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0 0 Tithe an Oireachtais Report on Attention Deficit Disorder in Ireland Item Type Report Authors Houses of the Oireachtas, Joint Committee on Health and Children Publisher Houses of the Oireachtas, Joint Committee on Health and Children Download date 07/10/2021 06:38:09 Link to Item http://hdl.handle.net/10147/241714 Find this and similar works at - http://www.lenus.ie/hse 0 0 TITHE AN OIREACHTAIS HOUSES OF THE OIREACHTAS An Comhchoiste um Shhiinte agus Leanai The Joint Committee on Health and Children , Tuarascail ar Neamhord Easnaimh Aire in Eirinn 0 Report 0 on D Attention Deficit Disorder in Ireland 0 0 Aibrean 1999 0 April 1999 Table of Contents List ofTabies iv List of Figures VI Foreword and Acknowledgements vii Proceedings of the Joint Committee viii 1. Aim ofthe report 1 2. Recommendations 2 2.1 General Recommendations 2 2.2 Recommendations regarding diagnostic services for persons with ADD/H 3 2.3 Recommendations regarding treatment services for persons with ADD/H 4 2.4 Recommendations regarding educational services for persons with ADD/H 5 2.5 Recommendations regarding the education of professionals in the medical 6 psychological, educational, and vocational services in the area of ADD/H 3. Literature Review of Attention Deficit Hyperactivity Disorder 7 3.1 Definition of ADHD 7 3 .2 Diagnosis and Treatment of ADHD 11 3.3 Non-StimulantTreatment 14 3.4 Adult ADHD 14 3.5 Swrunary of Literature Review 16 4. Objective One Current Service Provision in Ireland 17 4.1 Government Documentation 17 4.2 Our Lady's Hospital for Sick Children, Crumlin 23 4.3 Evaluation of the ADDIH Service provided at Our Lady's Hospital, Crurnlin 25 4.4 Temple Street Hospital 36 4.5 Neurodevelopment Clinic 37 4.6 Private Services 38 4.7 Summary of Objective One 41 ; . *** eettt • 5. Objective Two Current Service Provision in the US and the UK 44 5.1 US Situation 44 5.2 UK Situation 49 5.3 Summary of Objective Two 51 6. Objective Three Others providing services to persons with ADDIH in Ireland 52 6.1 Educational Psychologist working in schools 52 6.2 The Services of a remedial and resource teacher 54 6.3 Review of college prospectuses for teacher training colleges and universities 56 6.4 Summary of Objective Three 57 7. Objective Four Medical personnel who specialise in the field ofADDIH 58 7.1 Interviews with medical personnel 58 7.2 SwnmaryofObjective Four 59 . 8. Objective Five ADDIH Support Groups in Ireland and a survey offamily needs 60 8.1 Support Groups 60 8.2 Needs of families with ADDIH 62 8.3 Needs of adults with ADDIH 88 8.4 Summary of Objective Five 100 8.5 Case Studies 10 I 9. Objective Six Vocational Programmes for persons with ADDIH 105 9.1 Y outhreach Services 105 9.2 Summary of Objective Six I 08 10. Objective Seven Use ofDrugs in Ireland for the treatment ofADDIH 109 10.1 Use of drugs in Ireland for the treatment of ADDIH 109 10.2 Use of drugs in the US for the treatment of ADD/H 113 I 0.3 Use of drugs in the UK for the treatment of ADDIH 114 10.4 Summary of Objective Seven 115 ii ~ 11. Objective Eight, Nin~ Ten Specialist ADDIH training 116 12. References 117 13. Appendices Appendix A- Evaluation questionnaire 121 Appendix B - Letter of Information and Consent 127 Appendix C- ADD/H Parents Questionnaire 129 Appendix D- ADD/H Adults Questionnaire 134 Appendix E .- Meeting ofthe Joint Connnittee on Health and Children, 25 February 1999 with Attention Deficit Disorder MidWest Support Group 139 Appendix F- Members of the Joint Committee 153 Appendix G - Orders of Reference of the Joint Committee 155 r iii L List of Tables · Table 1: Age of children 65 Table 2: Number and percentages of those attending primary school, 65 secondary school and other Table 3: Breakdown of 'other' category 66 Table 4: Age at which a problem was first noticed 66 Table 5: Age problem first presented to a professional 67 Table 6: Number and percentages of diagnoses received 68 Table 7: Number and percentage of children diagnosed by different - 68 professionals Table 8: Number and percentages of diagnoses received in Ireland 69 and the United Kingdom Table 9: Comparison between the age problem first presented to a 70 professional and age at diagnosis Table 10: Number and percentages of children whose needs are effectively 71 met by the school system Table 11: Number and percentage of children receiving an 72 additional service Table 12: Number and percentages of children receiving different 73 types of services Table 13: Level of satisfaction with additional services 73 Table 14: Number and percentage of children who have contact with professionals 74 Table 15: Types of p :essionals children have contact with 75 Tablel6: Number and percentage of children receiving medical treatment 75 Table17: Number and percentage of children taking different