INVISIBLE WOUNDS: RETHINKING RECOGNITON in DECOLONIAL NARRATIVES of ILLNESS and DISABILITY by CAROLYN MARGARET UREÑA a Dissert
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INVISIBLE WOUNDS: RETHINKING RECOGNITON IN DECOLONIAL NARRATIVES OF ILLNESS AND DISABILITY By CAROLYN MARGARET UREÑA A dissertation submitted to the Graduate School-New Brunswick Rutgers, The State University of New Jersey In partial fulfillment of the requirements For the degree of Doctor of Philosophy Graduate Program in Comparative Literature Written under the direction of Ann Jurecic And approved by _____________________________________ _____________________________________ _____________________________________ _____________________________________ New Brunswick, New Jersey May 2017 © 2017 Carolyn Margaret Ureña ALL RIGHTS RESERVED ABSTRACT OF THE DISSERTATION Invisible Wounds: Rethinking Recognition in Decolonial Narratives of Illness and Disability By CAROLYN MARGARET UREÑA Dissertation Director: Ann Jurecic Working at the interface of literary studies, decolonial theory, and disability studies, my dissertation draws on literature and film across a variety of genres, including fiction by Ralph Ellison, Gabriel García Márquez, Toni Morrison, and Junot Díaz, to demonstrate how literary narratives about illness and disability contribute to understanding racial formations and ameliorating colonial wounds. The dissertation develops a critical framework for understanding the ways in which a sustained encounter between critical race studies, disability studies, and the medical humanities can generate new conceptions of health and healing. I accomplish this through a reassessment of the writings of decolonial theorist Frantz Fanon, a physician who used narrative case studies and ethnography to illuminate the imbrication of race, illness, and disability. By introducing a decolonial perspective to the study of narratives of illness and disability, this project not only challenges the medical humanities and disability studies to consider the experience of race and the effects of colonialism, but also foregrounds questions of disability and illness within the fields of race theory and postcolonial studies, where they have until now received minimal scholarly attention. ii Chapter one argues that Fanon’s clinical and philosophical perspective offers the medical humanities critical tools with which to dismantle binaries at the center of Western hegemonic thought and which serve to perpetuate Eurocentrism. As I build a theory of decolonial embodiment in chapter two, I work with Fanon’s and Ralph Ellison’s scathing critiques of Mark Robson’s 1949 Home of the Brave, a Hollywood film that problematically conflates blackness and disability. Read against the grain, the film also illuminates the limits of Eurocentric psychiatry’s understanding of the black subject. In chapter three I perform a comparative reading of Toni Morrison’s iconic neo-slave narrative Beloved and Gabriel García Márquez’s underexplored Of Love and Other Demons to examine the healing power of love in a decolonial context. My final chapter examines ethnographies of illness by medical anthropologists Paul Farmer and Cheryl Mattingly in light of Fanon’s The Wretched of the Earth, which itself can be understood as a radical form of ethnography, to argue that beyond recognizing the suffering of people of color it is essential to take seriously the need to create a new narrative of the human that is not defined by European standards. iii ACKNOWLEDGMENTS Throughout my time at Rutgers, I have been very fortunate to have the opportunity to work with scholars who have always encouraged me and helped my project grow in new and unexpected ways. From the very first email I sent my dissertation chair, Ann Jurecic, asking for suggested readings on illness narratives, to re-discovering the work of Frantz Fanon in courses on “Caribbean Theorizing” and “Embodied Cinemas” with committee members Nelson Maldonado-Torres and Susan Martin-Márquez, respectively, I have been privileged to encounter mentors who have wholeheartedly supported my intellectual and personal growth. For this, I am grateful to the Program in Comparative Literature for providing an environment premised on genuine collaboration between colleagues, classmates, and professors that resulted in a collision of ideas that could have only happened at Rutgers. With this in mind, I extend my sincere gratitude to Ann, in particular for her continual guidance and support as I developed my dissertation from its earliest stages through to its completion. Her willingness to read and provide feedback on my work through several revisions has strengthened not only my writing but also my pedagogical commitment to the writing process. My dissertation committee, which I have affectionately referred to as my “intellectual dream team,” has