Cancer Prevention and Treatment Fund

Annual Report 2012-2013

2 MESSAGE FROM THE PRESIDENT

 We persuaded the federal govern- children, who are often left out of policy ment to improve the public’s access to debates and life-saving deci- information about the safety and sions. As always, we will continue to effectiveness of specific medications advocate for the public on matters that are and medical devices, and to strength- crucial to the health and well-being of en the safeguards that protect patients adults and children nationwide. and consumers.

 We testified before the Food and Drug Administration (FDA) to reject a diabetes drug that could cause bladder or breast cancer, to rescind approval of a breast cancer drug that shortened Diana Zuckerman, Ph.D. rather than prolonged life, and to ban

a surgical mesh that was harmful to prostate cancer patients.

 We helped persuade state legisla- tors to change laws that have resulted In 2012 and 2013, the Cancer Prevention in cancer-causing chemicals in furni- and Treatment Fund helped thousands of ture that then ended up in the dust adults and children get the best possible and air in our homes. medical treatment. We also had a major  We testified before the National Insti- impact on the many invisible government tute for Occupational Safety and policies that can reduce or increase our Health to protect all from risk of cancer. cancer-causing chemicals in our work  Our cancer hotline helped women, places and to prevent those same men, and children across the country. chemicals from poisoning our air and We helped people decide which water. screening tests and treatments were  We updated our free booklet for wom- best for them, and which were likely en with ductal carcinoma in situ to do more harm than good. Best of (DCIS), and made it more widely all, it was supported by our annual available to patients and family mem- Stop Cancer Now 5k, which provides bers across the country. inspiration and consolation as partici- pants run in memory of loved ones  We updated and disseminated a com- lost to cancer and in honor of cancer panion Fast Facts on DCIS for health survivors. professionals.

 We helped people across the country Whether we were explaining well- reduce their risk of cancer and choose established and complicated scientific the safest and most effective treat- information to families and the medical ments. community, or making sense of controver- sial new research on vaccines, medica-  We urged the FDA to require long- tions, or toxic chemicals in toys, we scruti- term studies of safety and effective- nized research and provided useful, under- ness for all medications, implants, and standable, and unbiased information to HPV vaccines, so that consumers patients, consumers, policy makers, and could make well-informed decisions the media. Our research and advocacy for themselves and their children. work continues to represent the interests and needs of ordinary men, women, and

3 PROGRAM AND POLICY HIGHLIGHTS

Cancer Screening and Treatment

Working to Reduce Unnecessary Mastectomies

Every year, more than 250,000 women are diagnosed with breast cancer or "pre-cancerous" condi- tions such as ductal carcinoma in situ (DCIS) that may never become cancer. DCIS and other types of very early breast cancer sometimes will go away without any treatment. Treatment is almost always neces- sary, however, because experts can- not yet predict which cancers will go Helping Breast Cancer Patients Get that information widely available, we can away and which will become danger- the Best Possible Treatment reduce the number of mastectomies and ous. Even so, experts agree that improve cancer treatment at the same more than 75 percent of these wom- There are numerous larger organizations time. We can reach this goal by making en do not need mastectomies if they focused on breast cancer issues, but we are sure that women understand their treat- have access to other, equally safe the only one committed to preventing can- ment options, doctors communicate more treatment options. Yet, as unbeliev- cer and improving treatment. Millions of clearly with their patients, insurance com- able as it may seem, in some parts of dollars are spent on cancer research every panies cover the best treatments, and doc- our country, medically unnecessary year, but not enough doing what we do: tors and patients know the best ways to mastectomies are increasing, not making sure that scientific evidence prevent cancer. decreasing. improves the treatments that patients receive. We disseminate thousands of Some women will undergo a mastectomy copies of our Surgery Choices for Women because the surgery is less expensive than Prostate Cancer Screening May with Early Stage Breast Cancer booklet to lumpectomy—a decision made by their Cause More Harm than Good women across the country, and helped the insurance company, not by them. Some National Cancer Institute update that Prostate cancer is the #1 cancer in will be so frightened by the word "cancer" patient booklet. men in the United States and #2 that they will make a hasty treatment deci- cause of cancer deaths for men, after sion they will later, and forever, regret. We continued to update and distribute the lung cancer. It affects one in six Fully informed of their options and free to first patient booklet specifically targeted to men, two-thirds over the age of 65, choose, some women will decide to have a women with DCIS, as well as a Fast Facts so annual screenings would seem to mastectomy that is not medically neces- on DCIS for Medical Professionals. These be a clear choice for men as they get sary, but thousands more will never even free materials empower women and edu- older. But there is a hot debate with- be told that equally safe—and sometimes cate physicians, so that DCIS patients will in the medical community: do regu- safer—alternatives are available. The Can- better understand their treatment choices lar screenings do more harm than cer Prevention and Treatment Fund is and be less likely to undergo unnecessary good? working with Congress, health profession- mastectomies. These materials were sup- als, and insurance companies to ensure ported by a generous grant from the DC Screening for prostate cancer can be per- that patients can get second opinions, and Cancer Consortium using funds from the formed quickly and easily in a physician’s to improve the quality of care available to DC Department of Health, and also sup- office using two tests: the PSA (prostate- all patients. ported by a generous grant from the Jacob specific antigen) blood test and the digital and Hilda Blaustein Foundation. rectal exam (DRE), a manual exam of the

