ONE TIME ONLY: FALL 2015/WINTER 2016 Stories, information and fact sheets for health and wellness

PLUS 12 PAGES OF RESOURCES— FROM BOOKS TO PEN PALS ALL FOR PEOPLE IN PRISON

“Unless you’re a self-advocate, you fall through the cracks.” p. 14, Feature story

Kerry Thomas, incarcerated in Idaho IIIIIIIIIIIfrom the Publisher IIIIIIIIIIIfrom the EDITORS

’ve been living with HIV since before the virus was discovered. Back then, Dear Reader, people were afraid to touch us, funeral homes wouldn’t accept the bodies of our dead, families wouldn’t let their children in the door, or served us A One-Time Only Publication TURN IT UP! is for people in prison, and many of the I for Incarcerated People food on disposable plates. The word “stigma” barely conveys how that felt. Single issue: Fall 2015/Winter 2016 people who created TURN IT UP! have served time Fighting for our lives, we demanded dignity. We organized for our behind the walls, fighting to stay healthy despite the right to participate in our own medical care and in the decisions and poli- Laura Whitehorn and Suzy Subways, Editors-in-Chief many obstacles prison presents. We have experienced cies that would profoundly affect our lives. In June 1983, a group of people Cindy Stine, Project Manager discrimination (from eye-rolling, to being denied hous- with AIDS wrote the Denver Principles: Andrea Piccolo, Art Director ing, jobs, and other basic human rights) because of our Susie Day, Copy Editor “We condemn attempts to label us as ‘victims,’ a term which implies Cover art by Corina Dross prison records, race, HIV status, sexuality or gender. defeat,” they wrote. “And we are only occasionally ‘patients,’ a term which None of these things affect our humanity, but they do Advisory Board: implies passivity, helplessness, and dependence upon the care of others. Tré Alexander, Philadelphia FIGHT at times affect how we are treated by people who might We are ‘People With AIDS’”—and, since the discovery of the virus, People Matthew Ebert themselves lack some humanity. (At right is a photo of Living with HIV (PLHIV). Akil Salter, Osborne Association Reed Vreeland, Housing Works some of us meeting to plan the magazine last Septem- We have had some tremendous successes, most notably the develop- Jennifer Morton, POZ ber. The list of articles we came up with at that meeting ment of effective treatments that make it possible to live a normal lifespan Naseem Bazargan & Elisabeth Long, would fill an encyclopedia, so we had to whittle it down Prison Health News (l to r) Cindy Stine, Reed Vreeland, Laura Whitehorn, Sean Strub, with HIV—assuming access to healthcare. But stigma persists, especially for to what you see in the magazine you are holding.) Tré Alexander, Akil Salter (Suzy Subways took the photo) incarcerated PLHIV and millions of other people behind bars. Published by Sero Project, Inc. Tami Haught TURN IT UP! is meant to help you protect your The Sero Project works to counter one extreme example of that preju- Kenneth Pinkela own health and welfare—whether that’s an idea about We hope you feel, through the words on these dice: criminal laws designed only for PLHIV. We connect with people incar- Cindy Stine how to eat or exercise, or a way to improve your medi- pages, our support, respect and friendship. Those things Sean Strub cerated under these misguided and dangerous laws, people like the man on Robert Suttle cal treatment. You will find basic information on HIV, helped some of us to feel powerful and dignified during the cover, Kerry Thomas. Their strength and example inspired us to publish hepatitis C and other health conditions, suggestions from our years in prison, even though prison seemed de- in association with Prison Health News TURN IT UP! to support incarcerated people who face the challenge of fight.org/programs-and-services/ other incarcerated people about things they do to stay signed to rob us of those feelings. The incarcerated and staying strong inside, whether they’re living with HIV or any other health prison-health-news strong inside, and addresses to write to for many kinds formerly incarcerated people, as well as some of our condition. Access to care is one way to stay strong; connection with others Thanks to these wonderful backers: of information and help. We know conditions and rules strongest allies, whose voices fill these pages inspire all and self-empowerment are two more. Broadway Cares/Equity Fights AIDS vary widely from one prison to another, and we tried to of us—on the outside as well as behind bars—to TURN H. van Ameringen Foundation Below you will find the Incarcerated People’s Health Bill of Rights, which Elton John AIDS Foundation provide the most universal information we could find. IT UP! together for our health and the health of our takes the Denver Principles’ legacy one step further. TURN IT UP! is our AND But some things may not apply in the system or facil- families and communities. Brent Adams William R. Martin response to this urgent call for dignity. Joan Lobis Brown Daniel L. Meyers ity you are in—especially in immigration detention or —Laura Whitehorn and Suzy Subways, —Sean Strub, Executive Director, Sero Project; founder, POZ magazine Diana Block Marion Minton jails—and we realize that can make things hard. Editors-in-Chief Margaret Cerullo Michael Mitchell Lincoln Cushing Prison Radio The Fortune Society Eve Rosahn INCARCERATED PEOPLE’S Jim Fouratt Susan Rosenberg Camilo Godoy Gilbey Strub IIIIIIIIIIICONTENTS FEATURES Irish Queers NYC Missi Strub TAKE CARE “I Was Able to Address Me, But How HEALTH BILL OF RIGHTS Naomi Jaffe Max Westerman Created by men behind the walls Rob Lake Dennison Williams Starting a Support Group 2 Do I Help Us?” 14 at Sing Sing and Green Haven prisons in New York. Joani Marinoff Barbara Zeller Compassionate Companions 2 1. Ensure the use of gloves by care providers, including when Special thanks to writers and supporters Chow Time 3 “We Don’t Have to Wait for Other People dispensing medication. behind bars, including: A Disease, Not a Crime 4 to Treat Us Better” 18 Anthony Tafoya Joshua Shuck Solitary Strategy 4 2. Prompt responses for medical emergencies. Blake McGrath Kenneth Key Brian Carmichael L. Shayne Tabor Breathe, Stretch, Stay Strong 5 RESOURCES 3. Staff to maintain confidentiality, limiting access to medical files and Corey Crawford Larry Van Schaick HIV Education 6 Resource Guide 21-29, 32 requiring officers to stand away from exam rooms. David Bailey Lisa Brelsford Gary Brooks Lisa Strawn Vitamins and Supplements 7 4. Clinicians to keep instruments sterile and inside packaging until in James Docker Mark Jarosik Bringing Down the Pressure 7 TAKE IT HOME 30-31 front of patient. Jason Thomas Michael Jeremy Gillis Monroe MacRae Marshall “Eddie” Conway and 5. Clinicians to notify patients of the medications being prescribed. Jesse Washington Natalie DeMola 8 Hepatitis C Basics Misty Rojo take advocacy John Cookman Robert Auker 6. Presence of emergency alarms in porter cells for quick responses to John Hernandez Steve Passamante 9 Hep C Treatments from prison to the street medical emergencies. David Lee Terrance White 10 HIV Basics; PEP and PrEP Jane Dorotik Tim Hinkhouse PLUS: 7. AED devices accessible in program areas and dormitory areas. John Orr Vinicio Jesus Garcia 11 Diabetes Basics Prep Time: “What I Did (or Wish I’d Done) Jonathan Vernier 11 HIV Crimes? Know the Facts We would add: to Prepare for Release” 12 Exercise: The Inside Track For single or bulk copies of the one-time 8. Consider people patients, not “offenders,” and treat us as you would publication, Turn It Up!: 12 Trans Health Basics HOW TO treat your patients in the free world. The Sero Project 13 The Power of Our Unity Get Your Meds 32 P.O. Box 1233; Milford, PA 18337 With thanks to Akil Salter of the Osborne Association. [email protected] 13 To Save a Life Acupressure Chart back cover

FALL 2015/WINTER 2016 TURN IT UP! | 1 IIIIIIIIIIITAKE CARE IIIIIIIIIIITAKE CARE Starting a Support Group Chow Time

andling health prob- the chapel. In three other iven the limitations of prison lems or other chal- prisons where I did time, diets—and how addictive Hlenges behind bars the psychology depart- Gjunk food is—it’s tough can feel lonely and con- ment and education staff (sometimes impossible) to fusing. And seeing other provided legitimacy. We eat healthfully. Still, these people’s needs go unmet presented our plan to those guidelines may help: can make you feel power- departments, and they ne- less. Support groups allow gotiated with the warden NUTRITIOUS CHOICES, you to figure out together so we could meet, educate how to deal with shared one another, and put on if available (mess hall, com- concerns. Here are some programs for the rest of missary, or food packages): things I learned during my the prison. (Can’t get per- Vegetables years in prison about how mission? You may need to • (especially to start a support group. wait for changes in admin- green leafies) and fresh fruits Garlic • You may want to skip seconds on 1) Find at least one istration, while supporting are rich in vitamins, minerals and • (best crushed) and onions deep-fried chicken or fish, French or two other people you each other and sharing fiber. Fresh fruit beats juice—it con- are anti-bacterial and anti-fungal. Curry powder fries, margarine, and potato or trust, and talk about your education one-on-one.) tains fiber without added sugar. • contains turmeric, Sweet potatoes corn chips—they contain harmful goals—what you’d like to 3) Be clear on what it • are highly nutri- which may help fight inflammation “trans” (or “hydrogenated”) fat. And do and what you can real- means to keep something tious. Unlike white potatoes, they (but should be avoided if you have processed meats (hot dogs, ham, istically accomplish, given confidential. If someone don’t spike blood sugar. gallbladder disease). Healthy fat sources: butter, olive Ginger bacon, sausages, deli meats) contain prison rules and limits. tells you something and • • (can be chopped and brewed oil, nuts, seeds unhealthful chemicals. 2) Find a good spon- says, “Keep this within this as tea) eases digestion; may ease joint Sardines and (less so) tuna sor, if needed. The joints I was in didn’t permit groups of group” or “Don’t tell anyone else,” follow that to the • are pain. Tea people to meet without staff approval. In one prison, the letter. It’s not easy, but it is necessary if you want people rich in omega-3 fatty acids (see • (unsweet- WORKS chaplain was a wonderful help, so our AIDS education to trust you—and your group to offer real support. “Vitamins and Supplements,” p. 7). ened) has anti- FOR “Try to get put on a special diet Eggs and support group (“the A-Team”) was sponsored by —Laura Whitehorn, formerly incarcerated • provide a perfect protein. inflammatory ME! such as gluten free, low cholesterol, • Whole wheat, brown rice, and compounds and diabetic, kosher/halal or lactose- oatmeal include nutrients, unlike releases caffeine intolerant, because the food is better cooked, COMPASSIONATE COMPANIONS white flour (often listed as “en- more gradually riched” or “wheat flour”). People than coffee (less a little more edible and has more nutrients.” hen I first came to the vide support for those experiencing with the chief medical officer, who who are overweight or have diabe- “jolt”). —Terrance White, CA California Institution for serious illness, grief, loss, or other would be making the final decision. tes need to minimize carbs (includ- • Plain water is WWomen (CIW), I saw el- catastrophic emotional events. We were very willing to help, and, ing fruit), which can balloon blood good for your derly women with terminal illness I am happy to say, the compassion- sugar levels. (Exercise can reduce liver, especially with lemon added. • Special mention: many Black and shipped off to die in the skilled ate release was approved. these levels). Asian people are lactose-intolerant, nursing facility in a prison 300 Compassionate Companions • Peanut butter is a good protein SOME FOODS TO LIMIT so must avoid all dairy products miles away. Most of these women can bring about culture change in a source; sugar-free brands are hard OR—IF POSSIBLE—AVOID: except yogurt. had been incarcerated for many system that is generally insensitive, to find but better than those that • Sugar adds calories and steals • Too much salt can worsen liver years, and the familiar surround- steeped in dominance and unaware contain sugar. nutrients. It hides in many products disease or high blood pressure. (If ings at CIW were now their home. of individual needs. I think this is as “corn syrup,” “maltodextrin” or you add other herbs and spices to To ship them off to die was so cruel. perhaps the most important aspect ingredients ending in “-ose” (like your food, you may miss salt less.) But creating a Compassionate A woman who had just re- of our program—the ability to sur- WORKS “fructose”). Worst is sugar-sweet- Companions program here seemed ceived a terminal diagnosis asked round all of us with greater un- “Even when ened soda (high intake has been Finally, food’s better digested to be a far-fetched, altruistic illu- for help in expediting her petition derstanding and empathy for each FOR linked to earlier death), but artificial if you eat slowly, chew well and ME! the veggies in the sion. The proposal fell on deaf ears. for compassionate release, which other. After all, this world belongs chow hall don’t look sweeteners should be limited as well. avoid stressful conversation. Soy products —Bob Lederer, Finally, a new warden indi- her oncologist had written, but not to all of us, and the future is not a appealing, I eat them. • can produce consti- cated sympathy. So, with a lot of in the correct format. She asked if place we are going to, it is a place pation or diarrhea. formerly incarcerated Otherwise I feel less healthy.” lobbying by incarcerated women, one of us might be allowed to ac- we are creating. our program was approved to pro- company her during a medical visit —Jane Dorotik, CA —David, NY images: (Group) Bokov NYC; (Hands) Can Stock Photo images: (Group) Bokov image: Can Stock Photo

