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2019 IMPACT REPORT

EUROPEAN UNION OF THE DEAF 02 ACKNOWLEDGEMENTS

EUD would like to thank the European The EUD interns Roy Maguire and Serafine Commission for funding this 2019 Impact Duss, along with all members of staff Report under the REC Work Programme. contributed to this up-to-date report with Without their substantial financial photos, texts and signed input. contributions, the publication of this report would not have been possible. Our member associations are at the heart of our work and we thank them for assisting and The support of the EUD Board and President co-operating with us throughout the year. have been of invaluable help to create an accurate and up-to-date account of the EUD The European Forum (EDF), our activities in 2019: European disability umbrella organisation, has been a great partner in all our work, Board 2017 - 2021: informing us and collaborating with our President . . . . . Dr Markku Jokinen board and staff via email and in person, in and Vice-President . . Dr Gergely Tapolczai outside of . Board Member . . Louise “Lolo” Danielsson Board Member . . Daniel Büter In support of its daily work, EUD has been in Board Member . . Sofia Isari contact with a large number of Members of the (MEPs) and other EU policymakers and aspires to continue this fruitful co-operation in the coming years.

Dr Markku Jokinen

Dr Gergely Tapolczai Louise “Lolo” Danielsson

Sofia Isari Daniel Büter

EUD IMPACT REPORT 2019 03 FOREWORD BY EUD PRESIDENT

2019, an incredibly busy year for EUD, has term. Unfortunately, this means we lost come to an end. As usual, EUD has been highly the excellent former MEP, Helga Stevens active and undertaken and organized a wide from . We will never forget Helga’s array of activities. For instance, 2019 has determination to fight for the rights of deaf been a special year for the European Union people and users. Kudos to her as the European Elections took place, and I for her past work with EUD. genuinely believe EUD did its best ensuring that the information regarding the European Putting the European Elections aside, we Elections was more accessible for deaf voters. also attended for the very first time the 12th Furthermore, EUD, in collaboration with efsli Session of the Conference of States Parties and EUDY, carried out an advocacy campaign (COSP) to the Convention on the Rights of on its and on social media which was Persons with (UN CRPD) at the extremely successful. United Nations headquarters in New York City.

Moreover, for the first time ever, EUD worked Furthermore, in 2019, we received a donation together with the European Parliament on the of US$500,000 from Huawei with the election campaign video, ‘Choose your future ’. purpose of the donation being support 10 national deaf associations with their projects We are very proud to have been a part of concerning literacy for deaf children. EUD this initiative undertaken by the European also supported Huawei with their StorySign Parliament and were truly amazed by their campaign which published four additional achievement in providing translations for books in 11 different national sign languages. 31 National Sign Languages. We couldn’t possibly have asked for more from them! We are pleased to announce that EUD has successfully been granted three new projects During the European Elections, there were for the next four years. As the of EUD’s eight deaf candidates, but sadly only one was work has expanded, EUD will be certain to add elected—Dr. Ádám Kósa from Hungary. This additional staff members starting from 2020. means we are down to one deaf MEP from the previous two during the last parliamentary

Dr Markku Jokinen EUD President

EUD IMPACT REPORT 2019 04 EUD INTRODUCTION

EUROPEAN UNION Based in Brussels, Belgium, EUD is a not-for- officials, in consultation and co-operation with OF THE DEAF profit European non-governmental organisation its member NADs. EUD is a full member of (ENGO) comprising National Associations of the European Disability Forum (EDF) and is a the Deaf (NADs). It is the only supranational Regional Co-operating Member of the World organisation representing Deaf people at Federation of the Deaf (WFD) to tackle issues European level and is one of the few ENGOs of global importance, and also has participatory representing associations from all of the 28 EU status with the Council of (CoE). Member States, in addition to EFTA countries: Iceland, Norway and Switzerland. EU acceding, EUD also has signed MoUs with the European candidate and potential member countries can Forum of Sign Language Interpreters (efsli), choose to become affiliated members with the the European Union of the Deaf Youth (EUDY), option to become full members as soon as they the European Deaf Sports Organisation (EDSO), officially enter the EU. the European Deafblind Union (EDbU) and European Network of Sign Language Teachers EUD aims to establish and maintain EU level (ENSLT). Since 2017, it has Special consultative dialogue with its relative institutions and status with the United Nations.

MISSION STATEMENT It is the core mission of EUD to promote, advance These key values are also mirrored in the and protect the rights of and opportunities for daily work of its Brussels headquarters. The deaf people in the European Union to ensure office provides a fully accessible signing they can become full citizens in their own right. environment with internationtal staff from many different countries across the EU. Most To achieve equality in both public and private staff are deaf sign language users and all life for deaf people, EUD has laid out three hearing staff must know or learn one national main long-term objectives: sign language as well as International Sign. Gender equality is also taken into account in 1 Recognition of the right to use an all employment policies and when organising indigenous sign language; events and speakers. 2 Empowerment through communication and information; and

3 Equality in education and employment.

SIGN LANGUAGES Inherent to the work of EUD is the belief that equal education, information or to a fair AS A HUMAN RIGHT the right to sign language is a basic Human trial. Without early access to sign language Right. Sign language users, similarly with programmes and/or an educational systems national minorities, are in need of specific that foster the acquisition of the national targeted and coherent protection regarding and/or regional sign language(s) (and the their language and all human rights. National national written language), deaf children will and/or regional sign languages are the not be able to enjoy their basic human rights mother tongues of deaf sign language users as children or later in their adult life. across the EU and the world. EUD therefore advocates that the right to The right to sign language in itself is a sign language is an essential prerequisite to human right, but access to sign language ensure full and equal citizenship for all deaf is also essential for the fulfilment of other people. basic human rights, such as the right to

EUD IMPACT REPORT 2019 05 EUD INITIATIVES

EUD regularly plans and carries out campaigns, to the wider hearing society and key European workshops and other pan-European events to and national policy-makers. reach out to the deaf community, in addition

On the 18th of May, EUD’s 33rd General had a chance to highlight the importance of GENERAL ASSEMBLY, Assembly (GA) took place in Bucharest, collaborating and working closely with EUD. BUCHAREST, Romania, which gathered delegates from 27 EUD is delighted that the GA was a successful National Associations of the Deaf (NADs). event where the delegates actively The GA was an opportunity for EUD’s participated, leading to many fruitful board members and staff to provide an discussions. overview of EUD’s work in 2018. This included a presentation of EUD’s policy EUD would like to express its appreciation work, a presentation on its communications to the Romanian National Association for and media strategy, as well as the budget the Deaf for their time and commitment in overview. Furthermore, EUD’s co-operative contributing to the success of the General partners, EDF, EDSO, EUDY, efsli and ENSLT, Assembly.

EUD IMPACT REPORT 2019 06 EUD INITIATIVES

BOARD MEETINGS In 2019, the four quarterly board meetings co-operation of Deaf communities, as these of EUD took place in Prague, ; meetings, along with the General Assembly, Brussels, Belgium; Vienna, Austira and are the cornerstones of EUD’s democratic Sofia, . The board meetings play structure. an important role in the European-wide

1. Nicosia, On the 8th of March, the first EUD board which later took place in Bucharest, Romania meeting of 2019 took place in Nicosia, in May that year. Cyprus. During the four-day-stay, the EUD board had the opportunity to discuss in detail EUD met with the President of the Cypriot Huawei’s donation of 500,000 USD for EUD. Deaf Federation, Andreas Constantinou and Moreover, the EUD board members discussed other board members and had a chance to the agenda for EUD’s General Assembly discuss future collaboration between the national deaf association in Cyprus and EUD.

Andreas Constantinou, President, Cyprus Deaf Federation

2. Bucharest, Romania On the 16th of May, a board meeting took the agenda for the General Assembly and to place in Bucharest, Romania. The board finalise all the preparations leading up to it. members took the opportunity to discuss

EUD Board Meeting, Bucharest, Romania

EUD IMPACT REPORT 2019 07

3. Helsinki, The Finnish Association of the Deaf warmly The EUD Board meeting discussed important welcomed the EUD Board and staff on 31st updates from the last few months, August. This third board meeting of 2019 took such as upcoming projects and several place in Finland as it held the EU Presidency debriefings from each board regarding their at the time. representative work. These board meetings play an important role in the European-wide The Finnish Association of the Deaf organised co-operation of Deaf communities and, a meeting together with the Finnish Ministry along with the General Assembly, are the of Justice in order to gather information cornerstones of EUD’s democratic structure. regarding the Finnish government’s programme for the EU presidency.

Dr. Markku Jokinen, EUD President

4. Brussels, Belgium On the 29th of November, we held our some discussions on the European Disability last board meeting of 2019, taking the Strategy for 2020-2030, in particular on opportunity to discuss the work programme EUD’s involvement towards it. of the past year. Additionally, there were

From left to right, Daniel Büter, EUD Board Member and Louise Danielsson, EUD Board Member

EUD IMPACT REPORT 2019 08 EUD INITIATIVES

MEMBER WORKSHOPS As part of EUD’s commitment to building in a number of areas. These events are open the capacity of its members, the European to member association staff and boards, deaf community in general as well as regional representatives or other interested associated organisations, EUD regularly parties from the wider deaf community, organises trainings, seminars and workshops professionals and political stakeholders.

Seminar, Nicosia, Cyprus On the 9th of March, this seminar took place interact with the EUD board members during in Nicosia, Cyprus during which the EUD the discussion concerning employment and board presented the EUD’s work. Moreover, pensions. The event was well received with the members of the local Cypriot deaf 100 persons in attendance. community were given the opportunity to We want to express our sincere appreciation to the Cyprus Deaf Federation for hosting us and for their warm hospitality during our stay in Nicosia.

EUD Seminar, Nicosia, Cyprus

Workshop, Bucharest, Romania On the 16th of May, this workshop took place The final topic introduced was the “European in Bucharest, Romania, during which the Electronic Communications Code (EECC)” delegates gathered to attend EUD’s workshop which was explained by EUD’s Policy Officer, where they were briefed on EUD’s work, in Martyna Balčiūnaitė. This briefing highlighted preparation for the GA on the 18th of May. the differences between the EAA, AVMSD and EECC, which EUD urges to focus on three The briefings focused on three key areas, areas for this year. firstly on the ‘European Act and links to other EU Accessibility Legislation.’ The delegates were engaged in the Executive Director Mark Wheatley led this discussions for all three topics and were session detailing the legislation. well prepared for the subsequent General Assembly. The second topic was on “Revised Audiovisual Media Services Directive (AVMSD)” and was led by EUD’s Policy Assistant, Frankie Picron. He was given the chance to provide a conclusive report from EUD’s perspective.

