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Emotional Wellbeing Ways to Manage Your Moods The Official Magazine of MS www.ms.org.au ISSN 1833-8941 Print Post Approved: Autumn 2014 100003204 Subscribe to Intouch and you could win a $500 gift card See page 4 for details How to deal with a ‘reality gap’ Be inspired to extend your fitness Emotional wellbeing Ways to manage your moods ‘SEEING MS’ PASSIONATE CAMPAIGN PURSUITS The story behind it Do something you love www.facebook.com/msgetinvolved twitter.com/msgetinvolved www.pinterest.com/msgetinvolved instagram.com/msgetinvolved Editor: Toni Eatts Publisher: Multiple Sclerosis Limited 14 ABN: 66 004 942 287 Website: www.ms.org.au Frequency: Published quarterly in March, June, September and December Advertising enquiries: Tel: (02) 8484 1316 Email: [email protected] Design: Byssus, 0411 202 642, www.byssus.com.au Photographs: The stock images published in Intouch are sourced from Thinkstock.com Printing: Webstar Print Multiple Sclerosis Limited ACT Gloria McKerrow House 117 Denison Street Deakin ACT 2600 Tel: (02) 6234 7000 Fax: (02) 6234 7099 NSW Studdy MS Centre 80 Betty Cuthbert Drive Lidcombe NSW 2141 Tel: (02) 9646 0600 Fax: (02) 9643 1486 Victoria The Nerve Centre 54 Railway Road Blackburn VIC 3130 Tel: (03) 9845 2700 Fax: (03) 9845 2777 MS ConnectTM (information and services): 1800 042 138 (free call) Regional offices: Visit www.ms.org.au and click on ‘Contact Us’. Privacy Policy: For our full policy document, visit www.ms.org.au ISSN: 1833-8941 18 35 Disclaimer: Information and articles contained in Intouch are intended to provide useful and accurate information of a general nature for the reader but are not intended to be a substitute for legal or medical advice. Multiple Sclerosis Limited is not recommending medical or legal advice, and readers must seek their own medical 24 or legal advice as might be appropriate. Advertising disclaimer: Advertisements are provided to assist consumers to locate and purchase suitable products and services. Multiple Sclerosis Limited does not endorse any one product or service over another; nor do we receive any commission on sale of items. Consumers are encouraged to discuss the options for exchange or return at time of purchase with a specific supplier because Multiple Sclerosis Limited is not liable in the event the product is not satisfactory. MS is a not-for-profit organisation that has been supporting and helping people with multiple sclerosis (MS) since 1956. Through an extensive network of centres, branches, support groups and health services, the organisation provides specialist programs to people with MS, their families, carers, friends and healthcare professionals. 30 © Multiple Sclerosis Limited, 2014 2 intouch autumn 2014 www.ms.org.au www.ms.org.au autumn 2014 intouch 3 Contents CEO’s message FEATURES Welcome to the Autumn 2014 edition of Intouch. We’ve had a 4 Subscribe to get Intouch great start to 2014 with our four 13 My story: motivating myself new General Managers working Justine Martin learnt many hard to ensure that our organisation valuable lessons from being continues to meet the needs of people a young carer for her mother, who struggled with MS. with MS. You’ll find short biographies of our new General Managers on page 14 Maintain your nine, and it’s my pleasure to introduce emotional wellbeing you to our new Board members: Karen Hayes, Denise Cosgrove, Gain insight into how you can stabilise your emotions during Scott McCorkell and Don Ferguson. You can find information about the challenges of MS. them on our website www.ms.org.au I’m excited about our Seeing MS campaign that was unveiled 18 Seeing MS Meet the family behind our new in March and will continue through to MS Awareness Month in MS-awareness campaign, and May. This innovative campaign was initiated by Lyn Petruccelli, a learn how you can get involved. Melbourne woman living with MS, her photographer husband Louis, and their daughter Laura. Learn more about them on page 18. MS COMMUNITY We’re championing Seeing MS because it will help employers, the wider community and the family members of people living with 11 MS Walk and Fun Run MS understand the impact of the ‘invisible’ symptoms of MS. I 23 Community fundraising: encourage you to visit www.seeingms.com and to get involved. Thank you for your hard work. I’d also like to share with you the good news that Carol Cooke, 24 Volunteers in action: an MS Ambassador and creator of the MS Mega Swim, was Meet people helping to honoured with a Member of the Order of Australia on Australia Day. make a difference. In December, one of our former employees, Robert Pask, won the 26 Peer support: Excellence in Advocacy and Rights Promotion Award in recognition Sharing the MS journey of his work