Impact report — 2017 фондImpact «обнаженные report — 2017 сердца» table of contents table of contents

foreword 4 who are we 6 2017 in the Foundation 8 Highlights of 2017 10

Every Child Deserves a Family programme 12 Early Intervention 18 School Project 26 Forum 32 Educational materials and training 38 Family Support Centre and Regional NGOs 42 Summer with Purpose 46 Advocacy 50

Play with Purpose programme 56

Financial report 68 How you can help 74

2 2 фондImpact «обнаженные report — 2017 сердца» foreword

Natalia Vodianova

The Naked Heart Foundation is continuing to introduce the Russian professional community and parents of children with autism to evidence-based support methods.

We are delighted that leading international experts Another important event was the long-awaited pre- have been to share evidence-based methods of miere of the music video for “Angel of Faith” by working with people with special needs, and that Basta and Polina Gagarina, which focused on the the results are already being seen in practice, in the pressing issue of the abandonment of children with work of Russian specialists. special needs. This was a continuation of our #dont- besilent project. However, our work as a whole will only be effective if social attitudes towards people with special needs Tens of thousands of children with living parents live and their family members change. That is why advo- in orphanages around Russia. This “social orphan- cacy is one of the Foundation’s main activities. hood” can and must be eradicated. While I under- stand that all of these actions is a drop in the ocean, A striking example of such work was our inclusive it is drops like these that will gradually build a soci- House of Hearts festival, the first of its kind to be ety that is open to all people, of all abilities. Thank held in Russia, which covered the main aspects you for supporting our common cause! of contemporary culture: music, literature, theatre, architecture, fashion and science. The programme was adapted in such a way that it allowed people with special needs to take part, and each guest was able to contribute to the development of an inclusive society.

3 фондImpact «обнаженные report — 2017 сердца» foreword

Anastasia Zalogina

We are delighted that more and more people are supporting the Naked Heart Foundation every year. Four years of work on our education project in Nizhny Novgorod have produced impressive results.

We started working with teachers from six spe- We’ve logged impressive numbers for the Summer cial schools in the city in 2013. A further four kin- with Purpose project, with more than 200 chil- dergartens joined the project in 2015, and in early dren with special needs visiting integrative camps 2016 we opened our Early Intervention Centre for in 2017. Most importantly, the Foundation trained young children with autism. The goal is to prepare staff from nine NGOs and funded camp sessions children with autism for school as early as possi- for seven organisations. 144 employees and volun- ble. The opportunity to regularly attend kindergarten teers gained knowledge about effective methods of with other children and to receive professional sup- working with children and young adults with autism, port allows children with ASD to feel more prepared which they will use in programmes to help children when they start school and to integrate more easily with special needs throughout the year. Further- into the new environment. more, we not only teach others, but we also con- tinue to learn ourselves. Last year our Early Intervention project was launched in collaboration with the Tula Centre for This year the sixth International “Every Child Children’s Psychoneurology, and it continues to Deserves a Family” Forum was devoted to evi- develop. The programme for the project was devel- dence-based support programmes. Over 700 par- oped by the Foundation and the project is curated ticipants from more than 80 cities and nine coun- by specialists from the Department of Neurol- tries (Russia, Ukraine, Belarus, USA, South Africa, ogy at the University of New Mexico, headed by Czech Republic, Finland, Estonia and Kazakhstan) Professor of Paediatric Neurology and Paediatrics attended our forum in Moscow. The speakers repre- John Phillips, and Naked Heart experts Svyatoslav sented six leading foreign universities, including the Dovbnya and Tatiana Morozova, who are also visit- University of New Mexico, the University of Utah and ing professors at the University’s faculty of neuro- the University of California. We are grateful to all the science. people who help us support children with special needs, and we appreciate any support that you are willing to give us, whether it is financial assistance or voluntary practical assistance. Let’s continue build- ing an inclusive society together!

4 4 Impact report — 2017 who we are

We are the Naked Heart Foundation, a charity created by Natalia Vodianova in 2004. The charity was set up in order to support children with disabilities in Russia.

We started by creating inclusive parks and playgrounds for children of all ages and abilities under our “Play with Purpose” programme. In 2011, we expanded our work and launched the “Every Child Deserves a Family” programme, which consists of a range of projects to support families of children with special needs. Our mission

is to help create an inclusive society that is open to people with disabilities and special needs.

We aim to ensure that no child with living parents ends up in an orphanage or a children’s home. We want to prevent parents from feeling that there is no other option but to place children with special needs in institutions, due to social pressures or failures in the health-care system. We also work with families who have made the difficult decision to keep their disabled child at home, making sure that they have access to a comprehensive range of free services and support from child development specialists who are trained in modern practices and methods.

We want every child to have access to a vibrant, safe and stimulating place to play. Every neighbourhood, children’s hospital and school should offer a modern play area that is suitable for children of all physical, mental and sensory abilities.

We are working on creating and developing a comprehensive support system that helps parents and professionals acquire new knowledge and improve existing skills relating to working with children with special needs. After all, effective support for such children starts with educating the adults taking care of them.

There is still a pressing need to develop a community of experts and specialists who work with children with special needs in Russia. There is currently a lack of professionals working in essential fields such as physical and occupational therapy, applied behavioural analysis, alternative and augmentative communication, and feeding and nutrition for children with multiple disorders. This is a new and costly area of education.

Crucially, all our programmes and workshops use evidence-based methods. This means that every decision relating to a support programme is based on clear evidence of the effectiveness and safety of existing methods, obtained through clinical trials. Only such an approach can enable the development of modern and effective programmes involving minimal cost and maximum benefit for children and their parents.

We believe that we need to work systemat- ically, gradually developing existing infra- structure to improve the living conditions of each individual child.

