Abstracts Copyright © by International Association for the Scientific Study of Intellectual and Developmental 2017 IASSIDD 4th Asia-Pacific Regional Congress All rights reserved. November 13 - 16, 2017 www.iassidd.org Bangkok, Thailand

Editor

Ivan Brown

The editor and assistant editors have made every reasonable effort to ensure the accuracy of the information presented in this Abstracts booklet. The opinions and research in the abstracts are Assistant Editors presented for the purposes of information sharing and learning, and do not necessarily reflect the views of the International Association for the Scientific Study of Intellectual and Developmental Disabilities Arezu Alami (IASSIDD). Further, IASSIDD cannot accept liability for any action taken due to information in the Susan Balandin Abstracts booklet, and recommends that any such action should be taken under the guidance of trained professionals. Jeanne Brennan Alexandra Campbell Linda Chambers Jeffrey Chan Permission to use: Mo Chen Material in this Abstracts booklet may be used without permission for educational or support Rhonda Farragher purposes. Written permission for all other purposes may be obtained from [email protected] Rachel Harrison

Vimallan Manokara Recommended citation (APA): Anastasia Potapovych IASSIDD. (2017). Abstracts: 2017 IASSIDD 4th Asia-Pacific Regional Congress, November 13 - November Lara Sams 16, 2017, Bangkok, Thailand. Retrieved from www.iassidd.org Sunitha Thomson Hannah Zazzi

Peer Reviewers

Michael Arthur-Kelly Karen Nankervis

Susan Balandin Jenneken Naaldenberg

Ivan Brown Chris Oliver

Annette van der Putten Tobias Buchner Fiona Rillotta Jeffrey Chan Dana Roth Susan Collings Rhonda Faragher Alice Schippers

Fabrizio Fea Iva Strnadova

Eva Flygare Laurence Taggart

Juliet Goldbart Bev Temple

Sandra Magana Nina Zuna

Printed in Bangkok, Thailand, 2017.

Abstracts Copyright © by International Association for the Scientific Study of Intellectual and Developmental Disabilities 2017 IASSIDD 4th Asia-Pacific Regional Congress All rights reserved. November 13 - 16, 2017 www.iassidd.org Bangkok, Thailand

Editor

Ivan Brown

The editor and assistant editors have made every reasonable effort to ensure the accuracy of the information presented in this Abstracts booklet. The opinions and research in the abstracts are Assistant Editors presented for the purposes of information sharing and learning, and do not necessarily reflect the views of the International Association for the Scientific Study of Intellectual and Developmental Disabilities Arezu Alami (IASSIDD). Further, IASSIDD cannot accept liability for any action taken due to information in the Susan Balandin Abstracts booklet, and recommends that any such action should be taken under the guidance of trained professionals. Jeanne Brennan Alexandra Campbell Linda Chambers Jeffrey Chan Permission to use: Mo Chen Material in this Abstracts booklet may be used without permission for educational or disability support Rhonda Farragher purposes. Written permission for all other purposes may be obtained from [email protected] Rachel Harrison

Vimallan Manokara Recommended citation (APA): Anastasia Potapovych IASSIDD. (2017). Abstracts: 2017 IASSIDD 4th Asia-Pacific Regional Congress, November 13 - November Lara Sams 16, 2017, Bangkok, Thailand. Retrieved from www.iassidd.org Sunitha Thomson Hannah Zazzi

Peer Reviewers

Michael Arthur-Kelly Karen Nankervis

Susan Balandin Jenneken Naaldenberg

Ivan Brown Chris Oliver

Tobias Buchner Annette van der Putten Jeffrey Chan Fiona Rillotta Susan Collings Dana Roth Rhonda Faragher Alice Schippers

Fabrizio Fea Iva Strnadova

Eva Flygare Laurence Taggart

Juliet Goldbart Bev Temple

Sandra Magana Nina Zuna

Printed in Bangkok, Thailand, 2017.

How the Abstracts Are Organized

Abstracts for the five keynote speeches are listed at the beginning of this document. The main body of the abstracts is organized by 4 presentation tracks (broad topics). Within each track, presentations are listed by 7 presentation types.

Presentation Tracks

There are 4 presentation tracks in the Congress program:

Track 1. Support models and strategies Successful policy and service structures; values of support models; best practices of support models for promoting inclusiveness; government and societal support; promoting innovation.

Track 2. Successful living within communities Factors promoting integration and inclusion; inclusive policy; independent living; family well-being; employment and non-paid productive activities; community acceptance and access.

Track 3. Education in schools and in society Rights, entitlements and access to inclusive education; assessment; inclusive teaching and learning; early education; post-secondary and life-long learning; public acceptance of disability.

Track 4. Health through the lifespan Physical and mental health; sensory and physical disabilities; genetics and epi-genetics; medical advances; interventions; health monitoring; health promotion, medication use.

Presentation Types

Within each of these 4 tracks, presentations may be made in 7 different ways:

1. Oral presentation of a research report 2. Oral presentation of a new conceptualization or theory 3. Oral presentation of a vignette (case example with broader implications) 4. Poster presentation of a research report 5. Poster presentation of a new conceptualization or theory, an exemplary practice, or implementation of a policy strategy 6. Roundtable of 2-4 presenters to lead a discussion on a specific topic 7. Demonstration (e.g., video or audio presentation, performance, or new technology)

i

How the Abstracts Are Organized

Abstracts for the five keynote speeches are listed at the beginning of this document. The main body of the abstracts is organized by 4 presentation tracks (broad topics). Within each track, presentations are listed by 7 presentation types.

Presentation Tracks

There are 4 presentation tracks in the Congress program:

Track 1. Support models and strategies Successful policy and service structures; values of support models; best practices of support models for promoting inclusiveness; government and societal support; promoting innovation.

Track 2. Successful living within communities Factors promoting integration and inclusion; inclusive policy; independent living; family well-being; employment and non-paid productive activities; community acceptance and access.

Track 3. Education in schools and in society Rights, entitlements and access to inclusive education; assessment; inclusive teaching and learning; early education; post-secondary and life-long learning; public acceptance of disability.

Track 4. Health through the lifespan Physical and mental health; sensory and physical disabilities; genetics and epi-genetics; medical advances; interventions; health monitoring; health promotion, medication use.

Presentation Types

Within each of these 4 tracks, presentations may be made in 7 different ways:

1. Oral presentation of a research report 2. Oral presentation of a new conceptualization or theory 3. Oral presentation of a vignette (case example with broader implications) 4. Poster presentation of a research report 5. Poster presentation of a new conceptualization or theory, an exemplary practice, or implementation of a policy strategy 6. Roundtable of 2-4 presenters to lead a discussion on a specific topic 7. Demonstration (e.g., video or audio presentation, performance, or new technology)

i

Establishing Mental Health Supports for Adults with Intellectual & Developmental Disabilities in Asian Keynote Speeches Countries Henry Kwok, Ker-Chiah Wai, Maggie To, Ashley Jayapaul

Professional education & learning for people supporting individuals with disabilities through the lens Description: Mental health problems are more prevalent in adults with IDD than the general population. of implementation science However, appropriate mental health services for them are often lacking in availability, accessibility and Michael Arthur-Kelly adequacy. There are many studies showing that mainstream adult psychiatric service cannot satisfactorily meet the treatment and care needs of this population. Hong Kong is a pioneer in Asia that Description: The concept of science to service, as reflected in contemporary implementation science, took the initiative of improving the mental health care for this underserved population by setting up a neatly encapsulates the challenges we face in translation from evidence based literature to the reality of specialist psychiatric service in Kwai Chung Hospital in 1995. This new service was established through support for people with intellectual and developmental disabilities. Using two recent Australian research re-engineering of existing resources and re-distribution of manpower within the hospital. This service to practice projects as a means of critiquing and exploring the challenges of translation, the presentation includes not only covers and inpatient unit but also an outpatient clinic, outreach service, and centres on a systemic and systematic approach to professional learning and communities of practice. partnership with non-government organizations in the community. In , the Institute of Mental How can we most effectively design and deliver effective professional learning within a larger context Health established the Adult Neurodevelopmental Service (ANDS) for people aged 19 to 64 years old that promotes capacity building, in schools, support programs and all areas of our work in this field? with IDD/ASD and co-occurring mental health conditions. They provide multidisciplinary assessment and Contribution: This presentation is intended to contribute to our continuing discussions about translation treatment in both inpatient and outpatient settings. of supports in a meaningful and sustainable way within and across systems, with a focus of professional Contribution: By sharing our experiences in Asia, it is hoped that governments and health administrators learning as one vital part of this challenge. elsewhere can make similar reforms to enhance the mental health care for adults with IDD.  

Advances in Medicine for People with Intellectual and Developmental Disabilities Realizing Inclusive and Equitable Quality Education for All: Challenges and Opportunities of SDG4- Vorasuk Shotelersuk Education 2030 Maki Hayashikawa Description: Molecular techniques have rapidly advanced in recent years and have played an important role in both fundamental and applied researches, and in medical practice. I present clinical applications Description: Among the 17 Sustainable Development Goals adopted by the international community in of two technologies. First, next generation sequencing (NGS) revolutionizes a molecular diagnostic September 2015, SDG4 on Education features an important advancement from the MDGs and EFA goals, method. Etiologic mutations of rare genetic disorders, including those with many possible causative as it explicitly recognizes inclusion and equity as cornerstones of a transformative education agenda and genes such as intellectual disabilities and epileptic encephalopathy, can be efficiently identified by laying the foundations for quality education for all. SDG4 reflects the strong renewed commitment of whole exome sequencing (WES) or whole genome sequencing (WGS). With definite diagnoses and the international community to addressing all forms of exclusion and marginalization, disparities and classification of diseases by their mutated genes, a more specific management guideline for a particular inequalities in access, participation and learning outcomes, to ensure that no one is left behind. For the patient and a more precise genetic counselling can be given. This also leads to new and hopeful first time, a specific target (target 4.5) was included to address inequity and inequality in education preventive and treatment strategies. Secondly, techniques of genome editing give new hope for definite based on gender and disabilities. However, the aspirational language of the SDG4 will be truly treatment of genetic diseases. The most recent one, clustered regularly interspaced short palindromic meaningful only if the goal and its targets can be put into action and visible changes can be brought to repeats (CRISPR)/CRISPR-associated (Cas) protein 9 system has been readily adopted in several the lives of all learners. The current status and trends in inclusive education in the Asia-Pacific region laboratories around the world and has developed very quickly over the past few years. I discuss our lead us to understand that it is high time to bring about a system-wide policy change to embed inclusion experience in using genome editing techniques in gene therapy of rare genetic diseases, and our and equity across education systems and to bring in a whole new thinking and action at every level. attempt to generate universal cell or tissue donors. Contribution: By unpacking the SDG4 and the “Framework for Action for Education 2030,” and by Contribution: This presentation is intended to prepare the audience for a possible change in the revisiting the UNESCO Policy Guidelines on Inclusive Education currently being updated, it is hoped that standard of care for people with disabilities in the era of clinical molecular genomics. Member States can recognize what it would take to realize inclusive and equitable education for all by  2030, and can take action to ensure that this occurs. 

- continued -

ii iii

Establishing Mental Health Supports for Adults with Intellectual & Developmental Disabilities in Asian Keynote Speeches Countries Henry Kwok, Ker-Chiah Wai, Maggie To, Ashley Jayapaul

Professional education & learning for people supporting individuals with disabilities through the lens Description: Mental health problems are more prevalent in adults with IDD than the general population. of implementation science However, appropriate mental health services for them are often lacking in availability, accessibility and Michael Arthur-Kelly adequacy. There are many studies showing that mainstream adult psychiatric service cannot satisfactorily meet the treatment and care needs of this population. Hong Kong is a pioneer in Asia that Description: The concept of science to service, as reflected in contemporary implementation science, took the initiative of improving the mental health care for this underserved population by setting up a neatly encapsulates the challenges we face in translation from evidence based literature to the reality of specialist psychiatric service in Kwai Chung Hospital in 1995. This new service was established through support for people with intellectual and developmental disabilities. Using two recent Australian research re-engineering of existing resources and re-distribution of manpower within the hospital. This service to practice projects as a means of critiquing and exploring the challenges of translation, the presentation includes not only covers and inpatient unit but also an outpatient clinic, outreach service, and centres on a systemic and systematic approach to professional learning and communities of practice. partnership with non-government organizations in the community. In Singapore, the Institute of Mental How can we most effectively design and deliver effective professional learning within a larger context Health established the Adult Neurodevelopmental Service (ANDS) for people aged 19 to 64 years old that promotes capacity building, in schools, support programs and all areas of our work in this field? with IDD/ASD and co-occurring mental health conditions. They provide multidisciplinary assessment and Contribution: This presentation is intended to contribute to our continuing discussions about translation treatment in both inpatient and outpatient settings. of supports in a meaningful and sustainable way within and across systems, with a focus of professional Contribution: By sharing our experiences in Asia, it is hoped that governments and health administrators learning as one vital part of this challenge. elsewhere can make similar reforms to enhance the mental health care for adults with IDD.  

Advances in Medicine for People with Intellectual and Developmental Disabilities Realizing Inclusive and Equitable Quality Education for All: Challenges and Opportunities of SDG4- Vorasuk Shotelersuk Education 2030 Maki Hayashikawa Description: Molecular techniques have rapidly advanced in recent years and have played an important role in both fundamental and applied researches, and in medical practice. I present clinical applications Description: Among the 17 Sustainable Development Goals adopted by the international community in of two technologies. First, next generation sequencing (NGS) revolutionizes a molecular diagnostic September 2015, SDG4 on Education features an important advancement from the MDGs and EFA goals, method. Etiologic mutations of rare genetic disorders, including those with many possible causative as it explicitly recognizes inclusion and equity as cornerstones of a transformative education agenda and genes such as intellectual disabilities and epileptic encephalopathy, can be efficiently identified by laying the foundations for quality education for all. SDG4 reflects the strong renewed commitment of whole exome sequencing (WES) or whole genome sequencing (WGS). With definite diagnoses and the international community to addressing all forms of exclusion and marginalization, disparities and classification of diseases by their mutated genes, a more specific management guideline for a particular inequalities in access, participation and learning outcomes, to ensure that no one is left behind. For the patient and a more precise genetic counselling can be given. This also leads to new and hopeful first time, a specific target (target 4.5) was included to address inequity and inequality in education preventive and treatment strategies. Secondly, techniques of genome editing give new hope for definite based on gender and disabilities. However, the aspirational language of the SDG4 will be truly treatment of genetic diseases. The most recent one, clustered regularly interspaced short palindromic meaningful only if the goal and its targets can be put into action and visible changes can be brought to repeats (CRISPR)/CRISPR-associated (Cas) protein 9 system has been readily adopted in several the lives of all learners. The current status and trends in inclusive education in the Asia-Pacific region laboratories around the world and has developed very quickly over the past few years. I discuss our lead us to understand that it is high time to bring about a system-wide policy change to embed inclusion experience in using genome editing techniques in gene therapy of rare genetic diseases, and our and equity across education systems and to bring in a whole new thinking and action at every level. attempt to generate universal cell or tissue donors. Contribution: By unpacking the SDG4 and the “Framework for Action for Education 2030,” and by Contribution: This presentation is intended to prepare the audience for a possible change in the revisiting the UNESCO Policy Guidelines on Inclusive Education currently being updated, it is hoped that standard of care for people with disabilities in the era of clinical molecular genomics. Member States can recognize what it would take to realize inclusive and equitable education for all by  2030, and can take action to ensure that this occurs. 

- continued - ii iii

Zika Virus: Ecology, Epidemiology, and Disease Associations David Harley Presentation Abstracts

Description: For most of the period since its isolation from a Rhesus monkey from the Zika forest in Uganda in 1947, Zika virus has attracted little attention. But after outbreaks in the Pacific from 2007, in Track 1. Support models and strategies early 2016 the World Health Organization declared the virus a global public health emergency, because of an association with microcephaly and Guillain-Barre syndrome. ORAL PRESENTATIONS – RESEARCH REPORTS Following a brief background on arthropod-borne viruses (“arboviruses”), this presentation traces knowledge of Zika virus since its initial isolation. The ecology of the virus, as an enzootic infection of Volunteers Supporting People with Disability Association Between Social Functioning and primates in Africa and in human epidemic transmission, is described. Consideration is given to the to Make Decisions Intellectual Quotient of Patients with Autistic- mosquito species transmitting the virus, including distribution and potential future disease risk Susan Balandin, Joanne Watson, Patsie Frawley Like Traits areas. The global spread of the virus is described. The epidemiology of the infection in humans is Shuichi Watanabe discussed. Clinical outcomes are then presented, with some consideration of the reasons for Zika’s Aim: This project explored how volunteers emergence as a significant cause of human disease. supporting adults with disability to make Aim: In daily medical examination, we often see Contribution: The presentation provides an opportunity for professionals from diverse background to decisions viewed the success of their training adult patients with autistic-like traits (ALTs) who acquaint themselves with this fascinating mosquito-borne virus. and practice. have not been diagnosed with autism spectrum  Method: Six volunteers, experienced in lifelong disorder and have not faced severe difficulty in

disability participated in in-depth interviews to social adaptation. Here, we investigated the

explore their views on the training they intellectual ability and social functioning of such

received and the success of the volunteer patients with psychiatric symptoms.

program. Interviews were analysed using a Method: We analyzed the records of 88

content analysis. outpatients with ALTs (males 42, females 46,

Results: Participants each supported one mean age 42.0). The intellectual quotient (IQ)

person participating in the National Disability was confirmed by the Wechsler Adult

Insurance Scheme. All were satisfied with their Intelligence Scale-3 and social functioning was

training although they did not all apply the assessed using the Social and Occupational

principles of decision making as trained. Five of Functioning Assessment Scale (SOFAS). The

the six liked the person they supported and felt severity of psychiatric symptoms was assessed

that providing unpaid support improved the with the Clinical Global Impression (CGI). The

person with disability’s self esteem and feelings participants were divided into two groups

of worth. Some considered that they were according to their SOFAS scores (=<60, poor-

instrumental in supporting big decisions, adapted; 61=<, adapted).

whereas others said they acted more as a friend Results: Total IQ of adapted and poor-adapted

or someone to ‘hang out with’. All participants groups were 99.5 and 93.1, respectively

noted that the ongoing support they received (p<0.05). Discrepancy between verbal IQ and

personally from the training organization was performance IQ were observed in both groups

invaluable. (p<0.0005). The adapted group had a longer

Conclusion: Decision making is not a well- education period and milder psychiatric

defined concept and the decisions made in this symptoms (p<0.05, p<0.005). Multiple

project varied. Volunteers perceived they were regression analysis revealed that social

instrumental in helping make good decisions functioning of patients with ALTs was explained

and the value of having a person who is by education length, CGI, and total IQ (adjusted

interested and listens. R^2=0.3, p<0.0001).

 Conclusion: This study indicated that social

functioning may be roughly predicted using

total IQ and other parameters.

iv 1

Zika Virus: Ecology, Epidemiology, and Disease Associations David Harley Presentation Abstracts

Description: For most of the period since its isolation from a Rhesus monkey from the Zika forest in Uganda in 1947, Zika virus has attracted little attention. But after outbreaks in the Pacific from 2007, in Track 1. Support models and strategies early 2016 the World Health Organization declared the virus a global public health emergency, because of an association with microcephaly and Guillain-Barre syndrome. ORAL PRESENTATIONS – RESEARCH REPORTS Following a brief background on arthropod-borne viruses (“arboviruses”), this presentation traces knowledge of Zika virus since its initial isolation. The ecology of the virus, as an enzootic infection of Volunteers Supporting People with Disability Association Between Social Functioning and primates in Africa and in human epidemic transmission, is described. Consideration is given to the to Make Decisions Intellectual Quotient of Patients with Autistic- mosquito species transmitting the virus, including distribution and potential future disease risk Susan Balandin, Joanne Watson, Patsie Frawley Like Traits areas. The global spread of the virus is described. The epidemiology of the infection in humans is Shuichi Watanabe discussed. Clinical outcomes are then presented, with some consideration of the reasons for Zika’s Aim: This project explored how volunteers emergence as a significant cause of human disease. supporting adults with disability to make Aim: In daily medical examination, we often see Contribution: The presentation provides an opportunity for professionals from diverse background to decisions viewed the success of their training adult patients with autistic-like traits (ALTs) who acquaint themselves with this fascinating mosquito-borne virus. and practice. have not been diagnosed with autism spectrum  Method: Six volunteers, experienced in lifelong disorder and have not faced severe difficulty in

disability participated in in-depth interviews to social adaptation. Here, we investigated the

explore their views on the training they intellectual ability and social functioning of such

received and the success of the volunteer patients with psychiatric symptoms.

program. Interviews were analysed using a Method: We analyzed the records of 88

content analysis. outpatients with ALTs (males 42, females 46,

Results: Participants each supported one mean age 42.0). The intellectual quotient (IQ)

person participating in the National Disability was confirmed by the Wechsler Adult

Insurance Scheme. All were satisfied with their Intelligence Scale-3 and social functioning was

training although they did not all apply the assessed using the Social and Occupational

principles of decision making as trained. Five of Functioning Assessment Scale (SOFAS). The

the six liked the person they supported and felt severity of psychiatric symptoms was assessed

that providing unpaid support improved the with the Clinical Global Impression (CGI). The

person with disability’s self esteem and feelings participants were divided into two groups

of worth. Some considered that they were according to their SOFAS scores (=<60, poor-

instrumental in supporting big decisions, adapted; 61=<, adapted).

whereas others said they acted more as a friend Results: Total IQ of adapted and poor-adapted

or someone to ‘hang out with’. All participants groups were 99.5 and 93.1, respectively

noted that the ongoing support they received (p<0.05). Discrepancy between verbal IQ and

personally from the training organization was performance IQ were observed in both groups

invaluable. (p<0.0005). The adapted group had a longer

Conclusion: Decision making is not a well- education period and milder psychiatric

defined concept and the decisions made in this symptoms (p<0.05, p<0.005). Multiple

project varied. Volunteers perceived they were regression analysis revealed that social

instrumental in helping make good decisions functioning of patients with ALTs was explained

and the value of having a person who is by education length, CGI, and total IQ (adjusted

interested and listens. R^2=0.3, p<0.0001).

 Conclusion: This study indicated that social

functioning may be roughly predicted using

total IQ and other parameters.

iv 1

Measuring Outcomes of Service Provision: The and examine the extent to which group home admission and length of stay were reduced. The Survey of UK-Based Organisations’ Responses Development of an Outcomes Measure culture varies within and across organisations. reasons for the behaviours included mental to New Government Policy on Restrictive Stella Koritsas, Nick Hagiliassis, Celeste Cuzzillo Method: The Group Home Culture Scale (GHCS) illness and “challenging behaviour.” People with Practices and People with Intellectual was used to measure culture. Data were developmental disorders were a large Disabilities Aim: Measuring outcomes associated with available for 58 group homes managed by eight proportion. Community alternatives are Roy Deveau, Sarah Leitch service provision can provide was information organisations. Using measures of dispersion, effective with positive benefits to the person. about whether a service is achieving its comparisons of the scores on the GHCS  Aim: To examine organisational responses to objectives, identify areas for service subscales were made within and across renewed government and best professional development, drive funding allocation, and organisations. Social Enterprise as a Means of Promoting guidance on reducing the use of restrictive enables service users to track changes that have Results: Comparisons of the GHCS scores within Vocational Opportunities for People with practices for people with ID who live in staffed occurred to them. This research explored the organisations showed both similarities and Intellectual Disabilities services. psychometric properties (internal consistency, differences across group homes. Comparisons Keith McVilly, Peter Smith, Jane McGillivray, Method: An online and postal survey of a alternate form reliability, construct, content, across organisations showed that some Jeffrey Chan purposive staff sample of professional coaches and face validity) of a scale that was specifically organisations scored higher than others for trained to provide PBS. Questions covered four developed to measure outcomes associated most of the subscales. Aim: Meaningful and sustainable employment is areas: leadership, data use to inform practice, with service provision. Conclusion: Knowledge of staff perceptions of a major public policy issue, with both economic staffing issues, and de-briefing. Method: Two forms of the scale (easy and their work culture and the extent to which and social implications for all. This project Results: The 40 respondents were relatively standard English) were developed that could be culture varies across group homes can help investigated what constituted a social senior, very well qualified, of long tenure. Some completed in hardcopy or via a bespoke researchers and service providers to better enterprise, and how such a service model might worked in very large organisations (e.g., 7,000 website. Adults with a disability and/or their understand service delivery, and to identify the be tailored to promote employment people), and others worked in very small carers or support workers across Australia dimensions of culture to change or maintain. opportunities for people with disability. services (e.g., 2 people). Descriptive results participated in the research.  Method: A systematic literature review was showed around a third of organisations had Results: The scale demonstrated good internal undertaken, and a model of Social Enterprise taken little or no leadership action to commit or consistency and alternate form reliability. Intensive Support Team Model in Managing was developed that would be inclusive of act upon the policy and best practice Factor analysis of the scale revealed one factor Challenging Behaviours in People with people with disabilities. The theoretical model requirements. Most respondents reported that corresponded to the whole of life construct Intellectual Disabilities was reviewed by industry experts and refined. accurate data use focussed upon reducing RP, that the scale was designed to measure. Ken Courtenay, Bhathika Perera Its ecological validity, practical application, and but around 10% did not. The area of least Participants also reported that they understood feasibility were then tested through the concerted action and uncertainty on ‘how to do the intent or purpose of the scale. Aim: To present data on the Intensive Support implementation of an organisational audit and it’ was de-briefing. Initial work on developing Conclusion: The research revealed that the Team (IST) model supporting people with strategic planning exercise involving a disability scales for evaluating organisational scale is psychometrically sound and can be used intellectual disabilities (ID) and challenging service provider. interventions to reduce RP, such as training or in service and research settings to measure the behaviours to live in the community. Results: The essential features of a Social data collection and use, will be reported. impact of services and supports. Method: A case note survey of adults with ID Enterprise are: an economically viable business; Conclusion: New government policy and  under the care of the Intensive Support Team in which provide the payment of ‘a living wage’; in professional best practice is being implemented the London Borough of Haringey. a setting involving meaningful work that with a wide range of enthusiasm by Group Home Culture within and Across Results: Sixty-five adults were managed by AIT, includes opportunities for the acquisition of organisations, with some apparently failing. Organisations composed of 44 males and 21 females. The age socially valued skills and career development; as  Lincoln Humphreys, Christine Bigby, Teresa range was 21-64. The level of ID was mild ID at well as contributing to the person’s social Iacono, Emma Bould 61% and moderate ID at 39%. Diagnoses relationships. A Randomized Controlled Trial of the Effects of included psychotic disorder (25%); mood Conclusion: Though a challenging undertaking, Caregiver Training in Mindfulness-Based Aim: Organisational culture in group homes has disorder (20%); developmental disorder (40%); Social Enterprise provides a promising Positive Behavior Support vs. Positive Behavior been identified as influencing the quality of dementia (10%); and challenging behaviours employment option for some people with ID, Support staff support and residents’ quality of life (45%). Six people (11%) were admitted to when such initiatives are driven from executive Jeffrey Chan, Carrie L. McPherson, Nirbhay N. outcomes. However, no research has been hospital. The length of care ranged from 4to 14 and senior personnel of an organisation. Singh conducted to examine and compare the culture months.  across group homes. The aim was to assess the Conclusion: The IST effectively managed people Aim: Recent studies have suggested that perceptions of staff who work in group homes with ID with complex problems that put their providing training in Mindfulness-Based Positive placements at risk. The rate of hospital Behavior Support (MBPBS) to caregivers

2 3

Measuring Outcomes of Service Provision: The and examine the extent to which group home admission and length of stay were reduced. The Survey of UK-Based Organisations’ Responses Development of an Outcomes Measure culture varies within and across organisations. reasons for the behaviours included mental to New Government Policy on Restrictive Stella Koritsas, Nick Hagiliassis, Celeste Cuzzillo Method: The Group Home Culture Scale (GHCS) illness and “challenging behaviour.” People with Practices and People with Intellectual was used to measure culture. Data were developmental disorders were a large Disabilities Aim: Measuring outcomes associated with available for 58 group homes managed by eight proportion. Community alternatives are Roy Deveau, Sarah Leitch service provision can provide was information organisations. Using measures of dispersion, effective with positive benefits to the person. about whether a service is achieving its comparisons of the scores on the GHCS  Aim: To examine organisational responses to objectives, identify areas for service subscales were made within and across renewed government and best professional development, drive funding allocation, and organisations. Social Enterprise as a Means of Promoting guidance on reducing the use of restrictive enables service users to track changes that have Results: Comparisons of the GHCS scores within Vocational Opportunities for People with practices for people with ID who live in staffed occurred to them. This research explored the organisations showed both similarities and Intellectual Disabilities services. psychometric properties (internal consistency, differences across group homes. Comparisons Keith McVilly, Peter Smith, Jane McGillivray, Method: An online and postal survey of a alternate form reliability, construct, content, across organisations showed that some Jeffrey Chan purposive staff sample of professional coaches and face validity) of a scale that was specifically organisations scored higher than others for trained to provide PBS. Questions covered four developed to measure outcomes associated most of the subscales. Aim: Meaningful and sustainable employment is areas: leadership, data use to inform practice, with service provision. Conclusion: Knowledge of staff perceptions of a major public policy issue, with both economic staffing issues, and de-briefing. Method: Two forms of the scale (easy and their work culture and the extent to which and social implications for all. This project Results: The 40 respondents were relatively standard English) were developed that could be culture varies across group homes can help investigated what constituted a social senior, very well qualified, of long tenure. Some completed in hardcopy or via a bespoke researchers and service providers to better enterprise, and how such a service model might worked in very large organisations (e.g., 7,000 website. Adults with a disability and/or their understand service delivery, and to identify the be tailored to promote employment people), and others worked in very small carers or support workers across Australia dimensions of culture to change or maintain. opportunities for people with disability. services (e.g., 2 people). Descriptive results participated in the research.  Method: A systematic literature review was showed around a third of organisations had Results: The scale demonstrated good internal undertaken, and a model of Social Enterprise taken little or no leadership action to commit or consistency and alternate form reliability. Intensive Support Team Model in Managing was developed that would be inclusive of act upon the policy and best practice Factor analysis of the scale revealed one factor Challenging Behaviours in People with people with disabilities. The theoretical model requirements. Most respondents reported that corresponded to the whole of life construct Intellectual Disabilities was reviewed by industry experts and refined. accurate data use focussed upon reducing RP, that the scale was designed to measure. Ken Courtenay, Bhathika Perera Its ecological validity, practical application, and but around 10% did not. The area of least Participants also reported that they understood feasibility were then tested through the concerted action and uncertainty on ‘how to do the intent or purpose of the scale. Aim: To present data on the Intensive Support implementation of an organisational audit and it’ was de-briefing. Initial work on developing Conclusion: The research revealed that the Team (IST) model supporting people with strategic planning exercise involving a disability scales for evaluating organisational scale is psychometrically sound and can be used intellectual disabilities (ID) and challenging service provider. interventions to reduce RP, such as training or in service and research settings to measure the behaviours to live in the community. Results: The essential features of a Social data collection and use, will be reported. impact of services and supports. Method: A case note survey of adults with ID Enterprise are: an economically viable business; Conclusion: New government policy and  under the care of the Intensive Support Team in which provide the payment of ‘a living wage’; in professional best practice is being implemented the London Borough of Haringey. a setting involving meaningful work that with a wide range of enthusiasm by Group Home Culture within and Across Results: Sixty-five adults were managed by AIT, includes opportunities for the acquisition of organisations, with some apparently failing. Organisations composed of 44 males and 21 females. The age socially valued skills and career development; as  Lincoln Humphreys, Christine Bigby, Teresa range was 21-64. The level of ID was mild ID at well as contributing to the person’s social Iacono, Emma Bould 61% and moderate ID at 39%. Diagnoses relationships. A Randomized Controlled Trial of the Effects of included psychotic disorder (25%); mood Conclusion: Though a challenging undertaking, Caregiver Training in Mindfulness-Based Aim: Organisational culture in group homes has disorder (20%); developmental disorder (40%); Social Enterprise provides a promising Positive Behavior Support vs. Positive Behavior been identified as influencing the quality of dementia (10%); and challenging behaviours employment option for some people with ID, Support staff support and residents’ quality of life (45%). Six people (11%) were admitted to when such initiatives are driven from executive Jeffrey Chan, Carrie L. McPherson, Nirbhay N. outcomes. However, no research has been hospital. The length of care ranged from 4to 14 and senior personnel of an organisation. Singh conducted to examine and compare the culture months.  across group homes. The aim was to assess the Conclusion: The IST effectively managed people Aim: Recent studies have suggested that perceptions of staff who work in group homes with ID with complex problems that put their providing training in Mindfulness-Based Positive placements at risk. The rate of hospital Behavior Support (MBPBS) to caregivers

2 3 significantly reduces their use of physical conducted. Additional interviews were variance in community involvement. No People with an Acquired Brain Injury: An restraints, and decreases staff stress and staff conducted with family. Team members subscales were significant for the remaining Interpretative-Phenomenological Analysis of turnover. The study aims to evaluate the evaluated the arrangements individually, then a QoL dependent variables. their Quality of Life effectiveness of MBPBS against Positive final score for each item on the ISL framework Conclusion: The findings provide support that Sofie Vindevogel, Claudia Claes Behavior Support (PBS) alone in a cluster was determined using a conciliation process group home culture is associated with certain randomized controlled trial. involving all team members. QoL outcomes. These findings have implications Aim: Acquiring a brain injury (ABI) may inflict Method: One hundred and twenty-three Results: Inter-rater reliability was strong. The for research and service delivery. profound and persisting consequences on caregivers were randomized by homes into tool distinguished between arrangements of  people’s lives and potentially jeopardize their either the MBPBS (n = 60) or PBS (n = 63) high-quality and those of lower-quality (e.g., quality of life (QoL). This study seeks to training groups and provided intensive training considering issues such as choice and control, Management Support for Staff in Community understand whether the acquisition of a brain according to a matched protocol in terms of and quality of life). The assessment and Services for People with Intellectual injury has affected the lived experiences and time and trainer interaction. conciliation processes generated practical Disabilities and Challenging Behaviours meaning of QoL for people with ABI. Results: While both forms of training reduced recommendations that people and their families Roy Deveau, Peter McGill Method: Following purposeful sampling in a staff use of physical restraints, significantly could apply to enhance their living specialized service and counselling centre, in- greater reduction was evident for the MBPBS arrangements. Aim: Managers responsible for the day-to-day depth interviews were conducted with 12 adults group. In addition, significant reductions in staff Conclusion: Evidence indicates the ISL practice of frontline staff are facing difficulty in with ABI. These existed of three phases: 1) stress, staff turnover, and staff compassion framework is a valid and reliable tool. directly monitoring and supporting improved transition after ABI and current situation, 2) fatigue was evident only in the MBPBS group. Furthermore, the tool has potential for use in practice, that is, practice leadership (PL). This is (in)formal supports contributing to the lived Furthermore, a benefit-cost analysis showed guiding the establishment of such a result of government policy increasing the experience of QoL, 3) meaning and important substantial financial savings for the MBPBS arrangements. number of services managed, e.g. to indicators of QoL since living with ABI. group.  individualised services, funding pressures, Interpretative-phenomenological analysis Conclusion: This study suggests that MBPBS increased administration, and paperwork. This method was performed. may be a viable training program for caregivers The Relationship between Group Home research examined staff experiences associated Results: All participants perceived ABI as a who provide services to individuals with Culture and Quality of Life Outcomes for with contact with service manager and PL. significant turning point in their life. Most intellectual and developmental disabilities. People with Intellectual Disabilities Method: A cross-sectional survey gathered data important alterations were perceived with  Lincoln Humphreys, Christine Bigby, Teresa from 144 frontline staff in services for people regard to the self-concept, the living and work Iacono, Emma Bould with ID who exhibit behaviours that challenge. situation, increased dependency, progressive Individualised Supported Living: A New Measures included: practice leadership, social isolation, and physical and cognitive Approach to Planning for Accommodation and Aim: Research has shown that there is number, and characteristics of service users, disability. Over time, most participants a Full Life in the Community variability in quality of life (QoL) outcomes for contact with manager, and a variety of staff experienced gradual improvement in their QoL, Keith McVilly, Errol Cocks, Patricia O'Brien, Stian people with intellectual disabilities who live in experiences, e.g. burnout, teamwork, job attributed mostly to their own hardiness, Thoresen, Allyson Thomson, Meredith Prain, group homes. The aim was to examine group satisfaction, and self-efficacy. support by significant others, and acceptance by Friederike Gadow, Jenny Crosbie home culture as a predictor of QoL outcomes. Results: Staff in large group homes had greater the broader community. Method: Participants were 98 people with manager contact than small homes. Higher Conclusion: This study calls for a Aim: This project investigated the efficacy of a intellectual disabilities and 107 frontline staff practice leadership was experienced with comprehensive, interdisciplinary approach to tool, The Individualised Supported Living from 23 group homes. The Group Home Culture greater manager contact; PL was also reported the interconnected consequences of the ABI Manual (ISL), to measure the quality of Scale (GHCS) was used to measure staff culture. by staff with limited manager contact. Better and to both objective and subjective community living arrangements for people with Data were analysed using multilevel modelling staff experiences was associated with greater dimensions of QoL in its aftermath. intellectual disabilities. We wanted to know if to examine the relationship between the GHCS manager contact and practice leadership, but  the tool could distinguish between living subscales and four QoL dependent variables. not with number of service users supported. arrangements of varying quality, and if a Results: After accounting for adaptive Conclusion: Suggestions will be made for An International Approach to Align UNCRPD ‘conciliation’ approach was feasible when behaviour and the quality of staff support, the further research and organisational action to Articles with Quality of Life Indicators and conducing evaluations. GHCS subscales Effective Team Leadership and ensure appropriate management support, i.e. Support Strategies Method: The project was undertaken across Alignment of Staff with Organisational Values PL for staff working with challenging Marco Lombardi, Hanne Vandenbussche, three Australian States. A multiple single case explained an additional 9% of the variance in behaviours. Claudia Claes, Bob Schalock study design was employed. Teams of four engagement in activities. After accounting for  researchers visited 120 people living in their adaptive behaviour, the subscale Supporting Aim: Since the United Nations Convention on own homes. Interviews and observations were Well Being explained an additional 10% of the the Rights of Persons with Disabilities (UNCRPD)

4 5 significantly reduces their use of physical conducted. Additional interviews were variance in community involvement. No People with an Acquired Brain Injury: An restraints, and decreases staff stress and staff conducted with family. Team members subscales were significant for the remaining Interpretative-Phenomenological Analysis of turnover. The study aims to evaluate the evaluated the arrangements individually, then a QoL dependent variables. their Quality of Life effectiveness of MBPBS against Positive final score for each item on the ISL framework Conclusion: The findings provide support that Sofie Vindevogel, Claudia Claes Behavior Support (PBS) alone in a cluster was determined using a conciliation process group home culture is associated with certain randomized controlled trial. involving all team members. QoL outcomes. These findings have implications Aim: Acquiring a brain injury (ABI) may inflict Method: One hundred and twenty-three Results: Inter-rater reliability was strong. The for research and service delivery. profound and persisting consequences on caregivers were randomized by homes into tool distinguished between arrangements of  people’s lives and potentially jeopardize their either the MBPBS (n = 60) or PBS (n = 63) high-quality and those of lower-quality (e.g., quality of life (QoL). This study seeks to training groups and provided intensive training considering issues such as choice and control, Management Support for Staff in Community understand whether the acquisition of a brain according to a matched protocol in terms of and quality of life). The assessment and Services for People with Intellectual injury has affected the lived experiences and time and trainer interaction. conciliation processes generated practical Disabilities and Challenging Behaviours meaning of QoL for people with ABI. Results: While both forms of training reduced recommendations that people and their families Roy Deveau, Peter McGill Method: Following purposeful sampling in a staff use of physical restraints, significantly could apply to enhance their living specialized service and counselling centre, in- greater reduction was evident for the MBPBS arrangements. Aim: Managers responsible for the day-to-day depth interviews were conducted with 12 adults group. In addition, significant reductions in staff Conclusion: Evidence indicates the ISL practice of frontline staff are facing difficulty in with ABI. These existed of three phases: 1) stress, staff turnover, and staff compassion framework is a valid and reliable tool. directly monitoring and supporting improved transition after ABI and current situation, 2) fatigue was evident only in the MBPBS group. Furthermore, the tool has potential for use in practice, that is, practice leadership (PL). This is (in)formal supports contributing to the lived Furthermore, a benefit-cost analysis showed guiding the establishment of such a result of government policy increasing the experience of QoL, 3) meaning and important substantial financial savings for the MBPBS arrangements. number of services managed, e.g. to indicators of QoL since living with ABI. group.  individualised services, funding pressures, Interpretative-phenomenological analysis Conclusion: This study suggests that MBPBS increased administration, and paperwork. This method was performed. may be a viable training program for caregivers The Relationship between Group Home research examined staff experiences associated Results: All participants perceived ABI as a who provide services to individuals with Culture and Quality of Life Outcomes for with contact with service manager and PL. significant turning point in their life. Most intellectual and developmental disabilities. People with Intellectual Disabilities Method: A cross-sectional survey gathered data important alterations were perceived with  Lincoln Humphreys, Christine Bigby, Teresa from 144 frontline staff in services for people regard to the self-concept, the living and work Iacono, Emma Bould with ID who exhibit behaviours that challenge. situation, increased dependency, progressive Individualised Supported Living: A New Measures included: practice leadership, social isolation, and physical and cognitive Approach to Planning for Accommodation and Aim: Research has shown that there is number, and characteristics of service users, disability. Over time, most participants a Full Life in the Community variability in quality of life (QoL) outcomes for contact with manager, and a variety of staff experienced gradual improvement in their QoL, Keith McVilly, Errol Cocks, Patricia O'Brien, Stian people with intellectual disabilities who live in experiences, e.g. burnout, teamwork, job attributed mostly to their own hardiness, Thoresen, Allyson Thomson, Meredith Prain, group homes. The aim was to examine group satisfaction, and self-efficacy. support by significant others, and acceptance by Friederike Gadow, Jenny Crosbie home culture as a predictor of QoL outcomes. Results: Staff in large group homes had greater the broader community. Method: Participants were 98 people with manager contact than small homes. Higher Conclusion: This study calls for a Aim: This project investigated the efficacy of a intellectual disabilities and 107 frontline staff practice leadership was experienced with comprehensive, interdisciplinary approach to tool, The Individualised Supported Living from 23 group homes. The Group Home Culture greater manager contact; PL was also reported the interconnected consequences of the ABI Manual (ISL), to measure the quality of Scale (GHCS) was used to measure staff culture. by staff with limited manager contact. Better and to both objective and subjective community living arrangements for people with Data were analysed using multilevel modelling staff experiences was associated with greater dimensions of QoL in its aftermath. intellectual disabilities. We wanted to know if to examine the relationship between the GHCS manager contact and practice leadership, but  the tool could distinguish between living subscales and four QoL dependent variables. not with number of service users supported. arrangements of varying quality, and if a Results: After accounting for adaptive Conclusion: Suggestions will be made for An International Approach to Align UNCRPD ‘conciliation’ approach was feasible when behaviour and the quality of staff support, the further research and organisational action to Articles with Quality of Life Indicators and conducing evaluations. GHCS subscales Effective Team Leadership and ensure appropriate management support, i.e. Support Strategies Method: The project was undertaken across Alignment of Staff with Organisational Values PL for staff working with challenging Marco Lombardi, Hanne Vandenbussche, three Australian States. A multiple single case explained an additional 9% of the variance in behaviours. Claudia Claes, Bob Schalock study design was employed. Teams of four engagement in activities. After accounting for  researchers visited 120 people living in their adaptive behaviour, the subscale Supporting Aim: Since the United Nations Convention on own homes. Interviews and observations were Well Being explained an additional 10% of the the Rights of Persons with Disabilities (UNCRPD)

4 5 was created, the translation of the Convention Results: The key finding was that participants Conclusion: The SF-MOSS has acceptable face- Rethinking Disability Certifying and Entitled into practice has been difficult. To support the valued the new relationship they formed with and content-validity and shows promise as a Welfare Services Delivering: An Application of implementation of UNCRPD, the present study their volunteer. The relational qualities tool for tracking the outcomes resulting from ICF in Taiwan aimed to align UNCPRD articles to specific underpinning the relationship included trust, services for people with a range of abilities. Edward Chun-Fan Lai support strategies to promote Quality of Life closeness, unconditionality, and being non-  (QoL). judgemental. Through the support relationship, Aim: This presentation scrutinizes the Method: The methodology chosen to find participants reflected a deeper understanding Impact of Family Support on Caregiver Well- application of ICF for classifying and certifying consensus was two international modified of what choice and control looked like in their Being disability and its derivative instrument for Delphi studies. The aim of first phase was to lives and had an increased awareness of their Tamar Heller, Caitlin Crabb, Randall Owen assessing needs and entitling welfare service find consensus to determine the relation among need for support in decision-making. delivery in Taiwan, after the effective since July UN Convention articles, QOL domains, and Conclusion: With proper training, volunteers Aim: This longitudinal study examines the of 2012. measurable indicators by a group of experts. In supporting people with disabilities to make impact of formal family support on the Method: By using the administrative dataset a second phase, support strategies at Micro and decisions are seen to be very helpful. caregiver’s burden, satisfaction, and mental (total 3,399 samples) of certifying disabilities, Meso level were generated and evaluated. The  health over two years. the work re-presents the data with quantitative process implied a structured research plan Method: The sample included 287 family methods for understanding the relationships where several Delphi rounds were run until Measuring Goal Realisation Associated with members of managed care enrollees with among outcome of classifying and certifying consensus was reached. Disability Services and Supports: Initial disabilities, including 82 with intellectual and disabilities, upshot of needs assessment, and Results: 85 indicators and related support Evidence for a New Tool developmental disabilities (IDD). Dependent status of delivering welfare services. For strategies have received a good level of cross- Nick Hagiliassis, Stella Koritsas, Celeste Cuzzillo variables in linear regression models were corresponding to statistical outputs, it also cultural agreement. This study represents a first caregiving burden and satisfaction and mental analyzes literatures related to policy discourse step to obtain measurable indicators of the Aim: Few outcome tools achieve self-report by health (SF12). In addition to the outcome of disability. UNCRPD Articles within a QOL framework. people with cognitive disability. The Measuring variables from year 1, other independent Results: The first preliminary finding is that not Conclusion: By using a Delphi methodology, Outcomes of Services and Supports - Short variables included: 1) demographics (age, race, real needs or outcomes of classifying and multiple indicators for each Article/QOL domain Form (SF-MOSS) evaluates goal realisation ethnicity, gender, residential status, relationship certifying but (forced) entitled welfare service pairing were identified by a group of (performance and satisfaction with to enrollee and disability type; 2) family program embedded in People with Disabilities international respondents and then linked to achievement of a desired or anticipated goal). caregiving demands (paid and unpaid care time, Rights Protection Act as the most important specific support strategies to implement the The tool uses methods that can be accessed family involvement, and input in enrollee’s role influences (re)distribution of resources and application of the UCRPD in the practices of (with and without support by others) by people care); and 3) family support (unmet needs and welfare policy practice, i.e. delivery in cash and support providers and as Quality of life with cognitive disability, whilst being feasible supports used). in service. The second one is that the outcomes. for service providers to administer. The Results: Caregivers of people were IDD were bureaucratic actor re-classifies consciously and  research examined initial psychometric more likely to be parents, female, and white. conveniently whom has or has no needs by evidence for the face- and content-validity of Family members with more unmet family unspoken rules of client flow management "She can never leave me now": Participants the tool, a necessary and first stage of testing support needs experienced significantly higher against the principle of bio-psycho-social model Perspectives on Volunteers Supporting evaluation tools. levels of burden and worse mental health. of ICF. Decision-Making Method: Face validity was assessed by an Family members of persons with physical Conclusion: The author will further examine the Patsie Frawley, Susan Balandin, Joanne Watson expert group (n=63) who evaluated the tool’s disabilities and families receiving more family results of this finding with a critical discourse application; content validity was explored by support had significantly higher satisfaction. underpinned by (re)distribution policy principles Aim: The aim of the project was to explore how administering the tool in a practice setting and Conclusion: This study demonstrates the with considering heterogeneity of IDD’s needs. people with a disability experienced support analysing goals for consumers compared with importance of providing family support that  from volunteers trained to support them in necessary domains of disability support. meets the needs of caregivers of individuals decision-making. Results: Results indicate positive to strongly with disabilities and results in a more positive Staff Perceptions of the Purpose, Frequency, Method: Six people with disabilities positive ratings of face validity characteristics appraisal of their caregiving experience and and Organisational Focus for Senior Manager participated in interviews to reflect on their (e.g., extent to which the tool’s purpose is their mental health. Visits to Services, in the United Kingdom expectations and later outcomes of having a apparent to those using it). Participants also  Roy Deveau, Andrew McDonnell volunteer in their lives who was working with provided suggestions for further improvements. them to support their decision-making. The SF-MOSS maps adequately to most Aim: Abuse by staff of people with ID has Interviews were analysed thematically. necessary domains relevant to the delivery of exposed the gap between the espoused values disability supports. and policies of organisations’ senior

6 7 was created, the translation of the Convention Results: The key finding was that participants Conclusion: The SF-MOSS has acceptable face- Rethinking Disability Certifying and Entitled into practice has been difficult. To support the valued the new relationship they formed with and content-validity and shows promise as a Welfare Services Delivering: An Application of implementation of UNCRPD, the present study their volunteer. The relational qualities tool for tracking the outcomes resulting from ICF in Taiwan aimed to align UNCPRD articles to specific underpinning the relationship included trust, services for people with a range of abilities. Edward Chun-Fan Lai support strategies to promote Quality of Life closeness, unconditionality, and being non-  (QoL). judgemental. Through the support relationship, Aim: This presentation scrutinizes the Method: The methodology chosen to find participants reflected a deeper understanding Impact of Family Support on Caregiver Well- application of ICF for classifying and certifying consensus was two international modified of what choice and control looked like in their Being disability and its derivative instrument for Delphi studies. The aim of first phase was to lives and had an increased awareness of their Tamar Heller, Caitlin Crabb, Randall Owen assessing needs and entitling welfare service find consensus to determine the relation among need for support in decision-making. delivery in Taiwan, after the effective since July UN Convention articles, QOL domains, and Conclusion: With proper training, volunteers Aim: This longitudinal study examines the of 2012. measurable indicators by a group of experts. In supporting people with disabilities to make impact of formal family support on the Method: By using the administrative dataset a second phase, support strategies at Micro and decisions are seen to be very helpful. caregiver’s burden, satisfaction, and mental (total 3,399 samples) of certifying disabilities, Meso level were generated and evaluated. The  health over two years. the work re-presents the data with quantitative process implied a structured research plan Method: The sample included 287 family methods for understanding the relationships where several Delphi rounds were run until Measuring Goal Realisation Associated with members of managed care enrollees with among outcome of classifying and certifying consensus was reached. Disability Services and Supports: Initial disabilities, including 82 with intellectual and disabilities, upshot of needs assessment, and Results: 85 indicators and related support Evidence for a New Tool developmental disabilities (IDD). Dependent status of delivering welfare services. For strategies have received a good level of cross- Nick Hagiliassis, Stella Koritsas, Celeste Cuzzillo variables in linear regression models were corresponding to statistical outputs, it also cultural agreement. This study represents a first caregiving burden and satisfaction and mental analyzes literatures related to policy discourse step to obtain measurable indicators of the Aim: Few outcome tools achieve self-report by health (SF12). In addition to the outcome of disability. UNCRPD Articles within a QOL framework. people with cognitive disability. The Measuring variables from year 1, other independent Results: The first preliminary finding is that not Conclusion: By using a Delphi methodology, Outcomes of Services and Supports - Short variables included: 1) demographics (age, race, real needs or outcomes of classifying and multiple indicators for each Article/QOL domain Form (SF-MOSS) evaluates goal realisation ethnicity, gender, residential status, relationship certifying but (forced) entitled welfare service pairing were identified by a group of (performance and satisfaction with to enrollee and disability type; 2) family program embedded in People with Disabilities international respondents and then linked to achievement of a desired or anticipated goal). caregiving demands (paid and unpaid care time, Rights Protection Act as the most important specific support strategies to implement the The tool uses methods that can be accessed family involvement, and input in enrollee’s role influences (re)distribution of resources and application of the UCRPD in the practices of (with and without support by others) by people care); and 3) family support (unmet needs and welfare policy practice, i.e. delivery in cash and support providers and as Quality of life with cognitive disability, whilst being feasible supports used). in service. The second one is that the outcomes. for service providers to administer. The Results: Caregivers of people were IDD were bureaucratic actor re-classifies consciously and  research examined initial psychometric more likely to be parents, female, and white. conveniently whom has or has no needs by evidence for the face- and content-validity of Family members with more unmet family unspoken rules of client flow management "She can never leave me now": Participants the tool, a necessary and first stage of testing support needs experienced significantly higher against the principle of bio-psycho-social model Perspectives on Volunteers Supporting evaluation tools. levels of burden and worse mental health. of ICF. Decision-Making Method: Face validity was assessed by an Family members of persons with physical Conclusion: The author will further examine the Patsie Frawley, Susan Balandin, Joanne Watson expert group (n=63) who evaluated the tool’s disabilities and families receiving more family results of this finding with a critical discourse application; content validity was explored by support had significantly higher satisfaction. underpinned by (re)distribution policy principles Aim: The aim of the project was to explore how administering the tool in a practice setting and Conclusion: This study demonstrates the with considering heterogeneity of IDD’s needs. people with a disability experienced support analysing goals for consumers compared with importance of providing family support that  from volunteers trained to support them in necessary domains of disability support. meets the needs of caregivers of individuals decision-making. Results: Results indicate positive to strongly with disabilities and results in a more positive Staff Perceptions of the Purpose, Frequency, Method: Six people with disabilities positive ratings of face validity characteristics appraisal of their caregiving experience and and Organisational Focus for Senior Manager participated in interviews to reflect on their (e.g., extent to which the tool’s purpose is their mental health. Visits to Services, in the United Kingdom expectations and later outcomes of having a apparent to those using it). Participants also  Roy Deveau, Andrew McDonnell volunteer in their lives who was working with provided suggestions for further improvements. them to support their decision-making. The SF-MOSS maps adequately to most Aim: Abuse by staff of people with ID has Interviews were analysed thematically. necessary domains relevant to the delivery of exposed the gap between the espoused values disability supports. and policies of organisations’ senior

6 7 management and frontline staff practice. To A survey was administered to 59 participants Conclusion: These findings highlight the need Establishing and Maintaining Couplehood as examine the perceptions of frontline staff over a 5-year period from 2012 to 2016. The for further research to understand and redress Perceived by Couples with Intellectual and regarding the purpose, frequency, and results were analysed to examine if the how violence in the lives of mothers with Developmental Disabilities: Implications for personnel conducting senior managers’ visits to programme had met its intended objectives. intellectual disabilities are constructed and the Provision of Support community based services for people with ID Additionally, eight of the participants responded to by statutory child protection Ran Neuman, Shunit Reiter who may exhibit challenging behaviours, and participated in an interview to ascertain if the authorities, lawyers, and the courts. the organisation’s overall focus. programme could enable them to lead their  Aim: One of the key aspects of adult life is the Method: Two projects provided survey data own future support groups. opportunity to experience couplehood. Our from frontline staff working in community Results: Overall, results showed that the “If I had this support before I would still have study focused on the support system necessary based services in Southern England: project 1, programme provided opportunities for siblings my first child with me”: Supporting Parents for building and maintaining couplehood as an organisational intervention and evaluation to create peer support and friendships with with Intellectual Disability in the Child portrayed from the perspective of people with with baseline measures, interventions, and each other, and helped the siblings to discuss Protection System intellectual and developmental disabilities follow-up measures; and project 2, a cross personal issues that they would not have Susan Collings, Angela Dew, Margaret Spencer, (IDD). sectional survey of staff. Data were subject to otherwise have had. Erin Cooney, Leanne Dowse Method: Interviews were held with 40 couples secondary analysis. Conclusion: Providing opportunities for siblings who were asked to describe the conditions and Results: Staff were generally aware of senior of persons with intellectual and developmental Aim: To document a support model for parents circumstances that helped them build the manager visits within the ‘last month.’ The main disabilities is important in order to provide a with intellectual disabilities involved in the child relationship, the challenges they deal with perceived purposes of visits were: observing holistic family-centric support. The results of protection system in Australia. today, and their coping strategies. Interviewees staff work with service users, admin and the study showed that sibling care is critical to Method: Qualitative methods were used to gave their consent for the interviews and for paperwork, and ‘don’t know.’ Changes in the maintaining a cohesive family unit. explore the role of a specialist advocacy and recording them. expected direction of organisational focus  court support program for parents with an Results: Content analysis revealed two major followed the intervention. intellectual disability. Interviews with ten themes: challenges arising from the partnership Conclusion: Changes in staff’s perceptions of Domestic Violence, Mothering with Intellectual parents and focus groups with five volunteers relations which were not unlike those most senior manager’s role and purpose are required Disability, and the Child Protection System were analysed to identify key themes. young couples experience, and challenges and may be easily achieved. Margaret Spencer, Susan Collings, Angela Dew, Results: The main theme for both groups was arising from the reactions of the caretakers. Leadership/management practice Erin Cooney powerlessness in the face of systemic injustice Caretakers were not perceived as a source of developments in ID are suggested. This may by court and child protection systems that support for the couple, but rather as a threat to help align day-to-day frontline staff practices to Aim: To shed light on the intersectionality of assumed parental incompetence. Parents the continued existence of the relationship. the documented policies, values, and mission of domestic violence (DV), mothering with described negative contact with child protection Conclusion: The findings pointed to the organisations. intellectual disabilities, and statutory child and courts, including feeling undermined and importance of changing caretakers' attitudes  protection involvement. confused. Parents did not regard the from giving instructions and raising boundaries Method: A review was undertaken of an information they received as accessible and felt to providing guidance and support, empowering Evaluating the Effectiveness of a Support advocacy/court support program for parents misled about the likely outcome. Advocacy and couples to solve their problems, and make Programme for Siblings of Persons with with intellectual disabilities involved in care emotional support from the specialist program personal choices. Recommendations for Intellectual and Developmental Disabilities in proceeding in New South Wales, Australia. The helped them to negotiate these systems. appropriate support are presented, with an Singapore over a Five-Year Period study involved a case file review of 45 non-legal Volunteers viewed the program as critical to emphasis on strengthening the skills of people Yu Ping Tay, Shine Koh files. giving these parents a chance at achieving a just with IDD and on making the necessary Results: The study found the primary reason for outcome; however, they were pessimistic about modifications in caretakers' attitudes and Aim: Siblings of people with intellectual and the initiation of an investigation by the the prospects of parents being reunited with practice. developmental disabilities experience stress, statutory child protection authority in these their children. Volunteers were at risk of  reduced well-being, and social barriers similar families was DV (24%, n=11). In almost all cases burnout due to the emotional demands of the to that of their parents. This study examines the (89%), an investigation led to the termination of work. effectiveness of a siblings support programme parental rights. Despite being the most Conclusion: Barriers exist in addressing the to address these issues faced by siblings. The common reason for investigation, DV explained complex support needs of these parents, due to programme was developed by a team of social just 12% of removals with neglect and a parent limited program resources and the absence of workers. being deemed “unfit,” as the two most common inclusive court and child protection practices. Method: Participants in the program were reasons (N=8 each).  siblings between the ages of 13 to 20 years old.

8 9 management and frontline staff practice. To A survey was administered to 59 participants Conclusion: These findings highlight the need Establishing and Maintaining Couplehood as examine the perceptions of frontline staff over a 5-year period from 2012 to 2016. The for further research to understand and redress Perceived by Couples with Intellectual and regarding the purpose, frequency, and results were analysed to examine if the how violence in the lives of mothers with Developmental Disabilities: Implications for personnel conducting senior managers’ visits to programme had met its intended objectives. intellectual disabilities are constructed and the Provision of Support community based services for people with ID Additionally, eight of the participants responded to by statutory child protection Ran Neuman, Shunit Reiter who may exhibit challenging behaviours, and participated in an interview to ascertain if the authorities, lawyers, and the courts. the organisation’s overall focus. programme could enable them to lead their  Aim: One of the key aspects of adult life is the Method: Two projects provided survey data own future support groups. opportunity to experience couplehood. Our from frontline staff working in community Results: Overall, results showed that the “If I had this support before I would still have study focused on the support system necessary based services in Southern England: project 1, programme provided opportunities for siblings my first child with me”: Supporting Parents for building and maintaining couplehood as an organisational intervention and evaluation to create peer support and friendships with with Intellectual Disability in the Child portrayed from the perspective of people with with baseline measures, interventions, and each other, and helped the siblings to discuss Protection System intellectual and developmental disabilities follow-up measures; and project 2, a cross personal issues that they would not have Susan Collings, Angela Dew, Margaret Spencer, (IDD). sectional survey of staff. Data were subject to otherwise have had. Erin Cooney, Leanne Dowse Method: Interviews were held with 40 couples secondary analysis. Conclusion: Providing opportunities for siblings who were asked to describe the conditions and Results: Staff were generally aware of senior of persons with intellectual and developmental Aim: To document a support model for parents circumstances that helped them build the manager visits within the ‘last month.’ The main disabilities is important in order to provide a with intellectual disabilities involved in the child relationship, the challenges they deal with perceived purposes of visits were: observing holistic family-centric support. The results of protection system in Australia. today, and their coping strategies. Interviewees staff work with service users, admin and the study showed that sibling care is critical to Method: Qualitative methods were used to gave their consent for the interviews and for paperwork, and ‘don’t know.’ Changes in the maintaining a cohesive family unit. explore the role of a specialist advocacy and recording them. expected direction of organisational focus  court support program for parents with an Results: Content analysis revealed two major followed the intervention. intellectual disability. Interviews with ten themes: challenges arising from the partnership Conclusion: Changes in staff’s perceptions of Domestic Violence, Mothering with Intellectual parents and focus groups with five volunteers relations which were not unlike those most senior manager’s role and purpose are required Disability, and the Child Protection System were analysed to identify key themes. young couples experience, and challenges and may be easily achieved. Margaret Spencer, Susan Collings, Angela Dew, Results: The main theme for both groups was arising from the reactions of the caretakers. Leadership/management practice Erin Cooney powerlessness in the face of systemic injustice Caretakers were not perceived as a source of developments in ID are suggested. This may by court and child protection systems that support for the couple, but rather as a threat to help align day-to-day frontline staff practices to Aim: To shed light on the intersectionality of assumed parental incompetence. Parents the continued existence of the relationship. the documented policies, values, and mission of domestic violence (DV), mothering with described negative contact with child protection Conclusion: The findings pointed to the organisations. intellectual disabilities, and statutory child and courts, including feeling undermined and importance of changing caretakers' attitudes  protection involvement. confused. Parents did not regard the from giving instructions and raising boundaries Method: A review was undertaken of an information they received as accessible and felt to providing guidance and support, empowering Evaluating the Effectiveness of a Support advocacy/court support program for parents misled about the likely outcome. Advocacy and couples to solve their problems, and make Programme for Siblings of Persons with with intellectual disabilities involved in care emotional support from the specialist program personal choices. Recommendations for Intellectual and Developmental Disabilities in proceeding in New South Wales, Australia. The helped them to negotiate these systems. appropriate support are presented, with an Singapore over a Five-Year Period study involved a case file review of 45 non-legal Volunteers viewed the program as critical to emphasis on strengthening the skills of people Yu Ping Tay, Shine Koh files. giving these parents a chance at achieving a just with IDD and on making the necessary Results: The study found the primary reason for outcome; however, they were pessimistic about modifications in caretakers' attitudes and Aim: Siblings of people with intellectual and the initiation of an investigation by the the prospects of parents being reunited with practice. developmental disabilities experience stress, statutory child protection authority in these their children. Volunteers were at risk of  reduced well-being, and social barriers similar families was DV (24%, n=11). In almost all cases burnout due to the emotional demands of the to that of their parents. This study examines the (89%), an investigation led to the termination of work. effectiveness of a siblings support programme parental rights. Despite being the most Conclusion: Barriers exist in addressing the to address these issues faced by siblings. The common reason for investigation, DV explained complex support needs of these parents, due to programme was developed by a team of social just 12% of removals with neglect and a parent limited program resources and the absence of workers. being deemed “unfit,” as the two most common inclusive court and child protection practices. Method: Participants in the program were reasons (N=8 each).  siblings between the ages of 13 to 20 years old.

