ANNUAL REVIEW 2015 - 16 02 | Annual Review | 2015-16

WELCOME: A MESSAGE FROM THE CHIEF EXECUTIVE & CHAIRMAN

“The past year has been one of momentous achievement and progress, thanks to the hard work and dedication of every staff member and volunteer.”

A lot of work has been carried out to ensure our building and facilities remain fit for purpose – including fixed wire testing, refurbishments of our kitchen and toilets, and a new door security system.

An additional highlight was the hospice achieving an ‘outstanding’ rating by the Care Quality Commission following an inspection in April 2016.

It is with great pleasure that we present our 2015- 2016 Annual Review.

Thanks to the loyal support of our community, we have been able to progress on a number of exciting projects that I hope you will enjoy discovering more about.

A selection of some of these projects are detailed from Our Education Centre continues to thrive, with one of page six. With the launch of our five year strategy last many successes being that over 80 care homes have year, you will see how we are working to achieve our aims attended our Gold Standards Framework training. We are and goals. From innovative new services, improvements passionate that everyone in our local community receives to the way we support our staff and developments in end of life care delivered with expertise and dignity; this our technology, our ambitious projects will ensure that training we know will make a real difference. the hospice remains at the forefront of end of life care provision and that we are ready to cope with the ever- Our Annual Review features the moving story of one of increasing demand for our services. our patients, who is receiving our support as he adapts to living with a degenerative disease (page 20). Terry’s Our new website was launched in May 2015, offering experience reminds us of the benefits our range of straight-forward access to our service information and services can have on one person and how important it fundraising events via a site that is now accessible on is to treat each person under our care as an individual. mobiles and tablets, as well as in over 100 languages! You will also learn more about other people we have Social media has become a vital communication tool for supported throughout the document. us, enabling us to engage with our supporters in a more effective way and helping us to raise awareness of our We hope you enjoy reading through our review, work. Read more about that on page 22. reflecting on the tremendous year that we have had. Without your continued support we would not be in the We’ve reviewed our patient menus and catering, strong position that we are today and we look forward to purchased a bariatric bed for our inpatient unit – the year ahead with you by our side. something we’d previously hired - thanks to a donation from the Brentwood à Becket Rotary Club, and have Pam Court Bob Weatherstone established a range of new and exciting support groups CEO Chairman tailored to the needs of those we look after. Annual Review | 2015-16 | 03

INSIDE OUR ANNUAL REVIEW

Welcome message from Pam Court & 02 06 Bob Weatherstone

04 About Us

Meeting Our Strategic Goals 06 Deliver excellent care in a location of choice 09 Easier access to all hospice services 10 Train and develop 11 Best use of technology

12 Our Year in Brief

14 How We Fund our Services 09

15 Spotlight On...

18 Our financial position

20 Terry O’Shea’s story 12 20

22 Our People

23 Thank You! 23

Cover photo: Emma and her dad, Peter, were pictured while watching the England vs Wales game during Euro 2016. Peter had prostate and bone cancer and first came onto our inpatient unit in December 2015 for pain management. He was then cared for at home by our community team and attended our day therapy unit, meeting with our physio team and occupational therapists (as well as socialising!).

He was re-admitted to our inpatient unit in June, where he was able to watch the football from the comfort of his bed, before he died later the same month.

This photo was shared on our Facebook page, receiving over 200 likes and comments from well-wishers hoping that England win the game for Peter - and they did! 04 | Annual Review | 2015-16

ABOUT US OUR VISION, OUR APPROACH

Saint Francis Hospice is an independent charity and one of the largest adult hospices in the UK. Our team of specialist consultants, doctors, nurses and a range of other health and social care professionals provide care and support to individuals with a life-limiting illness, as well as their carers and family members, completely free of charge.

We serve the populations of Havering, Brentwood, Barking & Dagenham, Redbridge and parts of West Essex.

This year, we need to raise £7.3 million in voluntary income, so every donation from individuals and organisations is important to us. We also have a team of over 860 skilled and committed volunteers who help us keep our costs down and add huge value to the work we do.

Our Vision Saint Francis Hospice is committed to helping anyone in our communities who is affected by life-limiting illness receive excellent person-centred care when they need it and ideally in a place of their choosing.