5 who are we

autism key facts Since 2004, we have: 1 in 160 children in the world has an autism spectrum disorder (ASD). In the US, the figure is estimated at 1 in 59. created 192 inclusive parks and According to the Ministry of Health, playgrounds in Russia and abroad; 1% of children in Russia have ASD. however, only 1 in 40 have been diagnosed. provided training on working with ASDs begin in childhood and tend children with autism to hundreds of to persist into adolescence and adulthood. child development specialists from all over the country and abroad; Worldwide, people with ASD are often subject to stigma, discrimination and human rights violations. Globally, access to services and arranged access to free professional support for people with ASD is inadequate. services and legal assistance for families raising children with special needs;

launched educational projects for early intervention and support in schools;

equipped six rooms with sensory integration and occupational therapy equipment;

How we work held six annual international forums;

Currently, the Foundation is working financed integrative summer camps in two main areas: for children with special needs;

“Every Child Deserves a Family” programme helped over 10,000 children through A comprehensive programme to support our programmes! families raising children with special developmental needs (p.11)

“Play with Purpose” programme Creation of inclusive play facilities (p. 55) We are very proud of the achievements of our small team!

6 фондImpact «обнаженные report — 2017 сердца» In 2017 the NHF:

sponsored trained 112 specialists from 21 organisations across five regions to run Early intervention program- mes for 203 young children with autism and 54 children regional NGO projects with motor disorders; supporting hundreds of families;

trained 145 specialists to run summer camps for over 200 children with special needs;

made education accessible

to 239children with special needs in five regions of Russia and trained 71 teachers;

constructed 14 new inclusive parks and playgrounds.

7 фондImpact «обнаженные report — 2017 сердца» 2017 in the Foundation

trained

48 specialists

from 22 organisations to deliver parent support EarlyBird programme

benefiting

176 families; ran four free webinars which were viewed by 9,000 parents and child development specialists;

provided support held the sixth international programmes to “Every Child Deserves a Family” forum for over 700 participants 32 families at our from 80 cities and nine countries; Family Support Centre in Nizhny Novgorod;

launched the “Angel of Faith” music video with Natalia Vodianova and pop stars Basta and Polina Gagarina to raise awareness about abandonment of children with special needs in Russia.

8 8 Impact report — 2017 Highlights of 2017

January. April. May. Work is well under way and the 2 April is World Autism Awareness In partnership with Sberbank, year begins with preparations for Day. The NHF is running a free the NHF holds the first “Running an eventful 2017. We are reviewing webinar on “Autism: Past, Present Hearts” Green Marathon in Moscow, 113 applications for new play facil- and Future”, discussing issues faced with 10,000 registered participants. ities and recruiting a team for the by people growing up with autism. This is Russia’s first inclusive upcoming fundraising half marathon The webinar is viewed almost 4,000 race involving both Olympic and in Paris. times. Paralympic champions, and athletes from the Special Olympics. February. A Parents Skills Training introductory workshop is run for master trainers, supervised by a team from WHO. This programme is specifically designed for families raising children with special needs.

March. A one-day conference is held in Tula on modern technologies for the rehabilitation of children with motor disorders. Among the participants are Professor John Phillips and his colleagues from the University of New Mexico, Marybeth Barkocy, Cathy Binger and Daniel Rogers.

June. On 1 June 2017, International Children’s Day, the music video for the “Angel of the Faith” single by Vasiliy Vakulenko (Basta) and Polina Gagarina is released, with the par- ticipation of Natalia Vodianova. The song raises public awareness of the pressing issue of the abandonment of children with special needs in Russia.

9 highlights in 2017

July and August. The “Summer with Purpose” project is well under way. At our holiday camps, children with autism are enjoying their summer break and specialists from NGOs are under- taking traineeships in working with children with special needs. Camp sessions have already taken place in Tolstolobino in Nizhny Novgorod region and in Skadovsk in Ukraine. There are more sessions to come in Petrozavodsk, Cherepovets, Geor- gia, Tula, Valday, Saint Petersburg, Kostroma and Yaroslavl. The par- ents, children and organisers are all delighted with the results!

September. Our first inclusive “House of Hearts” charity festival takes place in Moscow. The festival covers key elements of contemporary culture - music, theatre, architecture, fashion and science (p. 81). October. The Fabulous Fund Fair charity gala takes place in New York. All of the money raised by the event goes towards NHF projects and amfAR. November.. The NHF announces a competition to take part in the Russian version of EarlyBird training. Parents who complete the programme will be better equipped to communicate with children with special needs and to support their development. December. It is time for us to take stock of our achievements over the year. We have trained hundreds of specialists and teachers, pro- vided access to education to more than 200 children, held an interna- tional forum with 700 participants from 80 countries, organised free webinars for more than 9,000 par- ents, and created 14 inclusive parks and playgrounds.

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EVERY CHILD DESERVES A FAMILY Comprehensive programme to support families raising children with special developmental needs.

11 фондImpact «обнаженные report — 2017 сердца» Every Child Deserves a Family

50in 2017 531 children in Russia were living in orphanages and children’s homes 11but only 301 of them were orphan

According to official national statistics, there are more than 19,000 children with mental and intellectual disabilities living in 130 children’s homes around Russia. In addition, over 1,000 children are living in orphanages for children with physical disabilities.

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Social isolation

Lack of inclusive education

Lack of reliable information about special needs

No professional support

No access to legal information

Shockingly, more than 70% of those children have living parents and 30% of them were placed in an institution at the request of their parents so that they could receive social benefits – these parents retain their legal status as parents, but have no involvement in their children’s lives. Life is particularly difficult for these children, as they have no chance of getting out of the system or finding a loving family home.

Families raising children with special needs face a whole range of problems: no access to education or legal and social support, a lack of qualified special- ists who work with evidence-based methods, and social isolation. Parents often feel that they simply have no other choice but to place their child in an orphanage.

13 Impact report — 2017 Every Child Deserves a Family

“Not all children in orphanages are orphans - most end up in orphanages because their parents are facing financial difficulties and lack the necessary knowledge and access to qualified social and psychological support.”

Natalia Vodianova

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Our aim is to do everything in our power to prevent the abandonment of children with special needs.

