park and Pollie helps out Ingram, director of Community Services at satisfying lives as active members of their cooking dinner in the evening. Both activities communities.” Everyone involved in the move Lanterman, will be responsible for quality were never even an option when they lived at assurance and vendor issues. She can be from the families to the regional center staff the large facility. Here they have much greater and most importantly the clients are happy reached at 213.383.1300 x617 or freedom to come and go on their own.” with their new “too cute,” two-bedroom home [email protected]. Binkier shares, “I love it a lot here and I get to in Glendale. feed the cat in the morning.” Crippin, who A New Kind of Performance Contract to SAVE THE DATE! 5 be Implemented by Lanterman Community

n 1993, the state put in place a requirement REQUIREMENTS OF THE NEW MODEL Meetings Being that each regional center work with its Under this new model, DDS has defined a set Icommunity to develop a performance plan of 25 outcomes on which each regional center Held in September that contained goals and objectives for nine will be measured. A majority of the outcomes different areas, such as community living are “public policy” outcomes, intended to he individuals with developmental options, family support and education, and encourage development of the types of disabilities Lanterman serves, their lifelong learning. Each center’s plan was also services that reflect the values of the families and our service providers supposed to describe the things that the center T Lanterman Act – i.e., services and supports are key partners with the Center. This would do to work toward achieving the goals that “enable persons with developmental partnership is only successful when all and objectives. Once a plan was developed, it disabilities to approximate the pattern of parties involved have an opportunity to became the basis for a “contract” between the everyday living available to people without provide feedback on the future direction Department of Developmental Services (DDS) disabilities of the same age.” For example, we and long-term goals of the Center. and that regional center. The performance will be judged on our success in moving contract requirement was phased in to the 21 people from the developmental center into One avenue utilized by the Center to regional centers over a five-year period the community, ensuring that our clients have ensure that all persons interested in beginning in 1993. Lanterman implemented access to appropriate medical care, helping participating have an opportunity to its first performance plan in 1998. Our current our adult clients obtain meaningful provide feedback and comments is our plan can be found on our Web site – employment, and ensuring that adult clients annual community meetings. This year’s www.lanterman.org – under “Organization.” live in homelike settings. The remaining meetings will focus on five key areas: outcomes reflect “compliance,” primarily with CREATING THE NEW MODEL • Budget overview legal and regulatory requirements. In the year 2000, DDS undertook the • Expenditure plan development of a new model of performance Under this new performance contract model, • Accomplishments from the past year contract. It was intended to retain the contract regional centers are only required to be • Changes to the performance plan (see requirement but allow the Department to do accountable for these 25 outcomes. At the story at left) two additional things. The first was to enable same time, however, each regional center may • comparisons of performance across regional work with its community and develop Continuation of our alternative service centers. This required DDS to create a additional local outcomes to supplement its coordination model standardized set of outcomes that all centers performance plan. If a regional center does This is your opportunity to comment on would adopt. The second thing they wanted, this, it will be required to report to DDS on plans for the future. Your input is very was a set of indicators that reflected both these additional outcomes. important, and we look forward to seeing system and individual client outcomes. you at one of these meetings. This new model, using standardized outcomes, THE PROCESS OF DEVELOPING THE PLAN was first implemented in 2001 as a pilot in five As we did with the old performance contract, MEETING SCHEDULE we will be holding public meetings to discuss volunteer regional centers. The pilot was to Armenian – Tuesday, September 7 at 7 p.m. continue for five years – until 2006 – at which our proposed plan and ask members of the Saint Mary’s Armenian Apostolic Church time all centers would be required to adopt the Lanterman Community for comments and model in place of the original performance suggestions. We have scheduled four 500 South Central Avenue; Glendale plan. Since 2001, any center wishing to do so meetings for this purpose – one each in Korean – Wednesday, September 8 at 7 p.m. has been allowed to join the pilot rather than English, Spanish, Korean and Armenian. You Lanterman Regional Center waiting until 2006. As of June of this year, 15 can find more information about the time 3303 Wilshire Boulevard; Los Angeles centers have joined. At its July 28 meeting, and place for these meetings in the box at (Berendo Room on seventh floor) based on a recommendation from the Strategic right. We encourage all clients and families Planning Committee, Lanterman’s board of to come hear about and give us feedback on Spanish – Monday, September 13 at 10 a.m. directors approved the Center’s entry into the this new plan that is scheduled to take effect Lanterman Regional Center pilot in January 2005. in January. 3303 Wilshire Boulevard; Los Angeles (second floor) English – Wednesday, September 22 at 7 p.m. Measures to be Used in New Performance Contract Frank D. Lanterman Regional Center 3303 Wilshire Boulevard; Los Angeles PUBLIC POLICY MEASURES (second floor) Number and percent of regional center clients living in the developmental center If you have additional questions, or want more information, contact the Koch Young Number and percent of minors residing with families Resource Center at 213.383.1300 x730, toll- Number and percent of minors living in facilities serving more than six residents free at 800.546.3676 or [email protected]. Number and percent of adults residing in home settings • Number and percent of adults residing in independent living • Number and percent of adults residing in supported living Be the First to Know and • Number and percent of adults residing in adult Foster Home Agency homes Help Us Save Money – Join • Number and percent of adults residing in family homes with parent or guardian Lanterman’s E-mail List Number and percent of adults living in facilities serving more than six residents hirty- Number and percent of adults with earned income; average wage of these clients seven • Number and percent of adults in supported employment T cents may not seem like a • Number and percent of adults in competitive employment lot of money, but multiply that by Clients’ access to medical services 6,000, the approximate Number of clients (rate per thousand) who are victims of abuse number of people Lanterman Regional Center serves, and that’s $2,200 for one mailing. COMPLIANCE MEASURES While all mailings are not as large, Regional center has unqualified independent audit with no material findings Lanterman sends numerous correspondences via the United States Regional center is in substantial compliance with DDS fiscal audit Postal Service every year, and this adds up Regional center projects purchase of service spending within a certain percent of accuracy to a lot of money. Regional center operates within its Operations budget There’s something you can do to help us save money though – join Lanterman’s e- Regional center is certified to participate in the Medicaid Waiver program mail list. Instead of waiting for “snail mail” to get important information about events, Regional center audits vendors as required by Article III, Section 10 of its contract with DDS the budget or trainings, you could be the Regional center is current with the development of CDERs and Early Start Reports first to know with e-mail. Regional center meets timelines for intake/assessment and IFSP creation for clients age 0-3 To join, send an e-mail to Vinita Anand at [email protected]. Please Regional center meets timelines for Intake/assessment for clients age 3 and above include in the message your name, the The regional center’s IPPs satisfy the criteria listed in the Welfare and Institutions Code client’s name and age, and the city you reside in, to help us target our e-mail The regional center’s IFSPs satisfy the criteria listed in Title 17 messages more effectively. Happe Internship and the First 5 LA Grant for 6 Meet the People the Touchpoints™ Special Needs Training Project. I am also involved in grant writing, fundraising, public relations and marketing Behind the Titles: activities related to the Center. What are the biggest challenges of your job? Patricia Herrera The biggest challenge in my job is finding additional funds to provide long-term sustainability to the special projects I direct that s director of Family Support Services at are not funded by the Department of Lanterman Regional Center, Patricia Developmental Services. I guess my next biggest Herrera is an integral member of our A challenge is finding enough hours in the day to leadership team. We feel it’s important for accomplish all the things I would like to do. everyone in our community to have a better idea of the woman behind the title and her What is the most rewarding part of you job? responsibilities, so Viewpoint recently met with The most rewarding part of my job is the her and asked about projects in the works, as amazing and talented people I get to directly well as the biggest challenges and most work with. The Family Support Services unit is rewarding aspects of her job. made up of a team of very talented and Where did you grow up and where do you dedicated individuals with unique and diverse backgrounds. I feel extremely privileged to be live now? in the position to support a team that is I was born in Bogotá, Colombia, South passionate about what they do and that is truly America and raised in New York. My parents dedicated to their work. I also find the Patricia Herrera, director of Family Support Services immigrated to New York when I was 4 years opportunities I have to work with individuals old. We lived in Malvern, Long Island. I with developmental disabilities and their moved back to Bogotá, Colombia when I was families very rewarding, and treasure the long- marketing, leadership development and 14 years old and lived in Colombia most of my term relationships that have developed over management has also been invaluable. I adolescent years and early adulthood. I the last 17 years I have been with the encourage everyone to take advantage of all returned to the United States in my early Lanterman community. Another aspect of my the educational opportunities the Center twenties and settled in Los Angeles. Currently job that I truly enjoy is building new offers. I truly appreciate the strong emphasis I live in the Hastings Ranch area of Pasadena. relationships with individuals and networking that Lanterman places on the professional and in the community. When did you join Lanterman? educational growth of its employees. My plan when I returned to Los Angeles was to What are some of your accomplishments, i.e. How do the other positions you worked in pursue a Ph.D. in clinical psychology at the programs, projects, trainings, etc..., that you benefit you in your current role? University of California, Los Angeles, but one have worked on? thing led to another, and I ended up applying The three years of hands-on experience as a • Received recognition from the Los Angeles for a job at Lanterman Regional Center service coordinator benefit me greatly in my Police Department for contributions made instead. I joined the Lanterman community in current position as director of Family Support to the Los Angeles Abuse Council for eight November 1987. I was only planning on Services. As a school-age service coordinator I consecutive years of service as Chairperson staying at Lanterman for two years, mind you, learned to advocate on behalf of children and of the Council (1992). while I went through the process of entering a families at Individual Education Plan meetings • full-time graduate program. for appropriate school placement and services. Organized the first Spanish language As an active member of the Los Angeles “Inclusion Conference” for the Los Angeles Were you ever able to complete a graduate County Integration Consortium, spearheaded Integration Consortium at California State program? back in the early nineties by Dr. Mary Falvey University, Los Angeles for 500 participants I attended a six-year undergraduate program and sponsored by Area Board 10, I became a (1993) in clinical, educational and organizational very strong advocate for the inclusion of • Inauguration of the KYRC (1994) psychology at the University of the Andes in children with developmental disabilities into • Spear-headed the planning committee for Bogotá, Colombia. In 1995, I obtained a regular education classes. As a service Lanterman’s 30th Anniversary Leadership master of science in counseling from coordinator I learned much about the service Forum “A Community in Action” (1996) California State University, Northridge. system and about community resources. My • Organized the first Summer Leadership years as Family Support Coordinator were Institute with the Center for Non-Profit What positions have you held since you have invaluable for the development of family Management (1995) been at Lanterman? support programs, like the Peer Support • California State University, Northridge – Program, the Service Coordination and Service Coordinator – School-Age Unit Center on Disabilities - Leadership and Advocacy Training for families, and the (November 1987 – 1990) Technology Management Program (1997) – development of support groups in the Family Support Coordinator – Consumer and Developed a proposal that led to the Lanterman community. Family Services Division (1990-1992) funding of the Assistive Technology Project. Family Support Coordinator - Community What are the responsibilities of your current • Partnership-Leadership Development Model Services Division (1992-1993) position as director of Family Support Services? (1998) • Director, Family Support Services – Executive I am responsible for directing the KYRC, as Inauguration of the Assistive Technology Management (1993 to present) well as specific family support activities, such Project (1999) as information and referral, education, • Touchpoints™ Community Level Training How does your schooling relate to your training for families, and peer support. The in Boston (2000) current position? Resource Center includes a specialized library • First 5 LA Grant ($700,000) for the My schooling has been invaluable to my collection in the field of developmental Touchpoints™ Special Needs Training current position. My psychology and disabilities that contains approximately 5,700 Project (2002) counseling background has provided me with resources, and an Informational and Referral the knowledge to develop and design Help-Line averaging 900 calls quarterly. I Where do you see the unit heading in the next informational, educational and support oversee the production of Viewpoint, several years including future projects and programs essential to the Koch Young Lanterman’s quarterly newsletter, the initiatives? Resource Center (KYRC) and to the Family development and maintenance of the Web The KYRC is an investment toward greater Support Services unit. The educational site, and the production of major educational empowerment and self-determination for all development I have received while at and promotional publications of the Center. I individuals affiliated with the Center. I envision Lanterman, such as continuing education direct special projects of the Center including the KYRC becoming the best source of disability- courses in fundraising, public relations, the Assistive Technology Project, the Roberta related resources for the community at large, and a place that will foster partnerships and Grab a Buddy, Lace Up Your leadership amongst all its members. Are you married? Do you have any children? Shoes and Start Walking My husband’s name is Jonathan Nieto, and we have one son, David, a delightful strong-willed The Down Syndrome Association of Los Angeles’ Tenth Annual Buddy Walk is just around the 3-year-old. I have enjoyed motherhood corner. On Sunday, September 19, DSALA will again take over the Santa Anita Race Track in tremendously and continue to learn so much order to raise awareness and promote understanding about Down syndrome. from being David’s mother. On this last Sunday of summer, join family and friends for a fundraising walk and information faire. There will also be entertainment, including live music from Tony Cockram and The Blue Powda Monkeys. Any take home lessons or important life lessons learned that you would like to share Micah Ohlman, ABC7s weekend co-anchor of “Eyewitness News” at 5 p.m., 6 p.m. and 11 p.m. as well as a reporter with readers? for “Eyewitness News,” will be this year’s Grand Marshall. Other guests this year will include Mary Rice Hopkins who When I started out in my career, I probably has been involved in family music ministry for 25 years, Actor John C. McGinley, National Buddy Walk Spokesman for had a simplistic or naïve view of what the National Down Syndrome Society, and Actor Joel McKinnon Miller, last year’s Buddy Walk Grand Marshall. constituted success or failure. With So grab a buddy, lace up your shoes and start walking to raise awareness and promote understanding about Down experience, I’ve come to understand that low syndrome. Registration begins at 10 a.m., the program starts at 11 a.m. and the walk kicks off at noon. For more points and high points can be one and the information about the 2004 Buddy Walk and to register visit www.dsala.org or call DSALA at 818.242.7871. same, and that interruptions in pursuit of cherished goals can still be opportunities. What Software Program Should I Get to Help My Child? 7 By Martin Sweeney, director of Assistive Technology Project