prostrate area. By explaining complicated research results

into clear, everyday language and making However, an infection or other minor

4 “I sailed through the surgery, and am thrilled – a dramatic change in course for me after discovering your work. My gratitude to you is beyond words.” —Harriet Lerner, psychologist and best-selling author of The Dance of Anger

health problem can also elevate PSA levels, the law. which tend to rise with age. In fact, 60% to 75% of men with high PSA levels that undergo biopsies do not have cancer. In Fall 2012, an epidemic of fungal menin- Unfortunately, the biopsy itself can cause gitis was determined to be caused by con- infections and more serious problems. taminated painkillers sold by compound- ing pharmacies. Investigative reporters The U.S. Preventive Services Task Force also discovered that some compounding recommends against screening healthy pharmacies had sold diluted cancer drugs men of any age for prostate cancer. They the products are considered that were too weak to be effective. In determined that the PSA test, with or with- “substantially equivalent” to others November, 2012, Rep. Ed Markey (D-MA) out other screening tests doesn’t save lives on the market, a loose definition held a press conference and invited our and too often results in needless tests and that does not require that they be president, Dr. Diana Zuckerman, to speak treatment with life-altering consequences. made of the same material or use a in favor of new laws to prevent this from For example, between 1986 and 2005, a similar mechanism of action, they happening again. million men in the U.S. were treated for can be sold in the U.S. It’s not sur- prostate cancer with surgery, radiation A year later, in November 2013, Congress prising, therefore, that many of therapy, or both. According to the Task finally passed a law to provide patients and these devices are later recalled Force, 5,000 of those men died following consumers with better protections against because they are found to be danger- the surgery, as many as 70,000 had seri- ineffective and unsafe drugs made by com- ous. In addition, the vast majority of ous complications, and 200,000 to pounding pharmacies. We will examine prescription drugs and implanted 300,000 suffered incontinence, impo- the impact of this new law to make sure it devices are approved on the basis of tence, or both. is effective. short-term safety and may not be Does that mean that PSA tests are never a proven safe for long-term use. We good idea? No. First of all, the Task Force are working to improve these poli- Preventing Cancer is only recommending against general cies to prevent products meant to screening for all men, not testing for men help us from harming us. We’re Spreading the Word: Radia- with symptoms. We scrutinized the results tion from Cell Phones May Cause carefully and concluded that although Brain Cancer – and if you keep it in annual screening does more harm than New FDA Safeguards your bra—breast cancer. good for the general population of men At our urging, the Institute of You love your cell phone, but is it a hazard over 50, men with possible symptoms, recommended improvements to the FDA to your health? Approximately 1 billion such as blood in the urine, should be review process for medical devices. They people use cell phones worldwide, with screened (or biopsied). Additionally, we concluded that the FDA was not requiring over 110 million Americans using cell recommend that patients at higher risk— that most medical devices be proven safe phones daily. These devices depend on those who are overweight, African- or effective. The report recommended radio waves that were assumed to be safe, American, or have a family history of pros- completely replacing the system used to but new research tells us otherwise. Stud- tate cancer—ask their doctors about approve most medical devices with a sys- ies indicate that using a cell phone for 10 screening on a regular basis, but not nec- tem based on safety and effectiveness. We years or more increases the risk of being essarily every year. agree. diagnosed with a brain tumor on the side of the head where the cell phone user We worked with Members of Congress and holds the phone. Which Diagnostic Tests and Treat- their staff to improve the safety of medical ments are Best? products as part of the FDA Safety and And then something unexpected hap- Innovation Act (FDASIA). Unfortunately, pened: several women who kept their cell Every year, the Food and Drug Ad- our recommendation that all implants and phones in their bras instead of a pocket or ministration (FDA) reviews thou- other medical devices used by cancer purse, developed breast cancer at a very sands of new diagnostic tests and patients must first be proven safe and young age. other medical devices and allows effective was rejected by several Congres- them to be sold—without first Since the extensive use of cell phones has sional leaders and did not become part of requiring clinical trials. As long as increased dramatically in the last decade

5 “I’m a cancer survivor myself and love to donate to the cause as much as possible. Keep up the good work and thank you. It’s your research that has saved my life.”