15 Every Child Deserves a Family

We strongly believe that families are far more likely to decide to raise children with special needs at home if they receive comprehensive support and do not feel isolated.

For a family to make the decision to raise a child with special needs at home, they need to feel that they have the support of both the professional community and society. The “Every Child Deserves a Family” programme provides comprehensive support to families in several different areas.

Every Child Deserves a Family

professional community Specialist training, building a professional 1 community, providing a platform for development projects professionals and parents to share their knowledge and experience, creating an inclusive education system.

family support Providing the necessary social and legal 2 projects support to families.

3 advocacy Changing the attitudes of society and the government towards families of children with special needs, and promoting an inclusive society.

It is important to note that all of the Foundation’s programmes are provided to professionals and families absolutely free of charge.

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EVERY CHILD DESERVES A FAMILY

Early Intervention

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It is crucial to provide support to children with disabilities in the early stages of their development.

According to a study in Meanwhile, 90% of children the United States, 10% of with ASD in Russia do not children with special needs attend preschool, nor do who were given intensive they benefit from early early care had no noticeable intervention before developmental disorders starting school. when they were older.

The World Health Organization believes that support programmes are necessary not only for children with special needs, but for their parents as well, so that they can provide the right support to their child.

Often parents raising small children with disabilities feel helpless and isolated from the outside world. It is important to help and support them at this crucial stage, when their children need them the most.

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The objectives How do we help? of the programme There are currently two areas of work in the early intervention to provide support to parents programme: of preschool children with support for children disabilities. with cerebral palsy

to create a professional support for preschool community for early children with autism intervention in Russia.

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Support for children with cerebral palsy was initiated in 2016 with child development specialists from Tula-based organisation the Centre for Child Psychoneurology. Today, eight specialists from the centre and 10 families with children aged between two and six and with varying degrees of cerebral palsy are participating in the project. The purpose of the project is to improve the staff’s knowledge of current support methods for children with cerebral palsy through regular seminars and training at the University of New Mexico.

The training conducted under the project has enabled specialists to improve their knowledge in such areas as physical therapy and feeding, and to see the most effective intervention methods being implemented.

Furthermore, the specialists’ work no longer ends when a child is discharged from the centre. Every child receives an individual physiotherapy programme and his/her progress and achievements are monitored monthly. Through the training, specialists have realised how important it is to join forces and share information with parents, and to set common goals and work to achieve them together.

Our Naked Heart experts hold regular supervision sessions for staff from the centre and ensure ongoing communication with their colleagues from the University of New Mexico.

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Success story. Maxim Fedin is five and a half and has cerebral palsy. He lives with his mum. Before attending the c e n t r e i n Tu l a , M a x i m c o u l d n o t t a l k . I t w a s i n c r e d i b l y d i ffi c u l t for his mum to establish communication with him and to understand how she could support his development. As soon as they started attending the centre, Maxim started making clear progress. The staff helped his mum engage with him. Maxim learnt how to walk and eat independently, and to communicate using gestures and cards. “As a result, my child and I started to understand each other better. We are a team, working towards a set goal together. A huge thank you to all the specialists at the Centre for Children’s Psychoneurology for the kindness they showed my child and for providing treatment that has had visible positive results.”

Ekaterina Fedina, mum of Maxim.

21 Every Child Deserves a Family

Early intervention for children with autism includes:

EarlyBird is a support programme for parents of young children who have recently 1 been diagnosed with ASD.

The programme is aimed at helping parents understand their child’s individual needs parents training better and ensuring that the progress achieved in support centres is continued at home. (EarlyBird) Furthermore, EarlyBird helps parents socialise with one another and exchange experience, so that they can work together to find the best solutions to the problems they face.

In addition to supporting parents, we are working on developing a professional network 2 to provide early intervention services for young children with special needs in Russia. Our Early Intervention Centre in Nizhny Novgorod was the first centre in Russia to implement the ASSERT autism programme, developed by Utah State University. professional early intervention Today, the support programme is offered in preschools in Nizhny Novgorod and at our to support Family Support Centre, where it is available to 68 children and 35 specialists. In addition, development we are actively training staff in preschools in Saint Petersburg and Moscow and preparing the publication of an ASSERT curriculum.

ASSERT stands for “Autism Support Service: Education, Research, and Training”. The main objective of the programme is to improve the capacity of the education system and to provide effective, evidence-based education for children with autism. The programme is aimed at children, their parents and their teachers.

ASSERT is also a platform for developing effective intervention strategies for children with autism and a support resource for staff at education institutions.

Today Five regional branches The Early Intervention Centre, of the Moscow Psychological the Family Support Centre we work: and Pedagogical centre; and four preschools in Nizhny Novgorod; nine preschools The Naked Heart Foundation The lekotek at the Sodeistvie and centres lekotek (play library) in Tula; charity centre in Tula; in Saint-Petersburg;

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Early Intervention in 2017

We trained 120 teachers, speech pathologists, child care providers, doctors and psychologists, how to in More than working with children with special needs.

“I have never met such professionals before. They aimed to achieve results, and treated my son with understanding. I didn’t believe that we could achieve the goals set by our speech pathologist and teachers for the year. I was so used to everyone around us not caring. Then I noticed our first achievements – he did his first piece of homework, learnt new subjects. I noticed how sensitive the speech pathologist was with my child, how she gave us advice and wrote families are regularly lesson reports. She was interested in my son and I learnt to trust her.” attend our free

Marina, mum of Timur, a boy with autism. support centres.

Specialists completed training organised by the Foundation at the University of New Mexico.

We provided ASSERT training to staff from preschools and children’s centres After intensive ASSERT-based lessons, young children with autism learnt how to communicate with their teachers, parents and peers. They also “This is the only training that can provide learnt how to be involved in the education process, such useful practical knowledge. Thanks to and their behaviour improved at home. the Foundation, specialists take quantum leaps in professional development.”