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Procreative Injustice: The Access to severe/profound intellectual disability, and the amongst their peers in a safe space. Their is being developed. Play theories need some Reproductive Rights for Women with second generally around people with mild learning points, challenges, and type of support additions to be able to describe ASD children’s Intellectual Disabilities in Poland cognitive disability. Supporters then provided needed were noted for peer mediation to be a play right. Adults need to be sensitive and pay Agnieszka Wolowicz-Ruszkowski decision-making support to participants. support model and an innovative activity for more attention to children’s play initiatives. Interviews with participants provided insight resolving conflict by and for individuals with Future research is needed. Aim: The aim is to widen a social reflection on into the value of the practice models. Interviews IDDs.  the theme of access to reproductive rights and were analysed thematically. Conclusion: Peer mediation has impacted the the right to family life for women with ID. Results: In both studies supporters did not use lives of individuals with IDDs by enhancing the Parent Researcher Collaborations and Method: Qualitative research, 19 in-depth the practice models as intended. Relationship social emotional development aspect of their Exploring the Lived Experience Through Story- interviews, and 7 case studies were analysed building was viewed as the aspect most lives. This has enhanced their quality of life Telling using Grounded Theory. important in both practice models. In the study where they were given the opportunity to speak Murray Rieck, Jane Shakespeare-Finch, Mariann Results: Women with ID are discriminated involving people with mild disability, the up, make decisions, and take control of their Märtsin, Marie Knox against regarding access to the above- mechanics of decision-making were viewed as life. The effectiveness of peer mediation has mentioned rights, both in social practice and less important than supporting the person to added value as a societal support model to the Aim: This project explored the lived experience legal regulations. This is visible in: 1) enact their will and preference. In the study development of self-advocacy movement in the of parents who have a young adult son or undermining the right to making procreative involving people with severe/profound Asia-Pacific region. daughter with intellectual disability who shares decisions (sterilization, abortion, and intellectual disability, supporters’ focus was on  the family home. administering contraceptives without informed the mechanics of interpreting the will and Method: Interpretive phenomenological consent); 2) creating a social image of women preference of the person at the centre. Play and Children with Autism Spectrum analysis and reflective journaling was used to with ID as incompetent mothers (social fear Conclusion: Human decision-making is not well Disorder gather life stories of parents and identify regarding the ability of providing appropriate defined. The use of a generic practice model has Piret Elina Vermilä impacts on the researcher and participants from childcare); and 3) limiting their influence on the little impact on decision-making support being part of the research project. child upbringing (increased control over practice. Decision-making support practice Aim: This research describes the play of Results: Multiple strategies and artefacts were motherhood, ID as a premise to take away the should be individualised (rather than generic). children with Autism Spectrum Disorder (ASD). effectively used to facilitate parents’ story- child).  It also measures children's initiation and telling. Parents commented that it was highly Conclusion: In the theme of motherhood there involvement in play and the interaction rewarding to reflect on their own lives, values, are double standards regarding the treatment Peer Mediation as a Societal Support Model by between the children and the adults. The and approaches to manage difficult times, and of women with and without ID. Different and for People with researcher hypothesized that children with ASD to identify personal strengths and growth. The women in the same situation are required to Intellectual and Developmental Disabilities want to play like all children, but their play researcher noted a strong collaborative and possess different levels of competence. There is Jee Ching Pang, Sau Cheong Loh, Ahmad Zabidi differs from regular children’s play and play inspirational journey of parent-researcher a dichotomy between the social determinism bin Abdul Razak theories. relationships, in addition to his own personal that promotes them having children, and the Method: Play was added to the schedule of 7-9 and professional growth in gathering stories. social mechanisms that preclude or discourage Aim: Peer mediation was introduced to year old children with ASD five times a week for Conclusion: In-depth qualitative life story data women with ID from becoming mothers. individuals with intellectual and developmental 1½years. Play was videotaped six times during was gained through collaborative research with  disabilities (IDDs) in a self-advocacy this time period. Videotapes were analysed parents. The researcher and parents reflected organization. This presentation seeks to using applied conversation analysis and with the on the collaborative research interview process The Role of Practice Models in Implementing examine the ability of peer mediators in Preschool Play Behaviour Scale. The results and the positive impact that story telling had on Decision-Making Support resolving conflicts amongst their peers by were compared to current play theories. their lives. Joanne Watson, Patsie Frawley, Susan Balandin asking peer mediation experiences. Results: During play sessions, the children  Method: Three peer mediators participated in a played mainly in the same ways: read books, Aim: Article 12 of UNCRPD instigated an 76-hour of peer mediation training, to learn and built blocks, or rocked with an adult. There was Applying Article 12 of the UNCRPD within increase in models to guide practice in decision- practice peer mediation amongst their peers in no symbolic or role play. Children made many Guardianship Practice in Victoria, Australia making support. The aim of this paper was to an experiential learning approach. Training play initiatives with other children and adults Joanne Watson, Julie Anderson explore the role of these models. notes, diaries, observation, and interviews were that the adults did not notice. ASD-children Method: Different models designed to guide gathered as data and triangulated based on needed the help of an adult to play at Aim: 1) To understand Victorian Civil and decision-making support were introduced to their experience of peer mediation. developmentally higher levels. Administrative Tribunal (VCAT)’s application of supporters in two studies. The first centred Results: Peer mediators practiced their rights to Conclusion: The child’s developmental age the principles of Article 12 (Equal recognition around the individual needs of a person with a support their peers by resolving conflicts needs to be taken into consideration when play before the law) of the UNCRPD (pre and post

10 11

Procreative Injustice: The Access to severe/profound intellectual disability, and the amongst their peers in a safe space. Their is being developed. Play theories need some Reproductive Rights for Women with second generally around people with mild learning points, challenges, and type of support additions to be able to describe ASD children’s Intellectual Disabilities in Poland cognitive disability. Supporters then provided needed were noted for peer mediation to be a play right. Adults need to be sensitive and pay Agnieszka Wolowicz-Ruszkowski decision-making support to participants. support model and an innovative activity for more attention to children’s play initiatives. Interviews with participants provided insight resolving conflict by and for individuals with Future research is needed. Aim: The aim is to widen a social reflection on into the value of the practice models. Interviews IDDs.  the theme of access to reproductive rights and were analysed thematically. Conclusion: Peer mediation has impacted the the right to family life for women with ID. Results: In both studies supporters did not use lives of individuals with IDDs by enhancing the Parent Researcher Collaborations and Method: Qualitative research, 19 in-depth the practice models as intended. Relationship social emotional development aspect of their Exploring the Lived Experience Through Story- interviews, and 7 case studies were analysed building was viewed as the aspect most lives. This has enhanced their quality of life Telling using Grounded Theory. important in both practice models. In the study where they were given the opportunity to speak Murray Rieck, Jane Shakespeare-Finch, Mariann Results: Women with ID are discriminated involving people with mild disability, the up, make decisions, and take control of their Märtsin, Marie Knox against regarding access to the above- mechanics of decision-making were viewed as life. The effectiveness of peer mediation has mentioned rights, both in social practice and less important than supporting the person to added value as a societal support model to the Aim: This project explored the lived experience legal regulations. This is visible in: 1) enact their will and preference. In the study development of self-advocacy movement in the of parents who have a young adult son or undermining the right to making procreative involving people with severe/profound Asia-Pacific region. daughter with intellectual disability who shares decisions (sterilization, abortion, and intellectual disability, supporters’ focus was on  the family home. administering contraceptives without informed the mechanics of interpreting the will and Method: Interpretive phenomenological consent); 2) creating a social image of women preference of the person at the centre. Play and Children with Autism Spectrum analysis and reflective journaling was used to with ID as incompetent mothers (social fear Conclusion: Human decision-making is not well Disorder gather life stories of parents and identify regarding the ability of providing appropriate defined. The use of a generic practice model has Piret Elina Vermilä impacts on the researcher and participants from childcare); and 3) limiting their influence on the little impact on decision-making support being part of the research project. child upbringing (increased control over practice. Decision-making support practice Aim: This research describes the play of Results: Multiple strategies and artefacts were motherhood, ID as a premise to take away the should be individualised (rather than generic). children with Autism Spectrum Disorder (ASD). effectively used to facilitate parents’ story- child).  It also measures children's initiation and telling. Parents commented that it was highly Conclusion: In the theme of motherhood there involvement in play and the interaction rewarding to reflect on their own lives, values, are double standards regarding the treatment Peer Mediation as a Societal Support Model by between the children and the adults. The and approaches to manage difficult times, and of women with and without ID. Different and for People with researcher hypothesized that children with ASD to identify personal strengths and growth. The women in the same situation are required to Intellectual and Developmental Disabilities want to play like all children, but their play researcher noted a strong collaborative and possess different levels of competence. There is Jee Ching Pang, Sau Cheong Loh, Ahmad Zabidi differs from regular children’s play and play inspirational journey of parent-researcher a dichotomy between the social determinism bin Abdul Razak theories. relationships, in addition to his own personal that promotes them having children, and the Method: Play was added to the schedule of 7-9 and professional growth in gathering stories. social mechanisms that preclude or discourage Aim: Peer mediation was introduced to year old children with ASD five times a week for Conclusion: In-depth qualitative life story data women with ID from becoming mothers. individuals with intellectual and developmental 1½years. Play was videotaped six times during was gained through collaborative research with  disabilities (IDDs) in a self-advocacy this time period. Videotapes were analysed parents. The researcher and parents reflected organization. This presentation seeks to using applied conversation analysis and with the on the collaborative research interview process The Role of Practice Models in Implementing examine the ability of peer mediators in Preschool Play Behaviour Scale. The results and the positive impact that story telling had on Decision-Making Support resolving conflicts amongst their peers by were compared to current play theories. their lives. Joanne Watson, Patsie Frawley, Susan Balandin asking peer mediation experiences. Results: During play sessions, the children  Method: Three peer mediators participated in a played mainly in the same ways: read books, Aim: Article 12 of UNCRPD instigated an 76-hour of peer mediation training, to learn and built blocks, or rocked with an adult. There was Applying Article 12 of the UNCRPD within increase in models to guide practice in decision- practice peer mediation amongst their peers in no symbolic or role play. Children made many Guardianship Practice in Victoria, Australia making support. The aim of this paper was to an experiential learning approach. Training play initiatives with other children and adults Joanne Watson, Julie Anderson explore the role of these models. notes, diaries, observation, and interviews were that the adults did not notice. ASD-children Method: Different models designed to guide gathered as data and triangulated based on needed the help of an adult to play at Aim: 1) To understand Victorian Civil and decision-making support were introduced to their experience of peer mediation. developmentally higher levels. Administrative Tribunal (VCAT)’s application of supporters in two studies. The first centred Results: Peer mediators practiced their rights to Conclusion: The child’s developmental age the principles of Article 12 (Equal recognition around the individual needs of a person with a support their peers by resolving conflicts needs to be taken into consideration when play before the law) of the UNCRPD (pre and post

10 11

Australia becoming a signatory), regarding Prevalence of Child Protection Outcomes in living conditions where such persons were pointed out that Taipei’s current welfare policy people with severe or profound cognitive Families Led by Parents with Cognitive being taken care of. Through evaluation of on poverty among people with disabilities does difficulties who communicate informally. 2) To Impairment in Canada these changes we analyzed medical not provide for the basic cost of living. identify any change in VCAT's application of Maurice Feldman, David McConnell, Marjorie circumstances for persons with severe motor Conclusion: This paper is a conceptual one and Article 12 pre and post Australia's signing of the Aunos, Laura Pacheco and intellectual disabilities (SMID). hopes to bring people’s attention to poverty UNCRPD within guardianship hearings. Method: The underlying diseases in 1986, 1996, issues of people with disabilities in Taiwan. In Method: Five VCAT guardianship decisions, Aim: The purpose of this study was to 2006, and 2016 taken from reports of present Taiwan, as with many Asian countries, it is relating to people with severe or profound investigate the degree to which children of conditions of institutions for SMID (9,606 important to understand the poverty issues of cognitive disability (informal communicators), parents with cognitive impairment (CI) are over- children and adults in 2016) were listed and people with disabilities so that we can examine made before Australia’s signing of the UNCRPD represented in child welfare cases. analyzed. whether equal rights can make their lives better (2008) were compared to seven made post Method: This study utilized data from the third Results: Five most prominent diseases in 2016 or worse. Finally, the inclusion of people with 2008. The researcher selected these Canadian Incidence Study of Reported Child were: hypoxia/asphyxia (19.6%), disabilities in society is important in order for cases/decisions from the Australian Legal Abuse and Neglect (CIS_2008) to investigate meningitis/encephalitis (9.0%), epilepsy (6.9%), them to have better life and get out of poverty. Information Institute Database. The text prevalence and outcomes for children of brain trauma (3.6%), and low birth weight (AFD  relating to these decisions/cases was analysed caregivers with CI subject to child maltreatment and LFD). Diseases increased in 30 years were using qualitative thematic data analysis. investigations. The CIS_2008 includes data on chromosomal disorders (other than Down's A Case Study of a Municipal Process for Results: Minimal change relating to the 15,980 children <15 years of age. Caregiver CI syndrome, 1.1 to 3.2%) and brain trauma (1.7 to Distribution of Resources within Disability principles of Article 12 was seen in the practice was noted in 7.8% of all cases, and one in six 3.6%), and decreased were hyper bilirubinemia Services of VCAT members in guardianship hearings cases involving children < 1 year. (4.1 to 1.8%), microcephaly/stenocephaly (5.5 Per Arvidsson relating to people with severe or profound Results: Children of caregivers with CI were to 2.4%), and meningitis/encephalitis (11.3 to cognitive disability, pre and post Australia’s more than three times as likely as all other 9.0%). Aim: Human service organizations (HSO) are signing of the UNCRPD. The key drivers to children to be apprehended. The association Conclusion: Reduced frequency seemed to be powerful institutions in modern society. For decisions made within the context of between caregiver CI and investigation due to improvement of medicine, whereas an persons with significant and long-term guardianship hearings pre and post 2008 were outcomes was significant even after controlling increased frequency of brain trauma was functional disabilities, the support from HSO´s is overwhelmingly based on judges’, families’ and for potentially confounding variables, including thought to reflect child abuse cases. These vital and in many cases life-long. The disability medical professionals’ opinions of what they but not limited to child functioning issues, analyses will throw light to daily life of severely services have become a major undertaking for perceived was in the person’s best interest, maltreatment exposure and evidence of harm, disabled persons at homes and in hospitals. the welfare state. In Sweden, the aggregated rather than what was perceived to be their will caregiver comorbidity and social isolation and  costs exceed 60 billion SEK, approximately 2% and preference in relation to the decision at household material hardship. of GDP. A focus on how these resources are hand. Conclusion: This study provides evidence from a The Poverty Problem of People with distributed raises fundamental theoretical and Conclusion: Australia’s signing of the UNCRPD large nationally representative sample of child Disabilities and Policy Issues Around Living ideological questions about organizational appears to have impacted guardianship practice welfare cases that children of parents with CI Allowance: The Case of Taipei legitimacy and efficiency. The aim of this minimally in Victoria in relation to Article 12. are not only over-represented but, on average, Yu-Ju Wang, Kuo Yu Wang presentation is to share and discuss results from Australia’s obligations under Article 12 of the also subject to more intrusive outcomes. The a case study of a municipal process for Convention, require a de-emphasis on the study findings suggest that systematic bias Aim: Since disability and poverty are distribution of resources within the disability outdated concept of ‘best interest’ and an against and incorrect assumptions about the inextricably linked, people with disabilities have services (in Sweden). emphasis on supporting people with cognitive abilities of parents with CI influence child higher risk of falling into poverty than people Method: The current case study is part of a disabilities to have their will and preference welfare deliberations. without disabilities. qualitative research project aiming to follow reflected in their personal decisions (supported  Method: This study was conducted by means of how the policy is produced and spread, how it is decision making). Outcomes of this research secondary data analysis of the Taipei City interpreted and transformed on a local provides critical information for modification of Analysis of Underlying Diseases of Persons in Government Low Income Household Data in municipal level, and finally how it impinges on guardianship tribunal members' practice in this Institutions for Severe Motor and Intellectual 2013-2015. The paper discusses the welfare end-users. The primary method used in the case area. Disabilities (Smid) from 1986 To 2016 value of employment and assistance and social study, is open-ended interviews and document  Tadashi Matsubasa, Katsumi Mita, Satoshi welfare policy for people with disabilities in studies. Kimiya different countries under different regimes. Results: Results indicate that the participants Results: Descriptive analysis was applied to (the employees) express an organizational Aim: Changes of frequency of institutionalized discuss social welfare policy in impoverished weariness (a concept elaborated in the persons' underlying diseases seem to reflect people with disabilities. The presentation presentation). This cognitive-emotive condition

12 13

Australia becoming a signatory), regarding Prevalence of Child Protection Outcomes in living conditions where such persons were pointed out that Taipei’s current welfare policy people with severe or profound cognitive Families Led by Parents with Cognitive being taken care of. Through evaluation of on poverty among people with disabilities does difficulties who communicate informally. 2) To Impairment in Canada these changes we analyzed medical not provide for the basic cost of living. identify any change in VCAT's application of Maurice Feldman, David McConnell, Marjorie circumstances for persons with severe motor Conclusion: This paper is a conceptual one and Article 12 pre and post Australia's signing of the Aunos, Laura Pacheco and intellectual disabilities (SMID). hopes to bring people’s attention to poverty UNCRPD within guardianship hearings. Method: The underlying diseases in 1986, 1996, issues of people with disabilities in Taiwan. In Method: Five VCAT guardianship decisions, Aim: The purpose of this study was to 2006, and 2016 taken from reports of present Taiwan, as with many Asian countries, it is relating to people with severe or profound investigate the degree to which children of conditions of institutions for SMID (9,606 important to understand the poverty issues of cognitive disability (informal communicators), parents with cognitive impairment (CI) are over- children and adults in 2016) were listed and people with disabilities so that we can examine made before Australia’s signing of the UNCRPD represented in child welfare cases. analyzed. whether equal rights can make their lives better (2008) were compared to seven made post Method: This study utilized data from the third Results: Five most prominent diseases in 2016 or worse. Finally, the inclusion of people with 2008. The researcher selected these Canadian Incidence Study of Reported Child were: hypoxia/asphyxia (19.6%), disabilities in society is important in order for cases/decisions from the Australian Legal Abuse and Neglect (CIS_2008) to investigate meningitis/encephalitis (9.0%), epilepsy (6.9%), them to have better life and get out of poverty. Information Institute Database. The text prevalence and outcomes for children of brain trauma (3.6%), and low birth weight (AFD  relating to these decisions/cases was analysed caregivers with CI subject to child maltreatment and LFD). Diseases increased in 30 years were using qualitative thematic data analysis. investigations. The CIS_2008 includes data on chromosomal disorders (other than Down's A Case Study of a Municipal Process for Results: Minimal change relating to the 15,980 children <15 years of age. Caregiver CI syndrome, 1.1 to 3.2%) and brain trauma (1.7 to Distribution of Resources within Disability principles of Article 12 was seen in the practice was noted in 7.8% of all cases, and one in six 3.6%), and decreased were hyper bilirubinemia Services of VCAT members in guardianship hearings cases involving children < 1 year. (4.1 to 1.8%), microcephaly/stenocephaly (5.5 Per Arvidsson relating to people with severe or profound Results: Children of caregivers with CI were to 2.4%), and meningitis/encephalitis (11.3 to cognitive disability, pre and post Australia’s more than three times as likely as all other 9.0%). Aim: Human service organizations (HSO) are signing of the UNCRPD. The key drivers to children to be apprehended. The association Conclusion: Reduced frequency seemed to be powerful institutions in modern society. For decisions made within the context of between caregiver CI and investigation due to improvement of medicine, whereas an persons with significant and long-term guardianship hearings pre and post 2008 were outcomes was significant even after controlling increased frequency of brain trauma was functional disabilities, the support from HSO´s is overwhelmingly based on judges’, families’ and for potentially confounding variables, including thought to reflect child abuse cases. These vital and in many cases life-long. The disability medical professionals’ opinions of what they but not limited to child functioning issues, analyses will throw light to daily life of severely services have become a major undertaking for perceived was in the person’s best interest, maltreatment exposure and evidence of harm, disabled persons at homes and in hospitals. the welfare state. In Sweden, the aggregated rather than what was perceived to be their will caregiver comorbidity and social isolation and  costs exceed 60 billion SEK, approximately 2% and preference in relation to the decision at household material hardship. of GDP. A focus on how these resources are hand. Conclusion: This study provides evidence from a The Poverty Problem of People with distributed raises fundamental theoretical and Conclusion: Australia’s signing of the UNCRPD large nationally representative sample of child Disabilities and Policy Issues Around Living ideological questions about organizational appears to have impacted guardianship practice welfare cases that children of parents with CI Allowance: The Case of Taipei legitimacy and efficiency. The aim of this minimally in Victoria in relation to Article 12. are not only over-represented but, on average, Yu-Ju Wang, Kuo Yu Wang presentation is to share and discuss results from Australia’s obligations under Article 12 of the also subject to more intrusive outcomes. The a case study of a municipal process for Convention, require a de-emphasis on the study findings suggest that systematic bias Aim: Since disability and poverty are distribution of resources within the disability outdated concept of ‘best interest’ and an against and incorrect assumptions about the inextricably linked, people with disabilities have services (in Sweden). emphasis on supporting people with cognitive abilities of parents with CI influence child higher risk of falling into poverty than people Method: The current case study is part of a disabilities to have their will and preference welfare deliberations. without disabilities. qualitative research project aiming to follow reflected in their personal decisions (supported  Method: This study was conducted by means of how the policy is produced and spread, how it is decision making). Outcomes of this research secondary data analysis of the Taipei City interpreted and transformed on a local provides critical information for modification of Analysis of Underlying Diseases of Persons in Government Low Income Household Data in municipal level, and finally how it impinges on guardianship tribunal members' practice in this Institutions for Severe Motor and Intellectual 2013-2015. The paper discusses the welfare end-users. The primary method used in the case area. Disabilities (Smid) from 1986 To 2016 value of employment and assistance and social study, is open-ended interviews and document  Tadashi Matsubasa, Katsumi Mita, Satoshi welfare policy for people with disabilities in studies. Kimiya different countries under different regimes. Results: Results indicate that the participants Results: Descriptive analysis was applied to (the employees) express an organizational Aim: Changes of frequency of institutionalized discuss social welfare policy in impoverished weariness (a concept elaborated in the persons' underlying diseases seem to reflect people with disabilities. The presentation presentation). This cognitive-emotive condition

12 13 is put in relation to structural organizational Conclusion: A potential implication is that Description: The right to enjoy the benefits of flexibility in how that allocation is used. Often mechanisms, fueled in a system-administrative employees in social services (particularly scientific progress was first recognized in the service users are without information about the environment. managers), increasingly will tend toward a Universal Declaration of Human Rights in 1948 scope of services available or the allocation they system-administrative environment. and was given prominence in Article 15 of the have been afforded. By sharing this information  International Covenant on Economic, Social and before the planning process, service users are Cultural Rights (1966). In 2012, the UN Special empowered to select from the range of Rapporteur highlighted four components of this available services to develop a mix of supports ORAL PRESENTATIONS – NEW CONCEPTUALIZATION OR THEORY right: universal access, opportunities to which meets their needs. We will review the contribute to science, participation in decision- process of selecting an assessment, creating Steps to Effective Problem-Solving: A Family Quality of Life and the Expanding making and the dissemination of science and groupings of service recipients with similar Randomized Clinical Trial Connections Model: Practical Suggestions for technology. The right to benefit from scientific support needs, determining allocations, Sarah Ailey Practice and Policy progress has many implications for people with calculating a budget from a model service mix, Meaghan Edwards disabilities and is essential to the and implementing these significant policy and Description: In a Cochrane review of research implementation of several of the provisions of practice shifts within IDD systems. on interventions to address Description: Family Quality of Life literature the Convention on the Rights of Persons with Contribution: This prospective approach aggressive/challenging behaviors (A/CBs) suggests that families with a member with an Disabilities (CRPD). This presenter argued that provides individuals increased personal control among people with intellectual disabilities (ID), intellectual/developmental disability experience the benefits of science underpin the ability to over the type and amount of paid services they gaps identified included small studies with low levels of social support and face difficulties maintain health and wellness, to be supported receive, and affords policy makers greater selection bias and lack of intent-to-treat in building social connections with others. These in their communities, to make use of assistive capacity for managing their aggregate systems analysis, objective outcome measures of A/CBs families appear to be at risk of social isolation /adaptive technology, to have access to budgets. and cost-effectiveness analysis. The Steps to and may come up against challenges in evidence-based practices, and to be served in  Effective Problem-solving (STEPS) program is a community inclusion. Social connections seem systems that are data-driven for persons with US National Institutes of Health funded to serve a variety of important functions disabilities. Disability Policy Evaluation: Systems Thinking randomized clinical trial. The efficacy of this including opening pathways for collective Contribution: The presenter described the ways and Quality of Life social-problem solving (SPS) program on action, allowing for the growth of trusting, in which the community of people with Claudia Claes reducing A/CBs is compared to an attention- reciprocal relationships, providing access to intellectual and developmental disabilities can control nutrition program. We use an intent-to- information or resources, and the building of unite with advocates to support the right to Description: This study presented a framework treat approach, evaluate efficacy using multiple reliable sources of practical and emotional science. This partnership would ensure that this for evaluating social policies’ enhancement of measures of A/CBs, including objective support. A framework to prevent social isolation need is analyzed through a human rights-based quality of life (QOL) for people with disabilities. measures, and conduct cost-effectiveness is suggested, the Expanding Connection Model, framework, and that the interests of people Outcomes-based policy is a complex process analysis. We are implementing STEPS in group based on family quality of life research and six with disabilities are taken into consideration as based on the interactions among input, homes with individuals with ID and residential case studies conducted in Australia. This model the right is examined more thoroughly. throughput, output and outcome variables as staff and investigating the mediating effect of may assist in understanding how essential social  well as the influence of numerous contextual the support environment for STEPS (residential connections are lost or gained. issues. The aim of this study was to develop a staff SPS, group SPS, and group cohesiveness) Contribution: This model supports practical Using Supports Budgets to Manage policy evaluation framework based on a on intervention outcomes. suggestions for action and intervention at the Sustainability in IDD Support Systems in an theoretical model of the relationship between Contribution: Comparing longitudinal data personal, community, program and policy level Uncertain Future value-based social policy and quality of life. The collected four times over 36 weeks, we to encourage the growth of social connections Alena Vazquez implementation of personal budgets was used hypothesize that individuals with ID in the and prevent isolation of families at risk of social as an example. The theoretical framework was STEPS condition will have (a) improved SPS skills isolation. The model may be used beyond the Description: Supports Budgeting is a policy developed based on a thorough literature and (b) decreased A/CBs compared to the disability field with families experiencing serious strategy being used by some in the United review and expert panels. A policy evaluation attention-control condition. We hypothesize illness, families. States and Canada to manage growing costs, framework, evaluation processes and that the support environment for SPS will  growing demand, and dwindling support exemplary uses of measurable QOL outcome mediate intervention effects on SPS skills and resources. This presentation will lay out the indicators were presented. The input A/CBs in individuals with ID and that STEPS will The Universal Right to Science: An Important fundamentals of developing a framework for component involved a value-based policy that be cost-effective. Connection with the Convention on the Rights supports budgeting, or allocating a known leads to the development of interventions and  of People with Disabilities amount of public service resources to service supports to enhance QOL-related outcomes. Valerie Bradley recipients prior to planning, allowing greater The throughput component involved

14 15 is put in relation to structural organizational Conclusion: A potential implication is that Description: The right to enjoy the benefits of flexibility in how that allocation is used. Often mechanisms, fueled in a system-administrative employees in social services (particularly scientific progress was first recognized in the service users are without information about the environment. managers), increasingly will tend toward a Universal Declaration of Human Rights in 1948 scope of services available or the allocation they system-administrative environment. and was given prominence in Article 15 of the have been afforded. By sharing this information  International Covenant on Economic, Social and before the planning process, service users are Cultural Rights (1966). In 2012, the UN Special empowered to select from the range of Rapporteur highlighted four components of this available services to develop a mix of supports ORAL PRESENTATIONS – NEW CONCEPTUALIZATION OR THEORY right: universal access, opportunities to which meets their needs. We will review the contribute to science, participation in decision- process of selecting an assessment, creating Steps to Effective Problem-Solving: A Family Quality of Life and the Expanding making and the dissemination of science and groupings of service recipients with similar Randomized Clinical Trial Connections Model: Practical Suggestions for technology. The right to benefit from scientific support needs, determining allocations, Sarah Ailey Practice and Policy progress has many implications for people with calculating a budget from a model service mix, Meaghan Edwards disabilities and is essential to the and implementing these significant policy and Description: In a Cochrane review of research implementation of several of the provisions of practice shifts within IDD systems. on interventions to address Description: Family Quality of Life literature the Convention on the Rights of Persons with Contribution: This prospective approach aggressive/challenging behaviors (A/CBs) suggests that families with a member with an Disabilities (CRPD). This presenter argued that provides individuals increased personal control among people with intellectual disabilities (ID), intellectual/developmental disability experience the benefits of science underpin the ability to over the type and amount of paid services they gaps identified included small studies with low levels of social support and face difficulties maintain health and wellness, to be supported receive, and affords policy makers greater selection bias and lack of intent-to-treat in building social connections with others. These in their communities, to make use of assistive capacity for managing their aggregate systems analysis, objective outcome measures of A/CBs families appear to be at risk of social isolation /adaptive technology, to have access to budgets. and cost-effectiveness analysis. The Steps to and may come up against challenges in evidence-based practices, and to be served in  Effective Problem-solving (STEPS) program is a community inclusion. Social connections seem systems that are data-driven for persons with US National Institutes of Health funded to serve a variety of important functions disabilities. Disability Policy Evaluation: Systems Thinking randomized clinical trial. The efficacy of this including opening pathways for collective Contribution: The presenter described the ways and Quality of Life social-problem solving (SPS) program on action, allowing for the growth of trusting, in which the community of people with Claudia Claes reducing A/CBs is compared to an attention- reciprocal relationships, providing access to intellectual and developmental disabilities can control nutrition program. We use an intent-to- information or resources, and the building of unite with advocates to support the right to Description: This study presented a framework treat approach, evaluate efficacy using multiple reliable sources of practical and emotional science. This partnership would ensure that this for evaluating social policies’ enhancement of measures of A/CBs, including objective support. A framework to prevent social isolation need is analyzed through a human rights-based quality of life (QOL) for people with disabilities. measures, and conduct cost-effectiveness is suggested, the Expanding Connection Model, framework, and that the interests of people Outcomes-based policy is a complex process analysis. We are implementing STEPS in group based on family quality of life research and six with disabilities are taken into consideration as based on the interactions among input, homes with individuals with ID and residential case studies conducted in Australia. This model the right is examined more thoroughly. throughput, output and outcome variables as staff and investigating the mediating effect of may assist in understanding how essential social  well as the influence of numerous contextual the support environment for STEPS (residential connections are lost or gained. issues. The aim of this study was to develop a staff SPS, group SPS, and group cohesiveness) Contribution: This model supports practical Using Supports Budgets to Manage policy evaluation framework based on a on intervention outcomes. suggestions for action and intervention at the Sustainability in IDD Support Systems in an theoretical model of the relationship between Contribution: Comparing longitudinal data personal, community, program and policy level Uncertain Future value-based social policy and quality of life. The collected four times over 36 weeks, we to encourage the growth of social connections Alena Vazquez implementation of personal budgets was used hypothesize that individuals with ID in the and prevent isolation of families at risk of social as an example. The theoretical framework was STEPS condition will have (a) improved SPS skills isolation. The model may be used beyond the Description: Supports Budgeting is a policy developed based on a thorough literature and (b) decreased A/CBs compared to the disability field with families experiencing serious strategy being used by some in the United review and expert panels. A policy evaluation attention-control condition. We hypothesize illness, families. States and Canada to manage growing costs, framework, evaluation processes and that the support environment for SPS will  growing demand, and dwindling support exemplary uses of measurable QOL outcome mediate intervention effects on SPS skills and resources. This presentation will lay out the indicators were presented. The input A/CBs in individuals with ID and that STEPS will The Universal Right to Science: An Important fundamentals of developing a framework for component involved a value-based policy that be cost-effective. Connection with the Convention on the Rights supports budgeting, or allocating a known leads to the development of interventions and  of People with Disabilities amount of public service resources to service supports to enhance QOL-related outcomes. Valerie Bradley recipients prior to planning, allowing greater The throughput component involved

14 15 individualized interventions, services, and Using Flipped Classroom, Motivational Disability Insurance Agency (NDIA) to facilitate State structures are in place to monitor whether supports. The output component included the Interviewing and Process Mapping to Facilitate access to the National Disability Insurance citizens with disabilities are actually being structures and environments that enhance QOL Practice Improvement in Health Staff Working Scheme (NDIS). The interface pairs IBM's afforded these rights. They described the and wellbeing. Finally, the outcome component with Patients with Intellectual Disability (ID) cognitive system, known as 'Watson', with an mechanisms necessary to measure progress at involved aggregated QOL societal changes. and Challenging Behaviours avatar to create an intelligent virtual assistant the individual level, including standardized Contribution: Policy evaluation involves a Natalie Ong, Gail Tomsic which interacts using natural language, adapts assessments of quality of life. The presenters structured approach, clearly stated desired to suit individual needs or preferences, and then outlined the components of a State valued outcomes, evidence-based output and Description: Health professionals often feel provides a contextualised experience for the measurement system, as well as core outcome indicators, as well as standards used unprepared to manage patients with ID and user. In addition to addressing barriers to elements/indices that should comprise the to evaluate the outcomes information. challenging behaviours requiring admission for access, Nadia facilitates engagement with the scheme and the uses of the resulting data for  medical procedures. The presenters proposed a NDIS through embodied interactions that continual system enhancement. novel approach to in-services for health staff incorporate expression and emotion to provide Contribution: A national database of quality of People with PIMD Disabilities Can Interact using the combined methods of the flipped a natural experience. Nadia has been co- life outcomes, the National Core Indicators in without Words: Understanding the Wordless classroom (FC), motivational interviewing (MI) designed with NDIA participants, caregivers, the United States, ha been used to highlight and Conversation techniques in a process mapping (PM) exercise. support workers and advocates from across develop many of the individual mandates Sheridan Forster These techniques enable the clinicians to equip Australia in a user-focused approach to described in the CRPD. themselves with new knowledge and build on consultation, development and testing.  Description: Speech pathologists (SPs) may existing knowledge (FC). Using MI techniques, Contribution: The full rollout of the NDIS began work with people with intellectual disabilities. reflective questions are posed to the clinicians in July 2016 and the NDIA predicts that by 2019 Peer Education - A Way to Talk about the Right Interventions often focus on improving to encourage contemplation about why and there will be approximately 460,000 to be Sexual: A Positive Pathway to Parenting communication skills by targeting improved how they can effect changes in their clinical participants. People with intellectual disabilities Patsie Frawley understanding, speech, or using augmentative practice in order to provide reasonable (ID) will represent a significant proportion of and alternative communication. Other times, adjustments for patients with ID and users in both numbers and the degree to which Description: The right to be sexual is missing interventions concentrate on a person’s challenging behaviours. This is then integrated they require the services offered. The from the United Nation’s Convention on the communication partners (e.g., parents, into a process mapping exercise, identifying development of Nadia provides an opportunity Rights of People with Disabilities (UNCRPD). teachers, support workers). For years, SPs have “trigger points” along the patient journey from to investigate the mechanisms by which this While Article 23 promotes the right to form a recorded speech using written language clinic consultation to admission, discharge and new technology can function to improve access family, it fails to explicitly articulate the right to samples – scripts of the person’s speech follow-up. These trigger points are then to online resources for people with ID. be sexual. Sexual Lives and Respectful displaying strengths and difficulties. This discussed in detail identifying potential  Relationships (SL&RR) is a peer-led sexuality presentation focused on written samples of solutions or improvements. An action plan is and relationship rights program that interactions of people who do not use speech. drafted and a review session is conducted to Measuring Progress Toward the Goals in the conceptualises sexual expression as a right and Some of these people may understand other’s see whether the formulated solutions have CRPD: The Need for State Structures and promotes this right through a peer-led sexuality speech and some may not (as may be the case been implemented and if they resulted in better Policies to Measure Outcomes and relationship program. This program is run for with profound ID). Written samples can be outcomes and experiences. An in-service Valerie Bradley, Alexandra Bonardi by people with intellectual disabilities, for powerful tools for helping readers make sense session will be used to illustrate these concepts. people with intellectual disabilities. The right to of idiosyncratic interactions by demonstrating Contribution: A novel concept for health Description: The Convention on the Rights of be sexual underpins the right to form a family the humanity and capacity of a person with a education in promoting behaviour change in the People with Disabilities (CRPD) outlines rights and is central to other rights articulated in the disability to relate with other people. workplace facilitating service improvement for that must be recognized and protected to UNCRPD. Contribution: Past forms of assessment of ID patients. ensure that people with disabilities can enjoy a Contribution: Parenting and sexuality research communication, particularly for profound ID,  quality life. These rights include physical has failed to conceptualise the right to be sexual have focused on categorising the level of accessibility, employment, freedom from harm, as the foundational right to parenting and safe communication. This has, at times, led to a Pairing an Avatar and a Cognitive System to participation in civic life, support for families, and respectful relationships. Current research narrow view of how the person communicates. Facilitate Access to the NDIS for People with ID and the ability to make life choices. Article 4 of lacks a focus on sexuality rights and overlooks The use of samples of non-speech types of Sarah Glencross, Jonathan Mason, Mary the CRPD requires State signatories to establish what people with an intellectual disability can interaction contributes to practice by refocusing Katsikitis all necessary legislative, administrative and contribute as educators. Research undertaken clinical assessments and recommendations on other policies necessary to ensure that these with SL&RR peer educators addressed this gap attaining mutually meaningful interactions. Description: Nadia is an innovative online rights are implemented. The presenters argued in knowledge. It found that peer education  interface developed by the Australian National that implementation could only be assured if places people with an intellectual disability at

16 17 individualized interventions, services, and Using Flipped Classroom, Motivational Disability Insurance Agency (NDIA) to facilitate State structures are in place to monitor whether supports. The output component included the Interviewing and Process Mapping to Facilitate access to the National Disability Insurance citizens with disabilities are actually being structures and environments that enhance QOL Practice Improvement in Health Staff Working Scheme (NDIS). The interface pairs IBM's afforded these rights. They described the and wellbeing. Finally, the outcome component with Patients with Intellectual Disability (ID) cognitive system, known as 'Watson', with an mechanisms necessary to measure progress at involved aggregated QOL societal changes. and Challenging Behaviours avatar to create an intelligent virtual assistant the individual level, including standardized Contribution: Policy evaluation involves a Natalie Ong, Gail Tomsic which interacts using natural language, adapts assessments of quality of life. The presenters structured approach, clearly stated desired to suit individual needs or preferences, and then outlined the components of a State valued outcomes, evidence-based output and Description: Health professionals often feel provides a contextualised experience for the measurement system, as well as core outcome indicators, as well as standards used unprepared to manage patients with ID and user. In addition to addressing barriers to elements/indices that should comprise the to evaluate the outcomes information. challenging behaviours requiring admission for access, Nadia facilitates engagement with the scheme and the uses of the resulting data for  medical procedures. The presenters proposed a NDIS through embodied interactions that continual system enhancement. novel approach to in-services for health staff incorporate expression and emotion to provide Contribution: A national database of quality of People with PIMD Disabilities Can Interact using the combined methods of the flipped a natural experience. Nadia has been co- life outcomes, the National Core Indicators in without Words: Understanding the Wordless classroom (FC), motivational interviewing (MI) designed with NDIA participants, caregivers, the United States, ha been used to highlight and Conversation techniques in a process mapping (PM) exercise. support workers and advocates from across develop many of the individual mandates Sheridan Forster These techniques enable the clinicians to equip Australia in a user-focused approach to described in the CRPD. themselves with new knowledge and build on consultation, development and testing.  Description: Speech pathologists (SPs) may existing knowledge (FC). Using MI techniques, Contribution: The full rollout of the NDIS began work with people with intellectual disabilities. reflective questions are posed to the clinicians in July 2016 and the NDIA predicts that by 2019 Peer Education - A Way to Talk about the Right Interventions often focus on improving to encourage contemplation about why and there will be approximately 460,000 to be Sexual: A Positive Pathway to Parenting communication skills by targeting improved how they can effect changes in their clinical participants. People with intellectual disabilities Patsie Frawley understanding, speech, or using augmentative practice in order to provide reasonable (ID) will represent a significant proportion of and alternative communication. Other times, adjustments for patients with ID and users in both numbers and the degree to which Description: The right to be sexual is missing interventions concentrate on a person’s challenging behaviours. This is then integrated they require the services offered. The from the United Nation’s Convention on the communication partners (e.g., parents, into a process mapping exercise, identifying development of Nadia provides an opportunity Rights of People with Disabilities (UNCRPD). teachers, support workers). For years, SPs have “trigger points” along the patient journey from to investigate the mechanisms by which this While Article 23 promotes the right to form a recorded speech using written language clinic consultation to admission, discharge and new technology can function to improve access family, it fails to explicitly articulate the right to samples – scripts of the person’s speech follow-up. These trigger points are then to online resources for people with ID. be sexual. Sexual Lives and Respectful displaying strengths and difficulties. This discussed in detail identifying potential  Relationships (SL&RR) is a peer-led sexuality presentation focused on written samples of solutions or improvements. An action plan is and relationship rights program that interactions of people who do not use speech. drafted and a review session is conducted to Measuring Progress Toward the Goals in the conceptualises sexual expression as a right and Some of these people may understand other’s see whether the formulated solutions have CRPD: The Need for State Structures and promotes this right through a peer-led sexuality speech and some may not (as may be the case been implemented and if they resulted in better Policies to Measure Outcomes and relationship program. This program is run for with profound ID). Written samples can be outcomes and experiences. An in-service Valerie Bradley, Alexandra Bonardi by people with intellectual disabilities, for powerful tools for helping readers make sense session will be used to illustrate these concepts. people with intellectual disabilities. The right to of idiosyncratic interactions by demonstrating Contribution: A novel concept for health Description: The Convention on the Rights of be sexual underpins the right to form a family the humanity and capacity of a person with a education in promoting behaviour change in the People with Disabilities (CRPD) outlines rights and is central to other rights articulated in the disability to relate with other people. workplace facilitating service improvement for that must be recognized and protected to UNCRPD. Contribution: Past forms of assessment of ID patients. ensure that people with disabilities can enjoy a Contribution: Parenting and sexuality research communication, particularly for profound ID,  quality life. These rights include physical has failed to conceptualise the right to be sexual have focused on categorising the level of accessibility, employment, freedom from harm, as the foundational right to parenting and safe communication. This has, at times, led to a Pairing an Avatar and a Cognitive System to participation in civic life, support for families, and respectful relationships. Current research narrow view of how the person communicates. Facilitate Access to the NDIS for People with ID and the ability to make life choices. Article 4 of lacks a focus on sexuality rights and overlooks The use of samples of non-speech types of Sarah Glencross, Jonathan Mason, Mary the CRPD requires State signatories to establish what people with an intellectual disability can interaction contributes to practice by refocusing Katsikitis all necessary legislative, administrative and contribute as educators. Research undertaken clinical assessments and recommendations on other policies necessary to ensure that these with SL&RR peer educators addressed this gap attaining mutually meaningful interactions. Description: Nadia is an innovative online rights are implemented. The presenters argued in knowledge. It found that peer education  interface developed by the Australian National that implementation could only be assured if places people with an intellectual disability at

16 17 the centre of sexuality education, promoting awareness of sexuality/relationship rights, system and they employ approximately 46,000 described essential steps of the admission, the sexual rights and generating confidence and including the right to parent. people with disabilities. This study looks at two staff involved, and tasks required for a  such cases and aims to confirm the success successful procedure. On the day of admission, factors for matching disabilities to appropriate the patient was given medications at home and work and for promoting skill development. transported to hospital where he was escorted ORAL PRESENTATIONS -- VIGNETTE (CASE EXAMPLE) Method: In these case studies, the authors held from the hospital entrance into the operating a group interview with two managers and room. This individual was given more pre- SAHK Autism Support Service: A Support Inclusion in Germany: Theoretical Foundation obtained data for analysis in chronological order medications while his registration occurred. The Model for Adults with Autism Spectrum and Practical Experience in Different Areas of on issues in employment, treatment methods, anaesthesiologist then provided induction and Disorder (ASD) Life and changes in both persons with disabilities he subsequently underwent a successful Katherine Tong, Man-Chee Chan Harald H. Goll and organizations. surgery. Early discharge was possible because of Results: It is of the utmost importance for the the success of the procedure. Discharge plans Description: In Hong Kong, specialized services Description: Over the past 40 years, inclusion office supervisors to recognize potential needs included analgesia, post-operation care, and for people with ASD and their caregivers has been a central topic of discussion in of the employees with disabilities, which may review by community paediatric nursing. prioritize the needs of children, and yet adults Germany. This presentation provided a brief be conveyed through problematic behaviours Contribution: This presentation outlined with ASD also face unique challenges. SAHK, overview of the main arguments. The main part and attitudes. Furthermore, by focusing on essential elements of admission planning and based on our accumulated experience working of the presentation focused on practical matching employees’ interests/abilities to the discharge for complex ID cases and the various with adults across the autism spectrum, experiences in three areas: 1) schools where type of work and appropriately training them, steps undertaken to enable a successful launched the “True Colours” Autism Support special and general education professionals supervisors can motivate employees and procedure with positive results and experience. Service pilot project in 2016 with government cooperate and create inclusive learning encourage the development of new skills.  support. The project supported two areas: 1) environments for students with different types Conclusion: To create a more productive work adults with high functioning ASD and their of disabilities, including severe/profound environment, it is imperative to match different An Organisation-Wide Approach to families/caregivers, and 2) rehabilitation disabilities and autism; 2) supported multi- disabilities to appropriate types of work, and to Implementing Key Word Sign mong Disability practitioners working in organizations that generational housing where elderly parents and support skill development rather than focusing Support Workers in Singapore serve individuals with ASD. To support adults their adult children with disabilities live in on the severity of the disability. To achieve this Eva Wei-Lyn Loh, Jeffrey Chan with ASD and their caregivers, an intervention individual self-determined units in the goal, it may be necessary for the organization to model consisting of 11 components was community; 3) adults with intellectual continue the process of trial-and-error for Description: When people with intellectual provided to develop their abilities and promote disabilities trained to work as paraprofessionals extended periods of time. disabilities face challenges in communication, community integration. This model included in senior homes or as lecturers at universities.  Augmentative and Alternative Communication personal counselling, social skills training, Contribution: The ratification of the UNCRPD (AAC) is often introduced to provide a means of career planning, job placements, etc. led to an increase in inclusive opportunities in A Successful Approach to Admission and interaction. Key Word Sign (KWS) has been used Rehabilitation practitioners received support all areas of life. The traditional German system Discharge Planning for Patients with ID and worldwide as an AAC since 1970s. MINDS is one through case consultations, staff trainings, of highly specialized facilities for persons with Challenging Behaviours: A Case Study. of the largest organisations in Singapore that hotline services, and shared expertise in disabilities is moving forward to a more Gail Tomsic, Natalie Ong provide services for people with intellectual managing individuals with ASD, highlighting inclusive and community-based type of service disabilities and has adopted KWS as a dominant more challenging cases in particular. A well- provision. Description: The presenters described the case form of AAC for people with disabilities. This developed intervention manual was used to  of an adolescent male with ID, autism and presentation described a successful demonstrate the related strategies and skills. associated challenging behaviours who faced organisation-wide approach in implementing Contribution: High-functioning ASD service Success Factors for Matching Different Types substantial difficulties accessing health care KWS to enable communication and social users reported an average intervention goal of Disabilities to Work: Two Case Verifications services. This individual presented as having interaction for persons with intellectual attainment rate of 80%. 98% of frontline of Work Continuance Support a Type Office in significant weight-gain and possibly obstructive disabilities. rehabilitation practitioners who received Japan sleep apnoea. The ENT team recommended Contribution: In 2014, KWS (Australia) was training indicated enhancement of capability in Muneyuki Nakachi, Ayaka Nakao, Hiroo Funaya, tonsillectomy and collaborated with the implemented organisation-wide at MINDS as a handling ASD cases. These figures demonstrate Suguru Tamaki Specialist Disability Health Team (SDHT) in common signing approach to meet the our success in supporting adults across the ASD preparing for his admission. The procedure immediate needs of people who are supported. spectrum. Aim: In Japan, there are about 2,600Work required significant coordination between the This essential step aimed to improve and align  Continuance Support A Type offices. These family, SDHT staff and hospital staff. This communication methods across the sheltered workshops are typical in the Japanese coordination resulted in a thorough plan that organisation. The use of KWS may be compared

18 19 the centre of sexuality education, promoting awareness of sexuality/relationship rights, system and they employ approximately 46,000 described essential steps of the admission, the sexual rights and generating confidence and including the right to parent. people with disabilities. This study looks at two staff involved, and tasks required for a  such cases and aims to confirm the success successful procedure. On the day of admission, factors for matching disabilities to appropriate the patient was given medications at home and work and for promoting skill development. transported to hospital where he was escorted ORAL PRESENTATIONS -- VIGNETTE (CASE EXAMPLE) Method: In these case studies, the authors held from the hospital entrance into the operating a group interview with two managers and room. This individual was given more pre- SAHK Autism Support Service: A Support Inclusion in Germany: Theoretical Foundation obtained data for analysis in chronological order medications while his registration occurred. The Model for Adults with Autism Spectrum and Practical Experience in Different Areas of on issues in employment, treatment methods, anaesthesiologist then provided induction and Disorder (ASD) Life and changes in both persons with disabilities he subsequently underwent a successful Katherine Tong, Man-Chee Chan Harald H. Goll and organizations. surgery. Early discharge was possible because of Results: It is of the utmost importance for the the success of the procedure. Discharge plans Description: In Hong Kong, specialized services Description: Over the past 40 years, inclusion office supervisors to recognize potential needs included analgesia, post-operation care, and for people with ASD and their caregivers has been a central topic of discussion in of the employees with disabilities, which may review by community paediatric nursing. prioritize the needs of children, and yet adults Germany. This presentation provided a brief be conveyed through problematic behaviours Contribution: This presentation outlined with ASD also face unique challenges. SAHK, overview of the main arguments. The main part and attitudes. Furthermore, by focusing on essential elements of admission planning and based on our accumulated experience working of the presentation focused on practical matching employees’ interests/abilities to the discharge for complex ID cases and the various with adults across the autism spectrum, experiences in three areas: 1) schools where type of work and appropriately training them, steps undertaken to enable a successful launched the “True Colours” Autism Support special and general education professionals supervisors can motivate employees and procedure with positive results and experience. Service pilot project in 2016 with government cooperate and create inclusive learning encourage the development of new skills.  support. The project supported two areas: 1) environments for students with different types Conclusion: To create a more productive work adults with high functioning ASD and their of disabilities, including severe/profound environment, it is imperative to match different An Organisation-Wide Approach to families/caregivers, and 2) rehabilitation disabilities and autism; 2) supported multi- disabilities to appropriate types of work, and to Implementing Key Word Sign mong Disability practitioners working in organizations that generational housing where elderly parents and support skill development rather than focusing Support Workers in Singapore serve individuals with ASD. To support adults their adult children with disabilities live in on the severity of the disability. To achieve this Eva Wei-Lyn Loh, Jeffrey Chan with ASD and their caregivers, an intervention individual self-determined units in the goal, it may be necessary for the organization to model consisting of 11 components was community; 3) adults with intellectual continue the process of trial-and-error for Description: When people with intellectual provided to develop their abilities and promote disabilities trained to work as paraprofessionals extended periods of time. disabilities face challenges in communication, community integration. This model included in senior homes or as lecturers at universities.  Augmentative and Alternative Communication personal counselling, social skills training, Contribution: The ratification of the UNCRPD (AAC) is often introduced to provide a means of career planning, job placements, etc. led to an increase in inclusive opportunities in A Successful Approach to Admission and interaction. Key Word Sign (KWS) has been used Rehabilitation practitioners received support all areas of life. The traditional German system Discharge Planning for Patients with ID and worldwide as an AAC since 1970s. MINDS is one through case consultations, staff trainings, of highly specialized facilities for persons with Challenging Behaviours: A Case Study. of the largest organisations in Singapore that hotline services, and shared expertise in disabilities is moving forward to a more Gail Tomsic, Natalie Ong provide services for people with intellectual managing individuals with ASD, highlighting inclusive and community-based type of service disabilities and has adopted KWS as a dominant more challenging cases in particular. A well- provision. Description: The presenters described the case form of AAC for people with disabilities. This developed intervention manual was used to  of an adolescent male with ID, autism and presentation described a successful demonstrate the related strategies and skills. associated challenging behaviours who faced organisation-wide approach in implementing Contribution: High-functioning ASD service Success Factors for Matching Different Types substantial difficulties accessing health care KWS to enable communication and social users reported an average intervention goal of Disabilities to Work: Two Case Verifications services. This individual presented as having interaction for persons with intellectual attainment rate of 80%. 98% of frontline of Work Continuance Support a Type Office in significant weight-gain and possibly obstructive disabilities. rehabilitation practitioners who received Japan sleep apnoea. The ENT team recommended Contribution: In 2014, KWS (Australia) was training indicated enhancement of capability in Muneyuki Nakachi, Ayaka Nakao, Hiroo Funaya, tonsillectomy and collaborated with the implemented organisation-wide at MINDS as a handling ASD cases. These figures demonstrate Suguru Tamaki Specialist Disability Health Team (SDHT) in common signing approach to meet the our success in supporting adults across the ASD preparing for his admission. The procedure immediate needs of people who are supported. spectrum. Aim: In Japan, there are about 2,600Work required significant coordination between the This essential step aimed to improve and align  Continuance Support A Type offices. These family, SDHT staff and hospital staff. This communication methods across the sheltered workshops are typical in the Japanese coordination resulted in a thorough plan that organisation. The use of KWS may be compared

18 19 to learning a language and/or embracing a new policy in Taiwan. It is rarely taken into account Aim: Manual dexterity is the ability to make diagnosis, current affiliation, and consultation “culture” of communication. The presentation by service managers or recognised by parents of coordinated hand and finger movements to needs. described practical initiatives and support this group of people. Although Taiwan is not the grasp and manipulate objects. A systematic and Results: 67.4% of the participants were over the strategies that have been implemented within member of the UN, the UNCRPD objective assessment of this ability has age of 19. Among them, 54.8% had diagnosis the organisation via a team-based approach. Implementation Act was issued there in 2014. It important implications in matching persons age over 19 years old, and 36.4% had no current This three-year journey aimed to raise means that the Taiwan government has the with ID with suitable work tasks and jobs. This affiliation (state of ‘hikikomori’). In addition, awareness and create a signing-friendly responsibility to undertake the general paper aims to measure the manual dexterity of 39.9% had consultation needs concerning environment among disability support workers obligations as stated in Article 4 of the UNCRPD. adults with moderate ID in Singapore using the employment. and persons with intellectual disabilities. This paper, first, analysed current policies and box and block test and derive the normative Conclusion: The Okayama Center is required to  practices regarding the living status of persons data for the test in Singapore. respond to the needs of the public support with ID based on a review of governmental Method: The Box and Block test, a test of system, which in the prefecture was the lack of I have the right to choose where to live’: documents including legislation, regulations and manual dexterity, will be administered by employment support. Okayama’s central Policies and Practices on Living in the research reports. Second, the voices from occupational therapists to 200 adults with ID in mission is to build an ASD screening system, a Community for People with ID in Taiwan parents and this group of people with ID were sheltered workshops in Singapore. support system for child-rearing, and services to Yueh-Ching Chou, Teppo Kröger collected as life stories to analyse whose Results: A pilot study conducted indicates that aid transition to school. The development of a interests are considered and to what extent the test is potentially applicable to the municipal ASD support system is necessary to Description: The movement of supporting within the current social and political context of Singapore context. implement these services. people with intellectual disability (ID) to live in the Taiwanese society when living in the Conclusion: The findings have implications in  the community was launched in 2000 in Taiwan. community for people with ID is concerned. terms of measuring the manual dexterity However, unlike many Western Societies, Contribution: The right to choose ‘where to objectively. It potentially allows for systematic Detailed Statistics of “Survey on Persons with deinstitutionalisation has never been a state live’ for people with ID, as set out in Article 19 job matching and measurement of level of work Difficulties in Daily Lives” Held in 2011 Japan: of the UNCRPD, presents challenges. productivity of adults with moderate ID in Children and Persons with Autistic Disabilities  sheltered workshops. without Disability Registration.  Yayoi Kitamura

POSTER PRESENTATIONS -- RESEARCH REPORT Actual Condition and Problems of ASD Support Aim: Detailed statistics were obtained from the System: The Role of Okayama Support Center national survey conducted by the Ministry of The Strategies of Occupational Therapists the data analysis stage, recordings and for People with ASD Health, Labour and Welfare, particularly on Implementing Family-centered Approach observation notes were converted to text files Daisuke Imade, Shigeru Suemitsu children and persons with autistic disabilities Hsin Pei Huang, Chiou Shiue Ko and transcripts. All transcripts were coded by without registration of intellectual disabilities. using the constant comparative method to Aim: In Japan, following the Support for Persons Method: The Excel formatted data provided by Aim: Contemporary practices, research and develop categories and themes. with Developmental Disabilities Act (2005), a the ministry was transformed into SPSS format literature emphasize family-centered Results: This research identified several support center for people with developmental and categorized by age, gender, and severity of approaches for practitioners working with strategies for how to successfully implement disabilities has been established in each disability. children and their families. The purpose of this family-centered practices when working with administrative district. Okayama Support Center Results: Of a total of 14,249 respondents, 131 study is to explore occupational therapists’ children and their families. for Persons with Developmental Disabilities is identified themselves as having nonregistered experience of implementing family-centered Conclusion: This study provides some guidance operated by the social welfare corporation autistic disabilities. Despite only four approaches and their strategies for facing for occupational therapy practitioners who are Asahikawa-so. Our role is: 1) consultation respondents having used support workers in the challenges while providing services. using a family-centered approach. support for persons with ASD, and 2) home, and 42 respondents identified as being Method: This research recruited 6 experienced  construction of a municipal ASD support supported by family members, only one pediatric occupational therapists who were all system. This study aimed to analyze the role of respondent identified as requiring an in-home be recommended by other therapists. Of thes, 4 Assessing Manual Dexterity in Adults with the Okayama Center in the community support support worker.67% of the participants agreed to be observed and interviewed two or Intellectual Disability (ID) and Developing system. included written thoughts about their more times. Participants were chosen by Singapore Norms of the Box and Block Hand Method: Participants were persons with ASD classmates, teachers and colleagues, but also on purposive sampling. The author used qualitative Function Test -A Study on Adults with supported by the Okayama Center (n=334). welfare services. Among 29 working-aged adult research methods by conducting participant Moderate ID in Singapore. Data were collected from April 2015 to March respondents, the survey revealed that 10 observation and individual in-depth interviews Reena Aariyapillai Rajagopal, Manikandan 2016. Measures used included: age, age of worked at regular sites, respondents’ average with pediatric occupational therapists. During Palanivel monthly income was 108,000 yen, 53% used

20 21 to learning a language and/or embracing a new policy in Taiwan. It is rarely taken into account Aim: Manual dexterity is the ability to make diagnosis, current affiliation, and consultation “culture” of communication. The presentation by service managers or recognised by parents of coordinated hand and finger movements to needs. described practical initiatives and support this group of people. Although Taiwan is not the grasp and manipulate objects. A systematic and Results: 67.4% of the participants were over the strategies that have been implemented within member of the UN, the UNCRPD objective assessment of this ability has age of 19. Among them, 54.8% had diagnosis the organisation via a team-based approach. Implementation Act was issued there in 2014. It important implications in matching persons age over 19 years old, and 36.4% had no current This three-year journey aimed to raise means that the Taiwan government has the with ID with suitable work tasks and jobs. This affiliation (state of ‘hikikomori’). In addition, awareness and create a signing-friendly responsibility to undertake the general paper aims to measure the manual dexterity of 39.9% had consultation needs concerning environment among disability support workers obligations as stated in Article 4 of the UNCRPD. adults with moderate ID in Singapore using the employment. and persons with intellectual disabilities. This paper, first, analysed current policies and box and block test and derive the normative Conclusion: The Okayama Center is required to  practices regarding the living status of persons data for the test in Singapore. respond to the needs of the public support with ID based on a review of governmental Method: The Box and Block test, a test of system, which in the prefecture was the lack of I have the right to choose where to live’: documents including legislation, regulations and manual dexterity, will be administered by employment support. Okayama’s central Policies and Practices on Living in the research reports. Second, the voices from occupational therapists to 200 adults with ID in mission is to build an ASD screening system, a Community for People with ID in Taiwan parents and this group of people with ID were sheltered workshops in Singapore. support system for child-rearing, and services to Yueh-Ching Chou, Teppo Kröger collected as life stories to analyse whose Results: A pilot study conducted indicates that aid transition to school. The development of a interests are considered and to what extent the test is potentially applicable to the municipal ASD support system is necessary to Description: The movement of supporting within the current social and political context of Singapore context. implement these services. people with intellectual disability (ID) to live in the Taiwanese society when living in the Conclusion: The findings have implications in  the community was launched in 2000 in Taiwan. community for people with ID is concerned. terms of measuring the manual dexterity However, unlike many Western Societies, Contribution: The right to choose ‘where to objectively. It potentially allows for systematic Detailed Statistics of “Survey on Persons with deinstitutionalisation has never been a state live’ for people with ID, as set out in Article 19 job matching and measurement of level of work Difficulties in Daily Lives” Held in 2011 Japan: of the UNCRPD, presents challenges. productivity of adults with moderate ID in Children and Persons with Autistic Disabilities  sheltered workshops. without Disability Registration.  Yayoi Kitamura

POSTER PRESENTATIONS -- RESEARCH REPORT Actual Condition and Problems of ASD Support Aim: Detailed statistics were obtained from the System: The Role of Okayama Support Center national survey conducted by the Ministry of The Strategies of Occupational Therapists the data analysis stage, recordings and for People with ASD Health, Labour and Welfare, particularly on Implementing Family-centered Approach observation notes were converted to text files Daisuke Imade, Shigeru Suemitsu children and persons with autistic disabilities Hsin Pei Huang, Chiou Shiue Ko and transcripts. All transcripts were coded by without registration of intellectual disabilities. using the constant comparative method to Aim: In Japan, following the Support for Persons Method: The Excel formatted data provided by Aim: Contemporary practices, research and develop categories and themes. with Developmental Disabilities Act (2005), a the ministry was transformed into SPSS format literature emphasize family-centered Results: This research identified several support center for people with developmental and categorized by age, gender, and severity of approaches for practitioners working with strategies for how to successfully implement disabilities has been established in each disability. children and their families. The purpose of this family-centered practices when working with administrative district. Okayama Support Center Results: Of a total of 14,249 respondents, 131 study is to explore occupational therapists’ children and their families. for Persons with Developmental Disabilities is identified themselves as having nonregistered experience of implementing family-centered Conclusion: This study provides some guidance operated by the social welfare corporation autistic disabilities. Despite only four approaches and their strategies for facing for occupational therapy practitioners who are Asahikawa-so. Our role is: 1) consultation respondents having used support workers in the challenges while providing services. using a family-centered approach. support for persons with ASD, and 2) home, and 42 respondents identified as being Method: This research recruited 6 experienced  construction of a municipal ASD support supported by family members, only one pediatric occupational therapists who were all system. This study aimed to analyze the role of respondent identified as requiring an in-home be recommended by other therapists. Of thes, 4 Assessing Manual Dexterity in Adults with the Okayama Center in the community support support worker.67% of the participants agreed to be observed and interviewed two or Intellectual Disability (ID) and Developing system. included written thoughts about their more times. Participants were chosen by Singapore Norms of the Box and Block Hand Method: Participants were persons with ASD classmates, teachers and colleagues, but also on purposive sampling. The author used qualitative Function Test -A Study on Adults with supported by the Okayama Center (n=334). welfare services. Among 29 working-aged adult research methods by conducting participant Moderate ID in Singapore. Data were collected from April 2015 to March respondents, the survey revealed that 10 observation and individual in-depth interviews Reena Aariyapillai Rajagopal, Manikandan 2016. Measures used included: age, age of worked at regular sites, respondents’ average with pediatric occupational therapists. During Palanivel monthly income was 108,000 yen, 53% used

20 21 disability welfare services and 27% hoped to use Support System for Preschool-Age Children Method: Parents (n = 198) completed the beginnings of sentences. The presence or these services in the future. with Developmental Disabilities and Their Family Outcomes Survey (FOS) and Client absence of autistic-like traits (ALTs) was also Conclusion: Although the number of Families in Japan Satisfaction Questionnaire (CSQ) at both the noted. A qualitative evaluation of SCT was respondents was limited, these detailed Yui Mizoe, Yasunori Okada, Kiyoshi Otomo beginning and the end of 2016 to assess the conducted by both a clinical psychologist and a statistics revealed that adults with autistic extent to which trans-disciplinary teamwork psychiatrist to maintain objectivity and was disabilities had difficulties finding meaningful Aim: The presenters reported the current state helped families achieve positive outcomes. converted into a quantitative scale (range, 0- employment, had low salaries, hoped to use of welfare service for preschool-age children Service providers (n = 90) completed a 13). welfare services in the future, and wishes to be with developmental disabilities in Japan. The questionnaire to assess their attitudes towards Results: Correlation between SCT score and considered as natural members of their presenters also reported on a recently-begun trans-disciplinary integration and a fidelity total IQ was observed (r=0.42, p<0.0001). communities. support system for toddlers diagnosed with measure developed by the authors. Multiple regression analysis revealed that SCT  autism spectrum disorder in a provincial city. Results: Independent sample t-tests revealed score was correlated to both amount of Method: National and regional surveys of significant increase in mean scores across two education and total IQ (adjusted R^2=0.18, Creation of a Scale for the Assessment of Social welfare services for preschool-aged children time points for family outcomes such as p<0.0001). Comparing those with or without and Behavioral Development in Preschool were reviewed. Characteristics of the support knowledge, skills and confidence in parenting, ALTs, the SCT score was highly correlated in Children system that started in 2017 were examined. as well as overall satisfaction with services. patients without ALTs (adjusted R^2=0.37, Hideyo Goma, Shun Tanaka, Natsumi Maruo, Results: A national survey by the Ministry of With 10 months of experience in a trans- p=0.0004 vs adjusted R^2=0.17, p=0.0002). Tomomi Ikeda, Kazuhisa Inoue, Toshihiro Kato, Health, Labour and Welfare indicated an disciplinary team, service providers indicated Conclusion: This study suggested that lower Yoko Muto, Reiko Ushio, Satomi Shimizu, Rika increase in child developmental support service positive attitudes towards the implementation evaluation of SCT might indicate the existence Ochiai, Michio Ushiyama, Hiromi Kotani providers, with about 3,200 daycare service of the approach as well as acceptable levels of of ALTs. Aim: The need for accurate assessment of providers and over 75,000 children who receive adherence to the service model.  developmental abnormalities, such as ASD and these services. A new program in Tatebayashi Conclusion: Overall findings from families and ADHD, has been increasing. Therefore, we city, with a population of about 75,000, is service providers acknowledged the merits of a The Current Situation of the Short-Stay Service aimed to develop a novel scale for the operated jointly by Gunma University Hospital trans-disciplinary team approach and its for People with Intensive Medical Care in assessment of social and behavioral and the city. It provides free services of up to 8 appropriateness in a Singaporean context. Japan. development. sessions for children who were diagnosed with  Yuji Iwasaki, Takeshi Miyanomae, Kazuya Goto, Method: The present study included a total of ASD at a detailed health examination run by the Toshihide Shiiki, Noyuri Yamaji, Masanori 418 children between the age of 2 and 6. In the local health center. After sessions conducted by Quantitative Analysis of Sentence Completion Tamura "Aisatsu" condition, each child was presented staff with a knowledgeable background in ASD, Technique and its Implications with 14 individual figures and asked to provide the families are referred, if desired, to a general Shuichi Watanabe Aim: In Japan, there is an increasing demand for the appropriate greeting. In the "Imitation of day-care support system. intensive medical care for people with PIMD Movement" condition, children were asked to Conclusion: Improvements in quantity and Aim: Sentence completion technique(SCT) is a living in the community. Due to this increasing mirror 13 different body movements. The quality of services are still needed to sufficiently semi-structured projective test that provides an demand, there is also a need for short-stay presenters then compared the results of these meet the needs of the community. This local understanding of mental differentiation services to accommodate such people. This tests with the social quotient (SQ). program targeted for children with ASD can be (comprehensive intellectual ability such as research studied the current state of short-stay Results: In the "Aisatsu condition, an average of a model of need-specific services. objectivity, insight, analytical ability, judgment, services in rehabilitation and residential 6.6±3.8 (average ± SD) and 11.2±2.3 items out  etc.). Analyses of SCT are quite limited. The hospitals to identify issues in operation. of 13 were passed in children 3 and 4 years of presenters investigated correlations between Method: A questionnaire investigating current age, respectively. These results were correlated Implementing and Evaluating a Trans- SCT scores and other parameters such as age, short-stay services was sent to 525 hospitals with SQ in 4-year-old children (r=0.47). In the Disciplinary Team Approach to Early amount of education and intelligence quotient that had teaching paediatricians on staff, and to "Imitation of Movement" condition, an average Intervention in Singapore (IQ). 136 rehabilitation and residential hospitals for of 6.4±3.5 and 10.6±2.0 out of 14 items were Janice Leong, Kimberly Chew, Pei Yun Chay, Method: The presenters analyzed the medical people with PIMD. passed in children 5 and 6 years of age, Huichao Xie records of 120 outpatients, 49 males and 71 Results: The usage rates of short-stay services respectively. These results were correlated with females with a mean age of 42. Of these in hospitals have slightly increased. The majority SQ in 5-year-old children (r=0.59). Aim: Program evaluation of a trans-disciplinary outpatients, 70 had adjustment disorders, 30 of users in hospitals and one-third of users in Conclusion: These findings may aid researchers team approach to early intervention for had anxiety disorders, and 20 had another type rehabilitation and residential hospitals were in the development of an appropriate scale for children with special needs (e.g., birth to 6 years of disorder. None of the participants had an medically-dependent. A key factor in assessing social and behavioral development. old) across two centres in Singapore as follow intellectual disability. The presenters conducted acceptance of medically dependent persons  up to a pilot study conducted in 2015. the Seiken version of SCT, which consisted of 50 was the number of nursing staff. Several

22 23 disability welfare services and 27% hoped to use Support System for Preschool-Age Children Method: Parents (n = 198) completed the beginnings of sentences. The presence or these services in the future. with Developmental Disabilities and Their Family Outcomes Survey (FOS) and Client absence of autistic-like traits (ALTs) was also Conclusion: Although the number of Families in Japan Satisfaction Questionnaire (CSQ) at both the noted. A qualitative evaluation of SCT was respondents was limited, these detailed Yui Mizoe, Yasunori Okada, Kiyoshi Otomo beginning and the end of 2016 to assess the conducted by both a clinical psychologist and a statistics revealed that adults with autistic extent to which trans-disciplinary teamwork psychiatrist to maintain objectivity and was disabilities had difficulties finding meaningful Aim: The presenters reported the current state helped families achieve positive outcomes. converted into a quantitative scale (range, 0- employment, had low salaries, hoped to use of welfare service for preschool-age children Service providers (n = 90) completed a 13). welfare services in the future, and wishes to be with developmental disabilities in Japan. The questionnaire to assess their attitudes towards Results: Correlation between SCT score and considered as natural members of their presenters also reported on a recently-begun trans-disciplinary integration and a fidelity total IQ was observed (r=0.42, p<0.0001). communities. support system for toddlers diagnosed with measure developed by the authors. Multiple regression analysis revealed that SCT  autism spectrum disorder in a provincial city. Results: Independent sample t-tests revealed score was correlated to both amount of Method: National and regional surveys of significant increase in mean scores across two education and total IQ (adjusted R^2=0.18, Creation of a Scale for the Assessment of Social welfare services for preschool-aged children time points for family outcomes such as p<0.0001). Comparing those with or without and Behavioral Development in Preschool were reviewed. Characteristics of the support knowledge, skills and confidence in parenting, ALTs, the SCT score was highly correlated in Children system that started in 2017 were examined. as well as overall satisfaction with services. patients without ALTs (adjusted R^2=0.37, Hideyo Goma, Shun Tanaka, Natsumi Maruo, Results: A national survey by the Ministry of With 10 months of experience in a trans- p=0.0004 vs adjusted R^2=0.17, p=0.0002). Tomomi Ikeda, Kazuhisa Inoue, Toshihiro Kato, Health, Labour and Welfare indicated an disciplinary team, service providers indicated Conclusion: This study suggested that lower Yoko Muto, Reiko Ushio, Satomi Shimizu, Rika increase in child developmental support service positive attitudes towards the implementation evaluation of SCT might indicate the existence Ochiai, Michio Ushiyama, Hiromi Kotani providers, with about 3,200 daycare service of the approach as well as acceptable levels of of ALTs. Aim: The need for accurate assessment of providers and over 75,000 children who receive adherence to the service model.  developmental abnormalities, such as ASD and these services. A new program in Tatebayashi Conclusion: Overall findings from families and ADHD, has been increasing. Therefore, we city, with a population of about 75,000, is service providers acknowledged the merits of a The Current Situation of the Short-Stay Service aimed to develop a novel scale for the operated jointly by Gunma University Hospital trans-disciplinary team approach and its for People with Intensive Medical Care in assessment of social and behavioral and the city. It provides free services of up to 8 appropriateness in a Singaporean context. Japan. development. sessions for children who were diagnosed with  Yuji Iwasaki, Takeshi Miyanomae, Kazuya Goto, Method: The present study included a total of ASD at a detailed health examination run by the Toshihide Shiiki, Noyuri Yamaji, Masanori 418 children between the age of 2 and 6. In the local health center. After sessions conducted by Quantitative Analysis of Sentence Completion Tamura "Aisatsu" condition, each child was presented staff with a knowledgeable background in ASD, Technique and its Implications with 14 individual figures and asked to provide the families are referred, if desired, to a general Shuichi Watanabe Aim: In Japan, there is an increasing demand for the appropriate greeting. In the "Imitation of day-care support system. intensive medical care for people with PIMD Movement" condition, children were asked to Conclusion: Improvements in quantity and Aim: Sentence completion technique(SCT) is a living in the community. Due to this increasing mirror 13 different body movements. The quality of services are still needed to sufficiently semi-structured projective test that provides an demand, there is also a need for short-stay presenters then compared the results of these meet the needs of the community. This local understanding of mental differentiation services to accommodate such people. This tests with the social quotient (SQ). program targeted for children with ASD can be (comprehensive intellectual ability such as research studied the current state of short-stay Results: In the "Aisatsu condition, an average of a model of need-specific services. objectivity, insight, analytical ability, judgment, services in rehabilitation and residential 6.6±3.8 (average ± SD) and 11.2±2.3 items out  etc.). Analyses of SCT are quite limited. The hospitals to identify issues in operation. of 13 were passed in children 3 and 4 years of presenters investigated correlations between Method: A questionnaire investigating current age, respectively. These results were correlated Implementing and Evaluating a Trans- SCT scores and other parameters such as age, short-stay services was sent to 525 hospitals with SQ in 4-year-old children (r=0.47). In the Disciplinary Team Approach to Early amount of education and intelligence quotient that had teaching paediatricians on staff, and to "Imitation of Movement" condition, an average Intervention in Singapore (IQ). 136 rehabilitation and residential hospitals for of 6.4±3.5 and 10.6±2.0 out of 14 items were Janice Leong, Kimberly Chew, Pei Yun Chay, Method: The presenters analyzed the medical people with PIMD. passed in children 5 and 6 years of age, Huichao Xie records of 120 outpatients, 49 males and 71 Results: The usage rates of short-stay services respectively. These results were correlated with females with a mean age of 42. Of these in hospitals have slightly increased. The majority SQ in 5-year-old children (r=0.59). Aim: Program evaluation of a trans-disciplinary outpatients, 70 had adjustment disorders, 30 of users in hospitals and one-third of users in Conclusion: These findings may aid researchers team approach to early intervention for had anxiety disorders, and 20 had another type rehabilitation and residential hospitals were in the development of an appropriate scale for children with special needs (e.g., birth to 6 years of disorder. None of the participants had an medically-dependent. A key factor in assessing social and behavioral development. old) across two centres in Singapore as follow intellectual disability. The presenters conducted acceptance of medically dependent persons  up to a pilot study conducted in 2015. the Seiken version of SCT, which consisted of 50 was the number of nursing staff. Several

