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Hannah Morgan, BA (Hons), MA, PG Cert in the Wake of the Social Model

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Hannah Morgan, BA (Hons), MA, PG Cert in the Wake of the Social Model Hannah Morgan, BA (Hons), MA, PG Cert In the wake of the social model: Engaging with policy, theory and practice PhD in Sociology by Published Work February 2018 Table of Contents Dedication 3 Abstract 5 Author’s Declaration 7 Acknowledgements 9 Publications 11 1. Disability Studies Practices 11 2. Disability Policy Formation 11 Supporting Document 13 Preface 13 Introduction 15 Disability Studies in the UK 16 Disability Studies Practices 21 Disability Policy Formation 44 Conclusion 67 Bibliography 69 Appendix 1: curriculum vitae 77 Appendix 2: Publications Included in this thesis 88 Morgan, H. & Harris, J. (2005) Strategies for involving service users in outcomes focused research in L. Lowes & I. Hulat (eds) Working Together: Service Users’ Involvement in Health and Social Care Research. London: Routledge pp. 163-170 90 Morgan, H. and Roulstone, A. (2012) ‘Editorial’ Social Work Education 31:2. Pp 137-141 100 Morgan, H (2012) The Social Model of Disability as a Threshold Concept: Troublesome Knowledge and Liminal Spaces in Social Work Education Social Work Education: The International Journal 31 (2) pp215-26. DOI:10.1080/02615479.2012.644964 105 Morgan, H. [2014) Working with Disabled People in M. Webber (ed) Applying Research Evidence in Social Work Practice Palgrave Macmillan pp.182-196. 120 James, E. Morgan, H. & Mitchell, R. (2017) Named social workers – better social work for learning disabled people?, Disability & Society, 32:10, 1650-1655 149 Morgan, H. & Stalford, H. (2005) Disabled People and the European Union: Equal Citizens? In C. Barnes and G. Mercer (eds) The Social Model of Disability: Europe and the Majority World. Leeds: The Disability Press. pp 98-114 159 Morgan, H. (2005) Disabled people and employment: the potential impact of European Policy in A. Roulstone and C. Barnes (eds) Working Futures? Disabled People and employment. Bristol: The Policy Press pp259-272 175 1 Roulstone, A., & Morgan, H. (2009). Neo-Liberal Individualism or Self-Directed Support: Are We All Speaking the Same Language on Modernising Adult Social Care? Social Policy and Society, 8(3), 333-345. doi:10.1017/S1474746409004886 189 Morgan, H. (2013) User-led organisations: facilitating Independent Living’ in J. Swain, S. French, C. Barnes & C. Thomas (eds) Disabling Barriers – Enabling Environments 3rd Edition. London: Sage. Pp. 206-213 204 Roulstone, A. Soldatic, K. and Morgan, H. (2014) Introduction: disability, space, place and policy: new concepts, new ideas, new realities in K. Soldatic, H. Morgan & A. Roulstone (2014) (eds) Disability, Spaces and Places of Policy Exclusion London: Routledge pp 1-9 SBN 978-0-415-85480 212 Roulstone A. & Morgan, H. (2014) Accessible public space for the ‘not obviously disabled’: Jeopardized selfhood in an era of welfare retraction in K. Soldatic, H. Morgan & A. Roulstone (eds) Disability, Spaces and Places of Policy Exclusion London: Routledge pp 64-79 ISBN 978-0-415-85480 223 Soldatic, K and Morgan, H. (2017) “The way you make me feel”: Shame and the neoliberal governance of disability welfare subjectivities in Australia and the UK in J. Louth and M. Potter (eds) Edges of Identity: The Production of Neoliberal Subjectivities Chester: University of Chester Press. 240 Morgan, H. (2017) ‘Hiding, Isolation or Solace? Rural disabled women and neoliberal welfare reform’ in K. Soldatic & K. Johnston (eds) Disability and Rurality: Identity, Gender and Belonging Ashgate 265 2 Dedication This thesis is dedicated to my wonderful amazing Mum, Carrie Morgan (1947-2016), committed friend, citizen, social worker and activist (categories that were inseparable for her). Her unwavering commitment to promoting social justice in her professional and personal life has been the bedrock of my own. Her confidence and great pride in me continues to be a source of inspiration and strength. It is the source of sorrowful regret she isn’t here to see the finished work, although she never doubted its completion and was a constant encouragement in the face of my own self-doubt. There are few, supervisors and examiners excepted, who read a thesis in its entirety, but I know my Mum would have (as she did everything I published or sent for her comments). She always equated her relative lack of higher education qualifications with a limitation in her ability rather than of opportunity, but she had a careful, rigorous and passionate engagement with ideas and their practical application that few in academia can rival. She leaves a considerable legacy of which this thesis is a very small part. 3 4 Abstract In the wake of the social model: Engaging with policy, theory and practice Hannah Morgan, BA (Hons), MA, PG Cert PhD in Sociology by Published Work February 2018 The 13 publications included in this thesis constitute a body of work situated within the interdisciplinary field of disability studies. As such, they are formed in the wake of the social model of disability, a radical, field-forming idea that dominates the disabled people’s movement, disability policy and practice and disability studies in the UK. The works are clustered around two interlinked areas of concern: how disability studies is practiced and influences professional and welfare practices, and how disability policy formation emerges, shapes and impacts upon the lives and wellbeing of disabled people. The unifying argument is that disability scholarship should be aligned to the communities it produces knowledge for and about. It argues that disability studies and the practices which emerge from it should remain rooted in the social model and in the disabled people’s movement. 