Svetlana, educational psychologist at Our preschools and centres organised parties for preschool No. 452 in Nizhny Novgorod. the children at the end of the academic year. On 1 September, a new set of children will start school. Some will go to special schools, while some will attend regular ones.

Thanks to the EarlyBird programme, dozens of families received access to up-to-date knowledge. Parents and grandparents learnt how to engage with their children and how to choose and organise a support programme from them. Most importantly, they had an opportunity to meet other parents and professionals, which made them feel like a part of a wider community and gave them the strength to help their children.

23 Impact report — 2017 Every Child Deserves a Family

Thanks to the EarlyBird programme, dozens of families received access to up-to-date knowledge.

Parents and grandparents have learnt to better understand Parents and grandparents learnt how to engage with their children and how to choose and organise a support pro- gramme from them. Most importantly, they had an oppor- tunity to meet other parents and professionals, which made them feel like a part of a wider community and gave them the strength to help their children.

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EVERY CHILD DESERVES A FAMILY

School Project

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Around 90% of children and Russia is lacking young people with ASD in a well-developed, inclusive Russia are excluded from education system, and the education system and schoolteachers lack do not attend school. the necessary knowledge to work effectively with children with special needs.

Children with autism often struggle to sit through a lesson, concentrate, follow the teacher’s instructions and interact with their peers.

However, extensive international studies over the past 40 years have consistently demonstrated the positive effects of inclusion for all children, both with and without disabilities.

The social environment is extremely important for children with special needs. They can and should study at school, and their parents should have the right to choose between a special school or a regular one.

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Our aim How do we help

is to make it possible developing for any child to go to inclusive education school, make friends and be part of society. specialist training

27 Every Child Deserves a Family

school project includes:

Developing The School Project is aimed at providing continuous professional support 1 inclusive and education to children with autism. It also strives to ensure that they education are included in society and are able to socialise with their peers. We are currently implementing our inclusive and special education project in Nizhny Novgorod, Chelyabinsk and Saint Petersburg.

The introduction of resource classrooms in mainstream schools is an important step towards achieving inclusive education. As long as children with autism are admitted solely to special schools, they will not be part of the wider education system.

The successful education of children with ASD in mainstream and special schools requires an appropriate environment. It also means that the teaching process and curriculum must be designed taking into account the special needs of each and every child. With that in mind, the following techniques were introduced in special schools:

• individual behaviour plans; • use of additional communication; • visual support when working with children with ASD; • use of sensory integration.

In school, the children also receive comprehensive support from psychologists and speech therapists, and their progress and achievements are monitored by a support team. Their results are then further analysed and discussed by programme coordinators at general supervision sessions for all six schools.

Professional We have been teaching child development specialists modern and effective 2 training working techniques since 2013. We also give them the opportunity to exchange experience with their colleagues and to access seminars by international experts.

Currently, training is offered in six schools in Nizhny Novgorod. Owing to the success of the School Project, these schools were included in the list of innovative sites for the implementation of federal state educational standards for correctional education in accordance with the decision of the Ministry of Education of the Russian Federation.

“Through this training, I have learnt a systematic approach to teaching children with ASD - an approach we have never seen before. What impressed me most was the use of alternative communication methods, and not only during the lessons. I was also inspired by the sensory integration classes. A huge thank you for giving me the chance to see it all first hand. I really hope that, one day, children with special needs in our region will also have an opportunity to study.”

Teachers about training.

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School project in 2017

106 professionals from 39 classes in six special schools in Nizhny Novgorod, seven classes from four preschools and the Early The project Intervention Centre participated in the project. The project made it possible for 307 children to study with their peers. made it possible for

Children that were previously considered “unteachable” started school and achieved great results; their behaviour changed, and many non-verbal children learnt to talk. Even the new-starters made great progress. Those who could not speak learnt how to communicate using alternative methods of communication. children to study with their peers.

We hope that the education system we have built, which includes children with autism, will be used as a model for other regions of Russia and will facilitate the further development of inclusive education.

A further two schools in Nizhny Novgorod joined the inclusive education project this academic year. Now, teachers in those schools are receiving vital knowledge about working with children with ASD.

Staff from eight educational institutions completed training in Saint Petersburg at the end of October. The topics included modern effective techniques for working with children with ASD and hi-tech communication methods.

29 Impact report — 2017 Every Child Deserves a Family

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EVERY CHILD DESERVES A FAMILY

Forum

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One of the difficulties faced by families and specialists who work with children with ASD is the lack of access to reliable information about raising children with special needs.

The forum How do we help

The “Every Child Deserves a Family” forum is an annual Our forum is a unique opportunity for child development event run by the Naked Heart Foundation for leading specialists, parents and public figures to gather Russian and international child development experts, together at a professional level and discuss issues as well as specialists from NGOs, families and foster relating to working with children with disabilities. parents raising children with disabilities. The forum provides access to up-to-date innovations in Russia and beyond and contributes to the The aim development of a professional community in Russia.

The aim of the forum is to provide a platform for dialogue and exchange of experience not only among Russian and international experts, but also among representatives of NGOs and members of parents’ associations.

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Forum in 2017

he topics covered in the The sixth international presentations and master “Every Child Deserves a Family” classes included: modern support programmes forum took place in Moscow from for children with autism and 2 to 5 October 2017 and focused on behavioural disorders;

the incredibly important topic of “Summer with Purpose”- integrative summer camps for children and evidence-based support methods. young people with autism;

diagnostics and support programmes for children with attention deficit disorder, anxiety disorders, dyslexia and Tourette’s syndrome; Over the course of four days, the participants and leading international experts looked at evidence-based support existing support programmes programmes for children with foetal for people with special needs alcohol syndrome; and discussed which were genuinely effective and which were counterproductive or even modern, family-orientated harmful. rehabilitation for children with motor disabilities.

There are vast numbers of existing support methods being implemented around the world. However, for a method to be certified and implemented, its effectiveness must be proven through scientific research.

33 Impact report — 2017 Every Child Deserves a Family

“The demand for up-to-date knowledge among the professional child devel- opment community, as well as among parents and foster families raising children with disabilities, is huge and continues to grow every year.”

