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Report Co-creation in Innovative Healthcare during COVID-19 11th January 2021 Contents We have found that the Executive Summary ......................................................3 factors that helped countries Acknowledgements ......................................................5 respond and cope better Partners ...........................................................................6 to the COVID-19 pandemic Message of condolence .............................................7 included strong political Background.....................................................................9 leadership, a reliance on Aims and objectives of GPC 2020 ......................... 11 GPC 2020 Theme ............................................................13 science and public health Introduction to Programme Sessions ..........................14 experts to shape the strategy, Day One ....................................................................... 14 being open and transparent Opening Ceremony ................................................... 14 with the public, having clear Keynote Speech .......................................................... 16 communications lines and Sessions ........................................................................ 18 having citizens involvement Day Two ............................................................................33 and empowerment to Keynote Speech .......................................................... 33 Keynote Speech .......................................................... 34 act within the guidelines Sessions ........................................................................ 35 they receive and trust Final Remarks ...................................................................53 between government and GPC 2020 Call to Action .......................................... 56 their citizens. Resources and Inputs ............................................... 57 Booth Visits .................................................................. 58 Dr Soumya Swaminathan, MD, Outputs, Outcomes and Impact ............................ 59 Chief Scientist, World Health GPC 2020 Information ....................................................61 Organization Programme ................................................................. 61 Delegates’ Attendance .............................................. 68 List of Speakers .......................................................... 70 IAPO Staff ..................................................................... 90 Executive Summary The 9th Global Patients Congress (GPC 2020) was meant to be a celebratory event to mark our twenty first anniversary and the coming of age of patient centred healthcare globally. However, the COVID-19 pandemic overtook all of us manufacturers, Industry representatives from the five revealing great fault lines in our health systems and Covid-19 candidate vaccines then laid out the route plan shifted all our membership’s focus as most of them on how quickly they would be ready and what needs to had to rapidly assist their patient communities and be done. governments to develop effective shielding programmes Expert patients, policy makers and practitioners coming for very vulnerable patients. from 28 countries organised in 27 thematic panels then The pandemic was a catastrophe for patient-centred delivered the remaining 64 insightful presentations. The healthcare and the social welfare and mental health sessions paved the road to discussing: wellbeing of our patients was adversely impacted as the • The health crisis provoked by COVID-19 worldwide unplanned lockdowns ensured that most healthcare and its impact on the patient community; services and access to medicines and psychosocial support were disrupted. • How to realise the World Health Organization (WHO)’s commitment to “build back better” and The GPC 2020 had to take place virtually under a new ensure the implementation of the World Health theme “Co-creation in Innovative Healthcare during Assembly Resolution 73.1 COVID-19 response; COVID-19” on 16-17 September 2020. • The next steps for strengthening health systems and GPC 2020 Virtual brought together 1300 delegates from preparedness through patient led and co-created 101 countries and nearly 400 patient groups. We were innovative solutions post COVID-19 and in future. also happy to virtually meet representatives from 98 IAPO member organizations live while others accessed Throughout GPC 2020, speakers raised key issues the recordings on www.gpc2020.vfairs.com. and delivered unique take-home messages. These included the importance of all WHO Member States and The GPC 2020 opened with a Keynote from WHO Chief pharmaceutical industry to keep cooperating and sharing Scientist Dr Soumya Swaminathan, Chief Scientist who knowledge and resources in the fight against COVID-19. brought everyone up to date on the fast progress All Speakers also agreed on the importance of patients’ being made on World Health Assembly Resolution 73.1 engagement to address the ‘infodemic’ and vaccine Covid-19 response and the impact COVID-19 was having hesitation, and their participation in health systems all on existing WHO programmes on Maternal and New over the world. Born Health, TB, Malaria and NCDs. Under the umbrella of the International Federation of Pharmaceutical 3 Day 2 of GPC 2020 marked the 2nd World Patient Safety Day (WPSD). At IAPO we know how crucial safety is for all patients seeking healthcare. However, safety in health systems is a global concern because of increasing numbers of people suffering avoidable harm or being put at risk of injury while receiving healthcare. IAPO invited Hon. Jeremy Hunt MP the Chief Architect of stakeholders to stand together in our call for safe the Global Ministerial Patient Safety Summits and former patient-centred healthcare as an essential component UK Secretary of State for Health and Social Care to open for the achievement of universal health coverage. with a keynote. The theme for WPSD 2020 was ‘Health worker safety: Recognising the urgency of the issue, on 17th September A priority for patient safety’. This theme was selected 2020, health stakeholders from all over the world stood given the current challenges health workers were facing together, united in observing the WPSD. The COVID-19 with regards to their physical and mental health and pandemic has unveiled the serious difficulties health safety amid the COVID-19 pandemic. The slogan ‘Safe workers are facing worldwide while responding to health workers, Safe patients’ reflects the interlinkages this unprecedented global public health challenge. between health workers safety and patient safety. World Patient Safety Day 2020 was an opportunity to Services cannot be delivered safely if health worker safety emphasize the importance of health worker safety as itself is not prioritized and addressed. a priority for patient safety by committing and taking The WPSD 2020 therefore called on WHO Member urgent and sustainable action to recognize health States and partners to ‘Speak up for Health Workers worker safety as a prerequisite for patient safe. This Safety!’ urging them to prioritize and address the issue in was a unique opportunity for patients, patients’ groups, a holistic manner. carers, civil society organizations and other relevant Acknowledgements We would like to thank the GPC 2020 Committee: We first want to thank all the health professionals and frontline health workers who have been putting themselves at great risk to take care of patients during the current Karen Alparce- Dr Ratna Devi Dr Neda Milevska COVID-19 pandemic. Villaneuva (Chair) Many have made the ultimate sacrifice and lost their lives in serving us. We pass our condolences to their families. In this year of the Year of the Nurse and the Midwife 2020, we acknowledge the great support given to us by the International Council of Nurses during this pandemic. We also want to thank our members, industry partners, collaborating partners and supporters who made the Kawaldip Sehmi Sabine Nick Bisi Bright 9th Global Patients Congress a great success despite the difficult circumstances that they are all facing. They stepped forward to help in planning the event by joining our GPC Organising Committee and later as moderators and speakers during the congress. Our special thanks go to the World Health Organization (WHO) and its Secretariat and specifically the WHO Patient Safety and Quality Improvement Unit in the Dani Mothci Rachel Githinji Service Delivery and Safety Department for helping us mark a great 2nd World Patient Safety Day on 17th GPC 2020 Rapporteurs: September 2020. We particularly want to thank Dr. Soumya Swaminathan, Dr. Neelam Dhingra, Dr. Ivana Knezevic and Joseph Kutzin for enriching our programme and sharing with our members great insight into the COVID-19 pandemic and the WHO Flagship Decade of Patients Safety 2020-2030. Monique Antonia Gama Bittencourt Da Costa Franca 5 Partners Lastly, we thank our Industry Partners without whose partnership and resources we could not have delivered this quality virtual congress. Platinum Sponsors Gold Sponsors Silver Sponsors (formerly Upjohn) 6 Message of condolence At the time of the Congress, many countries were going through the first wave of COVID-19 infections and bereavements. IAPO and its family of patient organizations shared this pain, and send out our deepest condolences to the bereaved families and friends of those who have lost their lives to COVID-19. IAPO and its