2017 Annual Impact Report

Care. Cure. Thrive. More than 28,000 U.S. children live with a brain tumor. If we put our heads together, we can save theirs.

DEAR FRIENDS,

With the launch of our new, three-year strategic plan in projects focused on leveraging partnerships with 2017, we refreshed our mission to “Care. Cure. Thrive.,” other nonprofits dedicated to this community. reflecting our commitment to support children and families throughout their brain tumor journey. We continue to build partnerships for greater impact because we can’t achieve our vision of “A world Last year, we expanded our footprint with our without childhood brain tumors” alone. With your Georgia, California and Illinois chapters leading help, we’ll invest in the most promising research and the way to provide greater on-the-ground support. support to give all kids what they deserve – a long, Starting this year, we’ll unpack the results of a healthy life! nationwide Community Health Needs Assessment we commissioned to guide the expansion of programs to WITH DEEP GRATITUDE, help fill the most critical gaps identified by families and healthcare providers.

Last June, pursuing the “cure” component of our mission, we convened leaders from the research and medical community, the pharmaceutical industry, governmental agencies and patient advocacy groups to steer our future research investments, including an exciting immunotherapy initiative. Our 2017 research Robin Boettcher, Doug Porter, President and CEO Board Chair

HOW YOU HELPED IN 2017

31 $ $

190 27, 335 11,654 38 $5.7M events donors event participants states raised

FIGHTING FOR FUTURES A COMMITMENT TO CARE

78 The Pediatric Brain Tumor Foundation works every day to support families hospital in meaningful ways from the moment of diagnosis — no matter where the partners journey leads. With your support, we’re providing life-changing programs and resources to more families across the country.

2,073 AWARD-WINNING families served VIDEOS FOR KIDS

PBTF and pro bono partner agency RPA launched the Imaginary Friend Society, a series of 20 animated films providing children answers, smiles and support after a brain tumor diagnosis. 380 free Starfolio resource 158,873 notebooks distributed video views to newly-diagnosed families

CHAPTER SUPPORT

Georgia, California and Illinois Chapters $416,000 grew their on-the-ground support, serving EXPANDED SPANISH in emergency financial more families through weekly hospital RESOURCES assistance provided visits, care package deliveries, peer mentoring and educational programs. Reached more Spanish-speaking families by creating an online family profile form in Spanish and providing 103 translators at programs. We also hosted a Spanish-language support survivors awarded group and family camp. college scholarships CURES THROUGH COLLABORATION

$1.7M 35 $ spent on research research centers & hospital support engaged

EARLY CAREER DEVELOPMENT GRANTS

Pratiti Bandopadhayay, MBBS, Marc Remke, MD, continued to see Kyle Walsh, PhD, accepted PhD, was named Assistant exciting developments in using a faculty position at Duke Professor of Pediatrics at Harvard mass spectrometry to analyze University, giving him Medical School and opened a lab at medulloblastoma proteins. Our the opportunity to continue Dana-Farber Cancer Institute using investment has helped him obtain pursuing neuro-epidemiology and cutting-edge genomics to identify additional funds for this breakthrough usher in a better understanding pediatric brain tumor drivers and work, with preparations underway of the underlying causes of develop targeted therapies. to release these discoveries from pediatric brain tumors. translational research in 2018.

RESEARCH GRANTS Pacific Pediatric Neuro-Oncology Consortium PNOC’s PBTF-supported Operations Center at the University of Duke University California, San Francisco is essential to the consortium’s overall Research developments into a novel vaccine for recurrent success, coordinating activities across all participating research medulloblastoma resulted in a new clinical trial for children centers and clinical trial protocols. In 2017, PNOC added five and adolescents that will open this year. new research sites worldwide for a total of 18, and opened three new clinical trials. The Hospital for Sick Children, Toronto, Canada Michael Taylor, MD, PhD, FRCS(C) co-led and authored a Project:EveryChild, The Children’s Oncology Group groundbreaking study revealing new medulloblastoma Because of PBTF support, children with brain tumors are subtypes. As one of the largest genomic sequencing efforts on well-represented in Project:EveryChild, a biobank helping labs a single type of human cancer, the results will help advance develop more personalized treatments for children with cancer. more targeted, less toxic treatments for this highly malignant By funding children’s brain tumor tissue collection at 114 brain tumor. hospitals, the PBTF is helping to preserve today’s tissue samples for tomorrow’s breakthroughs.