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decided how to handle being HIV positive when I was When I returned, they didn’t say anything. But ven in the dismal real- Acupressure (self-massage). in county jail. I hung out with a few guys, and we that night was movie night, so we were all in the TV ity of prison—even in This Chinese practice is based Inever asked each other anything about our charges. room, where there is no guard. When my head was E solitary, as some have on study of body points where One day when I was hauled off to court, my supposed turned, they commenced to beating the brakes off me, learned the hard way—you can energy gets blocked, produc- using socks filled with 20-ounce bottles full of water do things to feel better. Some ing symptoms. Firmly pressing turned upside down so that the hard, rough edges are pretty easy; others take your middle finger on specific would hit me and do damage. more study or teaching. Here points for two minutes may I made up my mind then and there never to hide are some choices (and some relieve some aches and pains my status. places to write for instruction): and build energy. (See the chart When I got shipped to this prison, I immedi- on the back cover of Turn It Up!) ately let everyone know that I am living with HIV. It Deep breathing. A great makes some people uncomfortable, but it’s the start stress-reducer and energizer Exercise. Walking, running— of education. People act mean to those of us who you can do any time, for as anything that gets a rhythm go- are positive because they are uneducated about the long as you want. For each ing—can help improve physical virus, and they’re scared. I’m not saying this is the breath, let the lower belly get and mental health. way to go for everyone. But when guys say things large as you inhale deeply through Yoga. This ancient Indian practice behind my back or under their breath, I tell them, your nose, then exhale slowly doesn’t require pretzel-like poses, Laughter. Science confirms: a good “If you have questions about me or my case, ask me through your mouth. and it can be learned from a book, laugh stimulates the immune sys- anything. Maybe I can quiet some of your fears.” though more easily from an instruc- tem—and of course feels great, espe- That usually does the trick. Meditation. Not necessarily reli- tor. Kath Meadows, who teaches cially in dreary conditions. TV com- I choose to be an open book, so that no gious—just a special time of calm, yoga in a Maryland prison, writes, edies, joke books—whatever makes one—me or anyone—gets hurt. And this helps me focusing on your breath and letting “Buildup of stress can have bad you laugh—will be good medicine. educate people that HIV is a disease, not a crime. go of regular thoughts. It can help effects on our mental and physical —Bob Lederer, formerly incarcerated I wish you all well and hope you find a road improve attention, stress manage- health and immune system. Just a that works for you. My advice is to be your own ment and self-control skills. Twenty few minutes of yoga a day can help buddies went through my things and saw my paper- guide and not let the words or deeds of others set you minutes a day is ideal, but even 5 reduce suffering in the mind and WORKS “I used to run, work: I had been indicted for transmitting HIV to my off your course. You have the power. It is in you. minutes can help. the body.” FOR but the joint I’m common-law wife. —L. Shayne Tabor, IA ME! in only has cement exercise areas, and FOR INFO ON SOME OF THESE METHODS at my age (in my 80s), WORKS SOLITARY STRATEGY Meditation: Path of Freedom (ask for a free book on medi- the impact hurts. So I took FOR “I whip out tation), Prison Mindfulness Institute, 11 S. Angell St. #303, up yoga, and I highly recom- fter a year in prison, I was sent to a supermax (solitary and total ME! my HIV-101 Providence, RI 02906 mend it. The breathing is the lockdown). I struggled with loneliness and depression. and share my info, most important part, but don’t Determined to take action, I chose and women here learn Yoga: James Fox, Yoga: A Path for Healing and Recovery (a free 100-page underestimate the strain on A your body from the stretching to exercise my spirit, mind and body. I studied what’s the truth.” yoga and meditation manual especially for people in prison): Prison Yoga various spiritual, psychology and self-help —Lisa Brelsford, CT Project, P.O. Box 415, Bolinas CA 94924; 301-792-5352 and holding poses. You have to books and a book on chess that helped me go slow at the beginning, until improve my game and my strategic thinking. “I document all medical vis- Kath Meadows, A Woman’s Practice: Healing from the Heart (for women your body gets used to it.” I weight-lifted, using a pillowcase its on my calendar to keep with a history of trauma or addiction); free to incarcerated people: The —Vinicio Jesus Garcia, TX filled with 50 pounds of my legal papers. tabs on my health.” Give Back Yoga Foundation, 900 Baseline Road, Cottage 13B, Boulder, “Laughter is the best medicine, (I tried to use bottles of water, but the —John Hernandez, TX CO 80302 so I opened my mouth, smiled guards took those away from me; they Acupressure: Introduction to Acupressure (booklet; also covers qi gung), $8. big and pretended to laugh. couldn’t take my legal papers.) “In the hole, making a Acupressure Institute, 1533 Shattuck Ave, Berkeley, CA 94709; 510-845- Air flowed into my lungs, my I’m back in general population schedule and sticking to it allowed me some control 1059; acupressure.com stress went down as I went ‘Ha, now, and I’ve added more cardio and ha, ha!’ again and again. Every other exercise routines. But what’s stayed the same is my commitment over my days and moods.” Acupressure Points: Instructions for Use (also covers breathing, exercise, —Laura Whitehorn, time, my mind calmed.” to be not just active but proactive, to maintain my health—body, mind stretching), free; School of Chi Energy, P.O. Box 2115, Apex, NC 27502; formerly incarcerated —Michael Petrelis, and spirit. —Blake McGrath, NC 919-771-7800; chienergyheals.com formerly incarcerated images: (Portrait of a Man) Laura Whitehorn; (barbells, folders) Can Stock Photo of a Man) Laura Whitehorn; (barbells, images: (Portrait both images: Can Stock Photo

4 | TURN IT UP! FALL 2015/WINTER 2016 FALL 2015 /WINTER 2106 TURN IT UP! | 5 IIIIIIIIIIITAKE CARE IIIIIIIIIIITAKE CARE HIV Education Vitamins and Supplements HE LEARNED ABOUT HIV—AND TAUGHT HIS DOCTOR WORTH IT—IF YOU CAN GET THEM

it’s close to time for a refill, o one needs a reminder that • Vitamin B complex – contains all I remind the medical depart- prison diets aren’t the the B vitamins, which work to ment. If they don’t fill my Nmost nutritious. If the fight stress and build energy meds on time, I immediately prison you’re in allows you to and brain function. The Public file a medical grievance. The get supplements and vita- Health Service recommends prison will never admit they mins from commissary, an folic acid for women of child- were wrong, but in short time outside vendor or medical (if bearing age—before and dur- they will provide the meds, you have a health condition), ing pregnancy—to reduce risk which is all that really mat- here are some worth taking: of birth defects. ters. Same goes for all the • Vitamin C – helps fight vi- monitoring and blood tests • Multivitamin – contains the ruses. Best is ascorbic acid. I need. Every time there has necessary vitamins and minerals. • Vitamin D3 – Protects bone, been a delay or other prob- The American Medical Association muscle, and general health. Dairy lem, I’ve been able to resolve advises all adults: “take at least one products don’t contain enough D, it with a grievance—I’ve never multivitamin pill each day.” Some but D3 capsules can help. Exposing had to file a state or federal brands don’t provide high enough skin to sunlight (without sunscreen) claim. doses, so consider taking two daily experts suggest a no-iron version produces D, so try to get in the sun Because many HIV meds (no OD risk at that level). Excess if possible (unless the doctor says for an hour and a half to two hours can raise lipids (cholesterol iron can worsen liver problems, so you’re iron deficient). a week if you can. and triglycerides) and lower • Fish oil (contains omega-3 fatty levels of vitamin D, I also fol- WORKS acids) – good for heart health. If you low an exercise and nutrition “Because we had three hunger strikes in the past have a fish allergy or bleeding disor- “The Library” by Jacob Lawrence FOR regimen. Many state and federal ME! two years to protest our mistreatment and the lack der, check with a doctor. If you can had been locked up for about six stomach ulcers), and my T-cell prisons have kosher diets available, of attention to our medical needs, we gained a little get capsules, try for those marked years when I tested positive for count dropped to 400. I had seen and if you can get on a plan, it’s momentum and now we can receive vitamins in our yearly “EPA” or “DHA,” 1,000 mg daily. IHIV in 2005. My T-cell count (a studies saying it’s best to start HIV worth it for the more nutritious packages from home, and we can buy multivitamins, Tylenol, • Milk thistle (an herb) – doesn’t measure of the strength of the im- meds when your T cells hit 500 (the food you’ll get. You can also ask Ibuprofen, Halls and Tums in our monthly canteen.” cure or treat hepatitis C, but may ease mune system) was around 800. At recommendation now is to start medical for supplementary vitamins —Terrance White, CA symptoms. But be aware of side ef- that time, the recommended thresh- meds as soon as you test positive). I and other nutritional support they fects, which can include allergic reac- hold for starting HIV drugs was 300 took them to the prison doctor and might have in your joint. tions (for people allergic to ragweed) T cells, so I didn’t need to start meds. argued that I should start. He knew I am open with my HIV status and lowering blood sugar levels. I did need to educate myself, very little about HIV, but I was able with family and close friends, and BRINGING DOWN If you have a health condition though. I had my family send me to convince him to let me start with other HIV-positive people in or take any meds, make sure your the HIV treatment guidelines from medication. here. Beyond that, I always have THE PRESSURE doctor knows you are taking any of the Department of Health and Hu- But the med regimen he chose to think, “What will this disclosure had a big scare when the prison these—they could interact. man Services (HHS) and a treatment was not listed among the top choic- bring me? Benefit? Or harm?” This doctor said my blood pressure —Bob Lederer, handbook from Johns Hopkins es by the HHS guidelines—and it has is not about shame or fear, but Iwas really high. I didn’t want to formerly incarcerated Medical School. I read and re-read some pretty bad side effects. So I about being practical. take medication, so the doc told me them both, then went to the prison brought him the guidelines and the —Michael, KY to cut back on caffeine and spices WORKS “Especially for library and checked the PDR (Phy- side-effect information and asked and lose some weight. to light weight lifting, yoga, and the FOR older people, take sician’s Desk Reference) for side for one of the top choices instead. I had been working out with treadmill and elliptical machine. ME! a multivitamin if you effects of all the HIV medications. The doctor agreed—and he let me WORKS weights but I was carrying too It worked: My blood pressure “I stay away can get them. I did Whenever I saw a magazine or pick my own regimen! FOR much myself—202 pounds on a 5’3” and weight are down. It can be a from prison and noticed a significant newspaper article about HIV treat- Today I am on that same frame. I ditched the spices (except struggle in this environment, but ME! tattoos and pruno improvement in mental pro- ment studies, I saved it. regimen, with an undetectable vi- for garlic and oregano, so my food my job is to stay healthy and walk (prison wine).” cesses and muscle response.” I got sick in 2006 (H. Pylori, ral load and T cells around 1,400. —Jason Thomas, CA wouldn’t be too bland). I took a out of here when my time expires. a common infection that can cause I always take my meds. Whenever —Vinicio Jesus Garcia, TX image: The Jacob and Gwendolyn Lawrence Foundation/ Art Resources NY both images: Can Stock Photo break from power lifting and went —Steve Passamante, PA

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Hepatitis C Behind Bars TREATMENTS FOR Filing a HOW TO AVOID OR MANAGE HEP C HEPATITIS C Medical Grievance OLD SCHOOL: f you have HCV and haven’t been able to get he majority of people with hep- Interferon shots plus oral ribavirin, often for a full year. the new treatments, you have a good basis for a atitis C virus (HCV) are baby HCV IS SPREAD through blood- grievance. Because medical experts (the Ameri- boomers (born between 1945 NEW SCHOOL: I T to-blood contact, including: can Association for the and 1965). About a third of all incar- Harvoni, a combination of sofosbuvir and ledipasvir: Study of Liver Diseases cerated people have HCV. In prison • Sharing razors, toothbrush- This is the first FDA-approved, interferon-free treatment and the Infectious Dis- and out, the most common source es, nail or hair clippers or—riskiest for genotype 1, the most common strain of HCV (and for- eases Society of Amer- of infection is shooting drugs—even of all—needles and rigs. Even rinse merly the hardest to cure). Harvoni is just one pill a day ica) recommend that only once a long time ago. water and filters can spread HCV. for only 12 to 24 weeks, and 95% to 100% of patients in everyone with active Testing positive for HCV research studies were cured. hep C can benefit from doesn’t automatically mean you will • Tattooing: While free-world tat parlors are regulated, with ster- treatment with the new drugs, you can clearly claim get sick. Some people clear the virus Sovaldi (sofosbuvir) plus Olysio (simeprevir): With or ilizing equipment and disposable that denying the treatments is medical neglect. For with no treatment. For others, hep without ribavirin for 12 to 24 weeks, they have higher needles, those protections aren’t a strong case, you have to prove that the decision C becomes chronic, slowly causing cure rates (and fewer side effects) for HCV genotype 1 than available in most prisons. Bleach (if to deny the meds wasn’t medical—for instance, that progressive liver damage, including older treatments. People with easier-to-treat genotype 2 you can get it) doesn’t work. Reused it was based on the high cost of the treatment, a fibrosis and cirrhosis (mild and more Test, Treat, Manage Hep C can take Sovaldi and ribavirin alone for 12 weeks. financial decision. You can file a grievance saying serious scarring of the liver) and liver ink can spread HCV too. It’s important to be tested for something like, “Because there’s no medical reason cancer. It can take years before the hep C. The American Association for Viekira Pak (ombitasvir/paritaprevir/ritonavir; dasabuvir) HCV IS NOT SPREAD through for refusing the care, I request that this be remedied. virus produces symptoms of liver the Study of Liver Diseases recom- with ribavirin for 12 to 24 weeks: This med is for people casual contact (sharing food, dish- Failure to do so would be deliberate indifference to damage—symptoms like abdomi- mends testing incarcerated people, with HCV genotype 1. It doesn’t require interferon, and es, eating utensils, cups or glasses, a serious medical need.” nal pain, grey-colored stools, dark so you’re backed up by science the side effects are usually mild. hugging, sharing a cell). As with any medical grievance, you must urine, and jaundice, in which the skin when you ask for the hep C test. first put the request on paper and get a denial of and whites of the eyes turn yellowish. If you have hep C, the next WORKS the request on paper. And if you want your family step is more tests—to see whether FOR “I find it is essential to learn the specific or someone else outside to back you up with calls you need treatment. A “chem ME! federal and state legal rights for each or letters to the prison, remember to sign a form to HEPATITIS C CAN BE CURED screen” blood test and sometimes a correctional facility so I can show when they release medical information to them. here’s no vaccine for HCV, but new treatments now make it pos- liver biopsy monitor liver function. are being violated.” —Jesse Washington, CA sible to cure most cases. Older treatments cure about 50% to 75% of Learning as much as possible T people, using up to a full year of interferon-based treatment, with the about monitoring and treating hep severe side effects interferon injections can cause. The new oral treatments C empowers you to discuss your GETTING HEP C MEDS WHEN YOU NEED THEM work better and are a lot easier to take. Around 90% to 95% of people care with the doc. For info sources, ncarcerated people with chronic HCV should be hepatitis C treatment. (Prison Legal News carries up- who can get the new treatments can be cured, most in just 2 to 6 months. see Resources, page 22. treated, the latest American Association for the dates; see Resources, page 23.) Getting treated—when and with what—depends on a few things. Ways to protect your health: Study of Liver Diseases guidelines advise. People in The Federal Bureau of Prisons and most state These include the stage of liver damage, HCV genotype (most people Exercising, drinking more water and I prison have a human right to effective medical care. systems have HCV treatment guidelines that govern all in the U.S., especially African Americans, have genotype 1); whether eating less fat can help your liver Some studies show that using the new drugs is cost- decisions about care. The same is true for HIV and other you’ve already been treated but not cured; and other health conditions health. So can avoiding hootch, cig- effective for prisons, because they cure hep C and conditions. Ask the medical staff or your counselor for you may have. Having both HIV and HCV (called “coinfection”) doesn’t arettes and drugs, including other prevent more serious liver disease. your prison’s rules and the formulary (list of available exclude people from being treated, but it could mean using a different people’s meds. But partly because the new drugs are so costly, drugs) for treating hep C. An outside friend or family regimen to avoid drug interactions. If you also have HIV, be sure to many prison systems only use the new treatments for member can get them from your state department of The new HCV treatments can work whether or not you have been take your HIV meds to stay healthy people who can’t tolerate interferon and also have corrections (for federal prisons, the Bureau of Prisons). treated before, and even if you are already developing cirrhosis. Older and help you manage coinfections advanced liver damage. In most prison systems, you On the street, many insurance programs only treatments didn’t work well for some African Americans, but the new like hep C. must have at least a year left on your sentence to get cover people with significant liver scarring (stage 3 ones work the same regardless of race. With the new drugs, almost ev- Getting hep C treatment? Ask treatment. or stage 4 fibrosis). If you’re nearing release, ask a eryone with HCV genotypes 1 or 2 can now be cured without interferon, the medical staff for help managing So you may need to advocate for yourself to get case manager for information on patient assistance and researchers are working on better treatments for genotype 3. any side effects. Discuss possible the care you need (see “Filing a Medical Grievance,” programs and clinical trials that can cover costs. If For more information, see Resources, hepC/HIV, page 22. drug interactions, especially if you can get the newest HCV meds. above right). Incarcerated people in several states you are released (or transferred), try to take copies of have already filed class action lawsuits to get needed medical records to avoid repeating tests.

