SUMMER 2013 city - southern new york chapter MS Connection Newsletter

INSIDE 03 04 07 09 Women on chapter volunteer research THIS the move news corner ISSUE luncheon 2 MS connection: summer 2013 join the movement: www.MSnyc.org 3

Publication of the national Letter from the multiple sclerosis society, new york Fashion is Always in city - southern new york chapter chapter president 733 third avenue, new york, ny 10017 Style When it’s for a 212-463-7787 Summer is here! Sunny days, which are often hazy, hot, and Chairman humid, are upon us; children Good Cause! Michael L. Norton have exchanged their books and Vice Chairman school attire for shorts, t-shirts Join us on Wednesday, September 18 at the 8th Annual Women Peter Goettler and lots of sunblock. It’s a time for vacations, firing up the grill on the Move Luncheon, where women living with multiple scle- Chairman, for backyard barbeques, settling into a comfy chair outdoors rosis will take to the runway in an effort to raise funds for the Clinical Advisory Committee to read a good book, or simply enjoying time with family and – Southern New York Chapter of the National Fred Lublin, MD friends. Multiple Sclerosis Society. Secretary For those living with MS, this time of year, in all its beauty, Jeffrey L. Silverman Allison ripka (center) and friends at This year’s fashion show is once again sponsored by Blooming- can trigger a temporary worsening of symptoms. In this issue, Treasurer the 2012 women on the move luncheon dale’s and will feature recreational and fitness attire to highlight both our Community Resources and Hispanic Outreach articles the variety of recreation and fitness programs the chapter pro- Malcolm P. Wattman, Esq. share sound advice on “beating the heat” and two volunteers vides for people living with MS. President share why they give back their time and talent. The 8th Annual Robin Einbinder, LCSW, MPH Women on the Move Luncheon “It is important to Bloomingdale’s that we support charitable Editors As always, we’ve included listings for ongoing programs, services Wednesd ay, September 18, 2013 initiatives in neighborhoods where we have stores,” says Anne and events for those living with MS, their family and friends to Liz Samurovich Trump National Golf Course, Keating, senior vice president of public relations and corporate Daphne Mack participate in. 339 Pine Road, Briarcliff Manor, NY philanthropy for Bloomingdale’s. “We are thrilled to support the Designer However you choose to spend these few months of designated Visit www.MSnyc.org or call New York City – Southern New York Chapter of the National Caitlin Tolchin 212-453-3235 to purchase tickets. downtime, remember we are here for you and encourage you to MS Society and MS research, reinforcing that giving back truly stay involved in the effort we have forged to create a world free is stylish.” Connect with of MS. Cooler days are ahead. Please enjoy reading this issue and enjoy your summer! us online: www.MSnyc.org [email protected] Sincerely, Like us: facebook.com/NYC SouthernNY Robin Einbinder Follow us: President twitter.com/NMSS_ On the Cover: NYCSNY Ann Marie Johnson striking a pose as she walks the Catwalk at the 2012 Women on the Move Luncheon. 4 MS connection: summer 2013 join the movement: www.MSnyc.org 5

chapter news say there is no cure for MS (but) I disagree. direct and indirect costs of MS, including lost Marissa plans to study Neuroscience in the fall My willpower is my cure. MS doesn’t have me.” wages — even for those with health insur- at Tulane University. She says the scholarship,

ance — are estimated at more than $70,000 “…brings me one step closer towards She plans to attend the State University of New Four Named annually per household. This makes fund- entering the field of neuroscience and York at Stony Brook in the fall to study Biology. ing a college education that much harder. truly helping to create a world free of MS.” 2013 Scholarship The Society established its scholarship pro- Program Recipients gram 10 years ago and it immediately became a source of great encouragement for families Congratulations to Flavia Tomori of Ridge- concerned that MS might put college out of wood, Sarah Paschkas of Pound Ridge and twin sisters Danielle and Marissa Raskin of Brook- reach. This year, 423 new awards and 257 lyn the 2013 recipients of the New York City renewals totaling $1.1 million were present- – Southern New York Chapter of the National ed nationwide. Applications are evaluated on MS Society’s