--Shane King, Wichita, Kansas and since cancers usually take at least Go over these guidelines with your chil- cially likely to get into liquids from a plas- 15-20 years to develop, it will be years dren and limit their cell phone use. tic container when heated, such as when before research can conclude whether cell one warms a baby bottle. Scientists are We Helped to Ban Dangerous phones cause cancer or not. Meanwhile, concerned about how BPA affects the Chemicals in Plastics well-designed studies indicate that the behavior of young children, and whether it radiation from cell phones can damage When we first started to examine can affect the prostate, breasts, and brain. DNA in sperm, suppress the immune sys- research on plastics that affect hor- For example, BPA could potentially tem, and increase the risk of tumors, mones, most Americans didn’t know increase the likelihood of early puberty in including cancer. Children are at higher what bisphenol-A or phthalates girls and breast cancer in women, or the risk than adults because of their thinner were—or how to pronounce them. risk of prostate cancer in men. Studies and smaller skulls, which absorb more We explained to policy makers and have also now found that adults with more radiation. journalists what the research BPA in their urine were more than twice showed and why we were concerned more likely to have heart disease or diabe- And, the developing breast is probably that these chemicals interfere with tes than those with the lowest levels, more vulnerable to radiation than many our body’s hormones and may cause according to the study of 1,455 people pub- adult body parts. cancer and other serious diseases. lished in The Journal of the American As a result, these chemicals are Medical Association. banned from many common prod- Precautions You Can Take With our encouragement, major stores ucts today, and that reduces the risk such as WalMart and Toys “R” Us stopped Five years ago, the director of the Univer- of cancer for our children. selling baby bottles made with BPA, and sity of Pittsburgh Cancer Institute, Dr. then several major companies stopped Ronald Herberman, warned his staff that making baby bottles with BPA. Infant the risks from cell phone radiation raise formula companies stopped selling for- concerns. He advised that rather than mula in cans lined with BPA. With com- wait for definitive studies, we should panies now wanting to convince custom- curb our cell phone use immediately. We ers that their products were safe, they agree. asked the FDA to ban BPA in baby bot- Scientists recognize that most people are tles and sippy cups for children under 3, not going to stop using cell phones. Here and in 2012 the FDA announced the ban. are their recommendations on how to However, BPA it is still in the lining of lower your exposure and your risks: nearly all canned food and beverages.

 Limit the number and length of your Bisphenol-A (BPA) was widely used in Phthalates are synthetic chemicals also calls. plastic sports water bottles and baby bot- found in plastic and many everyday prod- tles until our work helped persuade com-  Use hands-free devices, put the cell on ucts—including plastic toys and shampoos. panies to stop using it. BPA is still widely “speaker phone,” or hold the phone They are used to make plastic flexible and used to line almost all food and beverage away from your ear. to add fragrances to soap, room freshen- cans in the U.S., however. ers, and other personal products. Unfortu-  When speaking on your cell phone, nately, these chemicals don't just stay in We think of plastic as being solid, but BPA alternate sides. the products, and phthalates have been leaches out of plastic containers into liq-  Limit your cell phone use in rural are- uids and foods. The Centers for Disease as or anywhere reception is poor. Control and Prevention found BPA in the More radiation is emitted when you bodies of more than 93 percent of Ameri- are farther from a cell phone tower. cans, and the highest daily intakes are in  Text message instead of talking (never infants and children. while driving!) BPA mimics and interferes with estrogen,  Avoid keeping your cell phone in your which is important in reproduction and pocket, bra, or anywhere close to your development. Until recently, many plastic body while it is turned on. baby bottles contained BPA. BPA is espe-

6 “Dr. Zuckerman's pitch as it pertained to various health related issues was absolutely phenomenal. Her ability to touch on very important issues of health in a small amount of time was not only informative, but contributed immeasurably to the success of our kickoff.”

—Sammy Payne, Deputy Chief of Staff G-8, United States Army

Despite this progress, children and adults mittees several times over the last few in the U.S. are still exposed to phthalates years to point out the risks of atypical anti- in many other products, including sham- psychotics such as Seroquel, Zyprexa, poo, soap, lotions, food packaging, phar- Risperdal, Geodon, and Abilify. These maceuticals, and medical devices and tub- drugs were originally approved for the ing. We are now working with state and treatment of delusions, hallucinations, and city legislators, the FDA, and the media to other forms of psychosis that are symp- explain the risks and persuade government toms of schizophrenia and manic depres- officials to require clear labels or restrict sion. However, most of the 30 million phthalates in those products. prescriptions filled each year in the U.S. are for other symptoms such as depres-