or nearly twenty years, I have been tracking software development and titles F designed to support individuals with developmental disabilities. My strategy is not terribly ordered, I attend conferences, network professionals, schmooze vendors, query educators and scavenge through what seems like a bottomless stack of catalogs. There’s a universe of material out there and it’s no easy task staying current. And of course, the most commonly asked question: “What software program should I get to help my child…” There’s no one answer to that question. Ultimately, it depends on a range of variables, the most important of which rests on knowing both the needs and interests of your child. If you start by identifying a specific goal or objective, you will find it in Lanterman’s computer lab. Some of the specifically designed to improve the lives of easier to narrow the range of choices. programs can be borrowed through the children and adults with special needs. However, for many children and adult clients Koch Young Resource Center library, while Laureate’s multimedia programs combine it still may not be easy to know whether a others can be used onsite by appointment. instructional design with digital speech, particular program will prove interesting, We have a large sampling of software titles. engaging graphics and amusing animation. motivating or successful. For more information about Laureate visit Most recently, the Regional Center their Web site at www.llsys.com. Given this sea of uncertainty, parents and purchased the complete special needs caregivers understandably hesitate before software solutions package from Laureate We’ve just received these titles and I am now shelling out fifty buck, or more, for a Learning Systems. Designed for students working my way through each one. It takes software program that may fail to hold their whose disabilities range from time to fully explore a program when child’s interest beyond five minutes, no severe/profound to mild, the collection of considering the needs of a person with a matter how well-intended its design. To titles covers cause and effect, vocabulary developmental disability. What works for one avoid such a costly exercise of futility, one’s development, categorization, syntax mastery, person will not necessary work for another. It best bet is to explore or demo the program concept development, auditory processing is this depth of consideration one must apply before making any decision to purchase it. and reading instruction. The collection – to answer that earlier question: “What Many companies now offer trial demos of over 40 titles – is rooted in a linguistic software program should I get to help my their products online. This is a great way to hierarchy that builds through seven stages of child…” Come join me in the lab and let’s test drive a program so you get a feel for language development, from interpreted see if we can answer that question together. whether it might be appropriate for your communication all the way through complete For more information and to arrange a visit child. generative grammar. to the computer lab contact Martin Sweeney Another way is to familiarize yourself with Founded in 1982, Laureate is a company at 213.383.1300 x722 or some of the software programs we have here dedicated to publishing innovative software [email protected].

Pyunic Ghazarian, who has a disability, visited Currently, Pyunic is working with Lori Armenia about 10 times shortly after the Silvazian, a Los Angeles-based Pyunic Continued from page 1 earthquake, and also spent a year in Armenia volunteer and employee of the Exceptional in 1995, providing him the opportunity to Children’s Foundation (ECF) to implement see first hand how people with disabilities an early intervention program in Armenia that While continuing to provide services to the are treated. “In the recent past, the majority will provide services to young children from children and adults from the earthquake, of families would place their children with birth to 3 years of age with developmental Pyunic now provides assistance to children disabilities in state-run developmental disabilities. “This program will be very similar and adults with all types of disabilities centers and orphanages,” comments to the one Lori directs at ECF,” adds including those disabled through the Ghazarian, “but Pyunic is trying to change Ghazarian, “and will provide the necessary Karabakh war, by diseases and accidents, and the mindset of the culture, and educate assistance parents need to be able to keep those born with both physical and families that children with disabilities are not their children with disabilities at home.” developmental disabilities. an embarrassment, and can be cared for at Shortly before Pyunic celebrated its 10th “The goal of Pyunic is simple – to improve home or placed in a small group home located in a neighborhood setting.” anniversary, the government of Armenia and develop opportunities for people with donated a 32,000 square foot, four-story disabilities in Armenia to become full-fledged, More than 50 volunteers and four staff building in Yerevan for their new center, in participating and contributing members in members in Armenia offer year-round recognition of their proven record of Armenia,” explains Sarkis Ghazarian, a services and programs to people with providing services to people with disabilities volunteer with Pyunic who works at Glendale disabilities, however, many more volunteers and improving the quality of their lives. The Community College coordinating the transfer in the United States work to raise funds and future Pyunic Center for the Disabled will be center, which assists students with transferring supplies for the organization. These fully accessible and include administrative to four-year colleges and universities. Pyunic resources are used to provide social services, offices, an auditorium, sports facilities such as promotes physical, social and psychological including clothing and food, as well as a swimming pool, gym fitness center and ping rehabilitation of people with disabilities, advocacy for social and educational needs; to pong tables, vocational training facilities, utilizing sports to develop strong bodies and organize sports activities and camps, such as overnight accommodation rooms, and active minds, developing skills to meet the swimming, sailing, weightlifting, archery, facilities for income-generating businesses challenges of daily life, and disability rights basketball, tennis and skiing; to implement that will employ people with disabilities. In protection. The organization also works to public education and disability rights addition to services provided on site, Pyunic educate the public in Armenia by protection projects, such as the Disabled is also hoping to translate a variety of films disseminating information on disability issues. Rights and Information Center of Armenia that focus on individuals with disabilities and started in 1996, the Human Rights and disability issues into Armenian so they can be Disabled Persons program started in 1997 shown on national television. They are also with funding from the U.S. Embassy, and pursuing a long-term goal of theirs, which is Support Armenia’s Disabled Public to develop post high school educational Education and Awareness Building, opportunities for students with disabilities. another program also started in 1997; to develop and organize vocational training, “We’re trying to jump start Armenia 50 years including efforts like the creation of the ahead in time of where it’s at now,” notes Computer Training Center for the Ghazarian, “and enable Armenians with Disabled in 1996 with funding from the disabilities to develop to their fullest potential Canadian Embassy; and for the provision and in turn help Armenia grow and develop of prosthetic services. as well.” For more information about Pyunic visit www.pyunic.org. If you are interested in making a donation of money or various Lori Silvazian (center), a Pyunic volunteer and employee at ECF, conducts a home visit with a family in supplies such as wheelchairs, crutches, Armenia that has a child with a developmental computers and software, or equipment for the disability. During her visit to Armenia, Silvazian also early intervention program such as therapy provided training to students doing their fieldwork balls and toys contact Sarkis Ghazarian at placements with Pyunic. 818.785.3468 or [email protected]. 8 BoardBoard MemberMember ProfileProfile Two Remarkable People are Honored Gary Pancer Brings for Their Years of Dedicated Service Health Care Focus to Lanterman’s Board to Lanterman t the July board meeting, Lanterman’s ealth and outgoing board president, Bob health care AWedemeyer, presented Silvia Davis with an Hare an award recognizing her six years of service on the important focus at board. (see photo at right) Davis, the president Lanterman. “Many of UNIDAS, advocates for Latin American of our clients have women, and has helped many women in the health-related Lanterman community learn the skills they need issues, and it’s to cope with the challenges of everyday life in important for the this country, including their health, personal and Center to have its professional development, and community pulse on current involvement. She chaired the board of director’s trends and nominating committee, and held two officer emerging issues in Gary Pancer, positions – secretary and first vice president. the health care new Lanterman board member During her tenure, she represented the board at field,” explains Diane many Lanterman community events and was Anand, executive director. “We are delighted always willing to accept assignments on behalf of the board. that Gary Pancer, a partner at K&R Law Group who specializes in health care litigation, was This was also Wedemeyer’s last board meeting as president. In a time-honored tradition, elected to serve on the board.” Wedemeyer passed the gavel to Jeff Richards, who was elected president. Wedemeyer is also completing six years of service on the board. He has been a member of the Lanterman community A graduate of Southwestern University School for 14 years, first serving on of Law, Pancer has worked at K&R Law administrative affairs committee and Group, LLP located in Downtown Los Angeles since 1996, and has extensive later as a board member, treasurer experience representing health care service and ultimately as board president. plans, physicians and other health care Wedemeyer will still be a presence in clients in complex business litigation and the Lanterman community, consumer disputes. continuing his work with administrative affairs, and will also He shares, “During my undergraduate serve the board in an advisory role as education in psychology at California State immediate past president. In keeping University, Northridge, I had the opportunity with the tradition of presenting a to work with children with developmental piece of art to the outgoing board disabilities and appreciate the mounting president, Wedemeyer received a challenges facing this vulnerable segment of painting by Artist David Foster from our community, especially in light of ever- the ECF Art Center. (see photo at left) increasing bureaucratic hurdles and budgetary constraints.” Pancer also represents health care clients in administrative proceedings before the Department of Managed Health Care, the Homecare Registry Helps Make the Match Medical and Dental Boards of California, the U.S. Department of Labor, and other state and Between IHSS Consumers and Providers federal agencies. He has successfully litigated many cases on behalf of health care clients in hether it’s romantic relationships or trial courts and binding arbitration, and business ones, there are services that frequently advises health care clients W help bring people together. For the concerning general risk management issues. approximately 137,000 In-Home Supportive He also has experience working in Services (IHSS) clients and 106,000 providers management at a large publicly-traded HMO. in Los Angeles County, Personal Assistance He adds, “I am delighted to be selected to Services Council (PASC), the Public Authority serve as a board member and will actively work for Los Angeles County’s IHSS program, to ensure that individuals with developmental provides this service. disabilities in Los Angeles are served with the PASC has a fully operational Homecare highest level of respect and integrity. I believe Registry for IHSS consumers and applicant that my experiences as a health care attorney 1 providers. The registry offers a free process and parent of two healthy boys, ages 4 and 6 ⁄2, through which IHSS consumers and providers provide me with a sound platform to offer my can be referred to each other and later decide services as a board member.” themselves whether to establish an In his free time, Pancer enjoys playing roller employment relationship. hockey and spending time with his family. Registry services are provided via telephone with the aid of an automated database system that documents, searches, sorts and generates Looking for New Blood… listings of possible referrals. Referral criteria includes the consumer’s needs for particular services and skills in relation to the provider’s The PASC Homecare Registry matches IHSS consumers with experience with providers. skills and capabilities; geographical proximity As a multi-million dollar corporation, Lanterman is of consumers and available providers; and the always interested in recruiting board and committee completed registry application form and consumer’s scheduling requirement and members who have backgrounds in finance, personnel participant’s rights, responsibilities and and related areas. Should you or someone you know provider’s availability. release agreement. Providers must attend at be interested in volunteering in such a capacity, The consumer is responsible for determining least one orientation meeting; present valid please contact Patrick Aulicino at 213.383.1300 the suitability of the provider and likewise for photo identification; complete and sign a x690 or [email protected]. the provider. The registry does not select, registry application form and participant’s train, vouch for, supervise or warrant the rights, responsibilities and release quality of either consumers or providers. agreement; and must submit information on Consumers and providers must make their employment history for the past five years, Board Welcomes Your own decisions regarding one another’s skills, including three personal references. Attendance at its Meetings character and compatibility. The consumer Providers must also clear a criminal has the exclusive right to select, hire, assign background investigation as administered by Please be aware that anyone in the community is hours and duties, direct the work, supervise, the State Department of Justice. welcome to attend Lanterman’s board of directors evaluate and terminate the provider, and the To access the PASC Homecare Registry call meeting, which is conducted on the fourth Wednesday provider retains the right to resign from any of every month at 6 p.m. Meetings are held at 877.565.4477 (toll-free), 818.206.7000 or employment. Use of the registry is voluntary 818.206.7015 (TTY). For more information on Lanterman Regional Center. Please contact Frank Lara and non-exclusive. in advance at 213.383.1300 x665 or Personal Assistance Services Council of Los [email protected] so you can be placed on Registry users must be current IHSS Angeles County visit www.pascla.org. the list of attendees. We look forward to your visit. consumers in Los Angeles County, provide For more information on IHSS visit accurate personal information, and submit a www.ladpss.org/dpss/ihss/ihss_title_page.cfm. 9 Find the Leader in You 1995 Through the Lanterman Leadership Institute

