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report 19 The Australian Longitudinal Study on Women’s Health 10 December 2002 in association with REPORT 19 TABLE OF CONTENTS LIST OF TABLES ............................................................................................................................. 3 LIST OF FIGURES ........................................................................................................................... 4 EXECUTIVE SUMMARY................................................................................................................ 5 1 COLLABORATIVE RESEARCH ACTIVITIES................................................................. 7 1.1 Scientific meetings and teleconferences among research team ........................... 7 1.2 Summary of collaborative research activities....................................................... 7 1.2.1 Projects in progress by WHA investigators and collaborators ............... 7 1.2.2 Completed postgraduate theses (since June 2002) ............................... 11 1.2.3 Student projects in progress.................................................................. 12 2 CONDUCT OF SURVEYS.................................................................................................... 19 2.1 Main cohorts.......................................................................................................... 19 2.1.1 Older Survey 3 (final stages) ................................................................ 19 2.1.2 Younger Survey 3 (pilot phase)............................................................ 20 2.2 SUBSTUDIES ........................................................................................................ 30 2.3 REPORT ON THE SUGGESTED EXPANSION OF THE AUSTRALIAN LONGITUDINAL STUDY ON WOMEN’S HEALTH TO INCLUDE ADDITIONAL INDIGENOUS WOMEN LIVING IN URBAN AREAS .................................................................................................... 32 2.3.1 Summary of report................................................................................ 32 3 METHODOLOGICAL ISSUES: SOURCES AND DEVELOPMENT OF INSTRUMENTS, RELIABILITY AND VALIDITY OF MEASURES............................ 33 3.1 Validation of the Center for Epidemiological Studies Depression Scale among the mid-age cohort .................................................................................... 33 3.1.1 Overview .............................................................................................. 33 3.1.2 Methods ................................................................................................ 33 3.1.3 Results .................................................................................................. 35 3.1.4 References ............................................................................................ 36 3.2 Inconsistencies in self-report of major diagnoses and surgical procedures: Surveys 1 and 2 of the mid-age women.......................................... 41 3.2.1 Survey items......................................................................................... 41 3.3 Validity of the Inventory of Psychosocial Balance ............................................. 47 3.3.1 IPB in Younger Survey 2...................................................................... 48 3.3.2 IPB in Older Survey 2 .......................................................................... 52 3.3.3 Comparison of IPB in Younger Survey 2 and Older Survey 2 ............ 55 4 MAINTENANCE OF COHORTS........................................................................................ 56 5 DATA LINKAGE................................................................................................................... 56 5.1 Progress with analysis of Medicare/DVA data for 1995 to 1999....................... 56 5.2 Progress on preparation of databooks for Medicare/DVA data ....................... 60 6 DATA ANALYSIS.................................................................................................................. 61 6.1 Analysis of recreational drug use data – Young Survey 2 (2000) ..................... 61 6.1.1 Overview .............................................................................................. 61 6.1.2 Prevalence, patterns of drug use and age of initiation.......................... 62 7 DISSEMINATION OF STUDY FINDINGS........................................................................ 66 1 7.1 Communication with study participants ............................................................. 66 7.2 Publications ............................................................................................................ 66 7.2.1 Papers published................................................................................... 66 7.2.2 Papers accepted..................................................................................... 70 7.3 CONFERENCE PRESENTATIONS.................................................................. 74 7.4 OTHER PRESENTATIONS................................................................................ 85 7.5 DISSEMINATION OF METHODOLOGICAL EXPERTISE......................... 86 7.6 MEDIA ................................................................................................................... 86 8 ARCHIVING .......................................................................................................................... 87 8.1 Archiving of survey data....................................................................................... 87 8.2 Archiving of statistical analyses and related material ....................................... 87 9 FINANCIAL STATEMENT................................................................................................. 88 10 PROJECT STAFF JULY – DECEMBER 2002 .................................................................. 89 10.1 Project staff: Research Centre for Gender and Health, University of Newcastle ................................................................................................................ 89 10.2 Project staff: University of Queensland .............................................................. 89 10.3 Project investigators.............................................................................................. 89 10.4 Associate investigators currently working with the main cohorts.................... 90 10.5 Research students.................................................................................................. 90 10.6 Office relocation, September 2002 ....................................................................... 91 APPENDICES Appendix 1 Collaborative research activities Appendix 1.1 Steering committee teleconference minutes Appendix 2 Conduct of surveys Appendix 2.1 Young Survey 3 pilot materials Appendix 7 Dissemination of study findings Appendix 7.1 Newsletter 2002 Appendix 8 Archiving of statistical analyses and related materials Appendix 8.1 Archiving procedures 2 LIST OF TABLES Table 1 Response rates for Older Survey 3 (at 12 October 2002) ............................................... 20 Table 2 Young Survey 2 items and changes included in pilot Young Survey 3.......................... 22 Table 3 Piloting Young Survey 3: Response rates at each contact stage..................................... 29 Table 4 Piloting Younger Survey 3: Summary of response rates (as at 21 November 2002) ............................................................................................................................... 29 Table 5 Details of substudies and other participant contact activities ......................................... 31 Table 6 Factor loadings and internal reliability for a ten-item Center for Epidemiological Studies Depression Scale (CESD-10) from responses of 11,648 mid-aged Australian women. .......................................................................................................... 37 Table 7 Construct validity: correlations with Center for Epidemiological Studies Depression Scale (CESD) for women aged 47-52 years (n=11648). ............................. 38 Table 8 Socio-demographic characteristics significantly associated with ‘depression’ as defined by Center for Epidemiological Studies Depression Scale (CESD).................... 38 Table 9 Health and lifestyle characteristics significantly associated with ‘depression’ as defined by Center for Epidemiological Studies Depression Scale (CESD).................... 39 Table 10 Multiple logistic regression with Center for Epidemiological Studies Depression Scale (CESD≥10) as the outcome (n=10268). ................................................................ 40 Table 11 Diagnoses at phase 1 and phase 2 for 11,648 mid-age women....................................... 44 Table 12 Data capture and participant error percentages per item at phase 1 and phase 2, among women identified as “inconsistent” responders .................................................. 46 Table 13 Data scanning and participant error percentages per item at phase 2 ............................. 47 Table 14 Erikson’s psychosocial model of human development................................................... 48 Table 15 Reduced IPB Distributions for Younger Survey 2.......................................................... 49 Table 16 Means and correlations for IPB sub scales (Younger Survey 2) .................................... 50 Table 17 Young 2 stage means compared to Domino and Affonso (1990) data ..........................