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Letter from the Editor EDITION 14 JUNE 2009 PAGE 2 Letter from the Editor Dear Friends and Colleagues of Autism South Africa Well here we are, nearly mid-year and I cannot believe how fast the months are flying by. You will read in the National Directors report just how these past few months have kept us on our toes and as busy as ever. We have a wonderful variety of articles in this Edition of Aut-Talk especially articles written by people with Autism Spectrum Disorder (ASD). On the front page of this edition you will see photographs of “mums around the world”. Please visit our webpage and click on the link to watch the DVD, “Delivering where Governments have failed— mums around the world”, www.autismsouthafrica.org. Pauline Shelver On the back page of the Aut-Talk you will see that we have included our awareness poster and ask [email protected] you to please cut it out and ask your office or your local grocery store to put it on their notice board. I do hope you enjoy Edition 14 and invite you to write to me at: [email protected] We also welcome any informative articles on autism or an article on your personal journey with autism. Kind regards and best wishes to you all Pauline Shelver—Outreach Officer “If a man does not keep pace DISCLAIMER with his Information disseminated by Autism South Africa is for information purposes companions, only. perhaps it is The onus rests with the reader to explore and investigate the relevant informa- because he hears a tion and alternatives for each individual. different Information sent out does not imply that Autism South Africa underwrites or drummer. endorses any particular therapy, intervention, method or medication. Autism Let him step South Africa assumes no responsibility for the use made of any information to the music provided herein. he hears, however measured or far away”. Henry David Thoreau Letters Dear Pauline Dear Pauline My name is Anrie and I live in the Lydenburg Many thanks to forward the latest edition area. I would like to establish an Autism of Aut-Talk to me. As a South African, Spectrum Disorder (ASD) support group in working in the field of autism in the UK, my area. If anyone is interested in joining it is always great to read how things in this support group they can contact me at the world of autism is developing in SA. [[email protected]] Best of luck with all the great work. Kind regards Kind Regards Anrie Carstens Guillaume Olivier EDITION 14 PAGE 3 Dear Editor, (they are held twice a year) will Dear Editor find it difficult to describe them I was disappointed with your decision as “fringe” movements. These Thanx a lot for the Aut - Talk -still to include the Daily Mail article “The conferences do remain avant- enjoying it as always!! Good job Great Autism Rip-Off” in Edition 13 of garde, but it is exciting to see well done! Aut;talk. The role of your magazine is that larger conferences such as not to indiscriminately publish points of Autism One now include a num- Marieta du Raan view on autism, but rather discern be- ber of biomedical topics previ- parent Unica School Pretoria tween the articles that enlighten and ously only found at DAN! Con- educate, and those that frankly do a ferences. disservice to the autism community. Our son is by no means Our family spent two years in South “recovered”, and he may turn Africa seeking better therapy for our out to be a non-responder to a 19 – 23 October 2009 son, now 6, who was born in Belgium. number of interventions we are Leriba Lodge, 245 End Avenue, Clubview, Centurion We were told by the “specialists” before attempting. But to focus on dis- You are invited to participate in the 2nd Paediat- leaving Belgium that any biomedical credited therapies – and yes, ric Neuropsychology Symposium intervention such as a restrictive diet they do exist, eg “Holding Ther- taking place in Gauteng. 36 CPD Points had no scientific basis, was unproven, apy” or “Facilitated Communica- The aim of the symposium: and was a waste of time. This is exactly tion” - while ignoring that other To provide you, within a single week, with a firm the view of the Daily Mail article. ”alternative” therapies of today and complete grounding in the principles and will be tomorrow’s accepted practice of paediatric neuropsychology – from In South Africa we tried out the dietary norm, is to effectively stop seek- the anatomy of the developing brain to neuro- interventions, starting with a GF/CF diet ing answers. Considering the psychological disorders, neuropsychiatric pres- entation and radiology. The symposium will also and have never looked back. It helped complex nature of autism, it is facilitate a networking initiative across South that we found nutritionists, tutors, clear that what works for one Africa for those working with children with neuro- nurses and doctors in the open- child may not work for