22 23 hospitals faced difficulties accepting people elements”. This could indicate the shift towards POSTER PRESENTATIONS – NEW CONCEPTUALIZATION, THEORY, EXEMPLARY PRACTICE, OR with mobility issues in addition to medical parental roles of child teaching that require POLICY STRATEGY dependency. higher levels of supervision. Conclusion: Short-stay service of medically Conclusion: Parent capabilities in early Is WeChat Influencing Policy Making for People seen significant improvements, more efforts are dependent persons requires sufficient number intervention can be built through clinic-based with Intellectual and Developmental needed to prepare them for the transition from of nursing staff. Acceptance of medically services. A systematic curriculum facilitates Disabilities in China? school to work. With limited education and dependent people with mobility issues is development of therapist’ coaching skills. Mo Chen, Xi-Jie Yang negative stereotypes present in the community, challenging and requires additional resources.  career options for people with disabilities  Description: Mass media can often impact remain limited. This is due to the complex Reviewing a Problem of the Long-term Care policymaking either directly or indirectly. processes required in the transition from school Early Intervention in Naturalistic Environments Insurance for Elderly People in Japan from the WeChat, a social media application released in to the workplace. The socio-ecological aspects Using Child and Family Routines—A Paradigm ICF 2011, has become one of the largest stand- of inclusion in the workplace are still in need of Shift in Delivery of Clinic-Based Intervention in Takehiko Mita alone messaging apps by monthly active users. further evaluation. Based on authentic Singapore for Children with Developmental As of early 2017, WeChat had 1.1 billion experiences within the Singaporean context, a Disabilities Aim: Long-term care insurance is a system in registered accounts. One useful function of structured socio-ecological and trans- Shang Chee Chong, Mythra Mahesh which society supports citizens’ long-term care WeChat allows individuals to create their disciplinary framework was developed to needs through insurance premiums paid by personal “public accounts” for free and write evaluate study/workplace inclusion. Aim: Evidence in the past decade emphasizes persons 40+ years of age. This presenter aimed their topics of interest to share with the public. Contribution: The featured framework the role of families in early intervention for to examine conceptual issues of the eligibility Despite limited evidence, it is reasonable to presented a comprehensive trans-disciplinary developmental disabilities and the importance criteria of long-term care insurance in Japan speculate that personal narratives are more and socio-ecological work/study transition of child learning occurring in natural settings. using the International Classification of readily conveyed and received in China in approach. It is evaluation-driven and includes Clinic-based early intervention services in Functioning, Disability and Health (ICF) recent years with the use of WeChat. A case attention to the influence of societal attitudes, Singapore have traditionally been professional- framework. analysis was conducted to investigate how one policy-makers, organisations, support within the driven, resulting in families becoming passive Method: 74 items of the certification for long- WeChat personal “public account” may have workplace, suitable education provision, and recipients of service. It is necessary to shift term care insurance were classified in influenced the change of policies for homeless family encouragement. The trans-disciplinary practice towards enhancing caregiver components of ICF (Body Functions and persons, including those with intellectual and and socio-ecological approach aids in planning competencies and parent-mediated Structures, Activity, Participation, developmental disabilities in Chinese centers. and preparing students for post-academic life. It intervention in the home. Environmental Factors) and calculated number Contribution: This research helped to enrich the can be applied for evaluation across other work Method: A new initiative to enhance parent- of the classifications, ratio (%) according to any limited but important scientific literature contexts and nurtures the value of feedback mediated intervention was created. Therapists component of ICF. examining the impact of media on policymaking through regular dialogue and reflections. were trained in parent coaching and adopted Results: Of 74 items, body function and for disadvantaged persons. In an era of new  the McWilliams key concepts in a routine-based structure contained 48 items (64.9%), activity media in China there are many new WeChat intervention framework. Child observation, contained 23 items (31.1%), and participation consumers and presumably many more to come Alternative Support Model and Strategies for intervention goal setting, and parent coaching contained 3 items (4.1%). No items classified in in the future. Promoting Inclusive Education of Hong Kong were performed based on home videos shared environmental factors were seen.  Samuel Singyu To, Manyin Lee, Chingwan Fred by parents, focusing on embedding intervention Conclusion: In certification for long-term care Ma, Langa Samuelson To in home routines and parent-chosen priorities. insurance, a focus is put on intensive mental A Trans-disciplinary and Socio-Ecological Collaborative interactions between parents and and physical care. The presenter considered this Framework to Understand and Evaluate Description: The outcomes of the inclusive therapists were measured using the triadic viewpoint as useful to evaluate social Inclusion Practices in the Workplace education movement in Hong Kong are implementation checklist (TIERS). participation and environmental deficits. It is Esther Joosa controversial. Some experts believe that the Results: Therapist competencies on the TIERS necessary to include perspectives on resource allocations to education and social were favourable in 3 out of 4 areas, with participation and environmental factors of ICF Description: With an aging population of welfare in Hong Kong remain inadequate and increased professional knowledge on parent to the certification for long-term care insurance individuals with a disability, successful do not effectively target children with coaching strategies. Caregivers’ capabilities on in Japan. workplace inclusion is becoming an increasingly disabilities. Some argue discrimination against the TIERS were rated stronger on the “low  important social goal. Successful inclusion leads children with disabilities is still a widespread participation elements” than “high participation to greater independence and increased quality phenomenon. This research intended to of life. While education for individuals with scrutinize the existing inclusive education intellectual and developmental disabilities has support model, strategies, and practices in

24 25 hospitals faced difficulties accepting people elements”. This could indicate the shift towards POSTER PRESENTATIONS – NEW CONCEPTUALIZATION, THEORY, EXEMPLARY PRACTICE, OR with mobility issues in addition to medical parental roles of child teaching that require POLICY STRATEGY dependency. higher levels of supervision. Conclusion: Short-stay service of medically Conclusion: Parent capabilities in early Is WeChat Influencing Policy Making for People seen significant improvements, more efforts are dependent persons requires sufficient number intervention can be built through clinic-based with Intellectual and Developmental needed to prepare them for the transition from of nursing staff. Acceptance of medically services. A systematic curriculum facilitates Disabilities in China? school to work. With limited education and dependent people with mobility issues is development of therapist’ coaching skills. Mo Chen, Xi-Jie Yang negative stereotypes present in the community, challenging and requires additional resources.  career options for people with disabilities  Description: Mass media can often impact remain limited. This is due to the complex Reviewing a Problem of the Long-term Care policymaking either directly or indirectly. processes required in the transition from school Early Intervention in Naturalistic Environments Insurance for Elderly People in Japan from the WeChat, a social media application released in to the workplace. The socio-ecological aspects Using Child and Family Routines—A Paradigm ICF 2011, has become one of the largest stand- of inclusion in the workplace are still in need of Shift in Delivery of Clinic-Based Intervention in Takehiko Mita alone messaging apps by monthly active users. further evaluation. Based on authentic Singapore for Children with Developmental As of early 2017, WeChat had 1.1 billion experiences within the Singaporean context, a Disabilities Aim: Long-term care insurance is a system in registered accounts. One useful function of structured socio-ecological and trans- Shang Chee Chong, Mythra Mahesh which society supports citizens’ long-term care WeChat allows individuals to create their disciplinary framework was developed to needs through insurance premiums paid by personal “public accounts” for free and write evaluate study/workplace inclusion. Aim: Evidence in the past decade emphasizes persons 40+ years of age. This presenter aimed their topics of interest to share with the public. Contribution: The featured framework the role of families in early intervention for to examine conceptual issues of the eligibility Despite limited evidence, it is reasonable to presented a comprehensive trans-disciplinary developmental disabilities and the importance criteria of long-term care insurance in Japan speculate that personal narratives are more and socio-ecological work/study transition of child learning occurring in natural settings. using the International Classification of readily conveyed and received in China in approach. It is evaluation-driven and includes Clinic-based early intervention services in Functioning, Disability and Health (ICF) recent years with the use of WeChat. A case attention to the influence of societal attitudes, Singapore have traditionally been professional- framework. analysis was conducted to investigate how one policy-makers, organisations, support within the driven, resulting in families becoming passive Method: 74 items of the certification for long- WeChat personal “public account” may have workplace, suitable education provision, and recipients of service. It is necessary to shift term care insurance were classified in influenced the change of policies for homeless family encouragement. The trans-disciplinary practice towards enhancing caregiver components of ICF (Body Functions and persons, including those with intellectual and and socio-ecological approach aids in planning competencies and parent-mediated Structures, Activity, Participation, developmental disabilities in Chinese centers. and preparing students for post-academic life. It intervention in the home. Environmental Factors) and calculated number Contribution: This research helped to enrich the can be applied for evaluation across other work Method: A new initiative to enhance parent- of the classifications, ratio (%) according to any limited but important scientific literature contexts and nurtures the value of feedback mediated intervention was created. Therapists component of ICF. examining the impact of media on policymaking through regular dialogue and reflections. were trained in parent coaching and adopted Results: Of 74 items, body function and for disadvantaged persons. In an era of new  the McWilliams key concepts in a routine-based structure contained 48 items (64.9%), activity media in China there are many new WeChat intervention framework. Child observation, contained 23 items (31.1%), and participation consumers and presumably many more to come Alternative Support Model and Strategies for intervention goal setting, and parent coaching contained 3 items (4.1%). No items classified in in the future. Promoting Inclusive Education of Hong Kong were performed based on home videos shared environmental factors were seen.  Samuel Singyu To, Manyin Lee, Chingwan Fred by parents, focusing on embedding intervention Conclusion: In certification for long-term care Ma, Langa Samuelson To in home routines and parent-chosen priorities. insurance, a focus is put on intensive mental A Trans-disciplinary and Socio-Ecological Collaborative interactions between parents and and physical care. The presenter considered this Framework to Understand and Evaluate Description: The outcomes of the inclusive therapists were measured using the triadic viewpoint as useful to evaluate social Inclusion Practices in the Workplace education movement in Hong Kong are implementation checklist (TIERS). participation and environmental deficits. It is Esther Joosa controversial. Some experts believe that the Results: Therapist competencies on the TIERS necessary to include perspectives on resource allocations to education and social were favourable in 3 out of 4 areas, with participation and environmental factors of ICF Description: With an aging population of welfare in Hong Kong remain inadequate and increased professional knowledge on parent to the certification for long-term care insurance individuals with a disability, successful do not effectively target children with coaching strategies. Caregivers’ capabilities on in Japan. workplace inclusion is becoming an increasingly disabilities. Some argue discrimination against the TIERS were rated stronger on the “low  important social goal. Successful inclusion leads children with disabilities is still a widespread participation elements” than “high participation to greater independence and increased quality phenomenon. This research intended to of life. While education for individuals with scrutinize the existing inclusive education intellectual and developmental disabilities has support model, strategies, and practices in

24 25 Hong Kong. A Delphi technique was adopted to emotional regulation has improved to the ROUNDTABLES generate ideas, develop priorities, and gain degree that they are able to participate in other consensus. The scope of this study was limited activities with peers. Building Research Capacity in the Asia/Pacific for over 60 years. It was founded by Herbert C. to general education. It consisted of three Contribution: Results suggested that those Region in the Field of Intellectual and Gunzburg, one of the earlier pioneers in the rounds of questionnaires administered by post cases might have acquired a sense of self- Developmental Disabilities field of Developmental Disabilities as a regional and email to an expert panel. We employed efficacy by handling appropriate materials, Trevor R Parmenter, Kuo Yu Wang journal which then became the British Journal non-probability sampling techniques, using a while facilitators found the importance of for many years before it was renamed the purposive sample of 50 school administrators, tactile-motor cues for communication, instead Description: There has been a promising growth International Journal to acknowledge the wide professionals and experts; 30 of visual/verbal cues, during object-taking. in scientific inquiry in recent years from a wide range of countries of the submitting authors. school stakeholders; and 20 caregivers of the  range of discipline perspectives into issues Currently the journal is published by Taylor and special education need students. facing the lives of people with intellectual and Francis. A brief presentation was made on Contribution: It is expected that a favourable Improve Quality of Service for Persons with developmental disabilities (IDD) in the getting a paper published in a peer reviewed support model for children with disabilities and Disabilities using Online Software Asia/Pacific Region. However, researchers journal like the IJDD with an example of a more appropriate support strategies for Faisal Iqbal continue to face considerable barriers and regular research manuscript and its journey children with disabilities could be proposed. We challenges in achieving support for their work. from pre-submission to publication. The are looking forward to seeing the alternative Description: Organizations serving persons with These may include historical, cultural, perspective of a guest editor was also better practices of support model and strategies disabilities need to provide services depending economic, political, and attitudinal factors; presented. The submission process and the for promoting inclusive education of Hong on the disability criteria of the individual. some specific to individual countries and others practice of peer review was discussed and Kong. Keeping track of each individual’s progress more general across the Region. For instance, demystified, and guidance was provided on how  poses a challenge in terms of management, most if not all, countries in this Region have to engage with a journal editor in general when quality assurance, and ensuring funds during signed the UNCRPD, but those with IDD submitting papers to any journal, as well as how Social Interaction using Objects with Non- audits. A possible solution would be a web- continue to languish low on government to accommodate the requests and comments of Verbal Students based software providing an integrated solution priorities. Two panellists will explore a number the reviewers. Eiko Tatematsu for documentation, reporting, and of these barriers and challenges to the Contribution: The steps needed to achieve communication. The web-based software will development of a regional response that will successful publication in an ethical fashion were Description: Difficulty with social interaction is document services and allow inter- and intra- enhance scientific and applied knowledge that described for the audience. common in children with severe intellectual organizational sharing of information. Also, will better support people with IDD. This will be  disabilities. We aimed to develop a social oversight capability and real time access to data followed by an open discussion to enable interaction program for non-verbal students age for families, supervisors and auditors are participants to contribute their ideas and Getting Things Changed: Everyday Support 6-18 in non-profit organizations (NPO), which provided. To ensure security and compliance, suggestions on how the community of scholars Interactions, and Why They Matter provided the students with a day service after timestamp and electronic signature are in this Region might develop strategies that will Valerie Williams school. Original teaching materials were recorded in each form in the system. lead to better research outcomes. provided to the participants and individual Contribution: A web-based software saves cost Contribution: The goal of the Roundtable is to Description: This discussion is about practices were conducted 10-20 minutes per and time needed to document/track paper inform the sustainable development of research communication within support practices, always day during a 10-month period. NPO staff forms. Such a solution will allow management, into IDD in the Asia/Pacific Region in the important in the everyday lives of people with facilitators handled the materials to bring out therapist, and behavior specialists to track the context of cultural values, economic conditions ID. We show three short real-life video the participants' self-efficacy. Those were used overall progress of each individual. Through and the impact of the CRPD. recordings of people with ID interacting with as communication tools instead of verbal time-stamp and electronic signature provided  their support workers or personal assistants instructions. Two cases remarkably changed: on each form in the system, the organization (PAs), and present a Conversation Analysis (CA) Case 1 was a boy, age 15, whose social can keep track of progress towards personal How to get your Research Published: Guidance showing how these practices can exclude competence, measured by Japanese version of goals and medical outcomes, and reduce the and Steps Involved in Getting a Paper people with ID, or conversely can facilitate Vineland Social Maturity Scale, showed 1 year 8 likelihood of adverse incidents. The proposed Published choice. These videos are being used in the UK to months as his social developmental age (SA). He online software, which can efficiently Brian Salmons, John Rose produce training materials by working with a always needed help with daily activities and aggregate/summarize data, would help drama group of people with ID who bring their often had tantrums. Case 2 was a boy, age 12 organizations in their overall audit. The Description: The International Journal of own lived experience to the field. After each years and 9 months, with SA 2 years and 4 organization will also be able to analyze and Developmental Disabilities (IJDD) has been a video, we ask audience members to discuss and months. He could carry out daily activities by improve their data to provide quality services. leading publisher of all aspects of enhancement to try out in groups how these practices could himself but often attacked his peers. Now, their  of the lives of those with intellectual disabilities play out in their own settings.

26 27 Hong Kong. A Delphi technique was adopted to emotional regulation has improved to the ROUNDTABLES generate ideas, develop priorities, and gain degree that they are able to participate in other consensus. The scope of this study was limited activities with peers. Building Research Capacity in the Asia/Pacific for over 60 years. It was founded by Herbert C. to general education. It consisted of three Contribution: Results suggested that those Region in the Field of Intellectual and Gunzburg, one of the earlier pioneers in the rounds of questionnaires administered by post cases might have acquired a sense of self- Developmental Disabilities field of Developmental Disabilities as a regional and email to an expert panel. We employed efficacy by handling appropriate materials, Trevor R Parmenter, Kuo Yu Wang journal which then became the British Journal non-probability sampling techniques, using a while facilitators found the importance of for many years before it was renamed the purposive sample of 50 school administrators, tactile-motor cues for communication, instead Description: There has been a promising growth International Journal to acknowledge the wide professionals and special education experts; 30 of visual/verbal cues, during object-taking. in scientific inquiry in recent years from a wide range of countries of the submitting authors. school stakeholders; and 20 caregivers of the  range of discipline perspectives into issues Currently the journal is published by Taylor and special education need students. facing the lives of people with intellectual and Francis. A brief presentation was made on Contribution: It is expected that a favourable Improve Quality of Service for Persons with developmental disabilities (IDD) in the getting a paper published in a peer reviewed support model for children with disabilities and Disabilities using Online Software Asia/Pacific Region. However, researchers journal like the IJDD with an example of a more appropriate support strategies for Faisal Iqbal continue to face considerable barriers and regular research manuscript and its journey children with disabilities could be proposed. We challenges in achieving support for their work. from pre-submission to publication. The are looking forward to seeing the alternative Description: Organizations serving persons with These may include historical, cultural, perspective of a guest editor was also better practices of support model and strategies disabilities need to provide services depending economic, political, and attitudinal factors; presented. The submission process and the for promoting inclusive education of Hong on the disability criteria of the individual. some specific to individual countries and others practice of peer review was discussed and Kong. Keeping track of each individual’s progress more general across the Region. For instance, demystified, and guidance was provided on how  poses a challenge in terms of management, most if not all, countries in this Region have to engage with a journal editor in general when quality assurance, and ensuring funds during signed the UNCRPD, but those with IDD submitting papers to any journal, as well as how Social Interaction using Objects with Non- audits. A possible solution would be a web- continue to languish low on government to accommodate the requests and comments of Verbal Students based software providing an integrated solution priorities. Two panellists will explore a number the reviewers. Eiko Tatematsu for documentation, reporting, and of these barriers and challenges to the Contribution: The steps needed to achieve communication. The web-based software will development of a regional response that will successful publication in an ethical fashion were Description: Difficulty with social interaction is document services and allow inter- and intra- enhance scientific and applied knowledge that described for the audience. common in children with severe intellectual organizational sharing of information. Also, will better support people with IDD. This will be  disabilities. We aimed to develop a social oversight capability and real time access to data followed by an open discussion to enable interaction program for non-verbal students age for families, supervisors and auditors are participants to contribute their ideas and Getting Things Changed: Everyday Support 6-18 in non-profit organizations (NPO), which provided. To ensure security and compliance, suggestions on how the community of scholars Interactions, and Why They Matter provided the students with a day service after timestamp and electronic signature are in this Region might develop strategies that will Valerie Williams school. Original teaching materials were recorded in each form in the system. lead to better research outcomes. provided to the participants and individual Contribution: A web-based software saves cost Contribution: The goal of the Roundtable is to Description: This discussion is about practices were conducted 10-20 minutes per and time needed to document/track paper inform the sustainable development of research communication within support practices, always day during a 10-month period. NPO staff forms. Such a solution will allow management, into IDD in the Asia/Pacific Region in the important in the everyday lives of people with facilitators handled the materials to bring out therapist, and behavior specialists to track the context of cultural values, economic conditions ID. We show three short real-life video the participants' self-efficacy. Those were used overall progress of each individual. Through and the impact of the CRPD. recordings of people with ID interacting with as communication tools instead of verbal time-stamp and electronic signature provided  their support workers or personal assistants instructions. Two cases remarkably changed: on each form in the system, the organization (PAs), and present a Conversation Analysis (CA) Case 1 was a boy, age 15, whose social can keep track of progress towards personal How to get your Research Published: Guidance showing how these practices can exclude competence, measured by Japanese version of goals and medical outcomes, and reduce the and Steps Involved in Getting a Paper people with ID, or conversely can facilitate Vineland Social Maturity Scale, showed 1 year 8 likelihood of adverse incidents. The proposed Published choice. These videos are being used in the UK to months as his social developmental age (SA). He online software, which can efficiently Brian Salmons, John Rose produce training materials by working with a always needed help with daily activities and aggregate/summarize data, would help drama group of people with ID who bring their often had tantrums. Case 2 was a boy, age 12 organizations in their overall audit. The Description: The International Journal of own lived experience to the field. After each years and 9 months, with SA 2 years and 4 organization will also be able to analyze and Developmental Disabilities (IJDD) has been a video, we ask audience members to discuss and months. He could carry out daily activities by improve their data to provide quality services. leading publisher of all aspects of enhancement to try out in groups how these practices could himself but often attacked his peers. Now, their  of the lives of those with intellectual disabilities play out in their own settings.

26 27 Contribution: This discussion and role play evidence-based medicine and population health the case of China, Singapore, and Thailand, we Contribution: We expect the presentations and enactment of social practices results in some progress. will invite contributions from researchers or discussion to achieve an increase in each others’ new lines of enquiry for Conversation Analysis,  policymakers from Asian countries. We also knowledge and appreciation of the different as well as for ID research. As a result of this seek to identify areas for development in policy contexts in which we work. Support models and discussion, we will share the views of Assessment: Quantifying Need, Allocating and practice. In aggregating the responses from strategies strive for inclusiveness and international researchers with our project team Resources, And Measuring Quality--Nation- those present, we hope to identify common sustainable development can be driven forward (http://www.bristol.ac.uk/sps/gettingthingscha State Perspectives themes and to consolidate them for publication everywhere through sharing of experience and nged/), whose work is reflected in this John Agosta, Alexandra Bonardi, Helene Dore as well as for reflection within the subsequent solutions. roundtable. The eventual outcome is to Asia Pacific IASSID Meetings.  improve support practices, with a view to Description: Policymakers consistently face Contribution: Asia is the continent where, ensuring that people with ID can take a fuller increasing demand for services but lack the though the size of its populace, most individuals Do People with Developmental Disabilities role in everyday life. resources to provide needed supports to all in with IDD in the world find their home. Yet an need Specialist Inpatient Services?  need. Further, for those receiving services, understanding on the incidence, legal Salim Jeffrey Razak, Adnan Qureshi policymakers want to ensure that the services framework, policies, and practices is still at a A Person-Centered Care and Engagement and supports they provide achieve the nascent phase. It is hoped that this Asian Description: In England, there have been a Model for Improving and Sustaining Outcomes outcomes they envision. In response to these Roundtable on IDD would contribute to the number of scandals involving the care of people in Any (Psychiatric) Setting and All Populations concerns, policy makers are increasingly seeking small but increasing corpus of knowledge in this with developmental disabilities in inpatient or Laurel E Blackman means to allocate resources more efficiently area. institutional settings. As a result, the while garnering improved effect. Facilitators  Department of Health has instigated a Description: Our ultimate goal in person- from the United States and New Zealand will programme, called Transforming Care, with the centered care aims to support an individual in frame the various ways assessment is being Specialist Community-based Services for aim of reducing the number of people admitted transcending symptoms or circumstances and used, or is being considered for use, before Adults with Intellectual Disability: Are we in to specialist inpatient services for people with building a meaningful life. Presently, there is a opening the conversation to session attendees Shangri-La or Cloud Cuckoo Land? developmental disabilities. The discussion is dearth of reasoned recovery-oriented to discuss how assessment is viewed and used Trevor Chun Wai Chan, Ken Courtenay supported by two psychiatrists from the South treatment models. General literature exists in their countries regarding the provision of Gloucestershire Community Learning Difficulties about recovery as an organizing principle, yet inclusive services to people with intellectual and Description: Countries with different Service. The Community Learning Difficulties only a handful describe the dynamic, reciprocal developmental disabilities. socioeconomic and cultural contexts have Service has developed a range of services to engagement from which recovery begins and Contribution: Our aim is that this initial different support to adults with Intellectual assess needs and provide support and training desired outcomes ensue and sustain. We began dialogue will push session attendees into future Disabilities (ID). There is no one-size-fit-all but for people with intellectual disabilities and their a culture change initiative for systems discussion, including the potential for an what can we learn from others? The UK’s families and carers. As a result, South transformation by piloting person-centered international community of practice, around National Health Service (NHS) is a Gloucestershire is a national outlier in terms of care, planning, and collaboration that building support models that make use of comprehensive, universal service free at the having an extremely low rate of usage of encouraged us to know individuals and focus on assessment to encourage sustainable point of access. Adults with ID receive free inpatient services, whilst supporting people what is important to them. To devise person- development of service systems that promote, Primary Care services and Specialist multi- with developmental disabilities and complex centered interventions, we began to play. Play measure, and achieve quality outcomes for disciplinary health service. Social policy has health needs in the local community. The allowed us to enter other areas of awareness individuals receiving support. evolved with the closure of the asylums with presenters provide case vignettes, service and that are closed off from language. We  people now living in the community. The policy developments and legal frameworks from frequently called upon the domains of food, principles of rights, independence, choice and the UK. animals, and arts, or FAARTS. Disability Law, Policy, and Services within the inclusion are enshrined in Government policy Contribution: The facilitated discussion Contribution: Aha moments distinguish the Asian Context that promotes health and social care addressed the role of inpatient services, current paradigm shifting Allied, Holistic, and Active Kenneth K. Poon, Somsri Tritiphen, Dalvin Jit integration. ID health professionals based in the and future models of inpatient services, and (AHA) Model of treatment that facilitates Kaur Sidhu, Mo Chen UK will present an overview of the UK model community alternatives to inpatient assessment meaningful recovery, especially for individuals and how it fares in inclusiveness and and treatment, both in the UK and in their who are manifestly dangerous, seriously and Description: In this Asian Roundtable on sustainable development. The presentations respective countries. persistently medically ill, or dually-diagnosed. Intellectual and Developmental Disabilities will act as anchor for discussion.  Person-centeredness of patients, clinicians, and (IDD) discussion, we seek to develop an healthcare systems gives meaning and value to understanding of disability law, policy, and services within the Asian context. Starting with

28 29 Contribution: This discussion and role play evidence-based medicine and population health the case of China, Singapore, and Thailand, we Contribution: We expect the presentations and enactment of social practices results in some progress. will invite contributions from researchers or discussion to achieve an increase in each others’ new lines of enquiry for Conversation Analysis,  policymakers from Asian countries. We also knowledge and appreciation of the different as well as for ID research. As a result of this seek to identify areas for development in policy contexts in which we work. Support models and discussion, we will share the views of Assessment: Quantifying Need, Allocating and practice. In aggregating the responses from strategies strive for inclusiveness and international researchers with our project team Resources, And Measuring Quality--Nation- those present, we hope to identify common sustainable development can be driven forward (http://www.bristol.ac.uk/sps/gettingthingscha State Perspectives themes and to consolidate them for publication everywhere through sharing of experience and nged/), whose work is reflected in this John Agosta, Alexandra Bonardi, Helene Dore as well as for reflection within the subsequent solutions. roundtable. The eventual outcome is to Asia Pacific IASSID Meetings.  improve support practices, with a view to Description: Policymakers consistently face Contribution: Asia is the continent where, ensuring that people with ID can take a fuller increasing demand for services but lack the though the size of its populace, most individuals Do People with Developmental Disabilities role in everyday life. resources to provide needed supports to all in with IDD in the world find their home. Yet an need Specialist Inpatient Services?  need. Further, for those receiving services, understanding on the incidence, legal Salim Jeffrey Razak, Adnan Qureshi policymakers want to ensure that the services framework, policies, and practices is still at a A Person-Centered Care and Engagement and supports they provide achieve the nascent phase. It is hoped that this Asian Description: In England, there have been a Model for Improving and Sustaining Outcomes outcomes they envision. In response to these Roundtable on IDD would contribute to the number of scandals involving the care of people in Any (Psychiatric) Setting and All Populations concerns, policy makers are increasingly seeking small but increasing corpus of knowledge in this with developmental disabilities in inpatient or Laurel E Blackman means to allocate resources more efficiently area. institutional settings. As a result, the while garnering improved effect. Facilitators  Department of Health has instigated a Description: Our ultimate goal in person- from the United States and New Zealand will programme, called Transforming Care, with the centered care aims to support an individual in frame the various ways assessment is being Specialist Community-based Services for aim of reducing the number of people admitted transcending symptoms or circumstances and used, or is being considered for use, before Adults with Intellectual Disability: Are we in to specialist inpatient services for people with building a meaningful life. Presently, there is a opening the conversation to session attendees Shangri-La or Cloud Cuckoo Land? developmental disabilities. The discussion is dearth of reasoned recovery-oriented to discuss how assessment is viewed and used Trevor Chun Wai Chan, Ken Courtenay supported by two psychiatrists from the South treatment models. General literature exists in their countries regarding the provision of Gloucestershire Community Learning Difficulties about recovery as an organizing principle, yet inclusive services to people with intellectual and Description: Countries with different Service. The Community Learning Difficulties only a handful describe the dynamic, reciprocal developmental disabilities. socioeconomic and cultural contexts have Service has developed a range of services to engagement from which recovery begins and Contribution: Our aim is that this initial different support to adults with Intellectual assess needs and provide support and training desired outcomes ensue and sustain. We began dialogue will push session attendees into future Disabilities (ID). There is no one-size-fit-all but for people with intellectual disabilities and their a culture change initiative for systems discussion, including the potential for an what can we learn from others? The UK’s families and carers. As a result, South transformation by piloting person-centered international community of practice, around National Health Service (NHS) is a Gloucestershire is a national outlier in terms of care, planning, and collaboration that building support models that make use of comprehensive, universal service free at the having an extremely low rate of usage of encouraged us to know individuals and focus on assessment to encourage sustainable point of access. Adults with ID receive free inpatient services, whilst supporting people what is important to them. To devise person- development of service systems that promote, Primary Care services and Specialist multi- with developmental disabilities and complex centered interventions, we began to play. Play measure, and achieve quality outcomes for disciplinary health service. Social policy has health needs in the local community. The allowed us to enter other areas of awareness individuals receiving support. evolved with the closure of the asylums with presenters provide case vignettes, service and that are closed off from language. We  people now living in the community. The policy developments and legal frameworks from frequently called upon the domains of food, principles of rights, independence, choice and the UK. animals, and arts, or FAARTS. Disability Law, Policy, and Services within the inclusion are enshrined in Government policy Contribution: The facilitated discussion Contribution: Aha moments distinguish the Asian Context that promotes health and social care addressed the role of inpatient services, current paradigm shifting Allied, Holistic, and Active Kenneth K. Poon, Somsri Tritiphen, Dalvin Jit integration. ID health professionals based in the and future models of inpatient services, and (AHA) Model of treatment that facilitates Kaur Sidhu, Mo Chen UK will present an overview of the UK model community alternatives to inpatient assessment meaningful recovery, especially for individuals and how it fares in inclusiveness and and treatment, both in the UK and in their who are manifestly dangerous, seriously and Description: In this Asian Roundtable on sustainable development. The presentations respective countries. persistently medically ill, or dually-diagnosed. Intellectual and Developmental Disabilities will act as anchor for discussion.  Person-centeredness of patients, clinicians, and (IDD) discussion, we seek to develop an healthcare systems gives meaning and value to understanding of disability law, policy, and services within the Asian context. Starting with

28 29 DEMONSTRATIONS Life Scale from Korean families as well as physical activity were “making friends,” “better identify important predicators of their FQOL. physical health,” and “increased confidence.” Video Interaction Guidance: High Quality disabilities can be enhanced by high quality Method: Based on the responses of 316 Korean The three most common parent reported Interactions Pave the Way to Inclusion everyday interactions. families, we conducted CFA to examine the barriers were “cost,” “the game moves too fast Sheridan Forster  factor structure of the FQOL scale in Korean for my child,” and “other children being too families and explore some important predictors competitive.” Results suggest that most of the Description: Video Interaction Guidance (VIG) is Art Makes Us Human - Support Model of of FQOL for Korean families. children prefer playing in an inclusive an intervention that aims to enhance the quality Societal Participation through Arts by Easy Results: Results showed that the 5-factor mainstream league. of interactions. Using video recordings of Read structure of the FQOL scale which has been Conclusion: Parents perceive social, emotional interactions, a trained guide shares clips to Michele Chung studied internationally was confirmed with the and physical benefits for their children when assist the more capable partner to become Korean family sample. Similarity and differences participating in organised sports. Interventions attuned to aspects of the interaction that bring Description: We have been creative partners in of the FQOL measure to Korean families were to address barriers to inclusive practice are the best communication skills out of the person performing arts for over a decade and have discussed. Several important predictors such as: indicated. The recently developed ALLPlay with a disability. While the guide may be aware created shows for school touring, community family income and severity of disability of program is highlighted. of interaction patterns that are not helpful, it is services, conferences presentation, stage children with DD were also identified.  the learnings available from what is working performances and other unconventional Conclusion: This research adds to the body of that enable change. presentations. This demonstration aims to literature investigating the psychometric Fostering Integration and Inclusivity by VIG has been used to support interaction invoke a mentality change of the audience in properties of the Family Quality of Life Scale, Supporting the Service Needs of Adult Children between parents/paid support workers and view of the “function” of art or art as a “hobby.” and adds an important international analysis with Autism Spectrum Disorder people with a range of disabilities, including Through narration and movement, the piece from Korea Christina Marsack, Arlene Weisz children and adults with autism, Down will explore how the presenter utilised easy-  syndrome, and profound intellectual and read as a means to support people with Aim: The number of individuals with autism multiple disabilities. intellectual differences, to engage in the Benefits and Barriers to Participation in spectrum disorder (ASD) continues to increase. It has been used in the UK, Europe, and discussion of social issues and enhance their Organised Physical Activity for Australian Many individuals with ASD require some form Australasia, and its effectiveness has been societal participation through art. Children with a Disability of lifelong assistance, warranting assistance demonstrated in mother-infant dyadic Contribution: This is a new model to promote Nicole Papadopoulos, Nicole Rinehart, Jane from parents and formalized services. This study interactions and some disability populations. inclusiveness, and the audience was invited to McGillivray, Helen Skouteris, Jennifer McGinley, sought to understand service experiences, This is a new intervention to Thailand, but think about how they can utilise this method to Katrina Williams, Andrew Whitehouse, Simon including services needed and received, types of introduction of it to teaching staff from make information accessible for people with Moss support, and satisfaction with support, of Chulalongkorn University Demonstration School intellectual differences. The demonstration was parents of adult children with ASD. suggest that it may hold promise. presented in a multi-media performance style Aim: Children with disabilities often fall well Method: This study is the follow up to a Contribution: Participants will learn about the with easy read samples to illustrate the author’s short of the amount of physical activity quantitative study (n = 320) examining the principles of attuned interaction. They will learn point. recommended, placing them at risk of health experiences of a convenience sample of parents about how, by using the principles, the inclusion  issues such as obesity and social isolation. The (50+) of adult children (18+) with ASD in the of people with intellectual and developmental aim of this study was to understand the barriers United States. Semi-structured interviews (n = and facilitators to inclusive physical activity 51) were conducted by telephone to programs for Australian children with a understand parents' perspectives. Interviews disability aged 4-17 from the perspective of were transcribed and analyzed analysis using

Track 2. Successful living within communities parents, sporting coaches, and children Atlas.ti 7 software. themselves. Results: Parents described formal services that ORAL PRESENTATIONS – RESEARCH REPORTS Method: A 77-question custom designed online aligned with previously reported service survey was developed. The survey was findings: availability, affordability, accessibility, Korean Family Quality of Life: Validating the Aim: A survey study on Family Quality of Life disseminated through sporting clubs and acceptability, accommodation, and awareness Family Quality of Life Scale and Identifying (FQOL) was conducted on Korean families of disability support organisations throughout of services. Respondents most frequently noted Important Predictors children with developmental disabilities (DD). Australia. 333 parents, 94 coaches and 149 inadequate and/or unavailable services. Mian Wang, Jiyeon Kim The purpose of the study was to validate children participated in the survey. Conclusion: Perceptions of parents typically psychometric properties of the Family Quality of Results: The three most common parent portrayed a lack of acceptable and adequate reported benefits of children participating in services. These data suggest a need for

30 31 DEMONSTRATIONS Life Scale from Korean families as well as physical activity were “making friends,” “better identify important predicators of their FQOL. physical health,” and “increased confidence.” Video Interaction Guidance: High Quality disabilities can be enhanced by high quality Method: Based on the responses of 316 Korean The three most common parent reported Interactions Pave the Way to Inclusion everyday interactions. families, we conducted CFA to examine the barriers were “cost,” “the game moves too fast Sheridan Forster  factor structure of the FQOL scale in Korean for my child,” and “other children being too families and explore some important predictors competitive.” Results suggest that most of the Description: Video Interaction Guidance (VIG) is Art Makes Us Human - Support Model of of FQOL for Korean families. children prefer playing in an inclusive an intervention that aims to enhance the quality Societal Participation through Arts by Easy Results: Results showed that the 5-factor mainstream league. of interactions. Using video recordings of Read structure of the FQOL scale which has been Conclusion: Parents perceive social, emotional interactions, a trained guide shares clips to Michele Chung studied internationally was confirmed with the and physical benefits for their children when assist the more capable partner to become Korean family sample. Similarity and differences participating in organised sports. Interventions attuned to aspects of the interaction that bring Description: We have been creative partners in of the FQOL measure to Korean families were to address barriers to inclusive practice are the best communication skills out of the person performing arts for over a decade and have discussed. Several important predictors such as: indicated. The recently developed ALLPlay with a disability. While the guide may be aware created shows for school touring, community family income and severity of disability of program is highlighted. of interaction patterns that are not helpful, it is services, conferences presentation, stage children with DD were also identified.  the learnings available from what is working performances and other unconventional Conclusion: This research adds to the body of that enable change. presentations. This demonstration aims to literature investigating the psychometric Fostering Integration and Inclusivity by VIG has been used to support interaction invoke a mentality change of the audience in properties of the Family Quality of Life Scale, Supporting the Service Needs of Adult Children between parents/paid support workers and view of the “function” of art or art as a “hobby.” and adds an important international analysis with Autism Spectrum Disorder people with a range of disabilities, including Through narration and movement, the piece from Korea Christina Marsack, Arlene Weisz children and adults with autism, Down will explore how the presenter utilised easy-  syndrome, and profound intellectual and read as a means to support people with Aim: The number of individuals with autism multiple disabilities. intellectual differences, to engage in the Benefits and Barriers to Participation in spectrum disorder (ASD) continues to increase. It has been used in the UK, Europe, and discussion of social issues and enhance their Organised Physical Activity for Australian Many individuals with ASD require some form Australasia, and its effectiveness has been societal participation through art. Children with a Disability of lifelong assistance, warranting assistance demonstrated in mother-infant dyadic Contribution: This is a new model to promote Nicole Papadopoulos, Nicole Rinehart, Jane from parents and formalized services. This study interactions and some disability populations. inclusiveness, and the audience was invited to McGillivray, Helen Skouteris, Jennifer McGinley, sought to understand service experiences, This is a new intervention to Thailand, but think about how they can utilise this method to Katrina Williams, Andrew Whitehouse, Simon including services needed and received, types of introduction of it to teaching staff from make information accessible for people with Moss support, and satisfaction with support, of Chulalongkorn University Demonstration School intellectual differences. The demonstration was parents of adult children with ASD. suggest that it may hold promise. presented in a multi-media performance style Aim: Children with disabilities often fall well Method: This study is the follow up to a Contribution: Participants will learn about the with easy read samples to illustrate the author’s short of the amount of physical activity quantitative study (n = 320) examining the principles of attuned interaction. They will learn point. recommended, placing them at risk of health experiences of a convenience sample of parents about how, by using the principles, the inclusion  issues such as obesity and social isolation. The (50+) of adult children (18+) with ASD in the of people with intellectual and developmental aim of this study was to understand the barriers United States. Semi-structured interviews (n = and facilitators to inclusive physical activity 51) were conducted by telephone to programs for Australian children with a understand parents' perspectives. Interviews disability aged 4-17 from the perspective of were transcribed and analyzed analysis using

Track 2. Successful living within communities parents, sporting coaches, and children Atlas.ti 7 software. themselves. Results: Parents described formal services that ORAL PRESENTATIONS – RESEARCH REPORTS Method: A 77-question custom designed online aligned with previously reported service survey was developed. The survey was findings: availability, affordability, accessibility, Korean Family Quality of Life: Validating the Aim: A survey study on Family Quality of Life disseminated through sporting clubs and acceptability, accommodation, and awareness Family Quality of Life Scale and Identifying (FQOL) was conducted on Korean families of disability support organisations throughout of services. Respondents most frequently noted Important Predictors children with developmental disabilities (DD). Australia. 333 parents, 94 coaches and 149 inadequate and/or unavailable services. Mian Wang, Jiyeon Kim The purpose of the study was to validate children participated in the survey. Conclusion: Perceptions of parents typically psychometric properties of the Family Quality of Results: The three most common parent portrayed a lack of acceptable and adequate reported benefits of children participating in services. These data suggest a need for

30 31 collaborative work among government, social sibling has a disability, well-being of the ‘typical- loneliness prevalence of 41.13%. Only one arrangements or from the family home into work, education, and health care providers in developing sibling’ has been woefully intervention study was included and it their own home. the development of services for individuals with overlooked by research and practice. These demonstrated that there was not any significant  ASD in order to promote integration and individuals, the so-called sandwich generation group difference for loneliness outcomes (p = inclusivity for this growing population. and Special Sibling, require more attention. In .021). The majority of the studies had a weak Developmental Needs of Family Caregivers of  particular, life expectancy of individuals with quality rating. People with Disabilities disabilities has extended in the past decade. Conclusion: The systematic review evidenced Jillian Graves, Christina Marsack Parental Intervention on Daily Living Skills Adult Special Siblings often assume a primary that loneliness is a common experience in Using Visual Prompt Approach for Children caregiver role after their parents can no longer people with IDD and there is a need to extend Aim: Siblings of people with severe psychiatric with Autism Spectrum Disorder do so. Many of them have expressed that they current research. illnesses and developmental disorders are often Nurafizzah Hj Muhd Khairun Nizam, Teng Leong wish more supports were in place in their  called upon to become caregivers for their Koay, Hjh Rohani Hj Mat Zin, Hjh Dyg Norzaiham childhood and youth. Past international siblings, especially after their parents’ death. Midawati Hj Abdullah literature has shown that proper supports, such Individual Supported Living (ISL) as a Quality Parents may have to manage their own aging as support groups or interventions, can Framework to Create and Promote “One’s process while having a child who still has Aim: This paper attempts to describe the effectively addressed informational and Own Home” significant needs even late in life. Caregiving research design of a study aimed at evaluating emotional needs of Special Siblings. This study Stian H Thoresen, Errol Cocks, Allyson Thomson requirements that occur outside a culturally the effectiveness of parental intervention using aims to explore needs of school-age siblings of normative life course can create significant visual prompts approach (VPA) on the daily individuals with intellectual disability and Aim: Article 19 of the UN Convention on the stress. As a result, examining caregiving in a living skills in children with ASD. autism in depth. Rights of Persons with Disabilities specified that developmental context is particularly salient. Method: A multiple baseline design across Method: The researcher, a Special Sibling people have the right to choose ‘where and The aim of this presentation was to examine subjects, involving five parent-child dyads was herself, conducted in-depth interviews with 12 with whom they live’, are ‘not obliged to live in developmental issues in family caregiving. employed. The parents were taught how to use Special Siblings of individuals with intellectual a particular living arrangement’, and ‘have Method: The presenters looked at qualitative the VPA during a four-session parent-training disability and autism who reside in Taipei area. access to a range of … services’. However, data from 26 siblings of people with program in teaching daily living skills such Verbatim interview transcripts were analysed adults with intellectual disabilities are usually schizophrenia and a mixed methods study with toileting, dressing and hygiene as to their child with a phenomenological approach. not afforded these rights. The Individual ~50 families of people who have autism. with ASD. The recording procedures of target Results: Results of this study were not yet Supported Living (ISL) project, through three Results: Supporting self-regulation and behaviors during baseline and intervention available at the time of printing. consecutive research projects since 2007, increasing public understanding of disabilities phase were also taught. Semi-structured  developed a quality framework Manual to helps families navigate their own life tasks even interviews were conducted on the parents to evaluate and plan individualised living through crises and challenges. obtain in depth data. Loneliness in People with Intellectual and arrangements. Conclusion: Understanding life course and the Results: As this paper is part of a large study, Developmental Disorders (IDD) across the Method: The latest phase of the project stages of development can help family only the preliminary results of the pilot study Lifespan: A Systematic Review of Prevalence completed 130 reviews of ISL arrangements members manage the transitions and were reported in this presentation. In and Interventions across Australia. Trained teams used the challenges that are part of a caregiving particular, the parent training program module Alexandra Petroutsou, Afia Ali, Angela Hassiotis Manual and evaluation processes to assess relationship. More research is needed to on teaching daily living skills, intervention quality of arrangements. support developmentally informed services to procedures and recording procedures have Aim: The aim of the study was to conduct the Results: ISL arrangements are associated with help these families. been described and discussed. first systematic review investigating the enhanced lifestyle and wellbeing. Level of  Conclusion: This interim report facilitated the prevalence of loneliness in people with IDD and support need and length of time in the procedures of the main research study. the interventions targeting loneliness. arrangements were not predicators of ISL The Lived Experience of Parents with a Young  Method: A search across five databases was scores, suggesting the quality of supports and Adult with Intellectual Disability: A Snapshot of conducted (May 2016 - June 2016). One innovative approaches were influential. the Duality of Personal Growth and The Invisible Children: Needs for School-age reviewer selected the articles for inclusion and Conclusion: The research to date developed the Challenging Times Special Siblings of Children with Intellectual assessed their risk of bias using a standardized ISL Framework, operationalised this into a Murray Rieck, Jane Shakespeare-Finch, Mariann Disability and Autism in Taiwan tool. The second reviewer examined the list of Manual, and established an evidence base of Märtsin, Marie Knox Chun-Yu Chiu included/excluded articles and the ratings of ISL. Additional education and training is the studies. required to support adults with intellectual Aim: There is a paucity of research that explores Aim: Sibling relationship is often considered the Results: Four prevalence studies met the disabilities moving from congregate living the lived experience of parents with a young longest-lasting family tie. However, when one inclusion criteria and provided an average adult son or daughter with an intellectual

32 33 collaborative work among government, social sibling has a disability, well-being of the ‘typical- loneliness prevalence of 41.13%. Only one arrangements or from the family home into work, education, and health care providers in developing sibling’ has been woefully intervention study was included and it their own home. the development of services for individuals with overlooked by research and practice. These demonstrated that there was not any significant  ASD in order to promote integration and individuals, the so-called sandwich generation group difference for loneliness outcomes (p = inclusivity for this growing population. and Special Sibling, require more attention. In .021). The majority of the studies had a weak Developmental Needs of Family Caregivers of  particular, life expectancy of individuals with quality rating. People with Disabilities disabilities has extended in the past decade. Conclusion: The systematic review evidenced Jillian Graves, Christina Marsack Parental Intervention on Daily Living Skills Adult Special Siblings often assume a primary that loneliness is a common experience in Using Visual Prompt Approach for Children caregiver role after their parents can no longer people with IDD and there is a need to extend Aim: Siblings of people with severe psychiatric with Autism Spectrum Disorder do so. Many of them have expressed that they current research. illnesses and developmental disorders are often Nurafizzah Hj Muhd Khairun Nizam, Teng Leong wish more supports were in place in their  called upon to become caregivers for their Koay, Hjh Rohani Hj Mat Zin, Hjh Dyg Norzaiham childhood and youth. Past international siblings, especially after their parents’ death. Midawati Hj Abdullah literature has shown that proper supports, such Individual Supported Living (ISL) as a Quality Parents may have to manage their own aging as support groups or interventions, can Framework to Create and Promote “One’s process while having a child who still has Aim: This paper attempts to describe the effectively addressed informational and Own Home” significant needs even late in life. Caregiving research design of a study aimed at evaluating emotional needs of Special Siblings. This study Stian H Thoresen, Errol Cocks, Allyson Thomson requirements that occur outside a culturally the effectiveness of parental intervention using aims to explore needs of school-age siblings of normative life course can create significant visual prompts approach (VPA) on the daily individuals with intellectual disability and Aim: Article 19 of the UN Convention on the stress. As a result, examining caregiving in a living skills in children with ASD. autism in depth. Rights of Persons with Disabilities specified that developmental context is particularly salient. Method: A multiple baseline design across Method: The researcher, a Special Sibling people have the right to choose ‘where and The aim of this presentation was to examine subjects, involving five parent-child dyads was herself, conducted in-depth interviews with 12 with whom they live’, are ‘not obliged to live in developmental issues in family caregiving. employed. The parents were taught how to use Special Siblings of individuals with intellectual a particular living arrangement’, and ‘have Method: The presenters looked at qualitative the VPA during a four-session parent-training disability and autism who reside in Taipei area. access to a range of … services’. However, data from 26 siblings of people with program in teaching daily living skills such Verbatim interview transcripts were analysed adults with intellectual disabilities are usually schizophrenia and a mixed methods study with toileting, dressing and hygiene as to their child with a phenomenological approach. not afforded these rights. The Individual ~50 families of people who have autism. with ASD. The recording procedures of target Results: Results of this study were not yet Supported Living (ISL) project, through three Results: Supporting self-regulation and behaviors during baseline and intervention available at the time of printing. consecutive research projects since 2007, increasing public understanding of disabilities phase were also taught. Semi-structured  developed a quality framework Manual to helps families navigate their own life tasks even interviews were conducted on the parents to evaluate and plan individualised living through crises and challenges. obtain in depth data. Loneliness in People with Intellectual and arrangements. Conclusion: Understanding life course and the Results: As this paper is part of a large study, Developmental Disorders (IDD) across the Method: The latest phase of the project stages of development can help family only the preliminary results of the pilot study Lifespan: A Systematic Review of Prevalence completed 130 reviews of ISL arrangements members manage the transitions and were reported in this presentation. In and Interventions across Australia. Trained teams used the challenges that are part of a caregiving particular, the parent training program module Alexandra Petroutsou, Afia Ali, Angela Hassiotis Manual and evaluation processes to assess relationship. More research is needed to on teaching daily living skills, intervention quality of arrangements. support developmentally informed services to procedures and recording procedures have Aim: The aim of the study was to conduct the Results: ISL arrangements are associated with help these families. been described and discussed. first systematic review investigating the enhanced lifestyle and wellbeing. Level of  Conclusion: This interim report facilitated the prevalence of loneliness in people with IDD and support need and length of time in the procedures of the main research study. the interventions targeting loneliness. arrangements were not predicators of ISL The Lived Experience of Parents with a Young  Method: A search across five databases was scores, suggesting the quality of supports and Adult with Intellectual Disability: A Snapshot of conducted (May 2016 - June 2016). One innovative approaches were influential. the Duality of Personal Growth and The Invisible Children: Needs for School-age reviewer selected the articles for inclusion and Conclusion: The research to date developed the Challenging Times Special Siblings of Children with Intellectual assessed their risk of bias using a standardized ISL Framework, operationalised this into a Murray Rieck, Jane Shakespeare-Finch, Mariann Disability and Autism in Taiwan tool. The second reviewer examined the list of Manual, and established an evidence base of Märtsin, Marie Knox Chun-Yu Chiu included/excluded articles and the ratings of ISL. Additional education and training is the studies. required to support adults with intellectual Aim: There is a paucity of research that explores Aim: Sibling relationship is often considered the Results: Four prevalence studies met the disabilities moving from congregate living the lived experience of parents with a young longest-lasting family tie. However, when one inclusion criteria and provided an average adult son or daughter with an intellectual

32 33 disability living with them in the family home. relationships between parenting stress and understanding of attitudes towards people with Method: Caregivers of children on the spectrum Much of the existing literature focuses on authoritarian parenting. intellectual disabilities. aged 5-10 years (n=166) completed the challenges for families rather than exploring the Conclusion: Chinese mothers of children with ID  Participation and Environment Measure–Child opportunities for positive outcomes like were more authoritarian than mothers of and Youth (PEM-CY). Participation in home personal growth. typically developing children. Authoritarian Challenges Faced by Siblings of Adults with activities were rated on child’s frequency and Method: A qualitative in-depth life-story parenting was predicted by the extent of Intellectual Disability (ID) involvement, as well as caregiver’s desire for method was used to gather parents’ own views mothers’ stress, parenting sense of competence Chloe Liew change. Data were collected at two time points, and perceptions of their experience; life as they and family support. 12 months apart. Path-analysis was used to see it.  Aim: This research study aimed to explore provide estimates of hypothesised causal Results: Parents’ narrative identified themes of challenges faced by siblings of adults with connections between parent desire for change a complex and dynamic life, and of both Attitudes toward Individuals with Intellectual intellectual disability (ID) in the Singapore and children’s participation. pathogenic and salutogenic paradigms. Disabilities across Asia: A Systematic Review context, using a life course approach. Results: Caregiver desire for change at T1 did Conclusion: Opportunities for learning are Karen Pooh Method: A qualitative design was used to not predict T2 frequency or involvement. T2 important aspects of practice and policy uncover an in-depth and holistic understanding involvement was predicted by T1 involvement development for parents and families. Aim: Most studies examined attitudes towards of the challenges faced by siblings involved in (p<.001), a pattern not present for frequency.  people with intellectual disabilities in Western the care of the persons with ID (PWID). This T2 desire for change in frequency was predicted countries. This systematic literature aimed to research gathered data from five participants, by T2 frequency, with higher levels of desire for Authoritarian Parenting of Chinese Mothers of review the findings of studies that investigated who are siblings of adults with ID, through change in children with lower frequency of Children with and without Intellectual attitudes towards intellectual disabilities across individual interviews. The participants were attendance (p=.004). Disability Asia. interviewed based on the different factors that Conclusion: This study highlights the Hui Su Method: A systematic search of PsycINFO impact on the life of PWID's caregivers, mainly importance of examining both identified relevant articles published between psychological, financial, and social factors. frequency/attendance and involvement as part Aim: This study aimed to compare authoritarian 1980 and 2014. Results: Thematic analysis was used in of participation. Factors that may impact on Chinese mothers of children with and without Results: Twenty articles pertaining to 17 studies interpreting the results gathered from the participation, including parent reported intellectual disability (ID); and to examine the investigated attitudes towards people with individual interviews to better understand the barriers, are discussed and explored in relation relationships between parenting stress, intellectual disabilities across Asia. They experiences and challenges that the siblings to family well-being. parenting sense of competence and family revealed misconceptions and superstitious faced in having an adult sibling with ID.  support and authoritarian parenting. beliefs about intellectual disabilities in their Conclusion: This research provides a better Method: The participants were recruited in cultures. Prior contact and higher education understanding of the need of transition in the Whose right? And Who’s right? UNCRPD and special schools and regular schools in attainment were consistently associated with caregiver roles for adults with ID and the the Dilemma of Rights for Young Adults with Guangdong Province, China. 173 mothers of more positive attitudes towards intellectual necessary support needed for siblings with ID. It Intellectual Disability children with ID (mean age = 11.05 years, SD = disabilities. However, the effects of age and also equips social service professionals and Fiona Redgrove 1.90) and 119 mothers of typically developing gender on attitudes were mixed. There was service providers to develop more appropriate children (mean age=10.55 years, SD = 1.10) limited evidence to conclude whether Asian support and services for the siblings with adults Aim: This research examined the various completed a self-report survey of parenting. samples hold more negative attitudes towards with ID. conceptualisations of adulthood held by young Results: Mothers of children with ID reported a people with intellectual disabilities than its  people with intellectual disability (aged 18-22), higher level of authoritarian parenting than Western counterparts. their parents and paid support staff to identify mothers of typically developing children. Conclusion: Individuals with prior contact, or Does Parent’s Desire for Change Influence their whether these potentially impact tension Hierarchical linear regression results showed have higher education attainment in developed Child’s Participation? between stakeholders during the transition-to- that: (1) disability status, parenting stress, areas, seem to express positive attitudes Kate Simpson, Dawn Adams, Deb Keen adulthood life stage. parenting sense of competence and family towards people with intellectual disabilities. Method: Using focus groups and face-to-face support accounted for 27% variance of Otherwise, a majority of the participants in the Aim: Caregivers of children on the autism semi-structured interviews with parents and authoritarian parenting; (2) with the effect of Asian samples seem to perceive people with spectrum are reported to desire change in their disability support workers, and a focus group of disability status being controlled, parenting intellectual disabilities negatively and express a child’s participation. Currently, no research has young people with intellectual disability, this stress and parenting sense of competence lack of willingness to interact with them. investigated whether this desire predicts qualitative research used concept analysis contribute significantly to authoritarian Further research in Asia, with more robust children’s future participation. This study methodology to explore conceptualisations of parenting; (4) family support moderate the methodologies, would help to gain a better examined the relationship between caregiver adulthood held by these three cohorts. It desire for change and their child’s participation. explored whether the UNCPRD supported rights

34 35 disability living with them in the family home. relationships between parenting stress and understanding of attitudes towards people with Method: Caregivers of children on the spectrum Much of the existing literature focuses on authoritarian parenting. intellectual disabilities. aged 5-10 years (n=166) completed the challenges for families rather than exploring the Conclusion: Chinese mothers of children with ID  Participation and Environment Measure–Child opportunities for positive outcomes like were more authoritarian than mothers of and Youth (PEM-CY). Participation in home personal growth. typically developing children. Authoritarian Challenges Faced by Siblings of Adults with activities were rated on child’s frequency and Method: A qualitative in-depth life-story parenting was predicted by the extent of Intellectual Disability (ID) involvement, as well as caregiver’s desire for method was used to gather parents’ own views mothers’ stress, parenting sense of competence Chloe Liew change. Data were collected at two time points, and perceptions of their experience; life as they and family support. 12 months apart. Path-analysis was used to see it.  Aim: This research study aimed to explore provide estimates of hypothesised causal Results: Parents’ narrative identified themes of challenges faced by siblings of adults with connections between parent desire for change a complex and dynamic life, and of both Attitudes toward Individuals with Intellectual intellectual disability (ID) in the Singapore and children’s participation. pathogenic and salutogenic paradigms. Disabilities across Asia: A Systematic Review context, using a life course approach. Results: Caregiver desire for change at T1 did Conclusion: Opportunities for learning are Karen Pooh Method: A qualitative design was used to not predict T2 frequency or involvement. T2 important aspects of practice and policy uncover an in-depth and holistic understanding involvement was predicted by T1 involvement development for parents and families. Aim: Most studies examined attitudes towards of the challenges faced by siblings involved in (p<.001), a pattern not present for frequency.  people with intellectual disabilities in Western the care of the persons with ID (PWID). This T2 desire for change in frequency was predicted countries. This systematic literature aimed to research gathered data from five participants, by T2 frequency, with higher levels of desire for Authoritarian Parenting of Chinese Mothers of review the findings of studies that investigated who are siblings of adults with ID, through change in children with lower frequency of Children with and without Intellectual attitudes towards intellectual disabilities across individual interviews. The participants were attendance (p=.004). Disability Asia. interviewed based on the different factors that Conclusion: This study highlights the Hui Su Method: A systematic search of PsycINFO impact on the life of PWID's caregivers, mainly importance of examining both identified relevant articles published between psychological, financial, and social factors. frequency/attendance and involvement as part Aim: This study aimed to compare authoritarian 1980 and 2014. Results: Thematic analysis was used in of participation. Factors that may impact on Chinese mothers of children with and without Results: Twenty articles pertaining to 17 studies interpreting the results gathered from the participation, including parent reported intellectual disability (ID); and to examine the investigated attitudes towards people with individual interviews to better understand the barriers, are discussed and explored in relation relationships between parenting stress, intellectual disabilities across Asia. They experiences and challenges that the siblings to family well-being. parenting sense of competence and family revealed misconceptions and superstitious faced in having an adult sibling with ID.  support and authoritarian parenting. beliefs about intellectual disabilities in their Conclusion: This research provides a better Method: The participants were recruited in cultures. Prior contact and higher education understanding of the need of transition in the Whose right? And Who’s right? UNCRPD and special schools and regular schools in attainment were consistently associated with caregiver roles for adults with ID and the the Dilemma of Rights for Young Adults with Guangdong Province, China. 173 mothers of more positive attitudes towards intellectual necessary support needed for siblings with ID. It Intellectual Disability children with ID (mean age = 11.05 years, SD = disabilities. However, the effects of age and also equips social service professionals and Fiona Redgrove 1.90) and 119 mothers of typically developing gender on attitudes were mixed. There was service providers to develop more appropriate children (mean age=10.55 years, SD = 1.10) limited evidence to conclude whether Asian support and services for the siblings with adults Aim: This research examined the various completed a self-report survey of parenting. samples hold more negative attitudes towards with ID. conceptualisations of adulthood held by young Results: Mothers of children with ID reported a people with intellectual disabilities than its  people with intellectual disability (aged 18-22), higher level of authoritarian parenting than Western counterparts. their parents and paid support staff to identify mothers of typically developing children. Conclusion: Individuals with prior contact, or Does Parent’s Desire for Change Influence their whether these potentially impact tension Hierarchical linear regression results showed have higher education attainment in developed Child’s Participation? between stakeholders during the transition-to- that: (1) disability status, parenting stress, areas, seem to express positive attitudes Kate Simpson, Dawn Adams, Deb Keen adulthood life stage. parenting sense of competence and family towards people with intellectual disabilities. Method: Using focus groups and face-to-face support accounted for 27% variance of Otherwise, a majority of the participants in the Aim: Caregivers of children on the autism semi-structured interviews with parents and authoritarian parenting; (2) with the effect of Asian samples seem to perceive people with spectrum are reported to desire change in their disability support workers, and a focus group of disability status being controlled, parenting intellectual disabilities negatively and express a child’s participation. Currently, no research has young people with intellectual disability, this stress and parenting sense of competence lack of willingness to interact with them. investigated whether this desire predicts qualitative research used concept analysis contribute significantly to authoritarian Further research in Asia, with more robust children’s future participation. This study methodology to explore conceptualisations of parenting; (4) family support moderate the methodologies, would help to gain a better examined the relationship between caregiver adulthood held by these three cohorts. It desire for change and their child’s participation. explored whether the UNCPRD supported rights

34 35 of people with intellectual disability are 4% of evaluation strategies are based on Small Business Enterprises for Adults with Development of the Work Support Profile universally recognised by stakeholders or scientific research, with the majority of Intellectual Disabilities and High Support (WSP) - An Instrument to Assess Support whether dissention contributes to tension questionnaires used being either created within Needs: Innovative and Entrepreneurial Needs of Adults with Intellectual Disabilities in between staff and parents. the workshop or its respective organization. Approaches to Meaningful Employment Sheltered Employment. Results: The right to “live in the community, Concepts of job satisfaction of people with ID Stian Thoresen, Errol Cocks, Allyson Thomson Vimallan Manokara, Yvonne Lee, Manisha with choices equal to others” stated in Article were differentiated. Kishore, Sivananda Penchaliah, Hoili Lim, Jeffrey 19 of the UNCRPD does not receive universal Conclusion: Our research indicates a divide Aim: This research project investigated Small Chan, Peter Tan, Shyh Shin Wong, Jing Yi Ng, Ai agreement by those entrusted through either between current research and practice in Business Enterprise (SBE) models of Jia Gwee, Clara Tan familial or contractual arrangements to support Austria and Germany. Managers show profound employment as an innovative approach to these young people, nor by a group of young interest in ensuring sufficient job satisfaction in meaningful vocational engagement for adults Aim: There is a need to systematically assess people with intellectual disability themselves. their employees, efforts to translate well- with intellectual disabilities and high support the support needs after adults with intellectual Conclusion: Despite the rights of young people devised research into practice are needed. needs. The project also sought to identify disabilities (ID) are trained and placed in various with intellectual disability being protected by  distinguishing elements of SBE and self- suitable work tasks commensurate with their the UNCPRD, debate over eligibility for employment approaches. perceived ability levels. The present study recognition of autonomy and self-determination Employment Security of Students with Method: Following a structured literature reports the development of the Work Support continues unabated today between Intellectual Disability Who Have Successfully review, four case studies of SBEs were Profile (WSP) as an assessment tool to assess stakeholders. Professionals adhere to human Completed Their Education in a Vocational developed using common qualitative research support needs of a person with ID in sheltered rights principles, while parents argue that Training Institute approaches that included interviews with key employment, according to degree/frequency prioritising these over welfare is inappropriate Shantha Kumara stakeholders, reviews of publicly available and type of support. for these young people. This research documents, and consultations with a reference Method: The WSP consists of 33 items that concluded that there is no adequate definition Aim: There has been good progress in the group of individuals and agencies familiar with were adapted from the Client Profile Checklist of adulthood to address this debate. growth of activities related to people with and supporting SBEs. (CPC) and informed by empirical literature.  intellectual disabilities in Sri Lanka in the recent Results: Two of the case studies were of well- Training officers rated the items for 239 people past. It is apparent that, during this time, the established and well-known SBEs that had between the ages of 19 and 63 years with ID. The Need to Bridge the Divide: Assessment of government and public organizations (NGOs) operated for over a decade. These businesses Factor analyses and reliability analyses were Job Satisfaction in Sheltered Workshops have initiated policies and made financial illustrated innovative and entrepreneurial conducted to examine factor structure as well Andreas Kocman, Germain Weber investment in support of these activities. approaches to provide meaningful employment as establish internal consistency, inter-rater and Method: Participants were students with for two young men with very high support test-retest reliabilities. Aim: Although two recent reviews indicate a intellectual disabilities who leave training from needs. The other two case studies were of Results: Factor analyses yielded a clear 5-factor broad range of research on job satisfaction in the institution. The skills developed in this emerging SBEs and illustrated challenges in the structure explaining 64.7% of the variance, with the domains of sheltered employment or training program are primarily the ability to use conceptualisation and start-up phases. internal consistencies of the factors ranging supported employment, little is known as to if of a manual textile machine for manufacturing Conclusion: SBEs are highly individualised from .86 to .92. Inter-rater reliability of the and how this research translates into actual products such as toys, dolls, and flower pots. businesses that are owned or controlled by the factors ranged from .38 to .58 and test-retest practice. We hence assessed the current Participants’ skills to perform these tasks in the focal person and people in close relationship, reliability ranged from .69 to .91. evaluation strategies of sheltered workshops in marketplace were evaluated. such as parents. Income generation is essential Conclusion: The preliminary results suggested Germany and Austria and prevailing perceptions Results: With the active collaboration of to any business, but SBEs are not necessarily that the WSP may be a useful tool to assess the of job satisfaction in people with intellectual government, NGOs, and business employers, profitable and may draw on a range of funding degree/frequency and type of support needed disabilities in these settings. students appear to be sufficiently trained that sources. Building social and community by adults with ID in sheltered employment. Method: Managers of German and Austrian they can maintain jobs, thereby earning their relationships and connections are prominent in  sheltered workshops were contacted. One own income and integrating themselves into SBEs. hundred and five participants completed the their wider society.  Symptoms of Psychological Distress and Family online survey. Using a mixed-method approach, Conclusion: Programs of this sort may prevent Quality of Life among Subgroups of Children current evaluation practices, attitudes towards the isolation of adults with intellectual disability Attending Early Intervention Programs regular evaluation and subjective concepts of within society. Instead of simply providing Kenneth Poon, Ning Xin Chong, Huichao XIE, job satisfaction in people with ID were assessed. financial support, their integration into society Rebecca Bull Results: Ninety-one percent of our sample may be enhanced by strengthening their skills evaluated satisfaction of employees at least through direct job training. Aim: This presentation sought to examine once, 58% regularly. Analysis revealed that only  symptoms of parental psychological distress

36 37 of people with intellectual disability are 4% of evaluation strategies are based on Small Business Enterprises for Adults with Development of the Work Support Profile universally recognised by stakeholders or scientific research, with the majority of Intellectual Disabilities and High Support (WSP) - An Instrument to Assess Support whether dissention contributes to tension questionnaires used being either created within Needs: Innovative and Entrepreneurial Needs of Adults with Intellectual Disabilities in between staff and parents. the workshop or its respective organization. Approaches to Meaningful Employment Sheltered Employment. Results: The right to “live in the community, Concepts of job satisfaction of people with ID Stian Thoresen, Errol Cocks, Allyson Thomson Vimallan Manokara, Yvonne Lee, Manisha with choices equal to others” stated in Article were differentiated. Kishore, Sivananda Penchaliah, Hoili Lim, Jeffrey 19 of the UNCRPD does not receive universal Conclusion: Our research indicates a divide Aim: This research project investigated Small Chan, Peter Tan, Shyh Shin Wong, Jing Yi Ng, Ai agreement by those entrusted through either between current research and practice in Business Enterprise (SBE) models of Jia Gwee, Clara Tan familial or contractual arrangements to support Austria and Germany. Managers show profound employment as an innovative approach to these young people, nor by a group of young interest in ensuring sufficient job satisfaction in meaningful vocational engagement for adults Aim: There is a need to systematically assess people with intellectual disability themselves. their employees, efforts to translate well- with intellectual disabilities and high support the support needs after adults with intellectual Conclusion: Despite the rights of young people devised research into practice are needed. needs. The project also sought to identify disabilities (ID) are trained and placed in various with intellectual disability being protected by  distinguishing elements of SBE and self- suitable work tasks commensurate with their the UNCPRD, debate over eligibility for employment approaches. perceived ability levels. The present study recognition of autonomy and self-determination Employment Security of Students with Method: Following a structured literature reports the development of the Work Support continues unabated today between Intellectual Disability Who Have Successfully review, four case studies of SBEs were Profile (WSP) as an assessment tool to assess stakeholders. Professionals adhere to human Completed Their Education in a Vocational developed using common qualitative research support needs of a person with ID in sheltered rights principles, while parents argue that Training Institute approaches that included interviews with key employment, according to degree/frequency prioritising these over welfare is inappropriate Shantha Kumara stakeholders, reviews of publicly available and type of support. for these young people. This research documents, and consultations with a reference Method: The WSP consists of 33 items that concluded that there is no adequate definition Aim: There has been good progress in the group of individuals and agencies familiar with were adapted from the Client Profile Checklist of adulthood to address this debate. growth of activities related to people with and supporting SBEs. (CPC) and informed by empirical literature.  intellectual disabilities in Sri Lanka in the recent Results: Two of the case studies were of well- Training officers rated the items for 239 people past. It is apparent that, during this time, the established and well-known SBEs that had between the ages of 19 and 63 years with ID. The Need to Bridge the Divide: Assessment of government and public organizations (NGOs) operated for over a decade. These businesses Factor analyses and reliability analyses were Job Satisfaction in Sheltered Workshops have initiated policies and made financial illustrated innovative and entrepreneurial conducted to examine factor structure as well Andreas Kocman, Germain Weber investment in support of these activities. approaches to provide meaningful employment as establish internal consistency, inter-rater and Method: Participants were students with for two young men with very high support test-retest reliabilities. Aim: Although two recent reviews indicate a intellectual disabilities who leave training from needs. The other two case studies were of Results: Factor analyses yielded a clear 5-factor broad range of research on job satisfaction in the institution. The skills developed in this emerging SBEs and illustrated challenges in the structure explaining 64.7% of the variance, with the domains of sheltered employment or training program are primarily the ability to use conceptualisation and start-up phases. internal consistencies of the factors ranging supported employment, little is known as to if of a manual textile machine for manufacturing Conclusion: SBEs are highly individualised from .86 to .92. Inter-rater reliability of the and how this research translates into actual products such as toys, dolls, and flower pots. businesses that are owned or controlled by the factors ranged from .38 to .58 and test-retest practice. We hence assessed the current Participants’ skills to perform these tasks in the focal person and people in close relationship, reliability ranged from .69 to .91. evaluation strategies of sheltered workshops in marketplace were evaluated. such as parents. Income generation is essential Conclusion: The preliminary results suggested Germany and Austria and prevailing perceptions Results: With the active collaboration of to any business, but SBEs are not necessarily that the WSP may be a useful tool to assess the of job satisfaction in people with intellectual government, NGOs, and business employers, profitable and may draw on a range of funding degree/frequency and type of support needed disabilities in these settings. students appear to be sufficiently trained that sources. Building social and community by adults with ID in sheltered employment. Method: Managers of German and Austrian they can maintain jobs, thereby earning their relationships and connections are prominent in  sheltered workshops were contacted. One own income and integrating themselves into SBEs. hundred and five participants completed the their wider society.  Symptoms of Psychological Distress and Family online survey. Using a mixed-method approach, Conclusion: Programs of this sort may prevent Quality of Life among Subgroups of Children current evaluation practices, attitudes towards the isolation of adults with intellectual disability Attending Early Intervention Programs regular evaluation and subjective concepts of within society. Instead of simply providing Kenneth Poon, Ning Xin Chong, Huichao XIE, job satisfaction in people with ID were assessed. financial support, their integration into society Rebecca Bull Results: Ninety-one percent of our sample may be enhanced by strengthening their skills evaluated satisfaction of employees at least through direct job training. Aim: This presentation sought to examine once, 58% regularly. Analysis revealed that only  symptoms of parental psychological distress

