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CELEBRATING 3 YEARS of PATIENT INNOVATION Report 2014-2017

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CELEBRATING 3 YEARS of PATIENT INNOVATION Report 2014-2017 CELEBRATING 3 YEARS OF PATIENT INNOVATION Report 2014-2017 www.patient-innovation.com 2 Celebrating 3 Years of Patient Innovation 2014 CELEBRATING 3 YEARS OF PATIENT INNOVATION 2017 3 Celebrating 3 Years of Patient Innovation To all patients, caregivers, and collaborators that made this journey possible. Thank you. patient-innovation.com facebook.com/PatientInnov • twitter.com/PatientInnov • youtube.com/c/patientinnovationpi Contents OUR PROJECT 8 LETTER FROM THE TEAM 10 1 / PATIENT INNOVATION PLATFORM 12 The purpose of the Patient Innovation Platform 13 How it works 18 Launch Event 22 Platform evolution 24 2 / PATIENT INNOVATION AWARDS 26 The 1st Patient Innovation Awards 28 The 2nd Patient Innovation Awards 34 The 2nd Patient Innovation Awards @ Web Summit 36 The Patient Innovation Awards Forum 42 3 / GIVING A HAND 44 4 / ACTIVITIES 48 Health Innovation Challenge 50 Patient Innovation recognized at summit with 51 UN Secretary-General Ban Ki-moon World Arthritis Day 52 SOS Refugees by Patient Innovation 54 Celebrating our 2nd year anniversary 56 Non-profit Startup of The Year 2016 58 AACSB distinguished Patient Innovation as 59 Entrepreneurship Spotlight Challenge Honoree (2017) 5 / BEYOND THE LAB EXHIBITION 60 6 / PATIENT INNOVATION RESEARCH 66 Research and Outreach 68 What we learned so far 70 Conference presentations 72 Open and User Innovation 2015 76 7 / IN THE MEDIA 78 We are all over the news! 80 8 / PATIENT INNOVATION TEAM 88 Main team 90 Advisory Board team members 92 Advisory Board meetings 94 Supporters 96 Local Chapter Berlin 98 Partnerships 100 WHAT OUR COMMUNITY HAS BEEN SAYING 102 8 Celebrating 3 Years of Patient Innovation Our Project The Patient Innovation project is an interna- tional, multilingual, non-profit platform, and social network that connects patients and care- givers, and enables the sharing of their solu- tions. If not shared, these strategies, treatments, devices, and knowledge would probably remain unknown to many patients, not fulfilling their potential to change the lives of others. We want to be the means to that sharing. We want to help people change their own lives and the lives of many others through sharing. Celebrating 3 Years of Patient Innovation 9 Letter from the Team 10 Celebrating 3 Years of Patient Innovation 01 Dear all, Patient Innovation was developed in 2014 with the purpose of sharing and helping to improve lives. In these three years we have managed to reach a wide audience. We celebrated patients and caregivers through the 1st Patient Innovation Awards in July 2015 and the 2nd edition of the Patient Innovation Awards in November 2016. The number of solutions shared on our platform has been increas- ing every day. In 2017, we reached a new milestone: 750 solutions on the platform! Through sharing, we all grow. Each solution shared becomes a piece of the Patient Innovation heart. It has been three years since we began working to break down economic, geographical, and language barriers, by improving our platform each day, providing more solutions, and increasing aware- ness. By doing so, we are helping to improve the lives of members of the Patient Innovation community worldwide. All the best from the Patient Innovation team. 01 From left to right: Salomé Azevedo, Ana Duarte, Maria João Gonçalves, Miguel Amaral Nunes, Pedro Oliveira, Patrícia Rodrigues, Tina Drusay, Helena Canhão, Leid Zejnilovic and João Pedro Covas. Celebrating 3 Years of Patient Innovation 11 12 Celebrating 3 Years of Patient Innovation Patient Innovation1 Platform “ This is an outstanding social media use that should help many disadvantaged people.” — Sir Richard Roberts CHIEF SCIENTIST, NEW ENGLAND BIOLABS NOBEL LAUREATE IN PHYSIOLOGY OR MEDICINE 1993 PATIENT INNOVATION ADVISORY BOARD MEMBER Celebrating 3 Years of Patient Innovation 13 1 / Patient Innovation Platform The purpose of the Patient Innovation Platform The purpose of the Patient Innovation Platform his project is the result However, it was then discovered The problem or challenge ex- Tof a multidisciplinary re- that these solutions, developed by perienced by a user (patient, ca- search, which involves the areas patients, caregivers, and collabo- regiver, or collaborator) may be of management, health scienc- rators, weren’t being shared. similar to that of many other pa- es, engineering, and law. The in- tients and caregivers. vestigation started in 2011, led Founded and led by So the solution developed to by CATÓLICA-LISBON School of Prof. Pedro solve this problem could be appli- Business & Economics, in partner- cable to many other people. Post- ship with the MIT, Sloan School of Oliveira and Prof. ing and sharing your solution will Management, and the Carnegie Helena Canhão contribute to updating and im- Mellon University. proving this plaform, helping oth- It became clear that there was ers to solve their own challenges. Currently, in Portugal, the pro- a need to create an online plat- ject also includes the partnership form that made the