another. logical and neuropsychiatric difficulties. minded, “new world” South Africa, who But that is no reason not to pass Topics: Refresher Day (Optional) were supportive of our inquiring mind on knowledge or news of the Monday 19 October 2009 when it came to our son’s therapies. child that did benefit from the This is intended for those who are new to Paedi- Now, numerous “alternative therapies” , “alternative” therapy. Or discour- atric Neuropsychology, or who are not familiar two dozen books, and 6 conferences age others from trying. with the role of the Paediatric Neurologist, or for those who have little or no knowledge of brain later (2 DAN!, an Autism One, Autism is anatomy. Treatable, and a timid Autism Europe), Aut;talk should not succumb to Days Talks my wife and I are no longer influenced, the argument that reporting Introduction to Paediatric Neuropsychology: the but angered, when we hear criticism of about alternative therapies ABC’s those who are helping us to understand would give parents “false hope”, An Overview of Paediatric Neurology Introduc- autism and heal our children. and that the only true message tion to Neuroanatomy is one which involves resigna- This includes a practical in the lab. Indeed, the insult, in the last paragraph tion to autism. If the word “cure” The Main Symposium of the article, to DAN!, the organization is not acceptable, Aut;talk Tuesday 20 October to Friday 23 October founded by Bernie Rimland, a true hero should at the very least consider 2009—Leriba Lodge Developmental Neuroanatomy (Brain Develop- in the autism community, is all the more the slogan “autism is treatable” , ment) Neuropsychiatry of shocking considering the third “Myth” as inferred by the article on die- Stroke in Children quoted on the cover of aut;talk [“Autism tary intervention, which Aut;talk Introduction to Paediatric Neuroradiology (Brain is due to parental rejection or cold, un- also published. Aut;talk should CT and MRI in Children) emotional parents”], together with its also recognize that parents who Neuropsychiatry of Paediatric Head Injury “Reality” [“Autism has nothing whatso- are driven by hope will be better Introduction to Paediatric Neuropathology Plas- ever to do with the way parents bring motivators for their child with ticity or vulnerability - the Impact of Early Child- up their children”] . Back in the 1960’s, autism. And who knows, maybe hood Brain Injury Personality Change and Child Head Injury Bernie Rimland was the first person to one child will make dramatic Traumatic Brain Injury: Outcomes, Predictors seriously shoot holes in this progress thanks to one of these and Interventions “refrigerator mother” theory upheld by “alternative therapies” learned Perceptual Disorders in Children Bruno Bettelheim, which had set back about in Aut;talk. To support this Assessment of Attention and Executive Func- autism treatment by 30 years. In- view, just read Jenny Mc tion in Children stead, Rimland began gathering evi- Carthy’s book, or listen to her Current Approaches to Diagnosis and Treat- dence from parents who were seeing tell her story. ment of Childhood Epilepsy improvements in their child’s autistic Aut;talk should remain loyal to Neuropsychology of Childhood Epilepsy symptoms through supplementations the spirit of South Africa: “It’s Neuropsychology of Autistic Spectrum Disorders Issues in Testing in Child Neuro- and diets, and thus was born the bio- Possible”. psychology in South Africa medical intervention approach. Anyone Christopher Le Jeune For information on the speakers and the full who attends a DAN! Conference today Wilmslow (Cheshire), UK programme please visit the website: PAGE Letter from the National Director Jill Stacey STAFF AT THE OFFICES OF AUTISM SOUTH AFRICA. In received varying reports of August 2008, we welcomed Claudia Ceresa as Office and Finan- people having seen us!! cial Administrator to the existing staff compliment of myself as National Director, Pauline Shelver as Out-Reach Officer and WEB PAGE: Pauline Shelver Abigail Kapeza as Resource Development Officer. Sadly at the has done a fantastic job on re- end of May this year Abigail left the employ of Autism South Af- vamping Autism South Africa’s web page and there is rica (ASA), to study Organisational and Industrial Psychology also now a “Chat Forum” link for all to chat, as well as through UNISA. “Service Provider Forum” that people may apply to join. As regards the employment of a person to fill the 4th post, we feel that in the present economic climate and also as we await feed- Please visit this site regularly, as there is a lot there and back on our application to the National Lottery Distribution Trust, we will be focusing on this as our main route of commu- we will wait a couple of months and then re-evaluate the employ- nication with our database in the future.
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