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LINK-52-EN.Pdf N r 5252 December 2009 English Edition Autism - Europe ACTIVITIES • European Days of Autism 2009 • Latest political developments in Europe • Invitation - General Assembly 2010 in Kassel SPECIAL FEATURE ON AGEING PROJECT • ACE Project - Autism Connections Europe IX INTERNATIONAL CONGRESS AUTISM EUROPE - CATANIA • Presentation of the Keynote speakers • Participate in the Exhibition « Touches of Autism » Members’ ACTIVITIES • Autismus Deutschland NEWS • Report on Casein-free diets • Specialisterne • Conference at the Pasteur Institute • ARAPI Published by Autism-Europe Afgiftekantoor - Bureau de dépôt : Brussels - Ed. responsable : E Friedel For Diversity Autisme Europe aisbl Rue Montoyer, 39 • B - 1000 Brussels, Belgium Tel.:+32-2-675 75 05 - Fax:+32-2-675 72 70 Against Discrimination E-mail: [email protected] Website: www.autismeurope.org Edito INDEX ACTIVITIES European Days of Autism 2009 ............................... 3 Latest political developments in Europe .................... 5 SPECIAL FEATURE ON AGEING ................................ 6 Recommendation of the Council of Europe ................ 7 Sesame‘s Village .................................................... 9 Dear Friends, PROJECT ACE Project- Autism Connections Europe ............... 11 On behalf of Autism-Europe’s executive committee and secretariat, receive our best wishes for a Happy IX INTERNATIONAL CONGRESS New Year! AUTISM Europe – CATANIA Presentation of the Keynote speakers ................... 12 2010 is the European Year against poverty and for Participate in the Exhibition « Touches of Autism » .. 14 social inclusion. Persons with disabilities and their Invitation – General Assembly 2010 in Kassel ........ 15 families are very often the first ones to be affected by an economic downtown. But, we also know that Members’ Activities persons with autism suffer from exclusion even in Autismus Deutschland ......................................... 16 better times because they are denied access to education, adapted care and services in the commu- NEWS nity. Report on Casein-free diets ................................. 18 Specialisterne ..................................................... 19 Raising their voice is our mission and we will pursue Conference at the Pasteur Institute ....................... 20 this objective in 2010 and continue to defend the rights of persons with Autism ARAPI ................................................................. 21 at the European level. The European Commission is currently preparing a new EU Disability Strategy for 2010 to 2020. The latter will shape the disability policies List of members .................................................. 22 of the European Union for the next decade and Autism-Europe will be active raising awareness of the specific needs of persons with Autism. This is all the more important that on 26 November 2009, the Council of the European Union decided on the European Community becoming a party to the UN Convention on the Rights of Persons with Disabilities (UNCRPD). As you may know, the UNCRPD binds the States Parties to a revision of all existing legislation, policies and programs to ensure they are in compliance with its provisions. Published with the support of the Directorate-General for Employment, social affairs and equal opportunities of the European Commission As for national initiatives, some political developments in various EU Member under the European Community Programme for Employment and Social Solidarity PROGRESS States in favour of persons with autism are presented in this issue. Positive evolutions have happened across the EU in the field of social inclusion, education, For Diversity etc. We hope that their implementation will go smoothly in 2010 and we will be glad to continue sharing good practices from across Europe! Against Discrimination The information contained in this publication does not necessarily Several major events are planned by Autism-Europe in 2010. The Annual reflect the views or opinion of the European Commission. General Assembly will take place in Kassel (Germany) at the beginning of June Editorial Committee and you are all warmly invited to attend this event that will be co-hosted by AE Evelyne Friedel Donata Vivanti Pagetti and Autismus Deutschland. In October 2010, the IX Autism-Europe Congress Michel Favre will take place in Catania, Italy. The Congress entitled “A Future for Autism” will Aurélie Baranger build on the most recent advances in scientific knowledge and contemporary Layout : mmteam sprl - 02/262 16 50 - Frédéric Maigret approaches to disability in order to investigate the best possible future for Printing : mmteam sprl - [email protected] persons with ASD and their families. You can already register