diffusion of of the Instituto de Medicina Molec- these solutions possible. ular, the Faculty of Medicine Uni- And from this, Patient Innova- versity of Lisbon and Nova Medical tion was born. School of New University of Lis- bon. The project, founded and led An open platform for patients by Prof. Pedro Oliveira and Prof. (those who develop solutions Helena Canhão, has received sup- for themselves), caregivers port from several reputed mem- (those who develop solutions for Anyone bers of the scientific community, loved ones), and collaborators including Nobel Laureates, nota- (those who develop solutions can join the ble academics of several scientific for someone outside their circle fields, patients and patient associ- of family/friends) of any disease platform ations of several diseases, from all and geography. around the world. 14 Celebrating 3 Years of Patient Innovation “ ...there was a need to create an online platform that made the diffusion of these solutions possible. And from this, Patient Innovation was born” Celebrating 3 Years of Patient Innovation 15 16 Celebrating 3 Years of Patient Innovation 1 / Patient Innovation Platform The purpose of the Patient Innovation Platform After registering, users have full access to all patient communities, where they may share any solu- tions they have developed with others, as well as browse solutions and strategies that other users have created and shared with the community. Another feature that makes this platform unique is its medical screening. All of the solutions undergo a screening process that identi- fies and removes posts deemed offensive or inappropriate, for the purpose of commercial trade, that do not qualify as a proposal, that involve drugs, chemicals or biologics, that consist of invasive devices, or that are visibly and intrinsically dangerous. Many solutions are of a prac- tical nature and may not require scientific validation. However, this does not disregard their importance in facilitating the day-to-day lives of patients and caregivers. Furthermore, the user commu- nity, which may include patients, health professionals, and other individuals, will provide feedback through comments and informal ratings to the proposed solutions. Celebrating 3 Years of Patient Innovation 17 How it works HWe have envisioned a platform that allows anyone to explore the world of patients, caregivers and collaborators that create solutions to overcome challenges presented by a health condition. To start using the Patient Innovation platform, simply go to ↓ https://patient-innovation.com Through this link, you will find information that will help you become part of this incred- ible community. Nevertheless, here is a sneak peek of what you can do. 18 Celebrating 3 Years of Patient Innovation 1 / Patient Innovation Platform How it works 1. SEE WHAT'S HAPPENING All published solutions are grouped into categories, making every- thing related to the same topic easier to find. You can explore shared solutions through our six categories (↓) or through keywords. CONDITION SYMPTOM Solutions sorted by condition. Solutions sorted by symptom. Ex.: What solutions were Ex.: Are you looking for solutions developed for individuals for unbearable headaches? with paraplegia? LOCATION ACTIVITIES Solutions related to a specific part Solutions sorted by activities. of the human body. Ex.: Are you looking for solutions Ex.: Do you have some trick to to overcome some obstacles reduce hand tremor? inherent to a specific activity (walking, eating, showering...) ? DEVICES THERAPY All the devices sorted by type Solutions to overcome some prob- (wheelchairs, apps, 3D printed lems during therapy. devices, etc.) Ex.: The backpack developed by an 11-year-old girl, Kylie Simonds, to help her during chemotherapy. Celebrating 3 Years of Patient Innovation 19 2. DISCOVER THE LATEST SOLUTIONS Get inspired! Look for the latest solutions and discover what patients and caregivers have been doing 20 Celebrating 3 Years of Patient Innovation 1 / Patient Innovation Platform How it works 3. POST YOUR OWN SOLUTION Post the solution you have de- veloped. Don’t worry if it seems simple; as long as it has helped you overcome an issue, it is considered a solution. People who suffer from the same problem will be grateful! 4. BE SOCIAL Comment and help others im- prove their solutions by giving your feedback! Share your own solution or the solutions of others on Facebook, Twitter or YouTube! 5. MANAGE FAVORITES Once you register, you can book- mark the groups of diseases that interest you the most. You can also set up notifications to receive updates from your favorite groups. Celebrating 3 Years of Patient Innovation 21 1 / Patient Innovation Platform Launch Event Launch Event Our platform and research 02 initiative was publicly presen- ted at the Patient Innovation Launch Event, held at CATÓLICA-LISBON in Portugal, on February 7th 2014 his event brought together Hippel, Sir Richard Roberts and Tpatient innovators, scholars, Harry DeMonaco gave remarkable and supporters of our internation- talks. An incredible day where al, non-profit Patient Innovation patients, caregivers and collabora- platform.
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