CHOOSE ONE 2004 A leader is someone who: • Shows the way to others “This training was an inside • Goes before or along with others • Guides others out look at myself, using fun • Marks the way for others learning activities… and it • Begins something helped me recognize my • Influences others to a course of action • All of the above leadership abilities…” A leader is someone who does all of the – LLI Graduate, 1998 above. Very few people are born leaders. Most everyone who is a great leader has to find and develop these skills, and that’s “Creative, committed and effective leaders in the regional center to develop their where the Lanterman Leadership Institute all areas of the Lanterman community are leadership skills. comes in. the key to successfully fulfilling our mission and making our vision for the future a Information featured during the training Leadership is a core value for Lanterman. As reality,” explains Maureen Wilson, director includes an overview providing a historical we define it, “Leadership is an act of service of Training and Development. “That’s why to present day perspective on the to the community as a whole. As an we created the Lanterman Leadership developmental services system, and organization, and as individuals, we strive to Institute a decade ago.” legislation that affects individuals with be in the forefront – pioneering new ways to developmental disabilities and their families. enhance the lives of people with The Lanterman Leadership Institute is a two- Lessons and activities are also conducted to developmental disabilities, their families and day program that takes participants through develop leadership skills, and teach the community we share. We want to inspire modules that focus on creating and participants about working effectively in a the Center to reach its full potential and lead communicating a shared vision, embracing team, how boards/committees function, and the way for others.” The cornerstone of our diversity, action planning, team performance, how to make good use of meeting time. vision is, “A leader in service, learning and and defining personal leadership goals and quality – always striving for excellence and opportunities. This is the perfect program for “Our commitment is to invest in our most pioneering new ways to enhance the lives of individuals interested in co-leading a parent valuable resource, our members – clients, people with developmental disabilities, their support group, or serving on a task force, families, service providers, community families and the communities we share.” advisory committee or governing board of members and staff – and help them realize their leadership potential,” adds Wilson. 1997 “The information was both Approximately 250 individuals have attended the Lanterman Leadership interesting and understand- Institute that has been held annually for the last 10 years. Survey results indicate 25 able for people with percent goal attainment by participants. The disabilities, inspiring me to next Lanterman Leadership Institute will be held in February 2005. If you are interested get involved and give back” in more information about the program contact Maureen Wilson at 213.383.1300 – LLI Graduate 1995 x719 or [email protected].

Adam Sroujieh and believes that she misses him as well. He frequently people with physical disabilities also enjoys having her around while he’s who are wheelchair users. Hearing Team Continued from page 1 listening to music, reading a book or just leaders are people who are deaf or hard of hanging out. It’s nice to have her around hearing, and Facility Team leaders are when he’s not feeling well because she puts professional caregivers who work in physical or disability known as the recipient, a family her head on his tummy.” occupational rehabilitation, special education, hospital, nursing home or other health care- member or someone from the person’s close Since the Sroujiehs are a team of three, they related facilities. For more information about support network that is known as the can only take Shana to public places when the the Skilled Companion Teams program and facilitator and a Skilled Companion. “Skilled three of them are together. “Shana cannot these other programs visit www.cci.org. Companions learn interactive commands, come into a store with just myself and Adam which promote bonding and responsiveness cannot take her to school,” adds Sroujieh. toward the recipient,” comments Valliant. “The sense of companionship and inclusion “CCI is an amazing, amazing place. I would these dogs provide helps decrease feelings of definitely encourage other families who have isolation and loneliness, and provides a sense been thinking about getting an assistance dog “Only 50 percent of dogs of comfort and familiarity in new situations. to take the next step and do it,” shares The dogs also help perform many of the Sroujieh. “You just have to remember that graduate from advanced practical skills of a service dog.” these dogs are not pets, they are working dogs that have a purpose.” training, but those that do During the Team Training program, the Sroujiehs learned to manage Shana’s behavior “All the work we do is funded by donations. are really solid ‘bomb using commands such as sit, down, roll over We receive no help from any governmental and play. They also learned to command institution,” notes Valliant. “All the programs proof’ dogs.” Shana to retrieve objects, and open and close are extremely low cost. Participants only pay drawers and doors. Most importantly, they $100 for registration. The fully-trained dog – Linda Valliant, CCI learned to maintain her health and well-being. and equipment are free, and during the two- “We groom Shana daily, including brushing week training, participants are housed at the her coat and her teeth. We also take her for a facility at no cost. Should families go on walk every day. She gets a bath every other vacation, we also board their dogs for them.” If you are interested in getting your own week, and we clip her nails regularly. We also CCI also offers graduate workshops and follow- canine companion, contact CCI for a practice her commands daily to ensure she up training sessions throughout the working preliminary application. “The application maintains them,” adds Sroujieh. life of the team, which is usually between eight process is extensive, since we need to be sure to 10 years. “We wanted a highly trained dog who would that people understand all of the ramifications be responsive to Adam’s needs and be a In addition to the Skilled Companion Teams of having an assistance dog,” explains Valliant. companion for him,” says Sroujieh. “Adam’s program, Canine Companions for “The process includes a written application, ecstatic about having a dog. He helps feed her Independence has three other placement telephone interview, visit to a CCI regional and loves to take her out to dinner or to visit options, Service Teams, Hearing Teams and center and pre-training class.” CCI is also family in Orange County. Whenever she Facility Teams. Service Team leaders are seeking puppy raisers. For more information doesn’t come with us, he misses her terribly, people with mobility challenges, most visit their Web site at www.cci.org. 10 REWIND: Perspectives 2004

he second annual Perspectives 2 International Film Festival and “Johnny Appleseed planted seeds not trees, T Forum took place on June 4-6, and I think that when we do what we do 2004 at the ArcLight Cinemas in best, we’re planting seeds. We just have to Hollywood. The festival featured an exciting and diverse program of domestic do it everyday.” and international features, — Barry Morrow, documentaries and short films that screenwriter explored the lives of people with 7 developmental disabilities. Each screening was followed by a lively and thought-provoking discussion between the filmmaker, a disabilities expert and the audience. Perspectives opened with the Scottish film 3 “Afterlife.” Producer Ros Borland and Actor Paula Sage, who has Down syndrome, traveled from Scotland to attend the event, talk with the audience and participate in the festivities. “To Kill a Mockingbird” closed the festival and Mary Badham, who played Scout, introduced the film and answered questions. Badham’s comments carried particular significance since she has a son with special needs. Actor Gary Cole (“Dodgeball,” “The West Wing”) offered 8 some final remarks about the importance of Perspectives from his vantage point of 4 working in the industry and being the father of a daughter with autism. The Media Forum was a dynamic and informative event that offered insight into the current issues surrounding representations of people with developmental disabilities, and strategies for increasing the visibility of people with developmental disabilities in film and television. Following the panel, Comedienne Kathy Buckley presented the Perspectives Media Award to the Media 9 Access Office of the Governor’s Committee on Employment of People with Disabilities for their tremendous efforts in advancing the cause of “People with disabilities are part of the understanding and social acceptance by promoting the hiring of actors and community, not only as filmmakers but as filmmakers with disabilities. filmgoers…we want to see ourselves represented with honesty and authenticity Perspectives 2004 drew people from across Los Angeles and beyond, providing on the screen. Getting that point across is insight into the lives of people with really key.” developmental disabilities and inspiring — John Belluso, conversations that continued well beyond playwright the theater exit. (See photo captions on page 12) 1 5

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“On the part of employers in hiring someone with a disability, they think that it’s going to cost a lot of money to modify a work station, or modify a job, or that they are going to slow down the team, and that’s not the case at all. What you’re looking for is the right fit. If you provide the right opportunity for the right person that’s not going to happen, and that really is an issue that needs to be addressed.” — Dr. Paul K. Miller, Governor’s Committee on Employment of People with Disabilities 11 “Festivals like Perspectives harness the 11 power of the media to speak to people, 16 and to effect a genuine change of perception.” — Gary Cole, actor

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“There is not one role, one seat, one person who can really make this a reality in terms of changing the perceptions of the media. I think it begins early on, I think we need to be talking to educators, we need to be talking to all facets, all the transition points “We should be realistic about what for youth with disabilities that they encounter ‘Hollywood’ really represents and what the 18 throughout their lives, so that opportunities greater film community represents, and in that I to be engaged as writers, directors, think there is great hope.” producers or whatever their dream may be — Barry Morrow, in the arts isn’t just an adult phenomena.” screenwriter — Olivia Raynor, co-director of UCLAs Tarjan Center for Developmental 23 Disabilities and director of the National Arts and Disability Center 13