OUR VALUES

Support Fairness Honesty Share ideas and respect Treat everyone as we would Be open and accountable, one another, encouraging wish to be treated ourselves; working together for the everyone to succeed. be courteous and aware of benefit of our local community. how our words and actions affect others.

These values underpin all that our charity aspires to do and shape our external and internal behaviour. Annual Review | 2015-16 | 05

85%

of our care takes place in the local community.

We cared for 1,573 people in 2015-16

THE SERVICES WE PROVIDE We have an extensive range of services that patients, their carers and family members can easily access, this is something that we are proud of and would like to share with you. Each is carefully tailored to ensure our care is person-centered and holistic.

Hospice at Home Doctors Carer Support Consultants Social workers Specialist Palliative Care Bereavement Support Nurses Financial Support Counselling Community Nurse Specialist

Information resources Groups Social 24/7 Inpatient Website Pastoral Care Training Therapeutic Unit Advice Creative

Day Therapy 24/7 Advice line Education Centre Allied Health Professionals & OrangeLine Occupational Therapy Training health professionals Crisis Support and carers Occupational Equipment Supply Physiotherapy Complementary Therapy

Supported by 250 staff and 860 volunteers 06 | Annual Review | 2015-16

DELIVER EXCELLENT CARE IN A LOCATION OF CHOICE

The provision of excellent person-centred care sits at the heart of everything we do. Our vision is to ensure we accommodate the wishes of every person we look after, where possible, so that they can receive our care in their place of choosing.

92% 2,852 11,872 of people surveyed said they would visits were made by our Hospice consultations held between our recommend our services to others. at Home team. community nurses and patients or their carers.

A dementia friendly hospice… Just a phone call away… OrangeLine Improvements have been made so that the hospice is We have launched a new service that aims to tackle the more welcoming and easier to navigate for people with isolation and loneliness often experienced by people dementia. With around one in three of our patients living with a terminal condition – or those caring for diagnosed with dementia, we were able to secure funding someone with a life-limiting illness. OrangeLine is a free from the Rank Organisation that funded improved and confidential service managed by specially trained signage inside and outside of the hospice’s buildings, staff and volunteers who can signpost people to support easy-to-hold cutlery and mugs, coloured trays so that services they may find helpful or simply have a friendly the plates sitting on them stand out, dementia friendly chat. The team will also connect individuals in similar clocks and blue toilet seats so that there is a clear colour circumstances via social groups and call chains. The contrast from other parts of the toilet. All staff have service is fully funded for three years by a grant from the become ‘Dementia Friends’ – undergoing training to Big Lottery. One regular caller is Joyce, who is bereaved enhance understanding and awareness of dementia and of a loved one. While she attends community groups the behaviours associated with the condition. and has a good network of friends, she doesn’t wish to burden people with her problems and finds returning to an empty home difficult. For Joyce, having someone to call and ask ‘how are you?’ is proving a lifeline.

Greater comfort thanks to specialist bed Brentwood a Becket Rotary Club donated £10,000 to fund a bariatric bed, which is specially designed for people who need extra support. Previously the hospice had to hire beds, which were only available for a minimum of one month at a time. We were able to purchase an ex- hire bed that cost £10,000, a huge saving on a new bed that would cost between £28,000 and £35,000. While staying on our inpatient unit, Rebecca Warren, who had brain and spine cancer and was admitted for help with her symptoms, used the time to get crafty. From her bed she customised and decorated bags and pencil cases as gifts for her children – finding it best to do at night when she couldn’t sleep. “Drawing and being creative takes my mind off my illness and helps me to relax. It takes me to another 14 place and stops me from being days is the emotional,” she said. average length of stay in our inpatient unit. Stephen Burbidge has multiple endocrine neoplasia (MEN1). He said: “I come here and paint and it is so relaxing as I get stressed very easily.

Before I started receiving care from The J’s Hospice I hadn’t talked to anyone outside my family and extended family for 10 years. Saint Francis Hospice and The J’s Hospice are my entire social life and the staff are absolutely great.” Annual Review | 2015-16 | 09

EASIER ACCESS TO ALL HOSPICE SERVICES ENSURING THEY ARE EASILY UNDERSTOOD AND AVAILABLE

It matters to us that people who need our services have simple and easy access to our services. We are working to improve access for people in the ‘harder to reach’ parts of our catchment and are looking at a number of outreach programmes that will see Saint Francis Hospice coming to the communities directly, working closely with partners across the areas we serve.