Together to Care. Cure. Thrive. Our nonprofit funding partners, joining forces to care for and cure the kids! Bryan’s Dream Foundation The Kyrie Foundation Christopher Brandle Joy of Life Foundation Catching Up With Jack Meagan’s Walk Foundation Keris Kares Foundation Coverys Community Healthcare Foundation Soar with Grace 2017 FINANCIALS $

Of the funds spent, 76.1% was invested in the mission.

Revenue Expenses $5,730,444 $5,985,760

98.1% Public Contributions: $5,620,898 76.1% Programs: $4,553,433

1.9% Investment Income: $109,546 12.1% Management: $725,025

Ending net assets of $1,382,804 11.8% Fundraising: $707,302

Source: Pediatric Brain Tumor Foundation’s Form 990 for the year ending Dec. 31, 2017 WE COULDN’T DO IT WITHOUT YOU

$

Windrock ATV Club of Oliver Springs $100,000 & Greater $5,000 to $9,999 Karen & Jeff Yeager American Honda Motor Co. Ace American Insurance Co. Zenith Insurance Company Coverys Community Healthcare Foundation ADP Genentech Foundation Advisors Charitable Gift Fund $2,500 to $4,999 Aetna Victory Automotive Group Aardvark Trash Aflac; Continental American Insurance Company Accident Fund $50,000 to $99,999 Aidan’s Miles for Smiles Alixandra Collections Estate of Yuergen Boehmke Allstate Foundation American Endowment Foundation Christopher Brandle Joy of Life Foundation American Legion Post 117 American Honda Finance Aileen S. Andrew Foundation EcoMedia American International Group Anixter Hardee’s Restaurants Ameritas Life Insurance Margaret M. Bloomfield Family Foundation Apex Friendship Patriots Athletic Club J. Smith Lanier & Co. Bring A Trailer Media Apexone Investment Partners Builders Insurance Group Arch Insurance Group $25,000 to $49,999 Sean Burke Bryan’s Dream Foundation Atlanta Association of Insurance & Financial Advisors Car Show 4 Kids Fundraiser Anthony Avello Denise & David Chase Catching Up with Jack Bank of America Charitable Foundation Cole-Crone Family Foundation Charlotte Volleyball Academy Andrew Baron Keris Kares Chatlos Foundation Barter Company Nielsen Enterprises CIGNA Health & Life Ins. Co Tim Bielski North Henderson High School CNA Cont Casualty Company Big Bear Trail Riders Pi Kappa Alpha Fraternity - Mu Beta Chapter CWS Team Incorporated Blue Cross Blue Shield of Georgia Wintrust Financial Corp Edward DeBartolo Violet Brown Memorial Joyce & Scott Derrickson Charli & Dave Carter $10,000 to $24,999 Enbridge Foundation CDH Construction A Taste of Italy Epic City & County Credit Union Albertsons Companies Foundation Fidelity Charitable Gift Fund Club of Hearts AmWINS Brokerage of Georgia Billy Foreman Fund Cole Family Charitable Foundation Angier Bike Fest Georgia Theatre Company - II Kim & Christopher Collins Batchelor Foundation John Goins Comerica Bank Hap’s Gulf Coast Riders Stephen & Mary Birch Foundation Ellie & Alan Cowfer HarbisonWalker International C. R. Bard Foundation Bob’s BMW Kathy & Jerry Hart CRC Insurance Services Jim & Marisa Bowen Hartford Insurance Crystal Family Foundation Carolina Comfort Air Gordon Hartman Family Foundation Gary Darkens Karen & Steve Chaikin Hexberg Family Foundation Diverse Label Printing Sandra Chaikin Honda Federal Credit Union Pam & David Ellis Charlotte Christian School I.B.E.W. Local 617 Enterprise Holdings Foundation Kathleen & Tony Ferrito IBM Employee Service Center Equifax GEICO Philanthropic Foundation Imperial Recycling Ergon Jason Gladwell LeAnn & Ernest Jackson Everett Powersports Grayson’s Gift Foundation William R. Johnson Family Foundation FCCI Insurance Group Gloria & Richard Kerns Great American Insurance Company Freedom Pay Stephanie Kerrish FT Cares Foundation Brenda Hill Lake Cable Jeff Gable Lauren & Johnathon Hodges LexisNexis Risk Solutions Stephanie & Miron Guriel Honda Manufacturing of Alabama Liberty Mutual Group Bo Hamilton Honda of America Manufacturing