36 37 and family quality of life among subgroups of Method: A secondary analysis examined the and family looked for the common with ID were generally positive. Barriers to young children attending early intervention in discrepancy between ratings of Importance and understanding of QoL. The data were inclusion were discussed. Singapore. ratings of Satisfaction and Attainment in 9 statistically analyzed with a binary, symmetric  Method: The responses from parents of 344 family life domains of the Family Quality of Life matrix of similarities. children on the Development Behavior Checklist, Survey - 2006. The analysis first examined data Results: The concept map resulted in five Research Supported Practices in Promoting the Depression, Anxiety, Stress Scale, and the from Israel, then replicated the procedure common clusters: Perspective, Self- Employment Outcomes Beach Quality of Life Scale were utilized and utilizing studies that used the same instrument determination, Human-in connection, Support Dalun Zhang analyzed alongside the Brigance Inventory of and procedures as the data from Israel, but with and Society. Early Development (3rd edition). various populations, from Canada, Slovenia, Conclusion: The universal and multidimensional Aim: Successful and gainful employment is an Results: Cluster analyses indicated that Poland, Nigeria, Japan, and Australia. character of the concept QoL could function as essential part of quality of life outcomes for responses consisted of 3 groups: parents of Results: The discrepancy method identified a shared framework that gives direction to the individuals with intellectual and developmental children with low support needs (i.e., age different domains as sources of quality and daily actions of professionals and result in a disabilities (I/DD). There is a need to review the appropriate developmental levels with low areas of concern in comparison to the larger continuity in social service delivery, literature to identify research supported challenging behaviors), parents of children with information provided from the ratings alone. starting from a client-driven perspective. practices in the transition to employment. moderate levels of support needs (i.e., Conclusion: When considering what areas of  Method: We conducted comprehensive reviews moderate developmental delay with low family life to address for maintaining and of the research literature on transition to challenging behaviors), and parents of children improving family quality of life, the discrepancy Key Professionals’ Attitudes towards People employment from 1980 to 2014. The review with high support needs (i.e., moderate-severe method adds a deeper level of understanding with Intellectual Disabilities and Inclusion: An process included development of search terms, developmental delay with high challenging that may more accurately target need areas and Indonesian Perspective identification of databases (and other resources behaviors). Further analyses indicated that enhance domains that contribute to quality of Restu Handoyo, Afia Ali, Katrina Scior, Angela for the search), exporting identified abstracts to parents of children within the high support life. Hassiotis Refworks for screening, screening of abstracts, needs group reported significantly greater  development and application of inclusion and symptoms of depression, anxiety, and stress but Aim: This study aims to explore key exclusion criteria, and identification of research only lower levels than the low support needs Quality of Life: Towards a Shared Framework professionals’ attitudes towards people with supported practices in the transition to group in the Physical/Material Well-Being for Intersectoral Collaboration Intellectual Disabilities (ID) and their attitudes employment. Domain. Jessica De Maeyers, Hanne Vandenbussche, towards the inclusion of people with ID. Results: A total of 3,423 abstracts were Conclusion: Parents of young children with high Maarten De Schrijver Method: Participants: 15 participants screened: 447 articles were reviewed, 333 of support needs report higher levels of symptoms (psychologists, physicians, teachers and which met the inclusion criteria. The top three of psychological distress but it cannot be Aim: Intersectoral collaboration is a topic religious leaders) were recruited. Procedures: topics include vocational rehabilitation (100 assumed that family quality of life is uniformly increasingly put on the agenda of professionals The study took place in an urban area in articles), intervention/training (94 articles), and poor. From the results of this study, it follows in social service delivery. The complex support Indonesia. A semi-structured interview was school vocational programming (63 articles). that an individualized model of family centered needs of people in vulnerable living situations conducted for data collection. Thematic analysis Key research on each topic in each decade has practice needs to be adopted. (e.g., people with intellectual disabilities, people was used to analyse the data. been identified.  with mental health problems, elderly with Measures/Instruments: A semi-structured Conclusion: A set of transition-to-employment disabilities) in various life domains result in interview schedule and two vignettes depicting practices have empirical support and can be Using Family Quality of Life Data to Improve frequent contacts with professionals in different a person with mild and severe ID were utilised implemented in schools worldwide to help Practice and Family Life: A Look at Two Ways settings and fields. Both the support needs and for the interview. promote quality of life outcomes of individuals to Consider the Results the language used to address them are, at least Results: Participants showed ambivalent with I/DD. Ivan Brown, Dana Roth to some degree, specific to each profession and attitudes towards people with ID. Participants  fields. There is often limited attention given to showed positive attitudes regarding aspects of Aim: Family quality of life data has typically how the relate to one another. In this inclusion such as employment, marriage and Enhancing Social Networks of Adults with been applied to practice by considering higher- presentation, the concept of Quality of Life participation in community activities for people Intellectual Disabilities with Social Media Use rated domains as contributing to quality of life (QoL) is explored as potential shared framework with mild ID. Attitudes towards the inclusion of Training and lower-rated domains as areas of concern. across sectors in the support of people in people with severe ID were found to be less Fiona Rillotta, Pammi Raghavendra, Ruth The present analysis considers these ratings in vulnerable living situations. favourable compared to those with mild ID. Walker, Susan Balandin, Emma Grace, Greg relation to ratings of Importance to families, Method: A concept mapping was performed. Conclusion: Professionals’ attitudes towards Carey and reports on the discrepancy between the An expert group (n=16) of practitioners from people with ID were found to be ambivalent, two measures. different fields, people with lived experiences while the attitudes towards inclusion of people

38 39 and family quality of life among subgroups of Method: A secondary analysis examined the and family looked for the common with ID were generally positive. Barriers to young children attending early intervention in discrepancy between ratings of Importance and understanding of QoL. The data were inclusion were discussed. Singapore. ratings of Satisfaction and Attainment in 9 statistically analyzed with a binary, symmetric  Method: The responses from parents of 344 family life domains of the Family Quality of Life matrix of similarities. children on the Development Behavior Checklist, Survey - 2006. The analysis first examined data Results: The concept map resulted in five Research Supported Practices in Promoting the Depression, Anxiety, Stress Scale, and the from Israel, then replicated the procedure common clusters: Perspective, Self- Employment Outcomes Beach Quality of Life Scale were utilized and utilizing studies that used the same instrument determination, Human-in connection, Support Dalun Zhang analyzed alongside the Brigance Inventory of and procedures as the data from Israel, but with and Society. Early Development (3rd edition). various populations, from Canada, Slovenia, Conclusion: The universal and multidimensional Aim: Successful and gainful employment is an Results: Cluster analyses indicated that Poland, Nigeria, Japan, and Australia. character of the concept QoL could function as essential part of quality of life outcomes for responses consisted of 3 groups: parents of Results: The discrepancy method identified a shared framework that gives direction to the individuals with intellectual and developmental children with low support needs (i.e., age different domains as sources of quality and daily actions of professionals and result in a disabilities (I/DD). There is a need to review the appropriate developmental levels with low areas of concern in comparison to the larger continuity in social service delivery, literature to identify research supported challenging behaviors), parents of children with information provided from the ratings alone. starting from a client-driven perspective. practices in the transition to employment. moderate levels of support needs (i.e., Conclusion: When considering what areas of  Method: We conducted comprehensive reviews moderate developmental delay with low family life to address for maintaining and of the research literature on transition to challenging behaviors), and parents of children improving family quality of life, the discrepancy Key Professionals’ Attitudes towards People employment from 1980 to 2014. The review with high support needs (i.e., moderate-severe method adds a deeper level of understanding with Intellectual Disabilities and Inclusion: An process included development of search terms, developmental delay with high challenging that may more accurately target need areas and Indonesian Perspective identification of databases (and other resources behaviors). Further analyses indicated that enhance domains that contribute to quality of Restu Handoyo, Afia Ali, Katrina Scior, Angela for the search), exporting identified abstracts to parents of children within the high support life. Hassiotis Refworks for screening, screening of abstracts, needs group reported significantly greater  development and application of inclusion and symptoms of depression, anxiety, and stress but Aim: This study aims to explore key exclusion criteria, and identification of research only lower levels than the low support needs Quality of Life: Towards a Shared Framework professionals’ attitudes towards people with supported practices in the transition to group in the Physical/Material Well-Being for Intersectoral Collaboration Intellectual Disabilities (ID) and their attitudes employment. Domain. Jessica De Maeyers, Hanne Vandenbussche, towards the inclusion of people with ID. Results: A total of 3,423 abstracts were Conclusion: Parents of young children with high Maarten De Schrijver Method: Participants: 15 participants screened: 447 articles were reviewed, 333 of support needs report higher levels of symptoms (psychologists, physicians, teachers and which met the inclusion criteria. The top three of psychological distress but it cannot be Aim: Intersectoral collaboration is a topic religious leaders) were recruited. Procedures: topics include vocational rehabilitation (100 assumed that family quality of life is uniformly increasingly put on the agenda of professionals The study took place in an urban area in articles), intervention/training (94 articles), and poor. From the results of this study, it follows in social service delivery. The complex support Indonesia. A semi-structured interview was school vocational programming (63 articles). that an individualized model of family centered needs of people in vulnerable living situations conducted for data collection. Thematic analysis Key research on each topic in each decade has practice needs to be adopted. (e.g., people with intellectual disabilities, people was used to analyse the data. been identified.  with mental health problems, elderly with Measures/Instruments: A semi-structured Conclusion: A set of transition-to-employment disabilities) in various life domains result in interview schedule and two vignettes depicting practices have empirical support and can be Using Family Quality of Life Data to Improve frequent contacts with professionals in different a person with mild and severe ID were utilised implemented in schools worldwide to help Practice and Family Life: A Look at Two Ways settings and fields. Both the support needs and for the interview. promote quality of life outcomes of individuals to Consider the Results the language used to address them are, at least Results: Participants showed ambivalent with I/DD. Ivan Brown, Dana Roth to some degree, specific to each profession and attitudes towards people with ID. Participants  fields. There is often limited attention given to showed positive attitudes regarding aspects of Aim: Family quality of life data has typically how the relate to one another. In this inclusion such as employment, marriage and Enhancing Social Networks of Adults with been applied to practice by considering higher- presentation, the concept of Quality of Life participation in community activities for people Intellectual Disabilities with Social Media Use rated domains as contributing to quality of life (QoL) is explored as potential shared framework with mild ID. Attitudes towards the inclusion of Training and lower-rated domains as areas of concern. across sectors in the support of people in people with severe ID were found to be less Fiona Rillotta, Pammi Raghavendra, Ruth The present analysis considers these ratings in vulnerable living situations. favourable compared to those with mild ID. Walker, Susan Balandin, Emma Grace, Greg relation to ratings of Importance to families, Method: A concept mapping was performed. Conclusion: Professionals’ attitudes towards Carey and reports on the discrepancy between the An expert group (n=16) of practitioners from people with ID were found to be ambivalent, two measures. different fields, people with lived experiences while the attitudes towards inclusion of people

38 39 Aim: To investigate the effectiveness of social and love. The caregivers’ narratives were of family as emotional ties and boundary setting Pre-vocational (PV) Programme Teachers’ media use training on the social media skills of permeated by concerns about poverty, violence of a kinship group. Perspectives: Developing, Implementing and adults with intellectual disabilities (ID) living in and discrimination. The narratives were Conclusion: The gap in the literature suggests a Evaluating a School-based Enterprise (SBE) supported accommodation, and examine comprised of inspiring women, who in the face need for ecocultural studies, stigma reduction, Programme in Secondary Schools whether training to use social media increases of personal hardship, refuse to abandon their for gender-specific parenting groups and further Syazwina Mahmod, Teng Leong Koay, Rohani the online social networks of adults with ID. children with disabilities, and by doing so, development of rehabilitative counseling with Mat Zin, Rosmawijah Jawawi Method: A sequential mixed-methods design challenge the system through their courage. the children and siblings. was used. Approximately 8 adults living in a Conclusion: The mothers and grandmothers  Aim: This paper focuses on describing the supported accommodation service participated who are primary caregivers to children with research design of a study that aimed to in 12 weeks of social media use training. Data cerebral palsy included in this study are The Characteristics of Sustained Open evaluate the newly developed School-based assessing social media use and social networks negotiating the present while carrying fears for Employment for People with Disabilities: The Enterprise (SBE) that was implemented in of the participants was collected with various the future of their child. The participant Views of Persons with Disabilities, Their schools with Pre-Vocational (PV) programme in measures including: Canadian Occupational concerns of lack of opportunities for supported Caregivers and Employers training PV students with independent living Performance Measure (COPM), Circles of living and employment, need to be considered Vimallan Manokara, Jeffrey Chan skills and basic vocational skills. Communication Partners (CCP), Goal by all healthcare professionals as part of their Method: A Participatory Action Research (PAR) Attainment Scale (GAS), and interviews pre- and management plan as well as policy makers. Aim: This paper aims to identify the design was adapted for the study, in which the post-intervention/ training.  characteristics and predictors of researcher collaborated with PV teachers to Results: Results are presented in terms of successful open employment (OE) for people improve on the education of the PV students people with ID learning to use social media, and Support Groups and Family Resilience for with disability from the perspectives of the through the application of the SBE programme. how that impacts their social networks. Intellectual Disabilities in Thailand: A person, their caregiver, and their employer. A two-cycle PAR was conducted where data was Conclusion: Access to and use of social media Systematic Review Method: A systematic literature review was collected by interviewing (pre- and post- may provide an opportunity for people with ID Donald Persons conducted to develop a potential set of implementation of SBE programme) and to build social connections and strengthen questions on person, caregiver, and employer observing participants’ implementation of the social networks. Future research could Aim: This presentation reviews and reports on characteristics. Then, a semi-structured survey SBE programme in their lesson. investigate the impact of social media use literature on support groups and family based on characteristics identified was devised Results: The current paper is part of a larger training with a larger group of people with ID resilience for intellectual disabilities in Thailand. and reviewed by an advisory group consisting of study, and thus only the result from the pilot living in different settings. Method: Sources were found through Mahidol a person with disability, a caregiver, and study conducted are reported. Specifically, the  University libraries, as well as online databases, industry experts. The data collected was teacher participants’ perspectives on SBE namely, TDC (ThaiLIS), JMAT, IEEE Xplore, analysed to identify person, caregiver, and programme as part of a PV programme Negotiating the Present; Fearing the future: EBSCO and relevant papers shared on employer characteristics. curriculum are reported here. Narratives of Mothers and Grandmothers of Researchgate. Thai support groups in Results: The preliminary results of the study Conclusion: There appears to be a lack of Children with Cerebral Palsy in Sri Lanka intellectual disability were mapped using show that factors such as extent of work research done on the SBE programme as a part Shyamani Hettiarachchi, Gopi Kitnasamy, Dilani BatchGeo and characterized by location, type of accommodation by employer, encouragement of the secondary school education of students Gopi, Fathima Shamra, Chamara Bandara disability, group age, size, function, activities and support from work peers, line supervisors with disabilities. Hence, this pilot study and processes. and department managers, as well as caregiver outcome aids the researcher in facilitating the Aim: To explore the narratives of mothers and Results: Adaptation and family stress in families support are important factors that contribute to procedures for the main research. grandmothers of children with cerebral palsy. of children with intellectual disabilities sustainability of persons with disabilities in OE.  Method: A qualitative, exploratory study with (especially ADS and DS) involved interventions Conclusion: The findings have implications in female primary caregivers. Eight mothers and through focus group discussions and group terms of developing the appropriate levels of Are Vocabulary Choices the Same in Easy two grandmothers who are primary caregivers counseling, with the first being the Down support, education and training to people with English Documents in Different Parts of the were invited to be part of the study. Using a Syndrome Parents’ Support Group of the disability, their caregivers, and employers to World? topic guide, semi-structured interviews were Genetic Counseling Clinic of Siriraj Hospital ensure sustained OE. It potentially has Cathy Basterfield conducted with the participants. The interviews (1993). Group counseling and focus groups used implications in terms of curriculum design were analyzed through the lens of the ‘lived similar procedures. Family adaptation was during school years. Aim: Currently, there is limited data on what experience’ using Interpretative explored in terms of: 1) parental roles and  constitutes the benchmark of quality Easy Phenomenological Analysis and feminist theory. stress management; 2) a practice of discourse English documents (in some countries called Results: The emerging themes observed were: and problem solving; and 3) an integral model Easy Read). This presentation primarily abandonment, vulnerability, struggles, fears

40 41 Aim: To investigate the effectiveness of social and love. The caregivers’ narratives were of family as emotional ties and boundary setting Pre-vocational (PV) Programme Teachers’ media use training on the social media skills of permeated by concerns about poverty, violence of a kinship group. Perspectives: Developing, Implementing and adults with intellectual disabilities (ID) living in and discrimination. The narratives were Conclusion: The gap in the literature suggests a Evaluating a School-based Enterprise (SBE) supported accommodation, and examine comprised of inspiring women, who in the face need for ecocultural studies, stigma reduction, Programme in Secondary Schools whether training to use social media increases of personal hardship, refuse to abandon their for gender-specific parenting groups and further Syazwina Mahmod, Teng Leong Koay, Rohani the online social networks of adults with ID. children with disabilities, and by doing so, development of rehabilitative counseling with Mat Zin, Rosmawijah Jawawi Method: A sequential mixed-methods design challenge the system through their courage. the children and siblings. was used. Approximately 8 adults living in a Conclusion: The mothers and grandmothers  Aim: This paper focuses on describing the supported accommodation service participated who are primary caregivers to children with research design of a study that aimed to in 12 weeks of social media use training. Data cerebral palsy included in this study are The Characteristics of Sustained Open evaluate the newly developed School-based assessing social media use and social networks negotiating the present while carrying fears for Employment for People with Disabilities: The Enterprise (SBE) that was implemented in of the participants was collected with various the future of their child. The participant Views of Persons with Disabilities, Their schools with Pre-Vocational (PV) programme in measures including: Canadian Occupational concerns of lack of opportunities for supported Caregivers and Employers training PV students with independent living Performance Measure (COPM), Circles of living and employment, need to be considered Vimallan Manokara, Jeffrey Chan skills and basic vocational skills. Communication Partners (CCP), Goal by all healthcare professionals as part of their Method: A Participatory Action Research (PAR) Attainment Scale (GAS), and interviews pre- and management plan as well as policy makers. Aim: This paper aims to identify the design was adapted for the study, in which the post-intervention/ training.  characteristics and predictors of researcher collaborated with PV teachers to Results: Results are presented in terms of successful open employment (OE) for people improve on the education of the PV students people with ID learning to use social media, and Support Groups and Family Resilience for with disability from the perspectives of the through the application of the SBE programme. how that impacts their social networks. Intellectual Disabilities in Thailand: A person, their caregiver, and their employer. A two-cycle PAR was conducted where data was Conclusion: Access to and use of social media Systematic Review Method: A systematic literature review was collected by interviewing (pre- and post- may provide an opportunity for people with ID Donald Persons conducted to develop a potential set of implementation of SBE programme) and to build social connections and strengthen questions on person, caregiver, and employer observing participants’ implementation of the social networks. Future research could Aim: This presentation reviews and reports on characteristics. Then, a semi-structured survey SBE programme in their lesson. investigate the impact of social media use literature on support groups and family based on characteristics identified was devised Results: The current paper is part of a larger training with a larger group of people with ID resilience for intellectual disabilities in Thailand. and reviewed by an advisory group consisting of study, and thus only the result from the pilot living in different settings. Method: Sources were found through Mahidol a person with disability, a caregiver, and study conducted are reported. Specifically, the  University libraries, as well as online databases, industry experts. The data collected was teacher participants’ perspectives on SBE namely, TDC (ThaiLIS), JMAT, IEEE Xplore, analysed to identify person, caregiver, and programme as part of a PV programme Negotiating the Present; Fearing the future: EBSCO and relevant papers shared on employer characteristics. curriculum are reported here. Narratives of Mothers and Grandmothers of Researchgate. Thai support groups in Results: The preliminary results of the study Conclusion: There appears to be a lack of Children with Cerebral Palsy in Sri Lanka intellectual disability were mapped using show that factors such as extent of work research done on the SBE programme as a part Shyamani Hettiarachchi, Gopi Kitnasamy, Dilani BatchGeo and characterized by location, type of accommodation by employer, encouragement of the secondary school education of students Gopi, Fathima Shamra, Chamara Bandara disability, group age, size, function, activities and support from work peers, line supervisors with disabilities. Hence, this pilot study and processes. and department managers, as well as caregiver outcome aids the researcher in facilitating the Aim: To explore the narratives of mothers and Results: Adaptation and family stress in families support are important factors that contribute to procedures for the main research. grandmothers of children with cerebral palsy. of children with intellectual disabilities sustainability of persons with disabilities in OE.  Method: A qualitative, exploratory study with (especially ADS and DS) involved interventions Conclusion: The findings have implications in female primary caregivers. Eight mothers and through focus group discussions and group terms of developing the appropriate levels of Are Vocabulary Choices the Same in Easy two grandmothers who are primary caregivers counseling, with the first being the Down support, education and training to people with English Documents in Different Parts of the were invited to be part of the study. Using a Syndrome Parents’ Support Group of the disability, their caregivers, and employers to World? topic guide, semi-structured interviews were Genetic Counseling Clinic of Siriraj Hospital ensure sustained OE. It potentially has Cathy Basterfield conducted with the participants. The interviews (1993). Group counseling and focus groups used implications in terms of curriculum design were analyzed through the lens of the ‘lived similar procedures. Family adaptation was during school years. Aim: Currently, there is limited data on what experience’ using Interpretative explored in terms of: 1) parental roles and  constitutes the benchmark of quality Easy Phenomenological Analysis and feminist theory. stress management; 2) a practice of discourse English documents (in some countries called Results: The emerging themes observed were: and problem solving; and 3) an integral model Easy Read). This presentation primarily abandonment, vulnerability, struggles, fears

40 41 addresses vocabulary as one aspect of one term effort and passion of the movement and Aim: The aim of the study was to contribute disabled artists (such as the Nina Haggerty element of an Easy English document. persons with disabilities associated with it. The knowledge on how access to and use of Centre, Edmonton, and Creative Spirit Art Method: A retrospective comparative study of right of the ‘Respect for Home and the Family,’ assistive technology (AT) can support social Centre, Toronto), these organizations continue public domain Easy English documents from as outlined in article 23, originated from inclusion for persons with intellectual to struggle for funding and resources. various countries was conducted. Easy English discussions among women with disabilities. disabilities (ID) in Ireland, in the context of the Additionally, this research reveals that documents were compared and contrasted to Conclusion: Following a series of in-depth and ongoing deinstitutionalization of care for people artmaking holds numerous benefits for IDD examine the breadth of vocabulary, common challenging discussions with the prefectural with ID. artists, such as serving as an alternative form of vocabulary across documents, and explore assembly and officials, this right has become Method: A cross-sectional qualitative study communication for people with limited whether there were core and fringe one of the key representative articles for the underpinned by symbolic interactionism [1] and communicative ability, providing a way to vocabularies. These 3 components were prefectural regulation in Oita. grounded theory design [2]. Participants; people challenge the conditions of institutionalization, compared with other core vocabularies  with ID, family members of people with ID, key contributing to therapeutic aims and recovery, currently in the literature. workers supporting people with ID and providing a means by which to communicate Results: This data continues to expand our Persons with Intellectual Disabilities in 20th members of the community who live or work one’s life story, catalyzing motivation and knowledge about similarities and differences in Century China around community based services accessed by confidence, and providing a source of income / different countries developing Easy English. It Jing LI, Patricia O'Brien, Trevor Parmenter, people with ID. Data collection; in-depth face to way to participate in the capitalist economy. will assist in developing comparative studies Marie Knox face individual interviews, focus group Conclusion: This research indicates a need for across countries. discussions and participant observations. We greater recognition of artmaking as a potentially Conclusion: Sustainable development of Easy Aim: This paper aims to explore the policies, explored participant’s perspectives on the link enriching and profitable activity for IDD English can only occur when there is agreement legislation, and practices relevant to persons between the use of AT and social inclusion for individuals. It shows a need for more funding of about what constitutes a quality Easy English with intellectual disabilities in the different people with ID. organizations that support IDD art production. document. Vocabulary use and variance is one political contexts of the former Qing dynasty, Results: AT enabled participants to achieve  element that can be identified and compared. the Republic of China (ROC) from 1911 and the some level of independence and access to  People’s Republic of China (PRC) from 1949 to community processes. Use of AT by people with Job Satisfaction and Quality of Life in Autism the present in mainland China. ID remains very low, and requires well Darren Hedley, Mirko Uljarevic, Mathilda The Process of the Formulation of Prefectural Method: Documents reviews were combined supported and motivated support staff. Wilmot, Jennifer Spoor, Amanda Richdale, Regulations for People with Disabilities in Oita with individual interviews with persons who Conclusion: Effective access to and use of AT Cheryl Dissanayake Prefecture, Japan have experienced various historical events and can facilitate a more inclusive and sustainable Emiko Nagaoka Tanaka conditions. society by empowering community living for Aim: Organizations can improve employment Results: Results revealed that, in general, people with ID. This study identified a need for rates of individuals with diverse needs by Aim: This article attempts to disclose how the policies and the implementation of policies of global drive to increase access and use of AT for making reasonable adjustments and creating prefectural regulations were formulated in Oita the ROC and the PRC were related. This people with ID. supportive environments in the workplace. and reveal the importance of the process. Oita, comparison illustrates how traditional Chinese  Individuals who are employed and experience located in the southern part of Japan, society has adjusted to modern western job satisfaction can experience positive formulated regulations for people with influences in the area of intellectual disability IDD Artmaking in Canada outcomes to quality of life (QOL). Research on disabilities on April 1, 2016. The characteristics policy and practice and how such adjustment Alexandra Katherine Duncan job satisfaction (JS), however, is sparse in of these regulations established the individual’s works. people with disabilities. We examined QOL and right to sex, love, marriage, pregnancy and child Conclusion: This study helps international Aim: To identify what opportunities for JS in adults with ASD participating in a rearing for people with disabilities. These rights audiences to better understand and make professional artmaking exist for Canadians with supported employment program. are included in Article 23 of the ‘Respect for inferences from a historical context about intellectual and developmental disabilities Method: Participants were males with ASD and Home and the Family’ in the ‘Convention of the issues related to people with intellectual (IDD), and to identify what ways professional their co-workers who completed the Minnesota Rights of Persons with Disabilities’. disabilities in China. artmaking benefits IDD Canadians. Satisfaction Questionnaire and the WHO Quality Method: Interviews were held with three  Method: Focus groups and unstructured open of Life - BREF in a longitudinal, mixed method members participating in the ongoing interviews with IDD artists as well as staff at study. movement for the advancement of people with Achieving Inclusive Societies and Sustainable Canadian art organizations for disabled artists, Results: JS was higher in participants with ASD disabilities. The study was approved by the Development for People with Intellectual or and parents of disabled artists. than their coworkers but decreased slightly over ethics committee of Tokyo Kasei University. Developmental Disabilities using Assistive Results: While opportunities do exist in Canada time. QOL remained stable over time. JS and Results: The movement of formulating the Technology for IDD individuals to work as practising artists QOL were not significantly correlated. prefectural regulations arose from the long- John Owuor, Fiona Larkan through the support of organizations for

42 43 addresses vocabulary as one aspect of one term effort and passion of the movement and Aim: The aim of the study was to contribute disabled artists (such as the Nina Haggerty element of an Easy English document. persons with disabilities associated with it. The knowledge on how access to and use of Centre, Edmonton, and Creative Spirit Art Method: A retrospective comparative study of right of the ‘Respect for Home and the Family,’ assistive technology (AT) can support social Centre, Toronto), these organizations continue public domain Easy English documents from as outlined in article 23, originated from inclusion for persons with intellectual to struggle for funding and resources. various countries was conducted. Easy English discussions among women with disabilities. disabilities (ID) in Ireland, in the context of the Additionally, this research reveals that documents were compared and contrasted to Conclusion: Following a series of in-depth and ongoing deinstitutionalization of care for people artmaking holds numerous benefits for IDD examine the breadth of vocabulary, common challenging discussions with the prefectural with ID. artists, such as serving as an alternative form of vocabulary across documents, and explore assembly and officials, this right has become Method: A cross-sectional qualitative study communication for people with limited whether there were core and fringe one of the key representative articles for the underpinned by symbolic interactionism [1] and communicative ability, providing a way to vocabularies. These 3 components were prefectural regulation in Oita. grounded theory design [2]. Participants; people challenge the conditions of institutionalization, compared with other core vocabularies  with ID, family members of people with ID, key contributing to therapeutic aims and recovery, currently in the literature. workers supporting people with ID and providing a means by which to communicate Results: This data continues to expand our Persons with Intellectual Disabilities in 20th members of the community who live or work one’s life story, catalyzing motivation and knowledge about similarities and differences in Century China around community based services accessed by confidence, and providing a source of income / different countries developing Easy English. It Jing LI, Patricia O'Brien, Trevor Parmenter, people with ID. Data collection; in-depth face to way to participate in the capitalist economy. will assist in developing comparative studies Marie Knox face individual interviews, focus group Conclusion: This research indicates a need for across countries. discussions and participant observations. We greater recognition of artmaking as a potentially Conclusion: Sustainable development of Easy Aim: This paper aims to explore the policies, explored participant’s perspectives on the link enriching and profitable activity for IDD English can only occur when there is agreement legislation, and practices relevant to persons between the use of AT and social inclusion for individuals. It shows a need for more funding of about what constitutes a quality Easy English with intellectual disabilities in the different people with ID. organizations that support IDD art production. document. Vocabulary use and variance is one political contexts of the former Qing dynasty, Results: AT enabled participants to achieve  element that can be identified and compared. the Republic of China (ROC) from 1911 and the some level of independence and access to  People’s Republic of China (PRC) from 1949 to community processes. Use of AT by people with Job Satisfaction and Quality of Life in Autism the present in mainland China. ID remains very low, and requires well Darren Hedley, Mirko Uljarevic, Mathilda The Process of the Formulation of Prefectural Method: Documents reviews were combined supported and motivated support staff. Wilmot, Jennifer Spoor, Amanda Richdale, Regulations for People with Disabilities in Oita with individual interviews with persons who Conclusion: Effective access to and use of AT Cheryl Dissanayake Prefecture, Japan have experienced various historical events and can facilitate a more inclusive and sustainable Emiko Nagaoka Tanaka conditions. society by empowering community living for Aim: Organizations can improve employment Results: Results revealed that, in general, people with ID. This study identified a need for rates of individuals with diverse needs by Aim: This article attempts to disclose how the policies and the implementation of policies of global drive to increase access and use of AT for making reasonable adjustments and creating prefectural regulations were formulated in Oita the ROC and the PRC were related. This people with ID. supportive environments in the workplace. and reveal the importance of the process. Oita, comparison illustrates how traditional Chinese  Individuals who are employed and experience located in the southern part of Japan, society has adjusted to modern western job satisfaction can experience positive formulated regulations for people with influences in the area of intellectual disability IDD Artmaking in Canada outcomes to quality of life (QOL). Research on disabilities on April 1, 2016. The characteristics policy and practice and how such adjustment Alexandra Katherine Duncan job satisfaction (JS), however, is sparse in of these regulations established the individual’s works. people with disabilities. We examined QOL and right to sex, love, marriage, pregnancy and child Conclusion: This study helps international Aim: To identify what opportunities for JS in adults with ASD participating in a rearing for people with disabilities. These rights audiences to better understand and make professional artmaking exist for Canadians with supported employment program. are included in Article 23 of the ‘Respect for inferences from a historical context about intellectual and developmental disabilities Method: Participants were males with ASD and Home and the Family’ in the ‘Convention of the issues related to people with intellectual (IDD), and to identify what ways professional their co-workers who completed the Minnesota Rights of Persons with Disabilities’. disabilities in China. artmaking benefits IDD Canadians. Satisfaction Questionnaire and the WHO Quality Method: Interviews were held with three  Method: Focus groups and unstructured open of Life - BREF in a longitudinal, mixed method members participating in the ongoing interviews with IDD artists as well as staff at study. movement for the advancement of people with Achieving Inclusive Societies and Sustainable Canadian art organizations for disabled artists, Results: JS was higher in participants with ASD disabilities. The study was approved by the Development for People with Intellectual or and parents of disabled artists. than their coworkers but decreased slightly over ethics committee of Tokyo Kasei University. Developmental Disabilities using Assistive Results: While opportunities do exist in Canada time. QOL remained stable over time. JS and Results: The movement of formulating the Technology for IDD individuals to work as practising artists QOL were not significantly correlated. prefectural regulations arose from the long- John Owuor, Fiona Larkan through the support of organizations for

42 43 Conclusion: We identified a relatively high but Redesigning Forensic Services for People with use AAC and shop independently, and the Method: 90 people with IDD completed a decreasing level of JS in adults with ASD in a Intellectual Disabilities impact of retail customer communication questionnaire on verbal violence. supported employment program. QOL John Rose, Gemma Unwin experiences. Results: The results showed that the level of remained stable over the same time period, but Method: Grounded theory analysis of data exposure to verbal violence was significantly qualitative reports were supportive of the Aim: To develop best practice obtained from individual interviews with higher in both CLA and in residential settings program. Further, work is required to unpack recommendations for a new service for adults customers who use AAC and with retail than for those who live with family. No gender relationships between work and QOL in adults with intellectual disabilities (ID) with forensic customer service staff. differences were found. Peers were reported as with ASD. needs in an organisation formed by four Results: People using AAC need time to the most common (44%) perpetrators who used  services merging. communicate with customer service staff and verbal violence against people with IDD. Method: Information was collected on the need to be listened to. However, the onus often Conclusion: To reduce verbal violence in CLA Predictors of Family Quality of Life for Families numbers of people who needed a forensic remains with customers to engage with retail and residential settings, intervention programs of Children with Intellectual Disabilities service, the nature of their difficulties and staff and explain their communication needs. should include both staff and residents. Preethy Samuel current support. Twenty-one professionals and Poor retailer communication is common,  four service users were consulted through leaving customers feeling misunderstood, Aim: A systematic understanding of the factors individual interview or participation in focus patronised and needing to protect themselves. Accessibility for Individuals with Disabilities in influencing the families of children with groups and asked for their views on service Retailers who are properly engaged and helpful Banda Aceh District Post Earthquake and intellectual/ developmental disabilities (I/DD) development. in communication with customers with CCN Tsunami 2004 can lead to family empowerment and therefore Results: 144 potential service users with ID elicit loyalty from those customers and Harri Santoso, Zainal Abidin Soeradja improved well-being of the child. The purpose were identified, 55 of whom were placed in contribute to their feelings of social inclusion. of this study was to describe the family quality secure placements out of the local area. Staff Conclusion: Communication by retailers is Aim: Good accessibility to buildings for disabled of life (FQOL) of children with I/DD and to and service users all supported the critical to feelings of inclusion in the shopping individuals is of importance in removing barriers identify the FQOL predictors. development of a local specialist community environment by customers with CCN who use and promoting opportunities. It has been 12 Method: Cross-sectional survey data collected forensic service for adults with ID. Service users AAC, with or without IDD. Barriers exist for years since the earthquake and tsunami hit from 45 family caregivers was analyzed at a who participated expressed that, where customers and exclusion is experienced. Aceh, Indonesia. Banda Aceh was one of the univariate, bivariate, and multivariate level. possible, community placements were better Strategies to improve retailer awareness are cities affected by the disaster. This study Results: The domain with the highest levels of than inpatient settings. Additionally, service discussed, and consideration is given to focuses on Banda Aceh to examine the extent of attainment and satisfaction was Values users spoke of the importance of establishing mechanisms to better protect and support the accessibility of buildings for those with (M=4.02, SD=.69), while the lowest ranked long term positive relationships with staff. customers who value their independence when disabilities as part of local government's domain was Informal Supports (M=3.02, Conclusion: The money currently used to shopping. commitment to create inclusive cities. SD=.97). Approximately 68% of the variance in provide out of area placements could be  Method: The data was collected through global FQOL could be explained by a seven- reinvested to develop local community observations of the individuals with disabilities factor model (F [7, 35]=13.87, p <.001], with residential provision. It was also recommended Verbal Violence Towards People with and the use of the Accessibility Evaluation Scale. three significant predictors: the domains of that a team be developed with the goal of Intellectual Developmental Disabilities The study was conducted on 81 buildings. informal supports (β=.43, p <.01), family increasing local forensic services to people with Nirit Karni-Vizer Results: The results showed that the availability relationships, (β=.36, p<.01), and the level of ID by providing consultancy to external agencies of accessibility elements on the building of adaptive functioning of the child with DD and support and advice to other professionals. Aim: Violence is reported to be a barrier that hospitals and clinics are categorised as low. In (β=.30, p<.01).  prevents the social inclusion of people with public service buildings, markets, and public Conclusion: Findings indicate the need to Intellectual Developmental Disabilities (IDD) in facilities, accessibility is very low. Furthermore, educate families on the importance of Perceptions of Retail Customer Service the community. The aims of the study were: to standardization of market buildings is low. strengthening their informal support networks Communication with Customers with Complex examine the extent to which people with IDD However, public service buildings, hospitals, and and relationships within the family in addition Communication Needs (CCN) who use experience verbal violence; determine whether pharmacies rated high on accessibility. The to investing in child-centered interventions to Augmentative and Alternative Communication there is a gender difference in who experiences availability and accessibility of buildings for improve the adaptive skills of their children with Systems (AAC). verbal violence; identify the common person with disabilities do not correspond to I/DD. Susan Elizabeth Taylor, Erin E Wilson, Kevin perpetrators of verbal violence against people people’s understanding of accessibility. Finally,  Murfitt, Susan Balandin with IDD; and understand how the issue of some of the existing facilities had changed verbal violence is addressed in three residential functions, such as landfills, parking areas, and Aim: To find evidence of retailers’ inclusion of settings — community living arrangement (CLA), special track for wheelchair users etc. customers with CCN, with or without IDD, who residential, and living with family.

44 45 Conclusion: We identified a relatively high but Redesigning Forensic Services for People with use AAC and shop independently, and the Method: 90 people with IDD completed a decreasing level of JS in adults with ASD in a Intellectual Disabilities impact of retail customer communication questionnaire on verbal violence. supported employment program. QOL John Rose, Gemma Unwin experiences. Results: The results showed that the level of remained stable over the same time period, but Method: Grounded theory analysis of data exposure to verbal violence was significantly qualitative reports were supportive of the Aim: To develop best practice obtained from individual interviews with higher in both CLA and in residential settings program. Further, work is required to unpack recommendations for a new service for adults customers who use AAC and with retail than for those who live with family. No gender relationships between work and QOL in adults with intellectual disabilities (ID) with forensic customer service staff. differences were found. Peers were reported as with ASD. needs in an organisation formed by four Results: People using AAC need time to the most common (44%) perpetrators who used  services merging. communicate with customer service staff and verbal violence against people with IDD. Method: Information was collected on the need to be listened to. However, the onus often Conclusion: To reduce verbal violence in CLA Predictors of Family Quality of Life for Families numbers of people who needed a forensic remains with customers to engage with retail and residential settings, intervention programs of Children with Intellectual Disabilities service, the nature of their difficulties and staff and explain their communication needs. should include both staff and residents. Preethy Samuel current support. Twenty-one professionals and Poor retailer communication is common,  four service users were consulted through leaving customers feeling misunderstood, Aim: A systematic understanding of the factors individual interview or participation in focus patronised and needing to protect themselves. Accessibility for Individuals with Disabilities in influencing the families of children with groups and asked for their views on service Retailers who are properly engaged and helpful Banda Aceh District Post Earthquake and intellectual/ developmental disabilities (I/DD) development. in communication with customers with CCN Tsunami 2004 can lead to family empowerment and therefore Results: 144 potential service users with ID elicit loyalty from those customers and Harri Santoso, Zainal Abidin Soeradja improved well-being of the child. The purpose were identified, 55 of whom were placed in contribute to their feelings of social inclusion. of this study was to describe the family quality secure placements out of the local area. Staff Conclusion: Communication by retailers is Aim: Good accessibility to buildings for disabled of life (FQOL) of children with I/DD and to and service users all supported the critical to feelings of inclusion in the shopping individuals is of importance in removing barriers identify the FQOL predictors. development of a local specialist community environment by customers with CCN who use and promoting opportunities. It has been 12 Method: Cross-sectional survey data collected forensic service for adults with ID. Service users AAC, with or without IDD. Barriers exist for years since the earthquake and tsunami hit from 45 family caregivers was analyzed at a who participated expressed that, where customers and exclusion is experienced. Aceh, Indonesia. Banda Aceh was one of the univariate, bivariate, and multivariate level. possible, community placements were better Strategies to improve retailer awareness are cities affected by the disaster. This study Results: The domain with the highest levels of than inpatient settings. Additionally, service discussed, and consideration is given to focuses on Banda Aceh to examine the extent of attainment and satisfaction was Values users spoke of the importance of establishing mechanisms to better protect and support the accessibility of buildings for those with (M=4.02, SD=.69), while the lowest ranked long term positive relationships with staff. customers who value their independence when disabilities as part of local government's domain was Informal Supports (M=3.02, Conclusion: The money currently used to shopping. commitment to create inclusive cities. SD=.97). Approximately 68% of the variance in provide out of area placements could be  Method: The data was collected through global FQOL could be explained by a seven- reinvested to develop local community observations of the individuals with disabilities factor model (F [7, 35]=13.87, p <.001], with residential provision. It was also recommended Verbal Violence Towards People with and the use of the Accessibility Evaluation Scale. three significant predictors: the domains of that a team be developed with the goal of Intellectual Developmental Disabilities The study was conducted on 81 buildings. informal supports (β=.43, p <.01), family increasing local forensic services to people with Nirit Karni-Vizer Results: The results showed that the availability relationships, (β=.36, p<.01), and the level of ID by providing consultancy to external agencies of accessibility elements on the building of adaptive functioning of the child with DD and support and advice to other professionals. Aim: Violence is reported to be a barrier that hospitals and clinics are categorised as low. In (β=.30, p<.01).  prevents the social inclusion of people with public service buildings, markets, and public Conclusion: Findings indicate the need to Intellectual Developmental Disabilities (IDD) in facilities, accessibility is very low. Furthermore, educate families on the importance of Perceptions of Retail Customer Service the community. The aims of the study were: to standardization of market buildings is low. strengthening their informal support networks Communication with Customers with Complex examine the extent to which people with IDD However, public service buildings, hospitals, and and relationships within the family in addition Communication Needs (CCN) who use experience verbal violence; determine whether pharmacies rated high on accessibility. The to investing in child-centered interventions to Augmentative and Alternative Communication there is a gender difference in who experiences availability and accessibility of buildings for improve the adaptive skills of their children with Systems (AAC). verbal violence; identify the common person with disabilities do not correspond to I/DD. Susan Elizabeth Taylor, Erin E Wilson, Kevin perpetrators of verbal violence against people people’s understanding of accessibility. Finally,  Murfitt, Susan Balandin with IDD; and understand how the issue of some of the existing facilities had changed verbal violence is addressed in three residential functions, such as landfills, parking areas, and Aim: To find evidence of retailers’ inclusion of settings — community living arrangement (CLA), special track for wheelchair users etc. customers with CCN, with or without IDD, who residential, and living with family.

44 45 Conclusion: There is still considerable work to Results: Relationships between members were the organization. Data was collected through gradually been incorporated into IDD research be done to create inclusive cities through rated to be more important than all other facets multiple interviews, in different settings, and and practice. Three important initiatives based accessibility. of family life, excluding health. Families enjoyed analysed using the concurrent processes of on QOL work have gained increasing attention:  good relationships with each other and made constant comparative analysis; data collection, a supportive education model, a self- effort in maintaining and improving these theoretical sampling and memo writing. The determination curriculum, and supported Family Quality of Life of Adults with ID in relationships. Support from disability related study found that for people with intellectual employment with IDD. The supportive Singapore services was rated to be “quite important”, disability maintaining control in environments education model emphasizes three elements Dalvin Jit Kaur Sidhu, Kenneth Poon families perceived only of a limited degree of that are controlling of them emerged as the for students with IDD: expressing needs and their needs to be met. Families also highlighted main issue of concern. They responded to this hopes/dreams, internalizing needs and wishes Aim: The rise of an inclusive community living only being only able to interact with people and control by “aligning with the flow of control”. for self-determination through goal setting and means that there is an increasing emphasis on places in their community to a small degree The theory demonstrates that, when being told decision making, and enabling self-advocacy family to take on the responsibility for caring for despite perceiving it to be important. what to do, these adults frame control, through an individual support plan based on their child with special needs. Inevitably, Conclusion: The findings from this research are emotionally connect and adjust in compliance self-determination. The second initiative relates disability affects the whole family. This research useful for service providers and policy makers within the boundaries of what they are actually to the development of a self-determination presented findings pertaining to the quality of to gain a better understanding into the family doing. curriculum for all special education schools family life. life of adults with ID. It can be used to explore Contribution: In illuminating the significance of serving students with IDD. The new curriculum Method: 165 Singaporean main caregivers of and ultimately improve the quality of life of participants’ self-reports and experiences of reflects a shift of curricular focus from academic adults with intellectual disability completed the adults with ID and their families. control over their life choices, this paper subject matters to functional skills, with one of FQOLS-2006 and WHODAS 2.0.  contributes to understanding of the choice the major educational objectives being behaviour of adults with intellectual disabilities. promotion of self-determination skills for  students with IDD. The third initiative relates to ORAL PRESENTATIONS – NEW CONCEPTUALIZATION OR THEORY the development of Policy and Practice in field The Study and Practice of Quality of Life and of Supported employment for Person with IDD Fitness to Plead: Scientific Aids to Promote interpreting behaviour and non- verbal Support Systems for People with IDD in China in China. Inclusion communications can promote interaction Jiacheng Xu, Robert L. Schalock, Mian Wang Contribution: More and more people with IDD Victor Makupa between people with mental disabilities and the began to undertake work in their community court. This would allow the process of fitness to Description: The concept of QOL was using their support systems, which consisted of Description: Most common-law jurisdictions plead to develop into an occasion for their introduced to the field of Intellectual and parents, job coaches, and social workers. have a criminal trial process that provides for inclusion in criminal trial processes and would Developmental in the mid-  determination of fitness to stand trial of an promote effective justice on an equal basis to 1990s by Robert Schalock. The QOL concept has accused person whose mental capacity is others. questioned. Medical practitioners are often  used as expert witnesses to ascertain this. The ORAL PRESENTATIONS -- VIGNETTE (CASE EXAMPLE) outcome of this is usually exclusion of such Aligning with the Flow of Control: A Classic persons with mental disabilities from the trial Grounded Theory Study of Choice and Control Pathways to Inclusion oversight of the Forensic Disability Service to process, yet the decision-making capacity of in the Lives of People with Intellectual Vanda Anne Wieczorkowski ensure the proper administration of the Act. A anyone may naturally vary and depends on Disabilities legislative five-year review process was several factors. It may also lead to involuntary Eileen Carey Description: The Forensic Disability Act 2011 undertaken by the Director of Forensic detentions by the court. However, instead of legislates the operation of the Forensic Disability in 2016-17 to review benefit for being used as expert witnesses to determine Description: This paper reports a grounded Disability Service in Queensland, Australia. The clients from the care and support provided by whether someone can stand trial or not, theory of “aligning with the flow of control” Forensic Disability Service is a medium secure the forensic disability service. medical practitioners may actually be used to developed in response to the research question facility funded to support up to ten individuals Contribution: This presentation outlined how bridge the gap that arises due to that person’s of how adults labelled with the term intellectual with intellectual disability subject to a Forensic clients with intellectual disability are assessed disability. disability make choices. Data was gathered Disability Order to achieve rehabilitative and for the forensic disability service, and how Contribution: Thus, the medical profession can from a single intellectual disability service in the habilitative goals and transition back to their treatment pathways are developed to account help the court to promote their participation in Republic of Ireland. Participants consisted of communities. The Forensic Disability Act also for individual client learning styles and best court on an equal basis to non- disabled people. twelve adults who were attending day services created the independent statutory position of practice support models. It also considered the Put simply, the medical and psychiatry skills of and accessing a variety of other services within the Director of Forensic Disability who has complexities involved in transitioning clients

46 47 Conclusion: There is still considerable work to Results: Relationships between members were the organization. Data was collected through gradually been incorporated into IDD research be done to create inclusive cities through rated to be more important than all other facets multiple interviews, in different settings, and and practice. Three important initiatives based accessibility. of family life, excluding health. Families enjoyed analysed using the concurrent processes of on QOL work have gained increasing attention:  good relationships with each other and made constant comparative analysis; data collection, a supportive education model, a self- effort in maintaining and improving these theoretical sampling and memo writing. The determination curriculum, and supported Family Quality of Life of Adults with ID in relationships. Support from disability related study found that for people with intellectual employment with IDD. The supportive Singapore services was rated to be “quite important”, disability maintaining control in environments education model emphasizes three elements Dalvin Jit Kaur Sidhu, Kenneth Poon families perceived only of a limited degree of that are controlling of them emerged as the for students with IDD: expressing needs and their needs to be met. Families also highlighted main issue of concern. They responded to this hopes/dreams, internalizing needs and wishes Aim: The rise of an inclusive community living only being only able to interact with people and control by “aligning with the flow of control”. for self-determination through goal setting and means that there is an increasing emphasis on places in their community to a small degree The theory demonstrates that, when being told decision making, and enabling self-advocacy family to take on the responsibility for caring for despite perceiving it to be important. what to do, these adults frame control, through an individual support plan based on their child with special needs. Inevitably, Conclusion: The findings from this research are emotionally connect and adjust in compliance self-determination. The second initiative relates disability affects the whole family. This research useful for service providers and policy makers within the boundaries of what they are actually to the development of a self-determination presented findings pertaining to the quality of to gain a better understanding into the family doing. curriculum for all special education schools family life. life of adults with ID. It can be used to explore Contribution: In illuminating the significance of serving students with IDD. The new curriculum Method: 165 Singaporean main caregivers of and ultimately improve the quality of life of participants’ self-reports and experiences of reflects a shift of curricular focus from academic adults with intellectual disability completed the adults with ID and their families. control over their life choices, this paper subject matters to functional skills, with one of FQOLS-2006 and WHODAS 2.0.  contributes to understanding of the choice the major educational objectives being behaviour of adults with intellectual disabilities. promotion of self-determination skills for  students with IDD. The third initiative relates to ORAL PRESENTATIONS – NEW CONCEPTUALIZATION OR THEORY the development of Policy and Practice in field The Study and Practice of Quality of Life and of Supported employment for Person with IDD Fitness to Plead: Scientific Aids to Promote interpreting behaviour and non- verbal Support Systems for People with IDD in China in China. Inclusion communications can promote interaction Jiacheng Xu, Robert L. Schalock, Mian Wang Contribution: More and more people with IDD Victor Makupa between people with mental disabilities and the began to undertake work in their community court. This would allow the process of fitness to Description: The concept of QOL was using their support systems, which consisted of Description: Most common-law jurisdictions plead to develop into an occasion for their introduced to the field of Intellectual and parents, job coaches, and social workers. have a criminal trial process that provides for inclusion in criminal trial processes and would Developmental Disability in China in the mid-  determination of fitness to stand trial of an promote effective justice on an equal basis to 1990s by Robert Schalock. The QOL concept has accused person whose mental capacity is others. questioned. Medical practitioners are often  used as expert witnesses to ascertain this. The ORAL PRESENTATIONS -- VIGNETTE (CASE EXAMPLE) outcome of this is usually exclusion of such Aligning with the Flow of Control: A Classic persons with mental disabilities from the trial Grounded Theory Study of Choice and Control Pathways to Inclusion oversight of the Forensic Disability Service to process, yet the decision-making capacity of in the Lives of People with Intellectual Vanda Anne Wieczorkowski ensure the proper administration of the Act. A anyone may naturally vary and depends on Disabilities legislative five-year review process was several factors. It may also lead to involuntary Eileen Carey Description: The Forensic Disability Act 2011 undertaken by the Director of Forensic detentions by the court. However, instead of legislates the operation of the Forensic Disability in 2016-17 to review benefit for being used as expert witnesses to determine Description: This paper reports a grounded Disability Service in Queensland, Australia. The clients from the care and support provided by whether someone can stand trial or not, theory of “aligning with the flow of control” Forensic Disability Service is a medium secure the forensic disability service. medical practitioners may actually be used to developed in response to the research question facility funded to support up to ten individuals Contribution: This presentation outlined how bridge the gap that arises due to that person’s of how adults labelled with the term intellectual with intellectual disability subject to a Forensic clients with intellectual disability are assessed disability. disability make choices. Data was gathered Disability Order to achieve rehabilitative and for the forensic disability service, and how Contribution: Thus, the medical profession can from a single intellectual disability service in the habilitative goals and transition back to their treatment pathways are developed to account help the court to promote their participation in Republic of Ireland. Participants consisted of communities. The Forensic Disability Act also for individual client learning styles and best court on an equal basis to non- disabled people. twelve adults who were attending day services created the independent statutory position of practice support models. It also considered the Put simply, the medical and psychiatry skills of and accessing a variety of other services within the Director of Forensic Disability who has complexities involved in transitioning clients

46 47 with an intellectual disability from the service to about myself through reflecting and sharing implications for the more than half a million might be resolved by instituting aural alternative community arrangements. The information about my life. institutionalized people with disabilities in rehabilitation programs. presentation considered more broadly the Conclusion: I learned to be confident as a Japan.  implications for forensic disability clients in the President in a progressive manner when  justice and health systems and the lack of opportunity and support was provided. I believe Employment of People with Intellectual adapted programs, services and we need to learn and work together with family Importance of Aural Rehabilitation in Disabilities: Insights of Inclusive Research accommodation options available for this and practitioners as a team, in order to achieve Management of Conduct Problems in an Bruce O'Brien, Sarah Wagstaff cohort. Findings from the Director of Forensic better understanding among ourselves as we Individual with Intellectual Disability: A Case Disabilities five-year review were considered in move forward in creating a stronger voice for Report Description: The Centre for Disability Studies, relation to future best practice service delivery people with developmental disabilities. Ansari Mohammad Shamim an affiliate of The University of Sydney, runs an and how people with intellectual disability and  Inclusive Research Network (IRN) made up of forensic needs can be more effectively Aim: Individuals with intellectual disability (ID) university researchers, support workers and supported to access these services and Sagamihara Tragedy and Challenges of frequently exhibit behavioural and speech- people with an intellectual disability. This group participate in their communities. The Community Living language problems. These problems are has met monthly since 2010. In 2015, the IRN presentation outlined how a service such as the Osamu Nagase accentuated further in the presence of conducted research into the experiences of Forensic Disability Service can assist the Justice additional hearing disabilities (HD). About 24% people with intellectual disability through and health systems to provide clients with Description: On 26 July 2016, 19 people with of those with ID have an additional hearing various aspects of the UNCRPD. Its findings intellectual disability and forensic needs with intellectual disabilities were tragically killed at a disability, which can have a cascading effect on suggest that training, building relationships and targeted rehabilitation and habilitation residential institution in Sagamihara City, Japan. their psychosocial behaviour and access are important for Australians with programs. In addition, the presentation The suspect was a former employee of this communication. However, the appropriate intellectual disability participating in considered the tension between how these facility. The court proceedings have not yet treatment for HD improves the capability for employment. People with disabilities in services and the rights of individuals with begun, and the full story of this horrendous communication, which reduces the negative Australia earn, on average, approximately 44% intellectual disability must be framed within a crime is yet to emerge. This presentation psychological and social consequences. Thus, of the income of people without disabilities, climate of community safeguards. focused on one key issue that emerges from management of HD in people with ID is and 50% live in relative poverty. Employment  this tragedy, namely, the right to choose where important in order to optimize their increases the quality of life of people with one lives, especially the right to choose development. disabilities, and provides other benefits. Bruce The Role of Self Advocacy in My Life as between institutional and community living. To Method: We presented a single case study of a O’Brien has worked at The Centre for Disability President of a Self-Advocacy Organization begin, we need to ask why those killed were 17-year-old adolescent with ID (Moderate) and Studies for 19 years. He has been a member of Felicia Yann Yann Fang, Jee Ching Pang living in the institution. These victims remain severe HD, who also has a severe degree of the IRN since 2012, and has an intellectual nameless and faceless, as the police have aggressive behaviour diagnosed at the age of 3 disability. Aim: Self-advocacy has played an important refused to release their names to respect the years. At age 15, this adolescent had been Contribution: Using the IRN’s findings on role in my life, as a young adult with wishes of the surviving family members. Now reported with a complaint of behavioural issues. employment as a framework, this session developmental disabilities (DD). This study the major focus of a public debate is the future The child did not use the hearing aid until now, presented a case study of Bruce’s continuing aimed to share my experience as a President in living arrangements of surviving residents with as parents believed that the child was having training as a researcher, thereby contributing a self-advocacy organisation. disabilities, who are temporarily accommodated behavioral problems due to intellectual the voices of people with intellectual disability Method: A personal reflection was conducted in various other institutions. Family members disability. to discussions regarding successful living within with guided questions on the topics of self- have requested the renovation of the Results: A systematic aural rehabilitation communities advocacy and leadership. I was given the residential institution with the same capacity of program was implemented and hearing aids  opportunity to reflect about my life and speak more than 150 residents. However, this request were provided to the adolescent. The parents about my leadership role. needs to be considered in the context of article and carers were counselled to communicate The Key Factors for Improving QWL (Quality of Results: Self-advocacy has helped me to be 19 of the CRPD, which ensures that people with with the child as much as possible. Working Life) for People with Disabilities in confident to take on the role as President. It disabilities “have the opportunity to choose Conclusion: After the successful use of the Work Continuance Support B Type Office in was tough in the beginning because I did not their place of residence and where and with hearing aid the frequency of behavioural Japan through the “Temil Project” and know how to be a leader and was not trained. whom they live.” problems were reduced considerably. The child “Equalto Project” Through training, opportunity and support, I Contribution: Although arising from tragedy, remained engaged for longer when watching his Ayaka Nakao, Hiroo Funaya learned to lead. The role of self-advocacy the important issue of the right of choice of favourite cartoon and television shows. This becomes increasingly prominent as I learn where to live is being debated in Japan. The suggested that behavioural issues in ID may be Aim: In Japan, there are about 9,000 B Type outcome of this debate may have far-reaching exaggerated in the presence of HD but that it Offices. These are sheltered workshops, which

48 49 with an intellectual disability from the service to about myself through reflecting and sharing implications for the more than half a million might be resolved by instituting aural alternative community arrangements. The information about my life. institutionalized people with disabilities in rehabilitation programs. presentation considered more broadly the Conclusion: I learned to be confident as a Japan.  implications for forensic disability clients in the President in a progressive manner when  justice and health systems and the lack of opportunity and support was provided. I believe Employment of People with Intellectual adapted programs, services and we need to learn and work together with family Importance of Aural Rehabilitation in Disabilities: Insights of Inclusive Research accommodation options available for this and practitioners as a team, in order to achieve Management of Conduct Problems in an Bruce O'Brien, Sarah Wagstaff cohort. Findings from the Director of Forensic better understanding among ourselves as we Individual with Intellectual Disability: A Case Disabilities five-year review were considered in move forward in creating a stronger voice for Report Description: The Centre for Disability Studies, relation to future best practice service delivery people with developmental disabilities. Ansari Mohammad Shamim an affiliate of The University of Sydney, runs an and how people with intellectual disability and  Inclusive Research Network (IRN) made up of forensic needs can be more effectively Aim: Individuals with intellectual disability (ID) university researchers, support workers and supported to access these services and Sagamihara Tragedy and Challenges of frequently exhibit behavioural and speech- people with an intellectual disability. This group participate in their communities. The Community Living language problems. These problems are has met monthly since 2010. In 2015, the IRN presentation outlined how a service such as the Osamu Nagase accentuated further in the presence of conducted research into the experiences of Forensic Disability Service can assist the Justice additional hearing disabilities (HD). About 24% people with intellectual disability through and health systems to provide clients with Description: On 26 July 2016, 19 people with of those with ID have an additional hearing various aspects of the UNCRPD. Its findings intellectual disability and forensic needs with intellectual disabilities were tragically killed at a disability, which can have a cascading effect on suggest that training, building relationships and targeted rehabilitation and habilitation residential institution in Sagamihara City, Japan. their psychosocial behaviour and access are important for Australians with programs. In addition, the presentation The suspect was a former employee of this communication. However, the appropriate intellectual disability participating in considered the tension between how these facility. The court proceedings have not yet treatment for HD improves the capability for employment. People with disabilities in services and the rights of individuals with begun, and the full story of this horrendous communication, which reduces the negative Australia earn, on average, approximately 44% intellectual disability must be framed within a crime is yet to emerge. This presentation psychological and social consequences. Thus, of the income of people without disabilities, climate of community safeguards. focused on one key issue that emerges from management of HD in people with ID is and 50% live in relative poverty. Employment  this tragedy, namely, the right to choose where important in order to optimize their increases the quality of life of people with one lives, especially the right to choose development. disabilities, and provides other benefits. Bruce The Role of Self Advocacy in My Life as between institutional and community living. To Method: We presented a single case study of a O’Brien has worked at The Centre for Disability President of a Self-Advocacy Organization begin, we need to ask why those killed were 17-year-old adolescent with ID (Moderate) and Studies for 19 years. He has been a member of Felicia Yann Yann Fang, Jee Ching Pang living in the institution. These victims remain severe HD, who also has a severe degree of the IRN since 2012, and has an intellectual nameless and faceless, as the police have aggressive behaviour diagnosed at the age of 3 disability. Aim: Self-advocacy has played an important refused to release their names to respect the years. At age 15, this adolescent had been Contribution: Using the IRN’s findings on role in my life, as a young adult with wishes of the surviving family members. Now reported with a complaint of behavioural issues. employment as a framework, this session developmental disabilities (DD). This study the major focus of a public debate is the future The child did not use the hearing aid until now, presented a case study of Bruce’s continuing aimed to share my experience as a President in living arrangements of surviving residents with as parents believed that the child was having training as a researcher, thereby contributing a self-advocacy organisation. disabilities, who are temporarily accommodated behavioral problems due to intellectual the voices of people with intellectual disability Method: A personal reflection was conducted in various other institutions. Family members disability. to discussions regarding successful living within with guided questions on the topics of self- have requested the renovation of the Results: A systematic aural rehabilitation communities advocacy and leadership. I was given the residential institution with the same capacity of program was implemented and hearing aids  opportunity to reflect about my life and speak more than 150 residents. However, this request were provided to the adolescent. The parents about my leadership role. needs to be considered in the context of article and carers were counselled to communicate The Key Factors for Improving QWL (Quality of Results: Self-advocacy has helped me to be 19 of the CRPD, which ensures that people with with the child as much as possible. Working Life) for People with Disabilities in confident to take on the role as President. It disabilities “have the opportunity to choose Conclusion: After the successful use of the Work Continuance Support B Type Office in was tough in the beginning because I did not their place of residence and where and with hearing aid the frequency of behavioural Japan through the “Temil Project” and know how to be a leader and was not trained. whom they live.” problems were reduced considerably. The child “Equalto Project” Through training, opportunity and support, I Contribution: Although arising from tragedy, remained engaged for longer when watching his Ayaka Nakao, Hiroo Funaya learned to lead. The role of self-advocacy the important issue of the right of choice of favourite cartoon and television shows. This becomes increasingly prominent as I learn where to live is being debated in Japan. The suggested that behavioural issues in ID may be Aim: In Japan, there are about 9,000 B Type outcome of this debate may have far-reaching exaggerated in the presence of HD but that it Offices. These are sheltered workshops, which

48 49 roughly 100,000 individuals with intellectual After attending work preparation training for 7 POSTER PRESENTATIONS -- RESEARCH REPORT disabilities use and work. “Temil Project” and years, I learned about self-advocacy. Through “equal to Project” are countrywide projects, training, I learned to control my behaviour and Factors Associated with Religious Community Longitudinal Profiles of Social Communication which aim to improve QWL and wages of those emotion. I became increasingly confident, and Involvement for Mothers of Children with in Fragile X Syndrome, Down Syndrome, and in the offices by working with various experts. am happy to work now. Autism Autism Spectrum Disorder This study will examine both projects from the Conclusion: Self-advocacy is important in Naomi Ekas Molly Losh, Lauren Bush, Michelle Lee, Jamie factor structure of QWL. enabling me to achieve what I want. When I Barstein, Gary E. Martin Method: This case study is an action research spoke up I was able to get my job. I hope to be Aim: One factor that is associated with study. The authors have been members of both more independent. I also hope other people increased life satisfaction and positive affect Aim: This study examined longitudinal profiles projects for years. This study analyzes data on with development disabilities will be among mothers of children with autism of social communication (i.e. pragmatic authors’ activity using recordings, interviews, independent and able to get a job. spectrum disorder (ASD) is religion/spirituality. language) across standardized and more questionnaires, and documents from the staff in  However, involvement in organized religious naturalistic measures, across three genetic the offices. activities was associated with increased conditions that cause intellectual disability and Results: Both projects focus on “individual’s Dealing with Decision-Making and Different negative outcomes. One reason is that parents impact pragmatic skills: fragile X syndrome decent jobs” and create environments where Opinions in a Self-Advocacy Group from may feel their religious community is (FXS), Down syndrome (DS), and autism individuals with disabilities feel motivated to Sweden unsupportive of their child’s needs. Or, spectrum disorder (ASD). work. Working with various experts allows the Erik Dahlman, Ulrika Dahlgren, Susan Korsman characteristics of the parent, such as difficulties Method: Participants included 99 children with offices to obtain special skills and knowledge, in social interaction, may contribute to difficulty FXS (56 male, 43 female), 42 children with DS and to make high quality products. This leads to Description: This presentation aimed to share seeking or receiving support from members of (20 male, 22 female), and 24 children with ASD the increase of self-confidence and decent jobs. experiences of a self-advocacy group for people the congregation. (male only), as well as 34 mental-age matched Furthermore, products can be sold at higher with (ID). Views and examples from both self- Method: Participants consisted of 73 Christian typically developing controls (19 male, 15 prices than those previously made. advocates and advisors were presented. The mothers of a child with ASD. A well-validated female). A battery of four different standardized Conclusion: Sales channels must be developed group started in 2011. The focus was to learn measure of perceptions of negative interactions and semi-naturalistic tasks was applied across while taking into account the offices’ low how to use the services provided in society, gain with the religious community was used. multiple time points to capture a range of productivity. To eliminate discrimination against new experiences and make new contacts Maternal characteristics were assessed using pragmatic language skills (e.g., handling them and to sell the products in the open available. Experiences and impressions have the Broad Autism Phenotype Questionnaire communication breakdowns, initiating and market, it is necessary to promote and raise been continuously recorded and reflected upon. (BAPQ) and child characteristics were measured maintaining appropriate topics). public awareness to create a society that is The group has 15 regular members (4 women, using the Social Responsiveness Scale (SRS). Results: Covarying for mental age and structural mature and accepting. 11 men, average age of 33) and about 5-10 who Results: Higher BAP was associated with language, clinical groups still demonstrated  show up more irregularly. The group sets a increased negative interactions with members delayed developmental trajectories relative to schedule for every semester with different of the religious community, B = .46, p = .023. controls (p values < .05), but showed variable Self-Advocacy and My Work social activities and also chooses a few subjects Similarly, increased child ASD symptomatology rates of development relative across different Suet Ming Wong, Jee Ching Pang for workshops within the group. was associated with more negative interactions pragmatic contexts. Sex and autism Contribution: During the years, the process of within the religious community, B = .01, p = symptomatology impacted social Aim: Self-advocacy has played an important making decisions has changed. The group has .043. communication development in FXS, and areas role in my life as a young adult with enabled its members to feel accepted and Conclusion: Given the emphasis on social of overlap and difference between comorbid developmental disabilities (DD). This paper comfortable enough to make their opinions interaction and community building within the FXS and ASD and idiopathic ASD were observed. shared my work experience after I learned and heard within the group. But there is still Christian faith, mothers with BAP characteristics Conclusion: Findings demonstrate unique gained an understanding of self-advocacy. difficulties with setting the schedule and may have difficulty building relationships with developmental trajectories across three Method: A personal reflection was conducted keeping everyone satisfied, the self-advocates members of their religious community. genetically-based conditions associated with with guided questions on the topics of self- have different agendas and goals within the Moreover, the child’s behaviors may create intellectual disability. Delineating advocacy and my work. I was given opportunity group. Some self-advocates experience more additional difficulties. developmental profiles across group and sex to reflect about my life and speak about my comfort in expressing their opinions and in  may help tailor intervention approaches. work experience. decision-making in other contexts.  Results: Self-advocacy has helped me to be  confident to get a job in open employment.

