THE BRAIN ANEURYSM FOUNDATION 2012 Annual Report Together ... we teach and learn we comfort and support we can fund research that saves lives we are !e Brain Aneurysm Foundation 2012 Boards and Staff "e Executive Director MEDICAL A DVISORY BOARD It is hard to imagine another year has gone! Thanks to your continued support in 2012, the foundation reached a milestone of over Executive Director - Founder $1,000,000 dollars in donations. This is a tremendous achievement for an organization that has no governmental funding, has not he Brain Aneurysm Medical Advisory Board of Directors Neil A. Martin, MD Christopher S. Ogilvy, MD Bernard R. Bendok, MD Geffen School of Medicine at UCLA, been awarded grants, but rather is propelled by those near and dear to the cause of brain aneurysms. Massachusetts General Hospital, Boston, MA Northwestern University, Chicago, IL Los Angeles, CA TFoundation is fortunate Aside from the foundation’s financial success, there were many other notable accomplishments in 2012. For the first time the President Gavin W. Britz, MB BCh, MPH !omas Masaryk, MD foundation had a Lobby Day on Capitol Hill to raise awareness, stress the importance of early detection, and make a plea for greater to have a Medical Advisory Board Robert H. Rosenwasser, MD, FACS Duke University Medical Center, Durham, NC "e Cleveland Clinic, Cleveland, OH funding for brain aneurysm research. We expanded our research grants awarded to 10 grants in the total amount of $200,000; we composed of neurologists, "omas Jefferson University Hospital, Dongwoo John Chang, MD, FRCS(C) Jacques J. Morcos, MD, FRCS (Eng), Philadelphia, PA Saint Anthony Medical Center, Rockford, IL FRCS(Ed) had a documentary aired on the Discovery Channel; and, we created a continuing medical education (CME) lecture targeting primary neurosurgeons, and interventional Vice President Aaron A. Cohen-Gadol, MD, MSc University Of Miami Health System, Miami, FL A W!"#care professionals so $!%they can better understand the signs, symptoms, and proper diagnosis procedures for brain aneurysms. Robert D. Brown, MD Methodist Hospital, Indiana University, Eric Nussbaum, MD, FACS neurologists from around the world Proudly we continued in our effort to assist hospitals create a support group for their patients and families, bringing the total number Mayo Clinic, Rochester, MN Indianapolis, IN National Brain Aneurysm Center, St. Joseph’s Hospital, St. Paul, MN of groups to approximately 60 support groups across the US and Canada. Our monthly webinars continued to have great attendance working at many of the world’s most Regional Directors E. Sander Connolly Jr., MD, FACS Columbia University Medical Center and Christopher Putnam, MD with people joining from not only the US, but other countries as well. In 2012 there were multiple events each month being held Northeast prestigious medical facilities. These New York-Presbyterian Hospital, New York, NY Inova Fairfax Hospital, Fall Church, VA across the country due to the generosity of many of you. All these things along with the continued growth on our social media sites David J. Chalif, MD, FACS Aaron S. Dumont, MD Peter Rasmussen, MD North Shore University Hospital, Manhasset, NY have brought brain aneurysm awareness to a new level. doctors provide continued expertise "omas Jefferson University Hospital, Cleveland Clinic Main Campus, Cleveland, OH Carlos David, MD Philadelphia, PA Andrew J. Ringer, MD My heartfelt gratitude, on behalf of the foundation, goes out to you for all you have given to the foundation in 2012 to bring us to and support to the foundation in a Lahey Clinic, Burlington, MA David M. Greer, MD, MA, FCCM, FAHA Neurosurgeon Mayfield Clinic for Brain & Spine, new heights and cross the $1,000,000 threshold! Your donations of time, talent, and money have enabled The Brain Aneurysm variety of ways and we are grateful for Southeast Yale University School of Medicine, Cincinnati, OH Foundation to continue the fight against the devastation caused by brain aneurysms. Daniel Barrow, MD New Haven, CT Joshua Seinfeld, MD the time contributed and the dedication "e Emory Clinic, Atlanta, GA Murat Günel, MD, FACS University of Colorado Hospital, Aurora, CO I look forward to the accomplishments we will achieve together in 2013. Your continued support and new ideas are critical to our Robert J. Singer, MD Yale University Medical School, New Haven, CT Adnan H. Siddiqui, MD, PhD future fight against brain aneurysms. of our medical experts. In 2012, we Neurovascular "erapeutics, Vanderbilt University Brian L. Hoh, MD, FACS, FAHA, FAANS University at Buffalo Neurosurgery, Buffalo, NY Thank you again for your dedication to The Brain Aneurysm Foundation. expanded our Medical Advisory Board Medical Center, Nashville, TN University of Florida, McKnight Brain Institute, Gary K. Steinberg, MD, PhD Midwest Gainesville, FL Stanford University School of Medicine, Stanford, CA Best wishes – Christine Buckley, Executive Director adding sixteen new members to continue Sepideh Amin-Hanjani, MD, FACS Robert Kooken, PhD Rafael Jesus Tamargo, MD University of Illinois at Chicago, Chicago, IL