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“As filmmakers, as artists, I think that we have a responsibility to the rest of the people who watch what we produce, what we make, what we write…to aggressively go after that gulf.” — David Streit, producer and filmmaker in residence at AFI Conservatory 15 20 12 Captions from previous page Perspectives 2004 Media Award Recognizes All names are in order from left to right. California’s Media Access Office 1. “Afterlife” Producer Ros Borlund, Actor Paula Sage and Author Judy Karasik ave you ever wondered why actors with Since 1980, the Media Access Office, a before the screening of “Afterlife” on disabilities are hardly ever cast in partnership of the California Governor’s opening night. Hleading roles that depict characters Committee on Employment of People with 2. Moviegoers before the “Smudge” with disabilities? Is it because films about Disabilities and the California Employment screening. disability need a “big name” star to draw Development Department, has worked to 3. Moderator Gail Williamson of the Down moviegoers? Is it because actors with disabilities promote the inclusion of persons with disabilities Syndrome Association of Los Angeles, are not able capable of playing these roles? in all areas of the entertainment industry – and Actor Andrea Fay Friedman and What are the reasons actors with disabilities are to bring recognition to those directors and “Smudge” Director Hilary Pryor field not cast and what are the solutions? producers who hire actors with disabilities. questions after the “Smudge” screening. Nearly one in five people in the United States Over the years, the Office has offered 4. Paula Sage and Andrea Fay Friedman at has some type of disability, but only a fraction individual assistance to hundreds of adults and the opening night reception. thereof is represented in television and movies. children seeking roles on television or in film, 5. Macson Printing’s Ed Corcoran and his Title I and Title V of the Americans with acting in effect as a paid agent – but at no wife, Charlotte, enjoy the festivities on Disabilities Act of 1990 (ADA), prohibit charge. Currently the Media Access Office has opening night. employment discrimination against qualified about 800 adult clients and 150 young clients. 6. Actor Gary Cole offered some closing individuals with disabilities in the private remarks following “To Kill a Mockingbird.” The Office’s main focus is to encourage the sector, and in state and local governments. The industry’s decision-makers to use its clients both 7. Lanterman staff members Madeline Lara reasons vary as to why only a small number of and Yadira Navarro volunteer at the on screen, and behind the camera, as well as to people with disabilities are employed in the give people with disabilities the opportunity to “Afterlife” screening. media. At Perspectives, feedback from directors, 8. Richard Moon, “When Billy Broke His perform in mainstream roles – and not simply producers and others in the industry indicate in parts where disability is a plot point. Head” Writer and Director Billy Golfus and very positive experiences in working with actors Christian Gaines, AFI’s director of Festivals, with disabilities. So perhaps the lack of “When we first began envisioning a film socialize on opening night. opportunity is based on uninformed festival and forum focused on understanding 9. Martin Sweeney, director of Lanterman’s stereotypes and misconceptions? and social acceptance of people with Assistive Technology Project, with developmental disabilities, we decided that we daughter Eva Sweeney, and Lanterman Actors with disabilities have repeatedly shared would publicly recognize individuals and staff member and festival volunteer Ralph that the roles they seek do not necessarily organizations that embodied these goals – Bingener. focus on disability, but rather on “typical” both to honor their work and to show the 10.Lanterman staff members Jackie Ashman, characters. Films casting people with larger community living examples of what Frank Lara, Ronna Kajikawa and Tammy disabilities don’t have to be serious; they can we’re trying to accomplish with Perspectives. Simmons greet festivalgoers at the be comedies, action flicks and love stories. And so, the Perspectives Media Award was born,” Perspectives information table. Clearly the ratio of individuals with disabilities comments Diane Anand, executive director. 11.Dr. Amy Gross of the Jewish Family Service working in the entertainment industry is not “This year, we chose to honor the Media of Los Angeles and Director Ira Wohl take similar to the ratio of individuals with Access Office for all of their outstanding work questions from the audience following the disabilities living in the general community, on behalf of people with disabilities.” screening of “Best Man.” but there is one organization diligently 12.Lanterman staff members Maureen “It’s clear that the goals of the Media Access working to change all of this – the Media Office and Perspectives are remarkably aligned. Wilson, Patricia Herrera and Barry Londer Access Office of the Governor’s Committee on with his wife, Sarah, enjoy a moment And I can personally vouch for their ongoing between films. Employment of People with Disabilities. and extraordinary work in providing 13.Content expert Gaylynn Thomas of the opportunities for performers with disabilities Westside Children’s Center and Directors in all areas of the entertainment media. They Tami Lyn and Vanessa Kaneshiro talk with never stop pushing the envelope – and it’s the audience after the screening of “Talk making a difference,” shared Kathy Buckley, to Me” and “Given a Chance… A Little “America’s First Hearing Impaired Girl’s Journey.” Comedienne,” and four-time American 14.Diane Anand, Christian Gaines, AFI Festival Comedy Award Nominee as Best Stand-Up programmer Shaz Bennett, and Festival Female Comedienne, before she presented director Marielle Farnan enjoy the evening the Perspectives 2004 Media Award to Gloria air during the opening reception. Castañeda of the Media Access Office and Dr. 15.Council of Advisors member and Media Paul K. Miller of the Governor’s Committee Forum Panelist Olivia Raynor of UCLAs on Employment of People with Disabilities. Tarjan Center for Developmental Disabilities and the National Arts and Comedienne Kathy Buckley (center) presented the 2004 For more information about the Media Access Disability Center relaxed with husband Perspectives Media Award to Dr. Paul K. Miller of the Office visit www.disabilityemployment.org/ Lynn Raynor, daughter Zoe, Darcy O’Brien Governor’s Committee on Employment of People with med_acc.htm. For more information about and her fiance, Jon Felson, on closing Disabilities (left), and Gloria Castañeda of the Media Perspectives and the Perspectives Media Award visit night. Access Office (right). www.perspectives-iff.org. 16.Lanterman staff members Maria Bosch, Sonia Garibay and Rose Chacana volunteer at the “Best Man” screening. How’s Your News Team Gets the Scoop at the 17.Lanterman Family Support Specialist Olivia Hinojosa and Rigoberto Gaona take Democratic National Convention in the festival. 18.Paula Sage, Actor Mary Badham (“To Kill a rthur Bradford and the entire How’s Your News (HYN) Mockingbird”) and Milan Barrero having a team are back on the road again – this time, in pursuit of good time at the closing night party. Anews from the Democratic National Convention (DNC) 19. Lanterman board member Bob Wedemeyer and the Republican National Convention (RNC). Ron Simonsen with Paul Branks of City National Bank and who has cerebral palsy, Larry Perry who has advanced cerebral Diane Anand on closing night. palsy, Robert Bird and Sean Costello who both have Down 20.The Media Forum panel: Playwright John syndrome, and Susan Harrington who has mild retardation and Belluso of the Mark Taper Forum’s Other is legally blind, interviewed Sen. Hillary Rodham Clinton (D- Voices Project, Gail Williamson, Olivia N.Y.), Vermont Governor Howard Dean, General Wesley Clark, Raynor, Academy Award-winning News Anchors Peter Jennings and Wolf Blitzer, Talk Show Host Shortly after vice-presidential nominee John Screenwriter Barry Morrow (“Rainman,” Larry King, Filmmaker Michael Moore, Journalist Bill O’Reilly, Edwards spoke at the DNC, Susan “Bill”), Paul K. Miller of the Governor’s Activist and Comedian Al Franken, Political Consultant James Harrington of the How’s Your News team Committee on Employment of People Carville, Actor/Producer/Director/Writer Ben Affleck, Director interviewed Larry King. with Disabilities, Ros Borlund and Rob Reiner, Sen. Barbara Boxer (D-C.A.), and many other Moderator David Streit (standing), delegates at the DNC. producer and filmmaker in Residence at AFI Conservatory. “Our news team stands in such contrast to a traditional news team,” shares Bradford, a documentary 21.Lanterman board member Tom filmmaker and camp counselor at Camp Jabberwocky, a Martha’s Vineyard retreat for people with Armentrout with partner Ben Wiswall and disabilities. “These interviews are truly unique. They’re genuine, offbeat and totally unscripted. Ron their son Alex on closing night. did an incredible ‘All in the Family’ skit with Rob Reiner.” 22.Student filmmaker Sam Yi and Kari Pope Bradford adds, “The DNC was very nice to us, and our team was given excellent access at all the of the National Arts and Disability Center convention areas. I think it’s a tribute to our country that our elected officials and public figures are wait for the Media Forum to begin. willing to make themselves available to speak with a news team like ours. It was such an adventure.” 23.Publicity consultant Rebecca Brown-Dana (second from left) and friend (far left), The HYN team is hoping that the RNC will grant them similar access so they can provide balanced Marielle Farnan, AFI Communications coverage of both conventions. “We are not a partisan group, so we’d like to show both sides equally,” Coordinator Lauren Clark, and Publicist notes Bradford. The team’s footage is scheduled to air nationwide in a television special on the Trio Anita Sen at the closing night festivities. network on November 1, the night before the presidential election. 24.Gloria Castañeda of the Media Access The DVD of the team’s first documentary film, “How’s Your News?,” was released on July 20 and is Office and Mike Hansel discuss the Media available in stores everywhere; so pick up your copy today. It is also available at the Koch Young Forum. Resource Center. For more information about the How’s Your News team visit www.howsyournews.com. Changing Perceptions One Workshop at a Time 13

Movies play an important role in shaping the experiences for actual ones, and these images romance and sexuality. In addition, ways in which Americans think about their may serve as a primary contact between filmmakers whose work exemplifies artistic viewers and people with disabilities.” quality, cultural diversity and relevance to the world – and especially, aspects of life about lives of people with disabilities will discuss The question is, “How do you change these which they have little first-hand knowledge. their films. There will also be opportunities negative attitudes into positive ones and for direct interaction and dialogue with Certainly, one should look about the ways in eliminate the walls of isolation, individuals with disabilities. which audiences of the time interpreted films. marginalization and segregation?” But as scholars, and not just movie critics, it UCLAs National Arts and Disability Center “These workshops offer a rare opportunity to seems to me that our job is also to look at the (NADC), and its community partner, advance social acceptance – both in the short- term, by exposing film makers to information collective impact of films. Lanterman Regional Center, are collaborating on a special project, Changing and resources, and in the longer term by – Steve Ross, historian Perceptions in the Media. “The National Arts and increasing the likelihood that the film and Disability Center and Lanterman Regional television shows they produce will engender ttitudes and expectations of the public, Center share a common mission and vision, new perspectives on people with disabilities,” in part, determine the degree to which advocating for the full participation of shares Raynor. children and adults with disabilities are A individuals with disabilities in all aspects of “As influential agents of change and powerful able to live, go to school and work alongside society,” explains Diane Anand, executive molders of public opinion, the media have a peers without disabilities. With federal and director. “Additionally, this partnership is in state legislation requiring schools, employers, major impact on our view of those who are keeping with the vision and goals of the different. Perceptions of capabilities make all cultural and recreational programs to move Perspectives Film Festival to promote realistic beyond old concepts of “special” and the difference in where people believe and accurate images of people with individuals with disabilities should learn, segregated settings for people with developmental disabilities in the media.” disabilities, to a policy of inclusion that work and live,” says Anand. “This project ensures people with disabilities have the same “The promise of engaging people with enhances the capacity of Lanterman to opportunities as others without disabilities in disabilities in all aspects of public life is respond to the needs of its community the community, negative attitudes and challenged by negative attitudes and members – understanding that leads to stereotypes need to be changed. stereotypes portrayed in film and television,” inclusion – and we see the workshops as an comments Raynor. “This project offers the important opportunity to advance social A Special Olympics report in 2003 said, opportunity to change the perceptions of acceptance through the media.” “Negative attitudes about individuals with mediamakers about the lives of people with disabilities by the media are perceived as a disabilities, and to increase the likelihood that As part of the project, the National Arts and major obstacle to inclusion.” Nearly 100 relevant issues will be addressed sensitively and Disability Center will also publish an online percent of American households have access accurately in the media, by offering an Los Angeles Disability Resource Directory to television and the typical person watches alternative vision to mediamakers about the featuring experts who can provide 1,000 hours per year. “The images we see lives of people with disabilities.” consultation regarding story content. When shape our individual and collective completed this site will be accessible on the perceptions of whom and what we value as a As part of the project, three workshops will be NADC Web site at http://nadc.ucla.edu and society, including how we view those who are held to educate and inform mediamakers, from the Perspectives Film Festival Web site at different,” notes Olivia Raynor, co-director of including television and film writers, www.perspectives-iff.org. It will also be the Tarjan Center for Developmental producers, and directors, about issues critical announced to various entertainment industry Disabilities and director of the National Arts to the lives of individuals with disabilities. The guilds to inform their members of its and Disability Center. “Consequently, the workshops will include presentations by availability. Transcripts form the workshop images and lessons learned via television disability experts who will address topics and presentations will also be made available on substitute with greater regularity vicarious themes such as school, work, play, family, the NADC Web site.

American Film Institute – AFI On Screen Associates Council of Advisors Christian Gaines, director, Festivals Dr. and Mrs. Sudhir Anand Anonymous Russell Goldsmith, honorary chairman, Nancy Collet, director of Programming, Festivals chairman and CEO, City National Bank Beltran, Beltran, Smith, Oppel & MacKenzie, LLP Liza deVilla, chief communications officer, AFI The California Community Foundation Magdalena Beltran-del Olmo, vice president of Danièle Neuharth, director of California Wellness Foundation Communications, The California Wellness Foundation Sponsorship and Marketing, Festivals CBS Yudi Bennett, president, Foothill Autism Alliance Shaz Bennett, programmer, Festivals Central Valley Regional Center Ted Braun, University of Southern California School Erin Anderson, series producer, Festivals Easter Seals of Southern California of Cinema-Television Effective Mortgage Co. Natalie McMenemy, Festival coordinator Enright & Ocheltree, LLP Vince Calandra Anna Sopko, Sponsorship coordinator, Festivals Exceptional Children’s Foundation Moctesuma Esparza, producer Lauren Clark, Communications Frank D. Lanterman Regional Center Staff Bobby Farrelly, writer, director coordinator, AFI Karen Ingram Peter Farrelly, writer, director Inland Regional Center Institute for Applied Behavior Analysis Andrea Fay Friedman, actor Special Thanks to AFI Staff Members Kacy Melissa Gilbert, president, Screen Actors Guild Sterling Davis Kern County Regional Center Sam L Grogg, dean, AFI Conservatory Matt Cowan The MENTOR Network Musick, Peeler & Garrett, LLP Joe Mantegna, actor Patti Johnson Rochelle Levy Regional Center of the East Bay Olivia Raynor, Ph.D., co-director, UCLAs Tarjan Center for Todd Hughes San Gabriel/Pomona Regional Center Developmental Disabilities and director, National Arts and Heather Gilmour Dr. Sharon A. Shueman and Dr. Warwick Troy Disability Center South Central Regional Center Jason Ritter, actor Tri-Counties Regional Center United Teachers Los Angeles Gail Williamson, executive director, Acknowledging Our Waterson & Huth, LLP Down Syndrome Association of Los Angeles Sponsors Westside Regional Center Windes & McClaughry Accountancy Corporation We wish to thank the following individuals, Festival Staff Friends businesses and organizations whose Aizabel Home Diane Anand, executive director, generosity has made Perspectives 2004 possible. Alternative Home Care Frank D. Lanterman Regional Center Tom, Ben and Alex Armentrout-Wiswall Marielle Farnan, Festival director Major Sponsor Associated Comprehensive Therapies, Inc. Maureen Wilson, event coordinator The Lanterman Endowment Fund Patrick Aulicino Autumn Cottage Jacquelyn Ashman, volunteer coordinator Participating Sponsors BCR “a place to grow” Ronna Kajikawa, travel coordinator ArcLight Cinemas Behavioral Health Consultants City National Bank Blue Room Events, fundraising coordinators Chelle’s Home MacMurray Ranch C.M. Collins & Associates Janas Communications, logo design, art direction Down Syndrome Association of Los Angeles and creative services Contributing Sponsors Familias First Creative Artists Agency Focus on All Child Therapies, Inc. Public Relations Consultants Eastern Los Angeles Regional Center Foothill Autism Alliance Rebecca Brown-Dana Macson Printing and Lithography Glen-Park Retirement Homes Anita Sen Solomon R. and Rebecca D. Baker Foundation Good Faith #5/Oxford House United Talent Agency Hayes Family Care Homes Holding Hands Special Thanks to Frank D. Lanterman Partners In Memory of Betty Erio Accredited Nursing Care Regional Center Staff Members and Friends Jay Nolan Community Services Eisner Pediatric & Family Medical Center JJ Qual Serve, Inc. Patrick Aulicino Far Northern Regional Center Keenan & Associates Kristin Conder Fred & June MacMurray Foundation Micro Specialties, Inc. Patricia Herrera Marlene Gaudio Becker New Beginnings Karen Ingram Harbor Regional Center North Los Angeles Regional Center Frank Lara Al and Beatrice Marsella Family Charitable Gift Fund Precise Care Pasadena Lisa Levin Modern Support Services, L.L.C. Rox/San Pharmacy Joe Perales PacifiCare Marta Schmidt-Mendez Steve Rosenthal San Andreas Regional Center Shady Acres Marty Sweeney The Tarjan Center for Developmental Disabilities Villa Esperanza Kelly Vencill Sanchez R.W. Thom, Trustee – The Gene Raymond Living Trust Walter’s Residential Home Sharon Shueman Vagthol’s Residential Care Center, Inc. West Residential Homes 14 Joe Perales’ Personal Accomplishments Enhance his Ability to Deliver Quality Services