50 51 roughly 100,000 individuals with intellectual After attending work preparation training for 7 POSTER PRESENTATIONS -- RESEARCH REPORT disabilities use and work. “Temil Project” and years, I learned about self-advocacy. Through “equal to Project” are countrywide projects, training, I learned to control my behaviour and Factors Associated with Religious Community Longitudinal Profiles of Social Communication which aim to improve QWL and wages of those emotion. I became increasingly confident, and Involvement for Mothers of Children with in Fragile X Syndrome, Down Syndrome, and in the offices by working with various experts. am happy to work now. Autism Autism Spectrum Disorder This study will examine both projects from the Conclusion: Self-advocacy is important in Naomi Ekas Molly Losh, Lauren Bush, Michelle Lee, Jamie factor structure of QWL. enabling me to achieve what I want. When I Barstein, Gary E. Martin Method: This case study is an action research spoke up I was able to get my job. I hope to be Aim: One factor that is associated with study. The authors have been members of both more independent. I also hope other people increased life satisfaction and positive affect Aim: This study examined longitudinal profiles projects for years. This study analyzes data on with development disabilities will be among mothers of children with autism of social communication (i.e. pragmatic authors’ activity using recordings, interviews, independent and able to get a job. spectrum disorder (ASD) is religion/spirituality. language) across standardized and more questionnaires, and documents from the staff in  However, involvement in organized religious naturalistic measures, across three genetic the offices. activities was associated with increased conditions that cause intellectual disability and Results: Both projects focus on “individual’s Dealing with Decision-Making and Different negative outcomes. One reason is that parents impact pragmatic skills: fragile X syndrome decent jobs” and create environments where Opinions in a Self-Advocacy Group from may feel their religious community is (FXS), Down syndrome (DS), and autism individuals with disabilities feel motivated to Sweden unsupportive of their child’s needs. Or, spectrum disorder (ASD). work. Working with various experts allows the Erik Dahlman, Ulrika Dahlgren, Susan Korsman characteristics of the parent, such as difficulties Method: Participants included 99 children with offices to obtain special skills and knowledge, in social interaction, may contribute to difficulty FXS (56 male, 43 female), 42 children with DS and to make high quality products. This leads to Description: This presentation aimed to share seeking or receiving support from members of (20 male, 22 female), and 24 children with ASD the increase of self-confidence and decent jobs. experiences of a self-advocacy group for people the congregation. (male only), as well as 34 mental-age matched Furthermore, products can be sold at higher with (ID). Views and examples from both self- Method: Participants consisted of 73 Christian typically developing controls (19 male, 15 prices than those previously made. advocates and advisors were presented. The mothers of a child with ASD. A well-validated female). A battery of four different standardized Conclusion: Sales channels must be developed group started in 2011. The focus was to learn measure of perceptions of negative interactions and semi-naturalistic tasks was applied across while taking into account the offices’ low how to use the services provided in society, gain with the religious community was used. multiple time points to capture a range of productivity. To eliminate discrimination against new experiences and make new contacts Maternal characteristics were assessed using pragmatic language skills (e.g., handling them and to sell the products in the open available. Experiences and impressions have the Broad Autism Phenotype Questionnaire communication breakdowns, initiating and market, it is necessary to promote and raise been continuously recorded and reflected upon. (BAPQ) and child characteristics were measured maintaining appropriate topics). public awareness to create a society that is The group has 15 regular members (4 women, using the Social Responsiveness Scale (SRS). Results: Covarying for mental age and structural mature and accepting. 11 men, average age of 33) and about 5-10 who Results: Higher BAP was associated with language, clinical groups still demonstrated  show up more irregularly. The group sets a increased negative interactions with members delayed developmental trajectories relative to schedule for every semester with different of the religious community, B = .46, p = .023. controls (p values < .05), but showed variable Self-Advocacy and My Work social activities and also chooses a few subjects Similarly, increased child ASD symptomatology rates of development relative across different Suet Ming Wong, Jee Ching Pang for workshops within the group. was associated with more negative interactions pragmatic contexts. Sex and autism Contribution: During the years, the process of within the religious community, B = .01, p = symptomatology impacted social Aim: Self-advocacy has played an important making decisions has changed. The group has .043. communication development in FXS, and areas role in my life as a young adult with enabled its members to feel accepted and Conclusion: Given the emphasis on social of overlap and difference between comorbid developmental disabilities (DD). This paper comfortable enough to make their opinions interaction and community building within the FXS and ASD and idiopathic ASD were observed. shared my work experience after I learned and heard within the group. But there is still Christian faith, mothers with BAP characteristics Conclusion: Findings demonstrate unique gained an understanding of self-advocacy. difficulties with setting the schedule and may have difficulty building relationships with developmental trajectories across three Method: A personal reflection was conducted keeping everyone satisfied, the self-advocates members of their religious community. genetically-based conditions associated with with guided questions on the topics of self- have different agendas and goals within the Moreover, the child’s behaviors may create intellectual disability. Delineating advocacy and my work. I was given opportunity group. Some self-advocates experience more additional difficulties. developmental profiles across group and sex to reflect about my life and speak about my comfort in expressing their opinions and in  may help tailor intervention approaches. work experience. decision-making in other contexts.  Results: Self-advocacy has helped me to be  confident to get a job in open employment.

50 51 Identifying Support Needs of Elderly Caregivers Vodafone Foundation Spain, to plan and groups or individuals. Tweets going beyond The Assessment of Quality of Life of People of Clients with Intellectual Disabilities in execute certain daily life activities of their these contexts were sparse and limited the with Intellectual Disabilities in Japan-using the Supported Employment Services in Singapore choice (e.g. baking, swimming or shopping) applicability of sentiment analyses in this Personal Outcomes Scale Melissa Teo, Jui Horng Tan, Zetty Akhtar Md independently. Participants were people with domain. Mizuho Tatsuta, Norimune Kawai, Michio Eizak, Esther Lim, Eunice Ho, Jamila Mustaffa mild, moderate, severe to profound levels of ID. Conclusion: Analysis of Twitter data is a novel Ushiyama Data were collected through use of in-depth way to assess societal attitudes towards people Aim: The expanding population of elderly face to face individual interviews and with ID and the effects of inclusion efforts and Aim: The purpose of this study was to examine parents who continue to care for their child participant observations. policies. Our findings indicated a derogatory the characteristics of quality of life (QOL) of with intellectual disabilities well into old age is a Results: Mefacilyta enabled participants to understanding and view of this population. Japanese adults with intellectual disabilities (ID) growing concern. The research aimed to assess achieve independence in some aspects of their  using the Personal Outcomes Scale (POS). the needs of elderly parents as caregivers and lives. Use of Mefacilyta or other assistive Method: 85 adults with ID and 27 support the perceived needs of their child with technologies by people with ID remains very Concepts of Job Satisfaction in People with workers participated in this study. Adults with intellectual disabilities. low, and requires well supported and motivated Intellectual Disability ID replied to the “self-report” of POS and Method: An interview was undertaken with 10 support staff. Andreas Kocman, Germain Weber support workers evaluated 85 adults with ID caregivers aged 65 years and above. The Conclusion: AT such as Mefacilyta enhances using the “report of others” of POS. An interviews focused on identifying elderly individualised interventions for users with ID, Aim: Although ample research on factors unpaired t-test was applied to evaluate the caregivers’ needs and the perceived needs of giving them some independence while at the contributing to job satisfaction in people with ID differences of POS scores between ID levels their child. Care plans were developed, in which same time ensuring their inclusion into societal exists, little is known about the subjective (severe ID and moderate to borderline ID) or caregivers’ and clients’ needs were prioritized. processes. There is need for expanded access to concept of job satisfaction in this population. work arrangements (X: close to regular work Results: Elderly caregivers expressed support such solutions for the benefit of all people with However, knowledge of conceptual conditions; Y: sheltered workshops). needs in several areas; social interaction and ID. understanding is essential to ensure value and Results: Personal Development (PD) domain emotional support were common themes.  applicability for job satisfaction research for this scores in the moderate to borderline ID group When discussing their child’s care plan, the population. Our study aimed to explore these were significantly higher than those of the need for their child to acquire Activities of Daily Twitter as a Means to Measure Attitudes concepts. severe ID group in both the “self-report” and Living Skills and functional academics were towards People with Intellectual Disability Method: We interviewed 129 people with mild the “report of others.” For work arrangements, pertinent concerns. Andreas Kocman, Germain Weber to moderate ID working in sheltered workshops the scores of PD domain for the moderate to Conclusion: Identifying the support needs of across Luxembourg. Using a structured mixed- borderline ID group who belonged to X were elderly caregivers, and developing appropriate Aim: Research on attitudes towards people with method approach, we assessed (a) the concept significantly higher than those of Y group in the care plans were important to provide the ID usually applies standardized questionnaires of job satisfaction and (b) their current job “report of others.” necessary support as they age. Emphasis was such as the Mental Retardation Attitude satisfaction using the Job In General Scale (JIGS) Conclusion: These findings provided empirical also given in training clients to be independent, Inventory (MRAI) or the Attitudes Toward as well as the Job Descriptive Index (JDI). knowledge of personal and environmental with the goal that they can be a support to their Intellectual Disability (ATTID). These approaches Results: Our data indicated sufficient factors that influence QOL of adults with ID. elderly parents. are, however, affected by social desirability and understanding of the term. Distinct groups of Other day arrangements should be included for  sampling effects. We proposed a new way of concepts were found, indicating a split between further analyses of QOL of adults with ID. measuring attitudes towards people with ID intrinsic and extrinsic concepts. Notably,  Assistive Technology for Independence Living. using Twitter data (tweets) and sentiment tautological conceptualizations were common. Mefacilyta, a Life Skills App for Inclusion of analysis by presenting a first proof of concept. Conclusion: Our findings of conceptualization A Development and Evaluation of a Workshop People with Intellectual or Developmental Method: Tweets containing the terms closely related to the concepts of employment of Disability Awareness Particularly in the Disabilities “intellectual disability” and “mental and work found in people with ID. Event of Disasters for Primary School Children John Owuor retardation” were collected for the duration of Heterogeneous concepts of job satisfaction Yayoi Kitamura one month. The resulting tweets were both among people with ID require instruments and Aim: To demonstrate effectiveness of an open analyzed using a sentiment analysis algorithm research strategies that take these diverse Aim: We developed and evaluated a workshop source App (Mefacilyta) in empowering as well as by manual categorization. concepts into account. Implications for of disability awareness particularly in case of community living for persons with intellectual Results: Initial findings of this ongoing research employment providers were discussed. disasters for primary school children. In the disabilities (ID) in Ireland. showed mixed results. While the collected  event of disasters, for instance earthquakes, Method: An observational study exploring how tweets using “intellectual disability” were often children and those with disabilities may face people with different levels of ID use research related, tweets containing “mental greater difficulties and require support from Mefacilyta, an educational App developed by retardation” usually were used as insults to neighbours.

52 53 Identifying Support Needs of Elderly Caregivers Vodafone Foundation Spain, to plan and groups or individuals. Tweets going beyond The Assessment of Quality of Life of People of Clients with Intellectual Disabilities in execute certain daily life activities of their these contexts were sparse and limited the with Intellectual Disabilities in Japan-using the Supported Employment Services in Singapore choice (e.g. baking, swimming or shopping) applicability of sentiment analyses in this Personal Outcomes Scale Melissa Teo, Jui Horng Tan, Zetty Akhtar Md independently. Participants were people with domain. Mizuho Tatsuta, Norimune Kawai, Michio Eizak, Esther Lim, Eunice Ho, Jamila Mustaffa mild, moderate, severe to profound levels of ID. Conclusion: Analysis of Twitter data is a novel Ushiyama Data were collected through use of in-depth way to assess societal attitudes towards people Aim: The expanding population of elderly face to face individual interviews and with ID and the effects of inclusion efforts and Aim: The purpose of this study was to examine parents who continue to care for their child participant observations. policies. Our findings indicated a derogatory the characteristics of quality of life (QOL) of with intellectual disabilities well into old age is a Results: Mefacilyta enabled participants to understanding and view of this population. Japanese adults with intellectual disabilities (ID) growing concern. The research aimed to assess achieve independence in some aspects of their  using the Personal Outcomes Scale (POS). the needs of elderly parents as caregivers and lives. Use of Mefacilyta or other assistive Method: 85 adults with ID and 27 support the perceived needs of their child with technologies by people with ID remains very Concepts of Job Satisfaction in People with workers participated in this study. Adults with intellectual disabilities. low, and requires well supported and motivated Intellectual Disability ID replied to the “self-report” of POS and Method: An interview was undertaken with 10 support staff. Andreas Kocman, Germain Weber support workers evaluated 85 adults with ID caregivers aged 65 years and above. The Conclusion: AT such as Mefacilyta enhances using the “report of others” of POS. An interviews focused on identifying elderly individualised interventions for users with ID, Aim: Although ample research on factors unpaired t-test was applied to evaluate the caregivers’ needs and the perceived needs of giving them some independence while at the contributing to job satisfaction in people with ID differences of POS scores between ID levels their child. Care plans were developed, in which same time ensuring their inclusion into societal exists, little is known about the subjective (severe ID and moderate to borderline ID) or caregivers’ and clients’ needs were prioritized. processes. There is need for expanded access to concept of job satisfaction in this population. work arrangements (X: close to regular work Results: Elderly caregivers expressed support such solutions for the benefit of all people with However, knowledge of conceptual conditions; Y: sheltered workshops). needs in several areas; social interaction and ID. understanding is essential to ensure value and Results: Personal Development (PD) domain emotional support were common themes.  applicability for job satisfaction research for this scores in the moderate to borderline ID group When discussing their child’s care plan, the population. Our study aimed to explore these were significantly higher than those of the need for their child to acquire Activities of Daily Twitter as a Means to Measure Attitudes concepts. severe ID group in both the “self-report” and Living Skills and functional academics were towards People with Intellectual Disability Method: We interviewed 129 people with mild the “report of others.” For work arrangements, pertinent concerns. Andreas Kocman, Germain Weber to moderate ID working in sheltered workshops the scores of PD domain for the moderate to Conclusion: Identifying the support needs of across Luxembourg. Using a structured mixed- borderline ID group who belonged to X were elderly caregivers, and developing appropriate Aim: Research on attitudes towards people with method approach, we assessed (a) the concept significantly higher than those of Y group in the care plans were important to provide the ID usually applies standardized questionnaires of job satisfaction and (b) their current job “report of others.” necessary support as they age. Emphasis was such as the Mental Retardation Attitude satisfaction using the Job In General Scale (JIGS) Conclusion: These findings provided empirical also given in training clients to be independent, Inventory (MRAI) or the Attitudes Toward as well as the Job Descriptive Index (JDI). knowledge of personal and environmental with the goal that they can be a support to their Intellectual Disability (ATTID). These approaches Results: Our data indicated sufficient factors that influence QOL of adults with ID. elderly parents. are, however, affected by social desirability and understanding of the term. Distinct groups of Other day arrangements should be included for  sampling effects. We proposed a new way of concepts were found, indicating a split between further analyses of QOL of adults with ID. measuring attitudes towards people with ID intrinsic and extrinsic concepts. Notably,  Assistive Technology for Independence Living. using Twitter data (tweets) and sentiment tautological conceptualizations were common. Mefacilyta, a Life Skills App for Inclusion of analysis by presenting a first proof of concept. Conclusion: Our findings of conceptualization A Development and Evaluation of a Workshop People with Intellectual or Developmental Method: Tweets containing the terms closely related to the concepts of employment of Disability Awareness Particularly in the Disabilities “intellectual disability” and “mental and work found in people with ID. Event of Disasters for Primary School Children John Owuor retardation” were collected for the duration of Heterogeneous concepts of job satisfaction Yayoi Kitamura one month. The resulting tweets were both among people with ID require instruments and Aim: To demonstrate effectiveness of an open analyzed using a sentiment analysis algorithm research strategies that take these diverse Aim: We developed and evaluated a workshop source App (Mefacilyta) in empowering as well as by manual categorization. concepts into account. Implications for of disability awareness particularly in case of community living for persons with intellectual Results: Initial findings of this ongoing research employment providers were discussed. disasters for primary school children. In the disabilities (ID) in Ireland. showed mixed results. While the collected  event of disasters, for instance earthquakes, Method: An observational study exploring how tweets using “intellectual disability” were often children and those with disabilities may face people with different levels of ID use research related, tweets containing “mental greater difficulties and require support from Mefacilyta, an educational App developed by retardation” usually were used as insults to neighbours.

52 53 Method: Fifteen-minute group discussions dealt outside support from various medical POSTER PRESENTATIONS – NEW CONCEPTUALIZATION, THEORY, EXEMPLARY PRACTICE, OR with the issue of toileting among 8 children of institutions, it seemed very difficult to support POLICY STRATEGY 10 years old, one person with disability and a daily medical needs of those with PIMD. facilitator. The facilitator asked the children Conclusion: The current situation suggested Community Participation Model for Young a process to guide intervention. A conceptual whether individuals with disabilities might have that staying home with parents is the only Adults with Intellectual and Developmental model focused on young adults with mild to difficulties regarding toileting and what may option to allow living in the community. When Disabilities. moderate IDD is proposed. The proposed model solve the difficulties. Facilitators checked considering the limitations of home care, such Molly Bathje of community participation builds on the whether the children could estimate these as aging of caregivers, having the option to live existing models but incorporates activity as an difficulties and presented the group experiences in group home would give hope to people with Description: Young adults with intellectual and integral component and a process for guiding to the class. Children wrote their achievements PIMD and their family. developmental disabilities (IDD) participate less interventions. Model concepts and processes after the session.  in their communities than peers, although they were tested through a pilot qualitative study of Results: Half of the children answered that express desire to participate and policies young adults with IDD and their perception of those with disabilities are able to solve Preliminary Reliability Analysis of the Social support their participation. A review of existing community participation. difficulties with certain support. 30% of children Impact of Repetitive Behavior Scale models of community participation for people Contribution: The proposed conceptual model answered that people with disabilities have a lot Jennifer Zarcone, Catalina Rey, Noor Javed, with disabilities revealed a focus on the can help guide interventions to increase of difficulties that they had never imagined. Rose Nevill, Eli Newcomb, Griffin Rooker interplay between the individual and his or her meaningful community participation in young Some children noticed the difference among environment, but do not fully integrate the adults with IDD. Focusing on a small subset of different disabilities and identified Aim: Several rating scales exist to measure the concept of activity as a bridge between the the adults led to a better understanding of environmental solutions for difficulties. topography and severity of repetitive behavior, individual and the opportunities in their specific challenges for young adults with ID. Conclusion: A structural group discussion for such as the Repetitive Behavior Scale-Revised. environment. Additionally, few models provide  primary school children regarding the support However, none of these scales measure how of people with disabilities in case of disasters the behavior interferes with community opportunities. We developed the Social Impact was revealed to be effective. ROUNDTABLES  of Repetitive Behavior Scale (SIRBS) to capture

this dimension of the behavior. Building Self-Advocacy Capacity for People active contributors to society. There are a Group Home for People with PIMD: Current Method: Forty-three children admitted to an with Intellectual and Developmental number of Self-Advocacy groups active in the Situation in Tokyo and Hope for Living in inpatient unit for treatment of challenging Disabilities in the Asia/Pacific Region Asia/Pacific region. Three panelists will describe Community behavior or attending a school for children with Trevor R Parmenter, Kuo Yu Wang the genesis of existing groups, challenges faced, Shoko Kihara, Yuji Iwasaki, Hisako Horie, Hiroshi autism participated. While some participants and ways these challenges have been Saiki, Masaaki Yamamoto had both, parents were the informants for 73% Description: People with intellectual and overcome. This will then be followed by open of the participants and staff or teachers were developmental disabilities (IDD) are often discussion by participants regarding ways Aim: In this study, status of group homes was the informants for 60%. Interrater agreement ignored or overlooked by society. Families also further growth of Self-Advocacy may be assessed as one of the options for people with was evaluated for all participants as well as test- carry this burden. The lives of people with IDD encouraged and supported. PIMD to live safely in community. retest by asking informants to complete the have been a history of stigmatisation, Contribution: The goal of this roundtable is to Method: Issues of current group homes in scale again approximately 2 weeks later. segregation and discrimination; and being explore strategies that would stimulate Self- Tokyo are discussed in relation to four Results: We obtained fair interrater agreement excluded from education, healthcare, jobs and Advocacy growth and sustainable development perspectives: building, assistive personnel, between parents (K = .33) and between hospital social life in the community. Voices of people across the region in the context of cultural medical care and service operation. or school staff (K = .35). Test-retest was with IDD have seldom been heard. This changed values. Results: The survey for group homes in Tokyo collected for 30% of participants and found to with the development of the Self-Advocacy  revealed that group homes for residents with be moderate to strong, r = .30 - .98, p < .05 movement which embraces the principles of PIMD had better disability access, disaster based on parent and staff report. empowerment, autonomy, inclusion and Families of Children with Autism Spectrum prevention measures, and a larger number of Conclusion: Preliminary results indicated that citizenship. Self-Advocacy also embraces the Disorder (ASD) Across Cultures: Diagnosis, assistive personnel in comparison to the others. the scale has fair interrater and good test-retest General Principles of the UNCRPD so that Adaptation and Intervention This survey also found that very little medical reliability. Additional analysis of the validity of people with IDD have full and equal enjoyment Sandy Magana, Naomi Ekas, Yue Xu care was provided, which limited the availability the scale by observing the child’s behaviour in of their rights; are able to participate and be only to those with minimal care needs. Even relevant contexts is needed. included in society by learning to speak up for Description: Parents of children with ASD from though all home groups answered that they had  themselves in a responsible way; and becoming different cultures have unique experiences

54 55 Method: Fifteen-minute group discussions dealt outside support from various medical POSTER PRESENTATIONS – NEW CONCEPTUALIZATION, THEORY, EXEMPLARY PRACTICE, OR with the issue of toileting among 8 children of institutions, it seemed very difficult to support POLICY STRATEGY 10 years old, one person with disability and a daily medical needs of those with PIMD. facilitator. The facilitator asked the children Conclusion: The current situation suggested Community Participation Model for Young a process to guide intervention. A conceptual whether individuals with disabilities might have that staying home with parents is the only Adults with Intellectual and Developmental model focused on young adults with mild to difficulties regarding toileting and what may option to allow living in the community. When Disabilities. moderate IDD is proposed. The proposed model solve the difficulties. Facilitators checked considering the limitations of home care, such Molly Bathje of community participation builds on the whether the children could estimate these as aging of caregivers, having the option to live existing models but incorporates activity as an difficulties and presented the group experiences in group home would give hope to people with Description: Young adults with intellectual and integral component and a process for guiding to the class. Children wrote their achievements PIMD and their family. developmental disabilities (IDD) participate less interventions. Model concepts and processes after the session.  in their communities than peers, although they were tested through a pilot qualitative study of Results: Half of the children answered that express desire to participate and policies young adults with IDD and their perception of those with disabilities are able to solve Preliminary Reliability Analysis of the Social support their participation. A review of existing community participation. difficulties with certain support. 30% of children Impact of Repetitive Behavior Scale models of community participation for people Contribution: The proposed conceptual model answered that people with disabilities have a lot Jennifer Zarcone, Catalina Rey, Noor Javed, with disabilities revealed a focus on the can help guide interventions to increase of difficulties that they had never imagined. Rose Nevill, Eli Newcomb, Griffin Rooker interplay between the individual and his or her meaningful community participation in young Some children noticed the difference among environment, but do not fully integrate the adults with IDD. Focusing on a small subset of different disabilities and identified Aim: Several rating scales exist to measure the concept of activity as a bridge between the the adults led to a better understanding of environmental solutions for difficulties. topography and severity of repetitive behavior, individual and the opportunities in their specific challenges for young adults with ID. Conclusion: A structural group discussion for such as the Repetitive Behavior Scale-Revised. environment. Additionally, few models provide  primary school children regarding the support However, none of these scales measure how of people with disabilities in case of disasters the behavior interferes with community opportunities. We developed the Social Impact was revealed to be effective. ROUNDTABLES  of Repetitive Behavior Scale (SIRBS) to capture

this dimension of the behavior. Building Self-Advocacy Capacity for People active contributors to society. There are a Group Home for People with PIMD: Current Method: Forty-three children admitted to an with Intellectual and Developmental number of Self-Advocacy groups active in the Situation in Tokyo and Hope for Living in inpatient unit for treatment of challenging Disabilities in the Asia/Pacific Region Asia/Pacific region. Three panelists will describe Community behavior or attending a school for children with Trevor R Parmenter, Kuo Yu Wang the genesis of existing groups, challenges faced, Shoko Kihara, Yuji Iwasaki, Hisako Horie, Hiroshi autism participated. While some participants and ways these challenges have been Saiki, Masaaki Yamamoto had both, parents were the informants for 73% Description: People with intellectual and overcome. This will then be followed by open of the participants and staff or teachers were developmental disabilities (IDD) are often discussion by participants regarding ways Aim: In this study, status of group homes was the informants for 60%. Interrater agreement ignored or overlooked by society. Families also further growth of Self-Advocacy may be assessed as one of the options for people with was evaluated for all participants as well as test- carry this burden. The lives of people with IDD encouraged and supported. PIMD to live safely in community. retest by asking informants to complete the have been a history of stigmatisation, Contribution: The goal of this roundtable is to Method: Issues of current group homes in scale again approximately 2 weeks later. segregation and discrimination; and being explore strategies that would stimulate Self- Tokyo are discussed in relation to four Results: We obtained fair interrater agreement excluded from education, healthcare, jobs and Advocacy growth and sustainable development perspectives: building, assistive personnel, between parents (K = .33) and between hospital social life in the community. Voices of people across the region in the context of cultural medical care and service operation. or school staff (K = .35). Test-retest was with IDD have seldom been heard. This changed values. Results: The survey for group homes in Tokyo collected for 30% of participants and found to with the development of the Self-Advocacy  revealed that group homes for residents with be moderate to strong, r = .30 - .98, p < .05 movement which embraces the principles of PIMD had better disability access, disaster based on parent and staff report. empowerment, autonomy, inclusion and Families of Children with Autism Spectrum prevention measures, and a larger number of Conclusion: Preliminary results indicated that citizenship. Self-Advocacy also embraces the Disorder (ASD) Across Cultures: Diagnosis, assistive personnel in comparison to the others. the scale has fair interrater and good test-retest General Principles of the UNCRPD so that Adaptation and Intervention This survey also found that very little medical reliability. Additional analysis of the validity of people with IDD have full and equal enjoyment Sandy Magana, Naomi Ekas, Yue Xu care was provided, which limited the availability the scale by observing the child’s behaviour in of their rights; are able to participate and be only to those with minimal care needs. Even relevant contexts is needed. included in society by learning to speak up for Description: Parents of children with ASD from though all home groups answered that they had  themselves in a responsible way; and becoming different cultures have unique experiences

54 55 throughout the process of diagnosis, develop recognition of the arts as a source for DEMONSTRATIONS adaptation, and intervention. It is essential for inclusive research, alternative modes of professionals and the scientific community to communication and community participation. Voting: Our Rights to Full Participation The Integrated Supports Planning Calendar: understand the experiences of families across Contribution: With brief examples of a Wai Ying Emily Fung, Tsun Kit Chan, Tak Hung Planning for One’s Life Beyond the Realm of cultures in order to serve them in a culturally community project from the Singapore context, Chow, Yim Fong Au Paid Services. effective way. In this roundtable, we initiated we explored the developments of partnerships Alena Vazquez, John Agosta conversation on each of these three topics. that can develop social, cultural and creative Description: Chosen Power (People First Hong First, Sandy Magaña presented a study on the capital. The focus was on the establishment of Kong), the only registered self-advocacy Description: The Integrated Supports Planning reactions following an ASD diagnosis among the arts as a mode of discourse and dialogue. organization of persons with intellectual Calendar is a web-based electronic tool for use Latino and White families in the USA. Next, The aim was to seek cohesion about the differences (ID) in Hong Kong since 1995, has in the development of person-centered support Naomi Ekas presented research on how families collective resources and support that arts can run a 2-yr (2015-2017) Voting Rights Education plans. The calendar is structured to promote face unique challenges associated with bring into education, daily living and community Program. The program is funded by Open person-centered practice within a “LifeCourse” parenting their child with ASD and how these access, thus benefitting relationships with all Society Foundations and supported by PILNET Framework to identify individual goals, challenges may lead to stress. Lastly, Yue Xu stakeholders. Suggestions were put forward to networking law students from Hong Kong aspirations, and day-to-day support needs but described a parent education intervention she is optimise potential relations between disability University Law Faculty. Focusing on CRPD to also emphasize a variety of supports in adapting for Chinese families of children with organisations, special schools, the community, Article 29, 24 voting rights workshops, adopting response. These could include supports offered ASD. After the brief presentations, we and beyond. Georgetown University Law Centre Street Law by family, friends, technology, local business, facilitated discussion from the audience about  Approach*, reached out to more than 200 self- community serving organizations, as well as these topics within their own cultural contexts advocates, parents, professional staff and paid services. The calendar also includes a or among diverse populations they serve. Personal Values and Cultural Beliefs in Quality community members. A video and a taste of the budget calculator which allows planners to view Contribution: This roundtable addressed an of Life Street Law workshops was shared and the annual costs of the paid services within the important knowledge gap in understanding Alice Schippers, Ivan Brown experienced. Eight inclusive tri-party CRPD plan. By encouraging an expanded view of the families of children with ASD across cultures. It Ambassador-teams composing of self-advocate, types of resources available, the calendar helps resonates with Track 2 because of its focus on Description: “Perceptions drive one’s parent, community members were formed. Use service users to think about their life in a more families within the community and Track 1 by behaviour,” as one of the leading researchers in of Easy Read materials, universal design of holistic fashion, while the budget calculator discussing parent interventions as a model of quality of life (QoL), Roy Brown, has often workshop facilitation, peer learning and allows planners to track individual budgets. support. stated. Values, beliefs, and interests influence mentoring are the highlights of the empowering Contribution: This new web-based planning  how people think and behave. Specific routines, process. calendar promotes creative thinking about ways customs, norms, and rituals have accumulated *Street law is an approach, developed by to aid support planners in thinking beyond the The Arts: Creating Discourse and Dialogue and have gained value culturally to influence Georgetown University Law Center in 1972, to box of paid supports when helping people with about New Opportunities in Education, Daily individual, family, and group behaviour. Specific teaching practical law to grassroots audiences intellectual and developmental disabilities and Living and Community Access personal interests strongly influence personal using interactive teaching methodologies. their families to identify supports. Session Esther Joosa, Meng Ee Wong, Yonglun Liu behaviour and enjoyment of life. Over the Elements of practical law taught include attendees receive an introduction to the decades of conceptualising, measuring and awareness of human rights/civil rights, LifeCourse Framework and a demonstration of Description: The role of arts in contributing to applying QoL in the field of ID/DD, little democratic principles, conflict resolution, the how the calendar functions, and learn how it is an inclusive and equitable society has recently attention has been paid to the importance of advocacy process, criminal and civil law, , family being currently used. attracted increasing attention. Partnerships in perceptions based on values, beliefs, and law, employment law, and consumer rights.  arts, education and the community are interests as important inputs for policies, Contribution: This program represents the first contributing forces to the growth and practices, and living with disability (individual time in the world the Street Law Approach has sustainability of long-term relationships that and family). been applied to persons with ID. bring inclusive and culturally sensitive Contribution: In this roundtable, the convenors  communities together. This forum was a call for presented vignettes – from different places in the establishment of art as a mode of research the world – and an overview to stimulate and community discourse forums. This discussion. The discussion that followed symposium was a call to members to develop explored this topic in greater depth, resulting in an arts and disability platform that can open an exchange of knowledge and experiences. new doors to individuals with a disability in Concrete ideas for research were generated. Asia-Pacific and globally. The aim was to 

56 57 throughout the process of diagnosis, develop recognition of the arts as a source for DEMONSTRATIONS adaptation, and intervention. It is essential for inclusive research, alternative modes of professionals and the scientific community to communication and community participation. Voting: Our Rights to Full Participation The Integrated Supports Planning Calendar: understand the experiences of families across Contribution: With brief examples of a Wai Ying Emily Fung, Tsun Kit Chan, Tak Hung Planning for One’s Life Beyond the Realm of cultures in order to serve them in a culturally community project from the Singapore context, Chow, Yim Fong Au Paid Services. effective way. In this roundtable, we initiated we explored the developments of partnerships Alena Vazquez, John Agosta conversation on each of these three topics. that can develop social, cultural and creative Description: Chosen Power (People First Hong First, Sandy Magaña presented a study on the capital. The focus was on the establishment of Kong), the only registered self-advocacy Description: The Integrated Supports Planning reactions following an ASD diagnosis among the arts as a mode of discourse and dialogue. organization of persons with intellectual Calendar is a web-based electronic tool for use Latino and White families in the USA. Next, The aim was to seek cohesion about the differences (ID) in Hong Kong since 1995, has in the development of person-centered support Naomi Ekas presented research on how families collective resources and support that arts can run a 2-yr (2015-2017) Voting Rights Education plans. The calendar is structured to promote face unique challenges associated with bring into education, daily living and community Program. The program is funded by Open person-centered practice within a “LifeCourse” parenting their child with ASD and how these access, thus benefitting relationships with all Society Foundations and supported by PILNET Framework to identify individual goals, challenges may lead to stress. Lastly, Yue Xu stakeholders. Suggestions were put forward to networking law students from Hong Kong aspirations, and day-to-day support needs but described a parent education intervention she is optimise potential relations between disability University Law Faculty. Focusing on CRPD to also emphasize a variety of supports in adapting for Chinese families of children with organisations, special schools, the community, Article 29, 24 voting rights workshops, adopting response. These could include supports offered ASD. After the brief presentations, we and beyond. Georgetown University Law Centre Street Law by family, friends, technology, local business, facilitated discussion from the audience about  Approach*, reached out to more than 200 self- community serving organizations, as well as these topics within their own cultural contexts advocates, parents, professional staff and paid services. The calendar also includes a or among diverse populations they serve. Personal Values and Cultural Beliefs in Quality community members. A video and a taste of the budget calculator which allows planners to view Contribution: This roundtable addressed an of Life Street Law workshops was shared and the annual costs of the paid services within the important knowledge gap in understanding Alice Schippers, Ivan Brown experienced. Eight inclusive tri-party CRPD plan. By encouraging an expanded view of the families of children with ASD across cultures. It Ambassador-teams composing of self-advocate, types of resources available, the calendar helps resonates with Track 2 because of its focus on Description: “Perceptions drive one’s parent, community members were formed. Use service users to think about their life in a more families within the community and Track 1 by behaviour,” as one of the leading researchers in of Easy Read materials, universal design of holistic fashion, while the budget calculator discussing parent interventions as a model of quality of life (QoL), Roy Brown, has often workshop facilitation, peer learning and allows planners to track individual budgets. support. stated. Values, beliefs, and interests influence mentoring are the highlights of the empowering Contribution: This new web-based planning  how people think and behave. Specific routines, process. calendar promotes creative thinking about ways customs, norms, and rituals have accumulated *Street law is an approach, developed by to aid support planners in thinking beyond the The Arts: Creating Discourse and Dialogue and have gained value culturally to influence Georgetown University Law Center in 1972, to box of paid supports when helping people with about New Opportunities in Education, Daily individual, family, and group behaviour. Specific teaching practical law to grassroots audiences intellectual and developmental disabilities and Living and Community Access personal interests strongly influence personal using interactive teaching methodologies. their families to identify supports. Session Esther Joosa, Meng Ee Wong, Yonglun Liu behaviour and enjoyment of life. Over the Elements of practical law taught include attendees receive an introduction to the decades of conceptualising, measuring and awareness of human rights/civil rights, LifeCourse Framework and a demonstration of Description: The role of arts in contributing to applying QoL in the field of ID/DD, little democratic principles, conflict resolution, the how the calendar functions, and learn how it is an inclusive and equitable society has recently attention has been paid to the importance of advocacy process, criminal and civil law, , family being currently used. attracted increasing attention. Partnerships in perceptions based on values, beliefs, and law, employment law, and consumer rights.  arts, education and the community are interests as important inputs for policies, Contribution: This program represents the first contributing forces to the growth and practices, and living with disability (individual time in the world the Street Law Approach has sustainability of long-term relationships that and family). been applied to persons with ID. bring inclusive and culturally sensitive Contribution: In this roundtable, the convenors  communities together. This forum was a call for presented vignettes – from different places in the establishment of art as a mode of research the world – and an overview to stimulate and community discourse forums. This discussion. The discussion that followed symposium was a call to members to develop explored this topic in greater depth, resulting in an arts and disability platform that can open an exchange of knowledge and experiences. new doors to individuals with a disability in Concrete ideas for research were generated. Asia-Pacific and globally. The aim was to 

56 57 Track 3. Education in Schools and in Society Method: Three cohorts of school leavers with Results: The simple discrimination was acquired intellectual disability from two cities in China, most quickly. A simple discrimination was not

their parents, teachers, and the potential less effective than the two conditional ORAL PRESENTATIONS – RESEARCH REPORTS employers were interviewed to obtain their discriminations in enhancing the generalization perceptions about effective employment performance. The minimal-difference Refugee Borderlands – People of Concern with education for them, especially for the severely transition programs, thematic analysis was conditional discrimination was relatively more Disabilities: Educational Prospects Along the mentally handicapped group. However, our applied to analyse the interviewed data. effective in enhancing the generalization Thai-Myanmar Border clinical experience is that they always have Results: The research finds that parental performance at least within one stimulus class Michelle Proyer strong emotional disturbances when facing expectation, parental involvement, individual’s than the other two conditions. death and dying. PWID and their family self-determination, interagency collaboration, Conclusion: The current study provides some Aim: The aim of the presentation is to shed light members have the need and right to have life work experience, and follow-up support are preliminary evidence on how differences on the situation of refugees or people of and death education, and this study aimed to essential indicators of successful employment between teaching stimuli in a conditional concern (POC) respectively living along the Thai- test its efficacy. transition education and services. discrimination task influenced the Myanmar border. Method: The Mental Health Association of Conclusion: The study concluded that transition discrimination learning and generalization Method: In order to gain empirical insights into Hong Kong launched an evidenced-based study education and associated services in China are performance for learners with IDD. How these the lives of POCs, especially educational barriers on life and death education, training and in an early stage of development, and signal a findings could be extended for greater internal and possibilities, a Thai-Austrian research team research for PWID. We launched six training need for action to explore effective practices validity and external validity is an important explored daily rehabilitative and scholastic programs for 260 staff team members. We that could address the barriers and promote project in future. practice in one of the resettlement camps along implemented the training with 7 PWID groups successful post-school outcomes in  the Thai-Myanmar border. Additionally, and 7 carers groups, including 2 parallel groups employment for Chinese adolescents with interviews with people with disabilities and on life and death education. Intellectual Disability (ID) The Interpretations and Experiences of Visual their families were conducted during two visits Results: The research indicated that even  Clutter in the Classroom from the Perspectives in 2016/17. persons with severe intellectual disabilities can of Students with a Diagnosis of Autism Results: Initial analysis proved complex as the understand life and death concepts. More Examining Generalization Performance in a Spectrum Disorder (ASD). target group is hard to reach and contextual importantly, both PWID and their carers learned Conditional Discrimination Task for Learners Hannah Zazzi factors need further exploration as they are the importance of "seize the day.” with Moderate to Severe Intellectual and highly interrelated. Educational perspectives for Conclusion: Death and dying education and Developmental Disabilities Aim: To seek insight into students’ experiences people with disabilities proved precarious. The training should be carried out for all people Mo Chen of visual clutter in the classroom in order for results are to add to the limited body of with intellectual disabilities. student voice to further inform Educational knowledge regarding the intersection of issues  Aim: This study examined how differences Quality of Life (EQOL). related to forced migration and disability. between teaching stimuli in a conditional Method: The study was informed by qualitative Conclusion: Educational conditions of the Indicators for Employment Transition discrimination task using color as teaching methodology. It was conducted using photo respective group have not been explored in Outcomes for Chinese School Leavers with materials impacted the elicitation and draw and talk methods with detail and further data collection is needed Intellectual / Developmental Disability discrimination/generalization outcomes among students, which acted as an aesthetic considering not only but also possible relocation Tianxi Xu, Juan Tang, Jianghua Lei learners with Intellectual and Developmental springboard for semi structured interviews. of members of the respective group following Disabilities (IDD). Results: To date, there is a wide body of political changes in Myanmar. Aim: Chinese special education schools and Method: Five young children diagnosed with quantitative-based publications regarding how  adult service providers began to pay more and Down syndrome and moderate to severe sensory stimulation can impact on processing more attention to vocational training and intellectual disabilities participated in the for students who have a diagnosis of ASD. These Study on Life and Death Education Training education for students with disability, however experiment that employed an adapted studies support theories to date that students and Research for People with Intellectual systematically planned transition to workplaces alternating treatment single case experimental can experience atypical sensory processing of Disabilities program is only occasionally available for design. The three experimental conditions visual stimuli, which may, in turn, impinge on Vincent Lau people with intellectual disability. The present included two conditional discrimination EQOL. However, the quantitative nature of the study aimed to examine what the indicators are conditions, that differed only in the degree of studies has meant that the analyses pertain to Aim: It is often assumed that people with for employment transition outcomes for school color difference (maximal or minimal) between solely quantitative conclusions being drawn, intellectual disabilities (PWID) cannot leavers with intellectual/developmental two teaching stimuli, and a simple thus lacking interpretivist insight. This insight understand the concept of life and death, and disability. discrimination condition that involved only one was the premise of the project at hand, which that there is no need to have life and death teaching stimulus. resulted in new depth of understanding being

58 59 Track 3. Education in Schools and in Society Method: Three cohorts of school leavers with Results: The simple discrimination was acquired intellectual disability from two cities in China, most quickly. A simple discrimination was not

their parents, teachers, and the potential less effective than the two conditional ORAL PRESENTATIONS – RESEARCH REPORTS employers were interviewed to obtain their discriminations in enhancing the generalization perceptions about effective employment performance. The minimal-difference Refugee Borderlands – People of Concern with education for them, especially for the severely transition programs, thematic analysis was conditional discrimination was relatively more Disabilities: Educational Prospects Along the mentally handicapped group. However, our applied to analyse the interviewed data. effective in enhancing the generalization Thai-Myanmar Border clinical experience is that they always have Results: The research finds that parental performance at least within one stimulus class Michelle Proyer strong emotional disturbances when facing expectation, parental involvement, individual’s than the other two conditions. death and dying. PWID and their family self-determination, interagency collaboration, Conclusion: The current study provides some Aim: The aim of the presentation is to shed light members have the need and right to have life work experience, and follow-up support are preliminary evidence on how differences on the situation of refugees or people of and death education, and this study aimed to essential indicators of successful employment between teaching stimuli in a conditional concern (POC) respectively living along the Thai- test its efficacy. transition education and services. discrimination task influenced the Myanmar border. Method: The Mental Health Association of Conclusion: The study concluded that transition discrimination learning and generalization Method: In order to gain empirical insights into Hong Kong launched an evidenced-based study education and associated services in China are performance for learners with IDD. How these the lives of POCs, especially educational barriers on life and death education, training and in an early stage of development, and signal a findings could be extended for greater internal and possibilities, a Thai-Austrian research team research for PWID. We launched six training need for action to explore effective practices validity and external validity is an important explored daily rehabilitative and scholastic programs for 260 staff team members. We that could address the barriers and promote project in future. practice in one of the resettlement camps along implemented the training with 7 PWID groups successful post-school outcomes in  the Thai-Myanmar border. Additionally, and 7 carers groups, including 2 parallel groups employment for Chinese adolescents with interviews with people with disabilities and on life and death education. Intellectual Disability (ID) The Interpretations and Experiences of Visual their families were conducted during two visits Results: The research indicated that even  Clutter in the Classroom from the Perspectives in 2016/17. persons with severe intellectual disabilities can of Students with a Diagnosis of Autism Results: Initial analysis proved complex as the understand life and death concepts. More Examining Generalization Performance in a Spectrum Disorder (ASD). target group is hard to reach and contextual importantly, both PWID and their carers learned Conditional Discrimination Task for Learners Hannah Zazzi factors need further exploration as they are the importance of "seize the day.” with Moderate to Severe Intellectual and highly interrelated. Educational perspectives for Conclusion: Death and dying education and Developmental Disabilities Aim: To seek insight into students’ experiences people with disabilities proved precarious. The training should be carried out for all people Mo Chen of visual clutter in the classroom in order for results are to add to the limited body of with intellectual disabilities. student voice to further inform Educational knowledge regarding the intersection of issues  Aim: This study examined how differences Quality of Life (EQOL). related to forced migration and disability. between teaching stimuli in a conditional Method: The study was informed by qualitative Conclusion: Educational conditions of the Indicators for Employment Transition discrimination task using color as teaching methodology. It was conducted using photo respective group have not been explored in Outcomes for Chinese School Leavers with materials impacted the elicitation and draw and talk methods with detail and further data collection is needed Intellectual / Developmental Disability discrimination/generalization outcomes among students, which acted as an aesthetic considering not only but also possible relocation Tianxi Xu, Juan Tang, Jianghua Lei learners with Intellectual and Developmental springboard for semi structured interviews. of members of the respective group following Disabilities (IDD). Results: To date, there is a wide body of political changes in Myanmar. Aim: Chinese special education schools and Method: Five young children diagnosed with quantitative-based publications regarding how  adult service providers began to pay more and Down syndrome and moderate to severe sensory stimulation can impact on processing more attention to vocational training and intellectual disabilities participated in the for students who have a diagnosis of ASD. These Study on Life and Death Education Training education for students with disability, however experiment that employed an adapted studies support theories to date that students and Research for People with Intellectual systematically planned transition to workplaces alternating treatment single case experimental can experience atypical sensory processing of Disabilities program is only occasionally available for design. The three experimental conditions visual stimuli, which may, in turn, impinge on Vincent Lau people with intellectual disability. The present included two conditional discrimination EQOL. However, the quantitative nature of the study aimed to examine what the indicators are conditions, that differed only in the degree of studies has meant that the analyses pertain to Aim: It is often assumed that people with for employment transition outcomes for school color difference (maximal or minimal) between solely quantitative conclusions being drawn, intellectual disabilities (PWID) cannot leavers with intellectual/developmental two teaching stimuli, and a simple thus lacking interpretivist insight. This insight understand the concept of life and death, and disability. discrimination condition that involved only one was the premise of the project at hand, which that there is no need to have life and death teaching stimulus. resulted in new depth of understanding being

58 59 developed through student voice, regarding Teaching Music for Children with Special Needs the effects of this intervention among the survey responses were analyzed using individual interpretation of visual clutter. Based on Kodaly's Approach at Chulalongkorn parents and service workers. independent samples t-test, the correlation Conclusion: In hearing student voice, it is the University Demonstration School Method: In total, 57 parents and 164 service analysis and regression analysis. hope that this insight will, in the future, act as a Narutt Suttachitt workers were involved in the intervention, and Results: Chinese parents had high scores on change agent for EQOL, by allowing for the 21 parents and 37 workers were included in attitudes and behaviors of participation in early sharing of individual perception that reflects the Aim: 1) To study the history of teaching music control groups. Both quantitative and intervention services. The highest level of the quality of life experienced. to children with special needs at Chulalongkorn qualitative data were gathered in the evaluation participation was the family participation,  University Demonstration Elementary School of the intervention from April 2012 to July 2015. followed by the community participation, and (CUD); 2) To develop a model of teaching music A non-equivalent pre/post test groups design finally the school/institutional participation. The The Best Defense is a Good Response: Reacting based on Kodaly's approach. and standardized questionnaires (ASQ-ID) as result of parental self-efficacy was positive, and to Offensive Sentences for People with Method: Research methods included historical well as in-depth interviews and focus groups parental self-efficacy and attitude predicted Disability and their Families research and research and development. were used to collect quantitative and behaviour of parents’ participation. Chun-Yu Chiu, Yi Ning Tung, Chao-Fu Hsu, Li-Chi Research instruments included primary qualitative data on the effectiveness and Conclusion: It is recommended that the Chinese Yu document record forms, interview forms, and experiences of the intervention among the government and institutions make changes to learning development record forms. Data were participants. provide support and opportunities to parents of Aim: In 2015, posting “one sentence that analyzed by using content analysis. Results: After the intervention, the attitudes children with developmental disabilities in early offended you” went viral across social networks Results: 1) History of teaching music to children towards sexuality of people with ID were intervention. in Taiwan. The population of people with with special needs in CUD was divided into significantly more positive among both the  disabilities and their families also took part and three periods. 2) The music teaching model parents and service workers. Both parents and contributed 271 offensive sentences. consisted of six topics as follows: 2.1 Objectives, service workers responded that the Perspective of Special Needs Education for Method: A group of self-advocates, family focusing on developing music knowledge and intervention was useful for them to recognize Children with ID or ASD in Japan: Research supporters, and researchers carefully examined skills, and developing social survival skills, 2.2 the sexual rights of the adults with ID. Trends in the Reading and Writing Skills of the sentences and identified three major types Music Subject-Matter, based on basic elements Conclusion: Both quantitative and qualitative Children with Intellectual Disabilities in Japan (being skeptical toward accommodations and of music, 2.3 Learning experiences, consisting of results show that the intervention caused a Mariko Maeda, Michio Kojima benefits, pitiful attitude/encouragement, and two areas: knowledge and practice, 2.4 Learning positive impact on the parents and service showing a lack of understanding of disability) activities, based on rhythm and pitch workers in terms of their sexual attitudes to Aim: To clarify the current situation and issues with sample sentences. By examining verbatim perception, 2.5 Assessment, including formative people with ID. through research in the literature on the interview transcripts of 12 participants with evaluation and authentic assessment, 2.6  reading and writing skills of children with ID in maximum heterogeneity sampling strategy, we Instructional resources, including songs, Japan. used thematic analytic strategy to construct rhythmic and pitch flash cards, percussion Research on Parental Participation and Self- Method: We collected data from the Citation themes of perspectives toward these sentences. instruments, Angklung and keyboard. efficacy in Early Intervention for Children with Information by National institute of Informatics Results: First, participants reported that the Conclusion: The activity-based method of Developmental Disabilities in China (CiNii) using the phrase “intellectual disabilities, actual word choice, tone of delivery, and teaching music based on Kodaly’s approach was Wen Sun, Yumei Sun reading, writing, character.” (Search date: context of dialogue influenced how sentences appropriate for children. It helped them learn March 6, 2017) were interpreted. Nevertheless, participants rhythm and pitch with enjoyment. Besides Aim: Very few studies have examined the Results: As a result of the date search, 33 with different levels of familiarity with disability music experiences, the method also enhanced Chinese parents’ participation and self-efficacy research studies were found with relevant issues reacted differently toward the sample children’s social survival skills, especially in early intervention for children with content. In the meantime, seven studies on the sentences; particularly, taking sentences of communication abilities. developmental disabilities. The purpose of this evaluation of literacy skills of children with ID pitiful attitude/encouragement out of context.  study was: (1) to examine the attitudes and and their acquisition competencies, and 19 Conclusion: More awareness activity is behaviors of Chinese parents’ participation in practical studies teaching reading and writing necessary to reduce the knowledge gap Evaluation of a Sexual Health Program for early intervention, and (2) to examine the self- skills were found. In addition, there were two between people with and without disabilities. It Parents and Service Workers of Adults with ID efficacy of Chinese parents, and (3) to explore studies on reading and writing skills of adults is also equally important for people with Yueh-Ching Chou, Teppo Kröger the relationship between parents’ participation with ID. Studies conducting surveys related to disabilities to advocate for themselves and let and parental self-efficacy. this area, such as an awareness survey of others know that they feel offended upon Aim: In order to promote sexual health of adults Method: A questionnaire on parents’ attitudes reading and writing guidance to teachers, and hearing such sentences. with intellectual disability (ID), an intervention and behaviors about participation, and parental development of instructional teaching methods  program was provided to them, their parents self-efficacy were completed by 235 parents of using ICT equipment were also available. and service workers. This study aims to evaluate children with developmental disabilities. The

60 61 developed through student voice, regarding Teaching Music for Children with Special Needs the effects of this intervention among the survey responses were analyzed using individual interpretation of visual clutter. Based on Kodaly's Approach at Chulalongkorn parents and service workers. independent samples t-test, the correlation Conclusion: In hearing student voice, it is the University Demonstration School Method: In total, 57 parents and 164 service analysis and regression analysis. hope that this insight will, in the future, act as a Narutt Suttachitt workers were involved in the intervention, and Results: Chinese parents had high scores on change agent for EQOL, by allowing for the 21 parents and 37 workers were included in attitudes and behaviors of participation in early sharing of individual perception that reflects the Aim: 1) To study the history of teaching music control groups. Both quantitative and intervention services. The highest level of the quality of life experienced. to children with special needs at Chulalongkorn qualitative data were gathered in the evaluation participation was the family participation,  University Demonstration Elementary School of the intervention from April 2012 to July 2015. followed by the community participation, and (CUD); 2) To develop a model of teaching music A non-equivalent pre/post test groups design finally the school/institutional participation. The The Best Defense is a Good Response: Reacting based on Kodaly's approach. and standardized questionnaires (ASQ-ID) as result of parental self-efficacy was positive, and to Offensive Sentences for People with Method: Research methods included historical well as in-depth interviews and focus groups parental self-efficacy and attitude predicted Disability and their Families research and research and development. were used to collect quantitative and behaviour of parents’ participation. Chun-Yu Chiu, Yi Ning Tung, Chao-Fu Hsu, Li-Chi Research instruments included primary qualitative data on the effectiveness and Conclusion: It is recommended that the Chinese Yu document record forms, interview forms, and experiences of the intervention among the government and institutions make changes to learning development record forms. Data were participants. provide support and opportunities to parents of Aim: In 2015, posting “one sentence that analyzed by using content analysis. Results: After the intervention, the attitudes children with developmental disabilities in early offended you” went viral across social networks Results: 1) History of teaching music to children towards sexuality of people with ID were intervention. in Taiwan. The population of people with with special needs in CUD was divided into significantly more positive among both the  disabilities and their families also took part and three periods. 2) The music teaching model parents and service workers. Both parents and contributed 271 offensive sentences. consisted of six topics as follows: 2.1 Objectives, service workers responded that the Perspective of Special Needs Education for Method: A group of self-advocates, family focusing on developing music knowledge and intervention was useful for them to recognize Children with ID or ASD in Japan: Research supporters, and researchers carefully examined skills, and developing social survival skills, 2.2 the sexual rights of the adults with ID. Trends in the Reading and Writing Skills of the sentences and identified three major types Music Subject-Matter, based on basic elements Conclusion: Both quantitative and qualitative Children with Intellectual Disabilities in Japan (being skeptical toward accommodations and of music, 2.3 Learning experiences, consisting of results show that the intervention caused a Mariko Maeda, Michio Kojima benefits, pitiful attitude/encouragement, and two areas: knowledge and practice, 2.4 Learning positive impact on the parents and service showing a lack of understanding of disability) activities, based on rhythm and pitch workers in terms of their sexual attitudes to Aim: To clarify the current situation and issues with sample sentences. By examining verbatim perception, 2.5 Assessment, including formative people with ID. through research in the literature on the interview transcripts of 12 participants with evaluation and authentic assessment, 2.6  reading and writing skills of children with ID in maximum heterogeneity sampling strategy, we Instructional resources, including songs, Japan. used thematic analytic strategy to construct rhythmic and pitch flash cards, percussion Research on Parental Participation and Self- Method: We collected data from the Citation themes of perspectives toward these sentences. instruments, Angklung and keyboard. efficacy in Early Intervention for Children with Information by National institute of Informatics Results: First, participants reported that the Conclusion: The activity-based method of Developmental Disabilities in China (CiNii) using the phrase “intellectual disabilities, actual word choice, tone of delivery, and teaching music based on Kodaly’s approach was Wen Sun, Yumei Sun reading, writing, character.” (Search date: context of dialogue influenced how sentences appropriate for children. It helped them learn March 6, 2017) were interpreted. Nevertheless, participants rhythm and pitch with enjoyment. Besides Aim: Very few studies have examined the Results: As a result of the date search, 33 with different levels of familiarity with disability music experiences, the method also enhanced Chinese parents’ participation and self-efficacy research studies were found with relevant issues reacted differently toward the sample children’s social survival skills, especially in early intervention for children with content. In the meantime, seven studies on the sentences; particularly, taking sentences of communication abilities. developmental disabilities. The purpose of this evaluation of literacy skills of children with ID pitiful attitude/encouragement out of context.  study was: (1) to examine the attitudes and and their acquisition competencies, and 19 Conclusion: More awareness activity is behaviors of Chinese parents’ participation in practical studies teaching reading and writing necessary to reduce the knowledge gap Evaluation of a Sexual Health Program for early intervention, and (2) to examine the self- skills were found. In addition, there were two between people with and without disabilities. It Parents and Service Workers of Adults with ID efficacy of Chinese parents, and (3) to explore studies on reading and writing skills of adults is also equally important for people with Yueh-Ching Chou, Teppo Kröger the relationship between parents’ participation with ID. Studies conducting surveys related to disabilities to advocate for themselves and let and parental self-efficacy. this area, such as an awareness survey of others know that they feel offended upon Aim: In order to promote sexual health of adults Method: A questionnaire on parents’ attitudes reading and writing guidance to teachers, and hearing such sentences. with intellectual disability (ID), an intervention and behaviors about participation, and parental development of instructional teaching methods  program was provided to them, their parents self-efficacy were completed by 235 parents of using ICT equipment were also available. and service workers. This study aims to evaluate children with developmental disabilities. The

60 61 Conclusion: Studies on the ability to read and Exploring the Views of Students with Moderate Inclusive Teaching in Maldives: Factors attitudes. All these students were in the write for children with ID have been conducted Intellectual Disability in Special Education Influencing Teacher Beliefs and Teacher elementary level from grades four to six. since the 1990s, but there are currently not Settings on Their Quality of Life Attitudes Results: Students showed positive attitudes enough supports in Japan. Development of Tiffany Wang, Vimallan Manokara, Rachel Ng, Fathmath Nishan, Koay Teng Leong, Rohani towards peers with disabilities. Students in teaching methods that match the special Jeffrey Chan Matzin, Rozmawijah Jawawi schools that included students with intellectual characteristics of children with ID and disabilities showed more positive attitudes than enhancement of support for people with ID are Aim: This paper aims to explore the perception Aim: This study examined the factors other students. Students age was the second required, and will be a task for future research. of the quality of life (QOL) of students with influencing teacher beliefs and teacher variable to effect students’ attitudes. Having a  moderate intellectual disability in Singapore. attitudes in inclusive teaching in Maldives. relative with disability showed no effect on Method: Semi- structured interviews were Method: A survey questionnaire of three students’ attitudes. Verbal Violence among Children with conducted with 11-12-year-old individuals with sections was used. The respondents (N= 170) Conclusion: The present study suggests that Intellectual Developmental Disabilities: moderate level intellectual disability in were 125 regular primary teachers, 11 Deputy students in general hold positive attitudes Running an Intervention Program to Change Singapore. The Personal Well-being Index – Principals, and 34 SEN teachers from towards children with disabilities. In addition, it the Culture of Verbal Discourse Intellectual Disability (PWI-ID) was administered government inclusive schools from six locations shows that including students with intellectual Nirit Karni-Vizer to them and qualitative data on their subjective in Republic of Maldives. disabilities in schools had an indirect impact on well-being was collected. Results: Independent sample t-tests and one- raising awareness among students about Aim: In recent years, violence among students Results: Results of this study showed that way ANOVA showed no significant differences students with different level of abilities. The in schools became a subject of interest in participants generally rated positively with between teacher beliefs and attitudes and the results suggest that expansion in including research following reports of a dramatic regard to how happy they are with their lives as independent variables, gender, professional children with disability in society in general will increase in the rates of violence. The aim of the a whole. The participants’ PWI scores are above development and having experience teaching help to increase the likelihood of acceptance for present study was to investigate verbal violence the normative range. In addition, respondents SEN students. However, there was a significant them, and diminish the stereotypes that always among students with intellectual and rated highest on the ‘community difference between teacher categories and follow them. developmental disabilities (IDD). connectedness’ domain and the lowest on the teacher attitudes, and between teaching  Method: One school was selected to participate ‘standard of living’ domain. The larger study will grades, with both teacher beliefs and teacher in the study. The sample comprised 44 verbally- also include an analysis on the reasons some attitudes. Teaching Methods to Enhance the Quality of able students aged 12 to 16 with mild IDD. The participants gave for their ratings. Conclusion: A common factor influencing both Education for Children with Intellectual questions raised were: (1) To what extent can Conclusion: Currently, no other research has teacher attitudes and teacher beliefs was Disabilities an intervention program based on the Cycle of explored the views of students with moderate teaching grades. Another factor, teacher Abdul Hakim Hasan Hawach Internalized Learning (CIL) be effective in intellectual disability in special education categories, also influenced teacher attitudes in changing the culture of the students' verbal settings in Singapore on their QOL. Hence, the inclusive teaching in Maldives. It is Aim: Conferring to research, the profession of discourse? (2) How do changes in verbal present study helps to fill this gap in the recommended that policy makers conduct teaching requires exceptional training and violence contribute to the creation of new literature and shed light on the support needs awareness programs to foster positive attitudes capability in planning lessons in accordance to styles of discourse that enhance positive social of this sub-population. This exploration of QOL for all teachers and school managers. its didactics and methods. However, the behavior? in students with moderate intellectual disability  representation of the lesson is often adjusted to Results: Following the intervention, the use of will enable us to evaluate and explore which the subject rather than it being adapted to the verbal violence among the students decreased, domains of QOL existing interventions and The Positive Impact on Including Students with student. and their awareness of this phenomenon service delivery should be emphasizing to Intellectual Disabilities in Schools Method: The sample consisted of children with increased. This was reflected in the students' achieve a better QOL. The current study is a Ghaleb Alnahdi intellectual and physical disabilities ages ranging words when the contents were analyzed preliminary study that will be part of a broader from birth up to 18 years. There were four according to categories of verbal violence. longitudinal study to investigate the QOL Aim: The purpose of this study was to examine groups, each group consisting of ten to twelve Concurrently, as the use of verbal violence progression of special education students with the attitudes of Saudi students toward peers students. The sample was obtained from a non- declined, improved social communication styles moderate ID in Singapore. with disabilities. The study also examined how profit special needs center in Jeddah, Saudi occurred among the students.  students’ attitudes are related to age, having Arabia, where teachers focus on generating Conclusion: Verbal violence appears to be students with intellectual disability in the methods that are suitable to the students responsive to targeted intervention. school, and having a relative with disability. through mutual classroom supervision and  Method: The participants completed the Arabic observation of one another’s teaching styles, version of the (CATCH) scale with 357 students’ followed by problem-solving discussions. The school's objective was to provide children with

62 63 Conclusion: Studies on the ability to read and Exploring the Views of Students with Moderate Inclusive Teaching in Maldives: Factors attitudes. All these students were in the write for children with ID have been conducted Intellectual Disability in Special Education Influencing Teacher Beliefs and Teacher elementary level from grades four to six. since the 1990s, but there are currently not Settings on Their Quality of Life Attitudes Results: Students showed positive attitudes enough supports in Japan. Development of Tiffany Wang, Vimallan Manokara, Rachel Ng, Fathmath Nishan, Koay Teng Leong, Rohani towards peers with disabilities. Students in teaching methods that match the special Jeffrey Chan Matzin, Rozmawijah Jawawi schools that included students with intellectual characteristics of children with ID and disabilities showed more positive attitudes than enhancement of support for people with ID are Aim: This paper aims to explore the perception Aim: This study examined the factors other students. Students age was the second required, and will be a task for future research. of the quality of life (QOL) of students with influencing teacher beliefs and teacher variable to effect students’ attitudes. Having a  moderate intellectual disability in Singapore. attitudes in inclusive teaching in Maldives. relative with disability showed no effect on Method: Semi- structured interviews were Method: A survey questionnaire of three students’ attitudes. Verbal Violence among Children with conducted with 11-12-year-old individuals with sections was used. The respondents (N= 170) Conclusion: The present study suggests that Intellectual Developmental Disabilities: moderate level intellectual disability in were 125 regular primary teachers, 11 Deputy students in general hold positive attitudes Running an Intervention Program to Change Singapore. The Personal Well-being Index – Principals, and 34 SEN teachers from towards children with disabilities. In addition, it the Culture of Verbal Discourse Intellectual Disability (PWI-ID) was administered government inclusive schools from six locations shows that including students with intellectual Nirit Karni-Vizer to them and qualitative data on their subjective in Republic of Maldives. disabilities in schools had an indirect impact on well-being was collected. Results: Independent sample t-tests and one- raising awareness among students about Aim: In recent years, violence among students Results: Results of this study showed that way ANOVA showed no significant differences students with different level of abilities. The in schools became a subject of interest in participants generally rated positively with between teacher beliefs and attitudes and the results suggest that expansion in including research following reports of a dramatic regard to how happy they are with their lives as independent variables, gender, professional children with disability in society in general will increase in the rates of violence. The aim of the a whole. The participants’ PWI scores are above development and having experience teaching help to increase the likelihood of acceptance for present study was to investigate verbal violence the normative range. In addition, respondents SEN students. However, there was a significant them, and diminish the stereotypes that always among students with intellectual and rated highest on the ‘community difference between teacher categories and follow them. developmental disabilities (IDD). connectedness’ domain and the lowest on the teacher attitudes, and between teaching  Method: One school was selected to participate ‘standard of living’ domain. The larger study will grades, with both teacher beliefs and teacher in the study. The sample comprised 44 verbally- also include an analysis on the reasons some attitudes. Teaching Methods to Enhance the Quality of able students aged 12 to 16 with mild IDD. The participants gave for their ratings. Conclusion: A common factor influencing both Education for Children with Intellectual questions raised were: (1) To what extent can Conclusion: Currently, no other research has teacher attitudes and teacher beliefs was Disabilities an intervention program based on the Cycle of explored the views of students with moderate teaching grades. Another factor, teacher Abdul Hakim Hasan Hawach Internalized Learning (CIL) be effective in intellectual disability in special education categories, also influenced teacher attitudes in changing the culture of the students' verbal settings in Singapore on their QOL. Hence, the inclusive teaching in Maldives. It is Aim: Conferring to research, the profession of discourse? (2) How do changes in verbal present study helps to fill this gap in the recommended that policy makers conduct teaching requires exceptional training and violence contribute to the creation of new literature and shed light on the support needs awareness programs to foster positive attitudes capability in planning lessons in accordance to styles of discourse that enhance positive social of this sub-population. This exploration of QOL for all teachers and school managers. its didactics and methods. However, the behavior? in students with moderate intellectual disability  representation of the lesson is often adjusted to Results: Following the intervention, the use of will enable us to evaluate and explore which the subject rather than it being adapted to the verbal violence among the students decreased, domains of QOL existing interventions and The Positive Impact on Including Students with student. and their awareness of this phenomenon service delivery should be emphasizing to Intellectual Disabilities in Schools Method: The sample consisted of children with increased. This was reflected in the students' achieve a better QOL. The current study is a Ghaleb Alnahdi intellectual and physical disabilities ages ranging words when the contents were analyzed preliminary study that will be part of a broader from birth up to 18 years. There were four according to categories of verbal violence. longitudinal study to investigate the QOL Aim: The purpose of this study was to examine groups, each group consisting of ten to twelve Concurrently, as the use of verbal violence progression of special education students with the attitudes of Saudi students toward peers students. The sample was obtained from a non- declined, improved social communication styles moderate ID in Singapore. with disabilities. The study also examined how profit special needs center in Jeddah, Saudi occurred among the students.  students’ attitudes are related to age, having Arabia, where teachers focus on generating Conclusion: Verbal violence appears to be students with intellectual disability in the methods that are suitable to the students responsive to targeted intervention. school, and having a relative with disability. through mutual classroom supervision and  Method: The participants completed the Arabic observation of one another’s teaching styles, version of the (CATCH) scale with 357 students’ followed by problem-solving discussions. The school's objective was to provide children with

