Thelowe Syndrome
Total Page:16
File Type:pdf, Size:1020Kb
SATURDAY 10TH MAY 2008 THE LOWE SYNDROME GALA CHARITY EVENT Thank you for attending tonight’s Lowe Syndrome Trust THE charity event at the May Fair Hotel. I have been a Trustee of the LOWE SYNDROME Lowe Syndrome Trust since it was founded just over eight years GALA CHARITY EVENT ago and proud to be part of such a worthwhile cause. Lowe Syndrome is a devastating disease that affects thousands of boys born worldwide with symptoms including cataracts TH 10 MAY 2008 (either blind or partially sighted), stunted growth, poor muscle THE MAY FAIR HOTEL tone, rickets, scoliosis, arthritis (some never walk), kidney STRATTON STREET problems, epilepsy and mental impairment. In spite of these LONDON W1 handicaps, the little boys have extremely happy and cheeky personalities. Sadly few become adults. The charity is very small but is now regarded as the main fund raiser in the world for medical research. To date, we have funded 12 research projects in the UK including Dundee University, Great Ormond Street Children’s Hospital, University College London, Institute of Ophthalmology, Imperial College London, Addenbrooke’s Hospital Cambridge and Manchester University. Projects funded in the USA include The Institute of California and most recently Purdue University. These projects are paving the way to finding better treatments and eventually a cure - with your help we are one step nearer. Have a great evening! LOWE SYNDROME TRUST TRUSTEE, JONATHAN ROSS Landsbanki is very proud to be associated with the Lowe Syndrome Trust Charity Event and to be supporting the hard work that goes into raising awareness and funds with the objective of discovering a better treatment for the disease and an eventual cure. Landsbanki is a 121 year old Icelandic bank known for being one of the largest and most generous sponsors in Iceland. A key objective of the bank is to give something back to the community as a responsible corporate institution. As we have grown internationally, we inevitably wish to carry forward this tradition forward of supporting worthy causes in our local markets. Landsbanki Islands hf. is a leading Icelandic financial institution, headquartered in Reykjavik. The bank offers a full range of financial services and is a market leader in all major segments of the Icelandic financial services sector. Building on its strong foundation in Iceland, Landsbanki has successfully extended its services into new markets. Landsbanki and its subsidiaries have offices in all the major financial centres of Europe, as well as having representation in North America. The bank delivers a bespoke corporate finance, commercial finance, trade finance, leverage finance capability as well as The Lowe Syndrome Trust is a UK Charity formed in June providing capital markets and fixed income solutions – locally 2000 by parents of Lowe Syndrome children to help raise and on a global basis. funds for medical research in the hope of better treatments and eventually a cure for this tragic and under-researched We hope a substantial amount of money is raised from this disease. Lowe Syndrome is a genetic disorder that can occur charitable event to help fund future Lowe Syndrome projects with no family history, affecting boys with multiple physical and to bring the Trust one step closer to finding a cure for and mental handicaps including cataracts in both eyes, muscle the children so tragically affected by this currently incurable weakness (hypotomia or floppy baby syndrome), kidney disease. problems, cysts, brittle bones, arthritis, poor growth, mental Have a great evening impairment with behaviour problems (autistic spectrum disorder) and epilepsy. Sadly the life expectancy for these children is short due to the complications of the disease and the lack of funding into finding a cure. Three’s A Crowd is BALDVIN VAlt YSSON committed to raising awareness and funding for the Lowe HEAD OF LONDON BRANCH Syndrome children. PROGRAMME DATE Saturday, 10th May 2008 VENUE The Crystal Room, The May Fair Hotel PROGRAMME 19:00 Champagne reception 20:30 Five Michelin Star rated three-course dinner 22:00 Welcoming note 22:05 Dynamo 22:25 Charity auction with Christopher Biggins 22:50 Very special surprise guest 23:00 Closing note 23:05 Bryan Ferry 23:45 DJ 01:00 Carriages MENU Three’S A CROWD IS PROUD TO ANNOUNCE AN EXCLUSIVE Welcome to One Hundred One – a truly unique and BESPOKE MENU CREATED BY ONE HUNDRED ONE, UNIQUE TO exclusive private dining club in the UK. One Hundred THE LOWE SYNDROME GALA CHARITY EVENT 10TH MAY 2008. One provides unrivalled access to the culinary talents of the best chefs in the country, from a host of Michelin starred talents such as Atul Kochhar, Marcus Wareing and Shane Osborn to TV personalities including the Hairy Bikers. STARTER Chef Atul Kochhar