25.9% 101 4,046 of the people we cared for had children had bereavement bereavement support/counselling a non-cancer diagnosis. support. consultations provided.

Giving a foot up to bereaved youngsters… Supported by our Family Support team, the carers were Children who had been bereaved of a close family able to complete a number of exercises, aimed at helping member were helped by the Family Support team at them recognise stress and developing tools to cope with it. two special “Foot up” days in August. The days were The carers were taught breathing exercises to help with held in partnership with the YMCA at Roneo Corner, winding down and coping with stressful situations, and Romford and attended by children from the boroughs a creative therapy session took place in the afternoon, of Brentwood, Barking & Dagenham and Havering. The demonstrating the benefit of distractions from the day to days were structured around group activities and team day challenges of caring for a loved one. sporting activities. They were also faced with the YMCA indoor climbing wall. For many of the young people it was Help at last for young adults… their first opportunity to realise that they were making A grant from the Jack Petchey Foundation of £10,310 progress since the death of their loved one. funded the start-up costs of a support group designed to help young adults aged between 18 and 30, working in partnership with the J’s Hospice. Many young adults with a life-limiting illness have outgrown children’s services and need to transition into adult services – but there is limited support in the community to help with this tricky process. Part of the money will be used to fund the work of a Clinical Nurse Specialist and a youth worker, with the balance used to pay for transport, refreshments, a defibrillator and promotion of the new service.

Connecting to our carers Eighteen people who are full time carers for people receiving support from Saint Francis Hospice attended our first Carers’ Stress Busting Day at St Peter’s Church in Harold Wood. 10 | Annual Review | 2015-16

TRAIN AND DEVELOP OUR PEOPLE TO ENSURE SKILLED SERVICE DELIVERY

Our people are the lifeblood of the hospice. To build on our rich heritage of clinical expertise we will invest in our people to ensure they are engaged, empowered and encouraged to help us achieve our goals. We support those who deliver palliative care in our community, so that local people receive high quality care wherever they are.

1,015 75 94%

external delegates attended study days were delivered. of attendees rated their experience courses at our Education Centre. as 8, 9 or 10 out of 10.

I am doing the right job… Namaste Conference proves inspirational We have launched a new initiative to enhance our More than 75 healthcare professionals from across emotional support for staff and to allow people to Havering and the surrounding boroughs were at Saint connect with each other from across the organisation. Francis Hospice’s Pepperell Education Centre to listen to Schwartz Centre Rounds take place quarterly and help Professor Joyce Simard talk about her widely acclaimed staff to explore the impact their jobs may have on their Namaste Care programme, which was developed in the US. feelings and emotions by recruiting a panel who present their own experiences on a specific topic, before leaving There are currently 850,000 people in the UK with the floor open for conversation. So far attendance has dementia and while there is still no cure in sight, Joyce, been high and feedback has been extremely positive demonstrated Namaste Care has significantly improved from staff – with approximately 91% of attendees saying the quality of life for patients with advanced Alzheimer’s they would recommend the rounds to their colleagues. who can no longer participate in traditional activities. 91% During the inspirational presentation Joyce gave of attendees examples and demonstrations on how healthcare Medical Director, Corinna say they would professionals could introduce the programme, which Midgley, spoke at the round recommend the involves stimulating the senses through music, titled ‘Why I do the job I do’. rounds to their therapeutic touch, colour, food and scents. She told us: “I’m glad I was asked colleagues. because it really made me think Ruth Crossley, an end of life care facilitator from about why I do what I do. It was Barking and Dagenham (NELFT) said, “I knew about this actually very therapeutic: I realised how much I do programme early on and was asked to spread the word love doing what I do!” about it because it sounded very exciting. I will certainly be passing on what I have learned today.” Annual Review | 2015-16 | 11

ENSURE BEST USE OF TECHNOLOGY AND OUR FACILITIES

The need for improved technology has never been greater. It will help us to ensure best communication and co- ordination with our care partners and will make the delivery of care as seamless as possible. In addition, it will reduce the use of paper and ensure our systems are future-proof, secure and reliable.