or the better part of 20 years, Joe Perales highlight of my day is seeing the smile on my has worked to improve the lives of clients’ faces when I’m able to ensure that they F people with developmental disabilities. receive the services they need,” notes Perales. During this time, he’s worn many hats from In addition to his ongoing responsibilities, assistant program director at UCP, supervisor Perales also works to raise awareness about of a direct-care facility and rehabilitation developmental disabilities and Lanteman counselor, to continuing education teacher Regional Center. He volunteered his time on with the Los Angeles Unified School District the Perspectives Media Committee, which was and ultimately service coordinator specialist established to promote the event and with Lanterman Regional Center. fundraise. He sits on the planning committee Joe Perales and Comedienne Kathy Buckley at Each of his previous experiences has enabled for the Media Access Awards, attends Perspectives 2004. Perales to provide exemplary service on behalf Hollywood Networking Breakfasts, and of Lanterman Regional Center to the families facilitates events with the Latino community, and individuals on his caseload. Perales including promoting the Center’s services to participated in a forensic task force that primarily works with individuals in the various Spanish-speaking groups. He’s also advocates and represents high profile clients Glendale, Pasadena, Burbank, La Cañada and helped organize public events for the with a criminal history; facilitated La Crescenta areas that are 14 years of age and Hollywood, Glendale, and Pasadena investigations dealing with adult and juvenile older. “The largest group of people I work communities, and has facilitated support clients involved in the criminal justice system; with are adults who live independently in the groups in the Hollywood area for parents and represented clients in formal and informal community. I also have some clients that live other family members. In his spare time, hearings, court, social welfare, mediations and in residential facilities, and I work with Perales pursued his master in business litigation; and carried out announced and families whose young adults are transitioning administration from Woodbury University in unannounced facility monitoring. He has also from school,” explains Perales. Burbank and graduated this past June. represented Lanterman at joint committees with other regional centers working to Some of Perales’ day-to-day responsibilities Perales has also acted as a liaison representing organize symposiums, forums and conferences include writing reports; conducting quarterly Lanterman Regional Center in advocating and for the general community, as well as clients and annual reviews at clients’ school IEPs, day recommending changes in budget legislation; and their families. programs and facilities; as well as In his nine and one-half years at Lanterman, performing crisis Perales accredits much of his success to intervention, and “The highlight of my day is “working towards building and maintaining providing referrals strong work relationships, having a positive to Department of seeing the smile on my attitude, and fostering teamwork.” He shares, Rehabilitation “I view the regional center like a family and counselors for clients’ faces when I’m able feel that there is good sense of commitment by vocational services everyone to promote our mission.” In his and supported to ensure that they receive opinion, one of the benefits families served by employment. “The Lanterman Regional Center receive is “having a service coordinator who has received the services they need.” extensive and ongoing training about the regional center system that provides them with Joe Perales, service – Joe Perales the skills and knowledge to effectively serve coordinator specialist the individuals and families on their caseload.”

The Season of Sharing is (Almost) Upon Us “Wealth is something you acquire Each and every one of these acts of kindness share. As you can see from the examples and sharing with those in need are in provided, there are many ways to help. If you so you can share it, not keep it.” keeping with the spirit set forth many years aren’t able to donate money, toys or food, ago in Lanterman’s first Holidays are for take the time to organize a collection drive or – Unknown Sharing. The flavor of the campaign changes help the Toys for Tots campaign by every year, but the outcome is always the ake a moment to think about what the volunteering your time in collecting, filling same – Lanterman families in need can join orders, and/or distributing the toys they have holidays would be like without the in celebration of the colors, sights, sounds noisy unwrapping of gifts or the stack collected. Your time is always a gift that you T and smells of the holidays. can share. To learn more about the Holidays of holiday dinner dishes piled high in the sink. Think about how lonely the holidays would be No matter how little you give, it can make a are for Sharing and Toys for Tots program without friends and family to share in the difference for someone else. There’s no contact Jackie Ashman at 213.383.1300 x684 holiday cheer. better time than now to open your heart and or [email protected]. For some people, the holidays aren’t filled with hope and cheer, but rather with worry For over 20 years, friends and families of Lanterman Regional and fear. They fear they won’t be able to pay Center have stepped up to meet the critical needs of members their rent or feed their family, and worry of our community who require a little extra help not only about how they will explain why there are no during the holidays, but throughout the year as well. The holiday presents and special celebrations. Holidays are for Sharing campaign has two objectives, one to Some people don’t even have a family to help make holiday celebrations possible through donations of celebrate with. food and gifts, and also to raise money for the “Help Fund” – That’s where Holidays are for Sharing comes in. the fund that gives all year long by providing assistance with Lanterman serves about 6,000 individuals with emergency food, clothing, shelter and other necessities. Last developmental disabilities and their families year alone, $32,000 was raised for the “Help Fund.” who are spread over a diverse geographic and Throughout the years, Holidays are for Sharing has made a significant difference in the ethnic range. Last year, with the help of lives of members of our community and there are several ways that you can help: members of our community and friends of the Center, Lanterman was able to ensure • Send a tax-deductible contribution in the form of cash, check, or money order. that all of the people we serve who requested • Donate a new gift, art supplies, personal care items, baby products, or a food/gift help with holiday-related needs were able to certificate. participate in the festivities and traditions of the season. • Adopt-a-Family and provide them with food and gifts for the holidays. A Lanterman staff member and her church • Give through your company’s United Way plan. established a giving tree that provided gifts • Participate in “Matching Dollars” if your company has a matching fund program. for 63 clients; another staff member and his temple contributed 28 food baskets for the • Publicize our program through your business, club, church or service organization. Thanksgiving holiday; and the niece of a Checks should be made payable to “FDLRC Holidays are for Sharing” and mailed to Holidays third staff member and her high school are for Sharing; c/o Lanterman Regional Center, 3303 Wilshire Blvd., Suite 700; Los Angeles, friends donated 19 food baskets. Lanterman CA 90010. Gifts should be delivered unwrapped to Lanterman Regional Center. For more also collected toys, monetary and food information, please contact Jackie Ashman at 213.383.1300, x684 or donations for last year’s holidays that were [email protected]. valued at $38,000. Abel Castillo Shares in the Traditions of His Faith During 15 First Communion

or many individuals, religion and spirituality can be critical means of F support for themselves and their families. A religious or spiritual association can also provide a sense of personal balance as well as a connection to the community at large. People with intellectual and developmental disabilities are no different, having spiritual and religious interests, needs and gifts. However, all too often they do not have the opportunity to express these parts of their lives. For many reasons, people with developmental disabilities who have religious interests do not become involved in religious congregations or other spiritual activities. Some caregivers may overlook the importance of spirituality for people with Father Eamonn (fourth from left) took photos with Abel Castillo’s family after performing First Communion. (left to right) developmental disabilities, and Romy Castillo, Abel’s mother; Norma Rodrigues, Abel’s grandmother; Joaquin Castillo, Abel’s father; Father Eamonn; Abel; congregations of many religions fail to and Aguiles Castillo, Abel’s uncle. welcome and include people with developmental disabilities in their worship Angeles, who had also been to their house a milestone for us and we highly recommend services and programs. Thankfully, these few times and was familiar with Abel’s that parents who would like their child to scenarios are changing as caregivers situation. They approached Father Eamonn receive Communion approach their priest recognize the need for religious inclusion, with their dilemma, and asked him if he about it. Father Eamonn was 100 percent and congregations open their doors. would perform the Communion and what behind Abel receiving his. Even though it can options they had for Abel’s preparation. be a challenge for the child, it is such an Romy and Joaquin Castillo both go to church incredible experience for both the parent regularly, and their religion and its traditions “Father Eamonn told us that we could and the child.” are important to them. First Communion is an prepare Abel at home and that when Abel was important milestone for all children in the ready he would meet with Abel and give him a After the ceremony, Father Eamonn took the Catholic faith, and Romy and Joaquin were test to ensure that he was prepared for his family to a small courtyard that he had First Communion,” explains Joaquin. “My specially prepared for the family to take photos wife spent 15 minutes a day with Abel reading away from the crowd. Joaquin remembers, “He the Bible and memorizing the passages, and told us that Abel was a very special kid and that he was ready in less than two months.” we were lucky to have him. It brought tears to “He [Father Eamonn] told our eyes.” Romy and Joaquin couldn’t be more When Father Eamonn determined that Abel proud of Abel’s accomplishment. Joaquin us that Abel was a very was ready to receive Communion, a date was added that Abel enjoyed himself and is also set for March of this year. Along with Abel, proud of what he achieved. special kid and that we approximately 100 other children were scheduled to receive their Communion. The National Catholic Partnership on were lucky to have him. It Knowing that Abel didn’t do well in large Disability (NCPD), the voice of the U.S. crowds, Romy and Joaquin spoke with Father Catholic Bishops, continues its work to brought tears to our eyes.” Eamonn, who held a special rehearsal for implement the 1978 Pastoral Statement of Abel, the week before the actual Communion, U.S. Catholic Bishops on People with – Joaquin Castillo to walk him through all the steps, including Disabilities. The statement calls for full where he was going to walk and sit. Two seats inclusion of all persons with disabilities in the towards the front were reserved, one for Abel church and in society,. With efforts like these and the other for his mother to sit with him in place, we hope to hear more stories like not sure they would ever see the day when during the whole ceremony. the Castillo family’s. Visit the NCPD Web site Abel, their 9-year-old son who has autism, at www.ncpd.org/ for more information on would receive his First Communion. They “Abel was supposed to be one of the first their mission. originally signed Abel up for the necessary children to walk up to receive the bread and classes to prepare him for his Communion. wine, however, the order was reversed and he In addition to this site specifically devoted to “We quickly realized that three hours of started to panic,” shares Joaquin. “It was the the Catholic faith, there is a wealth of classes every Saturday for two years in addition only time during the whole event where Abel information that focuses on the different to Abel’s multiple therapies and school was panicked, and Father Eamonn who was aspects of including people with all kinds of too tough for him,” comments Joaquin. “We keeping an eye out on him as well, noticed disabilities in many religions. For a list of wanted Abel to enjoy his experience and this and called him up out of order.” resources visit the worship section on the instead he viewed it as school and was upset.” Family Village Web site at www.familyvillage. “We were worried for a while when Abel wisc.edu/worship.htm and the religious and In rethinking how they might help Abel to started to dislike religion because of the spirituality division on the American receive his First Communion, Romy and classes, and we were afraid that he would Association on Mental Retardation Web site Joaquin thought of an acquaintance, who is a never receive his First Communion,” notes at http://aamr.org/Groups/div/ priest at a Catholic church in East Los Joaquin. “First Communion is an important RG/about/index.php.