t)'lJes of medication 76 Table 18: Number and percentage of those who find medical treatment beneficial 76 Table 19: Future availability of services 78 Table 20: Service providers 80 Table2L Number and percentage of parents who attend a support group 80 Table 22: Comments on the support groups 81 Table 23: Number and percentage of children attending a support group 81 iv ~····· Table 24: Comments regarding children attending a support group 82 Table 25: Reported level of public knowledge 83 Table 26: How can knowledge be increased 85 Table 27: Number and percentage of participants reporting an impact on family life 85 Table 28: Age of participants 90 Table 29: Age first problem noticed 90 Table 30: Age problem first presented to a professional 91 Table 31: Number and percentage of diagnoses received 91 Table 32: Who made the diagnosis? 92 Table 33: Number and percentage of diagnoses received in Ireland and the 92 United Kingdom Table 34: Comparison between age problem presented to a professional and 92 age of diagnosis Table 35: Does the school system effectively meet your needs? · 93 Table 36: Number and percentage of participants receiving an additional service 93 Table 37: Number and percentage of respondents who have contact 94 with professionals Table 38: Professionals contacted by respondents 94 Table 39: Number and percentage of respondents receiving medical treatment 94 Table40: Future availability of services 96 Table 41: Service providers 97 Table42: Number and percentage of participants attending a support group 97 Table 43: Reported level of public knowledge 98 Table 44: Number and: percentage of respondents reporting an impact on 99 family life V ~ List of Figures Figure l: Experience of financial burden due to the child's disorder before 31 and after attending the ADHD Service Figure 2: Experience of child's behaviour disrupting activities before 31 and after attending the ADHD Service Figure 3: Burden on recreational activities due to the child's disorder before 32 and after attending the ADHD Service Figure 4: Neighbours stopped visiting due to the child's behaviour disorder 33 before and after attending the ADI·ID Service Figure 5: Family relations due to the child's disorder before and after attending 33 the ADHD Service Figure 6: Health burden due to the child's disorder before and after attending 34 the ADHD Service r vi 'X I A! Foreword and Acknowled~ments The Joint Committee on Health and Children was established in November 1997. Following a proposal from Senator Mary Jackman, the Joint Committee decided to examine Attention Deficit Disorder and appointed the National Research Agency Ltd. as consultants for the purpose of this report. Senator Mary Jackman acted as the Joint Committee's liaison with the consultants. The report was considered the Joint Committee at its meetings on 25 February 1999 and 25 March 1999. The report, as amended, was agreed. The Joint Committee is grateful to the National Research Agency Ltd. for their efforts in preparing this report. The Joint Committee would also like to express its particular appreciation to Senator Mary Jackman for the key role played by her in the conception and production of this report. The Joint Committee would like to thank all those adults with ADDIH, parents of children with ADD/H and professionals working in the area of ADDIH who contributed to this report for their generosity with information. The Joint Committee is also very grateful to Dr. Deirdre Killelea, Clinical and Educational Psychologist, and Prof. Michael Fitzgerald, Trinity College Dublin, for their invaluable assistance. -1~~ Batt O'Keeffe i Chairman l2-April1999 r Vll n 6& AN COMHCHOISTE UM SHLAlNTE AGUS LEANAi THE JOINT COMMITTEE ON HEALTH A.l'ID CHILDREN Imeachtai An Chombchoiste Proceedings of the Joint Committee De Deardaoin, 25 Marta, 1999 1. The Joint Committee met at 9.30 a.m. in Room G2, Kildare House. 2. MEMBERS PRESENT. The following members were present: Deputies Batt O'Keeffe (in the chair), Michael Ahem, Paul Bradford, Deirdre Clune, Paul Connaughton, John Gormley, Cecilia Keaveney, Liz McManus, Dan Neville and Alan Shatter. Senators Camillus Glynn, Mary Jackman and Pat Moylan. 3. DRAFT REPORT ON ATTENTION DEFICIT DISORDER (RESUMED) Consideration of the Report on Attention Deficit Disorder, brought forward by Senator Mary r Jackman, was resumed. Tile Report was read and amended. The Report, as amended, was agreed. Ordered: To report accordingly. 4. ADJOURNMENT The Committee adjourned at 10.15 a.m. until Thursday 22 April. viii ·+m: .. L Aim of the Report 1. Aim of the Report The aims of this report were as follows: • The primary aim of the study was to establish the need for new services, medical, psychological and educational for children and adults with ADD/H.
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