annual Scholarship Program. financial need, academic record, leadership and volunteer activities, a statement of educational This program helps students affected by and career goals, and letters of recommenda- multiple sclerosis pursue a college or techni- Danielle and marissa raskin tion. Applicants were also asked to provide a cal school education. It is open to high school personal statement describing the impact MS seniors who live with MS or have a parent Danielle and Marissa have watched MS take SARAH Paschkas has had on their life. Scholarships can range who does; or anybody living with MS who away their father’s ability to walk and, in recent from a minimum of $1,000 to $3,000 max per has not yet attended a post-secondary school. Sarah’s mother was diagnosed with MS when years, work. Sarah was 10 years old. Now a senior at Fox Lane year. High School, she says her mother’s tenacity in “Due to his dwindling independence, my the face of MS has been an inspiration to her. mother’s full time job is taking care of him,” said Danielle, a senior at Eleanor Roosevelt High “I can honestly say that my mom is one School. “This not only puts a financial strain SAVE THE DATE of the most amazing people I know. She is on the family, but an emotional one as well.” smart, strong, kind, practical, and when the

situation calls for it, incredibly stubborn.” Marissa, a senior at High School of Science, concurs adding, “This situation has Sarah, who plans to attend the New Hampshire created a constant source of stress in addition Institute of Art in the fall to study Art Educa- to the pressures of academics and extra- tion, says this scholarship means, “I will have curricular (activities.)” flavia tomori more funds available to buy the supplies I will The 6th Annual MS Brain Games Flavia, a senior at Forest Hills High School, need, as an art student, to turn my wild ideas Danielle, who plans to study Social Sciences at was diagnosed at the age of 16 with MS. She into realities.” Pomona College in the fall, says, “The value of Monday, October 7, 2013 says, “Sometimes the only way you know you’re In addition to the emotional toll, MS can have this scholarship is invaluable to the opportu- strong is when you have no other choice. They a substantial financial impact on a family. The nities it creates for both me and my family.” 6 MS connection: summer 2013 join the movement: www.MSnyc.org 7

rest stops, bike mechanics, a full meal and sup- Get in Gear for port vehicles. Invite your family and friends to cheer as you cross the finish line and cel- Volunteer corner ebrate with great food, music, a beer gar- Bike MS Nyc den, massage area and photo opportunities. Jennifer Medina was 17, a junior in high school and a top collegiate recruit for soccer, when she was officially diagnosed with multiple sclerosis. Bike MS NYC has a required fundraising minimum of $150 and a registration fee of "While finding out I had MS was truly awful news for $50. The registration fee increases to $75 on Jennifer (second from left) with friends. my family and I,” explained Jennifer, “receiving an actual September 6 so sign up today! diagnosis was also, to me, an extreme relief given I had literally questioned whether or not I was going crazy."

Register at www.bikeMSnyc.org or call “ MS does not She said as her treatment began, her symptoms dissi- 212-463-9791 for more information. define who we are pated and she was able to resume her studies, play soc- cer again and the following year earned an athletic scholarship to University of California at Berkeley. but is something It would be 12 years later, upon moving to New York that inevitably City and connecting with the New York City – South- ern New York Chapter, that Jennifer, for the first receive msconnection and our mission is contagious. reshapes how one time, would meet others living with MS in person. through email thinks about his/ Learning quickly about the chapter’s vast resources and listening to and then connecting those newly diagnosed Receive MSConnection, the quarterly her life moving with MS to those resources, led Jennifer to train as a newsletter, via email to save on printing peer counselor and co-facilitate the Newly Diagnosed program which five years later she says, “I'm still doing it and Register today for Bike MS New York City and mailing costs, in addition to forward.” love it.” taking place on Sunday, October 6, 2013 at providing you with timely and relevant Pier 94 in Manhattan. Once again, the