New Television Programs for Pre- Kindergarten Caregivers Premiere in September on KCET

n September 13, the much-anticipated educational television series for caregivers of pre-Kindergarten aged children, “A Place of Our Own” and O its Spanish-language series companion, “Los Niños en Su Casa,” will air on KCET/Hollywood, the West Coast flagship station of PBS. The two shows specifically target non-professional caregivers, such as parents, grandparents, other family members, friends and neighborhood babysitters, helping them provide young children with a head start on learning. These shows are also a valuable resource for professional caregivers. “A Place of Our Own” and “Los Niños en Su Casa” are produced in talk-show format, are interactive, and offer viewers advice and “how-to’s” on topics such as nutrition, safety, discipline and literacy. Some of the segments will focus on developmental issues and feature information about regional centers. Visit KCETs Web site at www.kcet.org/index.php for more information. 16 FATHERS’ CORNER: 1+1 does = 4 Also known as “How come you don’t smoke, chug coffee, and rant like a type “A” lunatic.” By Steve Harris

kay, one day a while back, one of my Since my boys were first diagnosed, I have friends said to me, “How can you be a maintained a log of some of the interesting Osingle father, deal with two boys with experiences I have had over the years. I have If we keep our kids at home autism in their teens, and not be going crazy? I changed jobs seven times, moved six times, dealt have two ‘normal’ kids and my problems are with six different school systems, participated in all their lives, when we pass phenomenal. It must be three to four times as at least 55 different IEP/IPP meetings, had difficult with their challenges.” more doctors/therapists for the boys than I can on, they will be devastated To which I replied, “My boys problems may be even count, been subjects in at least a dozen different, but they are no more difficult than case studies, filled out reams of paperwork, and unprepared to live on raising ‘normal’ children.” When you look at coordinated with three regional centers, worked the basics, I don’t have to worry about my boys with eight other agencies who were neither their own. The goal for every driving, spend the money on insurance to medical or school-related, but still somehow cover them driving, deal with the stress of SAT provided services for the boys, been involved parent should be to make his exams and the expense of college, or respond with three different support groups, gone to constant questions of “Dad, why can’t I through a slew of nannies/respite care workers, or her child as independent borrow the a car to take my girlfriend to two dogs, placing one son into a group home, lover’s lane?” with any number of reasons why two conservatorship hearings, and one divorce. as possible. I believe it is a bad idea. And yet, I am still a calm, non-addicted, social- drinking, non-smoking, responsible father; The basic difference between my friend and I move over Superman, you have company! is that the challenges my sons present me are comfortable that the staff will take good care different from the ones parents of typically Of all the items in the statistics above, I think of your child. This is a very emotional process developing children have to deal with. There the hardest decision I had to make was to because you find yourself asking, “Am I a bad are not very many people that I know who are place my oldest, and most severely disabled parent because I can’t take care of my child in my particular situation, nor are there many son into a group home 10 years ago. It became full-time?” The answer of course is “No,” and off-the-shelf resources to consult for advice. apparent that my younger son was starting to in reality, just the opposite is true. As a parent Even though their challenges are different, pattern behaviors after my older son, and that you recognize that a family has limits and in the bottom line is that I would not change my if they both were going to grow to their own certain situations, staff in rotating shifts can boys for the world. full potential, they were going to need to be separated on a daily basis. As tough a decision provide the best support for your child on a What I find most interesting at this point in as it was, I am sure it was the right one. Now day-to-day basis. Also, good parents know that my sons’ lives, now that they are older, Joe is placing your child into a group home does not as much as we would like to shelter our 20 and Dan is 18, is how much information is mean that you are disconnecting yourself from children and have them stay at home for all now available for me to reference. I can’t help your child. I have always brought my older son their lives, at some point, we must cut the but thank those who came before me and home on the weekends and have spent hours apron strings. This is true for our special blazed a trail to make that information listening to the boys acting out the “Bert & children as well as normal children. If we keep available for all people in our kids at home all their lives, when we pass our situation. Now I try on, they will be devastated and unprepared to to return the favor, as live on their own. The goal for every parent time and two young should be to make his or her child as adults permit, by being a independent as possible. peer-to-peer mentor and Financially, when a child under 18 is placed in by providing information a fulltime living arrangement, the state of to others in support California assesses a “program development groups or online chats. fee” to help develop new programs for You might ask, “Was I individuals with disabilities. This is a fair share always this great wealth program, and since you are not paying for the of information?” The room and board of your child in the group answer would be a flat home, the state has a right to ask you for a “No!” When the boys portion of the money you would have spent on were each diagnosed the care of your child if they were still at with autism, Joe at 18 home. What you really need to know is that months and Dan at 6 you can reduce the amount you pay the state months, I knew nothing. by keeping good records of what you expend It was by the grace of for your child. Annually, you will be asked to God that the pre-school fill out a confidential income and expense my boys attended also report for the state to base their fair share had a pre-school for assessment on. If you can show how much you children with special spent for clothing, personal and incidentals, needs. The director of (left to right) Joe, Dan and Steve Harris share a moment before Dan leaves for prom. travel, medical, etc. for your child when you the special needs had them out of the facility, you can decrease program, who the amount assessed. My experience was that understood the the fair share cost was always reasonable. importance of early diagnosis, would routinely Ernie” show from their bedroom when they Overall, I feel my sons are continuing to rise to visit the regular pre-school to evaluate all of the were supposed to be asleep. their full potential. They are very happy young children for developmental milestones. Her Also, like most other parents, my weekends are men who remind me every day that even the visit was the first inkling for us that there was spent playing taxi driver and shuttling the simplest of things around us, can give us great something seriously wrong with Joe. Until young men between all their activities. Needless delight in life. then, my ex-wife and I just thought he was a to say, we enjoy the events together. We attend slow learner. the BCR Social Dances in Burbank on a Steve Harris, lives in Burbank, and is a Senior Financial Analyst currently in between jobs. Joe Once I passed through the five stages of grief monthly basis, Dodger games as often as Harris attends Tobinworld and spends the that we all experience with a major change in possible, Special Olympics, Best Buddies events, weeknights in a group home in the Miracle Mile our lives, such as having a child diagnosed movies, the Los Angeles Live Steamer trains in area of Los Angeles. Dan Harris, who just with autism, I learned very quickly that I had Griffith Park (where we have our train stored completed high school, attends the Foothill Area to be the resident expert on my first son’s life and give rides on Sundays), the American Community Training School (FACTS) in Burbank and then on my second son’s life when he was Cancer Society Relay for Life, Concerts at the and shares the house with his dad. diagnosed, and to be their advocate. I also Hollywood Bowl, family events at the Masonic learned over time that the expectations I had, Lodge where I am an officer, and of course, Fathers’ Corner is a regular Viewpoint feature. needed to change, since the boys were not weekly services at the synagogue where the guys If you are a father and would like to write for going to fit the mold I had created in my are full participants. Suffice to say that there Fathers’ Corner in an upcoming Viewpoint, please mind. I learned that having two children with was not a dry eye in the synagogue at either of contact Vinita Anand at 213.383.1300 x753 or disabilities is not a bad thing, but offers a my sons’ Bar Mitzvahs, and I was one extremely [email protected]. different way of looking at things. I vowed to proud father! The daDA Fathers’ Support Group meets on the be the best advocate I could be for them Placement is not an easy choice because it has second Monday of every month from 7p.m. to 9p.m. because I knew no one else would be as good. both emotional and financial considerations. at the Denny’s at 3060 San Fernando Road in Los After their diagnosis, I immediately joined You have to find the right level of home that Angeles (off Fletcher Street, exit off I-5 or near the support groups and started research into their provides the least restrictive environment for Glendale Freeway). For more information, contact unique situations. your child, and one in which you feel Aaron Hinojosa at 626.296.1556 or Germán directed services, employment and work 17 supports, entrepreneurial opportunities, Internet health care, independent living, lifestyle, media, Medicare and Medicaid, and RESOURCES technology and access. Disease Info Search DDS Safety Net www.geneticalliance.org/DIS/ http://ddssafety.net/ Disease InfoSearch (DIS) is an innovative DDS Safety Net is designed for clients with public information search tool for genetic developmental disabilities and their families, disease information. The Genetic Alliance for providers of support and services, and for developed this Internet-based search tool to the staff of California’s 21 regional centers. developmental disabilities. It is also designed facilitate public access to quality lay-oriented The site is dedicated to the dissemination of to support persons with developmental information about genetic and rare diseases information on the prevention and disabilities and their families in making in language that is understandable and useful. mitigation of risk factors for persons with informed health care decisions. The DIS is a robust catalogue of genetic developmental disabilities. The site includes information in this site includes medical care conditions – rare to common – that is information from across the nation on information for specific syndromes and searchable according to Clinical Description current research, best practices and practical related issues, health provider educational (signs and symptoms), Treatment Research, information directed towards improving the opportunities, speaking opportunities, Genetic Information (molecular), Support health and safety of people with publications, and links to selected Web sites. Groups and References (newsletters, listservs, developmental disabilities, and ensuring their self-help books), Insurance Issues, Arts and World Institute on Disability protection from harm. A quarterly newsletter Literature, and Other Resources. This www.wid.org/ is also published that focuses on various dynamic and up-to-date public information World Institute on Disability (WID) is a topics and is accessible from the site. Links to system is driven and maintained through the nonprofit research, training and public policy other Web sites with information on risk expertise and vigilance of disease-specific lay center promoting the civil rights and the full management and prevention are also advocacy organizations and their professional societal inclusion of people with disabilities. provided, as well as information on advisory boards; editorial review and quality The WID Web site features a wealth of conferences and training. control are provided by genetic counselors information on WID programs such as that staff the Genetics Education and Developmental Disabilities Resources for California Work Incentives Initiative, Resource Center. Healthcare Providers – Disability Benefits 101, California Work www.ddhealthinfo.org/ Incentives Initiative Links, Individual California Nursing Home Search The Developmental Disabilities Resources for Development Accounts (IDA) Program, www.calnhs.org/ Healthcare Providers Web site is a Individual Development Accounts (IDA) California Nursing Home Search is a resource collaboration of California-based information Program Publications, Individual designed to help the general public, health care and programs on developmental disabilities. It Development Accounts (IDA) Program professionals and other interested parties find is funded by the California Department of Training, Health Access and Long Term information on nursing homes in the state of Developmental Services and coordinated by Services (HALTS), International Disability California. The Web site features information the Center for Health Improvement (CHI), a and Development, Disability World, Proyecto on each nursing home and includes facility and prevention-focused health policy center. The Visión, and Technology Policy. Also accessible resident characteristics, nurse staffing levels, primary goal of this Web site is to improve the on the site are publications and reports, quality performance indicators, results of health of persons with developmental upcoming events, training and public complaint and inspection visits, financial disabilities in California. To this end, the Web education opportunities, a news and indicators, and ownership. Facilities can be site is designed to assist physicians and other resources section that offers a list of links on a searched for using location, name, services healthcare providers in caring for persons with variety of topics such as ADA, consumer- offered, certification and ownership type.