Anastasia Zalogina, President of the Naked Heart Foundation.

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As usual, a roundtable event was hosted on 4 October. Among the participants were leading media representatives, various charities and parents’ associations, and founder of the Naked Heart Foundation, Natalia Vodianova.

During the discussion, the participants tried to establish who was responsible for disseminating pseudoscientific information about working with disabilities and special needs, and how to improve the situation. They also spoke about the need to support charities and parents’ associations in highlighting this issue in the media.

Over 700 participants from more than 80 cities and nine countries (Russia, Ukraine, Belarus, USA, South Africa, Czech Republic, Finland, Estonia and Kazakhstan) attended the forum over the course of four days. The speakers included representatives from six leading international universities. Among them were Dana Johnson, Thomas Higbee, Marybeth Barkocy, Jeffrey Wozniak, Connie Kazari, Kathleen Mo Taylor, Christopher Calder, James McCracken and John-Joe Dawson-Squibb.

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The speakers included representatives from six leading international universities.

Nathan Call, James T. McCracken, John-Joe Dawson-Squibb Emory University, UCLA, University of Cape Town, USA USA South Africa

Dana E. Johnson, Thomas S. Higbee, Marybeth Barkocy, University Of Minnesota, Utah State University, University Of New Mexico, USA USA USA

Jeffrey R. Wozniak, Connie Kasari, Kathleen Mo Taylor, University of Minnesota, UCLA, University of New Mexico, USA USA USA

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EVERY CHILD DESERVES A FAMILY

Educational materials and training

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Teachers and parents That creates further often lack the knowledge problems for children who and skills to engage with already struggle to interact children with special needs. with their peers and adapt to new environments.

The Naked Heart Foundation strives to fill this knowledge gap by regularly publishing video lectures and webinars with Russian and international experts on YouTube, VKontakte social network, and the Resource Centre page on our website. There, you can find a collection of videos and presentations by leading Russian and international child development specialists.

Our webinars are online interactive seminars hosted by the Naked Heart Foundation that allow anyone to ask questions while they are watching.

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Educational materials and training in 2017

In 2017, we released 63 hours webinars themes:

of master classes and lectures, Modern support methods for children with motor 55 presentations and four free webinars disorders

on the following topics: Inclusion: reality or illusion

Autism in adulthood our video presentations our newsletter subscription on YouTube received over rate increased by New Year celebrations for people with special needs 100 219 views 42%

We also regularly organise training for professionals and parents.

The support programme was developed by WHO In 2017, a pilot training and Autism Speaks specifically for families of children with autism. The training was attended by course on the Parents Skills teachers, psychologists, special-needs therapists and specialists from regional charities and support Training (PST) programme was centres.

organised in partnership with The objective of the training was to continue to adapt the PST programme to the Russian context “Vykhod” (Way Out) Foundation. and to train professionals to run future pilot PST projects at state facilities in cities such as Moscow, Nizhny Novgorod and Voronezh.

Over the course of five days, the sessions focused on teaching parents how to find the right approach to interacting their child. An important component of the seminars was the practical training, which involved working with children with autism.

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EVERY CHILD DESERVES A FAMILY

Family Support Centre and Regional NGOs

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Families raising children with ASD in Russia face a number of challenges, including a lack of information and professional support and social isolation.

about How do we help

One of the objectives of our work is to create a network Our Family Support Centre is a unique facility where of free family support services for families of children teachers, psychologists and special-needs therapists with autism. Our first Naked Heart Family Support work with children free of charge, while lawyers and Centre was opened in Nizhny Novgorod in 2011 on the social workers assist parents with questions relating grounds of the “Veras” parents’ organisation. to social benefits and legal issues.

The Centre also includes a training apartment that The aim of the project prepares young people with special needs for independent life. Here, they learn to perform everyday of the project is to provide the necessary professional tasks such as cooking, laundry, and personal and legal and educational support to families. domestic hygiene.

42 42 Impact report — 2017

In order to broaden the coverage of our The Centre provides: support activities, we also provide financial support to regional NGOs. individual and group sessions for children with This gives families access to social, legal, special needs; psychological and educational support. social adaptation for children and young people;

preparation for independent life and employment;

social and legal support for vulnerable Our partner organisations are: families;

Veras regional NGO supporting information about social support and services children and young people, available to families in the local area; Nizhny Novgorod educational projects for professionals working Centre for Curative Pedagogics with children with special needs and their regional non-profit organisation, families. Moscow

“Perspectivy” (Prospects) non-profit NGO, St Petersburg We continue to support an important project run by the legal group at the Centre for Curative Pedagogics (CCP) Valeocentre for psychological, in Moscow. The group aims to bring about changes in medical and social assistance, existing legislation, ensure the rights of children and adults Tula with disabilities and improve parents’ legal literacy.

Pro-mama autonomous One of our collaborative projects with the CCP legal group non-commercial organisation, is the “Osoboe Detstvo” (Special Childhood) website Moscow for parents raising children with special needs and child development specialists. The aim of the website is to “Doroga v Mir” (Road into publicise to as many people as possible any upcoming the World) NGO supporting positive changes in the education and legal systems, and children with learning to highlight news relating to support for children and adults disabilities and their families, with special needs. Moscow

“Anton Tut Ryadom” (Anton’s Right Here) centre for art, Family Support Centre in 2017 education and rehabilitation for people with autism, Saint Petersburg 38 staff were employed by the Centre Downside Up early support centre on a permanent basis. for children with Down syndrome, Moscow 10 families gained access to intensive ASSERT programme sessions for small children with ASD. 15 families benefitted from intensive sessions through the support programme for young people.

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Success story: Ilya is a nine-year-old boy with autism from Nizhny Novgorod. In Russia, children like him are considered “unteachable” and incapable of socialising. Ilya and his mum rarely left the house, as they felt rejected by society. Ilya had no friends and only interacted with his relatives. However, this all changed when Ilya started attending our Family Support Centre. Here, he improved his concentration, learnt to read and to write and, most importantly, found friends. This place made us feel loved and supported. We are very happy that this support centre exists.