establishing the MS Australia Advocates Program. It’s 27 Support group profile: well-deserved recognition for both. Tweed MS Support Group Added to this, we’ve had a terrific start to fundraising with the MS Colour Dash being held in Sydney, Melbourne and Canberra 28 MS Ambassador profile: and the annual MS Melbourne Cycle. So thanks to everyone who Meet Beth Wurcker. participated or volunteered for these events. HEALTH & WELLNESS Coming up in on Sunday, 1 June, we have our annual MS Walk and Fun Run where we’re aiming to raise $1.5 million to provide 30 Make peace with emotions much needed funds to expand our early diagnosis services. We Discover ways to deal with the need 12,000 people to walk or run the beautiful courses in gap between how life is and Sydney, Canberra and Melbourne. Entry is free for people how you want it to be. living with MS, and I hope you’ll join us. Please encourage your 32 Extend your fitness Learn how family and friends to ‘Get Fit for a Cause’, go to www.mswalk.org.au an 85-year-old woman who has and participate in this terrific event. MS does boxing drills to keep fit. 34 Easy access You can now use the eHealth system to store information. Robyn Hunter LIFESTYLE Chief Executive Officer, MS 35 Passionate pursuits Four people living with MS draw Subscribe to Intouch and win $500 strength from doing what they love. We’re making some exciting changes to Intouch, so to ensure you keep getting Intouch, please join our list of subscribers by REGULARS sending us your postal and/or email address. There’s a form 6 News that came with this issue and a ‘reply paid’ envelope to make 10 NDIS update it easy. Send it to us by 2 June and you’ll be in the running to 12 Q&A win a $500 Coles Myer card. Turn the page to find out more. 20 MS Events The Official Magazine of MS Australia – ACT/NSW/VIC www.msaustralia.org.au/actnswvic 22 Family and carers 29 MS Readathon The Official Magazine of MS Australia – ACT/NSW/VIC www.msaustralia.org.au/actnswvic www.msaustralia.org.au/actnswvic The Official Magazine of MS Australia – ACT/NSW/VIC ISSN 1833-8941 39 New resources Print Post Approved: Spring 2013 100003204 ISSN 1833-8941 Print Post Approved: SpotlightSummer on 2013 PP 255003/08108 sex and intimacy Great ideas ISSN 1833-8941 Autumn 2013 Print Post Approved: 100003204 that will inspire you to exercise 2 intouch autumn 2014 www.ms.org.au www.ms.org.au autumn 2014 intouchYoung people 3 living with MS Readathon’s top fundraisers How to prevent pressure injuries Stay employed Country With support, you can keep on working Tim Ferguson explains why he living revealedDISABILITYCARE his MS FINANCIAL Parenting AUSTRALIA INFORMATIONPoints to consider if you Ways to beat yearn for a rural retreat and MS ChristmasWhat blues happens next? Superannuation and insurance You and your family can thrive EMERGING FINANCIAL TREATMENTS GO FOR GOLD INFORMATION Exploring stem cells KISS GOODBYE Rebates for energy bills TO MS 2013: SCHOLARSHIPS Get involved during May This year’s winners Subscribe to get Intouch We’re thrilled to announce we’re increasing our communication with the MS community, so subscribe to Intouch and you could win a $500 gift card. Get ready for a new-look Intouch newsletter and a new Intouch e-newsletter. Via these two new versions of Intouch, www.msaustralia.org.au/actnswvic we’ll continue to give you health and wellness information, The Official Magazine of MS Australia – ACT/NSW/VIC stories about inspirational people who live with MS, MS community news and MS research updates. By providing a regular e-newsletter version of Intouch, Spring 2013 we’re increasing the number of times we communicate with ISSN 1833-8941 Print Post Approved: you. We’re also responding to the findings from the MS 100003204 Needs Analysis which show that people living with MS want to receive information online because it’s more accessible, Spotlight on sex and intimacy convenient and anonymous. However, if you’d prefer to keep Great ideas that will inspire receiving the printed newsletter, you can three times a year. you to exercise Remember, if you subscribe to either version of Intouch, The Official Magazine of MS Australia – ACT/NSW/VIC you’ll be in the running to win a $500 Coles Myer gift card. www.msaustralia.org.au/actnswvic Whichever choice you make, it’s as easy as ‘1, 2, 3’: StayISSN 1833-8941 Print Post Approved: 100003204 For the printed newsletter, make sure you send your employed Summer 2013 postal address to us via the subscription form and reply With support, you 1 can keep on working FINANCIAL paid envelope that arrived with this issue of Intouch, or DISABILITYCARE INFORMATION AUSTRALIA Superannuation and insurance go to www.ms.org.au and register your postal address.
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