2017 Annual Impact Report Care. Cure. Thrive. More than 28,000 U.S. children live with a brain tumor. If we put our heads together, we can save theirs. DEAR FRIENDS, With the launch of our new, three-year strategic plan in projects focused on leveraging partnerships with 2017, we refreshed our mission to “Care. Cure. Thrive.,” other nonprofits dedicated to this community. reflecting our commitment to support children and families throughout their brain tumor journey. We continue to build partnerships for greater impact because we can’t achieve our vision of “A world Last year, we expanded our footprint with our without childhood brain tumors” alone. With your Georgia, California and Illinois chapters leading help, we’ll invest in the most promising research and the way to provide greater on-the-ground support. support to give all kids what they deserve – a long, Starting this year, we’ll unpack the results of a healthy life! nationwide Community Health Needs Assessment we commissioned to guide the expansion of programs to WITH DEEP GRATITUDE, help fill the most critical gaps identified by families and healthcare providers. Last June, pursuing the “cure” component of our mission, we convened leaders from the research and medical community, the pharmaceutical industry, governmental agencies and patient advocacy groups to steer our future research investments, including an exciting immunotherapy initiative. Our 2017 research Robin Boettcher, Doug Porter, President and CEO Board Chair HOW YOU HELPED IN 2017 31 $ $ 190 27, 335 11,654 38 $5.7M events donors event participants states raised FIGHTING FOR FUTURES A COMMITMENT TO CARE 78 The Pediatric Brain Tumor Foundation works every day to support families hospital in meaningful ways from the moment of diagnosis — no matter where the partners journey leads. With your support, we’re providing life-changing programs and resources to more families across the country. 2,073 AWARD-WINNING families served VIDEOS FOR KIDS PBTF and pro bono partner agency RPA launched the Imaginary Friend Society, a series of 20 animated films providing children answers, smiles and support after a brain tumor diagnosis. 380 free Starfolio resource 158,873 notebooks distributed video views to newly-diagnosed families CHAPTER SUPPORT Georgia, California and Illinois Chapters $416,000 grew their on-the-ground support, serving EXPANDED SPANISH in emergency financial more families through weekly hospital RESOURCES assistance provided visits, care package deliveries, peer mentoring and educational programs. Reached more Spanish-speaking families by creating an online family profile form in Spanish and providing 103 translators at programs. We also hosted a Spanish-language support survivors awarded group and family camp. college scholarships CURES THROUGH COLLABORATION $1.7M 35 $ spent on research research centers & hospital support engaged EARLY CAREER DEVELOPMENT GRANTS Pratiti Bandopadhayay, MBBS, Marc Remke, MD, continued to see Kyle Walsh, PhD, accepted PhD, was named Assistant exciting developments in using a faculty position at Duke Professor of Pediatrics at Harvard mass spectrometry to analyze University, giving him Medical School and opened a lab at medulloblastoma proteins. Our the opportunity to continue Dana-Farber Cancer Institute using investment has helped him obtain pursuing neuro-epidemiology and cutting-edge genomics to identify additional funds for this breakthrough usher in a better understanding pediatric brain tumor drivers and work, with preparations underway of the underlying causes of develop targeted therapies. to release these discoveries from pediatric brain tumors. translational research in 2018. RESEARCH GRANTS Pacific Pediatric Neuro-Oncology Consortium PNOC’s PBTF-supported Operations Center at the University of Duke University California, San Francisco is essential to the consortium’s overall Research developments into a novel vaccine for recurrent success, coordinating activities across all participating research medulloblastoma resulted in a new clinical trial for children centers and clinical trial protocols. In 2017, PNOC added five and adolescents that will open this year. new research sites worldwide for a total of 18, and opened three new clinical trials. The Hospital for Sick Children, Toronto, Canada Michael Taylor, MD, PhD, FRCS(C) co-led and authored a Project:EveryChild, The Children’s Oncology Group groundbreaking study revealing new medulloblastoma Because of PBTF support, children with brain tumors are subtypes. As one of the largest genomic sequencing efforts on well-represented in Project:EveryChild, a biobank helping labs a single type of human cancer, the results will help advance develop more personalized treatments for children with cancer. more