Ilya’s mum.

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EVERY CHILD DESERVES A FAMILY

Summer with Purpose

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When classes at schools and support centres take a break over the summer, it is important that children should maintain the skills and knowledge gained during the school year. Therefore, they should continue to work with specialists and have an opportunity to spend time with their peers during the holidays.

The “Summer with Purpose” project has two main goals:

To give children with To teach NGO staff modern special needs a summer evidence-based methods of break and a stimulating working with children with environment; special needs.

How do we help?

The Naked Heart Foundation has been providing financial support to the organisers of integrative summer camps since 2011. These camps provide a great opportunity for children and young people with special needs to continue with their social integration and learn to adapt to an unfamiliar environment. The time spent at camp is not just about having fun, but also about learning and getting professional support.

The camp organisers use modern methods such as sensory integration and visual support. These methods help children and young people to reduce their challenging behaviour and anxiety and to develop their social skills.

For many children, a trip to camp is their first experience of independent life; it gives them confidence and teaches them how to look after themselves and be more self-reliant. What is more, summer camps give parents a much- needed break and show them what their children are capable of on their own.

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The education programme for teachers working at the integrative “For many children, camps was developed by our Naked Heart experts along with leading experts from the University of New Mexico. Every year, a trip to camp two specialists from each organisation awarded the opportunity to take part in the Summer with Purpose project undertake training at is their first the Rising Sun summer camp organised by the University of New Mexico. Here, they learn new methods of organising camp activities experience of for children with autism and try out specific techniques in practice. independent life” It is very important that all the methods used are evidence-based. The way Rising Sun is organised continues to amaze specialists from Russia, Georgia and Ukraine. While common in the USA, the practice of giving children the chance to go on holiday without the supervision of their parents is still new to Russia.

It is usually difficult for children with autism to be among unfamiliar people. However, the camp activities are organised in such a way that the children feel comfortable and enjoy themselves.

Summer with Purpose in 2017

The project had a positive impact not only on the participants (child development specialists, parents, “It was a miracle. We saw young people children, staff of various tourist facilities) but also on who had initially struggled to interact and all those who were involved in the project indirectly. communicate with the outside world leave the Numerous enthusiastic reviews from project camp with a new ‘family’ and friends who had participants highlighted its effectiveness. lived side-by-side with them for several days. We saw volunteers that had come to gain new knowledge leaving with new experiences.”

Ilya Markov, educational psychologist, Naked Hearts Family Support Centre. More than 200 children attended Summer with Purpose camps.

⎫ The Foundation trained nine staff from NGOs and financed a number of camp sessions for seven organisations. In our country, changes relating to inclusion are only just starting to happen; inclusive holidays are not even on the agenda yet. This programme ⎫ 144 staff and volunteers gained of integrative camps is the first step towards knowledge about effective methods giving children with special needs the chance of working with young people with autism. to live fully and enjoy their holidays.”

NGO specialist Ten organisations benefitted discussing the training. from a week’s training at the Rising Sun camp in the USA.

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“A big thank you to all the organisers for their diligent work and effective approach to our ‘tricky’ children, who require a huge amount of patience. A separate thank you for teaching my Dima how to communicate. I could never imagine that one day, my Dima, who cannot speak, would be capable of asking for something from a complete stranger, expressing himself, showing his willingness to do something, or being active or compliant.”

Svetlana, mum of Dima, a young man with autism (Tolstolobino)

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EVERY CHILD DESERVES A FAMILY

Advocacy

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Social isolation is one of the biggest challenges facing families of children with special needs. There is surely no feeling more painful than that of your child being rejected. Society rejects people with special needs due to existing stereotypes and lack of knowledge about disabilities.

Autism, cerebral palsy They cannot be cured, and Down syndrome are they are not something not diseases, but types of one suffers from, and they are developmental disability. definitely not infectious.

People often try to avoid interacting with people with special needs simply because they do not know how to behave around them.

Our aim is to change social attitudes towards such people and to make accurate information about people with disabilities available to everyone.

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How we help

We raise awareness of the problems faced by people with special needs.

We provide a platform for public discussion about the issue and its solution.

We conduct advocacy work to ensure that the rights of people with disabilities are observed.

We cooperate with the media and journalists and provide expertise and assistance in gathering information.

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Advocacy in 2017

International Children’s Day (1 June 2017) saw the The project was launched on launch of the music video for the single “Angel of Faith” by Vasiliy Vakulenko (a member of a Russian Russia’s Channel One through band Basta) and singer Polina Gagarina, with the participation of Natalia Vodianova. The music video the premiere of a music video touches on the pressing issue of the abandonment of children with special needs. To this day, the issue for the hit “Don’t be Silent” remains “invisible” and “inconvenient”, and is rarely discussed. by singer Dima Bilan, featuring

Through this video, we want to attract public attention a young girl with special needs. to the issue and to emphasise how important it is to provide government support to families. This was a turning point in the country’s history, as it was the first time that so much public attention had been The “Angel of Faith” music video is part of the “Don’t drawn to the problems faced by people with disabilities. be Silent” project, which aims to make society more accepting of people with special needs and to empower families of children with disabilities. Natalia Vodianova regularly discusses the work of the Foundation in the media and raises awareness of the problems faced by people with disabilities and their families.

We do everything we can to draw public attention to She often addresses such issues our work, and thus facilitate the development of an as disability-related myths, how to behave inclusive society. We believe that it is vital to spread in an inclusive society, and adoption. accurate information about special needs. After all, an inclusive society requires educated and well- In 2017, interviews with Natalia were published informed people. in OK!, Marie Claire, BBC Russia, Kommersant, Izvestia, Snob and many other publications.

Read, talk and learn about people with disabilities! Explain to your friends and, more importantly, to young children that each and every one of us is a person first and foremost, and that we are all different. Every child deserves to have a happy childhood, surrounded by family and friends.