62 63 intellectual disabilities the opportunity to learn, fall into categories such as insufficient Perspective of Special Needs Education for education aimed at the 2020 live, work and play in a safe environment to understanding and commitment. Children with ID or ASD in Japan: Counseling in the Japan’s special support schools for further enhance their quality of life. Conclusion: Children with special education support for students with ID and mental illness children with mental disabilities. Results: Through teacher's observations and needs cannot receive appropriate support Aki Doyama, Soichi Hashimoto, Chiaki Masu, Method: A survey was conducted of physical discussions the central finding of the study was unless they have the skills to request help when Chihiro Sugioka education teachers at the high school sections that teachers could acquire children's interest, they need it for support. Also, both teachers of special support schools for children with attention, and concentration by using simple and other children need a system for providing Aim: The purpose of this paper was to examine mental disabilities. Survey items focused on the techniques that enhances their quality of help when it is sought. the needs of support for students with ID and implementation of learning using Paralympics education.  mental illness, and considered the importance as the subject, the incorporation of each Conclusion: Based on the findings, it is advised of counseling support at special needs schools. competitive event, and participation in sports that teachers use methods such as videotaping Contradictions as Drivers for Improving Method: We analyzed the basic research data festivals. and supervision to obtain information about Inclusive Practices in Finland from the Ministry of Health, Labour and Welfare Results: Many schools used the Paralympics as other teachers’ performances. It is suggested Birgit Johanna Paju of Japan and the situation surrounding special a subject in their health and physical education. that this method might be useful in teacher needs schools’ refusal of students. Competitive events held at the Paralympics training workshops. Aim: To enhance understanding of the Furthermore, we examined practical cases of were also incorporated into classes, and in  contradictions that arise in the drive to improve school counseling at special needs schools. some schools, students participated in sports teaching practices among pupils with special Results: Accurate data on the incidence of festivals held outside of their own schools. Perspective of Inclusive Education for Children educational needs (SENs). mental illness among students with ID was not Conclusion: Widening involvement in sports with ID or ASD in Japan: A Report on the Actual Method: A questionnaire was administered to available. Moreover, the proportion of refusals through Paralympic education and increasing State of Inclusive Education in Elementary 167 classroom teachers, subject teachers, in elementary and upper secondary participation opportunities is also effective for Schools and on Requests for and Provision of special education teachers, and teaching departments at special needs schools was helping children with mental disabilities enjoy Assistance to Children assistants in Finland. higher than in mainstream schools, and it sports throughout their lifetime. Chihiro Sugioka, Kiyoshi Otomo, Takahiro Results: The analysis, based on activity theory, turned out that there was a tendency for  Watanabe revealed contradictions, differences in subject absence to be extended for a long time. In position, and distinct perceptions of the object addition, the allocation rate of school Perspective of Inclusive Education for Children Aim: Since revision of the School Education Law of activity among the teachers’ groups, which counselors at special needs schools was much with ID or ASD in Japan: Condition of Inclusive in June 2006, we have prepared a system to complicates the inclusion of SEN pupils. The lower than in mainstream schools. Childcare in Japan and Problems of Counseling actively incorporate children with special contradictions related to tension-laden Furthermore, we revealed the difference in the about School Attendance education needs into regular classes. A interactions between staff and SEN pupils, the roles of school counselors at mainstream Chiaki Masu, Akiko Hayashi, Aki Doyama, Kaori requirement for inclusive education in struggle to find a balance between scarce schools and special needs school from practical Hosokawa elementary school is help-seeking behaviour, resources and learner-centered, and the cases of school counselors. but as support staff are scheduled only once or integration of SEN pupils into mainstream Conclusion: These results indicated that it is Aim: In Japan, children with disabilities usually twice a week this may not be feasible. Thus, we groups. important to prepare a system for the participate in inclusive childcare at nursery sought in this survey to clarify the actual Conclusion: A network-based approach to prevention and discovery of mental illness schools and kindergartens. Recently, the incidence of help-seeking by children with inclusive pedagogy is proposed as a way of among students with ID, and to assign school number of children with disabilities is increasing special educational needs in regular classes of resolving these contradictions. Efforts should be counselors to them. in nursery schools. This study considered the elementary school. made to narrow the gap between special and  actual condition of inclusive childcare in Japan Method: A questionnaire survey on help- general education, and to promote new forms and problems of counseling about school seeking by children with special educational of collaboration among all the professionals. Perspective of Special Needs Education for attendance. needs was conducted. The participants were 82 Improvement of inclusive practices needs to be Children with ID or ASD in Japan: Sports Method: We investigated the condition of homeroom teachers of ordinary classes at focused on all pupils. By focusing the Instruction for Children with Mental support for children with intellectual disabilities elementary schools in Japan. improvement of inclusive practices on all pupils, Disabilities — Efforts Aimed at the Tokyo 2020 or autism spectrum disorder between ages 0 Results: The results showed that 56% of the the collective resolution of contradictions and Paralympic Games and 5, as well as counseling problems for their children were unable to request help during the development of tools and models that Takahiro Watanabe, Soichi Hashimoto, Akiko guardians and counseling about entering school break time, and 51% were unable to request facilitate collaboration among the different Hayashi, Ryo Kumagai in Japan using a survey. help during class. Also, they showed that the teacher groups is essential. Results: A survey of childcare staff showed that causes for many children who cannot seek help  Aim: This study aimed to clarify the current 10-20% of children in a class of 2 to 5 year olds reality of sports instruction of Paralympic appear to have support needs. The average

64 65 intellectual disabilities the opportunity to learn, fall into categories such as insufficient Perspective of Special Needs Education for education aimed at the 2020 Paralympic Games live, work and play in a safe environment to understanding and commitment. Children with ID or ASD in Japan: Counseling in the Japan’s special support schools for further enhance their quality of life. Conclusion: Children with special education support for students with ID and mental illness children with mental disabilities. Results: Through teacher's observations and needs cannot receive appropriate support Aki Doyama, Soichi Hashimoto, Chiaki Masu, Method: A survey was conducted of physical discussions the central finding of the study was unless they have the skills to request help when Chihiro Sugioka education teachers at the high school sections that teachers could acquire children's interest, they need it for support. Also, both teachers of special support schools for children with attention, and concentration by using simple and other children need a system for providing Aim: The purpose of this paper was to examine mental disabilities. Survey items focused on the techniques that enhances their quality of help when it is sought. the needs of support for students with ID and implementation of learning using Paralympics education.  mental illness, and considered the importance as the subject, the incorporation of each Conclusion: Based on the findings, it is advised of counseling support at special needs schools. competitive event, and participation in sports that teachers use methods such as videotaping Contradictions as Drivers for Improving Method: We analyzed the basic research data festivals. and supervision to obtain information about Inclusive Practices in Finland from the Ministry of Health, Labour and Welfare Results: Many schools used the Paralympics as other teachers’ performances. It is suggested Birgit Johanna Paju of Japan and the situation surrounding special a subject in their health and physical education. that this method might be useful in teacher needs schools’ refusal of students. Competitive events held at the Paralympics training workshops. Aim: To enhance understanding of the Furthermore, we examined practical cases of were also incorporated into classes, and in  contradictions that arise in the drive to improve school counseling at special needs schools. some schools, students participated in sports teaching practices among pupils with special Results: Accurate data on the incidence of festivals held outside of their own schools. Perspective of Inclusive Education for Children educational needs (SENs). mental illness among students with ID was not Conclusion: Widening involvement in sports with ID or ASD in Japan: A Report on the Actual Method: A questionnaire was administered to available. Moreover, the proportion of refusals through Paralympic education and increasing State of Inclusive Education in Elementary 167 classroom teachers, subject teachers, in elementary and upper secondary participation opportunities is also effective for Schools and on Requests for and Provision of special education teachers, and teaching departments at special needs schools was helping children with mental disabilities enjoy Assistance to Children assistants in Finland. higher than in mainstream schools, and it sports throughout their lifetime. Chihiro Sugioka, Kiyoshi Otomo, Takahiro Results: The analysis, based on activity theory, turned out that there was a tendency for  Watanabe revealed contradictions, differences in subject absence to be extended for a long time. In position, and distinct perceptions of the object addition, the allocation rate of school Perspective of Inclusive Education for Children Aim: Since revision of the School Education Law of activity among the teachers’ groups, which counselors at special needs schools was much with ID or ASD in Japan: Condition of Inclusive in June 2006, we have prepared a system to complicates the inclusion of SEN pupils. The lower than in mainstream schools. Childcare in Japan and Problems of Counseling actively incorporate children with special contradictions related to tension-laden Furthermore, we revealed the difference in the about School Attendance education needs into regular classes. A interactions between staff and SEN pupils, the roles of school counselors at mainstream Chiaki Masu, Akiko Hayashi, Aki Doyama, Kaori requirement for inclusive education in struggle to find a balance between scarce schools and special needs school from practical Hosokawa elementary school is help-seeking behaviour, resources and learner-centered, and the cases of school counselors. but as support staff are scheduled only once or integration of SEN pupils into mainstream Conclusion: These results indicated that it is Aim: In Japan, children with disabilities usually twice a week this may not be feasible. Thus, we groups. important to prepare a system for the participate in inclusive childcare at nursery sought in this survey to clarify the actual Conclusion: A network-based approach to prevention and discovery of mental illness schools and kindergartens. Recently, the incidence of help-seeking by children with inclusive pedagogy is proposed as a way of among students with ID, and to assign school number of children with disabilities is increasing special educational needs in regular classes of resolving these contradictions. Efforts should be counselors to them. in nursery schools. This study considered the elementary school. made to narrow the gap between special and  actual condition of inclusive childcare in Japan Method: A questionnaire survey on help- general education, and to promote new forms and problems of counseling about school seeking by children with special educational of collaboration among all the professionals. Perspective of Special Needs Education for attendance. needs was conducted. The participants were 82 Improvement of inclusive practices needs to be Children with ID or ASD in Japan: Sports Method: We investigated the condition of homeroom teachers of ordinary classes at focused on all pupils. By focusing the Instruction for Children with Mental support for children with intellectual disabilities elementary schools in Japan. improvement of inclusive practices on all pupils, Disabilities — Efforts Aimed at the Tokyo 2020 or autism spectrum disorder between ages 0 Results: The results showed that 56% of the the collective resolution of contradictions and Paralympic Games and 5, as well as counseling problems for their children were unable to request help during the development of tools and models that Takahiro Watanabe, Soichi Hashimoto, Akiko guardians and counseling about entering school break time, and 51% were unable to request facilitate collaboration among the different Hayashi, Ryo Kumagai in Japan using a survey. help during class. Also, they showed that the teacher groups is essential. Results: A survey of childcare staff showed that causes for many children who cannot seek help  Aim: This study aimed to clarify the current 10-20% of children in a class of 2 to 5 year olds reality of sports instruction of Paralympic appear to have support needs. The average

64 65 number of children who appear to have support support for children with ASD is meant to Perspective of Special Needs Education for Method: The authors reported on the current needs tended to increase with age. Results promote their self-understanding. Children with ID or ASD in Japan: Behavioral realities and efforts to provide inclusive showed that the most stressful and difficult Conclusion: In regular school education, there is Support and Lesson Creation for Children with education support in Japanese middle schools. issues for childcare staff are maintaining a clear vision for setting up a support system for an ASD: Self-Monitoring to Promote Behavior Findings were based on investigation by the relationships with the children's guardians. children with ASD. The support method is CBT Improvement government (10,421 schools) and a support From counseling regarding age for entering so that children with ASD would gain a better Hironobu Shimoda, Kiyoshi Otomo, Takuya case involving students with autism spectrum school, it was apparent that children have understanding of their developmental Miura disorder (single case). support needs other than the guardian’s chief characteristics. Results: Only 60% of schools provided complaints.  Aim: The ability to self-monitor comes from Individualized Education Programs (IEPs) for Conclusion: Childcare staff believed several accurately evaluating if efforts made towards normal grade levels in middle schools. children appear to have support needs. Effectiveness of the Short Course on Learning achieving goals are properly executed. Children Furthermore, most of these consisted of Counselors are required advise guardians based Disabilities on Teachers’ Perceptions of with an Autism Spectrum Disorder (ASD) have educators carrying out simple instructions that on not only children’s IQs and diagnoses but Inclusion of Students with Learning Disabilities difficulty self-monitoring their behavior; hence they were provided from the students’ also profiles. They are required to respond to Anoma Alwis there is often little behavioral improvement. guardians. To address this, a questionnaire was guardians’ chief complaints and advise them The objective of this research is to examine self- developed that allows children to rate their own about potential risks and countermeasure. Aim: The purpose of this study was to monitoring conditions for behavioral characteristics of their developmental  determine whether a 60-hour short course on improvement among children in special support disabilities. With these tools, we have begun to the benefits of inclusion would alter teachers’ classes. observe an increase in support based on both Perspective of Inclusive Education for Children perceptions of inclusion of children with LD in Method: Our subject was a child with ASD in an self and third-party evaluations. with ID or ASD in Japan: Current Status and general classrooms as at present the teachers elementary school sixth grade special support Conclusions: Middle schools had lower rates of Issues in Support System for Children with ASD perceive that inclusion of LD students impedes class. Conditions were set for relaying the goals IEP implementation, and were generally less Takuya Miura, Hironobu Shimoda, Junya the learning of others for activities and the points of self-monitoring in prepared to provide special needs education Kawaike Method: Fifty school teachers participated. All advance. Additionally, errors in behavior self- compared to elementary schools. However, participants had teaching experience with LD. evaluation were corrected by those providing results showed that appropriate support that Aim: This paper analyzed the current situation Ten workshops were conducted with 10 guidance. reflects individual needs of the students can be and issues in the support system in regular modules describing the identification of Results: As the ability to accurately self-monitor provided by formulating IEP that incorporates schools for children with ASD. students with LD and ways that enable teachers improved, behavior improved. feedback from the individuals in need. Method: Online searches were conducted using to actively involve students with LD in general Conclusion: The following conditions for self-  Citation Information by National institute of education classrooms. Each participant had to monitoring were considered essential: (i) setting informatics to understand the support systems carry out an action research for 6 weeks time concrete goals that are observable; (ii) using Toward Inclusive Education for Students with for children with ASD. with a selected child with LD while following the tools that objectively capture one’s own efforts Disabilities: The Gap Between Educational Law Results: Children with ASD, constituting about course. Course effectiveness determined in order to represent the status in relation to and Real Practice 1.1% of the population, are characterized as looking at the progress of children with LD, goals; (iii) correcting errors in the self- Tavee Cheausuwantavee having interpersonal relationship difficulties. In reflective notes of teachers, questionnaires and evaluation while conducting it; (iv) preparing addition, the general characteristics of ASD the interviews conducted after and before the evaluation alternatives based on the children. Aim: This study investigated the effectiveness children are that they (1) faithfully obey rules course. Approach used was qualitative. Data  of implementing educations laws, and identified and laws, (2) find it difficult to cooperate with were analyzed descriptively. the educational needs of students with other children, and (3) are hypersensitive. In Results: Results showed that the ten workshops Perspective of Inclusive Education for Children disabilities. Japan, children with ASD enrolled in regular did alter teachers’ perceptions of inclusion of with ID or ASD in Japan: Status of the Inclusive Method: Documentary study and participation classrooms are offered support from the students with learning disabilities Education System in Middle Schools action research (PAR) were conducted. Two resource room. The resource room is a system Conclusion: Findings showed that a 60-hour Ryo Kumagai, Soichi Hashimoto, Michio Kojima previous research projects by the author were set up for students in regular classrooms who short course for teachers was effective to alter reviewed. Two research sites, with 13 and 15 need additional individual or small group teachers’ previous perceptions of the benefits Aim: The purpose of this study was to research participants in private and public schools for educational activities because of their poor of inclusion of students with Learning the support systems available for children with SWDs respectively, were purposively selected. social skills. In some cases, within regular Disabilities in normal classrooms. developmental disabilities in Japanese middle The participants included teachers, classes, they also receive individual support  schools, as well as to examine the administrators, researchers, and parents of from assistants other than teachers. The characteristics of unique special needs SWDs. The data were analyzed by standard programs. qualitative methods.

66 67 number of children who appear to have support support for children with ASD is meant to Perspective of Special Needs Education for Method: The authors reported on the current needs tended to increase with age. Results promote their self-understanding. Children with ID or ASD in Japan: Behavioral realities and efforts to provide inclusive showed that the most stressful and difficult Conclusion: In regular school education, there is Support and Lesson Creation for Children with education support in Japanese middle schools. issues for childcare staff are maintaining a clear vision for setting up a support system for an ASD: Self-Monitoring to Promote Behavior Findings were based on investigation by the relationships with the children's guardians. children with ASD. The support method is CBT Improvement government (10,421 schools) and a support From counseling regarding age for entering so that children with ASD would gain a better Hironobu Shimoda, Kiyoshi Otomo, Takuya case involving students with autism spectrum school, it was apparent that children have understanding of their developmental Miura disorder (single case). support needs other than the guardian’s chief characteristics. Results: Only 60% of schools provided complaints.  Aim: The ability to self-monitor comes from Individualized Education Programs (IEPs) for Conclusion: Childcare staff believed several accurately evaluating if efforts made towards normal grade levels in middle schools. children appear to have support needs. Effectiveness of the Short Course on Learning achieving goals are properly executed. Children Furthermore, most of these consisted of Counselors are required advise guardians based Disabilities on Teachers’ Perceptions of with an Autism Spectrum Disorder (ASD) have educators carrying out simple instructions that on not only children’s IQs and diagnoses but Inclusion of Students with Learning Disabilities difficulty self-monitoring their behavior; hence they were provided from the students’ also profiles. They are required to respond to Anoma Alwis there is often little behavioral improvement. guardians. To address this, a questionnaire was guardians’ chief complaints and advise them The objective of this research is to examine self- developed that allows children to rate their own about potential risks and countermeasure. Aim: The purpose of this study was to monitoring conditions for behavioral characteristics of their developmental  determine whether a 60-hour short course on improvement among children in special support disabilities. With these tools, we have begun to the benefits of inclusion would alter teachers’ classes. observe an increase in support based on both Perspective of Inclusive Education for Children perceptions of inclusion of children with LD in Method: Our subject was a child with ASD in an self and third-party evaluations. with ID or ASD in Japan: Current Status and general classrooms as at present the teachers elementary school sixth grade special support Conclusions: Middle schools had lower rates of Issues in Support System for Children with ASD perceive that inclusion of LD students impedes class. Conditions were set for relaying the goals IEP implementation, and were generally less Takuya Miura, Hironobu Shimoda, Junya the learning of others for activities and the points of self-monitoring in prepared to provide special needs education Kawaike Method: Fifty school teachers participated. All advance. Additionally, errors in behavior self- compared to elementary schools. However, participants had teaching experience with LD. evaluation were corrected by those providing results showed that appropriate support that Aim: This paper analyzed the current situation Ten workshops were conducted with 10 guidance. reflects individual needs of the students can be and issues in the support system in regular modules describing the identification of Results: As the ability to accurately self-monitor provided by formulating IEP that incorporates schools for children with ASD. students with LD and ways that enable teachers improved, behavior improved. feedback from the individuals in need. Method: Online searches were conducted using to actively involve students with LD in general Conclusion: The following conditions for self-  Citation Information by National institute of education classrooms. Each participant had to monitoring were considered essential: (i) setting informatics to understand the support systems carry out an action research for 6 weeks time concrete goals that are observable; (ii) using Toward Inclusive Education for Students with for children with ASD. with a selected child with LD while following the tools that objectively capture one’s own efforts Disabilities: The Gap Between Educational Law Results: Children with ASD, constituting about course. Course effectiveness determined in order to represent the status in relation to and Real Practice 1.1% of the population, are characterized as looking at the progress of children with LD, goals; (iii) correcting errors in the self- Tavee Cheausuwantavee having interpersonal relationship difficulties. In reflective notes of teachers, questionnaires and evaluation while conducting it; (iv) preparing addition, the general characteristics of ASD the interviews conducted after and before the evaluation alternatives based on the children. Aim: This study investigated the effectiveness children are that they (1) faithfully obey rules course. Approach used was qualitative. Data  of implementing educations laws, and identified and laws, (2) find it difficult to cooperate with were analyzed descriptively. the educational needs of students with other children, and (3) are hypersensitive. In Results: Results showed that the ten workshops Perspective of Inclusive Education for Children disabilities. Japan, children with ASD enrolled in regular did alter teachers’ perceptions of inclusion of with ID or ASD in Japan: Status of the Inclusive Method: Documentary study and participation classrooms are offered support from the students with learning disabilities Education System in Middle Schools action research (PAR) were conducted. Two resource room. The resource room is a system Conclusion: Findings showed that a 60-hour Ryo Kumagai, Soichi Hashimoto, Michio Kojima previous research projects by the author were set up for students in regular classrooms who short course for teachers was effective to alter reviewed. Two research sites, with 13 and 15 need additional individual or small group teachers’ previous perceptions of the benefits Aim: The purpose of this study was to research participants in private and public schools for educational activities because of their poor of inclusion of students with Learning the support systems available for children with SWDs respectively, were purposively selected. social skills. In some cases, within regular Disabilities in normal classrooms. developmental disabilities in Japanese middle The participants included teachers, classes, they also receive individual support  schools, as well as to examine the administrators, researchers, and parents of from assistants other than teachers. The characteristics of unique special needs SWDs. The data were analyzed by standard programs. qualitative methods.

66 67 Results: Rights of SWDs were more delineated Conclusion: The results clearly demonstrated ORAL PRESENTATIONS – NEW CONCEPTUALIZATION OR THEORY within the broader society than they a decade that if participants with ID/DD were supported ago. For the most part, though, the at the appropriate levels and with appropriate None implementation of educational laws remains types of assistance, they could make noticeable ineffective. Participants identified challenges progress on key growth indicators leading to they coped and ways they could be addressed. independent living and integrated employment ORAL PRESENTATIONS -- VIGNETTE (CASE EXAMPLE) Educational needs for SWDs included: an outcomes. emphasis on positive attitudes toward SWDs  A Transdisciplinary and Socio-Ecological The University Practicum Placement and stakeholders, improved skills and Framework to Evaluate Inclusion in Practice in Experience of a Student with Intellectual knowledge of teachers, and better assistive Applying Educational Quality of Life (EQOL) to the Workplace: A Singapore Case-Study Disability technologies for SWDs. Inclusive Mathematics Teaching of Students Esther Joosa, Devi Kanniga, Hasinira Binte Talib, Fiona Rillotta, Lorraine Lindsay Conclusion: These findings suggest that with Down Syndrome Grace Teo, Wendy Yeo, Veeramari Gomathy collaboration among government organizations, Rhonda Faragher Description: The Up the Hill Project (established schools, and families need to be systematically Description: For many individuals with a 1999) facilitates the inclusion of students with enhanced. An active role for parents within Aim: The aim is to examine the effectiveness of cognitive disability, special education schools an intellectual disability (ID) in university, based schools/centers should be a standard the EQOL framework to explain classroom are the only option to pursue education. Too on the inclusive individual support model of organizational feature. Positive attitudes, practices of teachers of primary school often, workplace opportunities are limited. post-secondary education. Students audited six knowledge and skills of teachers, and parent mathematics including a student with Down Also, male students are preferred. Often, jobs university topics over three years, supported by involvement needs to be applied to early syndrome. are that require some physical strength or shift a peer mentor. Typically, topic choices have intervention, IEPs, and transition services. Method: The research involved detailed work. To broaden the scope of employment, been limited to those delivered on campus via  examination of 15 classrooms in a case study, and create awareness of hidden abilities, a traditional Lecture/ Tutorial format and have focusing on the practices of teachers. Analysis more integrative approach to the transition of not included practicum placements. In 2015, a Supporting Persons with DD/ID in of the data has been undertaken examining the work/study is needed. In Asia, the childcare student with ID identified a desire to undertake Postsecondary Education parts of the EQOL framework as proposed by industry is growing and offers stable job a practicum placement, just like peers without Robert A. Stodden Faragher and Van Ommen. opportunities for employment of females with ID studying human service/ clinical degrees. In Results: Aspects of teachers’ work that would disabilities. Examples of four sixteen-year-old 2016, consistent with the philosophy of a right Aim: This pilot study investigated the successful predict EQOL for students were identified. female students feature their work/study to education on equal basis, the student participation of young persons with DD/ID in Working from the Domains and Indicators, the inclusion as child-care aides in a Singapore undertook an 80-hour practicum, over 12- postsecondary education settings when study revealed that the framework is useful in childcare. weeks at a local secondary school. The supported by structured educational coaching structuring the analysis of the classroom Contribution: This real-life case study described placement involved gaining experience building activities. experience. Some aspects of the framework the factors involved in the development of a the rapport necessary for supporting secondary Method: An extensive real time qualitative and were not easily identified in the data collected, comprehensive transdisciplinary and socio- school students with disabilities (aged 12-18 quantitative evaluation/research design was these being in the domain of School ecological work/study inclusion school program. years). developed to determine if participants with Community. Student Voice was not included in With examples of a transition framework in Contribution: This paper highlights the DD/ID could actively partake within, and benefit this study that focused on the work of teachers, practice, the study contributed to deeper processes, successes and challenges of from, being involved in a postsecondary therefore, EQOL for students can only be understanding of the multiple social, emotional simulating an authentic university practicum education program of study. predicted. and cognitive dimensions. The framework placement experience from the perspective of Results: Data detailed the type and level of allowed for an evaluation of the influence of the student, her peer mentors, the Practicum supports received by each participant, and Conclusion: The EQOL framework has been factors such as community resources, education Coordinator, Supervisor, and her parents. aligned that with data showing the impact or useful as a sensitising approach to data analysis and workplace training in special education Results can be used to inform future inclusive outcome of receiving such supports related to that has provided insight into the understanding schools, teacher guidance, workplace staff practicum placement experiences for university the participants’ level of independent living and of the work of teachers in affecting the support, students’ interest and ability and the students with ID. progress toward obtaining integrated educational quality of life of their students. support of their parents. The framework has the  employment.  potential to evaluate change, address the influence socio-ecological domains and the needs of various stakeholders. 

68 69 Results: Rights of SWDs were more delineated Conclusion: The results clearly demonstrated ORAL PRESENTATIONS – NEW CONCEPTUALIZATION OR THEORY within the broader society than they a decade that if participants with ID/DD were supported ago. For the most part, though, the at the appropriate levels and with appropriate None implementation of educational laws remains types of assistance, they could make noticeable ineffective. Participants identified challenges progress on key growth indicators leading to they coped and ways they could be addressed. independent living and integrated employment ORAL PRESENTATIONS -- VIGNETTE (CASE EXAMPLE) Educational needs for SWDs included: an outcomes. emphasis on positive attitudes toward SWDs  A Transdisciplinary and Socio-Ecological The University Practicum Placement and stakeholders, improved skills and Framework to Evaluate Inclusion in Practice in Experience of a Student with Intellectual knowledge of teachers, and better assistive Applying Educational Quality of Life (EQOL) to the Workplace: A Singapore Case-Study Disability technologies for SWDs. Inclusive Mathematics Teaching of Students Esther Joosa, Devi Kanniga, Hasinira Binte Talib, Fiona Rillotta, Lorraine Lindsay Conclusion: These findings suggest that with Down Syndrome Grace Teo, Wendy Yeo, Veeramari Gomathy collaboration among government organizations, Rhonda Faragher Description: The Up the Hill Project (established schools, and families need to be systematically Description: For many individuals with a 1999) facilitates the inclusion of students with enhanced. An active role for parents within Aim: The aim is to examine the effectiveness of cognitive disability, special education schools an intellectual disability (ID) in university, based schools/centers should be a standard the EQOL framework to explain classroom are the only option to pursue education. Too on the inclusive individual support model of organizational feature. Positive attitudes, practices of teachers of primary school often, workplace opportunities are limited. post-secondary education. Students audited six knowledge and skills of teachers, and parent mathematics including a student with Down Also, male students are preferred. Often, jobs university topics over three years, supported by involvement needs to be applied to early syndrome. are that require some physical strength or shift a peer mentor. Typically, topic choices have intervention, IEPs, and transition services. Method: The research involved detailed work. To broaden the scope of employment, been limited to those delivered on campus via  examination of 15 classrooms in a case study, and create awareness of hidden abilities, a traditional Lecture/ Tutorial format and have focusing on the practices of teachers. Analysis more integrative approach to the transition of not included practicum placements. In 2015, a Supporting Persons with DD/ID in of the data has been undertaken examining the work/study is needed. In Asia, the childcare student with ID identified a desire to undertake Postsecondary Education parts of the EQOL framework as proposed by industry is growing and offers stable job a practicum placement, just like peers without Robert A. Stodden Faragher and Van Ommen. opportunities for employment of females with ID studying human service/ clinical degrees. In Results: Aspects of teachers’ work that would disabilities. Examples of four sixteen-year-old 2016, consistent with the philosophy of a right Aim: This pilot study investigated the successful predict EQOL for students were identified. female students feature their work/study to education on equal basis, the student participation of young persons with DD/ID in Working from the Domains and Indicators, the inclusion as child-care aides in a Singapore undertook an 80-hour practicum, over 12- postsecondary education settings when study revealed that the framework is useful in childcare. weeks at a local secondary school. The supported by structured educational coaching structuring the analysis of the classroom Contribution: This real-life case study described placement involved gaining experience building activities. experience. Some aspects of the framework the factors involved in the development of a the rapport necessary for supporting secondary Method: An extensive real time qualitative and were not easily identified in the data collected, comprehensive transdisciplinary and socio- school students with disabilities (aged 12-18 quantitative evaluation/research design was these being in the domain of School ecological work/study inclusion school program. years). developed to determine if participants with Community. Student Voice was not included in With examples of a transition framework in Contribution: This paper highlights the DD/ID could actively partake within, and benefit this study that focused on the work of teachers, practice, the study contributed to deeper processes, successes and challenges of from, being involved in a postsecondary therefore, EQOL for students can only be understanding of the multiple social, emotional simulating an authentic university practicum education program of study. predicted. and cognitive dimensions. The framework placement experience from the perspective of Results: Data detailed the type and level of allowed for an evaluation of the influence of the student, her peer mentors, the Practicum supports received by each participant, and Conclusion: The EQOL framework has been factors such as community resources, education Coordinator, Supervisor, and her parents. aligned that with data showing the impact or useful as a sensitising approach to data analysis and workplace training in special education Results can be used to inform future inclusive outcome of receiving such supports related to that has provided insight into the understanding schools, teacher guidance, workplace staff practicum placement experiences for university the participants’ level of independent living and of the work of teachers in affecting the support, students’ interest and ability and the students with ID. progress toward obtaining integrated educational quality of life of their students. support of their parents. The framework has the  employment.  potential to evaluate change, address the influence socio-ecological domains and the needs of various stakeholders. 

68 69 POSTER PRESENTATIONS -- RESEARCH REPORT Aim: To assess the appropriateness of teachers’ Method: We conducted a mail survey for evaluations of students’ behavior and/or elementary special support school teachers Development of Executive Function Learning learning and development. Learning disability learning problems and to investigate the (N=259) across Japan. Management Model to Promote Readiness in involves various cognitive and special correlation between figure drawing and the Results: Teachers replied that children with Early Childhood with LD and ADHD educational approaches. Implications for theory teachers’ assessments. Down's syndrome had significantly strong Jiraporn Chano and educational practice are discussed. Method: From 2015-2016, a follow-up survey support needs for “difficulty of speech”,  was performed for children from a western “strength of insistence on sameness”, “problem Aim: Specific learning disabilities (LD), such as region of Japan, aged 6 to 12 years who were of fitness”, and “inadequate sense of distance”. dyslexia or spelling, writing, or math disorder, Characteristics of Self-Monitoring Related to suspected of having developmental disabilities. Four clusters of needs were derived from the share a number of the outward ADHD Problem-Solving for Adults with Intellectual Teachers had assessed children’s behavior and cluster analysis: 1. linguistic (N=66); 2. diverse symptom. These may be difficulty following Disabilities learning problems. The Draw-a-Man Test (DAM (N=86); 3. languages/exercise (N=66); and 4. instructions or shifting from one uncompleted Fumio Imaeda, Atsushi Kanno test) was also conducted to analyze correlations circumscribed interest (N=37). Differences with task to another, but may be more bound up between scores, DAM Items, and diagnosis. other obstacles included: “Consideration for with the LD as the core issue to be resolved. Aim: This study was conducted to clarify the Results: 20 children were evaluated as having physical fitness handicap” (21%), “Good Children who receive a diagnosis of ADHD also relationship between self-monitoring, problem- problems by two different teachers who had interpersonal relationship” (13%), “Visual have co-occurring learning disabilities. solving and mental-age (MA) for adults with taught them for a year. They were diagnosed as support” (14%), and “Praise” (12%). These were The aim of this research was to develop an intellectual disabilities through conducting a having ASD (14), ADHD (ADD) (11), and LD (10), proposed as effective support methods. executive function learning management model “Planning task” using the Das Naglieri Cognitive and half of the children had more than two Teachers’ responses to difficult transition times to promote readiness in young children with Assessment System (DN-CAS). diagnoses. Different assessment results were included, “Show visually the procedure of ADHD. Method: This study was conducted using a observed between teachers even for the same activities” (23%) and “Give notice of time” Method: Phase 1 was a contextual study and survey of 55 adults with intellectual disabilities student. Moreover, the assessment by teachers (19%). In both cases, almost similar trends were screening for preterm children with ADHD. (mean chronological age=31.9 years, SD=8.4; did not match the children’s diagnosis correctly. seen across the four clusters. Population: children aged 5-6 were studied in mean mental age=6.9 years, SD=1.9) using a For instance, none of children who were Conclusion: In this study, cluster analysis 295 Mahasarakham municipality schools in the strategy assessment checklist contained in suspected of having writing problems met the responses were classified into 4 categories. The 2016 academic year. Phase 2, research drafting, three sub-tests in “Planning tasks.” We criteria of dysgraphia, but 60% of them had met need to focus on each type became clear. On developed an executive function learning calculated concordance rates between the the criteria for ASD + ADD, whereas 28% of the other hand, even though teachers management model to promote readiness in examiner’s observation and an examinee’s children whom teachers assessed as having ASD recognized that there are individual differences young children with ADHD. report to clarify correlations with MA. did not display the Triad of Impairments. There in support needs, the support methods for Results: The executive function learning Results: Results revealed that the averages of were statistically significant correlations these needs were uniform. management model to promote readiness in strategy concordance rates were 8.3% for MA of between developmental disabilities and several  early childhood with ADHD, namely the BASE 5 years and 42.9% for MA of 7 years, which rose DAM items. executive function learning management about fivefold between MA of 6 years and MA Conclusion: These results suggest that, in Japan, Research on Vocational Education and model, consists of 4 steps. Step 1 B:Brain Gym, of 7 years. The average reached 100% at MA of there was a gap between assessments by Transition Services for Chinese Students with Step 2 A: Activity and EFs Task, Step 3 S: 9 years. Analysis of the correlation between teachers for children’s behavior and/or learning Intellectual Disability in Special Education Summary and Reflection, Step 4 E: examinees’ number of strategy concordances problems, and diagnosis, especially ASD and Schools in Hubei Evaluations. To promote readiness in young and MA revealed a significant correlation. dysgraphia. Juan Tang, Yanli Ding, Tianxi Xu children with ADHD, the following were Conclusion: Metacognition associated with self-  assessed: physical well-being, emotional and monitoring in typically developed individuals Aim: Vocational education and transition mental readiness, social readiness and reportedly develops between the ages of 5 A Survey Report on Support Needs and services have gained more currency in recent intelligence. This model focusses on inhibitory years and 6 years, which is roughly consistent Support Measures for Children with Down's years, but very few vocation education control, which is the ability to master thoughts with our study results. Syndrome in Japan programs exist for students with intellectual and impulses so as to resist temptation,  Sujin Lee, Soichi Hashimoto, Ryo Kumagai, disability in Chinese special education schools. distractions, and habits, and to pause and think Chiaki Masu The present study aimed to investigate the before acting. Even more, attention and Do Teachers Correctly Assess Students with concerns and barriers for special education emotional control are important. Behavior and/or Learning Problems in Regular Aim: We surveyed teachers at elementary schools, and to explore potential solutions for Conclusion: Executive function and self- Class? special support schools concerning the special establishing effective vocational education and regulation skills provide critical supports for Rika Ochiai, Daisuke Motoyoshi, Hideyo Goma support needs and effective support methods transition services. for children with Down’s syndrome.

70 71 POSTER PRESENTATIONS -- RESEARCH REPORT Aim: To assess the appropriateness of teachers’ Method: We conducted a mail survey for evaluations of students’ behavior and/or elementary special support school teachers Development of Executive Function Learning learning and development. Learning disability learning problems and to investigate the (N=259) across Japan. Management Model to Promote Readiness in involves various cognitive and special correlation between figure drawing and the Results: Teachers replied that children with Early Childhood with LD and ADHD educational approaches. Implications for theory teachers’ assessments. Down's syndrome had significantly strong Jiraporn Chano and educational practice are discussed. Method: From 2015-2016, a follow-up survey support needs for “difficulty of speech”,  was performed for children from a western “strength of insistence on sameness”, “problem Aim: Specific learning disabilities (LD), such as region of Japan, aged 6 to 12 years who were of fitness”, and “inadequate sense of distance”. dyslexia or spelling, writing, or math disorder, Characteristics of Self-Monitoring Related to suspected of having developmental disabilities. Four clusters of needs were derived from the share a number of the outward ADHD Problem-Solving for Adults with Intellectual Teachers had assessed children’s behavior and cluster analysis: 1. linguistic (N=66); 2. diverse symptom. These may be difficulty following Disabilities learning problems. The Draw-a-Man Test (DAM (N=86); 3. languages/exercise (N=66); and 4. instructions or shifting from one uncompleted Fumio Imaeda, Atsushi Kanno test) was also conducted to analyze correlations circumscribed interest (N=37). Differences with task to another, but may be more bound up between scores, DAM Items, and diagnosis. other obstacles included: “Consideration for with the LD as the core issue to be resolved. Aim: This study was conducted to clarify the Results: 20 children were evaluated as having physical fitness handicap” (21%), “Good Children who receive a diagnosis of ADHD also relationship between self-monitoring, problem- problems by two different teachers who had interpersonal relationship” (13%), “Visual have co-occurring learning disabilities. solving and mental-age (MA) for adults with taught them for a year. They were diagnosed as support” (14%), and “Praise” (12%). These were The aim of this research was to develop an intellectual disabilities through conducting a having ASD (14), ADHD (ADD) (11), and LD (10), proposed as effective support methods. executive function learning management model “Planning task” using the Das Naglieri Cognitive and half of the children had more than two Teachers’ responses to difficult transition times to promote readiness in young children with Assessment System (DN-CAS). diagnoses. Different assessment results were included, “Show visually the procedure of ADHD. Method: This study was conducted using a observed between teachers even for the same activities” (23%) and “Give notice of time” Method: Phase 1 was a contextual study and survey of 55 adults with intellectual disabilities student. Moreover, the assessment by teachers (19%). In both cases, almost similar trends were screening for preterm children with ADHD. (mean chronological age=31.9 years, SD=8.4; did not match the children’s diagnosis correctly. seen across the four clusters. Population: children aged 5-6 were studied in mean mental age=6.9 years, SD=1.9) using a For instance, none of children who were Conclusion: In this study, cluster analysis 295 Mahasarakham municipality schools in the strategy assessment checklist contained in suspected of having writing problems met the responses were classified into 4 categories. The 2016 academic year. Phase 2, research drafting, three sub-tests in “Planning tasks.” We criteria of dysgraphia, but 60% of them had met need to focus on each type became clear. On developed an executive function learning calculated concordance rates between the the criteria for ASD + ADD, whereas 28% of the other hand, even though teachers management model to promote readiness in examiner’s observation and an examinee’s children whom teachers assessed as having ASD recognized that there are individual differences young children with ADHD. report to clarify correlations with MA. did not display the Triad of Impairments. There in support needs, the support methods for Results: The executive function learning Results: Results revealed that the averages of were statistically significant correlations these needs were uniform. management model to promote readiness in strategy concordance rates were 8.3% for MA of between developmental disabilities and several  early childhood with ADHD, namely the BASE 5 years and 42.9% for MA of 7 years, which rose DAM items. executive function learning management about fivefold between MA of 6 years and MA Conclusion: These results suggest that, in Japan, Research on Vocational Education and model, consists of 4 steps. Step 1 B:Brain Gym, of 7 years. The average reached 100% at MA of there was a gap between assessments by Transition Services for Chinese Students with Step 2 A: Activity and EFs Task, Step 3 S: 9 years. Analysis of the correlation between teachers for children’s behavior and/or learning Intellectual Disability in Special Education Summary and Reflection, Step 4 E: examinees’ number of strategy concordances problems, and diagnosis, especially ASD and Schools in Hubei Evaluations. To promote readiness in young and MA revealed a significant correlation. dysgraphia. Juan Tang, Yanli Ding, Tianxi Xu children with ADHD, the following were Conclusion: Metacognition associated with self-  assessed: physical well-being, emotional and monitoring in typically developed individuals Aim: Vocational education and transition mental readiness, social readiness and reportedly develops between the ages of 5 A Survey Report on Support Needs and services have gained more currency in recent intelligence. This model focusses on inhibitory years and 6 years, which is roughly consistent Support Measures for Children with Down's years, but very few vocation education control, which is the ability to master thoughts with our study results. Syndrome in Japan programs exist for students with intellectual and impulses so as to resist temptation,  Sujin Lee, Soichi Hashimoto, Ryo Kumagai, disability in Chinese special education schools. distractions, and habits, and to pause and think Chiaki Masu The present study aimed to investigate the before acting. Even more, attention and Do Teachers Correctly Assess Students with concerns and barriers for special education emotional control are important. Behavior and/or Learning Problems in Regular Aim: We surveyed teachers at elementary schools, and to explore potential solutions for Conclusion: Executive function and self- Class? special support schools concerning the special establishing effective vocational education and regulation skills provide critical supports for Rika Ochiai, Daisuke Motoyoshi, Hideyo Goma support needs and effective support methods transition services. for children with Down’s syndrome.

70 71 Method: Principals or deputy principals of 80 and explosive strength was seen in Y3. Students Physicians should give temperament guidance Method: First grade class teachers (n = 213) of special education schools in Hubei were in Y3 had greater BMI than in Y1, and 48.0% of for better emotional and behavioural outcomes. elementary schools in metropolitan areas in interviewed. All interviews were audio- the samples in Y3 were overweight/obese. No  Japan were surveyed. The homeroom teacher recorded, transcribed and analysed using the significant changes in cardiovascular fitness and was questioned regarding a child with the least thematic analysis approach. flexibility were observed across time. The Relationships between Sensory Integration learning difficulties in class (n=213). Results: The research found that lack of Conclusion: Future attempts to have better and Academic Skills of School-Age Children Results: The target children had been in school government support, low parental expectation fitness outcomes may need to put emphasis on with Autism for four months. Results revealed that the and involvement, and a dearth of qualified the improvement of the APE program. Phakawan Sutthiwong foremost learning difficulty was “difficulty in professionals are the top-ranking barriers for  understanding learning content” (164 people; special education schools to operate vocational Aim: This correlation study investigated the 78.1%), followed by “difficulty in understanding education and transition programs. However, Preschool Teachers’ and Parents’ relationships between: adaptive behaviors that language” (129 people; 61.4%), and “difficulty in customised vocational education based on local Understanding of Early Childhood show good processing; the integration of explaining to others” (114 people; 54.3%) resources and labour market needs are features Temperament in an Asian Culture – sensory information; and functional (duplicate answer). Several teachers mentioned of those schools in which vocational education Implications for Child Health and Development performance for academic skills in school age “acquisition of learning skills” (91 people; programs are in operation. Ying Qi Kang, Charmaine Teo Min, Shen Liang, children with autism. 42.7%) and “learning attitude / interest” (69 Conclusion: The study concluded that more Shang Chee Chong Method: 50 school age children with autism people; 32.4%) as pre-school readiness government support and incentives should be were evaluated with clinical observations for requirements. provided to special education schools; in- Aim: To study preschool teachers’ and parents’ evaluation in sensory integration and functional Conclusion: Children with suspected mild services training should be offered to principals understanding of early childhood temperament performance for academic skills. Correlation intellectual disabilities or learning disabilities and key teachers in special education schools, and their perception of the manageability of and regression analyses were computed. who display difficulties immediately after parents of students with intellectual disability, different temperament traits in Singapore. Results: Significant correlations were found entering elementary school largely display their and relevant government officials. Method: This cross-sectional study used self- between adaptive behaviors that show normal own innate characteristics. In addition,  administered questionnaires with teachers integration and school functional performance motivation for learning and insufficiency of (n=104) and parents (n=268) of children aged 3 in motor coordination, writing, reading, learning skills were clarified. Implementation of Changes in the Physical Fitness Profiles of High- to 6 years. In addition, parents completed the calculation, and communication. preschool readiness that not only comprehends School Students with Intellectual Disabilities Carey Temperament Scale and teachers rated Conclusion: Adaptive behaviors that show good and responds to the child’s disability Cheng Chen Pan their exposure to temperament teaching within processing and integration of sensory characteristics but also prevents learning the preschool teachers’ curriculum. information or occupational therapy using difficulties is required. Aim: The study aimed to investigate the Results: Parents and teachers both reported sensory integration should be considered when  physical fitness profile of high-school students that temperament is affected by gender and planning treatment to improve academic skills with ID before and after a three-year adapted can be changed by discipline and the in school age children with autism. Supporting the Inner World of Students with physical education (APE) program in a public environment. A higher proportion of parents  Intellectual Disabilities special education school in Taiwan. than teachers answered that temperament Shuhei Ogawa, Michio Kojima Method: A total of 57 students with ID (boys: remains largely constant despite age. Teachers Learning Difficulties of Elementary School 36, girls: 21; mean age = 15.9 ± 0.4 in the year had higher ratings of difficulties in managing Children in Inclusive Education in Japan - Aim: There is a growing demand to investigate of enrollment) were annually screened with children compared to parents for traits such as Research on Children with Suspected Mild the inner world, including that of the self- fitness tests over a three-year period (Y1, Y2, high activity (p=0.002), low mood (p=0.031) and Intellectual Disabilities and Learning understanding of students with intellectual and Y3). The measurement of the physical low sensory threshold (p=0.001). A higher Disabilities disabilities in special needs schools in Japan, fitness profile included explosive strength, proportion of parents rated the withdrawn Saika Sugiura from the perspective of career education. This cardiovascular fitness, muscular strength, (p=0.304) and non-persistent child (p=0.040) as study investigated research trends on the inner flexibility, and body composition. difficult to handle compared to teachers. There Aim: This study focuses on children with world of students with intellectual disabilities in Results: The results of the repeated measure were differences in the temperament of suspected mild intellectual disabilities or Japan. ANOVA revealed that several significant main Singapore children when compared to US learning disabilities among elementary school Method: The reality and problems were effects over time were reflected in body norms. Only 11.5% of teachers responded that children in Japan. In this research, we clarified: investigated by analyzing Japanese literature composition between Y1 and Y3, muscular they had received adequate training on (1) teachers’ perceptions of existing difficulties related to people with intellectual disabilities. strength between Y1 and Y3 and between Y2 childhood temperament. and (2) their perceptions of preschool readiness Results: Studies on self-understanding and self- and Y3, and explosive strength between Y1 and Conclusion: Knowledge and understanding of requirements. evaluation of people with intellectual Y3. The improvement of the muscular strength temperament is limited in parents and teachers. disabilities have been conducted in Japan to a

72 73 Method: Principals or deputy principals of 80 and explosive strength was seen in Y3. Students Physicians should give temperament guidance Method: First grade class teachers (n = 213) of special education schools in Hubei were in Y3 had greater BMI than in Y1, and 48.0% of for better emotional and behavioural outcomes. elementary schools in metropolitan areas in interviewed. All interviews were audio- the samples in Y3 were overweight/obese. No  Japan were surveyed. The homeroom teacher recorded, transcribed and analysed using the significant changes in cardiovascular fitness and was questioned regarding a child with the least thematic analysis approach. flexibility were observed across time. The Relationships between Sensory Integration learning difficulties in class (n=213). Results: The research found that lack of Conclusion: Future attempts to have better and Academic Skills of School-Age Children Results: The target children had been in school government support, low parental expectation fitness outcomes may need to put emphasis on with Autism for four months. Results revealed that the and involvement, and a dearth of qualified the improvement of the APE program. Phakawan Sutthiwong foremost learning difficulty was “difficulty in professionals are the top-ranking barriers for  understanding learning content” (164 people; special education schools to operate vocational Aim: This correlation study investigated the 78.1%), followed by “difficulty in understanding education and transition programs. However, Preschool Teachers’ and Parents’ relationships between: adaptive behaviors that language” (129 people; 61.4%), and “difficulty in customised vocational education based on local Understanding of Early Childhood show good processing; the integration of explaining to others” (114 people; 54.3%) resources and labour market needs are features Temperament in an Asian Culture – sensory information; and functional (duplicate answer). Several teachers mentioned of those schools in which vocational education Implications for Child Health and Development performance for academic skills in school age “acquisition of learning skills” (91 people; programs are in operation. Ying Qi Kang, Charmaine Teo Min, Shen Liang, children with autism. 42.7%) and “learning attitude / interest” (69 Conclusion: The study concluded that more Shang Chee Chong Method: 50 school age children with autism people; 32.4%) as pre-school readiness government support and incentives should be were evaluated with clinical observations for requirements. provided to special education schools; in- Aim: To study preschool teachers’ and parents’ evaluation in sensory integration and functional Conclusion: Children with suspected mild services training should be offered to principals understanding of early childhood temperament performance for academic skills. Correlation intellectual disabilities or learning disabilities and key teachers in special education schools, and their perception of the manageability of and regression analyses were computed. who display difficulties immediately after parents of students with intellectual disability, different temperament traits in Singapore. Results: Significant correlations were found entering elementary school largely display their and relevant government officials. Method: This cross-sectional study used self- between adaptive behaviors that show normal own innate characteristics. In addition,  administered questionnaires with teachers integration and school functional performance motivation for learning and insufficiency of (n=104) and parents (n=268) of children aged 3 in motor coordination, writing, reading, learning skills were clarified. Implementation of Changes in the Physical Fitness Profiles of High- to 6 years. In addition, parents completed the calculation, and communication. preschool readiness that not only comprehends School Students with Intellectual Disabilities Carey Temperament Scale and teachers rated Conclusion: Adaptive behaviors that show good and responds to the child’s disability Cheng Chen Pan their exposure to temperament teaching within processing and integration of sensory characteristics but also prevents learning the preschool teachers’ curriculum. information or occupational therapy using difficulties is required. Aim: The study aimed to investigate the Results: Parents and teachers both reported sensory integration should be considered when  physical fitness profile of high-school students that temperament is affected by gender and planning treatment to improve academic skills with ID before and after a three-year adapted can be changed by discipline and the in school age children with autism. Supporting the Inner World of Students with physical education (APE) program in a public environment. A higher proportion of parents  Intellectual Disabilities special education school in Taiwan. than teachers answered that temperament Shuhei Ogawa, Michio Kojima Method: A total of 57 students with ID (boys: remains largely constant despite age. Teachers Learning Difficulties of Elementary School 36, girls: 21; mean age = 15.9 ± 0.4 in the year had higher ratings of difficulties in managing Children in Inclusive Education in Japan - Aim: There is a growing demand to investigate of enrollment) were annually screened with children compared to parents for traits such as Research on Children with Suspected Mild the inner world, including that of the self- fitness tests over a three-year period (Y1, Y2, high activity (p=0.002), low mood (p=0.031) and Intellectual Disabilities and Learning understanding of students with intellectual and Y3). The measurement of the physical low sensory threshold (p=0.001). A higher Disabilities disabilities in special needs schools in Japan, fitness profile included explosive strength, proportion of parents rated the withdrawn Saika Sugiura from the perspective of career education. This cardiovascular fitness, muscular strength, (p=0.304) and non-persistent child (p=0.040) as study investigated research trends on the inner flexibility, and body composition. difficult to handle compared to teachers. There Aim: This study focuses on children with world of students with intellectual disabilities in Results: The results of the repeated measure were differences in the temperament of suspected mild intellectual disabilities or Japan. ANOVA revealed that several significant main Singapore children when compared to US learning disabilities among elementary school Method: The reality and problems were effects over time were reflected in body norms. Only 11.5% of teachers responded that children in Japan. In this research, we clarified: investigated by analyzing Japanese literature composition between Y1 and Y3, muscular they had received adequate training on (1) teachers’ perceptions of existing difficulties related to people with intellectual disabilities. strength between Y1 and Y3 and between Y2 childhood temperament. and (2) their perceptions of preschool readiness Results: Studies on self-understanding and self- and Y3, and explosive strength between Y1 and Conclusion: Knowledge and understanding of requirements. evaluation of people with intellectual Y3. The improvement of the muscular strength temperament is limited in parents and teachers. disabilities have been conducted in Japan to a

72 73 certain extent. Comparisons with typically Conclusion: It was suggested that further Track 4. Health through the lifespan developing children have indicated that studies should be conducted on the self- chronological age and mental age affect self- understanding of people with intellectual understanding and self-evaluation in children disabilities. Moreover, methodology for ORAL PRESENTATIONS – RESEARCH REPORTS with intellectual disabilities, although neither of assessing abstract concepts such as subjective these was a determinant factor. However, well-being should be developed. Practical Vulnerability and Strengths of Disaster- Aim: The aim of the study was to examine investigations of the inner world conducted by studies for deepening self-understanding have Affected Children with Developmental attentional bias towards positive and negative using abstract question items such as self- not been sufficiently undertaken in special Disabilities: Experiences from the 2016 images amongst men with intellectual esteem and subjective well-being have not been needs schools in Japan. Kumamoto Earthquakes, Japan disabilities, some of whom had a history of conducted to date.  Hiroko Furuta, Yukari Ayado criminal offending. A secondary aim was to explore the relationship between attentional Aim: Two powerful earthquakes hit the bias, empathy and distorted cognitions. southern Japanese city of Kumamoto and Method: Forty-six men with intellectual POSTER PRESENTATIONS – NEW CONCEPTUALIZATION, THEORY, EXEMPLARY PRACTICE, OR nearby towns in April 2016. This study aims, disabilities with a history of criminal offending POLICY STRATEGY firstly, to describe the experiences of children and 51 men with intellectual disabilities without with developmental disabilities (CwDDs), and any known history of criminal offending were None secondly, to clarify the vulnerabilities and recruited and invited to complete a dot-probe strengths identified amongst these children at paradigm using images, as well as measures of the time of the disaster. distorted cognitions and empathy. Comparisons ROUNDTABLES Method: Semi-structured interviews were were made between the two groups. conducted individually with sixteen caregivers. Results: Non-offenders had a significant None They had twenty CwDDs aged six to fourteen, attentional bias away from negative images, half with intellectual disabilities. while offenders had a small attentional bias Results: It was revealed that eleven of fifteen towards negative images. There was a DEMONSTRATIONS families who had evacuated outside their significant positive relationship between homes during the earthquakes were unable to distorted cognitions and an attentional bias Teaching Music for Students with Special learning music, students gain music content and make use of local evacuation shelters, mainly towards negative images. There was a Needs Based on Kodaly's Approach at skills such as listening, singing, reading, because of reasons related to their children's significant negative relationship between Chulalongkorn University Demonstration performing, creating and moving along with physical and psychological vulnerabilities. empathy and an attentional bias towards School music, based on rhythmic and pitch concepts. Therefore, most of them stayed in their family negative images. Narutt Suttachitt Hand signs and rhythmic syllables based on cars overnight. Secondly, before school Conclusion: Innovative attention bias Kodaly’s approach have been used. reopened three weeks after the disaster, modification methods should now be developed Description: The focus is the methodology of Contribution: The demonstration showed how resources providing temporary daytime care for and piloted with offenders with intellectual teaching Music for Children with special needs special students learn music content and skills CwDDs were scarce, especially for those with disabilities which could form part of clinical based on Kodaly's approach at Chulalongkorn and demonstrated their potential for intellectual disabilities. Finally, strengths of interventions if shown to be effective. University Demonstration School. The enjoyment. The methodology also enhanced CwDDs were observed both in terms of  methodology, which has been developed by the their life skills, emotional development, and adjustment/ recovery process and when they writer over the past thirty years, emphasizes music appreciation. Finally, it showed how took on supporting roles for others who had Preliminary Study of Self-esteem and the process of learning music in terms of the music teachers can contribute to all aspects of also suffered. Subjective Well-being in Persons with Autism basic elements of music, that is, rhythm and the development of special needs students by Conclusion: It was suggested that CwDDs not Spectrum Disorders pitch. In addition, the social domain enhances building a positive relationship with each only needed protection but were also capable Michio Kojima students’ life skills. During the process of student. of assisting others at the time of the disaster.   Aim: A cross-sectional investigation regarding the characteristics of self-esteem and subjective Attentional Bias towards Positive and Negative well-being was conducted in persons with Images amongst Offenders and Non-Offenders Autism Spectrum Disorders(ASD). with Intellectual Disabilities Method: Participants were junior and senior Susan Sadek, Matthew Daniel, Peter E. Langdon high school students, university and vocational

74 75 certain extent. Comparisons with typically Conclusion: It was suggested that further Track 4. Health through the lifespan developing children have indicated that studies should be conducted on the self- chronological age and mental age affect self- understanding of people with intellectual understanding and self-evaluation in children disabilities. Moreover, methodology for ORAL PRESENTATIONS – RESEARCH REPORTS with intellectual disabilities, although neither of assessing abstract concepts such as subjective these was a determinant factor. However, well-being should be developed. Practical Vulnerability and Strengths of Disaster- Aim: The aim of the study was to examine investigations of the inner world conducted by studies for deepening self-understanding have Affected Children with Developmental attentional bias towards positive and negative using abstract question items such as self- not been sufficiently undertaken in special Disabilities: Experiences from the 2016 images amongst men with intellectual esteem and subjective well-being have not been needs schools in Japan. Kumamoto Earthquakes, Japan disabilities, some of whom had a history of conducted to date.  Hiroko Furuta, Yukari Ayado criminal offending. A secondary aim was to explore the relationship between attentional Aim: Two powerful earthquakes hit the bias, empathy and distorted cognitions. southern Japanese city of Kumamoto and Method: Forty-six men with intellectual POSTER PRESENTATIONS – NEW CONCEPTUALIZATION, THEORY, EXEMPLARY PRACTICE, OR nearby towns in April 2016. This study aims, disabilities with a history of criminal offending POLICY STRATEGY firstly, to describe the experiences of children and 51 men with intellectual disabilities without with developmental disabilities (CwDDs), and any known history of criminal offending were None secondly, to clarify the vulnerabilities and recruited and invited to complete a dot-probe strengths identified amongst these children at paradigm using images, as well as measures of the time of the disaster. distorted cognitions and empathy. Comparisons ROUNDTABLES Method: Semi-structured interviews were were made between the two groups. conducted individually with sixteen caregivers. Results: Non-offenders had a significant None They had twenty CwDDs aged six to fourteen, attentional bias away from negative images, half with intellectual disabilities. while offenders had a small attentional bias Results: It was revealed that eleven of fifteen towards negative images. There was a DEMONSTRATIONS families who had evacuated outside their significant positive relationship between homes during the earthquakes were unable to distorted cognitions and an attentional bias Teaching Music for Students with Special learning music, students gain music content and make use of local evacuation shelters, mainly towards negative images. There was a Needs Based on Kodaly's Approach at skills such as listening, singing, reading, because of reasons related to their children's significant negative relationship between Chulalongkorn University Demonstration performing, creating and moving along with physical and psychological vulnerabilities. empathy and an attentional bias towards School music, based on rhythmic and pitch concepts. Therefore, most of them stayed in their family negative images. Narutt Suttachitt Hand signs and rhythmic syllables based on cars overnight. Secondly, before school Conclusion: Innovative attention bias Kodaly’s approach have been used. reopened three weeks after the disaster, modification methods should now be developed Description: The focus is the methodology of Contribution: The demonstration showed how resources providing temporary daytime care for and piloted with offenders with intellectual teaching Music for Children with special needs special students learn music content and skills CwDDs were scarce, especially for those with disabilities which could form part of clinical based on Kodaly's approach at Chulalongkorn and demonstrated their potential for intellectual disabilities. Finally, strengths of interventions if shown to be effective. University Demonstration School. The enjoyment. The methodology also enhanced CwDDs were observed both in terms of  methodology, which has been developed by the their life skills, emotional development, and adjustment/ recovery process and when they writer over the past thirty years, emphasizes music appreciation. Finally, it showed how took on supporting roles for others who had Preliminary Study of Self-esteem and the process of learning music in terms of the music teachers can contribute to all aspects of also suffered. Subjective Well-being in Persons with Autism basic elements of music, that is, rhythm and the development of special needs students by Conclusion: It was suggested that CwDDs not Spectrum Disorders pitch. In addition, the social domain enhances building a positive relationship with each only needed protection but were also capable Michio Kojima students’ life skills. During the process of student. of assisting others at the time of the disaster.   Aim: A cross-sectional investigation regarding the characteristics of self-esteem and subjective Attentional Bias towards Positive and Negative well-being was conducted in persons with Images amongst Offenders and Non-Offenders Autism Spectrum Disorders(ASD). with Intellectual Disabilities Method: Participants were junior and senior Susan Sadek, Matthew Daniel, Peter E. Langdon high school students, university and vocational

74 75 school students, and adults, diagnosed as Edition and the Social Communication pathway activity, and that monitoring changes disabilities (PIMD) is unknown. The objectives of ASD(N=24). Questionnaire survey was Questionnaire. in sAA levels may inform the short-term impacts this study were to determine which elements conducted on self-esteem and subjective well- Results: Wide variability was found in levels of of therapeutic treatments in adolescents with contribute to QoL according to parents and being. Participants were classified into two symptomatology across the four ASC-ASD ASD, providing critical information in the physicians, how QoL is incorporated into EoLDM groups i.e. junior and senior high school subscales. The most frequently reported items context of both clinical and non-clinical care. and how parents and physicians discuss QoL students (N=12, mean age=14.4)and were from the ‘uncertainty’ subscale, with six of  considerations. university/vocational school students and the eight items occurring “sometimes” or more Method: We conducted semi-structured adults(N=12, mean age=23.1), and cross- in over 80% of children. The least frequently Effects of the TedA4I Program on Child interviews with the physicians and parents of sectional changes were examined. reported items were in the ‘anxious arousal’ Development of Children with Development children with PIMD for whom an EoLD was Results: The results indicated no significant subscale. and Intellectual Disabilities made. differences in self-esteem and subjective well- Conclusion: Identifying symptoms of anxiety in Panida Ratanapairoj Results: We interviewed 17 parents of 14 being scores between two groups. Moreover, young children on the spectrum can inform children and 11 treating physicians. Parents and there were no significant differences in any intervention efforts to improve their quality of Aim: To assess the effectiveness of the TEDA4I physicians agreed that the main elements subjective well-being domain between the two life. Early identification provides opportunities Program in Children with intellectual disability. contributing to QoL were 'the ability to enjoy', groups. to intervene early in order to prevent or reduce Method: Children with intellectual disability, 'absence of medical problems', and 'comfort'. Conclusion: Significant differences were not the risk of anxiety disorder in this population. aged between 2 and 6 years (n = 30) were How QoL was incorporated differed slightly for shown in self-esteem and subjective well-being  recruited. Participants attended the TEDA4I different types of decisions. Parents and between the two groups, which suggest that clinic at Rajanukul Institute, Thailand for 12 physicians rarely discussed elements that they there were no developmental changes. Therapy Sessions in Adolescents with Autism weeks. TEDA Index data were collected before considered the most important for the child's Moreover, there were no differences in the sub- Spectrum Disorder Reduce Stress-Related and after attending the program to evaluate QoL when making EoLDs. domains of subjective well-being. It is Salivary Alpha Amylase Levels developmental level. Conclusion: Although QoL was highly important concluded that subjective well-being of persons Jessie Poquerusse, Peipei Setoh, Stefano Results: The diagnoses of participants were during EoLDM for a child with PIMD, parents with ASD is lower than that of the general Cainelli, Paola Venuti, Gianluca Esposito autistic spectrum disorder (n = 7), Down and physicians did not fully explore elements population in the same age group. syndrome (n = 7) and developmental disorder (n contributing to QoL. Based on our findings, we  Aim: Though a large body of literature has been = 16). After the children finished the TEDA4I recommended the development of a investigating the short- and long-term Program, the mean scores of the child communication tool, which helps parents and Anxiety Symptomatology in Young Children on outcomes of ASD-centric treatments, little is development from the TEDA Index were physicians to discuss elements contributing to the Autism Spectrum known about how they are beneficial to significantly higher and the developmental QoL and the values they attach to these Deb Keen, Dawn Adams, Jacquiline den Houting, children’s immediate wellbeing. skills, which improved most were receptive elements. Kate Simpson, Jacqueline Roberts Method: Here, we examined how a treatment skills, fine motor skills and expressive language  session consisting of music or occupational skills. Aim: Approximately 40% of children on the therapy modulates the levels of salivary alpha- Conclusion: The TEDA4I Program was found to Multi-Morbidity in a Cohort of Adults with autism spectrum are diagnosed with an anxiety amylase (sAA), a now time- and cost-efficient improve developmental level in children with intellectual Disabilities, with and without disorder. Anxiety symptoms may appear early in biomarker of stress, in adolescents with ASD (N intellectual disability, particularly in receptive Down Syndrome life but few studies have specifically focused on = 15, mean age = 15.5 ± 3.6 SD) or a non-ASD skills, fine motor skills and expressive language Deborah Kinnear, Jill Morrison, Linda Allan, understanding anxiety symptomatology in developmental disability (DD) (N = 20, mean age skills. Angela Henderson, Elita Smiley, Sally-Ann autistic children under 7 years. In response to = 16.1 ± 3.9 SD). Pre- and post- session levels of  Cooper considerable concern in differentiating autism sAA were compared in both groups in response and anxiety symptoms, an autism-specific to non-therapeutic control and treatment Considering Quality of Life in End-of-Life Aim: People with intellectual disabilities have measure: the Anxiety Scale for Children with sessions. Decisions for Severely Disabled Children different health needs and experience greater Autism Spectrum Disorders (ASC-ASD) has Results: No significant difference was found in Ilse Harmina Zaal-Schuller, Dick Ludolf Willems, health inequalities compared to the general recently been published. This study explored basal sAA levels between ASD and DD Frans V. Ewals, Hans Bernard van Goudoever, population. Most studies on the physical ill- anxiety symptomatology in young autistic participants. However, sAA levels decreased Mirjam Anke de Vos health of people with intellectual disabilities children using the ASC-ASD. significantly in individuals with ASD, but not DD, and extent of multi-morbidity have been small Method: Parents of 95 children with an autism after both music and occupational therapy Aim: How parents and physicians incorporate scale or methodologically limited. This study diagnosis aged 5-6 years completed the ASC- sessions. quality of life (QoL) considerations into their investigates the prevalence of multi-morbidity ASD, Vineland Adaptive Behavior Scales 2nd Conclusion: These results suggest that sAA may end-of-life decision-making (EoLDM) for in adults with intellectual disabilities with and potentially be used as a biomarker of stress children with profound intellectual and multiple without Down syndrome.

76 77 school students, and adults, diagnosed as Edition and the Social Communication pathway activity, and that monitoring changes disabilities (PIMD) is unknown. The objectives of ASD(N=24). Questionnaire survey was Questionnaire. in sAA levels may inform the short-term impacts this study were to determine which elements conducted on self-esteem and subjective well- Results: Wide variability was found in levels of of therapeutic treatments in adolescents with contribute to QoL according to parents and being. Participants were classified into two symptomatology across the four ASC-ASD ASD, providing critical information in the physicians, how QoL is incorporated into EoLDM groups i.e. junior and senior high school subscales. The most frequently reported items context of both clinical and non-clinical care. and how parents and physicians discuss QoL students (N=12, mean age=14.4)and were from the ‘uncertainty’ subscale, with six of  considerations. university/vocational school students and the eight items occurring “sometimes” or more Method: We conducted semi-structured adults(N=12, mean age=23.1), and cross- in over 80% of children. The least frequently Effects of the TedA4I Program on Child interviews with the physicians and parents of sectional changes were examined. reported items were in the ‘anxious arousal’ Development of Children with Development children with PIMD for whom an EoLD was Results: The results indicated no significant subscale. and Intellectual Disabilities made. differences in self-esteem and subjective well- Conclusion: Identifying symptoms of anxiety in Panida Ratanapairoj Results: We interviewed 17 parents of 14 being scores between two groups. Moreover, young children on the spectrum can inform children and 11 treating physicians. Parents and there were no significant differences in any intervention efforts to improve their quality of Aim: To assess the effectiveness of the TEDA4I physicians agreed that the main elements subjective well-being domain between the two life. Early identification provides opportunities Program in Children with intellectual disability. contributing to QoL were 'the ability to enjoy', groups. to intervene early in order to prevent or reduce Method: Children with intellectual disability, 'absence of medical problems', and 'comfort'. Conclusion: Significant differences were not the risk of anxiety disorder in this population. aged between 2 and 6 years (n = 30) were How QoL was incorporated differed slightly for shown in self-esteem and subjective well-being  recruited. Participants attended the TEDA4I different types of decisions. Parents and between the two groups, which suggest that clinic at Rajanukul Institute, Thailand for 12 physicians rarely discussed elements that they there were no developmental changes. Therapy Sessions in Adolescents with Autism weeks. TEDA Index data were collected before considered the most important for the child's Moreover, there were no differences in the sub- Spectrum Disorder Reduce Stress-Related and after attending the program to evaluate QoL when making EoLDs. domains of subjective well-being. It is Salivary Alpha Amylase Levels developmental level. Conclusion: Although QoL was highly important concluded that subjective well-being of persons Jessie Poquerusse, Peipei Setoh, Stefano Results: The diagnoses of participants were during EoLDM for a child with PIMD, parents with ASD is lower than that of the general Cainelli, Paola Venuti, Gianluca Esposito autistic spectrum disorder (n = 7), Down and physicians did not fully explore elements population in the same age group. syndrome (n = 7) and developmental disorder (n contributing to QoL. Based on our findings, we  Aim: Though a large body of literature has been = 16). After the children finished the TEDA4I recommended the development of a investigating the short- and long-term Program, the mean scores of the child communication tool, which helps parents and Anxiety Symptomatology in Young Children on outcomes of ASD-centric treatments, little is development from the TEDA Index were physicians to discuss elements contributing to the Autism Spectrum known about how they are beneficial to significantly higher and the developmental QoL and the values they attach to these Deb Keen, Dawn Adams, Jacquiline den Houting, children’s immediate wellbeing. skills, which improved most were receptive elements. Kate Simpson, Jacqueline Roberts Method: Here, we examined how a treatment skills, fine motor skills and expressive language  session consisting of music or occupational skills. Aim: Approximately 40% of children on the therapy modulates the levels of salivary alpha- Conclusion: The TEDA4I Program was found to Multi-Morbidity in a Cohort of Adults with autism spectrum are diagnosed with an anxiety amylase (sAA), a now time- and cost-efficient improve developmental level in children with intellectual Disabilities, with and without disorder. Anxiety symptoms may appear early in biomarker of stress, in adolescents with ASD (N intellectual disability, particularly in receptive Down Syndrome life but few studies have specifically focused on = 15, mean age = 15.5 ± 3.6 SD) or a non-ASD skills, fine motor skills and expressive language Deborah Kinnear, Jill Morrison, Linda Allan, understanding anxiety symptomatology in developmental disability (DD) (N = 20, mean age skills. Angela Henderson, Elita Smiley, Sally-Ann autistic children under 7 years. In response to = 16.1 ± 3.9 SD). Pre- and post- session levels of  Cooper considerable concern in differentiating autism sAA were compared in both groups in response and anxiety symptoms, an autism-specific to non-therapeutic control and treatment Considering Quality of Life in End-of-Life Aim: People with intellectual disabilities have measure: the Anxiety Scale for Children with sessions. Decisions for Severely Disabled Children different health needs and experience greater Autism Spectrum Disorders (ASC-ASD) has Results: No significant difference was found in Ilse Harmina Zaal-Schuller, Dick Ludolf Willems, health inequalities compared to the general recently been published. This study explored basal sAA levels between ASD and DD Frans V. Ewals, Hans Bernard van Goudoever, population. Most studies on the physical ill- anxiety symptomatology in young autistic participants. However, sAA levels decreased Mirjam Anke de Vos health of people with intellectual disabilities children using the ASC-ASD. significantly in individuals with ASD, but not DD, and extent of multi-morbidity have been small Method: Parents of 95 children with an autism after both music and occupational therapy Aim: How parents and physicians incorporate scale or methodologically limited. This study diagnosis aged 5-6 years completed the ASC- sessions. quality of life (QoL) considerations into their investigates the prevalence of multi-morbidity ASD, Vineland Adaptive Behavior Scales 2nd Conclusion: These results suggest that sAA may end-of-life decision-making (EoLDM) for in adults with intellectual disabilities with and potentially be used as a biomarker of stress children with profound intellectual and multiple without Down syndrome.