sion, anxiety, insomnia, or behavior prob- Did You Know: Obesity Increases lems typical of ADHD or Alzheimer’s dis- found in indoor air and dust and in human the Risk of Several Types of Cancer ease. These drugs have serious risks, urine, blood, and breast milk. Levels are including sudden death, but the most com- Everyone knows about the obesity highest in women and children ages 6 to mon risk is rapid weight gain, which epidemic and its impact on diabetes, 11. African Americans have higher levels increases the risk of diabetes and also but obesity causes other health risks of phthalates in their bodies than whites. increases the risks of breast cancer, pros- as well. Girls and boys are starting tate cancer, and other cancers. With more Research indicates that boys exposed to puberty as early as 8 years old, and than 35 million prescriptions filled each phthalates may be more likely to develop one reason is that obesity affects year, the impact of these drugs on cancer smaller genitals and undescended testicles. hormones—and that could also rates could be substantial. Boys who are born with undescended testi- increase the risk of breast cancer, cles are more than twice as likely to prostate cancer, colorectal cancer, What kind of medical products can reduce develop testicular cancer when they are and some other cancers. The risk of the risk of obesity and therefore also teenagers or young men. Phthalates are obesity may be increased by BPA, reduce the risk of cancer? Many Ameri- also believed to affect girls' hormones and phthalates, and other chemicals that cans are turning to bariatric surgery and recent studies show a link between chil- influence hormones and fat cells. medications to help them lose weight. dren’s exposure to phthalates and the risk Most of these products work at first, but a In addition to our activities regarding BPA of asthma, allergies, and bronchial year or two later, many patients weigh as and phthalates described in the previous obstruction. Studies by Harvard research- much as they did to begin with – some- section, the Cancer Prevention and Treat- ers have shown phthalates may alter times even more. The FDA has required ment Fund scrutinized new research to human sperm DNA and semen quality. long-term studies to determine the long- determine other potential causes of weight term safety and effectiveness of different As a result of our meetings with Members gain that could increase the risk of cancer. medical products aimed at weight loss, but of Congress and their staff to explain our Obesity is caused by eating more calories in the past the FDA has not always concerns about phthalates and to ask them than you burn up from physical activity, enforced those requirements. We are urg- to protect our children, a law passed to ban but some popular prescription medica- ing them to do so now. phthalates from children’s toys and child tions drastically increase care products sold in the U.S (such as appetite and obesity. teething rings and plastic books) as of Feb- Some of the drugs that ruary 2009. However, testing to ensure are especially likely to these products are actually phthalate-free cause obesity are did not begin until January 2012 in order “atypical antipsychotics,” to give small businesses time to comply which are taken by more with the new law. Meanwhile, thanks to than 30 million Ameri- our work, major retailers such as Wal- cans each year. Mart, Target, and Babies "R" Us have removed children's products containing Our President Dr. Diana phthalates from their shelves. Zuckerman testified be- fore FDA Advisory Com-

7 “The American system works on checks and balances and it helps me sleep better at night knowing you all are keeping government agencies honest.”