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“Each and every one of you can play your part - do not remain indifferent. You can help a child locked up in an institution to find a loving family.”

Natalia Vodianova

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Play with Purpose Сreating inclusive play facilities.

55 фондImpact «обнаженные report — 2017 сердца» Play with Purpose 32,238There are million children in Russia 5over о00 000 families live in poverty 636There are 024 children with disabilities in Russia

We believe that play is not a luxury but a necessity for children and that every child should have access to a secure environment to play in. It is through play that children develop their imagination and discover the world, learn to interact, and grow stronger and more confident. Play allows children growing up in challenging environments to escape violence and desperation, and helps them develop perseverance and positive thinking. However, millions of children in Russia do not have access to play facilities. One of the reasons is lack of funds to repair old playgrounds or build a new ones.

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How do we help? We create children’s playgrounds and play parks in places where there is no one else to do so.

All our playgrounds and parks are

1 inclusive All children can use our facilities whatever their abilities and age are. The parks usually have designated areas for children with special needs and children in wheelchairs.

2 contemporary Our playgrounds and parks transport children from grey and cold urban landscapes into a world of bright colours and fun.

Our equipment meets not only Russian GOST 3 safe standards, but also European safety standards for playground equipment.

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Our goal is to give children bright and secure outdoor spaces to play in.

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Before the installation of our facilities, play spaces often look like this

our playgrounds and parks

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Our parks are equipped with: Play with Purpose in 2017

play areas for small children with sandpits, merry-go-rounds, plays cars and slides

play areas for older children with a whole play complexes 113 17 applications approved for were construction under exercise areas with chin-up bars, received the “Play with Purpose” exercisers, obstacle courses, monkey programme. bars and climbing frames

rollerdromes

“auto towns” Play parks were built in:

play facilities for children with special Sibay needs: little play cities and playhouses Saransk with ramps, nest swings, development- Rostov-on-Don boosting bars and mazes, special swings Kaliningrad and roundabouts

green spaces Playgrounds were built in:

facilities for parents — pathways for Nizhny Novgorod walking, comfortable benches, shaded Azov areas and changing tables Zverevo Mozhga Briakan Bolshaya Chernigovka Kodinsk Abakan Kaa-Khem Syzran Our playgrounds offer Kumertau comfortable spaces for Stepantsovo playing and practising sports, and are often Behind every project, there is a story of a child’s life, and how located at specialised our facilities brighten up a, children’s facilities so often, tough childhood. such as children’s homes and shelters, hospitals, In 2017, with the help of city councils and our partners Coca-Cola and Vertolety Rossii, we opened 14 play rehabilitation centres facilities and transformed over 20,000 square meters of nondescript, empty land into bright and safe play and orphanages. spaces. Hundreds of children will enjoy these spaces every day, including children with special needs.

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Children’s home On 5 June 2017, we opened a playground at Zverevo children’s home for children with severe intellectual disabilities, where 50 children requiring full- in Zverevo: time care live on a permanent basis.

Zverevo is a town Nurses look after the children around the clock, and the children’s lives in Rostov Oblast, depend on their level of professionalism and care. The home’s staff have been located 976 kilometres nominated for numerous state awards and in 2015, the institution designed a from Moscow development programme for children with severe intellectual disabilities that won the “Best for Children” award. Population 19 456 Despite the children’s severe neurological disorders, small improvements are made in their physical development every year. Thanks to the efforts of the Playground area nurses, some children have learnt to walk or sit on their own. 77 m2 One of the most important areas of work in the children’s home is the promotion Opening date of health and a healthy lifestyle, and for that purpose, a safe playground was 5 June 2017 necessary. However, as is often the case, there was a lack of funding.

Our playground was constructed with the children’s needs, their specific conditions and their individual rehabilitation programmes in mind. For example, it had to have a garden gazebo in order to protect the children from sun and rain.

The playground has provided a much-needed safe and bright space where the children and staff can benefit from daily fresh air. We hope that it will be a small ray of sunshine in the otherwise difficult lives of these children.

Our playground was constructed with the children’s needs, their specific conditions and their individual rehabilitation programmes in mind.

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Here, children can experience what a carefree childhood feels like - a luxury that many kids growing up in difficult circumstances cannot afford.

Teremok On 1 September 2017, we opened two playgrounds at an orphanage for children with special needs in Teremok. The children living children’s home here face serious challenges. For health reasons, they require full-time medical care and domestic assistance, as well as social, in Abakan educational and employment-related rehabilitation.

There are currently 88 children living at the children’s home on a Abakan is the capital permanent basis, and other children with serious disabilities attend of the Republic of Khakassia, daily rehabilitation classes. located 3390 km from Moscow Individual psychological and medical support is provided, and the Population older children benefit from assistance relating to socialisation. 181 709 The staff regularly organise parties and sports days for the children. Playground areas A playground was essential for events such as these, but there was 270 and 342 m2 a lack of funding. Before 2017, the grounds looked like this:

Opening date Our playground provides a space where the children can simply be 1 September 2017 children; where they can forget about their problems for a moment. Here, children can experience what a carefree childhood feels like - a luxury that many kids growing up in difficult circumstances cannot afford.

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Play park The opening of the play park in Saransk was also very special. With support from Coca-Cola and the city council, we opened Russia’s in Saransk first inclusive play park with a football pitch. The spacious park includes play and sports areas that can be enjoyed by everyone, including children and young people with disabilities, and, most Saransk is the capital importantly, features a modern football pitch with artificial turf. of the Republic of Mordovia, 500 km from Moscow An inclusive football match was organised to mark the opening of the park, during which amateur footballers and athletes with Population disabilities played on the same team. It is matches such as these 318 841 that promote inclusion through sport.

Park area The play park in Saransk is the first in a series of parks with football 3 709 m2 pitches. These parks are a step towards building an inclusive society and sports infrastructure in Russia. They will be Coca-Cola’s long- Opening date term legacy as an official partner of FIFA after the 2018 World Cup, 7 October 2017 and the company’s contribution to shaping the country’s future generation of athletes.