Thanks to Prison Health News, Liz Highleyman and Rich Feffer/hepeducation.org image: Can Stock Photo

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Adapted from Real Health magazine

iabetes results when the body RISK FACTORS doesn’t produce or can’t store FOR TYPE 2 Denough insulin—a hormone • Being obese or overweight made by the pancreas and used by cells • Not exercising to process glucose (a form of sugar) for • Age over 45 energy. Too much glucose builds up in • High blood pressure the blood, causing high blood sugar. • Insulin resistance • Numbness or tingling, par- Untreated, this can damage vessels that • Polycystic ovary syndrome ticularly in the hands and feet carry blood to vital organs, raising the • Having had diabetes during • Itchy skin; skin and yeast infections risk of stroke, heart and kidney disease, pregnancy (gestational diabetes) • Gum infections and gum disease; eye problems and nerve disorders. • Family members who have type 2 red, swollen gums that pull away from In TYPE 1 DIABETES, the body diabetes the teeth Adapted from POZ magazine HOW YOU CAN—AND CANNOT—CONTRACT HIV doesn’t produce any insulin. In TYPE Eating sugar doesn’t cause diabetes, • Sexual dysfunction in men but it can make you overweight or If you have one or more of these HIV is found in semen, vaginal fluids, blood and breast milk. It can enter the 2 DIABETES—the most common—the WHAT IT MEANS obese, which can lead to diabetes. symptoms, it’s time to see the doctor body through open cuts, sores or broken skin; through mucous membranes, body produces insulin but not enough and ask for diabetes testing. HIV (human immunodeficiency virus) like those inside the anus or vagina; or through direct injection. to function properly. GESTATIONAL is the virus that causes the disease DIABETES affects women during preg- SYMPTOMS • Frequent urination TREATMENTS AIDS, or acquired immunodeficiency You CAN get HIV by having anal or You CANNOT get HIV from kissing, nancy, usually around the 24th week. • Extreme thirst or hunger Treatments include maintaining a syndrome. Both terms share the word vaginal intercourse without a con- hand jobs, hugs or tears. immunodeficiency, a mouthful that • Unintended weight gain or loss healthy weight, exercising regularly, dom with a partner who is either HIV WORKS • Fatigue and feeling tired, listless monitoring your blood sugar, drink- means the immune system is too positive or doesn’t know their status. You CANNOT get HIV by sharing FOR “I choose food with and irritable ing plenty of water and eating in weak to work. This explains why food, utensils, cups or glasses with a ME! less sugar and fat, and • Blurry vision a healthful way (see “Chow Time,” having HIV infection threatens your Oral sex is lower risk, but HIV CAN positive person, or from a toilet seat eat fruit and vegetables.” • Cuts and bruises that don’t heal page 3). Doctors might prescribe in- health—it can weaken your body’s sometimes be spread this way. (even if it’s dirty). —Gary Brooks, PA own natural defense against sickness. quickly or properly sulin shots and oral medications. You CAN get HIV by sharing needles, You CANNOT get HIV by sharing a syringes or other injection equipment cell with a positive person. HIV CRIMES? example, might become felony as- offenders—even when there was little PEP and PrEP with someone who is positive or sault or assault with intent to kill. or no possibility of transmitting HIV. doesn’t know their status. You CANNOT get HIV from spit, KNOW THE FACTS • HIV does not have to be transmit- That brands them as evil and makes NEW HIV PREVENTION sweat or skin contact. ted for charges to be filed; in most it hard to find housing or a job. TOOLS ON THE STREET Babies born to HIV-positive women • “HIV criminalization” is the cases, no transmission occurs. Sci- CAN be infected before or during birth, WHY IT’S IMPORTANT wrongful use of HIV status in a entific facts—like how HIV is (and is HIV criminalization: Post-exposure prophylaxis/PEP or through breastfeeding after birth. TO GET TESTED criminal prosecution. For example, not) transmitted, that condoms and • discourages people from getting is a 28-day prescription that The longer HIV attacks the immune 32 states have special laws to pros- effective treatment prevent trans- tested for HIV, for fear of prosecution; can prevent HIV transmission ecute people with HIV who have mission or that saliva and tears do • fuels the idea that people with HIV IF YOU OR A FRIEND system, the more you risk developing if treatment begins within two serious infections and cancers. So it’s sex—even safe sex, even with a not transmit HIV—don’t affect the are inherently dangerous, a group or three days after exposure to TEST POSITIVE: important to get tested for HIV—and condom—if they can’t prove they outcome of the cases. that needs to be identified, moni- the virus. Healthcare workers told their sex partner in advance tored, controlled and incarcerated; Never forget: you CAN live start treatment with HIV meds if you often take PEP when they get test positive—as soon as possible. that they were living with HIV. In PREJUDICE AND BAD • undercuts the most basic public a needle stick; it also works if a long, healthy life with HIV. some states, exposing someone to HEALTH POLICY health messages on preventing HIV someone is sexually exposed. Learning about HIV and con- HIV? Or AIDS? “bodily fluids” like saliva or urine— People charged with HIV and sexually transmitted infections: necting with other people HIV and AIDS ARE NOT the same. which do not transmit HIV—can re- “crimes”—most often people of that each person is responsible for Pre-exposure prophylaxis/PrEP who have it are the best With today’s improved drugs, HIV sult in prosecution. Whether a state color, people who live in poverty, their sexual health decisions. is a prescription treatment, tak- defense against sickness. DOES NOT always lead to sickness has special HIV laws or not, people sex workers, and people who inject en daily, that protects people can be charged with more serious drugs—get smeared in the media, For more info and resources: Sero For more information, see and AIDS. For people who are HIV from getting HIV before they positive, the best way to avoid get- crimes just because they have HIV. often receive long prison sentences Project, P.O. Box 1233, Milford, PA are exposed to it. Resources, page 22. ting AIDS is to treat HIV. A misdemeanor assault charge, for and can be required to register as sex 18337; [email protected] image: Can Stock Photo image: Can Stock Photo

10 | TURN IT UP! FALL 2015/WINTER 2016 FALL 2015/WINTER 2016 TURN IT UP! | 11 IIIIIIIIIIITAKE CARE IIIIIIIIIIITAKE CARE The Power of Our Unity STICKING TOGETHER CREATED A DIFFERENT KIND OF FORCE have sarcoidosis, a rare hereditary The chow hall boycott was The Inside Track disease that damages my lungs. I one of the best periods I’ve spent Ishould be called down to medi- in prison, because the men started mid slamming doors and jangling keys, there is running satisfies my fervent passion to elude reality, if only cal at least four times a year for a to see the power of our unity. It no room for peaceful reflection. But then a voice temporarily. To reflect, to dream, to feel free. checkup, but that doesn’t happen. showed what could happen if we Afrom the guards’ control booth presents an av- As I circumvent the monotonous oval track, each Since being at Pennsylvania’s SCI used our heads and our unity as a enue to relief: Upper tier, Yard’s open! lap inflicts escalating discomfort, straining knee liga- Coal Township, I’ve kept my deal- weapon, rather than force. Methodically, two by two, we leave our cells and ments, provoking fatigue. But like runners before me, I ings with the infirmary to a mini- Our unity sent shock waves descend the stairs, corralled into the ground floor sally keep going and eventually reach a wondrously harmo- mum because I’ve heard so many through the Department of Correc- port and eventually thrust out into brilliant sunlight. nious place of physical, mental and emotional balance horrifying stories, including charg- tions—they did not believe it was Blinking, we emerge surrounded by concrete structures known as the runner’s zone. ing chronic care patients for routine David Lee possible. They were ready for force, designed to incarcerate. The track they enclose is less I have 45 laps in, with just one to go to complete visits, and the coldness of attitude. pated in a chow hall boycott in an not for our thinking outside the box. than ideal: jagged stone protruding from asphalt, broken a half-marathon. I unleash a parting burst of energy, a The staff have a tendency to forget attempt to get justice on many But we paid dearly, because many every few feet by cracks and crevices. By midsummer in final kick. The spurt propels me across the invisible fin- they’re dealing with human beings. fronts. There were 22 requests. One men were arbitrarily transferred in the desert Southwest, sweltering temperatures routinely ish line, a triumphal smile playing on my lips, clenched We as prisoners do not make was elimination of charging chronic retaliation. Prison activists don’t exceed the century mark. Today is no exception. fists flung skyward. enough money to afford the co-pay. care patients for routine visits to grow on trees, and we’re still trying I ignore the substandard surface and the blazing Panting, I conclude my half-marathon in time If you make $30 or $40 a month and medical. The substitution of the to recover from the loss of leader- heat. I will run. to hear the squawking announcement from the guard you go to sick call, you might end up word “request” for “demand” was ship. Nevertheless, we did gain For me, brisk runs exceeding thirty minutes stimu- tower: Yard recall! Yard recall! Take it home. If health paying $10 or more for treatment. So strategic and had everything to do tremendous support from activist late cognitive skills, concentration and sleep quality. They and peace are my home, that is where I have arrived. you learn to ignore medical issues that with us wishing to peacefully pro- organizations, and our voices were relieve stress and liberate anxieties. Even more important, —Mark A. Jarosik, CA are not emergencies. Thus, the co-pay test for our rights. Many men went heard outside. system is a dangerous deterrent. without food for days because they We’re still fighting for justice In the summer of 2014, over were fed up with being treated like on many fronts. TRANS HEALTH BASICS half the men in the prison partici- incorrigible animals. —David Lee, PA EVERYONE HAS THE RIGHT TO LIVE AS THE GENDER THEY FEEL THEY ARE many prisons don’t comply. This is Anyone, including trans men suicide attempts here. At times, tion for Women Prisoners worked Gender: Sense of being a dangerous, especially because it’s who’ve had breast-removal surgery, TO SAVE A LIFE the women don’t trust the staff to with me to get a pamphlet made woman, man or another gender important to continue hormones can get breast cancer and should confide in, and they ask their peers and distributed in prisons to help Transgender: Being a different once you’ve started. You may need discuss breast pain, lumps, or fam- for help. But when I suggested to incarcerated people know the signs gender from the one given at to attend sick call, file a grievance ily history of breast cancer with a staff that we should be trained in of suicide, how to get help and what birth and sue to get needed care. Asking doctor. Trans women over age 50 what to do if someone is talking to say and do in the moment. Sexual orientation: Attraction to see a transgender specialist may have a right to mammograms. If about suicide or if we see warn- Everyone deserves healing. to people of one’s own or dif- help. If you didn’t have an active, you have a cervix (the inch-wide ing signs, the administration said And a hero is in everyone, includ- ferent gender(s) legal prescription for hormones knobby bit between vagina and that only mental health staff can ing you. True heroes are not just on before prison, you may have to womb), you may need Pap smears respond and that there were only a TV—they are people like you and Care for transition: Hormones, and undergo psychological testing. to check for cervical cancer. few actual suicides—the rest were me who will go to any lengths to sometimes surgeries, may be pre- Checkups and examinations “only” attempts. use what they know and save a life. scribed to change physical appear- Regular checkups: The doc- are important. Medical staff must To me, an attempt will one —Natalie DeMola, CA ance. Changes to hair, grooming and tor should make sure your hormone provide sensitive, respectful care day be successful. There are not clothing can make our bodies feel dose is right and watch for side ef- that recognizes gender identity. It enough mental health staff to re- For a free copy of the suicide pre- more like home—even in prison. fects. For example, estrogen may may help to tell the doctor what ’ve been incarcerated since age spond right away, so we should be vention pamphlet, write to Califor- Several courts have ruled increase risk of blood clots and will make you feel comfortable. 16, serving life without parole. I able to go into action to possibly nia Coalition for Women Prisoners, that incarcerated trans people heart disease. If you have surgery, Sources: Prison Health News, Iwork as a peer health educator save a life. I wrote to organizations 1540 Market Street, Suite 490, San have a right to hormones (surger- you may need other hormones to Center of Excellence for Transgen- here at Central California Women’s that do suicide prevention for more Francisco, CA 94102 (write “Attn: ies are still being contested). Yet prevent bone loss and early aging. der Health, and TGI Justice Project Facility. There is a high rate of information, and California Coali- S.P. pamphlet” on the envelope) image: Can Stock Photo photo courtesy David Lee; image: (Hands) Laura Whitehorn

