Heartwww.heartofengland.nhs.uk & SoulSummer 2013 Herioc lung cancer nurse wins Roy Castle unsung hero award

Research study on ventilation and breathing at MIDRU

Solihull community breast feeding service wins Baby Friendly Award

Jamie Theakston Hearts early starts

Persistent New Governors Getting colds and pathology election arty coughs building feature p10 p4 p7 p12

Birmingham Heartlands - Solihull - Good Hope - Chest Clinic - Solihull Community Services trust news A few words Lung cancer nurses’ heroic from Trust chief executive, Dr efforts are recognised Mark Newbold

Welcome to the summer 2013 edition of our members’ and patients’ magazine. I would like to take this opportunity to encourage you to visit our recently launched new Trust website at www. heartofengland.nhs.uk. We also have a new blog: www.heartofenglandblog. co.uk. Please do let us know what you think. Your feedback on all aspects of our organisation and hospitals is very Heartlands lung cancer and support to lung cancer important to us – from details around the care you received, nurse specialist, Denise patients, their families and through to what you thought Silvey, received the carers in Birmingham, and of the food, car parking and Roy Castle Lung Cancer Denise has been involved the information booklets we Foundation Unsung from the start. provided. Hero award at a Fellow lung cancer nurse There are a variety of prestigious ceremony in specialist, Lynn Reaper, different ways to get in Liverpool in June. said: “The Roy Castle touch with us including on The nurse was nominated Foundation recognised our website, blog and via a for the national award by Denise’s many years raising friendly voice on the phone. colleagues and patients awareness of lung cancer Did you know you can also for her extraordinary both locally and nationally. follow the latest Trust news commitment to running a All of the clinical nurse on twitter? Find us patient support group for specialists are extremely @heartofengland. You can over 12 years. proud of her and want to also contact me personally on The group was set up in congratulate Denise on twitter @drmarknewbold 2000 to offer help, advice her achievements.”

2 www.heartofengland.nhs.uk trust news

Heart&Soul Summer 2013 3 Trust News

Persistent colds, coughs and chest infections - could an immune system disease be the cause?

4 www.heartofengland.nhs.uk Trust news More than 150 primary immunodeficiency (PI) diseases, when part of the immune system is either absent or not functioning properly have been identified by Patient case researchers, but about 30% of cases are estimated to remain undiagnosed. This is because PI often presents study itself in the form of ‘ordinary’ ear or chest infections, and the infection is treated while missing the Margaret Bennett underlying cause, allowing the illnesses to recur. In the Margaret was diagnosed long-term this then can leave that patient vulnerable with Common Variable to organ damage or physical disability. Immune Deficiency (CVID) in 2003. She was having regular throat and sinus infections but as a primary So what signs should I look for? school teacher put it down to being in contact with 1. Two or more new ear infections within a year ‘germ-ridden’ children. This 2. Two or more new sinus infections within a year, in the continued throughout her absence of allergy 20s, 30s and 40s. 3. One instance of pneumonia per year for more than a year At 51, Margaret had 4. Chronic diarrhoea with weight loss an ear, throat and chest 5. Recurrent viral infections (colds, herpes, warts) infection as well as 6. Recurrent need for antibiotics to clear infections conjunctivitis all at the 7. Recurrent, deep abscesses of the skin or internal organs same time and casually 8. Persistent thrush or infection on the skin or elsewhere said to the GP that she 9. Infection with normally harmless tuberculosis-like thought she had a rubbish bacteria immune system. Although 10. A family history of PI she worked at a school, her colleagues didn’t seem Ref: The Jeffrey Modell Foundation Medical Advisory Board to get the same number of infections. The GP took Consultation with a GP is strongly suggested if you suspect some blood tests and you have a PI. Diagnosis involves a simple set of tests and referred her to Heartlands with medical care, those diagnosed with a PI can live a full where she was diagnosed and independent life. and started treatment. Margaret said: “No-one noticed the trends with the long-term pattern of Heartlands centre is not immune to success prescribing, it’s a condition no-one seems to be aware The Immunodeficiency Centre based at Heartlands of. I’ve been so much received accreditation this summer from the UK Primary better overall since I was Immunodeficiency Network (UKPIN) for providing the diagnosed and started highest standards of patient care and management. It is having infusions to treat the the only one in the region and one of five in the country to condition. This is something have this accreditation. that has been going on for not years but decades.” To learn about primary immunodeficency see the Trust’s Immunology website at http://immunology.heartofengland. nhs.uk