EUD IMPACT REPORT 2019 09

Seminar, Bucharest, Romania On the 17th of May, EUD co-organised a All 26 NADs were given the opportunity to seminar with Asociatia Nationala a Surzilor present an overview of their associations. din România (ANSR, the Romanian National Their presentations were highly interesting Association for the Deaf) presenting an and demonstrated how different the NADs “Overview of European Organisations”. can be when it comes to their country, as some associations are well-funded, whilst others The welcoming & introduction of the struggle to find funding. This represented Romanian Government’s Representatives an incredibly successful and informative took place first: seminar for the 103 registered participants. - President of the Romanian National As such, EUD would like to share its gratitude Association of the Deaf: Mihail Grecu with ANSR’s team for their tireless work and - Representative from the Romanian EU co-operation in ensuring a successful event Presidency: Dr. Diana Loreta Paun for everyone. - President of the European Union of the Deaf: Markku Jokinen - President of the Romanian National Disability Council: Daniela Tontsch - Board Member of the World Federation of the Deaf: Kaisa Alanne - Member of the European Disability Forum Executive Committee: Humberto Insolera - President of the European Forum of Sign Language Interpreters: Ivana Bucko - President of the European Network of Sign Language Teachers: Luigi Lerose - President of the European Union of the Deaf Youth: Dennis Hoogeveen - General Secretary of the European Deaf Sports Organisation: Philip Gerrard

Mladen Veršič, President, Slovenian Association of the Deaf and Hard of Hearing

EUD IMPACT REPORT 2019 10 EUD INITIATIVES

Workshop, Helsinki, Finland On the August 31st, the EUD Board members EUD’s structure, its members, as well as its and staff gave a seminar in the ‘Light House’ in vision for achieving equality in public and Helsinki where the Finnish Association of the private life for deaf sign language users. Deaf was established in order to introduce In doing so, we were able to showcase our EUD’s work to the Finnish Deaf community. work from 2018 and to explain EUD’s history EUD’s interactive presentation explained in-depth.

The audience was given the opportunity to ask questions, with the questions varying from inquiries about sign language interpretation services, alongside legislation, and education. The board members were able to respond to the questions and engage in the discussions.

Dr. Liisa Kauppinen, A recipient of United Nations Human Rights Award

Seminar, Louvain-la-Neuve, Belgium On the 2nd of December, Markku Jokinen, president as well as stressing the importance President of EUD, traveled to Louvain-la- of representing the deaf community Neuve to give a lecture at a conference which within international institutions. Adequate took place on the premises of the Université representation also requires that the Catholique de Louvain (UCLouvain). This resulting relationship dynamic between a event, the “Art of Tandem,” was organized deaf person and an interpreter works—hence by UCLouvain in collaboration with EUD to the importance of collaboration between mark the first graduation of master degree’s deaf people and sign language interpreters. students in the field of translation and During this event, Ms. Hulin and Ms. Gerday interpretation of sign language. unveiled the background of the master’s degree in interpretation as well as student During this event, President Jokinen testimonials of their academic background presented his professional background in interpretation and translation. The event and the strategies put in place to preserve ended with a question and answer session, the position he currently holds as EUD’s followed by a toast to friendship.

EUD believes it is important to fulfill its missions at the European level while not forgetting to make itself available at all levels in order to support local and regional initiatives. EUD hopes to continue its work of bringing the sign language community together across Europe.

Dr. Markku Jokinen, EUD President

EUD IMPACT REPORT 2019 11

From the 4th to the 7th of July, EUD Executive festival’s visitors had an opportunity to find out FESTIVAL CLIN D’OEIL, Director, Mark Wheatley and EUD Board more about EUD’s work. During the opening REIMS, Member, Sofia Isari participated in the festival ceremony, Sofia Isari gave a presentation on of Clin d’Oeil in Reims, France. We had a EUD’s vision. We were honored to participate stall during the exhibition which gathered at this festival. thousands of deaf attendees. At the stall

From left to right, Mark Wheatley, EUD Executive Director and Sofia Isari, EUD Board Member

Lolo Danielsson continued with her with various NADs about the possibility of GENDER EQUALITY responsibilities in the Gender Equality Group. hosting the 2nd European Deaf Women’s She followed up with the Valencia Declaration Conference. Lolo regularly briefed the board and ensured that it was distributed to all about the progress of the Gender Equality NADs. Additionally, she focused on dealing Working Group.

Declaration of Valencia signed during the first Deaf Women Forum in 2018.

EUD IMPACT REPORT 2019 12 EUD INITIATIVES

ICT 1st European Congress Europe Deaf Tech in Madrid On the 15th of June 2019, EUD Board The aim of the event was to discuss the role Member, Daniel Büter, who is responsible of new technologies and the importance of for the ICT & Accessibility working group at innovation and accessibility. EUD, represented EUD at the first European Daniel Büter gave a presentation about EUD’s Congress Europe Deaf Tech in Madrid, work on ensuring accessibility of ICTs. As which was organised by Comunicados and part of the presentation, Mr Büter presented Techinnapp. Insign project, that was funded by the European Commission for 12 months in 2012 and the role of the UN CRPD while improving accessibility.

Daniel Büter, EUD Board Member

Regional Forum for Europe on “Accessible Europe: ICT 4 ALL” Mark Wheatley attended the conference on Commission within the Framework of the ITU Accessible Europe: ICT for ALL - ICT Accessibility: Regional Initiative for Europe on Accessibility, The Key to Inclusive Communications at St Affordability, and Skills Development for All Julian’s, Malta. It was organised by the Regional to Ensure Digital and Sustainable Forum Organized Jointly by ITU and European Development.

EUD IMPACT REPORT 2019 13

Dr. Gergely Tapolczai took the opportunity statutes must conform to the new legislation DEAF LAWYERS to review the statutes and internal rules by 2021. Gergely prepared the proposed regarding deaf lawyers. As the Belgian amendments for the General Assembly which government announced new legislation will be held in 2020. concerning the registration of NGOs, all

The DESIGNS project (Deaf Employment for experience higher rates of poverty, social DESIGNS PROJECT Sign Language Users in the EU) has been exclusion and employment. proposed by the applicant, Interesource Group (Ireland) Limited which has successfully Factors such as leaving school without having promoted 12 EU projects and has been a completed or possessing any examinations or partner in 5. DESIGNS builds on the former qualifications, alongside inadequate support SIGNALL project which developed practical for Irish Sign Language, has resulted in a training resources for employers to heighten worrying picture wherein 80% of the Deaf their awareness of the Deaf community, sign adults in Ireland have literacy problems language and working in interpreted settings. compared to 25% of the population as a whole (Irish Deaf Society, 2007). Furthermore, in Furthermore, there is a direct link between Ireland, research and data on early education, attainment of professional is underreported and inaccurate; in particular, and/or educational qualifications, and “deafness and ” is often used for advancement into the labour market reporting data, and sign language users who and social inclusion. Apart from financial are Deaf are under-researched. The World autonomy, work and paid employment serve Federation of the Deaf also reports that the to develop a sense of belonging with positive figures on (un)employment are inaccurate mental health benefits and identification and difficult to quantify (Hauland, H &C. with the wider community at-large (National Allen, (2009), Deaf People and Human Rights, Disability Authority, 2005). However, Deaf WFD). people in Ireland, as well as throughout the world, continue to face barriers and obstacles when it comes to education, employment and access to services such in healthcare, and legal and social welfare settings. In a report on poverty in the Deaf community, Conama and Grehan (2001) stated that Deaf people

Design Project conference, Brussels, Belgium

The Project Meeting in Brussels, Belgium The DESIGNS consortium is functionally from this project. The partners of this project composed of partners with diverse and held six consortium meetings starting with complementary expertise in order to the first meeting in Dublin, Ireland, on 12th maximize the expected academic knowledge January 2017, and concluding with the last associated with Education and Training, meeting and only meeting held in 2019, in Employment, Sign Language Interpreting and Brussels, Belgium on 8 April 2019. Deaf Community Advocacy which benefits

EUD IMPACT REPORT 2019 14 EUD INITIATIVES

Conference in Brussels, Belgium On the 9th of April, an event on the an unavailability of interpreters, the stress Employment of Sign Language Users in involved in finding interpreters, or the lack Europe was held in the European Parliament of professionally qualified interpreters, all in Brussels which was hosted by Helga of which can lead to miscommunications or Stevens, MEP. This represented an opportunity misrepresentations. to present the last stage of the DESIGNS project, with the overall aim of the project During the interviews, the students having been to develop Vocational Education highlighted that it is very complicated to and Training (VET) and Continual Professional obtain employment following their studies Development training (CPD). due to several factors. For example, while in education, some deaf people are only Mark Wheatley, Executive Director of the surrounded by deaf peers which leads to European Union of the Deaf (EUD), opened feelings of insecurity when it comes to the session by introducing the speakers how they should behave among mostly or and mentioning that one of EUD’s goals is exclusively hearing work colleagues later in to ensure that the barriers and obstacles employment. Additionally, numerous barriers faced by the deaf community while seeking remain due to the tedious and bureaucratic employment and even after having obtained nature of the organisation of work assistance it are removed. EUD closely follows the (such as interpreters), which leads to developments at the EU level and the progress difficulties while seeking support at their new made in terms of improving accessibility for workplace. deaf people in employment. Following this lecture, Adina Braha, Prof. Jemina Napier, Director of the Centre for Government Affairs Manager at Microsoft, Translation & Interpreting Studies in Scotland presented the measures that Microsoft is (CTISS) at Heriot-Watt University (HWU), and taking to ensure accessibility for people Prof Lorraine Neeson, Associate Dean of with disabilities, and especially deaf people, Research at Trinity College Dublin, presented in the workplace via assistive technologies. that, in the setting of a job interview where She also described Microsoft’s recruitment a deaf person is being interviewed through programme which ensures that the focus an interpreter, it is difficult for qualified of their recruitment on the potential of the interpreters to have advanced knowledge of interviewee and not on their disabilities. a particular field. Even if the interpreters have Microsoft aims to ensure the accessibility targeted knowledge, the little-to-no prior of the workspace to maximise employees’ material preparation delivered for selection productivity. interviews makes their interpretative work less effective. Regarding the organisational Marinella Salami, Executive Director of the culture, if the interpreter has a lack of European Forum of Sign Language Interpreters understanding of the cultural norms of the (EFSLI), explained the need for the continuous company, such as about how to address training of sign language interpreters who a manager for example, it can impact the could work with deaf people while they are recruiters’ perception of the deaf candidate. seeking employment and or during it. Dr. Audrey Cameron, Research Associate CTISS This was the final public event before the at HWU, and Chris Peters, researcher at the end of this Erasmus+ project funded by the Humboldt University of Berlin, shared their European Commission. EUD, as a partner, experiences with interviewing deaf students plans to disseminate the outcome of the about their studies and the difficulties they project to ensure a greater participation of encountered during job interviews, such as deaf sign language users in employment.