Los Angeles Trial Lawyers’ Charities Hanover Insurance Howard Family Foundation Morgan Martinez Gregg Hanson Scott Hudgens Family Foundation McDowell Pile King Robert Heilbron Insurance Industry Charitable Foundation-GA Chapter Jennifer & Sean McGrath Heritage Properties Kaiser Permanente Gregg Miller Herman Miller Cares Linda Tallen & David Paul Kane Educational & Maria Morabito Deborah Hills Research Foundation Mungenast Foundation HM Life Insurance Company Mungo Homes of North Carolina Jill & Chris Kernion Hodges-Mace Nationwide Mutual Insurance Company Honda Marysville Motorsports Chris & Tahnee Kirk Foundation Nehemiah Investments Houston Area #1 HOG Fanny & Svante Knistrom Foundation James & Colleen Newman HSC Carriere Tom Lange Company North Wake County I.B.E.W. Local 6 Mason’s Twenty-Fore Doug Porter I.B.E.W. Local 332 Ricky Morales Memorial Golf Tournament QBE Foundation JD’s Tavern NAILBA Charitable Foundation Maggie & Terry Sims Johnson & Johnson Dave Odess Julie & Jeffrey Skelton Kristi Johnson-Seibert & Mike Seibert John K. & Alice O’Neill Powers Foundation Joseph & Fiora Stone Foundation George & Dorothy Juzdan RelaDyne Oil Distributing Company Strategic Risk Solutions Amy Kanyuk & Matthew Benson H. English and Ermine Cater Robinson Foundation Robert & Jamie Taylor Foundation Kretz Media Holdings Ronald McDonald House Charities of Teammates for Kids Foundation Kroger Company Charles Thomason L & S IBC Southern California Jimmy & Billie Tragle Kathy Land Ron Sobchik Turner’s Honda Audrey & Tom Langer Soccer for Hope US Bank Michael Lee Taylor Family Foundation Vereen Family Foundation Eric Lu Travelers Insurance Warren Averett Companies John Lumadue UNUM Group Whaleyville Animal Hospital MAG Mutual Insurance Beth & Brady Young Frances Wood Wilson Foundation MEDCOM $2,500 to $4,999 (cont.) Cromwell Baun Luz Farfan & Anthony Barbera Met Life Thomas Bedard Linda & Timothy Farrow Bonnie & John Miccarelli Chelsea Bell Donna L Faucheux Irrev Trust John Mills Bend Your Knees FDR Honda Kawasaki Motorcycle Mall Berkley Southeast Insurance Group Paul Feehan Jeanne & Karl Mueller Beverage Distributers Stephen Ferdinands Mutual of Omaha Insurance Company Big Lots Pamela Ferrell National Christian Foundation BioNutritional Research Group Fluid Floors National Christian Foundation California Jessica Black Foam Supplies Navigant Credit Union Chuck Boderman Ford of Kirkland Nicolet National Bank Robin & Grant Boettcher Fraternal Order of Eagles Notre Dame Cathedral Latin Jason Boland Frazee Carpet & Interiors Karleen O’Neill Holly & Eric Bondus Amy Freeman Hillary & Zackery Padgett Catherine & Bill Bono From Maddi’s Closet Paint Breeze Credit Union Booster Darlene & William Fuchs Panoz Family Foundation Yvette Bowser Gadsden High School Class of 1962 Cathy & Edgar Parkin Danielle Bradford Sanjiv Gambhir Toni Paschall Stephanie Bradford April Gardner Philadelphia Insurance Companies Brandmuscle Heath Garmon Josephine M. Pintozzi Foundation Brooklyn Baseball Co. Janice & John Garside Robert Pizzonia Charles Brown Henry Gates PMA Companies Owen Bugg Peter Gatto Cesare Portes Charles Burrage J. B. Gauthier Progressive Mobility & Medical Sharon Burris GE Foundation Ray Price Harley-Davidson Trevor Bushhouse Shea & Jim Geeslin Velvet & Rob Reda Diana Cannon Duncan G Geisler Living Trust Shellie & Doug Richter Cardinal Gibbons High School Norman Gerasin Kathy & Chris Riley Cardinal Ventures Inc Kristi & Vito Germinario Risk Placement Services Mary & Roland Cargill Michele Girardi Ryan Specialty Group Caring Foundation of Blue Cross & Blue Shield of AL GKN Foundation Carmela Saunders Cary Academy GlaxoSmithKline Foundation Seminetta Family Foundation John Caufield Go Realty Seneca Insurance Company CBH III Giving Fund Cathy & Don Goden Shattuc Cord Specialties Cenk Family Golden