been invaluable in the development of this project. I am immensely grateful to Nelson for his mentorship and advice, and for serving as a model for the kind of researcher and teacher I strive to become. As I have often told my own students, whether at Rutgers or at Prep for Prep, it can make such a tremendous difference to see oneself reflected in not only the faculty but, perhaps more importantly, the texts and theories being taught. My hope is to be able to iv embody such a commitment to decoloniality in both theory and practice at every stage of my career. I appreciate Susan for working with me one-on-one to develop a seminar paper into my first published academic article, and for this, as well as her rigorous attention to detail and insightful questions at various stages of this project, she has my deepest thanks. Thank you to Michelle Stephens for generously serving on my dissertation committee as my external reader as well as for her input and insights. I owe special thanks to those professors and mentors beyond my committee who have gone out of their way to help me develop my ideas through helpful feedback and engaging conversations, in particular Yolanda Martínez-San Miguel and Richard Serrano. I also wish to thank the directors of the Program in Comparative Literature during my time at Rutgers: Elin Diamond, Michael Levine, and Andrew Parker. Thanks especially to Comparative Literature’s recently retired administrative assistant, Marilyn Tankiewicz, to whom countless graduate students are indebted not only for her practical advice regarding which forms to submit and when, but on a personal level, for motivating us at every stage of our graduate careers. Special thanks to Assistant Dean Teresa Delcorso-Ellmann for inviting me to join the GradFund team so that I could continue to develop my skills as a writer, reader, and teacher in my work as a fellowship advisor with graduate students across the disciplines. I am indebted to the Ford Foundation for the crucial financial support provided during my final year at Rutgers as a 2016-2017 Ford Foundation Dissertation Fellow. Summer grants provided by the Andrew W. Mellon Foundation during the summers of 2012 and 2013 allowed me to begin preliminary dissertation research early in my career. Portions of chapter four, “Decolonial Love and Healing: v Loving from Below in Morrison and García Márquez,” have been previously published in Hypatia: A Journal of Feminist Philosophy under the title “Loving from Below: Of (De)colonial Love and Other Demons.” I thank the publishers of Hypatia for permission to include the material here. I am eternally grateful to my family: my parents, Ruben Ureña and Matilde Bautista Ureña, immigrants to the United States from the Dominican Republic with my brother, Richard, who prioritized education above all else. My mother, especially, made sure that I always had a quiet space to study and instilled in me a sense of honor and integrity that helped me believe I could accomplish every one of my goals. My teachers and mentors at Prep for Prep inspired me to dream big and push myself beyond what I thought I was capable, and I thank the program, along with the sixth graders I taught over the past three summers, for reminding me where I came from so that I can more clearly imagine where I am headed. My most heartfelt thanks go to those within and especially outside of graduate school who helped me maintain a connection to life outside of my own mind. I feel a deep appreciation for my fellow-Comp Lit graduate students Shawn Gonzalez and Enmanuel Martínez for serving as sounding boards, master question- askers, excellent listeners, and for becoming dear friends over the past several years. Beyond Rutgers, I have been incredibly lucky to maintain lasting friendships with a few very special people who have supported my dreams and who have always known when (and when not) to ask about my dissertation. For this cast of characters, especially Antoinette Ortiz, Mateusz Pluciński, Anna Maria Jakubek, and Mackenzie Russell, I am truly grateful. Above all, I wholeheartedly thank my husband, partner, and fellow scholar Stanisław Gabryszewski, who inspires me vi through his hard work as a clinician-scientist, and whose love and support remains a daily source of strength and joy in my life. vii TABLE OF CONTENTS ABSTRACT OF THE DISSERTATION ......................................................................... ii ACKNOWLEDGMENTS ........................................................................................... iv INTRODUCTION ..................................................................................................... 1 CHAPTER ONE | DECOLONIAL EMBODIMENT: A FANONIAN EPISTEMOLOGY OF THE BODY ........................................................................................................... 13 FANON’S ENGAGEMENT WITH