For those seeking the opportunity to enjoy the best in Soft-shell crab with kumquat chutney gourmet cuisine either in an intimate setting at home or Karara kekda at an organised event, One Hundred One is priceless. Through the most critically acclaimed chefs in the MAIN Chef Michael Caines industry we provide delicious fresh food, prepared in the Best-end slow roasted lamb with fondant of potato, tomato fondant most ground breaking ways. Minted and broad bean onion purée with tapenade jus. To engage the services one or a series of our chefs, simply tell us your requirements and One Hundred One will DESSERT Chef Marcus Wareing organise everything. Warm chocolate moelleux with banana caramel jelly and banana ice cream BRYAN FERRY Bryan Ferry emerged as if from nowhere in 1972 when he launched Roxy Music on an unsuspecting but highly receptive world. The band was the ideal vehicle for his multifarious talents as a composer, singer and visual artist - the wildly innovative music was presented via equally original artwork, costumes and stage shows. Roxy Music crystallised the hippest style of the 70s, sophistication crossed with street-credibility. A series of ground breaking albums such as For Your Pleasure and Siren and hit singles like Love Is The Drug and Jealous Guy brought the group worldwide success, culminating in the album Avalon in 1981. Ferry, starting with These Foolish Things in 1973, has meanwhile proved himself a masterful interpreter of other composers’ songs with a series of solo albums. Since Roxy Music broke up in 1982 he has blended the two strands of his career into one, variously recording pop classics and his own material on the albums Boys And Girls, Bête Noire, Taxi and Mamouna. His album of songs from the 1930s, entitled As Time Goes By, was released to commercial and critical success in 1999 and was nominated for a Grammy Award. Since his solo release Frantic in 2002 Bryan has toured with a reformed Roxy Music and has continued with his own successful UK and international appearances. Bryan’s latest release the Platinum Collection album is in stores now. TARA PALMER- CHRISTOPHER TOMKINSON BIGGINS Tara Palmer-Tomkinson, the original IT girl, has become Christopher Biggins is a well loved television presenter, a household name since she first came to the attention of pantomime actor and the fifth male winner ofI’m a Celebrity... the media in 1996. After having four memorable years as a Get Me Out of Here! 2007. columnist for the Sunday Times and a weekly page in Closer magazine, she continues to contribute to titles such as GQ, Biggins is most famous for being a comedy actor, appearing the Observer, Harpers and Queen, Evening Standard, The as the regular character Lukewarm in the popular situation Telegraph, Tatler, instyle, eve and the Times. She has also comedy Porridge starring Ronnie Barker. Other comedy shows enjoyed hosting a live radio show for LBC every Friday. he appeared in include Whatever Happened to the Likely Lads? (1973) and Some Mothers Do ‘Ave ‘Em (1973 & 1978). He In 2007 Biggins ermerged the winner of ITV’s jungle reality After taking part and winning last year’s “Comic relief does played Nero in the BBC dramatisation of I, Claudius by Robert show I’m a Celebrity...Get Me Out of Here! He then appeared Fame Academy”, 2007 proved to be a busy year for Tara as Graves, having been selected for the role partly on the strength alongside fellow I’m a Celebrity...Get Me Out of Here! she is making waves in the world of business with her bespoke of a television commercial in which he had played a Roman contestant, Anna Ryder Richardson, on Who Wants to Be a events and online lifestyle agency Three’s A Crowd (www. emperor presiding over the games. He also appeared in the Millionaire?, where Christopher and Anna shared a £50,000 threesacrowdevents.com, www.3sacrowd.com) which floated BBC’s adaptation of Poldark 2. prize for their chosen charities. Christopher also appeared on the stock market last November. on the of the year 2007 with former camp-mate On children’s television he had a regular role as supermarket Big Fat Quiz Cerys Matthews about their time in the jungle. 2007 also saw the publication of her new book ‘The Naughty manager Adam Painting in the children’s television programme Girl’s Guide to Life’, a tongue-and-cheek self help book written Rentaghost (1978-1983) and also played Reverend Whiting in with Sharon Marshall of This Morning and The Sun. On top southern television’s Brendon Chase, produced in 1980. of this, she has been chosen to be the Ambassador of luxury “Karma Resorts” worldwide. Biggins appeared in the Big Finish Productions audio drama The one doctor, based on the television series Doctor Who. His Tara’s television profile is second to none, successfully hosting film roles includeThe Rocky Horror Picture Show (1975).