for this landmark Cover : IX International Congress Autism Europe event! At this occasion, we will also celebrate the 2010 European Days of Autism-Europe Rue Montoyer 39 • B-1000 Brussels • Belgium Autism. Tel.:+32-2-6757505 Fax:+32-2-6757270 E-mail: [email protected] We look forward to pursuing our actions in cooperation with you in 2010. Website: www.autismeurope.org Autism-Europe thanks you for your involvement and support! Account number : Dexia Bank: IBAN: BE21 0682 0816 9303 / BIC: GKCCBEBB Reproduction of articles is permitted provided that AUTISM-EUROPE is acknowledged as the source, with the exception of articles with a © at the end of the article. Articles and information for future issues of Link are welcome. They should we sent to the address above. Evelyne Friedel Aurélie Baranger Link est aussi publié en français. Si vous souhaitez recevoir notre revue President Autism-Europe Director en français, veuillez en avertir notre secrétariat à l’adresse ci-dessus. Activities From left to right Guillermo de Rueda – Executive Manager Fundación Solidaridad Carrefour, Evelyne Friedel – AE President, Elena Sánchez Gallar – Councilwoman President Hortaleza’s District, Francisco Moza – General Secretary, Ministry of Health, Isabel Bayonas – FESPAU President, Antonio de la Iglesia – CAE President, Alberto Durán – General Director Fundación ONCE. European Days of first European Country to ratify the Jim Mansell from the Tizard Institute E Autism - 3 and 4 UN Convention on 3 December (University of Kent) then gave a October 2009 - Madrid 2007. She called on Spain to be a presentation about Community- driving force to promote the rights based services and the way to of persons with disabilities during include people with the most complex High level conference the Spanish Presidency of the EU, needs. He stressed the benefits of starting in January 2010. During active support to involve people in On 3 and 4 October 2009, Autism- the opening session, Francisco meaningful activities and improve Europe celebrated the European Moza Zapatero, from the General their lives. Days of Autism in Madrid in coopera- Secretariat for Social Policy and tion with the Spanish Consortium Consumers, emphasized the commit- Active support users’ involvement for Autism, comprised of Autismo ment of the Spanish government to and quality of services are closely España and Fespau. foster the rights and inclusion of linked. Ramon Barinaga presented persons with disabilities, even in time the way Gautena (Spain) respond to On October 3rd, an international of crisis. the challenge of quality management. conference gathered more than 200 Finally, Lydia Daniels, Director of participants. During the opening Then, Joaquin Fuentes presented Autism Accreditation at the National session, Evelyne Friedel stressed to participants Autism-Europe’s Autistic Society presented the the necessity to fight for the rights document: Persons with Autism mission and core standards of the of persons with ASD, notably by Spectrum Disorders: Identification, Autism Accreditation that has devel- enforcing the UN Convention on Understanding, Intervention that he oped a framework to measure and the rights of people with disabilities. drafted with other European experts: evaluate best practices At this occasion, she highlighted Catherine Barthélémy, Patricia through self audit of its the fact that Spain had been the Howlin and Rutger van der Gaag. members. Page 3 Autism-Europe’s Council of Administration Autism-Europe’s The Council of Administration is very take place on 5 and 6 June in Kassel Extraordinary General pleased to welcome Miroslava on Germany. On 4 June, participants board since she has been active will have the possibility to take part Assembly and Council of for many years in Autism-Europe in a visit organized by Autismus Administration and involved as a partner in several Deutschland. projects with AE. After the conference, Autism- For more information, Europe’s members gathered for Autism-Europe would like to thank both please contact Autism-Europe: an Extraordinary General Assembly Presidents of Fespau and Autismo [email protected] (EGA). During the meeting, amend- España: Isabel Bayonas and Antonio ments to AE statutes were voted de la Iglesia Soriano and their team in order to ensure a better repre- for their invitation and cooperation to sentativeness of EU countries within organize these events and celebration the Council of Administration. AE of the European Day of Autism 2009. members also voted in favour of The next Annual General Assembly welcoming a new affiliated member and Council of Administration will association from Hungary, the “Foundation for children with Special disability”. The EGA was followed by a Council of Administration (CA)
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