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Spring 2005 Ⅲ Volume 5 Ⅲ Issue 1 $4.50 Tom Cochrane Singer signs up for SuperWalk PLUS MeetMeet MaureenMaureen MatthewMatthew Parkinson Society HelpingHelping peoplepeople Canada turns 40! helphelp themselvesthemselves Ease the Burden; Find a Cure Sales Product Agreement No. 40624078. Photo: Mark Pineo Join in the fun! Be part of SuperWalk for Parkinson's this September 2005! Collect pledges and walk with your friends and family! You can plan now to be involved.... Join the ranks of the SuperSTARWalkers: Raise over $1,000 and the fun gets better! Receive a SuperSTARWalker hat and a pin for each year you reach this level plus enjoy the special incen- tives and draw prize just for these walkers. Bring along a team: Invite your friends and family to join you for the day! Sharing the day will make it more fun so check out the extra incentives for groups of 4 to 10 walkers. Enjoy the prizes: In addition to local prizes, for every $100 raised, each walker gets one chance to win some great national prizes! Volunteer to work on a committee: Call the For details about a walk regional office closest to you (see pages 5 & 6 for the number) and become part of the success near you and prize updates in your region! visit www.superwalk.com. Register on-line: Visit www.superwalk.com and find out how easy it is to join a walk and ask your Come and be part of friends for their support while providing them with the fun this September! immediate receipts. Our symbol of hope It has been a long winter for Canadians so the blooms of spring are a Editorial most welcoming site. The warmer weather makes me think of Parkinson’s Advisory disease awareness month and of tulips, the Parkinson’s national and Committee international symbol of hope, and how they first came to Canada. Tulips have special meaning for all Canadians. During World War II, Bonnie Clay Riley the Dutch royal family was hosted at Government House in Ottawa and Person with Parkinson’s B.C. Princess Margriet was born at the Ottawa Civic Hospital. Princess Juliana, her mother, presented Ottawa with 100,000 tulip Diane Van Erum bulbs as a gift in appreciation of the safe haven which Holland’s exiled Director Communications royal family received during the Second World War and in recognition of Parkinson Society the role which Canadian troops played in liberating the Netherlands. Quebec Canadians still have a sentimental spot for tulips and what they represent Rebecca Gruber in our history. Physiotherapist So how did the tulip become the symbol of Parkinson Society Canada Ontario (PSC)? The history of the James Parkinson’s tulip also has its beginnings in the Netherlands. The Parkinson tulip began in 1980 when J.W.S. Van der Jan Hansen Director of Support Services Wereld, a Dutch horticulturalist who had Parkinson’s disease, gave the The Parkinson’s Society name “Dr. James Parkinson” to the red and white tulip he had developed. of Southern Alberta In 1981, he registered his prize cultivar, the “Dr James Parkinson” bulb. The name was chosen to honor Dr. James Parkinson, the English doctor Shirin Hirji who first described Parkinson’s disease in his 1817 “Essay On The Person with Parkinson’s Quebec Shaking Palsy” and to honour the International Year of the Disabled. This year, PSC celebrates our 40th anniversary, and our recent event Beth Holloway on Parliament Hill in our nation’s capital to mark April as Parkinson’s Person with Parkinson’s disease awareness month and to commemorate our anniversary was Newfoundland and Labrador again another magical thread that ties Dr. Mandar Jog PSC to the hope that tulips represent. Neurologist As I was awed by the site of all the Ontario tulips in bloom in Ottawa, I thought of how we at PSC are all truly Peggy Yates connected by tulips, our mission National Director Communications and Marketing and vision, and the hope that spring PSC National always brings. Dr. John Wherrett Neurologist Ontario ON OUR COVER: Peggy Yates, CFRE In an exclusive interview with Parkinson Post, Tom Cochrane, National Director, Honourary Chair of SuperWalk, Communications and Marketing, chats about his father’s life with Parkinson’s and his commitment to Parkinson Society Canada the fight against the disease. Toronto, ON Photo: Terry Lowe, Terrier Productions Lowe, Terrier Photo: Terry Spring 2005 P arkinsonPost 3 ParkinsonPost A quarterly magazine for Canadians living with Parkinson’s Parkinson Post Vol. 5, Issue 1, Spring 2005 FEATURES Donald Calne Parkinson Society Canada 4211 Yonge Street, Suite 316, On the Lecture Toronto, ON M2P 2A9 Rewriting the book: Editor: Frontlines How Professor Hornykiewicz Peggy Yates Helping people help changed Parkinson’s care 12 Publisher: themselves: BCS Communications Ltd. On the job Volunteers How to contact Parkinson Post: with Maureen Our volunteers: Parkinson Post Matthew 8 The heart and soul of 4211 Yonge Street, Suite 316 