76 77 Method: The analysis is part of a large experience of a mobile dental clinic. The Temporal and Geographic Trends in Is Preterm Birth and Intra-Uterine Growth prospective, cohort study. The adult population students also reported that they liked the Antipsychotic and Antidepressant Prescribing Retardation More Common in Western (16 years and over) of people with intellectual environment and decoration of the center. They in Children and Adults with Intellectual Australian Children of Immigrant Backgrounds? disabilities living within one geographical area showed adequate knowledge of oral health and Disabilities, and Children with Autism Ifrah Hassan Abdullahi of Scotland, were recruited. Participants practiced oral health diligently. Further findings throughout Scotland, 2009-2015 underwent a comprehensive health assessment. were presented. Angela Henderson, Deborah Kinnear, Jill Aim: Children of immigrant backgrounds are an Data analysis generated descriptive statistics Conclusion: This study suggested that the Morrison, Sally-Ann Cooper, Linda Allan, Colin underprivileged minority group in their host about the physical ill-health and multi-morbidity Center provided a conducive and non- McCowan, Kevin Ross, Paula McSkimming, country, potentially at risk of long-term of people with intellectual disabilities, with and threatening environment in which to promote Marian Okon disadvantage to their health. Preterm birth and without Down syndrome. better oral health. There is merit in considering intra-uterine growth retardation (IUGR) are Results: 1,023 people with intellectual such a model for students with IDD in other Aim: To investigate antipsychotic prescribing in associated with socioeconomic disadvantage. disabilities took part: 562 (54.9%) males and special schools. children and young people with intellectual This paper examines the prevalence of preterm 461 (45.1%) females aged 43.9 years (16-83).  disabilities (ID) and with autism compared with birth and IUGR in children of immigrant 186 (18.2%) had a diagnosis of Down Syndrome. other children; to explore variation in mothers in Australia. The extent of multi-morbidity in the adults with Postpartum Emergency Department Use prescribing practices across Scottish health Method: A population-based linked data study Down syndrome was similar to adults with among Mothers with Intellectual and boards and trends over time (2009-2015) was undertaken in Western Australia between intellectual disabilities without Down syndrome Developmental Disabilities compared with adults with ID. 1980 and 2010. Data from maternal country of but patterns of disease clusters differed. Monika Mitra, Ilhom Akobirshoev, Susan L. Method: Observational cohort study of all birth (MCB) was combined with birth data from Further analysis was presented. Parish pupils (aged 4 – 18 years) included in Scotland’s the Midwives Notification System. Risks of Conclusion: Using a robust study design, we annual school census, 2009-2015; and adults preterm birth and pregnancy complications have reported the high prevalence of health Aim: We examined the risk of postpartum ED with ID in 25% of Scotland identified in general outcomes (IUGR and low Apgar score) were conditions and multi-morbidities in this visits between mothers with and without IDD in practice records; both record-linked to national compared between foreign-born mothers population. Massachusetts. We also examined the primary Prescribing Information System data on (“high” and “low” risk countries) and Australian-  reasons for the postpartum ED visits, the encashed antipsychotic and antidepressant born mothers (indigenous and non-indigenous probabilities of non-urgent ED visits, and the medications. backgrounds). Data were analysed using Promoting Oral Health in Students with probability of primary care sensitive (PCS) ED Results: For the adults with ID, whole logistical and multinomial regression methods. Intellectual and Developmental Disabilities: visits. population prescribing rates fell from 24.3% Results: Having an MCB from high-risk countries Exploring Students’ Experiences at the All Method: We conducted a population-based (292/1,201) to 16.4% (665/4,065) between was associated with increased risk of extreme Smiles Learning Center, Chiang Mai, Thailand retrospective cohort study using the 2002-2009 2004 and 2014. However, analysis of data for preterm, very early preterm, late preterm and Patcharawan Srisilapanan, Jeffrey Chan, Colin Pregnancy to Early Life Longitudinal dataset and the same individuals (n=368) found that early term birth, growth retardation (mild, Hudson identified deliveries to women with and without antipsychotic prescribing rate increased from moderate and severe) and lower Apgar scores IDD. The primary outcome measures were any 21.2% to 26.4% 2004-2014. Child/young person at 5 minutes after birth compared to Australian- Aim: To explore the experiences and views of postpartum ED visits and any mental health data were compared and presented. born non-indigenous mothers. students with intellectual and developmental related ED visits. Conclusion: There is a paucity of longitudinal Conclusion: Further research is required to disabilities regarding the promotion of oral Results: Mothers with IDD were at higher risk and geographic population level evidence on explore the reasons behind this discrepancy in health at the Chiang Mai's All Smiles Learning for postpartum ED visits within three use of these drugs in these populations. Data health status and to develop targeted Center. postpartum periods: 42 days, 90 days, and 365 suggests that adults with ID are unlikely to be interventions to improve outcomes in these Method: A qualitative semi-structured days post-delivery. Postpartum hospital visits of withdrawn from antipsychotic drugs once families. interview was independently conducted to mothers with IDD were more likely to be commenced but rates of new prescriptions are  explore the experiences of students who access associated with mental illness. Compared to falling. Any geographic variation would point to the Center as part of their oral health mothers without IDD, mothers with IDD were the need for further evidence to identify best Empowering Staff of Persons with Intellectual education. The students voluntarily participated less likely to have non-urgent ED visits during all practice Disabilities and Mental Health Problems: An in the interview. three postpartum periods.  Embedded Multiple Case-Study. Results: Preliminary findings indicate that the Conclusion: The findings indicate the critical Filip Morisse, Erik De Belie, Mieke Blontrock, students enjoyed being at the Center and found need for evidence-based interventions and Claudia Claes, Stijn Vandevelde it a fun place in which to be. They were not policies that support women with IDD during anxious to attend oral health and dental care their postpartum period. Aim: The developmental approach, focusing on treatment compared to their previous  emotional development, has been shown to be

78 79 Method: The analysis is part of a large experience of a mobile dental clinic. The Temporal and Geographic Trends in Is Preterm Birth and Intra-Uterine Growth prospective, cohort study. The adult population students also reported that they liked the Antipsychotic and Antidepressant Prescribing Retardation More Common in Western (16 years and over) of people with intellectual environment and decoration of the center. They in Children and Adults with Intellectual Australian Children of Immigrant Backgrounds? disabilities living within one geographical area showed adequate knowledge of oral health and Disabilities, and Children with Autism Ifrah Hassan Abdullahi of Scotland, were recruited. Participants practiced oral health diligently. Further findings throughout Scotland, 2009-2015 underwent a comprehensive health assessment. were presented. Angela Henderson, Deborah Kinnear, Jill Aim: Children of immigrant backgrounds are an Data analysis generated descriptive statistics Conclusion: This study suggested that the Morrison, Sally-Ann Cooper, Linda Allan, Colin underprivileged minority group in their host about the physical ill-health and multi-morbidity Center provided a conducive and non- McCowan, Kevin Ross, Paula McSkimming, country, potentially at risk of long-term of people with intellectual disabilities, with and threatening environment in which to promote Marian Okon disadvantage to their health. Preterm birth and without Down syndrome. better oral health. There is merit in considering intra-uterine growth retardation (IUGR) are Results: 1,023 people with intellectual such a model for students with IDD in other Aim: To investigate antipsychotic prescribing in associated with socioeconomic disadvantage. disabilities took part: 562 (54.9%) males and special schools. children and young people with intellectual This paper examines the prevalence of preterm 461 (45.1%) females aged 43.9 years (16-83).  disabilities (ID) and with autism compared with birth and IUGR in children of immigrant 186 (18.2%) had a diagnosis of Down Syndrome. other children; to explore variation in mothers in Australia. The extent of multi-morbidity in the adults with Postpartum Emergency Department Use prescribing practices across Scottish health Method: A population-based linked data study Down syndrome was similar to adults with among Mothers with Intellectual and boards and trends over time (2009-2015) was undertaken in Western Australia between intellectual disabilities without Down syndrome Developmental Disabilities compared with adults with ID. 1980 and 2010. Data from maternal country of but patterns of disease clusters differed. Monika Mitra, Ilhom Akobirshoev, Susan L. Method: Observational cohort study of all birth (MCB) was combined with birth data from Further analysis was presented. Parish pupils (aged 4 – 18 years) included in Scotland’s the Midwives Notification System. Risks of Conclusion: Using a robust study design, we annual school census, 2009-2015; and adults preterm birth and pregnancy complications have reported the high prevalence of health Aim: We examined the risk of postpartum ED with ID in 25% of Scotland identified in general outcomes (IUGR and low Apgar score) were conditions and multi-morbidities in this visits between mothers with and without IDD in practice records; both record-linked to national compared between foreign-born mothers population. Massachusetts. We also examined the primary Prescribing Information System data on (“high” and “low” risk countries) and Australian-  reasons for the postpartum ED visits, the encashed antipsychotic and antidepressant born mothers (indigenous and non-indigenous probabilities of non-urgent ED visits, and the medications. backgrounds). Data were analysed using Promoting Oral Health in Students with probability of primary care sensitive (PCS) ED Results: For the adults with ID, whole logistical and multinomial regression methods. Intellectual and Developmental Disabilities: visits. population prescribing rates fell from 24.3% Results: Having an MCB from high-risk countries Exploring Students’ Experiences at the All Method: We conducted a population-based (292/1,201) to 16.4% (665/4,065) between was associated with increased risk of extreme Smiles Learning Center, Chiang Mai, Thailand retrospective cohort study using the 2002-2009 2004 and 2014. However, analysis of data for preterm, very early preterm, late preterm and Patcharawan Srisilapanan, Jeffrey Chan, Colin Pregnancy to Early Life Longitudinal dataset and the same individuals (n=368) found that early term birth, growth retardation (mild, Hudson identified deliveries to women with and without antipsychotic prescribing rate increased from moderate and severe) and lower Apgar scores IDD. The primary outcome measures were any 21.2% to 26.4% 2004-2014. Child/young person at 5 minutes after birth compared to Australian- Aim: To explore the experiences and views of postpartum ED visits and any mental health data were compared and presented. born non-indigenous mothers. students with intellectual and developmental related ED visits. Conclusion: There is a paucity of longitudinal Conclusion: Further research is required to disabilities regarding the promotion of oral Results: Mothers with IDD were at higher risk and geographic population level evidence on explore the reasons behind this discrepancy in health at the Chiang Mai's All Smiles Learning for postpartum ED visits within three use of these drugs in these populations. Data health status and to develop targeted Center. postpartum periods: 42 days, 90 days, and 365 suggests that adults with ID are unlikely to be interventions to improve outcomes in these Method: A qualitative semi-structured days post-delivery. Postpartum hospital visits of withdrawn from antipsychotic drugs once families. interview was independently conducted to mothers with IDD were more likely to be commenced but rates of new prescriptions are  explore the experiences of students who access associated with mental illness. Compared to falling. Any geographic variation would point to the Center as part of their oral health mothers without IDD, mothers with IDD were the need for further evidence to identify best Empowering Staff of Persons with Intellectual education. The students voluntarily participated less likely to have non-urgent ED visits during all practice Disabilities and Mental Health Problems: An in the interview. three postpartum periods.  Embedded Multiple Case-Study. Results: Preliminary findings indicate that the Conclusion: The findings indicate the critical Filip Morisse, Erik De Belie, Mieke Blontrock, students enjoyed being at the Center and found need for evidence-based interventions and Claudia Claes, Stijn Vandevelde it a fun place in which to be. They were not policies that support women with IDD during anxious to attend oral health and dental care their postpartum period. Aim: The developmental approach, focusing on treatment compared to their previous  emotional development, has been shown to be

78 79 of value for the mental health of persons with Results: Decisions to seek healthcare take place new repositories to address disparities and stressful life events in improving their coping ID. This perspective obliges the environment in a complex web of relationships. Long evaluate best practices; developing outcome skills. A clearer understanding of mechanisms (both natural and professional support) to distances profoundly affect women’s measures sensitive to needs of people with explaining the relationship between these adapt to a person’s basic emotional needs. willingness and ability to seek care, particularly disabilities; advocating for policy and payment factors and depression is also needed. Method: Over the period of one year, an when appropriate transportation is very limited, structures to promote best practices; and  intensive action research project was monitored and terrain is inhospitable. This becomes improving communication within the health and described. Using both quantitative and particularly difficult for disabled women seeking system. Several specific healthcare Prevalence and Types of Unexplained qualitative measures, facilitating factors were maternal and child healthcare. These mothers recommendations for individuals with Symptoms in Adults with Intellectual identified regarding the support of persons with were perceived to be incapable of parenting intellectual disabilities were included in the Disabilities ID and mental health problems. their children, and they were mostly divorced. outcomes and examples were shared. Deborah Kinnear, Martin Osugo, Jill Morrison, A support team, located in a residential service, They also suffered discrimination. Distance to Conclusion: Innovative methods to address Linda Allan, Sally-Ann Cooper participated in an intensive process of training, health facilities disadvantaged mothers from health disparities faced by people with intervention and coaching, both individually and accessing maternal and child health services. disabilities are needed. Aim: Medically unexplained signs and as a team. During the interventions, the project Conclusion: The findings of this study have the  symptoms are common in the general team used theories on emotional development, potential to provide the basis for mandatory population, and can respond to appropriate emotional availability and mentalisation. support to disabled women especially regarding Risk Factors for Depression in Adults with management. Little is known about the Results: Although the results cannot be accessing social services such maternal and Intellectual and Developmental Disabilities: A unexplained signs and symptoms experienced generalized due to the small sample size, they child health services. Five-Year Longitudinal Study in the USA by adults with intellectual disabilities. We aimed indicate that as staff become more sensitive to  Kelly Hsieh, Tamar Heller, Sumithra Murthy to quantify the types and prevalence of the emotional needs of the clients, challenging unexplained signs and symptoms experienced behavior is reduced. This project has not only Transforming Healthcare with People with Aim: Depression is one of the most frequent by this cohort, and to determine the associated increased motivation and strengthened the role Disabilities mental disorders in adults with factors. of the staff, but it has also shown to be pre- Sarah Ailey, Tamar Heller, Molly Bathje intellectual/developmental disabilities (IDD). Method: In a population-based study, adults emptive towards burn-out. Studies that investigated depression (aged 16 years and over) with intellectual Conclusion: The study has resulted in Aim: Disparities in health outcomes of people longitudinally in this population are very disabilities living within one geographical area recommendations for training, coaching and a with disabilities (including intellectual limited. This study aimed to investigate risk of Scotland, were recruited. Detailed health HR-policy towards individual staff members and disabilities) lead to greater morbidity, mortality, factors for depression in adults with IDD. assessments were carried out which teams working with people with ID and mental and cost, accompanied by lower quality of life. Method: We analyzed four time-point data systematically considered unexplained health needs. Proactive work for practical, implementable (Years 1-3 & 5) (N = 1,552) from the symptoms and signs experienced by this cohort,  solutions is needed; along with consensus and Longitudinal Health and Intellectual and and to determine associated factors. action plans on best practices. Participants at Developmental Disability Study. Data collection Results: 1,023 adults with intellectual Disabled Women’s Access to Maternal and The Partnering to Transform Healthcare with was based on the informant reported surveys. disabilities took part. Medically unexplained Child Healthcare in Zambia People with Disabilities Conference, funded by We conducted generalized estimating equations signs and symptoms were present in 664 Masauso Simon Chirwa the US Agency for Healthcare Research and (GEE) to fit a multivariable regression model to (64.9%), 3.8 times higher than in the general Quality, synthesized current innovations and determine associated factors with the population. 470 (45.9%) had multiple Aim: Disabled mothers face various barriers in improvement efforts, identified occurrence of depression. unexplained signs and symptoms Some were accessing social services such as health services. recommendations on best practices, and Results: The depression rate increased from similar to those reported in the general This study used an intersectional approach in developed action plans. 15% (baseline) to 18% (year 5) in adults with population (e.g. dyspnoea, dyspepsia, exploring disabled women’s experiences. The Method: Self-advocates across disability IDD. Results of the GEE model indicate that the headache, nausea, dizziness). However, others purpose was to explore the experiences communities (intellectual, physical, sensory and risk factors for depression are: being age 45-64; are not commonly reported, including disabled mothers attach to their motherhood, mental) partnered with national experts being female; better informant-reported health; dysphagia, ataxia, polyuria, oedema, skin rash. health and their child’s health. (providers and policy makers, executives, obesity; and having life events in the past year. Further analysis was presented. Method: The study was qualitative in nature. insurers, regulators and others) to reach the Conclusion: There is a need to further explore Conclusion: People with intellectual disabilities This approach enabled the researcher to glean conference outcomes. effective mental health promotion programs have substantial additional unexplained greater understanding of the experiences of Results: Recommendations include involving tailored toward adults with IDD with the highest symptoms and signs, some of which are painful disabled mothers. Biographical interviews were people with disabilities in healthcare decision risk factors for increased depression, such as or disabling. used to obtain mothers’ accounts about their makin; health professions training and research; women and adults who are obese. Additionally,  life. utilizing existing data sources and establishing it is important to help adults experiencing

80 81 of value for the mental health of persons with Results: Decisions to seek healthcare take place new repositories to address disparities and stressful life events in improving their coping ID. This perspective obliges the environment in a complex web of relationships. Long evaluate best practices; developing outcome skills. A clearer understanding of mechanisms (both natural and professional support) to distances profoundly affect women’s measures sensitive to needs of people with explaining the relationship between these adapt to a person’s basic emotional needs. willingness and ability to seek care, particularly disabilities; advocating for policy and payment factors and depression is also needed. Method: Over the period of one year, an when appropriate transportation is very limited, structures to promote best practices; and  intensive action research project was monitored and terrain is inhospitable. This becomes improving communication within the health and described. Using both quantitative and particularly difficult for disabled women seeking system. Several specific healthcare Prevalence and Types of Unexplained qualitative measures, facilitating factors were maternal and child healthcare. These mothers recommendations for individuals with Symptoms in Adults with Intellectual identified regarding the support of persons with were perceived to be incapable of parenting intellectual disabilities were included in the Disabilities ID and mental health problems. their children, and they were mostly divorced. outcomes and examples were shared. Deborah Kinnear, Martin Osugo, Jill Morrison, A support team, located in a residential service, They also suffered discrimination. Distance to Conclusion: Innovative methods to address Linda Allan, Sally-Ann Cooper participated in an intensive process of training, health facilities disadvantaged mothers from health disparities faced by people with intervention and coaching, both individually and accessing maternal and child health services. disabilities are needed. Aim: Medically unexplained signs and as a team. During the interventions, the project Conclusion: The findings of this study have the  symptoms are common in the general team used theories on emotional development, potential to provide the basis for mandatory population, and can respond to appropriate emotional availability and mentalisation. support to disabled women especially regarding Risk Factors for Depression in Adults with management. Little is known about the Results: Although the results cannot be accessing social services such maternal and Intellectual and Developmental Disabilities: A unexplained signs and symptoms experienced generalized due to the small sample size, they child health services. Five-Year Longitudinal Study in the USA by adults with intellectual disabilities. We aimed indicate that as staff become more sensitive to  Kelly Hsieh, Tamar Heller, Sumithra Murthy to quantify the types and prevalence of the emotional needs of the clients, challenging unexplained signs and symptoms experienced behavior is reduced. This project has not only Transforming Healthcare with People with Aim: Depression is one of the most frequent by this cohort, and to determine the associated increased motivation and strengthened the role Disabilities mental disorders in adults with factors. of the staff, but it has also shown to be pre- Sarah Ailey, Tamar Heller, Molly Bathje intellectual/developmental disabilities (IDD). Method: In a population-based study, adults emptive towards burn-out. Studies that investigated depression (aged 16 years and over) with intellectual Conclusion: The study has resulted in Aim: Disparities in health outcomes of people longitudinally in this population are very disabilities living within one geographical area recommendations for training, coaching and a with disabilities (including intellectual limited. This study aimed to investigate risk of Scotland, were recruited. Detailed health HR-policy towards individual staff members and disabilities) lead to greater morbidity, mortality, factors for depression in adults with IDD. assessments were carried out which teams working with people with ID and mental and cost, accompanied by lower quality of life. Method: We analyzed four time-point data systematically considered unexplained health needs. Proactive work for practical, implementable (Years 1-3 & 5) (N = 1,552) from the symptoms and signs experienced by this cohort,  solutions is needed; along with consensus and Longitudinal Health and Intellectual and and to determine associated factors. action plans on best practices. Participants at Developmental Disability Study. Data collection Results: 1,023 adults with intellectual Disabled Women’s Access to Maternal and The Partnering to Transform Healthcare with was based on the informant reported surveys. disabilities took part. Medically unexplained Child Healthcare in Zambia People with Disabilities Conference, funded by We conducted generalized estimating equations signs and symptoms were present in 664 Masauso Simon Chirwa the US Agency for Healthcare Research and (GEE) to fit a multivariable regression model to (64.9%), 3.8 times higher than in the general Quality, synthesized current innovations and determine associated factors with the population. 470 (45.9%) had multiple Aim: Disabled mothers face various barriers in improvement efforts, identified occurrence of depression. unexplained signs and symptoms Some were accessing social services such as health services. recommendations on best practices, and Results: The depression rate increased from similar to those reported in the general This study used an intersectional approach in developed action plans. 15% (baseline) to 18% (year 5) in adults with population (e.g. dyspnoea, dyspepsia, exploring disabled women’s experiences. The Method: Self-advocates across disability IDD. Results of the GEE model indicate that the headache, nausea, dizziness). However, others purpose was to explore the experiences communities (intellectual, physical, sensory and risk factors for depression are: being age 45-64; are not commonly reported, including disabled mothers attach to their motherhood, mental) partnered with national experts being female; better informant-reported health; dysphagia, ataxia, polyuria, oedema, skin rash. health and their child’s health. (providers and policy makers, executives, obesity; and having life events in the past year. Further analysis was presented. Method: The study was qualitative in nature. insurers, regulators and others) to reach the Conclusion: There is a need to further explore Conclusion: People with intellectual disabilities This approach enabled the researcher to glean conference outcomes. effective mental health promotion programs have substantial additional unexplained greater understanding of the experiences of Results: Recommendations include involving tailored toward adults with IDD with the highest symptoms and signs, some of which are painful disabled mothers. Biographical interviews were people with disabilities in healthcare decision risk factors for increased depression, such as or disabling. used to obtain mothers’ accounts about their makin; health professions training and research; women and adults who are obese. Additionally,  life. utilizing existing data sources and establishing it is important to help adults experiencing

80 81 Health Status and Health-Related Physical to improve posture, movement, and function of family had further assessments using DAWBA Poor Oral Health in Adults with Intellectual Fitness in Thai Students with Intellectual people with IDs who fall due to balance and/or and ADI-R. Each child had an ADOS assessment. Disabilities and Its Determinants Disability gait issues. The final diagnosis was reached by clinical Deborah Kinnear, Jill Morrison, Linda Allan, Premvadee Densiriaksorn Method: Nine participants with IDs, with a consensus. Angela Henderson, Lorna MacPherson, Andrea history of falling due to balance and/or gait Results: The SCQ has the highest sensitivity for Sherriff, Janet Finlayson, Sally-Ann Cooper Aim: To assess health status and health- related issues, were recruited from local community ID ASD compared with other questionnaires. The physical fitness in Thai students with intellectual physiotherapy services. Walking, balance and CCC-2 has the highest specificity for ASD. Aim: Adults with intellectual disabilities disability. gait tests were completed in a university Conclusion: The SCQ is the most useful experience extensive health inequalities Method: All students, aged 7-17 years (n = laboratory at baseline and 6 weeks after screening questionnaire for ASD and has the compared with the general population. There is 1072), in five special education schools were wearing LSGs. Fall data was collected via fall best diagnostic utility in children with mild ID. some evidence suggesting that they also have recruited. Medical data and physical activity calendars, and interviews were conducted to  greater dental treatment needs. They may were collected from questionnaire completed collect information on usability of LSGs. experience poor oral health because of by caregiver and school teacher. Health-related Results: Outcomes are reported on a case by Suicidality in Adults with Autism Spectrum conditions linked with dental disease, use of physical fitness tests were performed. Means, case basis, but 7 out of 9 participants Disorder (ASD) certain medications and poor dental hygiene. percentage and chi -square were used for data demonstrated improvements in walking style Darren Hedley We investigated the prevalence and analysis. and confidence wearing LSGs, and a reduction determinants of poor oral health in this cohort. Results: All 1,072 participants (mean age 13± in falls. Lycra socks were the most usable of the Aim: Death by suicide is nine times higher in Method: The adult population (16 years and 1years) were children with intellectual LSGs trialled (rather than shorts or leggings). adults with ASD than the general population, over) of people with intellectual disabilities disabilities. The majority were male (63.7%) and Conclusion: Findings suggest LSGs may be and depression is a significant risk factor for living within one geographical area of Scotland, had moderate intellectual disability (65.9%). effective in improving gait and balance and suicide. Studies on depression and suicide in were recruited. Each participant underwent a About 15.8% had chronic physical illness, and reducing falls in people with IDs. ASD are sparse. Adults with ASD also experience dental examination. We compared this with 22.5% reported medication use. Only 45.3% had  social isolation and loneliness, which may add dental data collected on adults representative a dental examination within the last six months. to risk. Our aim was to characterize the of the Scottish general population (Scottish 90% had no vaccination record. Most had a Useful Screening Tools for relationship between depression, suicidal Health Survey). Data analysis generated sedentary lifestyle. The majority of participants Neurodevelopmental Disorders ideation and loneliness in ASD. descriptive statistics about the prevalence and showed poor health-related physical fitness. Amani Hassan Method: 76 adults with ASD completed the determinants of poor oral health. Half (54.5%) had a normal Body Mass Index. PHQ-9 depression/suicide scale and the UCLA Results: 581 adults with intellectual disabilities Only 20.8, 14.5, and 12.1 percent of them Aim: Is to test the diagnostic utility of six Loneliness Scale. took part in 2002-2004 and again in 2004-2005: showed normal scores of sit and reach test, screening questionnaires that are used by Results: 20% of participants reported recent 310 (53.5%) males and 271(46.8%) females handgrip strength test, and 6 min walk/run test, parents or teachers for Neuro Developmental suicidal thoughts and 25% were clinically aged 46 years (range 18-81). 30.6% adults with respectively. disorders (NDD); mainly Autistic Spectrum depressed. Loneliness was significantly related intellectual disabilities were edentulous Conclusion: Evidence of health disparities was Disorder (ASD) and Attention Deficit to depression, but bore a weak relationship (complete absence of teeth) compared to only found in students with intellectual disability, Hyperactivity Disorder (ADHD) in mild with suicidal ideation. There was a significant 8% of the general population. Further analysis particularly in terms of health status and health- intellectually disabled (ID) children in indirect effect of loneliness on suicidal ideation was presented. related physical fitness. community paediatric settings. through depression. Conclusion: Using a robust study design in a  Method: Data was analysed for 69 children, 4- Conclusion: Rates of suicidal ideation and large population, we reported the high 11 years, (54 males and 15 females), recruited depression were lower than previously prevalence of poor oral health in this population Lycra Splinting Garments for People with for the Study of Learning Ability, Development reported, but substantially higher than the and its determinants. Intellectual Disabilities Who Fall Due to and Genes (SLADG). They had an IQ below 70 general population. For the first time, we  Balance and/or Gait Issues: A Feasibility Study but above 50, no genetic syndromes and no characterized the relationship between Janet Finlayson known cause for ID. The parents were given depression, loneliness and ideation, showing Psychosocial Factors Predicting Internalizing four questionnaires: the Developmental depression mediated the relationship between Problems and Life Satisfaction in Young Adults Aim: Falls and fall injuries are a serious problem Behaviour Checklist (DBC), the Strength and loneliness and ideation, suggesting targets for with Mild Intellectual Disabilities for people with Intellectual Disabilities (IDs). Difficulties Questionnaire (SDQ), the Social intervention. Chris Tak Wee Wong, Melanie Jiamin Liang, Ker- Poor gait and/or balance is one of the main Communication Questionnaire (SCQ) and the  Chiah Wei, Diana Ruth Andrea Barron, Iliana reasons people with IDs fall. The aim of this Children’s Communication Checklist 2 (CCC-2). Magiati study was to test the feasibility and usability of The teachers were given two questionnaires, Lycra Splinting Garments (LSGs), which are worn the teacher version of SDQ and DBC-24. Each

82 83 Health Status and Health-Related Physical to improve posture, movement, and function of family had further assessments using DAWBA Poor Oral Health in Adults with Intellectual Fitness in Thai Students with Intellectual people with IDs who fall due to balance and/or and ADI-R. Each child had an ADOS assessment. Disabilities and Its Determinants Disability gait issues. The final diagnosis was reached by clinical Deborah Kinnear, Jill Morrison, Linda Allan, Premvadee Densiriaksorn Method: Nine participants with IDs, with a consensus. Angela Henderson, Lorna MacPherson, Andrea history of falling due to balance and/or gait Results: The SCQ has the highest sensitivity for Sherriff, Janet Finlayson, Sally-Ann Cooper Aim: To assess health status and health- related issues, were recruited from local community ID ASD compared with other questionnaires. The physical fitness in Thai students with intellectual physiotherapy services. Walking, balance and CCC-2 has the highest specificity for ASD. Aim: Adults with intellectual disabilities disability. gait tests were completed in a university Conclusion: The SCQ is the most useful experience extensive health inequalities Method: All students, aged 7-17 years (n = laboratory at baseline and 6 weeks after screening questionnaire for ASD and has the compared with the general population. There is 1072), in five special education schools were wearing LSGs. Fall data was collected via fall best diagnostic utility in children with mild ID. some evidence suggesting that they also have recruited. Medical data and physical activity calendars, and interviews were conducted to  greater dental treatment needs. They may were collected from questionnaire completed collect information on usability of LSGs. experience poor oral health because of by caregiver and school teacher. Health-related Results: Outcomes are reported on a case by Suicidality in Adults with Autism Spectrum conditions linked with dental disease, use of physical fitness tests were performed. Means, case basis, but 7 out of 9 participants Disorder (ASD) certain medications and poor dental hygiene. percentage and chi -square were used for data demonstrated improvements in walking style Darren Hedley We investigated the prevalence and analysis. and confidence wearing LSGs, and a reduction determinants of poor oral health in this cohort. Results: All 1,072 participants (mean age 13± in falls. Lycra socks were the most usable of the Aim: Death by suicide is nine times higher in Method: The adult population (16 years and 1years) were children with intellectual LSGs trialled (rather than shorts or leggings). adults with ASD than the general population, over) of people with intellectual disabilities disabilities. The majority were male (63.7%) and Conclusion: Findings suggest LSGs may be and depression is a significant risk factor for living within one geographical area of Scotland, had moderate intellectual disability (65.9%). effective in improving gait and balance and suicide. Studies on depression and suicide in were recruited. Each participant underwent a About 15.8% had chronic physical illness, and reducing falls in people with IDs. ASD are sparse. Adults with ASD also experience dental examination. We compared this with 22.5% reported medication use. Only 45.3% had  social isolation and loneliness, which may add dental data collected on adults representative a dental examination within the last six months. to risk. Our aim was to characterize the of the Scottish general population (Scottish 90% had no vaccination record. Most had a Useful Screening Tools for relationship between depression, suicidal Health Survey). Data analysis generated sedentary lifestyle. The majority of participants Neurodevelopmental Disorders ideation and loneliness in ASD. descriptive statistics about the prevalence and showed poor health-related physical fitness. Amani Hassan Method: 76 adults with ASD completed the determinants of poor oral health. Half (54.5%) had a normal Body Mass Index. PHQ-9 depression/suicide scale and the UCLA Results: 581 adults with intellectual disabilities Only 20.8, 14.5, and 12.1 percent of them Aim: Is to test the diagnostic utility of six Loneliness Scale. took part in 2002-2004 and again in 2004-2005: showed normal scores of sit and reach test, screening questionnaires that are used by Results: 20% of participants reported recent 310 (53.5%) males and 271(46.8%) females handgrip strength test, and 6 min walk/run test, parents or teachers for Neuro Developmental suicidal thoughts and 25% were clinically aged 46 years (range 18-81). 30.6% adults with respectively. disorders (NDD); mainly Autistic Spectrum depressed. Loneliness was significantly related intellectual disabilities were edentulous Conclusion: Evidence of health disparities was Disorder (ASD) and Attention Deficit to depression, but bore a weak relationship (complete absence of teeth) compared to only found in students with intellectual disability, Hyperactivity Disorder (ADHD) in mild with suicidal ideation. There was a significant 8% of the general population. Further analysis particularly in terms of health status and health- intellectually disabled (ID) children in indirect effect of loneliness on suicidal ideation was presented. related physical fitness. community paediatric settings. through depression. Conclusion: Using a robust study design in a  Method: Data was analysed for 69 children, 4- Conclusion: Rates of suicidal ideation and large population, we reported the high 11 years, (54 males and 15 females), recruited depression were lower than previously prevalence of poor oral health in this population Lycra Splinting Garments for People with for the Study of Learning Ability, Development reported, but substantially higher than the and its determinants. Intellectual Disabilities Who Fall Due to and Genes (SLADG). They had an IQ below 70 general population. For the first time, we  Balance and/or Gait Issues: A Feasibility Study but above 50, no genetic syndromes and no characterized the relationship between Janet Finlayson known cause for ID. The parents were given depression, loneliness and ideation, showing Psychosocial Factors Predicting Internalizing four questionnaires: the Developmental depression mediated the relationship between Problems and Life Satisfaction in Young Adults Aim: Falls and fall injuries are a serious problem Behaviour Checklist (DBC), the Strength and loneliness and ideation, suggesting targets for with Mild Intellectual Disabilities for people with Intellectual Disabilities (IDs). Difficulties Questionnaire (SDQ), the Social intervention. Chris Tak Wee Wong, Melanie Jiamin Liang, Ker- Poor gait and/or balance is one of the main Communication Questionnaire (SCQ) and the  Chiah Wei, Diana Ruth Andrea Barron, Iliana reasons people with IDs fall. The aim of this Children’s Communication Checklist 2 (CCC-2). Magiati study was to test the feasibility and usability of The teachers were given two questionnaires, Lycra Splinting Garments (LSGs), which are worn the teacher version of SDQ and DBC-24. Each

82 83 Aim: This study explored psychosocial Method: We conducted a secondary data prescribed diet; diet and nutrition but also a stark lack of reliable and valid predictors of internalizing problems (i.e., mood analysis using the 2002-11 Medical Expenditure awareness/skills acquisition training; diet outcome measures (e.g. food analysis or and anxiety symptoms) and life satisfaction in Panel Survey dataset, and compared perceived supplementation (e.g., vitamins or fibre); analysis of nutritional content). Singaporean young adults with mild Intellectual barriers of community-living US adults with IDD interventional studies within specific conditions Conclusion: Results of this review are being Disabilities (ID)and the possible interactions in three racial and ethnic groups (White, Black, (e.g., PICA or PKU); and mealtime used to develop a feasibility study, comparing between some of these factors. and Latino). Specifically, we examined the top environments. accessible and objective outcome measures of Method: The sample included 82 young adults reasons for not having a usual source of care, Review of this literature identified useful people with IDs and the people who support (17-29 years; 47 males) with mild ID who and for delaying or foregoing medical care. accessible outcome measures (e.g., them. attended a vocational school or an adult centre. Results: Black and Latino adults with IDD were photographs of people with ID and their food),  Self-report measures of mental health, life more likely to cite “don’t like/don’t trust satisfaction, self-esteem, interpersonal doctors”, “don’t use doctors” and “don’t know relationships, and perceived stigma were used. where to get care” than their White ORAL PRESENTATIONS – NEW CONCEPTUALIZATION OR THEORY Two mediation models were proposed: the first counterparts. In comparison, the White group’s examined perceived stigma as a mediator of the biggest perceived barriers were location- and The Psychology of Paralympians include chronic pain, injury, illness, and training effects of Negative Interpersonal Relations (NIR) insurance-related. All groups cited being unable Jeffrey Martin barriers such as inaccessible fitness facilities. on internalizing problems. The second to afford care as a top reason for delaying or Contribution: The framework presented examined self-esteem as a mediator of the foregoing care. Description: Elite athletes with disabilities provides one valuable method of enhancing effects of NIR on life satisfaction. Conclusion: Policies and interventions to perform more consistently and maximize their skills and well-being for Paralympian athletes. Results: Higher self-esteem significantly improve health care access for racial and ethnic potential if they develop their mental skills as Further research is needed, and future research predicted higher life satisfaction; higher minorities with IDD must first address the trust well as their physical skills, and if they manage directions designed to fill gaps in research are perceived stigma and NIR predicted more between patients and their health their social and physical environments. A provided. internalizing problems. Perceived stigma professionals. Insurance and rising costs of care humanistic developmental model of  partially explained the relationship between NIR are also key areas that need attention. psychological skills training (PST), based on 20 and internalizing problems, while self-esteem  years of empirical research with Paralympian Better Health Outcomes for People with did not mediate the relationship between NIR athletes is presented. This model prioritizes Intellectual Disabilities and life satisfaction. Critical Review of Dietary and Nutritional both athlete performance and well-being as Susan Carol Hayes, Philip James Shackell Conclusion: Helping adults with mild ID develop Intake Interventions for People with they are viewed as complementary goals that self-esteem can help improve their life Intellectual Disabilities: Accessible and exert bi-directional influences on one another. Description: International data indicate that satisfaction, while addressing perceived stigma Objective Outcome Measures The model includes foundational factors, many PWID are not identified as having a as a result of NIR may help address internalizing Hassan Al Attar psychological skills and qualities, psychological disability when they are in contact with health problems in this population. Future studies methods, and facilitative and debilitative factors services; there is a need to ascertain the extent could further examine interactions between Aim: The dietary and nutritional intake of as relatively distinct categories. Foundational of under-identification to ensure better health predictors of life satisfaction and internalizing people with Intellectual Disabilities (IDs) is an factors include psychological constructs such as care. A concept for screening for ID in GP problems in adults with ID. important area of concern for health and self-esteem, personality characteristics (e.g., practices in the Liverpool (UK) area proposes  wellbeing. People with IDs have reported poor grit, resilience), autonomy, and self-awareness. that a random sample of adult patients will be dietary and nutritional intake, specific dietary Psychological skills and qualities include the screened by practice nurses, using the Hayes Racial and Ethnic Disparities in Perceived and mealtime needs, require support to make ability to concentrate, manage anxiety, and Ability Screening Index. Those who fall below Barriers to Health Care Among U.S. Adults with healthy food choices, and experience barriers to maintain confidence and motivation over time. the cut-off score will be referred for Intellectual and Developmental Disabilities inclusion in healthy eating initiatives (e.g. lack of Psychological methods, designed to develop psychometric assessment. Whilst 2% of the UK Henan Li, Susan Parish, Sandra Magaña, Miguel accessible information in pictures/easy read psychological skills and qualities, include goal population is estimated to have ID, the Morales formats). The aim of this review was to evaluate setting, imagery, and relaxation techniques to proportion of patients registered with GP current evidence and the way forward. mention a few. Finally, a host of facilitative practices as having ID is much lower, at Aim: Barriers to health care access can greatly Method: Five electronic databases (CINAHL, factors include social and environmental approximately 0.4%. The prevalence varies affect health status. Research shows that US Amed, PubMed, PsycINFO and MEDLINE) were influences such as effective coaching practices, between practices, according to the socio- adults with Intellectual and Developmental searched for dietary and nutritional intake and quality sleep and nutritional practices. economic area from which patients are drawn. Disabilities (IDD) have poor health. However, interventions for people with IDs. Debilitative factors refer to various barriers to By July 2016, all organisations providing NHS or whether barriers to care differ by race and Results: Results yielded 117 interventional effective training and competing. These barriers adult social care are required to follow the ethnicity has not been examined. studies under the following categories: Accessible Information Standard, to comply

84 85 Aim: This study explored psychosocial Method: We conducted a secondary data prescribed diet; diet and nutrition but also a stark lack of reliable and valid predictors of internalizing problems (i.e., mood analysis using the 2002-11 Medical Expenditure awareness/skills acquisition training; diet outcome measures (e.g. food analysis or and anxiety symptoms) and life satisfaction in Panel Survey dataset, and compared perceived supplementation (e.g., vitamins or fibre); analysis of nutritional content). Singaporean young adults with mild Intellectual barriers of community-living US adults with IDD interventional studies within specific conditions Conclusion: Results of this review are being Disabilities (ID)and the possible interactions in three racial and ethnic groups (White, Black, (e.g., PICA or PKU); and mealtime used to develop a feasibility study, comparing between some of these factors. and Latino). Specifically, we examined the top environments. accessible and objective outcome measures of Method: The sample included 82 young adults reasons for not having a usual source of care, Review of this literature identified useful people with IDs and the people who support (17-29 years; 47 males) with mild ID who and for delaying or foregoing medical care. accessible outcome measures (e.g., them. attended a vocational school or an adult centre. Results: Black and Latino adults with IDD were photographs of people with ID and their food),  Self-report measures of mental health, life more likely to cite “don’t like/don’t trust satisfaction, self-esteem, interpersonal doctors”, “don’t use doctors” and “don’t know relationships, and perceived stigma were used. where to get care” than their White ORAL PRESENTATIONS – NEW CONCEPTUALIZATION OR THEORY Two mediation models were proposed: the first counterparts. In comparison, the White group’s examined perceived stigma as a mediator of the biggest perceived barriers were location- and The Psychology of Paralympians include chronic pain, injury, illness, and training effects of Negative Interpersonal Relations (NIR) insurance-related. All groups cited being unable Jeffrey Martin barriers such as inaccessible fitness facilities. on internalizing problems. The second to afford care as a top reason for delaying or Contribution: The framework presented examined self-esteem as a mediator of the foregoing care. Description: Elite athletes with disabilities provides one valuable method of enhancing effects of NIR on life satisfaction. Conclusion: Policies and interventions to perform more consistently and maximize their skills and well-being for Paralympian athletes. Results: Higher self-esteem significantly improve health care access for racial and ethnic potential if they develop their mental skills as Further research is needed, and future research predicted higher life satisfaction; higher minorities with IDD must first address the trust well as their physical skills, and if they manage directions designed to fill gaps in research are perceived stigma and NIR predicted more between patients and their health their social and physical environments. A provided. internalizing problems. Perceived stigma professionals. Insurance and rising costs of care humanistic developmental model of  partially explained the relationship between NIR are also key areas that need attention. psychological skills training (PST), based on 20 and internalizing problems, while self-esteem  years of empirical research with Paralympian Better Health Outcomes for People with did not mediate the relationship between NIR athletes is presented. This model prioritizes Intellectual Disabilities and life satisfaction. Critical Review of Dietary and Nutritional both athlete performance and well-being as Susan Carol Hayes, Philip James Shackell Conclusion: Helping adults with mild ID develop Intake Interventions for People with they are viewed as complementary goals that self-esteem can help improve their life Intellectual Disabilities: Accessible and exert bi-directional influences on one another. Description: International data indicate that satisfaction, while addressing perceived stigma Objective Outcome Measures The model includes foundational factors, many PWID are not identified as having a as a result of NIR may help address internalizing Hassan Al Attar psychological skills and qualities, psychological disability when they are in contact with health problems in this population. Future studies methods, and facilitative and debilitative factors services; there is a need to ascertain the extent could further examine interactions between Aim: The dietary and nutritional intake of as relatively distinct categories. Foundational of under-identification to ensure better health predictors of life satisfaction and internalizing people with Intellectual Disabilities (IDs) is an factors include psychological constructs such as care. A concept for screening for ID in GP problems in adults with ID. important area of concern for health and self-esteem, personality characteristics (e.g., practices in the Liverpool (UK) area proposes  wellbeing. People with IDs have reported poor grit, resilience), autonomy, and self-awareness. that a random sample of adult patients will be dietary and nutritional intake, specific dietary Psychological skills and qualities include the screened by practice nurses, using the Hayes Racial and Ethnic Disparities in Perceived and mealtime needs, require support to make ability to concentrate, manage anxiety, and Ability Screening Index. Those who fall below Barriers to Health Care Among U.S. Adults with healthy food choices, and experience barriers to maintain confidence and motivation over time. the cut-off score will be referred for Intellectual and Developmental Disabilities inclusion in healthy eating initiatives (e.g. lack of Psychological methods, designed to develop psychometric assessment. Whilst 2% of the UK Henan Li, Susan Parish, Sandra Magaña, Miguel accessible information in pictures/easy read psychological skills and qualities, include goal population is estimated to have ID, the Morales formats). The aim of this review was to evaluate setting, imagery, and relaxation techniques to proportion of patients registered with GP current evidence and the way forward. mention a few. Finally, a host of facilitative practices as having ID is much lower, at Aim: Barriers to health care access can greatly Method: Five electronic databases (CINAHL, factors include social and environmental approximately 0.4%. The prevalence varies affect health status. Research shows that US Amed, PubMed, PsycINFO and MEDLINE) were influences such as effective coaching practices, between practices, according to the socio- adults with Intellectual and Developmental searched for dietary and nutritional intake and quality sleep and nutritional practices. economic area from which patients are drawn. Disabilities (IDD) have poor health. However, interventions for people with IDs. Debilitative factors refer to various barriers to By July 2016, all organisations providing NHS or whether barriers to care differ by race and Results: Results yielded 117 interventional effective training and competing. These barriers adult social care are required to follow the ethnicity has not been examined. studies under the following categories: Accessible Information Standard, to comply

84 85 with the duty of making reasonable disabilities (ID) in the UK is the focus of this objective tests yielded sensitivity of 98% and Conclusion: Further research is needed to adjustments for PWID. An individual whose ID paper. Theories of motivational enhancement specificity of 93%. evaluate the impact of ASD on hospital is not identified by the health care service will and Cognitive Behaviour Therapy were used. Conclusion: The study finds that the keen outcomes and to identify the patient and not receive these adjustments or their annual The sessions were recorded and scored using an observation of biological behaviours can help clinical drivers of extremely long length of health check, thus compromising their health adapted version of the Yale Adherence and the parents and professionals to identify hospital stay for patients with ASD. status. Competence Scale. Feedback was provided by hearing impairment in children with intellectual  Contribution: This concept will assist in therapists. The quality of the sessions provided impairment. Therefore, we recommend using a reducing unnecessary hospital admissions, and was rated as good. Therapists covered all the normal schedule of development of auditory Preliminary Study of Self-Esteem and preventable deaths in this population. topics in each session. Main challenges included and speech-language behaviors as a tool to Subjective Well-Being in Persons with Autism  session duration and homework task identify HI in less resourced settings. This will Spectrum Disorders completion. We recommend the duration to be prompt parents to seek further help from Michio Kojima Development of a Manual for Extended Brief extended to 40-50 minutes and to put more professionals and it will also help the Intervention for Alcohol Misuse in Adults with emphasis on carers’ involvement either in the rehabilitation professional to make appropriate Aim: A cross-sectional investigation regarding Mild to Moderate Intellectual Disabilities session and/or in homework task completion. referrals which may facilitate appropriate goals the characteristics of self-esteem and subjective Living in the Community Contribution: The paper describes the in rehabilitation planning. well-being was conducted in persons with Christos Kouimtsidis, Katrina Scior, Gianluca development of a short intervention for adults  Autism Spectrum Disorders(ASD). Baio, Rachael Hunter, Angela Hassiotis with ID and as such, it provides a "template" for Method: Participants were junior and senior future work and addresses gaps in the Adult Patients with Autism Spectrum Disorders high school students, university and vocational Description: The process of manualizing the availability of interventions for this population. in U.S. Academic Medical Centers school students, and adults diagnosed as adaptation of an extended brief intervention for The intervention can be translated in other Sarah Ailey, Louis Fogg ASD(N=24). Questionnaire survey was adults with mild to moderate intellectual settings and cultures. conducted on self-esteem and subjective well-  Aim: People with autism spectrum disorders being. Participants were classified into two (ASD) often have co-morbid conditions group, i.e. junior and senior high school including psychiatric disorders, seizure students (N=12, mean age=14.4) and ORAL PRESENTATIONS -- VIGNETTE (CASE EXAMPLE) disorders, and others. Previous research university/vocational school students and adults indicates increase in acute admissions of adults (N=12, mean age=23.1), and cross-sectional None with ASD, but little is known regarding the changes were examined. needs of this group of patients. The aim of this Results: The results indicated no significant study was to analyze UHC (formerly University differences in self-esteem and subjective well- POSTER PRESENTATIONS -- RESEARCH REPORT Health System Consortium) data to describe being scores between two groups. Moreover, adult patients (age ≥18) admitted to academic there were no significant differences in any Auditory and Speech-Language Development to be 5 years and more. This is much more than medical centers in the US with a secondary or subjective well-being domain between the two Schedule: A Tool to Detect Hearing Loss in the critical age of a child to respond positively primary diagnosis of ASD. group. Children with Intellectual Disability to intervention strategies. Thus, there is need to Method: De-identified UHC data (10/1/2012 to Conclusion: Significant differences were not Ansari Mohammad Shamim implement some form of hearing screening 7/15/2015) of this population of patients shown in self-esteem and subjective well-being module to identify HI in children with ID, (N=23,731) were analyzed. between the two groups, which suggest that Aim: Hearing impairment (HI) is a frequently especially in less resourced settings. Therefore, Results: Psychiatric diagnoses accounted for there were no developmental changes. occurring co-disability in children with the objective of the study is to assess the 29.4% of admissions, followed by infections Moreover, there were no differences in the sub- intellectual disability. HI alone has a devastating efficacy of a development schedule to identify (29%). neurological disorders (9%) and injuries domains of subjective well-being. It is impact on development of communication, HI. and poisonings (5.5%). Approximately 1.2% had concluded that subjective well-being of persons speech and language and cognitive skills. It also Method: 201 parents/caretakers of children lengths of stay ≥ 60 days, accounting for 15% of with ASD is lower than that of the general impedes the effectiveness and outcomes of with ID in the age range of 2-6years were total hospital days for this group. Anecdotal population in the same age group. management strategies for children with ID. interviewed with the developmental schedule reports indicate similar patterns may exist for  However, these negative impacts of HI are and comprehensive audiological assessment to patients with intellectual disabilities (without amenable if early intervention services along identify and categorise the HI. additional diagnosis of ASD), and that extended Problem Behaviors in Adolescents/Young with technological strategies are instituted at an Results: The parental interview could identify HI stays may be related to difficulties in finding Adults with Down Syndrome with and without early stage. However, the identification age of in 66% of children with ID. The failure rate was appropriate community based services at Diagnosed Mental Disorders HI in a developing country like India is reported more with severe forms of disability. The discharge. Hiroshi Itoh

86 87 with the duty of making reasonable disabilities (ID) in the UK is the focus of this objective tests yielded sensitivity of 98% and Conclusion: Further research is needed to adjustments for PWID. An individual whose ID paper. Theories of motivational enhancement specificity of 93%. evaluate the impact of ASD on hospital is not identified by the health care service will and Cognitive Behaviour Therapy were used. Conclusion: The study finds that the keen outcomes and to identify the patient and not receive these adjustments or their annual The sessions were recorded and scored using an observation of biological behaviours can help clinical drivers of extremely long length of health check, thus compromising their health adapted version of the Yale Adherence and the parents and professionals to identify hospital stay for patients with ASD. status. Competence Scale. Feedback was provided by hearing impairment in children with intellectual  Contribution: This concept will assist in therapists. The quality of the sessions provided impairment. Therefore, we recommend using a reducing unnecessary hospital admissions, and was rated as good. Therapists covered all the normal schedule of development of auditory Preliminary Study of Self-Esteem and preventable deaths in this population. topics in each session. Main challenges included and speech-language behaviors as a tool to Subjective Well-Being in Persons with Autism  session duration and homework task identify HI in less resourced settings. This will Spectrum Disorders completion. We recommend the duration to be prompt parents to seek further help from Michio Kojima Development of a Manual for Extended Brief extended to 40-50 minutes and to put more professionals and it will also help the Intervention for Alcohol Misuse in Adults with emphasis on carers’ involvement either in the rehabilitation professional to make appropriate Aim: A cross-sectional investigation regarding Mild to Moderate Intellectual Disabilities session and/or in homework task completion. referrals which may facilitate appropriate goals the characteristics of self-esteem and subjective Living in the Community Contribution: The paper describes the in rehabilitation planning. well-being was conducted in persons with Christos Kouimtsidis, Katrina Scior, Gianluca development of a short intervention for adults  Autism Spectrum Disorders(ASD). Baio, Rachael Hunter, Angela Hassiotis with ID and as such, it provides a "template" for Method: Participants were junior and senior future work and addresses gaps in the Adult Patients with Autism Spectrum Disorders high school students, university and vocational Description: The process of manualizing the availability of interventions for this population. in U.S. Academic Medical Centers school students, and adults diagnosed as adaptation of an extended brief intervention for The intervention can be translated in other Sarah Ailey, Louis Fogg ASD(N=24). Questionnaire survey was adults with mild to moderate intellectual settings and cultures. conducted on self-esteem and subjective well-  Aim: People with autism spectrum disorders being. Participants were classified into two (ASD) often have co-morbid conditions group, i.e. junior and senior high school including psychiatric disorders, seizure students (N=12, mean age=14.4) and ORAL PRESENTATIONS -- VIGNETTE (CASE EXAMPLE) disorders, and others. Previous research university/vocational school students and adults indicates increase in acute admissions of adults (N=12, mean age=23.1), and cross-sectional None with ASD, but little is known regarding the changes were examined. needs of this group of patients. The aim of this Results: The results indicated no significant study was to analyze UHC (formerly University differences in self-esteem and subjective well- POSTER PRESENTATIONS -- RESEARCH REPORT Health System Consortium) data to describe being scores between two groups. Moreover, adult patients (age ≥18) admitted to academic there were no significant differences in any Auditory and Speech-Language Development to be 5 years and more. This is much more than medical centers in the US with a secondary or subjective well-being domain between the two Schedule: A Tool to Detect Hearing Loss in the critical age of a child to respond positively primary diagnosis of ASD. group. Children with Intellectual Disability to intervention strategies. Thus, there is need to Method: De-identified UHC data (10/1/2012 to Conclusion: Significant differences were not Ansari Mohammad Shamim implement some form of hearing screening 7/15/2015) of this population of patients shown in self-esteem and subjective well-being module to identify HI in children with ID, (N=23,731) were analyzed. between the two groups, which suggest that Aim: Hearing impairment (HI) is a frequently especially in less resourced settings. Therefore, Results: Psychiatric diagnoses accounted for there were no developmental changes. occurring co-disability in children with the objective of the study is to assess the 29.4% of admissions, followed by infections Moreover, there were no differences in the sub- intellectual disability. HI alone has a devastating efficacy of a development schedule to identify (29%). neurological disorders (9%) and injuries domains of subjective well-being. It is impact on development of communication, HI. and poisonings (5.5%). Approximately 1.2% had concluded that subjective well-being of persons speech and language and cognitive skills. It also Method: 201 parents/caretakers of children lengths of stay ≥ 60 days, accounting for 15% of with ASD is lower than that of the general impedes the effectiveness and outcomes of with ID in the age range of 2-6years were total hospital days for this group. Anecdotal population in the same age group. management strategies for children with ID. interviewed with the developmental schedule reports indicate similar patterns may exist for  However, these negative impacts of HI are and comprehensive audiological assessment to patients with intellectual disabilities (without amenable if early intervention services along identify and categorise the HI. additional diagnosis of ASD), and that extended Problem Behaviors in Adolescents/Young with technological strategies are instituted at an Results: The parental interview could identify HI stays may be related to difficulties in finding Adults with Down Syndrome with and without early stage. However, the identification age of in 66% of children with ID. The failure rate was appropriate community based services at Diagnosed Mental Disorders HI in a developing country like India is reported more with severe forms of disability. The discharge. Hiroshi Itoh

86 87 Aim: It is known that there are adolescents and Disabled Women’s Access to Maternal and have been found associated with ASD diagnosis nucleotide polymorphisms(SNPs) in ASD. Clinical young adults with Down syndrome who have Child Healthcare in Zambia and other endophenotypes related to autism. and translational implications are discussed reduced adaptive behaviors. Some of them are Masauso Simon Chirwa Here we comparatively analysed the entire either in a short-term or in a forward-looking diagnosed with physical/mental disorders, but literature (extracted from Pubmed database, perspective. others are not diagnosed. This study examines Aim: Disabled mothers face various barriers in N=148 papers, keywords [“OXTr” OR “AVPr” Contribution: This review illustrates the mental, cognitive or physical problems in this accessing social services such as health services. AND “ASD”; “oxytocin” OR “arginine importance of OXTr and AVPr on mechanisms of population, taking into account differences in This study used an intersectional approach in vasopressin” AND “autism”] on animal models development and treatment of Autism diagnosis. exploring disabled women’s experiences, (e.g., monkey, prairie voles, knockout mice) and Spectrum Disorder highlighting the role they Method: Participants and their family members specifically the experiences that disabled human studies. These studies, that belong to play in each of its dimensions. were interviewed about changes in mental, mothers attach to their motherhood, health different research fields, enlighten a co-  cognitive or physical problems. These were and their child’s health. presence of specific OXTr and AVPr single analyzed according to the diagnosis given. Method: The study was qualitative in nature. Results: Temper tantrums and psychomotor This approach enabled the researcher to glean slowness were apparent in approximately half greater understanding of the experiences of the target group that had mental disorders. In disabled mothers. Biographical interviews were participants with physical disorders, temper the means through which mothers’ accounts tantrums were not observed; however, about their life were obtained. psychomotor slowness, poor expression, Results: Decisions to seek healthcare takes apathy, and withdrawal were observed. place in a complex web of relationships, long Meanwhile, psychomotor slowness, decreased distances affect profoundly women’s speech and conversation, apathy, and willingness and ability to seek care, particularly withdrawal were frequently observed in the when appropriate transportation is very limited, group who were not given any of these and terrain inhospitable. This becomes diagnoses. particularly difficult for disabled women to seek Conclusion: Differences existed in the changes maternal and child healthcare. These mothers appearing in body & mental functions were perceived to be incapable of parenting depending on the diagnosis of patients and the their children, and they were mostly divorced. type of diagnosis. In particular, this study They also suffered discrimination. Distance to suggested that the primary changes in people health facilities disadvantage mothers from with Down syndrome who were not diagnosed accessing maternal and child health services. were psychomotor slowness, decreased Conclusion: The findings of this study have conversation and speech, and apathy. potential to provide the basis for mandatory  support to disabled women especially regarding accessing social services such maternal and child health services. 

POSTER PRESENTATIONS – NEW CONCEPTUALIZATION, THEORY, EXEMPLARY PRACTICE, OR POLICY STRATEGY

Involvement of Oxytocin and Arginine the pivotal role of two similar neuro hormones Vasopressin May Unveil Modulation of Autism (oxytocin -OXT; and arginine-vasopressin -AVP), Spectrum Disorder that are released within the brain where they Ilaria Cataldo, Gianluca Esposito, Atiqah Azhari fulfill a key regulatory part in social and affiliative behaviors, two aspects highly Description: Recent studies in the field of compromised in ASD. Furthermore, variants in Autism spectrum disorder (ASD) has highlighted the adjacent oxytocin-vasopressin gene region

88 89 Aim: It is known that there are adolescents and Disabled Women’s Access to Maternal and have been found associated with ASD diagnosis nucleotide polymorphisms(SNPs) in ASD. Clinical young adults with Down syndrome who have Child Healthcare in Zambia and other endophenotypes related to autism. and translational implications are discussed reduced adaptive behaviors. Some of them are Masauso Simon Chirwa Here we comparatively analysed the entire either in a short-term or in a forward-looking diagnosed with physical/mental disorders, but literature (extracted from Pubmed database, perspective. others are not diagnosed. This study examines Aim: Disabled mothers face various barriers in N=148 papers, keywords [“OXTr” OR “AVPr” Contribution: This review illustrates the mental, cognitive or physical problems in this accessing social services such as health services. AND “ASD”; “oxytocin” OR “arginine importance of OXTr and AVPr on mechanisms of population, taking into account differences in This study used an intersectional approach in vasopressin” AND “autism”] on animal models development and treatment of Autism diagnosis. exploring disabled women’s experiences, (e.g., monkey, prairie voles, knockout mice) and Spectrum Disorder highlighting the role they Method: Participants and their family members specifically the experiences that disabled human studies. These studies, that belong to play in each of its dimensions. were interviewed about changes in mental, mothers attach to their motherhood, health different research fields, enlighten a co-  cognitive or physical problems. These were and their child’s health. presence of specific OXTr and AVPr single analyzed according to the diagnosis given. Method: The study was qualitative in nature. Results: Temper tantrums and psychomotor This approach enabled the researcher to glean slowness were apparent in approximately half greater understanding of the experiences of the target group that had mental disorders. In disabled mothers. Biographical interviews were participants with physical disorders, temper the means through which mothers’ accounts tantrums were not observed; however, about their life were obtained. psychomotor slowness, poor expression, Results: Decisions to seek healthcare takes apathy, and withdrawal were observed. place in a complex web of relationships, long Meanwhile, psychomotor slowness, decreased distances affect profoundly women’s speech and conversation, apathy, and willingness and ability to seek care, particularly withdrawal were frequently observed in the when appropriate transportation is very limited, group who were not given any of these and terrain inhospitable. This becomes diagnoses. particularly difficult for disabled women to seek Conclusion: Differences existed in the changes maternal and child healthcare. These mothers appearing in body & mental functions were perceived to be incapable of parenting depending on the diagnosis of patients and the their children, and they were mostly divorced. type of diagnosis. In particular, this study They also suffered discrimination. Distance to suggested that the primary changes in people health facilities disadvantage mothers from with Down syndrome who were not diagnosed accessing maternal and child health services. were psychomotor slowness, decreased Conclusion: The findings of this study have conversation and speech, and apathy. potential to provide the basis for mandatory  support to disabled women especially regarding accessing social services such maternal and child health services. 