EUD IMPACT REPORT 2019 15

EUD is a partner of the new four-year-long independence and autonomy of older SHAPES PROJECT H2020 project called Smart and Healthy individuals, while enhancing the long-term Ageing Promoting Empowering Systems sustainability of health and care systems in (SHAPES). It aims to create the first European Europe. open ecosystem enabling the large-scale deployment of a broad range of digital SHAPES’s multidisciplinary approach to solutions for supporting and extending large-scale piloting is reflected across healthy and conditions seven themes that, together, provide a clear and lifestyles for older individuals who are understanding of the reality of European facing permanently or temporarily reduced health and care systems and enable the functionality and capabilities. validation of cost-efficient, interoperable and reliable innovations capable of effectively SHAPES will develop an interoperable supporting the healthy and independent platform integrating smart digital solutions to lifestyles of older individuals within and collect and analyse older individuals’ health, outside the home. environmental and lifestyle information, identify their needs, and provide personalised By constructing an ecosystem attractive solutions that uphold the individuals’ data to European industry and policy-makers, protection and trust. SHAPES develops value-based business models to open and scale-up the market for SHAPES large-scale piloting campaign AHA-focused digital solutions and provides engages +2k older individuals at 15 pilot key recommendations for the far-reaching sites in 10 EU Member States, including 6 deployment of innovative digital health EIP on AHA Reference Sites, and involves and care solutions and services supporting hundreds of key stakeholders (including deaf and extending the healthy and independent and deafblind people) in order to bring forth lifestyles of older populations in Europe. solutions to improve the health, wellbeing,

SHAPES Consortium meeting, Maynooth, Ireland

Consortium meeting, Maynooth, Ireland The kickoff meeting took place at Maynooth alongside highlighting the responsibilities University in Ireland over November 11th of the project for EUD. He emphasised that – 13th, 2019. Mark Wheatley attended the deaf elderly people face a high risk of social meeting and gave a presentation about exclusion, and therefore EUD’s involvement the barriers that elderly deaf people face, in the project is crucial.

EUD IMPACT REPORT 2019 16 EUD INITIATIVES

MEDIA For a number of years now, EUD has been what we are working towards. EUD’s approach determined to produce high quality and fully to disseminating information generally takes accessible information to its members and the form of International Sign with selected other interested parties. feature(s) like: English subtitles; and/or a voiceover in English; and/or a transcription of This is done to increase EUD`s visibility for video in English text on the same page as the two reasons—firstly, our campaigns to raise video. This format for dissemination is aimed our profile and become more well-known at being fully accessible for all, bringing to life among political stakeholders, and secondly, the disability movement’s slogan “Nothing for the wider deaf community to be aware of about us, without us.”

WEBSITE The EUD website that was launched in 2015, a way to allow deaf citizens to contact EUD allows us to release a variety of catalogued with video messages in sign language. The information and enables us to be more website’s new design already attracted more innovative with regards to accessibility, people after its decline in the past few years providing press statements in International due the emerging social media channels Sign and English. Furthermore, more video- within the EUD. friendly features were added, for instance

Statistics The website, eud.eu, attracted 159,728 users in 2019 who clicked on 300,403 pages in total. The most popular months were April and May, during the European Elections. Now, focusing on the video statistics, there were 39,723 hits on the videos embedded on our website in 2019.

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EUD developed a toolkit that explains in CRPD is important for the deaf community, UN CRPD great detail the UN CRPD committee’s including how it is monitored, how the TOOLKIT work and its country review processes. This state parties to the Convention report to toolkit provides an in-depth overview of the the UN CRPD committee, and how national United Nation’s Convention of the Rights of associations of the deaf can become active Persons with Disabilities (the UN CRPD or players in the process. the Convention), and explains why is the UN

EUD’s CRPD toolkit for the National Associations of the Deaf

EUD IMPACT REPORT 2019 18 EUD INITIATIVES

TOOLKIT ON The toolkit for transposition of the Audiovisual relation to the accessibility of audiovisual TRANSPOSITION Media Services (AVMS) Directive was made media services for persons with disabilities, available in International Sign on EUD’s and the prevention of discrimination on website. This toolkit was developed by the the grounds of disability in commercial European Disability Forum in collaboration audiovisual services. The revised Directive with its member organisations including EUD. was adopted in November 2018 and represents an opportunity for EU countries The AVMS directive creates an EU-level to advance media accessibility and consumer framework to coordinate national legislation protection against discrimination and hate on all audiovisual media, including both speech. traditional TV broadcasts and on-demand services (such as Netflix, Amazon Video, and The EU member states must transpose Now TV for example). It further sets out the the Directive into national law by 19th requirements concerning aspects such as September 2020, and communicate the prohibition of hate speech and discrimination text of those provisions to the European based on disability and other grounds, Commission. By “transposing” this directive, commercial information on TV programs, the we mean reforming or adopting national laws protection of minors, the independence of that ensure the countries obey the terms of the national regulatory bodies that monitor the Directive. This toolkit aims to provide audiovisual services, and the promotion of disability advocates with tools and proposals European audiovisual productions. to push for strong national legislation and adequate implementation in order to This new text is the revised version of a strengthen the right to access audiovisual Directive first adopted in 2010. The previous media services that do not discriminate version had a soft approach to media against us. accessibility, so we strongly supported this revision, which has led to improvements in The toolkit is available on EUD’s website in the training section.

EUD’s Audiovisual Media Services Directive - Toolkit for transposition

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In 2019, the European elections took place, in 24 languages, that should have been EUROPEAN ELECTION 2019 which EUD worked extensively on before and disseminated among the candidates and during. political parties in order to ensure that they considered and could guarantee the rights of EUD produced materials that the National people with disabilities during the European Associations of the Deaf or any other Parliament elections. It can be downloaded interested parties could use for their lobbying as a Word document and can be easily edited. efforts during the 2019 European elections. In this section you can also find materials On EUD’s website you can find: produced by the European Disability Forum - Advocacy materials (EDF) including EDF’s petition and manifesto - Information on the European elections on the EU elections. - EUD’s tips for the political campaigning which took place during the 2019 European Information in the section for each language elections, and which explained how all of the provided information on the European materials could be used on the national level. elections, including information on the This Time I’m Voting campaign, including The advocacy materials section contains information on the lead candidates, and some materials that NADs should have used while infographics and statistics. We made sure it is campaigning for more accessibility during the available in your language. Yes, each one of EU elections. EUD had written a statement, the 24 official EU languages!

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SOCIAL MEDIA Although the EUD website is valuable and time. EUD has grown to one of the most visible beneficial tool in connecting with Deaf people organisations at European level, surpassing many in Europe and around the world, EUD uses other equally sized associations in geographic social media to disseminate content in real and quantitative reach.

Highlights Facebook

EUD - The European Union of the Deaf Persons The official EUD Facebook page has attracted December 9, 2019 55,937 Like EUD - The European Union of the Deaf many more fans this year; in fact we have Mark Wheatley was one of the presenters during the @ITU Accessibility Forum in Malta. He highlighted that direct access in #SignLanguage for #deaf people via video relay services is increased our ‘likes’ from 54,800 to 55.800. necessary and text-only solutions are not enough. #AccessibleEurope19 #ICT4All The information that is being disseminated on our website is also shared on our Facebook EUD - The European Union of the Deaf September 18, 2019 page, along with additional photo albums EUD welcomes its new intern, Sara Palmeira from Portugal. of past events. The page is targeted at the She will work for EUD for the next three months and will be assisting us in our communication, media and administration general public and its exposure illustrates work at our headquarters in Brussels. She will play a huge role in preparing for our upcoming toolkits! Welcome, Sara! our lobbying work in addition to the various events and subjects that EUD addresses. We attract an average of 60,000 fans to our Facebook page every day.

Facebook Infographic December 31, 2019 55,800 166 LIKES POSTS

Twitter Twitter enables the daily activities of EUD’s board members and staff to be shared with the multitudes immediately. It also serves as an ideal platform for sharing information regarding special events, including the annual General Assembly in Bucharest and board meetings when they occur. We anticipate this area of our work will connect with a much larger audience in time, as during 2019 we already made 202 tweets for our 5200 followers.

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Instagram The social media platform, Instagram, was first introduced in September 2013 and continues to represent a distinctive manner for capturing political life through an artistic lens. This platform represents a small, but growing niche audience for us. Back in 2016, we had 950 followers, but this year we now have 2,300 followers.

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INTERNSHIP PROGRAMME EUD is one of the few European-level as well as their knowledge of European policy, organisations that offer a regular remunerated media production and administrative work. internship programme. It is also the only EUD’s interns have come from many different internship that provides a full signing EU countries to support and inspire the local environment, enabling young sign language deaf community and younger deaf people. users to improve their International Sign skills

Cezar Dragulin Cezar Dragulin from Rome, have completed his internship placement from March 2019 to May 2019. He have assisted with the General Assembly in Bucharest, Romania and contributed a lot with the Communication and Media officer throughout the internship placement.

Sara Palmeira Sara Palmeira from Porto, Portugal have completed her internship placement from September 2019 to December 2019. She have assisted with the administration and communicated a lot with the Executive Director throughout the internship placement.