Parkinson Society Canada 14 Toronto, ON M2P 2A9 Interview Phone: (416) 227-9700 Toll Free: (800) 565-3000 In memory Anniversary Fax: (416) 227-9600 of Tuck: Celebrating 40 years: E-mail: [email protected] Singer [email protected] Forty outstanding achievements Tom 17 Website: www.parkinson.ca Cochrane Parkinson Post (ISSN #1489-1964) is the official talks about First Person publication of Parkinson Society Canada, and is published his father Up-times and quarterly by BCS Communications Ltd., 101 Thorncliffe and the off-times: Park Drive, Toronto, ON M4H 1M2. Tel: (416) 421- fight for Living life 7944 Fax: (416) 421-0966. All rights reserved. a cure with Parkinson’s Contents may not be reproduced without permission 10 20 of Parkinson Society Canada. Printed in Canada. All material related to Parkinson’s disease contained in this magazine is solely for the information of the reader. It should not be used for treatment purposes. COLUMNS Specific articles reflect the opinion of the writer and are not necessarily the opinion of Parkinson Society Letter from Research Report Canada or the publisher. Canadian Publication Mail Sales Product Agreement No. 40624078. © 2005 Parkinson A look at current Parkinson’s Society Canada research around the world 18 Advertising Policy The acceptance of advertising in Parkinson Post is not an Our symbol of hope 3 • Parkinson’s and driving indication that Parkinson Society Canada or any of its divisions endorses any of the products or services listed. • Advances in genetics Regional Partners/Roundup For people living with Parkinson’s, it is recommended • Testing the placebo effect they consult their health professionals before using Highlights from PSC any therapy or medications. Parkinson Society Canada partners across Canada 5 • Focus on Jennifer Takahashi accepts no responsibility for any claims made in any advertisement in Parkinson Post. The Advocate Issues of Our mission interest to Ask the Expert Parkinson Society Canada/ people with Société Parkinson Canada Parkinson’s 7 Managing is the national voice of common Canadians living with sleep Parkinson’s. Our purpose Health Tip disorders 22 is to ease the burden Dietary vitamin E may and find a cure through cut risk of Parkinson’s 7 research, education, Resources advocacy and support A selection of services. Website Highlights the latest Your guide to what’s new educational on-line at www.parkinson.ca 15 resources 23 4 P arkinsonPost Spring 2005 National Office and Regional Partners For information, programs and services in your area, or to make a donation, contact the following offices: PSC National Office sclerosis for many years. PSSA with a gala performance of 4211 Yonge Street, Suite 316 Students from the local massage the play Mesa in mid-December. Toronto, ON M2P 2A9 therapy college continue to help Doug Curtis, who wrote Mesa, Ph: (416) 227-9700 over 50 clients who attend a has young-onset Parkinson’s. Toll Free: (800) 565-3000 weekly Parkinson’s-focused Dr. Anthony Lang, neurologist Fax: (416) 227-9600 therapeutic massage clinic. at Toronto Western Hospital, www.parkinson.ca Several PD discussion groups presented an “Update on are incorporating progressive Parkinson’s” for PSSA members Parkinson Society British Columbia muscle relaxation into their and guests on February 18. 890 West Pender Street, Suite 600 monthly sessions. Over 100 people attended. Vancouver, BC V6C 1J9 A neuro-knowledge management ᮣ Porridge for Parkinson’s was Ph: (604) 662-3240 project is being planned and will hosted in February by Beth Carter Toll Free (BC only): (800) 668-3330 involve clients participating in and Bob Baker. CBC’s “answer Fax: (604) 687-1327 web-based tracking of symptoms, lady,” Marg Meikle, was the www.parkinson.bc.ca treatment and outcomes. special guest. Porridge for Parkinson’s was successful. Revenue from the The Parkinson’s Society of Alberta Saskatchewan auction increased over last year. Edmonton General, Room 3Y18 Parkinson’s Disease Foundation Fifteen members of the Better 11111 Jasper Avenue 103 Hospital Drive, Box 102 Pharmacare Coalition, to which Edmonton, AB T5K 0L4 Saskatoon, SK S7N 0W8 PSBC belongs, met with the Ph: (780) 482-8993 Ph: (306) 966-1348 Provincial Liberal Health Caucus Toll Free: (888) 873-9801 Fax: (306) 966-8030 to discuss the newer drugs for Fax: (780) 482-8969 E-mail: [email protected] conditions such as asthma, www.parkinsonalberta.ca Regina Curling Classic was once diabetes, Parkinson’s, and so on, Ms. Julia Hawley was awarded again a huge success. that have not been approved for the Gilbert H. Krause Course Prize Movement disorder clinics are reimbursement by Pharmacare. in Neurology, an award named in held in Saskatoon and Regina. Two education meetings were honour of one of the founders of Annual Golf Classic is held: one for people living alone The Parkinson’s Society of scheduled for August.
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