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Societal Impact of Pain (SIP) 2017 Valletta, Malta 07 - 09 June, 2017 SIP 2017 A bstract & Background SIP Societal Impact of Pain STRUCTURED COOPERATION BETWEEN HEALTH CARE SYSTEMS TACKLING THE SOCIETAL IMPACT OF PAIN! #SIP2017 Societal Impact of Pain (SIP) 2017 Valletta, Malta 07 - 09 June, 2017 European Pain Federation EFIC® Grensstraat 7 mailbox 3 1831 Diegem, Belgium Phone: +32 2 251 55 10 Email: [email protected] http://www.efic.org Grünenthal GmbH Zieglerstr.6 52078 Aachen, Germany Phone: +49 241 569 2219 Email: [email protected] http://www.grunenthal.com Pain Alliance Europe (PAE) Grensstraat 7 1831 Diegem, Belgium Phone: +32 2 660 05 01 Email: [email protected] http://www.pae-eu.eu Active Citizenship Network (ACN) Rue Philippe Le Bon, 46 1000 Brussels, Belgium Phone: (+39) 6 36718 351 Email: [email protected] http://activecitizenship.net Malta Health Network (MHN) P.O. Box 2, Qormi Rd MRS 1000 Marsa, Malta Phone: +356 9987 3213 Email: [email protected] http://maltahealthnetwork.org Project management: No Pain Foundation (NPF) Tom Russell, Gudula Petersen 95, Old College street, Level 1 www.sip-platform.eu SLM1379 Sliema, Malta Phone: +356 79026700 Graphic design: Email: [email protected] Silvia Pfeifer, Frank Maurer www.nopainfoundation.org www.artletico.de SIP 2 Societal Impact of Pain (SIP) Symposium 2017 STRUCTURED COOPERATION BETWEEN HEALTH CARE SYSTEMS TACKLING THE SOCIETAL IMPACT OF PAIN! SIP 2017 is made possible with the support of the Maltese Ministry for Health Malta and financial support provided by the Maltese Ministry for Finance. It takes place under the auspice of the agenda of the 2017 Maltese Presidency of the Council of the EU. Content Welcome Letter from SIP 2017 Partner 4 History and Achievements of SIP Initiative 19 Programme Overview and Description of Workshops 25 Abstracts from Speaker and other Faculty Members 47 EU Civic Prize on Chronic Pain Good Practices 214 SIP Endorsing Organisations 247 Map of Valletta 280 The SIP symposium is arranged in compliance with the applicable laws and regulations, including the Codes of Conduct of the European Federation of Pharmaceutical Industries and Associations (EFPIA) and as implemented in the national Codes of Practice. The format and content of the SIP 2017 Symposium has been pre-approved as being in line with the code of conduct of the Pharmaceutical Research Based Industry Malta Association (PRIMA) 3 SIP Societal Impact of Pain (SIP) 2017 Valletta, Malta 07 - 09 June, 2017 Dear Reader, Welcome to the 7th European Symposium on the Societal Impact of Pain (SIP 2017): “Structured cooperation between health care systems tackling the societal impact of pain.” Under the auspices of the Maltese Presidency of the Council of the European Union, I welcome all the stakeholders in the area of pain: patients, doctors, insurers, employers, policy makers, and politicians to debate the increasingly pressing issue of pain as a quality indicator for health care systems, building platforms to address the societal impact of pain, the impact of pain on labour and pain’s challenges, models and lighthouses. Chronic pain affects around 20% of the adult population in Europe yet it remains poorly managed and under-treated, affecting not only patients, but society at large. It results in more than 500 million sick days per year in Europe, costing the European economy more than €34 billion and is responsible for nearly half of all absences from work lasting more than three days in Europe. It is among the top five causes of disability in every region of Europe and increases the risks of other health problems, social exclusion and poverty. During Malta’s Presidency, we have focused on pursuing coordination in several fields of healthcare: from rare diseases to chronic conditions. One of the key outcomes of our Presidency will be the Council conclusions on structured cooperation between European healthcare systems. During the SIP symposium 2017, I hope we pick up the work initiated by the Italian Presidency at the informal Health Ministers meeting in 2014 on the key issue of pain therapy and palliative care. Back in 2014, European countries agreed on the need to create a European network ensuring training of professionals in pain care and exchange of information on the effectiveness of therapies for the weakest population groups. Acknowledging that networks for paediatric pain therapy and palliative care are still not evenly developed throughout Europe, health ministers gave advice on the development of palliative care and pain therapy for other vulnerable groups, such as the elderly. We believe this is a key area where the European Union can increase cooperation to ensure better life standards for its citizens. As a doctor, I know all too well the fundamental importance of European cooperation in the area of health. In these uncertain times, Europe must face its common problems together to ensure that its citizens get the best healthcare possible. I am certain that a platform such as the Societal Impact of Pain is an example of a vehicle towards achieving this goal. Hon. Minister Chris Fearne SIP 4 SIP Societal Impact of Pain The Societal Impact of Pain (SIP) symposium takes place under the high patronage of the Italian Ministry of Health. 