POSTER PRESENTATIONS – NEW CONCEPTUALIZATION, THEORY, EXEMPLARY PRACTICE, OR POLICY STRATEGY

Involvement of Oxytocin and Arginine the pivotal role of two similar neuro hormones Vasopressin May Unveil Modulation of Autism (oxytocin -OXT; and arginine-vasopressin -AVP), Spectrum Disorder that are released within the brain where they Ilaria Cataldo, Gianluca Esposito, Atiqah Azhari fulfill a key regulatory part in social and affiliative behaviors, two aspects highly Description: Recent studies in the field of compromised in ASD. Furthermore, variants in Autism spectrum disorder (ASD) has highlighted the adjacent oxytocin-vasopressin gene region

88 89 3. Disability Policy Evaluation: Systems Thinking and Quality of Life (p.15) Subject Index 4.Family Quality of Life and the Expanding Connections Model: Practical Suggestions for Practice and Policy (p.14) Symposium 8: Challenging behaviours 1. Intensive Support Team Model in Managing Challenging Behaviours in People with Intellectual Disabilities (p.2) Keynote Speeches 2. Management Support for Staff in Community Services for People with ID and Challenging Behaviours (p.5) 3. Using Flipped Classroom, Motivational Interviewing and Process Mapping to Facilitate Practice Improvement in Health Staff Professional education & learning for people supporting individuals with disabilities through the lens of implementation Working with Patients with Intellectual Disability (ID) and Challenging Behaviours (p.16) science (p.i) 4. A Successful Approach to Admission and Discharge Planning for Patients with ID and Challenging Behaviours: A Case Study Michael Arthur-Kelly (p.19) Advances in Medicine for People with Intellectual and Developmental Disabilities (p.i) Symposium 9: Decision making Vorasuk Shotelersuk 1. Association between Social Functioning and Intellectual Quotient of Patients with Autistic Like Traits (p.1) Establishing Mental Health Supports for Adults with Intellectual & Developmental Disabilities in Asian Countries (p.ii) 2. "She can never leave me now": Participants Perspectives on Volunteers Supporting Decision Making (p.6) Henry Kwok, Ker-Chiah Wai, Maggie To, Ashley Jayapaul 3. The Role of Practice Models in Implementing Decision-Making Support (p.10) Realizing Inclusive and Equitable Quality Education for All: Challenges and Opportunities of SDG4-Education 2030 (p.ii) 4. Volunteers Supporting People with Disability to Make Decisions (p.1) Maki Hayashikawa Symposium 10: Rights of PWID Zika Virus: Ecology, Epidemiology, and Disease Associations (p.iii) 1. Procreative Injustice. The Access to Reproductive Rights for Women with ID in Poland (p.10) David Harley 2. The Universal Right to Science: An Important Connection with the Convention on the Rights of People with Disabilities (p.14) Track 1. Support models and strategies 3. Inclusion in Germany: Theoretical Foundation and Practical Experience in Different Areas of Life (p.18) 4. Applying Article 12 of the UNCRPD within Guardianship Practice in Victoria, Australia (p.11)

Symposium 11: Communication and restrictive practice Symposium 1: Measuring outcomes 1. Analysis of Underlying Diseases of Persons in Institutions for Severe Motor and Intellectual Disabilities (Smid) from 1986 To 1. Measuring Outcomes of Service Provision: The Development of an Outcomes Measure (p.2) 2016 (p.12) 2. Measuring Goal Realisation Associated with Disability Services and Supports: Initial Evidence for a New Tool (p.6) 2. Survey of UK based Organisations Responses to New Government Policy on Restrictive Practices and People with ID (p.3) 3. Success Factors for Matching Different Types of Disabilities to Work: Two Case Verifications of Work Continuance Support a 3. People with PIMD Disabilities Can Interact without Words: Understanding the Wordless Conversation (p.16) Type Office in Japan (p.18) 4. An Organisation-Wide Approach to Implementing Key Word Sign among Disability Support Workers in Singapore (p.19) 4. Measuring Progress Toward the Goals in the CRPD: The Need for State Structures and Policies to Measure Outcomes (p.17) Symposium 12: Policies and practices supporting sustainable community living Symposium 2: Organisational practice and cultures 1. The Poverty Problem of People with Disabilities and Policy Issues Around Living Allowance: The Case of Taipei (p.13) 1. Rethinking Disability Certifying and Entitled Welfare Services Delivering: An Application of ICF in Taiwan (p.7) 2. I have the right to choose where to live’: Policies and Practices on Living in the Community for People with ID in Taiwan 2. Staff Perceptions of the Purpose, Frequency and Organisational Focus for Senior Manager Visits to Services, in the UK (p.7) (p.20) 3. Group Home Culture Within and Across Organisations (p.2) 3. A Case Study of a Municipal Process for Distribution of Resources within Disability Services (p.13) 4. The Relationship Between Group Home Culture and Quality of Life Outcomes for People with Intellectual Disabilities (p.4) 4. Using Supports Budgets to Manage Sustainability in IDD Support Systems in an Uncertain Future (p.15) Symposium 3: Interventions

1. A Randomized Controlled Trial of the Effects of Caregiver Training in Mindfulness-Based Positive Behavior Support (MBPBS) Posters vs. Positive Behavior Support (PBS) (p.3) • 2 Peer Mediation as a Societal Support Model by and for People with Intellectual and Developmental Disabilities (p.10) The Strategies of Occupational Therapists Implementing Family-centered Approach (p.20) • 3. Pairing an Avatar and a Cognitive System to Facilitate Access to the NDIS for People with ID (p.16) Assessing Manual Dexterity in Adults with Intellectual Disability (ID) and Developing Singapore Norms of the Box and 4. Steps to Effective Problem Solving: A Randomized Clinical Trial (p.14) Block Hand Function Test -A Study on Adults with Moderate ID in Singapore (p.20) Symposium 4: Innovative interventions • Actual Condition and Problems of ASD Support System: The Role of Okayama Support Center for People with ASD 1. Social Enterprise as a Means of Promoting Vocational Opportunities for People with Intellectual Disabilities (p.3) (p.21) 2. Individualised Supported Living - A New Approach to Planning for Accommodation and a Full Life in the Community (p.4) • Detailed Statistics of “Survey on Persons with Difficulties in Daily Lives” Held in 2011 Japan: Children and Persons with 3. Establishing and Maintaining Couplehood as Perceived by Couples with Intellectual and Developmental Disabilities: Autistic Disabilities without Disability Registration (p.21) Implications for the Provision of Support (p.9) • Creation of a Scale for the Assessment of Social and Behavioral Development in Preschool Children (p.22) 4. SAHK Autism Support Service: A Support Model for Adults with Autism Spectrum Disorder (ASD) (p.18) • Support System for Preschool-Age Children with Developmental Disabilities and Their Families in Japan (p.22) Symposium 5: Support to children and families • Implementing and Evaluating a Trans-Disciplinary Team Approach to Early Intervention in Singapore (p.22) 1. Impact of Family Support on Caregiver Well-Being (p.7) • Quantitative Analysis of Sentence Completion Technique and its Implications (p.23) 2. Evaluating the Effectiveness of Support Programme for Siblings of Persons with Intellectual and Developmental Disabilities • The Current Situation of the Short-Stay Service for People with Intensive Medical Care in Japan (p.23) in Singapore over a Five-Year Period (p.8) • Early Intervention in Naturalistic Environments Using Child and Family Routines—A Paradigm Shift in Delivery of 3. Parent Researcher Collaborations and Exploring the Lived Experience Through Story-Telling (p.11) Clinic-Based Intervention in Singapore for Children with Developmental Disabilities (p.24) 4. Play and Children with Autism Spectrum Disorder (p.11) • Reviewing a Problem of the Long-term Care Insurance for Elderly People in Japan from the ICF (p.24) Symposium 6: Parents with intellectual disability • Is WeChat Influencing Policy Making for People with Intellectual and Developmental Disabilities in China? (p.25) 1. Prevalence of Child Protection Outcomes in Families Led by Parents with Cognitive Impairment in Canada (p.12) • A Trans-disciplinary and Socio-Ecological Framework to Understand and Evaluate Inclusion Practices in the Workplace 2. Domestic Violence, Mothering with Intellectual Disability and the Child Protection System (p.8) (p.25) 3. “If I had this support before I would still have my first child with me”: Supporting Parents with Intellectual Disability in the • Alternative Support Model and Strategies for Promoting Inclusive Education of Hong Kong (p.25) Child Protection System (p.9) • Social Interaction using Objects with Non-Verbal Students (p.26) 4. Peer Education - A Way to Talk about the Right to be Sexual: A Positive Pathway to Parenting (p.17) • Improve Quality of Service for Persons with Disabilities using Online Software (p.26) Symposium 7: Quality of life 1. People with an Acquired Brain Injury: An Interpretative-Phenomenological Analysis of their Quality of Life (p.5) 2. An International Approach to Align UNCRPD Articles with Quality of Life Indicators and Support Strategies (p.5)

90 91 3. Disability Policy Evaluation: Systems Thinking and Quality of Life (p.15) Subject Index 4.Family Quality of Life and the Expanding Connections Model: Practical Suggestions for Practice and Policy (p.14) Symposium 8: Challenging behaviours 1. Intensive Support Team Model in Managing Challenging Behaviours in People with Intellectual Disabilities (p.2) Keynote Speeches 2. Management Support for Staff in Community Services for People with ID and Challenging Behaviours (p.5) 3. Using Flipped Classroom, Motivational Interviewing and Process Mapping to Facilitate Practice Improvement in Health Staff Professional education & learning for people supporting individuals with disabilities through the lens of implementation Working with Patients with Intellectual Disability (ID) and Challenging Behaviours (p.16) science (p.i) 4. A Successful Approach to Admission and Discharge Planning for Patients with ID and Challenging Behaviours: A Case Study Michael Arthur-Kelly (p.19) Advances in Medicine for People with Intellectual and Developmental Disabilities (p.i) Symposium 9: Decision making Vorasuk Shotelersuk 1. Association between Social Functioning and Intellectual Quotient of Patients with Autistic Like Traits (p.1) Establishing Mental Health Supports for Adults with Intellectual & Developmental Disabilities in Asian Countries (p.ii) 2. "She can never leave me now": Participants Perspectives on Volunteers Supporting Decision Making (p.6) Henry Kwok, Ker-Chiah Wai, Maggie To, Ashley Jayapaul 3. The Role of Practice Models in Implementing Decision-Making Support (p.10) Realizing Inclusive and Equitable Quality Education for All: Challenges and Opportunities of SDG4-Education 2030 (p.ii) 4. Volunteers Supporting People with Disability to Make Decisions (p.1) Maki Hayashikawa Symposium 10: Rights of PWID Zika Virus: Ecology, Epidemiology, and Disease Associations (p.iii) 1. Procreative Injustice. The Access to Reproductive Rights for Women with ID in Poland (p.10) David Harley 2. The Universal Right to Science: An Important Connection with the Convention on the Rights of People with Disabilities (p.14) Track 1. Support models and strategies 3. Inclusion in Germany: Theoretical Foundation and Practical Experience in Different Areas of Life (p.18) 4. Applying Article 12 of the UNCRPD within Guardianship Practice in Victoria, Australia (p.11)

Symposium 11: Communication and restrictive practice Symposium 1: Measuring outcomes 1. Analysis of Underlying Diseases of Persons in Institutions for Severe Motor and Intellectual Disabilities (Smid) from 1986 To 1. Measuring Outcomes of Service Provision: The Development of an Outcomes Measure (p.2) 2016 (p.12) 2. Measuring Goal Realisation Associated with Disability Services and Supports: Initial Evidence for a New Tool (p.6) 2. Survey of UK based Organisations Responses to New Government Policy on Restrictive Practices and People with ID (p.3) 3. Success Factors for Matching Different Types of Disabilities to Work: Two Case Verifications of Work Continuance Support a 3. People with PIMD Disabilities Can Interact without Words: Understanding the Wordless Conversation (p.16) Type Office in Japan (p.18) 4. An Organisation-Wide Approach to Implementing Key Word Sign among Disability Support Workers in Singapore (p.19) 4. Measuring Progress Toward the Goals in the CRPD: The Need for State Structures and Policies to Measure Outcomes (p.17) Symposium 12: Policies and practices supporting sustainable community living Symposium 2: Organisational practice and cultures 1. The Poverty Problem of People with Disabilities and Policy Issues Around Living Allowance: The Case of Taipei (p.13) 1. Rethinking Disability Certifying and Entitled Welfare Services Delivering: An Application of ICF in Taiwan (p.7) 2. I have the right to choose where to live’: Policies and Practices on Living in the Community for People with ID in Taiwan 2. Staff Perceptions of the Purpose, Frequency and Organisational Focus for Senior Manager Visits to Services, in the UK (p.7) (p.20) 3. Group Home Culture Within and Across Organisations (p.2) 3. A Case Study of a Municipal Process for Distribution of Resources within Disability Services (p.13) 4. The Relationship Between Group Home Culture and Quality of Life Outcomes for People with Intellectual Disabilities (p.4) 4. Using Supports Budgets to Manage Sustainability in IDD Support Systems in an Uncertain Future (p.15) Symposium 3: Interventions

1. A Randomized Controlled Trial of the Effects of Caregiver Training in Mindfulness-Based Positive Behavior Support (MBPBS) Posters vs. Positive Behavior Support (PBS) (p.3) • 2 Peer Mediation as a Societal Support Model by and for People with Intellectual and Developmental Disabilities (p.10) The Strategies of Occupational Therapists Implementing Family-centered Approach (p.20) • 3. Pairing an Avatar and a Cognitive System to Facilitate Access to the NDIS for People with ID (p.16) Assessing Manual Dexterity in Adults with Intellectual Disability (ID) and Developing Singapore Norms of the Box and 4. Steps to Effective Problem Solving: A Randomized Clinical Trial (p.14) Block Hand Function Test -A Study on Adults with Moderate ID in Singapore (p.20) Symposium 4: Innovative interventions • Actual Condition and Problems of ASD Support System: The Role of Okayama Support Center for People with ASD 1. Social Enterprise as a Means of Promoting Vocational Opportunities for People with Intellectual Disabilities (p.3) (p.21) 2. Individualised Supported Living - A New Approach to Planning for Accommodation and a Full Life in the Community (p.4) • Detailed Statistics of “Survey on Persons with Difficulties in Daily Lives” Held in 2011 Japan: Children and Persons with 3. Establishing and Maintaining Couplehood as Perceived by Couples with Intellectual and Developmental Disabilities: Autistic Disabilities without Disability Registration (p.21) Implications for the Provision of Support (p.9) • Creation of a Scale for the Assessment of Social and Behavioral Development in Preschool Children (p.22) 4. SAHK Autism Support Service: A Support Model for Adults with Autism Spectrum Disorder (ASD) (p.18) • Support System for Preschool-Age Children with Developmental Disabilities and Their Families in Japan (p.22) Symposium 5: Support to children and families • Implementing and Evaluating a Trans-Disciplinary Team Approach to Early Intervention in Singapore (p.22) 1. Impact of Family Support on Caregiver Well-Being (p.7) • Quantitative Analysis of Sentence Completion Technique and its Implications (p.23) 2. Evaluating the Effectiveness of Support Programme for Siblings of Persons with Intellectual and Developmental Disabilities • The Current Situation of the Short-Stay Service for People with Intensive Medical Care in Japan (p.23) in Singapore over a Five-Year Period (p.8) • Early Intervention in Naturalistic Environments Using Child and Family Routines—A Paradigm Shift in Delivery of 3. Parent Researcher Collaborations and Exploring the Lived Experience Through Story-Telling (p.11) Clinic-Based Intervention in Singapore for Children with Developmental Disabilities (p.24) 4. Play and Children with Autism Spectrum Disorder (p.11) • Reviewing a Problem of the Long-term Care Insurance for Elderly People in Japan from the ICF (p.24) Symposium 6: Parents with intellectual disability • Is WeChat Influencing Policy Making for People with Intellectual and Developmental Disabilities in China? (p.25) 1. Prevalence of Child Protection Outcomes in Families Led by Parents with Cognitive Impairment in Canada (p.12) • A Trans-disciplinary and Socio-Ecological Framework to Understand and Evaluate Inclusion Practices in the Workplace 2. Domestic Violence, Mothering with Intellectual Disability and the Child Protection System (p.8) (p.25) 3. “If I had this support before I would still have my first child with me”: Supporting Parents with Intellectual Disability in the • Alternative Support Model and Strategies for Promoting Inclusive Education of Hong Kong (p.25) Child Protection System (p.9) • Social Interaction using Objects with Non-Verbal Students (p.26) 4. Peer Education - A Way to Talk about the Right to be Sexual: A Positive Pathway to Parenting (p.17) • Improve Quality of Service for Persons with Disabilities using Online Software (p.26) Symposium 7: Quality of life 1. People with an Acquired Brain Injury: An Interpretative-Phenomenological Analysis of their Quality of Life (p.5) 2. An International Approach to Align UNCRPD Articles with Quality of Life Indicators and Support Strategies (p.5)

90 91 Roundtables 4. The Study and Practice about Quality of Life and Support System for Person with IDD In China (p.47) • Building Research Capacity in the Asia/Pacific Region in the Field of Intellectual and Developmental Disabilities (p.27) Symposium 8: Facilitating successful employment, Part 1 • How to get your Research Published: Guidance and Steps Involved in Getting a Paper Published (p.27) 1. Pathways to Inclusion (p.47) • Getting Things Changed: Everyday Support Interactions and Why They Matter (p.27) 2. Development of the Work Support Profile (WSP)- An Instrument to Assess Support Needs of Adults with Intellectual • A Person-Centered Care and Engagement Model for Improving and Sustaining Outcomes in Any (Psychiatric) Setting Disabilities in Sheltered Employment (p.37) and All Populations (p.28) 3. Small Business Enterprises for Adults with Intellectual Disabilities and High Support Needs: Innovative and Entrepreneurial • Assessment: Quantifying Need, Allocating Resources, And Measuring Quality--Nation-State Perspectives (p.28) Approaches to Meaningful Employment (p.37) • Disability Law, Policy, and Services within the Asian Context (p.28) 4. The Characteristics of Sustained Open Employment for People with Disabilities: The Views of Persons with Disabilities, Their • Specialist Community-based Services for Adults with Intellectual Disability: Are we in Shangri-La or Cloud Cuckoo Caregivers and Employers (p.41) Land? (p.29) Symposium 9: Facilitating successful employment, Part 2 • Do People with Developmental Disabilities need Specialist Inpatient Services? (p.29) 1 Employment Security of Students with Intellectual Disability Who Have Successfully Completed Their Education in a Vocational Training Institute (p.36) Demonstrations 2. Research Supported Practices in Promoting Employment Outcomes (p.39) • Video Interaction Guidance: High Quality Interactions Pave the Way to Inclusion (p.30) 3. The Need to Bridge the Divide: Assessment of Job Satisfaction in Sheltered Workshops (p.36) 4. The Key Factors for Improving QWL (Quality of Working Life) for People with Disabilities in Work Continuance Support B • Art Makes Us Human - Support Model of Societal Participation through Arts by Easy Read (p.30) Type Office in Japan - Through “Temil Project” and “Equalto Project” (p.49) Symposium 10: Individuals and attitudinal issues Track 2. Successful living within communities 1. Attitudes towards Individuals with Intellectual Disabilities across Asia: A Systematic Review (p.34) 2. Key Professionals’ Attitude towards People with Intellectual Disabilities and Inclusion: An Indonesian Perspective (p.39) Symposium 1: Overviews of successful living around the world 3. Loneliness in People with Intellectual and Developmental Disorders (IDD) across the Lifespan: A Systematic Review of 1. Persons with Intellectual Disabilities in the 20th Century of China (p.42) Prevalence and Interventions (p.32) 2. The Process of the Formulation of Prefectural Regulations for People with Disabilities in Oita Prefecture, Japan (p.42) 4. Dealing with Decision-Making and Different Opinions in a Self-Advocacy Group from Sweden (p.50) 3. Accessibility for Person with Disabilities in Banda Aceh District Post Earthquake and Tsunami 2004 (p.45) Symposium 11: Rights and CRPD 4. Pre-vocational (PV) Programme Teachers’ Perspectives: Developing, Implementing and Evaluating a School-based 1. Whose right? And who’s right? UNCRPD and the Dilemma of Rights for Young Adults with Intellectual Disability (p.35) Enterprise (SBE) Programme in Secondary Schools (p.41) 2. Achieving Inclusive Societies and Sustainable Development for People with Intellectual or Developmental Disabilities using Symposium 2: Facilitating successful living in communities Assistive Technology (p.42) 1. Benefits and Barriers to Participation in Organised Physical Activity for Australian Children with a Disability (p.31) 3. The Role of Self Advocacy in My Life as President of Self-Advocacy Organization (p.48) 2. Aligning with the Flow of Control: A Classic Grounded Theory Study of Choice and Control in the Lives of People with 4. Self-Advocacy and My Work (p.50) Intellectual Disabilities (p.46) Symposium 12: Social networks and communication 3. Importance of Aural Rehabilitation in Management of Conduct Problems in Person with Intellectual Disability: A Case 1. Enhancing social networks of adults with intellectual disabilities with social media use training (p.39) Report (p.49) 2. Perceptions of Retail Customer Service Communication with Customers with Complex Communication Needs (CCN) who 4. IDD Artmaking in Canada (p.43) use Augmentative and Alternative Communication Systems (AAC) (p.44) Symposium 3: Successful families and siblings 3. Are Vocabulary Choices the Same in Easy English Documents in Different Parts of the World? (p.41) 1. Challenges Faced by Siblings of Adults with Intellectual Disability (ID) (p.35) Symposium 13: Forensic – victims and perpetrators 2. Negotiating the present; fearing the future: narratives of mothers and grandmothers of children with cerebral palsy in Sri 1. Verbal Violence Towards People with Intellectual Developmental Disabilities (p.45) Lanka (p.40) 2. Redesigning Forensic Services for People with Intellectual Disabilities (p.44) 3. Support Groups and Family Resilience for Intellectual Disabilities in Thailand: A Systematic Review (p.40) 3. Fitness to Plead: Scientific Aids to Promote Inclusion (p.46) Symposium 4: Successful families and parents 4. Sagamihara Tragedy and Challenges of Community Living (p.48) 1. Developmental Needs of Family Caregivers of People with Disabilities (p.33) 2. The Lived Experience of Parents with a Young Adult with Intellectual Disability: A Snapshot of the Duality of Personal Posters Growth and Challenging Times (p.33) • Factors Associated with Religious Community Involvement for Mothers of Children with Autism (p.51) 3. Authoritarian Parenting of Chinese Mothers of Children with and without Intellectual Disability (p.34) • Longitudinal Profiles of Social Communication in Fragile X Syndrome, Down Syndrome, and Autism Spectrum Disorder 4. Does Parent’s Desire for Change Influence their Child’s Participation? (p.35) (p.51) Symposium 5: Successes in Autism • Identifying Support Needs of Elderly Caregivers of Clients with Intellectual Disabilities in Supported Employment 1. Fostering Integration and Inclusivity by Supporting the Service Needs of Adult Children with Autism Spectrum Disorder Services in Singapore (p.52) (p.31) • Assistive Technology for Independence Living. Mefacilyta, a Life Skills App for Inclusion of People with Intellectual or 2. Parental Intervention on Daily Living Skills Using Visual Prompt Approach for Children with Autism Spectrum Disorder (p.32) Developmental Disabilities (p.52) 3. The Invisible Children: Needs for School Age Special Siblings of Children with Intellectual Disability/Autism in Taiwan (p.32) • Twitter as a Means to Measure Attitudes towards People with Intellectual Disability (p.52) 4. Job Satisfaction and Quality of Life in Autism (p.43) • Concepts of Job Satisfaction in People with Intellectual Disability (p.53) Symposium 6: Quality of life • The Assessment of Quality of Life of People with Intellectual Disabilities in Japan-using the Personal Outcomes Scale 1. Individual Supported Living (ISL) as a Quality Framework to Create and Promote “One’s Own Home” (p.33) (p.53) 2. Symptoms of Psychological Distress and Family Quality of Life among Subgroups of Children Attending Early Intervention • A Development and Evaluation of a Workshop of Disability Awareness Particularly in the Event of Disasters for Programs (p.37) Primary School Children (p.53) 3. Using Family Quality of Life Data to Improve Practice and Family Life: A Look at Two Ways to Consider the Results (p.38) • Group Home for People with PIMD: Current Situation in Tokyo and Hope for Living in Community (p.54) 4. Predictors of Family Quality of Life for Families of Children with Intellectual Disabilities (p.44) • Preliminary Reliability Analysis of the Social Impact of Repetitive Behavior Scale (p.54) Symposium 7: Quality of life around the world • 1. Korean Family Quality of Life: Validating the Family Quality of Life Scale and Identifying Important Predictors (p.30) Community Participation Model for Young Adults with Intellectual and Developmental Disabilities (p.55) 2. Quality of Life: Towards a Shared Framework for Intersectoral Collaboration (p.38) 3. Family Quality of Life of Adults with ID in Singapore (p.46)

92 93 Roundtables 4. The Study and Practice about Quality of Life and Support System for Person with IDD In China (p.47) • Building Research Capacity in the Asia/Pacific Region in the Field of Intellectual and Developmental Disabilities (p.27) Symposium 8: Facilitating successful employment, Part 1 • How to get your Research Published: Guidance and Steps Involved in Getting a Paper Published (p.27) 1. Pathways to Inclusion (p.47) • Getting Things Changed: Everyday Support Interactions and Why They Matter (p.27) 2. Development of the Work Support Profile (WSP)- An Instrument to Assess Support Needs of Adults with Intellectual • A Person-Centered Care and Engagement Model for Improving and Sustaining Outcomes in Any (Psychiatric) Setting Disabilities in Sheltered Employment (p.37) and All Populations (p.28) 3. Small Business Enterprises for Adults with Intellectual Disabilities and High Support Needs: Innovative and Entrepreneurial • Assessment: Quantifying Need, Allocating Resources, And Measuring Quality--Nation-State Perspectives (p.28) Approaches to Meaningful Employment (p.37) • Disability Law, Policy, and Services within the Asian Context (p.28) 4. The Characteristics of Sustained Open Employment for People with Disabilities: The Views of Persons with Disabilities, Their • Specialist Community-based Services for Adults with Intellectual Disability: Are we in Shangri-La or Cloud Cuckoo Caregivers and Employers (p.41) Land? (p.29) Symposium 9: Facilitating successful employment, Part 2 • Do People with Developmental Disabilities need Specialist Inpatient Services? (p.29) 1 Employment Security of Students with Intellectual Disability Who Have Successfully Completed Their Education in a Vocational Training Institute (p.36) Demonstrations 2. Research Supported Practices in Promoting Employment Outcomes (p.39) • Video Interaction Guidance: High Quality Interactions Pave the Way to Inclusion (p.30) 3. The Need to Bridge the Divide: Assessment of Job Satisfaction in Sheltered Workshops (p.36) 4. The Key Factors for Improving QWL (Quality of Working Life) for People with Disabilities in Work Continuance Support B • Art Makes Us Human - Support Model of Societal Participation through Arts by Easy Read (p.30) Type Office in Japan - Through “Temil Project” and “Equalto Project” (p.49) Symposium 10: Individuals and attitudinal issues Track 2. Successful living within communities 1. Attitudes towards Individuals with Intellectual Disabilities across Asia: A Systematic Review (p.34) 2. Key Professionals’ Attitude towards People with Intellectual Disabilities and Inclusion: An Indonesian Perspective (p.39) Symposium 1: Overviews of successful living around the world 3. Loneliness in People with Intellectual and Developmental Disorders (IDD) across the Lifespan: A Systematic Review of 1. Persons with Intellectual Disabilities in the 20th Century of China (p.42) Prevalence and Interventions (p.32) 2. The Process of the Formulation of Prefectural Regulations for People with Disabilities in Oita Prefecture, Japan (p.42) 4. Dealing with Decision-Making and Different Opinions in a Self-Advocacy Group from Sweden (p.50) 3. Accessibility for Person with Disabilities in Banda Aceh District Post Earthquake and Tsunami 2004 (p.45) Symposium 11: Rights and CRPD 4. Pre-vocational (PV) Programme Teachers’ Perspectives: Developing, Implementing and Evaluating a School-based 1. Whose right? And who’s right? UNCRPD and the Dilemma of Rights for Young Adults with Intellectual Disability (p.35) Enterprise (SBE) Programme in Secondary Schools (p.41) 2. Achieving Inclusive Societies and Sustainable Development for People with Intellectual or Developmental Disabilities using Symposium 2: Facilitating successful living in communities Assistive Technology (p.42) 1. Benefits and Barriers to Participation in Organised Physical Activity for Australian Children with a Disability (p.31) 3. The Role of Self Advocacy in My Life as President of Self-Advocacy Organization (p.48) 2. Aligning with the Flow of Control: A Classic Grounded Theory Study of Choice and Control in the Lives of People with 4. Self-Advocacy and My Work (p.50) Intellectual Disabilities (p.46) Symposium 12: Social networks and communication 3. Importance of Aural Rehabilitation in Management of Conduct Problems in Person with Intellectual Disability: A Case 1. Enhancing social networks of adults with intellectual disabilities with social media use training (p.39) Report (p.49) 2. Perceptions of Retail Customer Service Communication with Customers with Complex Communication Needs (CCN) who 4. IDD Artmaking in Canada (p.43) use Augmentative and Alternative Communication Systems (AAC) (p.44) Symposium 3: Successful families and siblings 3. Are Vocabulary Choices the Same in Easy English Documents in Different Parts of the World? (p.41) 1. Challenges Faced by Siblings of Adults with Intellectual Disability (ID) (p.35) Symposium 13: Forensic – victims and perpetrators 2. Negotiating the present; fearing the future: narratives of mothers and grandmothers of children with cerebral palsy in Sri 1. Verbal Violence Towards People with Intellectual Developmental Disabilities (p.45) Lanka (p.40) 2. Redesigning Forensic Services for People with Intellectual Disabilities (p.44) 3. Support Groups and Family Resilience for Intellectual Disabilities in Thailand: A Systematic Review (p.40) 3. Fitness to Plead: Scientific Aids to Promote Inclusion (p.46) Symposium 4: Successful families and parents 4. Sagamihara Tragedy and Challenges of Community Living (p.48) 1. Developmental Needs of Family Caregivers of People with Disabilities (p.33) 2. The Lived Experience of Parents with a Young Adult with Intellectual Disability: A Snapshot of the Duality of Personal Posters Growth and Challenging Times (p.33) • Factors Associated with Religious Community Involvement for Mothers of Children with Autism (p.51) 3. Authoritarian Parenting of Chinese Mothers of Children with and without Intellectual Disability (p.34) • Longitudinal Profiles of Social Communication in Fragile X Syndrome, Down Syndrome, and Autism Spectrum Disorder 4. Does Parent’s Desire for Change Influence their Child’s Participation? (p.35) (p.51) Symposium 5: Successes in Autism • Identifying Support Needs of Elderly Caregivers of Clients with Intellectual Disabilities in Supported Employment 1. Fostering Integration and Inclusivity by Supporting the Service Needs of Adult Children with Autism Spectrum Disorder Services in Singapore (p.52) (p.31) • Assistive Technology for Independence Living. Mefacilyta, a Life Skills App for Inclusion of People with Intellectual or 2. Parental Intervention on Daily Living Skills Using Visual Prompt Approach for Children with Autism Spectrum Disorder (p.32) Developmental Disabilities (p.52) 3. The Invisible Children: Needs for School Age Special Siblings of Children with Intellectual Disability/Autism in Taiwan (p.32) • Twitter as a Means to Measure Attitudes towards People with Intellectual Disability (p.52) 4. Job Satisfaction and Quality of Life in Autism (p.43) • Concepts of Job Satisfaction in People with Intellectual Disability (p.53) Symposium 6: Quality of life • The Assessment of Quality of Life of People with Intellectual Disabilities in Japan-using the Personal Outcomes Scale 1. Individual Supported Living (ISL) as a Quality Framework to Create and Promote “One’s Own Home” (p.33) (p.53) 2. Symptoms of Psychological Distress and Family Quality of Life among Subgroups of Children Attending Early Intervention • A Development and Evaluation of a Workshop of Disability Awareness Particularly in the Event of Disasters for Programs (p.37) Primary School Children (p.53) 3. Using Family Quality of Life Data to Improve Practice and Family Life: A Look at Two Ways to Consider the Results (p.38) • Group Home for People with PIMD: Current Situation in Tokyo and Hope for Living in Community (p.54) 4. Predictors of Family Quality of Life for Families of Children with Intellectual Disabilities (p.44) • Preliminary Reliability Analysis of the Social Impact of Repetitive Behavior Scale (p.54) Symposium 7: Quality of life around the world • 1. Korean Family Quality of Life: Validating the Family Quality of Life Scale and Identifying Important Predictors (p.30) Community Participation Model for Young Adults with Intellectual and Developmental Disabilities (p.55) 2. Quality of Life: Towards a Shared Framework for Intersectoral Collaboration (p.38) 3. Family Quality of Life of Adults with ID in Singapore (p.46)

92 93 Roundtables 2. The University Practicum Placement Experience of a Student with Intellectual Disability (p.69) • Building Self-Advocacy Capacity for People with Intellectual and Developmental Disabilities in the Asia/Pacific Region 3. Indicators for Employment Transition Outcomes for Chinese School Leavers with Intellectual / Developmental Disability (p.55) (p.58) • Families of Children with Autism Spectrum Disorder (ASD) Across Cultures: Diagnosis, Adaptation and Intervention 4. A Transdisciplinary and Socio-Ecological Framework to Evaluate Inclusion in Practice in the Workplace: A Singapore Case- (p.55) Study (p.69) • The Arts: Creating Discourse and Dialogue about New Opportunities in Education, Daily Living and Community Access (p.56) Posters • Personal Values and Cultural Beliefs in Quality of Life (p.56) • Development of Executive Function Learning Management Model to Promote Readiness in Early Childhood with LD and ADHD (p.70) Demonstrations • Characteristics of Self-Monitoring Related to Problem-Solving for Adults with Intellectual Disabilities (p.70) • Voting: Our Rights to Full Participation (p.57) • Do Teachers Correctly Assess Students with Behavior and/or Learning Problems in Regular Class? (p.70) • The Integrated Supports Planning Calendar: Planning for One’s Life Beyond the Realm of Paid Services (p.57) • A Survey Report on Support Needs and Support Measures for Children with Down's Syndrome in Japan (p.71) • Research on Vocational Education and Transition Services for Chinese Students with Intellectual Disability in Special Track 3. Education Education Schools in Hubei (p.71) • Changes in the Physical Fitness Profiles of High-School Students with Intellectual Disabilities (p.72)

• Symposium 1: Inclusive Education Preschool Teachers’ and Parents’ Understanding of Early Childhood Temperament in an Asian Culture – Implications 1. Effectiveness of the Short Course on Learning Disabilities on Teachers’ Perceptions of Inclusion of Students with Learning for Child Health and Development (p.72) • Disabilities (p.66) The Relationships between Sensory Integration and Academic Skills of School-Age Children with Autism (p.73) 2. The Positive Impact on Including Students with Intellectual Disabilities in Schools (p.63) • Learning Difficulties of Elementary School Children in Inclusive Education in Japan - Research on Children with 3. Contradictions as Drivers for Improving Inclusive Practices in Finland (p.64) Suspected Mild Intellectual Disabilities and Learning Disabilities (p.73) 4. Toward Inclusive Education for Students with Disabilities: The Gap Between Educational Law and Real Practice (p.67) • Supporting the Inner World of Students with Intellectual Disabilities (p.73) Symposium 2: Perspective of INCLUSIVE EDUCATION for Children with ID or ASD in Japan 1. Current Status and Issues in Support System for Children with ASD (p.66) Roundtables (none) 2. Condition of Inclusive Childcare in Japan and Problems of Counseling about School Attendance (p.65) 3. A Report on the Actual State of Inclusive Education in Elementary Schools and on Requests for and Provision of Assistance Demonstrations to Children (p.64) • Teaching Music for Students with Special Needs Based on Kodaly's Approach at Chulalongkorn University 4. Status of the Inclusive Education System in Middle Schools (p.67) Demonstration School (p.74) Symposium 3: Perspective of SPECIAL NEEDS EDUCATION for Children with ID or ASD in Japan 1. Behavioral Support and Lesson Creation for Children with an ASD: Self-Monitoring to Promote Behavior Improvement Track 4. Health (p.67) 2. Research Trends in the Reading and Writing Skills of Children with Intellectual Disabilities in Japan (p.61) Symposium 1: Mental health 3. Sports Instruction for Children with Mental Disabilities — Efforts Aimed at the Tokyo 2020 Paralympic Games (p.65) 1. Temporal and Geographic Trends in Antipsychotic and Antidepressant Prescribing in Children and Adults with Intellectual 4. Counseling support for students with ID and mental illness (p.65) Disabilities, and Children with Autism throughout Scotland, 2009-2015 (p.79) Symposium 4: Teaching Methods – Part I 2. Risk Factors for Depression in Adults with Intellectual and Developmental Disabilities: A Five-Year Longitudinal Study in the 1. Inclusive Teaching in Maldives: Factors Influencing Teacher Beliefs and Attitudes (p.63) USA (p.81) 2. Teaching Methods to Enhance the Quality of Education for Children with Intellectual Disabilities (p.63) 3. Empowering Staff of Persons with Intellectual Disabilities and Mental Health Problems: An Embedded Multiple Case-Study 3. Applying Educational Quality of Life (EQOL) to Inclusive Mathematics Teaching of Students with Down Syndrome (p.68) (p.79) Symposium 5: Teaching Methods – Part II 4. Preliminary Study of Self-esteem and Subjective Well-being in Persons with Autism Spectrum Disorders (p.75) 1. The Interpretations and Experiences of Visual Clutter in the Classroom from the Perspectives of Students with a Diagnosis Symposium 2: Mental health and ASD of Autism Spectrum Disorder (ASD) (p.59) 1. Anxiety Symptomatology in Young Children on the Autism Spectrum (p.76) 2. Examining Generalization Performance in a Conditional Discrimination Task for Learners with Moderate to Severe 2. Suicidality in Adults with Autism Spectrum Disorder (ASD) (p.83) Intellectual and Developmental Disabilities (p.59) 3. Useful Screening Tools for Neurodevelopmental Disorders (p.82) Symposium 6: Human Life Topics Needed in Special Education Symposium 3: Psychological considerations in exceptional circumstances 1. Evaluation of a Sexual Health Program for Parents and Service Workers of Adults with ID (p.60) 1. Attentional Bias towards Positive and Negative Images amongst Offenders and Non-Offenders with Intellectual Disabilities 2. Study on Life and Death Education Training and Research for People with Intellectual Disabilities (p.58) (p.75) 3. Verbal Violence among Children with Intellectual Developmental Disabilities: Running an Intervention Program to Change 2. Vulnerability and Strengths of Disaster-Affected Children with Developmental Disabilities: Experiences from the 2016 the Culture of Verbal Discourse (p.62) Kumamoto Earthquakes, Japan (p.75) 4. Teaching Music for Children with Special Needs Based on Kodaly's Approach at Chulalongkorn University Demonstration 3. The Psychology of Paralympians (p.85) School (p.60) Symposium 4: Health care Symposium 7: Developing Opportunities and Advocacy 1. Prevalence and Types of Unexplained Symptoms in Adults with Intellectual Disabilities (p.81) 1. Refugee Borderlands – People of Concern with Disabilities: Educational Prospects Along the Thai-Myanmar Border (p.58) 2. Transforming Healthcare with People with Disabilities (p.80) 2. Research on Parental Participation and Self-efficacy in Early Intervention for Children with Developmental Disabilities in 3. Better Health Outcomes for People with Intellectual Disabilities (p.85) China (p.61) 4. Racial and Ethnic Disparities in Perceived Barriers to Health Care Among U.S. Adults with Intellectual and Developmental 3. Exploring the Views of Students with Moderate Intellectual Disability in Special Education Settings on their Quality of Life Disabilities (p.84) (p.62) Symposium 5: Health status 4. The Best Defense is a Good Response: Reacting to Offensive Sentences for People with Disability and their Families (p.60) 1. Health Status and Health-Related Physical Fitness in Thai Students with Intellectual Disability (p.82) Symposium 8: Transitions from School to Work or Post-Secondary Education 2. Psychosocial Factors Predicting Internalizing Problems and Life Satisfaction in Young Adults with Mild Intellectual 1. Supporting Persons with DD/ID in Postsecondary Education (p.68) Disabilities (p.83)

94 95 Roundtables 2. The University Practicum Placement Experience of a Student with Intellectual Disability (p.69) • Building Self-Advocacy Capacity for People with Intellectual and Developmental Disabilities in the Asia/Pacific Region 3. Indicators for Employment Transition Outcomes for Chinese School Leavers with Intellectual / Developmental Disability (p.55) (p.58) • Families of Children with Autism Spectrum Disorder (ASD) Across Cultures: Diagnosis, Adaptation and Intervention 4. A Transdisciplinary and Socio-Ecological Framework to Evaluate Inclusion in Practice in the Workplace: A Singapore Case- (p.55) Study (p.69) • The Arts: Creating Discourse and Dialogue about New Opportunities in Education, Daily Living and Community Access (p.56) Posters • Personal Values and Cultural Beliefs in Quality of Life (p.56) • Development of Executive Function Learning Management Model to Promote Readiness in Early Childhood with LD and ADHD (p.70) Demonstrations • Characteristics of Self-Monitoring Related to Problem-Solving for Adults with Intellectual Disabilities (p.70) • Voting: Our Rights to Full Participation (p.57) • Do Teachers Correctly Assess Students with Behavior and/or Learning Problems in Regular Class? (p.70) • The Integrated Supports Planning Calendar: Planning for One’s Life Beyond the Realm of Paid Services (p.57) • A Survey Report on Support Needs and Support Measures for Children with Down's Syndrome in Japan (p.71) • Research on Vocational Education and Transition Services for Chinese Students with Intellectual Disability in Special Track 3. Education Education Schools in Hubei (p.71) • Changes in the Physical Fitness Profiles of High-School Students with Intellectual Disabilities (p.72)

• Symposium 1: Inclusive Education Preschool Teachers’ and Parents’ Understanding of Early Childhood Temperament in an Asian Culture – Implications 1. Effectiveness of the Short Course on Learning Disabilities on Teachers’ Perceptions of Inclusion of Students with Learning for Child Health and Development (p.72) • Disabilities (p.66) The Relationships between Sensory Integration and Academic Skills of School-Age Children with Autism (p.73) 2. The Positive Impact on Including Students with Intellectual Disabilities in Schools (p.63) • Learning Difficulties of Elementary School Children in Inclusive Education in Japan - Research on Children with 3. Contradictions as Drivers for Improving Inclusive Practices in Finland (p.64) Suspected Mild Intellectual Disabilities and Learning Disabilities (p.73) 4. Toward Inclusive Education for Students with Disabilities: The Gap Between Educational Law and Real Practice (p.67) • Supporting the Inner World of Students with Intellectual Disabilities (p.73) Symposium 2: Perspective of INCLUSIVE EDUCATION for Children with ID or ASD in Japan 1. Current Status and Issues in Support System for Children with ASD (p.66) Roundtables (none) 2. Condition of Inclusive Childcare in Japan and Problems of Counseling about School Attendance (p.65) 3. A Report on the Actual State of Inclusive Education in Elementary Schools and on Requests for and Provision of Assistance Demonstrations to Children (p.64) • Teaching Music for Students with Special Needs Based on Kodaly's Approach at Chulalongkorn University 4. Status of the Inclusive Education System in Middle Schools (p.67) Demonstration School (p.74) Symposium 3: Perspective of SPECIAL NEEDS EDUCATION for Children with ID or ASD in Japan 1. Behavioral Support and Lesson Creation for Children with an ASD: Self-Monitoring to Promote Behavior Improvement Track 4. Health (p.67) 2. Research Trends in the Reading and Writing Skills of Children with Intellectual Disabilities in Japan (p.61) Symposium 1: Mental health 3. Sports Instruction for Children with Mental Disabilities — Efforts Aimed at the Tokyo 2020 Paralympic Games (p.65) 1. Temporal and Geographic Trends in Antipsychotic and Antidepressant Prescribing in Children and Adults with Intellectual 4. Counseling support for students with ID and mental illness (p.65) Disabilities, and Children with Autism throughout Scotland, 2009-2015 (p.79) Symposium 4: Teaching Methods – Part I 2. Risk Factors for Depression in Adults with Intellectual and Developmental Disabilities: A Five-Year Longitudinal Study in the 1. Inclusive Teaching in Maldives: Factors Influencing Teacher Beliefs and Attitudes (p.63) USA (p.81) 2. Teaching Methods to Enhance the Quality of Education for Children with Intellectual Disabilities (p.63) 3. Empowering Staff of Persons with Intellectual Disabilities and Mental Health Problems: An Embedded Multiple Case-Study 3. Applying Educational Quality of Life (EQOL) to Inclusive Mathematics Teaching of Students with Down Syndrome (p.68) (p.79) Symposium 5: Teaching Methods – Part II 4. Preliminary Study of Self-esteem and Subjective Well-being in Persons with Autism Spectrum Disorders (p.75) 1. The Interpretations and Experiences of Visual Clutter in the Classroom from the Perspectives of Students with a Diagnosis Symposium 2: Mental health and ASD of Autism Spectrum Disorder (ASD) (p.59) 1. Anxiety Symptomatology in Young Children on the Autism Spectrum (p.76) 2. Examining Generalization Performance in a Conditional Discrimination Task for Learners with Moderate to Severe 2. Suicidality in Adults with Autism Spectrum Disorder (ASD) (p.83) Intellectual and Developmental Disabilities (p.59) 3. Useful Screening Tools for Neurodevelopmental Disorders (p.82) Symposium 6: Human Life Topics Needed in Special Education Symposium 3: Psychological considerations in exceptional circumstances 1. Evaluation of a Sexual Health Program for Parents and Service Workers of Adults with ID (p.60) 1. Attentional Bias towards Positive and Negative Images amongst Offenders and Non-Offenders with Intellectual Disabilities 2. Study on Life and Death Education Training and Research for People with Intellectual Disabilities (p.58) (p.75) 3. Verbal Violence among Children with Intellectual Developmental Disabilities: Running an Intervention Program to Change 2. Vulnerability and Strengths of Disaster-Affected Children with Developmental Disabilities: Experiences from the 2016 the Culture of Verbal Discourse (p.62) Kumamoto Earthquakes, Japan (p.75) 4. Teaching Music for Children with Special Needs Based on Kodaly's Approach at Chulalongkorn University Demonstration 3. The Psychology of Paralympians (p.85) School (p.60) Symposium 4: Health care Symposium 7: Developing Opportunities and Advocacy 1. Prevalence and Types of Unexplained Symptoms in Adults with Intellectual Disabilities (p.81) 1. Refugee Borderlands – People of Concern with Disabilities: Educational Prospects Along the Thai-Myanmar Border (p.58) 2. Transforming Healthcare with People with Disabilities (p.80) 2. Research on Parental Participation and Self-efficacy in Early Intervention for Children with Developmental Disabilities in 3. Better Health Outcomes for People with Intellectual Disabilities (p.85) China (p.61) 4. Racial and Ethnic Disparities in Perceived Barriers to Health Care Among U.S. Adults with Intellectual and Developmental 3. Exploring the Views of Students with Moderate Intellectual Disability in Special Education Settings on their Quality of Life Disabilities (p.84) (p.62) Symposium 5: Health status 4. The Best Defense is a Good Response: Reacting to Offensive Sentences for People with Disability and their Families (p.60) 1. Health Status and Health-Related Physical Fitness in Thai Students with Intellectual Disability (p.82) Symposium 8: Transitions from School to Work or Post-Secondary Education 2. Psychosocial Factors Predicting Internalizing Problems and Life Satisfaction in Young Adults with Mild Intellectual 1. Supporting Persons with DD/ID in Postsecondary Education (p.68) Disabilities (p.83)

94 95 3. Multi-Morbidity in a Cohort of Adults with intellectual Disabilities, with and without Down Syndrome (p.77) 4. Considering Quality of Life in End-of-Life Decisions for Severely Disabled Children (p.77) Presenter Index Symposium 6: Innovative interventions for health-related issues 1. Therapy Sessions in Adolescents with Autism Spectrum Disorder Reduce Stress-Related Salivary Alpha Amylase Levels (p.76) A Chong, Ning Xin 37 2. Development of a Manual for Extended Brief Intervention for Alcohol Misuse in Adults with Mild to Moderate Intellectual Abdullah, Hjh Dyg Norzaiham Chong, Shang Chee 24, 72 G Disabilities Living in the Community (p.86) Midawati Hj 32 Chou, Yueh-Ching 20, 60 Gadow, Friederike 4 3. Lycra Splinting Garments for People with Intellectual Disabilities Who Fall Due to Balance and/or Gait Issues: A Feasibility Abdullahi, Ifrah Hassan 79 Chow, Tak Hung 57 Glencross. Sarah 16 Study (p.82) Adams, Dawn 35, 76 Chun Wai Chan, Trevor 29 Goll, Harald H. 18 4. Effects of the TedA4I Program on Child Development of Children with Development and Intellectual Disabilities (p.77) Agosta, John 28, 57 Chun-Fan Lai, Edward 7 Goma, Hideyo 22, 70 Symposium 7: Prenatal and neonatal health Ailey, Sarah H 14, 80, 87 Chung, Michele 30 Gomathy, Veeramari 69 1. Disabled Women’s Access to Maternal and Child Healthcare in Zambia (p.80) Akobirshoev, Ilhom 78 Claes, Claudia 5, 5, 15, 79 Gopi, Dilani 40 2. Postpartum Emergency Department Use among Mothers with Intellectual and Developmental Disabilities (p.78) Ali, Afia 32, 39 Cocks, Errol 4, 33, 37 Goto, Kazuya 23 3. Is Preterm Birth and Intra-Uterine Growth Retardation More Common in Western Australian Children of Immigrant Allan, Linda 77, 79, 81, 83 Collings, Susan 8, 9 Grace,Emma 39 Backgrounds? (p.79) Alnahdi, Ghaleb 63 Cooney, Erin 8, 9 Graves, Jillian 33 Symposium 8: Decisions about diet and oral health Alwis, Anoma…66 Cooper, Sally-Ann 77, 79, 81, 83 Gwee, Ai Jia 37 1. Critical Review of Dietary and Nutritional Intake Interventions for People with Intellectual Disabilities: Accessible and Anderson, Julie…11 Courtenay, Ken 2, 29 Objective Outcome Measures (p.84) Arthur-Kelly, Michael i Crabb, Caitlin 7 H 2. Promoting Oral Health in Students with Intellectual and Developmental Disabilities: Exploring Students’ Experiences at the Arvidsson,Per 13 Crosbie, Jenny 4 Hagiliassis, Nick 2, 6 All Smiles Learning Center, Chiang Mai, Thailand (p.78) Attar, Hassan Al 84 Cuzzillo, Celeste 2, 6 Handoyo, Restu 39 3. Poor Oral Health in Adults with Intellectual Disabilities and Its Determinants (p.83) Au, Yim Fong…57 Harley, David iii Aunos, Marjorie 12 D Hashimoto, Soichi 65, 65, 67, 71 Posters Ayado, Yukari 75 Dahlgren, Ulrika 50 Hassan, Amani 82 • Auditory and Speech-Language Development Schedule: A Tool to Detect Hearing Loss in Children with Intellectual Azhari, Atiqah 88 Dahlman, Erik 50 Hassiotis, Angela 32, 39, 86 Disability (p.86) Daniel, Matthew 75 Hawach, Abdul Hakim Hasan 63 • Adult Patients with Autism Spectrum Disorders in U.S. Academic Medical Centers (p.87) B De Belie, Erik 79 Hayashi, Akiko 65, 65 • Preliminary Study of Self-Esteem and Subjective Well-Being in Persons with Autism Spectrum Disorders (p.87) Baio,Gianluca 86 De Maeyers, Jessica 38 Hayashikawa, Maki ii • Problem Behaviors in Adolescents/Young Adults with Down Syndrome with and without Diagnosed Mental Disorders Balandin, Susan 1, 6, 10, 39, 44 De Schrijver, Maarten 38 Hayes, Susan Carol 85 (p.87) Bandara, Chamara 40 de Vos, Mirjam Anke 77 Hedley, Darren 43, 83 Barron, Diana Ruth Andrea 83 den Houting, Jacquiline 76 Heller, Tamar 7, 80, 81 • Disabled Women’s Access to Maternal and Child Healthcare in Zambia (p.88) Barstein, Jamie 51 Densiriaksorn Premvadee 82 Henderson Angela 77, 79, 83 • Involvement of Oxytocin and Arginine Vasopressin May Unveil Modulation of Autism Spectrum Disorder (p.88) Basterfield, Cathy 41 Deveau, Roy 3, 5, 7 Hettiarachchi, Shyamani 40

Bathje, Molly 55, 80 Dew, Angela 8, 9 Ho, Eunice 52 Demonstrations (none) Bigby, Christine 2, 4 Ding, Yanli 71 Horie, Hisako 54

 Blackman, Laurel E. 28 Dissanayake, Cheryl 43 Hosokawa, Kaori 65 Blontrock, Mieke 79 Dore, Helene 28 Hsieh, Kelly 81

Bonardi, Alexandra 17, 28 Dowse, Leanne 9 Hsu, Chao-Fu 60 Bould, Emma 2, 4 Doyama, Aki 65, 65 Huang, Hsin Pei 20 Bradley, Valerie 14, 17 Duncan, Alexandra Katherine 43 Hudson, Colin 78 Brown, Ivan 38, 56 Humphreys, Lincoln 2, 4 Bull, Rebecca 37 E Hunter, Rachael 86 Bush, Lauren 51 Edwards, Meaghan 14 Eizak, Zetty Akhtar Md 52 I C Ekas, Naomi 51, 55 Iacono, Teresa 2, 4 Canelli, Stefano 76 Esposito, Gianluca 76, 88 Ikeda, Tomomi 22 Carey, Greg 39 Ewals, Frans V. 77 Imade, Daisuke 21 Carey, Eileen 46 Imaeda, Fumio 70 Cataldo, Ilaria 88 F Inoue, Kazuhisa 22 Chan, Jeffrey 3, 3, 19, 37, 41, 62, Fang, Felicia Yann Yann 48 Iqbal, Faisal 26 78 Faragher, Rhonda 68 Itoh,Hiroshi 87 Chan, Man-Chee 18 Feldman, Maurice 12 Iwasaki, Yuji 23, 54 Chan, Tsun Kit 57 Finlayson, Janet 82, 83 Chano, Jiraporn 70 Fogg, Louis 87 J Chay, Pei Yun 22 Forster, Sheridan 16, 30 Jawawi, Rosmawijah 41, 63 Cheausuwantavee, Tavee 67 Frawley, Patsie 1, 6, 10, 17 Javed, Noor 54 Chen, Mo 25, 28, 59 Funaya, Hiroo 18, 49 Jayapaul, Ashley ii, 89 Chew, Kimberly 22 Fung, Wai Ying Emily 57 Joosa, Esther 25, 56, 69 Chirwa, Masauso Simon 80, 88 Furuta, Hiroko 75 Chiu, Chun-Yu 32, 60 K

96 97 3. Multi-Morbidity in a Cohort of Adults with intellectual Disabilities, with and without Down Syndrome (p.77) 4. Considering Quality of Life in End-of-Life Decisions for Severely Disabled Children (p.77) Presenter Index Symposium 6: Innovative interventions for health-related issues 1. Therapy Sessions in Adolescents with Autism Spectrum Disorder Reduce Stress-Related Salivary Alpha Amylase Levels (p.76) A Chong, Ning Xin 37 2. Development of a Manual for Extended Brief Intervention for Alcohol Misuse in Adults with Mild to Moderate Intellectual Abdullah, Hjh Dyg Norzaiham Chong, Shang Chee 24, 72 G Disabilities Living in the Community (p.86) Midawati Hj 32 Chou, Yueh-Ching 20, 60 Gadow, Friederike 4 3. Lycra Splinting Garments for People with Intellectual Disabilities Who Fall Due to Balance and/or Gait Issues: A Feasibility Abdullahi, Ifrah Hassan 79 Chow, Tak Hung 57 Glencross. Sarah 16 Study (p.82) Adams, Dawn 35, 76 Chun Wai Chan, Trevor 29 Goll, Harald H. 18 4. Effects of the TedA4I Program on Child Development of Children with Development and Intellectual Disabilities (p.77) Agosta, John 28, 57 Chun-Fan Lai, Edward 7 Goma, Hideyo 22, 70 Symposium 7: Prenatal and neonatal health Ailey, Sarah H 14, 80, 87 Chung, Michele 30 Gomathy, Veeramari 69 1. Disabled Women’s Access to Maternal and Child Healthcare in Zambia (p.80) Akobirshoev, Ilhom 78 Claes, Claudia 5, 5, 15, 79 Gopi, Dilani 40 2. Postpartum Emergency Department Use among Mothers with Intellectual and Developmental Disabilities (p.78) Ali, Afia 32, 39 Cocks, Errol 4, 33, 37 Goto, Kazuya 23 3. Is Preterm Birth and Intra-Uterine Growth Retardation More Common in Western Australian Children of Immigrant Allan, Linda 77, 79, 81, 83 Collings, Susan 8, 9 Grace,Emma 39 Backgrounds? (p.79) Alnahdi, Ghaleb 63 Cooney, Erin 8, 9 Graves, Jillian 33 Symposium 8: Decisions about diet and oral health Alwis, Anoma…66 Cooper, Sally-Ann 77, 79, 81, 83 Gwee, Ai Jia 37 1. Critical Review of Dietary and Nutritional Intake Interventions for People with Intellectual Disabilities: Accessible and Anderson, Julie…11 Courtenay, Ken 2, 29 Objective Outcome Measures (p.84) Arthur-Kelly, Michael i Crabb, Caitlin 7 H 2. Promoting Oral Health in Students with Intellectual and Developmental Disabilities: Exploring Students’ Experiences at the Arvidsson,Per 13 Crosbie, Jenny 4 Hagiliassis, Nick 2, 6 All Smiles Learning Center, Chiang Mai, Thailand (p.78) Attar, Hassan Al 84 Cuzzillo, Celeste 2, 6 Handoyo, Restu 39 3. Poor Oral Health in Adults with Intellectual Disabilities and Its Determinants (p.83) Au, Yim Fong…57 Harley, David iii Aunos, Marjorie 12 D Hashimoto, Soichi 65, 65, 67, 71 Posters Ayado, Yukari 75 Dahlgren, Ulrika 50 Hassan, Amani 82 • Auditory and Speech-Language Development Schedule: A Tool to Detect Hearing Loss in Children with Intellectual Azhari, Atiqah 88 Dahlman, Erik 50 Hassiotis, Angela 32, 39, 86 Disability (p.86) Daniel, Matthew 75 Hawach, Abdul Hakim Hasan 63 • Adult Patients with Autism Spectrum Disorders in U.S. Academic Medical Centers (p.87) B De Belie, Erik 79 Hayashi, Akiko 65, 65 • Preliminary Study of Self-Esteem and Subjective Well-Being in Persons with Autism Spectrum Disorders (p.87) Baio,Gianluca 86 De Maeyers, Jessica 38 Hayashikawa, Maki ii • Problem Behaviors in Adolescents/Young Adults with Down Syndrome with and without Diagnosed Mental Disorders Balandin, Susan 1, 6, 10, 39, 44 De Schrijver, Maarten 38 Hayes, Susan Carol 85 (p.87) Bandara, Chamara 40 de Vos, Mirjam Anke 77 Hedley, Darren 43, 83 Barron, Diana Ruth Andrea 83 den Houting, Jacquiline 76 Heller, Tamar 7, 80, 81 • Disabled Women’s Access to Maternal and Child Healthcare in Zambia (p.88) Barstein, Jamie 51 Densiriaksorn Premvadee 82 Henderson Angela 77, 79, 83 • Involvement of Oxytocin and Arginine Vasopressin May Unveil Modulation of Autism Spectrum Disorder (p.88) Basterfield, Cathy 41 Deveau, Roy 3, 5, 7 Hettiarachchi, Shyamani 40

Bathje, Molly 55, 80 Dew, Angela 8, 9 Ho, Eunice 52 Demonstrations (none) Bigby, Christine 2, 4 Ding, Yanli 71 Horie, Hisako 54

 Blackman, Laurel E. 28 Dissanayake, Cheryl 43 Hosokawa, Kaori 65 Blontrock, Mieke 79 Dore, Helene 28 Hsieh, Kelly 81

Bonardi, Alexandra 17, 28 Dowse, Leanne 9 Hsu, Chao-Fu 60 Bould, Emma 2, 4 Doyama, Aki 65, 65 Huang, Hsin Pei 20 Bradley, Valerie 14, 17 Duncan, Alexandra Katherine 43 Hudson, Colin 78 Brown, Ivan 38, 56 Humphreys, Lincoln 2, 4 Bull, Rebecca 37 E Hunter, Rachael 86 Bush, Lauren 51 Edwards, Meaghan 14 Eizak, Zetty Akhtar Md 52 I C Ekas, Naomi 51, 55 Iacono, Teresa 2, 4 Canelli, Stefano 76 Esposito, Gianluca 76, 88 Ikeda, Tomomi 22 Carey, Greg 39 Ewals, Frans V. 77 Imade, Daisuke 21 Carey, Eileen 46 Imaeda, Fumio 70 Cataldo, Ilaria 88 F Inoue, Kazuhisa 22 Chan, Jeffrey 3, 3, 19, 37, 41, 62, Fang, Felicia Yann Yann 48 Iqbal, Faisal 26 78 Faragher, Rhonda 68 Itoh,Hiroshi 87 Chan, Man-Chee 18 Feldman, Maurice 12 Iwasaki, Yuji 23, 54 Chan, Tsun Kit 57 Finlayson, Janet 82, 83 Chano, Jiraporn 70 Fogg, Louis 87 J Chay, Pei Yun 22 Forster, Sheridan 16, 30 Jawawi, Rosmawijah 41, 63 Cheausuwantavee, Tavee 67 Frawley, Patsie 1, 6, 10, 17 Javed, Noor 54 Chen, Mo 25, 28, 59 Funaya, Hiroo 18, 49 Jayapaul, Ashley ii, 89 Chew, Kimberly 22 Fung, Wai Ying Emily 57 Joosa, Esther 25, 56, 69 Chirwa, Masauso Simon 80, 88 Furuta, Hiroko 75 Chiu, Chun-Yu 32, 60 K

96 97 Kang, Ying Qi 72 M O Schalock, Robert L. 5, 47 Tanaka, Emiko Nagaoka 42 Watanabe, Shuichi 1, 23 Kanniga, Devi 69 Ma, Chingwan Fred 25 O'Brien, Patricia 4, 42 Schippers, Alice 56 Tanaka, Shun 22 Watanabe, Takahiro 64, 65 Kanno, Atsushi 70 MacPherson, Lorna 83 Ochiai, Rika 22, 70 Scior, Katrina 39, 86 Tang, Juan 58, 71 Watson, Joanne 1, 6, 10, 11 Karni-Vizer, Nirit 62 Maeda, Mariko 61 Ogawa, Shuhei 73 Setoh, Peipei 76 Tatematsu, Eiko 26 Weber, Germain 52, 53 Kato, Toshihiro 22 Magaña, Sandy 55, 84 Okada, Yasunori 22 Shackell, Philip James 85 Tatsuta, Mizuho 53 Wei, Ker-Chiah 83 Katsikitis, Mary 16 Magiati, Iliana 83 Okon, Marian 79 Shakespeare-Finch, Jane 11, 33 Tay, Yu Ping 8 Weisz, Arlene 31 Kawai, Norimune 53 Mahesh, Mythra 24 Ong, Natalie 16, 19 Shamim, Ansari Mohammad 49, Taylor, Susan Elizabeth 44 Whitehouse, Andrew 31 Kawaike, Junya 66 Mahmod, Syazwina 41 Osugo, Martin 81 86 Teo, Grace 69 Wieczorkowski, Vanda Anne 47 Keen, Deb 35, 76 Makupa, Victor 46 Otomo, Kiyoshi 22, 64, 67 Shamra, Fathima 40 Teo, Melissa 52 Willems, Dick Ludolf 77 Kihara, Shoko 54 Manokara, Vimallan 37, 41, 62 Owen, Randall 7 Sherriff, Andrea 83 Thomson, Allyson 4, 33, 37 Williams, Katrina 31 Kim, Jiyeon 30 Marsack, Christina 31, 33 Owuor, John 42, 52 Shiiki, Toshihide 23 Thoresen, Stian H. 4, 33, 37 Williams, Valerie 27 Kimiya, Satoshi 12 Martin, Gary E. 51 Shimizu, Satomi 22 To, Langa Samuelson 25 Wilmot, Mathilda 43 Kinnear, Deborah 77, 79, 81, 83 Martin, Jeffrey 85 P Shimoda, Hironobu 66, 67 To, Maggie ii, 89 Wilson, Erin E. 44 Kishore, Manisha 37 Märtsin, Mariann 11, 33 Pacheco, Laura 12 Shotelersuk, Vorasuk i To, Samuel Singyu 25 Wolowicz-Ruszkowski, Agnieszka Kitamura, Yayoi 21, 53 Maruo, Natsumi 22 Paju, Birgit Johanna 64 Sidhu, Dalvin Jit Kaur 28, 46 Tomsic, Gail 16, 19 10 Kitnasamy, Gopi 40 Mason, Jonathan 16 Palanivel, Manikandan 20 Simpson, Kate 35, 76 Tong, Katherine 18 Wong, Chris Tak Wee 83 Knox, Marie 11, 33, 42 Masu, Chiaki 65, 65, 71 Pan, Cheng Chen 72 Singh, Nirbhay N. 3 Tritiphen, Somsri 28 Wong, Meng Ee 56 Ko, Chiou Shiue 20 Matsubasa, Tadashi 12 Pang, Jee Ching 10, 48, 50 Skouteris, Helen 31 Tung, Yi Ning 60 Wong, Shyh Shin 37 Koay, Teng Leong 32, 41 Matzin, Rohani 63 Papadopoulos, Nicole 31 Smiley, Elita 77 Wong, Suet Ming 50 Kocman, Andreas 52, 53 McConnell, David 12 Parish, Susan 78, 84 Smith, Peter 3 U Kogima, Michio 61, 67, 73 McCowan, Colin 79 Parmenter, Trevor R. 27, 42, 55 Soeradja, Zainal Abidin 45 Uljarevic, Mirko 43 X Koh, Shine 8 McDonnell, Andrew 7 Penchaliah, Sivananda 37 Spencer, Margaret 8, 9 Unwin,Gemma 44 Xie, Huichao 22, 37 Kojima, Michio 75, 87 McGill, Peter 5 Perera, Bhathika 2 Spoor, Jennifer 43 Ushio, Reiko 22 Xu, Jiacheng 47 Koritsas, Stella 2, 6 McGillivray, Jane 3, 31 Persons, Donald 40 Srisilapanan, Patcharawan 78 Ushiyama, Michio 22, 53 Xu, Tianxi 58, 71 Korsman, Susan 50 McGinley, Jennifer 31 Petroutsou, Alexandra 32 Stodden, Robert A. 68 Xu, Yue 55 Kotani, Hiromi 22 McPherson, Carrie L. 3 Pooh, Karen 34 Su, Hui 34 V Kouimtsidis, Christos 86 McSkimming, Paula 79 Poon, Kenneth 28, 37, 46 Suemitsu, Shigeru 21 van Goudoever, Hans Bernard 77 Y Kröger, Teppo 20, 60 McVilly, Keith 3, 4 Poquerusse, Jessie 76 Sugioka, Chihiro 64, 65 Vandenbussche, Hanne 5, 38 Yamaji, Noyuri 23 Kumagai, Ryo 65, 67, 71 Min, Charmaine Teo 72 Prain, Meredith 4 Sugiura, Saika 73 Vandevelde, Stijn 79 Yamamoto, Masaaki 54 Kumara, Shantha 36 Mita, Katsumi 12 Proyer,Michelle 58 Sun, Wen 61 Vasquez, Alena 15, 57 Yang, Xi-Jie 25 Kwok, Henry ii Mita, Takehiko 24 Sun, Yumei 61 Venuti, Paola 76 Yeo, Wendy 69 Mitra, Monika 78 Q Suttachitt, Narutt 60, 74 Vermilä, Piret Elina 11 Yu, Li-Chi 60 L Miura, Takuya 66, 67 Qureshi, Adnan 29 Sutthiwong, Phakawan 73 Vindevogel, Sofie 5 Langdon, PeterE. 75 Miyanomae, Takeshi 23 Z Larkan, Fiona 42 Mizoe, Yui 22 R T W Zaal-Schuller, Ilse Harmina 77 Lau, Vincent 58 Morales, Miguel 84 Raghavendra, Pammi 39 Talib, Hasinira Binte 69 Wai, Ker-Chiah ii, 89 Zabidi bin Abdul Razak, Ahmad 10 Lee, Manyin 25 Morisse, Filip 79 Rajagopal, Aariyapillai Reena 20 Tamaki, Suguru 18 Walker,Ruth 39 Zarcone, Jennifer 54 Lee, Michelle 51 Morrison, Jill 77, 79, 81, 83 Ratanapairoj, Panida 77 Tamura, Masanori 23 Wang, Kuo Yu 13, 27, 55 Zazzi, Hannah 59 Lee, Sujin 71 Moss, Simon 31 Razak, Salim Jeffrey 29 Tan, Clara 37 Wang, Mian 30, 47 Zhang, Dalun 39 Lee, Yvonne 37 Motoyoshi, Daisuke 70 Redgrove, Fiona 35 Tan, Jui Horng 52 Wang, Tiffany 62 Zin, Hjh Rohani Hj Mat 32, 41 Lei, Jianghua 58 Murfitt, Kevin 44 Reiter, Shunit 9 Tan, Peter 37 Wang, Yu-Ju 13 Leitch, Sarah 3 Murthy, Sumithra 81 Rey, Catalina 54 Leong, Koay Teng 63 Mustaffa, Jamila 52 Richdale, Amanda 43 Leong, Janice 22 Muto, Yoko 22 Rieck, Murray 11, 33 Li, Henan 84 Rillotta, Fiona 39, 69 LI, Jing 42 N Rinehart, Nicole 31 Liang Melanie Jiamin 83 Nagase, Osamu 48 Roberts, Jacqueline 76 Liang, Shen 72 Nakachi, Muneyuki 18 Rooker, Griffin 54 Liew, Chloe 35 Nakao, Ayaka 18, 49 Rose, John 27, 44 Lim, Esther 52 Neuman, Ran 9 Ross, Kevin 79 Lim, Hoili 37 Nevill, Rose 54 Roth, Dana 38 Lindsay, Lorraine 69 Newcomb, Eli 54 Liu, Yonglun 56 Ng, Jing Yi 37 S Loh, Eva Wei-Lyn 19 Ng, Rachel 62 Sadek, Susan 75 Loh, Sau Cheong 10 Nishan, Fathmath 63 Saiki, Hiroshi 54 Lombardi, Marco 5 Nizam, Nurafizzah Hj Muhd Khairun Salmons, Brian 27 Losh, Molly 51 32 Samuel, Preethy 44 Santoso, Harri 45

98 99 Kang, Ying Qi 72 M O Schalock, Robert L. 5, 47 Tanaka, Emiko Nagaoka 42 Watanabe, Shuichi 1, 23 Kanniga, Devi 69 Ma, Chingwan Fred 25 O'Brien, Patricia 4, 42 Schippers, Alice 56 Tanaka, Shun 22 Watanabe, Takahiro 64, 65 Kanno, Atsushi 70 MacPherson, Lorna 83 Ochiai, Rika 22, 70 Scior, Katrina 39, 86 Tang, Juan 58, 71 Watson, Joanne 1, 6, 10, 11 Karni-Vizer, Nirit 62 Maeda, Mariko 61 Ogawa, Shuhei 73 Setoh, Peipei 76 Tatematsu, Eiko 26 Weber, Germain 52, 53 Kato, Toshihiro 22 Magaña, Sandy 55, 84 Okada, Yasunori 22 Shackell, Philip James 85 Tatsuta, Mizuho 53 Wei, Ker-Chiah 83 Katsikitis, Mary 16 Magiati, Iliana 83 Okon, Marian 79 Shakespeare-Finch, Jane 11, 33 Tay, Yu Ping 8 Weisz, Arlene 31 Kawai, Norimune 53 Mahesh, Mythra 24 Ong, Natalie 16, 19 Shamim, Ansari Mohammad 49, Taylor, Susan Elizabeth 44 Whitehouse, Andrew 31 Kawaike, Junya 66 Mahmod, Syazwina 41 Osugo, Martin 81 86 Teo, Grace 69 Wieczorkowski, Vanda Anne 47 Keen, Deb 35, 76 Makupa, Victor 46 Otomo, Kiyoshi 22, 64, 67 Shamra, Fathima 40 Teo, Melissa 52 Willems, Dick Ludolf 77 Kihara, Shoko 54 Manokara, Vimallan 37, 41, 62 Owen, Randall 7 Sherriff, Andrea 83 Thomson, Allyson 4, 33, 37 Williams, Katrina 31 Kim, Jiyeon 30 Marsack, Christina 31, 33 Owuor, John 42, 52 Shiiki, Toshihide 23 Thoresen, Stian H. 4, 33, 37 Williams, Valerie 27 Kimiya, Satoshi 12 Martin, Gary E. 51 Shimizu, Satomi 22 To, Langa Samuelson 25 Wilmot, Mathilda 43 Kinnear, Deborah 77, 79, 81, 83 Martin, Jeffrey 85 P Shimoda, Hironobu 66, 67 To, Maggie ii, 89 Wilson, Erin E. 44 Kishore, Manisha 37 Märtsin, Mariann 11, 33 Pacheco, Laura 12 Shotelersuk, Vorasuk i To, Samuel Singyu 25 Wolowicz-Ruszkowski, Agnieszka Kitamura, Yayoi 21, 53 Maruo, Natsumi 22 Paju, Birgit Johanna 64 Sidhu, Dalvin Jit Kaur 28, 46 Tomsic, Gail 16, 19 10 Kitnasamy, Gopi 40 Mason, Jonathan 16 Palanivel, Manikandan 20 Simpson, Kate 35, 76 Tong, Katherine 18 Wong, Chris Tak Wee 83 Knox, Marie 11, 33, 42 Masu, Chiaki 65, 65, 71 Pan, Cheng Chen 72 Singh, Nirbhay N. 3 Tritiphen, Somsri 28 Wong, Meng Ee 56 Ko, Chiou Shiue 20 Matsubasa, Tadashi 12 Pang, Jee Ching 10, 48, 50 Skouteris, Helen 31 Tung, Yi Ning 60 Wong, Shyh Shin 37 Koay, Teng Leong 32, 41 Matzin, Rohani 63 Papadopoulos, Nicole 31 Smiley, Elita 77 Wong, Suet Ming 50 Kocman, Andreas 52, 53 McConnell, David 12 Parish, Susan 78, 84 Smith, Peter 3 U Kogima, Michio 61, 67, 73 McCowan, Colin 79 Parmenter, Trevor R. 27, 42, 55 Soeradja, Zainal Abidin 45 Uljarevic, Mirko 43 X Koh, Shine 8 McDonnell, Andrew 7 Penchaliah, Sivananda 37 Spencer, Margaret 8, 9 Unwin,Gemma 44 Xie, Huichao 22, 37 Kojima, Michio 75, 87 McGill, Peter 5 Perera, Bhathika 2 Spoor, Jennifer 43 Ushio, Reiko 22 Xu, Jiacheng 47 Koritsas, Stella 2, 6 McGillivray, Jane 3, 31 Persons, Donald 40 Srisilapanan, Patcharawan 78 Ushiyama, Michio 22, 53 Xu, Tianxi 58, 71 Korsman, Susan 50 McGinley, Jennifer 31 Petroutsou, Alexandra 32 Stodden, Robert A. 68 Xu, Yue 55 Kotani, Hiromi 22 McPherson, Carrie L. 3 Pooh, Karen 34 Su, Hui 34 V Kouimtsidis, Christos 86 McSkimming, Paula 79 Poon, Kenneth 28, 37, 46 Suemitsu, Shigeru 21 van Goudoever, Hans Bernard 77 Y Kröger, Teppo 20, 60 McVilly, Keith 3, 4 Poquerusse, Jessie 76 Sugioka, Chihiro 64, 65 Vandenbussche, Hanne 5, 38 Yamaji, Noyuri 23 Kumagai, Ryo 65, 67, 71 Min, Charmaine Teo 72 Prain, Meredith 4 Sugiura, Saika 73 Vandevelde, Stijn 79 Yamamoto, Masaaki 54 Kumara, Shantha 36 Mita, Katsumi 12 Proyer,Michelle 58 Sun, Wen 61 Vasquez, Alena 15, 57 Yang, Xi-Jie 25 Kwok, Henry ii Mita, Takehiko 24 Sun, Yumei 61 Venuti, Paola 76 Yeo, Wendy 69 Mitra, Monika 78 Q Suttachitt, Narutt 60, 74 Vermilä, Piret Elina 11 Yu, Li-Chi 60 L Miura, Takuya 66, 67 Qureshi, Adnan 29 Sutthiwong, Phakawan 73 Vindevogel, Sofie 5 Langdon, PeterE. 75 Miyanomae, Takeshi 23 Z Larkan, Fiona 42 Mizoe, Yui 22 R T W Zaal-Schuller, Ilse Harmina 77 Lau, Vincent 58 Morales, Miguel 84 Raghavendra, Pammi 39 Talib, Hasinira Binte 69 Wai, Ker-Chiah ii, 89 Zabidi bin Abdul Razak, Ahmad 10 Lee, Manyin 25 Morisse, Filip 79 Rajagopal, Aariyapillai Reena 20 Tamaki, Suguru 18 Walker,Ruth 39 Zarcone, Jennifer 54 Lee, Michelle 51 Morrison, Jill 77, 79, 81, 83 Ratanapairoj, Panida 77 Tamura, Masanori 23 Wang, Kuo Yu 13, 27, 55 Zazzi, Hannah 59 Lee, Sujin 71 Moss, Simon 31 Razak, Salim Jeffrey 29 Tan, Clara 37 Wang, Mian 30, 47 Zhang, Dalun 39 Lee, Yvonne 37 Motoyoshi, Daisuke 70 Redgrove, Fiona 35 Tan, Jui Horng 52 Wang, Tiffany 62 Zin, Hjh Rohani Hj Mat 32, 41 Lei, Jianghua 58 Murfitt, Kevin 44 Reiter, Shunit 9 Tan, Peter 37 Wang, Yu-Ju 13 Leitch, Sarah 3 Murthy, Sumithra 81 Rey, Catalina 54 Leong, Koay Teng 63 Mustaffa, Jamila 52 Richdale, Amanda 43 Leong, Janice 22 Muto, Yoko 22 Rieck, Murray 11, 33 Li, Henan 84 Rillotta, Fiona 39, 69 LI, Jing 42 N Rinehart, Nicole 31 Liang Melanie Jiamin 83 Nagase, Osamu 48 Roberts, Jacqueline 76 Liang, Shen 72 Nakachi, Muneyuki 18 Rooker, Griffin 54 Liew, Chloe 35 Nakao, Ayaka 18, 49 Rose, John 27, 44 Lim, Esther 52 Neuman, Ran 9 Ross, Kevin 79 Lim, Hoili 37 Nevill, Rose 54 Roth, Dana 38 Lindsay, Lorraine 69 Newcomb, Eli 54 Liu, Yonglun 56 Ng, Jing Yi 37 S Loh, Eva Wei-Lyn 19 Ng, Rachel 62 Sadek, Susan 75 Loh, Sau Cheong 10 Nishan, Fathmath 63 Saiki, Hiroshi 54 Lombardi, Marco 5 Nizam, Nurafizzah Hj Muhd Khairun Salmons, Brian 27 Losh, Molly 51 32 Samuel, Preethy 44 Santoso, Harri 45

98 99