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12th Session of the Conference UN CRPD of States Parties (COSP) to the Convention on the Rights of Persons with Disabilities at the United Nations From the 11th to 13th of June 2019, EUD standard of health; and (iii) the Inclusion of participated in the 12th Session of the persons with disabilities in society through Conference of States Parties (COSP) to the participation in cultural life, recreation, Convention on the Rights of Persons with leisure and sports. During the roundtable Disabilities (UN CRPD) at the United Nations discussion on technology, digitalisation and Headquarters in New York. Prior to COSP, EUD ICTs, EUD made an intervention that was had also attended the Civil Society Forum based on the EUD position paper adopted organised by the International Disability in 2018 on the Accessibility of Information Alliance. and Communication for the Deaf. EUD highlighted that state parties to the UN CRPD The Civil Society Forum was an opportunity must ensure that during the development of to highlight current issues relevant to the ICTs, developers include features important disability movement and realisation of the UN to deaf users, such as customised vibration CRPD, that had not specifically been addressed and visual alerts, sign language, real time during the 12th COSP session. Additional room captioning, translation and other options, for civil society was provided in order for it to and manufacturers and developers should make its own contributions. EUD delivered a from the very early stages and throughout statement during an interactive, participatory the entire process of developing accessible dialogue on the protection of the rights of ICTs, directly collaborate with deaf experts children with disabilities to live with their and/or experts on accessibility for deaf family, through deinstitutionalized, inclusive persons, that are recommended by an education, and access to health and adequate organisation representing deaf persons. EUD medical services. EUD highlighted that deaf also highlighted the importance of applying children have the right to live with their family, , and making emergency which ensures early access to sign language communications, audio-visual media services and the acquisition thereof, including and new technologies fully accessible for the creating a sign language environment which deaf users. understands and educates about deaf culture and deaf identity. Moreover, EUD highlighted During COSP, EUD met with the Disability Data that the implementation of Article 24 of the Advocacy Working Group of the Stakeholder UN CRPD as well as SDG 4 and the creation of Group of Persons with Disabilities and an inclusive general education system for all discussed future prospects for collaboration. must not exclude deaf learners from quality EUD also had the chance to meet the newly education, social inclusion and language elected UN CRPD Committee members and acquisition, and as such must allow them to discuss how to establish a relationship and fully participate in order thrive academically, long-term partnerships with them. At the event linguistically and socially. organised by UN Women, EUD also witnessed the signing of the Beijing + 25 declaration. An overarching theme of the 12th Session of the Conference of States Parties (COSP) to Additionally, EUD attended numerous side the Convention on the Rights of Persons with events organised by various organisations that Disabilities was ensuring the inclusion of focused on inclusive education, empowerment persons with disabilities in a changing world through employment, data collection, political through the implementation of the UN CRPD. participation and others. COSP to UN CRPD Three sub-themes for the three roundtable was an incredible experience where EUD discussions were: (i) Technology, digitalization made sure that the European deaf perspective and ICTs for the empowerment and inclusion was visible and considered during the general of persons with disabilities; (ii) Social inclusion debates on the implementation of the UN and the right to the highest attainable CRPD by the state parties to the Convention.

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Celebration of the 2nd International Days of Sign Languages On the 19th of September, EUD took part in Rights for all,” moderated by Her Excellency, a series of events organised by the United Maria Nazareth Farani Azevêdo, ambassador Nations Offices at Geneva to celebrate the and permanent representative of Brazil with International Day of Sign Languages and raise the valuable presence of Ms. Catalina Devandas awareness of their importance. Aguilar, Special Rapporteur on the rights of persons with disabilities, Dmitry Rebrov, With the support of the permanent missions Expert at the United Nations Committee on of Bangladesh, Brazil, Finland, and France, the Rights of Persons with Disabilities (CRPD), alongside the Swiss Federation of the Deaf and Joseph Murray, President of the World and the World Federation of the Deaf, several Association of the Deaf. activities were held at the Palais des Nations to highlight sign languages and their value. As the event also coincided with the CRPD Of particular interest were the Pop-up Sign session, members of the CRPD also participated Language Café and the guided tour of the in the interactive dialogue to exchange views Palais des Nations in sign language. and discuss the rights of deaf people.

In the context of this day, EUD took the This remarkable day was concluded with opportunity to follow, participate, and engage a theatrical performance in sign language in a high level panel entitled “Sign Language revolving around the theme “To Sign is Human,” and acted out by deaf students.

From left to right, Mark Wheatley, EUD Executive Director and Frankie Picron, Policy Assistant

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The European Accessibility Act: final EU POLICY steps on the European level INITIATIVES AND EVENTS – first steps on the national level In 2019, the European Accessibility Act (EAA) accessibility to 112 for the deaf community was finally adopted and published in all is vital. Moreover, the EAA supports the public EU languages in the Official Journal of the procurement of accessible products and EU. Subsequently, the transposition period services, and public authorities will be obliged on the national level started. Furthermore, to only procure accessible products, services the European Accessibility Act establishes and facilities. common European accessibility requirements for numerous digital products and services but EUD informed the National Associations of the excludes the obligations to make transport, Deaf (NADs) that the European Accessibility buildings and household appliances more Act is now published in the Official Journal of accessible for people with disabilities. the EU, so NADs can start their advocacy on the national level during the transposition period Importantly for the deaf community–the EAA of the EAA into national laws. now obliges Member States to make the single European emergency number, 112, accessible EUD has remained in close contact with to everyone in the EU. Common accessibility NADs and will equip them with tools to requirements in the EAA dictate how to make sure that the NADs can convince their make 112 accessible for everyone across the national governments to be ambitious when EU, including deaf persons across the EU. transposing and implementing the EAA into This is a milestone achievement, and EUD national legislation so it can bring about is particularly excited to see EUD advocacy meaningful change for deaf persons across the efforts materialising in concrete action on EU. the European level. It was one of the main advocacy priorities for EUD since ensuring

Mark Wheatley, EUD Executive Director

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The revised Audio-Visual Media Services Directive (AVMSD) In 2019, EUD focused on supporting its Regarding emergency information which is members during the transposition period made available to the public through audio- of the recently revised Audio-Visual Media visual media services, the revised AVMSD Services Directive (AVMSD). obliges Member States to ensure that such information is provided in a manner which is The revised AVMSD entered into force on accessible to persons with disabilities. the 20th day following its publication in the Official Journal of the EU and since then, the Moreover, the revised AVMSD dictates that Member States of the EU have 21 months to Member States must ensure that media transpose it into national legislation. service providers report on a regular basis to the national regulatory authorities or bodies The revised AVMSD significantly improved on the implementation of the measures that Article 7 on the accessibility of audio-visual make their services more accessible to persons media services. The AVMS directive of 2010 with disabilities. Member States will also have only called upon Member States to encourage to report to the European Commission on the media service providers in their country to implementation of such measures by the ensure that their services were gradually 19th of December 2022 and then every three made accessible to persons who are deaf, years thereafter. Furthermore, Member States hard of hearing, blind or partially sighted, are obliged to designate a single accessible but it did not create any obligations. The contact point to provide information and to revised AVMSD sets out the legal obligation receive complaints from viewers regarding for Member States to ensure that public and accessibility. commercial TV channels, as well as video on-demand platforms (such as HBO and The revised AVMSD entered into force in Netflix), make their services continuously and December 2018 and since then, Member progressively more accessible to persons with States of the EU have 21 months to transpose it disabilities through proportionate measures. into national legislation. EUD made the toolkit The recital of the revised AVMSD dictates on transposition of this Directive available in that the means to achieve the accessibility of International Sign for its members. Also, EUD audio-visual media services include, but are remains available for advice and support to not limited to, the provision of sign language, NADs with regards to advocacy work on the subtitling for the deaf and hard of hearing, national level for a strong transposition of the spoken subtitles, and audio description. revised AVMSD into national law.

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The recast European Electronic Communications Code The recast European Electronic legislation by 21 December 2020. Throughout Communications Code was officially adopted the year, EUD remained at the disposal of all in December 2018. This was the final stage NADs to provide advice and support with of the legislative procedure on the European regards to national advocacy work for a level. Now, Member States have to transpose strong transposition of the directive into and implement this law into their national national law.

The proposal for the new Multi-Annual Financial Framework 2021-2027 (MFF) In May 2018, the European Commission Throughout its advocacy campaign, EUD adopted a proposal for the next multi-annual highlights the fact that the EU and all of its financial framework (MFF) for the period member states have ratified the UN CRPD, 2021-2027. EUD, in collaboration with the therefore the EU budget should be a tool European Disability Forum, started following to implement the UN CRPD and should not the developments regarding the proposal for support actions which are in conflict with it. the new Common Provisions Regulation, the new proposal for the European Social Fund Plus, the new proposal for the Justice Rights and Values fund and the new proposal for the Erasmus + programme.

1. The Common Provisions 2. The European Social Regulation (CPR) Fund+ (ESF+) EUD supported EDF in its advocacy work for Regarding the new proposal for ESF+, EUD the new Common Provisions Regulation (CPR) agreed with and supported EDF’s priorities, and fought for it to contain strong references which are to maintain and strengthen to the UN CRPD. This is to ensure that the new references to the UN CRPD as well as having CPR ensures accessibility for persons with a clear mention of the inclusion of persons disabilities and make accessibility a criterion with disabilities in actions, targeting the for selection of operations. Moreover, for EUD most marginalised groups. The funds must it is essential to ensure that the CPR contains not be used for inaccessible infrastructure, strong partnership principle within the products or services. EUD gave comments Regulation. EUD provided EDF with input for and recommendations to EDF in their first their first assessment of the proposal, including assessment of the proposal. In particular, EUD recommendations on how to improve it. highlighted the fact that funds should not only be earmarked for capacity-building of civil society organisations, but also for accessibility and reasonable accommodation for persons with disabilities and their organisations to ensure equal participation.