targeted, less toxic treatments for this highly malignant By funding children’s brain tumor tissue collection at 114 brain tumor. hospitals, the PBTF is helping to preserve today’s tissue samples for tomorrow’s breakthroughs. Together to Care. Cure. Thrive. Our nonprofit funding partners, joining forces to care for and cure the kids! Bryan’s Dream Foundation The Kyrie Foundation Christopher Brandle Joy of Life Foundation Catching Up With Jack Meagan’s Walk Foundation Keris Kares Foundation Coverys Community Healthcare Foundation Soar with Grace 2017 FINANCIALS $ Of the funds spent, 76.1% was invested in the mission. Revenue Expenses $5,730,444 $5,985,760 98.1% Public Contributions: $5,620,898 76.1% Programs: $4,553,433 1.9% Investment Income: $109,546 12.1% Management: $725,025 Ending net assets of $1,382,804 11.8% Fundraising: $707,302 Source: Pediatric Brain Tumor Foundation’s Form 990 for the year ending Dec. 31, 2017 WE COULDN’T DO IT WITHOUT YOU $ Windrock ATV Club of Oliver Springs $100,000 & Greater $5,000 to $9,999 Karen & Jeff Yeager American Honda Motor Co. Ace American Insurance Co. Zenith Insurance Company Coverys Community Healthcare Foundation ADP Genentech Foundation Advisors Charitable Gift Fund $2,500 to $4,999 Aetna Victory Automotive Group Aardvark Trash Aflac; Continental American Insurance Company Accident Fund $50,000 to $99,999 Aidan’s Miles for Smiles Alixandra Collections Estate of Yuergen Boehmke Allstate Foundation American Endowment Foundation Christopher Brandle Joy of Life Foundation American Legion Post 117 American Honda Finance Aileen S. Andrew Foundation EcoMedia American International Group Anixter Hardee’s Restaurants Ameritas Life Insurance Margaret M. Bloomfield Family Foundation Apex Friendship Patriots Athletic Club J. Smith Lanier & Co. Bring A Trailer Media Apexone Investment Partners Builders Insurance Group Arch Insurance Group $25,000 to $49,999 Sean Burke Bryan’s Dream Foundation Atlanta Association of Insurance & Financial Advisors Car Show 4 Kids Fundraiser Anthony Avello Denise & David Chase Catching Up with Jack Bank of America Charitable Foundation Cole-Crone Family Foundation Charlotte Volleyball Academy Andrew Baron Keris Kares Chatlos Foundation Barter Company Nielsen Enterprises CIGNA Health & Life Ins. Co Tim Bielski North Henderson High School CNA Cont Casualty Company Big Bear Trail Riders Pi Kappa Alpha Fraternity - Mu Beta Chapter CWS Team Incorporated Blue Cross Blue Shield of Georgia Wintrust Financial Corp Edward DeBartolo Violet Brown Memorial Joyce & Scott Derrickson Charli & Dave Carter $10,000 to $24,999 Enbridge Foundation CDH Construction A Taste of Italy Epic City & County Credit Union Albertsons Companies Foundation Fidelity Charitable Gift Fund Club of Hearts AmWINS Brokerage of Georgia Billy Foreman Fund Cole Family Charitable Foundation Angier Bike Fest Georgia Theatre Company - II Kim & Christopher Collins Batchelor Foundation John Goins Comerica Bank Hap’s Gulf Coast Riders Stephen & Mary Birch Foundation Ellie & Alan Cowfer HarbisonWalker International C. R. Bard Foundation Bob’s BMW Kathy & Jerry Hart CRC Insurance Services Jim & Marisa Bowen Hartford Insurance Crystal Family Foundation Carolina Comfort Air Gordon Hartman Family Foundation Gary Darkens Karen & Steve Chaikin Hexberg Family Foundation Diverse Label Printing Sandra Chaikin Honda Federal Credit Union Pam & David Ellis Charlotte Christian School I.B.E.W. Local 617 Enterprise Holdings Foundation Kathleen & Tony Ferrito IBM Employee Service Center Equifax GEICO Philanthropic Foundation Imperial Recycling Ergon Jason Gladwell LeAnn & Ernest Jackson Everett Powersports Grayson’s Gift Foundation William R. Johnson Family Foundation FCCI Insurance Group Gloria & Richard Kerns Great American Insurance Company Freedom Pay Stephanie Kerrish FT Cares Foundation Brenda Hill Lake Cable Jeff Gable Lauren & Johnathon Hodges LexisNexis Risk Solutions Stephanie & Miron Guriel Honda Manufacturing of Alabama Liberty Mutual Group Bo Hamilton Honda of America Manufacturing Los Angeles Trial Lawyers’ Charities Hanover Insurance Howard Family Foundation Morgan Martinez Gregg Hanson Scott Hudgens Family Foundation McDowell Pile King Robert Heilbron Insurance Industry Charitable Foundation-GA Chapter Jennifer & Sean McGrath Heritage Properties Kaiser Permanente Gregg Miller Herman Miller Cares Linda Tallen & David Paul Kane Educational & Maria Morabito Deborah Hills Research Foundation Mungenast Foundation HM Life Insurance Company Mungo Homes of North Carolina Jill & Chris Kernion Hodges-Mace Nationwide Mutual Insurance Company Honda Marysville Motorsports Chris & Tahnee Kirk Foundation Nehemiah Investments Houston Area #1 HOG Fanny & Svante Knistrom Foundation James & Colleen Newman HSC Carriere