Connecting systems for smoother service delivery our clinicians and benefit people receiving our care. New access to blood results is allowing our clinicians to In addition, development is underway between our understand our patients’ issues better and identify the internal patient information system and that used by GPs, best and safest medicines for them. Previously, clinicians so that information about people visiting the hospice can spent a lot of time calling the lab in BHR University be immediately accessed. Hospital Trust (BHRUT) to obtain the latest blood test results and radiology reports. We now have safe and COWs roaming free on IPU secure online access to Cyberlab, the system used at Two new computers on wheels (COWs) have been BHRUT and we can print or store the test results on our purchased for our inpatient unit. The COWs – named own patient information system. As well as ensuring our Ermintrude and Daisy – will allow our doctors and nurses teams are equipped with the information they need, this to update patient information by their bedsides, in real will increase productivity due to time saved. It is expected time. It will also reduce the need to repeat questions and that Cyberlab will be upgraded by BHRUT to hold will enable sharing of information such as care plans. radiology results which will further release the time of

With demand on our services continuing to grow, these statistics give you further insight into how hard our teams work day in, day out, to care for people in our local community.

2,608 1,183 2,266 people received pastoral care. people received complementary people received occupational therapy treatments. therapy.

1,974 262 1,246

people received physiotherapy. people attended day therapy. people were supported by our community nurse specialists.

Lawrie Driver had cancer of the urethra and bladder, and his wife Gillean received care from our Specialist Community and Crisis Support team before he died in March. “Lawrie and I had daily and nightly support phone calls to instruct me on medication changes,” said Gillean. “Having their support meant I had someone to share the burden of responsibility with and enabled me to stay healthy. They enabled us to have two weeks when Lawrie was free of pain and we were able to have quality time together.” 12 | Annual Review | 2015-16

OUR YEAR IN BRIEF

JUNE 2015 APRIL 2015 We were front page news #TeamSFH was well represented following the heroic actions in the London Marathon. We of our retail volunteer driver, had a strong team out on the John Edwards, who saved the 26 mile route, with a runner MAY 2015 life of a baby when delivering attempting to smash a world May saw the 15th anniversary of a mattress to his mum. Quick- record by running as our mascot, our pioneering Hospice at Home thinking John performed the oldest man in the entire race service which enables patients CPR on 7-month-old Arda and two of our nurses! Coupled to die in the comfort of their who had lost consciousness with nearly 50 other runners, own home with access to the following a convulsion and had they raised over £80,000 in same level of care we provide at him breathing again before sponsorship. the hospice. Since it started the paramedics arrived. service has dramatically grown - in 2015-16 the team made 2,852 visits.

JANUARY 2016 MARCH 2016 We had a promising start to The hospice drinks trolley has 2016 with a donation from the become something of a legend Bet Tikvah Synagogue in Ilford with patients and their visitors. FEBRUARY 2016 Over 160 businesses in following an appeal. The £1,000 It is wheeled out by volunteers donation was used to purchase every evening so that our Brentwood participated in our first official Go Orange a specialist bedside riser recliner patients can enjoy a drink of chair to enhance the comfort for their choice. In March, our awareness raising day, turning their shops into orange beacons patients and visitors. Chairman of patron Barry Hearn donated the synagogue Gary Freedman, a brand new trolley as the old to share more about the work we do locally and encourage said it’d been their most model was slightly worse for successful fundraising appeal to wear after years of good use. people to Go Orange for us too. The day was a great success date. – people made donations, purchased merchandise and took away Go Orange fundraising packs for inspiration. Annual Review | 2015-16 | 13

JULY 2015 A Russian figurine donated to SEPTEMBER 2015 our Upminster shop sold for Kudos to supporter Claire £1,567 after it was snapped Dunnage, who faced her life- up by a collector via our eBay long fear of walking or driving store. When the 15cm porcelain across bridges to help the figurine of a young man and hospice. Claire conquered the woman was donated, Manager AUGUST 2015 London Bridges Walk in memory Yvonne Waite had an inkling it Diane Thomas emailed this of her mother-in-law, Sandra, was valuable – but said the final picture following the joint baptism who died earlier in the year, bid surpassed all expectations! of her grandsons, Harry Stephen raising £435 by crossing seven Thomas and Noah Stephen of the capital’s iconic bridges Lennon. Guests were invited with her husband by her side. to donate to the hospice in lieu A real achievement! of gifts, leading to a generous £250 donation. Diane’s husband, Stephen, received care on our inpatient unit and we provided Hospice at Home care to her dad, William.