—John H. Powers, III M.D., Olney, Maryland

Congressional Testimony,  Dr. Zuckerman was an invited speaker ing on the need for better post-market Briefings, College Lectures, and at the annual Cancer Awareness pro- surveillance of medical products on Speeches gram for employees of Blacks in Gov- September 10, 2012. ernment and the Department of The Cancer Prevention and Treatment  In collaboration with the Maryland Energy on April 18, 2012. She Fund provides policymakers, health pro- Women’s Healthcare Reform presented on ways of preventing fessionals, and other opinion leaders with Committee, we worked to improve the cancer. an unbiased explanation of scientific data implementation of the Affordable so that they can make educated decisions  In May 2012, we drafted and signed a Care Act in Maryland, aimed at reduc- that affect everyone in our nation. Our letter from the Patient, Consumer, ing restrictions on coverage for research and advocacy work represents the and Public Health Coalition to the women, October 2012-September interests of ordinary women and families, FDA urging restrictions on the use of 2013. who are often left out of policy debates. cancer-causing substances in the coat-  Dr. Zuckerman spoke at a Capitol Hill We educate leaders in our nation’s capital ings of drugs and medical devices. press conference about unsafe com- and across the country.  Dr. Sonia Nagda, Senior Fellow, testi- pounded drugs and the implications  We hosted two free working confer- fied before the FDA’s Oncologic Drugs for cancer patients in Washington, DC ences to improve the safety of medical Advisory Committee on semuloparin, on November 14, 2012. products, attended by approximately a drug that prevents blood clots in  Dr. Zuckerman testified at an FDA 100 senior staff from health charities patients taking chemotherapy on June meeting about the risks associated as well as patient representatives, on 20, 2012. with lowering standards for approving February 9, 2012 and on April 10,  Brandel France de Bravo, Director of medical products on December 5, 2012. Communications, testified on June 21, 2012.  Dr. Diana Zuckerman, President, was 2012 at an FDA Advisory Committee  Brandel France de Bravo testified at a guest lecturer at a pharmacy gradu- meeting on the safety and efficacy of a an FDA meeting on drug safety and ate course at the University of Mary- device to be used during lumpectomy risk on December 12, 2012. land, Baltimore, February 27, 2012. to examine margins of breast tissue removed for cancer cells.  Dr. Jennifer Yttri, Senior Fellow, testi-  On March 8, 2012, Dr. Zuckerman fied at an FDA meeting on the risks made a presentation to about 100  Dr. Zuckerman spoke before the associated with expedited approval of women at the Ninth Annual Summit Essential Health Benefits Advisory drugs on December 18, 2012. and Training Conference of Executive Committee of the Maryland Health Women in Government, held at the Care Commission regarding the  Dr. Yttri testified at an FDA meeting Chamber of Commerce. She discussed implementation of the Affordable regarding creating an alternative ways to reduce stress and prevent Care Act in Maryland, and the need approval pathway for certain drugs cancer, and distributed 100 copies of for breast MRIs for screening under intended to address unmet medical the Survival Guide for Working certain circumstances, August 6, 2012. need in Silver Spring on February 4, Women (and Other Stressed-Out 2013.  On August 23, 2012, Paul Brown, Adults). Government Relations Manager, par-  Dr. Mary Carol Jennings, Senior Fel-  Dr. Zuckerman was a guest lecturer at ticipated in a meeting with Consumer low, testified at an FDA meeting on a health policy course at George Product Safety Commission Chairman the risks and benefits of a new drug to Washington University, April 12, Inez Tenenbaum and the American treat hot flashes, and whether it is a 2012. Chemistry Council (industry trade safer alternative to hormone therapy, group) whether to make the interim which increases the risk of breast can-  Dr. Zuckerman made a presentation ban on three phthalates for children’s cer on March 4, 2013. about complications stemming from products (DIDP, DINP and DnOP) breast reconstruction surgery after  We hosted a free working conference permanent. Animals exposed to mastectomy to the Steering Commit- on March 18, 2013 to improve phthalates are more likely to develop tee of the Women’s Healthcare knowledge about comparative effec- liver and kidney cancer. Reform Coalition in Maryland, April tiveness research and its role in im- 18, 2012.  Mr. Brown testified at an FDA meet- proving the quality of patient care and

8 “Hopefully, every woman finds her way to your Web site. Your article has helped me arm myself with information I will need to select the right surgeon.”

—Annamaria Picollo, Prospect, Oregon

health outcomes, attended by 73 non- FDA meeting on the risks and benefits tion of all Washington, D.C. cancer groups profit leaders, government officials, of virtual colonoscopy for colon cancer and service providers. We offered free and other opinion leaders. screening on September 9, 2013. technical assistance throughout the year and disseminated information on cancer  Mr. Brown testified at an FDA meet-  In September 2013, we submitted prevention and treatment at the Cancer ing on Risk Evaluation and Mitigation comments to FDA on ensuring access Survivor Jubilee in Washington, D.C. Strategies (REMS) in Silver Spring, to adequate information on medical MD on March 8, 2013 and July 25, products. 2013. Dr. Yttri and Paul Brown testi-  In November 2013, Ms. France de Internet and Social Media fied at an FDA meeting on risk com- Bravo submitted comments to the munication on April 29, 2013. Our web site, www.stopcancerfund.org, FDA asking that the FDA ban menthol provides free information on a wide range  Dr. Yttri testified at an FDA meeting cigarettes as has been done with other of topics important to anyone who wants regarding tivozanib, a drug for treat- flavored cigarettes. to reduce their chances of getting cancer or ing kidney cancer, on May 2, 2013.  Dr. Anna Mazzucco, Senior Fellow, increase their chances of getting effective  Dr. Yttri testified at an FDA meeting testified at an FDA meeting on the treatment. Our online cancer hotline ena- on the risks and benefits of a new initiation of clinical trials for two pe- bles anyone to obtain free information renal cancer drug (tivozanib) on May diatric oncology drugs. about their own personal cancer concerns 2, 2013. by contacting [email protected].  On November 20, 2013, we submitted  Dr. Zuckerman testified at an FDA comments on the FDA draft guidance We also reach a broad virtual audience meeting on the risks and benefits of a on Endocrine Disruption Potential of through social media on our Facebook new insomnia drug on May 22, 2013. Drugs: Nonclinical Evaluation. Endo- page (www.facebook.com/ Use of sleeping pills has been linked crine disruptors have been linked to CancerPreventionandTreatmentFund) and to an increased risk of cancer in several kinds of cancer. Twitter account(@cancer_fund). several studies.  On November 20, 2013 we submitted  Dr. Zuckerman was an invited speaker comments on the FDA Safety and In- In Unity there is Clout at an FDA public meeting on the pub- novation Act report on use of demo- lic health implications of efforts to graphic information in clinical trials The Cancer Prevention and Treatment allow device manufacturers to make to improve information about which Fund has a primary role in coordinating modifications to medical products medical products work best for wom- the Patient, Consumer, and Public Health without conducting safety research or en, men, minority groups, and the Coalition, which includes well-respected notifying the FDA on June 13, 2013. elderly. nonprofit organizations such as Consum- ers Union, the Union of Concerned Scien-  Dr. Zuckerman spoke at two Capitol  On November 22, 2013 we submitted tists, the National Women’s Health Net- Hill briefings on the risks associated comments on the NIH Office of Dis- work, Center for Medical Consumers, the with lowering the standards for FDA’s ease Prevention Strategic Plan for National Consumer League, Title II Com- approval of medical products in 2014-2018, together with Trust for munity AIDS Action Network, the Govern- Washington, DC on September 4, America’s Health, asking for greater ment Accountability Project, Our Bodies 2013. investment in disease prevention Ourselves, Breast Cancer Action, research.  In September 2013, we submitted WoodyMatters, and U.S. PIRG. We hosted comments to the California Bureau of  Dr. Mazzucco gave public comments numerous coalition meetings, strategy Electronic Appliance and Repair, on December 16, 2013 on NIOSH sessions, and nationwide efforts to help Home Furnishings and Thermal Insu- draft intelligence on Carcinogen Clas- consumers understand new health infor- lation in support of the revisions to sification and Target Risk Level Policy mation in 2012 and 2013. California’s furniture flame retard- for Chemical Hazards in the Work-

