ANNUAL REVIEW 2016 - 17 02 | Annual Review | 2016-17
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ANNUAL REVIEW 2016 - 17 02 | Annual Review | 2016-17 WELCOME: A MESSAGE FROM THE CHIEF EXECUTIVE & CHAIRMAN life conditions, and the more they are equipped with the tools to manage them, the more we can be sure good palliative care will be delivered across the board. This year has also seen its challenges. Demand for our services continues to rise and to be able to deliver high quality care we need to ensure we have adequate resources and we are as effi cient as possible. We are grateful to our NHS contracts and to the enormous contribution from our supporters and communities to enable this to happen. We’ve had runners, record breakers, businesses backing Hello and welcome to the Saint Francis Hospice our cause, generous grants and schools securing Annual Review, looking back on 2016/17. sponsorship. Refl ecting upon our achievements and key moments Our innovative retail arm is offering a house clearance of the past 12 months is both an important and as well as more ways for shoppers to support their immensely rewarding process. We are now well into local hospice. We thank you all for the difference you our fi ve year strategy - a reminder of our objectives have made to so many lives. is on page 8. The plan was ambitious and detailed yet Looking forward, the next year brings challenges we are managing to succeed and achieve beyond our of a different nature. May sees the introduction of expectations. new data protection laws that will change the way Our ultimate goal is to ensure local people have all organisations process data. We have been busy access to high quality hospice care in a location of preparing so that we not only meet the standards of their choice. Many of the articles throughout the the law, but also the standards you, our supporters, Annual Review will demonstrate the plans we’re taking expect. We’ve invited every supporter to ‘opt in’ to to see our goal become a reality. communications from us. Should you decide not to, you will no longer hear from us. Our supporters are In July, we received an ‘Outstanding’ assessment at the heart of what we do. We will ensure that your by the Quality Care Commission (CQC), something generosity is not taken for granted and that you are in we are extremely proud of. This is all down to the control of how we communicate with you. hard work, dedication and passion from our staff and volunteers, ensuring we always demonstrate the So far, we’ve had an overwhelming response to the highest quality of care. campaign. You can read more at www.sfh.org.uk/ tick-yes In 2016/17, we expanded our community services into Redbridge (p.12). We successfully launched If you read only one article in this Annual Review, a pioneering new service, OrangeLine, to tackle please make it Carly’s story, on page 6. Carly is one of loneliness and isolation commonly experienced by the 25% of people we see at the hospice with a non- people living with a life-limiting condition (p.13). We’ve cancer diagnosis. Her symptoms made her howl with seen the number of home visits by community nurses pain and she rarely slept well. Today, her mum tells us rise to over 15,000. We’ve launched a host of new how our interventions have changed everything. groups, some located at the hospice, others within Thank you to our staff and our dedicated volunteers our communities (p.10). for every hour of time and energy they have given to The Pepperell Education Centre continues to deliver the hospice in the past 12 months. The organisation courses of an exceptional standard to health and is taking bold and exciting steps forward and every social care professionals locally and beyond. The one of those steps can only be taken thanks to you, more people understand the complexities of end of our loyal supporters. Annual Review | 2016-17 | 03 06 02 16 Welcome message from Pam Training and developing Court and Robert Weatherstone our people 04 17 Our courses About us, our vision, our approach 10 06 18 Our year in brief “What would we have done if we did not have Saint Francis Hospice on board?” Carly’s Story 12 20 08 How we fund our services Our objectives 10 21 Spotlight on... The value of connecting people 12 24 Redbridge, nearly one Our fi nancial position 14 year on 13 26 Are you following Widening access to hospice care us on social media? 14 27 Time for feedback Our people 21 04 | Annual Review | 2016-17 ABOUT US OUR VISION, OUR APPROACH Saint Francis Hospice is an independent charity and one of the largest adult hospices in the UK. Our team of specialist consultants, doctors, nurses and a range of other health and social care professionals provide care and support to individuals with a life-limiting illness, as well as their carers and family members, completely free of charge. Saint Francis Hospice serves the populations Our Values of Havering, Brentwood, Barking & Dagenham, Redbridge and parts of West Essex. We are an independent charity and one of the Support largest adult hospices in the UK. Our team of Share ideas and specialist consultants, doctors, nurses and a range respect one another, of other health and social care professionals provide encouraging everyone care and support to individuals with a life-limiting to succeed. illness, as well as their carers and family members, completely free of charge. Fairness This year, we need to raise £7.3 million in voluntary Treat everyone as we income – a fi gure that continues to increase. We would wish to be treated are grateful for every donation we receive and all of ourselves; be courteous the fantastic volunteers that are in our team of over and aware of how our 860 staff members, who allow us to keep our costs words and actions down as well as add so much value to the work we affect others. do. Honesty Our Vision Be open and accountable, working Saint Francis Hospice is committed to helping together for the benefi t anyone in our communities who is affected by life- of our local limiting illness to receive excellent person-centred community. care when they need it and ideally in a place of their choosing. Annual Review | 2016-17 | 05 The Services We Provide We have an extensive range of services that patients, their carers and family members can easily access. This is something that we are proud of and would like to share with you. Each is carefully tailored to ensure our care is person-centered and holistic. Hospice at Home Doctors Carer Support Consultants Social workers Specialist Palliative Care Bereavement Support Nurses Financial Support Counselling Community Nurse Specialist Information resources Groups Social 24/7 Inpatient Website Pastoral Care Training Therapeutic Unit Advice Creative Day Therapy 24/7 Advice line Education Centre Allied Health Professionals & OrangeLine Occupational Therapy Training health professionals Crisis Support and carers Occupational Equipment Supply Physiotherapy Complementary Therapy 7,259 1,614 85% face to face or telephone patients we cared for of our care takes place in the consultations with a health professional. in the past year. local community. 06 | Annual Review | 2016-17 “What would we have done if we did not have Saint Francis Hospice on board?” Many people are surprised to learn that over a quarter of the people we care for do not have cancer. One of those people is 36-year-old Carly, who has a rare neurological condition. When Carly’s parents were told by doctors there was nothing more they could do for her, they didn’t know where to go next. Since then, Saint Francis Hospice has made a difference in ways they never expected. her legs, her body started to twist and she became totally dependent on her family and her carers. Carly’s prognosis was reduced to two years, and in April 2014 she was referred to the Specialist Community and Crisis Support Team (SCCS) at Saint Francis Hospice. Clinical Nurse Specialist Katy Chelchowska and the hospice medical consultant assessed Carly in her home shortly afterwards and they immediately took steps to manage her pain and make her comfortable. Carly is a beautiful young woman with a great sense Katy also identifi ed a range of services at the hospice of humour and a big smile. She loves to laugh, go that Carly and her family could benefi t from. shopping for clothes, spend time with her family and have a glass of wine at her local. “I don’t know what we would have done if we did not have Saint Francis Hospice on board,” said Debbie. But Carly has very complex medical needs and “During our fi rst meeting, Katy experienced Carly’s without the specialist services she receives from symptoms where her arms would go into spasms Saint Francis Hospice in the community, her life and she would howl in pain. would be very different. “Before we had contact with the hospice there was Carly has never been able to speak and has always a period of a few weeks where Carly did not sleep at had physical and learning disabilities but prior to a all. gradual deterioration when she was in her 20s, she had been able to lead a relatively independent life, “It has been a long journey getting her medication walking, following instructions, dressing and feeding under control but she is in a good place now. herself. “She is as pain free as she can be and her sleep has Identifi ed Diagnosis really settled down.” In December 2013 Carly was eventually diagnosed with a rare form of Neurogenerative Brain Iron Accumulation (NBIA).