ride will She said as a Mental Health Counseling graduate student the experience taught her the dif- offer three unique routes – the 30 mile traf- information in a format that works best ferences between being a peer versus a mental health counselor. fic-free route takes riders along the Franklin for you. If you would like to receive D. Roosevelt Drive, Harlem River Drive and MSConnection by email only, please the West Side Highway; the 55 and 100 mile To learn more about becoming a Peer Volunteer contact Moyra Rondon at 212-453-3237 routes take riders through the Holland Tunnel email [email protected]. or email [email protected]. traffic-free and up into Rockland County on open roads. The event is fully supported with 8 MS connection: summer 2013 join the movement: www.MSnyc.org 9

ACTIVISM Trustees for the chapter, became engaged You’ll have established a relationship with ance in people with MS. This study involved as an activist, helping to lobby elected that person that can be useful in the future.” 60 people split into two groups: people officials. “My role changed from a pol- who experienced fatigue and people who Retired Legislator icy-maker and legislator to one where Are you interested in volunteering your time did not. Both groups performed individu- I focus in on a particular issue and use my as an MS Activist? Contact Eugene Veigl, alized endurance exercises using treadmills. Marty Rogowsky relationships to help open doors,” says Marty. Director of Advocacy at [email protected] or call 212-453-3238. After six months, both groups showed When it comes to honing in on an issue RESEARCH improved oxygen consumption. However, Joins the MS Advo- and pursing it, Marty has a wealth of ex- those who started out with fatigue showed perience. One of his singular accomplish- improvement in their fatigue scores, but it cacy Movement ments was to consolidate the county’s sewer EXERCISE & THE BRAIN took at least nine months of the program to system, consequently lowering sewer taxes by Bruce Bebo, PhD see a difference. So while you may not feel by 50%. In addition, he prevented the ex- the effects of exercise at first, persistence can pansion of the county airport, thereby mak- Emerging evidence across the board suggests pay off! ing good on a campaign pledge. Marty en- that exercise doesn’t just keep us physically joyed serving in public office and making fit, it helps our brain function better, too. ExerciseS FOR THE BRAIN Scientific presentations on exercise, rehabili- a difference in the lives of his constituents. Some very interesting data illustrating how Now, he is working to make a difference in tation and quality of life issues at the Ameri- can Academy of Neurology’s annual meeting the brain reorganizes to adapt to MS damage the lives of a new constituency, one that is was presented by a research team from the San close to his heart. “I can bring perspective in March suggest this holds true for people living with multiple sclerosis, as well. Raffaele Hospital in Milan, Italy. This team to how the legislative system works at the looked at the impact of a 12-week computer- federal, state and local level and help make assisted course that focused on training to in- sure that the right people are seen,” says Exercise’s good effects crease memory and attention (the course was Marty. Of primary importance to him is to A small study from National Multiple previously reported to improve attention and ensure that Medicaid funding for services Sclerosis Society-supported scientists at the executive thinking abilities). Using function- for people living with disabilities is not cut. Kessler Research Institute in New Jersey al MRIs, which allows a real-time glimpse of found that 30 minutes of aerobic exercise the brain at work, they found indicators that From a practical perspective, Marty encour- Westchester County Legislator Marty done three times a week over three months brain activity had increased in specific areas. ages people to get involved at any level as Rogowsky’s retirement from public service improved memory and increased the vol- This improvement appeared to persist at least a grass-roots activist. “People like to make gave him the time and opportunity to join the ume of the hippocampus, a part of the brain six months after the training was completed. a difference and may not know how. The MS movement as an advocate for the chapter involved with memory. These preliminary easiest way to do it is to get involved in and commit his