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Taking on this task pushed Thomas further—and tional Facility, she “I Was Able to Address Me, moved others as well. He connected first with POZ continued to edu- magazine, then with the Sero Project, to fight HIV cate herself. But How Do I Help Us?” criminalization. After he joined Sero’s board of direc- She was also tors, the prison administration saw the benefit of such forced to disclose nless you’re a self-advo- staff to reorder for them. If the refill involvement, and they were moved to give approval for her status to the cate, you fall through the Health Care doesn’t arrive, they must put in a Thomas to participate in Sero phone conferences. women around her. “Ucracks a lot,” says Kerry Advocacy sick call request. At sick call, gener- Thomas faces an uphill battle, though. The prison “I got sick,” Thomas. He found this out after he ally 48 hours later, they are given she says. “I entered the Idaho State Correctional and an appointment for a week later. At had to figure Center in 2009. The prison’s medical that appointment, Thomas explains, “I looked up names and addresses out how to staff told him they didn’t have his Empowerment the provider usually says, “Oh, we tell the other HIV drug regimen and weren’t sure didn’t order your medication” or, and sent letters trying to get women I had when it would be available. Behind Bars “Your prescription is expired. We’ll HIV.” When “I called my doctor in Boise,” By Victoria Law have to reorder it.” It takes another somebody to listen.” —Rusti Miller-Hill she did, the Thomas recalls. “My intent was to say, several days before the medication women be- ‘Hey, can you send some [meds] over until they catch arrives. The result can be a two-week lapse in medica- offers no peer support services, no group counseling to came her caretakers, up?’” Instead, the doctor called the prison to ask why tion—meaning someone living with HIV could become people living with HIV/AIDS, no classes on transmission cooking for her and Thomas was not getting his meds. Thirty minutes later, resistant to the HIV drugs. of sexually transmitted diseases (STDs) including HIV. nursing her back Thomas was summoned to the unit and, in his words, It’s stressful, too, Thomas says. “A lot of guys get At intake, men are given a flier and, in a group setting, to health. This was asked if they have questions. “If I’m 21 years old, even necessary. “Correc- if I know my status, I’m not going to feel comfortable tional officers raising my hand,” Thomas says. The prison states that weren’t willing to more information is available “upon request,” but many help,” Miller-Hill people don’t know what information to ask for. Thomas says. “I saw them is working with the administration to offer education carry women to and support, not only to people with HIV, but also to the the medical unit in general population. Such a program can make a huge wheelbarrows just difference, as Rusti Miller-Hill learned. so they didn’t have to touch them.” “I needed to live, She began and that was my way of fighting” writing letters. “I In 1991, while at Rikers Island, New York City’s was trying to draw jail complex, Rusti Miller-Hill began attending a support attention to what group for women living with HIV. During one meeting, was happening in Rusti Miller-Hill Kerry Thomas Iris de la Cruz visited and spoke with the women. “She Albion because the was a heroin user, she had cervical cancer and an AIDS majority of the women were Black and Brown like myself,” “somewhat reprimanded” for calling his doctor rather frustrated with the whole process and get to the point diagnosis,” Miller-Hill recalls. After Cruz shared her story, she says. “I wrote to everybody. Prisoners’ rights groups, than simply waiting. But the prison quickly got his pills. [of thinking], ‘What’s the point? Why am I even taking Miller-Hill asked her, “Why would you put yourself out TV stations, the commissioner. I went to the law library and Not getting necessary medications on time is com- these anyway? I’m tired of the hassle.’” there like that?” Remembering the conversation, Miller- looked up people’s names and addresses and sent letters mon in jails and prisons across the country. What makes So Thomas helps people navigate the procedures. Hill explains, “She was a heroin user and everyone knew trying to get somebody to listen.” his story unusual is that Thomas drew on that. She was a prostitute and everybody knew that. My Eventually, the Prisoners’ Rights Project of the his preexisting community ties and, as a fear was that everyone was going to talk about me. So Legal Aid Society responded, visiting the prison and in- result, got the meds. Others in the prison are “It’s going to take a lot of initiative. why would I do that?” But nearly 25 years later, she still terviewing her and other women. It filed a class-action less fortunate, Thomas says. remembers Cruz’s answer: “You gotta talk about it, you suit against the entire prison medical system for fail- Until 2014, men at the prison would But taking that initiative, that’s what gotta educate people, you have to fight for your rights.” ing to provide adequate care for people with HIV and receive 30 days of pills in a bottle with a “She lit the fire for me,” Miller-Hill says. She be- AIDS. The suit was settled favorably in 2007, years after reorder strip. Halfway through the 30 days, keeps me healthy.” —Kerry Thomas gan seeking information about HIV, no easy feat in a Miller-Hill was released. But reaching out for help—and they’d send medical the reorder form. But jail without a library. The support group facilitator was getting a response—galvanized her to do more. “That now the prison contracts with a private company for He helps them write health services request forms crucial. “She would bring us information, newspaper was the beginning for me. I had never done anything medical services, and medication arrives with the strip clearly and make sure the form lands in the right pile. articles, stuff like that. We would read and talk about like that before. I was not just fighting for my own

already removed, forcing people to rely on medical He’s also a one-man information and support service. photo: The Sero Project photo courtesy Rusti Miller-Hill them,” she says. Sentenced and sent to Albion Correc- rights. I was fighting for other women as well.”

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She enrolled in training to become a peer educator “My daughter was colicky,” she says. “I was very through Reach, an HIV/AIDS educational program of- tired and my daughter did not stop crying. One day, I fered to women at Albion through the Pathstone Corpo- put her in the crib. I lay on the bed, put the pillow over ration, an outside non-profit. Unlike people entering the me and was like, ‘I can’t take it no more.’ Next thing Idaho prison, women entering Albion were required to I know, I don’t hear my daughter because one of the attend Pathstone’s five-day course about HIV, hepatitis C nursery mothers had taken her out of the room so I and STDs. There was also a support group, where women could get some rest”—the first rest she’d had since giv- could ask questions and form a community. The program ing birth. Later, other mothers shared tips on soothing sponsored an annual World AIDS Day celebration, an her infant, like bringing her into the laundry room so the noise from the drier would calm her down. “It actually worked!” Caraballo says. Being among other new mothers helped “Becoming an advocate empowered her come to terms with motherhood—and the opportunities she’d missed with her older chil- me to take my life back.” —Rusti Miller-Hill dren. “Sometimes I would just sit in my room and cry,” she recalls. “Here I am with my baby and I wasn’t able to do this with my other kids.” AIDS walk and other activities to raise awareness in the But the other women, many of whom had had children prison. “Because of the education program, [the women] removed from their custody, understood and supported were open to hearing the information and rise to the her through those times, with hugs and a listening ear occasion,” Miller-Hill says. from mothers with a similar experience. Being inside a prison, the nursery program also “I was scared to be a mother” had its limitations, including rules against practices When Maria Caraballo gave birth in 2010, she did considered normal on the outside, such as sleeping with so while handcuffed to the hospital bed, despite New the baby on the bed. When her baby was ten months York State’s 2009 law that prohibits restraining women old, Maria fell asleep with her daughter beside her. She during labor, delivery and postpartum recovery. As was promptly expelled from the nursery. Although officers prepared to transport her from the prison to her daughter remained there while Caraballo made ar- the hospital, Caraballo reminded them it was against the law to shackle her. “You have no choice,” the officers told her. “If you refuse “Here I am with my baby and I wasn’t Maria Caraballo with her daughter we’re going to write you up.” The write-up would have removed her from the prison’s able to do this with my other kids.” medication the prison approves, what the contract says. For those currently imprisoned, Miller-Hill has nursery program—a program that would al- They’re not always willing to give you that information, several pieces of advice. “First, learn who you are. For low her and her baby to spend twelve months —Maria Caraballo so it’s going to take a lot of initiative. But what I learned many of us, that’s a secret. We don’t know what our together. To avoid jeopardizing that opportu- is, taking that initiative, that’s what keeps me healthy— likes or dislikes are. So find out who you are and what nity, she allowed officers to cuff her wrists and ankles. rangements for her care, she was only allowed to see taking control of my own life in an environment where your needs are, and begin to address those needs.” She Handcuffed to the bed during and after giving her when she had a visit from the outside. we have very little control.” He also stays in birth, she held her daughter with her free arm for less Now out of prison, Caraballo calls the nursery touch with the outside community, including than two minutes before medical staff whisked the new- crucial to her development as a parent. “I’m now able family, friends and advocates like people in “I had to learn to take the risk to say, born away to the hospital nursery. Caraballo remained to give my child all the love I have, because of the the Sero Project, which has been a lifeline to cuffed for the next eight hours. She was not allowed to nursery,” she says. “It has shown me how to be the information and feeling connected. ‘Do you want to talk?’” —Kerry Thomas see her baby until the following day. person I am today.” From there, he says, take the risk and Three days later, she and her daughter returned to reach out to other people who may be positive. Bedford Hills Correctional Facility, which houses New “Taking control of my own life” “I had to learn to take the risk to say, ‘Hello, my name is recognizes that advocacy is often born from the need York’s only prison nursery program—a program fought Kerry Thomas has never been in a prison with Kerry. Do you want to talk?’ That was not always an easy for self-preservation. From there, she says, it’s not a for and staffed by Bedford’s incarcerated women. a formal HIV/AIDS program. Recognizing that many thing. You don’t know what the response is going to be.” large jump to move from the individual to the com- “Giving birth is nothing new to me,” says Caraballo, prisons lack HIV/AIDS education or support programs, “Becoming an advocate empowered me to take munity. “It’s not just about me, it’s about us,” she says. who had had six children before prison. What was new, he advises people to read everything and learn as much my life back, to assume control in a role that I might Then she adds, “You begin to take on the bigger issue however, was parenting. “I was scared to be a mother.” But as possible. “Know who your medical provider is,” he not otherwise have taken,” says Rusti Miller-Hill, who of ‘us.’ How do I help us? I was able to address me, but the nursery provided a supportive atmosphere that helped says. “Know the policies, what treatment you have ac- returned home in 1994 and has worked as an advocate how do I help us?” „

quell her fears as well as her postpartum depression. cess to, who your doctor is, who your nurse is, what photo: James Trory and peer educator ever since.

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Similarly, when people The groups Strawn par- “We Don’t Have to Wait see a steady news stream of ticipates in give her a way Black men being arrested, they to reach others, too. She was for Other People to Treat Us Better” also start to think of Black named secretary of the largest men as a threat to society. But of all the prison’s groups, Al- Taking the Sting racial profiling, like HIV pro- coholics Anonymous, where filing, targets whole commu- she’s the only transgender Out of Stigma in Prison nities for arrest. Black Ameri- member. When she spoke in cans are much more likely to front of the 75 members about By Julie “JD” Davids U.S. People Living with HIV Stigma Index, has found be arrested for drug possession not judging others because that educating health care providers about how stigma or sales than white Americans, you don’t know what they’re iving with HIV in prison, Lisa Brelsford feels iso- affects PLHIV changed the providers’ behavior. even though, for example, the going through, she says, “The lated. “It can go to the extreme of they don’t want But one person’s efforts are often not enough to percentage of whites who have reaction was great.” L to be your roommate, sit next to you, be close to educate those in power. Education takes repetition over used cocaine is twice as high you, talk to you,” she says. “They don’t want accidental time and is more effective when it comes from several as that of people who identify Making things better spit to get on them or in the air.” sources. When Brelsford challenged her counselor’s in- as Black/African American, But we can’t end But Brelsford is not really alone: she’s targeted accurate, stigmatizing statement, the counselor simply according to a 2013 govern- prejudice without chang- by stigma. Stigma is prejudice—people make assump- walked away. “Other women came up to me, some ment survey. And white youth ing the systems that keep tions or judge you. Imprisonment hugged me and others talked to are more likely than Black it going. The Stigma Index can bring stigma. So can being me,” she remembers. Kindness and youth to sell drugs, according coordinator, Laurel Sprague, a person of color; poor or low- solidarity can help people find the to several studies reported in has lived with HIV for more income; lesbian, gay, bisexual or strength to fight for the truth an- the Washington Post. Lisa Strawn than 20 years. She’s part of transgender (LGBT); a drug user; other day. the Global Network of People or a sex worker; or living with Building power in numbers Living with HIV, which trains members to advocate for mental illness. And due to preju- Stigma comes from systems Connecting with others who face prejudice is social change. “We don’t have to wait for other people dice, people from these groups Part of the reason it’s hard to vital, whether through a support group, advocacy or to treat us better,” she says. “We can mobilize to make are more likely to be sentenced to fight stigma by yourself, without just making friends one-on-one. “Every day of life in things better for our own selves.” prison. others at your side, is that it’s so prison I have been stigmatized…for the fact that I am Brian Carmichael teaches HIV and hepatitis C So when Lisa Brelsford’s deeply rooted. Powerful social, transgender,” says Lisa Strawn, who is imprisoned in classes to all new arrivals at the upstate New York prison counselor told her, incorrectly, legal and cultural structures are California. She’s an active member of transgender and where he is serving time. Back when he was imprisoned that her spit could give someone built around prejudice. LGBT-friendly support groups that discuss medical, per- in California in the early 1990s, PLHIV there faced ter- HIV, it wasn’t the first time she’d For example, people are sonal, and staff issues and share pride in who they are. rible conditions—so they organized and told outside heard this myth. She was already sent to prison for allegedly not groups about the situation. AIDS activists from serving time in Connecticut for disclosing their HIV status to the area protested outside the prison, and the an assault count she says was Lisa Brelsford sex partners, or for spitting or “It’s like having a family of sisters incarcerated men won their demand: the first- up-charged due to the irrational biting—even if there was no risk ever AIDS hospice inside a prison. fear of her saliva. Lack of knowledge is one thing, but of transmission and no one contracted HIV. When the and brothers inside prison.” The protest also made a powerful anti- spreading misinformation when the facts are available public hears about these cases, they’re encouraged to stigma statement, leading others inside to view is prejudice. Hearing that again—this time from her think of people living with HIV as an inherent threat —Lisa Strawn PLHIV with more respect. “I remember during counselor—gave her a whole-body reaction: “I thought to society. PLHIV become defined by their virus, lead- the protests one time—when more than 100 the top of my head was going to explode,” she says. ing others to abuse or discriminate against them. More An incarcerated person and a prison staffer started demonstrators came to the front gates of the prison— “My heart was racing. I thought I was in the the LGBT-friendly group. Straight people can partici- going around and playfully talking shit to my friends Twilight Zone.” pate, as long as they’re respectful. Strawn connects with around the prison, the bikers or gangbangers who for Brelsford offered the counselor a copy of “I knew better, the LGBT community in nearby San Francisco for in- so long had made fun of our protests,” Carmichael says. an HIV magazine. “I knew better, and I was formation, support, and visiting speakers for the group. “I challenged them: ‘When was the last time all your going to prove it,” she says. Many people and I was going to prove it.” There’s also a regular routine. “We start by doing a homeboys protested outside the prison?’” with HIV behind bars say how helpful it’s check-in to see how everyone is. Sometimes the groups Formerly incarcerated people at the Center for been to distribute information and bring in —Lisa Brelsford are very emotional,” she says, adding that a lot of the NuLeadership on Urban Solutions challenge prejudice HIV educators—especially people living with members have no support from family on the outside. by changing how people use language. “Calling me HIV (PLHIV) who speak from firsthand experience—and than 30 states have passed special laws that apply only “It’s like having a family of sisters and brothers inside inmate, convict, prisoner, felon, or offender indicates expert groups like the Red Cross to teach the facts. Lau- to PLHIV. Other sexually transmitted infections can be prison.” The LGBT-friendly group has been so success- a lack of understanding of who I am, but more im-