DECEMBER 2015 OCTOBER 2015 More than 550 people seized There was sunshine and smiles as more than 300 Scouts the opportunity to dress up as NOVEMBER 2015 Father Christmas and run 5k embarked on a 17 mile walking Boris Johnson welcomed five through Dagenham on Sunday challenge in memory of former of our volunteers along with 13th December, raising £18,300 District Commissioner Paul staff to City Hall, London, as in sponsorship. The same day, Leeper. Organised by Paul’s wife, part of his Year of the Volunteer hundreds more attended our Julie, the Walk for Paul – who project. The volunteers, who first Light Up a Life event from was involved with the Scouts help in a range of our services Dagenham and Redbridge since the age of eight – saw from bereavement counselling, Football Club, enjoying musical Scouts as young as six taking to support on the ward and in performances and readings part and generated £10,653 in the shops, were presented with a before the symbolic lighting of sponsorship. certificate in recognition of their the Christmas tree. continued support. 14 | Annual Review | 2015-16 HOW WE FUND OUR SERVICES

We are grateful to everyone who supports us We are superbly supported by a host of volunteers – financially. over 860 in total. By sharing their time with the hospice – be it in our shops, with our patients or providing admin We are reliant on the support of our community to raise support - their combined hours save us over £2 million a 73% of our income - which this year totalled over £7.3 year. million. The futher 27% of our funding is provided by the NHS via local Clinical Commissioning Groups. The diagram below gives insight into the variety of income streams that feed the voluntary income we rely We have a range of fundraising activites so that we’re on to continue funding our services. not reliant on one source of funding and we hope that our supporters can find a way to support us in a way that suits them.

Gift in Wills Gift Aid Trusts & foundations

Fundraising events

Investments

Sponsor a 27% Nurse NHS funding 73% Appeals & campaigns fundraising & donations Regular Giving Corporate by Direct Debit supporters Staff Fundraising Schools Collection Tins Funeral donations Memory Tree Community groups Raffles

House clearance Lottery Retail & Tribute Charity Funds shops Annual Review | 2015-16 | 15 SPOTLIGHT ON... APPEALS

Our fundraising campaigns remain an important income stream for us. As 2016 was a leap year, we had an extra day of care to fund – the 29th February.

With running costs at £21,000 for every hospice day, we asked our supporters to help us raise the money for the additional day. With thanks to an incredible donation from the YJS Charitable Trust and with a generous response from our supporters, the appeal was a great success.

Our summer and winter raffles generated an income of around £92,000, with the lucky winners in receipt of a new car and £8,000 cash respectively. Finally, our Light Up a Life appeal saw over 1,000 stars dedicated to our first ever memory garden. Combined with a new microsite, allowing supporters to dedicate a virtual star, over £41,000 was raised.

CORPORATE

A significant number of local businesses committed to support Saint Francis Hospice, including the Mercury Mall in Romford who made us their charity of the year and Neopost who raised over £22,000 through fundraising activities. Our Matchroom Sport sponsored activities including our first Clay Pigeon Shoot at Down Hall raised £8,650 and our corporate golf days raised in excess of £30,000. The Business Alliance Group was launched to realise fundraising opportunities through networking between local companies.

COMMUNITY

Our dedicated local community continues to overwhelm us with their support by organising their own fundraising activities, including personal challenge events, coffee mornings, bikeathons, quizzes, cake sales and discos.

Combined with our collection boxes, donations from schools and community groups and themed hampers raffled in pubs and businesses, over £498,000 has been raised. Tremendous! 16 | Annual Review | 2015-16

LOTTERY

Our Lottery offers a regular giving option for supporters with the additional bonus of the chance of winning £1,000 a week- at a cost of only £1 a week.

The lottery has seen continued growth year on year and we are grateful to all our players who helped raise £443,000 in the last twelve months.