Heart&Soul Summer 2013 5 trust news Meet the new Board members Lord Philip Hunt, Chairman of the patient safety and standards of care across all Trust said: “Our new non-executive our services. We are committed to being an directors bring with them a wealth open organisation which delivers the highest of experience and expertise standards of care possible and the four new which will prove invaluable as we appointments will ensure that this agenda re- continue to drive improvements in mains at the forefront of our decision-making.”

Four new non-executive directors are welcomed to the Trust’s Board this summer:

David Lock was called to the Alison Lord has been a non- Birmingham Bar in 1985 and executive director at Birmingham became a QC in 2011. He and Solihull Mental Health was elected as a Member of Foundation Trust since 2007 Parliament and appointed and has held a series of director to be a Minister at the Lord and chief executive roles since Chancellor’s Department from 1993. For the past year, Alison has worked 1999 to 2001. David was a member of the with NHS Wales, providing strategic advice to Department of Health Expert Panel advising restructuring under-performing health bodies. the Secretary of State on EU based patients coming to the UK for organ transplants. Patrick Cadigan started his career as a cardiologist at Jammi Rao has extensive Sandwell Hospital in 1981 and knowledge in the public became a tutor for the Royal health arena, having worked College of Physicians (RCP) at for Sandwell health authority, Sandwell in 1986. Patrick has chaired North Birmingham PCT and the the medical board for the National Patient Department of Health. Jammi is also Safety Association and sat on the advisory a medically qualified tribunal member for group for national specialised services. the Ministry of Justice.

The Good Hope For more information, Fete will be held on contact the fundraising Saturday 14 September. team on: 0121 424 3330.

6 www.heartofengland.nhs.uk trust news New laboratory medicine building opens its doors

With the multi-million pound now boasts new world class efficiency and speed in turning investment in laboratory pathology facilities benefitting around a multitude of test medicine services now thousands of patients every results. The team are also complete, the new building is year. now able to provide a more set to be officially opened this Key improvements accessible and flexible service July. The service, based near include service redesign for the Hospitals’ clinicians and to the Yardley Green Road and investment in new high GPs across the region. entrance to Heartlands Hospital tech equipment to increase

Heart&Soul Summer 2013 7 jamie theakston Jamie Theakston’s life you have a tendency to any differently.” clearly a glutton for be very selfish, you’re trying He’s a keen footballer, punishment - in the to carve a career out for and recently took up cycling week he wakes up yourself, you don’t really to keep fit, but he believes in the early hours have much time for anyone sleep is the most essential to present his radio else but yourself. element to maintaining breakfast show and “But that entirely changes health and wellbeing. at the weekends he’s when you marry and have “I don’t think we sleep indulgent about his kids, you’re, quite rightly, enough. We live in a young sons regularly second, third, fourth down world where people feel jumping on him at 6am on the pecking order.” compelled to be busy and for play time. The TV and radio achieving things, but I think “There’s no sleep for presenter’s career began if we all just slowed down the wicked,” he jokes, as thanks to a chance a bit and slept more, the he describes his happiness encounter. He’d dreamt as a world would be a better in a life that may be boy, growing up in Sussex, place,” he says. sleep-deprived but is of becoming an actor “I have to be really strict characterised by order and and performed with the about having early nights domestic contentment. in the week so that I’m It’s a far cry from the fresh and on top of my days when he found “If we all just game when I get to work, fame presenting TV music so Fridays are reserved for programmes, from Top Of slowed down going out.” The Pops to Live & Kicking, He’s promoting a new and dating a string of a bit and slept Sleep Art app, developed in glamorous girlfriends. conjunction with Ibis hotels, Nowadays, a bearded more, the world which visualises sleep in a Theakston, 41, can boast work of art. 20 years of prestigious would be a “The Sleep Art app allows presenting roles on his CV, you to capture all the but he describes his current better place” movement and sounds of a role - co-hosting Heart FM’s National Youth Theatre. night’s sleep and converts breakfast show - as his Later, however, he joined the data into a work of art,” “dream job”. Christie’s and trained as an he explains. “I love doing my auctioneer, but a meeting Although the app may breakfast show and can’t with the head of BBC make waking up in the imagine doing anything children’s television landed early hours of the morning else. him a job on pop show, The just that bit easier, a late “The upside of early O-Zone. lie-in remains elusive for starts - I leave the house Everything, he says, “has Theakston. at 4.30am - is that I have happened more by luck “Sidney and Kit always the rest of the day to be than design” but he looks climb on my face around at home, so I can be a back with no regrets. 6am at the weekends, so real hands-on dad,” says “Now, in my forties, lazing in bed is a thing of Theakston, who has two I have two wonderful the past, but I honestly boys, Sidney, four, and Kit, children and a wife, so I wouldn’t have it any other three, with his wife of five don’t think I would have way.” years, Sophie. written the script to my life “When you go through