rel Sprague, a woman with HIV who coordinates the fatal if untreated, but the laws are only for HIV. photo courtesy Brelsford family photo courtesy Lisa Strawn ful that a second one started up. portantly what I can be,” they wrote in 2007. “We are

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asking everyone to stop using the face of prejudice, and you ASTHMA these negative terms and to can do the same for them. simply refer to us as PEOPLE. While Maria “Cookie” Cruz RESOURCE GUIDE Asthma & Allergy Network PEOPLE currently or formerly Green was in prison in Penn- 8229 Boone Blvd., #260 incarcerated…but PEOPLE.” sylvania the first time, she was hese groups can provide health or legal info or connect you with college classes, Vienna, VA 22182 afraid to tell anyone she had T pen pals and people to help you fight for your rights. 800-878-4403 Looking inward HIV. The nurses “treated me allergyasthmanetwork.org When you write to a group, you can increase your chance of getting a helpful response Free: Understanding In the pressure cooker of like I was going to kill them.” by: 1) Stating clearly and briefly, in the first paragraph of your letter, exactly what Asthma pamphlet, Breathe prison life, confidentially can But she found her voice when you’re asking for; 2) Keeping your letter short and to the point, offering to send more Better fact sheets on be non-existent. Retribution, she served a second sentence. info if needed; 3) Asking if there is a specific person you should write or call; 4) Asking causes of bad air quality violence and sanctions from “I used to be around girls who if the group has a branch closer to you; and 5) Printing your name, ID number and and 1 copy of Allergy & staff or others inside are very would cry because the nurses address in the letter as well as on the envelope. Asthma Today magazine. real threats. Correctional staff used to make them feel bad,” can play off hostility between she says. “I used to let them Unless otherwise noted, none of these groups ARTHRITIS groups to control them. No know, ‘You don’t have to feel accept collect calls. Most are national, but some single strategy to fight preju- (l to r) Brian Carmichael with friend Patrick Ledger like that. Always walk with only answer mail from certain states. We included Arthritis Foundation websites in case someone outside can contact dice will be best for everyone. your head up, because, guess Attn: CIC them by computer on your behalf. If a listing says 1330 W. Peachtree St. NW, But addressing internalized stigma—the negative what: You are living with HIV, but you are the one con- something is free, it means free for people in prison. #100 messages we tell ourselves about ourselves—is critical. trolling it—that thing is not controlling you.’” When it says a resource can help “people,” it means Atlanta, GA 30309 “With internalized stigma, the best thing to do is to have people in prison. 404-872-7100 Breaking the ice arthritis.org Experiencing prejudice can be an educa- For more listings than we had room for, see Free publications, including “I challenged them: ‘When was the tion in compassion. When Hinkhouse felt what “Other Resource Lists” (page 29). If you have a (English and Spanish) it was like to be targeted by HIV stigma, he friend outside who can print from the Internet, see “Internet Only” (page 26). Coping With Arthritis, last time all your homeboys protested examined his own prejudices. He used to “judge We wish you all the best in your search for information, health and justice! Managing Your Pain, someone by the color of their skin based on —Resources compiled by Emily Abendroth and Noam Keim Exercise & Arthritis; and outside the prison?’” —Brian Carmichael what other people were telling me,” he says; (English only) Back Pain, now, “I’ve changed my perception a lot.” He HEALTH RESOURCES Prison Health News Drug Guide 2015 and Walking Guide. Limit 4 the courage to look at it,” Sprague says. “That’s what once was prejudiced against gay people, but now he You have a right to participate in decisions about your c/o Philadelphia FIGHT pamphlets per request. takes its power away. If we can’t be present or sit with stands up for them against homophobia. health care, and getting info from these groups can help. 1233 Locust St., 5th Fl. It’s important to keep your own records with dates and info Philadelphia, PA 19107 what it feels like to be afraid Living in a world so full from your doctor visits and tests. You may need to file a 215-525-0460 CANCER that we’re inferior, we can’t of prejudice, it can be hard to grievance to get medical care. If you have a loved one on the fight.org/programs- build bonds with other people feel compassion for ourselves outside, they can help by calling medical staff if you sign a and-services/ Cancer Support who are discriminated against. and for each other, coming to- release form allowing them to discuss your medical care. prison-health-news Community And if we don’t do that, then gether across our differences Free quarterly newsletter 1050 17th St. NW, #500 we can’t work together to to fight for justice. But people AIDS Library Protecting Your Health & on HIV & hepatitis Washington, DC 20036 make things different.” do find ways. “Anyone who Philadelphia FIGHT Safety: A Litigation Guide treatment, cancer 888-793-9355 cancersupportcommunity. For many people with has suffered discrimination 1233 Locust St., 2nd Fl. for Inmates screenings, nutrition, stress org HIV, connecting with other or stigma, whether from race, Philadelphia, PA 19107 $16; a 325-page manual relief exercises you can do 215-985-4851 on health & safety rights in your cell, mental health, Free fact sheets about most PLHIV to discover they were medical condition, sexual cancers (specify the type), not alone helped start this orientation, or being incar- aidslibrary.org & how to enforce them. getting better care for Write (better than calling) Published by the Southern yourself & others and more. treatments, side effects & internal process. It can be cerated, should be empathetic with questions on any Poverty Law Center. To Publishes articles by people supporting someone with painful—and extra challeng- and stand in solidarity with health condition, not just order, send payment to in prison. cancer. ing in prison. Tim Hinkhouse, everyone else suffering the HIV/AIDS. You can also Prison Legal News, P.O. Box Spanish version coming who is imprisoned in Oregon, same,” Carmichael says. ask for fact sheets, lists of 1151, Lake Worth, FL 33460 soon. CancerCare recommends finding a mental He takes a candid ap- groups with info on your 275 Seventh Ave. health caseworker (and an proach: “Usually, if I hear health condition or info on New York, NY 10001 HIV counselor, if you’re living something racist, or based on HIV issues like treatments, 800-813-HOPE (4673) cancercare.org with HIV). He says his ability Maria “Cookie” Cruz Green HIV stigma, it’s from some nutrition & history. They also offer info on re-entry Free fact sheets by type to ignore negative messages youngster. My typical retort of cancer. Lung and liver comes from years of therapy during his sentence. is to say ‘Shut up, punk. I’ve got viruses older than you!’ & discharge planning in PA only. Free. cancer fact sheets also Peers can help you discover your inner strength in It breaks the ice and lets me educate them.” „ photos: (Carmichael) (photo courtesy Brian Carmichael); (Cruz Green) photo Philadelphia FIGHT available in Mandarin.

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DIABETES LEGAL RESOURCES/PUBLICATIONS Jailhouse Lawyers’ Innocence Project Handbook 40 Worth St., #701 Mental Health American Diabetes Some of these groups work to change prison conditions c/o Center for New York, NY 10013 Association (like physical abuse or medical neglect), while others help National Alliance on Constitutional Rights 212-364-5340 Attn: Center for with post-conviction relief (fighting your case after you’re Mental Illness 666 Broadway, 7th Fl. innocenceproject.org Information convicted). Some groups offer info so you can represent 3803 N. Fairfax Dr., New York, NY 10012 No general legal advice 1701 North Beauregard St. yourself or file your own paperwork and grievances. A few #100 212-614-6464 or research. Accepts Alexandria, VA 22311 file class action lawsuits (one or more individuals sue on Arlington, VA 22203 ccrjustice.org only post-conviction 800-342-2383 behalf of a larger group of people, called “the class”). Class 800-950-6264 No legal help. Free cases where DNA testing diabetes.org action lawsuits require that the issues are faced by all nami.org Jailhouse Lawyer’s can conclusively prove Free fact sheets on members of the group forming the class, and that so many Free info packets: Handbook: How to Bring innocence. To have a diabetes management, New Mexico HIGH BLOOD people are affected that it’s difficult to bring them all Bipolar Disorder, a Federal Lawsuit to case considered, send a nutrition & meal planning, AIDS InfoNet PRESSURE/STROKE before the court. If a class action suit wins, it’s supposed Depression, Challenge Violations of brief factual summary & exercise, medications & P.O. Box 810 to help everyone affected, whether directly involved in the Schizophrenia, Your Rights in Prison. (Can list of the evidence used complications, and legal Arroyo Seco, NM 87514 American Heart suit or not. Borderline, & General rights to diabetes care in aidsinfonet.org Association also be downloaded free at against the defendant. Mental Health correctional facilities. Free, easy-to-read fact 7272 Greenville Ave. jailhouselaw.org.) Include defendant’s Concerns, plus fact sheets in English & 10 Dallas, TX 75231 National Lawyers Guild name & contact info; Prison Law Project sheets and brochures Prisoner Diabetes other languages on HIV 800-242-8721 Blackstone Career dates of the crime, arrest 132 Nassau St., #922 on specific mental Handbook prevention & treatment heart.org Institute & conviction; what New York, NY 10038 health conditions. Each c/o Prison Legal News (including alternative/ Will answer questions 1011 Brookside Rd., #300 defendant was convicted 212-679-5100 free mailing is limited P.O. Box 1151 complementary). Ask for by mail and send free P.O. Box 3717 of & where (city, county, nlg.org to 5 brochures & 10 Lake Worth, FL 33460 Fact Sheet 1000, which materials on high blood Allentown, PA 18106 state); the sentence; and No legal assistance. fact sheets per person. 37-page handbook by & lists all 802 fact sheets, so pressure, stroke & other 800-826-9228; the defendant’s claim to Jailhouse lawyers can join for people in prison. Single you can request the one heart problems. 610-871-0031 innocence. Don’t send free: you get the newsletter, Wings Beyond Walls copies free. you need. Free summaries blackstone.edu documents. Info also Guild Notes, the chance P.O. Box 7019 of HIV & hepatitis C Low-cost paralegal/legal available in Spanish. WOMEN’S HEALTH to vote on resolutions at Richmond, VA 23221 treatment guidelines, assistant course by mail. Note: Many states have HEPATITIS C the annual convention & The oldest school of its local innocence projects—a wingsbeyondwalls. which tell doctors what National Women’s AND HIV/AIDS Prison Legal News (PLN) responses to your letters. kind in the U.S. Many of few take non-DNA cases. wordpress.com care to provide in different Health Network P.O. Box 1151 its students are people in The only complete list is on Free program to Center for Health Justice medical situations. 1413 K St. NW, 4th Fl. Lake Worth, FL 33460 Center on Wrongful prison. Write for catalog the Internet; case managers connect incarcerated 900 Avila St., #301 Washington, DC 20005 561-360-2523 Convictions of current courses, degree & those outside can get it people who have Los Angeles, CA 90012 POZ Magazine 202-682-2646 mental health concerns prisonlegalnews.org Northwestern U. programs & fees. at innocencenetwork.com. 213-229-0985 462 Seventh Ave., nwhn.org to people outside, so Monthly 72-page magazine School of Law Prison Hotline: 213-229- 19th Fl. Free fact sheets on on prison rights, court 375 East Chicago Ave. they can correspond VISITING Equal Justice Initiative 0979 (collect) New York, NY 10018 fibroids, osteoporosis, rulings & criminal justice Chicago, IL 60611 & have a space to Prisoner Visitation 122 Commerce St. centerforhealthjustice.org 212-242-2163 mammograms, in state, federal & some 312-503-2391 discuss mental health and Support Montgomery, AL 36104 No legal help. Free HIV poz.com hysterectomy & other international arenas. law.northwestern. concerns without 1501 Cherry St. 334-269-1803 (accepts prevention & treatment A lifestyle, treatment & topics. Ask health questions Subs for people in prison edu/legalclinic/ judgment. A volunteer Philadelphia, PA 19102 collect calls) hotline; takes collect calls advocacy magazine for by mail or phone Mon.- are $30/year. PLN also wrongfulconvictions will read your first 215-241-7117 eji.org from prison Mon.-Fri. people living with/affected Thur. 9 a.m.-5 p.m. EST. distributes Handles claims of letter in order to Prisoners’ (accepts collect calls) Legal representation for 8 a.m.-3 p.m. (PT). People by HIV/AIDS. 8 issues/year, Self-Help Litigation innocence in DNA and find a good pen pal prisonervisitation.org indigent defendants & being released to Los with annual guide to HIV Living and a 960-page book non-DNA cases. If you match. All volunteers Manual, The only organization those denied fair treatment Angeles County can get drugs. Free to people living Wellness Project that explains the legal write asking for legal self-identify as having authorized by the Federal in the legal system (such referrals for health care & with HIV in prison. c/o Justice Now system (civil rights, tort, representation, they review mental health issues Bureau of Prisons & the as trials marked by blatant insurance. 1322 Webster St., #210 habeas corpus, workers’ your request, decide if and/or experience with Department of Defense racial bias or prosecutorial Positively Aware Oakland, CA 94612 compensation, etc.), suing they can represent you & institutionalization to visit anyone in federal misconduct). They mostly Hepatitis Education Attn: Distribution Manager jnow.org the right defendants, respond in a few months. (“self-identify” means & military prisons. Top help death-row prisoners Project 5050 N. Broadway St., Free 53-page manual, choosing a remedy, class They also have projects it’s what they say priorities: people serving & children prosecuted as 911 Western Ave., #302 #300 Reproductive Health, action suits & the ways for wrongfully convicted about themselves, long sentences far from adults. They usually don’t Seattle, WA 98104 Chicago, IL 60640 including how to prison officials often youth (convicted or not what a doctor home, those in solitary answer unless they’re 206-732-0311; 773-989-9400 communicate with defend themselves against accused as adolescents or or someone else said confinement & on death interested in the case. 800-218-6932 positivelyaware.com your doctor, abnormal charges. It describes how to younger) and women; for about them). They row and those frequently hepeducation.org HIV treatment & research pap smears & pain file a suit & get it through those, put “Attn: Center work hard to match transferred. They respond Free newsletter & info on magazine. Annual guide to management. Free the court system. $45.95. for Wrongfully Convicted each person seeking to all letters even if they hepatitis, HCV treatments HIV drugs. 7 issues/year; Navigating the Medical Address payment to Youth” or “Attn: Women’s support, but it may Prison can’t fulfill your request. take months. & how to get treated. free to people living with System manual for women Legal News. Project” on your letter. HIV in prison. in CA prisons.