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The European Pillar of Social Rights and the European Semester EUD regularly attends meetings and strategic on the Country Reports, which are part of the dialogues organised by the European European Semester and analyse the overall Commission that focus on the implementation situation of economic policies as well as the of the European Pillar of Social Rights and the economic and social hurdles of the Member European Semester. States. In July EUD participated in the Strategic Dialogue meeting that focused on the Country In March, EUD attended the Strategic Dialogue Specific Recommendations for the EU Member meeting on the European Semester organised States. by the Directorate-General for Employment, Social Affairs and Inclusion (DG EMPL) of the EUD encourages National Associations of European Commission (EC). The event focused the Deaf (NADs) to become involved during the European Semester process as they can positively influence national legislation in the fields of employment, education, social care and other. EUD has developed a toolkit on European Pillar Social Rights and European Semester that is available on EUD’s website, which explains the processes in detail.

Evaluation of the European Disability Strategy 2010 – 2020 In 2019 EUD started contributing to the its members - the National Associations of the evaluation of the European Disability Deaf, and also participated in the consultation Strategy 2010 – 2020. EUD participated in itself. the consultation developed by the European Commission specifically targeted at non- Later in 2019, EUD participated in and governmental organisations (NGOs) and diseminated among members an open Public organisations of people with disabilities (DPOs). Consultation, to which individual citizens were The purpose of the consultation was to gather able to reply. EUD encouraged all disability feedback from organisations representing rights advocates to answer the survey and people with disabilities on the implementation evaluate the European Disability Strategy of the European Disability Strategy 2010 – 2010 – 2020 and to deliver the future European 2020. EUD disseminated a consultation among Disability Strategy 2020 – 2030.

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The Sustainable Development Goals A) Regional Forum on Sustainable Development It was highlighted that disaggregated data for the United Nations Economic Commission by disability exists and is available, but it is for Europe (UN ECE) Region limited, contains gaps and doesn’t identify key issues faced by persons with disabilities. In March EUD participated in the Regional During the webinar the Washington Group Forum on Sustainable Development for (WG) Short Set of questions was presented. the United Nations Economic Commission WG Short Set of questions is designed to for Europe (UN ECE) Region in Geneva, identify (in a census or survey format) people Switzerland. Representatives from the UNECE with a disability. Presenters highlighted Member States, European Union, United that due to the complexity of disability, the Nations, intergovernmental and regional questions in the short set are not designed to organizations, private sector and NGOs measure all aspects of difficulty in functioning participated in the Forum to discuss the that people experience, but identifies people progress of SDG implementation in Europe at greater risk than the general population for region. participation restrictions due to the presence of difficulties in six core functional domains, EUD is a member of the UN ECE Constituency if appropriate accommodations are not made. of Persons with Disabilities, which is During the webinar presenters highlighted coordinated by the European Disability that the Washington Group (WG) Short Set Forum. UN ECE Constituency of Persons with of questions can be a feasible tool of data Disabilities aims at ensuring that the views of collection. persons with disabilities are included in the SDGs work of the UN ECE. EUD explores options how to use the Washington Group (WG) Short Set of The Forum was an excellent opportunity for questions on the national level as a tool EUD and all relevant stakeholders to review to collect disaggregated data by disability progress, and exchange with best practices type. Disaggregating data by disability type towards the implementation of the 2030 is extremely important as it would allow Agenda. Throughout the discussions it was to measure the levels of implementation emphasized that it is essential to leave no one of the United Nations Convention on behind and to ensure that societies do not the Rights of Persons with Disabilities, suffer from inequalities and exclusion while Sustainable Development Goals and other implementing SDGs. commitments to certain groups of people with different disabilities. Available quality B) Data collection and Washington Group data disaggregated by disability type would (WG) Short Set of questions also make sure that resources are spent on the areas in which actions are needed. In order to track the implementatation of SDGs data collection is the key. In March, Stakeholder Group of Persons with Disabilities for Sustainable Development, the focal point for UNDESA, ECOSOC and the GA for all UN Sustainable Development policies, hosted a webinar which focused on country experiences collecting disability data.

From left to right, Serafine Duss, former EUD Intern, Martyna Balčiūnaitė, EUD policy officer, Annika De Maeyer, former EUD Policy Officer and Romy O’Callagahan, former EUD in-house interpreter.

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Do not take my spot! – The EU Disability Parking Card On the 18th of March, EUD attended the event the use of the card of a deceased person, or on the EU Disability Parking Card hosted by false use and identity theft through duplicating the Disability Intergroup of the European the card to name but a few. Some Member Parliament in order to discuss the main issues States are trying to combat such incidents of concerning the EU Disability Parking Card, such fraud—for example, Belgian authorities use as the different means by which the parking a mobile application called “handy2Park”, card would be issued as well as the fraudulent which allows the police to better control the use and blocking of parking spaces. cards and confiscate them if necessary.

Adam Kosa, Member of the European Afterwards, participants had the opportunity Parliament (MEP), opened the event by stating to exchange their thoughts and views. Antoine that the confusion regarding the use of parking Fobe, Head of Campaigning at the European cards stems from administrative problems. Blind Union, considered that fraud is a problem Parking cards are issued not only to people that crosses borders and should be addressed with reduced mobility, but also to other at the European level. Mark Wheatley, people with disabilities. He also noted that the Executive Director of the European Union of different terminologies and legal bases within the Deaf, noted the problems that can arise the EU have led to this continued confusion. from applications such as handy2park if we do The objective would thus be to harmonise and not also consider privacy and data protection. minimise such differences. Marie Denninghaus, Policy Coordinator at the European Disability Forum (EDF), advocated Emmanuelle Grange, Head of Unit for Equality for the need to harmonise the issuing rules and Inclusion at the Directorate-General for into a form which would be binding among Employment, Social Affairs, and Inclusion Member States. She also recommended the at the European Commission, presented an establishment of a comprehensive database overview on the implementation and use of summarising the rules of each Member State the Disability Parking Card in the EU Member for the use of disabled parking spaces for States. Although the card model is mutually better understanding by card holders. recognised by all Member States, she stressed that differences persist. The issuing system In her closing remarks, Helga Stevens, MEP, is centralised in some Member States, while made the link between the EU disability other Member States have decentralised card and the EU disability parking card but systems. The differences in terms of eligibility also pointed out that the two should not be were also noted. The question of fraudulent integrated because not everyone has both use was also discussed—such as the use of the cards, especially since the parking card must card by a person to whom it does not belong, remain reserved for those who truly need it.

Do not take my spot! – The EU Disability Parking Card event, Brussels, Belgium

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Disability Intergroup: Political Participation Seminar On the 30th of January, the Disability presented the report entitled “Persons Intergroup of the European Parliament with Disabilities and Ensuring their Right to organised a seminar on political participation Participate in Political and Public Life” and for persons with disabilities. enumerated the common barriers to political participation for voters with disabilities, such Ádám Kósa, Member of European Parliament as legal and administrative barriers, a lack (MEP), opened the event by stating the of accessibility, limited support and funding importance of ensuring that the 2019 for participation, outdated paternalistic European Parliament (EP) elections were approaches, and prevailing social stereotypes. accessible to all voters. In this regard, the Afterwards, Martha Sticking, researcher at the election procedure itself and the access to EU Agency for Fundamental Rights, presented information and communication prior to and an update of the 2014 report entitled “The following the election must have been made Right to Political Participation of Persons with fully accessible to all. Disabilities” with key indicators for assessing the political participation of persons with Rodolfo Cattani, Executive Committee member disabilities in the EU. Adolfo Barroso was the of the European Disability Forum (EDF), took the final presenter on the panel, who explained floor and recalled the duties of the European his experience as a European citizen and the Union and its Member States to respect the obstacles he faced in exercising his right to Convention on the Rights of Persons with vote. Disabilities for rights relating to political participation and eliminate any legal and MEP Marek Plura moderated the second panel, administrative barrier to exercising these during which Stephen Clark, Director for the rights. He thanked the Disability Intergroup EP Liaison Offices, presented the campaign for the work that had been undertaken “This Time I’m Voting.” Pat Clarke, EDF vice- and stressed the importance of having an president, presented EDF’s European election ambitious Disability Intergroup for the next campaigns which comprised of: guidelines mandate. for accessible political campaigns, the “European Elections for All” petition and the MEP Helga Stevens moderated the first panel, #disabilityvote campaign. during which Krzysztof Pater of the European Economic and Social Committee presented MEP Marek Plura gave the closing words by a report concerning the actual right to vote expressing his wish that the citizens of the for persons with disabilities in Europe. European Union are the winners in the then- Associate Democratic Governance Officer forthcoming elections by not leaving anyone Anete Erdmane of the Office for Democratic behind. Institutions and Human Rights (ODIHR),

Disability Intergroup: Political Participation Seminar, Brussels, Belgium

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Training by the European Academy of Law (ERA) on Disability and Non-Discrimination in the European Union, in Trier, On the 6th and 7th of May, EUD took part Subsequently, there was a discussion on how in a training seminar for national civil to fight discrimination against people with servants and the staff of non-governmental disabilities and how to remove both the legal organisations (NGOs), disabled persons and practical barriers to exercising the right organisations (DPOs) and equality bodies. to political participation for those people This training session was provided by the with disabilities. Also addressed was the European Academy of Law (ERA) on Disability topic of what are the specific needs of people and Non-Discrimination in the European with disabilities among vulnerable groups Union, and took place in Trier, Germany. at the national level. These needs included violence against women with disabilities and Key aspects of the Convention on the Rights the right to inclusive education for children of Persons with Disabilities (UN CRPD), with disabilities. such as its purpose, general principles, and review process, were addressed before In addition, the availability and access to the exploring the relationship between the UN European Union’s financial instruments while CRPD and the legislation of the European observing compliance with the principles of Union. In particular, the seminar explored the Convention was discussed. This session the influence that the UN CRPD has had on represented opportunity for the participants the development of the Court of Justice of to exchange good practices on how to ensure the European Union’s interpretation of EU that public funds are used properly for people legislation regarding the concept of disability with disabilities. and reasonable accommodation. This training was useful for EUD’s Policy Assistant as it sharpened and expanded their knowledge on human rights which will be used in EUD’s daily work and activities.