8 www.heartofengland.nhs.uk jamie theakston

Jamie Theakston Radio and TV presenter Jamie Theakston found fame on iconic music shows such as . He tells Hannah Shaddock about being transformed by fatherhood and how being a celebrity has changed from his early years.

Heart&Soul Summer 2013 9 trust news Come blog Get arty with us!

The new Trust blog: www. heartofenglandblog. co.uk is now live and we want you to join us in the blogosphere by sending us your blogs. Blogging provides an informal way to communicate Volunteers are needed Angela Butts, said: ‘Bringing and engage with many to get involved in an art patients together in groups different readers, from staff project to benefit patients with a volunteer for an to patients, the public and on the elderly care wards at hour or so always makes beyond. We will be adding Solihull Hospital. for a stimulating, sociable regular health blogs to the Following the success of and friendly gathering. site, but we really want your the memory lane project at This leads to patients contributions. If you are Good Hope and Heartlands communicating with each working on an exciting new Hospital’s earlier this year, other, smiling and sharing technique at work, taking the arts department is memories of days gone by. a trip abroad to do some now calling for creative The benefit to patients’ charity work or volunteering volunteers to help bring wellbeing is significant and for a project aside to the day arts activities to elderly immeasurable.” job, why not have a go and care patients in Solihull. write us a blog about it? Volunteers encourage If you would like to become a volunteer and You can also see what patients to take part in the Trust’s chief executive is everything from simple get involved with the project, please contact saying on his blog at: www. water colour painting, marknewbold.com threading beads, and Sarah McGrory, arts compiling scrap books using manager, on 0121 424 0113. For more information, or if old pictures of adverts, Alternatively, you can email you have a blog you would film posters, actors and Sarah at sarah.mcgrory@ like to share, please contact musicians. heartofengland.nhs.uk for the communications team on Volunteer service adviser, more information. 0121 424 3337.

10 www.heartofengland.nhs.uk trust news New areas Research study a breathe of fresh air open Good Hope has opened a new acute assessment unit on ward 21 as well as developing a 30 bedded short stay area on ward 19. The new assessment area The Heartlands MIDRU secured £1.3 million worth will provide assessment, research team is leading of funding to complete the treatment and stabilisation of the way in developing more research in partnership with acutely medically ill patients effective ways for patients the University of Warwick and prior to their transfer onto on ventilation machines to the Intensive Care Foundation. the designated base ward or breathe by themselves. The results of this research discharge within a 12 hour Led by Professor Gavin will change or inform clinical period. The short stay ward Perkins, consultant in practice in the local area. will cater for those patients intensive care, the team has who require short term treatment and admission within a 48-72 hour period. Special memorial service helps relatives to remember Fete fun for the family

Locals enjoyed a day to remember at Solihull A memorial service hosted for and prayer and were offered Hospital’s annual summer the first time by the Trust gave the chance to place a card on a fete which was opened by the bereaved relatives and friends memory tree in recognition of Mayor of Solihull and featured of renal patients an opportunity the person they have lost. lots of great activities for to remember their loved ones. The service was well the whole family. Friends Held at the Renewal Centre received by the families and of Solihull Hospital raised a in Solihull, relatives attended friends that attended and will record £4,500. a service of reflective readings now become an annual event.