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Lambda Legal DC Prisoners’ Project NAACP Legal Defense & They can also help file DEATH PENALTY SEXUAL ASSAULT SEX OFFENDER 120 Wall St., 19th Fl. Washington Lawyers’ Educational Fund testimony with the federal SOLITARY RESOURCES Rape and other sexual RESOURCES New York, NY 10005 Committee for Civil Rights 40 Rector St., 5th Fl. Privacy & Civil Liberties CONFINEMENT The U.S. is one of very few assault can happen to People categorized as 866-542-8336 (accepts & Urban Affairs New York, NY 10006 Oversight Board on issues countries that still execute anyone—it’s not your fault. sex offenders can get More than 80,000 collect calls) 11 Dupont Circle NW, #400 212-965-2200 affecting people in private- people. These organizations These groups may help you help managing the extra people are being held lambdalegal.org Washington, DC 20036 naacpldf.org contracted facilities. offer help for people who protect yourself and heal. requirements they face & in isolation in the They only take cases 202-319-1000 Nonprofit law firm that have death sentences and/ support with healing & U.S.—more than in any involving discrimination washlaw.org deals only with cases of Uptown People’s or want to end capital Just Detention International transforming themselves, if other country. Solitary based on sexual orientation, Advocates for humane obvious race discrimination Law Center punishment. 3325 Wilshire Blvd., #340 needed. confinement can cause gender identity/expression, treatment & dignity of affecting broad classes of 4413 N. Sheridan Los Angeles, CA 90010 mental health issues and HIV that could people charged under people. They also handle Chicago, IL 60640 Campaign to End the 24-hour hotline: CURE-SORT (Sex and other problems. significantly advance the Washington, DC law—even a small number of death 773-769-1411 Death Penalty 213-384-1400 Offenders Restored Reaching out for rights of LGBT people and if you’re being held penalty & life-without- uplcchicago.org P.O. Box 25730 (accepts collect calls) Through Treatment) support can help. those with HIV. Otherwise, anywhere in the federal parole cases. They won’t No criminal law cases or Chicago, IL 60625 justdetention.org P.O. Box 1022 they can discuss your legal system. They focus on answer letters unless they appeals, post-conviction 773-955-4841 Free packet of info & Norman, OK 73070 Survivors Manual: issue with you and may health & medical issues, are interested in the case. or habeas corpus petitions. nodeathpenalty.org resources about sexual 405-639-7262 Surviving in Solitary offer follow-up discussions abuse, religious rights, Works to protect the civil Free newsletter, The New abuse while in custody, cure-sort.org c/o B. Kerness with attorneys or suggest mental health, deaf issues ACLU (American Civil rights of people in state, Abolitionist, with writings prisoners’ rights & how A chapter of Citizens 89 Market St., 6th Fl. a lawyer in your area. Free & some parole matters. Liberties Union) National federal & county facilities by incarcerated people & to get help. They don’t United for the Newark, NJ 07102 toolkits on trans rights, Letters should provide as Prison Project in IL. They help find pro their families. provide counseling, legal Rehabilitation of Errants No direct assistance. including Transgender much detail & chronology 915 15th St. NW, 7th Fl. bono (free) lawyers for representation, books, (CURE). Info & therapy Free Survivors Manual: Prisoners in Crisis. Info of the situation as possible. Washington, DC 20005 people challenging denial Centurion Ministries pen-pal services or referrals for incarcerated Surviving in Solitary, by available in Spanish. They sometimes accept 202-393-4930 of medical care, excessive 1000 Herrontown Rd. investigations of sexual people who have & for people in isolation collect calls, but mail is aclu.org/prisoners-rights/ force, denial of religious Princeton, NJ 08540 abuse reports. To help end perpetrated abuse. Free or control units. Transgender Law Center better. aclu-national-prison- rights, access to the courts, 609-921-0334 sexual assault they share info on registry & residency Legal Information project discrimination, and cruel & centurionministries.org survivors’ stories (with laws and a free self-help Solitary Watch Helpline No individual legal unusual punishment. Unless Non-legal, free survivors’ permission) with guide with activities for P.O. Box 11374 1629 Telegraph Ave., #400 representation or help with they get your permission in investigative agency for the public & in training self-care & healing. The Washington, DC 20008 Oakland, CA 94612 criminal or post-conviction writing, they can’t discuss people sentenced to death sessions for corrections Neighborhood Guide ($5 solitarywatch.com 415-865-0176 cases. No publications. your case with family or life in prison, mostly officials & victim services for people on the sex Free quarterly transgenderlawcenter.org Lewisburg Prison Project They file class action members. those whose innocence of providers. They connect offender registry) tells how newsletter. They Basic info on laws that P.O. Box 128 lawsuits to ensure that murder or rape is shown some survivors with to conduct community welcome writings by affect transgender people, Lewisburg, PA 17837 prison & jail conditions are by facts. Send a letter with journalists & policymakers meetings & address people currently or including health care, 570-523-1104 constitutional & consistent the facts (3-4 pages max, to share their experiences. concerns of residents formerly in solitary for civil rights, family law & lewisburgprisonproject.org with health, safety & no transcripts or original You can write to JDI via as part of a positive possible publication on ID changes. The helpline Legal representation for human dignity. Don’t send Special Litigation Section documents). They review confidential, legal mail at: restoration & re-entry their Internet Voices doesn’t offer legal advice very few cases & only original documents. You U.S. Department of Justice thousands of cases but take Cynthia Totten, Attorney, process. from Solitary. Ask to but may review your case & for those serving time probably won’t hear back Civil Rights Division very few. CA Attorney Reg. #199266 be on a waiting list for refer it to the Center. in federal prisons in PA unless they think your Attn: Criminal Section (see address, above). Reform Sex Lifelines to Solitary, (Allenwood, Lewisburg, situation will make a major 950 Pennsylvania Ave. NW Southern Center for Offender Laws their nationwide, The Promise of McKean, Schuylkill), 11 class action lawsuit. Washington, DC 20530 Human Rights Project on Addressing P.O. Box 400838 solitary-focused letter- Justice Initiative PA state prisons & 34 PA 202-514-6255; 83 Poplar St. NW Prison Rape Cambridge, MA 02140 writing program. 636 Baronne St. middle district county jails. American-Arab Anti- 877-218-5228 Atlanta, GA 30303 c/o Jaime M. Yarussi nationalrsol.org New Orleans, LA 70113 People in PA can write Discrimination League usdoj.gov/crt/split 404-688-1202 Washington College of Law Monthly newsletter California Prison Focus 504-529-5955 to ask if their case fits. 1990 M St. NW, #610 Works to protect the civil schr.org 4801 Massachusetts Ave. NW ($9/year), The Digest, 1904 Franklin St., #507 justicespromise.org People anywhere can send Washington, DC 20036 rights of people in state GA & AL only. Legal Washington, DC 20016 covers advocacy for Oakland, CA 94612 Litigates for humane, a self-addressed stamped 202-244-2990 or local jails, prisons & representation for people 202-274-4385 evidence-based laws, a Quarterly newspaper on fair & equal treatment envelope for a free list adc.org juvenile detention facilities. on death row, at trial, wcl.american.edu/ law-enforcement-only CA prison conditions, in the LA criminal justice of low-cost bulletins: They can assist incarcerated Send a detailed narrative on appeal and in post- endsilence registry, and rehabilitation policies & legislation, system. They answer letters Assaults, Legal Research, members of the Arab of the issue/complaint, conviction review. People No direct legal services. & reintegration of with writings from from people in LA, but Medical Rights, Religious community in filing including a chronology in GA or AL can write to Write for info on your law-abiding former sex inside (some from it may take time. They Rights, First Amendment, institutional grievances and description of the explain their situation & rights & specific laws that offenders into society. beyond CA). Free subs only take cases that can Access to Courts, as well as complaints to incident(s), especially if you request a lawyer. protect them. They may Includes a column on request to those with improve conditions for Exhausting Administrative the Dep’t of Justice or are in danger of harm. They refer you to legal & mental answering readers’ legal CA SHU addresses; $6/ lots of people. They sue to Remedies, Disciplinary Federal Bureau of Prisons in usually don’t respond, but if health services in your questions. year for others in prison. change conditions, not for Hearings & Racial/Religious national origin or religious they get involved, they can area. Letters can be marked Stamps welcome. monetary damages. Discrimination. discrimination cases. make big waves. “legal mail.”