ants, which have been shown to be place, asking for more protections for associated with hormone disruption workers from cancer-causing agents. and cancer. Our staff actively participated in meetings  Ms. France de Bravo testified at an of the D.C. Cancer Consortium, an associa-

9 COMMUNITY OUTREACH AND EDUCATION

National Institute of Envi- the quality of health care while reducing ronmental Health Sciences unnecessary medical tests and ineffective (NIEHS) and the National treatments. Toxicology Program,. She Consumer Reports was honored for her out- standing research on the ABIM (American Board of Inter- health effects of environmen- nal Medicine) Foundation tal pollutants and chemicals, National Physicians Alliance particularly those that affect hormones that can cause Their recommendations include: cancer. Thanks to her leader-  Use mammograms for screening ship, NIEHS is carrying out for early stage breast cancer, not groundbreaking research, PET, CT, or bone scans prevention, and intervention Cancer Prevention and Treat- efforts that are making our homes and  Women under 30 should not have ment Fund 5K Run/Walk communities safer across the country. Her HPV tests to screen for cervical cancer work will save lives by reducing the num- and women over 65 should stop Our annual Stop Cancer Now 5K Run/ ber of Americans who develop cancer being screened for cervical can- Walk raises money for our online cancer related to chemicals in our environment. cer if they have not previously shown hotline, which provides free risk for disease information to anyone who contacts us at  Men who do not have symp- [email protected] toms generally should not be screened for prostate cancer In 2012 and 2013, we held our using a prostate-specific antigen 5K Run/Walk in September on (PSA) test or digital rectal exam the beautiful C & O Canal trail as it can lead to treatments that in the historic Georgetown may do more harm than good. area of Washington, DC. Our 5K attracts a diverse group of participants—cancer survivors Internships and family members, serious runners, occasional joggers, The Cancer Prevention and Treat- parents with their kids and ment Fund was assisted by dogs in tow—ranging in age impressive interns in 2012 and from 5 to 68. It’s a wonderful 2013, including Beverly Ander- way for people to celebrate cancer survi- son, a student at Cornell Univer- In 2013, for the first time, our Health vors and honor those who have lost their sity; Carla Bozzolo, a graduate student at Policy Heroes were not individuals but lives to cancer, either by running, sponsor- University of Maryland’s School of Public instead were three nonprofit organizations ing or pledging. To read more about this that worked together to event, see photos, and view finish times improve screening and and rankings from our most recent race, treatment for all kinds please visit www.cancer5k.com of medical care, includ- ing cancer. We hon- Annual Health Policy Heroes ored key leaders of Awards Luncheon the Choosing Wisely Campaign, On the Friday before Mother’s Day, we which worked with hold an awards luncheon to honor a physicians across the Health Policy Hero. In 2012, we honored U.S. to develop recom- Dr. Linda Birnbaum, Director of NIH’s mendations to improve

10 “You are a champion of many and I appreciate all you do.”