These are just some examples of our play facilities. To date, we have created 195 playgrounds and play parks, and we are only just beginning! We will continue to give children the opportunity to play together regardless of their abilities.

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These are just some examples of our play facilities. To date, we have created 195 playgrounds and play parks, and we are only just beginning! We will continue to give children the opportunity to play together regardless of their abilities.

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play facilities map

Do you want a play facility built in your city? Send us an application!

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Financial report

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Staff wages, insurance premiums, taxes and fees 36 324 505 руб. (15%)

Fundraising events 973 624 руб. (0,39%)

Administrative costs 8 244 174 руб. (3%)

Every Child Deserves a Family Play with Purpose 120 214 365 rub. 80 669 851 rub. (49%) (33%)

We are proud of the transparency of our finances. Every year, our financial reports are subject to an external expert audit, and the financial information is then published on the Foundation’s website. In 2017 we raised 246,512,462 roubles through fundraising events, donations and grants, all of which went towards the Foundation’s programmes.

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Strategy for 2018

We will continue to provide We will continue to do everything family support in several areas:

in our power to make sure that providing professional each and every child has a family support to families directly; developing inclusive home and a happy childhood, education and training and never feels isolated. specialists; promoting an inclusive We want to ensure that families raising children with special needs have all society. the necessary support from specialists, the education system, society and the government.

Professional support

Family Inclusive centres society

Access Inclusive to reliable education information

Family

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In 2018 we plan to:

Provide early intervention support to more than Create resource classrooms in several 450 families; schools in Nizhny Novgorod, starting from September 2018; Involve over 200 child development specialists Organise seminars and teacher training in our projects, who will then help young people with the participation of international with special needs to integrate in society and experts in modern and effective have successful lives; behavioural programmes. These programmes will help to promote Continue to develop programmes built on positive behaviour in the classroom, and evidence-based and family-orientated methods, will address individual communication needs and enhance the skills of specialists working and how they should be taken into account at the Centre for Children’s Psychoneurology in teaching and the curriculum; in Tula; Hold the seventh International “Every Child Deserves a Family” Forum; Select at least 20 more families to participate in the project in Tula; Organise a number of fundraising events; Hold regular supervision sessions and distance learning sessions with the University of New Mexico, and introduce new work methods Continue to build inclusive play facilities. in the Family Support Centre; We have received 65 applications for the year 2018, nine of which have been approved. Commence intensive classes with young children in preschools in Moscow and We also plan to complete four projects that Saint Petersburg, and continue the work were started in 2017, and to repair play parks in of our Early Intervention Centre Nizhny Novgorod and Petrozavodsk. in preschools in Nizhny Novgorod; Maintain funding for lekoteks (play libraries) in Tver and Tula, which provide effective support programmes to small children with autism;

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Thank you

Estée Lauder Companies M Stil’ (Mercury) Absolut Bank A.A. Guriyev Veb Servis A.S. Chernomazov ABB Alisa Lobanova (Toy.ru) Alvarez and Marsal A.I. Medvedev Ulyana Sergeyenko O.V. Panchenko Kod Bezopasnosti A. Smorgonskiy (A1 Systems) Liderinvest Mechtarium (KidZania) Seldico (Guerlain) Proyekt 111 Farfetch Anastasia Zadorina Kaspersky Lab Daria Bashvinova Nike Polina Kitsenko Kitsenko Ulyana Sergeenko

Stolitsa “Postcards with Purpose” Louis Vuitton Vostok Coca-Cola Efensi Other UK FotoLab Bo Lang Russian Helicopters PJSC “AKK Progress” Tsentr elektronnogo testirovaniya Proyekt-tsentr Fitnes-10 Valery Gergiev Pyatyi Element clinic Mario Testino Cafe network UDC (8 legal entities) Surgo Foundation (Mala Gaonkar) Dasha Zhukova Bob and Tamar Manoukian

Thompson Foundation

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How you can help

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How you can help

corporate partnership donate become and sponsorship a volunteer

Cooperation between the business ou can donate via our website. Our volunteers are people with and charity sectors is highly productive Even a small donation can make big hearts, and our fundraising and mutually beneficial. We are happy a difference! events are always fun and diverse. to discuss partnerships and to develop Wherever your strength lies – from flexible sponsorship packages that sporting skills to legal expertise - suit your company. your input can change children’s lives!

take part spread the word participate in our in our campaign fundraising events

You can help us fundraise by Tell your friends and colleagues Every year we organise a number shopping or eating out! More details about us. Share your knowledge of fundraising events to support the on our website: about people with special needs. Foundation’s programmes. Among Openly discussing autism, cerebral our most famous events are: https://www.nakedheart.org/en/ palsy and other disabilities will get-involved/individuals/ promote an inclusive society that is free from stereotypes and prejudice; a society where people accept each other just the way they are!

Nothing we have achieved would have been possible without the help of people who care about our cause.

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the Fabulous Fund Fair

an annual fundraising gala hosted by Natalia Vodianova in London since 2013. The guests include Russian and international celebrities and the stalls feature attractions designed by the world’s leading brands. In October 2017, the Fabulous Fund Fair was hosted in New York for the first time, in partnership with amfAR.

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Fabulous Fund Fair London

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Fabulous Fund Fair New York

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House of Hearts

an inclusive charity festival dedicated to contemporary art. The event is aimed at people of all ages and abilities, and therefore, promotes an inclusive society. All the funds raised go towards Naked Heart projects that focus on inclusive education for children with special needs.

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The Running Hearts Green Marathon

Running is the healthiest and most af- fordable way to help people. That’s why Natalia Vodianova and Polina Kitsen- ko organised Russia’s first charity run “Running Hearts” in 2015. Over three years, the event has raised 100,000,000 roubles in support of the Naked Heart Foundation.

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Help us achieve more

Naked heart foundation

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