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PATIENT INFORMATION

CFS/ME Supporting Services Information

Website: http://tsdft.uk/cfsme Or https://www.torbayandsouthdevon.nhs.uk/cfsme

Working with you, for you CFS/ME Service - NHS Website

Please see our video and other resources on our trust website

We have our relaxations available, to listen to or download via the Torbay and South Trust Website; please enter the link below to gain direct access.

https://tsdft.uk/cfsme or https://www.torbayandsouthdevon.nhs.uk/cfsme

CFS/ME CHARITIES FIBROMYALGIA

Action for ME (AFME) Fibromyalgia Association Open Mon-Fri 10am-4pm UK

Tel: 0117 927 9551 Website: www.fmauk.org/ Select option 6 Fibromyalgia Association UK or Email at any time: is a registered charity run [email protected]. primarily by unpaid uk volunteers. The majority of or Write to: volunteers are also Action for M.E. fibromyalgia sufferers who 42 Temple Street work extremely hard, despite Keynsham their condition, in order to BS31 1EH forward the cause of fibromyalgia. FMA UK was Website: established in order to https://www.actionforme.org. provide information and uk/contact/ support to sufferers and their For all information on CFS/ families. In addition, the ME related issues. Association provides medical Information and sign posting information for professionals to NHS Services, local and operates a national support groups, information helpline. and resources about the illness.

ME Association support line Website: http://www.meassociation.or g.uk/information-and- support-line/

ME connect helpline available: Mornings 10-12 midday Afternoons 2-4pm Evenings 7-9pm Tel: 0844 5765326 (can be expensive on mobiles)

SOCIAL NEEDS & They hold a wide range of INDEPENDENT LIVING information for families in Torbay who are either Social Services accessing our services or looking for available groups, Torbay, , events, activities, advice and : other support available Tel: 01803 219 700 COUNSELLING Devon (covering and South Ask your GP about local Hams): counselling services. Private Tel: 0345 1551 007 Counsellors are also available. Aims to make life easier for people, by providing help Disability Support Torbay and information on, care and support, home matters, 1 Lymington Road, money and benefits and TQ1 4BW keeping well. Tel: 01803 215871

Free counselling service Independent Living Centre Also helps with benefits advice, befriending, internet, Devon House, Brunel Road, payroll, managing direct , TQ12 4PB payments. Tel: 01392 380181 Email: ilc- Relate @devon.gov.uk Tel: 01803 299001 or Free and impartial 07436 804511 equipment advice and assessment service in Relationship counselling for Devon individuals and couples. Low cost schemes available, but Torbay’s Family there may be a long waiting Information Service list. Many relate organisations throughout the Tel: 0800 328 5974 country. Look in local Website:www.torbay.gov.uk/f directory or on website. is www.relate.org.uk Email: Email: [email protected] [email protected] STRESSED, ANXIOUS, Depression Alliance FEELING LOW? Tel: 0845 7678000 Depression and Anxiety 6pm-11pm Service . Support, information and Torbay, Paignton, Brixham: advice about issues around Tel: 01803 696600 depression. Self-help workshops may be available. Devon (covering Teignbridge Free info pack available. No and ): listening or help line Tel: 01626 203500 available.

If you have low mood or www.depressionalliance.org anxiety related problems, or email: you can ask your GP about a information@depressionalliance. org referral or refer yourself to the Depression and Anxiety Self-help Resources Service. www.getselfhelp.co.uk free

downloads and factsheets No Panic (phobias and www.ntw.nhs.uk/pic/selfhe anxiety) lp/

Newcastle, Tyne and Wear Tel: 0844 967 4848 10am - NHS self help factsheets 10pm

Youth helpline (13 – 20 year Samaritans olds) 01753 840393 4pm- Call: 116 123 6pm Mon-Fri Email: [email protected]

Free information pack available. Trained volunteers CARERS CHARITIES offer support and advice. Signposts for Carers Specialist information and Website: www.nopanic.org.uk support for carers in Torbay area Saneline Tel: 01803 666620 Email: signpost @nhs.net Tel: 0300 304 7000 6pm-11pm 365 days a year. Devon Carers Helpline Information and advice for Help for anyone with a carers in Devon mental health need. Tel: 0845 6434 435 Website:www.sane.org.uk Carers Crossroads Care South Consortium West

11 Castle Road The Olive Carers Centre Torquay St Edmunds TQ1 3BB Victoria Park Road Tel: 01803 294275 Torquay TQ1 3QH Body of people, some of Tel: 01803 323510 whom represent charities, Email: with an interest in Carer’s [email protected] issues. Offers counselling for www.crossroadscaresw.org. carers. uk

Totnes Caring Limited Carers UK The Loft Offers help and support for Community Hospital carers. Website: Coronation Road www.carersuk.org/ Totnes TQ9 5GH The Carers UK advice line is Tel: 01803 865 684 open Monday to Friday, 10am-4pm Email: Tel: 0808 808 7777 [email protected] Email: [email protected] Website: www.totnescaring.org.uk/ South Hams & West Devon Carers Link Totnes Caring has a large pool of workers, mostly Totnes Community Hospital volunteers, who support Coronation Road clients in the community by Totnes driving them to TQ9 5GH appointments, befriending, Tel: 01803 862622 shopping etc.