energies to supporting the results will hopefully encourage further Researchers from Milan and from Kessler also local issues that are important to you. legislative agenda for people living with MS. studies that will yield more definitive con- reported that people with MS with more “brain Get to know the people who are decision- After 13 years serving as an elected official clusions and maybe even recommendations. reserve” (larger brain size) and more “cognitive representing Harrison, Port Chester and Rye makers. It may be that your local school reserve” (increasing the ability to withstand or Brook Marty, whose wife Tobi Rogowsky is board member sits on a committee and is a Another study examined the potential of postpone MS-associated decline in cognition living with MS and serves on the Board of decision-maker and one day runs for office. longer term aerobic exercise to build endur- with activities such as doing puzzles or playing 10 MS connection: summer 2013 join the movement: www.MSnyc.org 11

music) were at lower risk for cognitive changes chapter serves. Susan was diagnosed with REHAB inpatient rehab services, it is offered at either associated with brain lesions. Even when brain multiple sclerosis in November of 2009 an acute level or a sub-acute level. Members size is accounted for, those with more cognitive shortly after giving birth to her second and of the rehab team may include the physi- reserve appear to have lower risk for cognitive now last child due to MS. Rehabilitation and cian, nurse, physical therapist, occupational changes. therapist, speech therapist, neuropsycholo- “My sister has relapsing-remitting MS and Multiple Sclerosis gist and the social worker. The acute level is There’s nothing any of us can do about the size her lesions are primarily on her spine,” a program for three hours a day for at least of our brains. But growing evidence suggests that explained Jennifer. “She experiences pain and Michelle Stern, MD five days a week where patients are seen by a people may be able to build cognitive reserve numbness in her limbs daily which makes Chairman, Dept. of Rehab Medicine, physical therapist and an occupational thera- by engaging in enrichment activities (Words walking a challenge especially when she has North Bronx Health Care Network Associate Clinical Professor, pist. As needed, the patient can also be seen with Friends anyone?). It’s exciting to think flare ups and has to use a cane.” Albert Einstein School of Medicine by a speech therapist as part of their program. that actions we can take, such as some mental Jennifer said Susan also struggles financially and physical training, can actually alter brain and has been on short-term disability three While medications play a key role in the The average length of stay for inpatient acute circuits, improve brain activity and possibly times since being diagnosed. treatment for MS, rehabilitation (rehab) and rehab is two weeks, with the expectation of help slow the progression of MS. the different components of services avail- being able to return to the community after “It physically makes my heart hurt, thinking able can help improve your functional abil- the stay. For those who need a longer pro- Summaries of the meeting can be viewed on the my nephews will be robbed of experiencing ity. This article will discuss the various team gram, a sub-acute rehab program is available, AAN’s website at www.abstracts2view.com/aan, their wonderful mother 100 percent and that members for rehab services and what they which offers therapy for one hour a day for at or visit www.nationalMSsociety.org/research for can offer. they will have to see her suffer,” said Jennifer. least five days a week. This program is slower an overview of MS-related research presented at “My sister deserves to dance with her sons The physician who specializes in Physical paced and typically patients may stay one to the meeting. at their weddings 20 years from now, on her Medicine and Rehabilitation is also called a two months. The eligibility for various re- own, no cane, no wheelchair and no pain.” physiatrist. The role of the physiatrist with hab programs is different depending on your The chapter has been of assistance to Susan MS patients is to perform a medical/func- insurance plan. It is important when choos- LIVING WITH MS providing her with a large in-window air tional assessment. Physiatrists have train- ing an insurance plan that rehab benefits for conditioner free of charge. People