—Jackie Lombardo, Charlottesville, Virginia

Health; Krista Brooks, a student at Tulane University School of Public Health and Tropical Medicine; Nicole Cota, a student at UC Riverside; Jessica Cote, a Fulbright research grant recipient and graduate of Trinity College; Laura Covarrubias, a grad- uate student at Johns Hopkins University’s School of Public Health; Langan Denhard, a behavioral health student at the Univer- sity of Maryland; Elly Field, a graduate of Hamilton College; Jennifer Focht, a gradu- ate student in women’s studies at George Washington University; Abigail Freden- burg, a graduate student in health commu- nications at Johns Hopkins University; Jaime Hastings, a lawyer and graduate student at George Mason University; Kath- erine Ip, a community health student at Lenora had never smoked in her life and the University of Maryland; Laura Jul- lived a healthy lifestyle. Unfortunately, strom, a graduate student at George Wash- women who are non-smokers are at a ington University; Krista Kleczewski, an much higher risk of lung cancer than their undergraduate student at UCLA; Aaron male counterparts, so we are trying to in- Litz, an undergraduate student in commu- crease awareness on this issue. nity health at the University of Maryland; Amrita Ford holds a B.S. in Journalism Danielle Pavliv, a graduate student at from the University of Florida and a Mas- George Washington University’s School of ter's Degree in Medical Science from Bos- Public Health; Isabelle Platt, a student at ton University. She is currently pursuing a Brown University; Monica Purmalek, a Master's in Public Health at George Wash- student at the University of Pennsylvania; ington University. Rebecca Silverman, a global women’s health student at University of Maryland; Austin Van Grack, a graduate of Emory

College; and Prianka Waghray, a graduate student at George Washington University’s School of Public Health; Morgan Wharton, a student at Dartmouth University.

The Lenora Moody Lung Cancer Fellowship

As the Lenora Moody Fellow in 2012, Amrita Ford analyzed current and poten- tial recommendations and health policy issues pertaining to lung cancer. Ms. Ford’s focus was on how to improve pre- vention, screening, treatment, and quality of life for women with lung cancer. This fellowship was made possible by the family of Lenora Moody, especially her daughter Jaime Moody and son-in-law Todd Cregar.

11 MEDIA AND COMMUNICATIONS

In 2012 and 2013, the media turned to the Cancer Prevention and Treatment Fund for timely, cancer-related health and medi- cal information from a credible source. We responded to frequent requests from re- porters and producers across the country for information, comments and interviews. In 2011, Dr. Zuckerman became a regular blogger for Rodale.com and the Huffington Post. The following is just a small sample of our coverage from 2012 and 2013:

1/8/12, Diana Zuckerman, Huffington Post, “Death by Medicine.”

1/9/12, Brett Norman, Politico Pro, “Reps: 5/4/12, Lena Groeger, Msnbc.com/ FDA needs better post-market oversight.” Propublica, “How does the FDA monitor your medical implants? It doesn’t, really.” 1/12/12, Elizabeth Flock, Washington Post Blog, “Breast implants: Fifty long, strange 7/3/12, Anna Yukananov, , “U.S. years.” plans IDs to track safety.”

1/17/12, Marge Berer, BMJ Group 7/18/12, Sabrina Tavernise, The New York blogs “The breast implant fiasco: a scandal Times, “F.D.A. Makes It Official: Chemical of private medicine.” Can’t Be Used In Baby Bottles and Cups.”

1/2/12, Thomas Burton, The Wall Street 3/27/13, John Fauber, Journal Sentinel , Journal, “Device Makers, FDA Agree on “U.S. fraud alert warns of doctors’ ties to Fees.” medical devices.”

3/12/12, Debra Sherman, Reuters, “Consumer Reports taps ire over bad med- ical devices.”

3/12/12, Consumerreports.org/Consumer Reports Magazine (cover story). “CR investigates: Dangerous medical devices, Most medical implants have never been tested for safety.

3/28/12, Michelle Castillo, CBS News, “Investigation: Most medical devices im- planted in patients without testing.”

4/3/12, Diana Zuckerman was interviewed by the BBC about what patients need to know about breast implants

12 NATIONAL BOARDS Board of Directors National Advisory Board

George Thomas Beall The Honorable Rosa DeLauro (CT) Managing Director Ogilvy Public Relations Mark Franekl, PhD AAAS Stephen Bozzo, JD Attorney-At-Law Pat Hendel

Commission for Women Sarah Deutsch, JD

Vice President & Associate General Counsel Phyllis Katz, PhD Verizon Communications Institute for Research on Social Problems Ben Gitterman, MD Associate Professor of Pediatrics and Public Health Rebecca Klemm, PhD Children’s National Medical Center Klemm Analysis Group

Mary G. Hager, MA Harriet Lerner, PhD Writer Psychologist and Author

Nancy Hardt, MD Lisa Lopez, JD Professor and Associate Dean

University of Florida College of Medicine Mary McDonough

Judith L. Harris, JD Actress and Director Partner, Reed Smith Shari Miles, PhD Alan Mendelson, LLD American Psychological Association Axion Venture Partners Judy Woodruff Tiffany Russo The NewsHour, PBS Associate General Counsel Verizon Communications