Frankie Picron, EUD Policy Assistant

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Following the launch of StorySign last applications. Then, EUD and Huawei evaluated HUAWEI December, Huawei, a company that is a global each application and provided feedback to provider of information and communications all NADs, before then approving the projects technologies (ICT) and smart devices, made and distributing the funding to the NADs. a generous donation to EUD. This money was EUD and Huawei will follow up on all of the dedicated to funding projects across the EU projects, and hopefully during 2021 there that aim at increasing the literacy of deaf will be a conference in Brussels for the NADs children. to showcase the results of their projects. EUD is very grateful to Huawei for making this EUD assumed the responsibility of the project happen and also most importantly, giving deaf management of Huawei’s funds. In doing children opportunities to read and sign with so, EUD developed an online application their parents. process for all NADs to submit their project

DigitALL 2019 Chinese New Year Reception On the 7th of February, Huawei, provider of EUD Executive Director, Mark Wheatley, took information and communications technology the floor to present the positive impact of (ICT), hosted their annual Chinese New Year the StorySign app for deaf children. Mark reception in Brussels, during which a panel Wheatley highlighted that the app plays a discussion entitled DigitALL took place. large role in helping parents to read stories to EUD Executive Director Mark Wheatley was their deaf children. Furthermore, it does not invited as a keynote speaker to present an only help deaf children learn how to read and app developed by Huawei - StorySign. to enjoy it, but also helps parents learn how to sign. The panel discussion was opened by Abraham Liu, Chief Representative of Huawei to the EU The event was closed with a performance Institutions, who spoke about the investments by the Cabra Deaf Choir from Ireland. EUD is made by Huawei over the last 18 years in the excited to see that Huawei is committed to field of technology, research & development, continuing development of StorySign, an app as well as Huawei’s commitment to creating a holds a great deal of potential. more-inclusive digital world.

Walter Ji, President of Huawei’s Consumer Business Group, presented StorySign, a free app that runs on and translates popular children’s books into sign language. This app aims at improving the literacy skills of deaf children and is available in ten EU Member States and in eleven sign languages.

Meeting with 10 NADs, Bucharest, Romania On 17th May in Bucharest, Romania, there sign language translation. The opportunity was a side event following the seminar led by was also taken to brief NADs about the Huawei and EUD. This seminar represented an procedure involved when it came to applying excellent opportunity for the NADs to provide for funding for their projects. It was a feedback on the progress of the StorySign beneficial session for all parties involved. campaign, especially with the quality of the

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MIRCOSOFT On the 11th and 12th of April, EUD attended discover and use. Among such assistive tools, the EU Accessibility Summit hosted by PowerPoint has a presentation translator Microsoft which took place in Brussels. This as an option which allows for the display of represented an opportunity for Microsoft automatically-generated subtitles during to present the state of play regarding the a presentation, in addition to the example development of assistive technologies for of the subtitles automatically generated persons with disabilities as well as increasing for videos (Microsoft Stream) via the use of their accessibility. automatic technology.

The summit began with the welcoming Afterwards, Adina Braha-Honciuc, Government remarks by John Frank, Vice-President of Affairs Manager at Microsoft, presented EU Government Affairs at Microsoft. Then, that the development of technologies that Jessica Rafuse, Senior Program Manager for operate using Artificial Intelligence (AI) could Accessibility at Microsoft, took the floor to be underpinned by an ethical framework. She present Microsoft’s philosophy on addressing emphasised that several principles such as disability and increasing accessibility. She reliability and security must be respected, indicated that disability is perceived as an while ensuring that AI takes care of repetitive environmental obstacle during human and tasks so that decisions and accountability environmental interaction and not a personal always belong to human beings. Inclusivity health condition. The unique situations of was also mentioned since the rise of new people with disabilities assist the company technologies must not lead to new forms of with better solving accessibility problems. discrimination by excluding segments of the Therefore, Microsoft’s recruitment policy population. A reference was also made to focuses on abilities, not disabilities. Microsoft the accessibility standard (EN301549) whose aims at making the workplace fully accessible guidance is extremely helpful regarding since better accessibility at the workplace how to include accessibility in the public will help to better optimise the productivity procurement of ICT products and services. She of those workers with a disability. emphasised that the principle of accessibility should be kept in mind when governments Furthermore, Jeff Petty, Head of Windows undertake public procurements, as increased Accessibility engineering at Microsoft, accessibility has the potential to solve certain highlighted his work towards identifying current problems such as the low levels of a solution regarding how to improve employment for people with disabilities. accessibility for his team. He discussed several Additionally, it could also help to create new learning tools that few people are aware forms of completion in business which could of, such as screen readers. This is because, benefit everyone. paradoxically, accessibility options are not easy to find. Therefore, they got to work on Finally, the summit continued on the second this issue in order to make such tools easier to day during which Microsoft presented its current technologies and products such as assistive technologies. Some EUD members, including national associations of the deaf, had the opportunity to attend the summit and exchange their views with representatives at Microsoft regarding the role of AI and new technologies in increasing accessibility for the deaf.

From left to right, Cezar Dragulin, EUD Intern and Frankie Picron, EUD Policy Assistant

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EU Disability High Level Group EUROPEAN COMMISSION meetings On the 14th of May, EUD participated in an also discussed. At the end of the meeting, EU Disability High Level Group meeting, the Academic Network of Disability Experts organised by the European Commission in (ANED) gave a presentation on the disability Brussels. assessment. This presentation was given by Ms. Lisa Waddington, Maastricht University, During this meeting, representatives from ANED. Bulgaria, , Norway and provided information on the implementation On the 23rd of October, EUD participated in of the UN CRPD at the national level in their the second High Level Meeting on Disability respective countries, alongside sharing their of 2019. During the meeting, the Croatian experiences while reporting to the UN CRPD representatives presented their priorities Committee. Mark Wheatley, EUD Executive as at the time was the then-next Director, took the opportunity to ask that the (and now current) country to take over the representatives of the Member States whether Presidency of the Council of the EU in the first they will fully ensure that all organisations half of 2020. Among others, it was highlighted which represent people with disabilities, that the Croatian Presidency will focus on including national associations of the deaf, continuing discussions on the adoption of the have a meaningful and accessible way to Equal Treatment Directive, which is of high be consulted and provide input to the State importance for persons with disabilities. Party reports. Mr. Wheatley also highlighted that an accessible consultation procedure Representatives from the European with NGOs and DPOs on the national level is Commission provided an overview of key to ensuring that the perspectives from the latest developments on the recently all disability groups are reflected during adopted European Accessibility Act (EAA). the reporting cycle. Any consultation with It was emphasized that the transposition organisations representing deaf persons of the EAA had already begun and that must be available in national sign language(s) the European Commission was working and the Member States should ensure the closely with the Member States during the availability of sign language interpreters implementation and transposition period as during any public consultations. timely transposition is of high importance. Moreover, representatives from the European During the second half of the meeting, latest Commission, in particularly DG Connect, EU policy developments were presented. presented that at the moment they had The current state of play of the European been conducting conformity checks on Accessibility Act (EAA) was explained, stating the transposition of the Web Accessibility that the Act will soon be published in the Directive, as the deadline for its transposition Official Journal of the EU and subsequently its had expired in September 2018. The transposition period will start. The European European Commission also highlighted that Commission encouraged the Member States it was currently evaluating the European to work closely with representatives from Disability Strategy for 2010 - 2020. civil society and the officials at the European Commission during the transposition of the The meeting was also an excellent opportunity EAA into their national legal systems. Other to meet government representatives and important topics, such as the evaluation of the discuss country specific issues. The next High European Disability Strategy 2010 – 2020, the Level Meeting on Disability will take place in state of play of the EU Parking Card, and the the first half of 2020. state of play of the European Semester, were

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Annual Convention for Inclusive Growth 2019 and the side event organised by EUD, EDF, Inclusion Europe and EAPN On the 20th of May, EUD participated in the coordination in social security systems across 2019 Annual Convention for Inclusive Growth the EU for economically active people with which took place in Brussels and which had disabilities. been organised by the European Commission. EUD Executive Director, Mark Wheatley, gave That year, the Convention focused on the a presentation on a particularly important future of Social Europe post 2020. Recently, issue for the deaf community in the EU – the the EU and its Member States have committed lack of coordination of social security benefits to realising the principles laid out in the for deaf people while they exercise the right European Pillar of Social Rights and the 2030 to freedom of movement. In particular, it was Agenda. During the Convention, participants highlighted that currently in the EU there is discussed how the new multiannual financial no system for the coordination of the benefits framework and future policy and legislative provided to persons with disabilities who are initiatives will provide the structure to realise economically active (both workers and job- the commitments and strengthen the social seekers) that allow them to access the open and economic inclusion. labour market on an equal basis with others.

This year, EUD, together with the European At the conclusion of the event, EUD made Disability Forum, Inclusion Europe and the several recommendations for the EU. European Anti-Poverty Network, organised a Particularly, EUD highlighted that it is side event entitled “Employment and social essential to guarantee the rights of persons benefits in the context of the European with disabilities regarding free movement Semester and post-2020 EU Strategy: by ensuring the coordination and full combatting in-work poverty for persons portability of their social security benefits, with disabilities,’’ in the context of the including all kinds of disability benefits. The implementation and assessment of the European Union must take immediate action Europe 2020 Strategy, the EU Disability to ensure that all persons with disabilities Strategy 2010-2020 and the European Pillar and their families can enjoy their right to of Social Rights. This side event explored freedom of movement on an equal basis the risk of poverty and social exclusion for with others, including with regard to the persons with disabilities when undertaking portability of social security benefits, in employment and entering the workforce, a coordinated manner across its Member as well as the interplay between wages States, and establish a clearly coordinated and disability benefits, to ensure adequate system of work-related disability benefits for incomes. It also discussed the threat to economically active persons with disabilities. freedom of movement posed by a lack of Moreover, legislators in the EU must perceive people with disabilities as economically active players in the labour market and reflect this in the definitions in EU legislation of the benefits that are coordinated among member states for people with disabilities.