living with ing in managing symptoms related to spas- both the inpatient and outpatient setting are MS may experience a temporary worsening ticity, pain and bowel/bladder issues which explored. of their symptoms when the weather is very may be treated by medications or injec- hot or humid. tions. They are also involved in developing Listed below is a general overview of the a therapy program and ordering equipment. different roles of the therapists: “They have also provided us access to Equipment needs may include wheelchairs Physical Therapist – Focuses on helping information, resources and more importantly (manual or motorized), scooters, walkers patients regain their mobility. Through ex- hope,” said Jennifer, who participated in her (standard, rolling or hemi) or canes. Other ercises and specialized equipment, the main fourth Walk MS Staten Island in April with equipment includes orthotics (such as an an- role of the physical therapist is to help “Team Kapluchi”. kle/foot orthosis) or bathroom equipment. improve ambulation, regain strength and Siblings jennifer, susan, stephanie and philip balance training. They will work to help Jennifer Paolucci’s sister Susan Musetti, of Rehab services can be offered in an inpatient or improve your ability to transfer from differ- Staten Island, is one of the 10,000 that the outpatient setting. For MS patients requiring ent level surfaces, how to get up from low 12 MS connection: summer 2013 join the movement: www.MSnyc.org 13

surfaces and help choose the right assistive hot or humid. These changes can result from Equipment – Miscellaneous). If your health No hay evidencia de que el calor empeore device, if needed, to improve gait. They can a slight elevation in core body temperature. insurance denies your request contact us for la enfermedad, pero sí afecta el paso de los also use modalities such as manual massage, Heat does not generally cause more disease a cooling equipment appeal letter. mensajes en los nervios y puede causar sen- hot/cold packs and ultrasound to help man- activity, but if you are one of those that are sación de debilidad en los brazos y piernas For a listing of national vendors, please call age pain symptoms. adversely affected, it can be very uncomfortable. o fatiga. Esto puede pasar también luego de 1-800-344-4867, option 1 realizar un ejercicio vigorosamente o en la Occupational Therapist – Focuses on adap- You are already cool – but here are some tips In addition, the following organizations have fiebre. Recuerde siempre consulte con su tive equipment and activities of daily living. for staying cool: limited cooling assistance programs: profesional de salud cualquier preguntas so- They will work on upper extremity function • Find an air conditioned environment dur- • MS Association (MSAA) – bre sus síntomas de la esclerosis múltiple. and the person’s ability to dress, bath, and toi- ing those dog days of summer. An air con- let and groom as well the ability to perform www.mymsaa.org/msaa-help/cooling/ or call ditioner is tax deductible if you have a pre- A continuación hallará unos consejos que le household duties. They can also fabricate 1-800-532-7667 scription from your doctor. pueden ayudar a mantener el cuerpo fresco. splints for the upper extremities as needed • Wear lightweight clothing – natural fibers • MS Foundation (MSF) – • Tome muchos líquidos, especialmente agua and be part of wheelchair evaluations. Some are best www.msfocus.org/Cooling-Program.aspx or fría. Evite la cafeína pues tiene un efecto diu- may have training for visual rehab programs. • Icy drinks are tasty and are very helpful call 1-888-673-6287 (Feb. 1 – June 1 only) rético. • Exercise in a cool room, with a fan or in Speech Therapist – Focuses on treating • National MS Society (NMSS) NYC – • Use abanicos, aire acondicionado o bote- a pool (make sure the water is less than 85 symptoms related to swallowing, language Southern NY Chapter – llas con atomizador/rociador. La compra de degrees) and cognitive issues. http://www.nationalmssociety.org/chapters/ aires acondicionados puede ser deducible de • Wear a cooling device: vests, wristbands, Neuropsychologist – Can evaluate for cog- nyn/programsandservices/financial-assistance-/ impuestos con un documento de su médico. neck/ankle wraps, hats and shirts nitive issues as well as help with symptoms index.aspx or call 1-800-344-4867, option 1 • Haga ejercicios en un ambiente fresco. related to depression, pain or anxiety. Here are some things to