Omega Logan Silva, MD Former President American Medical Women’s Association

Duchy Trachtenberg Former Commissioner Montgomery County, MD

Susan F. Wood, PhD George Washington University

Diana Zuckerman, PhD President National Research Center for Women & Families

13 DONORS

President’s Circle Tara Russo Terry Inman Dianne and Rick Ammons Debra and William Searing Iris Jones George Thomas Beall Janette Sherman Woody Kaplan Chris Cooper Alan and Ann Simpson Taeho Kim Todd Cregar and Jaime Moody Renita Smith Cathy Knobelauch Marianne Smythe Sarah Deutsch Kitty Lansdale Grace Lee Benjamin Gitterman Circle of Friends Harriet Lerner Anne Hale Johnson Walter Abbamonte Gwendolyn Lewis Nancy Hardt Tim Anderson Rebecca Lichtenfels Judy Harris Marietta Anthony David Lightfoot Catherine Joyce Ellen Bailes Jennifer Luettinger Denise Kane Brent Banks Mimi Mager The Knuff Family Joanna Beitzel Debbie Maiese Omega Logan Silva Kimberly Bello Monali Malaveetil Lisa Lopez Jill Bost Marcia and Herb Marks Alan Mendelson Azuka Boutcher Michele Mazzocco Douglas and Margit Olson Chris Brady Errick McAdams Andrew Rothenberg Elizabeth Braml Kerry McCoy Randy Branitsky Kelly McQueeney Victoria and Roger Sant Wendy Braund Ingrid Mesa Gibbons Sharon Scribner Pearce Mario Bravo Judith Mezzullo Stephen Sheller Ying-Ying Chang Hydi Miller Sarah Stewart Renea Cherepko Constance Morella Susan Wood Lance Christensen Robert Mostow Phyllis Wiesenfelder Jackie Chu Ellen Myerberg Barry and Pamela Zuckerman Wendy Cole Elena and Stuart Nightingale Anne and Leo Zuckerman Kathleen Corey Judy Norsigian Theresa Cowley Adrienne Olson Leadership Circle Hema Dalal Erica Olson Jim Audas, Jr. Helen Darling Jonathan Olson Anne Ayres Kathryn Driscoll June Osborn Florine Bedford Marcia English Anne Owen Lena Blackwell Jorge Esguerra Delores Parron-Ragland Nan Booth Moley Evans Cindy Pearson Stephen Bozzo Anthony Fainberg Tiffany Perry Gerry Cassidy Henrietta Farber Kate Pisano Steve Chasen Krysta Fazalare Anthony Prather Karen Eissner Shannon Flannery Sherman Ragland Tom Fagan Dalene Florez Diana Rebholz Nancy Garrison Donita Fredenburg Tina Regan Mark Giordano Adriane Fugh-Berman Michelle Roberts Steven Grossman Wilma Galang Mary Ann Robles Roberta Gumbel Judy Gerahty Jeffrey Rogers Mary Hager Charlotte Giordano Sabrina Rose-Smith Harvey Harris Justin Giordano Joyce Rudick Darren Hemminger Stephen Giordano Janet Elaine Russo Jonathan Holland Gary Gold-Moritz Noura Salman Alicia Hruz Kevin Hall Becky Sawyer Steve Lambrecht Gale Hastings Jay Schwantes David Massey Marsha Henderson Ryan Scott Brooke McGrath Jenn Hilleary Kim Sedway Claudia Miller William Hruz Jean Silver-Isenstadt Patricia Olson Mounir Ibrahim Denise Sorrell

14 Sandy and Susan Stallsmith Top 5k Fundraisers Evan Stewart Michele Knuff Sarah Taban Margit Olson Jane Taylor Alicia Hruz Alan Thompson Brittany Wilson Bonnie Thomson Tiffany Russo Christina Townsend Michael Jones Duchy Trachtenberg Steven Chasen Elinor Tucker Monali Malaveetil Eric Ullom Jim Parsons William Vaughan Karla Baires Leroy Vestal Lewis Braml Yianna Vovides Karin Argueta Stephen Wallace Denise Sorrell Brittany Wilson Josmin Khatun Carolyn Wolf Terri Azie Eric Yaffe The Gioardano Family Donna Yanosik Patrick Ryan Sarah Inman FOREMOTHERS Stacey Francois SPONSORS Canden Schwantes Platinum Level American Association for Justice The Cooper-Rothenberg Group at Morgan Stanley Verizon Foundation Gold Level Bipartisan Policy Center William T. Grant Foundation Morgan Stanley Smith Barney Leadership Level Catherine Joyce at Morgan Stanley Wealth Management Charles Schwab Lanier Law Firm Sheller P.C. Phyllis Wiesenfelder at Long & Foster Real Estate, Inc. Friends Complete Document Solutions Congressional Federal NES

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