Neuropsychological Services, New Zealand to strengthen our visibility and representation "e Johns Hopkins Hospital, Baltimore, MD Paul J. Camarata, MD, FACS Michael Lawton, MD John A. Wilson, MD "e Medical Advisory Board Executive Director throughout the country. University of Kansas Medical Center, UCSF Medical Center, San Francisco, CA Wake Forest Baptist Health, Winston-Salem, NC The end of the year marks a time for reflection on accomplishments of the past. The Brain Aneurysm Foundation was fortunate in Kansas City, KS Stephen Lewis, MD, FRACS Gregory J. Zipfel, MD 2012 as it demonstrated continued growth financially as well as in many awareness activities due to the support of so many of you. West University of Florida, Gainesville, FL Washington University, St. Louis, MO The Brain Aneurysm Foundation has funded a total of $675,000 of research since the inception of the grant program in 2007. In 2012 The Brain Aneurysm Foundation is grateful Bob S. Carter, MD, PhD R. Loch Macdonald, MD, PhD Professor Mario Zuccarello, MD the largest amount of funding to date, $200,000, was distributed to ten different research projects selected through a competitive UCSD Medical Center, San Diego, CA St. Michael’s Hospital, University of Toronto, for the service of the Board Members who University of Cincinnati, Cincinnati, OH process. This funding will continue to further efforts to identify and treat unruptured aneurysms as well as aneurysmal subarachnoid David Newell, MD Toronto, ON hemorrhage and its associated complications, such as vasospasm and stroke. In addition to the increased funding efforts for give very generously of their time, talent and Seattle Neuroscience Institute - Swedish Hospital, Seattle, WA research, The Brain Aneurysm Foundation surpassed the $1,000,000 mark of donations for the first time. Undoubtedly, these funds individual perspective providing inspired will be a valuable resource in the foundation’s mission of raising worldwide awareness and education of brain aneurysms. BOARD OF D IRECTORS / S TAFF D IRECTORY direction to fulfill the mission of the organization. Staff Directory Executive Committee Board Members 2012 was an exciting year for the development and implementation of efforts to raise awareness for the public, as well as healthcare Christine Buckley Joshua Truitt Scott Campbell professionals. The foundation created a continuing medical education (CME) lecture aimed at primary care professionals to help Executive Director President Rep. Paul Donato them better understand the signs, symptoms, and proper screening for brain aneurysms. This lecture was delivered at a PRI-MED Together, we teach and learn, we comfort and Ginny Comstock Tocci Bill Demmer Frank Eeckman, MD, PhD Conference in Boston, MA to over 500 attendees. Our hope is to provide similar lectures in different cities each year. 2012 was support, we can fund research that saves lives, Director of Development and Administration Vice President Joy Fischer also a time of strengthening the Medical Advisory Board, with an increase of members and the development of regional leaders to Kristin Barrett Paul Games Alec Karys establish good representation across the US and Canada. we are The Brain Aneurysm Foundation. Manager of Marketing and Communications Treasurer Kathy Redelman, RN, BSN, CNRN Karen Hendrix Deidre Buckley, NP Joe Rooney On behalf of the Medical Advisory Board, I applaud you for all your efforts in 2012. I thank you for your continued support of The Accounting Secretary Elaine Schaller Brain Aneurysm Foundation and your commitment to pursuing research, education, and awareness and support for patients and Martha DiLorenzo Tom Susco families of this often devastating disease. I am hopeful 2013 will be as rewarding and that through our research, lives will be saved. Executive Assistant Christopher S. Ogilvy, MD, Executive Director, Medical Advisory Board, !e Brain Aneurysm Foundation "e Brain Aneurysm Foundation \ 269 Hanover Street, Building #3, Hanover, MA 02339 www.bafound.org \ 3 2012 Financial Summary * Research Grants I N 2012, THE BRAIN ANEURY SM FOUNDATION AWARDED TEN GRANTS TOTALING $200,000 SUPPORTING OUR COMMITMENT TO INVEST IN BRAIN ANEURY SM RESEARCH. The Brain Aneurysm Foundation awards research grants for basic scientific research directed at early detection, improved treatment modalities, and technological advances that will 2012 Revenues - $1,024,788 ince 1994, when The Brain Aneurysm Foundation was established in Boston ultimately improve outcomes for patients with brain aneurysms. The foundation’s Research Grant Committee is headed by Robert Rosenwasser, MD, FACS, Professor of Radiology and Neurosurgery at Thomas Jefferson University Hospital. He, along with three other members of the Medical Advisory Board, scores all grant applications Son August 19, 1994, as a public charity, our funding has been targeted to to determine the grant recipients based on the highest scores. 12% On September 20, 2012 at the Chase Park Plaza in St. Louis, MO, the grants were awarded at the Sixth Annual Brain Aneurysm Foundation Research Grant Symposium.