Examine the Options Making Bullying a Thing of the Past Available with Inclusive hen we think of bullying, many of us think of Education Ralphie in the movie “A Christmas Story,” who is Foothill Autism Alliance, Inc. in conjunction with Wrepeatedly tormented by the school bully, only to Lanterman presents Inclusive Education: Examining the finally crack and take a stand. While bullying can be as overt Options on Wednesday, September 8 from 7:30 p.m. to as one child physically abusing another child, bullying also 9:30 p.m. The evening’s program will explore the can take many other subtler forms. following questions many parents have including, “How do I know if full inclusion is the best choice? If my child is Considered to be a serious public health problem in the in a special day class, will he or she be totally excluded? United States, between 15 and 25 percent of students are What supports are needed to make inclusion successful? bullied with some frequency, and 15 to 20 percent of What happens when my child gets to middle school and students bully others with some frequency. Bullying is defined as aggressive behavior that is high school? Can my child be included in extra-curricular intentional, repeated over time, and involves an imbalance of power or strength. It can take a activities such as sports and drama? What are my child’s variety of forms including: rights under the law?” The panel of speakers that will • Physical bullying, such as hitting or punching; address these issues includes Dr. Mary A. Falvey, • Verbal bullying, such as teasing or name-calling; professor of special education at California State • Nonverbal or emotional bullying, such as intimidating someone through gestures or social University, Los Angeles; Brigitte Ammons, senior exclusion; and advocate with Protection& Advocacy, Inc.; and Sarah • Cyber bulling, by sending insulting messages through e-mail. Aguilar, inclusion specialist with Pasadena Unified School District. The presentation will be held at Pasadena Furthermore, children and youth who are bullied are more likely than other children to be depressed, Child Development Associates, which is located at 620 lonely, anxious, have low self-esteem, feel unwell and think about suicide. Bullying causes as many as North Lake Avenue, second floor; Pasadena, CA 91101 160,000 students to stay home on any given day because they are afraid of being bullied. Young people (just north of the 210 Freeway). Due to the expected who bully are more likely than those who don’t to skip school and drop out of school. They are also interest in this presentation, reservations are required. more likely to smoke, drink alcohol, get into fights, vandalize property and drop out of school. Leave your name and the number of people attending in In order to combat this problem, Health Resources and Services Administration’s Maternal and your party on the FAA Hotline at 818.66.AUTISM Child Health Bureau launched a national bullying prevention campaign – Take a Stand. Lend a (818.662.8847) by September 1. Hand. Stop Bullying Now! One of the key components of this campaign is the campaign’s Web site that can be viewed at www.stopbullyingnow.hrsa.gov/index.asp. The Web site features both a youth Examinando las Opciones site and an adult site. The youth site is divided into three sections: “What bullying is,” “What you can do,” and “Cool stuff.” Disponible con Educacion The “What bullying is” section is further divided into sections that focus on the topics of “Why do kids Inclusiva bully?,” “Signs that you bully others,” which features a quiz, and the “Effects of bullying.” “What you Foothill Autism Alliance, Inc. en conjunto con can do” provides information and solutions for children who are being bullied, witness bullying or Lanterman presenta Educacion Inclusiva: Examinando bully others. The final section, “Cool stuff,” features profiles of the 23 characters created for the site as las Opciones en Miercoles, 8 de Septiembre de 7:30 a well as games and Webisodes that star several of the characters and provide an example of bullying 9:30 de la noche. El panel de discursantes seran Dr. and how it can be handled. Each Webisode is also followed by a questionnaire about the episode. Mary A. Falvey, profesora ed educacion especial en Statistics show that adults are often unaware of bullying problems. In one study, 70 percent of California State University, Los Angeles; Brigitte teachers believed they intervene “almost always” in bullying situations where as only 25 percent of Ammons, defensora con Proteccion Y Abogacia, Inc.; y students agreed with this assessment. As an adult, one of the best ways to help stop or prevent Sarah Aguilar, especialista de inclusion con Distrito bullying is to be educated about, and sensitive to, the issue. One new resource for adults whether Escolar Unificado de Pasadena. El lugar es Pasadena they are concerned parents, educators or school employees, health and safety professionals, or others Child Development Associates, 620 North Lake who work with children, is the adult portion of the Take a Stand. Lend a Hand. Stop Bullying Now! Web Avenue, segundo piso; Pasadena, CA 91101 (al norte site. The site features information about bullying, children who are bullied and children who bully, de la autopista 210). Se requiere que reserve su and the things that you as an adult can do to put a stop to bullying. An important tool also featured espacio para esta junta. Favor de dejar su nombre y on the Web site is the comprehensive kit of bullying prevention materials. numero de los que asistiran a 818.662.8847 antes de 1 de Septiembre. Si necesita traduccion en Español In the interest of the future generations of America, let’s all take a stand, lend a hand, stop bullying llama al Centro de Recursos KochYoung por now, and make it a thing of the past. 800.546.3676 antes del 1 de Septiembre. Training and Events Page Will No Longer be Printed in Viewpoint 18 TrainingTraining andand EventsEvents The Training and Development unit provides information on training opportunities that focus on developmental disabilities and related topics. The unit staff coordinates training events that are conducted by Lanterman Regional Center. Staff also coordinate registration arrangements for clients, family members, staff, board members, and service providers in the Lanterman community to attend external educational events of special interest. The Center also publishes a training and events webpage that is accessible via our Web site: www.lanterman.org. If you are a parent or client in the Lanterman Regional Center service area and are interested in attending a training opportunity outside the Regional Center, contact your service coordinator. For consideration, your request must be received by Training and Development three weeks prior to the posted conference deadline. We welcome your suggestions for future training topics and information on upcoming educational events that we can share with others. You may send comments, or request to be on the mailing list, by one of the following options:

BY MAIL: BY FAX: BY E-MAIL: Training and Development 213.639.1157 Maureen S. Wilson, director Lanterman Regional Center [email protected] 3303 Wilshire Blvd., Suite 700 Ronna Kajikawa, executive assistant Los Angeles, CA 90010 [email protected] Lanterman Regional Center Family and Client Training The following are training opportunities that focus on developmental disabilities and related topics and are conducted or sponsored by Lanterman Regional Center for clients, family members and board members in the Lanterman community.

ENGLISH transmitted diseases and sexual harassment. FAMILY TRAINING October 7 - November 4, 2004 September 14 – November 16, 2004 Five consecutive Thursdays Tuesdays, 7 p.m. to 8:30 p.m. BEHAVIOR MANAGEMENT WORKSHOP 7 p.m. to 9 p.m. Lanterman Regional Center FOR PARENTS Except October 28 from 6:30 p.m. to 9:30 p.m. Presenter: Dr. Iris Newbury (Licensed Clinical Psychologist This six-session course offered in English, Spanish and Korean Glendale Unified School District #17080) introduces the basic principles, concepts, and practical 223 North Jackson Street Prior registration is required. Space is limited. For more applications of behavior management. The classes focus on Glendale, CA 91206 information and to register, contact Ronna Kajikawa at managing and controlling challenging behaviors, and using Presenters: SCAT faculty 213.383.1300 x720. positive reinforcement to replace inappropriate behaviors. All families should touch base with their service coordinator GET SAFE to determine whether this course will meet your needs. CLIENT TRAINING The Get Safe program is a personal safety program for Contact the KochYoung Resource Center at 213.383.1300 people with developmental disabilities. Topics covered x730, toll-free at 800.546.3676 or [email protected] for ASSISTIVE TECHNOLOGY include assertiveness training, safety awareness, defining additional information and to register. COMPUTER CLASSES boundaries, and creating healthy relationships. The Adult Education and Career division of Los Angeles Class dependant on enrollment, 10 person minimum BEHAVIOR MANAGEMENT SPECIALTY Unified School District (LAUSD) in partnership with the WOMEN’S REPRODUCTIVE HEALTH AND SELF-ADVOCACY WORKSHOP: TOILET TRAINING Assistive Technology Project of Lanterman Regional Center TRAINING (RHSA) This six-session course introduces the basic principles, concepts have established assistive technology computer classes to RHSA is a peer-advocacy-based training program for women and practical applications of behavior management along assist Lanterman clients and their families. These classes are with developmental disabilities. The four session training is with specific toilet training strategies for parents of children an introduction to computers, software, programs, Internet co-taught by a health educator and a female client, and with special needs. Classes are conducted in different locations and e-mail. Classes in other languages, independent study includes topics such as: basic anatomy, menstruation, in the Lanterman community with options for morning, options, and open lab hours are available. Classes fill up menopause, pregnancy, sexually transmitted diseases, evening or weekend workshops. Classes are conducted in a quickly. Students must be able and prepared to attend contraception, the importance of women’s health exams, positive and confidential environment with other parents and classes on a weekly basis. If a student requires special and using self-advocacy to communicate with your doctor. are designed to provide support to participants as they accomodations, please be sure to indicate so. For Class dependant on enrollment, six person minimum practice learned behavior techniques between sessions. All registration and more information call 800.546.3676 or families should touch base with their service coordinator to 213.383.1300 x730. determine whether this course will meet your needs. Contact The address for Lanterman Regional Center is: the KochYoung Resource Center at 213.383.1300 x730, toll- ESSENTIALS COMPUTER SKILLS — ENGLISH 3303 Wilshire Boulevard, Suite 700; Los Angeles, CA 90010 free at 800.546.3676 or [email protected] for additional FALL SESSION: September 7 - December 14, 2004 information and to register. Fifteen consecutive weeks Tuesdays, 9 a.m. to noon IEP TRAINING: TRANSITION TO Lanterman Regional Center Learn Sign Language PRESCHOOL Presenters: LAUSD Lanterman Regional Center is looking to offer a sign For families with children 2 to 3 years of age. INTERMEDIATE COMPUTER SKILLS — ENGLISH language course for interested parents this coming Trainings are offered in both English and Spanish. (For students who have already taken the Essentials class or fall. If you are interested in attending classes, please Presenters: LRC Staff. who already have basic computer skills.) contact the Koch Young Resource Center at For more information and dates call 213.383.1300 x730. FALL SESSION: September 9 - December 16, 2004 213.383.1300 x730, toll-free at 800.546.3676 or PARENTING THE CHILD WITH Fourteen weeks (No class on Thanksgiving, November 25) [email protected] for more information. SPECIAL NEEDS Thursdays, 9 a.m. to noon This is an exciting five-week course that addresses issues Lanterman Regional Center faced by families who have children from birth to age 6 Presenters: LAUSD Training and Events and with special needs. Topics covered include developmental EVENING ESSENTIALS COMPUTER SKILLS — ENGLISH stages and milestones, intervention and therapy that FALL SESSION: September 8 - December 15, 2004 Someone Cares Pages Will support child development in the family, planning and Fourteen weeks (No class on November 24) setting goals for your child, appropriate expectations and Wednesdays, 5 p.m. to 8 p.m. No Longer be Printed in boundaries in behavior management, advocating for your Lanterman Regional Center Viewpoint child, and making connections with resources and support. Presenters: LAUSD

A specialized training on autism is also available. “General” BASICA POR ADULTOS — ESPAÑOL This is the last edition of Viewpoint that will feature refers to all diagnosis other than Autism. Al momento, no hay clases disponibles en Español. the “Training and Events” and “Someone Cares” pages. For more information, registration and additional dates Las anunciaremos cuando esten disponibles. Going forward, these two pages will no longer be call 213.383.1300 x730. Si usted o alguien que conoce puede servir de voluntario printed in the newsletter. Information featured in these ESPAÑOL — GENERAL como instructor de clases de computación, llame al Centro sections will be available on Lanterman’s Web site at Octubre 2 - 30, 2004 de Recursos Koch Young a 213.383.1300 x730. www.lanterman.org. To access the training and event Cinco sabados consecutivos BEGINNER FOR ADULTS — KOREAN information select the “training” button. Content is 11:30 a.m. a 1:30 p.m. Minimum of 10 students required. divided into several main categories including client, Shriner’s Hospital Dates and times to be announced pending level of interest. family and service provider training, as well as external 3160 Geneva Street training. “There are many trainings held outside of the Los Angeles, CA 90020 SEXUALITY AND SOCIALIZATION regional center system that families may be interested ESPAÑOL — AUTISMO TRAINING in, however, due to timing issues as well as space Febrero 5 - Marzo 5, 2005 Lanterman Regional Center offers several options for limitations in the newsletter, we are unable to include Cinco sabados consecutivos sexuality and socialization training. information about them,” shares Vinita Anand, 11:30 a.m. a 1:30 p.m. Please note: All of the sexuality and socialization trainings Viewpoint editor. To access the support groups and Shriner’s Hospital require a referral from your service coordinator. Contact 3160 Geneva Street your service coordinator to register. information featured on the “Someone Cares” page, Los Angeles, CA 90020 select the “support” button. This section has a listing of ABILITIES all the support groups, as well as peer support partner Abilities is a sexual abuse and exploitation risk-reduction SERVICE COORDINATION AND information and self-advocacy information. “The Web program for adults with developmental disabilities. This ADVOCACY TRAINING site and Viewpoint are designed to complement each This training is a 10-hour course for Lanterman families to three half-days training includes topics such as: definitions of sexual abuse, assertiveness training, self-esteem and other. There are numerous opportunities available in better enable them to advocate for and assist their family the Lanterman community that are not announced in member with a disability. Topics covered include an overview communication, personal safety training, and what to do if time to make the print deadline or that take place in of the regional center system, service coordination, overview of a person is ever sexually abused or assaulted. developmental disabilities, services and supports, education, Class dependant on enrollment, six person minimum between Viewpoints. Lanterman’s Web site is a dynamic resource that features current information and advocacy and legal issues. NEW – “BIRDS AND BEES” FOR ADOLESCENTS For more information, registration and additional dates call “Birds and Bees” for Adolescents: Fostering Healthy and Safe about the majority of these opportunities,” adds 213.383.1300 x730. Interpersonal Relationships is a new Sexuality and Socialization Anand. If you do not have a computer at home, visit ESPAÑOL Training program specifically designed for adolescents with your local library to use their computers or stop by the Septiembre 8 – Octubre 6, 2004 developmental disabilities between the ages of 13 and 19. Each Koch Young Resource Center to browse the Cinco miercoles consecutivos session will accommodate 12 to 15 clients and runs for 10 Lanterman Web site. Training and event information is 9:30 a.m. a 11:30 p.m. weeks. The training will cover topics such as friendships and also accessible through the Training Hotline at Centro Regional Frank D. Lanterman dating issues, adolescent changes and responsibilities, anatomy 213.383.1300, press 8. Presenters: SCAT faculty and reproduction, abstinence and contraceptives, sexually Someone Cares Page Will No Longer be Printed in Viewpoint