State Foods Foundation Amy Snyder Collins Chalmers Scot & Sharon Gordon Trust Southern Lee Athletic Booster Club Peg & George Cherny Grange Insurance Companies Teladoc Ellen & John Cioccio Tari Griggs Thomson Reuters Lisa & James Clancy Marianne & Robert Gubler Traverse Exploration Classic BMW Pam & Randy Gulseth H. William Twigg Memorial Scholarship Fund Colaluca Family Charity Fund Sandra Gustafson Twin Cities Motorcycle Escort College Park Cavalier Band Booster Club GWRRA AL-A Twisted Scizzors Colonie Luxembourgeoise GWRRA WA-D United States Fire Insurance Company Columbia Insurance Group GWTA WA-C Value Village/Savers Community Bank Marlene & Jay Haller Jennifer & William Ward Compass Group Lydia & Robert Hardy Gadi Weinreich Kevin Cordasco Foundation Cheryl & Barton Harris Wells Fargo Foundation Elaine Coulter Jacqueline Hassett Christina & Sam Willis Alan Cox Hauser Family Wilson School Jackie & Roy Crowder Henderson Harley-Davidson W.R. Berkley Corporation Charitable Foundation Jay Culbertson Heritage Automotive Group Wonderful Giving Cumberland Chapels Joe Hicks Julie Wong Tam and Robert Tam Cushing & Rabinovitz Michelle Higa Fox Bradley Zankel Foundation Danville Moose Lodge Jayne Himmel Trisha Danze Richard & Pat Hinchley $1,000 to $2,499 Glenn & Karen Davidson Hiway Federal Credit Union 323 Sports Sandie & Jay Davis Cheryl Hoffman 550 Tavern & Grille Kristine Deer HOG of Raleigh Michael Abbott Cheryl & Brian Dehmlow Kimberly & Matthew Hogan Absolute Sports Mary Dekernion Holloway Foundation Air Cleaning Technology Julie Dematteo Tia & Donald Holt Alamo Cycle Sales Dempsey Companies Homebridge Financial Services Aliso Design Betty Dickinson Homewood Motorcycles Inc ALR436 Dickinson Fleet Services Honda of Pasadena America’s Charities Neoma Disney Honda R & D Americas American Family Insurance: Carmen Sarack III Agency Distribution Now Honda Rides Club of Tidewater Chapter 45 Anchor QEA Tom Dixon Charles Horner Barbara & Edward Apelian Gerald A Doering Foundation Don Horning Apple Valley American Legion Post 1776 Dan and Maria Dodson Hirair & Anna Hovnanian Foundation Asset Life Settlements Donate Well Huntington Beach High School Associated Students Lakeridge High School Amy & Kelly Dooley I.B.E.W. Local 440 Association Management Center Ryan Dornbush I.B.E.W. Local 551 Auto Club Enterprises Orene & Archie Duke Bilqees Ikram Patricia Babuin Lu & Bob Dumas Infinity Children’s Services Chester Baines Jill Duncan Integra Foundation Deborah & James Baker East Chapel Hill High School Ironman Foundation Sue Banuelos Ed Holmes & Associates Land Surveyors Gary Ivey Rob Baptie El Cajon Ford Frank Jenson Logan Barber Electrical Industry Advancement Program Johnson & Johnson Matching Gifts Program Barham-Calhoun Memorial Fund Loucas & Linda Eleftheri Johnson & Johnson Medical Device Business Services John & AnnMarie Bartholomeo Eurosport Asheville Larry & Michael Johnson Family Foundation Basso & Associates Evergreen Ford Jones & Conde Beth & Dean Batali ExxonMobil Foundation Becky & Paul Jones Kathy & Ted Bates Eye Candy $1,000 to $2,499 (cont.) Ken & Yukiko Nord Michael Smith Jack Jones North Central Texas Yamaha Heidi Smoot Lucas Jones Northern Trust Company Nicole & Brandon Spadaro Matthew Jost Northwest Honda Adam Speiran Kaplen Foundation Novak Construction Company Kimberly Spight-Howell & Kirk Howell KB Home Novartis Sports Awards Christopher Kemple Timothy O’Brien SRA International Mark Kingston Patricia & Edward Olliges David Stafford Kirkland Properties Kenneth Olson Stanislaus Community Foundation Michael Klein Foundation Stephanie Olson Starbucks Coffee Company Tim Klespies One Beacon Charitable Trust State Farm Companies Foundation Kay & Richard Knepper Carlos Oramas Randy Sugihara Johnathon Koechley Our Saviour’s Lutheran Church Sweetwater Lumber & Land Joseph & Helen Komarek Foundation Gloria & Ron Painter Matthew Tanis Lara & Daniel Kowalski Patty & Gary Painter Donez Tavilla Robert Lane Park Administrative Taylor Family Foundation Langley Construction Michelle Parker Kathleen & Paul Taylorson Lisa & Teddy Lantrip Parnell Hauling Team Powersports LAZ Parking Patch Bros Teamsters Local Union No 456 Joel & Elaine Lazere PD Harp Enterprises Texas Powersports of Pasadena Mel Lee Pepsi-Cola Bottling Company of Hickory NC Julie & Brad Thieme Sherryl & John Lee Jason & Nicole Perez Anthony Toellen Ellen & Doug Leslie Performer’s Academy Ann Tolleson Levy, Ray & Shoup Michael & Julia Perkins Julie & Gary Touchstone Gregory & Jennifer Liebe Mark Phillips Tousley Motor Sports Links Management Pike-Jackson Foundation TractManager MediTract Lisa Nickels Insurance Agency Jennifer Pilgrim Training Wheels Debra & Ralph Lloyd Tom Pita Truist Patricia & Wilfrid Loeken Olivia & Jeff Pollard Ruby & Tim Tucker Ursula & Gerd Lohmann Susan Pollard Twiggs Cycles Tarsis Lopez Toby Potter Ultimate Spectacle Susan & Scott Lord Jean & Walter Potwora United Healthcare Services Pat & Christopher Lowry Shelley Powell Vanguard Charitable Endowment Program Caryl Lumpp Mary Lee & Jerrie Powers Vanguard Products Group Janet & Ronnie Lunsford Doug & Kathy Poyer VEH Patricia Lynn-Ford Preformed Line Products Company Michael Venazio Debra & Mark Maietta Quincy Credit Union Venice Vintage Motorcycle Club Majestic Wolves R & T Motorcycle Club David Vigil Betsy & Tim Malone Gary Rabalais Richard Vollenweider Manassas Honda Kawasaki Suzuki Rabobank Jean & Frederick von Heimburg Suzanne & Ketan Manibhai Sharon & Randy Rainwater Barren Wallis Shelly Mansker Sylvia Ramirez Walmart Community Grants Marsh & McLennan Companies Reach Four Moore Candice & Sean Walsh Allan Martin Liam Reda Foundation Kathryn & John Walters Lisa & Jim Martin Llewelyn Rentel John Walton Charles & Victoria Mathis Thomas Rhodes Stephen Ward Edward McCaskey Mary Ringemann Robert Ware Craig McCaughan John Ritchie Warwick Student Activity Account Cynthia McCombs Janis & Stanley Roberts Washington Baseball School Jo & Hal Meeks Robert & Mary Roberts Mark Weber Elena Melius Foundation Nathan & Mateo Robison Doley & Mike Wegener Men In Black Pest Control Services Rock-N-Roll City Harley-Davidson Beth & Kevin Weir Merrimack Valley HOG Chapter Randall & Susan Rodehaver WEOC Amanda & Dave Meyers Kathy & Durant Rodrigue Werner Enterprises Kathryn Meyers Roof Management Sandy & Doug Werner Michiana Insurance Services Phyllis Roth Weswood Foundation James Miller Maureen & Walter Rowson Wexford Dance Academy Mississippi Braves Thomas Rubright Anita & John Wheeler Denise Mitchell & James Burke Martin Ryan Jane Whitaker Moncrief Heating & Air David Sacco Spence Whitman Robert Montoya Salem United Methodist Church Glenn Wilcox Jacqueline Mooney Sabrina & Gordon Salisbury William Wilkinson Robert Moore Sam Jackson Enterprises Williams Family Foundation Jeff Moreau San Jacinto Harley-Davidson Robert Wilson Morgan Stanley Bette Santos Gary Woods Melinda Morgan Dori & Steve Schelhammer Robert Wunderle Motorcycle Sports Touring Association Marilyn Schueppert Brigid Wyszomirski Mullen Family “36” Foundation Robert Sedor Kristin & Bryant Young Jeff Muralt Selective Insurance Russel & Carolyn Young Joe Myers William Self Zebulon Chamber of Commerce David Nance Kay & John Serratelli National Christian Foundation Indiana Ellen & Bruce Shaw Lawton Nease Latria Shaw William & Dianne Neglia James Shockley Network For Good Chad Shooter Connie & Michael Newman Elaine & Cliff Siler Ken Newton Jennifer & Richard Silva Ted & Donna Nielsen Simple Man Property Vicki & Jerry Nielsen Sirote & Permutt Patricia Nietrzeba Sixth City Syndicate Randy Nonnenberg Slingshot Events Inc Lisa & Curtis Sloan You can join the fight for futures.