consider when pur- Escoja la parte del día que sea más fresca. chasing cooling equipment: Use aires acondicionados o abanicos para While the neurologist may play the main en espaÑol • What is the total cooling time of the gar- mantener la temperatura corporal a un nivel role in the treatment of MS, there are other ment? apropiado. Ejercítese en agua templada (se health care professionals whose services can • What is the cooling garment made of? Manténgase Fresco recomienda entre 80 y 84 grados oF); es una help improve quality of life and function and • What is the garment’s weight? manera excelente de combatir el calor duran- should be incorporated as needed. • Since garments utilize different types of este Verano te la actividad física. cooling mechanisms (e.g., ice packs, evapo- Traducción por: Maria Reyes- • Utilice ropa diseñada para enfriar el cuerpo community resources rative cooling, phase-change), which would Velarde, MD, MPH como chalecos, bandas en la cabeza y cuello work best in your climate? que muchos atletas utilizan. Una toalla hú- • Is the garment designed to fit under or over Para muchas personas, el calor intensifica tem- meda, sombreros de ala ancha y ropa holgada How Cool is This? regular clothing? poralmente los síntomas de la esclerosis múlti- de colores claros también pueden ayudar. • Will you need to purchase extra cool packs ple. La fatiga, la debilidad y los problemas • Trate “enfriándose previamente” metién- Blue skies, warm sun, sandy beaches…sounds to maximize the use of the garment? visuales son algunos de los problemas que dose en una tina con agua templada. Ésto great, doesn’t it? But for some people with • Will your health insurance cover this item? pueden incrementarse cuando la temperatura disminuye los efectos del calor generado en MS they may experience a temporary wors- (If needed, the insurance billing code for del cuerpo aumenta tan poco como un solo el ejercicio y retrasa el tiempo que toma en ening of symptoms when the weather is very cooling products is E-1399: Durable Medical grado. aumentar la temperatura corporal. 14 MS connection: summer 2013 join the movement: www.MSnyc.org 15

• Un baño o duchazo frío también puede Visit our webpage supportgroups.MSnyc.org workplace disclosure, social security ben- ayudar a reducir la temperatura corporal for a complete group listing including new efits, need a reasonable accommodation or luego de la actividad física o de exposición al programs and services calendar group offerings in NYC for families, our are you thinking about returning to work? calor. Coping with MS group in Sullivan County, Employment specialist Barbara McKeon, August – October 2013 and an online support group. Some groups, CRC, LMHC, Director of Employment, No deje que el calor lo desanime. ¡Encuen- Unless otherwise indicated, to get more like the group for those newly diagnosed with will be available to address your questions tre las estrategias que funcionan para usted y information and to register, please call MS, are ongoing. regarding employment concerns for people disfrute del verano! living with MS. 1-800-344-4867, option 1 or visit MSnyc.org. For information about self-help groups and peer counseling, contact Moyra Rondon at moyra. september [email protected] or call 212-453-3237. Living with MS in your 20’s and 30’s Ask the Human Resources Expert Recreation and Wellness Programs Wednesday, September 18, 2013, 3 p.m. ¡Ojo al otoño! For anyone in their 20’s and 30’s who has 733 Third Ave., 3rd Fl., New York, NY 10017 MS there is a monthly support group meet- Starting in October. Join in for personalized sessions, in a small ing held on the third Wednesday of June, Recreation and Wellness programs to promote group setting, with Human Resource profes- Día Para Familias Hispanas July and August from 6-8 p.m. at 733 Third health and wellness for people living with MS. sionals to review your resume and answer ques- Avenue, Third Floor, NY, NY 10017. Multi-week groups take place throughout Viviendo con Esclerosis Múltiple tions you may have regarding your job search. For information contact Moyra Rondon NYC and Southern NY counties. Join the For details and to register call 212-453-3218 Fecha por determinar en noviembre at [email protected]. movement!! or email [email protected]. del 2013 Social Group ACCESS the APPLE, – A Community Annual Research Symposium Meets on a monthly basis. Excursion Program ¡Acompáñenos para un día especial de cono- Orange County: Meets on the last Saturday