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ART, WRITING & EDUCATION PROGRAMS ADVOCACY & Critical Resistance (CR) Human Rights a stamped self-addressed These groups support your right to learn, grow and ACTIVISM 1904 Franklin St., #504 Defense Center envelope with CPR as be creative. These national groups Oakland, CA 94612 P.O. Box 1151 the return address. Two help people fight for 510-444-0484 Lake Worth, FL 33460 free meditation booklets PEN Writing Program Ohio University better prison conditions criticalresistance.org 561-360-2523 are also available: for Prisoners Correctional Education or push for long-range Free subs to their anti- humanrightsdefensecenter. Psychological Soldier: A PEN American Center 102 Haning Hall social, cultural and policy prison newspaper, The org Guide to a Healthy Life in 588 Broadway, #303 1 Ohio University Prisoners’ Guerrilla Prisons Foundation changes—or try to do both. Abolitionist, 3 issues/year, If you’ve had books, Solitary and Doing Your New York, NY 10012 Athens, OH 45701 Handbook to 2512 Virginia Ave. NW, If you write them, ask in English & Spanish. If educational resources or Time with Peace of Mind. 212-334-1660 800-444-2420 Correspondence Programs #58043 if they have a chapter you are or have ever been political materials denied pen.org/prison-writing ohio.edu/ecampus/print/ in the U.S. & Canada Washington, DC 20037 near you. in solitary, they’d like to by prison administration, 4Struggle Magazine Provides skilled writing correctional c/o Prison Legal News 202-393-1511 hear your ideas on peaceful HRDC may be able to P.O. Box 97048 mentors & audiences for Provides college-level P.O. Box 1151 prisonsfoundation.org Families Against campaigns for change (put advocate or litigate for you RPO Roncesvalles Ave. your work. A free Handbook courses and certificate & Lake Worth, FL 33460 Publishes writing on the Mandatory Minimums “Attn: Solitary Project” on or for the publication. Toronto, Ontario, M6R 3B3 for Writers in Prison has degree programs acceptable 561-360-2523 Internet, on any subject, by (FAMM)—Nat’l Office your letter). Canada tips on writing, addresses in most prisons. Free info prisonlegalnews.org or about people in prison. 202-822-6700 Coalition for Prisoners’ 4strugglemag.org for free books & education packet on admission, course Lists more than 160 Free. You retain full rights famm.org Rights Newsletter 3 issues/year. Articles by programs, and guidelines offerings & costs. Ask if programs for high school as author. No calls from Fights for fair sentencing P.O. Box 1911 U.S. political prisoners & for the annual PEN prison their program is authorized diplomas, associate, prisons. laws. No legal services Santa Fe, NM 87504 news on work to improve writing contest. in your state. baccalaureate and graduate or fact sheets; they don’t realcostofprisons.org/ prison conditions & degrees; also vocational Safe Streets answer letters. People in coalition.html against injustice. Free Prisoner Express and paralegal certificates. Arts Foundation federal prisons can add Get a monthly newsletter subs, but stamp donations 127 Anabel Taylor Hall Contact info for each 2512 Virginia Ave. NW, [email protected] to their on the movement for appreciated. Cornell University school, tuition rates, #58043 Corrlinks account to sign prison reform by sending Ithaca, NY 14853 textbook costs, courses Washington, DC 20037 up for email updates about 607-255-6486 offered, transfer credits, 202-393-1511 laws on federal sentencing, RESOURCES FOR Chicago Legal Advocacy prisonerexpress.org time limits for completing safestreetsarts.org clemency, commutations INCARCERATED for Incarcerated Mothers Free, twice yearly courses, whether the school Free resource that exhibits & compassionate release. PARENTS (CLAIM) newsletter with descriptions is accredited and how to & sells work for incarcerated Their email list is very large, The Sero Project These groups can help c/o Cabrini Green of their writing & art avoid bad programs. 221 visual artists. Ask for details and they can’t reply to P.O. Box 1233 you navigate prison Legal Aid programs. With drawings, pages; $55.95. Address on exactly what they can & individual questions. Loved Milford, PA 18337 regulations, family court 740 North Milwaukee Ave. poems, essays & fiction by payment to Prison Legal can’t provide. No calls from ones outside can print and seroproject.com and long distances to Chicago, IL 60642 participants. News. prisons. mail info from famm.org/ A network of people maintain or rebuild Phone: 312-738-2452 affected-families. living with HIV (PLHIV) relationships with your ext. 451 & allies fighting stigma children. (for collect calls: Citizens United for & injustice, especially 312-675-0911) ONLY ON THE The Other Death Penalty HCVAdvocate.org Rehabilitation of Errants inappropriate criminal Legal Services for INTERNET cgla.net Project Info on all aspects of (CURE) prosecutions of PLHIV Prisoners with Children If you have a loved one on Advice & some legal P.O. Box 1486 hepatitis C. Nat’l Office: P.O. Box 2310 for nondisclosure of their 1540 Market St., #490 the outside who can send Lancaster, CA 93584  representation for Washington, DC 20013 HIV status or potential or San Francisco, CA 94102 you info printed from the National Re-entry incarcerated parents & theotherdeathpenalty.org HIVandHepatitis.com 202-789-2126 perceived HIV exposure or 415-255-7036 Internet, these websites Resource Center their family members No legal advice. They All about living with both curenational.org transmission. Write to join prisonerswithchildren.org may be helpful. csgjusticecenter. in IL on guardianship advocate for ending life- viruses. Works in 40 states to reform their network of PLHIV who Answers letters, mostly without-parole sentences. org/reentry/ (short-term or court- reentry-services-directory the criminal justice system. are incarcerated or for info about family law, sends ordered), visitation and The Prison Studies Run by people in prison, so POZ.com Free sub & 3 sample CURE about HIV criminalization self-help legal manuals Project they can’t respond to mail. Re-entry services across Blogs, articles, fact child custody, plus advice the country, by state; no newsletters (which list state or advocacy. (in Spanish & English) for foster care & divorce prisonstudiesproject.org/ Online to print: The Other sheets—all things HIV, hep & local chapters). on your question and directory direct individual services. cases. Women: write to Death Penalty Project C & more. Building a Movement to helps you find info. Their Internet directory of CLAIM. Men: write to Prisoner Organizing Kit. The Fortune Society End the New Jim Crow: expertise is mostly in CA; college programs in U.S. Center for Prisoner Cabrini Green Legal Aid National Resource Center 29-76 Northern Blvd. an Organizing Guide they’re less able to answer prisons. State lists of Health & Human Rights, (at the same address). Prison Policy Initiative on Children & Families Long Island City, NY 11101 c/o Chico Peace and Justice questions from other mostly on-site, degree- Miriam Hospital CLAIM can also send a free prisonpolicy.org of the Incarcerated 212-691-7554 526 Broadway St. states. Letters should be as granting, post-secondary prisonerhealth.org Illinois-focused resource Research on all kinds nrccfi.camden.rutgers.edu fortunesociety.org Chico, CA 95928 specific as possible. If you education programs, with Info for family members guide, Caring for Children of prison issues. List of List of programs (specify Services for NY, but people newjimcroworganizing.org send documents, they will start date, who it serves, supporting the health of a when a Parent Is Arrested: legal resources by state: your state) for children & incarcerated anywhere can Free booklet on organizing make copies & return the how it’s funded, contact loved one inside; no direct Guide to Legal Options and prisonpolicy.org/resources/ families of incarcerated get a free sub to Fortune against mass incarceration originals. No direct legal info & some reviews. help. Resources. legal people. News, 2 issues a year. in prison & out. representation.

26 | TURN IT UP! FALL 2015/WINTER 2016 FALL 2015/WINTER 2016 TURN IT UP! | 27 IIIIIIIIIIIRESOURCES IIIIIIIIIIIRESOURCES

RESOURCES Women in Prison Project ADVOCACY/SUPPORT FOR WOMEN Correctional Association PEN PALS Midwest Trans Prisoner FOR LGBTQI PEOPLE IN PRISON Along with these, Chapter of NY This list includes both free services that try to match you Pen Pal Project A short support list for incarcerated lesbian, gay, 41 (“Special Issues of 2090 Adam Clayton Powell with an outside correspondent and services that charge c/o Boneshaker Books bisexual, transgender, queer and intersex people. For an Women Prisoners”) of the Jr. Blvd., #200 a fee to post your profile or request online. The free 2002 23rd Ave. S extended list, write Black & Pink (below). Jailhouse Lawyers Manual, New York, NY 10027 organizations (run by volunteers) often have long waiting Minneapolis, MN 55404 by Columbia Human Rights 212-254-5700 lists, and the paid services can’t guarantee a reply to your mwtppp.wordpress.com Black & Pink Gay & Lesbian Advocates Law Review offers info correctionalassociation.org ad. So finding a pen pal requires a lot of patience. Midwest only; accepts 614 Columbia Rd. and Defenders (GLAD) on reproductive rights, Serves women in NY but requests across LGBTQI FREE TO PEOPLE name, ID#, address, date of Dorchester, MA 02125 30 Winter St., #800 parenting from prison, rules has info & brochures (many spectrum. Not a dating IN PRISON: birth, length of sentence, 617-519-4387 Boston, MA 02108 on searches by male guards by incarcerated women) for service. In your letter, Pen Pal Project of the release date, religion, blackandpink.org 617-426-1350; and more. For a copy, write those in any state. Write include your name Action Committee for hobbies/interests and a A family of LGBTQ people 800-455-4523 Prison Health News c/o for My Sister’s Keeper & a & chosen name (if Women in Prison statement about yourself in prison and “free world” (accepts collect calls Philadelphia FIGHT, 1207 list of other pamphlets. different), ID#, address allies. Free monthly Mon.-Fri., 1:30-4:30 p.m. Chestnut St., 2nd Fl., Phila., P.O. Box 9867 & what you want in a pen and a description of Marina del Rey, CA 90295 pal. Backlog may be 1-2 newspaper includes EST) PA 19107. People outside Tenacious yourself & what you’re acwip.wordpress.com/ years, depending on region. instructions on signing up glad.org can download the chapter V. Law looking for in a pen pal. Meet-An-Inmate positive-programs for their pen pal program Know Your Rights at www3.law.columbia.edu/ P.O. Box 20388 They often have a long Arlen Bischke Connects incarcerated Jewish Prisoner & other services. They can info related to sexual hrlr/jlm/chapter-41.pdf. New York, NY 10009 waiting list. P.O. Box 1342 women only (with at least Services Int’l Pendleton, OR 97801 sometimes help in a crisis orientation, gender resistancebehindbars.org/ a year left to serve) to a P.O. Box 85840 (like sexual abuse or being identity & HIV status. California Coalition for node/19 meet-an-inmate.com woman pen pal outside. Seattle, WA 98145 in solitary) by writing to People in New England Women Prisoners A zine (2-3 issues/year) of PAYING Online pen pal site will Only for CA, NM & TX 206-985-0577 CUSTOMERS ONLY: & prison officials & getting can request a regional 1540 Market St., #490 writings & art by formerly list your address, photo prisons. They’ve matched (emergency collect line: public attention. resource guide & pen pal San Francisco, CA 94102 & currently incarcerated Friends Beyond the Wall info starting at $25 for 6 more than 500 pen pals, but 206-528-0363) list. 415-255-7036, ext. 4 women. Free to women Attn: New Ad Orders months. there’s often a long waiting jpsi.org Transgender, Gender womenprisoners.org (including trans women) in 2600 South Road, list. Write for an application. Faith-focused national Variant, and Intersex Sylvia Rivera Law Project No direct legal prison. Men in prison are #44-244 Write a Prisoner service for Jewish people. Justice Project 147 W. 24th St., 5th Fl. representation. Women asked to send 2 stamps (or Poughkeepsie, NY 12601 P.O. Box 10 Christian Pen Pals Write for an application 1230 Market St. New York, NY 10011 in any state can get free a $1 check or money order friendsbeyondthewall.com Edgewater, FL 32132 P.O. Box 11296 that requires written PMB 705 212-337-8550 newsletter, The Fire Inside, made out to V. LAW). Finding pen pals since 386-427-5857 San Francisco, CA 94102 (ext. 308 for legal) 2 issues/year, with a Hickory, NC 28603 confirmation that Jewish 1999. writeaprisoner.com cppministry.com religious law considers you Price: $29.95 (for 6 Online pen pal profiles. tgijp.org srlp.org section in Spanish. Women, National Clearinghouse National service providing Jewish. They usually match months); $59.95 (for Starting price, $40/ Transgender people in For transgender, intersex transgender & gender for the Defense of Christian pen pals to people with a same- 2 years) for a pen pal year. Also available: free & out of prison united & gender nonconforming nonconforming people in Battered Women engage in ministry by mail. gender pen pal within in struggle for survival people in NY only: CA can ask for help with 125 S. 9th Street, Ste. 302 ad profile. Write for re-entry profiles for Request a pen pal if you’re weeks. They also provide & freedom. Free Stiletto Prisoner Rights Project can legal, medical, solitary, Philadelphia, PA 19107 an application. Got housing, legal assistance, seeking a faith-focused family assistance & some & Prison Newsletter, Still help with name changes, parole & re-entry problems. 215-351-0010 Corrlinks? Email: Info@ employment education dialogue. Include your re-entry services. We Rise: Prison Resource getting trans-affirming (accepts collect calls) FriendsBeyondTheWall.com after release. Guide and Surviving Prison health care, safety Justice Now ncdbw.org in California: issues, gender-affirming 1322 Webster St., #210 No direct legal OTHER Inside Books Project Sylvia Rivera Law Project PA Prison Directory Action Advice By and For placement & conditions & Oakland, CA 94612 representation or advice, RESOURCE LISTS Resource Guide 147 W. 24th St., 5th Fl. c/o Book ’Em Transgender Women. some re-entry issues. Free 510-832-4357 no social services. Assists (ALL FREE) 12th Street Books New York, NY 10011 P.O. Box 71357 pen pal program. (accepts collect calls from defense teams on cases 827 W. 12th St. srlp.org/resources Pittsburgh, PA 15213 National Center for CA women’s prisons Tues.- involving domestic Austin, TX 78701 12 pages, national & state, paprisondirectoryaction. Lesbian Rights T.I.P. (Trans* in Prison) Fri., 10 a.m.-6 p.m.) violence survivors charged insidebooksproject.org/ legal support—prison rights, wordpress.com 870 Market St., #370 Journal jnow.org with crimes related to National Prisoner resource-guide mainly (but not only) for 7 lists of PA & national San Francisco, CA 94102 Gender Identity Center of No individual personal their abuse. A very small Resource List 28 pages, national, lesbian, gay, queer, intersex resources: LGBTQI; Women 415-392-6257 Colorado injury or federal civil rights nonprofit organization, Prison Book Program emphasis on TX. Send 2 & transgender people. & Parents; Legal, Pro Bono nclrights.org/ 1151 S. Huron St. lawsuits, appeals or writs. they do what they can c/o Lucy Parsons Center stamps if you can. & Advocacy on the Inside; legal-help-resources Denver, CO 80223 People in CA women’s to answer requests for & Bookstore Black & Pink Prison Prison Justice & Advocacy No legal representation. 303-202-6466 prisons can write for info assistance promptly, but 1306 Hancock St, #10 Prison Activist Resource List Groups; PA Prison, Jails Free info on laws that gic-colorado.org & help with emergency/ it may take a long time. Quincy, MA 02169 Resource Center 614 Columbia Rd. & Court Info; Education affect LGBT people and Free quarterly newsletter life-threatening medical Phone or write. prisonbookprogram. P.O. Box 70447 Dorchester, MA 02125 on the Inside; Tips for ways to protect against for trans & gender variant crisis, legal questions, org/resources/national- Oakland, CA 94612 blackandpink.org Survivors of Abuse. discrimination & other people in prison. compassionate release & prisoner-resource-list 510-893-4648 Queer & trans issues, Self-addressed stamped civil rights abuses. post-release employment/ 6 pages; large-print version prisonactivist.org/resources activism, surviving prison. envelope preferred. training. available. 24 pages, national & state. Stamp donations welcome.