Heart&Soul Summer 2013 11 TRUST NEWS Governor elections The 2013 election process took place across the summer, with the close of poll on 9 August. The maximum term for less than previous years due year is the reconfiguration of governors has now been to a change in structure. The the constituencies to align to extended from six years to total number of governors has the local authority. Take a look nine, with the re-election reduced from 44 to 34. There at the map to see how the process remaining every three are now 22 public governors, new constituencies and classes years. A total of 22 public seven stakeholder governors cover our Trust: governors and five staff and five staff governors. governors will be appointed, The key area of change this

12 www.heartofengland.nhs.uk TRUST NEWS

Trust governors The council of governors

Public and staff governors Our members will have are elected by the members the opportunity to elect of the Trust. Each governor is representatives on to the responsible for representing council of governors. the interests and views of a Governors will be asked particular group of members. to serve on the council of Public governors will governors for three years in the represent local people in their first instance. constituencies. Staff governors The council of governors will will represent the views of work closely with the board of their colleagues in the hospital directors which is responsible where they work. for the management of the Governors act together Trust. as a council of governors to They will also: advise and challenge the Trust • Ensure the Trust operates Board. Governors also take within the terms of an interest in specific areas authorisation as a of performance, for example, foundation trust monitoring our patients’ • Represent the interests experience, quality and safety of members, the local and financial performance. community, local partner In addition to these specific organisations and staff duties, governors will be asked • Work with the board of to: directors on long term • Host meetings with planning and future service members to listen to their improvements views, concerns and ideas • Appoint the chairman, the • Participate in meetings and chief executive and the non- meet with the board of executive directors to the directors to make sure that board, along with having the Trust is aware of that the power to remove them information • Appoint auditors • Attend joint meetings with • Receive the annual report people working in the Trust and accounts • Discuss the Trust’s plans and • Be accountable to the public ideas for development and staff members of the • Plan how to engage and Trust involve members in our activities Members can stand for election • Consider becoming a as a governor and may be member of a Trust working elected by fellow members group looking at specific from their membership issues depending on their category to sit on a council of interests governors.

Heart&Soul Summer 2013 13 trust news Get walking Mum’s the word for charity! The fundraising team is pleased to announce the launch of this year’s Charity Sponsored Walk. Last year, around 100 doctors and nurses joined members of the public to raise money for a wide variety of areas. The walk will be held on Sunday 29 September.

Babies in Solihull are getting service herself. She said: “It the best start in life, and can be such a great experience it was made official when to breast feed your child. Just UNICEF accredited the Solihull having someone to talk to and community breast feeding knowing things are normal can service with the prestigious make a real difference.” Baby Friendly Award. The team Carmen Baskerville, Infant work with midwives, health feeding co-ordinator, said: visitors, nursery nurses, peer “Breastfeeding is perfect for Watch this space for more supporters and children centre giving babies a healthy start, information, and register your staff across the borough, to as breastfed babies are less interest at fundraising@ raise awareness of the benefits likely to suffer with diarrhoea heartofengland.nhs.uk of breast feeding and to ensure and vomiting, or chest or ear there is help and support infections. It can also have available for mums. a positive impact on future Why not get Gaining this accreditation health, for example, preventing involved UNICEF staff diabetes and obesity for baby interviewing pregnant women and breast and ovarian cancer in touch and new mothers to determine for mum. There are a number of different whether breast feeding best “It is a great pleasure ways to contact us such as: practice standards are being to accept the award from met. UNICEF in recognition of our Twitter: Mum of four and a half year gold standard breast feeding @heartofengland

old twins, Alanis and Dante, service.” The new Trust Blog: and 13 month old, Eden, Rachel www.heartofenglandblog. Pooler has taken on the role Anyone wanting help or co.uk of peer supporter to offer help advice from the breast feeding and advice to other local mums service can call: 07970 811026. Trust Website: after benefitting from the www.heartofengland.nhs.uk

14 www.heartofengland.nhs.uk TRUST NEWS Community Good Hope’s recovery television at home service project More than 300 patients have benefitted from the recovery at home service (R@H) at Good Hope since its launch last autumn. The service enables some patients to leave hospital as soon as they are clinically stable, which means they can complete the remainder of their acute care in the comfort on their own home, whilst still being offered 24 hour support.