September 28 and 29, 2013 cimiento sobre la esclerosis múltiple, cele- of every month from 10 – 11:30 a.m. at The chapter will host community-based out- 12- 4 p.m. bración de cultura, baile, y placer para la Starbucks, 51 Orange Plaza Lane, Middle- ings. Participants will learn how to “Access Taking place in New York City and in South- familia entera incluyendo un almuerzo latino town, NY 10940. the Apple” and experience NYC firsthand regardless of their mobility status. Trips will ern New York. Advances in MS research will delicioso! Este evento es gratis y ofrecido to- SUPPORT programs be planned to a variety of events. be highlighted by top MS specialists. talmente en español. Inscríbase en octubre al Registration is free and will include lunch. Fall Semester of Support Groups Begins Visit www.MSnyc.org for more information. teléfono 1-800-344-4867, opción 3. Visit www.MSnyc.org for program and regis- in October AUGUST tration information. The chapter offers support groups for individ- Ask the Employment Specialist uals living with MS, as well as their families Meet and Greet: and caregivers. More than 50 professionally Telephone Q &A Session For those Newly Diagnosed led in-person and conference call groups are Wednesday, August 14, 2013 Check website for details organized on a wide variety of topics related Do you have an employment question you to MS concerns, experiences and resources. This program will provide an opportunity, would like answered? Are you curious about for people diagnosed with MS within the last 16 MS connection: summer 2013 join the movement: www.MSnyc.org 17

three years, to network with a group of dedi- Fine Creative Media Noah Daher Instinet Group, LLC OCTOBER list of donors GE Foundation David and Sheila Manischewitz Ironworkers Local 40 & 361 cated professionals representing the various Genzyme Corporation Philanthropic Fund The Isabel Rose Foundation Joseph Geraci David Mastrocola Foundation Kent and Jan Jackman components of a comprehensive MS care Everyday Matters Stephen Girsky Cara Davidson The Jaffe Family Foundation THANK YOU ICAP Services LLC Duwain De Freitas The James And Alvina Bartos team and key chapter volunteers, service pro- Oct 1, 8, 15, 22 and 29 Thomas Moran Domenick Delia Balog Foundation, Inc. News Corporation Jimie Deliteris Jamila Jenkins viders and staff. Family members and friends 6:15-8:15 p.m. FOR MAKING Scott J. Sigal Joseph DePaolo Robert Jossen are encouraged to attend. Simon & Schuster Digital Universe, Inc. JustGive.Org Rockland Independent Living Center Amy Spiros Douglas Drogalis Christos Kalvlas A DIFFERENCE Teva Pharmaceuticals Paul Dunne Kamco Supply Corp. 873 Route 45, Suite 108 Texas Rangers Baseball Foundation Jerome Edge Reesa Kandelshein Relying on the support of caring Liz Edwards Barbara Karr Managing Pain and Sleep Issues in MS New City, NY 10956 individuals, businesses and founda- Gifts of $1,000 to $4,999: Sheila and Colin Edwards Mark Kennedy tions, listed below, the New York Aaron and Susan Lieberman Eli Einbinder Carol Klein September 9, 2013 - Orange County City – Southern New York Chapter Foundation Joanne Enea Jane Krieger For people living with MS, the concept of strives to address the challenges fac- ACS International Resources Bart Epker Howard Kroplick 7 – 8:30 p.m. ing all those who are affected by this Howard Adler Danni Falk Jonathan Kupperman their “best life” can change due to the chal- life-long disease. Your commitment Advanced Health Media LLC Katherine Farley Josh Kuriloff Crystal Run Healthcare and personal dedication helps the Daliah Amar The Fascitelli Family Foundation Charles La Rocca lenges of having a chronic, unpredictable 10,000 people living with MS in the Amazon Publishing Ashley Fina Carol Laufer 95 Crystal Run Road, 3rd floor five boroughs, Westchester, Rock- Robert and Wendy Andreala Michael Fisch Law Offices of Overton, Russell, and life-long disease. This in-person multi- land, Putnam, Sullivan and Orange Mariana Arias Fisher Brothers Foundation Inc. Doerr & Donovan conference room counties, and gives us the tools nec- Argo Tea, Inc. Tommy Fogarty Eric Lee week program for people living with MS, essary to create a world free of MS. Idamiss Arroyo Georges Fraise Alan Legatt Middletown, NY 10941 Contact Shannon Mastroianni at Ask Family Foundation Joel Frank Michael Levitt their support partners and family members [email protected] or Atlas Peak Foundation Franklin & Marsha Berger Sarah Levitt provides an opportunity to learn