You can sign up to play our lottery on our website: www.sfh.org.uk/lottery.

EVENTS

A busy calendar of 19 events saw thousands of people take part in a range of activities. We welcomed a new generation of enthusiastic supporters. From the 3,000 people attending Frankie’s Classic Car show to the brave souls who scaled the Orbit in the Olympic Park to the 52 runners who completed the London Marathon on a warm April day - raising over £82,000 in sponsorship - we thank you all!

RETAIL AND CHARITY SHOPS

Sales of donated goods via our charity shops and online, as well as our house clearance operation made a profit of £542,000. We have continued our programme of shop refurbishment, including our general store in Brentwood, reopened by Sir Eric Pickles MP in October 2015. As part of our work developing awareness using our orange brand, a uniform was introduced, with managers adopting a black and white dress code and all staff wearing an orange branded scarf.

The challenge to charity retail is to maintain an on- going supply of good quality donations, so our chain of drop spots continues to grow, helping us to tackle this problem by making it easier for people to donate items at a convenient location.

Wide use of an auction house and websites such as eBay allows the best possible price to be obtained for quality donations. Our house clearance service provides our furniture shops with a constant supply of items. Thank you to everyone who has donated to our shops – your generosity makes all the difference. Annual Review | 2015-16 | 17

GIFTS IN WILLS

Gifts left in wills continue to form a considerable part of the total income we receive each year. Legacies provide up to 1/3 of the £7.3 million we currently need annually from voluntary donations to fund the hospice, and this year we received an incredible £2,464,000 from gifts in wills. It is actually one of the most effective ways you can support our work, helping to fund the costs of 1 in 5 of the local people we currently care for. All legacy gifts given, whatever size, make a real difference to our work.

We are very grateful to all our supporters who have left a gift in their will to the hospice, or intend to do so. We would also like to take this opportunity to thank all the solicitors and supporters who participated in our Make a Will Fortnight event this year, where over £11,000 was raised from donations given in return for writing basic wills free of charge. Our next Make a Will Fortnight will be taking place in June 2017; for more information on this event or if you would like to know more about supporting the hospice with a gift in your will, please contact Susan Spencer on 01708 771403, email [email protected], or look on our website www.sfh.org.uk/legacies

TRUSTS & GRANTS A total of 38 grants were secured from a variety of trusts to fund a number of exciting projects and purchase much-needed equipment.

Grants also allow us to trail new services – most notably this year, the Big Lottery funded our new service, OrangeLine, a telephone support line aimed at tackling isolation and loneliness. You can read more about this project on page 6.

A grant from the Veolia Trust funded the repair of an iconic feature of the hospice – our 150-year-old ornamental pond. During what was believed to be minor repairs, it was discovered the damage was much more significant. The grant has enabled us to have the pond restored to its former glory – with many people we care for finding the area a relaxing space to sit and reflect. In contrast, the February Foundation and Pink Ribbon Foundation have contributed towards the work of our physiotherapists – with the Pink Ribbon Foundation in particular focusing on the work the team do for patients with breast cancer.

We are grateful for every grant awarded to us in the past twelve months. 18 | Annual Review | 2015-16

OUR FINANCIAL POSITION

In 2015/16 Saint Francis Hospices’ total income was We aim to always be open and clear about how we £11.1million. This was £585,000 higher than the raise and spend our money. The difference between our previous year thanks to an increase in public, corporate income and expenditure reflects money added to our and trusts fundraising and sales of items donated to our reserves (this ensures we have funds available to grow charity shops. and develop, and can continue to operate should our income fall). We spent £10.7 million in 2015/2016, which is £283,000 more than the previous year.

Fundraising income This includes general donations, fundraising events and gifts in wills. See the full breakdown on page 14. £5,509,000

Retail This includes our charity shops and online auction sites used to sell donated items. £2,289,000

INCOME NHS Statutory Funding We have annual contracts with our local clinical £11,175,000 commissioning groups. £2,901,000

Other This includes bank interest from education disposal of fixed assets etc. £340,000

Investment £136,000 Annual Review | 2015-16 | 19

Hospice Services The money we spend delivering our services 24/7, 365 days a year. See below for a detailed breakdown. £7,597,000

Retail This includes the cost of renting, maintaining and EXPENDITURE operating our 15 charity shops. £1,579,000 £10,674,000 Fundraising & Publicity This includes the costs of our awareness raising activities so people know about Saint Francis Hospice and how we can help them, our leaflets and literature and the cost of generating funds. £1,498,000

We have 250 front line staff who play a role in delivering our services. This includes our nurses, consultants, therapy teams, cleaners, estates, caterers and IT team. In addition, this chart includes expenditure on drugs, supplies, stationary. ‘Other’ refers to investment, professional, legal, bank and project fees.