19 SomeoneSomeone CaresCares Local Family/Client Support Groups

ADULT SIBLING SUPPORT GROUP FRAGILE X PARENT MOMMY & DADDY & ME — Call for dates, location and details. SUPPORT GROUP EARLY INTERVENTION Contact: Olivia Hinojosa, 213.383.1300 x705 Call for dates, location and details. PARENT SUPPORT GROUP Monthly – 7 p.m. Call for details. ARMENIAN PARENT GROUP Contact: 818.754.4227 (voicemail) Contact: Olivia Hinojosa, 213.383.1300 x705 Quarterly meetings – Glendale area Call for dates, location and details. GLENDALE/BURBANK/FOOTHILL PADRES UNIDOS LANTERMAN Contact: Rima Shahoian, 818.548.4349 PARENT SUPPORT GROUP (Grupo en Español) Sona Topjian, 213.383.1300 x468 Burbank First United Methodist Church Childrens Hospital of Los Angeles (Vermont and Sunset) 700 North Glenoaks Boulevard; Burbank Conference Room “D” ARMENIAN PARENT SUPPORT GROUP Monthly – First Wednesday, 10 a.m. Segundo martes de cada mes, 7 p.m. to 9 p.m. Monthly meetings at group members’ homes Contact: Cheryl Francisco 213.383.1300 x530 Contact: Irma Cruz, 323.461.9307 in the Glendale area. Carmen Alabat, 213.383.1300 x526 Yadira Bautista, 323.460.4794 Monthly – Last Friday 11 a.m. to 1 p.m. Contact: Rima Shahoian, 818.548.4349 GRUPO DE APOYO PARA EL MANEJO DE RETT SYNDROME SUPPORT GROUP Sona Topjian, 213.383.1300 x468 LA CONDUCTA Quarterly meetings – Pasadena area (Dirigido por un terapista de comportamiento) Call for dates, location and details. AUTISM SOCIETY OF AMERICA Shriner’s Hospital Contact: Marie Hyland, 626.790.4836 San Gabriel Valley Chapter Support Group 3160 Geneva Street (Virgil and Third); Los Angeles Pep Stenberg, 626.355.5334 1167 North Reeder Avenue; Covina Ultimo martes de cada mes, 7 p.m. to 9 p.m. Monthly – First Wednesday, 7:30 p.m. Contact: Alfredo Kertzman, 714.328.4914 SIBSHOPS Contact: Patricia Kreyssler, 626.447.3452 For siblings ages 6 to 12 GRUPO DE APOYO PARA FAMILIAS Los Angeles and Pasadena areas BEHAVIOR MANAGEMENT DE INTERVENCION TEMPRANA Monthly – Third Friday, 4 p.m. to 6 p.m. SUPPORT NETWORK Lanterman Regional Center Contact: Olivia Hinojosa, 213.383.1300 x705 (Facilitated by a behavior therapist) Seguendo miercoles de cada mes, 9:30 a.m. to 11:30 a.m. AbilityFirst Contact: Augustina Mellin, 213.365.2138 TEATRO ILUSIÓN 40 North Altadena Drive; Pasadena Monica Mauriz, 213.383.1300 x698 (Grupo semanal en Español) Monthly – Second Tuesday, 7 p.m. to 9 p.m. Edward Perez, 213.383.1300 x674 Shriner’s Hospital Contact: Olivia Hinojosa, 213.383.1300 x705 3160 Geneva Street (Virgil and Third); Los Angeles GRUPO PARA FAMILIAS CON Cada viernes, 6 p.m. to 8 p.m. daDA FATHERS REGIONAL NIÑOS CON PRADER-WILLI Contact: Yolanda Hernandez, 562.928.5324 SUPPORT NETWORK Shriner’s Hospital Denny’s Restaurant 3160 Geneva Street (Virgil and Third); Los Angeles 3060 San Fernando Road; Los Angeles Llama para fecha y mas información Monthly – Second Monday, 7 p.m. to 9 p.m. Contact: Angeles y Jesus Lopez, 323.644.3319 NEW GROUPS Contact: Aaron Hinojosa, 626.296.1556 Germán Barrero, 626.840.9842 INCLUSION IN REGULAR TOUCHPOINTS NEW PATHS CLASSES SUPPORT NETWORK SUPPORT GROUP DE MI FAMILIA A SU FAMILIA Dates, locations and times vary each month. These support groups offer parents an opportunity to meet (Grupo para familias con niños con autismo.) Call for next meeting. in a small group facilitated by a counseling professional Lanterman Regional Center Contact: Sam Suzuki, 213.383.1300 x509 specifically trained in the areas of grief and disabilities. Primer miercoles de cada mes Topics discussed include the role of grief in your life, missed 9:30 a.m. to 11:30 a.m. JAPANESE-SPEAKING PARENTS milestones, the impact on family rituals, redefining perfection Contact: Romi Castillo, 323.463.3678 ASSOCIATION OF CHILDREN WITH and other topics to help families deal constructively with CHALLENGES normal feelings of stress and grief. DOWN SYNDROME PARENT Little Tokyo Service Center For more information and dates call Tina Chinakarn at RESOURCE NETWORK 231 East Third Street, Suite G-104; Los Angeles 213.383.1300 x715 Church of the Brethren Monthly – Third Saturday, 9:30 a.m. 1041 North Altadena Drive; Pasadena Contact: Mariko Magami, 818.249.1726 PASADENA UNIFIED SCHOOL DISTRICT – Monthly – Second Thursday, 7 p.m. to 9 p.m. Michiko Wilkins, 818.557.0728 OFFICE OF SPECIAL EDUCATION FAMILY Contact: Rhonda Tritch, 323.255.0037 SUPPORT NETWORK Olivia Hinojosa, 213.383.1300 x705 KOREAN PARENT SUPPORT GROUP For families with children birth to 6 Asian Advocate for Special People Webster Elementary School FAMILIES AND FRIENDS Lanterman Regional Center 2101 East Washington Boulevard; Pasadena OF PERSONS WITH DISABILITIES Monthly – Second Wednesday, 6:30 p.m. to 8:30 p.m. Monthly – Second Thursday, 6 p.m. to 8 p.m. St. Dominic’s Community Center Contact: Bong-Sok Sung, 213.381.5107 Contact: Bailey Jackson, 626.398.8333 2002 Merton Avenue; Eagle Rock Suki Chang, 213.392.5070 Monthly – First Friday, 7:30 p.m. Christine Yuh, 213.383.1300 x503 Contact: Emma Guanlao, 323.259.8332 Sandy Riancho, 323.344.9355 LA ESPERANZA Lanterman (Grupo semanal en Español) Self-Advocacy Groups FOOTHILL AUTISM ALLIANCE — Lanterman Regional Center NETWORK RESOURCE MEETINGS Lunes, 9 a.m. MID-WILSHIRE Pasadena Child Development Associates Contact: Maria Cibrian, 323.666.1601 SELF-ADVOCACY GROUP 620 North Lake Avenue; Pasadena Sonia Garibay, 213.383.1300 x593 Lanterman Regional Center Monthly – Second Wednesday, 7 p.m. to 9:30 p.m. Gayane San Vicente, 213.383.1300 x594 Monthly – First Monday, 4 p.m. to 6 p.m. Contact: Sue Brooks, 818.66.AUTISM (818.662.8847) Contact: Armen Frundzhyan, 323.462.7300 or [email protected] THE ACHIEVERS 1200 East Colorado Street; Glendale TrainingTraining andand DevelopmentDevelopment Opportunities Monthly – Third Monday, 5 p.m. to 6 p.m. Contact: Kevin Smith, 818.243.5485 or For Service Providers [email protected] The following are training opportunities that focus on developmental disabilities and related topics and are conducted or sponsored by Lanterman Regional Center for service providers in the Lanterman community. WOMEN’S ADVOCACY GROUP (WAG) Lanterman Regional Center FIRE AND EMERGENCY EVACUATION DENTAL CARE - BEHAVIORAL ASPECTS Monthly – Third Tuesday, 1 p.m. to 2 p.m. This training is designed to prepare day and residential AND INTERVENTION Contact: Mary Flynn, 213.383.1300 x759 or programs in how to assist their clients in case of a fire or This training will explore the behavioral aspects that [email protected] emergency. promote good dental care. September 14, 2004 November 9, 2004 The address for Lanterman Regional Center is: 10 a.m. to noon 10 a.m. to noon Lanterman Regional Center 3303 Wilshire Boulevard, Suite 700; Lanterman Regional Center Los Angeles, CA 90010 Presenter: Los Angeles Fire Department Presenters: Dr. John Lee and Leticia Reyes, R.D.H. 213.383.1300, x720 213.383.1300, x720 Cost: $5 pre-registration, $10 at door Cost: $5 pre-registration, $10 at door Parking not validated Parking not validated If you are interested in starting SPECIAL INCIDENT REPORTS AGING AND DEVELOPMENTAL a support group, but don’t This training will provide information on meeting the DISABILITIES requirements of the Special Incident Report. This training will explore the effects of aging on issue such as living arrangements, social recreation, daily activities and know how to take the first step, October 12, 2004 health. 10 a.m. to noon December 14, 2004 call The Koch Young Resource Lanterman Regional Center 10 a.m. to noon Presenter: Jeannette Orlando, Community Services Lanterman Regional Center Center for information at 213.383.1300, x720 Presenter: Western University Cost: $5 pre-registration, $10 at door 213.383.1300, x720 Parking not validated Cost: $5 pre-registration, $10 at door 800.546.3676 Parking not validated 20 Pack a Picnic, Dine Under the Stars and Watch “To Kill a Mockingbird”

ollywood Forever Cemetery is hosting a screening of “To Kill a Mockingbird” * on HSaturday, September 25. Proceeds will benefit Perspectives International Film Festival. The film will be screened against a white marble building located on the grounds of Hollywood Forever. Moviegoers are invited to pack a picnic dinner, and to bring blankets and beach chairs for seating. The screening will start at dusk, somewhere between 7 p.m. and 7:30 p.m. Arrive early to make sure you get good seating. Tickets are $10 per person and are available on a first come basis. Seating is limited to 2,000 people, and movie screenings generally attract a large number of people. Hollywood Forever Cemetery movie screenings have been listed in both AAA’s magazine, Westways, and in Sunset magazine as a summer evening destination. The cemetery is located at 6000 Santa Monica Boulevard; Los Angeles, CA 90038, near the Paramount Studios. Hollywood Forever Cemetery was founded in 1899 and is the resting place of Hollywood legends such as Rudolph Valentino, Douglas Fairbanks, Cecil B. Demille and hundreds more. The grassy area where moviegoers have their picnics, and set For more information on Hollywood Forever up their blankets and chairs to watch the movies, is located visit www.forevernetwork.com. behind and just to the right of the pond. For additional information about the screening visit the Perspectives Web site at www.perspectives- iff.org or contact Marielle Farnan at 213.383.1300 x647 or [email protected].

*Movie subject to change. Check Perspectives Web site

to confirm.

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Hollywood Forever Film Screening ...... 20 Screening Film Forever Hollywood . 213.383.1300 x753 213.383.1300

Someone Cares ...... 19 Cares Someone or call or to e-mail an send [email protected]

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Stop Bullying Now...... 17 Bullying Stop

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Patricia Herrera, Gary Pancer, Joe Perales, Steve Rosenthal, Steve Perales, Joe Pancer, Gary Herrera, Patricia ahrsCre:SeeHri ...... 16 Harris Steve Corner: Father’s

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...... 14 Sharing for are Holidays

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2004 Staff and Sponsors ...... 13 Sponsors and Staff 2004 Perspectives Brigitte Sroujieh, Denise Stump, Martin Sweeney, Katherine Sweeney, Martin Stump, Denise Sroujieh, Brigitte

Changing Perceptions Workshop ...... 13 Workshop Perceptions Changing Rosenthal, Helane Schultz, Mercede Shamlo, Sharon Shueman, Sharon Shamlo, Mercede Schultz, Helane Rosenthal,

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Diana Janas, Ronna Kajikawa, Frank Lara, Lisa Levin, Gary Levin, Lisa Lara, Frank Kajikawa, Ronna Janas, Diana 2004 Media Award ...... 12 Award Media 2004 Perspectives

Hazama, Patricia Herrera, Olivia Hinojosa, Karen Ingram, Karen Hinojosa, Olivia Herrera, Patricia Hazama,

2004 ...... 10 – 12 – ...... 10 2004 Perspectives Rewind:

Sarkis Ghazarian, Cindy Pollie Hanks, Steve Harris, Kerri Harris, Steve Hanks, Pollie Cindy Ghazarian, Sarkis

Lanterman Leadership Institute...... 9 Leadership Lanterman

Crippin, George Davis, Harriet Dickens, Marielle Farnan, Farnan, Marielle Dickens, Harriet Davis, George Crippin,

oeaeRgsr ...... 8 Registry Homecare

Bradford, Joaquin Castillo, Romy Castillo, Douglas “Troy” Douglas Castillo, Romy Castillo, Joaquin Bradford,

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Jackie Ashman, Ralph Bingener, David Binkier, Arthur Binkier, David Bingener, Ralph Ashman, Jackie

or ebrPoie ayPne ...... 8 Pancer Gary Profile: Member Board Ken Abbott, Diane Anand, Vinita Anand, Patrick Aulicino, Patrick Anand, Vinita Anand, Diane Abbott, Ken

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The Quarterly Budget Update...... 3 Budget Quarterly The benefit of all members of the Lanterman community. community. Lanterman the of members all of benefit

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