Imagine a world without childhood GET INVOLVED brain tumors. RIDE FOR KIDS The longest-running, most successful motorcycle That’s the future we’re fighting for. Today’s reality is charity event in the nation. that 13 children and teens are diagnosed each day with a brain tumor, more children die of brain tumors VS. CANCER than any other cancer, and survivors often face lifelong Our newest signature fundraising campaign debilitating effects following treatment. empowers any sports team, any athlete, any community to help kids with cancer. As the world’s leading nonprofit dedicated to children and teens with brain tumors, the Pediatric Brain Tumor STARRY NIGHT WALK & 5K RUN An uplifting event that shines a light on the 28,000 Foundation’s mission is to care for families along their children and teens living with brain tumors and journey, cure every childhood brain tumor and help the kids who are no longer with us. survivors and families thrive. START YOUR OWN FUNDRAISER $ We’re here to help, making it easy and fun to care for and cure the kids.

LEAVE A LEGACY Making a gift to the PBTF in your will sustains our mission to Care. Cure. Thrive. for years to come.

curethekids.org 2018 PBTF National Board of Directors Chuck Boderman Karl Mueller Anne Sutton Jeff Gelfand Doug Porter Gadi Weinreich /PBTF_events /PBTF /curethekids AJ Janower John Ragnoni Kurt Yndestad Chase Jones Susie Rossick Brady Young 302 Ridgefield Ct, Asheville, NC 28806 • (800) 253-6530 Larry Little Jill Scognamiglio Kristin Young

Download a copy of this annual report: curethekids.org/impactreport