Staff Costs Utilities, Health & Safety, £5,728,394 Gardens & Grounds and Fire & Security Other £253,733 HOSPICE £423,653 SERVICES Catering Community Travel £205,336 £7,597,000 £88,166 Cleaning Telephone Charges £57,901 £30,503 Printing & Stationary Estates, premises £87,706 repairs & Statutory Maintainence Clinical Supplies £332,248 £241,242

IT Service & Equipment £148,118 20 | Annual Review | 2015-16

‘THEY SEE THE PERSON BEFORE THEY SEE THE ILLNESS’

Up until four years ago Terry O’Shea led a full and active life but his life dramatically changed when he was diagnosed with a rare degenerative disease. Here, his wife explains the difference Saint Francis Hospice has made to their lives...

At first Terry, 70, who had been a dock worker for more “The hospice has been a life line. The nurses and staff are than 20 years before making the change to become a so patient with Terry and as his speech is getting more decorator, thought he was just being clumsy when he difficult they give him the time to talk and explain himself. started to drop things, then he began to have trouble At the hospice they see the person before they see the with his legs. illness. Whatever you have got wrong with you, you are still the same person inside. “The doctors thought the problem was vascular but shortly after he underwent an operation on his veins his “Sometimes when you are a carer you’re not always able speech became slurred,” said his wife Kathleen, speaking to take time for the niceties and the extra bit of kindness from their home in Hornchurch. that the hospice provides.”

“He had a lot more tests and brain scans before a Terry is visited regularly at his home by nurses from the neurologist at Queen’s hospital eventually diagnosed Specialist Community Crisis Support Team and has also Terry with Multiple System Atrophy (MSA).” benefited from physiotherapy and equipment, such as a seat for the bath and a bed rail to help improve his quality There is no cure for the condition, which is a progressive of life at home. disease of the nervous system and affects around 3,000 people in the UK. And with his health deteriorating, the father-of-three was referred to Saint Francis Hospice by an MSA support group so he could benefit from a range of support services. “We have been really well supported “They felt it would be a and throughout all our dealings with good idea for Terry and the hospice, Terry has always been the hospice to get to know each other before treated with such kindness.” it got to crisis point and so they could help us along the journey,” said He used to enjoy attending the Day Therapy Unit once Kathleen. a week for a massage and to talk with the nurses but he stopped going when his eyesight started to fail. “We have been really well supported and “Terry’s days can be very frustrating,” said Kathleen. throughout all our “He used to love to read but he can’t do that anymore dealings with and even watching television is difficult for him. He also the hospice, has trouble with his balance and can fall at the drop of a Terry has hat.” always been treated The couple have been married for 49 years and while with such Kathleen is a loving and supportive wife, being Terry’s kindness. carer has been difficult for both of them. “I don’t think Terry is happy with me having to now become his carer,” said Kathleen, 70, who works as an administrator for the Havering Community Night Service at the Elm Park Clinic. Kathleen has signed up to the Woofs and Wellies event twice and previously took part in sponsored walks.

At the hospice they see the person In April her son Daniel O’Shea, 32, showed his support “ for the hospice when he took part in the London before they see the illness. Whatever Marathon. you have got wrong with you, you are still the same person inside.” “I ran the London Marathon last year for the MSA Trust and when I decided to do it again this year, it made sense that if I was going to do it for a charity, the hospice should “I have had counselling at the hospice and it does help be my first port of call,” said Daniel, who works as an because you can feel very alone. Although you have electrician. family and friends who can commiserate with you, unless you are in the same position or have been in the same “I will always be eternally grateful for the amount of help position it is impossible to understand the rollercoaster of it has given our family. emotions that you go through.” “The hospice has given my dad huge support and it has Kathleen also attended the carers’ Christmas lunch in helped make life a bit easier for my mum too. In situations December at the hospice, which was hosted by the like ours the partner becomes the primary carer and they Family Support Services team, to recognise the valuable can get forgotten about. I know how hard it has been for role of carers in the community. my mum.