Annual Convention for Inclusive Growth 2019, Brussels, Belgium

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High-level conference on the Future of Work) On the 9th of April, the European Commission During the parallel sessions, perspectives (EC) organised a high-level conference on from social partners and civil society were the Future of Work which gathered together presented. Among others, Catherine Naughton, representatives from the EU Member States, Vice-President, Social Platform, highlighted the European institutions, civil society, and the commitments that the governments have academia. Participants explored the different made to the people, enshrined and listed methods for responding to the changes in the European Pillar of Social Rights, the taking place in the world of work while also European Treaties, Agenda 2030 and the taking into account the interests of workers, Sustainable Development Goals, alongside the employers, and the economy. ratified human rights conventions, such as the UN Convention on the Rights of Persons with The opening session featured several Disabilities. All of these instruments dictate political figures, including Marianne Thyssen, that it should be ensured that workers in the Commissioner for Employment, Social Affairs, EU have equal opportunities and access to the Skills, and Labour Mobility, who highlighted labour market, fair working conditions, and are that digitalisation, while representing an assured of having adequate social protection opportunity for change, can also create certain and inclusion. challenges for the future of work as well as for the economy, society, and democracy. Discussions on the future of work will She emphasised that digital policies must continue from a global point of view during succeed in addressing this change. In other the next event that will be organized by the words, legislators must ensure that employers, International Labour Organisation and which both public and private, as well as education will take place in Geneva. This event will systems, can adequately support and empower represent an opportunity to celebrate the people. centenary of the organisation.

Afterwards, the conference was divided into EUD was present at this first event since six parallel sessions. In one of the sessions, the ensuring equality in employment is part of its opportunities that the impact of digitalisation mission. It is therefore important to carefully can bring about while reducing the possible monitor and address the obstacles that risks by as much as possible were discussed. currently exist for deaf people in the future of Concretely, digitalisation can offer more work. flexibility which would improve quality of life and increase productivity, as it provides an opportunity for remote work and flexible working-time arrangements. However, the downside of the digitalisation of work is that it is harder to maintain a reasonable work-life balance and disconnect from work while one is working digitally.

EUD IMPACT REPORT 2019 38 EXTERNAL CO-OPERATION

2019 Work Forum on the implementation of the UN Convention on the Rights of Persons with Disabilities in the EU and its Member States On the 13th of May, EUD participated in the their right to vote. During the Forum, the Work Forum on the implementation of the participants also discussed how to claim their UN Convention on the Rights of Persons rights under the UN CRPD, e.g. how to enforce with Disabilities (UN CRPD) in the EU and its the right to inclusive education, and what Member States. This Forum was organised by is the role of equality bodies, the European the European Commission and has taken place Ombudsman or the special rapporteur annually since 2010. and the UNCRPD Committee in complaint procedures. Participants also discussed what The Forum gathered together representatives interplay there is between the UNCRPD and from Member States, the European Union, civil the other international conventions, such as society, focal points, and all other stakeholders the Convention on the Elimination of All Forms who are responsible for monitoring the of Discrimination against Women (CEDAW) or implementation of the UN CRPD on both the The Hague Convention on the Protection of national and EU levels. During the Forum, Vulnerable Adults. participants shared their experiences on the practical implementation and monitoring The Work Forum on the implementation of of the UN CRPD and searched for solutions the UN Convention on the Rights of Persons to address common challenges. This event with Disabilities took place in Brussels addressed both substantive rights as well as and represented an excellent opportunity governance matters. to network with representatives from the Member States and EU officials as well as an In this iteration, the Work Forum focused on the opportunity to discuss how the UN CRPD can right to political participation during the 2019 be effectively implemented in the Member EU Elections and how to ensure that people States and to make a meaningful change for with disabilities could meaningfully exercise the deaf communities across the EU.

From left to right, Frankie Picron, EUD Policy Assistant, Mark Wheatley, EUD Executive Director and Martyna Balčiūnaitė, EUD Policy Officer

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European Day of Persons with Disabilities 2019 and Access City Award The annual European Day of Persons with economically active persons with disabilities Disabilities (EDPD) conference took place over across the EU and ensure that everyone 28th – 29th of November 2019, in Brussels. can exercise their freedom of movement. The EUD Board and staff attended the 2019 Moreover, the new strategy must highlight EDPD, which focused on the evaluation that digitalisation and developments in the phase of the European Disability Strategy field of Artificial Intelligence cannot leave for 2010 – 2020. During the conference, people with disabilities behind and should the participants discussed the preliminary be seen as means of empowerment. The new findings of the public consultation on the strategy should focus on a digital ‘up-skilling’ European Disability Strategy 2010-2020, as of people with disabilities, should take a well as presenting their expectations for the cross-cutting approach and should include next decade. perspectives from different genders, the elderly, and children. During the second panel, EUD Executive Director, Mark Wheatley, emphasised that, During the second day of the conference, the if developed, the new European Disability participants discussed how to achieve sports Strategy 2020 - 2030 should demonstrate accessible to all. The panelists agreed that a clear commitment to fully implementing sports play a crucial role in the inclusion of the UNCRPD, the UN CRPD Committee’s persons with disabilities and therefore more Concluding Observations, the principles financial support is necessary for initiatives of the EU Pillar of Social Rights and the that foster the participation of persons with UN Sustainable Development Goals. It was disabilities in sports. EUD President, Markku also highlighted that the new strategy, if Jokinen, emphasised that the developed, should also take into account are significantly important for the deaf different perspectives on accessibility (e.g. community and wanted to know how the the deaf perspective) and encourage actions European Commission could support it. that would ensure accessibility that go beyond physical accessibility, especially the full Lastly, the Access City Award 2020 accessibility of information, communication ceremony was the occasion for the European and knowledge for all. Commission to unveil the award’s 10th winner. That year, out of the 47 cities that It should also aim at establishing a sent in their applications, Warsaw in coordination of social security systems for was awarded first place.

From left to right, Daniel Büter, EUD Board member, Louise Danielsson, EUD Board member, Sofia Isari, EUD Board member, Mark Wheatley, EUD Executive Director, and Dr. Gergely Tapolczai, EUD Vice President

EUD IMPACT REPORT 2019 40 EXTERNAL CO-OPERATION

Equality Commissioner – Helena Dalli On the 2nd of October, the European During the hearing Mrs. Dalli highlighted Parliament’s (EP) Women’s Rights and Gender that she is fully committed to leading the Equality Committee (FEMM), together with the implementation of the UN Convention on the Committee on Employment and Social Affairs Rights of Persons with Disabilities across the (EMPL), led the hearing of the Commissioner- EU. The Commissioner emphasised that prior designate for Equality portfolio, Helena Dalli to launching the European Disability Strategy from Malta, who later was officially appointed 2020-2030, it would first be necessary to as the Equality Commissioner. carefully study the results of the evaluation of the European Disability Strategy 2010-2020, The role of the new Commissioner for which the European Commission expects to Equality is critically important for deaf finish by mid-2020. persons in the EU, as her main task will be to strengthen Europe’s commitment to inclusion Mrs. Dalli also expressed her will to directly and equality in all of its senses. As part of involve persons with disabilities and their this, the new Commissioner for Equality families and to consult organisations for will lead the fight against discrimination persons with disabilities in her work. During wherever it exists and will propose new anti- the hearing, Mrs. Dalli also emphasised that discrimination legislation. She will also lead she would do her utmost to unblock the the EU’s implementation of the United Nations Anti-Discrimination Directive by meeting with Convention on the Rights of Persons with ministers to convince them to move forward. Disability.

Helena Dalli, Equality Commissioner

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On the 22nd of October, EUD participated in European Civil Protection and Humanitarian CONCIL OF THE the breakfast briefing on disability inclusion Aid Operations launched a Guidance Note on EUROPEAN UNION in humanitarian action. This briefing was disability inclusion to guide the humanitarian organised by the Finnish Presidency and took work of EU-funded NGOs which can now be place at the Council of the European Union. used to ensure that persons with disabilities receive the necessary support they need. During the hearing, representatives from UNICEF gave a presentation and EUD Policy Officer, Martyna Balciunaite, highlighted that persons with disabilities are highlighted that during humanitarian disproportionately affected in situations of emergencies some groups of persons with risk and humanitarian emergencies, and that disabilities, such as deaf persons for instance, they face multiple barriers when it comes can remain unnoticed or be overlooked due to accessing protection and humanitarian to the fact that their disability is invisible, assistance. UNICEF presented that the Charter and therefore proper identification systems on the Inclusion of Persons with Disabilities must be in place to ensure that persons with in Humanitarian Action, launched at the invisible or less noticeable disabilities are not 2016 World Humanitarian Summit, called for left behind and have their needs adequately the development of guidelines supporting addressed. For instance, the provision of sign humanitarian actors to improve the inclusion language interpretation is essential for deaf of persons with disabilities in emergency persons who are affected by humanitarian preparedness and response. These Guidelines emergencies in order for them to receive on the Inclusion of Persons with Disabilities accurate information and communication. in Humanitarian Action will be launched soon. Moreover, earlier that year, the European EUD would like to thank the Finnish Commission’s Directorate-General for Presidency for organising this event.

Breakfast briefing on disability inclusion in humanitarian action, Brussels, Belgium

EUD IMPACT REPORT 2019 42 EXTERNAL CO-OPERATION

COUNCIL OF EUROPE PACE Committee on Equality and Non-Discrimination The Parliamentary Assembly of the Council of States had been prepared at the request of Europe (PACE) adopted a report on promoting the Finnish Presidency of the Committee of and protecting sign languages in Europe in May Ministers. EUD was consulted throughout 2019. In addition, an expert report on the use of the process and had the opportunity to give sign languages in the Organisation’s member a speech about sign languages during one of their plenary meetings.

From left to right, Dr. Markku Jokinen, EUD President and Eeva Tupi, a representative of World Federation of the Deaf

ECML 25th anniversary conference Languages at the Heart of Learning: 25 years of insipiring innovation. On Thursday 5 and Friday 6 December 2019 EUD President, Markku Jokinen and Board the European Centre for Modern Languages of Member, Sofia Isari attended the conference the Council of Europe organised a high-level in Graz, Austria to note the ECML’s 25th conference to celebrate its 25th anniversary anniversary.During the conference entitled (as well as the Council of Europe’s 70th ‘Languages at the Heart of Learning: 25 years anniversary) and reflect on the important of insipiring innovation’ EUD President gave contribution made by the Centre to the field of a presentation during the special session on language education. ‘Protecting and Promoting Sign Languages in Europe’ and highlighted that the right to sign language is a human right.

ECML 25th anniversary conference, Graz, Austria

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European Elections 2019 EUROPEAN PARLIAMENT In 2019, there were European Elections being in place. EUD have worked extenstively before and during the European elections.