5 SIP SIP Societal Impact of Pain Societal Impact of Pain (SIP) 2017 Valletta, Malta 07 - 09 June, 2017 SIP 6 SIP Societal Impact of Pain Dear Reader, Welcome to the 7th European Symposium on the “Societal Impact of Pain (SIP 2017): “Structured co- operation to tackle the Societal Impact of Pain”. In 2016, we made great strides forward in articulating a series of policy recommendations for EU leaders. Chris Wells Bart Morlion When taken forward collectively, we believe these President EU-Liaison Officer and recommendations would transform the lives of pain European Pain Federation EFIC® President Elect patients and alleviate the impact of pain on society. European Pain Federation EFIC® We now look forward to an update on all that we achieved in 2016, and to see what more needs to be done to make the case to politicians and other stakeholders to highlight the importance of this issue. Chronic pain affects almost 1 in 5 European citizens; around 100 million individuals and 50% of the older population. Chronic pain is one of the major reasons why people exit the labour market prematurely and causes 500 million days of illness per year, costing the European economy more than €34 billion. As the European economy continues its slow path to recovery and structural reform, factors that affect employment and growth, such as early retirement and absence through illness, will need to be addressed. It is our role to highlight the figures and to provide advice on what can be done. So far, we have received a warm reception from policy makers and we hope this continues. At the European Pain Federation EFIC®, the multidisciplinary professional organisation in the field of pain research and medicine, we are making progress in our own field to promote a wider and deeper understanding of pain. In March this year we held the first examination for the European Diploma in Pain Medicine. Our educational activities will grow, and hopefully we will see more healthcare professionals with an understanding of the impact of pain, as well as its treatment. Coupling this with an approach to governments, to ensure an appropriate policy framework for pain care and pain patients is a noble ambition and we hope to see it succeed in the coming years. This year, there are five strands to the agenda of the SIP Symposium: We will once again focus on two central issues to pain policy; the use of pain as a quality indicator for health systems and the impact of pain on labour and employment. We will also take the opportunity to look at how a platform to address the societal impact of pain could function, as well as different challenges, models and lighthouses in pain policy at national and European level. Finally, we will look at evolving concepts in the definition of chronic pain, to define a consensus statement for policy purposes on the definition of chronic pain. We look forward to joining you in Malta, and to seeing our ideas manifested in policy in the near future. Chris Wells Bart Morlion President EU-Liaison Officer and President Elect European Pain Federation EFIC® European Pain Federation EFIC® 7 SIP SIP Societal Impact of Pain Societal Impact of Pain (SIP) 2017 Valletta, Malta 07 - 09 June, 2017 SIP 8 SIP Societal Impact of Pain “Structured cooperation to tackle the Societal Impact of Pain” Dear Participants of SIP 2017, In October 2016, I started as the Global CEO of Grünenthal, a science-driven pharmaceutical Gabriel Baertschi company with a strong commitment to innovations in pain indications. Pain has many faces. Global CEO It can be pulsing, aching, sharp, dull or even drilling. Grünenthal Group Even when comprehensive pan-European data quantifying the effect of pain on society are missing, what we know already is deeply concerning. Pain is one of the most common reasons for which people seek medical attention. The estimated direct and indirect healthcare costs for chronic pain disorders in European Member States vary from 2 % to 3 % of GDP. For 2016 this estimate would result in 294 – 441 billions of €. This is an impressive sum. Pain is a healthcare problem impacting functioning and quality of life, associated with sleep disorders, anxiety, depression, and low self-esteem, among many other symptoms. For pain as a health condition, expertise is spread unevenly across the EU member states. Quality standards on postoperative pain and access to pain therapy are urgently required. Patients dealing with headache, in need of cancer pain treatment or palliative care often have poor access to adequate pain treatment.
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