Even before her family needed the hospice’s services, “I know that the days she has been to the hospice and Kathleen was fundraising for the charity. has been able to talk to someone have helped her.” 22 | Annual Review | 2015-16

OUR PEOPLE

We’re achieving our goals thanks to the passion and dedication of thousands of people who are working and volunteering for us in a range of different roles.

OUR BOARD OF TRUSTEES MEMBERS

Trustees as at September 2016 Members as at September 2016 Dr. Robert Weatherstone - Chairman Dr. Peter Coyle Dr. Peter Kershaw Peter Crutchett - Vice Chairman Brian JM Edmunds Don May Malcolm Miller - Treasurer Valerie Fletcher John McKernan Neville A. Brown Alan Gray Pauline Obee Peter Adams Sally Holland Michael Pointer David Burton Jim Hooper Geraldine St. Louis Christopher Ghiotti Sir Alex Jarratt Dr. Gurdev Saini Robin Wright Paul Gwinn Peter Batt PATRONS Pauline Russell Richard Madeley Melvin Wallace Other trustees who served during the year Barry Hearn Tony Ramsay to March 2016 Imogen Heap Sir Eric Pickles MP Sally Holland Cliff Jones Andrew Rosindell MP (resigned 22nd Sept 2015) John McKernan Dr Richard Beaver Stephen Roome Joan Holmes Sir Alex Jarratt (Treasurer) (resigned 23rd Feb 2016)

SOCIAL MEDIA

Social media is an increasingly important tool for us to speak with our supporters, raise awareness of our services and promote our income generating activities.

One of our biggest challenges is to eliminate fear and misconceptions about hospice care so, by sharing stories of people we are looking after to a wider audience using social media, we are starting to break those barriers down.

Below are some statistics to demonstrate the growth in this field and how effective social media can be in promoting our messages. We highly recommend you join us on Facebook, Twitter or Instragram for the latest news, views and fundraising information.

Facebook Twitter Instagram @saintfrancishospice @SFHUK @saintfrancishospice April 15: 5,144 page likes April 15: 1,744 followers April 15: 56 followers March 16: 6,034 page likes March 16: 2,329 followers March 16: 473 followers Annual Review | 2015-16 | 23

THANK YOU!

The dedication of our local community and our supporters is unrivalled. We value everyone’s contribution and are extremely grateful to everyone who supports us. Thank you.

Our special thanks to the following trusts, foundations, statuatory bodies and corporate partners. TRUSTS & FOUNDATIONS

Cecil Rosen Foundation Deirdre and Richard Palk Charitable Trust Ebenezer Trust B & P Glasser Charitable Trust Bernard Sunley Charitable Foundation Delva Patman Redler The Lexus Foundation Morrisons Foundation RUB White Charitable Trust Jack Petchey Foundation The Albert Hunt Trust Caledonia Investments Charitable Trust Local Green Points The Ogilvie charities League of Friends of Harold Wood Hospital Travers Smith Foundation Awards for All OdysseyRe Foundation February Foundation Rank Organisation Hospice UK Rothschild Matthew Good Foundation Mulberry Trust The Thomas J Horne Memorial Trust Mark Ridgwell Leukaemia Trust Shell SNR Denton Souter Charitable Trust William Berman’s Charitable Trust Lexus Foundation The Albert Hunt Trust YJS Trust Big Lottery Reaching Communities FSJ Charities Hadley Trust Santander Community Plus Veolia Environmental Trust Children in Need Cohen Charitable Trust

CORPORATE PARTNERS

Athona Recruitment Balgores Leasing Ltd Bennetts Funerals Burgoynes Marks & Spencer Lakeside Marks & Spencer Brentwood Marygreen Manor Matchroom Sport Mercury Mall Neopost Limited The Hall Broxhill Road Havering-Atte-Bower Romford Essex RM4 1QH

01708 753319 [email protected] www.sfh.org.uk

Registered Charity No. 275913