Email: [email protected]

DISABILITY & Disability Law Service WELFARE Tel: 0207 791 9800 Action for ME Mon-Fri 10am-5pm Welfare Benefits Helpline Website: www.dls.org.uk

01749 330136 Provides free confidential 9am-1pm, Mon, Tue, Thurs legal advice and & 9am – 12.30pm Fri representation on issues that Website: www.afme.org.uk relate to disability. The & disability law service is made www.a4me.org.uk for people up of solicitors, advisors and under 20 years old. trained volunteers who provide up-to-date, informed Advice and information on legal advice for disabled accessing benefit people, their families, entitlements. Must be a enablers and carers. member of AFME to access this service. Also see AFME’s publications list for Law Centres Federation vital information leaflets on benefits available to people Tel: 0207 428 4400 to find with CFS/ME including local law centres guidelines on form filling for Website: DLA, IB, DSS medical www.lawcentres.org.uk examinations, surviving appeals etc. Information on local Law Centres (57 around the Disability Alliance country) which offer free legal advice on welfare Tel: 0207 247 8776 benefits, housing education Mon-Fri 10-4pm etc. Website: www.disabilityalliance.org Devon Law Centre Telephone Advice Line gives help on social security and Tel: 01752 519794 disability benefit issues. www.devonlawcentre.org.uk Provides information on benefits through publication, free briefings and training.

Dial UK EMPLOYMENT ISSUES

Tel: 01302 310 123 ACAS

Dial UK (Disability Helpline 0845 747 4747 Information and Advice Mon-Fri 8am-8pm Centre) provides information Sat 9am-1pm and advice on all aspects of Website: www.acas.org.uk living with a disability. Information and advice If you have concerns about available on: community your employers’ attitude to care, equipment, your illness, you may well independent living, mobility find it helpful to talk to an and transport, discrimination, advisor at ACAS, the welfare benefits and much government’s employment more. Ring to find your local advice body. group. www.dialuk.org.uk Citizen’s Advice, can also advise on aspects of employment and Equality and Human sickness/disability. See Rights Commission above for number/website.

Tel: 0845 604 6610 Website: RETURN TO WORK www.equalityhumanrights.co m Jobcentre Plus Telephone: 0345 606 0234 Central voice for disabled Textphone: 0345 605 5255 people trying to raise civil Monday to Friday, 8am to rights issues. The helpline 6pm provides information and advice on all aspects of the They will allocate you a Equality Act 2010, as well as DEA- Disability Employment sign posting to specialist Advisor organisations where necessary. New benefit claims only

Telephone: 0800 055 6688 Textphone: 0800 023 4888 Monday to Friday, 8am to 6pm

The Disabled Workers Existing benefit claims Co-operative only

Website: Telephone: 0345 608 8545 www.disabledworkers.org.uk Textphone: 0345 608 8551 Monday to Friday, 8am to A registered charity that 6pm helps disabled people to help themselves. Our aim is twofold - to raise the Tax Credit Helpline independence of disabled people by enabling them to Telephone: 0345 300 3900 take an active role in the Textphone: 0345 300 3909 economy and achieve a Opening times: greater sense of self-worth 8am to 8pm, Monday to and also to raise awareness Friday of the contribution that 8am to 4pm Saturday disabled people can make to society. Child Benefit Helpline

Voluntary work Telephone: 0300 200 3100 Textphone: 0300 200 3103 Website: www.do-it.org Monday to Friday, 8am to 8pm Access local unpaid Saturday, 8am to 4pm community work. Pension Credit claim line

BENEFITS ADVICE & Telephone: 0800 99 1234 ENTITLEMENTS Textphone: 0800 169 0133 Monday to Friday, 8am to Visit www.gov.uk the best 6pm place to find government services and information. DWP - Personal Independence Payment New benefit claims only claims

Telephone: 0800 055 6688 Telephone: 0800 917 2222 Textphone: 0800 023 4888 Textphone: 0800 917 7777 Monday to Friday, 8am to Monday to Friday, 8am to 6pm 6pm

FINANCIAL ADVICE & TQ3 3EQ SUPPORT Telephone: 01803 521726

Torbay Disability Torquay Debt Advice Unit - Information Service Torbay St Edmunds 11 Castle Road Victoria Park Road TQ1 3BB Torquay TQ1 3QH General advice: 01803 Telephone: 0300 456 8373 521726 Drop-in service available Debt and Crisis Advice Line: from Monday to Thurs, 9am 01803 297803 – 4.30pm and Friday, 9am – Monday to Thursday 9am to 1pm. 4pm Friday 9.30am to 1.00pm Disability Support Torbay 1 Lymington Road Healthwatch Torbay Torquay TQ1 4BW Tel: 01803 215871 Freepost-RTCG-TRXX-ZZKJ 10am to 4pm Monday to Paignton Library & Friday Information Centre, Great Western Road, Citizens Advice Bureau Paignton TQ4 5AG www.citizensadvice.org.uk/ Telephone: 03444 111 444 Telephone: 08000 520 029 Text Message: 07584483373 Newton Abbot (Teignbridge) Email: Citizens Advice Bureau [email protected]. 36-38 Market Walk uk TQ12 2RX Walk in centre: Mon-Thurs 10am-3pm, Fri Totnes (South Hams) 9.30am-12pm Citizens Advice Bureau Follaton House Website: Road www.healthwatchtorbay.org. TQ9 5NE uk/ Open 10am-1pm and 2pm- 4pm Monday to Thursday for Healthwatch belongs to and telephone contacts, reflects people and their appointments and drop-in. local community. It needs to Friday: appointments only feel approachable, practical Paignton Citizens Advice and dynamic, and to act on Bureau behalf of local people. 29 Palace Avenue NOTES

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25520 V1/Neurology/TSDFT/04.19/Review Date 04.21