5 6 Author’s Declaration I declare that this is my own work; it has not been submitted in substantially the same form for the award of a higher degree elsewhere. Hannah Morgan February 2018 7 8 Acknowledgements A PhD by publication is by its nature a body of work developed over time and by engagement with many colleagues, collaborators and friends. I am grateful to Colin Barnes and Geof Mercer for nurturing my initial interests in disability studies and for the opportunity to work on the Creating Independent Futures project which provided the spark for many of the issues and debates I have returned to throughout this body of work. Thank you to Jennifer Harris, Bob Sapey and John Stewart for inviting me to be part of the first Lancaster Disability Studies Conference in 2003 which has provided the opportunity to develop a form of disability studies practice – the Lancaster Disability Studies Conference - of which I am very proud. Being a member of the editorial board, the executive editors and book reviews editor of Disability & Society has been another site of academic growth. As this collection makes clear, much of my work has been in partnerships with kind and gifted colleagues to whom I owe a great debt. Alan Roulstone has been central to my development as an academic and I remain in awe of his unique combination of academic clarity and generosity, he has ‘kept me right’ and encouraged me to ‘keep on keeping on’. It was always a pleasure to write with Alan, as it has been with my other co-authors, Jennifer Harris, Helen Stalford, Karen Soldatic, Elaine James and Rob Mitchell. Disability Studies is a generous, companionable field and I’ve been blessed by a great deal of academic kindness and collegiality especially from Susie Balderston, Nicola Burns, Rebecca Fish, Patrick Kermit, Donna Reeve and Mark Sherry, from other members of CeDR, participants at the Lancaster Disability Studies and NNDR Conferences as well as the wider disability commons. My thanks are also due to my colleagues at Lancaster University Gina Aylward, Chris Grover, Chris Hatton, Emma Palmer, Richard Tutton, Joanne Wood and particularly to Imogen Tyler who has been a generous and encouraging mentor. Finally, and most of all, I would like to record my thanks to my husband David and son Owen, whose indulgence of the space disability studies occupies in our lives has been patient and long-suffering, my Dad Henry who has encouraged me to read, think and most importantly to hear, and to my dear friend Sarah Leach who has often kept the home fires burning and been a constant source of encouragement. 9 10 Publications 1. Disability Studies Practices Morgan, H. & Harris, J. (2005) Strategies for involving service users in outcomes focused research in L. Lowes & I. Hulat (eds) Working Together: Service Users’ Involvement in Health and Social Care Research. London: Routledge pp. 163-170 Morgan, H. and Roulstone, A. (2012) ‘Editorial’ Social Work Education 31:2. Pp 137-141 Morgan, H. (2012) ‘Threshold Concepts in Disability Studies: Troublesome knowledge and luminal spaces in social work education’ Social Work Education 31:2. 215-226, Morgan, H. [2014) Working with Disabled People in M. Webber (ed) Applying Research Evidence in Social Work Practice Palgrave Macmillan pp.182-196. James, E. Morgan, H & Mitchell, R. (2017) ‘Named social workers – better social work for learning disabled people?’ Disability & Society 32 (10) pp. 1650-1655 2. Disability Policy Formation Morgan, H. & Stalford, H. (2005) Disabled People and the European Union: Equal Citizens? In C. Barnes and G. Mercer (eds) The Social Model of Disability: Europe and the Majority World. Leeds: The Disability Press. pp 98-114 Morgan, H. (2005) Disabled people and employment: the potential impact of European Policy in A. Roulstone and C. Barnes (eds) Working Futures? Disabled People and employment. Bristol: The Policy Press pp259-272 Roulstone, A. and Morgan H. (2009) 'Neo-Liberal Individualism or Self- Directed Support: Are We All Speaking the Same Language on Modernising Adult Social Care? Social Policy and Society 8 (3) pp 333-345. Morgan, H. (2013) User-led organisations: facilitating Independent Living’ in J. Swain, S. French, C. Barnes & C. Thomas (eds) Disabling Barriers – Enabling Environments 3rd Edition. London: Sage.
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