28 | TURN IT UP! FALL 2015/WINTER 2016 FALL 2015/WINTER 2016 TURN IT UP! | 29 IIIIIIIIIIITAKE IT HOME IIIIIIIIIIITAKE IT HOME Marshall “Eddie” Conway: Misty Rojo: “We Do Effect Change” “I Like That I Get Up and Fight”

arshall “Eddie” Con- other on ideas of manhood t age 14, Misty Rojo was powers people to seek their way, a Vietnam veter- and masculinity and—given on the street, facing drug reproductive care in a safer Man and former member that most of the men in the Aaddiction. Nine years way,” Rojo says. of the Black Panther Party, had group were Black—studied and later, she was behind bars facing Rojo was released from spent 33 years in Maryland taught African-American his- a life sentence. prison almost six years ago, prisons as a political prisoner tory and culture. It wasn’t that she hadn’t and today she’s hard at work as when he reached a turning As graduates of the tried to make her life work. In Justice Now’s communications point. “Every Friday, 10 or 12 six-month training were her teens, Rojo took jobs, en- and campaign director. She re- people would be released back transferred to other prisons, rolled in classes, got married cently received her Bachelor of to the community, and they Friend of a Friend spread to and gave birth to four sons. Science (B.S.) in Business Ad- were going back with revenge five Maryland prisons and one But her husband, from whom ministration, which she calls in their heart, an intention to federal prison. In each prison, she contracted HIV, battered her “bullshit degree”—but she go back into drug activity or Conway notes, violence has her. When she entered the admits it helps her do social do something else destructive,” decreased dramatically. Central California Women’s justice work. Conway says. “Part of the vio- On March 4, 2014, after Facility at 23, the world inside So how does someone lence in the community is just serving nearly 44 years, Con- prison confirmed her sense survive in a world that thinks the anger and frustration that way was released from prison that the world outside thought they’re nothing? By trying to come out of those prisons up and witnessed the program’s she was nothing. Misty Rojo change that world to make it there in those rural areas.” The lasting impact. “I went out to Then she met Justice Now, a through peer education, about med- better for everybody. cycle had to be stopped. Morgan State University [in California organization that works in ication side effects and confronting “I’m proud of what I do,” says So he joined with other Baltimore] to speak. A guy partnership with women and trans- the stigma of HIV/AIDS. Misty. “I like that I get up and fight, imprisoned men, many of them ran up to me as I got in the gender people behind bars. Visiting When California threatened that somebody inside is a little safer also veterans, to mentor the Marshall “Eddie” Conway elevator and said, ‘I’m gonna members talked about social justice to close down the Justice Now pro- because we wrote a bill or made a younger generation. “We tried to men and, once he had gathered a graduate this year!’ When I first met and a world without prisons—ideas gram, Rojo helped restructure it into phone call. One hundred years from figure out how we could meet their core group, asked the American him inside, he was talking about Rojo had never heard before. “What what became Justice Now’s Living now, I want to be a name in a dusty needs, what they needed to know in Friends Service Committee for help going out there and killing Shorty. changed me,” she says, “was Justice and Wellness Project, a curriculum textbook about people who did this order to go home, stay home and be designing a curriculum and training [Instead] he got out, went to college, Now giving me a lens to see how that can work in any prison. work, after society’s figured out whole.” Transferred to another pris- for a formal organization. Friend of and now he’s one of the leading layers of oppression work. To fight The project concentrates on that policing and prisons are hor- on, Conway brought the idea along. a Friend was born. fraternity brothers on the campus.” back and not just be a victim.” health, family support and compas- rible, torturous systems.” He began talking with people Participants came from gangs The encounter made Conway real- At first, Rojo got involved with sionate release. “We’re the only or- With people like Rojo around, one-on-one about their options and like the Bloods, Crips and Black ize, “Wow. We do effect change.” Justice Now to “piss off the prison.” ganization,” Rojo says, “that helps we may not have to wait a hundred actions. He soon realized he was Guerrilla Family, as well as from —Victoria Law She took classes on substance abuse dying people come home.” Justice years. not the only one doing so. “Even in religious organizations and sports and developing an awareness of Now’s educational materials—such —Susie Day the street organizations, some gang groups. They went through a six- To contact Friend of a Friend: how crimes hurt ordinary people. as a comprehensive chapter on members were pulling up the young month training to learn skills such Dominque Stevenson, American She started helping people write reproductive health, which Rojo You can write for a free copy of Jus- people [and] saying, ‘No man, don’t as communication, negotiation and Friends Service Committee, Suite appeals to the administration. She helped write—are produced by tice Now’s 53-page guide, Reproduc- do that. That’s not how you behave.’” conflict resolution. They also held 212, 3600 Clipper Mill Rd., Balti- also joined a support group of HIV- people inside and outside prison, tive Health: 1322 Webster St., #210,

Conway began identifying those conversations, challenging each more, MD, 21211 (240-707-0110) photo: Laura Whitehorn photo courtesy Misty Rojo positive people inside and learned, working together. The result “em- Oakland, CA 94612

PREP TIME: “I realized while inside that I “While I was inside, I joined other “Because of the conditions I encountered “A pre-release class provided a list 3shouldn’t write my release plans 3women in support groups where I 3behind the walls, I became radicalized. 3of the resources I could set up when I What I did in stone. I made plans for work and could openly share my hurt to begin The experience of imprisonment served as a arrived home. But I wish I could have gotten my (or wish I’d housing, but I kept things flexible, to my healing process—healing from platform for the life-changing social justice housing, medication and doctor’s appointments in done) to allow myself to roll with what options the trauma that landed me in prison work I continue to engage in 20 years later.” place in advance.” prepare for might emerge.” in the first place.” —Robin McGinty, —Ronald Stephens (Simone), my release... —Mujahid Farid, 33 years behind bars, NY —Teresa Sullivan, 5 years behind bars, PA 2 years behind bars, NY 5 years behind bars, TX 30 | ? TURN IT UP! FALL 2015/WINTER 2016 FALL 2015/WINTER 2016 TURN IT UP! | 31 IIIIIIIIIIIRESOURCES IIIIIIIIIIIRESOURCES How to Get Your Meds Free Prison Book Programs hen requesting free books from these volunteer-run projects, it’s important to: HEALTH CARE ON TIME W1) Pay close attention to which states each program serves; 2) Remember that most of these groups depend on donated books and may not have a particular book, etting your prescrip- • The Prison Litigation so send a list of topics and types of books you want; 3) Include your name, number, tion drugs can make Reform Act of 1996 requires and address in clear, legible print; 4) Be patient—due to money and resources, not the difference between you to go through all levels of G lack of concern, it may take months to get a response. These programs always wel- sickness and health. If you the prison grievance system come donations of money or loose stamps. The Inside Books Project Resource Guide have HIV it can be even more before filing a federal lawsuit. (See “Other Resource Lists,” p. 29) offers a longer list of prison book programs in the crucial—missing doses can Knowing your prison’s griev- U.S., including those serving only one state. make you resistant to the ance process and keeping the treatments. required forms in your cell to Appalachian Prison Books Through Bars/ LGBT Books to Prisoners use if other steps fail may be Book Project Providence c/o Rainbow Bookstore IN DEMAND These tips can help: helpful. Grievances need to P.O. Box 601 c/o Paper Nautilus Books Cooperative • If you learn the names be clear and concise, stating Morgantown, WV 26507 5 Angell St. 426 W. Gilman St. Books are always in of prison medical personnel, your medication needs, who aprisonbookproject. Providence, RI 02906 Madison, WI 53703 demand behind the you can address requests prescribed the meds and how wordpress.com providencebtb.org lgbtbookstoprisoners.org walls. For people inside, and complaints about missed the prison is denying you Sends reading materials to Nationwide. Write with For LGBTQ-identified people this means you may meds to the appropriate person. faster to ask your unit staff to call access. Being polite but firm about KY, MD, OH, TN, VA & WV a list of subjects you’re in every state except TX. have to wait and you Treat medical staff politely so they’ll the medical department to retrieve your rights will help show you at prisons. interested in. may not get the exact be more likely to want to help you your meds. If the prison won’t fol- your best if you end up suing—let- Louisiana Books book you want. For Chicago Books to Women 2 Prisoners people on the outside, (and to avoid any charges of unruly low the doctor’s orders, you can ters and grievances may be court Asheville Prison Books Program in Prison 1631 Elysian Fields Ave., this is your chance behavior). exhibits for a judge or jury. complain in writing to your treating 67 N. Lexington Ave. c/o RFUMC #117 to help. Donate your • You need your medications doctor. Write to the prison warden • If, despite your best attempts, Asheville, NC 28801 4511 N. Hermitage Ave. New Orleans, LA 70117 books and your labor. now—not in six months—but griev- and medical officers too. the prison is just too overcrowded For NC, SC, GA & TN. Chicago, IL 06040 lab2p.wordpress.com Contact one of the ance systems can be slow. It can be • It’s good to store a copy of or poorly run to deliver your doses, chicagobwp.org For AR, AL, LA & MS. groups on this page. your prescriptions in your cell or on you can consider filing suit. You’ll Books Through Bars/NYC For people in any women’s Quickest responses to They can probably use your person. If you learn the medi- need to show a court that the prison c/o Bluestockings Bookstore federal prison or women’s women and anyone your help, and you GRAYING cation schedule and stick to it, you did not provide prescribed medica- 172 Allen St. state prisons in AL, AZ, CA, imprisoned in LA. will meet good people can’t be blamed for missed doses. tion as required. Medical lawsuits New York, NY 10002 CT, FL, IL, IN, KY, MS, OH doing good work. BEHIND BARS It’s important to keep copies of are hard to win, and you first have booksthroughbarsnyc.org & TN. Midwest Pages to every complaint you write and the to go through the prison grievance To all states except AL, FL, Prisoners Project LA, MA, MI, MS, NC, PA & Inside Books Project c/o Boxcar Books “Prison is especially pun- replies you get. In any future griev- process (except if you are suing OH, with a priority for NY. c/o 12th Street Books 408 E. 6th St. Tranzmission Prison ishing for the elderly,” says a ance or litigation, these will prove a for money damages after release). 2012 Human Rights Watch 827 W. 12th St. Bloomington, IN 47408 Books Project pattern of “deliberate indifference” – Paul Wright, formerly incarcerated Books Through Bars/ Austin, TX 78701 812-339-8710 P.O. Box 1874 report. People over 50 are the to your serious medical needs. fastest growing segment of the Philadelphia 512-655-3121 pagestoprisoners.org Asheville, NC 28801 • A phone call to the prison For more, see “Filing a Medi- 4722 Baltimore Ave. insidebooksproject.org For AR, IN, IA, KS, KY, MN, tranzmissionprisonproject. incarcerated population in the from someone outside—a family cal Grievance,” p.9. You can also get Philadelphia, PA 19143 For TX prisons only. One MO, NE, ND, OH, OK, SD, yolasite.com US, and they face particular member or friend—asking why you “Protecting Your Health & Safety” 215-727-8170 request every 3 months. TN & WI. For LGBTQ people in prison health and social needs that are not getting your meds may pro- ($10 plus $6 for shipping) from Pris- booksthroughbars.org (See “Other Resource nationwide. prisons are ill equipped to duce results. You and your family on Legal News, P.O. Box 1151, Lake For PA, NJ, DE, NY, MD, VA Lists” for their guide with Prison Book Program provide. It is estimated that by can also write to legislators, state Worth, FL 33460; 561-360-2523 & WV. People in PA prisons national listings.) c/o Lucy Parsons Bookstore Women’s Prison 2030, elders will constitute 1/3 medical commissions and city, from 9:00 a.m. to 5:00 p.m. (EST), only can get their 1306 Hancock St. #100 Book Project social justice-focused Quincy, MA 02169 c/o Boneshaker Books of all incarcerated people in county and state health depart- weekdays; prisonlegalnews.org. the US—a 4,400% increase over correspondence course, 617-423-3298 2002 23rd Ave. S ments to bring attention to systemic “Address This!” prisonbookprogram.org Minneapolis, MN 55404 the past 50 years. With support problems in medication delivery. Paul Wright served 17 years in from one another, aging people For all states except CA, wpbp.org Washington State. He is the co- MI, MD, NV, IL & TX. You can maintain strength and For women and transgender founder and editor of Prison Legal can also get We the People folks in federal prisons and dignity living in daily prison News (see Resources, p.23). Legal Primer, a free, 40-page all states except CA, CT, FL, conditions—and in applying A version of this article appeared in booklet on the Constitution, IL, IN, MA, MI, MS, OH, OR for parole, medical release or POZ magazine in summer, 2009. key legal terms, and post- & PA. clemency. conviction remedies.

32 | TURN IT UP! FALL 2015/WINTER 2016 ACUPRESSURE POINTS From centuries-old Chinese medicine, acupressure helps you ease symptoms with your fingertips. For each point, press firmly with your middle finger or thumb and hold steadily for about two minutes while taking slow, deep breaths. Adapted from a chart by Michael Reed Gach, Ph.D. (Acupressure.com); with thanks to Richard Reilly, MS, LaC and Paulette Pettorino, MS, LaC

“Joining the Valleys” Location: Top of the hand, “Sea of Vitality” “Three Mile Point” on the web where the thumb Location: Lower back, two Location: Four finger-widths and the index finger meet. spots, each a few inches below the kneecap, one Possible benefits: Helps out from the spine at the finger-width outside the relieve stress, headache, level of the navel. shinbone. constipation, insomnia, Possible benefits: Helps Possible benefits: Supports neck pain and stiffness, deal with stress, lower back proper digestion; eases ab- toothache and sinus pain. problems and irregular dominal disorders (like con- menstruation; refreshes stipation); tones the muscles, internal organs. building endurance.

“Third Eye” “Outer Gate” “Inner Gate” Location: Between the eye- Location: Middle of outer Location: Center of inside brows, where the bridge of forearm, three finger-widths forearm, three finger-widths your nose meets the lower up from the wrist crease. (about 2 inches) up from wrist ridge of your forehead. Possible benefits: Strength- crease. Possible benefits: Possible benefits: Relieves ens resistance to colds and Eases nausea and indigestion. sinus congestion, nosebleeds, flu, eases wheezing, coughing hay fever, headaches and and asthma symptoms; eyestrain. Eases insomnia relieves wrist pain and (More on acupressure: “Breathe, and anxiety. frequent urination. Stretch, Stay Strong,” p. 5.) photos: Paulette Pettorino photos: Paulette This copy of TURN IT UP! would not be in your hands without Special thanks to the generous support of our major funders: POZ magazine The H. van Ameringen Foundation