and dis- 212-453-3241 for more information. Avenue Capital Management II, LP Sean Friedman Gerald Levy September 12, 2013 – Queens Barnes & Noble Booksellers Friman & Stein, Inc. Richard Lewis cuss the various tenets of positive psychol- We wish there was space to Mike Barone Fry Communications Mary Litterman 7 – 8:30 p.m. thank all of our generous donors. Vicky Bashant Paul Galiano Paul Longo ogy and how to incorporate them into their Regardless of your gift’s size, it is in- Brian Beatty Sonia Gardner Pamela Lupo New York Hospital Queens valuable and tremendously appreci- Michael Bebon Dolores Garry Joseph Magliocco lives. ated. The gifts listed here represent Evan Bell Judith Grumet George Maguire 56-45 Main Street- Classroom 3 the generous support of individuals, Heather Bellini Amy Gussack Shalom Maidenbaum corporations and foundations con- Art Benvenuto Gerald J. & Dorothy R. Friedman Inkwell Management Flushing, NY 11355 tributing $500 and above during Neil Bersin Foundation Inc. Peter Manis Janet Pearce Nurse Education Program the period of February 1, 2013 – Kenneth Bitz Lev Gewirtzman Lizbeth Marano April 30, 2013. John Bonanno Martin Glenn Stanley Marlin Friday-Saturday, October 18-19, 2013 Alice Bowman Michael J. Goering Elizabeth Maruggio October 10, 2013 – Brooklyn Wendy Bowman Goldberg McDuffie Communications James and Judith Marsh 8:30 a.m. – 4:30 p.m. Gifts of $100,000 - $249,999: Alvin Brown James and Donna Goldsmith Ellen Bromley McFarland 5:30 – 6:30 p.m. Darren Bryk Sandy and Jim Goodman Andrew McDonald Executive Conference Center The Annenberg Foundation Thomas Gottwald Suzanne McGuire Harbor Hill Residence Pfizer Ronald B. Bruder Rose Marie Campbell Alison Graziano Mediapolis 1601 Broadway, 8th floor John Green Metropolitan Club Managers 5613 Second Avenue – 1st floor Gifts of $50,000 to $99,999: Isabelle Carelli Paul Carlucci Green Mountain Energy Company Mike Miles Activity Room New York, NY 10019 MS Hope for a Cure Consolidated Carpet Craig Gross Erica Miller Deborah Case Hachette Book Group Stanford Miller Brooklyn, NY 11220 Gifts of $10,000 to $24,999: CBRE Jody Haggerty Lisa Monell This 2-day course, designed for nurses, nurse Acorda Therapeutics, Inc. Cenveo Publisher Services HarperCollins Publishers Mike and Judi Monteleone Biogen Idec Michael Cerveris Wayne Heller Catherine Morgan practitioners and social workers in the field Craig Hernandez Kristen Mortimer These two symptoms often cause confusion Credit Suisse Americas Foundation Jon Chappell Yvette and Eric Edidin C. Charney Gregory Ho M&T Investment Group of MS, will include learning experiences from Marissa Hodgkins Ed Muransky and frustration for people with MS, their EMD Serono, Inc. Ji Yeong Chu experts, lectures, case presentations, panel Daria Foster The Claire Friedlander Family Hoffen Family Foundation Ken Murawski loved ones and their healthcare providers. Genentech, Inc. Foundation Richard Hofstetter David Neal discussions and networking opportunities. Novartis Pharmaceuticals Corp Robert Clarke Jason Cohen Doug Hogberg Bill Nelson Susan Sheehan Loretta Cohen Karen Holloman New York Life Insurance Company Both pain and sleep disorders can be treated, Tishman Speyer Properties, LP Ron Cohen Howard M. Holtzmann Monroe Newman Donna and Malcolm Wattman Coloplast The Home T Organic Avenue LLC but it is often hard to understand the root The Combined Book Exhibit Gordon Hoppe Fulvio Pagnozzi David Hoshia Michael Paul Gifts of $5,000 to $9,999: Community Health Charities of causes and determine the best strategies for New York Host Committee Inc. Penguin Group (USA) Beth Maher Family Foundation Sean Convie Linda Hunsaker Valerie Peltier management. Refreshments will be served. Margot Bridger Rita Conroy IBM Employee Services Center Mary Pipino The Broder Family Foundation Inc. David Copperfield ICM Georgia Pollak Josh Coval Marco Cuccagna Adam Ifshin Lauren Pollak Frankel Family Foundation Giovanni Cutaia Jonathan Ilany Eileen Powers 18 MS connection: summer 2013 join the movement: www.MSnyc.org 19

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Early and ongoing treatment with an FDA-approved therapy can make a difference for people living with multiple sclerosis. Learn about your options by talking to your health care professional and contacting the National MS Society at nationalMSsociety.org or 1-800-344-4867 (1-800-FIGHT-MS).

Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. The Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.