How does R@H work? Work between Heart of Each patient using R@H remains under care of the hospital England NHS Foundation consultant whilst receiving care in their home environment. Trust, The Centre for Citizenship, Enterprise Am I eligible? and Governance (CCEG), There are specific inclusion and exclusion criteria for the different PrideStart and The Future types of patients eligible for the service. These have been developed by working closely with clinical teams which include Melting Pot has commenced consultants, nurses and therapists. If you are a patient in hospital, to provide a community ask your consultant about it. television facility in East Birmingham. Who can I call? It will be run in conjunction R@H offers a 24 hour care bureau facility for patients using with the local communities, the service, which means alongside any care package they are particularly young people, receiving, they can call a locally based clinical team member at delivering key health, safety any time for support and advice. and cohesion outcomes, initiatives, campaigns Are R@H staff fully qualified? and messages. This is Yes, all of the staff are fully qualified, experienced health an opportunity for local professionals including nurses, physiotherapists, healthcare support workers and occupational therapists. people, especially young people, to offer to assist Who do I contact if I wish to speak to someone about in the development of this R@H? exiting project. Health Please speak to your hospital consultant. is an important part of ensuring the well-being of people of all ages and is an important component in the regeneration of communities.

For more information please contact: Simon Jarvis on: 0121 424 1115 or email: simon.jarvis@ heartofengland.nhs.uk

Heart&Soul Summer 2013 15 If you would like any information in large Dates for print please call 0121 424 1218 your “My sincere thanks to all the staff on Ward 15, Solihull diary... Hospital. My husband was • Alpha Community Festival admitted for a full hip Cattell Road, Small Heath replacement and whilst there July 27 he had the upmost care • Healthy Eating Day and attention given to him Bordesley Gardeners without having to ask. Association August 31 He was treated with dignity and respect at all Trust Board meetings are You can contact Sandra White, times. There has been a lot of membership and community open to the public, so why bad publicity regarding care not come along to find out engagement manager, if in hospitals but I was left someone you know wants more at our next meeting on: with no worries of leaving to become a member, if your my husband in the care of the • 10 September, 9.30am contact details have changed nursing staff and doctors on MIDRU, Heartlands Hospital or if you no longer wish to be Ward 15.” • 5 November, 9.30am a member. St John’s Hotel, Warwick Rd T: 0121 424 1218 Solihull E: [email protected] Trust members and the public Please also note our address: Medic-Care are also invited to attend Stratford House health talks at the Trust: Heartlands Hospital Bordesley Green East Arthritis Birmingham Dr Arvind Sinha B9 5SS 18 July, 5pm – 7pm Editor: Nikki Boileau, communications Education Centre, Solihull Contributors: Surraya Richards, Louise Hospital Berktay and Charlotte Calder Design: Stuart Hudson Photography: Hannah Causer, Imke Daugs, Update from the Chief Adrian Wressell The Trust has teamed up with Executive & Chairman discounts company Medic-Care Dr Mark Newbold and Lord to offer discounts at a range Council of Philip Hunt of local businesses from cafes, 19 September, 5pm – 7pm Governors meeting pubs and restaurants to beauty Education Centre, Good Hope - members are salons and hairdressers to Hospital Heart of England staff and welcome to attend. members of the Trust. If you would like to attend a Discounts are available 15 July, 4pm seminar please contact Sandra through the Medic-Care gold White on 0121 424 1218. Partnership Learning Centre card which can be obtained Good Hope Hospital from the membership team.

16 www.heartofengland.nhs.uk