Leave no one behind campaign with EUDY and efsli Eud together with EUDY and efsli released the joint statement ‘Don’t Leave Deaf Voters Behind’. The statement is available online in English and International Sign. We also produced 5 social media videos with references to the joint statement.

Deaf candidates for the European Elections During the European elections 2019, there were eight deaf candidates aiming to be elected as MEPs:

Kaija-Liisa Savolainen Finland Ida Collu Italy Amílcar Morais Portugal Steffen Helbing Germany Ádám Kósa Hungary Kaija-Liisa Savolainen Ida Collu Amílcar Morais Alexander Exner Germany Edgars Vorslovs Latvia Dimitra Paschali

The results have concluded with just one deaf MEP for 2019 to 2024. It’s Ádám Kósa from Hungary. He have secured his 3rd parliamentary term.

Steffen Helbing Ádám Kósa Alexander Exner

Edgars Vorslovs Dimitra Paschali

EUD IMPACT REPORT 2019 44 EXTERNAL CO-OPERATION

European Debate On the 15th of May, candidates for the the debate was available in International Sign. presidency of the European Commission took We strongly support this initiative as it made part in a live debate at the European the debate accessible to the deaf and hard of Parliament in Brussels. It was the first time that hearing audience.

European Debate, Brussels, Belgium

European Parliament’s campaign video For the first time ever, EUD worked together EUD saw this initiative as an excellent with the European Parliament to produce opportunity to reach out to all Europeans a campaign video on the 2019 European during the elections and highlighted that elections in 31 sign languages! ensuring accessibility was an opportunity, We were particularly excited as this was not a burden. EUD called upon the candidates the first time in history when video content for the European Parliament and all relevant produced by the European Parliament was national authorities to empower deaf voters made available in the mother tongues of to meaningfully exercise their right to vote by many deaf Europeans – in this case 31 sign removing significant obstacles to accessing languages. The videos informed deaf voters information and communication during the about the European elections in an accessible European elections, and to have made all manner, as the accessibility of information information and communication available in and communication are key to ensuring national sign languages. the effective and meaningful political participation of deaf voters. EUD hopes to collaborate with the European Parliament in the future in the production of further and more accessible content for deaf Europeans.

Choose your future campaign video

EUD IMPACT REPORT 2019 45

On the 1st and 2nd of June, EUD attended – 2030, the implementation of the European EUROPEAN DISABILITY the Annual General Assembly (AGA) of the Pillar of Social Rights, the UN CRPD, the FORUM (EDF) European Disability Forum (EDF). EUD’s process of the European Semester, and the official delegate to the AGA was EUD Vice involvement of organisations representing President Dr. Gergely Tapolczai. people with disabilities were discussed.

Prior to the EDF AGA, the European conference EUD Vice President Dr. Gergely Tapolczai entitled “Smart Travel - Partnership and presented EUD’s advocacy campaign for the technology making European travel more 2019 EU Elections 2019, which included the accessible” took place during which there collaboration with the European Parliament were discussions on partnerships with and in producing the video ‘Choose Your Future’ participation of persons with disabilities and making it available in 31 sign languages, during policy making as well as the roles EUD EUDY and efli’s joint advocacy campaign of technology and innovation in ensuring ‘Don’t Leave Deaf Voters Behind’ and other accessibility while traveling. actions that were undertaken by EUD to Following the conference, during the EDF’s ensure that deaf voters could meaningfully AGA, the report on EDF’s achievements in exercise their right to political participation 2018 as well as its work programme for 2019 during the 2019 EU Elections. were presented. Topics such as the 2019 EU Elections, the Disability Strategy for 2020

Dr. Gergely Tapolczai, EUD Vice President

EDF ENGO meetings EUD regularly attends the meetings of the During the meetings EUD together with other European Non-Governmetnal Organisations organisations discuss common policy plans, that focus on disability. The meetings are coordinate future actions and discuss how to organised by the European Disability Forum. better collaborate together.

EUD IMPACT REPORT 2019 46 EXTERNAL CO-OPERATION

EUROPEAN UNION OF THE In 2019 EUD and EUDY worked together during On 11th May, EUD Executive Director Mark DEAF YOUTH (EUDY) the European elections campaign and continued Wheatley attended the General Assembly collaborating for a more inclusive and accessible of EUDY as an observer. He also gave a Erasmus Plus program. presentation about EUD’s cooperation with EUDY over the past year.

European Union of the Deaf Youth’s General Assembly, Ghent, Belgium

THE WORLD FEDERATION OF EUD representatives attended the congress and THE DEAF (WFD) the XX General Assembly in Paris, France in July. At the XX General Assembly, EUD Vice President, Gergely Tapolczai was an official non-voting delegate for EUD and EUD Executive Director, Mark Wheatley was appointed as a minute taker.

World Federation of the Deaf’s XX General Assembly, Paris, France

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EUD continued its cooperation with EDSO, EUROPEAN DEAF SPORTS as the EDSO board used EUD’s facilities for ORGANISATION (EDSO) their board meeting, they also used EUD’s facilities for the live draw of the European Deaf Volleyball Championship which Mark Wheatley participated in. This was broadcast live to all EDSO members.

EUD continued its cooperation with EDbU EUROPEAN DEAFBLIND UNION through email support and had the opportunity to have discussions with its president during the European Day of Persons with Disabilities conference.

EUD president and the president of the European EUROPEAN NETWORK OF Network of Sign Language Teachers, Luigi Lerose, SIGN LANGUAGE TEACHERS signed a memorandum of understanding which established an official cooperation between EUD and ENSLT on 18th May in Bucharest, Romania.

From left to right, Luigi Lerose, President of the European Network of Sign Language Teachers and Dr. Markku Jokinen, EUD President

Twice a year, EUD attends meetings organised the European Union of the Deaf (EUD) and the EUROPEAN PLATFORM by the European Platform of Deafness, Hard European Union of the Deaf Youth (EUDY). In OF DEAFNESS, HARD of Hearing and Deafblindness. This platform 2019, the first meeting took place in Barcelona OF HEARING AND DEAF has been formed to enhance, strengthen and and the second meeting took place in Brussels. cultivate a robust and enduring collaboration The members of the platform discussed how BLINDNESS between the European Cochlear Implant Users to support each other while advocating for the (EURO-CIU), the European Deafblind Union swift and ambitious transposition of the recently (EDbU), the European Deafblind Network (EDbN), adopted EU accessibility legislation that would the European Federation of Hard of Hearing bring about meaningful changes for deaf, hard of People (EFHOH), the European Federation of hearing and deafblind persons in the EU. Parents of Hearing Impaired Children (FEPEDA),

EUD IMPACT REPORT 2019 48 EUD ORGANISATIONAL STRUCTURE

NATIONAL ASSOCIATIONS Austria – Österreichischer Gehörlosenbund (ÖGLB), Belgium – Federatie van Vlaamse Doven Organisaties OF THE DEAF (FEVLADO), Fédération Francophone des Sourds de Belgique (FFSB), Bulgaria – Съюз на глухите в България (СГБ / UDB), Croatia - Hrvatski savez gluhih i nagluhih, Cyprus – Ομοσπονδία Κωφών Κύπρου, Czech Republic – Svaz neslyšících a nedoslýchavých v ČR (UDHH), Denmark – Danske Døves Landsforbund (DDL), – Eesti Kurtide Liit (EAD), Finland – Kuurojen Liitto (FAD), France – Fédération Nationale des Sourds de France (FNSF), Germany – Deutscher Gehörlosen-Bund (DGB), Greece – Ομοσπονδία Κωφών Ελλάδος (HFD), Hungary – Siketek és Nagyothallók Országos Szövetsége (SINOSZ), Iceland – Félag heyrnarlausra, Ireland – Irish Deaf Society (IDS), Italy – Ente Nazionale Sordi (ENS), Lativa – Latvijas Nedzirdīgo savienība (LAD), Lithuania – Lietuvos kurčiųjų draugija, – Vereinigung der Gehörlosen und Schwerhörigen Luxemburg (VGSL), Malta – Għaqda Persuni Neqsin mis-Smigħ, Netherland – Dovenschap, Norway – Norges Døveforbund (NDF), Poland – Polski Związek Głuchych (PZG), Portugal – Federação Portuguesa das Associações de Surdos (FPAS), Romania – Asociaţia Naţională a Surzilor din România (ANSR), Slovakia – Asociáca nepočujúcich Slovenska (ANEPS), Slovenia – Zveza društev gluhih in naglušnih Slovenije, Spain – Confederación Estatal de Personas Sordas (CNSE), – Sveriges Dövas Riksförbund (SDR), Switzerland – Schweizerischen Gehörlosenbund, Fédération Suisse des Sourds, Federazione Svizzera dei Sordi (SGB-FSS), – British Deaf Association (BDA)

BOARD President Dr Markku Jokinen Espoo, Finland Executive Director, The Finnish Association of the Deaf

Board Vice President Louise Danielsson Dr Gergely Tapolczai Stockholm, Sweden Budapest, Hungary Junior Lecturer, Member of the Hungarian Parliament Department of , Stockholm University

Board Board Daniel Büter Sofia Isari Berlin, Germany Athens, Greece Policy Officer, Teacher, Kindergarten school for the German Association of the Deaf Deaf & Hard of Hearing in Athens

STAFF Executive Director Policy Officer Mark Wheatley Martyna Balčiūnaitė Solihull, United Kingdom Kaunas, Lithuania

Policy Assistant Communication and Media Officer Frankie Picron David Hay Mons, Belgium Edinburgh, United Kingdom (January 2019 - December 2019)

EUD IMPACT REPORT 2019 This report is supported by the Rights, Equality and Citizenship Programme 2014-2020

Objectives of the Programme This programme shall contribute to the further development of an area where equality and the rights of persons, as enshrined in the Treaty, the Charter and international human rights conventions, are promoted and protected. Its nine specific objectives are to: • Promote non–discrimination • Combat racism, xenophobia, homophobia and other forms of intolerance • Promote rights of persons with disabilities • Promote equality between women and men and gender mainstreaming • Prevent violence against children, young people, women and other groups at risk (Daphne) • Promote the rights of the child • Ensure the highest level of data protection • Promote the rights deriving from Union citizenship • Enforce consumer rights

The information contained in this report does not necessarily reflect the position or opinion of the European Commission.